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  1. Hello all, I’m glad I found this site, and knowing there is people like me. I’ve been looking on this site to read and gather as much information as I can. Let me start from the beginning. I’m typing this with intense brain fog. In junior high school I was diagnosed with ADD, depression and social anxiety, was put on the drug merry go round. I honestly don’t remember the dates of being on these dugs or the dosage. I do remember being on Lexapro, Paxil, Zoloft, Remeron, Tarzodone, Strattera. I’m not sure when I stopped these drugs with help from the psychiatrist. The next part my memory is better. In 2007 I was having bad anxiety from my job and my up to date drugs then was Klonpin .5 mg tablet 2x a day, Celexa hbr 20 mg tablet 1x in the evening, Concerta 36 mg tablet 1x in the morning. I wasn’t my real self on those drugs. In 2014 I had a back injury, I needed to work without being in so much pain. I think around 2015 I was put on Flexeril 10mg tablet up to 3x a day, Hydrocodone-acetaminophen 5mg-300mg tablet every six hours, Tramadol 50 mg tablet 3x a day, Mobic 7.5 mg tablet 1x a day, Prednisone 20mg tablet 1x a day. All while still taking Celexa, Concerta, and Klonpin. I was a walking zombie. I couldn’t function, simple tasks for me became the most complex to do. I know I wasn’t functioning at “normal” level, but I didn’t know what else to do with being in so much back pain. In 2016 the pain from my back was going into my feet, I was put on Gapapentin 600mg tablet 3x a day. At this time, I was put on more Klonpin cause I reached a tolerance, 1mg tablet 3x a day. During this time I had a surgery scheduled for my back, I told this to my gp, and he literally cut me off from Klonpin. Dr said tapper 2 weeks off Klonpin and your fine, but I knew better. My dad is a drug and alcohol counselor, and brought home papers on Dr. Ashton for benzodiazepines withdrawal. I knew it was going to be tough. This part is a bit hazy to me, I do remember Tapering off of K for months, maybe 4 to 6 months. I forget the exact dosage I did. That was a nightmare, I’m glad I didn’t do it in 2 weeks. I had the brain zaps, hot, rage, restlessness, feeling like jumping out of skin, depression. Definitely, one of the most difficult things I have gone through in my life. The lack of sleep I feel like was the worst part of it all. I decided not go through with the back surgery. For whatever reason I starting to taper off the other drugs. I tapered one at time with a good amount of space before I started my next taper. I forget the dates, but I tapered off of Tramadol, Flexeril, Gabapentin, and Hydrocodone. It was not easy but I did it. I would just go to my room blackout the window and stay there. I was also put on medical marijuana around this time. In 2019 is when I feel like I was coming out of the withdrawals. The only way to describe me before and after the drugs is night and day. I could process information, think clearly. I could feel emotions to a point. I felt really good. I was still on Celexa hbr 20mg 1x in the evening and Concerta 36mg 1x in the morning. At the end of April in 2022 I went on medical leave from my work because of my back, it hurt to stand. So 13 days ago I saw my gp told him I was feeling sedated from the Celexa, he said to take it in the morning. I tried that, and couldn’t sleep, so decided to take it at night to sleep. Last Thursday, I picked up my rx for Celexa. I told the pharmacist the same thing, he said take it in the morning, and let your body get used to it. I did as he said, and I took Celexa 20 hbr 20mg at 7am. I noticed a change and how I was feeling. At exactly 4pm this intense drowsy, dizzy, brain fog hit me. Also, noticed my breathing at this time is slow and shallow. 4pm is when I would normally take Celexa. This intense drowsy, dizzy feeling was only happening at 4pm. I wanted this to go away, so two days ago I decided to take my Celexa at the normal time 4pm. Today at 7am I started feeling that intense drowsy, dizzy, hot, almost feeling shaky, brain fog. It is so difficult to do simple things. I’m having back surgery next month, don’t want to be in this condition when that happens if possible. What do I do? Need help? I’m going to a cvs minute clinic soon, so they can check me out, but I don’t think they will be much help. Any thoughts or advice would be greatly appreciated. Every single one of you guys on here are amazing, don’t ever forget that! If people really knew the struggle we go through, I think they would have more respect for us. Much Love to you all!
  2. Hi All, I've been tentative to post here but thought I'd add my own experience in preparation to begin tapering off Gabapentin after ten years depending on it. I've been on psychiatric medications since age 14 for GAD/MDD, a diagnoses which was later specified as BP II (though I take any diagnosis with heaps of salt given the likelihood of inter-rater bias). From 14-18 was on a smorgasbord of various SSRIs, mood stabilizers, and anti-psychotics. Lots of medication churn because I was young and dumb and too impatient to give anything enough time to work. That is until the first day of college orientation, and waves of crippling anxiety led me to try gabapentin from a family member scrip. It was also around this time that I settled down with one SSRI (Celexa -> Lexapro) at 20mg (subsequently raised to 30mg at age 22). Gabapentin seemed to work, so I brought it up with my psych who agreed to prescribe it (no mention of dependence or withdrawal, obviously) and went on my merry way. Well, no so merry, as my mental health led to me leaving my hard-won spot at a liberal arts college and return home to attend CC while living with my parents. For the next 4 years my anxiety and depression were manageable, if only because I avoided any situations or experiences that I deemed too stressful or emotionally wrought, and I graduated from a state university with a degree in psychology (a major chosen due to my own struggles, and one I deeply regret). I then fell face first into the workforce six months before the coronavirus shut the country down. My tendency to self-isolate became more insidious as I could argue for it on the grounds of public health. My alcohol intake also greatly increased. Thankfully I met a friend through work who needed a new roommate, and moved in with them, though our subsequent romantic entanglement was ill-advised and devastating). Fast-forward to early 2022, and an alcohol/benzo/relationship mediated suicide attempt leads me to first take time off work for outpatient treatment, then quit my well-paying job altogether. I used the time in the outpatient facility to taper off Lexapro and switch onto Wellbutrin. I speed-ran titration, going from 30mg to 0mg in just over a month. My thinking was that since I didn't have work or responsibilities, it was the perfect time to go trough the hell of withdrawal. And honestly? It wasn't bad at all. I know I'm in the minority there, and extremely lucky. Now I'm back living with my parents at 28, working on certificates to change careers, and working retail part-time for a quarter of what I previously made while struggling to pay off debts accrued when I was sure I wouldn't live long enough to see them collected. So all that brings me to today, and my decision to taper off of gabapentin. I've read horror stories here, but I attribute their prevalence to response bias (i.e. folks who had a worse/memorable experience are far more likely to report it than those who had an easier time). That isn't to discredit the hell others have been through, but it does allow me to approach this taper with optimism. Since my last med decoupling was relatively painless, I'm hoping this will be similar. Medications currently taken: 10 years - Gabapentin 600mg 1-2x daily (was on 1200-1800 daily until December 2021) 4 months - Wellbutrin XL 300mg daily I'm planning to start tapering starting next Monday, going down by 10% every two weeks unless withdrawal symptoms become too severe. Any insights, advice, experiences, or kind words would be amazing. Thanks for reading until the end
  3. Have been taking zoloft at 150mg since December 2021 and have decided to go off. Over the last four weeks I tapered and completely discontinued usage on 5/15. I hadn't found this site yet, so I didn't know a slow taper was advised. It all went pretty well until yesterday (5/17), and now I'm feeling some weird effects. Major difficulty concentrating, a weird tingling all over my skin, dizziness, fluctuating vision, and a mild return of the anxiety that put me on the med in the first place. I'm sort of debating whether I should try to reinstate a smaller dose, or just push through since I wasn't on it for terribly long. Current meds: no zoloft (tapered from 150mg since December 2021, last dose 5/15/22 100mg gabapentin daily (tapered from 600 mg since December 2021) 5mg ambien daily (tapered from 10mg in the last two months- have been on this for many many many years, I don't even know how long) Goal is to get completely off all of it. Open to any input/thoughts/etc.
  4. goitalone


    Firstly, a huge thank you to all those responsible for creating, maintaining and helping on this site. THANK YOU. There is great comfort in knowing there is a warm and understanding support system of those in various stages of withdrawal. In 2003 in my early 30s, I was proscribed Sertraline (25mg) by my GP for an anxiety/panic attack related to a stressful event in my personal life. While an anxious child, it had never been suggested to me to see a therapist or consider any type of anti-anxiety or anti-depressant drug (AD). Even after been given the AD, it was not recommended that I see a therapist. I stayed on 25mg until 2005 when work-related stress required me to increase my dosage to 50 mg. The work stress was quickly resolved (a couple of months), I reduced back to 25mg until 2012 when work-related stress again required me to increase my dose back to 50mg. The work-related stress was quickly resolved (a couple of months) and I moved back down to 25mg. In 2017, a work-related stressful event sent me into a tailspin and I had a breakdown. I met with a psychiatrist and my Sertraline was increased from 25mg to 100mg over a short period of time. The work-related event was protracted and after a few months I switched psychiatrists and the new psychiatrist switched me to 50mg of Pristiq and ultimately increased my dose to 150mg after I showed little improvement. In addition to Pristiq the psychiatrist put me on Gabapentin (300mg) to help me sleep and Deplin (15mg) to assist in the effectiveness of the AD. In late 2018, I changed jobs and, given that the work related stress was no longer an issue, in April 2019, I began a slow taper down from 150mg of Pristiq to 12.5mg in June 2020. At the same time, I started on 20mg of Prozac (2 weeks later stopping Pristiq entirely) to help bridge with the ultimate goal of tapering off an AD with a longer half life. I don't recall when I stopped Gabapentin, but sometime between April 2019 and June 2020, I tapered off Gabapentin entirely. In November, I began a month long taper of Deplin, reducing about 25% of the original amount each week. Today (12/9/2020) is my first day not taking any Deplin. Anyway, I am on this journey alongside you all. I have had a lot of challenges along the way, lots of questions too. I am happy to share my experiences and want to provide support wherever I can be of help. Best, goitalone (meaning without ADs)
  5. Hi all ! I am transferring from the surviving Lyrica group so still finding my way around on this site. I started taking pregablin on a low dose of 50mg daily then upped to 100mg to manage fibro pain for 2 months December 2020 -February 2021 before I realised that my body could not tolerate the drug… and began to taper off .. but I needed help and could not manage the pain so stuck at 50mg and slowly began a low taper after finding the support group on FB. I should have been off of this drug ages ago but was struggling with managing the fibro and IBS as well as a bereavement and stressed at work. I took time off and focussed on my health and well being. I restarted my taper and am on 30.6 mg daily. Hoping to get off of this drug this year as I take a small amount of cocodamol and vape CBD oil which helps but can only decrease by 0.2 mg every week/ fortnight as can’t stand the pain/ withdrawals. I would love to hear from you guys for your experiences and helpful advice. thanking you all in advance Fiona
  6. Hi I’m new to this site. I’ve learned so much from this forum already. I had a brief bout with Clonazepan late 2019 and in ignorance CT’d. Tgat led me to glee to a BC Recovery Centre who put me into Nozinan (anti psychotic) abd Gabapentin to help deal with massive Benzo withdrawal. They stabilized me but said zero about coming off the drugs they gave me. I FT’d the Anti Psychitic on the advice of my doctor. Hell ensued. Extreme nerve pain in my teeth. Psychiatrist at leading mental hospital suggested a ramp up on my Gabapentin (I was at 100mg). I went to 1200mg but it did not help my mouth pain so I dropped 600mg in 4 weeks. All approved by my MD. I’m now suffering big time and waiting to stabilize before I resume my taper of 5-10% every 4 or 6 weeks. I expect to taper to about 200 or 300mg before jumping off (usual jump off point for Gabapentin). feeling impatient to get on with it. I’m now completely disillusioned with the doctors and recovery “experts” who seem to fumbled so much in trying to help me. I’m utterly shocked at the level of ignorance. The amount of suffering is indescribable but done doctors just roll their eyes at me now. Never felt more alone in my life until I discovered this site and the Gabapentin Awareness FB page..... anyone relate?
  7. Hello. My story is somewhat strange and I could really use some help and advice. I have been on fluoxetine from age 25 to 38. I did try and taper off it twice during that time and it didn't turn out well. It was originally prescribed for anxiety by a PCP. Right away I noticed muscle spasms, tics and twitches, and brain zaps but doctor said this wasn't a big deal. It made me feel better to be on it, so I stayed on it. About 4 years ago I had a bad period of depression and suicidal thoughts while on this drug. It was very unlike me as I had never really been a depressed person, mainly an anxious person. I started drinking too much wine to cope. Then dose was raised from 20-40mg. Over the last few years I noticed I often felt "keyed up" and aggravated, which I thought was anxiety, but didn't really feel like regular anxiety. I had to do a lot of physical exercise to exhaust myself and relieve the feeling. Then I started having parathesia and muscle pain, which was diagnosed as fibromyalgia. Then I developed what seemed to be a movement disorder starting in 2018? Tremors, muscle weakness, coordination problems, and being shaky and wobbly all the time. I suspected the prozac and planned to get off of it. In June 2019 I had a vaccine reaction, was prescribed prednisone 20mg tablets for 3 days, and had a horrible reaction to it which sent me to ER with hallucinations and many other symptoms including worse tremors and balance issues and hyperarousal. I have been extremely ill ever since. After the prednisone episode, due to continuing symptoms I wanted off the prozac too, so was tapered over a month. I originally did ok until I hit the 1-2 month mark. The akathesia that started after prednisone (I'm not sure if that is what I have. I can hold still but feel jittery inside, shaky inside, with constant internal tremors all over) got worse, tremors inside and out are worse, brain zaps, fatigue, parkinsonism and possible dystonia in my hands, trouble walking, migraines, smaller pupils, nausea, etc. I feel like I am going through a horrible withdrawal, and I don't know what to do. I have been seeing neurologists to rule out diseases and have had MRI, emg, nerve conduction study, etc. (which have come back normal.) Have had extensive bloodwork. Doctors blame the drugs. Psychiatrist wanted to put me on Gabapentin but I have been holding off because I am worried about side effects and withdrawal from that as well. I have migraine and am very sensitive to prescriptions. The doctors I am seeing are at Mayo clinic and appts are a month or more apart. I feel like I am not getting the treatment I need. I am also having some neck and spine issues on top of this which could be causing some of the numbness, but MRI'S aren't showing anything that could cause all the coordination problems I am having. At this point I am having trouble walking and functioning. It is terrifying. I am extremely stiff. Everything cramps up when I try to do things. Especially if I tense up even a little. I am extremely hyperaroused. Everything bothers me, sounds, lights, etc. I have no stress tolerance, no cold tolerance. I am fatigued and jittery at the same time. I have insomnia, poor appetite and I keep losing weight. I hurt all over. I am tingly all over. I have blurred vision (had eyes checked too). My hands and arms feel disconnected from my body. The tremors just keep getting worse. So... I do not know what to do here. The withdrawal is horrible. The tremors are getting worse in my face, tongue, eyes and neck. I am worried what they will progress to. I am scared to go back on prozac, but what else can I do? If I go back on, how much do I start with? Worried this is just going to keep getting worse, but since the prozac was probably causing or exacerbating a movement disorder, should I go back on? Also, doctors don't seem to know what to do with me and I'm worried about taking the wrong treatment. Should I stay off prozac and take the Gabapentin? Thank you for reading this and for any help you can give. I am only 38, with a young son. I am going through hell and very scared.
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