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Konjo posted a topic in In the mediafrom: http://metro.co.uk/2018/01/24/woman-shares-coming-off-antidepressant-ruined-life-7255570/ When Tabitha Dow was six, she had her first migraine. Now and again she’d be stuck with headaches, but when she hit 29 they became more regular and more severe. Soon her migraines were debilitating, so she sought out medical support at the National Migraine Centre in London. There, Tabitha was advised to ask her doctor for the antidepressant Venlafaxine at a maximum dose of 150mg. She was told that this would help not only with her migraines, but also with her persistent low moods. ‘This was the start of my downfall,’ Tabitha tells Metro.co.uk. ‘Neither the neurologist, nor the GP who subsequently prescribed the drug, explained that it was extremely chemically addictive. ‘I was not told how long to take it for, it was prescribed indefinitely, and there was no mention that coming off the drug would likely result in severe withdrawal symptoms and a need to taper off like you would heroin. ‘Neither mentioned that one of the common withdrawal effects of Venlafaxine are migraines.’ Venlafaxine didn’t work to help Tabitha’s mood, so after a year, she decided she wanted to come off it. Asking her GP about a plan to taper off the antidepressant, Tabitha was told that the medical professional had ‘no idea’ how to proceed. ‘I was completely by myself,’ says Tabitha. She followed the instructions recommended by her GP, but was quickly confront with severe and debilitating withdrawal symptoms. The plan the doctor recommended was fast and drastic, and Tabitha feels she was left completely unprepared for what she was about to face. Tabitha before withdrawal. Picture: Tabitha Dow) ‘The migraines increased dramatically and on top of these I developed intense crushing pressure in my forehead which was constant and unbearable for months,’ Tabitha remembers. ‘I also experienced chronic fatigue, internal tremors, startling easily, sensitivity to light and sound, sensory overload, anger, brain zaps, pressure behind my eyes, tired eyes, extreme fear, panic, confusion, being unable to speak, being unable to move, my brain feeling sick, my heart beating fast when I stood up, mental turmoil, night terrors, hypnagogic hallucinations, night sweats, gasping in my sleep, feeling unwell after a bath/shower, severe difficulty waking up in the morning, feeling drowsy and stuck until several hours after waking, feeling drugged and toxic after napping and sleeping, a sensation of my brain moving from side-to-side, squeezing/tight sensation inside my head, right eye-brow pulling upwards, a chemical “metally” sensation in my forehead, vibrating and electrical sensation in my head, being unable to cope with everyday tasks, deterioration in mood, agitation, feeling like my brain was shutting down, light-headed when I stood up, feeling like my body was rocking as if on a boat, feeling catatonic, scrambled thinking, feeling as if there was a block in my thinking, difficulty planning, difficulty carrying out sequential tasks, and feeling detached from my environment.’ Having found out that she has a lesion in the frontal lobe in her brain, Tabitha believes she may have even had a seizure during this time. ‘I’ve had two episodes where I couldn’t speak,’ she says. ‘It felt like an electrical storm in my head, which I’ve read is what a seizure feels like.’ Tabitha during withdrawal. (Picture: Tabitha Dow) At first Tabitha didn’t realise that her symptoms were the direct result of withdrawal from Venlafaxine. When she asked her doctor for help and her test results came back normal, she was offered no further support. ‘I was left to cope alone,’ she says. NICE's current guidelines on Venlafaxine, and what Tabitha wants to change: ‘Associated with a higher risk of withdrawal effects compared with other antidepressants. ‘Gastro-intestinal disturbances, headache, anxiety, dizziness, paraesthesia, tremor, sleep disturbances, and sweating are most common features of withdrawal if treatment stopped abruptly or if dose reduced markedly; dose should be reduced over several weeks.’ Tabitha suggests that the recommendation to reduce the dose over several weeks isn’t accurate. It takes months to come off the antidepressant safely, and two years later she’s still experiencing debilitating symptoms. She notes that NICE’s guidelines also fail to mention that Venlafaxine can cause withdrawal symptoms even when not stopped abruptly, and tapered off in accordance with GP’s tapering guidelines. Unable to work, Tabitha had to quit her job and leave her flat in West London to move home with her parents, so they could look after her. She lost everything – her job, her health, her home, and yet, she says, doctors still refuse to listen to her struggles. The doctors Tabitha has seen don’t believe that withdrawal can cause the severe symptoms Tabitha listed. The only psychiatrist she could find to back up her claims is Dr Healy, who’s dedicated his time to researching the effects of Venlafaxine’s withdrawal symptoms. Dr Healy wrote a letter to Tabitha’s GP confirming that she was experiencing intense withdrawal symptoms, but Tabitha says she’s still not receiving any help. It was only when Tabitha found a Facebook group dedicated to Venlafaxine withdrawal that she learned she wasn’t alone in experiencing her symptoms. Scrolling through the group, Tabitha found comment after comment repeating her experience, listing a ‘crushing pressure in their foreheads every single day’, that feels like your head is ‘in a vice’ or you’re being ‘smashed in the head with a brick’. ‘It’s ruined my life’ (Picture: Tabitha Dow) ‘It wasn’t until I joined this group and saw that there were hundreds of people in the group all experiencing the same symptoms as me,’ Tabitha tells us, ‘and that I realised that my symptoms were caused by Venlafaxine withdrawal. ‘I told two GPs that I was experiencing withdrawal symptoms from Venlafaxine. One didn’t comment but agreed to refer me to see Dr Healy, the other disagreed even once I had written evidence from Dr Healy.’ Doctors Tabitha has seen believe that the symptoms she’s experiencing are not the result of coming off Venlafaxine, but are simply her original condition returning. We spoke to a psychiatrist with experience in Venlafaxine, Dr Cosmo Hallstrom, who told us that it’s one of the most popular antidepressants out there, and is generally regarded as the most effective. While legally, GPs are required to give patients all the information regarding drugs they prescribe, Dr Hallstrom says that the reality is quite different. ‘A doctor’s interest is to get patients treated, and to persuade them to take medication that will help,’ Dr Hallstrom tells Metro.co.uk. ‘So maybe they don’t start listing off all the possible side effects.’ He notes that a GP’s perception of risk is different to that of a patient, and doctors may be reluctant to note all the possible risks in case it puts a patient off getting help. Two years later, Tabitha is still experiencing withdrawal symptoms. (Picture: Tabitha Dow) SSRIs do have withdrawal symptoms, Dr Hallstrom explains, but these tend to be short-lived. He states that data shows that in the majority of patients who believe they’re having withdrawal symptoms, what they’re actually experiencing is the return of their initial condition. He does admit, however, that there’s a chance some people may experience genuine withdrawal – but recommends a simple ‘test, retest’ as a way to check it out. ‘I understand that a lot of patients might not want to take the medication again, having been through a bad experience,’ Dr Hallstrom says. ‘They say “that stuff’s poison”. ‘But if it is withdrawal, when they start taking the drug again their symptoms should disappear within 24 or 48 hours. That’s a simple test.’ But having been ‘traumatised’ by her experience, Tabitha is reluctant to go near medication again – especially as Venlafaxine didn’t work to remedy her depression in the first place, and she doesn’t want to be tied to taking medication for the rest of her life. Two years on, she’s still debilitated by withdrawal symptoms. She’s unable to work, relies on PIP and ESA benefits, and is now trying to raise money to fund alternative therapies to help her cope – not only with her side effects, but with her thyroid cancer, which she was diagnosed with in the last few years. It’s the withdrawal symptoms that concern her most. MORE: HEALTH Are burpees really the one exercise you should never attempt? What if you want to stay sober after Dry January? OPINION Why we should be talking about menopause from a young age Weird reasons you might be spotting or having a longer period than normal ‘I’d rather have thyroid cancer than go through coming off Venlafaxine,’ Tabitha tells her. ‘Thyroid cancer doesn’t cause any symptoms. Withdrawal ruins my life every thirty seconds. ‘I have really bad cognitive symptoms. It was like my brain had been drugged. ‘I feel like my intelligence has gone, along with my memory.’ Naturally, the experience has put Tabitha off taking medication. She now relies on alternative therapies, but as this is a huge financial burden, she’s taken to GoFundMe to ask for help. Now, by sharing her story, Tabitha hopes she can affect change. ‘It’s too late for me,’ she tells us. ‘Taking Venlafaxine has ruined my life; I’ve lost my income, my social life and my independence. ‘But I would like doctors to believe me. I’d like them to listen. ‘I want there to be better information about coming off antidepressants and I want there to be a change to the NICE guidelines, so no one has to go through this again.’ Read more: http://metro.co.uk/2018/01/24/woman-shares-coming-off-antidepressant-ruined-life-7255570/?ito=cbshare Twitter: https://twitter.com/MetroUK | Facebook: https://www.facebook.com/MetroUK/
jescowhite posted a topic in Events, controversies, actions"This Prize is part of a two-pronged attack on the unwillingness of the medical and regulatory establishments to listen to people with adverse events in general – not just the sexual dysfunctions mentioned here. The second front in the attack will be unveiled in a few weeks’ time.""The prizeWe are following in the footsteps of the method that led to a solution to the famous Longitude problem in instituting a Prize.The first step is to raise $100,000 toward a Prize for a Cure. We would like as many people as possible who are affected or related to someone who is affected to make a donation of $200 towards a target fund of $100,000.As mentioned, solving this problem will likely make a major contribution to solving the enduring withdrawal syndromes that affect anyone taking antidepressants and antipsychotics. Five per cent of the populations of North America and Europe, and anywhere else where antidepressants are used on the same scale, are unable to get off treatment because of withdrawal problems – that is 50 million people in North America and Europe alone. Fifty million cents would be $500,000 – so a target of $100,000 seems more than reachable.The Prize will be offered to anyone who finds a cure for PSSD, PFS or PRSD. This could be a doctor, a scientist, a drug company, a member of the public – anyone. There are no restrictions.RxISK has several sufferers from each of these syndromes who have convincing enduring conditions. The Prize will be given if someone can bring about a restoration to normal, or very close to it, that endures in our volunteers.There are several reasons why we chose to make this initiative about sexual dysfunction rather than other problems such as antidepressant withdrawal. Mainly because the time is right, and there is already a strong basis to build upon. As more than one type of drug is involved, there is also potentially a larger group of people to approach the problem from different angles."https://rxisk.org/launching-the-rxisk-prize/We need to donate to the poolLets do this people!
Dr. David Healy speaks at the 2015 Yale Symposium entitled, “New Data and New Hopes Call for New Practices in Clinical Psychiatry”. I listened to this and was impressed with the way he doesn't hold back in explaining the reasons for the widespread denial about the harm psychiatric drugs can cause. He also offers suggestions for ways we can help to change this.
David Healy's recent editorial, "Serotonin and Depression: the Marketing of a Myth," in the British Medical Journal, has been picked up and commented upon by lots and lots of media outlets, many of them quite respectable (i.e. mainstream) and most of them quite respectful of his critique of SSRI hegemony. One thing he says in the editorial that I wasn't aware of is that theories of depression which included the role of cortisol were swept aside by the SSRI sales blitz. Also, in the mainstream media coverage, the defensiveness of some of his critics from within psychiatry was quite satisfying.