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  1. I developed laryngopharyngeal reflux (LPR) as part of a post surgery complication from transoral robotic surgery for sleep apnea. The pepsin (digestive enzyme) from the reflux was digesting my throat and causing me a horrible burning sensation so i was prescribed Amitriptyline to alleviate the pain. Meanwhile, i discovered Melatolin and i decided immediately to stop taking 10mg Amitriptyline after 11days of use. its been 13days now since the stoppage and i have not been able to sleep one bit. I started using 3mg of Melatolin yesterday and having discovered safer treatments for my LPR, i really do not intend to use Amitriptyline anymore for the throat pain but i am now left with this unbearable insomnia. Has anyone ever experienced this with suddenly stopping Amitriptyline? if so, i would appreciate any useful advise to overcome my insomnia predicament. Thank you Kind regards
  2. I have had several journeys off of meds . Lexapro/ celexa took me 3 attempts with a succesful tapering off of 6 months and then being off the med for a couple of years after. I never was the same I felt but I did make progress living without meds. Sadly in 2018 I was diagnosed with a benign brain tumor . Radiation treatment left me with 90 % hearing loss in one ear and then tinnitus( ringing in my ear) that was maddening . Catapulted me into panic attacks that were debilitating. It was horrible. Loving with single sided deafness/ tinnitus. I dont know which is worse ..... anyhow the only remedy to help me was an anti depressant and the tryciclic one was chosen because the other ssris have tinnitus as a side effect so that was out . 🙄 I started on 25 mg of Elavil with a 1/2 of 0.5 xanax when needed for severe ringing . Felt so defeated having to go back on meds . I was living this past year settling into my med regimen and then I felt that I would like to try lessening my elavil to 10 mg . Everythi g was going well and then I hit a wall. So upset. In my heart of hearts I I want tombe off all meds . And I need hope . Someone to help support me to regaining my life without meds and living with my dissability without them . Or If at best the minimum amount that will enable me to feel like im living and not dying . The withdrawal is making my life impossible.
  3. Hi - My 10 yo daughter had acute stomach pain for several months (4/13 start). The GI put her on 25mg Elavil daily (7/29). She took it for 2+ months, but ultimately, it was surgery (9/23) that relieved the pain - they found and clipped an adhesion that was pinning her colon to her abdomen, and removed a normal looking appendix. The doctors won't speculate on which or what caused the pain to start or stop, however. She stopped Elavil 5 days before surgery (9/17) and had a very hard weekend, I didn't realize there would be a withdrawal effect, but her heart was racing (initial EKG was bradycardic and by the end, she was at the very high end of normal) and we were a bit panicked about the drug, and knew surgery was a few days away. As noted, surgery was successful, and she spent a couple easy weeks healing from the laparoscopy. All was great until 10/17: four weeks after stopping Elavil she got some acid and nausea. It is now 12/6 and she has constant heartburn and reflux. She has trouble sleeping, she's nauseous when hungry, refluxing after she eats. GI wants to... try another SSRI! Is it possible she is suffering form something related to the Elavil? Has anyone seen something like this? Many thanks!
  4. Hello everyone! I am new here and so grateful for this forum! I have an updose taper question: I tapered 10% monthly since 2 years of Elavil 25mg down to 1mg without major problems. Last 10% cut below 1mg triggered the worst setback of my taper so far with 0-3 hours sleep per night and it has been going relentlessly for 3 months now. Here is my question: for a couple of days, I doubled the dose from 1mg to 2mg to seek relief. Now that I see that the up-dosing did not improve anything, my question is: from which dose do I taper now and when do I start the tapering again when insomnia is so terrible at the moment?
  5. I've successfully tapered off other medications in the past, but am really struggling with this one. I was on 25 mg Amitriptyline since 2015. Last year, I tried tapering off and ended up back on, but gratefully, only at 12.5. I was originally put on this to help with IBS-C pain and found it helped my migraines as well. I'm 64 and am seeing cognitive issues and complete constipation, both of which are well-documented as side effects and why seniors should not be on this drug. So I really want to see how I do off it. Last week, I went down to 10 mg (I have those pills as well). But I'm really feeling withdrawal effects. The problem is that I'm not sure Amitriptyline HCL is stable in water. Here's what I read: http://www.pharminfotech.co.nz/manual/Formulation/mixtures/amitriptyline.html Indeed, as the article states, the liquid was really bitter and had a weird localized effect when I tried to taper this way last year. And I can't cut the pills down to make small enough doses because the pill is already tiny. The best I can do is cut the 10 mg into four (2.5 mg), but from what I'm reading, that is too big of a jump. My doctor is useless about these things. He says the drug can't cause these problems because of the low dose and that I can just stop taking it at this point because the dose is so low I won't have withdrawal. I'd appreciate any suggestions on what I can do to taper under these circumstances. Thanks, Susan
  6. I took 10 mg of amitriptiline three times.aftet experienxing side effects I stopped the drug. After a month I am still experiencing muscle twitches and tingling. The doctors think I am crazy and the drug is not the cause. They have proscribed steroids but I am scared to take them thinking these effects might worsen. Help!
  7. Hello, I am a 73 yo in good health but trying to taper Remeron after about 20+ years on 30 mg. It has only been 1 1/2 mos., but now I am off the Remeron and on 20 mg. Elavil which works well for sleep. When I try to go to drop the Elavil to 10 mg, I get poor sleep. I also have major GI symptoms: is it the Elavil, or is it late symptoms of Remeron withdrawal? Thank you.
  8. Hi I'm new to the forum. I am having awful trouble coming off Amitriptyline. My doctor is absolutely useless and no help at all. I am currently on 25mg of Amitriptyline. I have been on it for 2.5 years. For irritable bowel syndrome. I have put on a stone in weight, I feel so fat and unhealthy. I have tried 4 times to slowly come off Amitriptyline. But I have really bad side effects when lowering the dosage, even when I go from 25mg down to 20mg I get side effects, I can't sleep and get really anxious that's from just a 5mg drop. I really need help coming off them, because I can't stand being on them any longer. I want to come off them really slowly this time, but I don't know how to start. Can anyone please help. Thanks
  9. Hello All, Thank you in advance for your help and support. I’ve had the worst year of my life and am praying to God that I can heal from this nightmare. In March 2017, I experienced my first panic attack regarding a physical injury, which brought on anxiety and insomnia. I tried for six weeks to not take medication, but eventually caved in and began Celexa and Trazodone. I had bad side effects from both and was switched to Lexapro. The Lexapro was very activating and I could not sleep at all. I was weaned off the Lexapro and Trazodone in July 2017. Ativan was added to help with sleep. In August, I tried Seroquel and Remeron, but also had bad side effects. In September 2017, I was switched to Elavil and then Nortriptyline per the results of genetic testing. At this time, I was diagnosed as having a single, current episode of MDD. The Nortriptyline seemed to helped a little, but gave me Tachycardia. I decided in January 2018, that I was going to taper down as none of these drugs gave me real relief and only added to my anxiety. I got down to 20 mg of Nortriptyline and .5mg of Ativan. I unfortunately decided to try TMS therapy, but gave up after 25 sessions - too much to bear. To make matters worse, I was switched to Doxepin and then back to Elavil. I have had ENOUGH of conventional medicine. It has taken a horrible toll on my body and mind. I was in good health before this happened and now I am in a lot of physical pain. As of April 2018, I am down to 12.5mg of Elavil and .5-1mg of Ativan (both at night). I try not to take the Ativan during the day. I want to get off the Elavil and am contemplating a cross taper to Valium to get off of the Benzo. I plan to do that very slowly. I’ve only been on the Elavil for a few weeks. All in all, this has been too much for a human to go through. It has greatly impacted my marriage, family and most likely cost me my job of 20 years as I am on long term disability. I am working not change my diet, exercise, meditate, supplementation and detoxify my body. I also found out I am heterozygous for the MTHFR mutation. I just want to know that it is absolutely possible to heal. All I want is to be able to sleep again naturally, organically. My mother warned me not to take these medications, but I did not listen. She was on the highest dosages of Lexapro and Wellbutrin and got off of them cold turkey and is totally healed. She also got a divorce and is happier than she has ever been. I guess that helps. I welcome any advice about tapering and would love to hear success stories. Thank you!
  10. Hello. I'm a 29 year old male. I took 12.5 mg of amitriptyline for six weeks last August for insomnia before having a serious bad reaction to it. I spent the next three months getting it out my system and felt seriously poisoned and generally comatose. I have chronic fatigue syndrome and I was housebound with it but the amitriptyline has left me almost completely bedridden. I feel I've been through the acute stage of withdrawal but the post acute stage seems to be 100 times worse. I've been hit with crushing depression and feel like I cant bear to live another day and just a general feeling of going insane. I've never even expirienced any kind of depression before just insomnia and anxiety. I've lost all my vitality and interest in everything and feel there is no point in being alive but its not me and doesn't feel like an emotion it feels like permanent brain damage. I've been getting slowly weaker since I took the drug and can't even get any kind of panic reaction anymore. It feels like the spark plug in my brain has died and it's absolute hell. My diet has been excellent, eating lots of avocados, walnuts and vegetables and I'm taking all kinds of supplements but nothing is working. I feel like my brain is dying and I'm losing the ability to read and process information and my motivation is completely gone. I can barely eat and lost alot of weight. I'm somehow managing to survive on complete instinct and fighting the urge to kill myself all day. The psychological symptoms started about 2 months ago and started as anhedonia which then progressed into this feeling of complete doom which has got stronger and stronger and now feel completely suicidal. I can't believe what has happened to me. I can't take any other med as I have severe chemical sensitivity and and it will finish me off for sure. Any advice would be much appreciated. I don't want to die really I just want this feeling in my head to go away and just hanging in there praying it goes.
  11. I started tapering from Prozac, 40 mg and Elavil 40 mg in Oct. 2015. I did not know if I could do it. One of my motivations was 3 years of chronic pelvic pain which started while I was on medication. Then all through 2016 I got sick. I spent 2016 in bed, mostly too tired to do very much and the withdrawal from the drugs was one of mostly forgetting to take the medications as I felt sick and had pains and distress, malaise, flu like symptoms In Nov. 2015 I got very dizzy. In Jan. 2016 I noticed that I had electric zaps up and down my spine and inner trembling. I became so weak in August of 2016, I could barely do anything. It felt like I had infections but I never had fever. By Dec. 2016 I had severe pelvic and groin pain. I could barely sit in Jan and Feb 2017. During all this time I felt ill, but not depressed. Today, I started to feel clinical depression coming on. I have seen a neurologist who discounted my symptoms of neuropathy. I notice that anything can trip the inner trembling and inner electric zap feelings on. In the past and recently there were no explanations of gynecological pain (all tests normal) or abdominal pain ( had 2 colonoscopies). I could put up with all the symptoms - but now 17 months after I started - I am really depressed. My nervous system seems to be hyper and reacts to everything with very subtle neuropathic symptoms which the neurologist discounted. I thought about reinstating prozac but I am scared. I was on antidepressants for 20 years and could not discontinue any of them before. This is the first time I made it - but I think I have peripheral neuropathy and I may not be able to reinstate to any antidepressants. I am still seeing my psych doc thinking that I should go back. But would it be safe?
  12. I'm so glad to have found this forum, I think this is just what I need to finally get free of the tricyclics that I've been on for most of my life. It's really amazing to me that I've actually been on drugs for so long, without any really serious attempt to break free until last June. I always assumed that I could get off it fairly easily if I wanted to, after all, I had missed a night or two now and then, and aside from disturbed sleep and sweats, it was totally bearable. I didn't really get the fact that I wasn't going to get the real effects of withdrawal until I was about a week out. Then the s*** really hits the fan. Amitryptiline was my way of dealing with low-grade depression, and the 4 o'clockies that came along with that. A few years ago I started dealing with perimenopause, and the insomnia issues become much more severe. Eventually I started on progesterone, which was a godsend for me, and my depression has completely lifted. At the beginning of last year I got very serious about the insomnia issue, and getting very healthy in all ways--the list of things I have done for insomnia could fill a book. Suffice it to say that I'm very healthy otherwise (great diet, sleep hygiene, etc..) and I'm tired of being on this drug! I know it is messing with my blood sugar and interacting with the hormones. I've got to simplify things. In June I made my first real attempt to get off. I was only taking 6 mg. at the time, so I naively thought jumping off would be fairly easy. The first week wasn't bad, just light-headed and spacy, a bit of an upset stomach. But by week two, my stomach was in a total uproar, insomnia came back with a vengeance, and I started to feel positively ill. Then I finally did some research and realized this was not going to be easy. I have some experience with tapering off of a benzo, so I know the principles. Can believe I was so clueless! I bounced my dosage up and down for years, never really understanding what I was doing to my body. Currently I'm on 12.5 mg. amitryptiline. My sleep is still very unsettled with the hormone changes and addition of estrogen. I'm going to try to stabilize and get my sleep settled, on the estrogen for a while longer, as the sleep I do get is much better quality (very deep and restful). If I can't (too much reliance on sleeping pills) I'll have to drop the estrogen and reevaluate. Once I am stabilized my plan is to start a very slow taper. I figure it will probably take about a year. If anyone has feedback on this plan, or familiarity with a tricyclic taper, I'd love to hear from them! The idea of finally being drug free is very exciting to me.
  13. Hello Tapering Warriors, I haven't been on this site in a long time however I am very active in multiple support groups on Facebook and am a polydrug tapering veteran who helps many so I pray I get support here. I am running into problems tapering amitryptaline using a combination of pills that my body is used to and compounded liquid suspension. For example, right now I am taking 1 10mg tablet and then 2.5mg in compounded liquid. I microtaper the liquid. My body doesn't seem to be registering the liquid compound the same as the pills though. I am curious if others have experienced this problem with compounds. The challenge with amitryptaline tabs in their minute size and the coating they have. I know I have to work with these tablets for the duration of my taper and I need help from anyone with experience tapering amitryptaline tablets. I briefly soaked a tablet in water to remove the coating and am prepared to order a gram scale and start microtapering that way. I am badly kindled so microtapering is key for success here. Is anyone else tapering a drug with a coating? Is anyone else tapering ami tablets? Thank you kindly, Heather
  14. Over a year ago I was put on this to help with digestive issues, I thought it was helping at first but I think now its causing me issues plus I am trying to get off some medications. My first question is should I wean off? If so what would be an ideal tapering schedule? Any help would be greatly appreciated!
  15. I have been on and off antidepressants since I was 14 and each time I tried I believed myself to be entirely alone in the effort. I am hugely grateful that I've found this group and have already learned so much reading through these forums. I recently gave birth to the most beautiful little girl in the world. When I learned I was pregnant I tried to go off my wellbutrin and lyrica (for ptsd and chronic pain) cold turkey on the advice of my gynocologist. It was a terrible experience. I completely fell apart and lived in 24/7 panic attack mode. They soon put me back on wellbutrin and replaced lyrica with amitryptoline. I felt so ashamed I couldn't "make it" off meds even for the sake of my unborn child. Now I wonder if it wasn't the withdrawal that had made me feel so terrible? After the birth, my GP suggested I alternate one day on, one day off wellbutrin to wtihdraw -- I've now learned that was terrible advice! At the same time I was tapering off the amitryptoline. I'm now off wellbutrin completely but am still on the lowest dose of amytriptoline. I'd deeply appreciate any thoughts on how to best go off that final 25mg dose. Also might anyone know some good alternative treatments for chronic pain, residing mostly in the shoulders, neck and head?
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