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  1. Hi all. I’m new here. A little about my story - I have been battling OCD and depression for the past 7 years. I’ve tried numerous treatment approaches, but for the past 5 years, my mainstay was Luvox. I spent ~2 years at 150mg and then the past 3 years at 450mg. My psychiatrist added Lamictal as I was attempting to reduce or get off of Luvox due to numerous side effects, but in the end, nothing was cutting it. I finally realized I couldn’t wait any longer to get off these medications, and needed to do so rapidly due to my current circumstances, and due to the fact I’m pretty sure my OCD improvements were derivative of the CBT and eXRP I’ve completed over the years, and not really the medical interventions. I’ve gone from 450mg of Luvox and 200mg of Lamictal to 0mg of both as of the Tuesday before last (6/11) over a 2 month long taper, reducing Luvox by 50mg per week and the Lamictal 50mg / week. I knew that this would be much quicker than ideal, but I really had to do it as it was causing too many problems in my personal life. Things were completely pain free and symptomless for ~5-6 weeks, which was a welcome surprise. However, the moment I went from 100mg to 50mg, the withdrawals started kicking in. I had the worst brain zaps I’ve experienced that subsided for the most part after about a week after going from 100mg to 0mg, and then again from 50mg to 0mg. Fortunately the worst of the brain zaps seem to be through. However, since going from 100mg on down, I have been experiencing a lengthy bout of flu like symptoms that don’t seem to be slowing down much, lethargy, body aches, very sore / restless legs, emotional turbulence and bouts of crying (the crying feels pretty good, though - I’ve missed having emotions!), and worst of all, feeling hopeless and struggling to make it through each day! The last thing I would ever do to myself is harm myself or anything like that, as I value life so much, but I just wish I could be in a coma or something for a few weeks to avoid all these symptoms as my neurochemistry readapts to baseline. It’s just constant physical and mental anguish. I’ve been lucky to have some down time from work, because I don’t know if I would have been able to handle work and this at the same time. But feeling physically terrible combined with the mental state I am in has been totally miserable. I’ve tried to keep exercising and tried Benadryl which I’ve heard can help, but nothing seems to alleviate symptoms, and I refuse to consider going back on Luvox. Fortunately, my anxiety and OCD have if anything been better than before, so I guess I have that going for me so far. Always still room to work on my OCD, but it’s definitely not getting worse which is good. Reading some of the posts I’ve seen here, it is a great, supportive, and knowledgeable community. I wanted to reach out and see if anyone has any suggestions on how I might be able to reduce the suffering I am experiencing, particularly with this being Luvox withdrawals, as an incredibly short half-life drug. I’m open to anything at this point.. minus returning to Luvox or SSRIs Happy to chat with anyone else who needs support going through similar experiences, or is struggling with OCD as well. Reach out any time.
  2. Hi All, I am new here, and I hope that the collective experience across the forum is helpful for my situation. I am currently 27 years old and have been on medication since I was 18 years old for depression, OCD, and IBS-Constipation (directly tied to when I feel more depressed). I have mostly been on SSRIs, which have been helpful with depression, OCD, and regulating my peristalsis.. Medication summary below: 2009-2012: Celexa (up to 40 mg) 2012-2013- Lexapro / Abilify 2014 - Clomipramine. Clomipramine + Abilify. Result: Realized higher doses of clomipramine caused too many side effects for me and could not tolerate it, even though it was helpful.Became tachycardic and other anticholinergic effects of combination led me and physician to revert back to SSRIs. 2015: Zoloft; Verdict: Made my IBS symptoms worse; depression and OCD better. However, due to increased diarrhea had to go off Zoloft. 2016: Due to gut that was made worse by Zoloft and doing very short-term trials of other SSRIs which also made my gut worse, I tried EMSAM (MAOI) for three months. Verdict: Did not help at all 2016 - 2017: Went back to Celexa (40 mg). Helped but felt it was not effective as back in 2009, even at maximal dosage. Eventually had relapse of depression in Summer 2017. Summer 2017: Tried course of Transcranial Magnetic Stimulation after Celexa stopped working. Verdict: Did not help at all 2017-Present: 200 mg Luvox Verdict: In summer 2018, Luvox also stopped working and had relapse of depression. Summer 2018: I ended up going to homeopath in mid, which has been the most helpful thing to me so far. I have adopted the SCD diet, which has greatly helped my gut, and the remedies she has prescribed actually pulled me out of the depression I was in and made my OCD better, all while still on 200 mg The current situation is that I am still on 200 mg Luvox and with the homeopathy, my symptoms have greatly improved. Back in January 2019, I tried to go down on the Luvox, first to 175 mg (wait 2-3 weeks), then to 162.5 (wait 3 weeks), then to 150 mg (for about 5 weeks). It appears, that although I did not realize it at the time, my symptoms were getting worse, with more mood swings again, and my constipation was becoming more frequent. Most recently, I became completely non-functional and could barely get through one day. Just a few days ago I increased back up to 175 mg to see if I would feel better. So now I am in a predicament, as I really don't think the SSRIs are helping me much because 2 different ones have now pooped out on me in less than a year, but the homeopathy has allowed me to return to normalcy gradually. I am certainly still not far along in the homeopathy (only about a year), but I have definitely felt a difference. I thought I was ready to taper off the Luvox gradually, but clearly, given my relapse of depression and constipation, I maybe went too fast. I have read about the 10% rule, which I largely stuck to, but maybe I will have to go slower. Maybe I will use compounding next time around, maybe weighing out the pills. I do have some questions for the community. -Anybody have any thoughts on my experience or anything they experienced with Luvox? -Over the years of going up and down on SSRIs, I developed muscle twitching and a weird pain in the back left of my head, which I feel especially when my mood gets worse (as was the case recently when I lowered the dose of Luvox). Anyone experienced this / any tips on how to deal with these or what this could be? -I've only been on Luvox for about 16 months. However, I have been on SSRIs for a long time (about 10 years). Does that mean it can still take me forever to get off Luvox?
  3. Hello Im new here. Thank you for taking time to read this if you are. :) I have been on Mirt for only 12 days at 15 mg. Im looking to come off due to side effects, its just not suited for me. I was going to do 11.25 for 4 days, 7.5 for 4 days, 3.75 for 4 days, then off. Is that too quickly? I thought not since I have only been on it for 12 days at 15 mg. I appreciate everyones input and advice! :)
  4. Hello, during my 4 month taper of luvox (from 100mg to 0mg) I accidedentally took 100mg (my usual dose) instead of the 40mg I was at on that ocassion. I immedtialy continued my subsequent taper of 40mg but I noticed my WD symptoms to aggravate a bit after the accidental 100mg. Now at around 5 months off (stopped in March 2018) I feel about 80% healed except for a newfound sexual dysfunction that occurred right after stopping the ssri. Is this PSSD? And is it attributed to my accidental updose or was it bound to happen regardless. I also feel a tight vice like pressure on my head. Thank you
  5. Hi everyone, I`m new here and for abroad with not very great English - so excuse me for any of my mistakes... I`m reducing my dose of Fevarin from 50 mg to 37,5 mg. It`s only third day right now. My question is if I can use any herbs and f.e. ginseng to help myself during this prosses? Can it go easier this way? Would it be safe?
  6. Hi ! I am now two years off klonopin. I used it for 13 years. I still now suffer from nerve pain : numbness, buzzing, tingling, burning, pins and needles burning sensation in limbs. But this condition worsens as I started Tapering Luvox last spring. The condition is now so bad that I can't sleep. I also have to deal with muscle pain all over. I really think tapering the SSRI increased that benzo protracted withdrawal related nerve pain symptoms. I had an MRi which is normal. Not sure if I should continue to taper the SSRI or take a break. I am currently half way through...Outside the nerve pain, I haven't noticed other symptoms ! So taking a break ? But if it takes years anyway before nerve pain goes away, this might just be a waste of time stopping to taper Luvox.
  7. ryan1982

    Ryan1982: my journey

    Hi everyone, I’ve read this site for a number of months and I wanted to tell you all how helpful it has been. I’m a happily married father of two and I am starting down the path of weaning of Luvox. Here’s my med history: 2005- Post-college I was diagnosed by a GP as having Generalized Anxiety Disorder and a Panic Disorder. I took Lorazepam every evening for 3 years and didn’t do the research to understand how dangerous that was. I got off of them cold turkey and you can imagine how that went. 2008- After finally getting off Lorazepam, my GP prescribed me Zoloft, Cymbalata, Paxil, Buspar to no avail- I still had anxiety. I stumbled on Lexapro and 10 MG was a dream drug for me. 2016- In December 2016, I had a routine surgery go wrong and I lost > than a liter of blood and was on a ton of painkillers for 2 weeks. I didn’t wean properly and after taking Tramadol, I was diagnosed with Serotonin Syndrome. I snapped out of that after about a week. 2017- I noticed that after my surgery, Lexapro was no longer working. From January to March, I tried to increase my dosage from 10 MG to 15 MG but I simply couldn’t get it to help my anxiety. In late March I began taking Pristiq and gave that 8 weeks but I was still to anxious. From June to early July I tried Trintellix but that drug made me very, very depressed (new to me) and I immediately switched back to a Lexapro. I tried to Lexapro 10 MG from July to October and my anxiety disappeared. However, the physical side effects (GI, chest tightnesss, etc) were too much to handle. I felt awful. In late October until now I tried taking 25 MG, 50MG Luvox and 100 MG Luvox CR. All of them manage my anxiety but I feel physically awful...like my insides are melting. I had CT scans, an endoscopy and a whole host of blood work and it all came back fine. I even wore a heart monitor for 2 weeks and everything checked out. I took 100 MG Luvox CR for a week and had to drop back down to 50 MG due to the physical side effects. I’ve recently gone from 50 MG of Luvox down to 25 MG for a few weeks and I’m now at 18.75 MG. Mentally, I feel great. Physically, I feel terrible. Every single day around noon, my sides, stomach and chest start feeling so bad...like they’re in a vice. I’m taking a pre and probiotic as well as B Complex. I’ve started taking Luvox midday since the half-life is so short. I did the GeneSight test and Prozac was the worst drug for me, so there goes that as an option to switch to for weaning/tapering. I’d love to get some advice on where to go from here. The most frustrating thing for me is when people tell me that the body aches I’m having is anxiety; I’m not anxious mentally in the slightest so I think these problems are either med or withdrawal related. I desperately want want to feel physically better so I can be a good father, husband, employee and friend. Thanks to you all in advance.
  8. Hi all, I am new to this forum. I want to share my experience with you guys. This is my second time trying to come off of these two medications. I want to succeed in staying off them this time. I have been off meds for four months so far. A bit of a history of my medication use. I have been on seroquel and lexparo for a total of six years. In 2014 I tried to come off of those 2 meds and did it way too fast. I was on Seroquel 600mg and the physical withdrawals got so bad that I ended up in the emergency room. At that point however I did not go back on any meds and stuck through the physical withdrawals until they went away. A few months after that I went through the emotional, clinical, and psychological post withdrawals that got so bad that after 5 months I went back on medications and ultimately to the same meds I was on before. I have been on those meds since this past year. So I was on seroquel 400mg and lexapro 10mg until this past year. I knew that I had done it too fast and too quickly the first time and I was not under any medical supervision as I had stopped seeing that doctor. I wanted to give going of medications a second attempt this time and with determination and willpower to not go back on them again. With my luck however this past April my psychiatrist told me she was moving to a different state and will be replaced. So I asked her how to wean myself off of the meds before she left and she did not agree with it but told me how. Btw after she left I just followed her instructions and did not see the people that were covering for her because i did not feel the need to since I was no longer taking any medication, they never replaced her and just had people filling in and when they did find a nurse practitioner, I was told that she has quit. But back to what my doctor said. She told me to go down from 400mg of seroquel by 50 mg every month, that was her recommendation for the slow taper. This was back in April and it would take me 8 months if I did it that way before I would be off so I did not do that and instead went down 100mg every month. She told me that that was not the safest way to do it but she could not stop me. Now that I look back I probably should have done it by 50 mg each month even if it would have took 8 months, and maybe I would not have as many problems right now. So I began the weaning process in April and by July I was off both seroquel and lexapro, seorquel 400mg and lexapro 10 mg. For the Lexapro I went from 10mg to 5mg for two months, then to 2.5mg for a few weeks, by 3 months I was off of it as well. The physical withdrawals did not last that long and I got through it. But two months in I was getting the clinical, emotional and psychological symptoms back. The very ones they were meant to treat, and each month it is getting worse and worse. I do have to mention that before I ever started any medications, the only thing I was ever diagnosed with was depression and social anxiety. I was put on an SSRI and it made me very agitated and off the walls, kind of like hypomania with anger and impulsiveness, thinking and acting reckless. Once again I was never like this before meds. So what did they do? They added seroquel to counteract those side affects of the SSRI and I stayed on that combination ever since, going as high as 600mg of seroquel at one time and these past 3 years on 400mg of seroquel. The post withdrawal affects I have been dealing with now four months off the meds has been has follows. It started as paranoia, slightly delusional, lots of anxiety and worry and nervous, can't calm down. Then came the depression, debilitating depression, it can be brutal, then came the severe ruminations and obsessions, I repeat the same stuff in my head over and over again like a broken record with anxiety, doubt, unsure jumping back and forth between thoughts, it is very time consuming and makes me feel like I am losing it. And then came the mood swings, lots of agitation and irritability, anxiety, angry thoughts, hostility, everything pisses me off, don't like myself or anyone else, thinking irrational and delusional, depressed but with lots of energy, suicidal ideations, there are moments when I feel ok or normal and am able to laugh but those don't last. And now recently when I feel totally out of it, kind of like derealization and depersonalization, where I feel disconnected from myself, everyone else, and everything around me. I don't feel anything, loss of pleasure and emotions. And it is really scaring me. I never know how I am going to be feeling on any day, it is so unpredictable and it seems to be changing and getting worse and worse. I am still going through all the symptoms I mentioned before, and they keep adding on to different or new ones but I never know how I am going to be feeling at any given moment or day, it is very unpredictable. Lately my head has been hurting and I feel I am going into cognitive decline, like I am slowly starting to lose my mind, where I can barely function. Also, I am having a lot of restless movements of my hands, feet, and legs all the time. I am having more sexual dysfunction now than when I was on meds. I feel extreme panic, worry, and desperation, severe anxiety, where I feel like I am drowning or can't breathe, and moments of intense grief and sorrow. This is an everyday thing for me, it shows no mercy and I am getting tired of it all, it seems never ending, don't know what to do but I need help. The current state that I am in is that I find it very hard to be around people, all my symptoms exacerbate around people making me feel ten times severely worse. So I don't leave the house much these days, only if I can and it is not for long. Even in the house, I am mostly in my room, being in the kitchen, or bathroom or living room makes me feel unwell, being in my room does not make me feel happy or content but it makes me feel better than being anywhere else. I know that this is all in part because of I have been off the meds four months now and that is why I am going through all this that is getting worse and worse. I ask myself if I give it more time being like this will I eventually get better? Will my brain go back to normal with time without having to go back on any medications, especially the ones I was taking? or do I need to go back on some type of medications right now to get me through this, whether they are the same ones or different ones? I wonder if I need to be hospitalized which would mean I would have to go back on meds, or if I should just go back on meds right away. I am not sure what to do at this point. My goal is to not go back on any medications and give it as much time as possible while doing things to occupy my mind and body and avoid anything that will trigger me, stress me out, or give my anxiety, which at this point it is just about anything. Another option I thought about was going back on the meds at a very low dose and than weaning off of them again at the slowest pace possible, this would be just to get me through this right now and stabilize me. Since I think 3 months weaning process was too fast considering that I was on them 6 years in total at fairly mid dose ranges. I can either wait it out longer and I wonder if i will get better or worse or stay the same, or if any emergency happens, like having serious thoughts about hurting myself or some type of episode, that I would either have to be hospitalized and go back on meds to save my life. I do take vitamins and supplements right now and I would like to think they are helping but I am really not sure. I am also exercising and watching what I eat and drink, and am getting good sleep thankfully. Can anyone relate to this at all? Have any opinions, suggestions, or advice? Thank you.
  9. Hello, I have had OCD and GAD since childhood and panic disorder since I was 30 years old. I am 48, and this summer completed a taper from Luvox. I plan to taper off other meds under doctor supervision but am currently considering when to schedule tapers since teaching and tapering may not mix. The Luvox taper was diifcult indeed but was not the beast it might have been had I moved too quickly. I have experienced a long road of meds, cessation of meds, and new meds followed by the old meds, and I have been in periodic therapy for many years. I am currently working with self-guided CBT and mindfulness. Several of the OCD symptoms have intensified, so I am willing to do the work. I am literally terrified of stoping the Xanax; my panic attacks were debilitating and drove me to telecommute for years. However, I want to leave anything close to a benzo behind me. Thank you all for sharing your experiences and for this forum.
  10. Hi, So quick background.. i took LUVOX (fluvoxamine) a few years ago and was able to come off of it safely and with minimum withdrawal. (I reduced 50mg at a time over a few months) (I know this wasn’t the right way to taper but I didnt know at the time) I took Luvox again this year and as I been withdrwaling, I realize it is MUCH harder. I can BARELY withdrawal 10mg at a time and I strongly feel the withdrawal. I been withdrawing less than 5% to. It just does not make sense to me that I withdrew much faster and easier before and now it is so much harder the second time... I don’t think it has todo with my diet or stress. If you Any thoughts as to why this is, it would be great thanks...
  11. Hi, I quit 50 mg of Luvox in February of 2016 and ever since my nose runs constantly. Has anyone else quit antidepressants and had a similar reaction? Why does this happen? I know antidepressants do act on histamine somewhat, but I wouldn't assume they effect histamine enough to prevent allergy symptoms.
  12. Hi, I have been taking the generic Luvox CR (Fluvoxamine ER) 100mg every night for years--the cost is ridiculous and I would like to taper off ....it is in capsule form. Has anyone successfully tapered off of this drug? This is the extended release form, and only available in 100mg and 150mg capsules. Thanks!
  13. Hello, I came across this forum while trying to figure out the best way to taper generic Luvox. I've been taking it since January 1, 2017 and hit my maximum dose of 50 MG around February 1st. Here is my long history with psych meds: I started having bad panic attacks by age 15. I developed agoraphobia, and eventually had to leave high school and be home schooled. Then I started having severe OCD as well. I started generic Paxil 20 mg at age 19 (1994) with the only side effect being insomnia for around a month. It didn't do anything for me, but I had undiagnosed Crohn's Disease at the time, so I probably wasn't absorbing it very well. After getting a decent doctor and being diagnosed with Crohn's and treated for it, the panic, anxiety, and OCD subsided (this was 1996). My GI doctor said it was fine to quit taking Paxil, so I did (cold turkey). I didn't have any noticeable withdrawal symptoms. My anxiety and panic returned roughly around 1998. This is probably when I went back to Paxil (long time ago, so I'm a little fuzzy on the dates). This time I had a lot of increased anxiety and nausea when starting at 20 MG, so I started lower and worked my way up to 20. I was also prescribed Xanax (don't remember the dosage) a little later. My doctor retired, and the new doctor switch Xanax to Ativan (I think it was .5 MG three times a day) and added Buspar. At some point I quit taking Buspar because I felt it wasn't doing anything. I don't remember the date, but it was probably prior to 2000. I don't recall having any withdrawal from it. In 2002, I got another new doctor. I was doing pretty well, but she thought I would do even better if I increased my Paxil to 40 MG. After around a month, she decided a change to 150 MG Effexor XR would be better. I had a very fast cross taper off Paxil and onto Effexor, but luckily had no symptoms. Another new doctor in 2003! This one took me off Ativan and added Vistaril. I don't recall having any withdrawal problems from the Ativan, but it was a fast taper. Vistaril did nothing for me so I stopped it within a couple of months. The next new doctor that wanted to make changed wasn't until around 2010. I was doing okay, but she upped my Effexor to 187.5 MG to see if I would be even better. Eventually insurance quit paying for brand name Effexor, and my body was not digesting the generic tablets, so I was switched back to 40 MG of Paxil around 2011 or so. Once again, I was lucky and had no symptoms despite the quick cross taper. Eventually my doctor upped the Paxil to 60 MG. And another new doctor (they don't stick around long in the clinic I go to) in 2012! Even though I was doing okay, she thought I would do even better on Prozac. She had me cross taper from 60MG of Paxil to Prozac (don't remember dose, maybe 40 mg) in a single month. I was actually okay that month, but month 2 was hell. By the end of the month, I had enough and restarted the Paxil at 10-15 MG. I instantly felt better, and called my doctor to inform her I was switching back to Paxil. She gave me a bunch of crap about "seratonin syndrome" but since she wasn't worried about it during my original cross taper, I wasn't worried about it while crossing back. I was back to 20 MG of Paxil and off Prozac within a month, and felt back to normal. One good thing that came out of this was that I discovered that 20 MG of Paxil worked just as well as 60 MG. The doctor tried to get me to switch to Zoloft, but after the Prozaz disaster, I said no way. I was curious about how I was doing so well with 20 MG (after previously being on 60 MG), so I secretly started cutting back. I got down to 10 MG within a few months, was satisfied, and stayed there until 2016. New doctor time! This one has a real love for Zoloft and Luvox. He pressured me for months to switch to one of those. When I refused, he upped my Paxil to 40 MG (or so he thought, I actually remained on 10MG) He also prescribed Prazosin, which I only took for a month or 2 before I stopped due to side effects. When I stopped Prazosin, he wanted me to take Vistaril and some sort of beta blocker, but I refused those as well. At this time I also started reducing my Paxil. I took 7.5 MG for several months. Then I went to 6 MG for a month, then 5 MG for a month. Anxiety and panic symptoms started to to return, so I stopped reducing. After a particularly bad couple of weeks (lots of panic attacks at night to where I was afraid to go to bed) I finally caved and agreed to generic Luvox. I started the cross taper from Paxil to Luvox on January 1st. My doctor wants me on (and thinks I'm taking) 300 MG of Luvox. I never got that high. I tapered up to 50 MG of Luvox by February 1st. I tapered off of Paxil by March 1st. Since I started this cross taper, I've had worse anxiety and panic attacks, headaches everyday, light sensitivity, memory problems, and loss of interest in things I liked to do in the past. My doctor prescribed generic Ativan, which I used pretty sparingly at first, but now I'm taking .5 MG each night just so I don't wake up in a panic every half hour. Time to get off this Luvox! I restarted the Paxil at 2 MG on Friday (I made my own liquid version from a 40 MG tablet) since some of my problems might be due to not doing a proper taper (which I only discovered when I found this site). I also made a liquid version of the Luvox and am taking a dose of 22.5 MG (4.5 mL by mixing a 50 MG tablet with 10 mL of water) twice a day (45 MG total). So if you're still here after this lengthy post, how fast can I reduce the Luvox? Should I follow the 10% rule even though I've only been on the drug for 3 months? I hate to think that I'll be reducing this junk for months and dealing with headaches everyday. As for the Paxil and Ativan, I'll deal with them after I get the Luvox out of my system. Thank you for this great site!
  14. For someone on 50mg of fluvoxamine for only 2 months, would the 10% rule still be sufficient? Or is that for people who've been on an SSRI much longer?
  15. Hi! I'm Britt777. I joined this site to figure out what is causing me numerous symptoms. Here is my brief story: Took Lexapro for about 3 years or more, came off of it Tried Trintillex and Brintillex, didn't like the way it made me feel Doctor then tried Fluvoxamine 100mg and took that for 7 months. He decided to add Wellbutrin (Bupropion XL 150mg) along with it. A month later I ask to stop Fluvoxamine (Luvox) because I felt like I was experiencing "depersonalization" or pretty much felt like life was not real and was a dream. So, at that appointment he told me to stop the Fluvoxamine and upped my Wellbutrin to 300mg once a day. The first day from this switch I felt great. Then the second day came... had nausea, lightheadedness, dizziness, "brain zaps", increased tinnitus (ringing in the ears), blurry vision, feeling like I could pass out, headaches, head pressure, and crazy fluctuating heart rate. (Today I had a heart rate of 100 and dropped to 70 within 5 minutes without doing anything different.) This is day 7 since the switch. I just want to find out if it's withdrawal symptoms from the Fluvoxamine since he didn't advise me to taper or if it's a reaction to upping the Wellbutrin.
  16. I am 42 years old. I vent to the doctor with chronic headache,he prescribed me Luvox (Fluvoxamine) 200 mg/day, 1.plus 5mg Xanax/day. I had been taking these for 8 years. In 2016 april i got tolerance for luvox. For the doctor recommendation started tapering the drug and came off in 4 months but during this time i had burning sensation in my intestine. I had really serious withdrawal-symptoms like dizziness,hypersensitivity,depression,tinnitus,insomnia,arthritis,etc. My symptoms are like PAWS. While i was coming down from luvox i had withdrawal-symptons for xanax ,because luvox makes xanax stronger. By 2017 january my symptoms got very bad and i felt like my whole body is shutting down, i started taking luvox again 150mg/day, plus 1,5mg xanax. To date i stil l have paws and have inflamation in my intestine. In order to stop this my gast roenteorologist reccommended to switch to PROZAC. In this matter i need some advice from you. Any doctor i have talked to has no clinical experience with luvox in my country. Please help me with your advice! Thank you
  17. Hello everyone. Although I feel like maybe I'm not as bad as many many people here, I would still like to share my story, since I have been through some suffering lately. Hope I don't bother you. Tl;dr: When I reinstated Luvox I started having depression, terrible feelings of hopelessness, dread and doom, no joy in activities or life in general, lack of purpose or meaning in life, and no love for my boyfriend, which troubles me the most. I never had depression before. Wondering if it was the Luvox and starting to taper, but afraid... So it all began when I was 9 years old. I started having severe panic attacks and anxiety out of nowhere. Afraid to die, afraid my parents would die because they were older than "normal" (used to call my mom every 5 minutes to see if she was alive), afraid of death in general. After a while, I was seeing a psychiatrist for children and started taking Clomipramine, don't know the dosage, until I was 12. I don't remember much because it was 13 years ago, but I don't recall any problems with withdrawal. From that point until I was 21, everything was fine. I would ocasionally have shortness of breath and that kind of stuff, but completely manageable. I was always a very good student (my mom told me they had an IQ test or something and they said I was "gifted", but we never explored that so I don't think it's really important), I practised sports, I learned to play the piano, I always had a great social life, very active. Now, in 2013, when I was 21 years old, everything went downhill. I was in a relationship since 2011 and it was not a great one, we would fight a lot, he would always break up with me, changing is mind about loving me on a weekly basis, insulting me, saying nobody would like me if they really knew me, etc. This relationship lasted until 2015, mainly because of my inability to let it go, as I thought I could never be happy again without him. In 2013, I had a huge anxiety and panic attacks crisis. I was also diagnosed with ocd (obsessive thoughts with mental compulsions, have little to none physical ones). Started on Sertraline but rapidly stopped because I couldn't tolerate the dizziness and nausea and it would make me more anxious. They put me on Xanax for 3 months and I tapered it in one month. Spent two horrible days with insomnia and EXTREME anxiety, but after those two days, it all subsided. Two months later (February 2014) I was worse (panic attacks, dp/dr, etc) and was put on Luvox (fluvoxamine - 50mg). It was well tolerated, and it helped me for two years, but I noticed I would still have anxiety and the obsessive, I just wouldn't reach the point of a panic attack. About a year and a half in, I started taking 25mg and everything was ok. Now where it got worse. In April 2016 I started to taper it with the help of my psychiatrist (whom doesn't really talk to me for more than 5 or 10 minutes, doesn't believe Luvox made me gain 33 pounds in under a year, and told me it usually had no bad effects). He told me to start taking it every other day (the 25mg) for a week, then every two days for a week, then every three days, etc. At this point, my previous relationship was over for a year and I was starting a new one. When I was taking it every two days, I started having SEVERE DP/DR and PANIC ATTACKS. I was told to take the 25mg everyday. It didn't work and he told me to raise to 50mg. Well, the panic attacks have stopped but the worse came. Since I was back on 50mg, I started to feel unhappy. I have a great boyfriend now, who really supports me and cares about me, I am studying psychology with very good grades, so everything is fine I guess. But I started to feel disconnected and detached. I feel no joy, no happiness in activities I used to enjoy. I reduced my going out of home very very much, sometimes spending a week without leaving my house and bed. I find no purpose in life, no sense (mybe it is an existential crisis, used to have them but not to this extent). I sometimes feel very frustrated and cry from hopelessness. I don't know what to do. Somedays I don't feel anything at all. On new years I was downtown watching the fireworks and suddenly I felt detached and very nervous and had to go home. My boyfriend came with me and it was ok after a while. But I can't stop feeling sad and with no joy. And the WORST OF ALL, sometimes I don't feel love for my boyfriend I know I love him, I think I do, but I can't feel it. I used to feel love so so so deeply and it is so strange to me. I told this to my psychiatrist and he said it was normal with the antidepressant but there was no problem and I had to keep taking it and he told me I had depression because of the anxiety, ocd and panic attacks. But I feel I just got worse since I reinstated it. I never had depression before and I had this since I was 9... Do you think maybe it is the Luvox? I am thinking of finding another psychiatrist since mine says that withdrawal from antidepressants is not usual and it was my symptoms coming back. But i reinstated it and I just got worse and worse. I sometimes think of suicide, but not in a "I want to do it" kind of way, nor finding relief in it. On the contrary, I feel so hopeless and purposeless that I fear it might come the time that there is no other way and it really scares me, since one of my great fears is dying and ceasing to exist. I want to taper it but I am afraid I am broken already and I have no hope. I don't want to feel the terrible withdrawal symptoms but I can't take this anhedonia anymore. It makes me so, so sad. I also sleep for more than 12 hours a day and sometimes I don't even see the light of day. I just want to feel happy again, but I am afraid I have no hope at that, that I will be depressed forever. What do you think? Sorry for the long post, but I needed to talk to someone that might have experienced the same as I do. Thank you so much, hope you all feeling well on your journey.
  18. Hello, I am a 29 year old male who struggles with panic, anxiety, and depression. I've always been an anxious child (choking phobia episode in 2nd grade in which I only ate baby food for a period of time) but it did not become disabling or diagnosed a disorder until the end of high school when I was getting panic attacks in class and not know what was happening to me. After about a year of not knowing what was going on and suffering immensely I was finally diagnosed with Panic Disorder and put on Lexapro in 2005. Once on Lexapro I felt absolutely incredible, as if I was a new person. It was one of the most amazing experiences of my life to quickly go from a life of intense suffering to being almost reborn into a person who was happy and able to socialize and function. This didn't last very long, however, and my dosage was increased to Lexapro's maximum of 20mg. In 2009 I told myself that my Lexapro really wasn't doing anything for me anymore and so I foolishly stopped taking it cold turkey. I was okay until two weeks later where I suddenly experienced an out of the blue severe panic attack in which 911 was called. I went back on the 20mg of Lexapro but did not start feeling decent again for about 3 months after reinstating my daily dose of Lexapro. I learned my lesson and stayed on Lexapro 20mg until I noticed in 2013 that my anxiety and depression was coming back with a vengeance. My mental state had really went downhill and I was feeling very sick, however, I had a fear and resistance to changing medications after my experience of quitting cold turkey in 2009. Eventually, though, in 2014, I could no longer accept the state I was in and saw a psychiatrist. I was put on Zoloft for a brief amount of time but felt extremely depressed on it and was then given Luvox 150mg. The Luvox appeared to bring me to a decent level of functioning and so I've been on it ever since. Recently, though, I've been starting to REALLY panic and worry about what being on these drugs for so long is and has done to me... I'm still a very depressed and anxious person much of the time despite taking these medicines but I've also felt like a zombie with blunted emotions. It has become hard to cry and to laugh. I feel apathetic a lot of the time. When my parents see me they ask me if I'm tired or if I've slept; I've even been called a zombie by them in the past. This zombie-like feeling is nothing new but I've recently become very concerned by it. This emotional blunting is really worrying me and I don't know what to do. Since I still feel anxious and depressed I know that if I were to see a psychiatrist they would either up my dose of Luvox, switch my medication to another antidepressant, or just add another medication on top of what I'm taking. I've been reading some things online that claim that antidepressants can actually cause depression. And I've read about the emotional blunting zombie effect that is similar to receiving a lobotomy. Many of the sites also claim that these side effects are PERMANENT... If this is all true, I feel so victimized. I was a young kid in a very desperate position who had zero knowledge about antidepressants or anxiety disorders when I was prescribed Lexapro. I was not given the option of talk therapy or other natural solutions. I was not told that I'd have to be on these drugs forever or for the long term. I just wasn't told anything other than you have panic disorder and take this... I didn't know what I was getting into at the time and what any other options were. I was an ignorant kid desperate to feel better and I trusted the doctor... Now I just don't know what to do... The fact that a website like this exists is proof that many people have the same concerns about taking antidepressants as I'm starting to realize. I so scared that my brain has been PERMANENTLY damaged and that there is no point in getting off of these drugs. I'm at a crossroads with two opposite choices in front of me... Should I try to stop taking antidepressants altogether or should I go the conventional route and see a psychiatrist who will no doubt put me on more or different antidepressants... I don't know what to do and I'm very scared that I've ruined my life forever....
  19. I'm 40 years old and have been on ssri's since around 21-22 for ocd depression and anxiety Background: First med I was on was luvox 125. "Cured" me 99.8 percent of ocd. I was on it 14 years and had a break through. Rather then go up doctor wanted to try Prozac. I was put on 60mg of prozac Prozac "cured" me of ocd 99.8% June of last I wanted to try quiting.. I went down every 2 months to end up at 20mg Prozac. I had a breakthrough in Feb. I then went back up to 60mg of Prozac. This aggravitated my ocd and I started to have my first issue with eye pain. I was titrating off Prozac and eyes started to feel better. After 9 weeks at 60mg my eyes were burning. First eye Dr said try a different drug. I went to zoloft 120mg severe eye pain was experienced. I went lower on zoloft and eye pain got better.Went to luvox 75mg I had I pain also . Went lower and have less pain. 3 regular opthamologists 1 retinal specialist 1 glaucoma specialist 1 dry eye specialist 1 neuro opthamologist Currently I'm on 43.75 of luvox and need some help. My eye pain has forced me to go lower on meds and searched for a site where others who have lowered there meds have experienced similar issues with strange feelings and everything else that goes with it. I have read a great deal on this board the last few days. My question is I can only assume my body was used to higher doses of ssri'so that's why I'm experiencing these strange feelings and thoughts. I have thoughts happy thoughts from childhood that seem to have been almost blocked by my ssri usage for all these years. It's like a flood of childhood memory's have come back. I have vivid dreams now. I have bad disassociation. No interest in sex . Feel detached have anxiety in the morning and at 5pm. At night I almost feel normal. My ocd and bad thoughts have not returned. Is what I'm experiencing withdrawl?or am I getting used to this lower dosage? I tried 37.5 mg but couldn't take the flood of thoughts. That's why I went up a little bit more and that's where I am now. I take .25 or .50 xanax a day. I tried stopping but can't. I can go max 3 days without .25 or .50 of xanax . Which I use once a day.
  20. I am trying to find my way to a medication free life. I am currently on 50mg of Fluvoxamine and have not been able to get lower without significant problems. I am worried about how much to share. I have spent 12 years on a variety of medication, with worsening symptoms and new problems. I was a "good" patient, I followed their advice and their prescriptions. It didnt work. My story is long, complicated and painful. I would like to communicate with others who understand. Chirstmas day 2015, I discharged from a psychiatric hosptial. My medications at that point were - Lyrica 150mg, Fluvoxamine 200mg, tapentadol 100mg, clonazepam 2mg daily (often encouraged to take more as inpatient up to 6mg a day) with prn lorazepam (up to 5mg), olanzapine (up to 30mg) and paracetamol/codiene (up to 180mg per day). I "woke up" last year after a CT scan revealed that my complaints of pain were infact real. I started tappering off Zeldox with my psychiatrists guidence. I had been on 80mg for 5 years, he dropped me 20mg in the first week. I ended up in hospital. From there its been a continual mess of them medicating me until I stopped seeing all of them around 3 months ago. I am struggling, but many things are so improved. I want to continue to heal but have hit a road block. Sorry to be scattered.
  21. Hi, I've been on Luvox for 3 or 4 years. I tapered down to 50 mg about a year ago and I'm currently taking about 3.5 mg. I've tapered down over 8 weeks. I'm about to stop taking it completeley next Wednesday. What can I expect in terms of withdrawal given the dose that I was on (50 mg) and the time I took to taper. How long will it take me to recover from the withdrawal effects?
  22. hi i have take fevarin for 2 and half years and i have dismiss that instant and i was suffering from sleep mind full of thought bad humor ecc if you stop take antidepressant instantly you have some damage? or after the collateral effect pass the brain going in balance again? sorry bad english im italian
  23. I'm having a hard time taper off 2.5 mg of zyprexa. I went every other day for 7 days then quit taking it and only managed to go two nights before insomnia and anxiety kicked in. I'm on zyprexa for sleeping anyway, is there hope for me getting off this drug?
  24. mustangwoman

    mustangwoman: Hello

    Hi! I am also a pp refugee. I am a 30 something y o woman from Tennessee. I am a nurse, wife, and mother. I also have been fighting the good fight with withdrawal for several years. My signature tells the story. I am currentlydown to 10.9 mg of luvox, which is supposed to be equivalent to approx 2 mg of paxil. I am so glad this site exists, support is tremendously important during this. I have family that loves me and knows that I am going through this, but no one understands like those going through. So glad to see familiar faces, so to speak. So glad that I could keep my support family, and have more family to add as well!!!
  25. Hi, I came off of luvox (fluvoxamine) almost cold turkey in August 2013. I was on it for 4 years at a dose of 150mg. Earlier also I had tried to very slowly (over the period of a year) come off it but it gave me peripheral neuropathy and TMJ once I was off it completely. I went back on it last year because I felt my OCD symptoms have increased. Now again I have quit it but almost cold turkey (on August 1st, 2013). It has been 3.5 months now that I am off it. I thought that my withdrawals lasted for about three weeks of quitting it and that I was successfully able to get rid of them. But two months after being off of luvox I started experiencing extreme sensitivity to hot and cold. This gradually worsened to enormous tooth ache and redness in gums by the end of three months. I got a root canal done after that. My pain kept jumping throughout my whole mouth. My dentist said that my teeth look okay. I have started a thread here earlier (http://survivingantidepressants.org/index.php?/topic/5185-sever-pain-in-teeth-and-gums/) because I didn't know that as a new member I should have posted here. Yesterday I tried one of the supplement from "the road back". It seems that it has helped me with the teeth ache. The TMJ and stuffy feeling in face and limbs is still there. Before yesterday it was impossible for me to live without at least 1200mg of ibuprofen per day for the last 25 days. For many days I even took 3000mg. There is too much facial pain and it is difficulty lying down because the symptoms get worse when I lie down. I think luvox caused me teeth grinding and also damaged my peripheral nerves because of which I am experiencing tooth decay and teeth ache because the roots of my teeth are getting damaged and I am also having pain and tenderness in my joints and limbs. Do you recommend that i should go back on luvox and withdraw gradually? Or is it too long now that 3.5 months have passed? I would really appreciate your advice. Thanks
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