Neha9: multiple meds tried, getting bad side effects - please help

[Neha9]

  

I was taking venlor xr 37.5 mg (venlafaxine) for 1.5 years since 2019. (every alternate day) for Vertiginous migraine. Then stopped it in October2021 due to Covid. Post Covid for 9 months I was absolutely fine and had no symptoms.

 

Then Vertiginous Migraine started again in June 2022 – My symptoms were :-

Swaying – unstable 

Light, sound and motion sensitivity

Slight headache

Then the neurologists / Psychiatrists tried the below medicines since June 2022:- All these made me worse and now I am sensitive to medicines specially drowsy medicines.

June 

Venlor XR 37.5 mg (Venlafaxine extended release) - 2 tablets

July 

Pexep CR 12.5 mg (Paraxetine prolonged release)-1 tablet

Omnacortil 20 mg (Prodnisolone dispersable)-1 tablet

Vertin 8 mg-2 tablets

Sibelium 5 mg- half tablet

August 

Venlor XR 37.5 mg (Venlafaxine extended release)-1 tablet

Restyl 0.25 mg (Alprazolam)- half tablet -2 days

Valparin 200 mg- (sodium valproate)-1 tablet

Dilo DX syrup (Chlorpheniramine maleate with Dextromethorphan hydrobromide)- 5 ML for cough 

Lecope AD ( Levocetrizine , phenylephrine and ambroxol)- 1 tablet for sore throat

 

September

Provanol 20 MG – Half ( Propranolol hydrochloride tablets IP)- half tablet

Nexito 5 mg (escitalopram )- half tablet 

Provanol 10 MG – ( Propranolol hydrochloride tablets IP)- half tablet-2 days.

Rejunex CD 3 (Vitamin) – 1 tablet

Folinext  (Folic Acid and methylcobalamin) 1 tablet.

Homeopathy medicines.

Oct 1st- taken clonozopam -0.25Mg - only 2 tablets and stopped 

 

I am currently only taking :-

1) Thyroxine Sodium Tablets IP – 100 mcg (every morning empty stomach) for thyroid. 

2) Allegra M  (Fexofenadine hydrochloride and montelukast tablets) for Allergic rhinitis & hives. (Taking half tablet every alternate day since 2019.)

 

 

After the list of medications tried on me above now my symptoms have completely changed to the following below:

Current symptoms are:-

1) Body jerks -fingers, arms & legs- awake and sleeping 

2) involuntary muscle twitches.

3) Movement is jerky while I try to do things normally because of body jerks.

4) Brain shaking -back of the head vibrates continuously, going down to neck and upper back

5) Internal shaking – trembling-hands and legs

6) Pulsating sensation going down from the back of the brain to the rectum area to the legs.

7) Numbness and tingling-arms and legs -awake and sleeping.

😎 Swaying -feeling unstable while walking & talking.

9) Unable to sit – restless and weird sensation in the arms

10) Muscle pain.

11) Racing heartbeat when at rest.

12) Glass breaking sound in ears while swallowing which also causes headaches.

13) Motion, light and sound sensitive

14) Confusion.

 

 Plz help me I can’t bear the current symptoms and no medication is helping me , what medication should I take next so the above symptoms go away ??

 

Edited October 4, 2022 by ChessieCat
Resized font

[Neha9]

2nd Intro topic title: Rapid change of antidepressant/benzo/seizure meds

 

I was taking venlor xr 37.5 mg (venlafaxine) for 1.5 years since 2019. (every alternate day) for Vertiginous migraine. Then stopped it in October2021 due to Covid. Post Covid for 9 months I was absolutely fine and had no symptoms.

 

Then Vertiginous Migraine started again in June 2022 – My symptoms were :-

Swaying – unstable 

Light, sound and motion sensitivity

Slight headache

Then the neurologists / Psychiatrists tried the below medicines since June 2022:- All these made me worse and now I am sensitive to medicines specially drowsy medicines.

June 

Venlor XR 37.5 mg (Venlafaxine extended release) - 2 tablets

July 

Pexep CR 12.5 mg (Paraxetine prolonged release)-1 tablet

Omnacortil 20 mg (Prodnisolone dispersable)-1 tablet

Vertin 8 mg-2 tablets

Sibelium 5 mg- half tablet

August 

Venlor XR 37.5 mg (Venlafaxine extended release)-1 tablet

Restyl 0.25 mg (Alprazolam)- half tablet -2 days

Valparin 200 mg- (sodium valproate)-1 tablet

Dilo DX syrup (Chlorpheniramine maleate with Dextromethorphan hydrobromide)- 5 ML for cough 

Lecope AD ( Levocetrizine , phenylephrine and ambroxol)- 1 tablet for sore throat

September

Provanol 20 MG – Half ( Propranolol hydrochloride tablets IP)- half tablet

Nexito 5 mg (escitalopram )- half tablet 

Provanol 10 MG – ( Propranolol hydrochloride tablets IP)- half tablet-2 days.

Rejunex CD 3 (Vitamin) – 1 tablet

Folinext  (Folic Acid and methylcobalamin) 1 tablet.

Homeopathy medicines.

 Clonozopam -1 st Oct -2 tablets then discontinued as made the brain shaking worse 

 

 after  the list of medications tried on me above now my symptoms have completely changed to the following below:

Current symptoms are:-

1) Body jerks -fingers, arms & legs- awake and sleeping and brain shaking - back of head going to the back . 

2) involuntary muscle twitches.

3) Movement is jerky while I try to do things normally because of body jerks.

4) Brain shaking -back of the head vibrates continuously, going down to neck and upper back

5) Internal shaking – trembling-hands and legs

6) Pulsating sensation going down from the back of the brain to the rectum area to the legs.

7) Numbness and tingling-arms and legs -awake and sleeping.

😎 Swaying -feeling unstable while walking & talking.

9) Unable to sit – restless and weird sensation in the arms

10) Muscle pain.

11) Racing heartbeat when at rest.

12) Glass breaking sound in ears while swallowing which also causes headaches.

13) Motion, light and sound sensitive

14) Confusion.

 

Plz help me how do I stop the brain shaking , body myoclonus jerks and internal tremors ? What medicine should I take ??

 

Edited October 5, 2022 by ChessieCat
added Intro topic title before merging with intro topic and resized font

[Altostrata]

Welcome, @Neha9

 

On 10/4/2022 at 1:33 PM, Neha9 said:

I was taking venlor xr 37.5 mg (venlafaxine) for 1.5 years since 2019. (every alternate day) for Vertiginous migraine. Then stopped it in October2021 due to Covid. Post Covid for 9 months I was absolutely fine and had no symptoms.

 

I understand you went off venlafaxine in October 2021, with no apparent withdrawal symptoms after that.

 

Your prior migraine condition started up again in June 2022, followed by many psychiatric drugs you took for only short periods of time, each of them for only a few tablets at most. Is that correct? Since June 2022, have you taken any drug for a month or more?

 

At what point after June 2022 did the odd symptoms start, that were not part of your earlier vertiginous migraine condition?

[Neha9]

On 10/10/2022 at 2:52 AM, Altostrata said:

Welcome, @Neha9

 

 

I understand you went off venlafaxine in October 2021, with no apparent withdrawal symptoms after that.

 

Your prior migraine condition started up again in June 2022, followed by many psychiatric drugs you took for only short periods of time, each of them for only a few tablets at most. Is that correct? Since June 2022, have you taken any drug for a month or more?

 

At what point after June 2022 did the odd symptoms start, that were not part of your earlier vertiginous migraine condition?

Hi, thank u for ur reply, yes i took only one to two tablets of each psychiatric , anti seizure , benzo drug but none of the above agreed with me and I’m still struggling since June 2022. My odd symptoms started while they were trying these drugs on me. I never had these odd symptoms before in 2019 during my vestibular migraine episode.

My biggest symptom which is worrying me right now is the brain shake / vibration feeling which starts from the back of my head going down till the rectum , also to the hands and legs. The doctor now in October 2022 recently tried clonozopam 0.25 - half tablet for 3 days which I could not tolerate so he switched me to propranolol - 2.5 Mg for 3 days which also I was unable to tolerate.

Could u plz suggest what can I take as even the smallest dose of medicines I am unable to tolerate and I’m really suffering. Sorry for the late reply i couldn’t see my phone as I was very unwell. plz help me! Thank u !! 

[Altostrata]

I can't say what was going on before you took psychiatric drugs. I don't know anything about vertiginous migraine. 

 

On 10/14/2022 at 2:18 AM, Neha9 said:

brain shake / vibration feeling which starts from the back of my head going down till the rectum , also to the hands and legs.

 

It's possible this represents an adverse reaction to the psychiatric drugs. Your nervous system might have been made vulnerable by covid-19, though you didn't feel those effects for a while. 

 

There might also have been something that triggered mysterious neurological effects that are associated with long covid, about which very little is known.

 

I do not think you have protracted withdrawal from going off Effexor in October 2021. I do not know why your vertiginous migraine condition came back. 

 

If you have bad reactions to psychiatric drugs, I would not take them. We cannot reverse them, we advise people that they will very gradually go away. 

 

We cannot tell you how to treat the symptoms you have. Your situation is beyond our peer support abilities. If I were you, I'd continue to talk to neurologists, not psychiatrists, and perhaps look into very low doses of seizure drugs, not psychiatric drugs, for your symptoms. But I cannot predict if this will work or if you will have a bad reaction to any of these drugs.

[Neha9]

I think I am having adverse side effects of all the Psychiatric & seizure drugs that were tried on me  ( trail and error by neurologist and psychiatrist). Even though I took very small dosages of it , I still feel they messed up my nervous system as I have constant brain shaking and tremors.  Also all the neurologist & psychiatrist dismiss me saying that these symptoms could not be becoz of the trial & error here in india even though when I tell them that all these symptoms started only after trying these drugs and I have never had them before. 

If possible could u plz suggest what natural remedies I could do to reverse the side effects of these drugs? Also when u say the symptoms gradually will go away, any idea how many months does it take for them to go away as i am currently drug free.
Thank u , will wait for ur reply !! Appreciate all ur help!! 

[Altostrata]

I don't know what remedies might reverse your symptoms.

 

Many people with withdrawal symptoms find fish oil and magnesium supplements helpful, see

 

https://survivingantidepressants.org/index.php?/topic/36-king-of-supplements-omega-3-fatty-acids-fish-oil/

 

https://survivingantidepressants.org/topic/15483-magnesium-natures-calcium-channel-blocker/

 

You might try a little bit of one at a time to see how it affects you.

 

Please do this before further discussion: Please summarize your drug and withdrawal history in your signature