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  1. I was forced on to medications when I was hospitalized for postpartum depression and anxiety and I was put on some of apparently the worst medications to get off of. I am currently taking 75mg Effexor XR, 5mg 3x of Buspar, and 100mg of Trazadone. I am feeling incredibly anxious about about tapering. Right now my plan is to start tapering the Effexor first, then Buspar, then Trazadone. I am really having a hard time thinking about being on all these medications for so long to do a slow taper. Is it possible to taper multiple drugs at the same time? Does anyone have encouraging stories about getting off of these drugs? What are the rates of withdrawal symptoms doing the 10% method? How do you ultimately end the 10% method?
  2. I have a 23 year old non-vocal child (autism, self-injury, mood disorder and agitated catatonia.) Since they cannot tell me about the withdrawal effects they are experiencing I'm reaching out for some help. They have been on 175mg of Zoloft for 3+ years, they have also been experiencing severe periodic limb movements of sleep which I've read can be a side effect of Zoloft. The doc recommended reducing Zoloft by 25mg every two weeks. Within 3 days of reducing the Zoloft my adult child starting have problems with falling asleep and staying asleep as well having short periods of unusual agitation during the day. The doc doesn't think the insomnia is related to the taper but it is clear to me that there is a direct correlation. My thoughts are reducing the daily zoloft in increments of 11.5mg per month (cutting a 25mg pill in half,) This taper would take us through mid-October of next year before we could discontinue. Does this sound reasonable? Are there any other possible/likely discontinuation symptoms I should be on the watch for? Regards' Zwerger Parent of Adult non-vocal child with various mental health conditions Zoloft 175 Taper Recommendations Needed Venlafaxine 150MG Trazodone 250MG Depakote ER 500mg tabs, takes two pills each in AM and PM for a total of 2000mg
  3. Greetings everyone! Just want to say I am so happy to have found this forum and website. Have been drifting along with no oars for a decade, looking for answers. Was beginning to believe this would be a lonely journey, and was not seeing any light at the end of the tunnel. A little personal history, had often struggled with anxiety (and to a lesser degree depression) for most of my life. Initially took the form of public speaking fears, and social anxiety, around the age of eleven. Of course, was unable to recognize it for what it was and later sought help for panic attacks in my early twenties, after believing I was having a heart attack following a bad breakup from my girlfriend. Was soon turned onto Cognitive Behavioral Therapy by a wonderful psychologist that helped immensely. CBT served me well over the next 15 years, including talk therapy with several psychologists and the occasional Xanax spot treatment when things got really rough. Unfortunately fell into the SSRI trap in late 2008, after moving cross country to a depressing weather climate in Seattle, WA. Had accepted a high stress corporate sales position with a manager I was not fond of (feeling was likely mutual) and had also just gotten married earlier that year. Needless to say, it was a confluence of stressors that rendered me an insomniac for the first time in my life. Heavy depression had also settled in, and I feared for the health of my marriage. After taking medical leave from work, I began to meet with a neuro psychologist that prescribed a daily dose of 20mg Lexapro, with 50mg of Trazadone for sleep. Immediately began to feel alive again, like the shackles of my despondency were thrown off. Started to excel at the office, repaired my teetering marriage, began an exercise routine, and just generally had a zeal for living again. For that I am eternally grateful. Also continued to meet with the psychologist and practice CBT. I'm not fond of taking prescription meds long term however, and as I began to ask questions about the duration of my treatment, was told I needed to be patient as structural changes to the brain often take at least a year or longer. I took her word for it obviously, and believe she had my best interests at heart. However, looking back on it now, I feel many in the medical profession on see the improvements on the front end, and take the word of medical journals and "research" regarding the discontinuation of these drugs. Most will never experience the horror of attempting to quit these compounds, believing only that they are "non-addictive" and conquered with an easy taper. In the years since, have attempted to come off at least three times now (maybe four?) with little success. If I remember, my first attempt was a "self ween" over the course of a month that failed spectacularly. A couple years later, I attempted a three month "ween" off of Lexpro that was also unsuccessful under medical supervision. Last attempt in 2015-2016 was a five month slow taper off of Lexapro and a conversion to Prozac with the extended half-life. Did not win that battle either. In all cases, I would describe the classic discontinuation symptoms I've seen noted here and elsewhere...the return of my anxiety at greater levels than before I began to medicate, often without any "triggers", trouble getting a solid night's sleep (waking early), general dizziness, the attendant brain zaps with falling asleep, trouble focusing on tasks, short term memory issues, etc etc. Am still fighting the good fight here, but have come to this forum for help. This is easily the scariest time of my life...have a son I don't feel like I'm always present for because of my preoccupation with getting through this. Constantly wonder if I am "brain damaged" after having ingested these compounds for over a decade. Can't say I have half the drive or motivation to succeed I used to, my creativity has bottomed out, and it just feels like something has been lost. Also happen to believe that SSRI Discontinuation Syndrome will be the single greatest mental health crisis in the future, if it is ever acknowledged! Seems to be a lot of suppression over truth as I talk to more and more medical doctors across the country. Again, I am so grateful for having found this forum and would appreciate any help and support! Am willing to do the heavy lifting on my own, but a little encouragement and education goes a long way... Peace, Monk3yl0ve
  4. Hi all, I'm new and needing assistance. I was on antidepressants/stimulants for years and have managed to quit the stimulants, but am living through the hell of withdrawal from my SSRI, Zoloft after tapering too fast as you'll see below. This nightmare started in late May of 2020. I have some physical symptoms besides extreme fatigue, and the withdrawal itself is extreme anxiety, panic, depression, brain fog, confusion, poor memory... most of what is on the list of typical symptoms, and what I have come to understand is OCD. The crushing, breathless feeling of just having to get by minute to minute is like nothing I have ever experienced before. After reinstating Zoloft 12.5 mg in July, I seemed to stabilize a little bit after a few months, and withdrawal symptoms are just slightly better although the OCD is not budging. I need help/advice with moving forward with a taper. Right now I am not sure if I should wait a while and stabilize further since I just tried to stop the 12.5mg cold turkey less than two weeks ago and realized after 3 days it was a bad idea (although it did lead me to this site). I have been back on the 12.5mg Zoloft for a week. I was able to get liquid sertraline (Zoloft) from my doctor but I am unsure how to do the dosing. What I mean is, I recognize that I should reduce by 10% every 4 weeks, but I am unsure of how to dose this out from the liquid. I would really appreciate some help with this and advice on how long I should wait until trying to reduce.
  5. Last February, I was getting close to tapering off of Paxil, when I got the flu, which made my body think that I had stopped Paxil cold turkey (at least, that's what it felt like). I went to the hospital, and they bridged me over to 40 mg Prozac and added 2.5 mg Abilify and 100 mg Trazadone for sleep. The Abilify actually calmed me down so I could think rationally. I tapered off the Abilify after 2 months, no problem. I had stabilized and was feeling great from late May to September. In late Sept., I discussed with my doctor about tapering off Trazadone next. I had been on it for 6 months. She agreed. I did a 5% taper per week (95 mg, 90 mg, 85 mg, etc). At 85 mg, I started "jolting" and twitching in my sleep. I jumped back up to 100 mg to stabilize. I didn't realize Trazadone was going to do that to me. Two weeks after that, nausea started appearing. And then head pressure and some ringing in my ears. It's now been 6 weeks and it hasn't let up. I'm barely functioning at all. What did I do wrong? I was wondering if I still have some Paxil withdrawal in the system that the Prozac and Trazadone had been covering up for me. Anyway, how slow should one come off of Trazadone? My doctor has suggested that my body must still be sensitive from all the medicine changes in March. She says that when I stabilize, we should wait a year before trying to come off of it again. A part of me is thinking of going back on 2.5 mg Abilify for no more than 2 months (like the first time) so that I can actually function. Help!
  6. Hi, I found this site by looking for ways to wean off venlafaxine. I have been on it since 2017, and my dose has increased over time to 300mg/ day. I was successful in going cold turkey off both Seroquel and Dopaquel at the end of December last year, but it did require me to take 3 weeks of work to do so. I originally landed up on all these meds, as I looked for help to get my off alcohol, and between my Therapist and the Dr, my drinking was primarily to shut out my anxiety. I am 2 years sober this coming December, and have managed to get on top of my anxiety - I just want to get off the Venlafaxine. I am not sure if I am ready to change my night time meds, which is the Trazadone and Tripiline combined, which has made a huge difference to my sleep for 10 years, and has lowered the amount of migraines I get. I have just come back from an appointment with my Psychiatrist this morning, where I raised that I wanted to get off the Venlafaxine, as I hate that it controls my entire life, and you cannot miss even a few hours taking your next does, because I get popping electric like flashes, my head feels dizzy or shudders, and my mood just tanks. My Doc said my only option was to start on another med, Wellbutron, get that working, then start to taper off the Venlafaxine slowly over 5 months, but then she would need to introduce another SSIR. I want to get off the meds - not start some more. Looking forward to a meaningful journey.
  7. Can someone help me to withdrawal Trazodone and Fluoxetine? I’m also in protracted Benzo WD. (22 months off after 4.5 yeras on Lorazepam). I’ve also been 5 months withdrawing pregabaline (225 mg) since march to august, and I have also been able to reduce Trazodone from 50 mg to 22.5 in 5 months (extremely difficult) . I’m also taking 1 capsule (20 mg) fluoxetine every 10 days because I can’t afford WD symptoms. I need a proper plan. Even if it’s 1 or 2 years. I’m exhausted and suffering. I find it hard even to write. I feel I can’t do this anymore. My sleep is fractured and poor (no REM sleep). I can’t even calculate dosages or plan tapering methods. At this stage I’m too sensitive to any cut. Many thanks in advance.
  8. I'm brand new to this site. I have been on the ride of psych drugs since my late teens. I started with sertraline, which I went off of cold turkey after six months. I self-medicated with drugs and alcohol for the next decade. Was put on paroxetine at age 29. Went off quickly when I became pregnant. I went back on paroxetine in 2012 and was on it for six years. It didn't help much, I gained a ton of weight and had decreased sex drive. In 2018, I went into crisis and began a horrific journey of medication chaos for the next two years. I can list all of the drugs I was put on, but not the length of time or dose for each: venlafaxine, fluoxetine, risperidone, escitalopram, bupropion, propranolol, trazadone, aripiprazole, lithium, lorazepam, lamotrigine, and a variety of other nonpsych drugs to counteract different side effects from these drugs. In the late summer of 2019, I began to taper off all medications with the assistance of my psychiatrist. I took my last dose of psych meds on November 17, 2019. I've been med free for over nine months. My mental health continues to be very difficult, but I am glad that I'm not compounding these issues with the torturous effects of psych meds. I know that psych meds seem to offer relief to some people, but they made things worse for me. I now work as a Peer Wellness Specialist to help others living with mental health challenges navigate their recovery. I'm just seeking connection to others who have had similar experiences with psych meds, as well as looking for more information to help others who decide to go off meds or need support with the meds they are on. Thanks for being here!
  9. Hi Everyone I apologize for so much information at once I'm too sick to do a full brand new post so I have copied and pasted posts from support groups on facebook I was directed here too for help. I am in desperate need to know if I should reinstate any of my medications or if it is too risky. I was wondering if I should try taking the lyrica again then do a proper taper, the psychiatrist put me on for my anxiety I never had pain before I took it until he took me off it too fast I first started getting the muscles contractions and horrible muscle cramp pain and had my first uncontrollable muscle movement episode of my face after the lyrica was stopped with only a 4 day taper which I did not know was too quickly I had been on it for 5 weeks. I think the lyrica stopped so suddenly started it all but then the escitalopram and trazadone tapers and getting off them too quickly just made everything worse. I have been so desparate in my thinking to see if there is a way to reverse this what I think may be dystonia that I have been thinking should I try to go back onto the lyrica to see if this disappears and then do a really slow proper taper but then I think it is so risky what if I really mess myself up worse but living with this and with it only being so soon 4.5 months and I have so much pain already I already cannot handle it I cannot imagine handling it any worse. I'm so afraid and do not know what to do I'm afraid that this will not go away with time if it is the dystonia. What does anyone think do you think trying lyrica again would be worth the risk? it is so hard to know what to do considering I had 3 too fast drug tapers. Does anyone think this would be too risky? I'm sure I have developed dystonia more and more everyday it scares me. I can feel my waist and hips turning to the left and I have less control of my legs then normal and the feel wobbly or like spaghetti or elasticy I don't know how to describe it and my neck and head want to turn to the left I feel like a force is pushing it to the left. Also I feel the muscles in my face moving mainly wanting to pull down especially in my jaw area and my neck and face muscles get tight. I also have had 3 times where I have had uncontrollable movements of my face that lasted for hours the first one was the worst that happened right after I was stopped on the lyrica in the hospital that included my eyes, tongue protruding and mouth, pretty much my whole face and my neck and right arm twisting to the left the nurse told me it was anxiety and to calm down I did not believe her that it was anxiety I have had anxiety long enough to know it does not do that. Since then I have had 2 more episodes that involved then same area's but not my tongue. I'm very scared of my future and no doctors will say the drugs have anything to do with it. Also my hands, wrists and lower arms get stiff throughout most of the day. My muscles get unbearably painful a very very deep bone consistent aching pain. I was able to move around today more and do some things in the kitchen and I did notice the pain lessened while I was more active. This is when I really noticed though I'm definitely dealing with the twisting of my right side of my body to the left. It makes me walk around like I look intoxicated. I really respect all you peoples opinions and knowledge and have some questions to ask if you would not mind. I was wondering could it get better or go away and just be a part of withdrawals or once this happens do you have it for life? Have been off antidepressants for for 3 to 4.5 months (too fast tapers) had been on poly drugged for 1.5 years then before that on citalopram for 10 years. A huge mess I was fine for the first 10 years developed insomnia and my anti was switched to trazadone and when that did not work the poly drugging happened for 1.5 years (I was a zombie and almost entirely non function able still am but no longer a zombie but I am extremely sick now riddled with unlivable pain still suffer from insomnia and take unfortunately 7.5mg zopiclone and 1mg clonazepam a day) but these last few days my muscle pain, uncontrollable cramping, stiffness, tightness in my head, face, throat, neck, right arm/hand, shoulder and sometimes my left arm/hand and also episodes of uncontrollable muscle movements of my face is so unbearable lately I cannot handle it any longer. Today I have been at my wits end desperately not thinking I can go on any longer. I am so sick fluish this last few months also I'm getting to the point the pain in intolerable another minute it is almost 24/7 I have only had the muscle pain or tightness cramping go away for maybe a half hour a few times in the last month. It is too much. I was so sick before all this for the last 1,5 years that I am so weak I cannot this week get myself to hardly eat and bathe the pain is so intense I want to it all to end. No one can help me. I need to desperately no what to do. The pain is like you have if you get a severe cramp or charlie horse for instance this morning it has been a constant charliehorse in my lower right arm and hand, right shoulder, neck, face and head. It is so painful I only could sleep for a couple hours last night. I even took a baclofen (which I only have taken maybe 6 times in the last 3 months when I feel I can no longer take the pain another minute), 2 advils, clonazepam and all my vitamins. I just do not know how to go on any longer. I have no support group at home. My husband is my only person I have and he along with my doctor think my pain is psychosomatic. My husband cannot tolerate my complaining or crying or making any sounds of or about my pain. I don't know how to make the pain stop or live with it anymore so it is tolerable. I cannot handle the suffering anymore I literally am desperate for help so badly. Since lyrica was one of the last meds I was on that the pain started after the psychiatrist took me off with only a 4 day taper and that is when the nerve and muscle cramping, movements and severe head pain started I do not know if I should try to reinstate after being off it for 4.5 months but I think it is too risky but then again I'm desperate for this muscle pain relief i am so afraid I have the early stages of dystonia too. I have had episodes of uncontrollable muscle movements of my face, neck and right arm. I am so afraid of that. But this muscle pain is so intense it is unimaginable I really need to numb this pain somehow. The severe head pain migraine burning so painful 24/7 and the piercing tinnitus. Even the numbness, tingling burning nerve pain allover but the worst is the muscle pain it is so severe. Whenever I try to type on the computer this all makes my pain levels go up so much worse but I need the help so badly, emotional support. I am desperate I feel for my sanity and my life, I need knowledge so bad. I want to do everything right now. I want to get better if there is any chance. I need something to keep me strong to endure this it feels like I am being tortured daily and have to put up with it because no one will listen to me. I wish I would have been thinking clearly enough to search out support groups before I let him put me on these meds or atleast before they were stopped or the too quick tapers. I cannot stop thinking about wanting to turn back time. I hope my life is not ruined forever unless I can get this pain under a tolerable level and I pray to god I do not have dystonia but I fear I do from having joined a dystonia support group on here it sounds all to familiar. I do not know how I can make it through life with no support, knowing my doctor is not listening to me and my husband is not trying to help get me better just not wanting me to bother him with my pain or worries, be silent. How do I survive this? I cannot hardly look after myself being so sick, I have nowhere to go. Does anyone else that had been off antidepressants for as around long as I have 4.5 months or longer experience this muscle cramping, severe pain? Please explain where in your body and the level of pain? Also any uncontrollable muscle movements? What do you take besides magnesium for the pain? Does anyone ever recover from antidepressants withdrawals/pain after stopping them too quickly after being on antidepressants for 12 years? Brief History Born August 1, 1970. Female 48 years old. At time of illness Tracy had been a National Lifeguard Instructor Trainer and Lifesaving Society Instructor Trainer with a career as an Aquatic Supervisor at an indoor town pool for 5 years. Training and certifying Lifeguard/Swimming Instructors, supervising daily duties of lifeguards/Instructors/front deck staff as well as implementing and maintaining programming, scheduling, operational procedures and guidelines. Before that Tracy had owned and operated her own Day Spa for 10 years as well as worked in advertising. She graduated from college in 1993 in Graphic Design/Advertising Art. Tracy fell ill from insomnia in September of 2018 she had been just diagnosed with severe sleep apnea and had just started cpap therapy but found the treatment invasive and could not tolerate the cpap treatment enough to fall asleep with the cpap machine. She had been lead to believe she would die in her sleep if she did not use her cpap machine and became fearful and so persistent in always using her cpap machine while sleeping that her intolerance to the therapy resulted in severe insomnia. Citalopram 20 mg/day and 1mg Clonazepam as needed for 10 years prior to her insomnia. Clonazepam was rarely needed. Dec. 14, 2018 Citalopram 20 mg/day was changed to Trazodone 100mg/day. Clonazepam 1mg/twice a day. Mental Health declined due to sleep deprivation, becoming emotionally weak and sensitive, frequent crying, anxiety and ability to function daily declined. Was no longer able to work due to 3 months of insomnia and mental health decline after medication change. Feb. 9 -16, 2019 Psychiatric Ward Sertraline 20mg/day was tried but discontinued due to side effects. 20 mg/day Citalopram was added to the Trazodone 100mg/day. Clonazepam 1mg/ twice a day. Was very ill on the combination. After Feb. 16 – June, 2019 Citalopram 20 mg was discontinued and Trazodone 100mg was tapered and stopped. Clonazepam was tapered to .5mg then switched to Valium 10mg and tapered to 2mg, Buspirone 10mg was added then stopped. By this time insomnia had become extremely severe and ability to function daily on the most basic level was lost. Anxiety was severe and dehabilitating. June 1 - August 9, 2019 Psychiatric Ward Quetiapine 100mg/day added. Citalopram 50mg/day started then after 5 weeks discontinued due to intolerable side effects and switched to Mirtazapine 45mg/day, Fluoxetine 20mg/day, Zopiclone 7.5 mg, Clonazepam .5mg/twice a day. Discharged feeling very drugged. Was able to sleep with cpap machine 7-8 hours/night(every 24 hours) Had regained ability to keep up hygiene and function on a basic level. Mentally was very out of it. Aug. 9/2019 – Nov. 12, 2019 Due to feeling so drugged from Sept. 9/2019 Fluoxetine 20mg was tapered and stopped on Oct. 2/2019. Clonazepam was increased to 1mg/twice a day. Oct. 14 – Oct. 19/2019 felt the best that I ever had felt since falling ill in fall of 2018 but my mind and body felt very weak and fragile but then for no known reason I went past the feeling better stage and started to decline back into having a hard time functioning mentally and physically but could still do daily functioning tasks. I was able to keep good daily hygiene, cook supper, keep the dishes washed, take on a small cleaning task every day for example wash off a coffee table or do wash a load of clothes. Nov. 12/2019 – Dec. 12/2019 Hospital Was admitted at routine doctors appointment to the hospital since I had declined from starting to feel better and I continued to decline during the Quetiapine taper. Quetiapine 100mg was tapered and stopped, Zopiclone was reduced to 3.5mg/day, Clonazepam was increased to 1mg/three times a day After this I started to feel like I was improving as in not feeling so drugged and I was mentally and physically able to function better. I suggested staying on Mirtazapine 45mg for awhile to see if I would stabilize on it and be ok my doctor did not agree so the Mirtazapine 45mg was tapered to 15mg and I was started on Escitalopram 10mg. I was on this combination for the last week I was in the hospital before going into a different psychiatric ward for a second opinion on a treatment. My body felt good no body sensations or pain but a small headache and my mind felt weak but not bad cognitively, my anxiety was mid range level to high. I questioned in my mind whether I should still go to the psychiatric ward and if I could handle living this way and if I would get better but arrangements had already been made and I thought at the time maybe I could get stabilized there on the Escitalopram if it worked and have my ability to sleep maintained. On my initial appointment my husband and I had with the psychiatrist before entering he had said his goal was to get me on only the Escitalopram and hopefully if my anxiety could get reduced I may be able to sleep without and sleeping medication. Being on only one medication sounded good. Dec. 12, 2019 – Feb. 3, 2020 2nd psychiatric ward Mirtazapine was stopped, Escitalopram had just been increased to 15mg/day, Clonazepam was reduced to 1mg/twice a day. Zopiclone was increased to 7.5mg. The first week of being there I felt really good I had no body pain or sensations, my mind was clear but felt weak but I was thinking well. My anxiety was high during the day but after my evening clonazepam dose of 1mg I felt anxiety free and really good but I was getting very tired again as my sleeping had started to decline since the Mirtazapine had been stopped. Escitalopram was increased to 20mg as the next couple of weeks progressed and then I felt drugged and out of it again, not fully present and was no longer able to think as clearly my basic functioning was on the low range but I was able to keep up my daily hygiene and attend groups. Lyrica 100mg/day was started on Dec. 29 for anxiety. Clonazepam was switched afterwards to Lorazepam .5 mg twice a day then shortly after discontinued. I had not wanted to take the Lyrica because the goal had been to have me on as little medications as possible and I did not have nerve pain but the psychiatrist said it was better to be on Lyrica then Clonazepam. Feeling pressured to try it I gave in. Trazodone 100mg/day was started on Jan. 14/2010 and within the first week after that I started to experience muscle pain throughout different areas of my body and developed a constant migraine headache, sweats, chills, ear pain, nausea and constant diarrhea. I did start to sleep longer but could not fall asleep with my cpap machine anymore. Since Trazodone had not worked well for me in the past while being on it and the citalopram at the same time I was not comfortable going on it but the psychiatrist told me he would take me off it if I did not feel well on it. At this point I was not thinking clearly and wanted to not make the psychiatrist give up on trying to get me better and I felt extremely pressured to not go against his treatment plan. I told the nurses and my psychiatrist during the last 3 weeks I was there that I thought the Trazodone and Lyrica had me take a turn for the worst and that I was very sick. I was desperate for them to listen to me but they turned a blind eye and had closed ears to my complaints of suffering. 7.5mg/day Zopiclone still continued but was raised to 10mg/day the last week I was there. Lyrica 100mg/day was discontinued on Jan. 27/2020 with only a 4 day taper. My psychiatrist was not happy that I wanted to go off it because I felt it was making me feel drugged and I thought it was contributing to my body pains and migraine headache. He told me I was to be discharged within that week. He told me to take whatever he wants me to take that week without question. He at the same time as discontinuing the Lyrica took me off my propranolol 20mg, enalapril 5mg, Atorvastatin, reactine. He raised my Zopiclone to 10mg/day and put me on another medication which I cannot remember the name I was told by the nurse when I was given the first dosage that it was an older type of drug that was often given to shift workers to keep them awake during the day. I started the first dose on Jan.29/2020 but only took it the one day because that was the first day after I took it in the morning around 10am I started to experience a burning searing excruciating headache/migraine, tinnitus, hot sweats, uncontrollable muscle cramping over my entire body including my neck and face, my legs and feet went numb and my body pain was excruciating. The nausea and not being able to eat much but digestive cookies and constant diarrhea was the state I was in at the time I was discharged on Feb. 3/2020. Dec. 12, 2019 – Feb. 3, 2020 2nd psychiatric ward I was in treatment trying to get better the psychiatrist put me on all these I got very ill and he took me off the lyrica too quickly which I did not realize at the time and then discharged me sick not knowing what to do and telling my husband and I that I had to start taking my treatment into my own hands and that I had been off and on enough medications in the last 2 years that I should know how to taper and what drugs are making feel bad that he had know idea that I knew my body the best. So my doctor tried to help I was in so much pain and sick (not as much as I am in now though) here are the too fast tapers Escitalopram 20mg Started on Dec.5, 2019 Taper: Feb. 16 - 20, 2020 15mg. Feb. 21 - 26, 2020 10mg. Feb. 27 - Mar. 2, 20202 5mg. Mar. 3 Stopped 0mg. · Reply · 1d · Edited Lyrica 100mg Started on Dec. 29, 2019 100mg. Taper: Jan. 24 - Jan.27, 2020 50mg, Jan. 28, 2020 Stopped 0mg. (only 4 day taper) · Reply · 1d Trazodone 100mg Started on Jan. 14, 2020 100mg. Taper: Feb. 4 - Feb. 14, 2020 75mg. Feb. 14 - Mar. 6, 2020 50mg. (Then paused Feb.16 -Mar.3 for Escitalopram taper) Tapered again: Mar. 6 - Mar. 25, 2020 25mg. Mar. 25 to Apr.6, 2020 12.5mg. Apr. 7, 2020 Stopped 0mg. I'm currently not on another antidepressant this last treatment scared me so much I did not want to start another one. I currently am still on the zopiclone 7.5mg and clonazapam 0.5 twice daily though unfortunately and will have to at some point try to get off those.
  10. Hi, my name is Aember and I have had severe negative reactions to SSRIs after very fee doses. I have been sick since January 2020 with a mystery degenerative neurological condition that is affecting my ability to think and feel. I am experiencing progressive dementia and confusion. Here is my story: Have had mystery neurological illness since Jan 2020, started with delirium, a flu and then a gastrointestinal flu that woke me up with a pounding heart and nocturnal defecation for months and body temp above 99 -101F. Sleep became interrupted with very vivid dreams and bizarre hypnagogic states. Started hypersalivating. Vision became altered, blurry at distance, slightly photosensitive. Extreme fatigue and bed in early evening, sleeping in and off until noon. Increased red pinpoint angiomas developing all over my body. Gradually became anhedonic in March 2020, unable to laugh or cry. Confusion and anxiety increased. Was put on Seroquel 25 mg end of March 2020, immediately had some involuntary movement so stopped after 1 dose. Switched to Trazodone 2 days later and had an extreme Akathesia episode with involuntary movement, was up for 24 hours pacing and raging internally. The next week was put on Citalopram 10mg for 2 days, immediately got dyskinesia (pill rolling, teeth grinding, twitching, teeth licking, bunny nose) with compulsive behaviour, vision became blurrier and developed horizontal double vision halos, perception of time sped up, switched to 5mg Escitalopram for 1 day, started muscle twitching, became flushed, feverish could not sleep (serotonin syndome?), next day became psychotic and babbling, compulsive, bit myself, could not walk. Hospitalized April 2020, put on respiridone 0.125 upped to 0.25 for 2 weeks. Felt weird hot icy burning in chest and esophagus upon initiating, had issues swallowing, voice got raspier, experienced increased hunger, constant fatigue and sedation, dry skin some teeth grinding and muscle tension on and off, vision worsened further (my left eye is now -1 and blurry, was perfect in December 2019), increased constipation, little change in anxiety, increased social compulsiveness (speaking without thinking). Started lactating. Quit April 29 after tapering to 0.125 mg for 3 days. Since then, I had episodes of dyskinesia and teeth grinding, bunny nosing, cramping in hands and feet, but it's gradually lessening as my body adapts to being antipsychotic free. I am still in a confused state (feel like I am about to pass out, cannot focus) with abnormal sleep emotions (cannot feel happy, cannot work) and decreased intellect (issues with spelling, time perception, planning, focus and my degenerative neurological condition persists as well as the hypersalivation and weakness. I am in bed all day.
  11. I was going through a bad bento withdrawal from CT from Nov 2018 to now and my doctor put me on 50 mg trazadone to sleep in March 2019. I am doing better now and want to get off of it. I am having excess saliva and giissues not sure if it’s related to Benzo or another GIissue or Trazadone. Any help will be great thanks
  12. Hello all, I am new to this forum and found it through looking up antidepressant withdrawal like many of you probably did. Here is my story in short: December/Jan 2019/2020: Lots of life circumstances all sort of happened around the same time and led to me having a couple of panic attacks and some bad insomnia (a few random nights of not sleeping at all, but no more than 2 in a row ever) as well as increased anxiety. 1/16/20: I go to see my GP, tell him about my symptoms, and walk out of there with an Rx for Lexapro 10 mg and Trazodone 50 mg. I was wary of starting the meds so I did not fill them right away. 1/18/20: I didn't sleep the night before and decide that day that I need to "do something about it" so I fill and start taking the Lexapro 10 mg and 50 mg Trazodone at night. 1/18/20-2/8/20: 10 mg Lexapro daily and Trazodone 50 mg nightly. Gradually start to experience anhedonia, decreased social interest, just feeling withdrawn. Also bad short term memory loss. Also sleep was much worse, only 4-5 hours per night. 2/9/20-3/2/20: 5 mg Lexapro daily and Trazodone 50 mg nightly. Symptoms no better. Saw psychiatrist who recommended to just stop taking the Lexapro. 3/3/20-3/12/20: Only taking 25 mg Trazodone nightly now. Sleep has improved but symptoms of anhedonia are worse than they have ever been (note: I was not really depressed before the meds, I was taking them more for anxiety/panic attacks). Also, autonomic symptoms are all over the place--I am either too hot or cold, sweating too much, dizziness, etc. Also have a constant headache and also feeling like I am having some vision changes. Also having to use the bathroom much more than usual. I am looking for advice about what to do at this point. Obviously the past is in the past but I wish I could go back to January and just tell myself never to start the meds. But I am trying to be in the present and do what I can now. I have missed days at work and am fearful of not being able to work/losing my job. Any advice would be helpful/appreciated at this point. My GP and psych will likely be of no use/help at this point.
  13. Hi. I am a married dad of 3 teenagers. I had a difficult upbringing living alone with an alcoholic father after my mother left with my 2 sisters when I was 11. I have had my issues with addictions as a result, I sometimes think. I do not drink anymore, although I sometimes unfortunately relapse. This happens less and less as I find it makes my depression worse and makes me angry at myself and others. I started taking AD's around 2006 after a tragic episode in my life. I was put on SSRI's, Prozac first if I remember well. Unfortunately as well as the usual side effects, they made my anxiety go through the roof. I kept being told to wait at least 6 weeks before stopping and being put on another SSRI that would do exactly the same... This lasted a few years and seriously messed me up. I tried every single SSRI you can think of. It was like constant adrenaline or cortisol being pumped through my body. Eventually I was put on Venlaflaxine. The side effects ( anxiety mostly) although initially even worse than before got better after 4 weeks. I stayed on Venlaflaxine for 4 or 5 years I think. One of the things with AD's is that I find it really hard to remember stuff... I decided to stop Venlaflaxine because I felt it made me a bit manic. Also years of dry mouth were starting to take a toll on my teeth which was starting to concern me. I tapered over a period of 6 months which I thought was plenty. I was wrong. After 4 months off AD's things got really bad in terms of low mood and anxiety so I decided to go privately and see a psychiatrist. I'd only seen my GP for meds until now and paid privately for regular therapy sessions. The cost of seeing the psychiatrist was very prohibitive but out of desperation I finally decided to pay the 300 pounds an hour he charged. He put me on Trazodone after telling me that I should never have been put on more SSRI's after my initial bad reaction to Prozac: different names/same family. They worked quite well in terms of reducing anxiety which was such a relief after years of being crippled by it. After about a year, I decided it might be time to quit. I felt like I was living with a very foggy brain all the time. My memory felt completely shot by then! It became really embarrassing and also quite worrying. I tapered very slowly over a 2 year period using digital scales. It wasn't quite the 10% method because I had never heard of it at the time but it was quite similar really. I try and run regularly but sometimes find it hard to discipline myself- usually when I need it the most! I meditate 20 minutes a day Monday til Friday. I get a bit lazy at weekends although I do sometimes meditate if I feel it might help. I try and eat healthily. It helps that I have 3 kids and I do most of the cooking. I want them to eat healthily so end up eating healthy myself. I take turmeric and ginger capsules, a bit of fish oil and a B complex as vitamins/supplements. I have started eating a really healthy breakfast consisting of all sorts of nuts/oats/seeds soaked overnight. I had never eaten a breakfast since I was 12. It has helped me a lot in terms of energy that doesn't feel "manic" like the one you get via coffee or sugars. I find it has also helped me with my focus which was really bad. I finally quit for good a few months ago. It hasn't been easy. My sleep has been terribly affected. Tinnitus ( the humming type) started pretty much half way through my tapering and is still there. I have been urinating about 20 times a day. It has been investigated but they cannot seem to find a reason why. The doctors have come to the conclusion that it might be linked to quitting AD's. On that front, things have started getting better over the past month but I am still going at leat 12 times a day of which 4 or 5 times a night. I have all sorts of mood swings but some days feel like the best I have felt in my life which never used to happen before. Not a euphoric feeling more of a feeling of contentment.. This is one of the things that keep me going. Those small moments when I feel "normal"... But then a lot of the time I question my choice! I am not easy to live with since I started tapering 2.5 years ago. My temper is quite short and I feel it is not fair on my wife and kids. It makes me feel guilty and selfish. If AD's had really worked and my memory hadn't felt so affected, I would have been happy to stay on AD's all my life but I never found them to help. I also feel the SSRI nightmare did serious damage to my nervous system. MY self confidence was never the same after those years of chemically induced constant anxiety.I don't think the mood swings I am getting are to do with my depression coming back but more to do with things taking a while to settle in my head... The most important thing for me is to stick to what I call "the recipe": exercising, meditating, healthy eating, no alcohol. If I don't I really start to feel it in terms of low mood and anxiety. Sounds simple on paper but it's not easy. It's strange that when you need it the most is when you find it the hardest to stick to the recipe! I've got better at sticking to it though which makes me think that eventually I will come out of this nightmare I've been in for 15 years... Thanks for reading. Peace to all.
  14. Questions: I have been withdrawing from Sertraline for 9 weeks. Doctor put me on two sleeping aids in between to help with insomnia and had Serotonin Syndrome again (trazodone and mirtzopan). Did this put me back at square one with withdrawal symptoms from Sertraline? 9 weeks ago my body began rejecting Sertraline after I was tapering (bad tapering for a year). I developed Serotonin Syndrome and was told to stop the medicine cold turkey. I have been on Sertraline for 7 years transitioning from Cymbalta right before that b/c of pregnancies. Was on it for 5 years) After 3 weeks I had to find relief b/c of the horrible side effects and dark thoughts. I was put on Buspar (just six weeks ago). I read that Buspar doesn't help with withdrawal which was disappointing. But in between the cold turkey of Sertaline (9 weeks ago) my doctor has put me on two serotonin sleep aids because of the horrible insomnia (which I've never suffered with as an adult). I had Serotonin Syndrome again both times. I"m so much better than i was that first month. Dizziness is mostly gone, my appetite is back, I'm laughing again, enjoying activities, but still struggling. BUT my insomnia is still horrible. I took a few days off of .5 klonopin to try over the counter sleep aids. Worked for a few days and then wore off. So my pharmacist put me on both the over counter sleep aids to take with my low dosage of Klonopin (taking .25 or less at night) so that I can eventually wean off of the klonopin. Some nights bendryl has been enough. Other nights, not at all. I"m so discouraged b/c I want to stop the klonopin. This is really the thing that is making me the most depressed. This is when my neuropsychologist put me on mirtzopane and trazadone. Both caused the serotonin syndrome. My question is this. 2 weeks ago was when I took my last dose of trazadone (which i had the adverse affect) does this mean I'm at square one again with my withdrawal symptoms? I"m definitely feeling better but i have to admit. These have been the hardest 9 weeks of my life! I know I will get better but this is hard. Any help and encouraging words would be great. My withdrawal symptoms are now at the moderate stage from the sheets people have posted on here. Thanks and light and love to you all!
  15. Hello, I've read most of the intro topics and am ready to properly begin my own tapering journey. I have been on some form of SSRI since 2001. I trialed with celexa and paxil and eventually settled on Effexor XR for a number of years. Because it was so expensive, I asked my PCP to consider an alternative and we switched to Prozac in 2006, which increased bit by bit to settle in at 40 mg. In 2010, after a major depressive episode, 300 mg wellbutrin was added. In spring of 2019, I ran out of wellbutrin during a holiday weekend, didn't experience ill effects, so just never refilled the medication. In fact, the tardive dyskinesia and tremors I had for years disappeared. I have been stable on prozac 40mg. When initially prescribed SSRIs in 2001, I was also prescribed trazodone for insomnia. Over the years, I have taken anywhere between 12.5 mg (splitting a 50 mg tab into 4) and 25 mg, but have been steadily on 25 mg nightly for the better part of 10 years. If I forget to take it, my body definitely KNOWS and will not allow me to sleep. It's miserable. About a year and half ago, I was diagnosed with macrocytosis. I've had a gamut of tests all the way to a bone marrow scan and no cause has been determined. My hemotologist thinks that my meds may be contributing to this condition, so I would like to taper or eliminate them altogether - plus 20 years on this stuff just can't be good. Foolishly, I stopped the traz on Saturday night (3 nights ago) and began a trial of CBD. It sent my body into a tailspin, which led me here. I am aware of the risk for serotonin syndrome with both of these meds and am not completely convinced I haven't been experiencing this. I know to taper 10% monthly and not introduce CBD. I'm thinking of starting with the trazodone over the prozac. This would put me at 22.5 mg traz for the month of Feb. I sure hope it goes better than the last 3 days... Happy to entertain any words of wisdom. Thanks...
  16. Hi Everyone I just wanted to introduce myself. I have been lurking this forum for long enough now. 🙂 Male, 28 My story starts in November 2018 when I went partying with a few friends and consumed different recreational drugs (MDMA, Cocaine, Speed and Alcohol). I wasn't new to these drugs but I made the huge mistake to not test any substance and not dosing correctly. However I didn't feel bad throughout that weekend and the hangover was as expected. After four days the panic attacks and the depression started and it just did not get any better over time. A month later I had enough and went to my GP who immediately put me on Effexor and Seroquel. Later on Seroquel has been exchanged first to Mirtazapine and then Trazodone (see signature). The drugs definitely helped with the panic attacks but Side Effect were just unbearable I felt 40 years older, manic, aggressive, suicidal, without any motivation and completely emotionally numb. There was just no way I would stay on this horrible stuff any longer so I went cold turkey after two months. The first two months were kind of ok but I still felt drugged. After that the emotional symptoms kicked in and it became a fight for survival day by day. I will not go into detail about it because you probably all know what I am talking about. Sixth month later I made some progress, the symptoms became a little bit less intense and I had some windows. Over the next four months I made some further minuscule improvements, windows became longer. I started to feel kind of stable in my recovery, it gave me some hope that I didn't lose my job and my girlfriend throughout all this time. Next month I will be drug free for a year but it is still a massive struggle every day. Right now I seem to be in a long wave (5 weeks so far) with a great change of symptoms. The anxiety and the panic attacks have become a lot worse recently and there are a lot of physical symptoms like dizziness, nausea, loss of appetite and generally feeling miserable. I have become less active, less motivated to exercise but on the other hand I am also feeling kind of ok with it. Also my sleep seems to have changed quite a bit, I didn't have very bad insomnia so far only very intense and draining dreams. They are mostly gone now but instead I am sleeping two to three hours less per night. I try to see these changes as my brain being at work 🙂 I can't differentiate if I am still in Withdrawal or if this is the after effect of the recreational drug incident (any ideas?). All I can hope for is that my brain will heal the same way as it does if I had taken psychiatric drugs only. Throughout my life I only had a few bouts of mild depression and anxiety (and three mild panic attacks), nothing I couldn't cope with. I also have never been on any psychiatric drug. I will try to document my recovery in this topic. Massive thanks to the people of this forum without you I would probably have gone back on psychiatric drugs a long time ago. You can't imagine how much hope I got reading through these pages! 🙂
  17. Where do I go from here? The first week of Nov. I tried to CT .5mg of k. I think I was off 4 days and then reinstated once the withdrawals hit me. I thought I would be able to stabilize so suffered for a month with intense anxiety and nausea with no relief. I thought for sure the V would save me so I crossed over to 10mg the first week of Dec. Unfortunately I was one of the rare, unlucky ones and couldn’t handle it. It caused horrific depression. After giving it 2 weeks I went back on .5mg k. Since then I’ve just been trying to make it day by day. Although the depression lifted a little bit I still cry everyday and the anxiety/nausea has slowly crept back in. I don’t know how or when I’ll be able to start my taper. I’m so scared. Prior to CT off benzo- I gave up my life in Arizona and moved home to live with my parents in Michigan this past Oct. I was on 6 psychiatric medications for depression. I CT the mirtazapine and Abilify I was on and felt amazing until I tried the same thing with the benzo. I also went down to 200mg from 300mg Zoloft and went down from 60mg Adderall to 10mg. I had to increase my dosage of Trazodone from 100 to 200mg. I’m 36 yo, divorced, no friends, no job. I don’t want to live with my parents forever. I don’t know how I am ever going to rebuild a life for myself.
  18. Hello, I have been successfully tapering klonopin since May 2019. I am still on 2 antidepressants and feel awful in the mornings. Nortriptyline and Trazodone. My sleep isn't great and feeling so bad, like I am drugged is making it worse. I want to start tapering Trazodone by cutting 5% ever 2 weeks. Has anyone ever tapered 2 drugs at once. I feel if I wait til I am off the benzo, that's a long time away to start tapering another med. Feel this bad in the morning with 3 kids is killer. Not sleeping at all is worse but I think these meds aren't helping my problem. I have read up where some drugs are like brakes and others are like gas pedals. I think all my drugs are brakes ??? Should I hold my klonopin taper for a few weeks and taper the trazodone?
  19. I'll introduce myself as Yabba, I'm a 22 year old male who has been diagnosed with many things over the past 10 years, but in the past 4 everyone has agreed It's BPD & Anxiety. I've been on various medications from prozac to olanzapine to alprazolam, It all started when I was 12, I was put on psychiatric drugs at this age, this is where it all started really - I'm feeling xyz so they prescribe what they think is right, The symptoms of one medication caused side-effects so they would prescribe another to counter. At one point I was on six medications at one time (16 y/o). So now for current day events: My psychiatrist has informed me that Zeldox causes side effects that are irreversible and I should consider moving to a newer anti-psychotic which he gave me a choice, Latuda & Saphris. I've had history with one but not the other. I was on 160 mg of Zeldox (Max daily dose) and I was informed by him I should come off slowly, since being on such a high dose for multiple years (3+) it may or may not be difficult. I've tapered down to 40 mg and wow, this is what emotions are like? My question is to others who have tapered off anti-psychotics: Is this like "wall" of emotions normal? I'm so happy throughout the day, I have lots of energy , but sometimes I'll see something on youtube that will just hit my heart some kind of way and I'll just start to cry, I'm not sad or depressed, I'm just in tears. My goal is to stop anti-psychotics all together, the past 2 months of being tapered off my life has only got better since being on a reduced dose, I'm enrolled back in school to get my diploma (3 credits) I've already made plans for collage, I went and got my licence back, applied and accepted for new bank account and credit card. For the first time in so long things feel good . I don't feel the same 2 emotions anymore & it gives me hope that I can finally do something with my life , that this illness beat me for a decade but In the end I won. Current Medications: Zeldox 40mg Adderall XR 10 mg Alprazolam 2 mg PRN Trazodone 300 mg PRN (for the rare night I can't sleep and I have an appointment the next day ect) p.s Too anyone else with BPD: This **** sucks, but you're a good person. We don't get told that enough but we are. Don't let the stigma get you down.
  20. Hello- I am new here. I've been on psychiatric drugs for almost two decades now. I currently take Zoloft 300mg, Adderall 60mg, Abilify 15mg, Mirtazapine 45mg, Trazodone 100mg and Klonopin .5mg. I've only ever been diagnosed with depression which started in 2002. I don't have ADHD, bipolar, schizophrenia or any other known disorder. After suffering for many years and wanting to get off these medications I am finally going to do it. I am wondering if anyone has used the tapering strips from Dr. Groot? I am highly sensitive to these medications and from the withdrawal effects I've had briefly in the past- they were excruciating. I currently reside in Arizona but will be moving home to Michigan to start the withdrawal process very soon. Thank you and God bless us all. If you'd like to learn more about my story and experience or if I can be of help to anyone please let me know.
  21. Where to even start with this....I've been on lexapro and trazodone since June 2019. I recently moved earlier this year to a new part of the state and got a new PCP once I got here. My sleep had been pretty garbage for a few weeks. Rewind a little.....I had gone to the gym on Tuesday March 5th and had a pretty good workout. That morning I woke up at 1am feeling like my heart was going to beat out of my chest. I went to the ER and was told my potassium was low. I was also told I was hypothyroid, which later turned out to be false. After that was when I noticed a significant uptick in general anxiety and significant decrease in quality of sleep. I wasn't able to sleep more than an 2-3 hours before waking up and having to go to the bathroom. I tried most everything I knew to improve my sleep: keeping the same routine, drinking tea, taking supplements. Not much really helped. I got engaged in May and as soon as the wedding planning started everything continued to get worse. Sleep was restless and I started to have more anxiety throughout the day because of it. I was never really an anxious person (other than with stuff like public speaking and what not). But after continued worsening of my sleep and not being able to figure out anything to help I went back to my new PCP, and he put me on lexapro 10 mg and trazodone 50 mg. The trazodone would knock me out but I'd still wake up a few hours later having to go to the bathroom and just feeling like a zombie. The sleep was never restful and I continued to get more frustrated about the situation. Since I had been to this new MD twice and spoken to him for a total of less than 10 min, but he still felt confident about putting me on two meds, I decided it was time for me to find a new PCP. (I had blood work down as soon as I moved and he said "everything looked good." I got a copy of my blood work and there were a few things I was a little worried about, cholesterol levels primarily. This also made me want to find a new PCP since he didn't even take the time to discuss anything he found on the blood work. Just a little about my background, I have a master's degree in exercise physiology and a Doctorate of Physical Therapy, and spend a lot of free time reading about nutrition.) So because of this I decided to get an online MD, someone I follow online and look up to. The first time I talked with them, we were on the phone for almost an hour discussing my current situation and past medical history. I already felt 10x more confident in my new MD and had a lot more faith in getting through the situation. He asked me about the trazodone and if I thought it had been helping at all, I told him no. He recommended coming off it if I wanted to. At this point I had only been on it for about 10 days. I came off the 50 mg of trazodone and felt absolutely terrible that whole week. Anxiety was through the rough, I felt like I was constantly peeing, and sleep just got worse. Not to mention the heart palpitations, gastric distress, stomach cramping, jaw clenching, nasal congestion, headaches, blurred vision, change in appetite. I didn't sleep longer than 2 hours and couldn't remember the last time I had a dream. I normally had a few dreams per week and was often able to recall them. That Friday I ended up in the hospital thinking I was having a bad reaction to the lexapro since I was started out on 10mg rather than 5mg. Only later did I learn it was from quitting the trazodone. Because of this I dropped from 10mg to 5mg of lex and reinstated 50mg of trazodone. Over the next month I tried to get my exercise schedule and diet on point. Before all this started I felt like I was pretty healthy. Went to the gym 4 days a week and lifted for ~2ish hours, ate what I thought was pretty healthy, enjoyed my morning coffee every day (probably had a bit of an unhealthy relationship with that haha), didn't smoke, rarely drank, no recreational drugs. So all of this was extremely foreign to me. When I tried to start exercising more I noticed that my heart rate stayed elevated for hours after I got done working out, my sleep would be garbage that evening, and the next day always resulted in a lot more anxiety. It would take 2-3 days before I felt like I was back to this "new normal." So at this point I decided to read more about both of these medicines and really buckle down on improving my sleep, diet, and stress levels before returning to the gym. As of writing this point I haven't stepped foot in the gym since early July, which is really killing me. I can't stand to look at myself in the mirror. My body weight has dropped around 15lbs and it seems like I've lost every bit of muscle I've ever put on. I am so ready to get back into the gym and squat something but at the same time I'm also worried about never getting back to where I was physically before all this happened. Fast forward to September and I'm exactly 2 months away from getting married. My sleep has improved greatly, I can sleep for 6+ hours straight before waking up most every night, I'm having vivid dreams almost every night of the week, the side effects have decreased significantly, and I'm starting to see that there will be a light at the end of the tunnel. I'm still on 5mg of lex and down to 6mg of traz. My spiritual life has improved significantly during this time. I have spent more time in my bible, more time praying, and more time listening to spiritual discussions/sermons online. My fiance is great and has been there every step of the way with me! Supporting me during those terrible days and not getting upset when I just don't feel like doing anything and only want to watch TV all afternoon. As someone who hasn't relied on people in the past for emotional support this has been a big change for me. The lack of ability to contribute as much to the wedding planning and being able to concentrate long enough to be of help has been one of the worst things. I have hated that so much of this process has fallen on her. And even though it should be one of the happiest times in our lives, right now it has this dark stain on it. I know this is a lot of rambling but I want to lay out of a few the things in the following posts that have helped me the most during this process. One thing I keep telling myself is that this is a season of life that will pass and because of it I will be able to help someone else in the future. I'm sure there's a few things that I've missed or left out during this post.
  22. Hi, all. Thank you so much for providing this site. I’ve been inspired by the stories here, and look forward to my own recovery and hope to help others as I can along the way. It’s been a hellish year… I have a rather long story – 99% of which takes place within the last year – so please bear with me. I’ll write this out in a timeline for organization’s sake. In essence, I have a history of anxiety and depression, and have OCD. I have been suffering from severe postpartum anxiety (PPA) and depression (PPD) since delivering my son in May 2018 – exacerbated by a move out East so I could start my PhD, the decline and death of my dog, dealing with childhood trauma, etc. I was on Prozac and Xanax as needed before I was pregnant and went off without any problems while we were trying to conceive. I had an uncomplicated pregnancy. Here we go… 1999ish – 2005 (6th grade – high school) (Zoloft, Lexapro, Wellbutrin) I was diagnosed with severe academic perfectionism and OCD and put on (I think) Zoloft first (not sure of dosage). In the years that followed, I was on Lexapro and Wellbutrin, all in various combinations. I don’t remember timing or dosages. I don’t remember having a hard time coming on or off any of the meds. I was chronically ill in high school, though, with fatigue, mono, sinusitis, shingles (to be fair, I had immunological issues before going on meds, too, and a complicated family situation). I took the year after high school off to recover, went off all meds. All I remember is feeling tired and my sleep being on a weird schedule. 2005 – 2009 (no meds) I started taking some community college classes, started volunteering, and then working full-time. Started paying more attention to my diet (went off gluten and most dairy after I realized it made me feel better). Was doing very, very well. Summer 2009 – Summer 2017 (40 mg Prozac daily, ? Xanax PRN rarely taken; occasional supplements - multi vitamin, vitamin D, fish oil, probiotics) Started on 40mg Prozac (slow taper to START it), as a ‘preventative’ measure against OCD and perfectionism (I know… probably wasn’t necessary, but I can’t prove a negative) as I was about to start at a university in the fall of 2009; I was pushed by family (also on psych meds) to start. I think it helped somewhat but it’s hard to know. Eventually, I had an Rx of Xanax, which I took maybe 5-10x/year as needed. I did well in college, though, started a great career, went to the UK on scholarship to do my Master’s and then decided to QUICKLY taper off the Prozac when my husband and I (we married in 2014) decided to conceive. I don’t remember having any issues coming off the Prozac. I was on it fairly consistently for 8 years. Summer 2017 – May 2018 (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Pregnant, more depressed than usual, especially after moving back home from the UK and being unsure of what was next. Still, did the damn GRE, applied to PhD programs, got into a great program out East, started setting up our life out there. Obsessive compulsive symptoms were worse than usual but not unmanageable. Late May 2018 (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Delivered my son. Epidural, long labor. Started breastfeeding. Early June 2018 (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Had a week of awful insomnia and anxiety and intrusive thoughts, but it went away. Early June – Mid-July (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Doing okay, just exhausted and depressed (I was breastfeeding around the clock). One week in mid-July 2018 (? Xanax, one-time dosage ~6mg Zoloft, and one-time dosage 2mg Ativan, one-time dosage ? Klonopin in hospital; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Then, at around 7 postpartum weeks - BAM - I was hit with a week of NO SLEEP. I just couldn't sleep and I lost my appetite. I had been given an Rx for Zoloft by my OBGyn and took a very small amount that Friday (I wanted to ease in). That night, all my symptoms were much worse – and I also felt this severe restlessness in my limbs. It was AWFUL. I even tried Xanax to calm me down (I gave to my son pumped breastmilk). My anxiety was so bad that I went to the ER that Sunday. They drew blood and it turned out that my blood sodium was dangerously low (126) - possibly due to not eating enough and drinking too much water. They gave me Ativan (2 mg – which was A LOT for my system), some Klonopin, too, eventually, and fluids overnight and I felt MUCH better the next day. I was given Ativan and Remeron as needed but didn't need to take it for a few weeks. Mid-July to Late Aug 2018 (0.5 – 1mg Ativan daily; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) I was fine for a few weeks, and then my family and I moved out East, where I was attending grad school (I’m now on medical leave). The anxiety and insomnia came back around the move in August. I took Ativan (0.5 – 1 mg) as needed each day and had some rebound anxiety but was able to get through until setting up care there. I was assigned an interim psychiatrist (before being placed with a regular one), who Rxed me 0.5 Ativan to take at night to sleep for 10 days. This worked for sleep, but not the overall anxiety and depression. Due to breastfeeding concerns, they switched me to Trazodone (25-50 mg), which worked ok for sleep. Eventually, I was able to fall asleep on my own for a couple/few nights. That would be the last time I could do that to-date. Late Aug to Late Sept 2018 (0.5 – 1mg Ativan daily, 1-5mg Prozac, 25-50 mg Trazodone; supplements: postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, probiotics?) I started seeing a regular psychiatrist in early September, and we agreed I should go back on the Prozac with 1 mg Ativan/day as needed. We started sloooow on the Prozac - 1mg, then 2, then 5. By week 3, I had lost my appetite completely, and my anxiety was through the roof - just on 5mg (I was on 40 before becoming pregnant, so I couldn’t understand why I was feeling so terribly). The Trazodone was no longer helping me sleep, and was giving me terrible dry mouth. My limbs felt like they were vibrating. My psydoc FINALLY directed me to go off the Prozac and Ativan, and Rxed me just Klonopin 0.75mg/day. In addition to the psychiatrist, I saw a primary care doc, who checked my thyroid, adrenal glands (several tests there), vitamin levels, and other things - all normal. My blood sodium has still been a little low, but they believe it's due to not eating enough. Oct 2018 (Klonopin 0.25 – 0.75mg/day; postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, I might have tried some hormone-balancing herbs – I don’t remember exactly, probiotics?) My appetite returned but it was never the same. I was sleeping better, but not well – maybe 6 hours at most, sometimes waking in a panic. I could only take one class. I was very depressed and frustrated, and deeply confused as to why I wasn’t responding to medications. But I felt BETTER than when I was on the Prozac, and was able to feel like I could sleep on my own again, and on just 0.25mg Klonopin/day – but the plan was to let me ‘settle’ and then try a new AD, sooo… Nov 2-4 2018 (25mg Anafranil at night, 0.25-0.5mg Klonopin/day; postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, I might have tried some hormone-balancing herbs – I don’t remember exactly, probiotics?) The psydoc suggested Anafranil, a TCA. The day I started it, we put my dog down and I stopped breastfeeding (I had been tapering on that for months). It wasn’t a great time to start something. But I did. I took it the night of the 2nd, fell asleep instantly, then woke up feeling SO GOD AWFUL about 3 hours later. I had a tremor, I vomited, I couldn’t eat. My husband had to hold me while I shook in bed. I called the psydoc and she told me to keep taking it, sounding annoyed with me. So I pushed through for three days – but that was all I could do. Until then, that was the worst I have ever felt. Nothing could calm me down. Things start heating up here, so I’ll spare some details and focus more on the med changes… Nov 5-8 2018 I barely remember these days. Sleep was poor, I felt awful. Then on a Thursday night, I was up all night with panic attacks. I called my therapist and made the decision to go into the psych hospital. Nov 9 – 15 2018 (In hospital, put on 0.5mg Klonopin 2x/day and worked up to 100 mg Seroquel at night) I didn’t start sleeping until I was put on a combination of Seroquel and Klonopin. BUT, I remember this creeping feeling of “buzziness” and restlessness when I woke up everyday. That feeling would continue to get worse over the coming weeks and stay with me to the present. Nov 15 – Early Dec 2018 (0.5mg Klonopin 2x/day → 0.25mg Klonopin 2x/day; 100mg Seroquel at night; some supplements – don’t remember) I left the hospital taking 100mg Seroquel at night and 0.5 mg klonopin 2x/day. I officially went on medical leave from grad school. I stuck with this doseage for 2ish weeks, was sleeping well but feeling horribly depressed and anxious, then started to quickly taper the Klonopin. I don’t remember how quickly – but I wasn’t taking anymore than 0.5mg/day by early December. I then tapered on the Seroquel after feeling SO much worse when an IOP psydoc tried bumping the dose to 125mg; I remember not being able to sit still – going outside to pace. No tremor – just pacing, fidgeting, and losing a lot of weight. Early December 2018 – Early Jan 2019 (1mg Ativan at night, 2.5mg Zyprexa at night, 25-100mg Lamictal; postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, I might have tried some hormone-balancing herbs – I don’t remember exactly, probiotics?) I made the decision to move back home to do a program specialized in PPD (we ended by moving back entirely later that winter). In the program, I was put on 0.5-1mg Ativan at night, 2.5 mg Zyprexa at night (for sleep – though it never helped), and titrated up to 100mg Lamictal (the psydoc suspected a bipolar spectrum diagnosis). I was still incredibly restless, unable to sit down and just enjoy a movie. And my sleep was growing worse and worse. It was awful – then my mood grew worse and worse as we went up on the Lamictal; I also had increasingly bad tinnitus and TMJ. I was hospitalized as my thinking became suicidal – just ideations, but I was ready to go back in… Early to Mid-Jan 2019 (0.5mg Klonopin 2x/day, 5mg Paxil/day, 50mg Benadryl at night; 0.25-1mg Risperidone 1-2x/day; some supplements?; THEN back to 150mg Seroquel) In the hospital, I was taken off the Lamictal and put on 5mg Paxil once/day, 0.5 mg Klonopin 2x/day, Benadryl 50mg at night (for sleep), and Risperidone 0.25mg once or twice a day (I don’t remember). I became increasingly orthostatic (low BP, high HR). I stabilized mood-wise – sorta – and left the hospital feeling off, but better… Within days, though, we tried increasing the Risperidone, and my HR went up to 140 (I think we tried 1 mg). I wasn’t sleeping AT ALL. I was taken off the Risperidone, stayed on 5mg Paxil once/day, 0.5 mg Klonopin 2x/day, Benadryl 50mg at night (for sleep). Eventually, as my sleep diminished, the PPD IOP doc put me back on Seroquel (I has actually asked to go back on) – but suggested as much as 150mg. After that, my mood really shifted and became erratic; I was really upset and angry at my husband and suicidal ideation returned. So it was suggested I go back in the hospital... Late Jan to Mid-Feb 2019: 3-week hospital stay (see below for crazy med changes) All the docs agreed I didn’t need to be in there this long (everyone kept asking why I was still there), but there I was so they could keep throwing stuff at me to see if something stuck. I was holding out hope SOMETHING would work this time...: First week: 0.5 mg Klonopin 2x/day, 100 mg Seroquel at night, 300mg XR lithium 2x/day (HORRIBLE stomach reaction, especially when the doc abruptly pulled the Seroquel) Second week: 0.5 mg Klonopin 2x/day, 50mg Seroquel at night, some amount of Depakote (I don’t remember – wasn’t improving, irritable), tried PRNs of 12.5mg Seroquel and became really depressed Third week: 1 mg Klonopin 2x/day, 50mg Seroquel at night, 1200mg gabapentin (taken as 300mg twice during the day, and 600mg at night). That’s how I left the hospital. Mid-Feb to Early-March 2019: (0.75mg Klonopin 2x/day, 50mg Seroquel at night, 300mg Gabapentin 2x daytime and 600mg at night, brief re-trial of lithium – 150mg; multivitamin, 1,000-2,000 mg vitamin D, ? fish oil, 1200mg evening primrose oil, probiotics?) Instantly went down to 0.75mg Klonopin 2x/day (fear of dependence). New trauma-based IOP. Was very constipated. Tried low-dose lithium (150mg) as lithium seemed to be the only med to be helping to-date (along with benzos); was improving somewhat mood-wise, but the stomach issues were SO bad, so we went off. After going off lithium, my restlessness SKYROCKETED, and was particularly bad for 10 days. My stomach was AWFUL; I was taking antacids all the time; seemed to be worse after taking gabapentin, so the new IOP doc cut THAT dosage in half. Developed a tremor. The new IOP psydoc diagnosed me with akathisia – FINALLY. I had NEVER heard of that before (although, in retrospect, I think it has been mentioned to me in the hospital as a possible side-effect of the antipsychotics – but I remember them saying “you can get this, but I don’t see that in you, so…” and so I ignored it (dumb)). When I read about it, I felt so frustrated; this had, no doubt, been plaguing me since at least the one-time Zoloft attempt in July - and in particular since the first Seroquel doseage in November. Doc suggested I reduce my Seroquel from 50 to 25mg; I couldn’t do that for a couple of weeks. Early to Mid-March (→0.25mg Klonopin during day and 0.5-0.75mg/night, 25mg Seroquel at night, 200mg Gabapentin 2x daytime and 300mg at night, brief re-trial of Depakote – don’t remember dosage; multivitamin, 1,000-2,000 mg vitamin D, ? fish oil, 1200mg evening primrose oil, probiotics) Continue reducing my Klonopin down to 0.25mg during the day and 0.5mg at night. We tried XR Depakote as a Hail Mary in the med department. It seemed to help a bit, but also increased some of the restlessness. At this point – and this should have come sooner for me – I was done – just DONE– with med changes. My body needed a break. I haven’t added or taken away and particular meds since (with one exception - the propranolol, see below) – though I have reduced the dosages… Early April (0.25mg Klonopin during day and 0.5-0.75mg/night, 25mg Seroquel at night, 200mg Gabapentin 2x daytime and 300mg at night, up to 70mg propranolol throughout the day; multivitamin, 1,000-2,000 mg vitamin D, ? fish oil, 1200mg evening primrose oil, probiotics) Was diagnosed with thyroiditis (my thyroid had been normal as recently as January) – a relatively common thing postpartum, but it was ‘late’ to arrive to be postpartum thyroiditis, so doctors suspected the lithium. B/c I was hyperthyroid first (usually follows a pattern of a few months in 'hyper'/overactive mode, followed by anywhere from 3 to 18 (or more) months underactive. I was put on propranolol (taking as much as 70mg throughout the day). That seemed to help the tremor, heart palpitations, and restlessness maybe 50-75% of the time. But it crashed my BP. Early-April to Present (see below) We’ve moved into a new, stable house (both good and really stressful). As of early June, I am off the Seroquel. I tapered from 25 to 0mg by reducing by about 6.25mg every two weeks or so. I tried re-starting it to do an every-other-day ending taper, and felt instantly WORSE, so I am done. But it was probably too quick a taper. I NEVER want to take another antipsychotic again, though; I can point to the beginning of the worst parts of this whole cluster to starting Seroquel, and the akathisia that ensues and continues. I reduced the daytime Klonopin to 0 (though I’ve had to take a 0.0625mg to 0.125mg PRN three times in June as things have grown worse). I still take 0.5mg Klonopin at night. In June, I also went off the propranolol – too quickly – and have been having heart palpitations, and have been orthostatic. My BP was just getting to be so, so low. Now, taking any amount of it seems to make me more agitated/restless or, at best, woozy. In June, I also got ambitious and reduced the gabapentin from taking 400 mg during the day (200mg 2x/day) to 0 at the end of June, mostly b/c I thought it was making me feel worse; I’m not sure on this STILL (or if it ever did much of anything). I still take 300mg at night with 0.5 mg Klonopin. May was my best month - not great (I was still constantly restless, struggled with my appetite, and was really disoriented and depressed), but it felt more manageable. I should have done a slower taper on all things when I felt more stable, then – but here I am. June started out okay but, after going off the Seroquel and trying a glass of wine again (out with a friend), it’s been awful; the akathisia is back in full swing. NOW I seem to have reached this point where my body won’t tolerate much of anything again – as if it’s saying “if you’re done with one, then you’re going to be done with them ALL.” I’ve also noticed that the first half of my menstrual cycle is FAR AND AWAY WORSE than the latter half – and am trying to explore ways to (as naturally as possible) balance my hormones. I tried bioidentical progesterone cream that an integrative MD Rxed and it helped somewhat, but caused cramping and spotting and an upset stomach – no go. Currently Taking 0 – 200mg gabapentin during the day; 300mg gabapentin at night 0.5mg Klonopin at night 5mg melatonin (+10mg B6 – combo pill) at night Fish oil (1400mg EPA + 480 DHA) in morning and afternoon 1500mg primrose oil morning and afternoon 200-400mg magnesium glycinate at night, and magnesium oxide throughout day 2000mg vitamin D afternoon Cal+Mag+Potassium supplement afternoon 2 kinds of probiotics morning Multivitamin morning What Makes Things Worse Alcohol; I haven’t been able to tolerate this since sometime early spring – makes me SUPER anxious. Any antihistamine; it used to help me sleep but something in the last 2-4 months has changed my brain so I now feel WORSE the next morning. Some vitamins (I say that b/c I sometimes feel more buzzy after taking a multivitamin; on the other hand, sometimes I feel better) Caffeine (not that I’ve tested this too much; the most I ever drink is a cup of green tea, and I haven’t been able to do that in weeks) Antacids (found that out the hard way) What Helps Epsom salt baths Sweating Crying (when I am able to) Walking (especially in sunshine) Melatonin (at night – for sleep) Klonopin (but I am trying not to go over 0.5mg/day – mostly at night; and want to taper off) Massage Stretching Kombucha (not too much, though b/c caffeine) Apple cider vinegar + lemon water (ahead of meals and when I have an upset stomach – at east once/day) Eating enough (really tough to do right now) Not Sure if it Helps (tried/trying it) Acupuncture (doing this for a few months now) Therapy – CBT, talk Gabapentin (want to taper off anyway) Primrose oil Multivitamin Fish oil Magnesium Calcium CBD oil What I Need Help With I’m here b/c I need to feel like I’m not crazy when the psydoc says this isn’t still akathisia. I KNOW it is – I KNOW it’s protracted withdrawal and the effect of such a brain-altering year. I know this b/c, even in my most anxious moments pre-postpartum medications, I never felt this protracted insatiable restlessness and dread. I was a champ at sleeping (though a night owl). And my appetite was always solid (too much so, at times). This is DIFFERENT. I also want to get off the gabapentin and the Klonopin – but do so in a smart way. I’m not sure the gabapentin is a net evil right now and shouldn’t be taken off altogether? And is the gabapentin the best thing to drop first? And I need help managing the akathisia. I've read some tips here, and will explore those. Any help on the hormone piece would be invaluable. There is something there. I feel the effects of akathisia/withdrawal/autonomic disregulation far more at the start of my cycle. And this whole postpartum period has been inherently hormonally disregulating (compounded by meds like Depakote, which altered my cycle). Anyone else? Anything help? I plan to keep a more focused journal as this site recommends and track my symptoms alongside food, supplement, and med changes. Of course, what sucks THE MOST is the lost time and what's been taken - from the joy of being a new mother, to what was supposed to be a fulfilling career move in pursuing my PhD (I might have to give up my place now b/c I'm so disabled), to feeling defective for not responding to the 'right treatments.' The worst year of your life should not also be the first year of motherhood. To those of you that read this monster of a post – or event 10% - THANK YOU.
  23. I have been on Zoloft for over 40 years. I have been on Vicodin and Xanax for almost that long but have recently rapidly discontinued these two drugs over the course of 2 months. After one month of severe W/D sxs, I crossed over to Valium 30mgs. After stabilizing for a month, I began slowly tapering the Valium from 15mg, which is going well. I feel that the Zoloft has completely stopped working for me a long time ago and that it is now only preventing W/D sxs. I am at the maximum dose and I think that I would feel better at a much lower dose or completely off of it. I read here on SA that it is a good idea to taper off of your AD first and then taper your benzo. I am now considering holding my taper of the Valium and beginning the taper of my Zoloft, keeping the Trazadone for sleep. I realize that this process will take a long time, especially with me being at the maximum dose of Zoloft. I really want to taper off of the Valium at some point due to the possibility of future dementia issues. I am 65 years old and am wondering if it is even worth the trouble to start this process knowing that possibly the next 10 years, or more, of my life could be a living hell. I would like any and all thoughts on my predicament and if you think that I should begin this journey, which should I begin with and how to go about doing it. I know that slow, slow, slow is the key with any taper. Thank you for reading my story, Leon
  24. foolmetwice

    foolmetwice

    I first started taking cetalopram in March of 2017. I started having panic attacks in February. I had been under a lot of stress for many years. My health was not great. I was not able to work at the job that I had been doing for more than 20 years. Late in the summer of 2016 my husband quit a job that we had hoped would be something to take us into retirement but the person he worked for was absolutely crazy and for the sake of his sanity he could not put up with it anymore. Then in the fall my mother died. A very close friend died. Then another very close relative died. In February of 2017 I finally lost it and started having panic attacks. I didn't have a doctor, having not been to one for a very long time.. So I had to wait a month to see a new doctor. Meanwhile I was prescribed Xanax by the doctors at the walk in clinic but only 10 pills at a time. I knew that it could cause problems so I really tried to find alternatives and only using a xanax when I really needed it. By the time I got to see the doctor in March I was really in bad shape. I had been having depression for a long time, but I always had hope that things would get better, I lost all my hope. I was not sleeping at all, waking up with bad panic attacks. So I started at 20mg of cetalopram and experienced really bad side affect. But I persevered because I thought that this was normal. I never quite got over some of the side affects but they mostly went away except for the trembling in the morning. Also in march the doctor diagnosed me as T2 diabetic with an A1C of 6.5,, so just barely over the line of being a diabetic, and put me on metformin and a low dose stain and low dose blood pressure pill. By the middle of summer I was doing ok, my mood was good, but I was really tired, I would sleep well all night but then I was so tired that I would also sleep for 2 hours in the afternoon. I am overweight and I knew that in order to help my diabetes I needed to exercise but I just didn't have the will to do it. So I told hte Doctor that I was doing to quit the diabetic drugs, and wean myself of the AD. He said I could just cut my dosage in half to wean off, but I knew enough at that time that I needed to taper. But I did the cut pills in quarters taper, so I went from 20mg to 17.5, to 15, etc. until I got down to 5 and then quite I did this over the course of 8 weeks. There are only a few things that I remember about withdrawal at that time. I had the brain zaps. I also had bad diarrhea that last all through my taper and for about 3.5 weeks after I finally quit. About a month after I quit I started taking L-theanine. At first I was taking about 400 mg a day, but as the year turned into 2018 I cut back on that and I was doing really well. I started a walking program in the spring with some friends. I started going to a crochet group. I should say that one thing that really helped me back in 2017, was that I learned how to crochet. That was extremely helpful, while I was getting used the cetalopram I was laying in bed a lot and I would get up and crochet for a while then lay back in bed. Anyway due to some family problems I was still dealing with a lot of stress and last fall it got really bad and I started having more GI issues. I still am not sure excatly what was causing it. I think I started using my l-theanine more. Also started using melatonin. I was having trouble sleeping and then around the end of December I started having more panic attacks.. I had told myself that I would never go on cetalopram again, but I tried all kinds of things and nothing seemed to help to I gave in. In january I started taking the cetalopram again, 15mg. I was still experiencing anxiety so after about 2 weeks I went up to 20mg. I immediately started experiencing the bad side affects, shaky in morning, brain fog. My memory right now is bad so I'm not sure I can remember everything. I just felt like crap and I thought, ok I have to get through this. I saw my Doctor a the end of January and I told him I was still having anxiety in the morning and falling asleep ok but I was so tired and waking up too early in the morning. So he prescribed me Trazadone. I think he said it was a low dose but it was 100mg. The pharmacist said I should start at half that, which I did, then I upped it to 75mg and stayed at that for a few weeks, but I started to really feel bad, my brain fog was getting really bad, so I cut it back to 50mg. Then I finally told the Doctor that I could not do this anymore so I stopped taking it. I didn't taper, I supposed I should have. I also decided to get off the cetalopram. I had evidence now that I was not a good metabolizer of it, after having a DNA test. I told the Doctor this and all he said was that I should go have a sleep study. Which I never did because I was feeling so crappy on the cetalopram I figured I wouldn't want to go sleep somewhere else and how could a sleep study tell me what was wrong with me when I was taking a drug that my skew the results. I decided to get off the cetalopram and figured I could do a quick taper since I was only on it for 3 months. so I tapered from the middle of March to the middle of April. I was slightly dizzy during this time and very tired, but I was able to do some things, like bowling with my husband, go to the store and walk around. about 3 weeks after I quit I got hit with some severe morning anxiety and the dizzyness got really bad. I also started having some histamine issues with food, which I am managing with diet and some DAO enzymes. Now a month later the dizzyness is still bad, especially in the morning. The morning anxiety has calmed down. I fall asleep easily, have not had a problem with that and hope that stays that way. Brain fog is still there. So I think that sums things up for me. If I forgot anything I will try to edit later. Like I said earlier my memory is really bad right now. I have been keeping a diary on my calender of things I have tried. I have done magnesium glycinate. In fact I have been taking that for years until last fall when I was having the GI issues, that could have been one of the reasons I started having panic attacks. now though I can't take very much of it. I makes me really sleepy the next day and according to my FITbit my resting heart rate goes up when I take it. maybe I am lowering my blood pressure too much. just today I decided to try some L-theanine again. I took 25mg this morning and it helped some with my anxiety. Still I would like to figure out what this dizziness is about. I know it's a long read and if you got this far, thanks for reading.
  25. Hello all, Been looking for anything I could find to help with tapering, discontinuing trazadone. I have been using Trazadone 50 mg approx 2.5 years now. I've stopped trazadone 5 times since January 2019, abrupt discontinuations usually due to side the effects that worsened to the point that daytime functioning severely impaired. To describe it, usually experiencing more side effects and even less sleep. Usually the trazadone tolerance starts 2-3 weeks after restarting. Past discontinuations I usually suffered some withdrawal effects after 2-3 days and but any uncomfortable withdrawals I did get subsided, but rebound insomnia was intense. This of course lead me right back to trazadone, the longest stint was 10 days in which sleep deprivation took its toll on me physically so I got right back on it. Forward to today my last discontinuation was 11 days ago, withdrawals have been insane. I read about reinstating, after 4 days after the abrupt discontinuation I took 1/2 a pill, approx 25 mg. I was worse than ever and took my self to the ER at 4:00 a.m. not able to walk due to severe debilitating dizziness, shortness of breath. severed headache, nausea. I had blood work and CT scan (all normal). The ER dismissed my concerns about withdrawal and stated "trazadone is a benign drug and can be taken with just about anything else and does not cause these symptoms'. I was treated for migraine and nausea and sent home. I called my sleep doctor (new doctor) the next day, he too dismissed my concerns and said "it's unlikely trazadone' would cause this effect and wrote me a new prescription for Remeron and told me to stop the trazadone. I have NOT taken any Remeron as I surely do not want any further serotonin inhibiting medication. I'm not being heard, as another example 2 months ago had a physical and extensive blood work done to rule out any medical conditions. My primary complaint was insomnia, she too dismissed my concerns and told me to just stop the trazdone and go to bed later to fix my sleep issues. So as you can see why I stop and restart. I am scheduled for a Sleep Study mid June, my doc said he needed me sleeping so I should take the medication, but the side effects and the fact they aren't working for sleep... so why keep taking them? I am 50 years old and of course taking into consideration hormonal issues and possible apnea, RLS or anything else that be disrupting my sleep, as well as long stint of trazadone use. I have not had any trazadone since that last dose of 25 mg taken 6 days ago, my withdrawal was intense after that for 4 more days, sleep actually came in waves those few days but now I am only getting 2.5 hours in waves with being woken up every 40-45 minutes. Reinstating at this point is out of the question, all those nasty side effects I was having went away and my dizziness is about 2/3 out 10 now. I cannot find anything through searching to find out how long this will last, should I consider a reinstatement this far out and if I do and I'm still not sleeping do I just stop again? The cycle won't end, I am at a cross roads and even after my sleep study I don't get back in to see my sleep doctor till the first of July. I am starting to get a lot of anxiety and resorting to being in a depressed stated as I do not want to be prescribed more medication for aniexty and depression. Sorry the long post hoping there is someone hear that might point out something I am missing in the mix of all this chaos I have created for my self. Thanks so much. ps: was not sure where to post this topic.
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