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  1. Hi, my name is Aember and I have had severe negative reactions to SSRIs after very fee doses. I have been sick since January 2020 with a mystery degenerative neurological condition that is affecting my ability to think and feel. I am experiencing progressive dementia and confusion. Here is my story: Have had mystery neurological illness since Jan 2020, started with delirium, a flu and then a gastrointestinal flu that woke me up with a pounding heart and nocturnal defecation for months and body temp above 99 -101F. Sleep became interrupted with very vivid dreams and bizarre hypnagogic states. Started hypersalivating. Vision became altered, blurry at distance, slightly photosensitive. Extreme fatigue and bed in early evening, sleeping in and off until noon. Increased red pinpoint angiomas developing all over my body. Gradually became anhedonic in March 2020, unable to laugh or cry. Confusion and anxiety increased. Was put on Seroquel 25 mg end of March 2020, immediately had some involuntary movement so stopped after 1 dose. Switched to Trazodone 2 days later and had an extreme Akathesia episode with involuntary movement, was up for 24 hours pacing and raging internally. The next week was put on Citalopram 10mg for 2 days, immediately got dyskinesia (pill rolling, teeth grinding, twitching, teeth licking, bunny nose) with compulsive behaviour, vision became blurrier and developed horizontal double vision halos, perception of time sped up, switched to 5mg Escitalopram for 1 day, started muscle twitching, became flushed, feverish could not sleep (serotonin syndome?), next day became psychotic and babbling, compulsive, bit myself, could not walk. Hospitalized April 2020, put on respiridone 0.125 upped to 0.25 for 2 weeks. Felt weird hot icy burning in chest and esophagus upon initiating, had issues swallowing, voice got raspier, experienced increased hunger, constant fatigue and sedation, dry skin some teeth grinding and muscle tension on and off, vision worsened further (my left eye is now -1 and blurry, was perfect in December 2019), increased constipation, little change in anxiety, increased social compulsiveness (speaking without thinking). Started lactating. Quit April 29 after tapering to 0.125 mg for 3 days. Since then, I had episodes of dyskinesia and teeth grinding, bunny nosing, cramping in hands and feet, but it's gradually lessening as my body adapts to being antipsychotic free. I am still in a confused state (feel like I am about to pass out, cannot focus) with abnormal sleep emotions (cannot feel happy, cannot work) and decreased intellect (issues with spelling, time perception, planning, focus and my degenerative neurological condition persists as well as the hypersalivation and weakness. I am in bed all day.
  2. Hi all, I hope it’s ok that I’m posting here. The website says to make an intro post. i started on meds in 2005 when I had anxiety attacks during a really stressful period. I didn’t know what was going on and felt like I lost my mind. It turns out I was having panic attacks from too much stress in my life. At the time, a doctor prescribed depakote. My girlfriend at the time strongly objected and I never took it. I was later prescribed celexa by another doc. I took celexa and then lexapro for the next 14 years. in 2019, I started having really bad anxiety again. My doc put me on seroquel 50 mg. Because I didn’t feel much better, I tried the following meds: Wellbutrin, cymbalta, prozac, Zoloft, then mirtazapine. All during this time, I stayed on seroquel. the mirtazapine helped a lot with the anxiety and I’m currently on 45 mg. I decided to taper off the seroquel 50 mg at the beginning of 2020. At my doctors instructions, I went down to 25 mg for 5 days, 12.5 mg for the next 5 days, then off. looking back now, the taper schedule was way too fast. I’m having a lot of withdrawal symptoms: foggy head, headaches, agitation, depression, irritability, palpitations, fatigue. once I’m fully recovered from my seroquel withdrawal, I’d like to eventually get off mirtazapine. id love to hear if anyone who has had experience getting off seroquel (I took the generic quietiapine). How long until withdrawal passed? Anything to reduce withdrawal symptoms? much love.
  3. Hi looking for help with a tapering schedule. On the 07/01/2020 i was prescribed 25mg Seroquel for insomnia and took it everyday for the next month. My prescription lapsed 07/02/2020 and initially attempted to Cold turkey it, immediately ran into rebound insomnia most nights. After doing a bit of reading here it seems its best to taper off, even if you have been on a drug for a short period. I decided to go this route and last night reinstated myself at 12.5mg, this allowed me to sleep for 4 hours. So can someone please help me with a tapering schedule, i want to get off this evil drug asap. But i know rushing it could be detrimental.
  4. Hi Everyone I just wanted to introduce myself. I have been lurking this forum for long enough now. 🙂 Male, 28 My story starts in November 2018 when I went partying with a few friends and consumed different recreational drugs (MDMA, Cocaine, Speed and Alcohol). I wasn't new to these drugs but I made the huge mistake to not test any substance and not dosing correctly. However I didn't feel bad throughout that weekend and the hangover was as expected. After four days the panic attacks and the depression started and it just did not get any better over time. A month later I had enough and went to my GP who immediately put me on Effexor and Seroquel. Later on Seroquel has been exchanged first to Mirtazapine and then Trazodone (see signature). The drugs definitely helped with the panic attacks but Side Effect were just unbearable I felt 40 years older, manic, aggressive, suicidal, without any motivation and completely emotionally numb. There was just no way I would stay on this horrible stuff any longer so I went cold turkey after two months. The first two months were kind of ok but I still felt drugged. After that the emotional symptoms kicked in and it became a fight for survival day by day. I will not go into detail about it because you probably all know what I am talking about. Sixth month later I made some progress, the symptoms became a little bit less intense and I had some windows. Over the next four months I made some further minuscule improvements, windows became longer. I started to feel kind of stable in my recovery, it gave me some hope that I didn't lose my job and my girlfriend throughout all this time. Next month I will be drug free for a year but it is still a massive struggle every day. Right now I seem to be in a long wave (5 weeks so far) with a great change of symptoms. The anxiety and the panic attacks have become a lot worse recently and there are a lot of physical symptoms like dizziness, nausea, loss of appetite and generally feeling miserable. I have become less active, less motivated to exercise but on the other hand I am also feeling kind of ok with it. Also my sleep seems to have changed quite a bit, I didn't have very bad insomnia so far only very intense and draining dreams. They are mostly gone now but instead I am sleeping two to three hours less per night. I try to see these changes as my brain being at work 🙂 I can't differentiate if I am still in Withdrawal or if this is the after effect of the recreational drug incident (any ideas?). All I can hope for is that my brain will heal the same way as it does if I had taken psychiatric drugs only. Throughout my life I only had a few bouts of mild depression and anxiety (and three mild panic attacks), nothing I couldn't cope with. I also have never been on any psychiatric drug. I will try to document my recovery in this topic. Massive thanks to the people of this forum without you I would probably have gone back on psychiatric drugs a long time ago. You can't imagine how much hope I got reading through these pages! 🙂
  5. Hi so this is my story I took magic mushroom which elevated my depression when I was 20yeard old. Every 3 month I used to get frustrated from life and go to a place where this drug is free. I had depression and anxiety before this which is why I started magic mushroom. At the age of 21 I thought that it's too expensive to go to places out of country and take it there. Why don't I take a pill which removes depression, that pill was modalert or if you like to call it Adderall or modafinil 200mg.i took it daily for two weeks and stopped abruptly. The withdrawal symptoms I got were horrendous. Brain zaps, fatigue, tiredness,mentally think a part of my brain is not functioning and etc.. this pill I took was on June , in 28 July I had a family holiday to Pakistan. In Pakistan I was still expericing really bad withdrawal symptoms and thought to myself that here is quite cheap for any type of treatment so I went to a neurologist. She recommended I take seroquel 25mg, rivotril and ginkgo biloba. It eased some brain zaps but it kept my mind blank like there was something blocking it. I then consulted with a online NHS gp who said that drug is for people who have schizophrenia. I then abruptly stoped that which gave me withdrawal symptoms of increased brain zaps and mental fog. Went to a psychiatrist in London who said I was having underlying depression, he gave me sertraline 50mg on October 1 2019. On the 8th it was upped to 100mg and in December 1st it was 200mg. The symptoms did decrease by 30% but I still had sleep like fatigue and and at night I can't sleep. So on January 2020 my doc recommended me a different tablet as I got diagnosed with generalized anxiety disorder which was mirtazapine . She said take 15mg for two weeks in the evening and 100mg sertraline in the morning.3rd week reduce sertraline to 50mg and increase mirtazapine to 30mg. 4th week: stop sertraline and continue with mirtazapine 30mg. Right now I'm in the 3rd day of the 2nd week. I She said if this dosent work then either we will change to a different tablet or in the patients opinion withdraw. The reason I took sertraline was to get rid of the brainzaps from seroquel and adderell now I'm digging myself a big hole in which they're trying to continually put me on meds. Yes my sleep is much better mirtazapine but I want no part of these drugs. I need your opinions guys I know this is a forum where there are patients not doctors but each and every professional opinions holds my gratitude.
  6. Hello. I'm posting here because, like many of us probably, I'm in pain and I'm scared. I've been on various SSRIs for about...15 years or so, Seroquel for the last 7? Latest was Effexor for a few years, coupled with Seroquel. I tapered off Seroquel for about 6 months successfully, only problem was with insomnia at the end. 2 months or so I was free. November I ran out of my script of Effexor, it had been a few days. I asked my doc for something new because my depression was worsening, but I didn't want Seroquel because I've since kinda come to the conclusion that unless I'm psychotic (never been) I don't want to be on that hardcore of a drug, because of the insomnia (I left it for insurance reasons). Doc gave me Trintellix November 20 and said I didn't need to taper off Effexor. I was wary, but I went with it. The Trintellix seemed immediately effective for the depression, but it came with side effects. Diarrhea, itchy feet for a few days, and then the one I couldn't live with - water retention. I was on half the prescribed dose for 2 weeks before I stopped because the water was starting to make my chest hurt. Went back and she put me on Zoloft...and was dismissive of my continued diarrhea and weakness. I used Zoloft for 2 weeks, then stopped that three nights ago because of the continued diarrhea, and I'm now coughing. I'm...kind of improving. I have some energy now, not going to the bathroom every few hours. But I keep coughing these tiny little coughs that come with nothing. I read SSRIs can cause something called SIADH, some sort of problem where the body makes too much anti-diuretic hormone...and I'm also on anti-diuretics, which makes it more possible to get this SIADH. So now I'm just sitting here, on nothing for depression, coughing and afraid. I know this is probably just a temporary thing until my body gets back to some sort of homeostasis, sheds whatever water I'm retaining still (which I think is why I'm coughing), I'm waiting until the 1st when my new insurance kicks in and I can see a new doctor, but the broken part of my brain makes me worry it's permanent, that my heart's been damaged. Anxiety sucks. Anyone ever had water retention issues on an SSRI?
  7. HI, here santking, 34y "manic" diagnosed episode in 2004. treated w lithium, benzos and prozac. 1000 mg of depakote+benzos+prozac jun-ago 2004. ago-dec 750. + prozac Dec: just 500 depakote (treatment produced strong acne. treated with roaccutan between nov 2004 to oct 2006) 2005: depakote 500 (some months w 750) + prozac and benzos- (lorazepam) dec 2005 - aug 2007: depakote 500 mg aug 2007 - 2009 alternated depakote 500 mg to 250 mg jan 2010 i started with a new psychiatrist: depakote 500 mg until sep 2012 sep 2012 started depakote + antidepressants: depakote 500 + etifoxina / paroxetine and propanodol (?) (until jun 2013) jun 2013: depakote 500mg with paroxetine and propanodol. oct 2013: change paroxetine for trazadone. until Jan 2014. jan 2014: depakote 500mg and leave trazadone jan 2014-oct 2015: depakote 500 mg oct 2015: psychiatrist introduces sertraline. suicidal attempt with sertraline overdose in jan 2016. psychiatrists increases depakote to 750 mg and introduces wellburtin. jan 2016 - dec 2017: 750mg depakote + wellburtin dec 2017 consulting another psychiatrist changed wellburtin to seroquel 25 mg dec 2017 . until jun 2018: 750mg depakote and seroquel 25 mg in jul 2018 I meet the Peter BReggin's books and SA forum and start the withdrawal process. this included consuting with psycotherapist and intense researching meeting content like Icarus project, mad in america, Rachel Aviv articles and Laura Delano's Withdrawal Project (a daily reference) ago 2018: start tapering: depakote 500 mg and seroquel in 12mg dosages (cutting to half) until nov. in dec 2018 I felt the withdrawl synthoms of seroquel leaving (insomnia, vertigo, suicidal thoughts, paranoia, anxiety, fear) Jan 2019: changed depakote dosage -tablets o sprinkles- (125 mg) taking 4 pills daily. May 2019: tried tapering without scale (reducing "half" of sprinkle aprox 437 mg) causing a week of insomnia and panic. returned with 500 mg in June. Aug 2019: started tapering with scale. sep 2019: 450 mg Oct 400 mg. Nov: 375 mg (3 pills daily) DUring November I have been taking 375 mg I have been feeling intense laziness, lack of motivation and fatigue. I tried changing diet: avoiding caffeine, alcohol, sugar, dairy and ultraprocessed foods. I had a week w insomnia and next week felt sleepness and lack of motivation (after Dec 1) RIght now I'm worried because I still feeling down and need increase energy due to personal compromises. I'm doubting if back to 400 mg or still reducing the dosage. THis based on how I'm feeling and listening the body sensations. I'm doing the tapering based on the 10% standard seeing in Breggin books, TWP and here. This is my history w psychiatry treatments and I would appreciate your help and recommendations for my case. If you need some explanations I will do it. Thank you.
  8. Hello! Just discovered this forum recently. It has been an eye opener in how to get off psychiatric medications. Wish I knew about this in the beginning! I have been struggling with anxiety since I was young. Anxiety use to be nothing to me and as an anxious person, it kept me focused and in the moment. I always exercise and try to eat healthy. Im 35 years old. In the last few years, my anxiety has become different. I can say it also has been a stressful last few years with life changes and feeling more weight on my shoulder. One time during late 2016, I experienced what may have been an anxiety or panic attack (sweating, heart racing, racing thoughts, feeling impending doom, etc), then just feeling unusual and uncomfortable being in different places, waking up suddenly gasping for air with my heart racing, and head pressures everyday. I went to a doctor and everything was normal. She said to try zoloft. Im not someone that likes taking medication everyday. So I rejected her offer to try zoloft. Afterwards, I saw a psychiatrist and from what I told her, she diagnosed me with generalized anxiety disorder and panic disorder. She wanted me on Klonopin and Lexapro. I also did not go through with the med recommendations. I thought with time and just keeping busy, these symptoms would go away. With time, I was sorta getting better. But I was still dealing with daily head pressures, waking up gasping for air, heart racing at night and being in places where there is alot of movement going on (big crowds). In 2018, I went to see a neurologist for the head pressures and anxiety. She prescribed me Elavil for two months. I thought that Elavil was not like the other medication types that were mentioned a year ago by my doctor and other psychiatrist. So I went ahead and tried Elavil at 10 mg everyday for two months. During those two months, I felt relief from daily head pressures but still was dealing with gasping for air at night and heart racing at times. My neurologist said its ok to stop Elavil after two months so I stopped it. I dont think I felt any withdrawals or any different after stopping Elavil. However, it wasnt until after about 3 months I stopped that things went totally off. It started with sleep. One night, i couldnt fall asleep and didnt have that strong feeling of tiredness or deep sleep that I usually do. My anxiety was heightened because of the fear of not sleeping and not having that feeling of deep sleep. However, I did have nights afterwards where I could sleep but only a few hours but I wasnt able to do a full 8 hrs. So I guess I had fragmented sleep following that night. I believe my anxiety went to another level. Watching tv felt strange, I had ringing in my ears, and my heart would race when I was driving at times on the road. After work one time, I became desperate for sleeping normal again that i saw a different psychiatrist. He diagnosed me as bipolar and put me on zyprexa (5 mg) and klonopin (0.50mg) to begin with. I told him I wasnt bipolar and just had anxiety issues. Anyways, I went ahead and took the zyprexa and was able to get alot of sleep on it. After a month on zyprexa, I tried stopping it abruptly. Bad choice. I could sleep for days and my anxiety got so bad. I ended up back on zyprexa and taking klonopin daily. In the start of 2019, I switched psychiatrists and went to another one thinking I can get off the meds and be back to my normal self. This new psychiatrist diagnosed me with GAD and panic disorder. She said I was on the wrong meds and to try a third med lexapro on top of the other two meds zyprexa and klonopin. I did lexapro for a week starting at 5 mg but had a manic episode on it so I stopped it after a week. Afterwards, she said to try zoloft. I did zoloft at 25 mg for a week but didnt feel comfortable being on a third med so I stopped it. For months, I was stuck on zyprexa (5 mg) and klonopin (0.25 mg). Everyday just felt like torture at work. I was able to function but I still felt uncomfortable being in different places. However, I did notice that during the months of 2019, I didnt have head pressures and rarely woke up gasping for air. I did at times have my heart racing. I must say that I was able to nap sometimes during the day being on these two meds and felt a sense of sleepiness at times. In August, I switched psychiatrists again. I saw a third psychiatrist based on online reviews and word of mouth. When I told him what I was going through, he said I had GAD and panic disorder. He wanted me to switched from zyprexa to seroquel since it had chemicals that would be better for me. So I went from 25 mg to 50 mg of seroquel and 5 to 2.5 mg of zyprexa in a month span. He said to go off of the 2.5 mg zyprexa but I told him I wanted to taper more. I was afraid that I would experience what I had from the time I ct’d zyprexa the first time. When I went down on zyprexa starting in August, I didnt notice much difference in how I felt. I went down further to 1.25 mg and now around 0.625 mg. So basically, I held each dose for a few weeks. Having discovered this group recently and now the 10 percent rule, I feel scared as to my taper off zyprexa. Right now, Im on Seroquel (75 mg), Zyprexa (0.625 mg and tapering very slowly), and Klonopin (0.25 mg). I feel bad now that I did 50% reductions in the beginning for zyprexa and didnt start the 10% rule until I got lower. I went by how I was feeling going down and didnt really experience any difference going down on zyprexa from August to this month. I still cannot sleep without medication which has now been seroquel. Id love to know your input about this situation and if what Im doing is ok so far. Also, what may have messed up my sleep to begin with if it was because of my anxiety or maybe stopping the Elavil to begin with may have contributed to sleep problems. Medication history: April 15 2018 to June 15 2018: Amitriptyline (10 mg) stopped after 2 months. Not sure about withdrawals. October 2018: Olanzapine (5 mg) November 2018: Olanzapine (5 mg) Klonopin (0.50 mg) December 2018: Olanzapine (5 mg) Klonopin (0.25 mg) January 2019: Lexapro (5 mg) stopped after 1 week. No sign of withdrawals. zoloft (25 mg) stopped after 1 week. No sign of withdrawals. Olanzapine (5 mg) Klonopin (0.25 mg) February 2019 to July 2019: Olanzapine (5 mg) Klonopin (0.25 mg) August 2019: Seroquel (25 mg to 50 mg) Olanzapine (2.5 mg) Klonopin (0.25 mg) September 2019: Seroquel (50 to 75 mg) Olanzapine (1.25 mg) Klonopin (0.25 mg) October 2019 to December 2019: Seroquel (75 mg) Olanzapine (0.625 mg) Klonopin (0.25 mg)
  9. Hi, my signature basically says it all. I got into psychiatry over 2 years ago and got on seroquel and Mirtazapine for my depression & sleep problems. The opposite happened. I stopped sleeping & had severe adverse reactions. I could not stop sleeping & started to have akathisia & dyskinesia from the first tablet I took but continued to take it as I thought it was my depression getting worse or I thought I got food poisoning or something. Anyway... stopped CT both drugs at psychiatry after finding this site due to severe adverse reaction. No sleep for 1 month straight. Very acute symptoms for 3-4 months (about 20-30) What is left now is that I feel my brain is permanently on. I never get tired, have naps or sleep. Like the brain has no off switch. It's like A rubber band has been streched for over 2 years and two months but it didn't get back into it's position but stretches itself... Instead of going back into it's original form. Like You wake up and stretch it... you go to sleep and wake up and it is back into it's original form. This is my only symptom basically... I've read a few similar stories of people having similar experiences but it seems they are rather rare, maybe due to the fact that I C/Ted an antipsychotic? Or is it possible to have cortisol/adrenaline spikes for 2 years and 2 months off? (I feel like I have way more energy but in a toxic kind of way)
  10. Hey guys, about 2-3 years ago, I started waking up after 5 hours of sleep constantly, and ever since then, I haven't had a full uninterrupted night's sleep. At the time I was taking half a pill of lexapro every 3rd of 4th day, whenever I felt the brain zap, I would take a pill to make it go away. Then about a year ago, I decided to ***** quit it cold turkey and the brain zaps have stopped but... I still wake up during sleep and I still see vivid dreams every single time I go to sleep. Am I permanently damaged? What should I do? I went to Reddit and offered $1000 to anyone who could tell me what's wrong with me and tell me how to treat it but mods removed it because I offered money, that's how desperate I am. It's been about a year and there is no SIGN of improvement AT ALL. I have a feeling I'm stuck like this for life and I can't live like this... I've started taking Seroquel to help me go back to sleep. I think it's cortisol spikes. I don't know what to do, I want to have a kid with my wife but I'm on sick leave because of this single symptom! I am not exaggerating. Please, anyone, tell me if there's any hope left in my case. PS: For the last 2-3 years, for every single day, for every single time I go to sleep, I see vivid dreams/nightmares and I wake up at least once fully wide awake and alert and struggle to go back to sleep. No exaggeration.
  11. Because that's what happened with me. I was taking irregular doses of lexapro and the symptom started. Symptom started about 2-3 years ago and I quit lexapro about a year ago. I was taking half a pill every 3-4 days then I cold turkeyed. My question is, am I waking up multiple times during sleep because of withdrawal (and still seeing vivid dreams) and is there any chance this is permanent? Is my brain damaged permanently? I am taking Seroquel to help me go back to sleep because sometimes it's impossible to go back to sleep without calming down. Thanks
  12. Hi all. Long time lurker, thought I’d finally join in. Age =30, Male. Straight to business: Had what you might call a nervous breakdown after quitting my job and also dropping out of University mid 2016. I was having suicidal thoughts, disordered thinking and I stopped sleeping. - Started on a low dose of Valium for 2 weeks to help sleep. This unfortunately exacerbated my depression, anxiety, insomnia, agitation. - started on Lexapro. Again, made my symptoms worse. Didn’t sleep for a week straight. Yikes. - finally prescribed seroquel 25mg. Took it before bed for 1 week. Had 1 week break. Took it again for 1 week. Calmed me down, gave me decent sleep. Didn’t touch it again. - Finished up the 6 months course of lexapro (can’t remember the dose but it was the lowest you can be clinically prescribed). - Afterwards, suffered withdrawal insomnia and anxiety/agitation, doc prescribed 7.5mg mirtazapine nightly. - finished up the mirtazapine after 9 months. Went through 3 months of hell to finally get to 0mg. Drug free for roughly 1.5years so far. I had a LOT of withdrawal symptoms getting to where I’m at now. I’m happy to discuss these so do hit me up. Mirtazapine withdrawal was incredibly difficult. Current state: - Poor short term memory recall (this is slowly getting better) - Chronic tension headache. This is my number 1 gripe. Sometimes better sometimes worse, always low level. Mostly pressure/ache forehead along hat-line but can be top of head. Started 1-2 days into mirtazapine and hasn’t gone away since. - General anxiety (worse in morning, better in evening). - Low stress tolerance - Difficulty with speech, wrong order or words, stumbling over words. If my headache is bad my speech is usually bad as well. - Brain fog - Sleeping pretty well surprisingly. Usually get my 8 hours. - starting to notice photosensitivity. Bright lights in shopping malls in particular cause me to squint a lot. what I’ve tried: Getting a dog - highly recommend. My dog is my best friend. Jaw/Head/Neck/Shoulder dry needling - this works to relieve my tension headache but only temporarily. I carry a lot of tension in my jaw. Breathe right Nasal strips - really helped my sleep and reducing severity of my headache. Thyroid testing - all results within normal range. Chiro - helped loosen up my neck and back but no discernible difference in my tension headaches. Both eyes checked by optometrist - excellent vision Running 3-4 times per week Jiu Jitzu 2 times per week Hot yoga 1 times per week Future: - have just completed a sleep study, based on the improvement I had with headache with the nasal strips. Possibly have sleep apnoea & bruxism. - acupuncture - thinking about having a weekly acupuncture session to relieve muscle tension for my headaches instead of weekly Acupressure massages. - work hard on improving personal relationships. A final note. The fact that I was on Seroquel really bums me out and I attribute most of my current symptoms to it. Despite it effectively saving my life at that time I really really regret taking it Reading about the effects of it in various websites/research papers upsets me a lot still to this day. Anyway, big ups to this website. I couldn’t have tapered and ultimately came off mirtazapine without it. Just reading everyone’s stories gave me the determination to get drug free. If anyone has any thoughts on tension headaches in particular would love to hear from you.
  13. Hi, all. Thank you so much for providing this site. I’ve been inspired by the stories here, and look forward to my own recovery and hope to help others as I can along the way. It’s been a hellish year… I have a rather long story – 99% of which takes place within the last year – so please bear with me. I’ll write this out in a timeline for organization’s sake. In essence, I have a history of anxiety and depression, and have OCD. I have been suffering from severe postpartum anxiety (PPA) and depression (PPD) since delivering my son in May 2018 – exacerbated by a move out East so I could start my PhD, the decline and death of my dog, dealing with childhood trauma, etc. I was on Prozac and Xanax as needed before I was pregnant and went off without any problems while we were trying to conceive. I had an uncomplicated pregnancy. Here we go… 1999ish – 2005 (6th grade – high school) (Zoloft, Lexapro, Wellbutrin) I was diagnosed with severe academic perfectionism and OCD and put on (I think) Zoloft first (not sure of dosage). In the years that followed, I was on Lexapro and Wellbutrin, all in various combinations. I don’t remember timing or dosages. I don’t remember having a hard time coming on or off any of the meds. I was chronically ill in high school, though, with fatigue, mono, sinusitis, shingles (to be fair, I had immunological issues before going on meds, too, and a complicated family situation). I took the year after high school off to recover, went off all meds. All I remember is feeling tired and my sleep being on a weird schedule. 2005 – 2009 (no meds) I started taking some community college classes, started volunteering, and then working full-time. Started paying more attention to my diet (went off gluten and most dairy after I realized it made me feel better). Was doing very, very well. Summer 2009 – Summer 2017 (40 mg Prozac daily, ? Xanax PRN rarely taken; occasional supplements - multi vitamin, vitamin D, fish oil, probiotics) Started on 40mg Prozac (slow taper to START it), as a ‘preventative’ measure against OCD and perfectionism (I know… probably wasn’t necessary, but I can’t prove a negative) as I was about to start at a university in the fall of 2009; I was pushed by family (also on psych meds) to start. I think it helped somewhat but it’s hard to know. Eventually, I had an Rx of Xanax, which I took maybe 5-10x/year as needed. I did well in college, though, started a great career, went to the UK on scholarship to do my Master’s and then decided to QUICKLY taper off the Prozac when my husband and I (we married in 2014) decided to conceive. I don’t remember having any issues coming off the Prozac. I was on it fairly consistently for 8 years. Summer 2017 – May 2018 (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Pregnant, more depressed than usual, especially after moving back home from the UK and being unsure of what was next. Still, did the damn GRE, applied to PhD programs, got into a great program out East, started setting up our life out there. Obsessive compulsive symptoms were worse than usual but not unmanageable. Late May 2018 (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Delivered my son. Epidural, long labor. Started breastfeeding. Early June 2018 (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Had a week of awful insomnia and anxiety and intrusive thoughts, but it went away. Early June – Mid-July (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Doing okay, just exhausted and depressed (I was breastfeeding around the clock). One week in mid-July 2018 (? Xanax, one-time dosage ~6mg Zoloft, and one-time dosage 2mg Ativan, one-time dosage ? Klonopin in hospital; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Then, at around 7 postpartum weeks - BAM - I was hit with a week of NO SLEEP. I just couldn't sleep and I lost my appetite. I had been given an Rx for Zoloft by my OBGyn and took a very small amount that Friday (I wanted to ease in). That night, all my symptoms were much worse – and I also felt this severe restlessness in my limbs. It was AWFUL. I even tried Xanax to calm me down (I gave to my son pumped breastmilk). My anxiety was so bad that I went to the ER that Sunday. They drew blood and it turned out that my blood sodium was dangerously low (126) - possibly due to not eating enough and drinking too much water. They gave me Ativan (2 mg – which was A LOT for my system), some Klonopin, too, eventually, and fluids overnight and I felt MUCH better the next day. I was given Ativan and Remeron as needed but didn't need to take it for a few weeks. Mid-July to Late Aug 2018 (0.5 – 1mg Ativan daily; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) I was fine for a few weeks, and then my family and I moved out East, where I was attending grad school (I’m now on medical leave). The anxiety and insomnia came back around the move in August. I took Ativan (0.5 – 1 mg) as needed each day and had some rebound anxiety but was able to get through until setting up care there. I was assigned an interim psychiatrist (before being placed with a regular one), who Rxed me 0.5 Ativan to take at night to sleep for 10 days. This worked for sleep, but not the overall anxiety and depression. Due to breastfeeding concerns, they switched me to Trazodone (25-50 mg), which worked ok for sleep. Eventually, I was able to fall asleep on my own for a couple/few nights. That would be the last time I could do that to-date. Late Aug to Late Sept 2018 (0.5 – 1mg Ativan daily, 1-5mg Prozac, 25-50 mg Trazodone; supplements: postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, probiotics?) I started seeing a regular psychiatrist in early September, and we agreed I should go back on the Prozac with 1 mg Ativan/day as needed. We started sloooow on the Prozac - 1mg, then 2, then 5. By week 3, I had lost my appetite completely, and my anxiety was through the roof - just on 5mg (I was on 40 before becoming pregnant, so I couldn’t understand why I was feeling so terribly). The Trazodone was no longer helping me sleep, and was giving me terrible dry mouth. My limbs felt like they were vibrating. My psydoc FINALLY directed me to go off the Prozac and Ativan, and Rxed me just Klonopin 0.75mg/day. In addition to the psychiatrist, I saw a primary care doc, who checked my thyroid, adrenal glands (several tests there), vitamin levels, and other things - all normal. My blood sodium has still been a little low, but they believe it's due to not eating enough. Oct 2018 (Klonopin 0.25 – 0.75mg/day; postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, I might have tried some hormone-balancing herbs – I don’t remember exactly, probiotics?) My appetite returned but it was never the same. I was sleeping better, but not well – maybe 6 hours at most, sometimes waking in a panic. I could only take one class. I was very depressed and frustrated, and deeply confused as to why I wasn’t responding to medications. But I felt BETTER than when I was on the Prozac, and was able to feel like I could sleep on my own again, and on just 0.25mg Klonopin/day – but the plan was to let me ‘settle’ and then try a new AD, sooo… Nov 2-4 2018 (25mg Anafranil at night, 0.25-0.5mg Klonopin/day; postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, I might have tried some hormone-balancing herbs – I don’t remember exactly, probiotics?) The psydoc suggested Anafranil, a TCA. The day I started it, we put my dog down and I stopped breastfeeding (I had been tapering on that for months). It wasn’t a great time to start something. But I did. I took it the night of the 2nd, fell asleep instantly, then woke up feeling SO GOD AWFUL about 3 hours later. I had a tremor, I vomited, I couldn’t eat. My husband had to hold me while I shook in bed. I called the psydoc and she told me to keep taking it, sounding annoyed with me. So I pushed through for three days – but that was all I could do. Until then, that was the worst I have ever felt. Nothing could calm me down. Things start heating up here, so I’ll spare some details and focus more on the med changes… Nov 5-8 2018 I barely remember these days. Sleep was poor, I felt awful. Then on a Thursday night, I was up all night with panic attacks. I called my therapist and made the decision to go into the psych hospital. Nov 9 – 15 2018 (In hospital, put on 0.5mg Klonopin 2x/day and worked up to 100 mg Seroquel at night) I didn’t start sleeping until I was put on a combination of Seroquel and Klonopin. BUT, I remember this creeping feeling of “buzziness” and restlessness when I woke up everyday. That feeling would continue to get worse over the coming weeks and stay with me to the present. Nov 15 – Early Dec 2018 (0.5mg Klonopin 2x/day → 0.25mg Klonopin 2x/day; 100mg Seroquel at night; some supplements – don’t remember) I left the hospital taking 100mg Seroquel at night and 0.5 mg klonopin 2x/day. I officially went on medical leave from grad school. I stuck with this doseage for 2ish weeks, was sleeping well but feeling horribly depressed and anxious, then started to quickly taper the Klonopin. I don’t remember how quickly – but I wasn’t taking anymore than 0.5mg/day by early December. I then tapered on the Seroquel after feeling SO much worse when an IOP psydoc tried bumping the dose to 125mg; I remember not being able to sit still – going outside to pace. No tremor – just pacing, fidgeting, and losing a lot of weight. Early December 2018 – Early Jan 2019 (1mg Ativan at night, 2.5mg Zyprexa at night, 25-100mg Lamictal; postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, I might have tried some hormone-balancing herbs – I don’t remember exactly, probiotics?) I made the decision to move back home to do a program specialized in PPD (we ended by moving back entirely later that winter). In the program, I was put on 0.5-1mg Ativan at night, 2.5 mg Zyprexa at night (for sleep – though it never helped), and titrated up to 100mg Lamictal (the psydoc suspected a bipolar spectrum diagnosis). I was still incredibly restless, unable to sit down and just enjoy a movie. And my sleep was growing worse and worse. It was awful – then my mood grew worse and worse as we went up on the Lamictal; I also had increasingly bad tinnitus and TMJ. I was hospitalized as my thinking became suicidal – just ideations, but I was ready to go back in… Early to Mid-Jan 2019 (0.5mg Klonopin 2x/day, 5mg Paxil/day, 50mg Benadryl at night; 0.25-1mg Risperidone 1-2x/day; some supplements?; THEN back to 150mg Seroquel) In the hospital, I was taken off the Lamictal and put on 5mg Paxil once/day, 0.5 mg Klonopin 2x/day, Benadryl 50mg at night (for sleep), and Risperidone 0.25mg once or twice a day (I don’t remember). I became increasingly orthostatic (low BP, high HR). I stabilized mood-wise – sorta – and left the hospital feeling off, but better… Within days, though, we tried increasing the Risperidone, and my HR went up to 140 (I think we tried 1 mg). I wasn’t sleeping AT ALL. I was taken off the Risperidone, stayed on 5mg Paxil once/day, 0.5 mg Klonopin 2x/day, Benadryl 50mg at night (for sleep). Eventually, as my sleep diminished, the PPD IOP doc put me back on Seroquel (I has actually asked to go back on) – but suggested as much as 150mg. After that, my mood really shifted and became erratic; I was really upset and angry at my husband and suicidal ideation returned. So it was suggested I go back in the hospital... Late Jan to Mid-Feb 2019: 3-week hospital stay (see below for crazy med changes) All the docs agreed I didn’t need to be in there this long (everyone kept asking why I was still there), but there I was so they could keep throwing stuff at me to see if something stuck. I was holding out hope SOMETHING would work this time...: First week: 0.5 mg Klonopin 2x/day, 100 mg Seroquel at night, 300mg XR lithium 2x/day (HORRIBLE stomach reaction, especially when the doc abruptly pulled the Seroquel) Second week: 0.5 mg Klonopin 2x/day, 50mg Seroquel at night, some amount of Depakote (I don’t remember – wasn’t improving, irritable), tried PRNs of 12.5mg Seroquel and became really depressed Third week: 1 mg Klonopin 2x/day, 50mg Seroquel at night, 1200mg gabapentin (taken as 300mg twice during the day, and 600mg at night). That’s how I left the hospital. Mid-Feb to Early-March 2019: (0.75mg Klonopin 2x/day, 50mg Seroquel at night, 300mg Gabapentin 2x daytime and 600mg at night, brief re-trial of lithium – 150mg; multivitamin, 1,000-2,000 mg vitamin D, ? fish oil, 1200mg evening primrose oil, probiotics?) Instantly went down to 0.75mg Klonopin 2x/day (fear of dependence). New trauma-based IOP. Was very constipated. Tried low-dose lithium (150mg) as lithium seemed to be the only med to be helping to-date (along with benzos); was improving somewhat mood-wise, but the stomach issues were SO bad, so we went off. After going off lithium, my restlessness SKYROCKETED, and was particularly bad for 10 days. My stomach was AWFUL; I was taking antacids all the time; seemed to be worse after taking gabapentin, so the new IOP doc cut THAT dosage in half. Developed a tremor. The new IOP psydoc diagnosed me with akathisia – FINALLY. I had NEVER heard of that before (although, in retrospect, I think it has been mentioned to me in the hospital as a possible side-effect of the antipsychotics – but I remember them saying “you can get this, but I don’t see that in you, so…” and so I ignored it (dumb)). When I read about it, I felt so frustrated; this had, no doubt, been plaguing me since at least the one-time Zoloft attempt in July - and in particular since the first Seroquel doseage in November. Doc suggested I reduce my Seroquel from 50 to 25mg; I couldn’t do that for a couple of weeks. Early to Mid-March (→0.25mg Klonopin during day and 0.5-0.75mg/night, 25mg Seroquel at night, 200mg Gabapentin 2x daytime and 300mg at night, brief re-trial of Depakote – don’t remember dosage; multivitamin, 1,000-2,000 mg vitamin D, ? fish oil, 1200mg evening primrose oil, probiotics) Continue reducing my Klonopin down to 0.25mg during the day and 0.5mg at night. We tried XR Depakote as a Hail Mary in the med department. It seemed to help a bit, but also increased some of the restlessness. At this point – and this should have come sooner for me – I was done – just DONE– with med changes. My body needed a break. I haven’t added or taken away and particular meds since (with one exception - the propranolol, see below) – though I have reduced the dosages… Early April (0.25mg Klonopin during day and 0.5-0.75mg/night, 25mg Seroquel at night, 200mg Gabapentin 2x daytime and 300mg at night, up to 70mg propranolol throughout the day; multivitamin, 1,000-2,000 mg vitamin D, ? fish oil, 1200mg evening primrose oil, probiotics) Was diagnosed with thyroiditis (my thyroid had been normal as recently as January) – a relatively common thing postpartum, but it was ‘late’ to arrive to be postpartum thyroiditis, so doctors suspected the lithium. B/c I was hyperthyroid first (usually follows a pattern of a few months in 'hyper'/overactive mode, followed by anywhere from 3 to 18 (or more) months underactive. I was put on propranolol (taking as much as 70mg throughout the day). That seemed to help the tremor, heart palpitations, and restlessness maybe 50-75% of the time. But it crashed my BP. Early-April to Present (see below) We’ve moved into a new, stable house (both good and really stressful). As of early June, I am off the Seroquel. I tapered from 25 to 0mg by reducing by about 6.25mg every two weeks or so. I tried re-starting it to do an every-other-day ending taper, and felt instantly WORSE, so I am done. But it was probably too quick a taper. I NEVER want to take another antipsychotic again, though; I can point to the beginning of the worst parts of this whole cluster to starting Seroquel, and the akathisia that ensues and continues. I reduced the daytime Klonopin to 0 (though I’ve had to take a 0.0625mg to 0.125mg PRN three times in June as things have grown worse). I still take 0.5mg Klonopin at night. In June, I also went off the propranolol – too quickly – and have been having heart palpitations, and have been orthostatic. My BP was just getting to be so, so low. Now, taking any amount of it seems to make me more agitated/restless or, at best, woozy. In June, I also got ambitious and reduced the gabapentin from taking 400 mg during the day (200mg 2x/day) to 0 at the end of June, mostly b/c I thought it was making me feel worse; I’m not sure on this STILL (or if it ever did much of anything). I still take 300mg at night with 0.5 mg Klonopin. May was my best month - not great (I was still constantly restless, struggled with my appetite, and was really disoriented and depressed), but it felt more manageable. I should have done a slower taper on all things when I felt more stable, then – but here I am. June started out okay but, after going off the Seroquel and trying a glass of wine again (out with a friend), it’s been awful; the akathisia is back in full swing. NOW I seem to have reached this point where my body won’t tolerate much of anything again – as if it’s saying “if you’re done with one, then you’re going to be done with them ALL.” I’ve also noticed that the first half of my menstrual cycle is FAR AND AWAY WORSE than the latter half – and am trying to explore ways to (as naturally as possible) balance my hormones. I tried bioidentical progesterone cream that an integrative MD Rxed and it helped somewhat, but caused cramping and spotting and an upset stomach – no go. Currently Taking 0 – 200mg gabapentin during the day; 300mg gabapentin at night 0.5mg Klonopin at night 5mg melatonin (+10mg B6 – combo pill) at night Fish oil (1400mg EPA + 480 DHA) in morning and afternoon 1500mg primrose oil morning and afternoon 200-400mg magnesium glycinate at night, and magnesium oxide throughout day 2000mg vitamin D afternoon Cal+Mag+Potassium supplement afternoon 2 kinds of probiotics morning Multivitamin morning What Makes Things Worse Alcohol; I haven’t been able to tolerate this since sometime early spring – makes me SUPER anxious. Any antihistamine; it used to help me sleep but something in the last 2-4 months has changed my brain so I now feel WORSE the next morning. Some vitamins (I say that b/c I sometimes feel more buzzy after taking a multivitamin; on the other hand, sometimes I feel better) Caffeine (not that I’ve tested this too much; the most I ever drink is a cup of green tea, and I haven’t been able to do that in weeks) Antacids (found that out the hard way) What Helps Epsom salt baths Sweating Crying (when I am able to) Walking (especially in sunshine) Melatonin (at night – for sleep) Klonopin (but I am trying not to go over 0.5mg/day – mostly at night; and want to taper off) Massage Stretching Kombucha (not too much, though b/c caffeine) Apple cider vinegar + lemon water (ahead of meals and when I have an upset stomach – at east once/day) Eating enough (really tough to do right now) Not Sure if it Helps (tried/trying it) Acupuncture (doing this for a few months now) Therapy – CBT, talk Gabapentin (want to taper off anyway) Primrose oil Multivitamin Fish oil Magnesium Calcium CBD oil What I Need Help With I’m here b/c I need to feel like I’m not crazy when the psydoc says this isn’t still akathisia. I KNOW it is – I KNOW it’s protracted withdrawal and the effect of such a brain-altering year. I know this b/c, even in my most anxious moments pre-postpartum medications, I never felt this protracted insatiable restlessness and dread. I was a champ at sleeping (though a night owl). And my appetite was always solid (too much so, at times). This is DIFFERENT. I also want to get off the gabapentin and the Klonopin – but do so in a smart way. I’m not sure the gabapentin is a net evil right now and shouldn’t be taken off altogether? And is the gabapentin the best thing to drop first? And I need help managing the akathisia. I've read some tips here, and will explore those. Any help on the hormone piece would be invaluable. There is something there. I feel the effects of akathisia/withdrawal/autonomic disregulation far more at the start of my cycle. And this whole postpartum period has been inherently hormonally disregulating (compounded by meds like Depakote, which altered my cycle). Anyone else? Anything help? I plan to keep a more focused journal as this site recommends and track my symptoms alongside food, supplement, and med changes. Of course, what sucks THE MOST is the lost time and what's been taken - from the joy of being a new mother, to what was supposed to be a fulfilling career move in pursuing my PhD (I might have to give up my place now b/c I'm so disabled), to feeling defective for not responding to the 'right treatments.' The worst year of your life should not also be the first year of motherhood. To those of you that read this monster of a post – or event 10% - THANK YOU.
  14. Hello everybody. I have been on 12. 5 MG of quetiapine every night for 5 months. I started on december 2018. That dose was prescribed for anxiety. Last may the anxiety was blown off and doctor said its Time to leave the Seroquel. She suggested to leave it cold turkey but i refused. Searching the web i found you. Thanks God! I started the 10 percent taper. All went fine at the begining but now at 9 MG. The hypnic jerks appeared. My shrink insists That was a very low dose for a few months. I could leave it faster. The only thing im worried its That these shakings could grow as i tapper. This Is the only pill im in now. Is it really such a very low dose? Any suggestions? Thanks everybody
  15. I recently discontinued Seroquel 150mg (prescribed for agitated anxiety and insomnia), and now on Trazodone 250mg and Mirtazapine 30mg. I had been on Seroquel since Sept. 2018 . I feel awful - sleeping less, agitated, angry, depressed, don’t want to get out of bed, lack focus and hard to think straight. I feel dumber and want to avoid. Any insights on how long it may last or how to make it easier? I’m concerned that none of the meds have really helped me with anxiety/depression beyond getting some sleep. I am doing therapy, EMDR, exercise and meditation. I feel like a weird version of myself and don’t want to be around people. I get feeling hopeless about feeling better or like myself again.
  16. Summersun

    Summersun: Advice

    Hi, new to this forum. Clonazapam 27 yrs, Effexor 22 yrs..weaned off April 9, 2019 ..Seroquel 5yrs, Gabapentin 5 yrs. supplements: magnesium, D3!, B100, plus CBD oil. Over the past 3 yrs I've been tappering above meds on a rotation..Clonazapam 3 mg 2015 ,May 2019 .50 morning- .75 evening. Seroquel 300mg 2015 ,May 2019 25mg... Gabapentin 2015 900 mg 300 x3 times a day..May 2019-200mg 100mg x2 times a day.. I have tried to taper off 25mg going down to 12.5 of seroquel 3 times ,but had to reinstate..That was before going off Effexor a month and a half ago..I've recently 4 days ago tried to cut Seroquel in half but found the taper to be to difficult...I thought I would be okay because of been off Effexor but maybe I should of held longer after going off Effexor..It was rough. I'm not sure what my next taper should be..?..Is it better to taper Gabapentin till off completely before Clonazepam? I'm really feeling quite worn out any encouragement or advice would be much appreciated..I've been doing this on my own for so long ,except for the Ashton manual, so I much appreciate finding this group..🙎‍♀️
  17. In 2014, I was misdiagnosed as being Bipolar and Borderline, and was prescribed Seroquel. Slowly but surely, the dose was increased. In June of 2017, I was admitted to a psych ward, via my therapist. Because I refused any other medication, they chose to increase my Seroquel to 500mg. In August of that year, I met with a new psychiatrist and started to taper off of the medication. From August to December, I tapered down to 200mg. Unfortunately, I was not aware of how fast of a taper that was for my body, and I admitted myself to a psych ward for the fourth time in my life, for what I now know was withdrawal. I was prescribed Prozac and Gabapentin while in the hospital, and my anxiety has not been the same since. In 2016, I did a rapid taper from Diazepam and did not have any withdrawal symptoms. Because of this, along with having no idea how quickly Benzodiazepines could have a negative effect on my body, I chose to go back on the medication due the severity of my anxiety. It would take an incredibly long time to describe everything that I have experienced during my withdrawal and my experience with the system in general, but I can honestly say that it's been one of the hardest things that I have ever had to endure. In total, I have been on 17 different psychotropic medications. It's now April of 2019, and I am down to 50mg of Seroquel, while also trying to taper off of 10mg of Diazepam PRN. To say that it has been a nightmare would be an understatement, both physically and mentally. I can't remember the last time that I wasn't nauseous or filled with anxiety to the point that I can no longer drive. I was excelling in school, but am no longer able to attend due to being debilitated. Along with the nausea, I get brain zaps, my IBS caused from the Seroquel has gotten worse, my entire body is weak and sore, and I'm trying to manage all of the emotions that come with the withdrawal. Last year I was going to an acupuncturist on a weekly basis, but it became too expensive. I am slowly integrating organic and gluten free foods into my diet. I am also about to start taking Chelated Mangnese, Malungay, and Jia Wei Xiap Yao Wan on a daily basis. Does anyone have any prior experience or advice/support on tapering from Seroquel? To anyone that takes the time to read this, I greatly appreciate it. I have also been taking about 60mg of Buspar on daily basis for the past year for anxiety, and it also takes away my nausea to where I can eat again. Are there any supplements/natural remedies to help increase appetite besides exercise? It is incredibly hard for me to do so due to the chronic nausea, however, I would like to be off all psychotropic medications.
  18. hello all, thx for being here showing the way. my current doses and meds are listed in my signature... i take 68.75mg at night...one 50mg pill and the other a 25 mg pill that i try to "quater" into 6.25mg, not very succesfully! what i need help with now is finding my micro-taper rate and correct schedule, since i suck at math (failed it 2x in high school but they passed me because they pitied me for trying so hard and getting it so wrong!) i had been breaking my 25 mg pills into rough quarters but they no longer break anywhere close to 6.25 mg pieces...so i'm really suffering with the inaccurate pill splitting disaster. i'd love to try the ORA-Pro or actually this one: HUMCO 8916001 Flavor Blend 16 oz, Shape https://www.amazon.com/gp/product/B0773DL1XJ/ref=ox_sc_act_title_1?smid=ATVPDKIKX0DER&psc=1 it's way cheaper looks the same stuff to me...and do a suspension with it and see if i can get a more accurate dose, but after reading all the pages i can find on this site and benzo buddies and others i am still confused... the video on how to make a simple water titration that was for low dose naltrexone as an example showed me how to do the basics measuring 25 ml distilled water and dissolving a 25 mg pill in it for a 1mg medication per 1 ml liquid ratio. i understand that part. and as far as i got it, i would take my nightly 50mg pill of quetiapine whole as a dry pill and then draw out the 6.25mg/6.25 ml of liquid medication from the water solution and dispose of it and then drink/take orally the remainder of the liquid (18.75mg/ml) to make my current total nightly dose of 68.75mg of quetiapine. seems like i could be doing 5 mg/ml cuts instead of 6.25 if i use the solution or a suspension though...and i think i may be going to fast, or at leat the cuts are too abrupt, so i really want to do a microtaper, if someone could do the math part and then maybe i'd have a chance.☺️ where i get messed up is how to mix the ORA-pro/HUMCO suspension liquid with the (mortar and pestle crushed) 25mg pill of quetiapine and then how do i know how much to syringe out of the mixed suspension for my 18.75mg liquid portion dose? or if i did a 20mg/ml would it be easier to measure out? or if i did a microtaper of something closer to a fraction of a mg/ml every few days instead of 6.25mg cut every 4 weeks, maybe that would allow for a smoother taper and less rough withdrawals? i honestly don't even know how to divide 6.25mg by 28 days! i guess you can see why i failed math 2x! anyways... i 'd love to do the 10% (or less) reduction from the last dose as is reccomended, instead of the Ashton method of a "cut and suffer" that i've been trying to emulate...but all of the calculators and spreadsheets just serve to confuse me even more. if anyone here feels my pain and would like to point me to a "micro-taper schedule off of seroquel for dummies" chart or table that shows me exactly what to do for each day of the microtaper ...i don't know what i can offer in return! my eternal gratitude? my kidneys? lol thx again
  19. Hello Im new here. Thank you for taking time to read this if you are. :) I have been on Mirt for only 12 days at 15 mg. Im looking to come off due to side effects, its just not suited for me. I was going to do 11.25 for 4 days, 7.5 for 4 days, 3.75 for 4 days, then off. Is that too quickly? I thought not since I have only been on it for 12 days at 15 mg. I appreciate everyones input and advice! :)
  20. Okay, I am a newbie to posting online and have spent the last 2 months searching Google since this happened to me, so please bear with me if this seems a bit long. I just want to get my story out there so people can see what has happened to me and offer any possible advice. In October 2017, My GP put me on Lamictal for mood and 22.5mg Restoril for sleep. I have been on Restoril since 11/2016 roughly. At the time I had a diagnosis of BP2. My pdoc at the time 2 weeks later switched me from Lamictal to Lithium by tapering the Lamictal from 150 mg to 100mg then 50mg every three days, he felt it would be more effective. I went up to a dose of 1200mg of Lithium but it made me sick so we moved down to 900mg, which seemed to be effective. He added Latuda 40mg but it made me irritable, so he switched that to 5mg Abilify in 12/2017, no taper from the Latuda. That combo seemed to work for a while but then I felt emotionally blunted and numb, so my pdoc then lowered the dose to 2.5mg. I felt better so I then (stupidly) quit CT the Abilify in May of this year. At the same time he also tapered me off of Lithium which I was scheduled to stop taking on 6/27 due to constant diarrhea. He then prescribed me Klonopin for anxiety. I started feeling too high from it and was feeling depressed, so about a week and a half later was put on Lexapro. The Lexapro made me feel extremely sleepy and out of it, took from 6/18/28-6/21/18, stopped taking. Pdoc then switched me to Effexor XR 37.5mg on 6/22/18, felt extremely depressed and anxious, did not take Klonopin or Valium. I had little to not appetite and was not very talkative. 6/25-6/28/18 Felt much lest depressed, better than I had in the past month, taking Klonopin as needed for anxiety. Stopped the Effexor today and the Lithium. Started Paxil 10mg the same day. At this point still taking 22.5mg Restoril. I noticed since I started the Lexapro and stopped, I had been getting 3-4 hours sleep and started to feel thirsty. When I started Paxil on 6/29, it was at night and I woke up several times and had stomach cramps. Still had a stomach ache the next morning and felt depressed. Depression and brain fog got worse over next few days, the dose was increased to 20mg after 5 days. I would wake up with sweats in the middle of the night so on 7/4 at the advice of my pdoc covering on-call doc I stopped the Paxil because I became suicidal. At this point as of 7/8 all I was on was on Restoril for sleep. I noticed tinnitus and felt extremely anxious and regular stress almost gave me a panic attack. At this point I was having the following symptoms: Tinnitus, anxiety, depression, insomnia, feeling thirsty and dehydrated, heart palpitations, brain fog, stress intolerance. Restoril seemed to have no effect now. Pdoc prescribed me Ativan for anxiety and I told him I want to taper off of Restoril since not working any more. He advised me to taper by taking 22.5mg 3 days, then 15mg 4 days, 7.5mg 3 days, then stop. He also prescribed Mirtazapine 7.5mg for sleep. I noticed the Ativan raised my heart rate. On 7/16, as I started to doze off I got a brain zap. Ever since this day I never get sleepy and have TOTAL insomnia, can never fall asleep on my own without some kind of medication. Noticed increased palpitations and severe dehydration. Hands and feet sweating. On 7/18 I had a tingling sensation in my brain and then blurred vision in my right eye. I also noticed a weird smell of some kind of chemical or paint on 7/19. On 7/21 they advised me to switch from Trazodone to Mirtazapine 7.5mg for sleep again and also take Lunesta 3mg if needed (prescribed by a sleep specialist). Still not getting sleep. Now at this point I notice blurred vision and loss of appetite. On 7/24 my pdoc wanted to put me on Zyprexa for sleep but I refused. He prescribed Lorazepam to take as needed for anxiety. On 7/25 high blood pressure, then after then went back down to normal. At this point I feel like I am dying. My sleep specialist tells me to try cognitive behavioral therapy. (Yeah right, Been there, done that!) 7/27-7/30 I had been taking Lunesta for sleep and Ativan for anxiety (pdoc switched again because Lorazepam was not working), but sleep doc said long taper not needed to get off Ativan, withdrawals are psychological and not physical nothing will happen to me if I do not sleep and I don’t have to worry about withdrawals. 7/31 had muscle jerks when going to bed. Lunesta stopped working so GP said try Hydroxyzine and then Trazadone again if Hydroxyzine doesn't work. Of course this did not work, so my pdoc put me on Ambien CR 6.25mg and 1500mg Depakote as a mood stabilizer. I tried this for a few days and still had trouble sleeping, getting 2-3 hours. GP Prescribed Seroquel for sleep. Took 8/16-8/17, 50mg and 25mg respectively, and did not sleep for more than 1-2 hours. Now I am seeing a NEW pdoc, she has me tapering off of the 50mg Seroquel, taking 10mg Doxepin at night, 5-15mg Melatonin as needed, I am still on the 1500mg Depakote. I have totally gotten off of then Ativan by tapering using diazepam. Each day I feel like I am worse than the day before. I am trying to figure out where I go from here.... stay on the current dose of Seroquel and try to reinstate the drug that may have caused the HORRIBLE withdrawals and total insomnia I am experiencing now (either Abilify or Paxil), or follow my new pdoc advice and taper the Seroquel and see how it goes (whilst adding the doxepin and Melatonin, breaking the keep it simple rule)? I am desperate and totally sleep deprived and getting worse by the day, which is why at this point I think she is just trying to get me to sleep. I even have an EEG next week to check for problems there. Thanks for reading. Kevie
  21. My boyfriend is now off seroquel and is having major physiological issues to the point that he is at his breaking point. I’m interested in seeing what others have done to improve this. I also am slowly coming off seroquel and am trying to get a better understanding.
  22. Hello. I had severe postpartum depression which started at 8 weeks postpartum in December 2017. It was endogenous and melancholic...lots of agitation and anxiety, pacing around, taking on psychotic features. I was put on Seroquel XR 100 mg and 50 mg on seroquel IR both in the evening. Ive managed to come down on the IR by going down 12.5 mg every 2 weeks. I waa fine but once I got to zero (just using the 100 mg XR and no IR) I was hit with nausea, throwing up, loss of energy and anxiety. Also horrendous diarrhea. This feels like the flu its unbearable. What do I do now? How can I wean slowly off the remaining XR when they only come in 50 mg tabs and you cant break them? Scared :(
  23. I have been diagnosed w ptsd, major chronic depression, bipolar2, and chronic pain. I take cymbalta 120mg daily, lamictal 100mg at night and bedtime. I have seroquel 25mg bid as needed. I am experiencing hypomania, irritability, discontent, and sometimes doc thinks its a serotonin syndrome in making. I know what that feels like. I took nucynta once for pain. Got off of it right away. So, i have permission by psychiatrist to play around w my dosage for comfort. I want to taper off cymbalta and lamictal, i have decreased lamictal by 25mg, at night. I have 60mg caps of cymbalta. I took 1 on monday, tues, and wed. Today i felt headachey, and my back pain flared up. I taught my swim lessons, came home and took the other 60mg. I feel better physically. I want to lower potential for hypomania,
  24. I cold turkey Seroquel 300mg for 3 weeks then reinstated 100 mg again because the withdrawal was too hard nausea and anxiety really bad. Its been 2 weeks sinceI dropped to 75 mg still have w/d.how long don theses last
  25. Hi guys, I’ve been doing some research into histamine since I believe it plays a very key role in the withdrawal process--at least from the medications that I’m on. I will summarise what I’ve found below as well as the potential impact it could have on managing the withdrawal from antipsychotics such as Zyprexa/Seroquel. I searched this forum but couldn’t find any good overview or discussion, so hoping this can help people. Many of the popular antipsychotics such as Olanzapine/Zyprexa and Seroquel/Quetiapine have a very powerful antihistamine effect: only a very small amount of these medications are required to block the H1 Histamine receptor. Zyprexa, for example, has a Ki(nM) of 0.65–4.9 according to Wikipedia, which is incredibly low (the lower the Ki(nM), the smaller the amount of a medication is needed to block a certain receptor). Therefore, withdrawing from histamine-blocking medications (Zyprexa/Seroquel) is associated with increased histamine (as the blocking effect is reduced, histamine levels become elevated). Certain groups of people might have even had a histamine intolerance and/or high histamine before going on psych-drugs (and both histamine intolerance and high histamine--also related to under-methylation--have been linked to psychosis and other psychiatric disorders), so coming off histamine-blocking medications can also exacerbate this pre-existing imbalance, on top of the effect described in the point above. Histamine is a neuromodulator of the adrenals, so elevated histamine can make the adrenals release a lot more adrenaline, instigate ‘fight or flight’ mode in the body and cause severe anxiety. There is also a strong link between histamine and sleep; having high histamine can cause insomnia. Interestingly, histamine levels naturally peak around 3am/4am, which is when many people experience cortisol spikes and unwanted adrenal activity. Sound familiar? All of these symptoms are very common in the withdrawal process, as we unfortunately know. When withdrawing from histamine-blocking medications, you can take steps to bring down histamine levels to help manage the adverse effects mentioned above. I’ve found anecdotal success stories online from the world of integrative medicine; Alice Lee (MD) says: “If you ever want to successfully reduce a medication that blocks histamine receptors, you will need to know how to lower histamine levels.” Lowering histamine levels can be done through a combination of diet and supplementation: 1) Follow a low-histamine diet (google it for more info!) 2) Through supplementation - taking a histamine digester that ‘chews up the histamine in food’ - Alice Lee recommends Histazyme (by Dr. Amy Myers, MD), but I’ve also seen Daosin 50 and other brands which all contain the same ingredient, Daimine Oxidase 3) Supplementation - natural histamine blockers like Allqlear by Integrative Therapeutics, Histaplex A-B by Biotics Research, or Opsin II by DesBio. Avoid xenobiotics for antihistamine support, such as Benadryl, because the body will react with an inflammatory response to a xenobiotic. I know that this kind of integrative approach is generally a dirty word on this forum, but for me it makes too much sense to ignore. Most of this advice comes from Alice Lee, who is a “holistic psychiatrist” who actually went through the withdrawal process herself, and reports impressive success stories weaning her clients off all kinds of medication (APs, ADs), just check the testimonials on her website TL;DR: I’m going to try a low histamine diet (being more careful around the time when I make a cut to my medication), as well as adding some of the anti-histamine supplements and histamine digesters. I will still be tapering using the 10% method. If anyone else has research or real experience in this area, I would be very curious to hear it. I think it is a very under-recognised factor and understanding more could potentially make for a smoother withdrawal. I'm also conscious that it's only one piece in the puzzle, and there are other receptors to tackle too. But for insomniac, Zyprexa-dependent folks like myself, it could be really key. More reading and links to the success stories can be found here: http://www.holisticpsychiatrist.com/viewpoint/2018/6/7/understanding-histamines-connection-to-mental-health and http://www.holisticpsychiatrist.com/medication-withdrawal/ https://beyondmeds.com/2014/07/13/histamine-psych-drugs/ and https://beyondmeds.com/2013/01/07/histamine-intolerance/ from around 33 mins https://www.mthfrsupport.com.au/dao-deficiency-and-histamine-the-unlikely-connection/
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