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  1. I have been on psychiatric meds for over 30 years. The first 10 years was Xanax and then rivritril. Later was Paxil. I started reducing Oct 2018 from20mg-15 mg. Then in Nov 2018 15 mg- 10mg. In Aug 2019 from 10mg-5mg. Then Sept 2019 from 5mg to 0. I know I did it way too fast but now 1.5 months later I have complete body pain. Mind you I have been liver flushing for 2 years so I am not sure whether the detoxing has any part in body pain. Nonetheless, my whole body feels like a truck ran over it, can’t digest food, and feel anxious and irritable. I honestly don’t know if it is related to withdrawal but hoping to hear from others. Thank you.
  2. Please don't judge me or tell me I'm an idiot. I am very worried you will think I'm an idiot. :-/ I started on the antidepressant/benzo train in 1998. I was getting divorced and was *gasp* sad, depressed and anxious. My ex was following me, came to the house, broke a window. I went to doctor who put me on Paxil and Xanax. I never questioned it. I was also drinking too much alcohol. Over the years, I quit various AD and started other ones. Lexapro, Prozac, Effexor. Lexapro was the worst CT WD. BAD Brain zaps. I didn't even think about tapering. I thought it was just me! I've never seen a psychiatrist. My prescribing doctors were all GPs. I've been on Paxil 40mg for a few years. I was feeling so good, I didn't think too much about it when I let myself run out of Paxil last week. I didn't have bad zaps, and I didn't feel sick. I also hate to leave the house so it was easier to just procrastinate. Late into the 3rd day, I started to have nausea. The next day was Sunday and my pharmacy was closed. Sunday was bad. Nausea, terrible headache, night sweats. I got online and started searching. I found the FB page and started to worry. I took two melatonin, 50mg Benadryl, Robaxin 500mg and a 1mg klonopin to help me sleep. Monday I woke up after a 10 hour sleep feeling great. No nausea, no headache. Tuesday was okay. Stayed home on NYE, little champagne, bed at 11pm. Today, Jan 1st, woke up with at 1am, slamming headache and nausea (not due to hangover). All day, nausea. Found this webpage via FB page. Read about how bad the odds are with CT. Read about reinstatement, proper tapering. I am already so irritated with the nausea and headache. Monday was such a wonderful glimpse of what I could be. I thought I just needed to push through this, but the amount of posts and the years you all have of dealing with this cannot be ignored. I am having electric pulses this evening. Not full on zaps yet. I'm drinking lots of water and no alcohol. I am not taking any supplements today because of the nausea. Would someone please advise me on how to proceed with reinstatement? I've read a lot of posts and I'm confused and scared. Since I have done a CT, should I start back at 20mg and stabilize and then start the 10% taper method? Thank you, OTP
  3. Hello I am 27 years old and was diagnosed with anxiety/ thought disorder when i was 21 they gave me Paxil and quetinepine. I took myself off at one point but had a relapse the. Had to go back on. I don’t want to take this medication anymore . I have lost weight i don’t feel like myself. Sometimes not happy and sleeplessness then lately i have been having headache not sure if it’s stress or the medicine. Then sometimes i think people are talking about me. Like people will be in another room and they are really taking but i hear them saying all she wants is money but i know they are not talking about me . Then one day i thought i heard the person on the tv say all she wants is money but i know the people on the tv not talking about me. I know i am not crazy but it’s very frustrating because my mom is the only person i can talk to but i want to find natural ways to get over this and off this medication so i can feel like myself again. Any help or suggestions is welcomed
  4. I'm another refugee from PP....I was so shocked when I logged in and found it gone! Very upsetting. I found a few people whose names I recognized from PP so that was nice. I'm currently in month 14 of my cold turkey WD.....I was too far out when I found out I should have tapered....PP was a wealth of information and support for me and reading the uplifting posts that "This too shall pass" was so encouraging in the thick of things. I am here if anyone needs an ear, wants to ask what my experience has been like, etc. My name is Gina and I am from Canada
  5. I have been on a diet and exercise for about five years with satisfying result, by then I had been on 10gm paroxetine for premature ejaculation with no noticeable side affects, however in the last few months My doctor raised my dosage to be 20mg for issues related to depression, I had been on that dosage for about 4 months, by then I gained some weight and my body fat percentage increased despite being on the same diet and exercise then I got back to the old dosage 10gm, I lost few pounds and my shape got better but still not satisfied with the result and still struggling to get back to what I have been on, but no matter how much I try it’s not working for me and it’s so frustrating. My concern is: has the med ruined my metabolism rate and is it going to be permanent? Knowing that it’s only been five months since I decreased the dosage.
  6. Hello Everyone. You might remember me from Paxil Progress as the person who started the post regarding Paxil and Garcina Cambogia and the cold turkey I went through when I stopped the GC while still trying to come off paxil. I was down to about smidge of paxil. Probably around 2 mg. While going through the "horrible" withdrawals of the GC, I went back to 10mg of Paxil and since then(October) I've made it through the rain and since then I have been steady up until the last couple of weeks. I had a small brain zap and on a Friday night on the right side of my head while out to dinner about three weeks ago. I then had a small panic attack on the drive home. Over the next couple of weeks, i have just felt out of it. I am not motivated, I feel spacy, just lost in my own mind, and still have some pain on the right side of my head. Then, last week I got my prescription refilled on the paxill 10mg (generic brand) and since then I have really been feeling like I am in a wihdrawal pattern even though I havent changed anything. I have always taken the generic brand of paxil. In addition, I have noticed that I am not sleeping through the nights and I have been having some night sweats. Does anyone think that I may have received a bad batch of the generic brand Paxil????? Does this sound like another withdrawal or a crash??? I had been doing so well since I made it through the GC withdrawals, but lately I have been depressed and feeling like total crap and just dont know why. Any help or suggestions would be greatly appreciated. Stay strong everyone. We will beat this!!!! Matthew914 -
  7. I'm currently taking 20 mg of Abilify, 40 mg of Paxil, 30 mg of Cymbalta. I am diagnosed with either Major Depression/Psychosis or Schizoaffective (depressive type). I have been on similar ones over the last 20+ years, always an antidepressant and antipsychotic. I have been reading about how they are obesogenic and would like to come off them cause of that, and also to see how I do now without them and try natural diet and treatments. I am thinking of starting by eliminating one antidepressant, maybe Paxil and see how I do with just Cymbalta and Abilify, before tapering slowly off those two together. I've tried to go off cold turkey and by tapering off all of them too quick before, and get suicidal depression and racing thoughts.Once I take the meds it goes right away.
  8. Hi, I just wanted to share my experience of this drug and what I am going through. I was put on seroxat at 18 due to messing with recreational drugs. I was fine on 20mg for the next 17 years living life to the max!!! However, due to the birth of my son i wanted to be drug free, and had not had any symptoms for 12 years! I went to the doctor and she said to come off it over a few weeks and I'd be fine. This was not the case, after 7 weeks post taper and about 3 weeks off totally I had a total nervous breakdown. Dr put me back on 20mg, this was 4 months ago. Since then my nervous system is in complete meltdown, im suffering RLS, hand tremmors, depression, anxiety. The Doc suggests trying higher dose of Paroxetine and / or Mirtazipine. Has anyone experienced this, what did you do? Word of advice do your own research and read Shipko, and Healys work on SSRI discontnuation syndrome before you decide to come off it, especially if you have been on it for many years! Don't make my mistake and just trust your Dr!
  9. I'm three weeks off Paraxotine entering phase of feeling depressed. I had my first nightmare and it woke me up at 3 am. I was terrified. I decided to get up and journal my dream instead of ruminate about it. The journal really helped. My energy is so low. I have been researching and taking vitamins, supplements and eating better foods and walking. After the dream I wondered if it is really possible to get off the drug without relapse, because I was on it for many years. I had restless legs and cramping during the night, zaps, flu like symptoms, sore eyes, low concentration, get headaches almost continually. Have to lay down often. I'm a walker and love the outdoors and have walked most days. Today, is a "wave" day and it's too hot and humid to fight the weather. My hope is that the "wave" will lessen and I will have a better night's sleep tonight.
  10. Hello! Finding myself in a temporary reprieve from debilitating apathy, I thought I would introduce myself here as I've been lurking for a while. Like many of you, I'm currently battling a severe withdrawal reaction from paroxetine. During the fall of 2014, I decided to chart a course to discontinue medication I was on (Paxil 60-100mgs for a decade for OCD, Buprenorphine of opiate dependency and mild chronic pain). Unfortunately, as seems to be common, my psychiatrist was entirely unaware of discontinuation symptoms and had me taper from 60mg to zero in the course of a few months. Strangely, I felt zero withdrawal effects during the taper and for approx four weeks afterwards. A few days after the last dose of paxil, I took some time off from work to recover from the foreseen mild opiate withdrawal and stopped taking the buprenorphine. For two weeks I went though a normal opiate withdrawal (cold sweats, chills, aches, etc). However, a few weeks later, my entire world was turned on its head by a new set of symptoms. Severe anxiety, panic attacks, loss of balance and coordination, crying spells, suicidal ideation, debilitating muscle pain, constant overstimulation, derealization, mild paranoia, memory loss, confusion attempting the simplest of tasks, poor word recall and communication ability and a host of other cognitive problems. Along with that horror came a wonder I hadn't experienced before -- akin to being instantaneously launched out of a lobotomy and the removal of years of emotional anesthesia. Everything and everyone in my life had meaning and emotional attachment. I was able to connect with friends and loved ones (and strangers) on a level I didn't heretofore remember experiencing. Music... oh how splendid it sounded. Sunsets and walks in the woods were mesmerizing. Exercise and sex felt fantastic. Empathy and concern for the plight of others was overwhelming. A lifetime of painful memories and grief bubbled uncontrollably to the surface. Due to the timing and the lack of capable professional help, I assumed this was a severe case of post-acute withdrawal from the buprenorphine and had no basis to connect it to paxil. Months into this lovely process, I decided to restart a low dose of paxil for the hell of it. Within 36 hours, the worst of the withdrawal symptoms vanished as if by magic and I suddenly knew something was very wrong. Although the SSRI withdrawal was greatly attenuated, restarting the paxil brought a total loss of affect, inability to experience emotions, severe apathy and anhedonia. These symptoms had been experienced somewhat during the decade of treatment, but at a much less significant level. Having a short college background in neuroscience, I spent weeks reading the latest research on SSRI withdrawal (turns out there is very little) and modulation of dopamine (crap shoot) and with the help of a confused, but helpful psychiatrist, attempted to abate the new symptoms. I tried: Other SSRIs (same lobotomy effect as paxil) Serotonin modulators like Viibryd (zombie state again) SNRIs (massive anxiety, didn't help withdrawal) Wellbutrin augmentation (no change) MAOIs (didn't prevent withdrawal) Low dose antipsychotics (no change, or exacerbated withdrawal) Selective Ht2c serotonin blockers (exacerbated withdrawal) In the end, I realized that, at least for me, I was on a wild goose chase and I might as well dig in the for the long haul and re-instate paxil (without any augmentation) in order to taper slowly. I restarted at 20mg and have been tapering since the beginning of the year. I'm down to 12mg now, and find myself stuck in a partial withdrawal / mostly lobotomized state. I'm very unmotivated and can't seem to squeeze any enjoyment out of life, friends, exercise, music, hobbies, etc despite my best efforts. I've become quite anti-social, and my days have been reduced to working, sleeping, eating and laying on the couch. At the beginning, despite knowing it was a dangerous idea, I would take 3-4 day breaks just to feel human again. I considered crashing off of it again and moving to a warm foreign country to spend a year or more recovering, but unfortunately I don't have the money to not be working right now. Thankfully, even on a steadily declining dose, I have started to have these short windows of time when I seem to awaken out of the haze, and suddenly feel the sun and the breeze, with music and socializing feeling great. It'll last for a few hours before it fades back into the abyss. Exercise, when I can force myself to do it, seems to increase the frequency and duration of these. I don't have advice for anyone, other than to keep pushing through... Even when it's rough and awful. Between the stories I have read here, and knowing that the brain is capable of amazing things, I'm quite confident I will recover. It may take another year to remove this poison from my brain in a responsible and safe way, but I will be so grateful when the time comes to feel alive again. I wish everyone luck with their own journey through this torture...
  11. HopingForRelief

    HopingForRelief

    Hi there, I am new to this site after trying to find an explanation for the symptoms I was/am experiencing after a CT from Paxil at 30mg. I want to thank all of the frequent posters in these forums as many of the success stories and positive encouragement have helped me through this horrific experience so far. My story (I apologize if it is long): I started taking Lexapro (10mg) in 2012 (when i was around 18 years old) for continuing panic attacks and debilitating anxiety/OCD. I needed the medication to function at that point and within a few months I was back to myself and living a happy life. Throughout my entire time on Lexapro, while still having some presence of anxiety, I was definitely "normal" and living a happy life that I currently wish I could go back to. Around Nov 2018 I was switched from Lexapro to Paxil at what I now know was a way too fast change and heavy dosage amount (I just stopped taking the lexapro one day and started on Paxil 30mg the next day). The Paxil worked for my anxiety, but it also caused these weird body jerks as I would attempt to go to sleep that scared the crap out of me. Also worth noting: I take my AD before bed, and I would experience a weird sort of brain zap and "cold brain" whenever I exercised the next day, but this would go away when I would take my next pill. Obviously these symptoms really scared me (mainly the body jerks at night), so I foolishly stopped the Paxil CT in May 2019 and said enough was enough. The next few weeks I experienced mainly brain zaps and flu-like symptoms, but nothing unbearable and I had an idea that was to be expected. These went away and for the next three months, aside from heavy dreaming at night, I was totally fine. Then, in September, I got hit like a truck with crazy unexplainable symptoms. These symptoms are: waves of panic that feel different from my original anxiety/panic, OCD about symptoms and thoughts, feeling disconnected from the world around me, phantom smells (it is always the same burning smell), insomnia, vivid and whacky dreams, horrible ringing in my ears and head (almost feels like an electric current), weird burning/shivering of my brain, and more. These were so debilitating to me I left my job and am currently unable to function. They have now relentlessly continued for over a month, and I am not experiencing any "windows" where I feel better. Maybe I will get relief for minutes/to hours of one day over the course of a week. I have tried reinstating (per my doc) a different AD, Luvox, at a low dosage of 25mg and have been taking this for 3 weeks, but I have not noticed a difference one way or the other in my symptoms. What can I do next to help me? I was not experiencing any terrible W/D symptoms for 3 months so by then it was apparently too late for reinstatement to work. Now I also feel like I am "stuck" on the Luvox that is not helping as I have taken it long enough for my body to get accustomed to it. I am not functioning and am taking a huge toll on my mother who is taking care of me currently. We cannot continue financially at this rate with me no longer taking in an income, but I literally cannot work in this capacity. She also believes that I need to take a higher dosage of AD to help myself, so she will not continue supporting me unless I do so. I understand her stance as she doesn't want to see me in this state and doctors tell her that is the "cure" to all of this. I am at a loss on what to do. Would there be any hope if I tried reinstating Paxil? Am I stuck like this forever? I cannot continue ruining my life and living in my house like this. Please, any help would be much appreciated. Thank you for taking the time to read this.
  12. Hi there, Its MapleLeafGirl... i did a four year taper off paxil...then for the last 20 months was doing ok..until now...all of a sudden i have anxiety...head pressure, vision issues, no appetite, cant sleep which i had issues in the last two years, and i went to the eye doctor and they said my vision was fine...i am freaking out..i have no idea why now after such a slow taper this would happen..any insight would be great.thanks so much. michele
  13. Thank you for all your wisdom shared in this forum! I had an updosing vs. holding question. I am currently tapering off 20mg Paxil using a 10% taper method (I do two cuts for four weeks and then hold the third cut for six weeks.) It has gone smoothly until I reached 5.61mg in June, when I started feeling more symptomatic. I cut down to 5.05mg the first week of July and four weeks later started experiencing severe symptoms (insomnia, shakiness, lack of concentration, anxiety). I've held for 8 weeks now and still no subsiding of the symptoms, so my question is do you recommend I updose? If so, should I go back to 5.61mg or higher, since this crash was likely building a few months before I hit 5.61mg? And then should I hold it for four weeks or more before resuming a taper? (I'm going to start tapering at 5% per month now, since I'm hitting the lower doses.) Do you expect the WD symptoms to ease up if I updose, and does that typically happen fairly quickly? Also, is it common to hit this kind of a wall in the 5mg range?
  14. Hi everyone, I am new here and I would greatly appreciate your help! I am sorry for my long story (with possible errors) but I just can't find anyone who can answer my questions and I desperately seek recognition and advice. If you do not want to read this long story please scroll to my questions and fears? I'm Renske, 46 years old, and I'm from the Netherlands. I have been taking 20 mg of Seroxat aka Paxil for a very long time (since I was 19) because I was diagnosed with a compulsive disorder. Seroxat worked very well for me for a long time. Mainly because I gradually gained weight (more than 25 kilos), and kept gaining (with no obvious reason, such as eating a lot or something like that) and everything was checked; bloodwork, thyroid etc , I decided a few years ago to try to phase out Seroxat. Because I already knew how difficult that would be, I did it VERY slowly, with a suspension. I was busy with this for a year. Throughout the year I was particularly affected by huge irritations and hostility. It seemed as if I had absolutely no patience and I was constantly angry. I have been very sad about this, because I was particularly unkind and impatient towards my children (8 and 11). Not physically thank God, but extreme irritation and impatience is of course also very bad. This made me feel very guilty. The phasing out eventually failed, the moment I took almost nothing anymore, because I became extremely anxious and because the obsessive thoughts came back. Because I didn't have a back-up plan, after all the effort 😞 I quickly rebuilt to the full dose. It didn't work properly anymore; so i went up to 30 mg. Still didn't work properly. What I found remarkable, though, was that the aggressive / irritated feelings greatly decreased. In consultation with a psychologist and psychiatrist I recently decided to switch to Lexapro (escitapram) although I realize that it is a matter of trying, because many SSRIs work the same (with the risk that it would not work properly again) and that they often have the same side effects (weight gain). I noticed that I had developed some sort of aversion to Seroxat, because it is apparently the most difficult drug to phase out and because it is the biggest culprit among the SSRis when it comes to weight gain. The current situation: week 1: Seroxat (paxil) I went from 30 mg to 20 mg, week 2; 20 mg of Seroxat, week 3; 10 mg Seroxat and 5 mg Escitalopram (lexapro), week 4; stop Seroxat and 10 mg escitalopram. Afterwards; continue with 10 mg escitalopram. I understand that 10 mg of Lexapro (escitalopram) is approximately equal to 20 mg of Seroxat. I am now at the beginning of week 5. During these past weeks I have had the so-called and famous brain zapps, and huge sweat attacks. But the worst thing is that I am AGAIN so terribly irritated and hostile. I recognize this as a withdrawal from Seroxat, I am almost certain that this is not a side effect of building the escitalopram. Ironically, I don't have a lot of trouble with my compulsion, but all the more with my very short temper. Discussed it with the psychiatrist; she indicates that if this is a withdrawal phenomenon, it should be over in a few weeks, according to the pharmacist who makes the product. Of course I said that that is the biggest bullsh*t and that there are so many people who suffer from these symptoms for a longer period of time. She didn't really have an answer for that. She indicated that maybe it was my personality that came back. But that is nonsense; I was always gentle and kind to others. this is also not ordinary irritation due to stress or something, but it really seems like something physical that really engulfs me, just like that She suggested perhaps adding some Seroxat again? The reason why I do not believe in this is because in the past I have phased out the Seroxat very slowly and then I also had such symptoms. Why would that be different now? My questions and fears: Does anyone recognize the symptoms of irritation, impatience and hostility of phasing out the Seroxat / Paxil? How long can this take? Was this passing on? Is there anyone with whom this went away as a new drug started to work properly? I am afraid that this withdrawal phenomenon will continue to exist for a long time due to the withdrawal of Seroxat, while the Lexapro may work, can this coexist? Or is that far-fetched? I know that all anti-depressants must be phased out gradually. Would it make sense to take a little more Seroxat next to the Lexapro, so that I would phase out slower, despite using Lexapro at the same time (within safe margins of course)because the (very) slow reduction has not diminished the feelings of irritation in the past, and I am now inclined to finally stop completely with Seroxat and switch completely to Lexapro. I would be so grateful if I get some responses from people who recognize things. Again, sorry for my long story. Thanks so much in advance. Renske
  15. Hi Everyone - I was put on Paxil 16 years ago, when I was 19, for generalized anxiety. I tried to get off it once, when they tapered me off 20 mg over two weeks after I had been taking the drug for a year. This was, clearly, a disaster, and I never tried again. Now I am deeply, deeply regretting not starting the taper earlier. I had NO idea how long it would take. I was thinking *maybe* a year. It seems like this will not be the case for me. I started at 15 mg in February 2018, and I'm now down to 8.8 mg, or rather 4.4 mL, as I've switched to liquid. I started by tapering 1 mg a month, which went fine for the first month. However, the next month I started experiencing panic attacks - even though I had never experienced a panic attack before. So I did some research and switched to tapering at 0.5 mg every two weeks. Once I went to liquid, because of the measuring syringe I had, I switched to tapering 0.2 mL (0.4 mg equivalent) every two weeks. This went fine until I got to 4.2 mL. I was rendered non-functional - so dizzy, couldn't remember ANYTHING for more than a few seconds, forgetting words, etc. It was horrible, and I couldn't do my job. So I went back up to 4.4 mL, where I have been for the past two weeks. I need to figure out what to do next. On a side note, but a super important one, I'm freaking out about how long this is going to take because I was thinking maybe I wanted kids, and I can't have kids on Paxil. I'm not sure what to do about that. I'm 35, and I don't have five years to try to get off Paxil and then have children. Maybe I can cross taper to Zoloft? I have no idea. So I'm lost. And looking for support. Already super excited about the information I've found here. My psychiatrist is not super helpful, and I've developed the schedule myself. She originally suggested a much faster one. Sigh. Thanks for reading!
  16. (mod note)link to teePeer1's benzo forum thread: https://www.survivingantidepressants.org/topic/19092-how-to-taper-the-used-as-needed-benzo-or-sparing-benzo-use/ Dear all, I gradually tapered to 10 mg of paxil from 40 and also tapered off benzo (3mg to 0) both slowly over a period of months. Long story short, I thought I was near the fonish line. However, when I taperedd to 10 mg from 15 mg paxil and stopped a doze of less than .25 benzos things got rough after two weeks. My issues are mostly related to night:severe anxiety, hyper alertness, pounding heart. It was so bad a couple of nights that I resorted to taking a small dose of lexatonil. Now I am afraid of what strategy to follow next. My experience with psychiatrists have been pretty bad during my taper and I am afraid if I go back they will put me on more meds. Should I go back to 15 mg paxil from 10 and is it safe to use half a tablet of benzo at night to brave through the night? (Though i am afraid of benzo withdrawals too) I would appreciate any suggestions on how to stabilize my situation at this stage and dosage?
  17. Hello, first off I want to show tremendous appreciation for the advice given on this board. It’s so needed and so helpful. I’m 52 years old and female. I used Paxil for about one year at 29 years of age 20 mg for postpartum depression. In my early thirties I also used Zoloft for about a year, the dose would only be the starting dose. Any psychiatric medication I’ve taken has only been at the lowest starting dose. In the fall of 2011, I started 20 mg of Paxil for anxiety. I tried discontinuing in the fall of 2017 into 2018 following the recommendations The Antidepressant Solution by Joseph Glenmullen. I watched for any withdrawal symptoms and held the doses if needed any only reduced every 4 weeks. My taper was (cut tablets as tapered, used 10 mg tablets to cut when I reached 10 mg) 17.5 mg, 15 mg, 12 mg, 10 mg, 7.5 mg, 5 mg, 2.5. mg. 7 month taper. At 2.5 mg I started to have withdrawal issues, mostly early morning anxiety. I panicked and upped my Paxil to 10 mg and went to a walk in clinic to try lexapro, cross taper with lexapro 5 mg and Paxil, I tried that for about a week, stopped, horrible reactions, burning skin , anxiety. So went back to family doctor and slowly over the next few weeks increased back up to 20mg. During this process I also acquired tinnitus which I still have presently. Never a good idea to try another medication or add one in this state! I learned my lesson. Fast forward to December 2018, I wanted to finally get off Paxil. Again I used a similar taper according to Dr Glenmullen, I also made a l make a 1:1 solution diluting a 20 mg tablet in 20 ml of water to use, use 10 ml syringe. I guess this is considered a fast taper, since I didn’t use 10% reduced dosages because I never had more than minor withdrawal issues . My problem is this taper when July 10, 2019 I reached 2 mg I felt just minor withdrawals until the past few days when I started having insomnia and night anxiety, night urinating a few times. The insomnia makes me feel worse and just not sleeping makes me more anxious, A vicious cycle. I’m not sure what to do. I was considering stopping the 2mg in another two weeks, but since I’ve been reading this site I’m not sure what to do? Do I reinstate another mg of Paxil to 3 mg and see how I do, or do I try and stabilize at this dose for however long until I feel stable before reducing again. Thank you and I hope this makes sense, lack of sleep doesn’t feel so good! Also very low withdrawal issues throughout the taper, mild irritability, moodiness that went away as I adjusted to the new dose. Until now. Below attached is my most recent taper. I was almost 50 years old when I tried my first taper and almost 52 wi5h this taper, pretty much two years apart. Thank you!
  18. Gidday everyone. I am an ex-Paxilprogresser and when it closed I was very sick of the long horrible process, so I didn't join everyone here back then, but I finally paddled over to the U.S. from Australia. I have to keep reminding myself that the turtle got onto the ark by just keeping going, one step at a time! I started to have some decent days because I found a herbal remedy that has brought my headaches and migraines from 20 a month to 2 over a 12 month period. This means I can actually DO SOMETHING and is a wonderful relief. On those good head days, I always wonder how my old friends are going, so I intend to look you all up! I have decided to put up my history, a bit at a time, or it would be too laborious to read, so that's where I will start.
  19. Hi everyone, So glad to have found this forum in my journey weaning off Paxil. Because of severe withdrawal symptoms during my doctor's recommended tapering schedule, I'm weaning off Paxil painstakingly slowly (liquid prescription, with a syringe). I have a question about tapering at smaller doses. I accidentally missed a dose (just 1.2 mg.) on January 17. Anyone who has taken Paxil knows that you do. not. skip. a dose. I don't know how it happened, but I forgot to take it one night (for the first time in about ten years). For the next TWO WEEKS, I was nauseous, had trouble eating, had mood swings, and worst of all, had some very scary depersonalization (feeling like I was in a dream or on LSD). Very scary. So, this can really happen from just missing a tiny 1.2 mg. dose? I called my doctor and they said this "isn't because of Paxil." Lol. Thanks so much! (This is why I'm so grateful for this forum--people actually dealing with the reality of tapering off these medicines.) Wouldn't tapering get easier as I get down to lower doses? ? What am I going to do at lower doses? The 10% method sounds good in theory, but yikes -- it will take forever just to get off 1.2 mg. My eventual goal is to get off Paxil and Zoloft, but my primary goal is to stay alive. I appreciate your thoughts and opinions! Thanks! I ran out of room in my signature for my quite-lengthy history, so I am expanding it here since this is my intro post: On Paxil since 1996--anxiety and depression. It worked for a while, but had to keep increasing it. 20 mg --> 40 mg --> 60 mg. For years I've wanted to get off it -- it wasn't working anymore, but very difficult to come off. Early 2013--Getting treated for sleep apnea (with CPAP) eliminated about 75% of my anxiety. Who knew?!?!? How long had I had sleep apnea, but treated anxiety with meds? March 2013: Feeling so good with CPAP treatment that I started weaning off Paxil about 10 mg/month: 60mg to 50 mg to 40 mg (NO negative effects whatsoever--if anything, I just felt better and better.) July 2013-- went from 40 mg to 30 mg. Some dizziness; nothing major. Starting a new job; paused taper. June 2014, began Paxil taper again, going from 30 to 20 in one week. (I can't believe that a medical professional actually advised me to do this.) This was very, very bad (dizziness and suicidality--the first time in my life--very scary), so went back to 25mg. Stayed at 25 mg. for another year. Not looking forward to going back down and continuing taper! In June 2015 started a cross-taper while adding Zoloft--went from 25 mg. Paxil to 20, to 10, to [this was the most difficult one] 5.) The cut from 10 to 5 mg gave me akathisia; nausea; suicidal thoughts; rage; and severe anxiety. Most of my time was consumed in dealing with Paxil tapering effects. August 2015 -- obtained a prescription for liquid Paxil. September: 4 mg Paxil October 2015: Suicidality -- doctor advised me to go up on Zoloft; I did so to save my life. Now at 100 mg Zoloft. (But it's not working -- my exercise, eating, meditation, acupuncture, and supplements are.) October to December 2015: 4 mg Paxil --> 3 mg --> 2 mg --> 1.6 mg. Symptoms are tolerable at this rate; the worst is a feeling of being intoxicated for several hours a day. But going this slow makes me feel like it will take forever to get off! ! ! Currently: 1.2 mg Paxil. Also: Vitamin D; Vitamin B complex; magnesium; plenty of protein; exercise; acupuncture; meditation/mindfulness; working with a naturopathic doctor.
  20. I have been on Paxil for 20 years. I was originally put on it for reactive depression from getting fibromyalgia . I don't need it now. I am not depressed anymore. My problem is that there is no liquid Seroxat /Paxil available here. I first tried bridging to Prozac. I found that moving from Seroxat to Prozac was too hard. I then tried dissolving it in water but my Seroxat tablets do not suspend or dissolve in water. They sink to the bottom of the glass. Does anyone know a reputable online pharmacy that sells liquid paxil and ships to Israel? There was a suggestion of using "Ora Plus" suspension liquid on this forum to dissolve insoluble tablets. I can easily buy Ora Plus from ebay with international shipping. What puts me off is that all the reviews of that on Amazon involve people using it to suspend tablets they give to their dogs and cats! It also contains some nasty sounding chemicals. The shipping cost is crazy too. But that doesn't worry me as much as the other two reasons. I take the gsk - glaxo smith kline version of Seroxat. I take 3/4 of a tablet - 15mg. It's the same tablet distributed to the whole of the European Union. Has anyone here successfully tapered off that without the liquid Seroxat? If so how did you do it? Anyone know an online pharmacy that sells liquid Paxil that ships to Israel?
  21. I've followed the Facebook page for this group for a bit now and thought I would add my own experience with antidepressants. So, I've been on antidepressants of and on (but mostly on) for about 21 years. The couple times over the years I got off of drugs like Paxil, Celexa, and Lexapro was by doing it the (wrong) way my doctor said to. The Ole' skip a day then every two days then voila! your done. I did that a couple times and I seemed to be good. But within 6 months, I was right back on something else. I mainly suffer from anxiety/panic and luckily don't suffer from depression; however, a year and a half ago I had my first case of depression which hit like a ton of bricks. Luckily for me, it was gone within a couple days. Phew! About 10 years ago, while on Paxil, I felt like a lot of anxiety was creeping in once again. I told my doctor at the time who was an internal medicine doctor this, and she said, "oh, you need to try this newer drug called Pristiq! It's an SNRI, not an SSRI." Without thinking anything of it, I was put on 50mgs of Pristiq-which was the lowest dose, at the time and off I went. I don't remember having any trouble what so ever making the switch. Fast forward to the summer of 2017-new doctor and I was feeling great - all things considered. I decided I wanted off. And I wanted off because I was starting to hear more and more people were being forced off their Pristiq and other antidepressants because the insurance company's didn't want to pay for them anymore AND I had watched people the prior Fall get hit by a hurricane in which many were forced into withdrawal because they couldn't get their refills because of damage to businesses/pharmacy's, etc. I didn't ever want to be "forced" off my medication for any reason and then have to endure possible side effects. So, in May of 2017, I began my journey that would (little did I know it) begin a two year struggle to get off antidepressants! I did the common thing at the beginning by telling my doctor that I was feeling good and was ready to jump off of my Pristiq. She agreed and said the usual...since I was on the lowest dose already, and the pills were extremely difficult to cut in half, skip a day for the next 2 weeks, then skip two days for the following 2 weeks, then stop. So the first two weeks were a bit unnerving and difficult but I powered through! Then came the second two weeks of skipping two days. After just the first try I was a mess! A complete mess! I had major anxiety, headaches, brain zaps, dizziness, the usual. I started pouring over the internet to find help because I knew there had to be another way! I started educating myself after finding a Facebook group that spoke of withdrawing off of Pristiq and learned a lot! I called my doctor's office and told them I needed to see her ASAP! because I was really struggling. Luckily, she got me in that same day. I told her how awful my experience was to get off this drug and she agreed that Pristiq is tricky to get off of. She said she doesn't really ever prescribe it but knows of docs that do, but mainly for menopausal symptoms! Since I came to her as a new patient back in 2011 and was already on the drug, she kept me in refills. So, at this point I told HER what I wanted to happen. Because I learned that there was now a 25mg pill which she had no idea of, I wanted her to prescribe this to me to help get me off. Then I told her that if that worked ok for me, I would then like to start compounding the drug down using a compounding pharmacy. I really had to educate her on the fact that this drug needed to be tapered off very slowly to have the best chance of getting off. She said she had never heard of that being done but was willing to work with me to get me off safely. And I had to commend her for that because I have since read and heard of many whose doctors refuse to help them in this manner get off their antidepressants. So I picked up my 25mg prescription from the pharmacy, headed home, and continued researching. I stayed on the 25's for 1 month which is when she wanted me to return to let her know how I was doing. I'll be honest here, it wasn't super easy. But, it was manageable. At my next appointment with my doctor, I came with compounding pharmacy info in hand and told her to call in a script for 15mg's to last a month with one refill in case I felt I needed to continue longer. My plan was to stay on that dose til ALL side effects were gone and to not jump down in dose until then. So, I completed the next month with the 15's and at that following appointment told her I was still doing ok, and that I'd like a new script for 12 mgs compounded. She obliged. Another month with that dose and still hung in there. The next month I asked for a 9 mg dose to be compounded. Did that for about 1 week and BAM! The side effects were so bad, I just couldn't handle it. I went back into her office right away and told her that the jump from 12 to 9 was too difficult and that I was going to refill the 12's but now I needed to taper off 1 mg per month! The lower I got in dosage, the higher my anxiety was, however, I was determined to get off this stuff. At 3mgs, I jumped completely off. Unfortunately, at that point in my life, I had some major family stuff going on which only contributed to my anxiety! I was off completely for 16 days. During that time, and because of what was going on in my life, the anxiety and panic left me in a state of not wanting to leave my house. It was really hard. I made an appointment to see my doctor again as I was starting to feel desperate. I didn't want to feel this way anymore. NOTE During this time of tapering, I learned a lot about helpful supplements to aid me as I tapered - ones for brain health and helping the inflammation that occurs in our brains as a result of taking these meds. I also cut out most sugar/gluten in my diet as both cause inflammation and can contribute to anxiety/depression. I also sought out a Naturapathic doctor in my area who ran extensive blood work to look for any deficientcy's that could contribute to how I was feeling. That's another thread that I can speak about in the future!!! (Magnesium L-Threonate/Glycinate/Citrate is your friend!!! Along with a high EPA fish oil, and Turmeric/curcumin supplementation!) So while sitting in my doctor's office feeling major anxiety, I caved. I told her I didn't want to feel like this anymore and that I was willing to try a low dose SSRI to see if it would help. I tried Zoloft first but had an allergic reaction to it 13 days in (it didn't make me feel good anyway) so I stopped that and switched right over to 10mgs of Paxil. I have to be honest...it did help. Within 24 hours I could feel my anxiety lessening. However, now I felt like a failure. I failed at getting off of antidepressants. I ended up staying on Paxil for a year. Then, because of some side effects that I can only attribute to the Paxil, decided I needed to get off this and NOW. I broke the 10's in half and for two and a half weeks, I took 5mgs. I have now been antidepressant free for almost 2 weeks and I feel GREAT! The only thing I have experienced is a slight tingling around my mouth and ever so slight anxiety but it feels more like an adrenaline rush; like when someone scares you and you jump. Granted, I know it hasn't been that long, but what a difference I feel now from what I felt a year ago. I still have a little stress in my life - but who doesn't ?? I've continued with my supplements and eating the best that I can and I believe that it has completely helped me get through the hardest parts. Looking back, I don't know how anyone could ever get off these drugs without doing some kind of taper! And, over the last year and a half, I have tried to help hundreds get off Pristiq. I am a contributor/moderator/admin in a facebook group that does just that! We help others see that the safest way off this drug is a slow taper. Many people learn the hard way, like most of us. But then we see that success is "slow and steady wins the race!" There is hope on the other side! We need to educate people and the medical community that the drug manufacturer's way is not a good way! I mean, why would they want us off their drugs anyway? They would stand to lose billions of dollars. They are setting us up for failure so we need to stand up and prove them wrong. Thank you for allowing me to share my story...
  22. Well I have always had some sort of anxiety my whole life. Of course, nowhere NEAR as bad as the anxiety WD has caused me. I missed school a ton growing up cause it just made me anxious to be around a lot of people and I was very shy. Just the thought of having to go to school gave me a nervous stomachache. This led to me actually dropping out for a while in high school. Thankfully I was able to enroll in an alternative high school with very small classes where we could go at our own pace and make our own hours. I was able to graduate and get my diploma in under 2 years. I've also had OCD for as long as I can remember. I was tormented by my intrusive thoughts and thought there was something very wrong with me or I was possessed. When I was around 11 or 12 I was looking in a psychology book for some answers and when I read the description for OCD I had a Eureka moment. "That's me!" I was so happy I started crying. So I guess I diagnosed myself but it was later confirmed by a child psychologist. Around 1998 (when I was 18 years old) is when I started seeing commercials on TV for Paxil. Again, when I heard the description I thought it sounded a lot like me. I had just been broken up with by a guy for being "too shy". I was hating how reserved I was and my "social anxiety." It had been getting even worse as now I was getting very nervous and racing heart when in restaurants or standing in line at the store. So I went to a psychiatrist and told him I wanted this drug, Paxil. After a LONG questionnaire and hearing my symptoms he agreed it might help me. I asked him if I could stop taking it any time I wanted and he said "Yes." LIE. That was the day I made the worst decision of my life and I will always regret taking that first pill. So I started the Paxil at 20mg and had no start up effects that I can remember. A few months later I took a trip by myself on a bus half way across the country. So I gues the Paxil was "working." I also missed a couple of doses and that is when I found out about the horrible WD. Zaps, crazy sensitivity to noises, nausea, etc. It scared the crap out of me. Felt like I was stuck on this poison. The years start to pass and I begin to become numb to everything. I gain 30 pounds, which doesn't sound like much but on someone 5'2" with a small frame it definitely shows. Although I was in a relationship I became more and more disinterested in sex. My favorite hobby was sleeping. I had zero ambition and zero motivation. In 2002, my BF at the time finally convinced me to try to get off this drug. I started taking 2.5mg drops every month or so from 30-40mg (cant remember exactly). As I got lower my interest in sex returned and I felt good. I decided to go on birth control. Two weeks after starting it I crashed completely. I was at about 10mg of Paxil at that time. One morning I woke up to nausea, some vomiting, a horrible burning sensation everywhere in my body, horrible anxiety, and the dreaded akathisia which was by far the worse symptom. I became suicidal and made an emergency appt. with a psychiatrist (not the one who initially prescribed it) who talked to me for 15 minutes and said this was proof I needed to be on the drug for the rest of my life. She proceeded to up my dose back to 30mg. I slowly started to feel better and the experience was enough to scare me away from attempting to taper off for several years. In Dec. 2006 after I get out of that relationship I feel something needs to change in my life. I was very unhappy with who I was. So I once again start to taper from 37.5mg. In 2008 I make it 20mg and decide to take a break. I go out with friends, I drink ALOT. Sleeping, smoking pot, eating, and drinking alcohol are my favorite activities. The break lasts for a whole year. In 2009 I commence my taper, but I notice it's getting a lot harder, which would make sense since besides the crash in 2002 I have never been on a dose lower than 20mg. I have to reduce my drops to less than 5%. At around 15mg in Aug. 2009 I get a part time job I love but I'm so scared of having WD at work that I take even smaller drops. In a year at that job I drop about 3mg. In 2010 I start to have stomach problems and anxiety increases. I have to stop eating red meat completely as I notice it makes my stomach problems worse. I carry a bottle of Pepto Bismol in my purse with me everywhere I go. Stomach problems give me anxiety and vice versa so it's a vicious cycle. Finally in Aug. 2010 I'm spending most of my time at my job in the bathroom so I decide to quit the best job I ever had. Probably just as well as about a month later is when the crap really hits the fan. In late September I take a 4% drop from 11.8 to 11.4. I get a little depression after about a week. Two weeks after that I try to eat a bit of red meat and visit the website of someone I used to know and it makes me very anxious. Several hours later I begin to feel very nauseous and anxious. I finally make myself throw up and feel a little better. I sleep a lot the next two days. The day after that however I stop sleeping completely. My anxiety goes into overdrive. I have no appetite and can't eat. I feel shaky, and depressed. My brain has forgotten how to sleep all of a sudden although I have never had insomnia in my entire life previous to this. If I do pass out it is for less than a hour. For 9 days I sleep one hour every 3 days. I see weird cartoony things when I close my eyes. I hear things that I know are not there. Once I had an awful bloody image flash into my mind out of nowhere when trying to fall asleep that "woke me up" with a gasp. I try everything over the counter: Benadryl, herbal sleep pills, melatonin, valerian. Nothing works. Finally someone gives me some Xanax and Trazadone. I take .50mg of Xanax and 25mg of Trazadone. Instead of sleeping one hour I sleep two. The next day I am more groggy than the night before and I am FINALLY able to sleep 5-6 very broken hours. I also updose to 12mg. I start to feel a little better but this doesn't last long. Three weeks later my stomach starts acting up again and I am unable to sleep. Not only am I unable to sleep but now every time I am about to fall asleep my body violently jerks awake. It is torture. I decide to start dropping again. I find I feel a little better after a drop but it doesn't last long. I start to drop every 3 weeks. The depression is still so bad cause I don't know what's wrong with me and my body keeps jerking awake, usually all night. I become suicidal and try to suffocate myself one night. Then I realize, I DON'T want to die. I just don't want to keep living like this. By the grace of God I make it through. I lose about 15 pounds in 4 weeks. I guess this brings us up to present, fifteen months after that "rough patch" or "mini crash". I still have no idea what caused it. The jerks are still here and still drive me insane but thankfully they have weakened and are not as relentless (usually) as they used to be. My sleep has never been the same since. I take magnesium and melatonin every night to sleep. If I get even slightly stimulated good or bad I am unable to sleep. Even going out with friends stimulates me too much and I am unable to sleep. I can't exercise for even 10 minutes cause it makes my jerks worse. I am still not working. I have found it has gotten even harder under 10mg. I have gone from tapering every 3 weeks to every six weeks. From 4% drops to not even being able to do 2.5% drops. I taper .1mg every 6 weeks. At this rate it will take me 6+ years to get to off if I can at all. I read on the other forum about someone who was going as slow as me and she STILL crashed at 6mg. I'm very hopeless. I am so freaking sensitive to drops and can't imagine how I will ever get off this poison. It has been three years since I started tapering from 20mg and I'm not even close to being off. I'm too scared to switch to Prozac because of all the horror stories I've heard and the fact that it is notoriously activating. If I try to hold on a dose longer than 7 weeks I feel very bad. I feel like I'm damned if I do and damned if I don't. Really don't know how to proceed and if I will ever get my life back. I am 31 now and would very much be able to have kids someday. I'm single and have been for a long time cause I can't even go out anymore and meet people. When I do go out, I don't sleep like I said. So that's it. Thanks if you took the time to read this LONG, LONG introduction. I pray for all you guys and I hope you will pray for me too. XX
  23. I have been on various doses of Paxil for 30 years. I was great using as little as 10mg for many years. I’m now going thru menopause and this summer has been hell. In June I went from 40mg of regular Paxil to 75mg of the CR. In early August my physiatrist lowered it to 50mg CR. Since then, I’m having episodes of anxiety and depression. I went to my GP yesterday and she wants to taper me off Paxil altogether and start Zoloft. I’ve been reading these horror stories and am scared and lonely. Does anyone have any suggestions? Oh..forgot to mention Gyno started me on Hormones last week too.
  24. Hi everyone, I'm Mark, living in Marseille, south east of France, I'm 36 yo. I began Paxil (Deroxat in France), in 1999, given for a "IBS" (irritative bowel syndrom)... 20mg a day (1999-2014). 2010-2014 were the best years of my life, friends, family, job, music, soccer, etc etc... Mid-2014 I decided by myself to reduce Paxil. So, I started to take 20mg a day, then 10mg next day, then 20, then 10 ... End 2014, jav/fev 2015, I took 10, 5, 10, 5.. then 5mg... 2 weeks after being at 5 mg / day, my life turned to hell. Many symptoms occured weeks after weeks : Nausea, dizziness, lightheadness, belly ache, loss of appetite, tinnitus, electric schocks when moving eyes... Then i thought about my paxil reduction... I re-start 10mg in 2015, then 20mg since january 2016, but my symptoms are still here... Now, I just wanna die with those awful nausea all day, dizziness etc... Sometimes I have 1, 2, 3 days where symptoms seem to reduce, then they retstart awfully... In 2015 I had all medical examination to exclude other problem : Colonoscopie, Pillcam (for small intestine), Ultrasound, 2 Belly MRI, 2 head MRI, tons of blood analysis, eyes tests, inner ears tests, etc, etc... Nothing found... I saw more than 20 doctors in 18 month (gastro, neuro, diagnosticians, ENT, opthalmo, psychiatrists...). None want to listen me, and all say that's not a problem with my paxil, because Withdrawal least no more than few weeks... I'm here, to claim for help. i really need somebody who understands me, who well knows withdrawal problems, etc... I don't understand why I don't feel better since I have re-taken 20 mg... Sorry for my bad english.
  25. Hi everybody, My name is Grégory, I'm french, 35 years old. Here's my story : I started Paxil (paroxetine in France) in 2002 because of anxiety, 40 mg for 5 years, and then 20 mg for 5 another years. In 2012 I tried a withdrawal in 1 month, and I started to suffer from pain and burning sensations in my legs, and depression. One month later I reinstated Paxil 20 mg, and after some weeks, I felt better. I stayed 2 years like this. In november 2013 I retried a withdrawal, 20 mg a day, 10 mg the next day, 20 mg again the next day etc during 3 months -> then 10 mg for 3 other months -> then 10 mg/5 mg/10 mg for 3 months -> then 5 mg for 3 months -> then 5 mg/2,5 mg/5 mg for 3 months -> then 2,5 mg for 3 months. During this withdrawal (a year and a half) I had some back pain, I thought it was my discopathy that got worse, and when I was in 2,5mg for 4 months, the pain in my legs suddenly reappeared strongly, and the depression. I tried to reinstate 5 mg for a week, but a morning I had been wake by a short ring in my ears. I made an anxiety attack and I felt so bad that my family send me to a psychiatrist that sent me to a psychiatric hospital. They gave to me a lot of medication, they stopped paxil and gave to me chlomipramine, abilify, tranxene and a sleeping drug (I forgot the name) I was like a zombie. So I decided to leave one week later. I suffered from akathisia, and a lot of side effects. It was really horrible. So I stopped all the drugs and I decided to go back to paxil, 20 mg because I thought it was the best for me. Of course it was a big, big mistake. I didn't made the connection with the short ring in my ears 3 weeks ago. 1 hours after taking the only pill, a constant tinnitus appeared in my ears... So I decided immediately to stop everything, and day after day the tinnitus decreased. 3 weeks later it was completely gone, it lasted one week. After that it reappeared slowly, it was 3 months ago. Since that the tinnitus increase slowly, sometimes I can't sleep. Because of that I have a nervous breakdown. The pain in my back and my legs are a little less intense but I have no windows since I stopped Paxil. I read a lot of information about antidepressant withdrawal, a lot of testimony, in particular in your forum, the tinnitus topic, the 'reinstating and stabilizing' topic, etc..... Now please could you give me your advice ? Because I think that the pains are withdrawal symptoms and the tinnitus an adverse reaction, isn't it ? But isn't it strange that an adverse reaction goes away after a moment, then reappears and increases ? It's more like a withdrawal symptom ! I'm really lost. Thanks for your help !
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