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  1. Please help! I was on 30mg of Celexa for 3 months for generalized anxiety. After coming off of Celexa, I developed PGAD which I’m learning is unfortunately happening to people a lot. My doctor put me on 10mg Amitriptyline for 9 days and I had terrible side effects - brain fog, heightened anxiety, no appetite. Day 10 they switched me to Nortriptyline at a low dose of 2mL (liquid it’s such a small dose). Took it for 3 days and felt angry/mood swings, emotional, extremely depressed, agitated (couldn’t handle any mental stimulation or it made me so anxious - none of this is like me!) on the 4th night, I was going to stop Nortriptyline altogether. I fell asleep for an hour and woke up with the worst withdrawals - nausea, flu symptoms, agitation, insomnia, heart racing. I then got out of bed and lowered the Nortriptyline dose to 1mL. My withdrawals calmed down a tad and I was able to sleep for a couple hours. Woke up with anxiety, nausea, flu-like symptoms, fatigue. I was on low doses for such a short period of time, I can’t believe I’m dealing with withdrawal symptoms. Should I stop the Nortriptyline cold turkey now since it’s only been 3 nights and just suffer through the side effects?
  2. Can people please share with me how there journey was when discontinued amitriptyline ? I am currently 11 months of & feeling so ill & desperate right now ... the symptoms did ease but this las 4 weeks have been horrendous .... please is there still hope it will all go away .... I want my life back I was put on this drug for nerve pain . i
  3. Hi i am new here so let me introduce myself and give you the history of why i have become member. I originally got tinnitus about 18 months ago from noise. I was a sound engineer when younger so my past had caught me up. I went and had all tests and was told nothing could be done. I started to get headaches and siatic pain down left side which seem to come on at same time thetinntus did. The doctors prescrided me 20mg of amitriptyline to be taken at night to help prevent migraines and help with sleep. I took it for about 11months but for last couple months i started feeling anxious, paranoid and suicidal in waves. I attended to A&E department who said that only way to tell if the symptoms were side effects of drug was to come off them and that i would have see GP. I went see the GP who didn' t believe the drugs were causing issues and that i had aggitated depression and needed to take different anti-depressent and stop the amitriptyline. I wasnt feeling well and did what GP had said and stoped the amitriptyline with no taper and started citrolpam. I took citrolpam for 4 days but just felt out of it so i stopped it. I didn't sleep for 14 days and had massive waves of syptoms. Went back doctors and he said i was ill like he had said and looked anxious. Tryed get him understand it was withdrawl syptoms. Doctor told me i needed to go back on amitriptyline but 50mg this time. I questioned the dose increase but as i wasn't feeling mentally or physically well i got tablets. I reinstated back onto the amitriptyline but only took 25mg for first week. The withdrawl symtems were still there but slowing a little. Decided to take the 50mg as doctor said as i really didnt know what i was doing by then. Made feel even worse than i was feeling. Friends told me to go back to GP but get second opinon from different doctor. Changed doctor and explained i was in withdrawl and i wanted to come off amitriptyline due side effects. She listened but still really didn't want say it was in withdrawl altho see did agree if i felt i wasnt depressed i should drop back to the 25mg as only been on 50mg for few days. I have had to take 9 weeks off work and am taking 25mg amitriptyline hoping i will stabilise to some kinda human being. At first i was having the windows and waves were as last few weeks i feel like the windows are getting smaller and waves bigger. I saw the mental health team who again avoided the whole withdrawl thing and tryed blame me. I advised her i want get off the drugs and after reading many forums realise i need to do a very slow taper as i am super sensative. I come here as many do in hope of some feeling like i will be able to come off the amitriptyline at some point and regain the person that i feel i have lost.
  4. So here I am, I've gotten some good information from the site before but mostly remained a lurker, right now I think I need a little bit of support from people that truly understand what I've been through While this journey starts in 2007 I have to clarify that it wasn't my first time dealing with ADs. Much younger, in 2001 I was hooked up on Zyprexa for what I feel was an irresponsible reaction to something that required another set of actions (heavy bullying, and I'll leave it at that). That experience made me very weary of the effects of antidepressants and how fast medical personnel relies on them. Thankfully I got off them (mostly) fine So let's fast forward to 2007 I was getting very preoccupied by a girl thing during that period and had no one to talk to. I decided, sure, why not? and went to a psychologist. I got to say it was a very pleasant experience and overall it helped a lot But then this happened. I've always had trouble with insomnia since I was a kid. Out of nowhere I had a whole night episode of insomnia. It was like something popped in my head and the feeling of sleepiness was removed. I had never pulled an all-nighter before. It coincided with a trip to the psychologist He over-panicked and took me to the psychiatrist office, saying that wasn't normal and he prescribed me two meds: Amitriptyline, 25mg and Perphenazine 10mg. I really wish to know what would have happened if I had, you know, just tried to sleep normally that night again In short, those pills felt like magic, they were like sleep on a pill, for someone with sleep issues all his life it was very tempting to continue using them. Sure, they made me sleepy in the morning, but nothing a cup of coffee couldn't solve A couple of years later I had to change doctors again, the new doctor prescribed me with bipolar II and added 500mg of valproic acid, sometimes more. I have no idea how he reached that conclusion since valproic acid felt like a placebo to me Over the years the side effects started to get more noticeable, specially after my doctor made a mistake and gave me 4mg pills of perphenazie instead of 10mg. I pointed this out but he told me it was "impossible" to put me on 10mg again since I would get more sedated. To him, my insomnia was caused by bipolarity and everything working was the perphenazine and valproic acid. For some reason he claimed that amitriptyline was only making me drowzy in the morning. He tried to remove it completely and playing with varying degrees of the other drugs. But I was already working by that time, my job requires me to have a good mental performance. So I never tried any of his variations or new drugs for more than 2 days of zero sleep The last two years The side effects ended up being unbearable. Before that I had bad days sprinkled here and there, from now one I graded the days by how bad they were. I had depersonalization, lost the train of thought, got extremely dizzy, physically and mentally tired all the time, this made my job unbearable. On top of that I started to develop serious bladder and gastrointestinal problems, both urologists and gastros I visited not only agreed that the drugs were the culprit, they pushed me to start questioning what was going on. My doctors (and really all doctors after that) are very prone to minimize side effects or downright deny them and give the most useless advice (change your coffees for something stronger like a redbull) With this doctor I tried to quit the meds completely with what was a fairly "normal" taper of a quarter of a pill every two weeks. Side effects continued and insomnia got worst until I lost the ability to sleep when I went off them completely. Lasted 4 days until I got back to them (job responsibilities couldn't wait). He told me to not take the valproic acid becausee "maybe it's not bipolarity". His las try was using midazolam but it didn't work November last year Reached a breaking point and quit my job, there was no way I was going to be able to fix this and work at the same time. My plan was to do a slow taper and see how it went. Sadly, I ended up listening to some family members that took me to "two of the best doctors in the region". From november to february I took, in really short periods of time: quetiapine, mirtazapine, pregabaline, estazolam, agomelatine, levomepromazine, trazodone, sulpiride. They either didn't work at all or gave me way worst side effects The last doctor was particularly bad, not only did he denied I had insomnia and returned to "everything is just bipolarity" but he also gave me diazepam, it didn't made me sleep and he only gave me amitriptyline again until I begged him I need to start sleeping again. I told him I didn't want diazepam, I knew the risks, I had reacted terribly to benzos before, but he insisted in exchange of the amitriptyline, and told me it was "a soft med, I give it to old people". Anyway, after a month he took me cold turkey off the diazepam and for 2 months I had the worst withdrawal symptoms I felt in my life. He insisted it was all in my head. I had to convince my family to take me to another shrink I personally researched who obviously said I was suffering from benzo withdrawal and in his opinion "nothing in my medical history sounds like bipolarity" He gave me the same meds (amitriptyline and perphenazine) and have been "stable" the last two months. "Stable" means feeling exactly how I was feeling in November with the exception that the gastro issued haven't returned at full intensity again So, next week, I restart work again, maybe it was a bad decision, but I haven't worked in 9 months, bills don't pay themselves and don't see an end in sight. I see my doctor in August, I want him to agree to a 10% a month taper. He laughed about it saying it is "too conservative" and was petrified when I told him about dissolving the pills on liquid. I read about the scale method and plan to order one and hope he will agree to it On top of that, I'm going to a CBT-i doctor. I have tried it before and can say it helps greatly with sleep, sadly, it does nothing for the side effects. I can say without a doubt my only problem is insomnia. The last few months, the short periods I've been off zero meds I have felt great, I can think again, my body feels right. Sadly, I can't sleep and it starts to take a toll around the 4th day. My record in January was a 9 day period of zero or close to zero sleep time, I expected that the brain would just shut down if I force it, but it didn't So, any help would be appreciated, specially in the side effect department. I need to function normally in my job again. I've read about taking modafinil, huperzine or other cholinergic agonist to see if they might counteract the amitriptyline symptoms
  5. Hi everyone, my name is Chris and I I have been on 40 mg Amitriptyline for 5.5 years for IBS. Started my taper 10 days ago. I am on 4 x 10 mg tablets and my first reduction is quarter of a tab so, 2.5%. I felt normal last week but this week I have headaches, body aches and am SO tired. Not normal for me at all. Is this to be expected? I won't make another reduction until these feelings pass.
  6. About 5 years ago I took a lot of antibiotics for what turned out to be a jaw infection. This resulted in continuing gut problems, (gastritis, esophagitis) and also a condition called burning mouth syndrome. During this time repeated use of acid-reducing drugs (PPI's) started giving me side effects, particularly insomnia and anxiety, and I wound up being given psych drugs (all at low doses) as well. During 2017 I got better, with mixed results on weaning: - February 2017: My first attempt to go from .25 mg daily clonazepam to .125 mg clonazepam resulted in almost immediate withdrawal symptoms, such as insomnia, anxiety, extreme nausea. I went back up to the original dose and the symptoms quickly disappeared - September 2017: Stopped taking 10 mg. Celexa cold turkey, with no withdrawal issues. - October 2017 through December 2017; under the direction of a psychiatrist, reduced from .25 mg to .125 mg with minimal side effects, using alternating doses according to a schedule developed by Cara Tannenbaum. Very minimal nausea, worked quite well. December 2017: Happened to skip a dose of amitriptyline and realized how refreshed and energetic I felt the next day. Decided to take it every other day for two weeks, then stop. Felt great - my dry mouth (a side effect of the drug) disappeared, and so did my burning mouth! I was over the moon. Then at about week three I started having stomach pain, and was waking up with acid in my throat; I was even burping up acid. I had a vitreous detachment in my right eye. There were two solid days where my body shook and I had constant diarrhea. I felt manic. PPI's helped with the acid, but again I developed insomnia and anxiety, and more stomach pain. The psychiatrist suggested Benadryl, which did not help much. It seemed like everything I tried caused stomach distress. I had to resume taking 10 mg. of the amitriptyline , and also eventually went back up to .25 clonazepam to help with anxiety. These are the only drugs I currently take. Since then I have not regained my health. I lost 20 lbs. those first couple of months, and am considered anorexic. I eat six small meals a day, trying to gain weight but without success. During an endoscopy in May 2018 my GI doc at the time suspected gastroparesis, since he did not observe any stomach peristalsis during the procedure. Since I was already following eating guidelines for gastroparesis, I decided not to be tested since I would probably not want to take any drugs for it. With resumption of the amitriptyline, dry, burning mouth came back in a much more severe form - it flares all the time. Could I have become hypersensitive to this drug? I now routinely have swelling in my throat, mouth, and belly. I have also been recently diagnosed with SIBO - small intestine bacterial overgrowth, and IBS. A nutritionist I am now seeing suspects I may have histamine intolerance, which the amitriptyline probably makes worse. I have a very accurate (to 0.1 mg) analytical scale and can shave the amitriptyline pills down. In March 2019 I went down from 10 to 9 mg., and had manageable nausea. I held at 9 mg for six weeks. When I went down to 8 mg. the nausea and and mouth pain were intense - but this particular time I alternated between 9 and 8 for a week, which I didn't do with the first taper. Maybe that was a mistake. At this point, the doctors look at me like I am totally out of my mind - how can such small doses have such big effects? I feel the amitriptyline is hurting my body, and making my gut dysfunctional (it slows motility, for example, which is bad for both gastroparesis and SIBO). So I need to get off of it, but this last taper scared the heck out of me. Words of advice and/or encouragement are appreciated! Thanks in advance ...
  7. I am a 62 year old woman who was on Amitriptyline for 20 plus years because of migraines. My doctor took me off of Amitriptyline on 8/16/20. My withdrawals have been a roller coaster ride for 4 weeks now. I’m only on vitamins. I would start feeling better then boom the floor drops out from under me. I feel my doctor weened me off Amitriptyline to soon. I was on 25mgs and she had me cut that in half for just 2 weeks. Then get off completely. I’m afraid to get on something else only to feel lousy until the new drug kicks in. I was hoping to do this without any other drugs. But can’t take it any longer. So I’m thinking I need to go back on Amitriptyline and ween off of it for a long time. After reading what everyone is saying about the weening being to short I agree. Especially since I was on this drug so long.
  8. I started taking MMJ two years ago to help “manage” my anxiety so I could come off of 50 mg of Amitriptyline and .50 of Klonopin. My doctor was completely on board with this as he said it’s “natural” and really wanted me off Klonopin. This past February I ended up accidentally overdosing on MMJ and started to hallucinate. I was told my metabolism must have changed and that I would have to readjust the dose. Even in my state of mind I knew that was a horrible idea and CT’ed the MMJ. I had NO idea what I was doing or what was in store for me. I was put on 2 mg of Abilify and was told that it would help “speed the withdrawal process.” I never even decreased the Amitriptyline or Klonopin the entire time I took the MMJ. I was told after a month to just stop the Abilify. I can’t even attempt to describe the terror I felt the next two months. I had de realization, depersonalization, disordered thinking, panic attacks, it goes on and on. I didn’t sleep AT ALL the first month and then the second month I was getting 1-2 hours a night. I didn’t even know that it was physically possible to go that long without sleep. I developed paradoxical insomnia as well as a fear of insomnia. I stopped the Ability after one month. I decided by the third month I would taper the Amitriptyline since I initially took it for sleep and it wasn’t helping. Did I mention I had NO idea what I was doing? I went from 50mg to 6mg in two months. I honestly was about to throw in the towel at this point and go on an antidepressant but then found this site. I knew at this point I was in PAWS from MMJ but didn’t realize cutting the Amitriptyline this fast was a contributing factor. I thought that this was my “mental illness” coming back. I increased back to 10 mg in July and am holding steady. I am currently on 10 mg Amitriptyline and .50 mg Klonopin. Seven months later I still have a lot of issues. More importantly I have a lot of hope. I worked with a wonderful hypnotist and am at the point where I don’t worry about sleep. I eat well and exercise every day. I practice gratitude and am learning to live in the moment. I still wake up every 1-2 hours a night; most nights I fall back asleep and I am grateful for that. I’m learning to observe my thoughts and use my anxiety and fear as guides. I am already the strongest person I know. I’m only starting my journey but wanted to share early hope for those that may be struggling with acceptance. I also want to thank everyone on this site, you have been a part of my journey.
  9. Hey everyone, I'll try to keep this concise. Background: Currently early twenties student in university. In 2017, I was diagnosed with post-concussion syndrome (PCS). 40mg of Amitriptyline was prescribed by my neurologist to treat tension headaches. My first experience with rapid tapering of amitriptyline was in August 2018, when my neurologist asked me to switch from amitriptyline to valproic acid for PCS, at a rate of 10mg Amitriptyline tapered each week until I was fully cold turkey. Unfortunately, I found out around the 10/20mg range I wasn't handling withdrawal too well and was forced to stop and reinstate. In February 2019, I read about the link between dementia and cholinergic medications and went cold turkey by my own choice. This lasted for two months of difficulty where I struggled through my hardest semester of college. I ended up reinstating in April after a discussion with my therapist. Its important to note that at this point, for both aforementioned times I had attempted fast tapers I was not aware that withdrawal symptoms were a significant issue for antidepressants. Instead, I believed that once amitriptyline fully left my system I would be fine, and that all my symptoms were caused by PCS. In July 2019, I was able to recover from PCS after two years. A month later in August, I spoke to my physician about getting off amitriptyline. He prescribed me a somewhat slower taper at 10mg a month and 7 weeks for the final 10 mg. Thus, I began my taper from 40mg to 30mg. You can probably guess what happened next. This taper put me through hell and lasted a total of a little over four months before I stabilized. In December 2019, I discovered this forum and decided to give slow tapering a shot using liquid titration (water, not ethanol). In January 2020, I tapered from 30mg to 27 mg. It took me about two months start to finish to stabilize. I was mildly symptomatic, but my symptoms were manageable. In March, I tapered from 27 mg to 25 mg. This time, it took me nearly three months to stabilize. Even stranger, my I found that my symptoms were seemingly worse, even though the percentage tapered was still about 10%. In June, I tapered from 25mg to 24mg, hoping that a tiny dose reduction would alleviate most of my issues with tapering. Flash forward to today. Nearly three months after I had began that taper I find that my symptoms, while very mild at first seemed to have gotten worse over time. Furthermore, a three month long time span for a 4% reduction seems very unusual. Now I that school is starting and I am actively interviewing for internships, I am considering reinstating back to 24.5 or 25 mg. I'm unsure about why my withdrawals seem to get worse even though I try to reduce my taper amount each time. I can think of a couple theories, those being: Dissolving with water instead of ethanol causing issues somehow. I think this is unlikely because when I first was testing out a solution in water at my full dosage, I did not experience any withdrawal symptoms. Furthermore, when I switched to 1:10 ethanol:water solution for a couple nights while tapering, I did not experience any improvement in symptoms. Withdrawals from previous tapers coming back to bite me in my ass. I'm aware of the whole waxing and waning thing and I'm wondering if it's possible that when I began my last taper, I hadn't actually completely stabilized and am now dealing with prolonged symptoms from previous tapers. Not sure how likely this is. Kindling. This would make sense considering I have had three tried and failed fast tapers that each did a number on me. However, I'm struggling to find any sources regarding kindling in antidepressants to the point where I'm unsure if it's even possible. My symptoms are mainly just hypersensitivity, disheveled sleep/insomnia, and exhaustion. Thanks for reading this far.
  10. Hello all! I have been reading a lot on this website. I am a 43 year old woman from the Netherlands. Because of face ache after a rootcanal at the dentist that caused extreme pains for over a year they gave me lyrica and amitriptyline. 450 mg lyrica and 50 mg amitriptyline was built up within a year. Because of many bad side effects I had to taper my meds. In 2017, 29 th july I tapered 25 mg lyrica. Everything was fine. My dose was at that time 100 mg lyrica and 25 mg amitriptyline. When I tapered my last 25 mg tablet in september 2017 everything went wrong! I got extreme muscle pains in my arms and legs and sometimes just all over! My pain specialist said that I just had to wait and be patient and that the pains would disappear. So I waited. My pains improved a tiny bit. But not much. 9 th february 2018 I felt so dizzy. I was dizzy for weeks. When I forgot a 25 mg pil of lyrica the dizzyness went away. I jumpt to the conclusion that the dizzyness came from the lyrica. So I decided to taper from 100 mg lyrica to 75 mg lyrica at that day. (Now I doubt if it was from the lyrica, maybe the dizzyness was withdrawal from the amitriptyline.) From then it became even worse. I have musclepain and nerverpain everywhere especially in my arms and legs. Sometimes I am burning all over or just in my torso. I cry a lot. I can hardly function and suffer a lot of pain every day. 6 weeks ago I spoke to my pain specialist. She wanted me to wait for improvements and did not like to updose. But the daily pain is still horrible. Some other symptoms have improved: Insomnia (from hardly any sleep to a few bad nights a week) Tinitus (only very mild every now and then) being irritated (gone) fear (only very mild every now and then) tingling (only mild every now and then) electric feeling in my head (gone) Now I doubt what to do. Should I wait (mayby a few years) and hope everything settles down? Or do a small reinstatement on the lyrica? Maybe a small reinstatement on the amitriptyline? (I doubt that because I am allready totally off the med since 22 september 2017) I cannot make up my mind and don't know what the best option would be. So I hope you can give me some advice.
  11. Hello everyone, this is my first time ever really posting on a forum. I was prescribed elavil bout a year ago, for pain. I was never depressed or anxious until coming off of this medication. The hard part for me is that I do not see a lot of people post their experiences with this medication. At the high end I was taking 75mg then went to 50 then to 25 all of this went fine. Then when I started taking 12.5 and less things got very bad very fast. I was having panic attacks, crying spells, all the flu like symptoms and extreme vertigo. I have been off this drug for 7 weeks and it was hell at first but slowly getting better. But still to this day I am getting anxiety and depression spells almost daily.(although its not as bad and it doesn't tend to last very long.) I am at my wits end with this and was wondering if i should just give up and start taking it again or keep pushing though it.
  12. I was told I needed to start an introduction post. I wanted to ask about Depakote anyway. I did a fast taper of paxil from 10 mg to 5 about 13 months ago. I am still having symptoms. My main problems are head pain around my ears, head pressure, ear pain and pressure. I have panic in my sleep. That was present before but it feels more pervasive now. I had tried a slow taper of paxil before the fast taper, starting at 25% which was too much, then 10%, then 2-3%. It wasn't great but was more manageable than this fast taper. This has been pure hell. I added amitryptiline out of pure desperation because I had so much head and ear pain. That was about 7 months ago. I was already taking 1/4 pill of depakote. My question is about the depakote. I want to avoid adding more meds if possible but the brain activity in my sleep has amped up. I feel more irritable kind of the way I used to feel on paxil which is telling me it's probably from the 2 antidepressant (possibly interacting). I am not ready to taper again because I'm still having symptoms and I know I will be much worse. So has anyone increased (or added) depakote a year after a taper to help? What happened? I need something to help my sleep and generally calm down. Thank you.
  13. Hi, I'm new here I'm a 32-year-old woman from Denmark. I found you because I want to safely taper off of my low-dose Amitriptyline 10 mg. But as I read about withdrawal, I came across "post-acute withdrawal syndrome" or "protracted withdrawal" and I got chills because suddenly what has been happening since 2017 made sense! Long story short(er), I was on Venlafaxine/Effexor for 8 years because of generalized anxiety and body pains. In 2017 I tapered off from 2 capsules/150 mg, reducing with 1/4 pill every 2 weeks, so I was off them after a little under 4 months. (I didn't know about safely tapering off, only now have I come across your guide :)). By going off so "slowly" - well, compared to my doctor who told me I could do it cold turkey(!) - I didn't get the extreme side effects i would normally get when I would go up or down in dose. I felt the same when I stopped my dose and for the next 2 months, I was completely fine. But 2 months after I had taken my last dose, I started getting pain in my body, and after 2 more months, at the end of January 2018, from one day to the next I started having an extreme inner shaking/hightened fight-flight-response. It was like I had gotten a shock and I just stayed in that state every second of every day. Never being able to rest was so bad that I wanted to kill myself. It's so difficult to explain the sensation to anyone, so I usually use sleep deprivation as a related example: Sleep deprivation should be the worst form of torture and I get it now - stressing your body every second of every day is completely unbearable and you just want to die. I did sleep, though, but only 4-5 hours every night and I was never tired. My cortisol levels were high so I was checked for Cushing's (cortisol producing tumor) which meant I couldn't take any medicine to help me for 7 months because I needed accurate cortisol results (I didn't have any tumor, though). And also, nothing helped me, not benzodiazepines, sleeping pills, CBD oil or high doses of beta-blockers. After 7 months, my friend who had experienced the same "shaking" after a whiplash and after only a week had wanted to jump out the window from her apartment on the 3rd floor, recommended a low dose of Amitriptyline and that reduced the shaking by 30 % and after a month by 50 % (I only took 5 mg to begin with, though, and it worked after just a few hours, very weird). My symptoms then started to become predominantly psychological instead, like I would cry all the time. It opened up a deep developmental trauma wound that I started therapy for in December 2018. After that and body therapy like The Rosen Method, my symptoms are gradually decreasing. (I also have like 20 other symptoms, like body pain, fatigue etc.). Now, almost 2 years after I came off venlafaxin, I'm 50 % better than I was in December 2018, but my sympathetic nervous system is still firing too much. I thought that being on antidepressants for so many years, from I was 22 until I was 30 had made me so numb that I couldn't process all the stuff I had been through earlier in my life - and I still think that's partly the case - but now I see that there's an entire half of the picture I didn't know about!! That this must have been post-acute withdrawal syndrome!! So not only did I have all the past trauma that came up now that I didn't have something to artificially shut it down, at the same time my brain was also struggling with getting chemically back in balance! Woooow... #MindBlown! I don't even know what I feel... I feel so angry and want to sue someone, but that's not really possible I guess. I have missed work for almost 2 years, I'm only now starting a 10-hour internship. I can't believe you can go from feeling fine to 4 months AFTER you stopped the medicine get these extreme reactions. Has anyone else experienced something like that? And I still want to come off of the Amitriptyline, but slowly. It's only 10 mg, and this week I'm taking 9 mg. After I've done this for 2 days, I do feel some side effects like a bit of insomnia and hightened fight-flight, but it's minor. And might be because I made an oral solution from my tablets and now I read you should try to stay on your dose for 4 days before you reduce it. I did calculations based on the advice of the 10 % reductions of the new dose every month, and if I jump off at 0,1 mg, it will take me 43 months. It seems like a long time, but I would rather do this safely this time! Wow, I'm still in shock that it was protracted withdrawal symptoms that almost had me commit suicide, because no doctor could tell me what I was experiencing. I'm so glad I found you! And I also want to ask you if anyone has ever gotten completely over this syndrome, can your brain adjust completely? TIA
  14. Hi all, I've been experiencing intermittent PGAD and pudendal dysaesthesias, exclusively on my right side, since slowly tapering down from 20mg of amitriptyline 7 weeks ago. I am utterly terrified and think my life is entirely over. I'm also baffled because I thought PGAD was associated with abrupt cessation of SSRIs/SNRIs. I know amitriptyline is serotonergic but I couldn't find any accounts in the medical literature or online of anyone developing PGAD after stopping a tricyclic antidepressant, especially a slow withdrawal (although maybe not slow enough?). Bizarrely, I have been terrified of PGAD for a decade and long refused antidepressants (haven't taken anything other than amitriptyline for migraines and pain since 2012). I never would have consented to be on one except 1.) I was in so much pain, 2.) my GP wouldn't consider other pain treatment, and 3.) I thought amitriptyline was safer. I have experienced some improvement and the arousal hasn't been as extreme as it was when it began. However I am petrified and think I ruined my entire life by taking this drug and then trying to wean off it. Background - 30, female - April 2016-October 2018: took 25mg amitriptyline for migraines. In autumn 2017, it was discovered during hormone tests that my prolactin was 10x the normal level. Initially it was thought I had a prolactinoma but after an MRI ruled that out an endocrinologist suspected it was the amitriptyline. I withdrew from 25mg amitriptyline over about a month and had no effects. - October 2019: I start having intermittent bladder pain, which builds to constant 24/7 urge to urinate and bladder burning by November. I am diagnosed with a chronic UTI by specialists in London and given long-term antibiotics. - late December 2019: the bladder pain is so severe I am suicidal and nearly get sectioned. My GP gives me amitriptyline for the pain. I protest that it elevated my prolactin and ask for gabapentin instead. She refuses and says they can monitor my prolactin. High levels of prolactin are associated with loss of bone density, so it's worrying. I start on 20mg of amitriptyline. - February 2020: prolactin levels normal, I'm experiencing some bladder relief from antibiotics (eg bladder gets better when I up the dose, as instructed). The amitriptyline doesn't seem to be doing much good though because my symptoms are all over the place - April 2020: I experience hair shedding, which had previously indicated high prolactin. I can't get a blood test due to COVID and I'm concerned about loss of bone density, which I'm already at risk of because of a years-long history of anorexia nervosa. Worries about amitriptyline also mean I can't take the dose up to good pain relieving levels. GP suggests gabapentin and I begin the process of slowly tapering off amitriptyline. I spend a month at 15mg, 3 weeks at 10mg, another 3 at 5mg, then a week at 2.5mg. When I later speak to a PGAD specialist in the UK, he suggests that i should have have taken off 5mg every 2-3 weeks and is surprised when I told him I did it slower than that. - late June 2020: I'm getting what I know understand are withdrawal effects from tapering amitriptyline (which I only had very minorly the last time I came off it): flu-like symptoms, insomnia, anxiety, nausea, one spell of restless legs. Weirdly, my bladder is lots better all through this month and remains better as my PGAD begins. - 5 July: I have been off amitriptyline entirely for 3 days and I develop clitoral sensitivity. I'm able to orgasm with about 15 seconds of manual stimulation (very unusual for me). - 7 July: I resume taking amitriptyline, 10mg. PGAD symptoms continue. Notably, my sensitivity is limited to my right side. - 10-12 July: I become suicidal due to mounting PGAD symptoms, am in and out of A&E. I am referred to a mental health crisis team, which suggests I take the amitriptyline up to 30mg. - 18-25 July: arousal subsides. I still get, at various points, dysaesthesias along my pudendal nerve, always right side, including itching in labia, aching in labia, panging in labia, burning in perineum and anus. I'm also getting weird tingling pain up through my right buttocks and lower back and shooting pain down my right leg. - 26 July: arousal resumes. I attribute this to being on my period and it goes within a day or two of my period ending. I take amitriptyline up to 40mg and start taking 300mg of gabapentin, with instructions to titrate up. - Aug 1-Aug 16: arousal largely gone and I'm getting mostly the dysaesthesia symptoms. - 17 August - today: some intermittent arousal, less than before but still frightening. Had intense right labia pain in one specific spot on Weds-Thursday. My period started on Friday and from then until Monday afternoon I had intense vaginal aching. Symptoms (at various points): arousal, clitoral sensitivity (more on right side), labia itching (right side), labia aching (right side), sharp pains in labia (right), burning or icy feeling in perineum and anus (right, again). Right buttocks, lower back and leg pain. Sensation that there is something in my ******. Sensation that there is something in my anus. Pressure/aching/fullness in ******. Feeling like my perineum is going to explode. Never had a spontaneous orgasm with this. Comorbidities: hyperawareness/somatic OCD/health anxiety, depression, borderline personality disorder, migraines, bladder pain/urgency, anorexia Medications: 40mg amitriptyline, 500mg of gabapentin. I have spoken to Dr Goldstein, a PGAD specialist in San Diego, and will see him in two weeks. (I live in the UK but I'm also American and my sister lives in California.) He believes that because my symptoms are unilateral and extend into my back and legs that they're being caused by a defect in my spine. I had an MRI which revealed a possible tear at L5-S1 and notably had a bad fall give years ago where I stuck my lower back and my legs went tingly and numb for 20 minutes. Within a few months I developed sciatica on my right leg and have had stiffness/low level pain in that leg since. It's also possible my pudendal nerve is trapped or damaged further down. I'll have all these tests to figure out where this is coming from. Because my symptoms are just on one side it seems they're caused by a structural problem with the nerve, causing it to signal all sorts of weird things. Goldstein said my brain was compensating for these signals but then withdrawing from the amitriptyline created a neurochemical imbalance that means I lost the ability to block them. He suggested it wasn't the amitriptyline withdrawal that caused this but rather it revealed an existing problem--which is hopefully fixable. I have experienced relief, including days-long stretches with very minor symptoms. I'm currently just getting low level arousal and some right labia dysaesthesia. But I remain depressed and anxious, and when the symptoms creep back I fly into a panic and all the suicidal thoughts rush back. I'm always terrified they're not going to ebb again. I also relentlessly blame myself for everything that happened and the perfect storm that led to me withdrawing from an antidepressant. I also went through hell with my bladder and just as that was getting better, this began. I've read most of the PGAD posts on here, which are both worrying and encouraging. Does anyone have any further insight into this? Does it get better?
  15. I discovered about Cardiac Coherence one week ago and I thought it could be helpful. I started to reinstate Amitriptyline 25mg (30yrs use) 3 weeks ago after stopping cold turkey last October. My protocole now is 10mg am and 15mg night with some progress: 1st week-no sleep, 2nd week-slept 5 nights, 3rd week-slept 5 nights,4th week-slept Jan 11 only. No sleep since. So it could be Cardiac Coherence breathing which has excited my nervous system, yes? I’m 72 yrs old. Since last August, I lost all my bad eating habits, and lost weight, no more high blood pressure. So I thought I could stop Amitriptyline 25mg prescribed to me for insomnia in early 90’s. Few years ago, I took only 2/3 to sleep. I thought I could stop. I failed. Very bad side effects. Finally, I saw the light, and Amitriptyline reinstatement. And tonight, I stopped cardiac coherence breathing 3xday. I’ll update my progress. I've read some topics and will read more. I discover very needed new info every day. Thank you to all for contributing to this peer support forum.
  16. Hi guys, I have been on amitryptyline 2 years now. It was for my stomach disorder. 2 months ago I started weaning off and developed severe migraines. Ended in ER and they gave me IV antiemetic that caused severe akathisia. I landed in psych ward. They upped my ami doze back and gave me meds to calm down and I was fine. When I came home I started weaning off ami again, but slower. Unfortunately it wasnt slow enough, I went down from 15mg to 13,5mg and 10 days later from 13,5mg to 12mg. And I developed severe migraines again. I didnt know what to do, painkillers wasnt working, so today, 10 days after weaning the doze to 12 mg I took 15mg again. And I developed severe akathisia back, Im so agitated and restless. I took propranolol, which was helping some before, and it helpes some, but its not a cure. Can You tell me whats the safetest option now to do? Should I take tomorrow 15mg again and try to stabilize on that doze? Or take 14mg, something between previous 12 and 15? I cant go back to 12 cause migraines were so severe that I was vomiting and was non functional, but also cant handle akathisia and if 15mg will give me permanent akathisia I dont know that to do. It wasnt my offending drug, Im shocked I reacted that bad 😞
  17. Admin note: link to benzo forum thread - Ichabod: Could somebody help? Benzo problems Hello guys, I am new here. I do apologise in advance for my English (I am italian). I would prefer not to bother you with my personal experience as it is probably similar to many others you got across, but I d need some encouragement because I am alone in this struggle. Briefly... I went on Paroxetine ten years ago for panic attacks. It helped but the side effects were brutal. I tried many times to quit it but I experienced all the withdrawal symptoms that my doctor confused with relapse and that scared me to hell and he always put me back on it. Two years ago I met a girl I felt in love with and I decided to quit it once for all, no matter what (primarily because of the sexual side effects). I asked my doctor to help me and he said to come off of it in a month (like I did the other times). I tried it again but what I felt was overwhelming. So I decided to do it by myself tapering slowly using a liquid form. It took me 7 months of pain but I really didn't know what to do and I couldn't find anybody to help while my doctor continued saying to go back on it. I felt really debilitated but after I finished tapering I noticed I was still in prolonged withdrawal. That was a shock because I was always reassured that once the drug was out of my body I would have been ok. I took my last dose on july 2019. I kept using klonopin as prescribed but I noticed I was really sick. Finally, in january, after a lot of research I found Professor Giovanni Fava who told me that I was in post acute withdrawal syndrome. It was a sort of relief being validated finally but also terrifying. I started researching and what I found out was shocking...people in withdrawal for years, pssd... it was to much. I started thinking about suicide. I was in a really bad place. Giovanni Fava's plan is to help me get rid of all this addiction so he put me on 5mg of amitriptyline in order to stabilize the situation a little bit while tapering klonopin. Then he will take me off amitriptyline . I am writing you in order to ask some encouragement and reassurance because I am completely alone (I have no family) and I don't know how long my girlfriend will stay by my side (she is getting tired of seeing me sick and she would like to plan a future. I don't blame her... plus, sex is pretty bad. I had moments when it was great followed by long periods of time when it was non existent. I don't function like I did and I really don't know if this is pssd or still withdrawal and if I will ever get back to normal). I feel betrayed by the modern medicine... if I knew what could have happened I would have never took Paxil in the first place. I came across this website and decided to write you in order to find some tips on how to go on in life and to ask you if it will ever get better. For sure I developed now sone sort of ptsd. Sorry I bothered and thank you in advance.
  18. Hi there. Im new to this and am posting cause im worries that im never going to get better.... Had chronic headaches star from out of the blue c3.5 years ago and have had lots of drugs and every therapy, holistic, Physco treatment going. Now, headaches are less of a problem, still there 95% of time, but have anxiety, depression, anger, extra sensitivity to sounds and movement, disassociation, hopelessness etc. This has / is ruining my life, and I pray it will go back to normal - soon! For chronic headaches - amitriptyline - Started 10 Nov 2019 - 10mg up to 30mg. On that dose for 6 months, up until 10 days ago. Helped a bit with head pain, but bad and constant anxiety, depression, disassociation, (particularly awful). At the same time, for above symptoms, Escoltalpram 5mg - 10mg. Was on that from 1 Dec 2019 - mid Feb 2020 as it didn't help with anything. Since start March, on Sertoline (100mg) and Quetiapine 25mg daily). In the past I have been on Topirimate (had very bad side effects), Pregablin (helped a bit but stopped working) - all for chronic headaches. Ive decided, alongside a new psychiatrists (all of which i think are pretty useless tbh, im on my 4th), to stop the amitriptyline because i think its that which has increased any anxiety, moods and denationalization. Although its very difficult to know as all the symptoms and side effects are the same! Over the last 10 days, ive gone from 30mg, to 20mg, to 15mg and last night stopped altogether. I am now very worried about withdrawal, which seems to be all the same things i have already! So how is anyone supposed to get better, when no one can say whats what! I appreciate the complexities in all this. I think im looking for some advice if ive tappered off too quickly, what to expect and how long it might last. Also, if there is any hope of going back to "normal", how i spent the first 39 of 42 years! The only real time i feel sort of ok is when i drink a lot of alcohol - which i know isnt a great thing to be doing. any thoughts or comments welcomed. Rob
  19. I developed laryngopharyngeal reflux (LPR) as part of a post surgery complication from transoral robotic surgery for sleep apnea. The pepsin (digestive enzyme) from the reflux was digesting my throat and causing me a horrible burning sensation so i was prescribed Amitriptyline to alleviate the pain. Meanwhile, i discovered Melatolin and i decided immediately to stop taking 10mg Amitriptyline after 11days of use. its been 13days now since the stoppage and i have not been able to sleep one bit. I started using 3mg of Melatolin yesterday and having discovered safer treatments for my LPR, i really do not intend to use Amitriptyline anymore for the throat pain but i am now left with this unbearable insomnia. Has anyone ever experienced this with suddenly stopping Amitriptyline? if so, i would appreciate any useful advise to overcome my insomnia predicament. Thank you Kind regards
  20. Hi everyone! I'm here because I'm about to start to taper Amitriptyline 75 mg that I've been taking for my migraines. This is not my first drug-tapering rodeo, but I'm still not looking forward to it. I was first prescribed medication for my migraines in 2004. I was put on trials of amitriptyline, depakine and then topamax. None of these worked, and I had a severe reaction to the topamax that resulted in panic attacks, agoraphobia and suicidal ideation [i had a plan]. During this crisis, I was prescribed Ativan, but I became addicted to it after 8 weeks. I crossed over to Valium 10 mg and tapered off that in 7 months. I was off all migraine preventative drugs for 6 years. Then my migraines started to become much more severe and frequent. After a lot of procrastination, I agreed to start Depakine again. Amitriptyline was added because I was having scalp allodynia – my hair and scalp always felt like it was on fire. I tapered off the Depakine in 2013 because I was starting to feel very ill taking it and the side effects were becoming worse. I stayed on the amitriptyline and needed to increase the dose as my migraines and allodynia continued. Last year, I tried to do a 10% taper of the amitriptyline, but was unsuccessful and needed to reinstate. In the meantime, I started to do the program of Dr. David Buchholz, “Heal Your Headache”. Between the dietary prescriptions and the radical reduction of my migraine rescue remedies, my migraines became significantly better – less frequent and much less severe. The funny thing is, now that my migraines are more under control, I feel quite well on the amitriptyline. The side effects – chronic constipation, chronic dry mouth and weight gain – are annoying, but manageable. Nevertheless, I don't like the idea of being on it and would like to see if I can taper off it and still have good migraine control. If I don't, I'd rather try a calcium-channel blocker like verapamil or diltiazem. Having done this before, however, doesn't make me any less apprehensive about starting the ordeal again. I am planning to do a very slow taper this time, starting at a 2.5% taper and seeing how that goes. I also plan to do a liquid taper. I didn't know about this option in the past, but I think it will be ideal for me this time around My plan is to begin next month. In the meantime, I am upping my supplements, getting my diet lower carb, so that I can get into ketosis, and preparing myself mentally for the long slog. I do have a question: at the present, I am taking tablets for my daily dose. Would it be preferable to start to take my doses of 75 mg as a liquid dose before I start the taper? Or is it advisable to continue with the tablets until I'm ready to start my first cut with a liquid dose? Thanks for any counsel. I've been reading the forum for a few weeks now and already I have gotten so much information. Thank you for all you do!
  21. Hi All 58 year old female. Prescribed ADs about twenty years ago for combo of anxiety and depression. (Mainly Venlafaxine, citalopram etc. Nine months ago I changed to amitriptyline (v minimal taper off ven) Came off amitriptyline about five weeks ago, when on 25mg as v undesirable side effects, unable to properly function and work etc. V bad physical and mental issues, so used this site to understand more about cold turkey and reinstatement etc. Didn’t know about appropriate reinstatement rate so agreed with Doc two weeks to restart at 5mg amitriptyline. This made me a lot worse, so last Friday agreed to issue oral suspension so I can reinstate at 2.5mg to see how that is. (25ml/5 solution so I have to take 0.5 ml to equate to 2.5mg) This will only cost surgery £20 pm, so shouldn’t be a problem. My question: It will take the pharmacy a week or so to obtain liquid med. I don’t think I can tolerate current symptoms for that period. Should I somehow try to get by, or reduce 5mg to every other day etc? Thanks for reading. S
  22. Hi All , I need your help ! I was on low dose of Amitriptyline ( 10 mg ) from Sept 29 th to Nov 9th , approx for 1 month. Was given this for low grade vascular headache Now I am 2 months off the drug , but still have issues. Approx 2 weeks post stopping the drug i started having severe tinnitus in both ears and still have it now , light sensitivity , brain fog , difficulty in concentration I had anxiety which I feel has been reduced since beginning of January. I got my tests done for MRI and all health tests everything came out clean , visual tests and macula degeneration tests also done Opthamologist message : Amitriptyline is neuro and ototoxic : your body will wean it eventually , he said it will take a month and I was actually getting better but BAM ! Jan 3rd week I was down in dumps again November Post stopping the drug : No Changes , just little bit of fogginess , headache Dec 1st week to 2nd Week : Muscle pain /drowsiness dec 3rd week to Dec 4 th week ( worst ) : i had grainy vision ( visual snow ) only on walls may be and then night vision was pathetic , brain zaps I was miserable was in dumps . Jan 1st week to 2nd week : On Jan 2nd when I work up my anxiety was gone ( its been better ) and getting better and my grainy vision I felt had subsided , I continued to move on ahead with the tinnitus and less snow Jan 3rd week to now : Suddenly I felt my vision dimness has got better ( I could feel this ) , the places i thought was previously dim was bright , and along with this the snow also became more , for example I an see sparse dots in day light and also when I look at my computer screen , and the walls have gone bad, not sure why this happened, shoulder pain , eye fatigue , dizziness , like when I close my eyes I see patterns and circle , when I m in REM braiz zaps after images ( both negative and positive)[ the symptoms I faced in Jan was not faced before in my life ] All the above symptoms Never had them in months of Oct, Nov Tinnitus : More Muscle Pain More Due to which : I'm nervous and anxious Issues I have now : Tinnitus more on left now , previously more on right , afterimages , vision snow ( bothers me the most ) and I know its not more than many of ul here , lil bit anxiety due to all this issues Disclaimer : I didn't know amitriptyline was an antidepressants until the 7th day of me taking it , I forgot to check it up online . Never done drugs in past , not smoked , no alcohol , I was a independent girl doing things on my own but now I'm so dependant on my family for everything I hope I get over this , I'm only 29 never had issues like this .
  23. I have been on citalopram since 2009 then it stopped working. The Dr put me on citalopram and mirtazapine combination which worked for a while then that stopped working. The Dr then put me on mirtazapine and Venlafaxine 150mg XL combination which workes for a while again ans then stopped working. The Dr put me on amitriptyline 50mg saying thay would be the best drug for me while i took 8 months to slowly remove each bead from Venlafaxine capsule to come off it. As soon as I took my last beed i went into crazy angry depression. The dr increased my dosage of amitriptyline from 50mg to 150mg but the side effects were horrible and at this point i got sick of these meds and decided to quit CT. I had horrible withdrawal symptoms and i started acting like a child and not being able to walk, had balance problems. I reinstated back to 50mg amitriptyline since april 2018 and i have been getting worse. I cannot sleep. My vision is so badly affected that i have grainy vision and floaters have increased dramatically . I see after images and it's as if the lights have been turned off. When i begin to fall asleep, i start to have dreams before i actually fall asleep and my brain keep. Waking up just before i am about to sleep. I cannot follow conversations, I mishear things all the time. I am totally dependant on others and i feel people think i have gone crazy. I don't know what to do i am getting worse and worse. I often trip, lose my balance. I hardly have any short term memory and cannot do simplest of things. I cannot even watch anything on TV as i cannot follow.it I'm having major concentration problems. I don't know how. I'm writing this. I cannot work or drive. Please you have no idea how i am putting these sentences together. I need urgent help. Please advice. I have no energy, no appetite. If I'm posting this in the wrong place, please accept my appology as I can hardly read and understand things. P
  24. I have had several journeys off of meds . Lexapro/ celexa took me 3 attempts with a succesful tapering off of 6 months and then being off the med for a couple of years after. I never was the same I felt but I did make progress living without meds. Sadly in 2018 I was diagnosed with a benign brain tumor . Radiation treatment left me with 90 % hearing loss in one ear and then tinnitus( ringing in my ear) that was maddening . Catapulted me into panic attacks that were debilitating. It was horrible. Loving with single sided deafness/ tinnitus. I dont know which is worse ..... anyhow the only remedy to help me was an anti depressant and the tryciclic one was chosen because the other ssris have tinnitus as a side effect so that was out . 🙄 I started on 25 mg of Elavil with a 1/2 of 0.5 xanax when needed for severe ringing . Felt so defeated having to go back on meds . I was living this past year settling into my med regimen and then I felt that I would like to try lessening my elavil to 10 mg . Everythi g was going well and then I hit a wall. So upset. In my heart of hearts I I want tombe off all meds . And I need hope . Someone to help support me to regaining my life without meds and living with my dissability without them . Or If at best the minimum amount that will enable me to feel like im living and not dying . The withdrawal is making my life impossible.
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