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  1. Washy

    Washy: Big mess

    Hello. Brief history, 20 years of paxil/seroxat use, 16 months ago i decided with my doctor i wanted to reduce and stop this medication. With his direction of reduction i went down from 30mg to 10mg in 5 months. Brief headaches was experienced during going down. Decided to hold at month 5 as some anxiety issues started. I was advised by my doctor to give my body a rest and hold on a therapeutic dose of 10mg for some time. Really symptoms held for a further 4 months, and was adout to start to reduce further when different symptoms appeared. Since then to today i've been in a slow spiral of worsening symptoms. Since due to research i know he took me off too fast and I'm now suffering for that. I've lost my job as my condition is deteriorating slowly. My doctor advised me to go back on my full dose about 3 months ago, i had my apprehension about his method as he led me to this condition in the first place. So i remained as i am. Maybe now i wish i had listen to him as i am in a pretty rough state. . Do i list my symptoms? I now do not know where to turn or what to do. Loosing hope personally. If anyone here can give me some advise please.
  2. 40 years old, was put on Paxil 40mg 7 years ago. 8 months ago one day I suddenly felt fatigued which didn’t go away after few days of rest, my heart rate dropped below 60 and cardiologist adviced to come off Paxil. A reduction to 30mg restored my heart rate and fatigue after a few days. However same symptoms reappeared 4 months after so my Doc reduced it further to 20mg, same thing happened after 2 months so we reduced again to 10mg and after another 2 months another reduction to 5mg and full stop after a week.(this was 2 months ago end of Sep-18). The psychiatrist put me on 2 times 5ml Diazepam per day. Since the first reduction I suffered insomnia, anxiety, depression which got a lot worse when I fully came of Paxil 2 months ago however 1 month ago things took an uglier turn and I was hit by extreme profound fatigue, jlly legs, muscle weakness and I was rushed to A&E and the blood tests showed hormonal imbalance such as low testosterone and cortisol. Doctors are confused and are coming with scary possible prognosis and want to test me for things like autoimmune diseases or dangerous neurological disorders. My life is falling apart and my psychiatrist is suggesting putting me on Pregabalin as other SSRI’s may induce low heart rate. Question 1- is this extreme fatigue cause of the WD? Question 2- has anyone else experienced hormonal imbalances due to withdrawal? If so will it be restored to normal at some point? Question 3- considering my situation is it wise to stay on Diazepam and allow doctors to start me off on a new antidepressant like Pregabalin or something? Im alone and desperate with no clue where to go next please share any knowledge you have that may help me. Thank you all, Bless you.
  3. I'm another refugee from PP....I was so shocked when I logged in and found it gone! Very upsetting. I found a few people whose names I recognized from PP so that was nice. I'm currently in month 14 of my cold turkey WD.....I was too far out when I found out I should have tapered....PP was a wealth of information and support for me and reading the uplifting posts that "This too shall pass" was so encouraging in the thick of things. I am here if anyone needs an ear, wants to ask what my experience has been like, etc. My name is Gina and I am from Canada
  4. Hello. I'm "Trinity" from PaxilProgress, which shut down last year without my knowledge. I'll try not to go into a long-winded summary of my life, but.... Depression began to manifest itself during puberty; episodes became more dramatic the older I got. I began Paxil in 1998, during a depressive episode that had taken total control over my life. I started on 10mg and went to 20mg perhaps a week later. I changed into a new person almost immediately. I could be jovial and outgoing, but lost all sense of priority. I lost most sexual function within two weeks of starting the drug. I was reckless and exhibited very poor decision-making. I couldn't think clearly or quickly. I slept poorly. While I had enough energy for work, I could spend entire days and weekends sleeping. It was as if I were drunk most of the time. I had them before, and I continued to have ugly temper tantrums regularly, just like a two-year-old. Around 2006, I fed up with being tired and stupid, so I dropped from 20mg to 10mg. I suffered the “electrical shocks,” dizziness, and other typical withdrawals, but I got through them and achieved a greater presence of mind—though I was absolutely not myself. I still had temper tantrums at least monthly. The side-effects I described, above, improved, but did not disappear. Not at all. I planned the next withdrawal for summer vacation, when I would have less stress. In June of 2014, I went from 10mg to 5mg. The withdrawals wore the same face, but weren’t as strong as before. This was an awful time for me, as I had an abusive, hostile boss who clearly took delight in tormenting employees she didn't "like." I became exceedingly emotional. Once I got upset, I stayed upset for a long time, unable to bounce back from anything. I would obsess over setbacks, conversations, and my professional standing in the community. This obsessiveness caused me a lot of heartache. On the positive side, the temper tantrums largely stopped, and I didn’t feel tired all the time. I didn’t need to sleep or nap like before. I planned the next withdrawal for summer vacation, when I would have less stress. In June of 2015, I stopped taking Paroxetine altogether. I suffered very little in the way of physical side-effects, just a little something for a few days. My mind is gradually clearing, as if someone had taken a wet, heavy blanket off my brain. My perception and reasoning has improved by leaps and bounds. I experience a wider range of emotions. I cried while listening to a love song that reminded me of my wife, when I had not been able to cry in years. Though she continues trying, my boss isn’t able to upset me as easily as before. I don’t care about her the way I used to. I’m more able to recognize what she is doing and dismiss it. Things that would wound me so deeply before aren’t much more than noise, now. I am able to see my past from a new perspective, with renewed clarity. I apologized to people I had offended over the years with my clumsy, highly emotional and unreasonable behavior. I am far from happy-go-lucky, and I doubt I’ll never be just that. There is a darkness that calls to me. I think my mother had this, as well, and would busy herself like a madwoman, because that sort of behavior works very well to preoccupy the mind. I really need some productive obsessions right now! A lot of emotional improvement I’m enjoying could just be the effects of age—I’m not a kid, anymore. However, and without a doubt, the drug was confining my emotions to a certain range and limiting my ability to overcome adversity. I feel it heightened negative emotions and fears and robbed me of the emotional recovery normal people enjoy. My mind is free, which is at once liberating and terrifying. “What if?” That creeps into my brain more often than I would wish. I want a new job. Not so easy a thing to do, here in a cesspool of economic despair, but I want to make the world a better place, and I don’t think I can do that where I am, doing what I do now. A bucket of crabs comes to mind, and that’s not the sort of energy I want in my life right now. So, there we have it: A rambling summary of my nearly two decade dependency upon psychotropic medication. While it saw me through a particularly hurtful period in my life, the loss of cognitive, emotional, and sexual function for the following 17 years was NOT worth the price of admission. I clearly should have been doing something different, because people aren’t meant to live life in a stupor.
  5. Admin note: link to benzo forum thread - Panicpax: Back on clonazepam Dear all i am happy im not alone, i have read many posts and see that at least in this world i am....not alone. 3rd attempt to taper 20mg paxil.... almost 2 years now and stuck at 3.6 using liquid paxil. my way was 0.2mg every week till now is great but as i reached 3.4 for a few days anxiety creeped , insomnia and waking up sweating and panic . my problem is even updosing 0.2mg which i did makes me feel a different worse.( agitation weird thoughts half the day. immediately updoased 3.5 and was back to normal only 2 days but still not enough so went to previous ( 10 days back 3.6 mg and hoping to stabalize here somewhere. then hold 2 weeks if im ok and then resume slower starting from this dose as i know SERT occupancy is telling my brain whops here is another drop ( had 1 same enstance at 9.2mg ) aggressive running, getting a cold or any fever makes me need to wait and gives WD symptoms. i have no physical WD just panic anxiety and insominia mild depression... usually only feeling down on day3 of a drop and first 2 days sleep is crappy. im interested in the cortisol thing i truley believe its the cause that WD symptoms i have ( awaking in panic and sweating and anxiety waves and windows) this past week trying to stabilise..... so...... vit C 1g and baby ASpirin at bedtime as the pubmed mentioned . an endocrinologist told me L-carnitine too. will start aspirin first and see it lowers in after a week of use ( 1.5mg per kilo so maybe 2 aspirins in 1 week if it didnt work. i get scared when i read some people have extreme trouble after 1mg .... if my experiment works ill still go slower and listen to my body but it feels like im crossing 2 building roofs on a thread holding a pole in my hands to balance.. cant go up or down right now without feeling it big time. any suggestions???
  6. I recently got pregnant and went from 10mg paxil to 5mg in one week and then completely stopped. I then had a miscarriage (about 2 months ago) and am having severe withdrawal symptoms. Would it be safe to go back on a low dose of paxil and try to taper off properly, or is it too late? I am miserable! Thanks in advance. Update as of March 29, 2017: Link to post below
  7. Hi everyone, So glad to have found this forum in my journey weaning off Paxil. Because of severe withdrawal symptoms during my doctor's recommended tapering schedule, I'm weaning off Paxil painstakingly slowly (liquid prescription, with a syringe). I have a question about tapering at smaller doses. I accidentally missed a dose (just 1.2 mg.) on January 17. Anyone who has taken Paxil knows that you do. not. skip. a dose. I don't know how it happened, but I forgot to take it one night (for the first time in about ten years). For the next TWO WEEKS, I was nauseous, had trouble eating, had mood swings, and worst of all, had some very scary depersonalization (feeling like I was in a dream or on LSD). Very scary. So, this can really happen from just missing a tiny 1.2 mg. dose? I called my doctor and they said this "isn't because of Paxil." Lol. Thanks so much! (This is why I'm so grateful for this forum--people actually dealing with the reality of tapering off these medicines.) Wouldn't tapering get easier as I get down to lower doses? ? What am I going to do at lower doses? The 10% method sounds good in theory, but yikes -- it will take forever just to get off 1.2 mg. My eventual goal is to get off Paxil and Zoloft, but my primary goal is to stay alive. I appreciate your thoughts and opinions! Thanks! I ran out of room in my signature for my quite-lengthy history, so I am expanding it here since this is my intro post: On Paxil since 1996--anxiety and depression. It worked for a while, but had to keep increasing it. 20 mg --> 40 mg --> 60 mg. For years I've wanted to get off it -- it wasn't working anymore, but very difficult to come off. Early 2013--Getting treated for sleep apnea (with CPAP) eliminated about 75% of my anxiety. Who knew?!?!? How long had I had sleep apnea, but treated anxiety with meds? March 2013: Feeling so good with CPAP treatment that I started weaning off Paxil about 10 mg/month: 60mg to 50 mg to 40 mg (NO negative effects whatsoever--if anything, I just felt better and better.) July 2013-- went from 40 mg to 30 mg. Some dizziness; nothing major. Starting a new job; paused taper. June 2014, began Paxil taper again, going from 30 to 20 in one week. (I can't believe that a medical professional actually advised me to do this.) This was very, very bad (dizziness and suicidality--the first time in my life--very scary), so went back to 25mg. Stayed at 25 mg. for another year. Not looking forward to going back down and continuing taper! In June 2015 started a cross-taper while adding Zoloft--went from 25 mg. Paxil to 20, to 10, to [this was the most difficult one] 5.) The cut from 10 to 5 mg gave me akathisia; nausea; suicidal thoughts; rage; and severe anxiety. Most of my time was consumed in dealing with Paxil tapering effects. August 2015 -- obtained a prescription for liquid Paxil. September: 4 mg Paxil October 2015: Suicidality -- doctor advised me to go up on Zoloft; I did so to save my life. Now at 100 mg Zoloft. (But it's not working -- my exercise, eating, meditation, acupuncture, and supplements are.) October to December 2015: 4 mg Paxil --> 3 mg --> 2 mg --> 1.6 mg. Symptoms are tolerable at this rate; the worst is a feeling of being intoxicated for several hours a day. But going this slow makes me feel like it will take forever to get off! ! ! Currently: 1.2 mg Paxil. Also: Vitamin D; Vitamin B complex; magnesium; plenty of protein; exercise; acupuncture; meditation/mindfulness; working with a naturopathic doctor.
  8. Hello Everyone. You might remember me from Paxil Progress as the person who started the post regarding Paxil and Garcina Cambogia and the cold turkey I went through when I stopped the GC while still trying to come off paxil. I was down to about smidge of paxil. Probably around 2 mg. While going through the "horrible" withdrawals of the GC, I went back to 10mg of Paxil and since then(October) I've made it through the rain and since then I have been steady up until the last couple of weeks. I had a small brain zap and on a Friday night on the right side of my head while out to dinner about three weeks ago. I then had a small panic attack on the drive home. Over the next couple of weeks, i have just felt out of it. I am not motivated, I feel spacy, just lost in my own mind, and still have some pain on the right side of my head. Then, last week I got my prescription refilled on the paxill 10mg (generic brand) and since then I have really been feeling like I am in a wihdrawal pattern even though I havent changed anything. I have always taken the generic brand of paxil. In addition, I have noticed that I am not sleeping through the nights and I have been having some night sweats. Does anyone think that I may have received a bad batch of the generic brand Paxil????? Does this sound like another withdrawal or a crash??? I had been doing so well since I made it through the GC withdrawals, but lately I have been depressed and feeling like total crap and just dont know why. Any help or suggestions would be greatly appreciated. Stay strong everyone. We will beat this!!!! Matthew914 -
  9. Hello Everyone, Let me introduce myself. You can call me Sebas (38), i'm from Amsterdam. Hope my English is okay. I was diagnosed with anxiety issues around 2004 and then started using Seroxat, I believe it's called Paxil in the US. I'm aware by now of all the problems this medicine is causing. In other words, i've read a lot, and i mean A LOT about it. I can almost graduate about the subject After several attempts to stop, I found out in 2015 or 2016 about the 5-10% reduction rule. That helped me from 20 mg (10 ml) tot 12 mg (6 ml) in about 1,5 years (estimated). I'm using the fluid suspension and some squirts for accurate dosage. From 6 ml down to 5,8 took me 5 weeks to feel allright, then i stabilized for a week and went back down from 5,8 tot 5,6. All the usual withdrawal symptoms occur during tapering periods such as illness, nerve system problems, visual, fatigue, stomache cramps and also i'm countering eye circles. Since the last dosage (from 5,8 tot 5,6) i've been feeling bad for 9 weeks already. Especially my stomache and my energy. So i'm now wondering what to do, wait (and wait...), go back to 5,8, go back to 6,0 of try to switch to another AD. Cause this one is really @#$%&* mainly cause of the fast half-life period. I've read about a cross tapering method. I asked my doktor for a psychiatric consult about it. Or...could it be my body (and mind) is telling me this dose is beneath the minimum that i just need for my personal wellbeing. I'm familiair with magnesium, omega 3/fish oil and multi vitamin for support. I'm looking forward fto exchanging some knowledge. Bye Sebas
  10. I took paxil 12.5 mg for 10 months due to problem of panic attack in closed spaces. then i slowly withdrawn from it in 1 month. I am not taking any medication for 7 months except due to some depressive events i took paxil 12.5 mg for 10-15 days 2 months back. Now i have heart palpitations and stomach cramps. I had headache but now that has gone away in one week since i started eating walnuts. I hope slowly my other physical symptoms will also go away. The only thing which makes me sad is anxiety sometimes due to emotions and also the fear of relapse. Please tell when will i become emotionally stable. I have heard that after 3 months situation starts improving. Is it true?
  11. Hi Everyone! I can't even express in words how glad I am I found this forum! I've been on 25mg CR of Paxil for 11 years now. Started to taper off at the end of last summer as my life is much more stable now and I was tired of feeling numb/like a zombie/tired ALL THE TIME. The difference I've felt since being on such a smaller dose now is day and night. I have energy and am not falling asleep during the day anymore. My anxiety has also been incredibly manageable and I haven't struggled too much with it. I like so many have experienced that my doctor has no idea what she's talking about. She advised first to switch from the 25mg CR version to 12.5mg CR version, which I did, and the first couple weeks were rough. It got better, but then had another relapse of symptoms 6 weeks in. I ended up soldiering through as it was manageable and stayed on the 12.5 through the end of the year. At the start of this year I began to taper off again, first to the non-CR version, then down 2.5mg/week per the advice of my doctor. I experienced no withdrawal symptoms until I hit 3.75 (they were still very mild) then some more intense but still manageable at 2.5mg. The big mistake I made was going down to 1.25 when I wasn't feeling great, because yesterday was a day from hell. I could hardly get through the day, it was so awful. So, after reading the advice here I went back up to 2.5 last night and am feeling much better today. Just mild symptoms (brain zaps mostly, and feeling like I'm going to cry at any point) which are tolerable and am hoping they'll subside soon. I am thankful to have read about the 10% taper off plan because my doctor literally told me I was at such a small amount now that I should be fine to hop off (HA!). Also really thankful to read that I only have to go back up to a little bit to feel okay again. I was worried I would have to reinstate at almost the full dose. I've been managing with a quicker taper due to meditation (headspace app), essential oil blends, running, long walks, pilates and weekly CB therapy (as well as lots of face time with Jesus). I also took a B Complex vitamin for the first time yesterday, which I feel helped too. Was super discouraged yesterday at my set back but am optimistic this new 10% taper plan will have me off in a few months. I am thankful to have found a place where so many are in similar spots to me as they are fairly rare to find in my day to day life. This isn't a race! Tapering off is TOUGH - let's do this together
  12. Female. Anxious disposition even as child. Did well making friends and enjoying life as a child. Struggled with getting to sleep though, due to worries. Displayed some ocd behaviour in teens ( maybe even before). Took and E aged 16 - big mistake. This exacerbated my anxiety and induced subsequent panic attacks. Age 19 ish ( 2001) was put on seroxat (not sure on dosage -it a strange time; experienced a lot of weird goings on with feeling weird, insomnia, - cant remember if this was before or on starting seroxat). started to feel better while on Seroxat. After a year or two, ( age 21) the doc, due to reports of suicidal behaviour on seroxat, decided to swap me to Citalopram ( 20mg i think). On starting Citalopram, I became very suicidal! Not sure why I wasn't swapped back but I perservered and must have evened out. Took Citalopram for 2 years and I felt good. Met my, now, husbandat 23 and thought life was brill and I did not need Citalopram anymore. Didn't follow any kind of tapering ( didnt know I needed to) and must have stopped cold turkey. Felt very suicidal so went back on Citalopram and evened out again. Must have cut fown to 10 mg and stayed on this for 4 years, functioning well. I did my degree. Am a bit of a perfectionist so worked very hard ( too hard), as well as working 16 hours. End of 4th year at Uni, I was burnt out. Overloaded, overwhelmed, run diwn physically and mentally. A 'nervous breakdown' ensued. I tried to go back to uni to finish the last couple of months but couldn't. I finished my dissertation abd transferred my degree so I still gained a 1st class degree but was very ill. I, nearly straight after became pregnant. I, however, suffered a horrid missed miscarriage at 13 weeks. I had told the docs that I thought something was wrong, 5 weeks earlier, but was dismissed. I took 2 months off work and was a mess. The doctor gave me diazepam and zopiclone which helped me ride the worst. Somehow I survived and became pregnant again not long after. Pregnancy was hard ( pains and bleeding) but I lasted. When my baby was born, it was tricky ( so much new to learn; I developed some ocd habits to help me feel in control but it was ok. Things leveled out. I was still on 10 mg Citalopram ( docs aware of this). I was doing well. I had snother baby a couple of years later, aged 29. Pregnancy was s bit better than the previous one but I still had bleeding, so was nervous but it was ok. I continued on 10 mg of Citalopram and was doing ok. When my son was 1 though, I took on too much. ( Lots of voluntary work with high expectations and serious responsibilities. I juggled trying to be a good mum, with several voluntary roles, housekeeping, got a small part time job too. over this time, for some reason i was slowly tapering Citalopram down ( no guidance really other than from the doc that you can take them every other day (? Is this where things started to go wrong?). I thought I was doing ok, although on reflection I was burning the candle at both ends. At the age of 32 I began to experience sciatica and fatigue. Doc suggested I try coming off the pill. This didn't help. This got worse until I developed severe abdominal pain/ heavy periods/ Nausea/ severe IBS - doc queried cfs but i was not yet referred. I was probably taking 5 mg of citalopram a couple of times a week ( not great I now realise as not steady) but as much as I was feeling physically crap, I was still functioning I stopped the Citalopram and took nothing for 10 months. The voluntary work took on another level; I imploded and had a 'nervous breakdown' ( I had a ridiculous amount of stress which was causing me to struggle with sleep and I was beginning to get suicidal ideation and brain fog before this, on top of the other physical issues, then a stressful voluntary work event sent me into a breakdown ( crying/ anxious/ ocd/ sleeplessness/ some kind of sleep apnea where id wake up gasping for breath.. I was put back onto Citalopram. I quit all voluntary work. I requested to start what i thought was low - 5mg. They pushed me to go to 10, saying 5 was ridiculous. At the same time, it was thought I may have endometriosis, so in 2017, aged 35 I had a laparoscopy operation to check; it was not. I think the operation and anaesthetic helped finish me off. The Citalopram made me increading suicidal to the point where I had suicidal ideation 24/7. i was somehow still getting sleep at this point but obe day was so suidsl, I went to A&E. Saw a psychiatrist for the first time in my life ( aged 35). Was tild to stip Citalopram strainght away. Discussed alternatives ( antipsychotics/ Mirtazipine, other ssris etc). I took nothing fir a week then another team of psychiatrists advised on possible meds. It was decided I would try Sertraline ( another Ssri??? why did i do that) I started it on 12.5 mg ( much to dismay of psychiatrists) but I was not given time to level out; They kept bumping up dose so i would get to the 'theraputic' dose of 50mg. Another level of Hell ensured which I hadn't yet visited. Loss of appetite, diarrhea, jitters, suicidsl ideation in the extreme, depression, muscle twitching, increased brain fog, intrusive thoughts, rapid weight loss, hellish insomnia. This on top of the fatigue and pain and ibs i was already experiencing. Despite my reaction, I was told to persist; I think they thought it wss my normal behaviour ( never felt this bad even when I wss 18 before starting Seroxat). Things levelled a bit after about 3 1/2 months. I was able to function a bit and go to my part time work and look after the home but it was tough. I developped tinnitus on Sertraline and had increasing brain fog. I also now suffered from depersonalisation and still had IBS and fatigue and body pain. In November last yesr, Another doc suggested i try the fodmap diet. i tried this and after 2 months it was very apparent that I had a gluten intolerance. Stopping gluten cleared up my IBS and most of the body pain. I still however battled with increasing brain fog and fatigue and severe depersonalisation to the point i couldnt go out at times and battled with it on the way to/ at work. Sertraline was not for me. I decided to cut down. the only advice id had about tapering was every other day from my doc but I thought Id do it slower. i cut miniscule amounts off from April 17, no real structure. I did this slowly but without checking i was stabilising, from April to August when i got to about 25mg. July and August, my brain fog became unbearable; unable to do shopping, unable to have a proper conversation, overwhelmed by simple questions, I became hypersensitive to light and sound. I often wore shades even on cloudy days ( looking back, noide and light sensitivity started with sertraline). I wore earplugs to limit noise at home with loud children. I became snappy due to loud noises. July August this got worse and worse but I was still functioning. I began doing sertraline every other day at 25 mg in August I think, maybe before then BAM one night in early September I had severe anxiety and total insomnia. This was relentless. I was desperate. I needed advice. Do i go back? Stop? go down? even dose to take each day. I was severely suicidal and devepped what seemed to be fit type episodes where i would be breathless, painful stomach, weird tingly head, palpitations, neck pain and lower back pain, loss of appetite, feeling flu like, becoming extremely dehydrated to the point i would guzzle water down cup after cup, My body contorted in painand tension, I eould then becime cold snd shiver. these episodes could last a couple of minutes but up to 16 hours at times. i was desperate for advise. over September/ early october, I visited A&E 4 times, desperately suicidal; I spoke to my doctor, I spoke to the nhs 111 line, I paid to dpeak to a psychiatrist but NO ONE would advise me, passing me round like a hot potato, telling me to do CBT and wait fir an appointment with a prescribing psychiatrist in december! I wouldn't live until then! I stayed with my mum as I felt so out of control with these fit type things ( including one where paramedics came and I was growling/ disorientated/ confused/ dehydrated so my eyeballs snd skin were dry- I was agressive ( never been like this in my life). I didnt want to be near my family due to my behaviour so I stayed with my mum for a few days. she lives in another county. I went to A&E there and they listened to me and made me feel worthwhile. they referred me to their home treatment team, who visited me but once again were unwilling to discuss specifics of medication. i was given zopiclone and diazepam. my husband and i didnt know what to do. we saw this website but I was still confused. I 'evened' out the 25 mg every other day dose to 12.5 in September. This may have made things worse, not sure which is why i wanted advice. The home treatment team managed to get my appointment with a prescribing psychiatrist movef to early october. I saw her and she laughed at my idea that it was withdrawal. she suggested I try an snri or mirtazapine. After reading this site, I wad reluctant. I am still referred with that team of psychiatrists but another appointment is in 2 months and they just want to throw more meds at me without showing any understanding of withdrawal. 5 weeks ago at an extreme point, before seeing the psychiatrist, I stopped Sertraline. I have been off it for 5 weeks. The fits seem to have all but stopped. but my anxiety is through the roof. I have severe stomach pain, reactions to shsmpoo, brain buzzy feeling whch zaps at times, particularly with high pitched loud noises. my sensitivity to sound is horrendous, as are my emotions and sensitivity to stress. I am overwhelmed by anxiety and ocd type ruminating thoughts about the situation and about my children's health. I am in sick leave from work since 2 months ago, as is my husband ( to look after me and the children). I have managed to taper off zopiclone and my sleep varies depending on my anxiety at night ( minutes up to 6 hours, broken sleep). I took dome diazepam but the ladt dose in September affected my breathing and I became severely breathless for 4 hours andmy gums bled so i haven't taken it since. I have applied for pip disability living allowance. we are shortly going to have no miney coming in and do t know if and my husband will be able to go back to work or if he will be fired ( I assume i will). I read this site but felt I couldnt reinstate as I never felt good on Sertraline. what now? do I try to ride it out? So suicidal and hopeless at times. Do I reinstate to citalopram instead? Do i try something else? Low dose mood stabiliser/ antipsychotic? Ps, I was referred a month ago to the ME/ Cfs people for diagnosis. Still waiting to hear.
  13. Hi i wanted to ask if anyone in here experienced extreme fatigue ? All day I feel so tired and the only activity I can manage is an hour walk but even through walking I feel very weak.. the mornings are the worst when I wake up after 10 hrs sleep I have no energy my body just lies in bed but have absolutely no energy did anyone experienced something similar ? Thank you in advance
  14. Gidday everyone. I am an ex-Paxilprogresser and when it closed I was very sick of the long horrible process, so I didn't join everyone here back then, but I finally paddled over to the U.S. from Australia. I have to keep reminding myself that the turtle got onto the ark by just keeping going, one step at a time! I started to have some decent days because I found a herbal remedy that has brought my headaches and migraines from 20 a month to 2 over a 12 month period. This means I can actually DO SOMETHING and is a wonderful relief. On those good head days, I always wonder how my old friends are going, so I intend to look you all up! I have decided to put up my history, a bit at a time, or it would be too laborious to read, so that's where I will start.
  15. Hi Everyone, I’m glad to find this forum, which I joined because I’m about to try to get off Paxil, which I’ve been taking for 25 years. I’ve tried twice before and the withdrawal was so severe that I ended up in the ER both times. This was before SmithKlineBeecham admitted there was a problem with withdrawal, and no one, including the doctors I saw, knew anything about it. Of course I tried to taper way too fast. I went back on it because the withdrawal was intolerable and because it did work on my depression, from which I’ve suffered all of my life. Now it has quite suddenly stopped working. I’m taking 60 mgs of Paxil and 300 of Wellbutrin (time-release version). Other drugs I’ve tried over the years include Elavil, Triavil, Pamelor, Valium, Effexor, Celexa, Zoloft, Desyrel, Prozac, Remeron, Brintellix, Viibryd, Lexapro, plus (at various times) Klonopin, Ambien, Trazadone. For about six months I also took antipsychotics because a doc thought I might be bipolar 2. It was a disaster—never have I been so terrified of mental illness. Those drugs included Seroquel, Lamictal, Cymbalta, Quillivant, and Latuda, which caused akithesia (sp?). My poor brain has been under the influence of these substances for a total of 32 years now. I’m deeply anxious about discontinuing all meds, but determined to do it. I want to know the truth about what my mind is like without them. I wish I knew of a specialist in my area (upstate NY) I could consult. My doc is great, but I don’t think he knows more than the average shrink about the withdrawal syndrome. I plan to start the taper on May 1st, and lessen the dose once a month by 5% of the previous month’s dose, a schedule that seems to be generally recommended. I’m scared! And that’s my situation. On a more personal note, I’m a writer and teacher. Hobbies are sewing and gardening.I look forward to exchanging info. With others here.
  16. Summary I'm 25. I was taking paroxetine for 3 years. Started at 20mg, then 30mg, then 20mg. I reduced it to 10mg for a few weeks before stopping it completely. 3 or 4 months have gone by, but I don't feel fine and many objective problems have appeared after cessation. Hyposmia is bothering me a lot, it started after changing the dosage to 10mg or stopping it, not sure which one. I'm also very confused, perhaps because of lack of sleep too. I'm thinking about reinstating, but I'm concerned if it's a mostly risk-free proposition if it doesn't work and I stop taking it. The prospect of everything easily going back to the way it was before is very appealing. I want to go back to normal even if that means tapering will last much longer vs suffering indefinitely. Full story I apologize for the lack of precision, but I've been really confused lately. I did a fast taper at the end of 2018. I had been taking paroxetine since sometime in 2015, not exactly sure when I started but I think it was the 2nd half of the year. I started at 20mg, then increased it to 30mg in the middle of 2016 and changed it to 20mg at the end of 2017 for a few weeks or months, then started taking 30mg again. Sometime in 2018 I reduced the dosage to 20mg once again and kept it there. I didn't notice any withdrawal symptoms at the time, I did become more energetic for a while though. Now I can see the last time there were some of the same effects I'm currently experiencing, although in a much smaller scale. In November, I think, I dropped the dosage to 10mg and took it until the end of the year, it might have been middle December o early January the last time I took it. I had taken paroxetine for a few months almost 10 years ago and stopped cold turkey, which resulted in an awful withdrawal for 1 or 2 weeks, I was 17 then. Since I didn't feel any of the physical effects from the first time, I assumed my tapering was working fine. But now it's clear to me that things have changed for the worse and I started attributing these negative effects to stopping the medication. I work as a programmer and have been finding much difficulty in putting in the same number of hours and achieving the same results, it's like I can't think properly and my brain is not working as well as before. I would say my memory and concentration appear to not be as good as before. When I remember and look back, I would say I was doing best at 30mg / day. The reason I stopped was that I started thinking it was making me dumber, now it's hard to say whether it was the medication or something else that caused that perception. Anecdotally, I found some guy online who reported a similar thing: https://www.physicsforums.com/threads/antidepressants-and-iq.590056/post-3832506. It's been 3 or 4 months since I stopped taking it, I thought what doctors say about withdrawal lasting only a few weeks was correct and didn't imagine such a serious problem wouldn't be mentioned. The most worrying thing for me is that I'm experiencing hyposmia and I believe it's because of the withdrawal - the doctor said this might be the case if it started after stopping the medication. I think it started before stopping the medication but after reducing the dosage to 10mg. What I can say with complete certainty started happening after stopping the medication: - I've made many bad decisions, financially and otherwise - in contrast to things going very well before. - I've been confused a lot of the time. - People close to me have actually told me my life started going downhill after stopping the medication - and they are right. - People close to me started mentioning how bad my mood became. - It seems I no longer have time for anything - while I was doing a lot more before and still had more free time. - Work performance has gone down a lot. - I remember the goals I had, but I don't really feel like I have any goals now. I know I have them, but it doesn't feel the same, it's as if I were a bit dead. That's the best description, I feel like some sort of reactive insect now. - My sleep has become worse, but it's hard to say if external factors aren't contributing. - Keeping a train of thought is hard. When I sleep a lot and exercise I feel slightly better, which makes me question if taking the medication again in a small dosage is the right call. But I can't stay like this indefinitely either. Do you think taking 5mg for a week or so to check the difference is too risky based on what you know and other people have reported? Because I feel inclined to do that if it's harmless and might bring me back to normal. I'm considering even increasing it back to the previous dosage over time and start tapering very slowly after 6 months or so. I'm 25 if that matters. Thank you for your attention.
  17. PaxilAbe

    PaxilAbe

    I'm on my third time trying to withdraw from Paxil. Was doing well for about 3 months after complete cessation. Started noticing withdrawal effects which became more severe after 5 to 6 months. Now am experiencing severe physical symptoms (body aches, insomnia, burning sensations) making day to day activities and work difficult. Considering reinstatement of Axil after 8 months just to try to get back to normalcy. Signature: Paxil 1998 - 2018 Tried short term switch to Zoloft in 2013. Tried withdrawal August 2016 - November 2016 Off Paxil November 2016 to July 2017. Severe symptoms. Reinstated. Trying again March 2018 - May 2018 taper. Off until present but strongly considering reinstatement.
  18. I'm bouncing back from two weeks of bad withdrawal, with intense headaches, poor coordination, and unsteady gait. I've started tapering early July 2016 from 10 mg Paxil daily for over twenty years for depression and GAD; I'm at 1,5ml (=3mg) now (I meant) 0,15 ml/0,3 mg. The last reduction hit me hard, so I'm taking more time, once again. Looking back, there seem to be three distinct phases of withdrawal for me. In the beginning, I suffered a lot of physical symptoms like nausea, dizziness, disorientation, sweating, and nightmares. About half way through, waves and waves of emotion were crashing over me. Now, at the tail end, it's a kind of weird cocktail, with plenty more of both to go! I've been supplementing with feverfew, GABA, phenibut, ginger, huperzine A, and B12. They all help to some extent, especially the feverfew, ginger, and GABA, but there's no magic bullet. The challenge for me remains to allow for the time and space for my brain to adjust. Just to allow the process to run its course. With just about every reduction, I have thought, well, the next one can be quicker and bigger. With the nasty implication, of course, of should be quicker and bigger. As if it is all some sort of competition, or battle of will power and discipline. The big obstacle here is my own sense of impatience and judgment. Constantly, I need to re-learn to surrender to the material reality of my brain, an organ that naturally requires the time that it requires. Now, at 1,5 ml (3 mg) 0,15 ml/0,3 mg, the temptation again is to rush, to jump, to have it over with. But it really doesn't work like that.
  19. Hi I am Hopefulstill and new. I started at 20 mg. Paxil...... Now years later on 50 mg. but seems to have pooped out. I am going to try tapering off. Started with 46 mg. yesterday Here goes! Glad I found this site
  20. I have been on Paxil for 20 years. I was originally put on it for reactive depression from getting fibromyalgia . I don't need it now. I am not depressed anymore. My problem is that there is no liquid Seroxat /Paxil available here. I first tried bridging to Prozac. I found that moving from Seroxat to Prozac was too hard. I then tried dissolving it in water but my Seroxat tablets do not suspend or dissolve in water. They sink to the bottom of the glass. Does anyone know a reputable online pharmacy that sells liquid paxil and ships to Israel? There was a suggestion of using "Ora Plus" suspension liquid on this forum to dissolve insoluble tablets. I can easily buy Ora Plus from ebay with international shipping. What puts me off is that all the reviews of that on Amazon involve people using it to suspend tablets they give to their dogs and cats! It also contains some nasty sounding chemicals. The shipping cost is crazy too. But that doesn't worry me as much as the other two reasons. I take the gsk - glaxo smith kline version of Seroxat. I take 3/4 of a tablet - 15mg. It's the same tablet distributed to the whole of the European Union. Has anyone here successfully tapered off that without the liquid Seroxat? If so how did you do it? Anyone know an online pharmacy that sells liquid Paxil that ships to Israel?
  21. Hi, everyone! My name is Franny, and I don’t know if I’m doing this right, but I need to just type this out. So I just got over the flu and have just been catching no break, but for some reason, after I recovered, I started having anxiety symptoms I’ve never had before such as waking up in the middle of the night with elevated heart, feeling hot, then trembling and just an overall, very terrible feeling every day. (This is just so out of the blue and just so severe that I’m scared). I haven’t taken paroxetine in a year (quit cold turkey) and was doing pretty well. Life is good, I’m surrounded by good people. However, this panic/anxiety has been so bad recently, that I dug out the paroxetine (20 mg) and took one yesterday and the day before (haven’t taken one today yet). This morning when I woke up with this panic attack, I went to the hospital because maybe it was something else, and of course, I just have terrible anxiety so they gave me a lorazepam. (I did notify them I took paroxetine within the past two days). I felt pretty calm from the lorazepam but now I’m kinda getting anxious again. The only time I could get in with a psychologist is 2 weeks from now. In the mean time, I just don’t know what to do. Do I continue taking this 20 mg of paroxetine everyday until then? I just felt so desperate, and I’m just so upset because college is where I thrive and I just don’t know what’s happening; I could just cry right now. Again, I apologize if I’m not going about this in the right way, but I really appreciate your support and how strong you all are. Thank you.
  22. Hello forum! Female, 33, Sweden. Have been on Paroxetine, 20mg, for more than 5 years. In April 2017 I had my first major panic attack and ended up in the ER. My life completely changed and I developed panic disorder along with some GAD. Though the GAD may have been the underlying cause of panic, I don't really know. Since September 2017 I have been reducing my dose of Paroxetine, and am now on 10mg. Somewhere in December I got down to 10mg and thought I'd wait until I'm stable at this dose before continuing my taper. I have been using the Claire Weekes-method of trying to completely relax in the face of panic, and I seem to only have smaller attacks now. Palpitations have lessened, and I am less startled by my nervous system signaling panic. I have lately been feeling very off-balance/dizzy and sometimes theres an intense feeling of anxiety and dread in my body. Feels like there are bugs crawling around inside. Weird buzzing nerves? Dizziness is so bad I have to lie down sometimes. Last night I was holding on to the walls when moving around in my house. Feels like I'm losing my balance all the time, even when sitting on the toilet, but I can stand on one leg and walk in a straight line. So it seems to be some sort of misinterpretation happening in my brain, rather than an actual problem with my balance. Now to my question: When I wake up in the morning I usually feel perfectly fine. It is after taking Paroxetine that all of the horrible sensations start, and they seem to calm down slightly in the evening. Is this normal during withdrawal? Or does it sound more like I'm having actual adverse reactions to Paroxetine? They sort of worked until I developed panic disorder. But I clearly remember growing increasingly fearful and illogical during several months before I had that massive panic attack. Thank you in advance.
  23. Hi, I've been on SSRI's now for about 20 years except for a few years in the middle. First it was Prozac with BuSpar, and over the last 10 years Paxil with Klonopin. I'm in search of who I am off of these meds, and I'm sick of the side-effects (mainly sexual side effects of Paxil for me). I successfully tapered off of Klonopin over 1 year from 0.5 mg (finished that in May of '16), and I've been tapering off of Paxil for the last year and a half from 30 mg. to my current dose of 10 mg. This is my second deliberate attempt to get off of SSRI's. The first attempt was done very quickly in 2012 (over about a month) and it was a disastrous fall into extreme anxiety resulting in voluntary hospitalization for five nights in a locked unit. In 2014 I was switched from Paxil to a different drug altogether (Lamictal), and that was also a terrible event because the doctor had me go off of the Paxil too quickly, resulting in a quick descent into anxiety, then the worst soul-crushing depression I've ever experienced. I was out of work for 5 weeks. I'm happy to share more details later, but for now I'll focus on the here and now. So back to the current withdrawal attempt. I was down to 10 mg of Paxil in November, 2017, and I told my psychiatrist that I wanted to continue the slow taper. He prescribed liquid Paxil at the equivalent of 9 mg for 2 weeks, then 8 mg, but when I went to pick it up I was told it would be over $150. Yikes! The pharmacist recommended I look into having it compounded elsewhere to save money. After searching for a compounding facility, calling my doc and writing him a letter, I finally got the prescription for a compounded version of Paroxetine for $70 / month, plus $5 shipping. A couple weeks later it arrived, and I was very happy to continue my slow, controlled taper. That was around Dec. 22, 2017. That's when things went wrong. After a couple days I started feeling a bit cantankerous, fidgety, and my appetite increased. I had just re-started working out, and this adrenaline rush fueled my anger and appetite. You know that feeling when you've run out of fuel and you've got that hungry, angry feeling inside? I was feeling like this almost all the time. About five days after starting the compounded Paxil I had an incident at work where I lost my temper. I apologized and things smoothed over, but I'm pretty convinced that something wasn't right with the compounded medication. Maybe it was measured wrong; maybe the bitter cold affected it in shipping. I don't know, but I strongly doubt it was 9 mg. Paxil. So I went back to the 10 mg., and that's when I've been on for the last 5 nights. But my mind and body are both very much off-kilter. My anxiety's increased and the insatiable hunger continues. I have a high-metabolism which is even higher under this stress, so I can't seem to satiate my appetite. I'm hoping that after a few more days things will even out, and I plan on staying at 10 mg. for at least a couple weeks before I start a taper again. I've since picked up the prescription for the liquid Paxil; I decided that when I continue the taper, I want to make sure I'm very confident of the accuracy of the medication. I don't trust the compounded version now. Thanks for reading. Any encouragement would be much appreciated as I re-stabilize.
  24. Greetings I am a 49 year old male. I was prescribed Paxil 20mg 15 years ago. I was having panic attacks and originally prescribed Zoloft. I reacted badly to that med and immediately took my self off of it. Wasnt on it more than 3 days. Still suffering from gripping anxiety my PCP suggested I try another med in this class as everyone reacts differently to them. Initially I resisted but wanted relief. So I relented and took the sample starter pack of Paxil. Within 2 weeks I was feeling better. There was no question it had an affect. I had mild sexual side effects mainly muted orgasms. In the big picture it was a small price to pay for not living in constant fight or flight mode. I have tried numerous times to get off of this drug. Always failing. Being told that my symptoms where a return of what led me to go on the medication to begin with. I could get down to 10 mg but never any lower before experiencing significant discomfort. I would go into crises and return to my original dosage. I saw a psychiatrist and he prescribed prozac to substitute for the longer half life. That was a huge mistake. This summer I began a new quest feeling more determined than ever to rid myself of this poison. I got down to 10 mg and stayed there for months. I was stable. Using a pill cutter I got down to 5 mg and felt relatively stable. I convinced my PCP to prescribe Paxil in liquid form. This suspension was 10 mg per 5 ml. I started taking 2.5ml/ equivalent of 5 mg. I seemed ok. So I went down to 2 ml and seemed ok. Very little side effects. I was feeling strong so I did the very stupid thing and accelerated my taper. I went down to 1.5 ml. then 2 weeks later went down to 1.2 ml. All hell broke loose. Panic attacks. Flu symptoms. Anxiety. Crying. Anger. pain. Hypochondria. I researched supplements and tried Omega 3's, B Complex, vitamin D. researched tryptophan and 5-HTP but thought better than to try this. It seemingly came in waves. Everytime I hit a window I thought it was over and I was stabalizing just to hit an intense wave again. mornings seem better with waves in the afternoon. Im afraid I damaged my nervous system. Im struggling with what I should do next. I have become fearful I will always have these symptoms. Not sure if I should up my dose or stand pat and give myself more time to stabilize. I recently have had windows where I feel fantastic. Like my old self. Only to hit an intense wave of misery. Its brutal. I do not trust doctors. They are clueless. I have been told to skip doses etc....its unreal the disservice so many people have suffered at the hands of this poison. "Its not addictive" you might feel uncomfortable for a week or two. My god I want to shove this down their throats and let them feel it. Should I up my dose? Stand pat and stabilize? I have been on 1.2 ml for 4 weeks and still feeling symptoms. Maybe just a slight bit of improvement. Any feedback would be greatly appreciated.
  25. Hi, I'm new. Here is a synopsis of my past meds and current issues. Zoloft twice in past, worked once, other gave anxiety. No WD. Then, in May 2014, had tried Paxil for a couple days and didn't like. Used Elavil off-label from neuro for pain. Pain wasn't stopping and felt SI, which I thought came from Elavil. Told clinic and ended up in psych ward (no help from neuro) for SI because of Elavil. In psych ward, doc there said I had created my own pain (I had been working with sore muscles and chiropractor visit with pain that night) because of my divorce. Put me on Risperdal about 1 mg I think, Prozac 20 or 40 mg, Klonopin 0.75 maybe, and a sleep pill a couple nights in the hospital. Also naproxen sodium 550 mg maybe once or twice a day. So, after hospital started to decrease Klonopin and Risperdal when I figured out they were supposed to be as needed, but after a month or so, my body needed them. Was getting symptoms and no help. Ended up back in hospital in July 2015 where they tried to CT the Klonopin. Was there 14 days. Doc said I was neurotic and wanted to increase Risperdal. I left there still on Rispderal about 1 mg, Librium 25 mg to replace Klonopin, and Prozac 40 mg. I tapered off Risperdal by November 2014, Librium by February 2015 where I jumped off the last 5 mg, and I did not keep track of when I got off the last 20 mg of Prozac but probably sometime in April 2015. Looking back, my anxiety started increasing in May 2015, usually more around my period. Had lots of stressors anyway. Then, in July 2015 had some neck pain and was on Flexeril a short while (had tried Tramadol like twice and hydrocodone once). Had a major stressor. Went off Flexeril. Ended up with insomnia and nausea, I think related to Flexeril. Tried Prozac for 1 day at 5 mg in September 2015, and that sent me up the wall. Panic and anxiety worse. Went on Buspar for about 2-3 weeks. That didn't really help much and gave me chest pain and migraines. Insomnia still bad. Tried Ambien a couple days but was afraid of it and went on mirtazapine, big mistake but needed sleep and was having SI. Started mirtazapine 10/9/15 at 15 mg, next day 7.5 mg and for a few days. Caused brain fog, a lot of agitation and anxiety. Was sleeping. Scared. Called doc, who said I could go off, but after 2 weeks was afraid to jump off dose. Started cutting dose every day and got down to 5.8 mg and held until saw doc. Said to stay on, seemed to help. I tried to cut from 5.8 to 5.7 this last week and a half and had some major anxiety symptoms and headache. Now I don't want on at all and don't know what to do. Only been on for a little over a month but scared. Don't know what else to use for sleep. I have a scale to weigh but I know even when it says 5.7 mg every night that can still have some variance because of the small amounts of pill I scrape off. I also tried Ativan for a week about 2 weeks ago. It was horrible. Worked when I took it, but the rebound anxiety was awful. I had to take every day for a week, slowly lowering the dose. I just can't take it prn. It gives me severe rebound anxiety. My family says I am dysfunctionally obsessed with medication. That may be the case, but I seem to be hypersensitive to meds and worse lately. I am having some sensitivity to light and sound and touch. Vision blurry and off in low lighting. Having trouble concentrating. At least no more brain fog from mirtazapine but have headaches almost every single day. I have only been on it a month, but I am scared best way to reduce. I know WD symptoms can take 2-3 weeks to hit. I am waiting to see what will happen next week (third week of reduction from 5.8 to 5.7). AT this rate it will take me forever to get off a med I only started 1 month ago. I have read of some using valium to help with WD symptoms but am scared. Still, I need to function. I'm supposed to be getting a job but how do I work with severe anxiety, agitation, and etc. from small drops in med. I have some valium but haven't tried it yet to see how I react to it. I am scared of these meds but don't know if I can manage the depression/anxiety that came about this time without something. Could maybe go back on Prozac but so hypersensitive right now and need to get off mirtazapine. I am not sure best thing to do. I read on here that some of these programs that help with supplements aren't that safe. I found that now I cannot take vitamin C or vitamin D without increased anxiety/agitation. Even my progesterone cream does that unless I take it at night. I don't know what is going on. I'm worried my vitamin D will get too low because of the mirtazapine if I cannot supplement. I don't know what I will do for sleep going off the mirtazapine. I went on it for new insomnia (hadn't had problems sleeping since I was a kid and very anxious), and also worse anxiety and depression.
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