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  1. First, excuse me for my English, I speak just French. I’m new on this group and would share my story. My story with shrink medications: It’s the most important rules, the golden rules if you want quit all this crap with minimal damage: stay on the original molecule and taper SLOWLY. I’m destroyed now because I have follow my Dr in this process: 1. Ten years on Tramadol and two years on Klonopin due to neurologic pain after a failed surgery. 2. Almost CT withdrawal of the two molecules , at this time I don’t know a clue about Ashton Manual and withdrawal, I trust my doc 3. Results: depression, anxiety, seizures, ...DR ad Olanzapine and Cymbalta (first time in my life that I take antipsychotic and AD) 4. Results: suicidal ideation, I inform my doc, he up the dosage of the AD! 5. Result: Suicide attempt two weeks later, cardiac and respiratory arrest , 2 weeks in intensive care at hospital 6. They give me Effexor, Pregabalin high dose (Lyrica ), Fentanyl, massive dose of benzos 7.Result: serotoninergic symptômes, they stop CT the fentanyl and Tramadol but ad Trazodone and sleeping pills 8. Results: psychosis, seizures, panic attacks, bowel obstruction and direct to ER! 9.Result: they cut CT the Effexor, Pregabalin, Trazodone and start with anSSRI (fluvoxamine), sleeping pills, Propranolol for tremors and heart rate, and start to cut the benzos but at a rythm of 25% each week. 10. Result: panic attacks, sweating, tremors, insomnia, suicidal tough, akhitisia, enable to eat (lost 30kg in 6 months), depersonalization, weak as hell! 11. Result: 10 weeks in detox clinic...they continue to cut the benzos but 50% each week!!! I talk with the Addicto in charge about Ashton and Breggin, about FB group... Never hearing this!!! 12. Result: back to home with SSRI but nothing else, BUT PAWS off hell: insomnia, dizziness, POTS, PSSD, PTSD, DEPRESSION, CNS AND GI SYSTEM DESTROYED, Anhedonia,SEIZURES, PANIC ATTACKS, ... 13. Result: my Dr stop the SSRI CT and reinstate pregabalin and another SSRI. 14.Result: more anxiety and insomnia. Dr CT the pregabalin: hell 15.Result, I change of Dr and search for a treatment with plant medicine Iboga, change my diet due to benzos belly and all damages due to AD and tapering the SSRI. 16. Go in a clinic for treatment with plant medicine Iboga / Ibogaine. Overnight no more PAWS, insomnia, pain, anxiety, ... was a life saver! Iboga reset all neurotransmitters, like if I was a baby born. 17. Return to home with no PAWS, no medication , but weak, tired and depression (My mistake is that I tapering to fast the Last SSRI, at this time I just want do die but my instinct say to me to microdosing with plant medecine Iboga or psilocybin...but was to down to follow my instinct) 18. Back to the shrink who give me SSRI ( insomnia, anxiety returns, give me Mirtazapine, but adverse effects, ad pregabalin and CT after 3 months, back on benzos too and ad Quétiapine into the cocktail...) I have two lovely kids and a wonderful wife, but I have lost everything: my job, my health, my family... because I’m just able too stay on the couch with horrible symptoms, kindling effect, and pain all day long, sometimes I can eat but the GI system is so painful and destroyed that I can’t assimile nutrients correctly. When I can sleep 2-3 hours it’s a very good night for me, but usually with a lot of nightmares and sweating... Today I have received by mail the decision of health services of my country: I’m considered as 100% invalid. IN CONCLUSION: FOR THE PEOPLE WHO WANT STOP SHRINK DRUGS: 1. SLOW TAPERING DON’T GO CT 2. STAY ONLY ON YOUR ORIGINAL MOLECULE 3. DON’T STOP MULTIPLE MOLECULE IN SAME TIME 4. DON’T FOLLOW IN ANY CASE THE DR ADVISE ABOUT TAPERING OR DIAGNOSIS DURING WITHDRAWAL 5.DON’T AD NEW DRUGS IN THE COURSE, NEVER! ONLY TIME, HEALTHY DIET, EXERCISE, SOME VITAMINS ARE THE KEY 6.GO **** YOURSELF ALL BIG PHARMA AND DOCTORS WHO WORK FOR THIS. MY SON, MY DAUGHTERS AND MY WIFE HAVE NOW A VEGETABLE IN PLACE OF A FATHER. THANK YOU VERY MUCH MOTHER****ERS! HOPE THERE IS A DIVINE JUSTICE AFTER... Good luck for everyone 🤞🤞🤞hope you will be better than me. ❤️❤️❤️
  2. I have been slowly reducing my quetiapine dose over the last 4 months and am now down to 50mg slow release at night. As yet I have had few withdrawal symptoms apart from since going on the slow release tablets my left eye has a continuous twitch, I decided to try taking the normal 2x25 mg and it seems to have helped with the twitching. Should I be alarmed at this or carry on taking the slow release tablets and put up with the twitching. I can’t get an appointment with my Dr due to COVID restrictions. Any help would be most appreciated. Thank you.
  3. Hey guys, I have to apologize for my english, hope you can understand me. This is my first post. I have been writing in a german forum, but I was hoping to get some more feedback about my specific situation here. So this is my story: In 2017, I suffered from some kind of delayed postpartal depression and anxiety (first time in my life), caused among other things by severe lack of sleep and hormonal changes. A colleague (I am (or better: I was) working in the health system myself) prescribed sertralin, which made me very agitated, I had trouble sleeping, palpitations, flushs, general anxiety, nervousness etc. He added quetiapine as an "augmentation" and I took up to 200mg of prolonged quetiapine. It helped at first, but after feeling weirder and weirder I decided that the pills were causing more problems instead of solving them. Also, I wasn't suffering from the primary condition anymore. After about half a year, I tapered sertraline, but quetiapine I quit within two weeks. Three month later, in 2018, I developed severe symptoms like constant heart racing, feelings of electricity, extreme panic, unability to sleep, muscle twitching... Finally I reinstated 75 mg of non-prolonged quetiapine and I was able to sleep again, but I never completely stabilized. Not knowing which problem was caused by medication and which by WD, I continued to taper. In summer of 2018, I went to a clinic where I received little doses of Insidon (TCA opipramol), which made anxiety slightly better. A few month later I felt that it worked paradoxically, so I tapered again. I didn't feel like myself at all from fall of 2018 and spring 2019, even though the anxiety got a lot better, muscle twitching was gone, but I still felt foggy, sleep was poor, I was able to care for my son, but could only work a little, poor concentration, poor memory, difficulty reading. I tried Trimipramin to help with sleep, but I got highly aroused, my body was almost convulsing. So in summer of 2019 I decided to put this to an end and I just quit what was left of quetiapine (12mg) and insidone (18mg) all at once. I didn't work at that time so I thought it would be a good moment. Three month later, problems began, but very slowly. First I gained some weight, was tired and irritated all the time, face was red and swollen, hormonal irregularities, but sleep was better than during the years of medication. Around 9 month later, my condition got worse and worse. Muscle twitching got very bad, electrical feelings came back, flushed face, anxiety (sometimes almost paranoid) and nervousness exploded, I produce a lot of adrenaline even when I am happy, shaking, dizziness, headaches, diarrhea, nausea, confusion, derealisation, weird body sensations, very sensitive towards lights and sounds, I can't tolerate objects that move in a certain way (like swings), blinking lights cause me to panic, the same with knocking sounds or cellphone sounds, even when I think about those things I get a wave of panic (which becomes obsessive from time to time, this scares me the most, I am really afraid this will stay with me my whole life). I had some relief compared to how I felt twelve weeks ago, but I am barely able to cope. Things seem to change, but not always for the better. So here are my questions: How is it possible that the symptoms developed so slowly after discontinuation? Has anyone else ever suffered from that severe symptoms after dropping such a small amount of anti-psychotics, or am I just becoming crazy? Should I reinstate, even if discontinuation was a year ago? Is it worth to persevere, or should I try another drug? Is it possible that the symptoms diminish anytime soon? I was really determined to hang on after all I have been trough, but I feel so tortured and I am so despaired at the moment. I don't want to sound dramatic, but it's a real struggle to survive every day and functioning as a mother becomes a huge challenge. The obsessive thoughts that cause panic are the worst. Thank you so much for any advice or support! Koralle
  4. Acsr Hi ! Thank for having me! Hi have a question for you since I’m don’t know what to do and nobody believes me . So, I was on Protheadene 75mg ( for 2 years) and still on 0,5 ( maxolazan-sedoxil) and 50 mg of quietipine. I was doing really well so I decided to win off my antidepressant, very slowly 7 months tapering, and my last dose was on 1st November. I got a flu in the beginning of March and since then I’ve been experiencing diarrhea, morning fast heart beats, depression and extreme fatigue during my periods and after. Was very gradual and this month is has been awful. I went to see a funcional doctor who says my adrenals are depleted, that I’m hypo, no magnesium ferritin and C. And my gut is a mess, Candida and disbiose. My progesterone little low. so this is where I need help : Is this withdrawal from the antidepressant? is this benzo tolerance ? Can I take progesterone since my symptoms get really bad during and after my periods? can I take aminoácids? can I take tyroid meds ? what do you think? I just don’t want to mess up . Thank you very much!
  5. Teppo125 Hi you all! This is my first post here, but I have been here and reading stuff for many months. Sorry for my poor english, but maybe you will understand. I had many adversities in 2018-2019 and I began to have panic attacks, chest pains and air hunger. I had all of these in 2012 as well, but I was checked and there was nothing wrong with me. The panic attacks and chest pains all got away in a few months. I went to the private doctor which we had because of our job. And he recommended for me to go to the psychologist. The psychologist said that he recommends me to seek psychotherapist, because of my illness. Well I didn't do anything and the panic attacks didn't go away. I had to call an ambulance two times and they took me to the ER both times because I thought I was going to die. I went to the psychologist again and I told him that I would like to get some medications started. He said that he doesn't recommend medication, because I would start to trust the medication and it could be hard to stop (Oh how right he was..). Well I didn't seek a psychotherapist, but I went to the public hospital, because I wanted the medication, because I thought it would help. I called the psychiatric nurse and after the first appointment she sent me to the doctor and mid july in 2019 I was prescribed Escitalopram (Lexapro I think in you're language) 10mg/day. First week 2,5mg. Second week 5mg. And then 10mg. After first week psychiatric nurse wanted to see me and asked how I was doing. I was doing better, but I started to have some mild suicidal thoughts. What I never had before. We didn't notice them at all. At second week the thoughts became louder. Then I lifted the dose to 10mg and after a few days it wasn't only thoughts, but also suicidal behavior. I couldn't think anything else, only that that I'm going to kill myself. I noticed that something was very very wrong. I thought that the same goes for me what my cousin did earlier in the year, because he was deeply depressed and committed suicide. I was diagnosed mild depression and I had those horrible thoughts. I called the nurse and I wanted too se her. At this point the nurse was changed to another person. The previous nurse was only temporary and the right nurse came back from vacation. She didn't know at all what had happened to me, and neither did I. I didn't know that this DRUG could cause this kind of stuff. Also I am pretty good at sleeping and with this drug I had major sleeping troubles. Then we lowered the dose to 5mg and it helped a lot. Thoughts were still there, but I continued eating them and continued my life. I played football and another sports in the summer, but the thoughts were still there all the time. After 8 weeks(I think) I recognize that when I watched a mirror, I became to hate my self. Then I decided to call the nurse and I told her that I want quit this medication, because I was not feeling good with this drug. She said that I'm now fearing the drug and she doesn't want that I quit the escitalopram. Well, after a long conversation she gave me permission to stop the drug and I could do it cold turkey, because such a low dose and I haven't ate it a long time. And you all know what happened then. But I didn't. I have never before ate any drugs. Only ibuprofen for hangovers some times. I quit the medication propably mid september and I feel pretty good. But after 1,5 - 2 weeks I was thrown behind the hell. And the hell last, it last enormously long time. After two weeks of quitting the drug my girlfriend told me to go privat psychotherapist, because I felt so awful. I though that I am insane that I have tilted some way 😃 (I can laugh sometimes now). The psychotherapist said that it is almost impossible that you are insane, because you are too old to become lunatic and it happens almost every time in 20's or earlier(I'm 30 years now). That helped a little bit. After 4 months of quitting CT, I went to psychiatric and told her what I was going throw. She said that the drug(withdrawal) couldn't be anymore the reason how I felt and prescribe me ketiapine (Qetiapin maybe in English?) for that enormous anxiety what I have. But she also said that just last year people and media are been talking about those side effects and withdrawal in Finland caused by antidepressants. I crashed. I didn't want to live anymore, because my life was awful hell. And it wasn't the withdrawal anymore. I took that ketiapin for month or two 12,5 mg or less for sleeping and anxiety and then I quit it, because I don't want eat any drugs anymore EVER. But somehow I find a group at Facebook. It was Finnish(I'm Finnish also)group about SSRI withdrawal and I noticed that maybe I'm not a lunatic. And then I found there also this site. I also went back to another psychotherapist after 5 months of cold turkey and she said that my biggest problem was the drug withdrawal. I wasn't insane because that couldn't be possible. Or it could be possible, but there should be some sings before if I was for example scitzofrenic or bibolar. I was happier than ever. I continued the therapy which is conditional behavioral psychotherapy. Now I'm almost 8 months free of the drug. I'm not fine, but I think that I survive this. This is not a success story yet, but I write that too then when I'm firmly on my feet. If anyone could help me somehow what I should do in this withdrawal please leave me a comment. Or is it only time what heels me?
  6. Hi there. Im new to this and am posting cause im worries that im never going to get better.... Had chronic headaches star from out of the blue c3.5 years ago and have had lots of drugs and every therapy, holistic, Physco treatment going. Now, headaches are less of a problem, still there 95% of time, but have anxiety, depression, anger, extra sensitivity to sounds and movement, disassociation, hopelessness etc. This has / is ruining my life, and I pray it will go back to normal - soon! For chronic headaches - amitriptyline - Started 10 Nov 2019 - 10mg up to 30mg. On that dose for 6 months, up until 10 days ago. Helped a bit with head pain, but bad and constant anxiety, depression, disassociation, (particularly awful). At the same time, for above symptoms, Escoltalpram 5mg - 10mg. Was on that from 1 Dec 2019 - mid Feb 2020 as it didn't help with anything. Since start March, on Sertoline (100mg) and Quetiapine 25mg daily). In the past I have been on Topirimate (had very bad side effects), Pregablin (helped a bit but stopped working) - all for chronic headaches. Ive decided, alongside a new psychiatrists (all of which i think are pretty useless tbh, im on my 4th), to stop the amitriptyline because i think its that which has increased any anxiety, moods and denationalization. Although its very difficult to know as all the symptoms and side effects are the same! Over the last 10 days, ive gone from 30mg, to 20mg, to 15mg and last night stopped altogether. I am now very worried about withdrawal, which seems to be all the same things i have already! So how is anyone supposed to get better, when no one can say whats what! I appreciate the complexities in all this. I think im looking for some advice if ive tappered off too quickly, what to expect and how long it might last. Also, if there is any hope of going back to "normal", how i spent the first 39 of 42 years! The only real time i feel sort of ok is when i drink a lot of alcohol - which i know isnt a great thing to be doing. any thoughts or comments welcomed. Rob
  7. Hello everyone. I'm CF. Been of psychiatric medication for 4 years, when I was a teen - due to depression and eating disorders. After switching many drugs, by August 2019 (discharged from last hospitalization) I was taking: 100*2mg Lamotrigine, 20*2mg Clotiapine, 25mg Promethazine, 400mg Seroquel XR, 60mg Mirtazapine. In the past: Lustal, Lorivan, Clonazepam & more I don't have documentation of. As of today, I take 100*2mg Lamictal, 400mg Seroquel XR and 45mg Mirtazapine. I am interested in lowering all of those, currently very interested in lowering Seroquel... I was never psychotic or manic. I was given Seroquel, Clotiapine and Promethazine because I was agitated and would self harm constantly. These medications did not change my situation; ECT improved my situation for a month, than went away. Therapy in last year helped a lot. -- My withdrawal history: - Prozac: 20mg (1y) -> 30mg (short) -> 60mg (1y) -> 30mg (1d) -> 0. Side effects: Unknown. Withdrawal: I had no adverse reaction at all, the day I lowered to 30mg I was given Remeron and started having tics. - Clotiapine: 10*3mg (?m) -> 20*3 (4d) -> 20*2 (6m) -> 20mg (2w) -> 0. Side effects: sleepiness (on 20*3). Withdrawal: No symptoms, more energy. - Promethazine: 25mg (6m) -> 0. Side effects: helped with allergies. Withdrawal: no symptoms, allergies still way better than before Promethazine😉 - Lamotrigine: 100mg (?) -> 100*2mg (3m) -> tampering to 0 in 2-3 weeks -> 100*mg (1.6y) Side effects: dry mouth. Withdrawal: Can not recall due to ECT treatment. I believe there were none but not 100% sure. - Mirtazapine: 45mg (1d) -> 60mg (10m) -> 45 (1m). Side effects: 60mg: tics (2h after administration, went away by next morning), sleepiness. The first day I was given Remeron I had tics and couldn't sleep, until I was given a sedative. Became better in the next week. 45mg: sleepiness. Withdrawal: Went from 60mg to 45mg in 1 day. Immediately stopped getting tics, sleep about 1.5h less than on 60mg (7.5h/night now). - Seroquel/Seroquel XR: 20mg (?) - 200mgXR + 20mg (?) -> 300mgXR (2y) -> 400mgXR (2y). Side effects: major weight gain, sleepiness. Withdrawal: not exactly withdrawal, but when I skip a night I have insomnia (2-3h sleep max), and when I skipped two doses - next day was almost normal (5-6h) with no side effects. Slightly sensitive/agitated on day 1 (lack of sleep?). I stopped taking Promethazine and Clotiapine in October-December 2019, Mirtazapine 60->45mg - since March 2020. These are the ones I can remember. I was given other medication before but I can not recall anything. -- My current situation is, my Psychiatrist refuses to let me try and reduce Seroquel XR because of COVID situation. I take XR is cutting it myself is not an option. Don't know what to do, I want to stop taking it, more time = worse withdrawal. I stopped taking 60mg Prozac with no issues (SERT, NET inhibition), Entumine (can not find mechanism of action), Promethazine (D2 and H1). I never had any issues with using brand VS generic. -- I interchangeably use: Lamictal & Lamotrigine; Clotiapine & Entumin/Etumin; Mirtazapine & Remeron.
  8. Hello everyone, I would be grateful for some advice about which one of these drugs to taper from first. I am currently tapering the Quetiapine after a crisis last year when my dose was put up. My current medication: Escitalopram (Lexepro) 15mg - been on this for 10 years Quetiapine - 300mg - been on this for about 4 years Pregabline - 150mg - been on this for 3 months (and once in 2015 for about 6 months. I have been on Escitalopram for 10 years. At that time, I was also given Mertazapine 30mg which I was easily able to withdraw from quite quickly. I continued on the Escitalopram alone until 2013 when I felt brave enough to try and taper. I spent about 6 months doing this (but now realize that I was tapering much too quickly). I cleaned up my diet and self-care, took supplements and didn't experience any withdrawal symptoms. 2-3 months later, I woke up one day in extreme panic with the most intense physical sensations. A few months living with this constantly, I was suicidal and in crisis. I immediately went back on the Escitalopram.To cut a long story short, I was put on lots of different drugs again (on top of the Escitalopram) for 'treatment resistant depression' - Mertazapine, Lithium. Nothing helped, I became homeless and suicidal. After some time, I began taking Quetiapine 200mg and 150mg of Pregablin on top of the Escitalopram 15mg. In 2015 stabilised but don't believe it was because of the drugs. I came off the Pregabln using the liquid medication and didn't have any withdrawal symptoms. I was completely stable for about 4 years on this combination of drugs but hated the side effects of the Quetiapine - mainly weight gain and the disruption to my social life and it's extreme sedation. However in September 2019, completely out of the blue, with no triggers, again I woke up in extreme terror wit the same physical sensations which led me into suicidal crisis again and was hospitalised briefly. I didn't want to adjust my medication because I really didn't believe it was doing anything. If it was, how could this happen to me again? After a few months, I was so desperate, I sought out psychiatric input and my Quetiapine dose was put up to 450mg (50mg in the morning, 400mg at night). I have since stablized and have begun to reduce my Quetiapine dose. I have been reducing 25mg every week and am now on 300mg. Questions: In the last few years, I didn't have the courage to taper down from the 200mg of Quetiapine I was on for 4 years. Should I keep going on the taper I'm on now and try to get off it completely? My previous withdrawal from Pregablin in 2015 was easy. Should I start with this? When I withdrew from the Escitalopram in 2013 and had severe symptoms 2-3 months later, the psychiatrist said that this was the underlying illness recurring. I'm not sure this is true as I had no obvious triggers, no extra stress in my life. The drug i would most like to be free from is the Quetiapine. Thank you for any input.
  9. Hi, I am surfing this forum for over 2 years now. I took Mirtazapine in septembre 2017 prescribed by psychiatrist 15mg for 5 days and stopped because I felt "off", very dizzy & personality changes. Developed severe problems just after stopping. Could not talk on day 1, words would not come... 3 weeks later sleep was gone... so I sporadically took 7,5mg sometimes. Anyways... in Octobre I got into Psychiatry and Neurology to check out if I got some serious illnesss because I did not understand what was happening & could not connect it with the meds, thought they are totally benign. I got quetiapine & took it with low dose mirtazapine & developed dystonia & akathisia & stopped sleeping but still did not know what was happening so I CTed. After that I had 20 days no sleep, akathisia & all withdrawal/adverse symptoms imaginable. I could not relax or drift of to bed no matter what. This changed after 20 days I slept but it was toxic sleep.. like not the normal one I am used to... it was more like I slept because my brain couldn't manage it any longer. I still woke up with cortisol flashes every morning & akathisia. So I got on klonopin 1mg and life was somewhat ok... i tapered down to 0.5mg 3 months later and thought this will all go away soon, except that it didn't. ---- I complained of worsening vision, hearing, weakened perception of bodily sensations.... I feel like my body is still going through severe adverse/withdrawal reactions 25 months later... I feel like I sleep but I actually don't because since this started I feel like I am on cumulative sleep deprivation even though I sleep.... My body could manage cortisol spikes for a good year but then it got more and more derealized so I upped & upped the dose of klonopin till 8mg... I have no idea what to do now... my problem is that I feel like I haven't slept for a year or so.... even though I sleep because my symptoms are super super weird derealization. I feel like my mental space has gotten less and less for the last 2 years... Like if there is loud noise somewhere I can not talk because it takes over my brain... I have physically difficulty talking because it takes much more mental space to form sentences.... I feel like I am a complete outlier here because I can't idenfity myself with anybody who has symptoms like me. I am 27 and I just feel completely asleep while awake but not in a fun way anymore as I did in the first year. My vision & hearing are so completely off that I have serious difficulty percieving watching at my phone or something.... When I look into a room I literally feel like I am not processing enough... I wonder whether I should take some antipsychotics or antidepressants again because I literally feel completely hopeless, it's been too long already and I fear losing everything.... I can't continue living like this.
  10. Hello here is a short summary of my symptoms and story: May 2019 Started fainting and feeling dizzy with neck pain July 2019 Collapse and spams in my neck weird twitching, started investigating. Two MRIs two short EEGS only minor finds. No epilepsy. Sept 2019 Sometime in the first week. 2 day EEG, this is where everything went wrong. Awoke a sleep myclonus strongly after first night with panic attacks. Didnt sleep for 3-4 days after. Collapsed. September 2019:Lorazempam given IV 4mg, for colapse and seizure like spams. Started panic attacks the same day later in the evening. Oxazempam started 15mg, 7,5 mg twice daily with quick taper quit after one week. Didnt return to normal sleep. A few days later. Quentiapine 50mg 2x daily for about 2 weeks. Then lessened once daily started breaking sleep again felt bad myclonus returned heavy. Quit after about 5 weeks. CT no nurse or doctor said to taper. A few days later still no sleep Mirtzapine was given 15mg once a day. Felt better slept again was ok for about two weeks. Third week started feeling sick, restless, sleep broke Myclonus returned.(day 26 of meds) 6 days of almost no sleep what so ever went to ER. Doctor wanted to increase dose to 30mg mirtzapine + 100mg quentiapine, I feel i was showing sertonin syndrome. I refused. I was saved by a psyc. nurse who told me to lower my dose to mirtzapine 7.5mg once a day. Felt better immediately next day. Continued 1 week slowly lost sleep again so quit CT. Felt great for about 9 days. Withdrawl hit. Sleep disappeared, tried to slowly get back to sleep with infrequent zyrtec 10mg tablet, tried once dose of 5mg then 2,5mg a few days after stressed about heartbeat. Sleep slowly returned. Felt sick on Dec 17th woke up all night abdomen hurt couldnt pee, Seeked doctor help, urinary blockage minor and infection in uterus. December 20th couldnt sleep still, Myclonus returned. Talked with Doctor in ER and psych nurse given one dose oxazempam 1/4 tablet (3,75mg) wanted to try clonazepam, suppliments started. 150mg magnesium, 10ug d3, 1 mg b12 once daily. Clonazepam 0,25mg started in evening, felt drowsy passed out not breathing well, husband startled me awake into breathing after he paniced. Was extremely restless and aggitated after so much so went to cold shower to calm down then fell asleep a little later. Took a break for two and half days still slept without meds, Then started lower dose 0,125mg once in morning ok Two and half days later lower dose 0,06mg once in evening ok Two days later same dose 0,06mg once in evening ok Myclonus returning lightly 4 day break, myclonus returns heavy. Reinstated 2.1 0,125mg Didnt feeling good was aggitated and restless. got some sleep but poor. 3.1 0.06mg was hoping to feel less aggitated I did but still some, slept very little. Myclonus returned at 5 am. 4.1
  11. Hello I am 27 years old and was diagnosed with anxiety/ thought disorder when i was 21 they gave me Paxil and quetinepine. I took myself off at one point but had a relapse the. Had to go back on. I don’t want to take this medication anymore . I have lost weight i don’t feel like myself. Sometimes not happy and sleeplessness then lately i have been having headache not sure if it’s stress or the medicine. Then sometimes i think people are talking about me. Like people will be in another room and they are really taking but i hear them saying all she wants is money but i know they are not talking about me . Then one day i thought i heard the person on the tv say all she wants is money but i know the people on the tv not talking about me. I know i am not crazy but it’s very frustrating because my mom is the only person i can talk to but i want to find natural ways to get over this and off this medication so i can feel like myself again. Any help or suggestions is welcomed
  12. Dear reader, after taking Prozac (40mg) for almost 15 years I started my (maybe) fourth trial to taper...on 5mg crash came and I fell into a horrible condition I never felt before (infernal ruminating, anxiety, obsessive thoughts, irrational thoughts and feelings, paralysed, deper- and derealization, mood swings and a lot of further weird and agonizing symptoms - my life came to stop)...reinstating the drug does not help as before...only a new medication with quetiapine (200mg) brought a little relief. Since the acute phasis in last September 18 -January 19 a wave and window pattern start with overall only 4-8 days with feeling almost normal in 2019. Now I am back in a terrible wave, started with anhedonia, very bad indescridable feelings like deepest depression, like almost dead and weird thoughts, acompanied by deper- and derealization. So, I really don´t now what to do - I am on 23mg Prozac and 187,5mg Quetiapine and feel very very bad. Looking back throug 2019 makes me feel very hopeless...I don´t think that I can stand another year like this. Can you give me an advice how to handle the situation? Maybe I need to taper the Prozac after its poopout... to help my nervous system heal? Maybe prozac is actually inhibit a healing after poopout...? I am lost... I will be very glad for every little advice... Thanks for reading an excuse my low english skills... All the Best, Mary
  13. I had the first manic and psychotic break at 2006, I was 28, mother of a small child. I was admitted to the ER and given a high dose of olanzapine and mood stabilizer, sleeping pills. I don't even remember those first few days, I was locked in a psych ward without any visit from a psychiatrist for 3 weeks. Then I begged to go home (still psychotic but they didn't know) and they let me go home, where I continued the treatment, although I was feeling really unwell, desperate even. With time I got better, then went to a private psychiatrist that put me on quietapine and a mood stabilizer. I took the meds 2 years, struggling to lead a normal life. My brain wasn't functioning well, I felt incapacitated. I managed to find a job but I wasn't happy there to put it mildly and even though I was taking the meds I ended up manic and psychotic again, I divorced my husband, the police went to get me at work to take me to the hospital... This time they didn't commit me and I ended up taking arpiprazol, sleeping pills, and maybe a mood stabilizer. I lost the job, went into depression, but I found the doctor that still is my doctor today. He took me off aripriprazol when he could and I started taking lamotrigine. I never sought a job again because I felt humilliated by the whole situation, I eventually got together with my husband because our separation was all due to my mental health problems at the time. I stayed home with a lot of trauma and low self-esteem for 5 years but with no symptoms. My husband gor me a part time job in his company and that's what I do now. But in 2015 my doctor went to another hospital and I got a new one. I didn't dislike her, I had a crisis that year and after depression. I was put on olanzapine and sleeping pills, and when the olanzapine was over the sleeping pills remained so my brain got addicted to them. She gave me an antidepressant that got me manic and I was miserable, I decided to take matters in my own hands. I quit the antidepressants and the sleeping pills, changed my diet, started exercising (I was fat from the drugs) and lost 15kg while trying to control my mania with olanzapine but I didn't take enough and had another crisis, this was 2017. I was committed and took a huge dose of olanzapine and all the other meds again, the doctor told me that medication was for life and I nodded. As soon as I got out of the hospital sought out my actual psychiatrist that followed me in 2009. I said I wanted the least ammount of meds possible. I started making a very detailed diary of meds and symptoms and slowly got off of everything but olanzapine. He thought I should take preventively 5mg everyday but that dose makes me less human, so I went down to 2.5mg and he was very pleased with how I functioned although I was in a bad depression. In last May the depression finally lifted and I started exercising more and lost 10kg that meanwhile I had got from olanzapine. This winter I'm reducing even more olanzapine, my plan is to wean it off and try another antipsychotic in the spring doesn't mess with my sleep. I'm sleeping badly and having anxiety but I don't want this med anymore, or at least not take it everyday. It's a long story, I started trusting the doctors and doing everything they said but today I'm way more critical. Everyone is surprised when I say the little I take. My seasonality is also something peculiar, I don't get manic or psychotic in autumn of winter so I'm weaning off now. I'll get there eventually, wish me luck.
  14. Hi all, first post on here... trying to balance providing enough detail without writing an essay. I asked for mirtazapine in July to help with sleep (I've been dealing with lots of prolonged, chronic stress in my life and it looks like I’ll soon be relocating for a new job after 2 years of unemployment). I took 15mg for a few weeks, but it was too much chemically (I already take 50mg quetiapine at night), so I dropped to 7.5mg Mirt, however, it's been affecting my memory (both meds target histamine receptors at low doses). I dropped to a 1/4 tablet a week last Monday and felt more energy, more emotionally in touch, improved sexual function but also very adrenalized. To complicate things further, I have strong anxiety around concussions/head trauma after experiencing post-concussion syndrome in 2015 and last Saturday, my headphones were playing up - I thoughtlessly gave them a quick slap while they were on my head. My anxiety exploded as I am very nervous about bumping/banging my head. I've felt worse this week - the main symptoms I've had have been irritability, anger and adrenaline rushes - these have much reduced. Wednesday was hell as I had dental work. I have fear of dentists anyway, but my cortisol was through the roof that afternoon. I remember hating humanity when my mouth was full of needles/dentist's drills - I've never experienced such as strong reaction in that situation before. Neuro-emotions? I'm now mainly mentally tired, feeling a bit depersonalised/detached with intermittent mild headache. Part of me is saying I'm experiencing brain-injury after effects of slapping my headphones, while the rational part is aware I started feeling very anxious/adrenalized before last weekend. I'm fairly sure this is all due to the 50% jump down from 7.5mg to 3.75, however, today I found myself stuttering when talking to a stranger, which did my brain injury fears no favour. Given that I've got a big move and new job coming up in 5-6 weeks - I don't have the luxury of time to ride out these symptoms and certainly don't want to attempt that feeling like I am now. The logical thing to do would be to re-instate 7.5mg and maybe try again in a few months at a much slower taper... It's just that 7.5mg Mirt + 50mg Quetiapine was turning me into a chemically-induced idiot with the memory of an 80 year-old, which is not a good look when starting a job that requires brain power. Any advice on what I've experienced and the best next steps?
  15. I suffered a breakdown a year ago and was suffering from severe panic and anxiety. I was put on 100mg Sertraline for 9 weeks which didn't work. C/T from that. After 6 weeks of Sertraline, Quitiapine 50mg was added which helped me sleep but not much more. C/T after 5 weeks. Never really understood the importance to taper. After 4 weeks off medication back in hole so back to dr and put on Mertrazapine 15mg, seemed to work at first then stopped and after 5 weeks ended up in hospital with akathisia - taken off C/T. Then put on 2mg Lorazepam a day to deal with the akathisia. Kept on for 6 weeks then started a taper over 12 weeks which i thought was long enough but ended up in a really bad way. Reinstated 1mg Lorazepam and placed on Amitriptyline 75mg. Amitriptyline helped me sleep but after 12 weeks has not helped the anxiety and depression. I ended up in a bad way again and went to a new psychiatrist. I know that I have anxiety and depression that existed before I was put on any medication but none of the medications have helped so far. I was not educated on what a benzo can do or that antidepressants should be tapered. I was not on anything that long! I have now read a lot on line including benzo tapering sites and realise everything needs to be done slowly. My new psychiatrist has gradually put me on 10mg escitroplam - I started at 1mg and have been working up slowly over the last 3 weeks. I have slowly tapered down my lorazepam to 0.2mg per day. I am also still on 75mg amitriptyline. My psychiatrist has told me to keep these both stable until I have been on Escitroplam for a few weeks at 10mg. It is so difficult to do as i am desperate to reduce both but understand one thing at a time. I am happy to be on the escitroplam and see if It does give me some relief but want off the other 2. I will listen to my doctor but would also like to hear feedback from others as to whether I should come off the benzo first - I am so low. Or hold that while i come off the amitriptyline slowly. Also how fast can I come off the amitriptyline given that i am on a new antidepressant and have only been on it 12 weeks. So many questions. Thanks
  16. Amanda167

    Amanda167

    Hi. I've been on Paxil for 22 years with a few unsuccessful WDs in the past. I finally learnt that I was going way to fast so began during the 10% method from 15mg, everything was going well until I got to 7mg. I noticed that my last few prescriptions, I was constantly given a different generic and im sure my severe reaction was not only WD, but from being given yet another generic that I'd never has in the past ( paroxetine made by Milamed) as it coincides with the start of my severe WDs that started at the beginning of Feb 2019, I tried desperately to ride the storm but it got so severe with an endless list of symptoms that left me bedridden and had to give up work. 3 months of insomnia, anxiety, intrusive thoughts, panic, severe chest discomfort, etc left me wanting to end my life and I was taken to ER 3 times, they wanted to admit me to the psyche ward and I refused so each time, I went back home. From the 14th of May, 3 new meds were added.... Zoplicone.. to which I was grateful because i hadnt slept in months so have been taking half 375mg since. Quietiapine 25mg... to which I took for 5 days, then got scared and started tapering down and now on 8mg. Valium... I've been taking anything from 0.50mg daily to 4mg daily to try and take off the edge but obviously hasn't done much as mainly only taken 1 to 2mg on average for the past 4 weeks and now trying to taper that as to scared to just stop. On 1.3mg and trying not to keep switching doses. The only reason I kept switching as I never intended them to be permanent so wasn't paying much attention. As you can probably guess, I'm extremely cautious and trying so desperately not to rely on other meds and have a strong hate to big pharma. To add more confusion to what was once only 10 to 15mg of Paxil daily, I now have 3 other meds in the mix. And now it gets complicated... After hitting severe WD on the generic paroxetine from the 8th of Feb 2019, I updosed as follows... 29th April 19.... updosed to 8.5mg 07th May 19.... updosed to 9.5mg 14th May 19.... updosed to 10.4mg 29th May 19.... switched from generic brand to GSK Seroxat Paxil and stayed at 10.4mg and holding. The reason for my switch was because I had to decide on one brand and stick to it after finding out that generics can vary and I was so mad that my pharmacist kept giving me different generics. I strongly believe that the last one was bad and aided massively to my severe WD. Well, since switching to the GSK Seroxat Paxil, a new kind of hell broke lose, it felt so much stronger my head felt it was going to explode. It has been absolutely horrendous and I'm struggling to hold on and to make things more complicated, I don't know if the added meds are making things even worse. I'm so desperate to reach some stability and now know that messing with the other doses have probably not helped at all but was so desperate not to rely on other poisons. I don't know what to do to make things better, it's been a month since updosing but only 2 weeks on the GSK paxil and it's not working. Please can someone advise me??? Help me??? I feel like I've had an adverse reaction and being given more meds on a sensitized nervous system only complicated matters further... so desperate to know a way out. I would of given up if I didn't have an amazing 14 year old Son. I'm so sorry for the complication of my story and would truly appreciate if someone can offer some advise. I so wish I'd just held but I was so so desperate. Thank you so much for reading, I appreciate that others are going through hell too and it's such a lonely frustrating painful journey x
  17. Hello everyone, I took my first anti-depressant at 21. I am now 43. In the years in between, I have had multiple psychiatric admissions, taken many many different medications, some at high doses, some inappropriate for my diagnosis, and for long periods of time, and had 8 sessions of electroconvulsive therapy (ECT). I am posting here now because I believe I may be experiencing a withdrawal/discontinuation syndrome. My life has been razed to the ground and I am reaching out, to foster hope, make connection, and see if I can educate and empower myself and find guidance and support to get into healing and recovery. My difficulties began 9 years ago. The only drug I was taking at the time was Citalopram, and I was reducing it. The first thing I noticed was increased sensitivity to sound (e.g. hearing the radiators throughout the house I was staying in). I was working as a counsellor at the time, and I began to have feelings of falling through my chair when working with clients, a sensation of falling downwards and backwards suddenly. I then started to feel strange in the car, as if something toxic was coming through the ventilation system, leading me to feel a bit like I wasn't fully there; slightly afraid I would pass out (I never have) or "disappear". I would pinch my cheeks to try and "come back". I couldn't understand it. For 18 months, I followed the initial thinking from my GP, that I had labyrinthitis, and had various auditory system tests. This revealed nothing. I then went to the London Balance and Hearing Centre and had a thorough check there. They found nothing wrong and said that 40 % of people presenting there they referred on to psychiatry. By this stage, I had stopped driving, stopped working, had considerable difficulties walking - I walked using 2 sticks, and continued to have extreme sensitivity to sound (found the sound of the dishwasher on the floor below almost unbearable). The psychiatrist diagnosed "total serotonin depletion of the vestibular nucleus" with utter conviction (no sample/scan of anything has ever been taken by a psychiatrist in 22 years of treatment), and admitted me urgently to hospital. I was not depressed at the time. I was bombarded with medications. 3 weeks later, I went into depression, but the somatic symptoms I had been admitted for continued. More and more medications were administered. Eventually, I discharged myself and went to another psychiatric hospital. They were shocked at the levels of medication I was on (this was 2013) and proceeded to reduce and change the drugs. I left this hospital in 2014 but my somatic symptoms persisted (difficulty walking, unable to tolerate the sound of the fridges in the supermarket, clinging on to the shelves, tremors in my legs, unable to stand in line....). By this time, I had a diagnosis of Complex Post Traumatic Stress Disorder (CPTSD) - which I identify with to this day. This was September 2015. Because, despite high levels of medication, the symptoms were still present and limiting my functionality (e.g. unable to tolerate short attending a short evening course on social media at my gardening group: I couldn’t cope with looking at the screen, sitting on a chair without sides, or the sounds – and had to leave), I decided to change tack and try a different approach. That was when I sought out a trauma therapist and a more holistic path. At this time I was on Quetiapine (250mg at night, 50mg breakfast and 50mg lunchtime), 3g L-Tryptophan, 15mg Diazepam, 60mg Citalopram. Over the course of 3 years, I brought myself down off the meds in a very measured way, one at a time, titrating at what I thought was a slow pace. I managed to come off the Quetiapine, L-Tryptophan and Diazepam. I continued to experience severe somatic symptoms but could walk about a little, go into a bookshop briefly - not able to work or go out for a meal, or the cinema or anything like that. When I began reducing the Citalopram, my symptoms became seriously bad. They emerged approx. 2 – 3 months after reductions e.g. 60 > 50 > 40 beginning May 2017, resulted in severe, disabling symptoms by August: severe tremors, terrifying hyperarousal, unable to tolerate sounds at all, using alcohol when necessary literally to be able to tolerate them or walk when necessary. I made another reduction 40 > 35 > 30 > 25 > 20 from December to April 2018, at which point I became housebound and called the paramedics as I was experiencing states of terror, feeling as if I was about to die, unable to regulate my nervous system at all. I now know, how terribly and tragically misguided my reduction pacing was. I wish I could turn the clocks back. But I can't. Hence my presence here, and prayers that there is still hope that I might recover my health. The emergency services suggested I increase the Citalopram back up to 30mg, which I did - and then up to 35mg, 3 weeks later. By this stage, I was housebound, having violent seizure patterning (not seizures - I never lose consciousness), unable to tolerate the sound of using a telephone, unable to stand to wash up or make food. My therapist began visiting me in my home. At the time, she and I had been understanding what was happening as partly being a releasing of the trapped energy of the trauma of the ECT which I had when I was 29. Indeed, the seizure patterning/muscle spasms look very like this. And my therapist described what she believed was going on in Somatic Experiencing language of "overcoupling": effects of psychological trauma/stress from earlier life + ECT shock trauma + long term use of meds.....all contributing to a dysregulated nervous system. I still believe this to be the case. However, very sadly, my therapist reached the point where she felt unable to continue to support me and pointed me back towards psychiatry. This was utterly devastating to me. I had derived considerable strength and hope from believing I understood what was happening in my body, that I had agency over its process, and was resourced and motivated by this. Being advised that all that was left was to go back to psychiatry, felt like the final straw. I went into severe, suicidal depression. Since then, I have seen several more psychiatrists, 2 neurologists, one neuropsychiatrist. None of them acknowledge that there is any possibility that psychiatric medications are implicated in my somatic symptoms. They put them under "medically unexplained" or "functional neurological disorder". I had 5 weeks in another psychiatric hospital in December 2018 which was largely pointless as I could not bring myself to take further medications, except for the introduction of one, Pregabalin, but at a low dose (because I was looking ahead to having to withdraw off this too eventually, and cautious accordingly.) I am now staying with my parents, in Luxembourg because I am unable to manage on my own in my own home without carers. I am at the lowest point of my life. The depression is severe but largely "reactive", ie an understandable response to losing my world - my work, my community, my functionality and all that that now deprives me of. I am just surviving at the moment. I hope I can find a way ahead. I am new to this website. I wonder how I might best use it to seek support and guidance? I will list the medications I am currently taking: Citalopram 40mg Pregabalin 50mg @ 09.00, 25 mg @ 13.00, 25mg @ 22.00 Diazepam 2mg @ 09.00, 25mg @ 13.00, 25mg @ 19.00, 25 mg @ 22.00 Zopiclone 3.75mg: began tapering under advice of GP 10 days ago, reducing by 1/4 = cutting the pill in half and half again and taking 3/4. He suggested I taper by 1/4 every 2-3 weeks. I feel trapped in a Catch22: I am unable to function in the world as I am. My symptoms are prohibitive of most activities and restrict where I can be, even within my parents' home, as my sensitivity to sound is so great and I am unable to be standing for very long due to the tremors. I am due to see the GP again tomorrow to ask his advice. I do not have a psychiatrist here. I am not keen to see yet another psychiatrist unless this person understands the fight/flight/freeze response, believes in withdrawal syndromes and tapering. My despair lies in the fact that I am sadly not in a position to be tapering really until I have adequate functionality restored. But I don't know how to restore that, how to address the tremoring and sensitivity to sound. The advice I have had from psychiatrists is to increase the dose of Pregabalin to quell the tremors. I am currently on a sub-therapeutic dose. I am reluctant to do this as this will be yet another drug to come off (which holds risks of seizures through withdrawal). Does anybody here have anything they could suggest to help? I am only just beginning to try to understand what the effects might be, on my nervous system, of extensive use of the drugs I have been on in the past, and am currently on. In particular, Quetiapine (I was on 800mg in 2005 and reduced over a couple of years - I never had any psychosis; and again 2013 - 2016 at 300mg), Diazepam (30mg in 2013, now 8mg) and Citalopram (60 for many years, now 40mg). I don't know if everything my body is manifesting is an expression of a depletion of receptors throughout my body? I am doing an online course on the nervous system and understand the intricacy of it, and how every cell in our bodies is affected by nervous system dysregulation. What is the next step? How do I address the somatic symptoms, in particular sensitivity to sound and to gravity: my sympathetic nervous system is "turned up way too high" in response to my standing up = tremors How/where can I find a clinician to guide me? I am due to see a Functional Medicine practitioner next Thursday with a view to try trying to do something myself to help heal my system. Any thoughts on this? I am also acutely aware that my life situation is such that I feel insecure and at sea. So, I need to find a way to create a secure base for myself, professionals I trust, decide which country to live in to do this (I will probably be unable to live alone until/unless I can heal this)..... I understand now that my nervous system is picking up cues about safety all the time. And if my life situation is unstable, it will keep going into fight/flight/freeze in reaction to that too. So, I need to also do some internal work on finding safety in the midst of uncertainty. This is so challenging. I feel very grateful to have this space in which to share and hopefully help each other. Thank you.
  18. hello all, thx for being here showing the way. my current doses and meds are listed in my signature... i take 68.75mg at night...one 50mg pill and the other a 25 mg pill that i try to "quater" into 6.25mg, not very succesfully! what i need help with now is finding my micro-taper rate and correct schedule, since i suck at math (failed it 2x in high school but they passed me because they pitied me for trying so hard and getting it so wrong!) i had been breaking my 25 mg pills into rough quarters but they no longer break anywhere close to 6.25 mg pieces...so i'm really suffering with the inaccurate pill splitting disaster. i'd love to try the ORA-Pro or actually this one: HUMCO 8916001 Flavor Blend 16 oz, Shape https://www.amazon.com/gp/product/B0773DL1XJ/ref=ox_sc_act_title_1?smid=ATVPDKIKX0DER&psc=1 it's way cheaper looks the same stuff to me...and do a suspension with it and see if i can get a more accurate dose, but after reading all the pages i can find on this site and benzo buddies and others i am still confused... the video on how to make a simple water titration that was for low dose naltrexone as an example showed me how to do the basics measuring 25 ml distilled water and dissolving a 25 mg pill in it for a 1mg medication per 1 ml liquid ratio. i understand that part. and as far as i got it, i would take my nightly 50mg pill of quetiapine whole as a dry pill and then draw out the 6.25mg/6.25 ml of liquid medication from the water solution and dispose of it and then drink/take orally the remainder of the liquid (18.75mg/ml) to make my current total nightly dose of 68.75mg of quetiapine. seems like i could be doing 5 mg/ml cuts instead of 6.25 if i use the solution or a suspension though...and i think i may be going to fast, or at leat the cuts are too abrupt, so i really want to do a microtaper, if someone could do the math part and then maybe i'd have a chance.☺️ where i get messed up is how to mix the ORA-pro/HUMCO suspension liquid with the (mortar and pestle crushed) 25mg pill of quetiapine and then how do i know how much to syringe out of the mixed suspension for my 18.75mg liquid portion dose? or if i did a 20mg/ml would it be easier to measure out? or if i did a microtaper of something closer to a fraction of a mg/ml every few days instead of 6.25mg cut every 4 weeks, maybe that would allow for a smoother taper and less rough withdrawals? i honestly don't even know how to divide 6.25mg by 28 days! i guess you can see why i failed math 2x! anyways... i 'd love to do the 10% (or less) reduction from the last dose as is reccomended, instead of the Ashton method of a "cut and suffer" that i've been trying to emulate...but all of the calculators and spreadsheets just serve to confuse me even more. if anyone here feels my pain and would like to point me to a "micro-taper schedule off of seroquel for dummies" chart or table that shows me exactly what to do for each day of the microtaper ...i don't know what i can offer in return! my eternal gratitude? my kidneys? lol thx again
  19. Hello everyone, I've been lurking on this site for a while now, gathering knowledge on how to come off psychotropics. I'm 37 year old female with a long history of depressive episodes and have been taking SSRI's of some sort (must have gone through most of them by now!) since 1998, when I was 17. Around 4 years ago (it's hard to tell, as my memory is utterly atrocious) I had a bad time again with depression and had psychotic symptoms. I was put under a psychiatrist who prescribed me 75mg quetiapine, and upped my sertraline from 100mg to 150mg. I've been on sertraline around 12 years and I haven't had much of an issue with it. The quetiapine, on the other hand, I am not prepared to live on indefinitely. I have put weight on (although not a huge amount), my blood sugar levels are causing concern (I exercise regularly, eat sensibly, have no diabetes in my family), I am like a zombie until lunchtime and I don't think there's been a night in 4 years where I haven't woken stuck to the sheets from profuse sweating. At night, especially if I've exercised in the day, my body is like a furnace. Makes not much difference if the room I'm in is cool; my body's thermostat is on the blink. If I miss a dose, I just don't sleep. The next day I'm a wreck. The last time I saw the psychiatrist (about 2 years ago) I asked him about coming off quetiapine - I've been on the lowest dose of 25mg since then. He was really cavalier in his attitude and said "it's fine - just come off it when you want to". So around a year ago, after I'd been stable for a good while, I did. And I didn't sleep for a week. So I caved in and started taking the 25mg again. 6 months later, I wanted to try again, so I went to my GP and asked for a short course of zopiclone so I could sleep whilst coming off the smallest dose. She would only give me 5 day's worth of Zopiclone (UK guidelines) - and even then, I still couldn't sleep without Quetiapine. In addition, I developed INTENSE itching all over my body, in really localised areas. I know now this is a histamine reaction and a common withdrawal symptom for quetiapine. At the time I thought I had some sort of weird invisible skin infestation! So I went back on the Q again after a week. THIS TIME, I'm even better armed. Despite being told that stopping 25mg quetiapine would not cause any problems, as it's such a low dose, I know better. The tablets are tiny, but I'm cutting them in half and then half again. My plan is to reduce in stages, taking once month for each stage. 25mg - > 18.75mg - > 12.5mg -> 6.25mg -> 0mg. If I manage this, I could be off it in three months. I'm currently 2 weeks into stage one (reduced by 25%). The first few days I had a little trouble getting to sleep, but that soon rectified itself. My mood over the last week has been steadily getting lower and I've been feeling more "mental" and unable to cope with stuff. I know the Q can augment the Sertraline. I haven't told my GP yet that I'm doing this, because every time I've brought it up there has been resistance and he tries to persuade me to stay on it. Probably because another hospital admission is far more costly than continuing the drug! (cynical..? Moi..?!) I'm being the most sensible I've ever been as regards self-care. No alcohol, eating well, exercising regularly, good sleep habits, etc etc. Anyways. Here I am. Hope my mood improves over the next two weeks in time for stage 2, though I am prepared to stick longer between reductions if needs be. Lunar
  20. Hi, my signature has a potted meds history, there were others I don't remember. I recently spoke to my prescribing doctor (pdoc) and she agreed to assist with withdrawal from quetiapine (Seroquel XR) but when I tried by reducing 50% over the fifth day I unravelled completely so went back to full dose feeling like I a failure. She seems not to have a handle on what to do, so it is up to me to get informed. Have been on quetiapine since mid-2014 with a brief hiatus when a psych added Lithium which was disastrous, huge anxiety spikes and meltdown in public. But the psychiatrists said the response may have been psychological, rather than the lithium. I stopped the lithium anyway. I feel I am under a constant mental and physical oppression, I developed tinnitus in 2016 when I was briefly on another brain med, can't remember which one, the tinnitus continued when I stopped it. I struggle to be creative, I want to write, paint and create meaning in my life but mostly can't be bothered. I cycle through hypomania and despair with regular monotony. The drugs seem to do nothing to stop the bipolar cycle, although truthfully the lows are not as low since the mirtazapine increase last year, and the highs are not as high nor as prolonged as they used to be before the quetiapine/Seroquel. The only plus side is it regulates my sleep well most of the time. I found this forum via Mad in America when I searched for quetiapine withdrawal on that site. Brief on physical health: I am in my mid 50's. I have gained 30 to 35 kilos since 2014 I had a full hysterectomy and oophorectomy so instant menopause and also went onto quetiapine at that time mid-year. I am SO hungry all the time, I try to eat sensibly, but I eat too much and as I have a back injury and neuropathy in one leg, walking is difficult - I can do 1 to 1.5 km a day that's it. I started swimming again to try to reduce weight but both shoulders developed bursitis. So exercising is in the 'light exercise" range. I really want to lose most of the drug-induced weight gain. My goal is to come off Quetiapine all together eventually and reduce mirtazapine back to 30 mg. Because I am on an XR coated Seroquel the lowest dose available to reduce is 50 mg at a time I see from the information pages you recommend 10% at a time. I don't really know how to go about making a long-acting tablet into a 10% reduction. I am wondering if I could try to reduce 50mg (I went straight to 100mg skipping my morning dose and that didn't work) for 6 weeks and see how I go? I have read some of the advice here. I forgot I also have 25mg IR quietipine as a PRN but have not used it for some time. Perhaps I could do this and see. Drop 50 mg of XR and take 25 mg of IR so = 1 x 50 mg XR + 1 x 25 IR in the morning and the two 50 mg XR (=100mg) at night for say a month, to see what the effects are, keeping track of any withdrawal symptoms, then drop the 25 IR so only on 1 x 50 mg SR in morning for a month, watch and wait, drop that to 25 mg IR for a month, then stop the moring dose for a month. Then possibly go to the same formula as all that - repeated at night. Does that sound possible or sensible to begin?
  21. Hi all, I would like to come off of all the drugs I am on. I have an appointment with a Psychiatrist in November as I have asked for a re-assement (to consider a diagnosis of CPTSD rather than Borderline Personality Disorder) and I plan to begin my taper once under their supervision. I have been on Citalopram (now 40 mgs) for approx. 18 years. I was put on Quetiapine (now 200 mgs) approximately 5 years ago when I experienced a total breakdown after the birth of a baby. At the time I suffered from extreme insomnia (zero sleep for 5 nights), which led to relentless anxiety (non stop panic) and eventual psychosis. The Quetiapine wasn't relieving all my symptoms. I ended up admitted to hospital where I was put on Pregabalin (now 300 mgs). I would like to know the best way to approach this. I'd like to go to the Psychiatrist with a plan to propose. My GP wanted me to drop 25 mgs each med each week and I'm guessing that's too much at once?
  22. I was put on quetiapine three weeks ago, starting on 25mg for one night then up to 50mg for one night then 200mg ( I think that was the progression) for 12 nights. I felt very strange, night sweats, insatiable appetite, muscle weakness, emotionally numb, but improvement in symptoms of paranoia and anxiety. But I decided after research that I do not want to continue taking this drug, it is the only psych drug I have e era taken and I want off and to treat myself as I know how to with alternative therapies and excercise. So I reduced to 100mg and have felt very bad in the mornings, for five mornings. I sleep well but I wake up very very anxious and heart racing and hot and cold and in a mess physically and mentally. But I am determined to stay at this dose and not increase it again as I fear I might never get off it. My question is can I taper faster as I have only been on this for three weeks? I feel the effects so strongly and I want to get off it as soon as I can. So I was going to hold this dose of 100mgs for a week and then drop to 50mgs. As I have only been on it under a month is that possible or am I dreaming! From reading this site I can see getting off these drugs is no easy task. I would never have taken them if I had known despite that I was in some distress.
  23. Hello. I had severe postpartum depression which started at 8 weeks postpartum in December 2017. It was endogenous and melancholic...lots of agitation and anxiety, pacing around, taking on psychotic features. I was put on Seroquel XR 100 mg and 50 mg on seroquel IR both in the evening. Ive managed to come down on the IR by going down 12.5 mg every 2 weeks. I waa fine but once I got to zero (just using the 100 mg XR and no IR) I was hit with nausea, throwing up, loss of energy and anxiety. Also horrendous diarrhea. This feels like the flu its unbearable. What do I do now? How can I wean slowly off the remaining XR when they only come in 50 mg tabs and you cant break them? Scared :(
  24. 8 years ago I was in a ward voluntarily for three months and then I have been taking Seroquel XR since I have been released . 400mg XR for a period of time and lowered the dose to 350 and then 300. since september 2017 i have reduced the dose to 200, increasing to 300 three times and bouncing back to 200 again. I have stabilized on Seroquel 200mg XR since January 2018 until now. In order to continue the taper I have tried tapering to seroquel 150 XR but I had sleeping disorders. I have asked my psych to change the prescription to 200 IR and I have also got a precription for 25 mg IR pills. I've been told to take 100mg IR at night and 100mg at day. Last night I took the pill and had a good sleep. Today Ive taken the daily dose at around 10PM and I have been very sleepy until 4PM which kinda sucks. I have slept around 3-4 hours during that time. I have thought about decreasing the daily dose soon to 75mg. What are your thoughts about this. How should I continue the tapering?
  25. I am diagnosed with Bi-Polar II. In January 2017 I was prescribed 50 mg/day of QUEtiapine. May dosage was increased to 100mg/day; and September increased to 200 mg/day. I’ve been suffering severe side effects to include skin rashes, chronic fatigue, insomnia, shin splints, significant weight gain, and change in food tastes and smells. I told my Physiatrist I wanted to change my medication so he prescribed me Aripiprazole 5mg/day. After researching this drug, I quickly realized its in the same family of anti-psychotic drugs with the same if not worse side effects. I took it at bed the first night I purchased the prescription and experienced a frenzy night of insomnia; tossing and turning all night in a bed of soggy sweat. I’ve decided to not take the Ariprazole and instead, taper myself off the QUEtiapine and off anti-psychotic drugs in their entirety. I’m going to attempt to taper in a shorter period of time than what is recommend on this site. I will start with 175 mg/day for 5 days and if all goes well will continue tapering down every 5 days.
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