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  1. Hi, all. Thank you so much for providing this site. I’ve been inspired by the stories here, and look forward to my own recovery and hope to help others as I can along the way. It’s been a hellish year… I have a rather long story – 99% of which takes place within the last year – so please bear with me. I’ll write this out in a timeline for organization’s sake. In essence, I have a history of anxiety and depression, and have OCD. I have been suffering from severe postpartum anxiety (PPA) and depression (PPD) since delivering my son in May 2018 – exacerbated by a move out East so I could start my PhD, the decline and death of my dog, dealing with childhood trauma, etc. I was on Prozac and Xanax as needed before I was pregnant and went off without any problems while we were trying to conceive. I had an uncomplicated pregnancy. Here we go… 1999ish – 2005 (6th grade – high school) (Zoloft, Lexapro, Wellbutrin) I was diagnosed with severe academic perfectionism and OCD and put on (I think) Zoloft first (not sure of dosage). In the years that followed, I was on Lexapro and Wellbutrin, all in various combinations. I don’t remember timing or dosages. I don’t remember having a hard time coming on or off any of the meds. I was chronically ill in high school, though, with fatigue, mono, sinusitis, shingles (to be fair, I had immunological issues before going on meds, too, and a complicated family situation). I took the year after high school off to recover, went off all meds. All I remember is feeling tired and my sleep being on a weird schedule. 2005 – 2009 (no meds) I started taking some community college classes, started volunteering, and then working full-time. Started paying more attention to my diet (went off gluten and most dairy after I realized it made me feel better). Was doing very, very well. Summer 2009 – Summer 2017 (40 mg Prozac daily, ? Xanax PRN rarely taken; occasional supplements - multi vitamin, vitamin D, fish oil, probiotics) Started on 40mg Prozac (slow taper to START it), as a ‘preventative’ measure against OCD and perfectionism (I know… probably wasn’t necessary, but I can’t prove a negative) as I was about to start at a university in the fall of 2009; I was pushed by family (also on psych meds) to start. I think it helped somewhat but it’s hard to know. Eventually, I had an Rx of Xanax, which I took maybe 5-10x/year as needed. I did well in college, though, started a great career, went to the UK on scholarship to do my Master’s and then decided to QUICKLY taper off the Prozac when my husband and I (we married in 2014) decided to conceive. I don’t remember having any issues coming off the Prozac. I was on it fairly consistently for 8 years. Summer 2017 – May 2018 (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Pregnant, more depressed than usual, especially after moving back home from the UK and being unsure of what was next. Still, did the damn GRE, applied to PhD programs, got into a great program out East, started setting up our life out there. Obsessive compulsive symptoms were worse than usual but not unmanageable. Late May 2018 (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Delivered my son. Epidural, long labor. Started breastfeeding. Early June 2018 (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Had a week of awful insomnia and anxiety and intrusive thoughts, but it went away. Early June – Mid-July (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Doing okay, just exhausted and depressed (I was breastfeeding around the clock). One week in mid-July 2018 (? Xanax, one-time dosage ~6mg Zoloft, and one-time dosage 2mg Ativan, one-time dosage ? Klonopin in hospital; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Then, at around 7 postpartum weeks - BAM - I was hit with a week of NO SLEEP. I just couldn't sleep and I lost my appetite. I had been given an Rx for Zoloft by my OBGyn and took a very small amount that Friday (I wanted to ease in). That night, all my symptoms were much worse – and I also felt this severe restlessness in my limbs. It was AWFUL. I even tried Xanax to calm me down (I gave to my son pumped breastmilk). My anxiety was so bad that I went to the ER that Sunday. They drew blood and it turned out that my blood sodium was dangerously low (126) - possibly due to not eating enough and drinking too much water. They gave me Ativan (2 mg – which was A LOT for my system), some Klonopin, too, eventually, and fluids overnight and I felt MUCH better the next day. I was given Ativan and Remeron as needed but didn't need to take it for a few weeks. Mid-July to Late Aug 2018 (0.5 – 1mg Ativan daily; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) I was fine for a few weeks, and then my family and I moved out East, where I was attending grad school (I’m now on medical leave). The anxiety and insomnia came back around the move in August. I took Ativan (0.5 – 1 mg) as needed each day and had some rebound anxiety but was able to get through until setting up care there. I was assigned an interim psychiatrist (before being placed with a regular one), who Rxed me 0.5 Ativan to take at night to sleep for 10 days. This worked for sleep, but not the overall anxiety and depression. Due to breastfeeding concerns, they switched me to Trazodone (25-50 mg), which worked ok for sleep. Eventually, I was able to fall asleep on my own for a couple/few nights. That would be the last time I could do that to-date. Late Aug to Late Sept 2018 (0.5 – 1mg Ativan daily, 1-5mg Prozac, 25-50 mg Trazodone; supplements: postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, probiotics?) I started seeing a regular psychiatrist in early September, and we agreed I should go back on the Prozac with 1 mg Ativan/day as needed. We started sloooow on the Prozac - 1mg, then 2, then 5. By week 3, I had lost my appetite completely, and my anxiety was through the roof - just on 5mg (I was on 40 before becoming pregnant, so I couldn’t understand why I was feeling so terribly). The Trazodone was no longer helping me sleep, and was giving me terrible dry mouth. My limbs felt like they were vibrating. My psydoc FINALLY directed me to go off the Prozac and Ativan, and Rxed me just Klonopin 0.75mg/day. In addition to the psychiatrist, I saw a primary care doc, who checked my thyroid, adrenal glands (several tests there), vitamin levels, and other things - all normal. My blood sodium has still been a little low, but they believe it's due to not eating enough. Oct 2018 (Klonopin 0.25 – 0.75mg/day; postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, I might have tried some hormone-balancing herbs – I don’t remember exactly, probiotics?) My appetite returned but it was never the same. I was sleeping better, but not well – maybe 6 hours at most, sometimes waking in a panic. I could only take one class. I was very depressed and frustrated, and deeply confused as to why I wasn’t responding to medications. But I felt BETTER than when I was on the Prozac, and was able to feel like I could sleep on my own again, and on just 0.25mg Klonopin/day – but the plan was to let me ‘settle’ and then try a new AD, sooo… Nov 2-4 2018 (25mg Anafranil at night, 0.25-0.5mg Klonopin/day; postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, I might have tried some hormone-balancing herbs – I don’t remember exactly, probiotics?) The psydoc suggested Anafranil, a TCA. The day I started it, we put my dog down and I stopped breastfeeding (I had been tapering on that for months). It wasn’t a great time to start something. But I did. I took it the night of the 2nd, fell asleep instantly, then woke up feeling SO GOD AWFUL about 3 hours later. I had a tremor, I vomited, I couldn’t eat. My husband had to hold me while I shook in bed. I called the psydoc and she told me to keep taking it, sounding annoyed with me. So I pushed through for three days – but that was all I could do. Until then, that was the worst I have ever felt. Nothing could calm me down. Things start heating up here, so I’ll spare some details and focus more on the med changes… Nov 5-8 2018 I barely remember these days. Sleep was poor, I felt awful. Then on a Thursday night, I was up all night with panic attacks. I called my therapist and made the decision to go into the psych hospital. Nov 9 – 15 2018 (In hospital, put on 0.5mg Klonopin 2x/day and worked up to 100 mg Seroquel at night) I didn’t start sleeping until I was put on a combination of Seroquel and Klonopin. BUT, I remember this creeping feeling of “buzziness” and restlessness when I woke up everyday. That feeling would continue to get worse over the coming weeks and stay with me to the present. Nov 15 – Early Dec 2018 (0.5mg Klonopin 2x/day → 0.25mg Klonopin 2x/day; 100mg Seroquel at night; some supplements – don’t remember) I left the hospital taking 100mg Seroquel at night and 0.5 mg klonopin 2x/day. I officially went on medical leave from grad school. I stuck with this doseage for 2ish weeks, was sleeping well but feeling horribly depressed and anxious, then started to quickly taper the Klonopin. I don’t remember how quickly – but I wasn’t taking anymore than 0.5mg/day by early December. I then tapered on the Seroquel after feeling SO much worse when an IOP psydoc tried bumping the dose to 125mg; I remember not being able to sit still – going outside to pace. No tremor – just pacing, fidgeting, and losing a lot of weight. Early December 2018 – Early Jan 2019 (1mg Ativan at night, 2.5mg Zyprexa at night, 25-100mg Lamictal; postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, I might have tried some hormone-balancing herbs – I don’t remember exactly, probiotics?) I made the decision to move back home to do a program specialized in PPD (we ended by moving back entirely later that winter). In the program, I was put on 0.5-1mg Ativan at night, 2.5 mg Zyprexa at night (for sleep – though it never helped), and titrated up to 100mg Lamictal (the psydoc suspected a bipolar spectrum diagnosis). I was still incredibly restless, unable to sit down and just enjoy a movie. And my sleep was growing worse and worse. It was awful – then my mood grew worse and worse as we went up on the Lamictal; I also had increasingly bad tinnitus and TMJ. I was hospitalized as my thinking became suicidal – just ideations, but I was ready to go back in… Early to Mid-Jan 2019 (0.5mg Klonopin 2x/day, 5mg Paxil/day, 50mg Benadryl at night; 0.25-1mg Risperidone 1-2x/day; some supplements?; THEN back to 150mg Seroquel) In the hospital, I was taken off the Lamictal and put on 5mg Paxil once/day, 0.5 mg Klonopin 2x/day, Benadryl 50mg at night (for sleep), and Risperidone 0.25mg once or twice a day (I don’t remember). I became increasingly orthostatic (low BP, high HR). I stabilized mood-wise – sorta – and left the hospital feeling off, but better… Within days, though, we tried increasing the Risperidone, and my HR went up to 140 (I think we tried 1 mg). I wasn’t sleeping AT ALL. I was taken off the Risperidone, stayed on 5mg Paxil once/day, 0.5 mg Klonopin 2x/day, Benadryl 50mg at night (for sleep). Eventually, as my sleep diminished, the PPD IOP doc put me back on Seroquel (I has actually asked to go back on) – but suggested as much as 150mg. After that, my mood really shifted and became erratic; I was really upset and angry at my husband and suicidal ideation returned. So it was suggested I go back in the hospital... Late Jan to Mid-Feb 2019: 3-week hospital stay (see below for crazy med changes) All the docs agreed I didn’t need to be in there this long (everyone kept asking why I was still there), but there I was so they could keep throwing stuff at me to see if something stuck. I was holding out hope SOMETHING would work this time...: First week: 0.5 mg Klonopin 2x/day, 100 mg Seroquel at night, 300mg XR lithium 2x/day (HORRIBLE stomach reaction, especially when the doc abruptly pulled the Seroquel) Second week: 0.5 mg Klonopin 2x/day, 50mg Seroquel at night, some amount of Depakote (I don’t remember – wasn’t improving, irritable), tried PRNs of 12.5mg Seroquel and became really depressed Third week: 1 mg Klonopin 2x/day, 50mg Seroquel at night, 1200mg gabapentin (taken as 300mg twice during the day, and 600mg at night). That’s how I left the hospital. Mid-Feb to Early-March 2019: (0.75mg Klonopin 2x/day, 50mg Seroquel at night, 300mg Gabapentin 2x daytime and 600mg at night, brief re-trial of lithium – 150mg; multivitamin, 1,000-2,000 mg vitamin D, ? fish oil, 1200mg evening primrose oil, probiotics?) Instantly went down to 0.75mg Klonopin 2x/day (fear of dependence). New trauma-based IOP. Was very constipated. Tried low-dose lithium (150mg) as lithium seemed to be the only med to be helping to-date (along with benzos); was improving somewhat mood-wise, but the stomach issues were SO bad, so we went off. After going off lithium, my restlessness SKYROCKETED, and was particularly bad for 10 days. My stomach was AWFUL; I was taking antacids all the time; seemed to be worse after taking gabapentin, so the new IOP doc cut THAT dosage in half. Developed a tremor. The new IOP psydoc diagnosed me with akathisia – FINALLY. I had NEVER heard of that before (although, in retrospect, I think it has been mentioned to me in the hospital as a possible side-effect of the antipsychotics – but I remember them saying “you can get this, but I don’t see that in you, so…” and so I ignored it (dumb)). When I read about it, I felt so frustrated; this had, no doubt, been plaguing me since at least the one-time Zoloft attempt in July - and in particular since the first Seroquel doseage in November. Doc suggested I reduce my Seroquel from 50 to 25mg; I couldn’t do that for a couple of weeks. Early to Mid-March (→0.25mg Klonopin during day and 0.5-0.75mg/night, 25mg Seroquel at night, 200mg Gabapentin 2x daytime and 300mg at night, brief re-trial of Depakote – don’t remember dosage; multivitamin, 1,000-2,000 mg vitamin D, ? fish oil, 1200mg evening primrose oil, probiotics) Continue reducing my Klonopin down to 0.25mg during the day and 0.5mg at night. We tried XR Depakote as a Hail Mary in the med department. It seemed to help a bit, but also increased some of the restlessness. At this point – and this should have come sooner for me – I was done – just DONE– with med changes. My body needed a break. I haven’t added or taken away and particular meds since (with one exception - the propranolol, see below) – though I have reduced the dosages… Early April (0.25mg Klonopin during day and 0.5-0.75mg/night, 25mg Seroquel at night, 200mg Gabapentin 2x daytime and 300mg at night, up to 70mg propranolol throughout the day; multivitamin, 1,000-2,000 mg vitamin D, ? fish oil, 1200mg evening primrose oil, probiotics) Was diagnosed with thyroiditis (my thyroid had been normal as recently as January) – a relatively common thing postpartum, but it was ‘late’ to arrive to be postpartum thyroiditis, so doctors suspected the lithium. B/c I was hyperthyroid first (usually follows a pattern of a few months in 'hyper'/overactive mode, followed by anywhere from 3 to 18 (or more) months underactive. I was put on propranolol (taking as much as 70mg throughout the day). That seemed to help the tremor, heart palpitations, and restlessness maybe 50-75% of the time. But it crashed my BP. Early-April to Present (see below) We’ve moved into a new, stable house (both good and really stressful). As of early June, I am off the Seroquel. I tapered from 25 to 0mg by reducing by about 6.25mg every two weeks or so. I tried re-starting it to do an every-other-day ending taper, and felt instantly WORSE, so I am done. But it was probably too quick a taper. I NEVER want to take another antipsychotic again, though; I can point to the beginning of the worst parts of this whole cluster to starting Seroquel, and the akathisia that ensues and continues. I reduced the daytime Klonopin to 0 (though I’ve had to take a 0.0625mg to 0.125mg PRN three times in June as things have grown worse). I still take 0.5mg Klonopin at night. In June, I also went off the propranolol – too quickly – and have been having heart palpitations, and have been orthostatic. My BP was just getting to be so, so low. Now, taking any amount of it seems to make me more agitated/restless or, at best, woozy. In June, I also got ambitious and reduced the gabapentin from taking 400 mg during the day (200mg 2x/day) to 0 at the end of June, mostly b/c I thought it was making me feel worse; I’m not sure on this STILL (or if it ever did much of anything). I still take 300mg at night with 0.5 mg Klonopin. May was my best month - not great (I was still constantly restless, struggled with my appetite, and was really disoriented and depressed), but it felt more manageable. I should have done a slower taper on all things when I felt more stable, then – but here I am. June started out okay but, after going off the Seroquel and trying a glass of wine again (out with a friend), it’s been awful; the akathisia is back in full swing. NOW I seem to have reached this point where my body won’t tolerate much of anything again – as if it’s saying “if you’re done with one, then you’re going to be done with them ALL.” I’ve also noticed that the first half of my menstrual cycle is FAR AND AWAY WORSE than the latter half – and am trying to explore ways to (as naturally as possible) balance my hormones. I tried bioidentical progesterone cream that an integrative MD Rxed and it helped somewhat, but caused cramping and spotting and an upset stomach – no go. Currently Taking 0 – 200mg gabapentin during the day; 300mg gabapentin at night 0.5mg Klonopin at night 5mg melatonin (+10mg B6 – combo pill) at night Fish oil (1400mg EPA + 480 DHA) in morning and afternoon 1500mg primrose oil morning and afternoon 200-400mg magnesium glycinate at night, and magnesium oxide throughout day 2000mg vitamin D afternoon Cal+Mag+Potassium supplement afternoon 2 kinds of probiotics morning Multivitamin morning What Makes Things Worse Alcohol; I haven’t been able to tolerate this since sometime early spring – makes me SUPER anxious. Any antihistamine; it used to help me sleep but something in the last 2-4 months has changed my brain so I now feel WORSE the next morning. Some vitamins (I say that b/c I sometimes feel more buzzy after taking a multivitamin; on the other hand, sometimes I feel better) Caffeine (not that I’ve tested this too much; the most I ever drink is a cup of green tea, and I haven’t been able to do that in weeks) Antacids (found that out the hard way) What Helps Epsom salt baths Sweating Crying (when I am able to) Walking (especially in sunshine) Melatonin (at night – for sleep) Klonopin (but I am trying not to go over 0.5mg/day – mostly at night; and want to taper off) Massage Stretching Kombucha (not too much, though b/c caffeine) Apple cider vinegar + lemon water (ahead of meals and when I have an upset stomach – at east once/day) Eating enough (really tough to do right now) Not Sure if it Helps (tried/trying it) Acupuncture (doing this for a few months now) Therapy – CBT, talk Gabapentin (want to taper off anyway) Primrose oil Multivitamin Fish oil Magnesium Calcium CBD oil What I Need Help With I’m here b/c I need to feel like I’m not crazy when the psydoc says this isn’t still akathisia. I KNOW it is – I KNOW it’s protracted withdrawal and the effect of such a brain-altering year. I know this b/c, even in my most anxious moments pre-postpartum medications, I never felt this protracted insatiable restlessness and dread. I was a champ at sleeping (though a night owl). And my appetite was always solid (too much so, at times). This is DIFFERENT. I also want to get off the gabapentin and the Klonopin – but do so in a smart way. I’m not sure the gabapentin is a net evil right now and shouldn’t be taken off altogether? And is the gabapentin the best thing to drop first? And I need help managing the akathisia. I've read some tips here, and will explore those. Any help on the hormone piece would be invaluable. There is something there. I feel the effects of akathisia/withdrawal/autonomic disregulation far more at the start of my cycle. And this whole postpartum period has been inherently hormonally disregulating (compounded by meds like Depakote, which altered my cycle). Anyone else? Anything help? I plan to keep a more focused journal as this site recommends and track my symptoms alongside food, supplement, and med changes. Of course, what sucks THE MOST is the lost time and what's been taken - from the joy of being a new mother, to what was supposed to be a fulfilling career move in pursuing my PhD (I might have to give up my place now b/c I'm so disabled), to feeling defective for not responding to the 'right treatments.' The worst year of your life should not also be the first year of motherhood. To those of you that read this monster of a post – or event 10% - THANK YOU.
  2. Hi you all! I am Athena. So my tough journey begins in 2001, when I am diagnosed with depression. I am then prescribed Effexor, which instantly gives me huge side effects: vomiting, tremors, sweats... But I am a tough warrior and I put up with them, for a year and a half. In 2005, depression comes back, and here starts the trial-and-error of many, many AD's: Celexa, Zoloft, Effexor, desipramin, Wellbutrin, mirtazepin, Lamictal, Remeron, Abilify, nortriptylin, Cipralex, Cymbalta, and others I don't remember. They all give me side effects that are almost as bad as the disease in itself. When I would try to stop them, I would have really bad symptoms of depression, so I began to believe that that was going to be my life, which is quite depressing in itself! Last summer (2012), while being on Cymbalta, I developped really bad sleeping problems: I would sleep maximum 3 hours per night, and only with a med called Imovane. So I started to be addicted to that in order to sleep. But I was so tired that I decided to stop the Cymbalta, so my doctor prescribed me Paxil. I was already on Wellbutrin as well. Paxil made me SO sleepy, that I tried to quit in Sept. 2012, first from 20mg to 10mg, which went well, and then 2 weeks later from 10mg to 0. Outch. That's when I found out about withdrawal symptoms, which I had never heard of before for AD's. It was awful, but it might have been my revelation, because they were really PHYSICAL symptoms. I started to read a lot about the subject on the internet. I have learned a lot, and I have started to think that the depression symptoms I have been having when I tried many times to stop my meds were maybe in fact WITHDRAWAL symptoms. My doctor didn't think so. Even so, I started to taper slowly from Paxil and to take good care of myself in other natural ways. So here I am now, on 7mg Paxil, 100mg Wellbutrin and 2.5mg Imovane. My doctor keeps telling me to try and taper Paxil faster than I am now... so he can be able to prescribe me something else... a MAOI (?).I am not really interested in trying a 20th (?) medication. All of the previous ones have given me really bad side effects that have put my life on hold for 10 years... Why would this one be different? He claims that I am going to have a depression relapse if I don't take any medication... So here is my first question: do you guys think what I have experienced as "depression relapse" when I was trying to stop the AD's many times in the last 10 years, might have been in fact withdrawal symptoms? And that if I taper them a lot more gradually, I might not have those "depression symptoms" forever? And therefore, I wouldn't have to take the so-called MAOI? My second question is: which one do you think I should taper first? Paxil or Wellbutrin? I wanted to get off Paxil as fast as possible because it was making me so sleepy, but right now, it seems like the side effects from Wellbutrin are more disturbing. It has always affected my breathing, like I have to make an effort to breath completely, and it has given me some joint pain. But right now these seem to be worse, breathing is more difficult and it makes the breathing muscles become too contracted and sore. Plus I know that breathing right is important during recovery... Also, the problem with Wellbutrin is that you're not supposed to cut the pill, since the covering is doing the "slow-release" job... Well this was my story! I know it's a looong and boring story but it's mine... If anyone would have any input or advice on one or both of my questions, I would be SO grateful!! Also, please forgive my English mistakes, it is not my mother tongue. I really wish a full physical and mental health to everyone here, and I am looking forward to know and discuss with you all!! All the best. -Athena
  3. hi,all been on &off antidepressants for 20 yrs but never felt this crummy.since stopping Paroxetine have had flu-like symptoms ,then fatigue loss of appetite,taste changes,eye problems(excessive blinking actually started while on it,that's why I quit).depression,anxiety,just miserable,wondering if I should reinstate or just try & hang in there.I was on it about 6 mos.stopped May 4 after about 7 wk taper.thanks for any suggestions
  4. It’s my first time posting so hello to everyone . I’m so glad I stumbled on this site I’ve been so scared not knowing what was going on with me . ill try and make this as short as I can . In August of 2018 I hit what I believe to be called poop out (reaching tolerance) from taking seroxat for 15 years straight . Anxiety started to creep into my days even though I was on 20mg and hadn’t had problems only minor in the past . A visit to the dr led to him increasing my dosage to 30mg. I didn’t feel happy about this and decreased back down within 3 weeks. I knew for me the answer was to taper off. In November 2018 i went to see a psychiatrist for advice on tapering as my dr hadn’t got a clue (too long to go into) . She said to drop 5mg see how I went for 4 weeks before dropping again . This seemed to go ok . In December 2018 she said to drop another 5mg again I felt ok. Don’t get my wrong I had lots of weird symptoms with some depression and anxiety but didn’t feel too bad I put this down to the 50mg of pregabalin she said I should take three times daily (prescribed in November ) . I take twice daily on the advice of my dr. In January she said to decrease by 2.5 mg which I have done. I am now taking 7.5mg daily . From reading things on this site I now know I am tapering tooooooo quickly and my body is now telling me this too as my symptoms are more pronounced and the depression is really setting in. I don’t know what to do for the best and was hoping for some advice here. Do I stay put and wait to get stable though I have read somewhere on this site that it can take up to 18 months to start to stabilise after poop out. Or do I increase tiny amounts until I feel able to cope better with the symptoms? I am still working every day . my thoughts before finding this site were that I needed to get off seroxat because it had started to make me feel so much worse and that by keep taking it I’m poisoning my body and it will never head towards homeostasis while I’m still taking it no matter what dose. I would be so grateful for any advice .
  5. Hello. I’m 33 years old woman. When I was 21 I was given Paxil 20 mg and has taken half a pill since then to atumn 2016. I think I tapered for a month or so, don’t remember exactly. And I was fine for a month or two. But then I started to feel so stressed out and shaky. And I never get stressed. In January 2017 I got a bad cold with very bad throat pain. And I had that pain for about half year. I was so psychology instabil I cried all the time and the next second I laughed hysterically. I thought I was going insane. And I was so agoraphobic. And had my first ever panic attach. I got kind of appendix inflammation where the appendix would swell up and have spasm from hell! I couldn’t walk because every time I took I step i would get a stabbing pain in my appendix. In the summer 2017 I understood what it was! I was going through Paxil withdrawal! So I thought I had to go back and take Paxil again. The pain in my appendix disappeared and I felt normal in my psyche again. And also my throat pain disappeared. But I also got symptoms back that I didn’t want to deal with, sexual disfunction, and other stuff. So I quit Paxil again. My weight went down to 44 kg and I am 166 cm... i was so incredibly depressed I wanted to kill myself. I couldn’t work and I layed in bed all day I thought I was going to die because of anxiety. i also got severe burning mouth. And bruxism. And I got bone growth in my palate and under my toung. My mouth hurted so bad. And still does from time to time. And so dry mouth. in New Years from 2017 to 2018 I woke up and had excruciating pain in my stomach. And had to eat something very fast to make it better. And ever since then I have to eat all day long, but my stomach hurts so bad either way. sometimes it burns in my stomach and in my chest. And I have to pee so bad all day long and also at night. I have pain in my bladder. and in my spine and lower back. But the main thing for me is the pain in both sides of my stomach. I think it is the colon? The stomach is sooo bubbly and noisy and the pain is so bad. I have diarrhea almost every day. And I get anxiety and panic when I would sleep because I have so much pain. I don’t know how much longer I can do this, I have had this pain and bloating now for 1 1/2 years. It looks like I swallowed a football or something and people have asked me if I’m pregnant. i can’t deal with this pain any more. The only thing that helps with the pain a little is hydroxyzine but I get bad heart palpitations from that. What should I do to get a normal digest system again? And don’t have to eat all day long and pee and have this pain? the pain is on both sides of the stomach far down.
  6. Prestorb

    ☼ Prestorb

    Hello, I am encouraged to find this site as I feel like I am on an island alone in this effort to withdraw from SSRIs. I'm sure my husband is sympathetic, but he doesn't understand and he is probably just really tired of dealing with it. So I basically don't talk to anyone other than my therapist about it. It sucks, and yet I know the SSRIs need to go. I asked for a change in SSRI about six weeks ago, so my Pdoc recommended I taper off the 40 mg of Paxil at 10 mg per week, while starting Zoloft at 25 mg per then up to 50 mg. So now I am off the Paxil (generic) and only on the Zoloft at 25 mg - I didn't tolerate it well at all. I know I am having a lot of WD symptoms, and I am just trying to manage them as best I can, which is okay some days and not good other days. I also have an 11 year old son, although I am not working outside the home right now - which I often feel is part of the problem. But I am afraid to commit to anything until my emotions stabilize. I start crying for no reason and can't stop. Sorry to ramble, I'm not sure what else to write, just hoping to find support here. Thank you.
  7. Moderator note: link to benzo forum thread - Miko789: Xanax withdrawal/tapering Hi, I'm new to the forum, I have some questions I want to ask. My doctor prescribed effexor for depression, in 2009. Now I'm free of symptoms and I managed to come off with withdrawal symptoms though. That's with the antidepressant. Now I'm on Risperdal consta from November 2013 and seroxat 10mg. My doctor prescribed with risperdal consta 3,3mg/day long acting injection every two weeks. From February 2015 he lowered the dosage to 25mg/every 2 weeks equals 1,66mg/day. I tried to lower the seroxat 10mg but after 40-45h I have withdrawal symptoms vertigo, dizziness. Is it possible to cut down seroxat? How about the Risperdal consta (long acting injection). Has anyone tapered off completely without withdrawals? I read about the 10% harm reduction procedure to taper off and I'm going to tell my doctor and follow. thanks in advance
  8. Hey im a 23 year old female, i got on paxil at 18 years old so 5 years ago, iv been off cold turkey since febuary 20th of this year so 112 days. I tried to reisnstate 2 weeks ago i took the medication i think 4 times got an adverse reaction it caused extreme akathisia almost immediately. I stoped taking it and the akathisa is gone now. I knoq every single story is different every person is different, does anyone have a similar story to mine, of how long they were on the medication, the dose and when they started to feel better, sorry if this post is all over the place. I have severe issues concetrating, severe confusion alot and no deep emotions and i just cant think, dont feel connected. I just want atleast a full day or two that i feel like i can think and feel emotions i want to see when some of you guys broke through that wall when going cold turkey from a high dose of paxil and around 5 years being on it prior than you!!!
  9. Hi everyone, I'm wondering if anyone has suggestions for any books and/or videos on fear/phobia. I have Claire Weekes' book, Hope and Help For Your Nerves and while it has been of great help, I'm looking for something related more to dealing with fears. TY
  10. Hello, I have been on Ssris for the past ten years, different doses and different meds. I started on lexapro 20 mg when I was 18 and get great for years. When I hit 22 I started lowering my meds due to side effects and simply being uncomfortable being on meds. I got down to about 10 mgs and stayed there for a while. 2 years ago I did a fast taper and got down to 5 mgs way too fast. I experienced withdrawal really bad without knowing what it was and thought I was relapsing on anxiety/depression. For a year I messed around trying to find the right med and trying to find the right combo. I now realize meds were a problem all along and all I want is to feel normal and be off of them. I also realize I’m going through withdrawal and have to be patient. Ok, time to backtrack. Eventually I decided to go on paxil about a year ago after trying a slew of other Ssris. The reason being that my dad takes it and I thought it would help me out. Bad idea. I quickly got up to 37.5 mg in only about 4 months bc it didn’t seem to be helping. After this, I decided meds weren’t the answer and started dropping my dose, not knowing the correct method or pace. My first drop was to 25 mg controlled release and it was horrific. I decided to wait for a while before making and other drops. About 5 months. Back in may of this year I dropped again to 20 mgs regular release. I’ve been experience protracted withdrawal for almost 4 months now from that drop. Things seem to gradually be improving, but I just hit another bad wave and am looking for advice/support. Also, I’ve been on different doses of Ssris for a long time. Since I was 18 and I’m 28 now. I’m thinking about jsut holding head until I feel good before tapering the correct way. I just don’t know how long I should wait, or when it’s time to start again. Any help is very much appreciated. Thanks!!
  11. Hi all, I have been struggling off and on over the last 14 years with what I thought was anxiety the whole time, but am now realizing it was more likely withdrawal from stopping antidepressants too quickly. The first SSRI I was put on was Paxil. I tapered off after 7 months because I never really liked the idea of being on an antidepressant. I started having anxiety a few months later and was switched to 50 mg of Zoloft. I tried multiple times over the next 13 or so years to stop Zoloft, but the anxiety always returned, so back on I would go. In the fall of 2015 I had a return of anxiety after reducing the Zoloft to 25mg and tried to go back to 50, but it wasn't helping, so ended up going to 150mg before I felt relief. I again tried tapering last summer and got down to 25mg and experienced increased anxiety as well as insomnia. My doctor switched me to Lexapro last October, but it only made me more anxious, so after 10 weeks he switched me to Paxil. I got up to 20mg of Paxil for 3 weeks and wasn't feeling any better, so finally decided I had enough and wanted off the antidepressants. I started tapering at the end of January down to 15mg for 2 weeks, then 10 for 2 weeks, then to 7.5, and after about a week and a half at 7.5 started feeling really anxious again. I found this site and decided to go back up to 10mg of Paxil and stabilized for about 2 weeks and then started tapering 10%. Was doing pretty well for a couple of weeks at 9mg and then started feeling a little anxiety creep in. I talked to my doctor about switching to Prozac to make the tapering hopefully easier, so a week ago this Friday I started taking 4.5 mg each of Paxil and Prozac. I have experienced some ups and downs with anxiety since then, and am having a particularly difficult time right now. Feeling quite anxious and can't sleep. I took .5mg lorazepam tablet and am feeling a bit better, but not sure what to do now. I was going to switch to just 9mg of the Prozac and eliminate the Paxil tomorrow, but not sure if I should continue with the half and half mixture I have been doing or maybe even just go back to the Paxil alone? This just sucks so bad. I know I have probably screwed up my system so much with all of these changes and can only pray the damage is reversible. I was feeling pretty good earlier today, but then started feeling terrible as the evening went on. Haven't felt this bad in a while. Any suggestions would be greatly appreciated.
  12. Thank god for a site like this, I feel like I have been going crazy for the last few years . I'm going to try to keep this short and sweet. I was put on Paxil when I was a teenager as my doctor thought it would help me get through some difficult years, counseling would of been a much better approach. I was sexually abused as a child but never told anybody so when I was a teenager I dealt with this by using recreational drugs to ease the pain . My parents thought it would be a quick fix being on an antidepressant to help me out. I used Paxil for years upping and lowering my dose from 20mg to 50mg as needed , thinking that I had to take them because I had a chemical imbalance . I never thought once coming of them or did I know the bad effects they can do to you. Only up until I had my last child three years ago everything changed. I was taking only 30mg of Paxil which my psychiatrist told me it would be fine for the baby . I had to have an emergency cesarean and had complications. I got a servers infection and that brought on my first panic attack and severe aniexty. My baby was going withdrawal from Paxil shaking and wouldn't sleep . The nurses was giving me strong painkillers that I think was making me worse , after 2 weeks in the maternity hospital I was then put in a mothers and baby unit at mental hospital . I only lasted a day as didn't won't to harm myself or my child , I just wanted this aniexty to stop ,I was constantly worrying and looking at it now my hormones would have been all over the place. I upped my medication to highest dose under my psychiatrist advice. I felt better in a few weeks. A year later I thought I was doing fine and lowered my dose and I crashed, couldn't eat waves of aniexty , agitation, dizziness, insomnia ,derealization and night sweats the list goes on. My psychiatrist then put me on Seraquel at night which seemed to work, but I was getting up in the middle of the night eating like crazy and then couldn't get up in the morning. So I stopped taking the 25mg of Seraquel. Back to my psychiatrist I went and he told me that he thought it would be a good idea to change to another antidepressant, his chose was Cymbalta and he wanted me to tapper my Paxil in 5 days and 3 days with nothing then start with 30mg of Cymbalta for 1 week 60mg for two weeks then 90mg for 2 weeks. I crashed very bad into my 2nd week in Cymbalta and went to see my psychiatrist again, who told me its my aniexty and depression coming back, which now I know is bullsh*t. I think I was having withdrawals from the Paxil . I went to a new psychiatrist who told me it was Cymbalta that was doing it to me and tapered me off Cymbalta again in a week and started me at 50mg of Zoloft for 3 days 75mg 3 days and now 100mg as well as still taking my 50mg of Seraquel. I feel like I won't to come off all of this and I know my family and friends aren't going to support me, as they don't understand. I halved my dose of Seraquel to 25mg 4 nights ago and my waves of aniexty are getting worse . I would love meet people on this site who can help me out with this. I have two beautiful children that are my life and I just want to be normal again and I think I would be better if a gave my brain a chance to heal itself but I'm very scared.
  13. Hi all , I am 8 months off reinstated sertraline for a month ( by doc) and Aripropazole. History Its around 4 years back when i passed out my college and not get placed even after making to finals in many interviews .. that i decided to write competitive exam for PG. I had taken coaching but just before exam I came back and found myself unable to recall things. My brain is just like nothing in it. I found myself in despair and stopped studying. This fog is happening all the time since my engineering but I managed to get average marks sometimes and sometimes very good . There is more in back history but I ll get to it later. So, my parents took me to a psychiatrist ( family known) and he put me to Olanzapine and one more thing. He diganosed me bipolar2. I got about 10 pounds on it but its not help . Meanwhile after 4 months, with the help of a relative , I got intern in a company and I moved out with fog to a distant city. TThere in a hospital, they put me on floxetine and Amisulpride for 3 months . Then i moved to a private psychiatrist ... where it starts getting haywire . He stopped fluoxetine and Amisulpride . And put me on Venlafaxine and Seroquel... As i was interning, i get usual heat racing in between job times but my doctor convinced me to stay with it . 4 months and I just started feeling agitated due to stress. It happened that I slapped a senior on abusing me and there I left a job I never happened to get physical in my school or college .. but it happened. Doctor told me to scrap the prescription he wrote of raising Venlafaxine. And he put me paroxetine + Oxcarbazepine. In his words , it is best tolerable and has lesser side effects. I managed to get a job by my own and cracking first time. But this time there is lot of work and culture pressure. Its a startup with full of politics . Boss and his boss .. all keep on putting things. Let office aside, I started feeling some well .. overly casual ... excited .. raged .. Iits about 25 mg Paroxetine and 300/600 mg Oxcarbazepine. I had unusual violent acts .. had hit a school friend .. insomnia.. I decided to leave the paxil by asking the doctor . He said half in a week and then other half a week to off. Thats when it all started , i cannot sleep whole night and with day light i start getting a nap. I left going office with fear of state i was in . I cannot wake and even if I .. i was too tired and angry . Doctor then gave me Mirtazapine which didn't help . I resigned job telling muly boss about all and came back home. It was Nov,2015. I start getting yhese uncontrollable rage that I locked myself in a room. Parents took to a local shrink who put me on Venlafaxine+ Mirtazapine(CRF), lamotrigine, resperidal, Seroquel. The NEXT Day I woke up so fresh .. all calm like 12 yrs back .. i was smiling happy.. but it lasted only 4 hrs .. and i am doomed again . I took those meds 10 days and i decided to go off. Physical Damage. I got brain zaps as sounds with eye movement .. While on Paxil I got severe neck stiffness and movement pains - which came out as Osteophytes. Anger , heart race , memory, fog , chest pains , fatigue ... All I beared for 4 months. Reinstatement after 4 months. Father took me to another psych who put me on Sertraline+ Aripropazole+ Seroquel. I started having increases restless legs than before and the doctor asked me not to go over net. After 2 visits and when he said it wslas Aripropazole for restlessness all time.. and he is cutting it . I stopped all meds . Withdrawals in 8 months. All first symptoms with some new like utter sensitivity in teeth. It is while breathe in most of the teeth . Muscles gone from forearms .. My left hands gone ulnar neuropathy and i got surgery done when no hope lived. Right hand has stiffness too . MAnger I am living with .. I have stopped talking .. I have decided to go sit on my Shop but I was unable to understand the talk . In spite anger biuts and memory makes it difficult to adjust. I keep forgetting people faces .. important talks . So i stopped . Now I am muted all the time with burst inside . Read success stories and play CoC. This is the most I can write now.
  14. Hi, I just wanted to share my experience of this drug and what I am going through. I was put on seroxat at 18 due to messing with recreational drugs. I was fine on 20mg for the next 17 years living life to the max!!! However, due to the birth of my son i wanted to be drug free, and had not had any symptoms for 12 years! I went to the doctor and she said to come off it over a few weeks and I'd be fine. This was not the case, after 7 weeks post taper and about 3 weeks off totally I had a total nervous breakdown. Dr put me back on 20mg, this was 4 months ago. Since then my nervous system is in complete meltdown, im suffering RLS, hand tremmors, depression, anxiety. The Doc suggests trying higher dose of Paroxetine and / or Mirtazipine. Has anyone experienced this, what did you do? Word of advice do your own research and read Shipko, and Healys work on SSRI discontnuation syndrome before you decide to come off it, especially if you have been on it for many years! Don't make my mistake and just trust your Dr!
  15. Hi all - so so I tried to withdraw from 2.5 paxil while increasing my zoloft from 25 to 50. What a disaster! The 50 zoloft made me manic so I went back down to 25 but went off the 2.5 paxil in two weeks. Pure chaos ensued with crazy agitation and insomnia and practically convulsions! then I went down to 12.5 zoloft and after 5 days the crying began. Reinstated to 25 and feeling the reinstatement effects. Just wanted to connect with others!
  16. Hello, I will run through my history as quickly as possible. In my early 20s after having moved for probably the 15th to 20th time with my parents I was having a lot of stress and crying fits. I started on Prozac which I took for a year or two and then stopped taking it for a few months. Unfortunately I had anxiety after doing so and fearing a relapse (I didn't know this could be a withdrawal symptom) started on it again. I began to feel like my skin was numb and it wasn't working so I was switched to Paxil. The Paxil gave me the worst headaches if I didn't take it exactly on time and I ended up switching about a year ago to Lexapro. Lexapro made me very constipated and I felt my anxiety get far worse. The last few months I switched off the 20 mg of Lexapro to 20 mg Prozac. I've been back on just Prozac for 2 weeks. It wasn't hard during the switching process but my first period on just Prozac was extremely hard. I was crying for the last few days nearly 10 times a day and feeling very anxious. I did cave two days ago and took Xanax after panicking all day just to sleep. My goal is to not increase my Prozac dosage because I specifically went onto it so I might have an easier withdrawal. I plan to stick to this dosage for another few weeks and try to slowly withdraw. I'm having a lot of trouble even going outside or getting out of bed without panicking. I am not sure why it is like this now when Prozac was generally effective for me before.
  17. Hi everyone I was on Paxil 20mg for 19 years- most of which time it worked well (except for some weight gain and bloating). While studying at grad school I started taking Adderall for four years until it developed until a problem and managed to come off it inn July 2017. Went through the PAWs from that which lasted for a long time (and is maybe still ongoing). However, since I came off the Adderall, the Paxil appeared to have stopped working (either than or the PAWs from the Adderall was overriding its effects). So 5 months ago I decided to do the Prozac bridge to see if Prozac would work for me. I did a straight switch to Prozac 20 mg without any tapering and felt some withdrawals and also felt weird most likely from starting on the Prozac as well. While taking Prozac I have been up and down, with good weeks and bad. However, in the last two weeks I have had what seem suspiciously like the 'waves' I hear about on this site. I have felt the worst I have ever felt in my life and it seems very much like SSRI withdrawal to me (I've experienced withdrawals from Paxil several times before when I either ran out or tried to quit). This time symptoms include a sense of impending doom, nausea, tinnitus, hypersensitivity to stress, depression. It seems unusual to be suddenly hit with withdrawal symptoms 5 months after giving up Paxil and while still taking Prozac right? So my question is- is this some delayed withdrawal to the Paxil I stopped taking 5 months ago or is it some adverse reaction to the Prozac (even though I have had periods of feeling fine on it). I am leaning towards to the possibility of coming off the Prozac and reinstating the Paxil. Even though I was feeling pretty depressed when I was on Paxil last I didn't feel like this now where I basically feel like I'm losing my mind. Any recommendations on what I should do?
  18. Frankgrimes

    Frankgrimes: Paxil withdrawal and reinstatment

    For the past 16 years, I had been on a super random combination - 10mg lexapro and 150 Wellbutrin xl in the morning, 2.5 paxil and 25 Zoloft at night. For OCD and depression. I started getting breakthrough depression and my Dr. thought the Paxil was doing more harm than good and we should get me off that and increase the Zoloft. So we did - from 2.5 paxil to 1.25 and 25 zoloft to 50 zoloft. That night I had the most intense sex and it was unreal. Like I had never felt before. Then I fell asleep and woke up early and with energy. My pupils were huge though - I was high and I felt sexually like a 16 year old. I told my doc and a day or two later we dropped the Zoloft down to 37.5. What a productive week of work and gym and dating. The next week I couldn’t tolerate the increased Zoloft so we went down to 25 zoloft and he said sure go off the Paxil. So I went from 2.5 paxil to 1.25 to 0 in 2 weeks. And 25 to 50 to 37.5 to 25 zoloft in 2 weeks. This all happened between February 18 and March 4. On I believe Wednesday the 6th I called the dr. crying and he said to take 1.25 paxil cuz I was in withdrawal. Eventually I went back to 2.5 but the hell was done. I didn’t sleep. I would wake up screaming. I paced for hours straight. Advil PM every night. I went to a urologist and he gave me Levaquin and naproxen and said I had a prostate infection. I didn’t eat the next 10 days. I started having pains. My left left foot went numb. I had pins and needles. My left hand was numb. Pushups hurt my left elbow. Could the Levaquin have caused my pains? Was it the withdrawal? I don’t know. I think it was the withdrawal because now it comes and goes. I had electric shocks. Acupuncture was brutal - so much electricity. Paxil withdrawal - I need hope!! During this, one time after sex i felt an electric volt up and down my entire left side - the worst pain I have ever felt. My left hand was numb. My left foot was numb (my left leg still hurts). I thought I was floxed from the Levaquin. It’s still possible - everything hurt - joints, trigger points. But can be from the withdrawal. At one point my new doc tried to add deplin. It got me high. And then deplin with 12.5 zoloft. 5 days later horrible crying and pain on my left side and withdrawals. I had the chills again. Like the flu. That went away when I restarted the Zoloft. Now 3 months later - I am feeling withdrawal again (or startup effects). I have switched brands of generics thinking maybe that was the issue that caused the depression and I switched from generic lexapro to brand name. Since then I’ve been sweating profusely - first night i was waking up with the sweats. Now I’ll just start sweating like crazy anywhere. I don’t sleep and I can’t sit still. I have a new doc who wants me to take l-methylfolate and lamictal. He wants me off the SSRIs. ’m scared. I can’t take this much more. My doc said I’ll get better. He said I’m not on what I should be on based on my genetics. But I feel it’s too late to change now that I went through and felt withdrawal. Surprisingly I feel pretty good every day from 6 pm - 10 pm. But then sleep happens. Whenever I think about the stress and permanent damage my leg hurts. Please give me hope!!
  19. I was on a medication for depression,anxiety, and panic attacks for 2-3 yrs than I went off the med , but 2 yrs later I relapsed, than I started to take 30mg paxil. - On Paxil 30mg for 15 yrs than I tapered it off around aug 2013 went down to 20mg for 3 month than 10mg for 2 month than 5mg for 2 month than 5mg every other day for 1 month than 5mg every two day for 1 month than 5mg every there day for 1 month than 5mg every four day for 1 month than 5mg every five day for 1 month than 5mg every six day for 1 month than 5mg every 7 day for 1 month than 5mg every 8 day for 1 month July 30 2014- Went on vacation- I took a 3 day bus ride, then a wk later, i took an 3 day bus back. On the way back all I was very anxious and had very negative thoughts. I had a panic attack on the bus so I took a 5mg of paxil. When i get back home, it didnt go away and havent slept in days. Anxiety, despression panic attacks got worse. Went to go see family doctor, now i am back on paxil 20mg daily. Aug 10, 2014 - 5mg (on bus) Aug 11, 2014 - 10mg (at home) aug 12, 2014 - 20mg (after seeing dr) so here I am taking 20mg of paxil again daily. I think I tapered down to fast, because i didn't know better. -This is the second time I try tapper off Tapper off 20mg for 11 months went down to 10mg right now. when I was on 11mg I was ok but I just start the 10 mg 10 days ago April 25, 2016 Right now I having anxiety attack and depression. what Should I do. go back up to 20mg or Stay on 10 mg. I am doing this on my own I don't have a doctor and should I go see a psychologist or a doctor better. If you have any suggestions or advice, please feel free to post. thx
  20. Hello all, I was prescribed 40 mgs of paroxetine in 1997 for depression. It worked fine for six months, I was then advised by my doctor to come off it and I tapered as per instructions (reducing by 5 mgs a week) and I was fine until I was off the drug completely for six weeks, then I crashed. I felt so bad I went back on. The next time I came off I tapered more slowly, but with the same result, so I went back on again. Fast forward to Christmas 2017 when, stupidly, I reduced from 40 mgs to 20 mgs in one go and went through terrible withdrawal symptoms, but was able to go to work even though I was obviously ill. After reading the advice on this site I up-dosed slightly to 22.5 mgs using a pill crusher, and after a couple of months the withdrawal symptoms remitted. I stayed on the 22.5 mgs for 6 weeks and then reduced by 1mg, I waited 6 more weeks before reducing again by 1 mg. I continued with this schedule until I got to 18 mgs, then everything went haywire with the very worst withdrawal symptoms I have ever experienced. I immediately up-dosed to 20 mgs, hoping this would give me some relief. After 6 weeks I was getting continually worse with increasingly suicidal/self-harming impulses. In desperation I went up to 25 mgs for two weeks and then up to 30 mgs which I have now been on for seven weeks. I've currently been off work sick for nearly three months and I can only describe my symptoms as horrific, as well as ever changing, the worst being extreme agitation and twitching of the body, along with depression, and hyper-sensitivity to any noise, as well as fear of the future. Recently the Royal College of Psychiatrists in Britain has acknowledged SSRI withdrawal as a serious problem and I am contemplating asking for a referral to see a psychiatrist in order to at least to get my experience validated as none of my regular doctors seem to believe that what I am going through is protracted withdrawal. I would be interested to know if anyone has any advice as to what I should do?
  21. Greetings, I decided to join this group, because I'm having some issues, after getting off Paxil. I was on Paxil for 18 years, because of anxiety, panic attacks and depression. Started on 20mg/day, which was reduced to 10 mg/day, due to sexual dysfunction. After 18 years, I got sick of feeling like an unemotional zombie and decided to get off of Paxil for good, starting on my 57th birthday. I started tapering off in late September 2018 and was completely off Paxil, by late February 2019. I didn't experience any severe withdrawal symptoms, except for a 3 week period of insomnia, that popped up towards the end of the taper period. However, after 3 months of being off Paxil, I'm starting to have the following problems: Fits of rage that come out of the blue, brain fog, racing thoughts, periods of self loathing and a messed up sleep schedule, that is becoming difficult to correct. Sometimes, I feel anxiety as well, especially when out in public. There are times I feel my jaw inexplicably tighten up, for no reason, while driving, or when I'm shopping at a store. There have been several incidents, where I felt a panic attack come on, but I managed to calm myself down, by focusing on my breathing, or by splashing some cold water on my face. My self loathing is probably due to the fact, that I'm ashamed at myself for becoming a moody, angry and unmotivated man, who sometimes feels sorry for himself. I have always been a hard working, pro active individual, but now, my sullen mood swings, along with my uncontrollable bouts of rage and anxiety, has turned me into a withdrawn and complacent individual. This is not fair to my wife, nor my kids, who have noticed that my moods are often unpredictable. It's hard explaining to them exactly what's going inside my head, so I keep my issues to myself. I don't direct my rage towards them, thank God, but I have directed my anger at times, towards my two dogs, who mean the world to me. The only thing that helps me, when I feel this type of anger, is by working out on my Bowflex machine, riding my bike, or cranking some music. Sometimes it helps if I play my bass guitar, or work on my Triumph Spitfire in my garage. Doing a chore, or even praying helps me, because it gets my mind off the anger and disappointment that I feel. I'm confident that I can get my sleep schedule back in track. The fact that I worked nights, loading trucks for 26 years, during my 31 year career at UPS, probably has contributed to my messed up sleep schedule. What really worries me is the rage that comes out of the blue and the difficulty in getting motivated to do things around the house. I think my sleep problems are contributing to these issues. There are days that I can get a solid 6-7 hours of sleep straight, however, most times I'm only able to get 3 hours, which forces me to take a nap later in the afternoon. Perhaps this fragmented sleep pattern is causing my anger and anxiety issues, as well as fatigue, which makes it difficult for me to get motivated to do things during the day. I'm not interested in seeing a psychiatrist, because there's no way I want to go back on an antidepressant. It's nice to have my emotions finally back and I realized that there would be a price to pay to get them back. So, are my issues caused by my brain chemistry being altered by taking Paxil for 18 years? Am I suffering from low levels of both Serotonin and Dopamine? Could it be that my Cortisol level is out of whack too? Will my symptoms slowly fade over time? Are there any natural supplements, besides the L-Tyrosine that I'm taking, that can help me out? Thanks in advance for any advice coming my way. Your help is greatly appreciated!
  22. Washy

    Washy: Big mess

    Hello. Brief history, 20 years of paxil/seroxat use, 16 months ago i decided with my doctor i wanted to reduce and stop this medication. With his direction of reduction i went down from 30mg to 10mg in 5 months. Brief headaches was experienced during going down. Decided to hold at month 5 as some anxiety issues started. I was advised by my doctor to give my body a rest and hold on a therapeutic dose of 10mg for some time. Really symptoms held for a further 4 months, and was adout to start to reduce further when different symptoms appeared. Since then to today i've been in a slow spiral of worsening symptoms. Since due to research i know he took me off too fast and I'm now suffering for that. I've lost my job as my condition is deteriorating slowly. My doctor advised me to go back on my full dose about 3 months ago, i had my apprehension about his method as he led me to this condition in the first place. So i remained as i am. Maybe now i wish i had listen to him as i am in a pretty rough state. . Do i list my symptoms? I now do not know where to turn or what to do. Loosing hope personally. If anyone here can give me some advise please.
  23. I’m new here and am very happy to have found this resource. I have been on 20mg Paxil for 16 years. I failed at tapering about 8 years ago....did it the way my doctor suggested and crashed three months out. I am scared to stay on it forever, that it will poop out and I will be in a bad spot. So I got the liquid form and started, what I thought was, a slow taper. Also of note, is that the liquid is name brand and I always took generic. I made the mistake of cutting my dose by 25%...so a full dose would be 10ml, I took 7.5. I did this for a month and felt fine. Then I cut by another ml. A week after that, WD hit. I quickly upsized to 9 ml (a 10% cut of my original dose. Mostly nausea for the first 2 1/2 weeks, which was very distressing to me. Thankfully, that faded. Thst’s when the anxiety hit. It is worst in the mornings but sometimes persists in the evenings too. I’m 6 weeks out from the upside right now. I have waves and windows. I’m currently in a wave. Trying to accept where I’m at and what I feel. I worry that even a slow taper will be too hard for me. And I worry that I won’t stabilize at this dose. Thank you for any wisdom you can share with me.
  24. I'm wondering if anyone else has or had experienced worsing withdrawal symptoms when switching from Paxil CR and Liquid SOLELY to the Liquid Suspension? I have been tapering slowing Since January by the following: (1 Pill = 12.5 CR) Starting dose of 2 (12.5 CR'S) = 25 MG OF CR Jan 21st: 1 Pill + 10mg liquid (2 weeks) 2/4: 1 Pill + 9mg Lq (3 weeks) 2/25: 1 Pill + 8 mg lq (1 week) 3/4: 1 Pill + 6 mg lq (2 weeks) 3/18 1 Pill + 4 mg lq (2 weeks) 4/1 1 Pill + 3 mg lq (2 weeks) 4/14 1 Pill + 2 mg lq (2 weeks) 4/29 1Pill + 1 mg lq (16 days) 5/15 1 12.5 mg Pill ONLY (9 days) 5/24 12 mgs liquid (8 days) 6/1 11mg lq (12 days) 6/13 10 mg lq until today 7/10 I have a feeling that the liquid isnt nearly as....either effective or has as long a HALF LIFE as the company would have me believe. When I first started the taper I was taking the 1 pill and taking all the liquid at 9 pm at NIGHT. Within 16 hours of the night dose I was having bad symptoms until I took the next dose. This went on for a week. I then experimented by switching the timing of the liquid to the morning at 9 am. Withing 2 days the withdrawal syptoms had switched from the evening to the morning! What clearly was happening, was the liquid was NOT staying in my system anywhere near as long as the CR. After a week of suffering the withdrawl symptoms at the new time, my doctor suggested taking half the liquid dose every 12 hours, since it obviously had a SHORTER Half life than the CR Pill, since my syptoms corresponded to ALMOST EXACTLY 16 hours after the last Liquid dose. With 3 days of splitting the daily dose into every 12 hours the symptoms had mostly resolved. Everything was going ok (not perfect but much better than the horrible symptoms when only taking the liquid once daily) UNTIL I recently finally got below the level of the pill and am ONLY on the liquid. Since I switched to the liquid ONLY I have been taking it every 8 hours -or 3 times a day, but the worsening symptoms have returned. Not as bad as when I was only taking it every 12 hours, but worse when I still had the CR for the majority of the dose. I THINK THIS LIQUID IS CRAP. I've only dropped 2.5 mg's in almost 8 weeks and I'm having WORSE symptoms than when I was dropping a 1mg every 2 weeks no problem. (Again with the CR pill as most of my dose. ) Any ideas? I mean, the fact that I had horrible symptoms correspnding to 16 hours AFTER the liquid dose, regardless whether I was taking it at 9am or 9pm, tells me it has to have a much shorter half life than they are saying, expecially since once I started taking the liquid 5mg ever 12 hours instead of 10 all at once things cleared up within 48 hours. And now that all I have is the liquid, I'm worse even though I'm dropping at only half the speed of when I still had atleast 12.5 CR. And! I'm taking it EVERY 8 hours: 3 mg AM, 3 mg Afternoon, 4 MG Night. I notice the electrical shocks in my head close to the time I am scheduled for the next dose, as if it's only in my system about 6 hours at a time. Help![/size]
  25. I'm 45 years old. I have been on psychiatric drugs since I was 25. For years, 17, I was on Paxil 20mg and tegretol 200mg. I believed I tripped off my first depression after using ecstasy, which I think altered my brain's serotonin functioning. Four years ago I went to my gynecologist seeking help for worsening pms, as I believed perimenopause was coming into play. I failed to consult with my psychiatrist and trusted her. After a too-quick taper off of Paxil and onto Lexapro things just completely deteriorated. After 6 months I was a wreck, did another, even shorter, taper off of Lexapro back onto Paxil. But I was sunk...I think my central nervous system was wrecked. The ensuing year of onto and off of a variety of drugs was nothing short of a nightmare. Sparing all the details, I landed on the following drugs: Remeron 15mg Paxil 20mg Lamictal 125mg Pristiq 100mg Lithium 600mg Klonopin .5mg Trazodone 50mg It's criminal. A John's Hopkins psychiatrist specializing in women's hormone related mood issues said my gynecologist's cavalier actions verged on malpractice. A recent, and current, rash believe to be pityriasis rosea prompted my current psychiatrist to insist I stop Lamictal cold turkey. The dermatologist diagnosed it. He, without seeing the rash himself, is insistent. In light of what I feel is a damaged central nervous system I have decided to trust my dermatologist. That said, this situation has prompted me to consider the idea of eliminating the Lamictal. It's a start. I also believe Lamictal in some way tinkers with estrogen, something I'd like to avoid. It has been a hellish journey. I do not trust the psychiatric industry. I believe that how my case has been handled, so carelessly and without regard to actual true health, is shameful. I never, ever thought I'd be on multiple drugs like this. I am a high functioning, intelligent woman with a constitution sensitive to endocrine changes. I have been terrified of even considering touching any of this. While in the back of my mind wondering....what will happen to me after years of being on so many drugs? For the record, I have never been manic, ever. Lithium does function for me as an antidepressant. I understand that I'm somewhere on the spectrum, and because of long periods of happiness and wellbeing interrupted by 3 episodes of major depression, each with clear origins, I have been labeled bipolar2. I don't care much for labels. All I know is I'm on a serious amount of drugs. And I'm finally willing to find the courage to wrap up this bizarre ride. Lamictal first. Thanks for reading. Any encouragement or feedback gladly welcomed. Hope
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