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untanglingtheweb: not doing well - need some advice

untanglingtheweb

By untanglingtheweb
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untanglingtheweb

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Like most, need some advice. Not doing well

 

Hi there,

I'm struggling, big time. I was on Paxil 20mgs for two decades until it pooped out about 3 years ago and I was 'tapered' off the wrong way, and onto other drugs. Crashed in 2019, after tapering off paxil, and onto lithium. Never thoughts of suicide, just crying and inability to function. Since then, I've been on a revolving door of drugs, and in the past year have been on and off multiple.

 

Currently: Trazodone 100 mg/pm, desvenlavaxine Er 50mg/am, clonidine .05mg/pm, xanax er .5mg/pm, quetiapine 12.5mg/pm, amlodipine 5mg/am, losartan 100 mg/pm, synthroid 125mcg/am, compounded t3 7.5mg/am & pm. Also taking, calcium, vitamin e, vitamin d3 + k2, curcurmin, mag glycinate, red yeast rice, zinc.

 

Crying on and off most days, hard to function, although I am holding down a job. Tinnitus is constant, though it is better and worse at times -- can't pinpoint trigger. Everything seems to be better afternoon for a few hours. Sleeping 5-6 hrs, with 5:30am wakeup with both anxiety and intense sadness. Am starting a part time job next week, full time seems to be too much. Trouble eating. Widowed 7 yrs ago, after caring for sick husband for 10 years. Only daughter just finishing grad school and lives 2 hrs away. No family close. Friendships have waned since COVID. 

 

Family doc doing prescribing, and I now know has not been doing the best job, and his method of tapering is mainstream. I feel like I'm in PAWS from multiple drugs at this point, and having side effects from the desvenlafaxine. I've put everything in the drug tracker, and now realize I could be experiencing mild serotonin syndrome, too. I don't know where to start. I don't have a doc onboard that is truly understanding. I just know (crying as I type) that I can't continue like this. I'm experiencing neuro-emotions beyond belief.

 

And after advocating for my sick husband for 10 years, can't believe how difficult it is to advocate for myself while I'm the sick person. I need some guidance and hand holding, please. Where do I begin to help myself stabilize and get off of these drugs? The depression/anxiety is so much worse now than when I got onto the drugs, or even when I changed drugs to 'help more'. 

 

Thanks in advance for your guidance and kindness.

 

Edited by ChessieCat
added topic title before shortening
2

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

  • ChessieCat changed the title to untanglingtheweb: not doing well - need some advice
untanglingtheweb Rookie

untanglingtheweb

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  • Author
Posted

Hi all,

 

Not sure why this hasn't been approved for publication, and not quite sure how to use this site yet. Is this how I post an update? How do I view responses?

 

I'd like advice on what to do next? I need advice on where to start a taper, and how to handle this every morning anxiety and gut wrenching feeling of sadness/loneliness. I apologize for being all over the place -- just overwhelmed with what is happening/has happened to me regarding all of this. As I've read, all of us wish to be healed! And find a life that we can recognize as 'good.'

 

I have the desire to just stop all of it! I did get a scholarship to work with the Docs at FreeRange, and I intend to visit with them asap. I am, however having difficulty with finding someone to prescribe a taper. I'm hoping, with the recommendations of FreeRange, I can present to my current NP and see if she will cooperate. 

 

I feel like such a loser ... how did I get here? How did I allow this to happen to me? I know this kind of thinking doesn't help me, but it is where I am right now. 

 

Here is my drug interaction list:

I kinda can't believe the interactions. My doc who has been prescribing both psych meds and thyroid meds has totally been following me with labs at appropriately. He doesn't, however, get 'tapering' in the same sense as everyone here. 

Medication Interactions

 

Pristiq (desvenlafaxine) interacts with Trazodone.

Using traZODone together with desvenlafaxine can increase the risk of a rare but serious condition called the serotonin syndrome, which may include symptoms such as confusion, hallucination, seizure, extreme changes in blood pressure, increased heart rate, fever, excessive sweating, shivering or shaking, blurred vision, muscle spasm or stiffness, tremor, incoordination, stomach cramp, nausea, vomiting, and diarrhea. Severe cases may result in coma and even death. You should seek immediate medical attention if you experience these symptoms while taking the medications. Talk to your doctor if you have any questions or concerns. Your doctor may already be aware of the risks, but has determined that this is the best course of treatment for you and has taken appropriate precautions and is monitoring you closely for any potential complications. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

 

Seroquel (quetiapine) interacts with Xanax XR (alprazolam).

Using ALPRAZolam together with QUEtiapine may increase side effects such as dizziness, drowsiness, confusion, and difficulty concentrating. Some people, especially the elderly, may also experience impairment in thinking, judgment, and motor coordination. You should avoid or limit the use of alcohol while being treated with these medications. Also avoid activities requiring mental alertness such as driving or operating hazardous machinery until you know how the medications affect you. Talk to your doctor if you have any questions or concerns. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

 

Pristiq (desvenlafaxine) interacts with Seroquel (quetiapine).

Using QUEtiapine together with desvenlafaxine may increase side effects such as dizziness, drowsiness, confusion, and difficulty concentrating. Some people, especially the elderly, may also experience impairment in thinking, judgment, and motor coordination. You should avoid or limit the use of alcohol while being treated with these medications. Also avoid activities requiring mental alertness such as driving or operating hazardous machinery until you know how the medications affect you. Talk to your doctor if you have any questions or concerns. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

 

Pristiq (desvenlafaxine) interacts with Xanax XR (alprazolam).

Using ALPRAZolam together with desvenlafaxine may increase side effects such as dizziness, drowsiness, confusion, and difficulty concentrating. Some people, especially the elderly, may also experience impairment in thinking, judgment, and motor coordination. You should avoid or limit the use of alcohol while being treated with these medications. Also avoid activities requiring mental alertness such as driving or operating hazardous machinery until you know how the medications affect you. Talk to your doctor if you have any questions or concerns. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

 

Pristiq (desvenlafaxine) interacts with Clonidine.

Desvenlafaxine may reduce the effects of cloNIDine. You may need a dose adjustment or more frequent monitoring of your blood pressure if you have been taking cloNIDine and are starting treatment with desvenlafaxine. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

 

Seroquel (quetiapine) interacts with Cozaar (losartan).

QUEtiapine and losartan may have additive effects in lowering your blood pressure. You may experience headache, dizziness, lightheadedness, fainting, and/or changes in pulse or heart rate. These side effects are most likely to be seen at the beginning of treatment, following a dose increase, or when treatment is restarted after an interruption. Let your doctor know if you develop these symptoms and they do not go away after a few days or they become troublesome. Avoid activities requiring mental alertness such as driving or operating hazardous machinery until you know how the medications affect you, and use caution when getting up from a sitting or lying position. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

 

Seroquel (quetiapine) interacts with Amlodipine.

QUEtiapine and amLODIPine may have additive effects in lowering your blood pressure. You may experience headache, dizziness, lightheadedness, fainting, and/or changes in pulse or heart rate. These side effects are most likely to be seen at the beginning of treatment, following a dose increase, or when treatment is restarted after an interruption. Let your doctor know if you develop these symptoms and they do not go away after a few days or they become troublesome. Avoid activities requiring mental alertness such as driving or operating hazardous machinery until you know how the medications affect you, and use caution when getting up from a sitting or lying position. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

 

Seroquel (quetiapine) interacts with Trazodone.

Using traZODone together with QUEtiapine can increase the risk of an irregular heart rhythm that may be serious and potentially life-threatening, although it is a rare side effect. You may be more susceptible if you have a heart condition called congenital long QT syndrome, other cardiac diseases, conduction abnormalities, or electrolyte disturbances (for example, magnesium or potassium loss due to severe or prolonged diarrhea or vomiting). Talk to your doctor if you have any questions or concerns. Your doctor may already be aware of the risks, but has determined that this is the best course of treatment for you and has taken appropriate precautions and is monitoring you closely for any potential complications. You should seek immediate medical attention if you develop sudden dizziness, lightheadedness, fainting, shortness of breath, or heart palpitations during treatment with these medications, whether together or alone. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

 

Xanax XR (alprazolam) interacts with Clonidine.

Using cloNIDine together with ALPRAZolam may increase side effects such as dizziness, drowsiness, confusion, and difficulty concentrating. Some people, especially the elderly, may also experience impairment in thinking, judgment, and motor coordination. You should avoid or limit the use of alcohol while being treated with these medications. Also avoid activities requiring mental alertness such as driving or operating hazardous machinery until you know how the medications affect you. Talk to your doctor if you have any questions or concerns. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

 

Seroquel (quetiapine) interacts with Clonidine.

QUEtiapine and cloNIDine may have additive effects in lowering your blood pressure. You may experience headache, dizziness, lightheadedness, fainting, and/or changes in pulse or heart rate. These side effects are most likely to be seen at the beginning of treatment, following a dose increase, or when treatment is restarted after an interruption. Let your doctor know if you develop these symptoms and they do not go away after a few days or they become troublesome. Avoid activities requiring mental alertness such as driving or operating hazardous machinery until you know how the medications affect you, and use caution when getting up from a sitting or lying position. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

 

Cozaar (losartan) interacts with Trazodone.

Losartan and traZODone may have additive effects in lowering your blood pressure. You may experience headache, dizziness, lightheadedness, fainting, and/or changes in pulse or heart rate. These side effects are most likely to be seen at the beginning of treatment, following a dose increase, or when treatment is restarted after an interruption. Let your doctor know if you develop these symptoms and they do not go away after a few days or they become troublesome. Avoid driving or operating hazardous machinery until you know how the medications affect you, and use caution when getting up from a sitting or lying position. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

 

Cozaar (losartan) interacts with Xanax XR (alprazolam).

Losartan and ALPRAZolam may have additive effects in lowering your blood pressure. You may experience headache, dizziness, lightheadedness, fainting, and/or changes in pulse or heart rate. These side effects are most likely to be seen at the beginning of treatment, following a dose increase, or when treatment is restarted after an interruption. Let your doctor know if you develop these symptoms and they do not go away after a few days or they become troublesome. Avoid driving or operating hazardous machinery until you know how the medications affect you, and use caution when getting up from a sitting or lying position. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

 

Trazodone interacts with Xanax XR (alprazolam).

Using ALPRAZolam together with traZODone may increase side effects such as dizziness, drowsiness, confusion, and difficulty concentrating. Some people, especially the elderly, may also experience impairment in thinking, judgment, and motor coordination. You should avoid or limit the use of alcohol while being treated with these medications. Also avoid activities requiring mental alertness such as driving or operating hazardous machinery until you know how the medications affect you. Talk to your doctor if you have any questions or concerns. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

 

Trazodone interacts with Clonidine.

CloNIDine and traZODone may have additive effects in lowering your blood pressure. You may experience headache, dizziness, lightheadedness, fainting, and/or changes in pulse or heart rate. These side effects are most likely to be seen at the beginning of treatment, following a dose increase, or when treatment is restarted after an interruption. Let your doctor know if you develop these symptoms and they do not go away after a few days or they become troublesome. Avoid driving or operating hazardous machinery until you know how the medications affect you, and use caution when getting up from a sitting or lying position. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

 
 

Liothyronine interacts with Trazodone.

A small series of cases has suggested that exogenous thyroid hormones may potentiate the antidepressant actions of trazodone. The mechanism of the interaction has not been completely elucidated.

 

Trazodone interacts with Synthroid (levothyroxine).

A small series of cases has suggested that exogenous thyroid hormones may potentiate the antidepressant actions of trazodone. The mechanism of the interaction has not been completely elucidated.

Medical Condition Interactions

 

Seroquel (quetiapine) interacts with Hypothyroidism, After Thyroid Removal.

During clinical trials, the use of quetiapine was associated with a dose-related decrease in total and free thyroxine (T4) levels that reached approximately 20% at the higher end of the therapeutic dose range and peaked within the first 2 to 4 weeks of treatment. Generally, the changes were of no clinical significance and were reversible following discontinuation of quetiapine regardless of the duration of treatment. TBG levels were not altered in any patient, while TSH increased in 0.4% (10/2386) of patients, some of whom required thyroid replacement therapy. Therapy with quetiapine should be administered cautiously in patients with thyroid disease. Closer monitoring of thyroid function may be appropriate following initiation or cessation of quetiapine.

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

  • Moderator Emeritus
Onmyway Grand Master

Onmyway

Posted
  • Moderator Emeritus
Posted

Dear @untanglingtheweb

welcome to SA. I am so sorry to hear you are struggling so much and have been put through the drug merry-go-round. 

Thank you for filling in your signature. However, it doesn't seem that it corresponds to the drug interaction checklist. I don't see current trazodone and xanax in your signature. Can you please add them? Or have you stopped them already. 

 

You seem to be suffering from withdrawal symptoms but may also be suffering from adverse drug reactions. During withdrawal our nervous system gets sensitized and when we get drugs added to our system they don't always get well tolerated.

Hypersensitivity and Kindling - Symptoms and self-care - Surviving Antidepressants

 

How is your general health? I see you are taking blood pressure meds. Have you recently had thyroid hormone checks as well?

One of the symptoms of withdrawal is overactivation - anxiety/restlessness. Sometimes if you are overmedicated with thyroid medicine you can have similar kind of activation as well. Would be a good thing to check. vitD can also be activating, so I suggest that if you are not deficient in it you may want to stop it or lower your dose or if you don't want to do  that, take it in the morning so it doesn't interfere with sleep. 

 

Here our goals are to 0) make sure there are no physical problems 1) achieve as much stability as we can with the cocktail that you have 2) start tapering after stability is achieved or if there are adverse reactions may need to do it even before stability is achieved 3) taper the most activating drug first so as to preserve sleep as withdrawal tends to be activating (in your case that would be pristiq) - we would save seroquel and xanax for last. In either case you are looking at a long road but hopefully with slow tapering that road will not be awful. We don't generally recommend tapering all of your meds at the same time but some people do that and lower them at a much slower rate - i.e. 2% a month of each medication. 

 

To help us help you better, would you be able to keep track of your symptoms and post them here? We want to see how your symptoms change as you take your medications in order to understand if any of them may be causing adverse effects. 

This would look something like this and as detailed as possible. We really want to know when you take the pills and at what doses. 

 

8 am wake up with terrors, 6 hrs of sleep, take vit D, clonidine, xanax 0.5mg, anxious

8:30 have breakfast - pancakes

9 - anxiety gets worse/better, doing crossword puzzles alleviates anxiety 

11 am meditate, feeling better 

12 - lunch, vit XYZ, medicine ABC

2 pm - depressed

4 pm anxiety gets better

6 pm have dinner - fish and chips, tea, pristiq 10mg, seroquel Xmg etc... 

10 pm sleep 

 

In the meantime, there are some non-drug techniques for managing symptoms. 

Non-drug techniques to cope with emotional symptoms - Symptoms and self-care - Surviving Antidepressants

 

I'd suggest The Dr. Claire Weekes method of recovering from a sensitized nervous system

 

This thread has tips on how to prevent and cope with the early morning awakenings. The good tips are halfway through the thread so keep reading. 

https://www.survivingantidepressants.org/topic/17471-early-morning-waking-managing-the-morning-cortisol-spike/#comment-41

 

Finally, we recommend magnesium and Omega-3. Magnesium tends to be calming. Start them one at a time at low doses. Because of the kindling/hypersensitivity, some people in withdrawal may react negatively to even benign supplements. 

 

You mention that you don't have a prescriber to support you in your tapering. It is a common issue. What many of us do is we taper ourselves and may not even discuss with our doctor what is happening. They keep prescribing the same doses and we make our own doses. It may be better to talk to your doctor about slow tapering first and if they protest you can either switch doctors or go on your own. In the US the idea of withdrawal is still not accepted (decades after) but the tides are changing so hopefully things will get better. Some prescribers are stubborn and can even 'fire' patients for mentioning withdrawal or insisting on a long tapering process. 

 

I am glad you found your way to us and we will do our best to sort out this awful mess the doctors have put you in and get you to stability. 

The good news is that everyone recovers albeit slowly!

 

OMW 

 

 

 

"Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig 

 

I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. 

 

In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. 

 

Aug  2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg,  xanax prn, wellbutrin for a few months, trazodone prn 

Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used)

Aug 2018 - citalopram 40 mg (self titrated up)

September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0

Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd

March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week

Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering)

citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg,  7/27/19 -1.5 mg,  8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg

 

Supplements: magnesium citrate and bi-glycinate

  • Administrator
Altostrata Grand Master

Altostrata

Posted
  • Administrator
Posted

Welcome, @untanglingtheweb

 

I am sorry you're having these problems. Your drug cocktail is ecccentric. If I were you, I would not take advice regarding psychiatric drug treatment from your prescriber again.

 

Quote

 

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, Losartan 100mg/pm, 5mg/pm, 

losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm

 

 

What dates were each of these drugs added?

 

Why are you taking LDN, losartan, and amlodopine? How was your thyroid health determined?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

untanglingtheweb Rookie

untanglingtheweb

Posted
  • Author
Posted

Hello, sorry my signature and descriptions are so messy. I’m Trying to learn how to navigate this site. I’m working on getting all my dates of changes/dosages together. I just didn’t keep track of all of that, relying on my med prescriber/s to do the best thing for me. Haha, joke’s on me. I know that I am ultimately responsible for my healthcare, but dang, when mental health is involved, and you’re flying solo, it’s tough!

 

Replying to @Onmyway and@Altostrata at the same time. 

 

I will start to log my doses of meds, times taken and symptoms/reactions today … 

I have the feeling I will need start to taper before stabilizing, as I have not been stable for quite some time and am likely experiencing both withdrawal and side effects at the same time if that makes sense.

 

I will look at the links you sent more in depth this week.

 

I’ve been on thyroid meds since having my thyroid partially removed at the age of 14 in 1978. I’ve been on a variety of them, but this combo of synthroid and compounded t3 have me well-controlled, and I’m very confident in the provider who writes for those, unfortunately, he is the same provider who has been writing for my psych meds as well. I am up to date on my thyroid labs, and he’s checked my d3 and a complete metabolic panel, and everything is good. 
 

I developed Hashimoto’s thyroiditis, was diagnosed with that in either 2019 or 2020 and that’s how I ended up on LDN. 
 

I’ve been on losartan since probably 2006 or 2007. When my husband became ill, my bp started to get out of hand. I do have a family hx of this, and I think both of my brothers are on losartan, as well.

 

The Amlodipine was added in by my cardiologist around 2019, as well. Now that I think about it, probably right after I suffered a concussion, and my psych meds started being changed, as well.

 

I apologize that I don’t have better dates regarding this information. Please bear with me while I do my best to reconstruct what has happened. Since my hospitalization (which was only 3 days long) in 2019, I have had 3 different med providers. I knew I was over-medicated, but didn’t know where or how to find help.

 

Do have an appt with my current med provider on Wed morning. He knows that I want to get off of, or at least to the smallest possible dose of my meds. But maybe I should wait on that? And I start a new job tomorrow … Oh, I’m so all over the place … again crying as I type. I just want to feel better!!

 

 

 

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

untanglingtheweb Rookie

untanglingtheweb

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Here's my times/dosages from yesterday:

5:30am - woke up, mind racing, tearful, turned on prayer app. Slight headache, tinnitus noticible, but regular.

6:30am - Took 125 mcg Synthroid, 7.5mcg t3 compound. Anxious, sadness, crying on and off, scrolling on phone and this site

7:30am - Had protein shake, out of bed, laundry. Shaky

9am - Amlodipine 5mg, Pristiq ER 50mgs, Zinc 22mg, Calcium supplement (Vit D 25mcg, Cal Citrate 250mg, Mag Oxide 50mg + boron/Vit K), Vit E 670mg, Vit C 1000mg, Fish Oil 1600mgs, Red yeast rice w/co-q10, 600/50mg, Curamed curcurmin supplement 375mg. Showered feeling shaky tearful, 

10am - increased tinnitus, feel like crying

10:30 - noticed headache

1:30pm - lunch, still some headache

2pm - Still tearful, tinnitus, headache

3:30pm - Took 2 800mg Tylenol for foot pain - I'm currently healing from a fracture. Laid down to rest, dozed, still tearful.

5:30pm - Made dinner, mood lifted a bit

6:45pm - Ate dinner, still tinnitus but less

9:30pm - Fell asleep on couch

10:30pm - Took Xanax .5mg, trazodone 100mg, losartan 100mg, mag glycinate 240mg, LDN 4.5mg, progesterone cream, .05 clonidine, 12.5 quetiapine

Asleep by 10:45 no waking until 4:30am

 

After reading quite a bit on this site, I think I may be experiencing xanax withdrawal in between doses? Please advise of any thoughts. I am struggling! 

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

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Altostrata Grand Master

Altostrata

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Posted
14 hours ago, untanglingtheweb said:

9am - Amlodipine 5mg, Pristiq ER 50mgs

 

Why do you take these 2 drugs at the same time?

 

14 hours ago, untanglingtheweb said:

10:30pm - Took Xanax .5mg, trazodone 100mg, losartan 100mg, mag glycinate 240mg, LDN 4.5mg, progesterone cream, .05 clonidine, 12.5 quetiapine

 

Why do you take these 7 drugs together at the same time? You've been taking Xanax at night for 7 years? When did you increase from 0.25mg to 0.5mg?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

untanglingtheweb Rookie

untanglingtheweb

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I have no solid reason to take Amlodipine and Pristiq at the same time, nor do I have reasons for taking all of my pm at the same time, except for the sake of simplicity - no one has guided me on that. And I switched from the Xanax .25mg prn to .50 mg ER about 2 yrs ago. The .50mg ER  was prn until this past year, when I became more unstable with drug changes, and now it’s an every evening thing.

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

untanglingtheweb Rookie

untanglingtheweb

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Posting as I can …

11/15

4:30 am Woke in sweat. Ruminating, anxious, teary, shaky

5:30am still in bed, tinnitus, nausea, fearful thinking

6:30am Took 125mcg Synthroid, 7.5mcg t3

headache beginning

9:10am Took Amlodipine 5mg, Pristiq ER 50mgs, Zinc 22mg, Calcium supplement (Vit D 25mcg, Cal Citrate 250mg, Mag Oxide 50mg + boron/Vit K), Vit E 670mg, Vit C 1000mg, Fish Oil 1600mgs, Red yeast rice w/co-q10, 600/50mg, Curamed curcurmin supplement 375mg (forgot to put this in list)

9:30am Ate Breakfast

11 am Increased tinnitus, some back pain

12:30pm protein shake

1:30pm heartburn, tinnitus, still feel like crying, no mood lift

5:30pm off work, first day, crying, jittery, anxious

6:30pm Tinnitus, no relief from mood

9:30pm Pain in R foot — due to potential broken bone, L thigh muscle twitch

9:45 4.5mg LDN, Mag Glycinate, fell asleep on couch

11:30pm Took Xanax .5mg, trazodone 100mg, losartan 100mg, progesterone cream, .05 clonidine, 12.5 quetiapine

@Onmyway

@Altostrata

 

 

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

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Altostrata Grand Master

Altostrata

Posted
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Posted
18 hours ago, untanglingtheweb said:

The .50mg ER  was prn until this past year, when I became more unstable with drug changes, and now it’s an every evening thing.

 

I'm not a doctor, but it seems to me that you take a ridiculous amount of psychotropics, especially at night, and it makes me uneasy that you have self-medicated with an even higher dose of Xanax that was supposed to be PRN but you've been taking regularly every day.

 

You're taking 8 neuro-active drugs plus progesterone. I cannot even imagine what this is doing to your blood pressure and heart.

 

Why are you taking LDN? When was that added? What effect has that had?

 

When did you reduce from 50mg quetiapine ER to 12.5mg? Is the 12.5mg immediate-release? What happened when you reduced it?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

untanglingtheweb Rookie

untanglingtheweb

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Posted

Thank you for your prompt responses! I did not self medicate with the Xanax, it was taken every night when I reduced the Quetiapine from 50 mg XR to 25 regular release, and then down to 12.5 mg, which was done over a period of about 2 weeks in late June 2022. I could not handle being totally off Quetiapine, so my doc said to stay on the 12.5mg and use the Xanax. It was also around then that I started looking into why I couldn’t get off of these drugs, and found SA. 
 

I have been taking LDN for quite some time,  more than a year at this point. And I’m not sure how much of a difference that really made.

 

You have me even more worried @Altostrata. I’m not sleeping much— 3-4 hrs, started a new job on Tuesday, the holidays are coming, and I’m crying everyday. Please give me some direction. I’m currently afraid of everything, am totally destabilized and have very little support. I’ve read a bunch on here, am trying to implement a bit more self-care.

 

Thanks again for your prompt responses. I appreciate them more than you know. 

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

untanglingtheweb Rookie

untanglingtheweb

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Hey all,

Looking for some words of encouragement. I am struggling today. My mom is returning to her hometown today after a 2 week visit. I just started a new job. My only daughter is living 2hrs away, and my meds are out of control. I need some lifting up!

Thanks!

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

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Altostrata Grand Master

Altostrata

Posted
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Posted

Why are you taking LDN in addition to the other 7 neuro-active drugs? Must you take it?

 

Quote

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch

 

Which of these drugs was added THIS MONTH, on what dates this month, and why?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

untanglingtheweb Rookie

untanglingtheweb

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Posted

None were added this month. I’m slowly reconstructing when each were added/changed. I am on LDN for Hashimoto’s thyroiditis. I’ve been on it for the past year, started in March 2021 — just located that note.

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

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Onmyway Grand Master

Onmyway

Posted
  • Moderator Emeritus
Posted (edited)
2 hours ago, untanglingtheweb said:

None were added this month. I’m slowly reconstructing when each were added/changed. I am on LDN for Hashimoto’s thyroiditis. I’ve been on it for the past year, started in March 2021 — just located that note.

Hi @untanglingthewebLDN is not i licensed for thyroiditis, your doctor sure seems to love prescribing things. J it's one of those drugs that some doctors seem to think is good for everything without any proof. Has it changed anything for you?

omw

Edited by Onmyway

"Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig 

 

I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. 

 

In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. 

 

Aug  2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg,  xanax prn, wellbutrin for a few months, trazodone prn 

Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used)

Aug 2018 - citalopram 40 mg (self titrated up)

September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0

Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd

March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week

Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering)

citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg,  7/27/19 -1.5 mg,  8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg

 

Supplements: magnesium citrate and bi-glycinate

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Altostrata Grand Master

Altostrata

Posted
  • Administrator
Posted

What I want to know is the month and year you started EACH of this batch of drugs and the medical necessity for each:

 

Quote

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch

 

I'm going to presume that there may be a medical basis for Losartan, amlodopine, and Synthroid, but I want to know why you are taking each of the others. It appears that perhaps more than one cook has been elaborating your cocktail.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

untanglingtheweb Rookie

untanglingtheweb

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Posted

I’ve added some of that info in my signature as well, but here’s what I have so far:

2015 - Not sure of month, started trazodone 50mg for sleep.

2019 - not sure of month, Clonidine started for anxiety. 1.0mg

2021 -  changed med provider

2021 - April started Pristiq 25mg for anxiety/depression, also restarted Paxil 12.5mg.

Sept 2021 Taken off Pristiq  over two weeks due to continued anxiety

2021 - Dec, clonidine reduced to .05mg

2022 - March, Quetiapine started at 12.5mg to help with anxiety, depression and sleep.

2022 - April - May, Quetiapine upped to 50mg XR. Felt crappy, tried to get off, reduced to 12.5mg. Stayed at 12.5 because of sleeplessness and night sweats while off. Also started current 50mg dose of Pristiq.

 

@Altostrata I’m really trying to help you as  best I can, my brain is obviously not working well. I know you need this information to be able to help me. 

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

untanglingtheweb Rookie

untanglingtheweb

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Posted

Regarding 2022 April-May Quetiapine - symptoms, ‘felt crappy’ means anhedonia, worsening exhaustion, depression, crying and just a general feeling of not being ‘right’

 

Also, in my signature, do you want the reasons for reductions, etc, or just the drugs and the dosage?

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

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Altostrata Grand Master

Altostrata

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Posted
2 hours ago, untanglingtheweb said:

just the drugs and the dosage?

 

It's fine as is.

 

What has LDN done for your thyroid?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

untanglingtheweb Rookie

untanglingtheweb

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I Regarding LDN, I am not aware that it has changed anything at this point. I can JM check with the Dr to see when we last tested my antibodies, as I don’t have any notes on it. I k is that he was hoping they it would make some difference in my mood, as well, but I haven’t noticed anything specific. Could it be an issue!

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

untanglingtheweb Rookie

untanglingtheweb

Posted
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Posted

Typed this last one from my phone, so sorry, here’s an edit … Regarding LDN, I am not aware that it has changed anything at this point. I can check with the Dr to see when we last tested my antibodies, as I don’t have any notes on it. I know that he was hoping it would make some difference in my mood, as well, but I haven’t noticed anything specific. Could it be an issue?

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

Rusdan Contributor

Rusdan

Posted
Posted

Many months ago I tried LDN for several weeks on the advice of an integrative psychiatrist. I got the LDN from a compounding pharmacy. The main symptom I experience in connection with withdrawal from fluoxetine is a combination of chronic derealization and low level but persistent anxiety. The complication with me is that I experienced long bouts of derealization (feeling disconnected from my surroundings) long before I stared taking any AD. I became interested in LDN because of one small study that showed its success in relieving DP/DR. I did not experience any help after a couple of months and stopped taking it owing especially to the side effects of disturbed sleep, more vivid dreams, and perhaps an increase in anxiety symptoms. Nevertheless, there is testimony that LDN has helped some people with depression/anxiety. plus a range of other disorders such as chronic pain. If you haven't already, you can check out the LDN Research Trust web site based in London. 

1987-1997 Tricyclic AD, Wellbutrin, Fluoxetine, Lithium, Ritalin

Fluoxetine 1997-2014, 2015, 10-40 mg. 

Bupropion 2013-14, 4 mos; Lexapro 2014; Cymbalta 2014. Gabapentin 2014; Mirtazapene 2014. Buspirone 2015.

Venlafaxine Dec. 2015 – May 2019, 150 mg, tapered to 0 in 3 weeks

Bupropion Mar 2017 – July 2019 300 mg, tapered to 0 in 3 weeks, July 2019

Fluoxetine May 2019 – present, tapered from 20 mg started Jan 2020; tapered to 0.31 mg/6.1 ml liquid as of -01-09-2024

Ultimate Omega 2X, 3800 mgs, 562 EPA/438 DHA;  Probiotic 1 cap

Magnesium Citrate, 2 caps, 400 mg

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Altostrata Grand Master

Altostrata

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Posted

@untanglingtheweb which of your many drugs are you willing to reduce?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

untanglingtheweb Rookie

untanglingtheweb

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Posted

I am open to suggestion on this. Which makes sense to reduce first? I would like to get off of as many as possible. @Altostrata

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

untanglingtheweb Rookie

untanglingtheweb

Posted
  • Author
Posted
On 11/20/2022 at 8:26 PM, Rusdan said:

 

Many months ago I tried LDN for several weeks on the advice of an integrative psychiatrist.

 

Thanks for sharing this information. I’ve been in such a tangle of drugs that it is difficult to tell what has helped, and what has made the things worse! 

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

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Altostrata Grand Master

Altostrata

Posted
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Posted

Suggest you go off LDN over a couple of weeks, by sequentially halving the dose every 4-5 days.

 

While you're doing this, please keep daily notes of times o’clock you take your drugs, their dosages, and your symptoms throughout the day. We need to know how you feel before and after taking each drug, and your symptoms in between. Post 24 hours of notes at a time in this topic, in a simple list format with time o’clock on the left and notation (symptom or drug and dosage) on the right.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

untanglingtheweb Rookie

untanglingtheweb

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Posted

Reasoning for getting rid of LDN first? And best way to do this is emptying capsules, weighing and refilling? Thanks in advance for the help!

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

untanglingtheweb Rookie

untanglingtheweb

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Posted

Reasoning for getting rid of LDN first? And best way to do this is emptying capsules, weighing and refilling? Thanks in advance for the help!

Have not made any change yet, had a window of better days, still with symptoms, but here's the last 2 days.

 

11/26

6:30am woke, rumination, eyelid twitching, tearfulness

7am Took 125mcg Synthroid, 7.5mcg t3

9:00am Took Amlodipine 5mg, Pristiq ER 50mg, Zinc 22mg, Calcium supplement (Vit D 25mcg, Cal Citrate 250mg, Mag Oxide 50mg + boron/Vit K), Vit E 670mg, Vit C 1000mg, Fish Oil 1600mgs, Red yeast rice w/co-q10, 600/50mg, Curamed curcurmin supplement 375mg (forgot to put this in list)

9:30am Ate Breakfast

11 am Headache

11:45 lunch

1:30pm heartburn, tinnitus, still feel like crying, no mood lift

5:30pm off work, crying, jittery, anxious

6:30pm dinner

7pm Tinnitus worse, no relief from mood

10:30pm 4.5mg LDN, Mag Glycinate, fell asleep on couch

11:30pm Took Xanax .5mg, trazodone 100mg, losartan 100mg, progesterone cream, .05 clonidine, 12.5 quetiapine

11:45pm Sleep

 

11/27

4:30am woke, rumination, eyelid twitching, crying, tinnitus - daughter leaving town today

6:30am  Took 125mcg Synthroid, 7.5mcg t3

9:00am Took Amlodipine 5mg, Pristiq ER 50mg, Zinc 22mg, Calcium supplement (Vit D 25mcg, Cal Citrate 250mg, Mag Oxide 50mg + boron/Vit K), Vit E 670mg, Vit C 1000mg, Fish Oil 1600mgs, Red yeast rice w/co-q10, 600/50mg, Curamed curcurmin supplement 375mg (forgot to put this in list)

9:20am Ate Breakfast

10:45 am Headache, tinnitus, foot hurting

11:45 nausea, crying on and off

2pm tinnitus worse, crying on and off, no mood lift

6:30pm dinner

7pm Tinnitus worse, no relief from mood

8pm Bath with epsom salts, mood lifted a bit

10:30pm Took 4.5mg LDN, Mag Glycinate, Xanax .5mg, trazodone 100mg, losartan 100mg, progesterone cream, .05 clonidine, 12.5 quetiapine

11:30pm Asleep on couch, went to bed

11:45pm Sleep

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

untanglingtheweb Rookie

untanglingtheweb

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11/28

5:30am  Woke up, tinnitus, jittery, tearfulness, mild sweat

6:45am Took 125mcg Synthroid, 7.5mcg t3

8:30am Crying on and off, ate breakfast

9:00am Took Amlodipine 5mg, Pristiq ER 50mg, Zinc 22mg, Calcium supplement (Vit D 25mcg, Cal Citrate 250mg, Mag Oxide 50mg + boron/Vit K), Vit E 670mg, Vit C 1000mg, Fish Oil 1600mgs, Red yeast rice w/co-q10, 600/50mg, Curamed curcurmin supplement 375mg

9:30am Headache

11 am Headache worse

11:30 Lunch, Headache gone

2:30pm tinnitus worse, wave of nausea

4pm Runny nose

6:30pm Dinner

8pm Heartburn, used AlkaSeltzer Gold

11:30pm Took 4.5mg LDN, Mag Glycinate, Xanax .5mg, trazodone 100mg, losartan 100mg, progesterone cream, .05 clonidine, 12.5 quetiapine

11:40pm Bath with epsom salts

12:10am Sleep

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

untanglingtheweb Rookie

untanglingtheweb

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11/29/22 - Reduced LDN

6:30am Woke with sadness, tearfulness, worry

7am Took 125mcg Synthroid, 7.5mcg t3, mild headache, tearfulness

8:30am Crying on and off

9:00am Breakfast, Took Amlodipine 5mg, Pristiq ER 50mg, Zinc 22mg, Calcium supplement (Vit D 25mcg, Cal Citrate 250mg, Mag Oxide 50mg + boron/Vit K), Vit E 670mg, Vit C 1000mg, Fish Oil 1600mgs, Red yeast rice w/co-q10, 600/50mg, Curamed curcurmin supplement 375mg, still mild headache

11:30 Lunch

2:30pm tinnitus worse

3pm - Itching inside ear canal, tinnitus less, mood lifted a bit

6:30pm - Dinner

8pm - Some worry, jittery

10:30 pm CHANGE - Reduced to 2.25mg LDN, Mag Glycinate, Xanax .5mg, trazodone 100mg, losartan 100mg, progesterone cream 50mg .05 clonidine, 12.5 quetiapine

11pm - Bed and sleep

 

@Altostrata just this one change for now, correct? I checked with the Dr on the reason for the LDN, and the reason was for a morning mood boost, motivation and some anti-inflammatory properties. Also, as I had COVID in January, he said it has potential to help with post-Covid brain fog, which I was struggling with.

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

untanglingtheweb Rookie

untanglingtheweb

Posted
  • Author
Posted

@Onmyway@Altostrata I have not heard anything from y’all in quite some time, and wondering if I’m lost in the shuffle or doing something incorrectly? I am trying to post daily times and dosing as best I can, and will post my daily times/dosing a bit later today.

 

I’m reading more on this site, I’m finding that I have been experiencing destabilization, side effects and/or withdrawal symptoms for quite some time. And I have not reported them here, as I did not realize they were all part of the package … I’m feeling super overwhelmed by the vast 

 

So to update, I’ve also been experiencing blurry vision, palpitations, joint pain, tinnitus, dizziness, dry eyes, GI issues … that’s what I can come up with so far. And these are in addition to what I’ve already reported.

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

  • Moderator Emeritus
Onmyway Grand Master

Onmyway

Posted
  • Moderator Emeritus
Posted

Hi @untanglingtheweb, 

during the time when I engaged with you you did not answer my questions so I haven't been following your thread. Alto has been following up with you and she will respond to your questions when she can.

 

Also, if I were you, I'd fire that doctor that keeps treating drugs like candy and prescribed a powerful psychotropic drug for things it is not approved for for which there is no evidence it helps (morning mood boost, anti-inflammatory properties). What they are doing is completely irresponsible. 


OMW

"Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig 

 

I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. 

 

In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. 

 

Aug  2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg,  xanax prn, wellbutrin for a few months, trazodone prn 

Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used)

Aug 2018 - citalopram 40 mg (self titrated up)

September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0

Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd

March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week

Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering)

citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg,  7/27/19 -1.5 mg,  8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg

 

Supplements: magnesium citrate and bi-glycinate

untanglingtheweb Rookie

untanglingtheweb

Posted
  • Author
Posted

Nov 30

6:30am  woke, rumination, tearfulness

7am  Took 125mcg Synthroid, 7.5mcg t3

9:00am  Took Amlodipine 5mg, Pristiq ER 50mg, Zinc 22mg, Calcium supplement (Vit D 25mcg, Cal Citrate 250mg, Mag Oxide 50mg + boron/Vit K), Vit E 670mg, Vit C 1000mg, Fish Oil 1600mgs, Red yeast rice w/co-q10, 600/50mg, Curamed curcurmin supplement 375mg Ate Breakfast

10:30am Worse tinnitus, Headache

11:45  lunch

Did not complete notes

 

 

Dec 1

6:30am  Woke, anxious, tinnitus, tearful, rumination.

7am  Took 125mcg Synthroid, 7.5mcg t3

9:00am  Ate Breakfast. Took Amlodipine 5mg, Pristiq ER 50mg, Zinc 22mg, Calcium supplement (Vit D 25mcg, Cal Citrate 250mg, Mag Oxide 50mg + boron/Vit K), Vit E 670mg, Vit C 1000mg, Fish Oil 1600mgs, Red yeast rice w/co-q10, 600/50mg, Curamed curcurmin supplement 375mg

11:30am  Tearfulness, less anxious, ate lunch

2pm  Headache, tinnitus

5pm  Headache less

6:30pm  Headache gone, tinnitus worse, dinner

11:30pm  Tinnitus still bad, anxiety increased. Took 2.25mg LDN, Mag Glycinate, Xanax .5mg, trazodone 100mg, losartan 100mg, progesterone cream, .05 clonidine, 12.5 quetiapine

11:45pm  Sleep

 

Dec 2

6am  Woke in sweat, anxious, tinnitus, tearful, rumination.

7am  Took 125mcg Synthroid, 7.5mcg t3, Headache

9:00am  Ate Breakfast. Took Amlodipine 5mg, Pristiq ER 50mg, Zinc 22mg, Calcium supplement (Vit D 25mcg, Cal Citrate 250mg, Mag Oxide 50mg + boron/Vit K), Vit E 670mg, Vit C 1000mg, Fish Oil 1600mgs, Red yeast rice w/co-q10, 600/50mg, Curamed curcurmin supplement 375mg

11:30am  Ate lunch.

12:30pm  tinnitus worse

2pm Headache

3:30pm  Blurry vision, muscle aches, racing thoughts

6pm Dinner, earlier symptoms diminished

10:30pm  Tinnitus still bad, anxiety increased. Took 2.25mg LDN, Mag Glycinate, Xanax .5mg, trazodone 100mg, losartan 100mg, progesterone cream, .05 clonidine, 12.5 quetiapine

11:00pm  Sleep

 

Dec 3

6am  Woke in sweat, anxious, tinnitus, tearful, rumination.

7am  Took 125mcg Synthroid, 7.5mcg t3, Headache

8:30am Breakfast

9:00am  Headache, sadness, tinnitus. Took Amlodipine 5mg, Pristiq ER 50mg, Zinc 22mg, Calcium supplement (Vit D 25mcg, Cal Citrate 250mg, Mag Oxide 50mg + boron/Vit K), Vit E 670mg, Vit C 1000mg, Fish Oil 1600mgs, Red yeast rice w/co-q10, 600/50mg, Curamed curcurmin supplement 375mg

1:30pm Ate lunch.

12:30pm  tinnitus worse

2pm Headache

3pm Bit of a mood lift.

6pm Dinner

10:30pm  Tinnitus worse, anxiety increased. Took 2.25mg LDN, Mag Glycinate, Xanax .5mg, trazodone 100mg, losartan 100mg, progesterone cream, .05 clonidine, 12.5 quetiapine

11:00pm  Sleep

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

untanglingtheweb Rookie

untanglingtheweb

Posted
  • Author
Posted
15 hours ago, Onmyway said:

Also, if I were you, I'd fire that doctor that keeps treating drugs like candy and prescribed a powerful psychotropic drug for things it is not approved for for which there is no evidence it helps (morning mood boost, anti-inflammatory properties). What they are doing is completely irresponsible. 


OMW

I'd fire him if I had someone else to prescribe for me. Out here in the great state of Nebraska, most docs are trained at a select few universities, with the same philosophy/mentality -- which is that withdrawal doesn't exist, and they need to prescribe something else or a different combination to address the current symptoms. It sucks. Any ideas to find another practitioner, other than what I've already read here on SA would surely be welcomed! 

 

Thanks so much for getting back to me! I appreciate it.

 

Untangling

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

  • Administrator
Altostrata Grand Master

Altostrata

Posted
  • Administrator
Posted
On 11/30/2022 at 11:34 AM, untanglingtheweb said:

I checked with the Dr on the reason for the LDN, and the reason was for a morning mood boost, motivation and some anti-inflammatory properties. Also, as I had COVID in January, he said it has potential to help with post-Covid brain fog, which I was struggling with.

 

If you want to go off your drugs, please stop getting psychotropic miracle cures from this doctor.

 

Why have you not yet stopped the LDN?
 

Clearly, something you're taking in the morning makes your tinnitus worse a few hours later. 

 

Have you reviewed adverse effects of every one of your drugs? Please research whether any of these cause or aggravate tinnitus:

125mcg Synthroid, 7.5mcg t3

Amlodipine 5mg

Pristiq ER 50mg

Red yeast rice w/co-q10

 

Do not ask your doctor, you have already established that his advice is unreliable.

 

On 11/10/2022 at 11:04 AM, untanglingtheweb said:

I did get a scholarship to work with the Docs at FreeRange, and I intend to visit with them asap.

 

What happened to this? Your case is very complex for peer support here. We do difficult work without any compensation, and your situation is even more difficult. You really should be seeing a doctor, who gets paid for this.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

untanglingtheweb Rookie

untanglingtheweb

Posted
  • Author
Posted

@Altostrata I have reduced the LDN by half starting on Nov 29, and just reduced it by half again last night.

 

I did have an initial visit with Dr Giordano at Free Range just before Thanksgiving. I have a second visit later this week. Nothing was changed at the first visit — I’ll let her know that I’ve begun reducing the LDN.
 

I just got home from work and have not had time to research the tinnitus and all the meds you mentioned. I did look up synthroid, and found research that says that just being hyper- or hypothyroid increases the odds of tinnitus issues. I had Graves’ disease as a teen, had my thyroid removed, and have been supplemented with synthroid ever since. So, there’s that. And Synthroid should help the tinnitus by relieving the hypothyroid symptoms.

 

Will update with further daily notes, and info from my upcoming visit w/Dr Giordano.

 

Untangling

1

1990's-2019 - Paxil 20-50mgs

2015 - Trazodone 50 mgs/pm for sleep, xanax .25mg/prn for anxiety added 2019 - January, suffered concussion w/brief loss of consciousness - tried amitriptyline for headaches, stopped due to side effects 2019 - October, crashed 3mos after 'tapering' paxil and being put onto lithium, ct'd lithium in hosp, poly pharmacy began 2019-2022-Varying doses of Trazodone, Adderall, Rexulti, Paxil, Pristiq, Xanax, progesterone, lunesta, clonidine, Quetiapine 50mg ER, BupropionXR 150mg, mirtazipine 15mg, lamotrigine 25mg, diazepam 5mg, duloxetine DR 20, Remeron 2020 - March, round of TMS, no help

2021 - Feb, started LDN 4.5mg for mood boost and reducing inflammation. 

2021 - April, not sure of when restarted but on Paxil CR 37.5mg and Pristiq 25mg

2021 - May, started Estradiol 0.0375mg/24hr patch and Progesterone cream 50mg daily for mood, also adjusting synthroid to 112 mcg daily and T3 SR 7.5mg x2 daily

2021 - July, Decreased Paxil ER from 37.5 to 25mg over 2 wks. In same 2wks increased to 50mg Pristiq

2021 -August - Aug 3rd -Onto Paxil 12.5mg, Aug 10 Reduce Pristiq to 25mg due to having anxiety/jittery, 200mg trazodone decreased to 175mg/pm for 1 week, then down to 150mg/pm, >100mg>75mg>50mg, all within 2 wks. Added diazepam 2.5-5mg pm for sleep instead of xanax xr .5mg. (no taper)

Nov 2022 - Desevenlafaxine ER 50mg/am, Clonidine .05mg/pm, Quetiapine 12.5mg/pm, trazodone 100mg/pm, Xanax .5mg/pm, Losartan 100mg/pm, amlodipine 5mg/am, synthroid 100mcgs/am, compounded t3 7.5mcgs am/pm, LDN 4.5mg/pm, progesterone cream, estradiol patch Supplements: Mag Glycinate/pm, Calc/D3/am, Vit E, C both am, Red Rice Yeast/am, Zinc/am, fish oil/am

 

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