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  1. I apologize in advance for the long post. Like many of you, my story is very nuanced and some details are difficult to skip. The past year has been a nightmare. I took my last dose of Klonopin in late November 2021, and I am feeling a mixture of shame and confusion and anger over what happened to me and who I’ve become. History Like many of you, my story starts in my primary care physician’s office. In 2010, I went to my doctor because of depression. I was 19 and was prescribed Lexapro (or Celexa – I honestly can’t remember). I was told I had depression and generalized anxiety disorder and honestly, it was a relief. It was so validating that my pain was not dismissed and comforting to know there was effective treatment. In retrospect, although I took those pills everyday, my depression never lifted. After I gained 50 lbs, my doctor suggested I switch medications in 2015. I was in the middle of my master’s program and had trouble sleeping. I had a terrible reaction to Prozac; I experienced severe anxiety and panic attacks. Looking back, I’m not even sure if my doctor tapered me off of Lexapro; I think she just told me to start taking Prozac. She referred me to a psychiatrist, a harsh and demeaning woman who prescribed me Wellbutrin, Xanax and Buspar. When nothing worked, she told me I must have borderline personality disorder which, according to her, is not treatable with medication. I was desperate for help. I saw a couple of practitioners at my university health center for the severe anxiety and insomnia. I had gone a few days without sleep. The health center gave me Trazodone and Effexor and assured me I didn’t have BPD (at that time, I cared about diagnoses – I cared that I would not be seen as ‘crazy’). For the next few years, I was relatively stable on 150 mg of Trazodone and 150 mg of Effexor. I finished my master’s degree while juggling multiple internships and a full-time job. I still struggled with severe anxiety, even more so than depression. Panic attacks were a once a week occurrence for a long while, and by the end of 2019, they happened nearly daily. I was working full-time and obtaining my doctorate by that point. I had some family issues that really stressed me out. Plus, I am naturally extremely sensitive – an empath, I suppose. Hearing sad stories, even if it’s just on the news, greatly affected how I was feeling. I was ambitious and was offered a well-respected job two hours south of my hometown. It would be my first time away from home. I remember a distinct moment in October 2019 when, due to stress from family issues and stress about the new job, I had a panic attack that rendered me paralyzed on the living room floor, held all night by my mom. I thought, “Wow, I really need professional help.” I made an appointment with a new psychiatrist. That’s when the real hell began. The nightmare of 2020 I did extensive research on a new psychiatrist. I found someone with great reviews who specialized in women’s health and said she did not believe in overprescribing. After three months on a waiting list, I had my first appointment. She actually listened to my life story, asked good questions, and I opened up my heart to her. I thought, wow, she must be such a great doctor because she didn’t try to push pills on me after one 15 minute appointment. I was so grateful. Over the course of a few appointments, she told me that she treats lots of patients like me who don’t respond to antidepressants. She said it was because people like me are actually bipolar. I told her I had never experienced mania before. She said that I could be bipolar II – and that my “hypomania” manifests as anxiety. Saturdays where I spent hours writing my dissertation, or days when I would Zoom with my friends, I found myself suddenly second guessing my behavior – was I only productive and engaging because I’m hypomanic? The doctor took me off of Trazodone and Effexor and prescribed me the following in the span of a year: Lamotrigine, Zoloft, Mirtazapine, Symbyax, Seroquel and Klonopin. I was usually on three medications at a given time. While under her care, I had panic attacks daily, experienced intrusive thoughts and even had to sleep with my mother most nights. I accumulated some other diagnoses: panic disorder, OCD. I voiced concern throughout the process; I wasn’t comfortable leaving antidepressants and introducing antipsychotics and benzos, which I knew were highly addictive. She reassured me that under her expert care, I had nothing to worry about. Withdrawal from hell I read “Anatomy of an Epidemic” in the beginning of 2021 and did a lot of research online. I decided I wanted to get off medication. When I voiced this to her, she started writing in my medical records that my judgment was no longer fully in tact. She was vehemently against me coming off of medication, saying that I will not be stable, but stated she couldn’t force me to be on meds. So she withdrew me off of Klonopin, Seroquel and Lamotrigine in five weeks. I experienced terrible side effects. When I voiced my concern to her, after a night of vomiting, she said that there is no such thing as psychiatric withdrawal. “Withdrawal” was a term for street drugs, not medication. She said that the vomiting is from my increased anxiety, which is what my life would be like if I wasn’t medicated. So I stopped telling her what I was feeling and she discharged me a week prior to me taking my last dose. A few days after I took that last dose, my body gave up on me. I experienced horrific physical and emotional side effects. I was rendered absolutely disabled. I did not sleep for five days straight. I couldn’t attend work. I sobbed to my boss and HR when asking for time off. My brother and mother took time off of work to take care of me. I had to be transported to my aunt's home when they could no longer take time off of work. My extended family saw me as a broken shell. I begged them with everything I had not to hospitalize me. To summarize, I experienced: Physical convulsions (not actual seizures; I think they are psychogenic seizures) Severe insomnia Anxiety unlike anything I had believed possible; irrational fear Panic attacks several times a day Crying spells Depersonalization and derealization Constant intrusive thoughts Suicidal thoughts Deep shame and questioning my core values Brain fog and confusion Rumination Hypersensitivity Nausea and vomiting Headaches Emergence of an autoimmune condition Over the course of two weeks, I lost 20 lbs. I needed help bathing. My abs hurt from the constant convulsions. I couldn’t think straight. I called my psychiatrist’s office, but she discharged me as a patient because I was no longer on medicine. I had an emergency session with a different psychiatrist, and my family made the decision for me, with my permission – I needed to get back on Klonopin. I needed to sleep to heal. I was prescribed Klonopin, Ambien, and Amitriptyline. Over the course of the next few weeks, I slowly regained my strength. I could no longer drive, I could no longer read (I have been a bookworm since I was a child, so this was very hard for me). I couldn’t listen to music. I could only watch nature documentaries and kids shows. Everything else was too intense. Second withdrawal On memorial day in 2021, about a week after finishing my doctorate, I made the decision to start tapering Klonopin again. I learned about the Ashton manual and websites like these, which helped. I talked to people who went through similar experiences. I decided to go slow. I ignored my psychiatrist, who told me that, despite what I went through, my Klonopin dose was tiny and that it’s fine to take it for the rest of my life, or to stop taking it after a week of cutting the pill in half. I found a new psychiatrist who genuinely believes in these poisons they prescribe, but nevertheless agreed to help me taper slowly and follow my lead. I don’t tell her much about how I’m really feeling. I experience the dehumanization that people with mental illness feel on a daily basis. When I share my story with others, people look at me like I am crazy. Doctors have told me that what I went through is not possible. Even my loved ones… I could feel at times that they were humoring me. I slowly regained my strength, and though I am not fully myself again, I am better than I was. I can drive, and I can go to work, and I can listen to music, and I can even read sometimes. I took my last dose of Klonopin a couple weeks ago, and I sure do feel it. The depression is heavy, and panic attacks returned, and I still convulse sometimes. I have one more medication to go – Amitriptyline – and I hope to start tapering next year. Mourning and finding meaning What I am struggling the most with is fully coming to terms with what I went through. I don’t mean to self pity, but it’s how I feel. I trusted a system so wholeheartedly only to be fired as a patient and left worse off. I can’t help but wonder… who even am I? Sure, I’m starting to feel more like who I was before I began withdrawing, but looking back – I’ve been medicated my whole adult life. How do I know what was me and what was the medication? Who am I underneath it all? Will the depression that I felt as a teenager just remain as my normal? I also don’t understand the point of what I went through. What is God or the universe trying to tell me? What am I supposed to do with this knowledge? Everytime I discuss it, I am met with humoring looks and pitying stares. Was I such a bad person that this is punishment? At the end of the day, I realize I have a lot of privileges that other people don’t. I’m not ungrateful. I know that my family saved me. I know that it could have been so much worse. I could have been on the streets. I could have been hospitalized. But I am so angry, so hurt, so upset for myself and the thousands who went through this and more, only to be sidelined with a story that will never be considered credible by the powers that be. Thank you for reading.
  2. I started taking MMJ two years ago to help “manage” my anxiety so I could come off of 50 mg of Amitriptyline and .50 of Klonopin. My doctor was completely on board with this as he said it’s “natural” and really wanted me off Klonopin. This past February I ended up accidentally overdosing on MMJ and started to hallucinate. I was told my metabolism must have changed and that I would have to readjust the dose. Even in my state of mind I knew that was a horrible idea and CT’ed the MMJ. I had NO idea what I was doing or what was in store for me. I was put on 2 mg of Abilify and was told that it would help “speed the withdrawal process.” I never even decreased the Amitriptyline or Klonopin the entire time I took the MMJ. I was told after a month to just stop the Abilify. I can’t even attempt to describe the terror I felt the next two months. I had de realization, depersonalization, disordered thinking, panic attacks, it goes on and on. I didn’t sleep AT ALL the first month and then the second month I was getting 1-2 hours a night. I didn’t even know that it was physically possible to go that long without sleep. I developed paradoxical insomnia as well as a fear of insomnia. I stopped the Ability after one month. I decided by the third month I would taper the Amitriptyline since I initially took it for sleep and it wasn’t helping. Did I mention I had NO idea what I was doing? I went from 50mg to 6mg in two months. I honestly was about to throw in the towel at this point and go on an antidepressant but then found this site. I knew at this point I was in PAWS from MMJ but didn’t realize cutting the Amitriptyline this fast was a contributing factor. I thought that this was my “mental illness” coming back. I increased back to 10 mg in July and am holding steady. I am currently on 10 mg Amitriptyline and .50 mg Klonopin. Seven months later I still have a lot of issues. More importantly I have a lot of hope. I worked with a wonderful hypnotist and am at the point where I don’t worry about sleep. I eat well and exercise every day. I practice gratitude and am learning to live in the moment. I still wake up every 1-2 hours a night; most nights I fall back asleep and I am grateful for that. I’m learning to observe my thoughts and use my anxiety and fear as guides. I am already the strongest person I know. I’m only starting my journey but wanted to share early hope for those that may be struggling with acceptance. I also want to thank everyone on this site, you have been a part of my journey.
  3. Hi i am new here so let me introduce myself and give you the history of why i have become member. I originally got tinnitus about 18 months ago from noise. I was a sound engineer when younger so my past had caught me up. I went and had all tests and was told nothing could be done. I started to get headaches and siatic pain down left side which seem to come on at same time thetinntus did. The doctors prescrided me 20mg of amitriptyline to be taken at night to help prevent migraines and help with sleep. I took it for about 11months but for last couple months i started feeling anxious, paranoid and suicidal in waves. I attended to A&E department who said that only way to tell if the symptoms were side effects of drug was to come off them and that i would have see GP. I went see the GP who didn' t believe the drugs were causing issues and that i had aggitated depression and needed to take different anti-depressent and stop the amitriptyline. I wasnt feeling well and did what GP had said and stoped the amitriptyline with no taper and started citrolpam. I took citrolpam for 4 days but just felt out of it so i stopped it. I didn't sleep for 14 days and had massive waves of syptoms. Went back doctors and he said i was ill like he had said and looked anxious. Tryed get him understand it was withdrawl syptoms. Doctor told me i needed to go back on amitriptyline but 50mg this time. I questioned the dose increase but as i wasn't feeling mentally or physically well i got tablets. I reinstated back onto the amitriptyline but only took 25mg for first week. The withdrawl symtems were still there but slowing a little. Decided to take the 50mg as doctor said as i really didnt know what i was doing by then. Made feel even worse than i was feeling. Friends told me to go back to GP but get second opinon from different doctor. Changed doctor and explained i was in withdrawl and i wanted to come off amitriptyline due side effects. She listened but still really didn't want say it was in withdrawl altho see did agree if i felt i wasnt depressed i should drop back to the 25mg as only been on 50mg for few days. I have had to take 9 weeks off work and am taking 25mg amitriptyline hoping i will stabilise to some kinda human being. At first i was having the windows and waves were as last few weeks i feel like the windows are getting smaller and waves bigger. I saw the mental health team who again avoided the whole withdrawl thing and tryed blame me. I advised her i want get off the drugs and after reading many forums realise i need to do a very slow taper as i am super sensative. I come here as many do in hope of some feeling like i will be able to come off the amitriptyline at some point and regain the person that i feel i have lost.
  4. Hi everyone! I'm here because I'm about to start to taper Amitriptyline 75 mg that I've been taking for my migraines. This is not my first drug-tapering rodeo, but I'm still not looking forward to it. I was first prescribed medication for my migraines in 2004. I was put on trials of amitriptyline, depakine and then topamax. None of these worked, and I had a severe reaction to the topamax that resulted in panic attacks, agoraphobia and suicidal ideation [i had a plan]. During this crisis, I was prescribed Ativan, but I became addicted to it after 8 weeks. I crossed over to Valium 10 mg and tapered off that in 7 months. I was off all migraine preventative drugs for 6 years. Then my migraines started to become much more severe and frequent. After a lot of procrastination, I agreed to start Depakine again. Amitriptyline was added because I was having scalp allodynia – my hair and scalp always felt like it was on fire. I tapered off the Depakine in 2013 because I was starting to feel very ill taking it and the side effects were becoming worse. I stayed on the amitriptyline and needed to increase the dose as my migraines and allodynia continued. Last year, I tried to do a 10% taper of the amitriptyline, but was unsuccessful and needed to reinstate. In the meantime, I started to do the program of Dr. David Buchholz, “Heal Your Headache”. Between the dietary prescriptions and the radical reduction of my migraine rescue remedies, my migraines became significantly better – less frequent and much less severe. The funny thing is, now that my migraines are more under control, I feel quite well on the amitriptyline. The side effects – chronic constipation, chronic dry mouth and weight gain – are annoying, but manageable. Nevertheless, I don't like the idea of being on it and would like to see if I can taper off it and still have good migraine control. If I don't, I'd rather try a calcium-channel blocker like verapamil or diltiazem. Having done this before, however, doesn't make me any less apprehensive about starting the ordeal again. I am planning to do a very slow taper this time, starting at a 2.5% taper and seeing how that goes. I also plan to do a liquid taper. I didn't know about this option in the past, but I think it will be ideal for me this time around My plan is to begin next month. In the meantime, I am upping my supplements, getting my diet lower carb, so that I can get into ketosis, and preparing myself mentally for the long slog. I do have a question: at the present, I am taking tablets for my daily dose. Would it be preferable to start to take my doses of 75 mg as a liquid dose before I start the taper? Or is it advisable to continue with the tablets until I'm ready to start my first cut with a liquid dose? Thanks for any counsel. I've been reading the forum for a few weeks now and already I have gotten so much information. Thank you for all you do!
  5. Excuse me if I'm being vague / chaotic, it's too hard to focus or think about anything, also I apologize for not researching much on the site, it takes a lot of effort just to type this and I'm too desperate, however I'll take as much as time as needed to follow through any reply / references I get, thanks in advance. It's been years and I didn't know the cause was antidepressants, I only remember a few names (Clonszipam, Fluxtonin[I think], Seroxat, Alprazolam..) I've been through 10 different doctors and each gave me a different pack of 4 meds, I don't remember many of the names since it was more than 4 years ago and I spent 3-6 months on each pack, I just remember suffering from 24/7 seizure symptoms, endless fear, and stomach complications, they're still with me till now, calmed down a little after 3 years of fighting, but I made a mistake an started Amitriptyline, and I'm getting complications each time I try to lower the dose (it's only 10 mg, and I get seizures whenever I go off it for half a day) Somehow my migraine med (Zomitriptan) eases most of the symptoms, doctors keep brushing off my pain saying I'm fine. Basically it was: 3 years of chaotic 4 pack prescriptions by 10 different doctors >> cold turkey withdrawal (because they refused to tell me how to go off the meds and I screwed up) >> withdrawal effects for 3 years, slight recovery after the long fight >> getting stuck with 10 MG Amitriptyline (reduced to 5 now) and getting seizures if I go off I'll add in any details when I remember them, My symptoms before Amytriptyline were: - Nausea (too heavy) - chronic fatigue (too heavy, hardly can stand up) - dizziness, lack of coordination, - full time panic - twitching in muscles, uncontrollable - mouth shivers like it's cold and it becomes hard to talk or stop it - seizures trigger after eating, along with psychological complications like extreme fear, anxiety and loss of coordination, I still have no idea why this happens, and it mostly happens if the food is dense / oily (even drinks trigger that) - too hard to think, focus or even read messages - full time fear - too hard to identify my pain type, source or symptoms (including the ones I mentioned, took me months to detect them) - unidentifiable heavy pain I hardly managed to overcome the seizures before I started Amytriptyline, but they were back as soon as I tried to withdraw Symptoms on Amitriptyline : same except: - extreme fatigue - sickness (as much as Sinus / Vertigo, I mistook it for them at the beginning, I'm using their med to relieve the symptoms - increased fogginess / separation from reality - loss of taste, and increased craving for all sorts of organic / liquid materials (including the most disgusting ones, I can't distinguish in terms of feeling) - decreased energy from the already low levels On Amytriptyline withdrawal : - Seizures, mild to heavy I guess - Suicidal behavior on extreme seizures, because I lose all awareness / emotions and only pain remains, feels like I'll only live pain for the rest of my life A few notes: - The symptoms I mentioned are based on my own research and I could be describing them wrong, for example I though I my "seizures" were simply "panic attacks" until I checked how panic attacks are and checked the first search result of "seizures" in Google, I still don't know enough about seizure types but I know that it's more than a panic / fear, you're welcome to ask me or correct me about any symptoms and / or their meaning - Doctors never told me any diagnosis, they simply threw me meds after a short interview, I was 18-ish back then and didn't know the risks of what they were doing, you're welcome to ask me about that part too since I'm not in the best country to get diagnosed
  6. Hi All , I need your help ! I was on low dose of Amitriptyline ( 10 mg ) from Sept 29 th to Nov 9th , approx for 1 month. Was given this for low grade vascular headache Now I am 2 months off the drug , but still have issues. Approx 2 weeks post stopping the drug i started having severe tinnitus in both ears and still have it now , light sensitivity , brain fog , difficulty in concentration I had anxiety which I feel has been reduced since beginning of January. I got my tests done for MRI and all health tests everything came out clean , visual tests and macula degeneration tests also done Opthamologist message : Amitriptyline is neuro and ototoxic : your body will wean it eventually , he said it will take a month and I was actually getting better but BAM ! Jan 3rd week I was down in dumps again November Post stopping the drug : No Changes , just little bit of fogginess , headache Dec 1st week to 2nd Week : Muscle pain /drowsiness dec 3rd week to Dec 4 th week ( worst ) : i had grainy vision ( visual snow ) only on walls may be and then night vision was pathetic , brain zaps I was miserable was in dumps . Jan 1st week to 2nd week : On Jan 2nd when I work up my anxiety was gone ( its been better ) and getting better and my grainy vision I felt had subsided , I continued to move on ahead with the tinnitus and less snow Jan 3rd week to now : Suddenly I felt my vision dimness has got better ( I could feel this ) , the places i thought was previously dim was bright , and along with this the snow also became more , for example I an see sparse dots in day light and also when I look at my computer screen , and the walls have gone bad, not sure why this happened, shoulder pain , eye fatigue , dizziness , like when I close my eyes I see patterns and circle , when I m in REM braiz zaps after images ( both negative and positive)[ the symptoms I faced in Jan was not faced before in my life ] All the above symptoms Never had them in months of Oct, Nov Tinnitus : More Muscle Pain More Due to which : I'm nervous and anxious Issues I have now : Tinnitus more on left now , previously more on right , afterimages , vision snow ( bothers me the most ) and I know its not more than many of ul here , lil bit anxiety due to all this issues Disclaimer : I didn't know amitriptyline was an antidepressants until the 7th day of me taking it , I forgot to check it up online . Never done drugs in past , not smoked , no alcohol , I was a independent girl doing things on my own but now I'm so dependant on my family for everything I hope I get over this , I'm only 29 never had issues like this .
  7. Hi all, I am new. I am unsure how to add my drug history in my signature, apologies - I added info to my profile but that's not working. Any guidance as to how I do this welcome. I am going to start a Bupropion 150mg XL taper. I have been taking it for 30 months. I am also taking Amitriptyline 50mg nightly Diazepam 5 - 10mg, 3-4 times a week (try not to take daily, am mildly physically dependent) My goal is to come off everything (I have already stopped a cocktail of psych meds this past 2 years, having been polydrugged at an inpatient rehab in 2019, including 2 anti-psychotics which I did not require but that's a whole other story!) and I am still experiencing withdrawls, much has improved in the past year thank goodness as I almost didn't make it through but I still have issues with memory, motivation and cognitive functioning. I plans to taper in the order of: Bupropion, Amitriptyline and finally the Diazepam. I do not want to multiple taper. Regarding my Bupropion taper, I will be asking MD to switch from XL as I am aware it is not recommended to try and cut XL tablets since it switches to IR. Should I ask for scored SR at 2 x 75mg tablets (assuming scored 75mg are an option)? I do not have MD support with taper but he will change my prescription. I am not able to obtain liquid from a compound pharmacy. I experience no symptoms if I miss one dose of Bupropion, however, I missed 2 recently and felt awful - brain zaps, headache and strange head sensations, burning sensations in my body, unable to sleep, restlessness, air hungry. Given this I want to do a safe slow taper. If anyone can point me to good threads on here and share any personal stories with a Bupropion taper I would be most grateful. As I am to find this community after feeling alone with all this for 2 years. Thank you so much, LondonGal (living in the USA!)
  8. Hello all, I'm new. And I'm scared. You have all been a tremendous source of strength. I'm trying to figure out how to fix my signature so sorry if I'm putting it all out here. I have been on 150mg amitriptyline for 6 years and tapered off of it in 8 months. During that time, I didn't realize I was going through withdrawal symptoms. Now, I realize I had, and three days after I went off, the severe depression/anxiety set in. I was reinstated at 25 mg by psychiatrist's orders for a week, and then another 25 mg this week. I realize I had broken a cardinal rule of antidepressant withdrawal, which is not to reinstate at a high dose. But I was told to do this, which of course makes it par for the course. On 25 mg, I began to feel better for 3 days, and then the depression/anxiety began to creep in again towards the end of the week. Then, I reinstated at 50 the next week per psychiatrist orders, and I'm now stable but with worsening insomnia and floating lights in darkness, a sign of withdrawal. I have made a big mistake, of course. I'm so fearful about the week ahead. Does anyone have any advice for me? I'm so scared about my future, especially because of what I've just done. If you were me, what would you do? Thank you all so much. You are my only source of information right now as I find a new psychiatrist.
  9. Hello, I have been on 50mg of Elavil daily for seven years for Chronic Pelvic Pain Syndrome. I had tried backing off slowly numerous times and never was able to. Recently, I forgot to take elavil two nights in a row and didn't really have any side effects, so I thought what the hell, I'll just try quitting it. Went thru a pretty rough withdrawal in the next 2-3 weeks. Almost got back on it but stuck it out. Symptoms were body aches, sweating, BAD chills, restlessness, fever, Weird thing is while I was on Elavil, I had Tachycardia with a high resting heart rate usually in high 90's. My pulse would stay in the 100s most of the day. As it got out of my system, my pulse started dropping. For awhile, it was normal with a resting heart rate in the 70s. Now, I am about 1.5 months off of Elavil and I still have chills and now my resting heart rate is in the high 40s (I am no athlete lol). Bloodwork is all great, I am seeing a cardiologist for more tests but he seems very uninterested in listening. I had a bunch of heart tests done within past couple of years while on Elavil due to the Tachycardia and they couldnt find any issues so I don't feel like there are any issues there but I'm no DR. I don't know if this is some kind of long-term withdrawal symptom or something unrelated. Just seeing if anyone out there could relate?
  10. So here I am, I've gotten some good information from the site before but mostly remained a lurker, right now I think I need a little bit of support from people that truly understand what I've been through While this journey starts in 2007 I have to clarify that it wasn't my first time dealing with ADs. Much younger, in 2001 I was hooked up on Zyprexa for what I feel was an irresponsible reaction to something that required another set of actions (heavy bullying, and I'll leave it at that). That experience made me very weary of the effects of antidepressants and how fast medical personnel relies on them. Thankfully I got off them (mostly) fine So let's fast forward to 2007 I was getting very preoccupied by a girl thing during that period and had no one to talk to. I decided, sure, why not? and went to a psychologist. I got to say it was a very pleasant experience and overall it helped a lot But then this happened. I've always had trouble with insomnia since I was a kid. Out of nowhere I had a whole night episode of insomnia. It was like something popped in my head and the feeling of sleepiness was removed. I had never pulled an all-nighter before. It coincided with a trip to the psychologist He over-panicked and took me to the psychiatrist office, saying that wasn't normal and he prescribed me two meds: Amitriptyline, 25mg and Perphenazine 10mg. I really wish to know what would have happened if I had, you know, just tried to sleep normally that night again In short, those pills felt like magic, they were like sleep on a pill, for someone with sleep issues all his life it was very tempting to continue using them. Sure, they made me sleepy in the morning, but nothing a cup of coffee couldn't solve A couple of years later I had to change doctors again, the new doctor prescribed me with bipolar II and added 500mg of valproic acid, sometimes more. I have no idea how he reached that conclusion since valproic acid felt like a placebo to me Over the years the side effects started to get more noticeable, specially after my doctor made a mistake and gave me 4mg pills of perphenazie instead of 10mg. I pointed this out but he told me it was "impossible" to put me on 10mg again since I would get more sedated. To him, my insomnia was caused by bipolarity and everything working was the perphenazine and valproic acid. For some reason he claimed that amitriptyline was only making me drowzy in the morning. He tried to remove it completely and playing with varying degrees of the other drugs. But I was already working by that time, my job requires me to have a good mental performance. So I never tried any of his variations or new drugs for more than 2 days of zero sleep The last two years The side effects ended up being unbearable. Before that I had bad days sprinkled here and there, from now one I graded the days by how bad they were. I had depersonalization, lost the train of thought, got extremely dizzy, physically and mentally tired all the time, this made my job unbearable. On top of that I started to develop serious bladder and gastrointestinal problems, both urologists and gastros I visited not only agreed that the drugs were the culprit, they pushed me to start questioning what was going on. My doctors (and really all doctors after that) are very prone to minimize side effects or downright deny them and give the most useless advice (change your coffees for something stronger like a redbull) With this doctor I tried to quit the meds completely with what was a fairly "normal" taper of a quarter of a pill every two weeks. Side effects continued and insomnia got worst until I lost the ability to sleep when I went off them completely. Lasted 4 days until I got back to them (job responsibilities couldn't wait). He told me to not take the valproic acid becausee "maybe it's not bipolarity". His las try was using midazolam but it didn't work November last year Reached a breaking point and quit my job, there was no way I was going to be able to fix this and work at the same time. My plan was to do a slow taper and see how it went. Sadly, I ended up listening to some family members that took me to "two of the best doctors in the region". From november to february I took, in really short periods of time: quetiapine, mirtazapine, pregabaline, estazolam, agomelatine, levomepromazine, trazodone, sulpiride. They either didn't work at all or gave me way worst side effects The last doctor was particularly bad, not only did he denied I had insomnia and returned to "everything is just bipolarity" but he also gave me diazepam, it didn't made me sleep and he only gave me amitriptyline again until I begged him I need to start sleeping again. I told him I didn't want diazepam, I knew the risks, I had reacted terribly to benzos before, but he insisted in exchange of the amitriptyline, and told me it was "a soft med, I give it to old people". Anyway, after a month he took me cold turkey off the diazepam and for 2 months I had the worst withdrawal symptoms I felt in my life. He insisted it was all in my head. I had to convince my family to take me to another shrink I personally researched who obviously said I was suffering from benzo withdrawal and in his opinion "nothing in my medical history sounds like bipolarity" He gave me the same meds (amitriptyline and perphenazine) and have been "stable" the last two months. "Stable" means feeling exactly how I was feeling in November with the exception that the gastro issued haven't returned at full intensity again So, next week, I restart work again, maybe it was a bad decision, but I haven't worked in 9 months, bills don't pay themselves and don't see an end in sight. I see my doctor in August, I want him to agree to a 10% a month taper. He laughed about it saying it is "too conservative" and was petrified when I told him about dissolving the pills on liquid. I read about the scale method and plan to order one and hope he will agree to it On top of that, I'm going to a CBT-i doctor. I have tried it before and can say it helps greatly with sleep, sadly, it does nothing for the side effects. I can say without a doubt my only problem is insomnia. The last few months, the short periods I've been off zero meds I have felt great, I can think again, my body feels right. Sadly, I can't sleep and it starts to take a toll around the 4th day. My record in January was a 9 day period of zero or close to zero sleep time, I expected that the brain would just shut down if I force it, but it didn't So, any help would be appreciated, specially in the side effect department. I need to function normally in my job again. I've read about taking modafinil, huperzine or other cholinergic agonist to see if they might counteract the amitriptyline symptoms
  11. About 5 years ago I took a lot of antibiotics for what turned out to be a jaw infection. This resulted in continuing gut problems, (gastritis, esophagitis) and also a condition called burning mouth syndrome. During this time repeated use of acid-reducing drugs (PPI's) started giving me side effects, particularly insomnia and anxiety, and I wound up being given psych drugs (all at low doses) as well. During 2017 I got better, with mixed results on weaning: - February 2017: My first attempt to go from .25 mg daily clonazepam to .125 mg clonazepam resulted in almost immediate withdrawal symptoms, such as insomnia, anxiety, extreme nausea. I went back up to the original dose and the symptoms quickly disappeared - September 2017: Stopped taking 10 mg. Celexa cold turkey, with no withdrawal issues. - October 2017 through December 2017; under the direction of a psychiatrist, reduced from .25 mg to .125 mg with minimal side effects, using alternating doses according to a schedule developed by Cara Tannenbaum. Very minimal nausea, worked quite well. December 2017: Happened to skip a dose of amitriptyline and realized how refreshed and energetic I felt the next day. Decided to take it every other day for two weeks, then stop. Felt great - my dry mouth (a side effect of the drug) disappeared, and so did my burning mouth! I was over the moon. Then at about week three I started having stomach pain, and was waking up with acid in my throat; I was even burping up acid. I had a vitreous detachment in my right eye. There were two solid days where my body shook and I had constant diarrhea. I felt manic. PPI's helped with the acid, but again I developed insomnia and anxiety, and more stomach pain. The psychiatrist suggested Benadryl, which did not help much. It seemed like everything I tried caused stomach distress. I had to resume taking 10 mg. of the amitriptyline , and also eventually went back up to .25 clonazepam to help with anxiety. These are the only drugs I currently take. Since then I have not regained my health. I lost 20 lbs. those first couple of months, and am considered anorexic. I eat six small meals a day, trying to gain weight but without success. During an endoscopy in May 2018 my GI doc at the time suspected gastroparesis, since he did not observe any stomach peristalsis during the procedure. Since I was already following eating guidelines for gastroparesis, I decided not to be tested since I would probably not want to take any drugs for it. With resumption of the amitriptyline, dry, burning mouth came back in a much more severe form - it flares all the time. Could I have become hypersensitive to this drug? I now routinely have swelling in my throat, mouth, and belly. I have also been recently diagnosed with SIBO - small intestine bacterial overgrowth, and IBS. A nutritionist I am now seeing suspects I may have histamine intolerance, which the amitriptyline probably makes worse. I have a very accurate (to 0.1 mg) analytical scale and can shave the amitriptyline pills down. In March 2019 I went down from 10 to 9 mg., and had manageable nausea. I held at 9 mg for six weeks. When I went down to 8 mg. the nausea and and mouth pain were intense - but this particular time I alternated between 9 and 8 for a week, which I didn't do with the first taper. Maybe that was a mistake. At this point, the doctors look at me like I am totally out of my mind - how can such small doses have such big effects? I feel the amitriptyline is hurting my body, and making my gut dysfunctional (it slows motility, for example, which is bad for both gastroparesis and SIBO). So I need to get off of it, but this last taper scared the heck out of me. Words of advice and/or encouragement are appreciated! Thanks in advance ...
  12. Hello all! I have been reading a lot on this website. I am a 43 year old woman from the Netherlands. Because of face ache after a rootcanal at the dentist that caused extreme pains for over a year they gave me lyrica and amitriptyline. 450 mg lyrica and 50 mg amitriptyline was built up within a year. Because of many bad side effects I had to taper my meds. In 2017, 29 th july I tapered 25 mg lyrica. Everything was fine. My dose was at that time 100 mg lyrica and 25 mg amitriptyline. When I tapered my last 25 mg tablet in september 2017 everything went wrong! I got extreme muscle pains in my arms and legs and sometimes just all over! My pain specialist said that I just had to wait and be patient and that the pains would disappear. So I waited. My pains improved a tiny bit. But not much. 9 th february 2018 I felt so dizzy. I was dizzy for weeks. When I forgot a 25 mg pil of lyrica the dizzyness went away. I jumpt to the conclusion that the dizzyness came from the lyrica. So I decided to taper from 100 mg lyrica to 75 mg lyrica at that day. (Now I doubt if it was from the lyrica, maybe the dizzyness was withdrawal from the amitriptyline.) From then it became even worse. I have musclepain and nerverpain everywhere especially in my arms and legs. Sometimes I am burning all over or just in my torso. I cry a lot. I can hardly function and suffer a lot of pain every day. 6 weeks ago I spoke to my pain specialist. She wanted me to wait for improvements and did not like to updose. But the daily pain is still horrible. Some other symptoms have improved: Insomnia (from hardly any sleep to a few bad nights a week) Tinitus (only very mild every now and then) being irritated (gone) fear (only very mild every now and then) tingling (only mild every now and then) electric feeling in my head (gone) Now I doubt what to do. Should I wait (mayby a few years) and hope everything settles down? Or do a small reinstatement on the lyrica? Maybe a small reinstatement on the amitriptyline? (I doubt that because I am allready totally off the med since 22 september 2017) I cannot make up my mind and don't know what the best option would be. So I hope you can give me some advice.
  13. Hi, and thanks for so much letting me join the community here. Below is my current history. AMITRIPTYLINE HISTORY (PUT ON THIS FOR GUT ISSUES) - - All these symptom/severities are atypical for me. - - Early Dec 2019 - 10mg, ~6 weeks - depressive episodes started, foggy, gut slower than normal Late Jan 2020 - 20mg, ~1 month - depressive episodes, foggy Late Feb 2020 - 10mg, 2 weeks - flu-like aches, foggy Early Mar 2020 - 5mg, ~4 days - very strong flu-like aches, emotionally ragged, foggy Mid Mar 2020 - 10mg, ~1 month - flu-like aches, after break emotionally ragged again, foggy Late Apr 2020 - ~15mg, ~2 weeks (pill cutter) - flu-like aches, foggy Early May 2020 - ~16mg, ~2 weeks (pill cutter) - foggy [Mid May 2020 - 1 episode of diarrhoea] instantly followed by severe ongoing depression, tingling scalp, foggy Mid May 2020 - 17mg - 4 months (compounding chemist) - severe ongoing agitation, then severe ongoing depression (tingling scalp), then both, foggy, memory problems 22 Sept 2020 - 1 missed dose - felt almost normal 23 Sept 2020 - 10mg - depression 24 Sept 2020 to present - 17mg - ongoing depression, severe agitation, tingling scalp, fogginess, memory problems, gut still slower than normal OTHER CURRENT MEDS Multivitamin: Since early 2017 - 1 tablet, irregularly; since Sept - 1 tablet, daily Motillium: Since late 2017 - 10mg, 3 times a day Movicol: Since early 2017 - varied amounts daily Ural: Since ~Sep 2020 - ~4 sachets a day Electrolyte: Since Jul 2020 - ~1 tablet, irregularly Vitamin C Powder: Last several years - ~1 teaspoon, irregularly Coloxyl + Senna: Since ~Late Nov 2020 - ~2 tablets, irregularly PREVIOUS MEDS (TAKEN BETWEEN 2017 AND 2018) Ondansetron, metaclopramide, simethicone (also briefly in 2019), prochlorperazine, valium, fluoxetine, oxazepam, olanzapine, pregabalin, atenolol, perindopril Thanks in advance for any help with this. I really appreciate what you do here.
  14. Hello. In February 2020 I was a new mom and was prescribed domperidone for lactation: 50mg/day. Which affects dopamine. I took this until April 2020 and then tapered by 10mg/week until off. During my taper I became extremely anxious and was started on sertraline 25mg increased to 100mg in June 2020. In July I fell and hit my head and sustained a concussion. Sertraline made me feel weird so I tapered off over 4 weeks. then the headaches started. I blamed my concussion but in hindsight I think it was the sertraline withdrawal took nortriptyline 10mg and sertraline 25mg for 6 weeks (nov-dec 2020) . Headaches resolved and I weaned off because of dizzy spells and I didn’t want to hit my head again. Headaches back by December . in January 2021 I had had daily headaches for 6 weeks so dr recommended nortriptyline 10mg alone daily. I did and felt great no headaches. Then by March 2021 I got tachycardia and the doc suggested I wean off. I opened capsules and did a wean over 4 weeks. A week after stopping I got leg cramps so bad I couldn’t stand it. Restarted nortriptyline at about 4mg and weaned it over 2 months. Stopped it may 12. may 18-25 extreme anxiety out of no where. Doc started me on escitalopram 5mg which I took for 6 days and stopped. It made my anxiety horrible! Maybe caused kindling? Then 4 days later I felt like myself for about a week. After being off escitalopram for 10 days the anxiety and headaches creeped back in. is this all still nortriptyline withdrawal? Do I reinstate ? Will this get better ? My dose of nortriptyline was so small. Down to 2mg at the end.
  15. Hi everyone! I am very glad to have found this forum and am hoping to get some insight or words of advice from the awesome people here. TL;DR at the bottom. I will try to keep this as brief as possible though that probably won't happen lol! I have been diagnosed with dysautonomia a few years back during a very bad episode. Dysautonomia is a catch-all term for any dysfunction of the autonomic nervous system. The most common condition is POTS which is not quite what I have but I won't go into too much detail here. I was fine for a few years when another episode started about a month ago after a viral illness (not Covid, was tested). Some of the symptoms of this condition are anxiety, digestive issues, tachycardia, headache and many others. Eventually my condition deteriorated to the point I couldn't fall asleep due to the anxiety and could hardly eat due to stomach issues. I went to the GP and she suggested Amitriptyline which I refused because I've always been wary of long-term psychiatric drugs and we settled for seven days of Ativan to just give my body a chance to calm down. The Ativan (0.5mg) made me fall asleep but did not improve quality of sleep. I still woke up often and on the last couple of days on it started having bad nightmares. After six days on Ativan I decided I would try to fall asleep on my own but it didn't happen and I was feeling worse than ever so I ended up taking my 0.5mg dose and the next day gave in to starting on the amitriptyline because I had no idea what else to do, was desperate and the GP made it sound really mild and safe. The first time I took the Ami (5mg by cutting a 10mg pill in half as the GP directed) about five mins later I felt hot and dizzy and my breathing got quite shallow and I felt quite bad but also high and loopy and ended up talking for 2hrs before finally falling asleep. The next day I felt like I had a brick in my head like I couldn't think but at the same time quite anxious which I was reassured was normal and temporary. The next night I took it, I wasn't loopy and I did fall asleep but then the nightmares started again and even more intense than before and the weirdest thing happened. Whenever I would try to think visually (I'm a visual thinker in general) or think in words of anything even the slightest bit complex I'd get feelings of terror similar to my nightmares (not panic or anxiety but brief flashes of terror). I basically have not been able to think without feeling like this since been on Ami and I still feel like the usual, calm part of my brain is 'stuck' while the emotional is in overdrive which I was told would clear up within a week. I upped to 10mg like GP advised but I just knew/felt it is doing negative things to me. Maybe I'm just overreacting but I also know I can't keep going like this with such an increase in anxiety. I have had feelings of terror before, the last time I had a dysautonomia episode but they were kind of random, one off deals that would strike suddenly and disappear. On Ami it's like all my dysautonomia symptoms (except appetite) are worse plus other things I've never felt before and I want off asap. My timeline: Aug 26 - Sep 1: 0.5 mg Ativan once in the evening. Sep 2 - Sep 9: 5mg Amitriptyline once in the evening. Sep 10-11: 10mg Amitriptyline once in the evening. Sep 12: 5mg Amitriptyline once in the evening. So I've been on Amitriptyline for a total of 11 days as of today. I went online yesterday and especially Reddit to try to find out the best way to stop or taper and it just freaked me out because some people on there were saying basically if you've taken it for 3+ days you're screwed and need months and months of long tapers. My GP of course said it's fine to just come off cold turkey since it's such a small dose but I'm not trusting that. I feel the truth is somewhere in between and wanted to know your thoughts? My plan is to take 5mg for three more nights, then cut to 2.5mg and take that for 5-7 days before stopping. That would put me at a total of 19-21 days on the drug. My question is: would I be at risk for severe withdrawl from this dosage/length of time taking it? How should I take it to minimise withdrawl effects? Thank you so much for reading! P.S. I have contacted a psychiatrist but they have not yet gotten back to me. I'm contacting them to discuss all my issues starting with the dysautonomia but still want to be off this stuff asap. I have not seen a psychiatrist before. TL;DR Been on 5mg amitriptyline for 11 days as of today (two of those days were 10mg). Developed impaired cognition, increased anxiety and more intense nightmares. Best way to stop at this point to avoid extreme withdrawl? Cold turkey or taper to 2.5mg for a short while and then stop? Thank you!
  16. Hi there I am new to the group. I have been on amitripline 20mg for about 3 years and want to taper off. My doctor says no need just stop it. I have contacted my compounding pharmacy as I have used them for my Klon taper which I have finished 7 months ago and they agree to taper but think it would not be as bad the K taper and maybe over 2 months could be done. I am very sensitive to most meds. They will go with whatever I feel comfortable with. My doctor scripted the pills for a year to another pharmacy I use and when I asked for the liquid suspension she only scripted 2 months because she does not feel I need to taper. What difference does it make to her what method and how long. I really do not get it. I have read that new information out there says we should be tapering AD's Any feed back appreciated. Kathy
  17. Hi guys, I have been on amitryptyline 2 years now. It was for my stomach disorder. 2 months ago I started weaning off and developed severe migraines. Ended in ER and they gave me IV antiemetic that caused severe akathisia. I landed in psych ward. They upped my ami doze back and gave me meds to calm down and I was fine. When I came home I started weaning off ami again, but slower. Unfortunately it wasnt slow enough, I went down from 15mg to 13,5mg and 10 days later from 13,5mg to 12mg. And I developed severe migraines again. I didnt know what to do, painkillers wasnt working, so today, 10 days after weaning the doze to 12 mg I took 15mg again. And I developed severe akathisia back, Im so agitated and restless. I took propranolol, which was helping some before, and it helpes some, but its not a cure. Can You tell me whats the safetest option now to do? Should I take tomorrow 15mg again and try to stabilize on that doze? Or take 14mg, something between previous 12 and 15? I cant go back to 12 cause migraines were so severe that I was vomiting and was non functional, but also cant handle akathisia and if 15mg will give me permanent akathisia I dont know that to do. It wasnt my offending drug, Im shocked I reacted that bad 😞
  18. I discovered about Cardiac Coherence one week ago and I thought it could be helpful. I started to reinstate Amitriptyline 25mg (30yrs use) 3 weeks ago after stopping cold turkey last October. My protocole now is 10mg am and 15mg night with some progress: 1st week-no sleep, 2nd week-slept 5 nights, 3rd week-slept 5 nights,4th week-slept Jan 11 only. No sleep since. So it could be Cardiac Coherence breathing which has excited my nervous system, yes? I’m 72 yrs old. Since last August, I lost all my bad eating habits, and lost weight, no more high blood pressure. So I thought I could stop Amitriptyline 25mg prescribed to me for insomnia in early 90’s. Few years ago, I took only 2/3 to sleep. I thought I could stop. I failed. Very bad side effects. Finally, I saw the light, and Amitriptyline reinstatement. And tonight, I stopped cardiac coherence breathing 3xday. I’ll update my progress. I've read some topics and will read more. I discover very needed new info every day. Thank you to all for contributing to this peer support forum.
  19. Hi, I've joined this group because I'm seeking support for withdrawal from low dose amitriptyline for pain. Since my final drop from 2 mg to 0 mg on June 21, I am experiencing air hunger (shortness of breath or dyspnea), even after 5 weeks. To make a long story short, I've been dealing with gastritis (stomach pain/inflammation) since 2017, but had a very unexpected flare-up with no (at the time) identifiable trigger starting in December 2021, and was subsequently diagnosed with "functional dyspepsia" and put on amitriptyline 10mg (in the form of 2mg drops) for nerve pain. I felt like a zombie on 10mg, so after only 4 nights dropped to 6mg, which was more tolerable. After about 2 weeks, I was finally able to identify the hormonal contraception pill as the cause of my stomach pain, so I stopped taking it, which made the amitriptyline redundant. After my stomach was feeling a bit better, I dropped to amitriptyline 4 mg in March, and then to 2mg in early May. My final 2 mg dose was on June 20, and on June 22 I started experiencing shortness of breath which neither improves nor worsens with exercise, and is somewhat alleviated by yawning. With every 2mg drop I experienced several days to 1 week of headaches, insomnia, agitation, anxiety and digestive issues (ongoing struggles with gastritis as well as weaning off the stomach acid reducing drug, omeprazole, make it impossible to say if any of my current digestive issues are connected to amitriptyline withdrawal). It is only since I went to 0 mg that I am experiencing this shortness of breath, and it doesn't seem to be going away even after 5 weeks. I also had my 2nd Pfizer covid vaccination on June 13th, but I have none of the other symptoms such as elevated heart rate, etc, that are connected to the possible vaccine side effects of peri- or myocarditis. I often have summer allergic asthma, but my inhalers don't seem to resolve this, and it is not accompanied by the usual wheezing. I have seen my GP, and she says my lung and heart sounds are good, and the EKG and lung function test were normal. My GP didn't really think that it's withdrawal. Neither did my therapist/psychiatrist, but I am also no stranger to unhelpful doctors who don't listen to their patients. When I originally started my gastritis journey in 2017, a mean doctor bullied me into taking sertraline (which I was then on for 2+ years) because he refused to believe that my lack of appetite was physiological, not depression. I was desperate after being unable to eat for 3 weeks, so I did what he said, but it never sat right with me, and then I was afraid to stop taking sertraline for a very long time. I have done quite a bit of searching and reading about air hunger and how it connects to amitriptyline withdrawal. I have found a few others on Facebook who have experienced this, but I've not been able to find any real information about it, and it isn't listed as a possible withdrawal symptom in the literature I've read. I also am unable to discern if this is hyperventilation or not, as I don't feel like I am breathing more than I should, but yawning does seem to relieve it somewhat. I would really like to hear from others who have experienced this, and understand if there is a timeline that can give me hope. Does anyone understand the physiological mechanisms of why this might be happening? I feel that the better I can scientifically understand what is going on in my body, the better I'm able to cope. Some days are indeed slightly better than others, but it isn't linear, and I am extremely discouraged and feeling hopeless.
  20. Please help! I was on 30mg of Celexa for 3 months for generalized anxiety. After coming off of Celexa, I developed PGAD which I’m learning is unfortunately happening to people a lot. My doctor put me on 10mg Amitriptyline for 9 days and I had terrible side effects - brain fog, heightened anxiety, no appetite. Day 10 they switched me to Nortriptyline at a low dose of 2mL (liquid it’s such a small dose). Took it for 3 days and felt angry/mood swings, emotional, extremely depressed, agitated (couldn’t handle any mental stimulation or it made me so anxious - none of this is like me!) on the 4th night, I was going to stop Nortriptyline altogether. I fell asleep for an hour and woke up with the worst withdrawals - nausea, flu symptoms, agitation, insomnia, heart racing. I then got out of bed and lowered the Nortriptyline dose to 1mL. My withdrawals calmed down a tad and I was able to sleep for a couple hours. Woke up with anxiety, nausea, flu-like symptoms, fatigue. I was on low doses for such a short period of time, I can’t believe I’m dealing with withdrawal symptoms. Should I stop the Nortriptyline cold turkey now since it’s only been 3 nights and just suffer through the side effects?
  21. Admin note: link to benzo forum thread - Ichabod: Could somebody help? Benzo problems Hello guys, I am new here. I do apologise in advance for my English (I am italian). I would prefer not to bother you with my personal experience as it is probably similar to many others you got across, but I d need some encouragement because I am alone in this struggle. Briefly... I went on Paroxetine ten years ago for panic attacks. It helped but the side effects were brutal. I tried many times to quit it but I experienced all the withdrawal symptoms that my doctor confused with relapse and that scared me to hell and he always put me back on it. Two years ago I met a girl I felt in love with and I decided to quit it once for all, no matter what (primarily because of the sexual side effects). I asked my doctor to help me and he said to come off of it in a month (like I did the other times). I tried it again but what I felt was overwhelming. So I decided to do it by myself tapering slowly using a liquid form. It took me 7 months of pain but I really didn't know what to do and I couldn't find anybody to help while my doctor continued saying to go back on it. I felt really debilitated but after I finished tapering I noticed I was still in prolonged withdrawal. That was a shock because I was always reassured that once the drug was out of my body I would have been ok. I took my last dose on july 2019. I kept using klonopin as prescribed but I noticed I was really sick. Finally, in january, after a lot of research I found Professor Giovanni Fava who told me that I was in post acute withdrawal syndrome. It was a sort of relief being validated finally but also terrifying. I started researching and what I found out was shocking...people in withdrawal for years, pssd... it was to much. I started thinking about suicide. I was in a really bad place. Giovanni Fava's plan is to help me get rid of all this addiction so he put me on 5mg of amitriptyline in order to stabilize the situation a little bit while tapering klonopin. Then he will take me off amitriptyline . I am writing you in order to ask some encouragement and reassurance because I am completely alone (I have no family) and I don't know how long my girlfriend will stay by my side (she is getting tired of seeing me sick and she would like to plan a future. I don't blame her... plus, sex is pretty bad. I had moments when it was great followed by long periods of time when it was non existent. I don't function like I did and I really don't know if this is pssd or still withdrawal and if I will ever get back to normal). I feel betrayed by the modern medicine... if I knew what could have happened I would have never took Paxil in the first place. I came across this website and decided to write you in order to find some tips on how to go on in life and to ask you if it will ever get better. For sure I developed now sone sort of ptsd. Sorry I bothered and thank you in advance.
  22. Hi, I took amitriptyline for 2 weeks starting at 10mg moving up to 50mg within 2 weeks, this was all for the purpose of trying to treat my chronic cough, which was suggested by my cough specialist. After those 2 weeks my symptoms did not improve and my doctor told me to stop the medication abruptly, which i did. 5 months on and my only post withdrawl symptom i'm still suffering from are stomach issues, specifically mild pain in the lower abdomen area. The pain is constant every day and has subsided but is still bothering me. I've gone to see a Gastroenterologist who suggested having both an ultra sound scan and MRI of my lower abdomen, which the results all came both negative. I've also been tested positive for various intolerances since coming off the medication, such as dairy, gluten and certain vegatables/fruits. As such i now follow a LOWFODMAP diet, which has helped but it still hasn't prevented the ongoing stomach pains i suffer daily from. Could anyone please share some light on this and let me know is this a permanent symptom or do this eventually pass and roughly how long should this continue for given that its been 5 months since i came off amitriptyline? Kind regards, Chris **********
  23. Hi dear members, Earlier in february 2020 i was prescribed amitriptilyne for some slight sleeo desorder, nothing serious too, but start feeling lik it gives me head pressure. I took 15mg at night during 3 months then i quite off suddenly. After 17 days of being off i start having bad insomnia, so i was advised to resinstate at 10mg, there where my life just become unmanageable, cause i start developping all kind of withdrawal symptoms you can possibly imagine. I suffered, ans still suffer from multiple withdrawal symptom, such as awful headaches/bad Tinnitus, urine retention, ever since a quite Cold Turkey following my neurologist recommondation. I was only on 15mg. Perhaps the word "only" isn't appropriate when we talk about amitriptilyne. There is no such thing called small dose. I would like to know if your Tinnitus healed or at least get improved? Cause Tinnitus is one of the most painful withdrawal symptom that i still struggle with almost a year now. MANY THANKS for your answer! Amitriptilyne 15mg from february 5th 2020 to April 25 2020, then cold turkey. Reinstate Amitriptilyne 10mg from March 11 2020 to march 30, then taper off 2mg every week. 0.00mg by the end of june 2020.
  24. Hey all, So I have been taking amitriptyline 10mg for 2 years, and just recently tapered off fairly rapidly. I was prescribed them for severe OCD, which I conquered about a year ago. I don't know if how I'm feeling is down to withdrawal from this drug, but I feel awful. Depressed, moody, very irritable, and most annoyingly of all - internal tremors that feel like my bed is constantly vibrating. I tapered down from 10mg to 5mg and then took one every other day, this process was about 3 weeks until I stopped completely. And it's been 4 weeks since I stopped completely. I know such a small dose shouldn't cause such withdrawal symptoms, but it definitely does, as about a year ago I ran out of them for 10 days and felt awful then too. I've flirted with the idea of jumping back on them and then tapering down even more gradually (if that's even possible), but I don't want to end up back at square one, when I could be so close to reaching the end of these withdrawal symptoms. The questions I need answering are: After 4 weeks of these withdrawal symptoms, should I ride it out from here, or jump back on and try tapering off more slowly? How much longer are these symptoms likely to last? Also, are there any vitamins or supplements I could take to make this easier in the meantime? Thanks
  25. Hi there. Im new to this and am posting cause im worries that im never going to get better.... Had chronic headaches star from out of the blue c3.5 years ago and have had lots of drugs and every therapy, holistic, Physco treatment going. Now, headaches are less of a problem, still there 95% of time, but have anxiety, depression, anger, extra sensitivity to sounds and movement, disassociation, hopelessness etc. This has / is ruining my life, and I pray it will go back to normal - soon! For chronic headaches - amitriptyline - Started 10 Nov 2019 - 10mg up to 30mg. On that dose for 6 months, up until 10 days ago. Helped a bit with head pain, but bad and constant anxiety, depression, disassociation, (particularly awful). At the same time, for above symptoms, Escoltalpram 5mg - 10mg. Was on that from 1 Dec 2019 - mid Feb 2020 as it didn't help with anything. Since start March, on Sertoline (100mg) and Quetiapine 25mg daily). In the past I have been on Topirimate (had very bad side effects), Pregablin (helped a bit but stopped working) - all for chronic headaches. Ive decided, alongside a new psychiatrists (all of which i think are pretty useless tbh, im on my 4th), to stop the amitriptyline because i think its that which has increased any anxiety, moods and denationalization. Although its very difficult to know as all the symptoms and side effects are the same! Over the last 10 days, ive gone from 30mg, to 20mg, to 15mg and last night stopped altogether. I am now very worried about withdrawal, which seems to be all the same things i have already! So how is anyone supposed to get better, when no one can say whats what! I appreciate the complexities in all this. I think im looking for some advice if ive tappered off too quickly, what to expect and how long it might last. Also, if there is any hope of going back to "normal", how i spent the first 39 of 42 years! The only real time i feel sort of ok is when i drink a lot of alcohol - which i know isnt a great thing to be doing. any thoughts or comments welcomed. Rob
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