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Queti: Quetiapine / Seroquel problems


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Dear All, I am new here and would need some advice concerning tapering Quetiapine! I am a 51 year old woman. In January 2024 I developed massive anxiety (felt death fear, could not sleep nor eat) due to some strange body symptoms, not yet diagnosed.

In January for 4 days I took Doxepin 5 mg and then discontinued due to racing heart. Also the anxiety was gone. 20 years ago I took Doxepin for 2 years and tapered off with no problems.

 

In February the anxiety got massive again and I went to a psychiatrist. There I got Opipramol 100 mg (on 26 Feb) and Quetiapine 50 mg Retard (on 28 Feb). I was not informed what this is and i was too trustful and naive to do research. I was totally dizzy from this combination. One hour after taking the Quetiapine at 9pm I got cardiac arrhythmia every time. On 6 March I went to a psychosomatic clinic to work on my fears. There the Opipramol was stopped after a few days. The cardiac arrhythmia did not get better. The dizzyness got better but I was still sedated. Could not drive my car anymore. Also I was a little agitated / nervous all the time. Napping during the day got impossible. I was always "on". Only after taking the Quetiapine at night I could relax and sleep. Maybe this dose was much to high??

Nervousness and not being able to concentrate increased over time but at the clinic they said it is my symptoms and I should take more. I tried additional 25mg non-retard during daytime some time but then let it be. I was diagnosed with general anxiety and somatic disorder.

When I was out of the clinic i went back to the psychiatrist on 8 May. I told her that I cannot concentrate and feel dizzy. She told me to only take half a tablet of the 50 mg Retard at night and that she wants to switch me to some antidepressant soon. Since then I take the Quetiapine like that, a cut-in-half Retard tablet at night a 10pm and nothing during the day. Meanwhile I have a scale to be fairly exact. 

I requested to get the 25 mg non-retard tablets (better for future tapering). I tried it one night and I felt like I was on a totally different drug. I could hardly sleep and had much anxiety. I then went back to the half retard tablet. And this is where I stand now. I am nervous during the day, cannot concentrate, cannot drive a car, even crossing a street is difficult, am confused, feel dizzy, feel a pressure behind my forehead. 

Am I having withdrawal? I do not want to increase my dose if possible. Or am I poisoned by the Quetiapine over the months? I feel the dose is still much to high for me. I have read a lot of topics in this forum already, how dangerous antipsychotics are and also about tapering Quetiapine. But there it says nothing about a problem when trying to switch from retard to non-retard. How can I make the switch?

Is there somebody here who has witnessed the same or can give me some advice how to go on? I would like to get rid of the poison as fast as possible, my brain is turning into pulp. Thank you very much, you are great!

Jan 2024 - Doxepin 5 mg for 4 days

26 Feb 2024 till 10 Mar 2024 - Opipramol 100 mg

28 Feb 2024 till 8 May 2024 - Quetiapine 50 mg XR

8 May 2024 - Quetiapine 50 mg XR half tablet = 25 mg

2 June 2024 - 22.5 mg

16 June 2024 - 20 mg

1.25 mg Ramipril for high blood pressure

Supplements: Vitamin D, sometimes magnesium, calcium, vitamin B12

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  • Moderator

Hello, and welcome to Surviving Antidepressants. We are a peer support forum to assist in tapering off psychiatric drugs safely, or recovering from psychiatric drug withdrawal.

 

This topic is for anything relating to you, and any questions you have. Please do not start another topic.

 

 

When you say quetiapine retard, I am assuming this is an extended release (XR) formulation of the drug. Is that correct? You are trying to switch to the immediate release formula in order to taper the drug, is that also correct? I am not well versed with quetiapine so I urge you to read this thread in full: Tips for tapering off quetiapine (Seroquel)

Here is another useful thread, this one describes how to cross over from one formulation to another: Cross over from tablet to liquid OR changing the brand

If you wanted to switch to immediate release you would need to take it as a split dose, twice daily, rather than the current singular night time dose you take of the XR version. If you take a split dose it would be 12.5mg in the morning and 12.5mg in the evening. In order to split your dose we suggest moving the half-dose back by one hour each day until it is at the desired time. Given you take the 25mg at 10pm it would be suggested to move half to 10am, this means the drug level remains more stable throughout the day.

 

We recommend tapering by no more than 10% of your CURRENT dose each month, to limit withdrawal symptoms. E.g. 10mg --> 9mg --> 8.1mg --> 7.29mg

 

All the answers you are looking for regarding tapering and antidepressant withdrawal are on this site. Please search around and continue to read as much as you can manage. Use the site search function to search for specific words or phrases, such as drugs or symptoms.

 

Here are a few of the most useful links:

 

--------Important topics in the Tapering forum and FAQ--------

 

Micro tapering

 

Why taper by 10% of my dosage?

 

Taking multiple psych drugs? Which drug to taper first?

 

How to make a liquid from tablets or capsules

 

Using a scale to weigh and measure doses

 

--------From the Symptoms and Self-Care Forums--------
 
What is withdrawal syndrome?
 
About reinstating and stabilizing to reduce withdrawal symptoms
 
The Windows and Waves Pattern of Stabilization

 

Hypersensitivity and Kindling

 

We only recommend two supplements. Omega 3 Fish Oil and Magnesium. Both should be introduced separately and increased slowly.

 

Regards

Erimus

Active Monday-Friday UK time

 

Taper calculator spreadsheet

 

MEDICATION:

1) Sertraline:

50mg - Oct 2020, 100mg - Dec 2020, 50mg - April 2021, 75mg - May 2021, 50mg - Sep 2021, 55mg - 23 Feb 2024, 60mg - 20 March 2024, Start tapering - 24 April 2024

Current dose: 55.09mg  (1 July 2024)

2) Mirtazapine:

15mg - Nov 2020

SUPPLEMENTS:

Cod liver oil, Magnesium, Vitamin C

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Hello Erimus, thank you for your reply and the wonderful support you all give here! Yes, with Quetiapine Retard I mean XR. At the moment I take half a 50 mg XR tablet at night, started on 8 May. (50 mg XR is the lowest available XR dose). That would mean for the last 3 weeks I was already on a kind of immediate-release (as the XR tablet gets broken) which would equal 25 mg. So the damage was already done. Now that I know this site I know it was dangerous to make such a big step from 50 down to 25 mg, but I listened to the psychiatrist.

I want to taper down further in the future when I am sure I am stable. (Do you think after 3 weeks I am already stable?) Therefore I will have to switch to Quetiapine immediate-release eventually. It might be necessary to make a liquid some day. But Quetiapine IR feels like a different product (taken it once).

In the link with the cross-over tips I read to mix the old and new product: 

3/4 old, 1/4 new for 3 to 7 days - 1/2 old, 1/2 new for 3 to 7 days - 1/4 old, 3/4 new for 3 to 7 days - all new thereafter. Maybe I can try it that way.

Thank you all for your help!

Jan 2024 - Doxepin 5 mg for 4 days

26 Feb 2024 till 10 Mar 2024 - Opipramol 100 mg

28 Feb 2024 till 8 May 2024 - Quetiapine 50 mg XR

8 May 2024 - Quetiapine 50 mg XR half tablet = 25 mg

2 June 2024 - 22.5 mg

16 June 2024 - 20 mg

1.25 mg Ramipril for high blood pressure

Supplements: Vitamin D, sometimes magnesium, calcium, vitamin B12

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On 5/29/2024 at 11:55 PM, Queti said:

 

Hi, Queti. I am glad you found this site. As adviced before, a site search is useful. We have many friends here sharing the same problems. Myself, I keep struggling with Ketipinor (seroquel) as well. 

The best advice I can give is again the slight 5-10 % monthly drops in dosage, depending on how you feel. 

As seroquel causes problems with the heart, changing its rhytm, some people have asked which were less harmful, the irregular heartbeat or bad withdrawal symptoms. I find the withdrawals terrible, but, fortunately I have not experienced heart problems.

 

Now that you are here, everything will turn towards better health. The process will be slow, though.

Medication

DHEA 12mg,Pregnenolone 50mg,Questran(Resincolestiramina)2x4g,Sel 3mg;Nebido 4ml every 9th week, Cohemin (B12) 1ml similarly. 

Supplements

Vitamin C, D, Zn, Mg, Mn, Omega3, L-Glutamine, L-Theanine, Taurine, Glysine, L-Lysine, Kreatine, Ashwagandha.

Antidepressants

 May 2020 - February 2022 - Agomelatine 50 mg (February  25 mg)
 From May 2020 till now Ketipinor (Quetiapine): 2020 200 mg,  2021 75 mg (Sept.100 mg), 2022 50 mg (Jul.-Oct. 75 mg)
 Jan.3, 2023 25 mg; Jan.20, 18 mg; Jan.31, 20 mg, Mar.22, 19 mg; May 13, 17.1 mg; Jun.18, 16 mg; Jul.14, 15 mg; Aug.10, 14.3 mg; Sep.13, 13.3 mg; Oct.13 12.5mg; Dec.12, 11.6 mg

Jan.10, 2024 10.6 mg; Feb.9, 9.6mg; Mar.5, 8.8 mg; Apr.3, 8.0 mg; May.5, 7.4 mg; May 31, 6.9 mg

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  • Mentor
On 5/29/2024 at 4:21 PM, Queti said:

The cardiac arrhythmia did not get better.

Hey @Queti,

Grüße aus Deutschland. I would consult a cardiologist if you have not done already. Cardiac arrhythmia can lead to serious problems. You probably need to either get off the Quetiapine or get additional drugs prescribed by the Cardiologist (for example blood thinners). If your doctors so far didn't send you to a cardiologist with persistent cardiac arrhythmia they are behaving very irresponsibly.

 

If the cardiologists tells you to quit the Quetiapine, you are possibly in a very difficult situation - depending on whether he acknowledges that it can be difficult to quit those psychotropic drugs. Tell him that it is difficult for you to quit the Quetiapine and ask him how urgently you have to stop it. If the Cardiologists insists that it is very urgent, you might want to do a faster taper than usually recommended here.

 

 

Earlier drug history:

Paroxetine  2001 until 2003, quit cold turkey, don't remember dose; Venlafaxine 2005 until Dez. 2023, mostly 75mg xr per day, for about 4 years 37.5mg xr; quite a lot of Antihistamines because of allergy; there were other drugs that I don't remember all, but nothing what I consistently took over a longer period of time, for example Lorazepam 0.5mg prn.

Recent developments:

Dez 2023 - 03/13/2024 quitting Venlafaxine 75mg (skipping doses); 04/07/2024 reinstating Venlafaxine 12,5mg; 04/17/2024 Venlafaxine 25mg; 4/29/24 until 5/4/24 Trimipramine, 5mg going down to zero over 5 days

Drugs right now:

Venlafaxine 25mg; supplements: 500mg magnesium, 100mg aspirin and melatonin spray

 

I am no medical expert. I am dependent on Venlafaxine, trying to find and give peer support in this community and simply giving my opinion. Double check any information before you take action, for example with your doctor.

 

First they sell addictive drugs as harmless and then they leave you alone dosing fractions of a mg correctly or plunging into the abyss.

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Welcome Queti,

 

I too have been tapering seroquel. I started my taper at 250 mg. I am 54 years old. The taper has been tough. Sometimes I can drop 10% with little to no withdrawl symptoms, other times I can't sleep for days, have allergy and breathing issues.

 

Make sure you let your physician know all of your issues and be very careful tapering. If they tell you to stop cold turkey due to your heart, be very mindful of your physical condition, symptoms and withdrawl issues. Seroquel is not easy to taper, but it is possible. This message board has loads of great information and stories from folks that have successfully got off the drug your on. Best of luck, don't be a stranger.

Dropped 10% to 225mg-2/3/23, 200mg XR 2/19/23, 180 XRmg 3/20/23, 162 XRmg 4/25/23, 150 XR 5/25/23, 7/31/23 137.5mg XR & IR, 9/4/23 125mg (100mg XR,25mg IR)  9/21/23, (100mg XR, 12.5mg IR) 10/28/23, (100mg XR) 11/19/23, (50mg XR, 50mg IR) 12/8/23, (50mg XR, 42mg IR) 1/1/24, 82.8mg 2/7/24, 75mg 2/22/24, 67.5mg 3/22/24, 61mg 5/6/24, 54.9mg 5/31/24, 50mg 6/15/24, 45mg 7/16/24.

Supplements- Magnesium Glycinate 420mg, 1000mg fish oil twice daily, 268.5 vitamin E.

 

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@Jeppe @Alfred1977 @Mittenraised Dear Jeppe, dear Alfred, dear Mittenraised,  thank you for writing to me and giving me support! It is so good not to feel alone!

It is frightning to be dependant on a drug that harms your body. I have no memory anymore and a short attention span. It is difficult for me to cross a busy road. I don't function in my job anymore. Will this go away sometime, maybe at smaller doses? I wish I could just quit the quetiapine but I know I have to be sensible. I suffer from health anxiety which does not make things better. And also it is frightning that when tapering you don't know in advance whether your next step will turn out good or bad. 

I have had my heart checked by a cardiologist, the arrhythmias are of a harmless nature. So far everything seems ok. 

I have read your stories, you are all so brave! I wish you all buckets full of health and keep my fingers crossed for you!

Jan 2024 - Doxepin 5 mg for 4 days

26 Feb 2024 till 10 Mar 2024 - Opipramol 100 mg

28 Feb 2024 till 8 May 2024 - Quetiapine 50 mg XR

8 May 2024 - Quetiapine 50 mg XR half tablet = 25 mg

2 June 2024 - 22.5 mg

16 June 2024 - 20 mg

1.25 mg Ramipril for high blood pressure

Supplements: Vitamin D, sometimes magnesium, calcium, vitamin B12

Link to comment
  • Mentor
6 hours ago, Queti said:

I have had my heart checked by a cardiologist, the arrhythmias are of a harmless nature. So far everything seems ok. 

I am glad to hear that.

 

Then a slow taper as recommended on this site is the way go if you want to get rid of this drug. 🙂

Did you feel better or worse after your last reduction on May 8?

Earlier drug history:

Paroxetine  2001 until 2003, quit cold turkey, don't remember dose; Venlafaxine 2005 until Dez. 2023, mostly 75mg xr per day, for about 4 years 37.5mg xr; quite a lot of Antihistamines because of allergy; there were other drugs that I don't remember all, but nothing what I consistently took over a longer period of time, for example Lorazepam 0.5mg prn.

Recent developments:

Dez 2023 - 03/13/2024 quitting Venlafaxine 75mg (skipping doses); 04/07/2024 reinstating Venlafaxine 12,5mg; 04/17/2024 Venlafaxine 25mg; 4/29/24 until 5/4/24 Trimipramine, 5mg going down to zero over 5 days

Drugs right now:

Venlafaxine 25mg; supplements: 500mg magnesium, 100mg aspirin and melatonin spray

 

I am no medical expert. I am dependent on Venlafaxine, trying to find and give peer support in this community and simply giving my opinion. Double check any information before you take action, for example with your doctor.

 

First they sell addictive drugs as harmless and then they leave you alone dosing fractions of a mg correctly or plunging into the abyss.

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I’m tapering Seroquel and I don’t really think I have withdrawal symptoms but actual medication symptoms. The anhedonia and cognition problems are too unbeareable since the first moments and it might be irresponsible for me to say but I realized  I don’t really feel  worse while tapering more quickly than the forum suggests - I’m pretty sure I’m worse each day because of not being able to feel anything for too much time then I’m starting to feel desperate.

 

I may be irresponsible  for going for a faster taper but couldn’t I been just called intuitive for that matter?

SECOND TIME USING MEDICATION

> OXCARBOZEPINE at some point dont know the dosage > LAMICTAL at  some point don’t know the dosage > QUETIAPINE (seroquel) 09/08/22 300 mg    10/24/22 400mg    11/02/22 500mg    01/02/23 700mg  03/09  650mg  04/20 600mg    05/12 550mg   06/11 500mg    07/15 450mg    07/29 400mg  kept tapering until 100mg and then 200mg at the hospital in March then 300 after getting CLOPIXOL DEPOT 200mg 3 times. QUETIAPINE 05/13/24 200mg 05/25 175mg 05/29 150mg 06/05 100mg. 06/12 50mg> BIPIRIDEN 04/23 - 04/30 2mg OMEGA 3 FISH OIL 05/20 4mg

FIRST TIME USING MEDICATION

> RISPERIDAL AT SOME POINT dont know the dosage >    OLANZAPINE (ZYPREXA)

07/21 10mg      08/21 20mg       09/21 15 mg        10/21 10mg then 5mg     11/01/21 off Olanzapine

>    SERTRALINE (ZOLOFT)

08/21 100mg        09/21 supposedly 150mg as prescribed, 200mg as a mistake for a while       10/21 100mg        11/21 50mg       12/11/22 off Sertraline

>    LITHIUM
07/21 300mg (1 pill)        08/21 600mg        09/21 900mg (stabilized in blood tests)     10/21, 11/21, 12/21, 01/22 tapered off in the course of 2 weeks     02/22 off Lithium 

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@Alfred1977 Hi Alfred, I have developed a headache, but not permanent. But it feels strange, I am not a headache person normally. Well, normal has gone, I guess! Thank you for checking in on me! How is your experience with German psychiatrists? If you know a good one in the Munich Region let me know. Have you found one who supports you during your tapering? 

Jan 2024 - Doxepin 5 mg for 4 days

26 Feb 2024 till 10 Mar 2024 - Opipramol 100 mg

28 Feb 2024 till 8 May 2024 - Quetiapine 50 mg XR

8 May 2024 - Quetiapine 50 mg XR half tablet = 25 mg

2 June 2024 - 22.5 mg

16 June 2024 - 20 mg

1.25 mg Ramipril for high blood pressure

Supplements: Vitamin D, sometimes magnesium, calcium, vitamin B12

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@BelaLugosi Hi BelaLugosi! I have no experience so I cannot give any advice, I am afraid! But I think it is good to play it safe and slow, as is suggested on this site here. I wish you all the best and that you reach your goal!

Jan 2024 - Doxepin 5 mg for 4 days

26 Feb 2024 till 10 Mar 2024 - Opipramol 100 mg

28 Feb 2024 till 8 May 2024 - Quetiapine 50 mg XR

8 May 2024 - Quetiapine 50 mg XR half tablet = 25 mg

2 June 2024 - 22.5 mg

16 June 2024 - 20 mg

1.25 mg Ramipril for high blood pressure

Supplements: Vitamin D, sometimes magnesium, calcium, vitamin B12

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Hi @Queti!!

 

On 6/2/2024 at 6:39 AM, Queti said:

I have no memory anymore and a short attention span. It is difficult for me to cross a busy road. I don't function in my job anymore. Will this go away sometime, maybe at smaller doses? I wish I could just quit the quetiapine but I know I have to be sensible. I suffer from health anxiety which does not make things better. And also it is frightning that when tapering you don't know in advance whether your next step will turn out good or bad. 

I have had my heart checked by a cardiologist, the arrhythmias are of a harmless nature.

I have so been there.

 

I was on a huge dosage of Seroquel for many years, it was horrible. While on it, I had symptoms of MS, Fibromyalgia, Atrial pre-contractions, RLS, 30lbs of weight gain and more. Thank goodness, they were side effects that went away during my taper. I felt ok during the first several months of tapering, except feeling like I had the flu every now and then. Then as I got lower in dosage, I had a myriad of symptoms that were all over the place. I couldn't understand ideas, concepts or simple instructions anymore. Things took a while to "sink in". My mind wandered all the time, and my short-term memory was gone. Long term was okay, but I'd forget conversations I'd had or things I did within minutes. 

 

I've been completely off for almost 2 yrs. and right now, I'm feeling healthy. Stress is difficult to deal with sometimes, I still have small adrenaline surges occasionally, I cry, I feel happiness and I laugh. I did have a melt down with my new and overwhelming college course recently. However, nothing is earth shattering and unable to get through - like it was right after my taper, and I appreciate the support I've received from my family and the wonderful people on this site more than I could ever express.

 

All that being said, I absolutely have every hope that your symptoms will get better and go away. Continue to take things slow and be gentle with yourself. Do not do what I did with my taper, I had no guidance and no doubt suffered more than necessary.

 

Some of the things that helped me with my mental acuity and memory, were taking notes of conversations and daily activities; and playing games. I played Text Twist, Sudoku, Mahjong, Trivia, Matching from memory ones and low stress video games. As time went on, I got better and faster at those, and my short-term memory improved.

 

I hope this helps ☺️

SH

1993-1997 Prozac 20mg 

1997 Paxil 10mg     1998 Zyban

2005-2010 Celexa 20mg    

2005-2014 Xanax .5mg prn

2010-2022 Lexapro 40mg tapered, last dose 2/12/22             

2014 Zoloft 10mg

2014-2022 Seroquel 800mg tapered, last dose 7/13/22           

2022 Klonopin .5mg prn (haven't used it yet)

Lexapro start taper 12/16/21 - 40mg - 30mg, 1/2/22 - 20mg, 1/15/22 - 10mg, 2/1/22 - 5mg, 2/12/22 - 0mg. 

Seroquel start taper 12/16/21 - 800mg - 600mg, 1/2/22 - 400mg, 1/15/22 - 300mg, 2/12/22 - 200mg, 3/1/22 - 150mg, 3/15/22 - 100mg, 4/1/22 - 50mg, 4/15/22 - 25mg,   5/1/22 - 12mg, 5/15/22 - 6mg, 6/15/22 - 3mg, 7/13/22 - 0mg.   

Currently taking magnesium, fish oil, calcium and vitamin D3. Cut down processed foods and sugar, no alcohol or caffeine.

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  • Mentor
9 hours ago, Queti said:

How is your experience with German psychiatrists? If you know a good one in the Munich Region let me know. Have you found one who supports you during your tapering? 

I would avoid them as much as possible. There might be good ones but those are hard to find. I have consulted 4 during the last years.

 

I don't think there is much hope for reconciliation with psychiatry or finding help and validation by a psychiatrist. As far as I know they are making a living out of prescribing drugs. If you would take that away from them there is nothing they could do. They HAVE TO believe that those drugs are helpful otherwise their whole existence is questioned. As far as I know it is not clear from a scientific point of view how large the percentage of people having physical drug dependency, withdrawal and severe adverse reactions to psychotropic drugs exactly is. However in my point of view it is clearly much larger than officially represented. And this is threatening to psychiatry.

 

The UK however is making progress in this respect. The official guidelines there acknowledge the existence of cases of severe and prolonged withdrawal. I gave my psychiatrists and another doctor a copy of those British guidelines and they didn't even read them. How degenerated is this!!?? There are experts and colleagues of you in an important country nearby that do a fairly revolutionary turn around in a field that you claim to be an expert in yourself and in which you claim to make very consequential decisions for the wellbeing of your patients...and you don't give a f**k at all about what they are doing and why!!!

Earlier drug history:

Paroxetine  2001 until 2003, quit cold turkey, don't remember dose; Venlafaxine 2005 until Dez. 2023, mostly 75mg xr per day, for about 4 years 37.5mg xr; quite a lot of Antihistamines because of allergy; there were other drugs that I don't remember all, but nothing what I consistently took over a longer period of time, for example Lorazepam 0.5mg prn.

Recent developments:

Dez 2023 - 03/13/2024 quitting Venlafaxine 75mg (skipping doses); 04/07/2024 reinstating Venlafaxine 12,5mg; 04/17/2024 Venlafaxine 25mg; 4/29/24 until 5/4/24 Trimipramine, 5mg going down to zero over 5 days

Drugs right now:

Venlafaxine 25mg; supplements: 500mg magnesium, 100mg aspirin and melatonin spray

 

I am no medical expert. I am dependent on Venlafaxine, trying to find and give peer support in this community and simply giving my opinion. Double check any information before you take action, for example with your doctor.

 

First they sell addictive drugs as harmless and then they leave you alone dosing fractions of a mg correctly or plunging into the abyss.

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@StayHopeful Dear Stayhopeful, thanks for writing to me! I really appreciate your support! I have read through your story, you did a pretty fast taper! What a shock it must have been when you thought you would not get your meds because your psychatrist left! It is frightning to be dependent on these people to supply us with our drugs. And be dependent on their goodwill! With their yes or no they can destroy lives! The thought of not getting a refill of the Quetiapine XR I am taking at the moment is also in my mind for some time now. I am so happy for you that you have recovered! I am a bad writer, but my heart goes out to all on this website! 

Jan 2024 - Doxepin 5 mg for 4 days

26 Feb 2024 till 10 Mar 2024 - Opipramol 100 mg

28 Feb 2024 till 8 May 2024 - Quetiapine 50 mg XR

8 May 2024 - Quetiapine 50 mg XR half tablet = 25 mg

2 June 2024 - 22.5 mg

16 June 2024 - 20 mg

1.25 mg Ramipril for high blood pressure

Supplements: Vitamin D, sometimes magnesium, calcium, vitamin B12

Link to comment
On 6/2/2024 at 8:39 AM, Queti said:

@Jeppe @Alfred1977 @Mittenraised Dear Jeppe, dear Alfred, dear Mittenraised,  thank you for writing to me and giving me support! It is so good not to feel alone!

It is frightning to be dependant on a drug that harms your body. I have no memory anymore and a short attention span. It is difficult for me to cross a busy road. I don't function in my job anymore. Will this go away sometime, maybe at smaller doses? I wish I could just quit the quetiapine but I know I have to be sensible. I suffer from health anxiety which does not make things better. And also it is frightning that when tapering you don't know in advance whether your next step will turn out good or bad. 

I have had my heart checked by a cardiologist, the arrhythmias are of a harmless nature. So far everything seems ok. 

I have read your stories, you are all so brave! I wish you all buckets full of health and keep my fingers crossed for you!

@Queti, you're not alone! That's the beauty of this message board, some are currently right where your at, others have some experience with this process and then there are the wonderful stories of success that give you hope along with the great information provided to help navigate tapering, withdrawl and all the stuff that goes along with it.

 

I tried quitting cold turkey, it was horrible. I actually went without sleep for 11 or 12 days. I thought I was going to go crazy. I stumbled upon this website and it was a life changer. We are blessed to have a safe place to talk and ask questions. Don't be a stranger, get as much rest as you can and go as slow as your body requires. I have figured out that 10% works for me so far, but it hasn't been without some discomfort. Sometimes I wait longer to drop again.

Take care!

Dropped 10% to 225mg-2/3/23, 200mg XR 2/19/23, 180 XRmg 3/20/23, 162 XRmg 4/25/23, 150 XR 5/25/23, 7/31/23 137.5mg XR & IR, 9/4/23 125mg (100mg XR,25mg IR)  9/21/23, (100mg XR, 12.5mg IR) 10/28/23, (100mg XR) 11/19/23, (50mg XR, 50mg IR) 12/8/23, (50mg XR, 42mg IR) 1/1/24, 82.8mg 2/7/24, 75mg 2/22/24, 67.5mg 3/22/24, 61mg 5/6/24, 54.9mg 5/31/24, 50mg 6/15/24, 45mg 7/16/24.

Supplements- Magnesium Glycinate 420mg, 1000mg fish oil twice daily, 268.5 vitamin E.

 

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@Queti

 

You're absolutely right about it being frightening to be dependent on a person supplying meds (not just psych meds). It's just not right...  😕 

By the way, you're not a bad writer.☺️

1993-1997 Prozac 20mg 

1997 Paxil 10mg     1998 Zyban

2005-2010 Celexa 20mg    

2005-2014 Xanax .5mg prn

2010-2022 Lexapro 40mg tapered, last dose 2/12/22             

2014 Zoloft 10mg

2014-2022 Seroquel 800mg tapered, last dose 7/13/22           

2022 Klonopin .5mg prn (haven't used it yet)

Lexapro start taper 12/16/21 - 40mg - 30mg, 1/2/22 - 20mg, 1/15/22 - 10mg, 2/1/22 - 5mg, 2/12/22 - 0mg. 

Seroquel start taper 12/16/21 - 800mg - 600mg, 1/2/22 - 400mg, 1/15/22 - 300mg, 2/12/22 - 200mg, 3/1/22 - 150mg, 3/15/22 - 100mg, 4/1/22 - 50mg, 4/15/22 - 25mg,   5/1/22 - 12mg, 5/15/22 - 6mg, 6/15/22 - 3mg, 7/13/22 - 0mg.   

Currently taking magnesium, fish oil, calcium and vitamin D3. Cut down processed foods and sugar, no alcohol or caffeine.

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  • 2 weeks later...

How are you doing?

Dropped 10% to 225mg-2/3/23, 200mg XR 2/19/23, 180 XRmg 3/20/23, 162 XRmg 4/25/23, 150 XR 5/25/23, 7/31/23 137.5mg XR & IR, 9/4/23 125mg (100mg XR,25mg IR)  9/21/23, (100mg XR, 12.5mg IR) 10/28/23, (100mg XR) 11/19/23, (50mg XR, 50mg IR) 12/8/23, (50mg XR, 42mg IR) 1/1/24, 82.8mg 2/7/24, 75mg 2/22/24, 67.5mg 3/22/24, 61mg 5/6/24, 54.9mg 5/31/24, 50mg 6/15/24, 45mg 7/16/24.

Supplements- Magnesium Glycinate 420mg, 1000mg fish oil twice daily, 268.5 vitamin E.

 

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  • 2 weeks later...

@Mittenraised Dear Mittenraised, thanks for looking after me! I am doing quite well, I bought a scale and have meanwhile reduced twice, hacking and scraping bits of the tablet. I am down to about 20 mg of Quetiapine. I went to a new psychiatrist and she wants me to get off the Quetiapine. (She also did not force me to take something else.) She is ok when I do it slowly. She would prefer if I switched to the IR version of the tablet which I have not done yet (still taking the ER). My main concern at the moment is to reduce the dose, I feel so awful. Switching would cost me some weeks, I would have to do this slowly. Don't know whether my approach is the right one, but I just want less of this poison!

My brain is still a mess, nothing has changed to what I have described before. I cannot concentrate, can't remember things, reading/thinking/writing is extremely exhausting (thats the reason I don't write at the moment) , I am nervous, I feel dizzy etc etc... Grocery shopping or crossing a busy street is difficult. I also have some anxiety every day and I do not know whether it is drug-induced or is the anxiety which I had before the drug.

I drag myself to work a few hours a day but it is hard. And I had the flu the past 2 1/2 weeks, but already getting better. Oh, and the fun thing is, the manufacturer of the Quetiapine I use at the moment has delivery problems! I don't want to try it from another manufacturer, this might cause additional problems. Hope this sorts itself out in time!!

And how are you, whats new?

Jan 2024 - Doxepin 5 mg for 4 days

26 Feb 2024 till 10 Mar 2024 - Opipramol 100 mg

28 Feb 2024 till 8 May 2024 - Quetiapine 50 mg XR

8 May 2024 - Quetiapine 50 mg XR half tablet = 25 mg

2 June 2024 - 22.5 mg

16 June 2024 - 20 mg

1.25 mg Ramipril for high blood pressure

Supplements: Vitamin D, sometimes magnesium, calcium, vitamin B12

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Hi @Queti,

 

I'm doing OK. I'm down to 50mg. It seems like it has taken forever to get here from 250mg, but it hasn't been nearly as painful as it could have been if I hadn't found the folks here on this message board.

 

I can tell you my life has it's fair share of anxiety and uncomfortable days. What has worked best for me is taking it slow and not cutting more than 10% of my last dose.

 

I hope things get better for you and you can get some rest and peace in your life. 

Dropped 10% to 225mg-2/3/23, 200mg XR 2/19/23, 180 XRmg 3/20/23, 162 XRmg 4/25/23, 150 XR 5/25/23, 7/31/23 137.5mg XR & IR, 9/4/23 125mg (100mg XR,25mg IR)  9/21/23, (100mg XR, 12.5mg IR) 10/28/23, (100mg XR) 11/19/23, (50mg XR, 50mg IR) 12/8/23, (50mg XR, 42mg IR) 1/1/24, 82.8mg 2/7/24, 75mg 2/22/24, 67.5mg 3/22/24, 61mg 5/6/24, 54.9mg 5/31/24, 50mg 6/15/24, 45mg 7/16/24.

Supplements- Magnesium Glycinate 420mg, 1000mg fish oil twice daily, 268.5 vitamin E.

 

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