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  1. Dear withdrawees ... I hope i find you all well... Or at least amidst a window rather than a wave . I've been scouring SA for some time now, picking up whatever bits of helpful and positive information i can about this horrific ordeal. I now feel its time to introduce myself and my history on AD's to the community with the hope of being provided with additional support and a view helping others in the future when this experience is more of a bad memory rather than a living hell . I have been taking Sertraline on and off for the last 6 years since 2013 after a series of horrific circumstances happened one after another. Despite the drugs having good effect, I've always been uncomfortable with masking what are obviously important emotions using a daily consumption of a drug. This has led me to unwittingly withdraw multiple times across the 6 year period which lead me to believe i was confined to a life of drug taking, this was until June this year when I first found SA and became aware of SSRI withdrawal . Of course I was left somewhat shocked but not surprised after feeling neglected previously on multiple occasions by the medical sector. Despite that though i found a new sense of hope knowing that a life beyond drugs was not only possible, but likely. Recent Drug History OCT 2016 - I quit Sertraline 50 mg CT after a family bereavement had turned my life upside down .. as a result it felt the drug was totally ineffective. MAY 2017- After what had been an appalling 6 months (which i thought was horrific grief but now realise it is likely withdrawal is the more likely culprit) I reinstated Sertraline at 50 mg before raising the dose to 100 mg due to not feeling any effect (again this is something that makes sense now). In time i had started to feel normal again and presumed it was because I had worked my way through my prolonged grief. FEB 2019 - Life was now back on track and decided it was time to try and rid myself of the shameful daily pill pop that is AD's. I quit Sertraline Via a fast taper... but may aswell have been a CT. JUN 2019 - I found SA . .. realised i was withdrawing .. and had inadvertently made multiple mistakes along the way. NOV 2019 - I'm roughly 8-9 months into withdrawal & STRUGGLING MY SYMPTOMS: A thick brain fog Anxiety an inability to feel emotions / make connections with people Loss of communication skills & wit muscle weakness Fatigue As I've said previously.... i am currently at the 9 month mark and I'm coping okay (I Think🤔 ) when i compare my battles to that of others.. but i am beginning to really struggle with the isolation that seems to be a natural part of the process. I have always naturally been an extroverted person who loves talking to people and being at the centre of attention although currently this couldn't be further from the truth and is taking a huge toll on my daily life. Every time I am confronted with some form of social situation my brain draws a blank. Its as if the lights are on but nobody's home. WHAT HAPPENED TO MY CHARM AND CHARISMA? I wanted to ask for advice from anyone whose been in a similar situation: What can i do right here and now to aid myself when dealing with these symptoms? If you've surpassed the 9 month point of withdrawal with these symptoms still rearing their ugly head, at what stage did you notice a marked improvement? Has anyone any advice on how to work towards improving other areas of my life, such as love or working life and learning new skills whilst withdrawing? If you've made it this far thanks for reading and i look forward to any replies? Cheers Glyn
  2. I need some advice, and reassurance. I have been on Zoloft (Setraline) for about 5 years and I have never really had any problems going on it from what I remember, I was on 50mg and never went up any higher occasionally if I forgot a dose I would be reminded with brain zaps, I occasionally got dilated pupils which may have been the zoloft and thats really the only issues I got. Then one day I went to my Dr about some issue and she then decided to up my dose to 100mg. Faithfully like a good patient I took it and about a month later I had horrible insomnia and racing heart so I was put back on 50mg. The side effects subsided within a week and that all was fine until, 2 months being back on the 50mg I got the same symptoms again, racing heart and insomnia, so I decided to quit them. After about a week my heart is back to normal but 3 weeks later i'm still suffering really bad insomnia.... Will this go away... I have never had any issues falling asleep before but now I can lay awake trying to sleep for hours! Sometimes I will try all night and sleep won't come, its given me really bad anxiety about bed time, I also seem to never feel tired.. I will have to force sleep even after a day without it, This is horrible and giving me real anxiety over it. The Dr gave me Quitapine 25mg for sleep but I just want my normal sleep back. Is this the Zoloft? Will this fade?
  3. Spring 2014: Effexor ? mg for 2 months then cold turkey (didnt know better at the time). Originally put on this for depression after a break up. Fall 2014: Dizziness, extreme memory issues, pins and needles in hands and feet. Occasional adderall use. Working 2 jobs to pay for engineering school. Health anxiety started when doctors couldn't find cause of symptoms. Tried samE, 5htp. Winter 2014-2015: tried molly with a friend. Ended up in the ER. Months that passed included many ER visits and eventually klonopin (? mg) Spring 2015: after researching benzo dangers wanted off. Tried to taper. Horrid withdrawal. Switched to diazepam 6mg. Dog/best friend died of cancer. Started celexa 10 mg. Rest of 2015: Moved back in with mom, slowly tapered diazepam, stopped daily on new years 2016. Winter-Spring 2016: back in school. Stopped celexa 10mg in January. Pins and needles and depression in February. Started on wellbutrin 150mg. Increased anxiety but allowed me to finish school. Graduated. Stopped wellbutrin after graduation. Summer 2016: quit job too much stress while going through what I now know to be withdrawal. Drove for ride share service when feeling well enough. Felt like living with chronic fatigue syndrome. No doctors could find cause. Fall 2016: started back on celexa 15mg after rock bottom depression. Eventually wellbutrin added back at 75mg. Moved to a new state. PM panic attacks started after going back on celexa. Started full time engineering job. Winter 2016 - Winter 2018: wellbutrin gradually increased to 300mg. Started celexa taper. 15 down to 10mg. Increase in depression but tolerable. Spring 2019: tapered celexa down to 5mg. Extremely depressed. Affected relationship. Found a psychiatrist who wanted to switch me to zoloft. Relationship break up the week of starting zoloft. Zoloft lifted depression at first. Summer 2019: got back together with boyfriend. zoloft increased to 50 then 75 then 100. Horrible reaction to 100mg. Worst anxiety of my life. Stopped cold turkey. Back on 2.5mg celexa. Dr Then tried liquid zoloft increase from 0 by 1mg every few days to cross taper with celexa. Able to stop wellbutrin easily. Also had tooth extraction during all of this (infected root canal). Fall 2019: up to 8mg zoloft 1mg celexa. Horrible anxiety. Stopped zoloft cold turkey after getting suicidal thoughts from severe anxiety. Current: trying to find a celexa dose to stabilize on. Trying 2.5 mg. Anxiety and fatigue battles daily. going to write more soon. Just wanted a quick recap to start.
  4. Hello and welcome to my hell. Lexapro 2 years along with heavy marijuana use, CT ... Fine for 5 months then all hell broke loose. April 2019 Took 1 10mg lexapro and woke up vomiting and diahrea. Cut back to 5mg for 2 days but couldnt move and also had the flu. Dr. Says try again when flu gets better. May 2019 took 2.5mg lexapro and awoke two hrs later7 in sheer panic and full blown akathesia. No good. Ended up in mental hospital and put on 10 mg celexa. After 5 days thrown back into full blown akathesia. No good so stopped and got worse. Second hospital stay now on lithium and zyprexa which lasted less than a week. 3 weeks later back in another mental hospital. Third time not the charm .. Put on Zoloft 25 and 3 days later up to 50. Did okay for 4 weeks then got really ill, could not get out of bed. Tapered off over 2 weeks. That was 3 weeks ago from today (Sept 1 2019). Felt pretty good first week, slowly declining 2nd week and now I am in a lot of body pain, sweats, tingles, head pressure, si, inner restlessness, trouble sleeping, crying spells, anger, and at times just ok. Supplements are Lions Mane, l theanine, B vits, methyl b12 and folinic acid since I am a mthfr! Vit D. Omega's and mag.
  5. Hi all, my name is Matt, I am a 36 year old husband and father of three whose life has been turned upside down by these drugs. Although after reading the wealth of information on this site, I feel I finally understand what is happening to me, though it doesn’t make going through it any easier. I reinstated Zoloft on May 1st and I know I probably reinstated at much too high a dose, but I unfortunately was following “doctors orders.” It has been a tough four months to say the least, and at times I feel I will be stuck this way forever. However I have gone on vacation twice in the last 4 months. The 1st one was over the Fourth of July, during that time I would say I was 50-60% of my normal self. Only to come back, get to work, and get slammed by waves again. Last week I went on an end of summer vacation with my family, this time I would say I was closer to 75-80% of normal, and hopeful this was finally the beginning of the end for me and I was stabilizing and could in a few months begin a slow taper the proper way. However this past week back home and back to work have been unbearable. Unrelentingly anxiety and akathisia from the second I wake, that eventually calms a bit at night, but sometimes not til like 8-9PM. My question would be, can being on vacation really make that big of a difference in withdrawal? I would think it was just a fluke, but it has happened twice now. But it is like, almost feeling back to normal, vs not being able to fathom making it through another day. The difference is astounding. Any thoughts would be appreciated, also should I be getting worried that I am 4 months into reinstatement and holding and not stabilizing? Thanks, this site is amazing and all these people are amazing SURVIVORS!
  6. Hi Everyone, I’m looking for advice and support. Last February I began what I thought was a slow withdrawal from zoloft. I tapered from 150mg down to 25mg in the span of 6 months. I went to 25mg on July 1st and a little over a month later I started to notice profound feelings of helplessness/despair, monumental anxiety, increased panic attacks, and this overwhelming feeling that the ground was going to open up and swallow me. To complicate matters, I’d been taking xanax to “help” with the panic/anxiety—maybe .25 or .5mg every other day. As I can tapered the zoloft, I began to notice interdose withdrawal from the xanax. On 8/24/19, I cold-turkeyed off xanax, thinking it was doing more harm than good. After a couple weeks of Hell (becoming truly paranoid, not eating, waking up with lightning bolts through my head, nightmares, and just overall terror, I upped my zoloft to 50mg. Close to hospitalization, I called my psychiatrist and he said to go to 100mg of zoloft and start klonopin. 100mg of zoloft was too much, and so I went to 75mg, where I’ve been for the past 14 days. I am taking .25 to .5mg klonopin every morning. My question is this: How long does it take to get stable? Everyday I have intense fear/anxiety and I have developed agoraphobia. The abrupt xanax cessation brought back ptsd symptoms. I’m not working right now and very isolated. I want to begin tapering again as soon as possible because I feel like both these drugs are contributing to my intense fear/anxiety. Any suggestions/ideas are more than welcome. Thank you. (Oh, and I’ve been on zoloft for... 10 years and before that luvox, prozac for shorter stints. Also on xanax & klonopin as needed for 15 years but only recently was taking xanax frequently). Thank you so much.
  7. HI everyone - thank God I just found you! My 19 year old daughter has been on 50mg Zoloft (sertraline) since 2008. This summer we tapered her off over a 6-week period (which unfortunately I now know was WAY too fast). She did great, no issues, until last week, almost EXACTLY 3 months later. Withdrawal symptoms of fatigue, dizziness, syncope, headaches, falling, nausea, stomach pain have been coming and going for 5 days straight. She's missed two days of school during mid-terms. It started on the day she got her period so at first I attributed it to that. Then I thought maybe she had the flu. Then I thought she was overwhelmed with her first semester of college. Never dawned on me it was the sertraline. But when it hit her hard again last night I stayed up all night researching and once I came across this board and read the intro pages I KNEW that's what we are dealing with. It seems to be getting worse each day. I feel horrible that I didn't research more before doing the taper. I stupidly trusted her Dr. Now that we are close to a week past the 3-month mark, I'm thinking I need to immediately try reinstatement to see if it will help. I have a call into her Dr. to call in an Rx, because we used all of hers up when she tapered off. Since it's a Sunday of a holiday weekend I'm not too hopeful, and am considering taking her to Urgent Care to see if we can get an Rx there to get started today. I also think he won't believe that these symptoms have anything to do with the sertraline. Based on my reading here I'm guessing that if we try the reinstatement, I would start her at 1mg and leave it there for 1 week? If symptoms improve, leave it there, but if they don't, maybe move to 1.5mg? Does that sound right? But if she seems worse then do I taper off for about a week, or faster or slower? I'm just sick this is happening to her - I feel totally responsible and like a horrible parent. Thank you all so much for being here to help those of us who come after you.
  8. I would like to say hello and thank this website for giving me hope. I have spent the last few days reading a lot of the posts and have found them to be full of information and great advice. The success stories are wonderful to read. I have never been in a medical situation like this and I was feeling lost and alone until I found Surviving Antidepressants. I was put on Zoloft (50 mg then upped to 100mg) in February 2016 due to depression over a long-term illness that at that time was still un-diagnosed. I got a diagnosis for my illness in April of 2016. I was hospitalized for that illness both in April and March and it was eventually brought under control. Once I got home from the hospital (both times) I was very weak and I had very confused thinking. I had multiple at-home treatments and medications to keep track of. Somewhere in there I messed up my Zoloft and either went cold turkey or was only taking it intermittently, but did not realize it at the time. Starting in May and ramping up in June I had all sorts of symptoms, which nobody in the medical field could figure out, including me. I was put on Gabapentin (600mg then upped to 900mg) to help with the symptoms. My symptoms included headaches, nausea, feeling hot and sweating but having a low body temperature, as well as the feeling of internal tremors in arms and legs, and actual external tremors. I also had jerky arm movements. I had what I call “vertigo light”, the whole room didn’t spin, just the floor moved when I tried to walk; I felt like I was drunk. I had brain zaps, motion sickness, insomnia, dizziness, nausea, and pressure in the ears like when flying on a plane. My memory was also bad. After endless nights of searching the Internet with my symptoms I realized I had withdrawal. Counting the actual amount of pills in the bottle and looking at the day it was prescribed confirmed that I had not been taking my medication. Once I realized what was going on I contacted my psychiatrist and I went back on at 50mg, which was twelve days ago. A dosage that high might be a mistake after reading about “reinstating” here on this sight, I don’t know yet. Since reinstating the brain zaps and vertigo have disappeared, and the other symptoms have gone down in intensity, however I am getting them more frequently. I’m now getting them every day, for at least a few hours and sometimes all day. Before going back on Zoloft they were really brutal but only for a few hours at a time, none of this all day stuff. Klonopin seems to help however my psychiatrist has suggested that I use it sparingly, he said that the Gabapentin should be helping with the symptoms. By the way, I feel I have an excellent psychiatrist. He did warn me when he put me on Zoloft not to go off of it without talking to him first and that there was tapering involved. He also responds to my frequent and desperate e-mails on a timely basis. I do recognize though that I need to be proactive when it comes to my health. This is my first time with a drug in the SSRI class. At this moment my goal is to stabilize. Eventually I would like to get off, but right now I just want the physical symptoms to go away. By the way, the depression, which was acute in February, seems to have disappeared, both while on and off the Zoloft. I am open to opinions, questions, and suggestions. Thank you for taking the time to read this.
  9. Hi, all. Thank you so much for providing this site. I’ve been inspired by the stories here, and look forward to my own recovery and hope to help others as I can along the way. It’s been a hellish year… I have a rather long story – 99% of which takes place within the last year – so please bear with me. I’ll write this out in a timeline for organization’s sake. In essence, I have a history of anxiety and depression, and have OCD. I have been suffering from severe postpartum anxiety (PPA) and depression (PPD) since delivering my son in May 2018 – exacerbated by a move out East so I could start my PhD, the decline and death of my dog, dealing with childhood trauma, etc. I was on Prozac and Xanax as needed before I was pregnant and went off without any problems while we were trying to conceive. I had an uncomplicated pregnancy. Here we go… 1999ish – 2005 (6th grade – high school) (Zoloft, Lexapro, Wellbutrin) I was diagnosed with severe academic perfectionism and OCD and put on (I think) Zoloft first (not sure of dosage). In the years that followed, I was on Lexapro and Wellbutrin, all in various combinations. I don’t remember timing or dosages. I don’t remember having a hard time coming on or off any of the meds. I was chronically ill in high school, though, with fatigue, mono, sinusitis, shingles (to be fair, I had immunological issues before going on meds, too, and a complicated family situation). I took the year after high school off to recover, went off all meds. All I remember is feeling tired and my sleep being on a weird schedule. 2005 – 2009 (no meds) I started taking some community college classes, started volunteering, and then working full-time. Started paying more attention to my diet (went off gluten and most dairy after I realized it made me feel better). Was doing very, very well. Summer 2009 – Summer 2017 (40 mg Prozac daily, ? Xanax PRN rarely taken; occasional supplements - multi vitamin, vitamin D, fish oil, probiotics) Started on 40mg Prozac (slow taper to START it), as a ‘preventative’ measure against OCD and perfectionism (I know… probably wasn’t necessary, but I can’t prove a negative) as I was about to start at a university in the fall of 2009; I was pushed by family (also on psych meds) to start. I think it helped somewhat but it’s hard to know. Eventually, I had an Rx of Xanax, which I took maybe 5-10x/year as needed. I did well in college, though, started a great career, went to the UK on scholarship to do my Master’s and then decided to QUICKLY taper off the Prozac when my husband and I (we married in 2014) decided to conceive. I don’t remember having any issues coming off the Prozac. I was on it fairly consistently for 8 years. Summer 2017 – May 2018 (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Pregnant, more depressed than usual, especially after moving back home from the UK and being unsure of what was next. Still, did the damn GRE, applied to PhD programs, got into a great program out East, started setting up our life out there. Obsessive compulsive symptoms were worse than usual but not unmanageable. Late May 2018 (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Delivered my son. Epidural, long labor. Started breastfeeding. Early June 2018 (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Had a week of awful insomnia and anxiety and intrusive thoughts, but it went away. Early June – Mid-July (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Doing okay, just exhausted and depressed (I was breastfeeding around the clock). One week in mid-July 2018 (? Xanax, one-time dosage ~6mg Zoloft, and one-time dosage 2mg Ativan, one-time dosage ? Klonopin in hospital; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Then, at around 7 postpartum weeks - BAM - I was hit with a week of NO SLEEP. I just couldn't sleep and I lost my appetite. I had been given an Rx for Zoloft by my OBGyn and took a very small amount that Friday (I wanted to ease in). That night, all my symptoms were much worse – and I also felt this severe restlessness in my limbs. It was AWFUL. I even tried Xanax to calm me down (I gave to my son pumped breastmilk). My anxiety was so bad that I went to the ER that Sunday. They drew blood and it turned out that my blood sodium was dangerously low (126) - possibly due to not eating enough and drinking too much water. They gave me Ativan (2 mg – which was A LOT for my system), some Klonopin, too, eventually, and fluids overnight and I felt MUCH better the next day. I was given Ativan and Remeron as needed but didn't need to take it for a few weeks. Mid-July to Late Aug 2018 (0.5 – 1mg Ativan daily; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) I was fine for a few weeks, and then my family and I moved out East, where I was attending grad school (I’m now on medical leave). The anxiety and insomnia came back around the move in August. I took Ativan (0.5 – 1 mg) as needed each day and had some rebound anxiety but was able to get through until setting up care there. I was assigned an interim psychiatrist (before being placed with a regular one), who Rxed me 0.5 Ativan to take at night to sleep for 10 days. This worked for sleep, but not the overall anxiety and depression. Due to breastfeeding concerns, they switched me to Trazodone (25-50 mg), which worked ok for sleep. Eventually, I was able to fall asleep on my own for a couple/few nights. That would be the last time I could do that to-date. Late Aug to Late Sept 2018 (0.5 – 1mg Ativan daily, 1-5mg Prozac, 25-50 mg Trazodone; supplements: postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, probiotics?) I started seeing a regular psychiatrist in early September, and we agreed I should go back on the Prozac with 1 mg Ativan/day as needed. We started sloooow on the Prozac - 1mg, then 2, then 5. By week 3, I had lost my appetite completely, and my anxiety was through the roof - just on 5mg (I was on 40 before becoming pregnant, so I couldn’t understand why I was feeling so terribly). The Trazodone was no longer helping me sleep, and was giving me terrible dry mouth. My limbs felt like they were vibrating. My psydoc FINALLY directed me to go off the Prozac and Ativan, and Rxed me just Klonopin 0.75mg/day. In addition to the psychiatrist, I saw a primary care doc, who checked my thyroid, adrenal glands (several tests there), vitamin levels, and other things - all normal. My blood sodium has still been a little low, but they believe it's due to not eating enough. Oct 2018 (Klonopin 0.25 – 0.75mg/day; postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, I might have tried some hormone-balancing herbs – I don’t remember exactly, probiotics?) My appetite returned but it was never the same. I was sleeping better, but not well – maybe 6 hours at most, sometimes waking in a panic. I could only take one class. I was very depressed and frustrated, and deeply confused as to why I wasn’t responding to medications. But I felt BETTER than when I was on the Prozac, and was able to feel like I could sleep on my own again, and on just 0.25mg Klonopin/day – but the plan was to let me ‘settle’ and then try a new AD, sooo… Nov 2-4 2018 (25mg Anafranil at night, 0.25-0.5mg Klonopin/day; postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, I might have tried some hormone-balancing herbs – I don’t remember exactly, probiotics?) The psydoc suggested Anafranil, a TCA. The day I started it, we put my dog down and I stopped breastfeeding (I had been tapering on that for months). It wasn’t a great time to start something. But I did. I took it the night of the 2nd, fell asleep instantly, then woke up feeling SO GOD AWFUL about 3 hours later. I had a tremor, I vomited, I couldn’t eat. My husband had to hold me while I shook in bed. I called the psydoc and she told me to keep taking it, sounding annoyed with me. So I pushed through for three days – but that was all I could do. Until then, that was the worst I have ever felt. Nothing could calm me down. Things start heating up here, so I’ll spare some details and focus more on the med changes… Nov 5-8 2018 I barely remember these days. Sleep was poor, I felt awful. Then on a Thursday night, I was up all night with panic attacks. I called my therapist and made the decision to go into the psych hospital. Nov 9 – 15 2018 (In hospital, put on 0.5mg Klonopin 2x/day and worked up to 100 mg Seroquel at night) I didn’t start sleeping until I was put on a combination of Seroquel and Klonopin. BUT, I remember this creeping feeling of “buzziness” and restlessness when I woke up everyday. That feeling would continue to get worse over the coming weeks and stay with me to the present. Nov 15 – Early Dec 2018 (0.5mg Klonopin 2x/day → 0.25mg Klonopin 2x/day; 100mg Seroquel at night; some supplements – don’t remember) I left the hospital taking 100mg Seroquel at night and 0.5 mg klonopin 2x/day. I officially went on medical leave from grad school. I stuck with this doseage for 2ish weeks, was sleeping well but feeling horribly depressed and anxious, then started to quickly taper the Klonopin. I don’t remember how quickly – but I wasn’t taking anymore than 0.5mg/day by early December. I then tapered on the Seroquel after feeling SO much worse when an IOP psydoc tried bumping the dose to 125mg; I remember not being able to sit still – going outside to pace. No tremor – just pacing, fidgeting, and losing a lot of weight. Early December 2018 – Early Jan 2019 (1mg Ativan at night, 2.5mg Zyprexa at night, 25-100mg Lamictal; postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, I might have tried some hormone-balancing herbs – I don’t remember exactly, probiotics?) I made the decision to move back home to do a program specialized in PPD (we ended by moving back entirely later that winter). In the program, I was put on 0.5-1mg Ativan at night, 2.5 mg Zyprexa at night (for sleep – though it never helped), and titrated up to 100mg Lamictal (the psydoc suspected a bipolar spectrum diagnosis). I was still incredibly restless, unable to sit down and just enjoy a movie. And my sleep was growing worse and worse. It was awful – then my mood grew worse and worse as we went up on the Lamictal; I also had increasingly bad tinnitus and TMJ. I was hospitalized as my thinking became suicidal – just ideations, but I was ready to go back in… Early to Mid-Jan 2019 (0.5mg Klonopin 2x/day, 5mg Paxil/day, 50mg Benadryl at night; 0.25-1mg Risperidone 1-2x/day; some supplements?; THEN back to 150mg Seroquel) In the hospital, I was taken off the Lamictal and put on 5mg Paxil once/day, 0.5 mg Klonopin 2x/day, Benadryl 50mg at night (for sleep), and Risperidone 0.25mg once or twice a day (I don’t remember). I became increasingly orthostatic (low BP, high HR). I stabilized mood-wise – sorta – and left the hospital feeling off, but better… Within days, though, we tried increasing the Risperidone, and my HR went up to 140 (I think we tried 1 mg). I wasn’t sleeping AT ALL. I was taken off the Risperidone, stayed on 5mg Paxil once/day, 0.5 mg Klonopin 2x/day, Benadryl 50mg at night (for sleep). Eventually, as my sleep diminished, the PPD IOP doc put me back on Seroquel (I has actually asked to go back on) – but suggested as much as 150mg. After that, my mood really shifted and became erratic; I was really upset and angry at my husband and suicidal ideation returned. So it was suggested I go back in the hospital... Late Jan to Mid-Feb 2019: 3-week hospital stay (see below for crazy med changes) All the docs agreed I didn’t need to be in there this long (everyone kept asking why I was still there), but there I was so they could keep throwing stuff at me to see if something stuck. I was holding out hope SOMETHING would work this time...: First week: 0.5 mg Klonopin 2x/day, 100 mg Seroquel at night, 300mg XR lithium 2x/day (HORRIBLE stomach reaction, especially when the doc abruptly pulled the Seroquel) Second week: 0.5 mg Klonopin 2x/day, 50mg Seroquel at night, some amount of Depakote (I don’t remember – wasn’t improving, irritable), tried PRNs of 12.5mg Seroquel and became really depressed Third week: 1 mg Klonopin 2x/day, 50mg Seroquel at night, 1200mg gabapentin (taken as 300mg twice during the day, and 600mg at night). That’s how I left the hospital. Mid-Feb to Early-March 2019: (0.75mg Klonopin 2x/day, 50mg Seroquel at night, 300mg Gabapentin 2x daytime and 600mg at night, brief re-trial of lithium – 150mg; multivitamin, 1,000-2,000 mg vitamin D, ? fish oil, 1200mg evening primrose oil, probiotics?) Instantly went down to 0.75mg Klonopin 2x/day (fear of dependence). New trauma-based IOP. Was very constipated. Tried low-dose lithium (150mg) as lithium seemed to be the only med to be helping to-date (along with benzos); was improving somewhat mood-wise, but the stomach issues were SO bad, so we went off. After going off lithium, my restlessness SKYROCKETED, and was particularly bad for 10 days. My stomach was AWFUL; I was taking antacids all the time; seemed to be worse after taking gabapentin, so the new IOP doc cut THAT dosage in half. Developed a tremor. The new IOP psydoc diagnosed me with akathisia – FINALLY. I had NEVER heard of that before (although, in retrospect, I think it has been mentioned to me in the hospital as a possible side-effect of the antipsychotics – but I remember them saying “you can get this, but I don’t see that in you, so…” and so I ignored it (dumb)). When I read about it, I felt so frustrated; this had, no doubt, been plaguing me since at least the one-time Zoloft attempt in July - and in particular since the first Seroquel doseage in November. Doc suggested I reduce my Seroquel from 50 to 25mg; I couldn’t do that for a couple of weeks. Early to Mid-March (→0.25mg Klonopin during day and 0.5-0.75mg/night, 25mg Seroquel at night, 200mg Gabapentin 2x daytime and 300mg at night, brief re-trial of Depakote – don’t remember dosage; multivitamin, 1,000-2,000 mg vitamin D, ? fish oil, 1200mg evening primrose oil, probiotics) Continue reducing my Klonopin down to 0.25mg during the day and 0.5mg at night. We tried XR Depakote as a Hail Mary in the med department. It seemed to help a bit, but also increased some of the restlessness. At this point – and this should have come sooner for me – I was done – just DONE– with med changes. My body needed a break. I haven’t added or taken away and particular meds since (with one exception - the propranolol, see below) – though I have reduced the dosages… Early April (0.25mg Klonopin during day and 0.5-0.75mg/night, 25mg Seroquel at night, 200mg Gabapentin 2x daytime and 300mg at night, up to 70mg propranolol throughout the day; multivitamin, 1,000-2,000 mg vitamin D, ? fish oil, 1200mg evening primrose oil, probiotics) Was diagnosed with thyroiditis (my thyroid had been normal as recently as January) – a relatively common thing postpartum, but it was ‘late’ to arrive to be postpartum thyroiditis, so doctors suspected the lithium. B/c I was hyperthyroid first (usually follows a pattern of a few months in 'hyper'/overactive mode, followed by anywhere from 3 to 18 (or more) months underactive. I was put on propranolol (taking as much as 70mg throughout the day). That seemed to help the tremor, heart palpitations, and restlessness maybe 50-75% of the time. But it crashed my BP. Early-April to Present (see below) We’ve moved into a new, stable house (both good and really stressful). As of early June, I am off the Seroquel. I tapered from 25 to 0mg by reducing by about 6.25mg every two weeks or so. I tried re-starting it to do an every-other-day ending taper, and felt instantly WORSE, so I am done. But it was probably too quick a taper. I NEVER want to take another antipsychotic again, though; I can point to the beginning of the worst parts of this whole cluster to starting Seroquel, and the akathisia that ensues and continues. I reduced the daytime Klonopin to 0 (though I’ve had to take a 0.0625mg to 0.125mg PRN three times in June as things have grown worse). I still take 0.5mg Klonopin at night. In June, I also went off the propranolol – too quickly – and have been having heart palpitations, and have been orthostatic. My BP was just getting to be so, so low. Now, taking any amount of it seems to make me more agitated/restless or, at best, woozy. In June, I also got ambitious and reduced the gabapentin from taking 400 mg during the day (200mg 2x/day) to 0 at the end of June, mostly b/c I thought it was making me feel worse; I’m not sure on this STILL (or if it ever did much of anything). I still take 300mg at night with 0.5 mg Klonopin. May was my best month - not great (I was still constantly restless, struggled with my appetite, and was really disoriented and depressed), but it felt more manageable. I should have done a slower taper on all things when I felt more stable, then – but here I am. June started out okay but, after going off the Seroquel and trying a glass of wine again (out with a friend), it’s been awful; the akathisia is back in full swing. NOW I seem to have reached this point where my body won’t tolerate much of anything again – as if it’s saying “if you’re done with one, then you’re going to be done with them ALL.” I’ve also noticed that the first half of my menstrual cycle is FAR AND AWAY WORSE than the latter half – and am trying to explore ways to (as naturally as possible) balance my hormones. I tried bioidentical progesterone cream that an integrative MD Rxed and it helped somewhat, but caused cramping and spotting and an upset stomach – no go. Currently Taking 0 – 200mg gabapentin during the day; 300mg gabapentin at night 0.5mg Klonopin at night 5mg melatonin (+10mg B6 – combo pill) at night Fish oil (1400mg EPA + 480 DHA) in morning and afternoon 1500mg primrose oil morning and afternoon 200-400mg magnesium glycinate at night, and magnesium oxide throughout day 2000mg vitamin D afternoon Cal+Mag+Potassium supplement afternoon 2 kinds of probiotics morning Multivitamin morning What Makes Things Worse Alcohol; I haven’t been able to tolerate this since sometime early spring – makes me SUPER anxious. Any antihistamine; it used to help me sleep but something in the last 2-4 months has changed my brain so I now feel WORSE the next morning. Some vitamins (I say that b/c I sometimes feel more buzzy after taking a multivitamin; on the other hand, sometimes I feel better) Caffeine (not that I’ve tested this too much; the most I ever drink is a cup of green tea, and I haven’t been able to do that in weeks) Antacids (found that out the hard way) What Helps Epsom salt baths Sweating Crying (when I am able to) Walking (especially in sunshine) Melatonin (at night – for sleep) Klonopin (but I am trying not to go over 0.5mg/day – mostly at night; and want to taper off) Massage Stretching Kombucha (not too much, though b/c caffeine) Apple cider vinegar + lemon water (ahead of meals and when I have an upset stomach – at east once/day) Eating enough (really tough to do right now) Not Sure if it Helps (tried/trying it) Acupuncture (doing this for a few months now) Therapy – CBT, talk Gabapentin (want to taper off anyway) Primrose oil Multivitamin Fish oil Magnesium Calcium CBD oil What I Need Help With I’m here b/c I need to feel like I’m not crazy when the psydoc says this isn’t still akathisia. I KNOW it is – I KNOW it’s protracted withdrawal and the effect of such a brain-altering year. I know this b/c, even in my most anxious moments pre-postpartum medications, I never felt this protracted insatiable restlessness and dread. I was a champ at sleeping (though a night owl). And my appetite was always solid (too much so, at times). This is DIFFERENT. I also want to get off the gabapentin and the Klonopin – but do so in a smart way. I’m not sure the gabapentin is a net evil right now and shouldn’t be taken off altogether? And is the gabapentin the best thing to drop first? And I need help managing the akathisia. I've read some tips here, and will explore those. Any help on the hormone piece would be invaluable. There is something there. I feel the effects of akathisia/withdrawal/autonomic disregulation far more at the start of my cycle. And this whole postpartum period has been inherently hormonally disregulating (compounded by meds like Depakote, which altered my cycle). Anyone else? Anything help? I plan to keep a more focused journal as this site recommends and track my symptoms alongside food, supplement, and med changes. Of course, what sucks THE MOST is the lost time and what's been taken - from the joy of being a new mother, to what was supposed to be a fulfilling career move in pursuing my PhD (I might have to give up my place now b/c I'm so disabled), to feeling defective for not responding to the 'right treatments.' The worst year of your life should not also be the first year of motherhood. To those of you that read this monster of a post – or event 10% - THANK YOU.
  10. Yes, it will feel like a miracle when it happens for you; and it will happen for you, it is just a matter of time. I want to get that out there first thing; it is my belief that we will all heal in time; it has happened for me and is continuing to happen and it will happen for you. Am I completely 100% done healing? No. Am I so, so much better? Oh yes! Now for some basics: Male, mid 50s, took zoloft for over 20 year, quit cold turkey 3.5 years ago, was off 5 months, thought I was relapsing, so started prozac for 3.5 months and then quit that cold turkey. Then I found S.A. and discovered what I was dealing with was not a relapse but withdrawal (and recovery). So yes, I did everything completely wrong and more than once! I am proof that given time we can heal. I currently just celebrated 30 months of being drug free. Now, how to begin to describe the inhumane torture that I have endured until very recently; not sure but I will try. I have gone through both the windows and waves pattern and the continuous misery pattern. I was one of those that suffered a great deal after quitting, but really got slammed at about 6 months off. At 1 year I was barely functioning; at 1.5 years I was still miserable, and at 2 years off I was wondering if I was doomed to endless suffering with no end. But now as I have hit the 2.5 year mark I feel as if I have turned the corner. Windows and waves general comprised the first year and then it became continuous misery for pretty much the next 6 to 12 months or more; and then back to windows and waves. My last serious wave was in months 25-26 and now finally what feels like solid progress the last month or so. I am hesitant to list symptoms because I know how much it use to scare me to read what others were going through; but on the other hand it really helped when a new symptom would start, because I knew it was part of the recovery process and not some disease or sickness, and most of these are gone or have become minimal although they lasted for months or years. And just because I experienced them does not mean that you will, we all have a very individual road to recovery; so here they are in no specific order: Dark depression, anxiety, paranoia, obsessive compulsive, panic attacks, intrusive/obsessive thoughts that tortured me, hopelessness, irrational thinking, suicidal thoughts, brain zaps, intense organic fear, severe inner-body tension that felt like my whole insides were clamped up, sexual dysfunction, severe tension, tremors and pain in the back of my legs and calves, terrible shoulder and upper arm pain, mania, extreme bloating and stomach pain, nausea, dizziness, vertigo, feeling like my brain was on fire, feeling like a part of my brain was missing, feeling like a bomb had gone off in my head, floating head feeling, super-hot face, body temperature regulation problems – being super-hot or cold, constipation, dehydration, lack of appetite and weight loss, feeling dead, anhedonia, akathisia, mood swings, insomnia, terrible brain fog and inability to think clearly, sensitive vision and hearing, inching and burning skin, cold like symptoms, head congestion, phantom smells, constant tinnitus, severe fatigue and exhaustion, health anxiety, I could not read, listen to music, or meditate, heart palpitations, random traveling aching and stabbing pain throughout my body, headaches, and so many other symptoms that I can’t remember. The torture, pain, misery, suffering and utter despair was never ending…until it did finally start to end for me and it will for you too. Did anything help me along the way? I tried many things; acupuncture, vitamins and supplements, alpha-stim, gluten free diet, no sugar diet, no caffeine, no alcohol, and anything else I could do to try and feel better. Did it work? In a sense it all worked because it kept me focused on recovery and gave me hope when I had none, and the possibility that I might feel better. But time passing has been the real healing agent; although that was the last thing I wanted to hear when I was suffering so intensely. I did find that mindfulness, breathing exercises and physical exercise helped when all else failed and I was so truly desperate. Many hours were spent just trying to pay attention to my breath going in and out; and I still use this practice as a relaxation method. It also helped me greatly to visit this website daily as well as Benzo-Buddies. I read success stories for hours at a time, read the Bloom in Wellness facebook page each day and anything by Baylissa Frederick and also Don Killian. So, what remains for me? I still have tinnitus (although it has gotten much better over the last month), stomach bloating and pain on occassion, nerve pain, some brain zaps at night, fatigue and tiredness, and sleep issues. If I had to put some percentages on where I am at now I would say physically I am at about 85-90% healed and mentally/emotionally at 90-95% healed. I now eat anything that I choose although I eat as healthily as possible because I value life so much now and I want to live as long as possible; I exercise regularly and it feels wonderful; I enjoy caffeinated drinks including regular tea and coffee which I had given up for many months; I also drink wine and beer a couple times a week if I choose to and enjoy it. I am in the best shape since high school, and have lost 75 pounds (on purpose). Life is good again and just the simple things are more than enough to bring joy and happiness. So that is my story and I hope it will encourage you as you read it that you will recover and become yourself again. I remember reading similar statements in success stories and thinking, “Yea, right, that is easy for you to say, you are not suffering through this terrible hell right now!” And maybe you are thinking the same thing as I did, but please listen to my words; you will make it, you will recover, you will feel better, and you will join me in loving life once again; just please don’t give up or give in and keep going! As I sit here with a cup of coffee and contemplate what I have been through the last several years, it all seems so strange and foreign. Success stories promised that I would make it to recovery, and they were right, so now it is my turn to tell you that you will make it, “You will make it!”. Wishing everyone here all the best and a quick recovery. Please let me know if you have any questions and I will be happy to try and help. All my love. Pug
  11. I've been on antipsychotics for nearly 20 years after I had a psychotic breakdown whilst I was taking an antedepressant and experiencing several major life stressors. I've tried to withdraw numerous times but have always become psychotic very quickly. My memory has been affected, I now have diabetes and my weight soared as I put on 10 stone. I'm here because several people recommended this site. I currently take 300mg amisulpride plus medication for diabetes, high blood pressure and high cholesterol.
  12. Hi. I'm new here. Here are the basics of my story. I had been on 150mg of Zoloft for 17 years for dysthymia and generalized anxiety disorder. I decided to taper off, with the blessing of my pdoc. My depression and anxiety returned, and I had to not only increase the Zoloft to 200mg but add 1mg of Abilify (plus Konopin as needed). It's been a year and a half since the episode began and a year since starting Abilify. I'm feeling quite a bit better--I hardly ever take the Klonopin, and my pdoc said I can try doing without the Abilify. I just went 16 days at only 0.5mg of Abilify, but I'm feeling anxious and depressed again and bumped back up to 1mg. I'm so frustrated with the whole situation. I'm working hard to recover: I'm in weekly therapy, I run just about every day (3-6 miles), and I meditate almost daily. I don't want to come off the Zoloft, just the Abilify. Maybe I won't be able to, in which case I need to come to terms with that. Any comments or questions would be greatly appreciated.
  13. Hi all. I have been on a combo of Risperdal and Zoloft since 2012. I reached 3mg risperdal and 200mg zoloft in early 2016, tried to taper off both starting in June of that year, and had a bout of insomnia in November, at which time I reinstated along with an additional 15mg remeron. Adding the remeron, I've learned, was a huge mistake and most likely unnecessary. Since then I've slept at most 6 hours instead of my usual 8. For the first 2 months on remeron I avoided caffeine and tobacco. Then, after picking up both again, my sleep suffered, and I eventually had nights with 2-3 hours. I've since learned that caffeine and tobacco induce the enzyme CYP1A2, which metabolizes remeron, explaining this. By abstaining from both, my sleep has returned. I have also tried shaving a sliver off my 15mg pill with no luck...getting a full night without sleep. I would like to be able to drink coffee and smoke again. That leaves me with 2 options, get off the remeron (seemingly impossible) or tolerate the lack of sleep. If I do the latter, will my sleep eventually not recover even when abstinent due to repeated withdrawals? I had been planning to use coffee and cigs only sporadically, letting my sleep return before using them again, or using only on the weekends. If I that is not sustainable, then how do you recommend I get off the remeron, given my sensitivity to even a small dose decrease? My doc has suggested trazodone as a replacement, but that med interacts with my other meds and a post about it here scared me away. Thank you so much for your help.
  14. Hi all. Found this site a few months ago. I am beginning to attempt getting off ADs and Benzo. I have been taking antidepressants for 17 years. I am 44. I do not work outside the home. My goal is to incorporate healthy activities (suggestions please) to help lessen the withdrawal symptoms. I am realistic about the amount of time it will take and hope everyone here can be a support system. I am married. Hubby is supportive, but doesn't really understand what is going with my body. I have really bad health anxiety currently. I was diagnosed with bipolar about 5 years ago and was put on lamictal 200mg. Wellbutrin was added shortly after. I tapered of Zoloft over about 18 months. I had my first anxiety attack exactly 2 weeks after the last dose. So we decided to stay in 25 mg. which held off the anxiety attacks since then. About 8 months ago I started having increased anxiety along with some peri menopausal symptoms. Then the health anxiety followed, probably because of all the weird symptoms I was having. I went up to 50mg on the Zoloft and taking Ativan to help me sleep. I realized I was building a tolerance to it, so I weaned myself back off and was doing fine. Then the cycle started again. New symptom (breast pain this time), then the health anxiety and back on Ativan. I only take .125mg at a time. If I don't feel much relief in about 30 minutes, I will take another one. That usually does it. Then I stop when I feel better. However a couple of weeks ago, I noticed I was having muscle twitches and jerks. Don't google that!! Now looking back I think they may be related to stopping the Ativan after taking it for several days. I really don't know. So I decided today to take a dose to see if it settles down over the next few days and go from there. 3 days ago I started a taper on the Wellbutrin 150 mg xl. My doctor wrote prescription for 100mg sr tabs...and I started taking 75 in the morning and 50 in the afternoon. I am hoping this won't be too fast, but I am going to try it. I also started having stomach upset a couple of days ago with some diarrhea today. Very unusual for me. Is that possibly Ativan w/d? Thank everyone. Not sure how to add signature. Attach a file maybe?
  15. I joined 3 years ago when tapering from Effexor. After 18 days of being off , I couldn’t take it any longer and started Zoloft which I remained on until early September 2019. Have been tapering per medical provider schedule of 1 month. Again unsuccessful. I would like information on tapering from Zoloft and Pristiq, please. MVGS
  16. I hope this post is not too long, but I have been through the pharmaceutical wringer and I'm not being heard, believed or helped by my doctors: 2 years ago around May 2016, I had my first panic attack. ER doc rx'd Ativan .5mg 3x a day. Never said a word about dependence. After 3 weeks the script ran out and so I just stopped, and of course, all hell broke loose. Went to my PCP who dx'd me with anxiety and rx'd xanax and Effexor. After 1 night of throwing up, I stopped the Effexor. What I didn't know at the time was that the dose of xanax he prescribed was HALF the equivalent of the ativan I had been taking. He obviously knew nothing about dosage equivalencies. I could not understand why I was so very sick. I found a Pdoc who I thought was very understanding and said she could help me. She switched me to Klonopin and rx'd 25mg Zoloft, and upped the dosage to 50 mg after two weeks. After stabilizing on a whopping 3mg Klonopin, I started to cut, taking 50 mg Zoloft all the while. All during this time I was very weak and shaky, which I attributed to the benzo, but now I'm not so sure. I finished my benzo taper in Nov of last year, and really suffered very little, if any, acute, but still felt a little shaky. I then decided to come off the zoloft, as the Pdoc stated it was "very gentle" and I could just quit. Being gun shy after the benzo fiasco, I did do a short taper and came off with no issues in January of this year. Shortly after that, my leg shakiness and hand tremor went away, but I still did not connect them to Zoloft, because all the emphasis was on benzo withdrawal and how "gentle" zoloft was. In May of this year, it was clear that my mother, who had been very, very sick for very, very long, was dying. By this time, I had a new PCP and no Pdoc. Since I was extremely stressed and grieving, my PCP suggested I go back on zoloft, and I didn't see why not, so I restarted 50 mg. Immediately, I had weakness and tremor again. In August 2018, two months after my Mom died, I decided to come off the Zoloft. Still believing it was a benign drug, I once again did a fast taper of about 3 weeks. I felt fantastic off of it - no more weakness or tremor, TONS more energy - until 31 days later when it all came back full force. The trembling, weakness, and anxiety just all of a sudden came back. Finally, the penny dropped for me, and I found this site and realized it was withdrawal. I went back to my old Pdoc who laughed in my face and said withdrawal is impossible after 1 month. She told me to face the fact that I needed to be medicated and gave me the smallest dose of Lexapro. I took it for a week, but was feeling progressively worse, and I knew I didn't want her to treat me anymore. I went to my PCP and told her the whole story. She does believe me and is trying to help, but I think she's out of ideas. She did give me a DNA test for drug sensitivities, which shows me to be a slow metabolizer of most SSRIs and SNRIs, and an "intermediate" metabolizer of one SSRI, Prozac. For lack of a better answer, she put me back on 25 mg of Zoloft to attempt stabilization, but its been 3 weeks and I just keep getting worse. I now have insomnia, very high chemical anxiety, muscle twitches, no appetite, cold feet, temp changes, diarrhea and morning cortisol spikes along with the weakness and tremor. I am effectively bedridden. As of today, I have upped my dose to 37.5, but knowing that I retain high concentrations of zoloft for longer than normal, I worry about serotonin syndrome. My PCP wants to switch me to Buspirone, since my DNA test indicates I would tolerate that well, but she wants me to find a Pdoc to help with the switch, so here we go again!! I just want to stablize on something so that I can function, and then down the road a couple or few months, start the long taper that should be done. Does anyone have any suggestions for me? I'm really struggling. Thanks for reading this long post.
  17. Hi, I've been tapering from Zoloft for almost 4 years now. I started at 150mg and am down to 12.7mg. I'm reducing 10% every 8 weeks. Except for minor withdrawals around week 6, so far so good. My question is - how far down is it necessary to go before you finally quit? 3mg, 1mg? Less than 1mg? Also, I'm using the Gemini 20 scale with the 10mg weight. How far can you go with this scale and be accurate enough? It seems like the scale is getting touchier the farther I go down. I saw someone on here say they bought a new scale every few years because of this. Sound like a good idea? Or should I try switching to a liquid?
  18. Hi everyone. I've been browsing this site for a couple of years and thought I'd finally join. I'd love to be able to talk with others about what I'm going through. I'm only 22 but I've pretty much been through every hell imaginable in terms of SSRI use (I started when I was 5--not by choice, obviously). It really frustrates me because I never even chose myself to go on these medications, I had very bad tantrums and anxiety as a small child and a psychiatrist put me on them. As I got older, instead of being told to get therapy and try getting off them, she just kept raising the dosage. By age 12 I was on the maximum dose even though my problems weren't that severe. I remember being in middle school gaining weight, feeling tired CONSTANTLY, just not feeling like a kid at a ll, and at the time no one thought that the medication could be the reason for it. It's so upsetting because I feel as though my entire life up until this point has been taken from me and Ill never experience what it's like to be young and happy. Like I said I never showed depressive symptoms before the medication but as the dose was raised I would occasionally get depression symptoms. When I was 15/16 I was switched to celexa which actually "worked" quite a bit better for me, I lost a lot of weight and felt energetic and motivated, but by the time I was 18 I really wanted off of these drugs that weren't even my choice to go on. However, as I learned the hard way psychiatrists don't have a good understanding of what's required for a successful taper. I was then on 40mg, and she lowered it all the way to 30, and then quickly after that to 20. This all happened right before I went away to university for the first time, so it was just horrible timing. My first month of college I noticed I began to feel severe chest pain. I didn't know what was happening and it was very scary. My entire freshman year I essneitllay spent in severe burning pain all across my chest and upper back. I would be doubled over crying for much of the day because of the pain. I went to see SO many doctors about it but they all said I was perfectly healthy and it must be from anxiety or just 'in my head'. I had to leave college after my first year because of the pain. By this point I was completely off of the celexa because I didn't know what was happening and I thought the pain was being caused solely by the drug itself. But the pain didn't get any better, it got worse. I basically spent the next 3 years (not an exaggeration) bedridden crying in pain. I cannot even describe in words how severe the pain was. And the problem was no one even considered that it was due to withdrawal because every doctor I went to said no, withdrawal wouldn't cause pain like that. So it was just a constant 'search' to figure out why I was having this mysterious pain. Even when I went back on the celexa to see if it would help, it wouldn't get rid of the pain, but I believe that's because (as I later found), the only way to get rid of it is by going on the HIGHEST possible dose because that's the highest dose my body was accustomed to. Finally last year I tried Zoloft out of desperation (I was missing my whole youth...I feel like my situation is a lot different because I spent 18-21 bedridden in pain. I know I could "wait it out" a few more years...but I'm missing my entire youth, a period fo my life I won't get back, and I don't know how much longer my college is going to let me take time off. I should have already graduated by now :(. It's so painful to be in so much pain while other people your age are having the time of your lives.) So even though I hate these medications, I tried Zoloft in a desperate attempt to just be out of pain and be able to move forward with my life. By the time I reached 150mg my pain went away completely (after 4 months on it), but of course I have other side effects on it I do not like like loss of creativity (I want to be a musician, and I love art), not feeling emotions as deeply, and almost feeling like your'e living life in a fog. To be blunt I don't feel "myself" on it. My individual spark is gone. But, I was just so desperate to get rid fo the physical pain. Anyway I made a freaking stupid decision in May to go off of it. At this point me and my doctors still didn't 100% make the connection between the pain and withdrawal, it was just a 'theory'. I thought my pain could have lessened because I had a boyfriend and friends now, was in school, feeling better, was out of pain to the point I was exercising consistently, etc. Well, nope lol. All of my pain returned this month. I'm back to being in bed with pain I'm in a huge dilemma because I know from past experience the pain DOES NOT go away. It's weird because I don't have any mental symptoms from going off the medication. I don't feel any more anxious/depressed/etc. The symptoms are all physical for me. It's just the most severe pain imaginable. I'm sure it's some type of nerve damage because it feels like burning knives stabbing into me..no words can describe the pain. I just want the pain gone as soon as possible, but I know if I go back on the medication I have to say goodbye to who I am as a person and my musical talent. I don't know what I'm supposed to do. Like I said, I have already missed so much of my life. I don't want to be bedridden from pain anymore 😞 It just hurts so much. And it's not even my fault because I never chose to go on this medication!! I feel like I'm screwed for life, and will never have a full life devoid of both pain and of the medication. What if I just never adjust to being off of it because I started so young? I just hope some people here can offer me advice on how to eliminate it without having pain like this. I just cannot stand the pain... I'm sorry this is so long but like all of you, my story is long! To make it easier if someone is just skimming, withdrawal symptoms include - severe burning / stabbing pain in upper back, chest, shoulders - occasional hip pain and inability to walk because of it - digestive problems (extreme bloating, heartburn) - lightheadedness when standing up at times - basically feel like all my nerves are on fire - chest tightness 24/7
  19. Dear all, I took Sertraline 50 (French name for Zoloft). for only a month and I have developped PGAD (Persistent Genital Arousal Disorder) following a too fast withdrawal. I read the story of some of your members who had PGAD when they withdrew from an antidepressant and their stories looked like mine and gave me hope and I hope they can confort me and assist me because I am in a very dark place. I read the stories of Hopefull anf Broken. Are they still on the forum ? How are they doing ? Until December 2016, I had never taken any antidepressant or a benzo in my entire life. I was leading an happy life with my husband and son in the West of France. We had a chemical accident in december. I mixed 2 products while cleaning my house, bleach and a cleaning product with acid and stupidly burnt my lungs and got a toxic choc on the 27th of december. My doctor thought I was anxious afer the accident and put me on Xanax 0.25, half a pill at night. I took it for a month in January 2017 and was sent to a psychiatrist who put me on Lisanxia 10, a pill a day. I felt suicidal because i didnt understand I was suffering from the Xanax withdrawal the doctors kept changing the pill without any tappering, I stayed on Lysanxia 10, a pill a day the whole February , then another psychiatrist decided to put me on Bromazepan 6 (4 quarter a day). I stayed on Bromazepan the entire March and he put me back on Xanax, all of that cold turkey. And that how I met my worse nightmare, the Sertraline AD: I was feeling very agitated on benzos, my lungs and entire skin were burning and everybody told me it was in my head. I didn't agree so I was hospitalised againt my wish in a psychiatrist hospital. There, they made me stop my Xanax 0.25 cold turkey and put me on Sertraline 50. This happened on Easter monday 2017 (April 17 th). After 2 weeks, I was sent home and started feeling very ill, I had tremors, agitation, fatigue, shakes, flu like symptoms and suicidal thoughts. I went to see a GP who told me I could drop the Sertraline to 25 because I had only been on it for 2 weeks and I could slowly stop it. I went on the 25 pill and then I started having violent withdrawal side effects (I don't know which ones came from Xanax or from Sertraline) : My symptoms : Sensitivity to light and smells, burning skin, hyperacusis, agitation, akathisia, tinnitus and when I thought it couldn't get worse, I started peeing every 10 minutes, got a hyperactive bladder, terrible pains in my genitalias, bladder and pelvic area and the worse of it permanent arousal. Since I have kept the tinnitus in my left ear, the akatisia and PGAD. I was sent to another mental hospital at the beginning of June because I thought they could help me with PGAD. They put me on Risperidone for a week while they made me stop the Sertraline very fast (they made me take it every 2 days for a week then they replaced it with Anafranil 25 that I kept for a week. My tinnitus got worse and my PGAD stayed the same. I was getting sicker and sicker so the psychiatrist stopped the Anafranil and the Risperidone and I was put back on Xanax. I am now back at home, my PGAD symptoms are terrible and I am considered manic and hypocondriac. My doctor wants to put me back in a mental hospital. I can't look after my family and Iam in a very dark place with suicidal thoughts My 3 main withdrawal symptoms : high pitched tinnitus, agitation and PGAD. Pins and needles in my lower back, legs and arms when the PGAD crisis start. . MY PGAD symptoms : Overactive bladder, ongoing arousal sensations in and around the genitals, having to go to the toilets every 10 minutes, pelvic pains, Pins and needle, shaking. It is atrocious and it makes me suicidal. I take 3 Xanax 0.25 a day and a Zopiclone 7 to sleep. I cannot sit because the symptoms get worse and I can barely walk because my bladder hurts. I spend my days crying on my bed with an ice pack on my lower parts. At night I cannot sleep well because of the tinnitus. I went to see an urologist, I had a cystoscopy done and they told me it is not an interstitial cysticis and gave me Lyrica (I am scared of taking it because I fear it will make my tinnitus worse). Nobody knows this symptom in France and people think i am crazy. Thank you for reading my story. Please can you reassure me ? I am terrified and I am suffering greatly. Would it go away ? Is it a withdrawal symptom ? Thank you so much for having this site on the internet. It gave me a lot of confort. Cathyfrench (I am french so I hope my English is not too bad, my apologies for my grammatical errors)
  20. Hi everyone! I'm new here, I'm an 18 year old girl, will be 19 soon, and I took Zoloft from when I was about 16 and a half to when I was just about 17, so a year and 4 months. I've been clean of the poison since August 28th, 2016, so ten and a half months now. Since I don't think the drugs were good for me to be on to begin with because they caused a whole host of strange behaviors and feelings, like sedation and mania at times, as well as periods of complete apathy and feeling sick, not to mention the sexual problems, I decided to get off of them. Here's how things went: Felt better when initially coming off Zoloft. Much better. Perhaps more negative, but more energy, felt more normal, looked better, etc. Less headaches and other side effects. Happier...almost manic sorta. Sex drive increase and no problems with prolactin overloads. Continued like this (with adaptogenic herb, B6, inositol, and other supplementation) until December 2016. Sometimes wanted to "crawl out of my skin" also and getting more frustrated when my best friend wouldn't call me, less worried about what he thought. December 2016, my life crashed. My best friend and I had a falling out and he was distant for a while. Worst depression I have EVER felt for 2 weeks straight. I was stuck in my body, it was the worst feeling I have ever EVER had, profound depression, profound pain, I could not deal with it..so incredibly horrible. Definitely would not have been nearly as bad if I weren't only 4 months off Zoloft. Probably wouldn't have been bad at all if I were still on Zoloft..scary. Extreme disconnection from the body. This scared me because the issue was generally pretty mild--a friend being distant. The fact that it caused such a terrible horrible depression made me realize how hard this journey was going to be for me...my ability to handle stress and emotions have been greatly diminished. January--February were blahhh. He texted me again, didn't switch schools, we were friends. I also started taking tryptophan for serotonin deficiencies and the pain went away but the horror of what had happened still lingered and left me exhausted and terrified of another episode. I felt extremely out of control of myself and my life. Never would have felt this way on zoloft. March was terrible. He ignored me again, again intense anxiety, worse than I could possibly describe. Literally horror. Started taking ashwaghanda which, along with him reconnecting with me, made April and May more bearable. Sometimes felt GOOD in those two months..other times not, but it was really not horrible. A couple periods of intense pain, usually from relationship stress, but I recovered when things went back to normal. June..was fine. I'm living. In college now. Was pretty intent on committing suicide a couple of days ago..thoroughly convinced myself that I would do it and that I need to do it. Didn't do it. Probably won't this week. Can't take the unbearable social pain any longer though..it's putting a hole in my heart. I refuse to go back on those meds. Ever. They're awful and they still are affecting my sex drive..PSSD is there. Realizing that I'm at the end of adolescence and never had a true, hormonal, exciting sexual experience and the ability to experience that kind of thing will go away when teenage hormones go away. I may never be normal again. I'm incredibly upset and worried and cursing myself for taking those pills. Also feel really alone because nobody understands and I can't talk to anyone about it. If I weren't in a fine mood, I'd be ready to pull the friggin plug. All of my sexual experiences are awkward and bad, make guys feel like rapists, never result in orgasm, always lose excitement once any touching of the genitals is involved, and end up very VERY bad. Masturbation is 100X better but it still takes longer and isn't as easy to cum.. I feel hopeless and screwed, scared and worried. The same mechanism affects your ability to fall in love..I need hope. When will these things get better? Note: One thing I can say is the intense feeling of being disconnected from my body or wanting to crawl out of my skin has gotten better, which makes me realize that my brain is normalizing itself. I'm just worried that things will never be the same again, because of receptor problems or permanent brain damage, especially in the sexual department... Help?
  21. so here i am building a public diary about my experience with sertraline. my intent is quite selfish i assure you - i seek catharsis - but with a little luck this introduction will evolve into a success story, and someone else who also struggles may be uplifted in the process. it helps to read about the experiences of others and I'm hoping it helps to talk about my own even more. i guess thats why we're all here, to talk. i just wish i could cuss here cuz its like half my vocabulary. anyway, after taking sertraline 50mg for seasonal affective disorder for three years with no adverse effects i figured i would quit. after a little research i did what amounted to a taper over the course of 6 weeks. i felt fine and had no side effects for two months after my last dose. i thought i had moved on, no biggie. about a week ago i had a panic attack seemingly out of nowhere. it basically didn't subside for three days and i was clueless as to what the problem was. i figured i had finally snapped. i was afraid to be home alone so most of the first 72 hrs were spent driving around aimlessly searching for meaningless tasks to keep me occupied and visiting friends on high alert at best, full blown panic at worst. i couldn't eat or sleep or think and my vision was screwy and my adrenaline pumped and my ears rang and my heart beat and my breathing was labored. confusion ruled and still i was determined to ride it out like a bad trip. through conversation with friends and internet research i realized i was experiencing withdrawal. it was something i hadn't considered and i was floored by the implications. after researching this site and the horrors contained within it i decided to reinstate sertraline at 25mg on 7-7-16, 3 days after withdrawal symptoms began in the hopes of stabilization and eventual slow taper. as of now it has been about 48 hrs since reinstatement of 25mg once daily in the morning. i realize it takes time for the drug to build and have an effect but i suspect there has already been some improvement. i haven't have a bad reaction and have had limited success with food and sleep so for now i hold and hope. ill hold forever if need be, i can be rather tenacious when properly motivated, even if this is the weakest i have ever felt. it has been and still is quite the roller coaster of fear but i am hopeful…ish. this forum has helped so much already and may prove to be my rock, my arm floaties in rough seas, and my fuzzie kitten for my nerves. thank you. stay tuned for the next freak out!
  22. Hey all, From original topic title: 8 months of hypomania, increasing irritability, two major manic episodes, then CT Wish I found this site before. Prescribed 50 mg in October 2018, reported immediate response, eventually asked to cut the dose to 25 mg when symptoms were arising more frequently. Doc said go up to 100 mg, thankfully I disagreed and we went down instead. Kept having increasing symptoms and eventually started taking 12.5 mg twice a day thinking I was a fast metabolizer. Then: suicidal ideation and one hell-ish manic episode (with a good 50 mini-episodes over a months time). Quit CT once I learned what was happening. BP2 diagnosis came, but now a month removed from sertraline, I don’t see it. I’m dealing with some crazy withdrawal symptoms... mostly headaches and irritability. I sometimes blink really hard, kind of like a brain zap. I’m on intermittent leave from work, and didn’t burn all the bridges I have, but came damn close. now I’m learning healing takes months/years. Why is this a drug prescribed so frequently? What a nightmare it has been.
  23. Hello all! I've been having a troubling time and at last I've found a place where people can listen. For around two months I had been very stressed by university decisions and having a major existential and academic crisis. After taking my exams my mind was working at 1000000 miles per hour and I was constantly stressed and evaluating everything. I'd found my self slowed down and constantly riddled by worry and regret and anxiety. I began taking '5-htp' which I was told would help somewhat. I then discontinued it and went on holiday and when I came back I felt slightly better. However my psychiatrist recommended going on Sertraline and prescribed it for me. I didn't really want to take it as I was feeling better but my family pressured me into it so I took it. That night, I was lying in bed and my brain was racing with worries and regrets and stressing and suddenly I felt something attack those thoughts, resist against them and dull them down. Initially, this frightened me inordinately but then I thought 'this is what this drug is meant to do' and just sort of let it happen. I then felt it attack against my verbal fluency and vocabulary and writing and evaluative skills. This seriously scared me and I felt my whole body fill with immense tension and stress and anxiety and felt as though I had gone into overdrive. My brain went into overdrive and I felt as though I'd never sleep again. I took it the next day and insisted that I stop it and didn't want it in my brain anymore so I went to the doctor and she told me the psychiatrist should never have prescribed it for me in the first place. She told me to stop it. I stopped taking it after only two days. The symptoms persisted and the world felt weird, dull and my perception of it awry. I suddenly developed this intense headache unlike anything ever experienced before - it was as though my whole brain was disintegrating. Like someone'd opened up a door in the sides of my head and it was all disintegrating away. This went away. I then started the 5-htp again, foolishly, unaware that it interacts with sertraline. I then stopped the 5htp after a couple of weeks of feeling strange, slowed down and sick. I hadn't slept at all since the sertraline. I then went away to Cambridge for a week to study English Literature and felt weird, slowed and dulled. Talking to people was hard and I found it difficult to form sentences, opinions and have conversations. Anyway, sitting in the lectures the pain in my head came on 10 fold. IT waslike my whole mind was disintegrating and I couldn't focus or concentrate or anything. I was petrified this and scared that at anymoment I may have a stroke or faint or something serious. I came back from Cambridge and told my parents and they simply thought I was psychotic, anxious and depressed. I insisted something was physically wrong with me and pushed to try and see a doctor. We went to the doctors who told me what I was experiencing wasn't real aand the drugs had no effect on me. They then prescribed my Valium because they said it was anxiety . I didn't want to take it but my parents forced me to. The Valium spaced me out and blunted my thoughts significantly. I then started to feel my brain shake and pump and wobble and light would effect me and I found myself talking strangely and so forth. It felt like my whole brain was sick and trying to be sick, like there's some horrible nocuous chemical eroding my brain and intelligence. I was walking around school confused and now it's like my brain has just shut down. I've discontinued the valium now but everything is wrong. I am completely Depersonalisation, I can't really remember my life and short term memory or process any new information or understand anything. My speech is terrible and I can't talk to people because when I do I frost over and it's like there's no-one inside me. it's like the lights have been turned off inside my own head and every day it is worse. No doctors think there is anything wrong and they just want to put me on Prozac and anti-psych meds now to shut me up. I don't know what to do anymore. My whole life is falling apart. I've gone from being someone who was intimidatingly intellectual, confident, creative, gregarious, sociable, quick witted, eloquent and so on to a bumbling, seemingly half brain dead zombie with no emotions, thoughts, feelings, opinions, memories or anything. Bear in mind I am only 17. What do I do? Every day it gets worse. The headaches are worse, the DP is worse, my cognition is worse, emotion lability is worse and the doctors are having none of it other than wanting to prescribe MORE ADs and APs. It feels like my whole brain is fizzling and wrong. Thanks! Any advice or similar experiences would be welcomed inordinately
  24. Kristeebee

    Kristeebee: hi there

    Hi my name is Kristy. I am during doing a slow taper of Zoloft (50 mg). Because my system cant handle going higher than that snd gives me more anxiety. At this point, I'm not sure if Zoloft is giving me more anxiety or not. I have tried most antidepressants with anxiety being worse. I am currently on Clonzasapam, which I really want to come off of but I am scared. Im looking for support. I am 2 weeks into the taper and its been tough already and I dont know how I will survive the 10 month plan and beyond that.
  25. This site is a go-to to reassure myself that others are traveling and have traveled this road. The discussions about emotional spirals (check) and anxiety, rumination and dread on waking up (check) and depression even worse than before medication (check) have been helpful. I am being extra mindful now of taking Mag powder in the morning and before bed. I started AA and kundalini yoga in mid-May which have both been helpful. Although I really didn't drink much, it was enough (and mostly alone, not social) and any depressant when you are coming off an antidepressant can't be helpful. Also, I changed from hatha/vinyasa yoga to kundalini yoga which is more focused on the spiritual component of yoga. I won't lie: at 4 months, I still fall daily into waves of depression and loneliness. But I do find that there are glimmers of happier times and I am getting clearer -- I hope -- about how to handle the tough times (for instance, I just now think that my beloved dog has a fever and am trying not to emotionally spiral -- ugh). I will be reading this site like mad just to remind myself that I am not alone. Farm Girl Works Tapered 75mg Sertraline March 2017 in 4weeks after 6 years mostly on with a few unsuccessful WD Stopped Sertraline April 1, 2017
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