Sheri755: Effexor XR Reinstatement Amount?

[brassmonkey]

"Sometimes the baths help but not always. 4 cups of magnesium chloride, soaking for one hour or longer."

 

Hi Sheri-- Are you doing this every night? It's very possible to get too much of a good thing.  Taking frequent, long baths in a high concentration of magnesium can cause paradoxical effects and make a person feel worse. Lotusflower found this out and talked about it on her thread.  I know the baths feel great while you're in them, but a bit of moderation might be a good idea.

[Sheri755]

"Sometimes the baths help but not always. 4 cups of magnesium chloride, soaking for one hour or longer."

 

Hi Sheri-- Are you doing this every night? It's very possible to get too much of a good thing. Taking frequent, long baths in a high concentration of magnesium can cause paradoxical effects and make a person feel worse. Lotusflower found this out and talked about it on her thread. I know the baths feel great while you're in them, but a bit of moderation might be a good idea.

Yes, I have been soaking like this every day for about a week. Before that, I was using 3 cups of the magnesium chloride, soaking for an hour or longer.

[brassmonkey]

You may want to take a break for a few days and see what happens to your symptoms.  Give the magnesium time to settle out and stabilize.

[Sheri755]

You may want to take a break for a few days and see what happens to your symptoms. Give the magnesium time to settle out and stabilize.

Will do. Thanks! I read Lotusflower's thread. I did the same thing thinking I would get the same wonderful relief each day that I did the first few times.

 

Alto recommended that she try it every other day but Lotusflower didn't mention it after that. I will stop them for a few days and perhaps cut back to 2 cups for 30 minutes.

 

Do you think the sounds in this meditation are safe for a withdrawal brain? I'm really able to relax to it but don't want to cause any harm.

 

I hope it's okay but, wow, who knows?

https://youtu.be/gYzdNYhQQbw

 

Thanks for everything!!

[Sheri755]

I need your advice.

I've been holding at five beads since reinstating in July.

I tapered for about a year, holding at 37.5 for several months. 18.75 mg for two weeks to 0.

 

I'm still unable to drive, very paranoid, high anxiety, fast heart rate, depression.

 

No appetite or feeling of being full. I'm losing weight very fast. Facial burning and numbness, excessive saliva, sinuses causing ear pain and fullness, loose stools, cortisol surges, body temperature disregulation. Just started noticing lung pain when breathing deeply.

 

No improvement with high heart rate even though I'm at 12.5 on the Vyvanse taper.

 

I had no noticeable symptoms while tapering Effexor. I'm thinking about increasing the beads to do a slower, safer taper. Should I increase to 10 beads? (Maybe I would poop out at 10) or go to a little higher dose?

[scallywag]

Your symptoms seem like those of stimulation -- high anxiety, paranoia, cortisol surges. It's unlikely that increasing the dose of a stimulating medication such as Effexor will alleviate them. After holding at 5 beads for 5-6 months, it might be time to consider a decrease.

I've asked other mods to have a look at your question.

 

Edited to ask:

What is your symptom pattern?

Did you change to less frequent epsom salt soaks? How did things go?

[Sheri755]

Most days the rapid heart beat is worse from about 11 am-3 pm.

Night- Very difficult falling asleep - histime, sinus, excessive saliva...constant swallowing.

Soaks- Very slight differerence when stopping soaks.

 

I got complete relief from all symptoms when reinstating in July. It lasted for 10 wonderful days.

 

Thank you for helping me.

[scallywag]

It would be helpful for us to have notes about your symptoms over several days. Please keep notes on paper of your symptoms and the times of your dose(s) then post them here in your introduction. This post has a useful format for a daily log:

Take notes of doses and symptoms.

[Sheri755]

Yes, I will. Thank you, again.

[scallywag]

Also, please include any supplements you take, the doses and the times you take them.

 

When was the last time you changed the dose of, added or stopped a supplement?

[Sheri755]

Sunday at 12:30 pm, I took one Vitamin C hoping to get some histimine relief. I haven't taken any more since then.

 

I take two supplements, Curamin and fish oil and will add the doses and times also.

I'll look at my notes to make sure I'm not missing or forgetting a supplement or a change.

[Altostrata]

Most days the rapid heart beat is worse from about 11 am-3 pm.

Night- Very difficult falling asleep - histime, sinus, excessive saliva...constant swallowing.

Soaks- Very slight differerence when stopping soaks.

 

I got complete relief from all symptoms when reinstating in July. It lasted for 10 wonderful days.

 

Thank you for helping me.

 

Sheri, when do you take Vyvanse? What has been your Vyvanse reduction schedule?

 

Have your symptoms changed from July to the present?

[JanCarol]

Hey Sheri, thanks for that meditation!

 

I don't quite agree with the "wish fulfillment" aspect of the meditation, but I don't think that matters.  The "I Am That I Am" is an excellent balanced formula for healing mind, body, and spirit, whether you use it to make wishes on or not.

 

For me (here's where I vary from Dr. Dyer), I am That = is enough.  "That" is the most amazing thing in the world, and to acknowledge I am "That" - the universe, the mystery, the permanence, the holiness, the name of G-d - it is enough for me, and all the wishes in the world are far more trivial.

 

I Am That I Am, completes the formula, making it balanced - sending the vibration out and receiving it back again. 

 

Well, that was a little fluffy for here, but thanks for bringing that up!  I'm going to remove the beginning minutes of lecture from it, and use the tones to sleep at night!

 

I agree with Scally that increasing your beads may not be the answer.  instead, it looks like you may be tapering Vyvanse too quickly.

 

Perhaps the holidays is a good time to hold, and wait for your body to catch up with Vyvanse taper?  Maybe even updose to last amount, and consider going onto a monthly schedule or slower for Vyvanse?

 

I hope you feel better soon, and see the sun today. 

[Sheri755]

I agree with the Wayne Dyer meditation.

 

I was like this before the Vyvanse taper. My husband said that he's very fearful. The ongoing weight loss, etc. I'm losing ground very fast.

[Sheri755]

 

Most days the rapid heart beat is worse from about 11 am-3 pm.

Night- Very difficult falling asleep - histime, sinus, excessive saliva...constant swallowing.

Soaks- Very slight differerence when stopping soaks.

 

I got complete relief from all symptoms when reinstating in July. It lasted for 10 wonderful days.

 

Thank you for helping me.

Sheri, when do you take Vyvanse? What has been your Vyvanse reduction schedule?

 

Have your symptoms changed from July to the present?

I take the Vyvanse around 10-10:30 am daily. I began the 15% taper on Oct 30th, reducing every two weeks.

 

I've had slight improvement on the terror. The excessive saliva and sinus issue has worsened. I sometimes have to stop swallowing to take breaths which also makes it very difficult to fall asleep.

 

I may need to take a beta blocker for my mitral valve prolapse to get me through this. I don't know.

[Sheri755]

I was just reading a couple of pages back on my thread. I may have messed up.

 

On 12-13 I went back to my original clonazepam dose of 1.0 mg in the morning and .5 mg at night.

I was told to ask the benzo group if changing to .5 mg three times a day would be better. They said yes so I changed it and really regretted it. I didn't know that by taking it this way is considered a cut.

 

Now, looks like I'm tapering Vyvanse too fast. A doctor told me a couple of years ago that I could develop an enlarged heart if my heart rate stayed this high. But it sounds like I need to increase my current 12.5 mg to the previous dose of 15 mg. I'll remain in bed until it wears off in the afternoon to keep my heart rate down.

 

I'll be through recording what Scally asked for tomorrow night and will post it here.

 

Shoot, I just can't believe it. How long do you think I should stay at 15 mg Vyvanse? I pray my heart is not damaged.

[Sheri755]

I was just reading a couple of pages back on my thread. I may have messed up.

On 12-13 I went back to my original clonazepam dose of 1.0 mg in the morning and .5 mg at night.

I was told to ask the benzo group if changing to .5 mg three times a day would be better. They said yes so I changed it and really regretted it. I didn't know that by taking it this way is considered a cut.

Now, looks like I'm tapering Vyvanse too fast. A doctor told me a couple of years ago that I could develop an enlarged heart if my heart rate stayed this high. But it sounds like I need to increase my current 12.5 mg to the previous dose of 15 mg. I'll remain in bed until it wears off in the afternoon to keep my heart rate down.

I'll be through recording what Scally asked for tomorrow night and will post it here.

Shoot, I just can't believe it. How long do you think I should stay at 15 mg Vyvanse? I pray my heart is not damaged.

I was diagnosed with mitral valve prolapse years before psych drugs but still so desperately need relief from the fear, anxiety, paranoia, etc.

[Sheri755]

Your symptoms seem like those of stimulation -- high anxiety, paranoia, cortisol surges. It's unlikely that increasing the dose of a stimulating medication such as Effexor will alleviate them. After holding at 5 beads for 5-6 months, it might be time to consider a decrease.

I've asked other mods to have a look at your question.

 

Edited to ask:

What is your symptom pattern?

Did you change to less frequent epsom salt soaks? How did things go?

Scally, here's the info that you wanted. I'm scared that I left something out but, then again, I'm scared of everything seems like. Thank you again.

 

 

Changes

10-22- sipped 100 mg mag Glycinate in water.

10-26 - sipped 200 mg mag Glycinate in water

10-29 - took 200 mg mag Glycinate capsule

12-12 Went back to one 1.0 clonazepam am & one .5 night.

 

Liquid Vyvanse Taper

10-30 to 11-12, 25 mg

11-13 to 11-26, 22 mg

11-27 to 12-10, 15 mg

12-11 to 12-15, 12.5 mg

12-16 to present- Increased to 15 mg Vyvanse.

 

Daily Supplements/Symptoms

 

Morning drowsiness daily after changing clonazepam dosage. Remain in bed until heart slows down around 3 pm daily. Facial burning & numbness on & off all day, deregulated body temperature, no appetite or feeling of fullness, excess saliva/sinus, ear fullness & pain, depression, dread, anxiety, fear.

 

Wednesday, Dec 14

5:50 am- cortisol surge

Nature Throid (48.75 mg)

7:00 am- cortisol surge

Clonazepam 1.0 mg

8:10 am- cortisol surge

Effexor 5 beads

9:15 am- cortisol surge,

Vyvanse 12.5 mg

10:30 am- Curamin 900 mg

11:00 am- Higher anxiety, breathlessness and paranoia

12:45 pm- Breakfast

1:00 pm -heart 106 bpm

2:00 pm- 1/4 t. coconut oil, 1 dermal spray mag. oil

2:30 pm- Curamin 900 mg

3:00 pm- 780 mg fish oil

3:15 pm- heart- 97 bpm

3:30 pm- less anxiety

3:45 pm- meditate

7:00 pm- Curamin 900 mg

8:00 Dinner

8:20 Excess saliva/sinus/ constant swallowing began

9:00 heart rate- 73 bpm

10:00 pm- .5 clonazepam , progesterone cap 200 mg, estradiol 2 mg, testosterone cream 30 ml

11:30 pm- sleep

 

 

Thursday, Dec 15

Two cortisol surges before 5:00 am

5:45 am- Cortisol Surge, Nature Throid 48.75 mg

7:15 am- Cortisol surge, Clonazepam 1.0 mg

8:15 am- Effexor 5 beads

9:00 am- Heart 74 bpm,

Vyvanse 12.5 mg

10:30 am- Curamin 900 mg

11:00 am- fish oil 780 mg

11:45 am- Breakfast

12:30 pm- restless, higher anxiety, more fearful, paranoid, increases saliva.

1/2 tsp coconut oil, 1 spray dermal mag oil

1:00 pm- heart 91 bpm

2:00 pm- anxiety & paranoia still high

2:30 pm- Curamin 900 mg

Fish oil 780 mg

4:00 pm- meditate

7:00 pm- Curamin 900 mg

7:30 pm- facial burning worse

8:00 pm- tried to eat dinner but nauseated

9:00- heart 76 bpm

10:00- improved overall mood

.5 clonazepam, progesterone cap 200 mg, estradiol 2 mg, testosterone cream 30 ml

12 am- sleep

 

Friday, Dec 16

6:30 am- cortisol surge, Nature Throid 48.75 mg

7:30 am- clonazepam 1.0 mg

8:00 am- cortisol surge, Effexor 5 beads

9:00- heart 72 bpm,

Vyvanse 15 mg

10:40 am- facial burning

Curamin 900 mg

11:10 am- fish oil 780 mg,

Drowsy but can't sleep

1:00 pm- Heart 131 bpm, completely breathless.

2:00 pm- Dr Appt

3:00 pm- Curamin 900 mg

3:30 pm- 780 mg fish oil

6:00 pm- back home, less paranoid

7:00 Dinner

7:30 pm- Curamin 900 mg

9:00 pm- Heart 79 bpm

10:30 pm- .5 clonazepam, progesterone cap 200 mg, estradiol 2 mg, testosterone cream 30 ml

12 am- sleep

[Sheri755]

Hi, do you need any other information from me? I hope I'm able to sit in the living room more and drive again soon. I've had this anxiety/fear for soo long. Thank you so much.

[Sheri755]

I thought you should also know that I just got a call from my doctor. He's increasing my Nature Throid from 48.75 to 65 mg.

[Sheri755]

Hi Everyone, In addition to my previous three posts above I have some information on having the Vyvanse compounded. I'm not sure that I'm getting consistent dosing with the liquid taper my husband is mixing.

 

There's a very reputable compounding pharmacy that said they do compound Vyvanse. They use a filler, Loxoral, which consists of isomalt, glyceryl, poloxamer sodium and stearyl fumarate. Do you think this would be a better way to taper Vyvanse?

I'm so afraid of everything.

I've provided the info that Scally asked for and the increased Thyroid dosage info above.

The fear is awful. Thank you for helping me.

[scallywag]

First thing that stands out to me is your Vyvanse taper.  It is more rapid than the 10% per month we typically suggest.

 

Hold on your current 15 mg of Vyvanse and 1.5 mg clonazepam (1.0 am, 0.5 pm); allow your symptoms to stabilize. This may take several weeks. Then it might be time to look at the Effexor.

[Sheri755]

First thing that stands out to me is your Vyvanse taper. It is more rapid than the 10% per month we typically suggest.

 

Hold on your current 15 mg of Vyvanse and 1.5 mg clonazeam (1.0 am, 0.5 pm); allow your symptoms to stabilize. This may take several weeks. Then it might be time to look at the Effexor.

What do you think about the compounding filler ingredients? Would it be better to risk the ingredients or risk possible inaccurate liguid dosing mixed at home?

[Altostrata]

Sheri, it's your choice. The compounded liquid probably will be a more consistent suspension. Your homemade liquid does not have the additives.

 

You might ask the pharmacy to minimize additives.

 

Do your symptoms change after you take Vyvanse?

[Sheri755]

Sheri, it's your choice. The compounded liquid probably will be a more consistent suspension. Your homemade liquid does not have the additives.

 

You might ask the pharmacy to minimize additives.

 

Do your symptoms change after you take Vyvanse?

Yes, my heart rate and anxiety are greatly increased after taking the Vyvanse.

[JanCarol]

Hey Sheri - 

 

This last statement

Yes, my heart rate and anxiety are greatly increased after taking the Vyvanse. 

 

Tells me that we are in the right neighborhood with the Vyvanse, it's just that you went way too fast.

 

Here's what I said on 21-Oct-2016:

I would still try a 10% drop and see how that goes - when you are ready.

 

How to Make a Liquid from Tablets or Capsule

http://survivinganti...ing-techniques/

 

If the 10% drop is too much, consider smaller drops.  As always, hold when you are having symptoms.  It should be an easier journey than the Effexor was, if you sneak it out carefully enough.

 

You will see that your last drops of Vyvanse were faster than I recommended, and larger than I recommended.  I recommended a 10% cut, and wait a month to see how it goes.  I have a chart of your changes below, and I put the Vyvanse (and other super-significant changes) in bold.

 

You need to stop making changes.  All changes.  To supplements (well, except the thyroid, that's a change you likely need), tapers, everything, until well into next year.

 

I believe that the reason you've not stabilized is because of changes - to supplements, to meds, to times of day, etc.

 

For me, therefore, changing to a compounded Vyvanse - is another change.  If you can hold on and wait for a month to see if any of this settles, that's when I would prefer another change.  The change to a different form counts as a taper, so you'll need to wait a month after that to see if it settles.

 

But you just made a bunch of changes - to the clonazepam, to Vyvanse, and to your thyroid.  So you will, I'm sorry, need to wait for that to settle before trying anything new.

 

If you desperately feel that the compounding is a better solution to what you are doing - then - do it.  But plan to wait, then, 2 months for any changes to settle.  

 

It's just that you continue to have these little changes frequently.  When you keep in mind that each change can take up to 3 months to shake out (up to 1 month for supplements) - I believe that what you are experiencing is destabilization from all of these changes.

 

I wouldn't make this chart for just anyone (it's my Christmas gift to you):
 

1-Apr-2015 – Started Effexor XR 300 mg taper over a year

Feb-2016 (estimated) – Tapered Vyvanse to 50 mg from 60 mg (16% cut)

1-Apr-2016 – Tapered Vyvanse to 30 mg from 50 mg (40% cut) (sometime around last dose of Effexor XR?)

Apr – July 2016 – took 30 session of neurofeedback

June 2016 – taking whole food viamin herbal complex – quit by 4-July-2016?

June – July 2016 – 5HtP, l-Tyrosine taken intermittently, as well as dose changing

            Health Concerns Ease 2 and Calm Spirit. Chinese herbs. – also intermittently   

13-July-2016 – signed on to SA

14-July-2016 – Reinstated 5 beads Effexor XR

15-July-2016 – adjusted supplements including 5HtP, l-Tyrosine (quit), Magnesium (decrease threonate, add glycinate), adding fish oil, K2, zinc, Curamin, B-complex, Melatonin complex.

16-July-2016 – started fast tapering 5Htp supplement & herb complex with 5Htp

17-July-2016 – moved clonazepam from 1.0 am/0.5 pm to 0.75mg am / 0.25 aft / 0.5 pm

27-July-2016 – Dissolving the Effexor XR in OJ, causing fast release of drug – for how many days?

12-Aug-2016 – Added a bunch of naturopath adrenal support, glandulars detox, parasite, vitamin B compounds,  supplements.

15-Aug-2016 – Stopped naturopath supplements (this improved anxiety)

20-Aug-2016 – Stopped Ioradol (had been on it for a year)

15-Sep-2016 – Reported symptoms after running out of homeopathic supplement (how long taking?)

06-Oct-2016 – started Epsom Salt baths

07-Oct-2016 – Stopped Mag l-Threonate, Stopped Probiotics

08-Oct-2016 – tried one dose of Stramonium (homeopathy) ugh!  Started “strong:” Probiotics

18-Oct-2016 – started Mag l-Glycinate, 100 mg, sipping, in water.

26-Oct-2016 – increased Mag l-Glycinate to 200 mg, sipping in water

30-Oct-2016 – Started fast taper Vyvanse 30 mg to 20 mg (15% cut)

08-Nov-2016 – reported 4 cups magnesium in an hour long bath, daily for a week.

13-Nov-2016 – Vyvanse 25 mg to 22 mg (12% cut)

27-Nov-2016 – Vyvanse 22 mg to 15 mg (32% cut!)

12-Dec-2016 – Vyvanse 15 mg to 12.5 mg (17% cut)

13-Dec-2016 – Moved clonazepam to 1.0/am 0.5/pm

21-Dec-2016 – Increased Thyroid 48.75 to 65.

 

Add 3 months to any of those  bold dates, and 1 month to any of the other dates, and you will see destabilization on top of destabilization.,    Delayed Onset of Withdrawal Symptoms

 

The clearest way out of this is to stay the same.  Make no changes, complain to no doctors.

 

I do have concerns for the need for more thyroid. I'm not alarmed by this, but if your thyroid function is going down, it means that you need to take extra care.  Getting off the Vyvanse is important, and I'm going suggest that 6 months off of your last dose of Vyvanse you will start stabilising. 

 

I want you off it quickly, too, as it is hard on your adrenals, your heart, your digestion.  But it is vitally important go go slowly.

 

I'm sorry I didn't catch your intention to do 15% every two weeks.  If I had, I would have tried to stop you before it happened.  Now, it is water under the bridge.

 

Please hold still in order to heal.  I am so terribly sorry to hear that you are still suffering, still struggling.

 

It is as if you are caught in vines that tighten if you struggle.  The only solution there is to stop struggling, stop fighting, find ways to relax and calm.

 

Can you do bed-yoga?

 

I really wish you a blessed holiday season, and that your nervous system gives you some breaks and windows.

[Sheri755]

Oh Dear Jan, I cried as I read your reply...that you would do this for me. It's the best Christmas gift that I could possibly imagine. It truly is.

 

I think about you every day while I'm waiting for Dr. Dyer to finish talking so I can start meditating. I've been wondering about bed yoga. I'll definitely try it. Thank you for the link.

 

Thank you for charting my errors. It's a great visual to see my mistakes and know that this journey can be smoother. I just need to be patient during the storm.

 

I'm going to print your reply and leave it on my nightstand (if that's okay) as a reminder to stay strong and just wait. It'll be next to my favorite verse, "For God has not given us a spirit of fear, but of power and of love and of a sound mind." 2 Timothy 1:7

 

I wish I could give you a big hug!

Wishing you the happiest of holidays and thank you again so very much.

[JanCarol]

I hope you feel better soon, dear Sheri!

 

When I write words on the internet, I let go of them and set them free.

 

Put them on your nightstand, write them up in calligraphy, staple them to the dartboard.  They are free to be whatever you need them to be.

 

Have a blessed holiday.

[JanCarol]

PS - be kind to yourself.  They aren't errors, just changes.  You were doing the best you knew at the time!

[Sheri755]

PS - be kind to yourself. They aren't errors, just changes. You were doing the best you knew at the time!

Oh yes! I've forgiven my doctors. Now I need to forgive myself. I had a pretty good day today for which I am so very grateful. ❤

[Altostrata]

 

Sheri, it's your choice. The compounded liquid probably will be a more consistent suspension. Your homemade liquid does not have the additives.

 

You might ask the pharmacy to minimize additives.

 

Do your symptoms change after you take Vyvanse?

Yes, my heart rate and anxiety are greatly increased after taking the Vyvanse.

 

 

Sheri, it does sound like you've made a lot of drug changes in a short time. This can make you more sensitive to Vyvanse.

 

If it increases your heart rate and anxiety, and this lasts for hours, it seems the amount you're taking is now too strong for you.

 

But you need to stabilize on the benzo before making more changes to Vyvanse. How is your new clonazepam schedule going?

 

Why did you increase your thyroid medication? What time of day do you take it? Do you feel any different since you increased it?

[Sheri755]

 

 

Sheri, it's your choice. The compounded liquid probably will be a more consistent suspension. Your homemade liquid does not have the additives.

 

You might ask the pharmacy to minimize additives.

 

Do your symptoms change after you take Vyvanse?

Yes, my heart rate and anxiety are greatly increased after taking the Vyvanse.

Sheri, it does sound like you've made a lot of drug changes in a short time. This can make you more sensitive to Vyvanse.

 

If it increases your heart rate and anxiety, and this lasts for hours, it seems the amount you're taking is now too strong for you.

 

But you need to stabilize on the benzo before making more changes to Vyvanse. How is your new clonazepam schedule going?

 

Why did you increase your thyroid medication? What time of day do you take it? Do you feel any different since you increased it?

Alto, I have no more late morning drowsiness with the new clonazepam schedule as I did.

 

It's difficult to tell if I feel a difference from the increased Thyroid dosage. My three month follow up scan showed no change to the nodule. They also did blood work. A few days later the doctor's office called to say that he's increasing the dosage. I asked why. She said he probably didn't like the blood work results but wasn't sure.

I take it around 5 am or whenever my first cortisol surge wakes me. The time doesn't vary much, maybe a couple of hours.

[Sheri755]

Jan, I've been very uncomfortable with the way the liquid Vyvanse is being made. I read in a thread last week that distilled water or a solution from Amazon should be used. I also read that it's light sensitive.

 

My hubby read the instructions on how to make a liquid solution on the link that was provided here and said that he would mix it for me.

 

He's been using Mountain Valley Spring Water and storing it in a small refrigerator that has a window on the front, allowing light. He stirs it with a wooden stick and draws from the bottom. It's poured into a clear plastic cup with a lid. I shake it before drinking. I don't feel that the dosing has been accurate, all the light, spring water and drinking from a cup since Oct 30th.

 

I'm also so obsessed that I will forget to remind him to mix it which has been very close several times. He's getting ready to start traveling again with his job and won't be home to take care of it. He feels that having it compounded will be one less worry for me.

 

Yes, I'm trying so hard not to be scared to death of this compounded Vyvanse. One good thing is that I'm reassured knowing that it will be accurate as I taper.

 

I'm praying so very hard for peace about this.

[JanCarol]

Hey Sheri - 

 

Can you keep it in the regular fridge (in the dark?)

Can you use amber containers for storage?  Or even wrap al-foil or duct tape around the container to block light?

Spring water may have minerals which interact - which is why distilled is recommended.  Can he switch to distilled?  Or the medium from Amazon?

 

These three things should help immensely.  

It sounds as if your husband is very conscientious.  There may be a shock as you switch over to compounded.

 

Can you talk to the compounding pharmacist and get some gradations so that you can transition over to the compounded formula?

 

I'm thinking - if you are still at 15 mg (your signature is missing this) - 

 

1 week 3.75 mg compounded, 11.25 mg liquid

1 week 7.5 mg compounded, 7.5 liquid

1 week 11.25 mg compounded, 3.75 liquid

last week - go fully to compounded.

 

So - option A - correct the medium and the light access to your liquid formula or

Option B, look to transition over to compounded.

 

And breathe, welcome to the new year.  This is the year it Gets Better!

[Sheri755]

Hi Jan,

 

The pharmacy has the 15 mg capsules ready to be picked up. The nurse wrote the script for two 15 mg capsules a day instead of one a day so hubby is picking up 60 15 mg capsules tomorrow. Our insurance doesn't cover compounding so he had to pay in advance. This is also a pharmacy that we haven't used before.

 

What should I do? I had a better day today but definitely don't want to rock the boat.

 

He can switch to distilled and cover the window on the fridge.

 

Nov. 27th- began the 15 mg liquid for two weeks.

Dec 11th- 12.5 mg for five days.

Dec 16- I went back to 15 mg and am currently at this dose.

 

Should I hold at 15 mg of our liquid mixture until Jan 16?

 

I will ask the pharmacist if he can do the transition on the next taper if this sounds okay with you. If so, what would the breakdown be on 13.5 mg? I sure hope he can.

[Sheri755]

Continued. I talked with my hubby this morning.

I'm afraid that it's too late. The pharmacy has filled it and it can't be changed. It looks like I'm stuck with the 15 mg compounded Vyvanse. My husband says that he has enough of what we already had for about five more doses of the liquid.

 

I can't turn the obsession off and am so very scared of what the compounded version will do to me.