Jump to content

Search the Community

Showing results for tags 'lyrica'.

  • Search By Tags

    Type tags separated by commas.
  • Search By Author

Content Type


Forums

  • Support
    • Read This First
    • Introductions and updates
    • Success stories: Recovery from psychiatric drug withdrawal
    • Tapering
    • Symptoms and self-care
    • Finding meaning
  • Members only
  • Current events
    • Events, actions, controversies
    • In the media
    • From journals and scientific sources

Find results in...

Find results that contain...


Date Created

  • Start

    End


Last Updated

  • Start

    End


Filter by number of...

  1. Hi there, Been using antidepressants for nearly 20 years. Started with Prozac, then citalopram, escitalopram, Zoloft, Cymbalta, amitriptyline, Remeron, tried Lyrica and some others as well. Nice years ago I tried to stop cold turkey (I was taking 20 mg citralopram back then) and had the worst year of my life after that decision. Had conflicts with everyone, had terrible back pain, living was Hell. Now I'm back a tapering, because at some point it was too much: I was drinking alcohol, drinking coffee, needed 20 mg melatonin to get asleep, took L-theanine, Remeron that knocked me off, 20 mg amitriptyline and 60 mg Cymbalta. I had ED from Remeron and the others, and felt really bad. Enough was enough. So I changed things. In the last month, I eliminated everything except for the Cymbalta. I stopped alcohol, caffeine, amitriptyline, Remeron, L-theanine, and melatonin. And I started tapering off Cymbalta, going down 3 mg each week for 10 weeks, which is my objective, to be at 30 mg for winter and maybe try to taper off again next Spring. So far it's difficult. Anxiety is going through the roof, sleep is only marginally better, feel anger all the time. I take magnesium, D3 and K2 to help me, but it only helps a bit. Is my tapering strategy too fast? Any advice? Should I keep going or stabilize first, and any way to manage anxiety? Any supplement that could help? I think I was vitamin depleted from so many years of AD... Thanks
  2. Hi.. My story is, “briefly“, that I have within the past 3 years, been on... so. Much. Crap. And I am currently in withdrawal torture from hell and have been for years now. In the beginning of 2019, I had a very bad stress / anxiety reaction, and I was quickly put on medication. Benzodiazepines for two months along with starting Zoloft. Quit Benzos cold turkey (doctor’s orders) and then Zoloft was upped to 125 mg (in hindsight I am pretty sure it was because I reacted strongly to Benzo quitting). I felt completely horrible on Zoloft and tapered off over the course of 2.5 months (doctor’s orders). Then I was in complete hell and couldn’t sleep so after being “clean” for one month, I was put on 7.5 mg. Mirtazapine. I could FINALLY sleep and it did seem to help my anxiety a bit? I still had a lot of strange horrendous symptoms though but I don’t know if that was from Mirtazapine or SSRI withdrawal ...? Can a dosis of 7.5 mg. Mirtazapine cancel out severe SSRI withdrawal? Anyway - So in 2020 I was on Mirtazapine up and down weekly between 7.5 and smaller doses (doctor said I could just adjust from day to day). I ended up just completely wrecked and just lied in bed in a haze.. so they took me off Mirtazapine and started me on 60 mg. Duloxetine plus Promethazine for sleep. Total haze still, awful.. So off it again after 7 months - tapered from 60 mg. Duloxetine to 0 over 4 weeks. Then felt .... HORRIBLE (!!!) and started self medicating with Benzodiazepines while I waited for withdrawal to end for two months- until my doctor found out and said stop that. Then I was put on Pregabalin and Escitalopram 10 mg. from March 2021 until I wanted to quit (because I was a complete foggy hazy wreck on that as well). Stopped Pregabalin in May and Escitalopram in July (tapered from 10 mg. to 0 over 4 weeks). In September I tried to take a tiny dose of Escitalopram to ease the horrendous withdrawal symptoms .. but that didn’t work and I felt worse. So I just thought I’d push through this indescribable nightmare... in December however I took 1/2 pill of Benzodiazepine twice because it was so unbearable. So.. now it is 9 months since I stopped Escitalopram (/6 months since I tried a small dose for a week) and 4 months since Benzodiazepines.. I can’t describe how much of a hell it has been AND STILL IS 😔 I have constantly tried to tell myself that it WILL and MUST get better soon. And while some symptoms have gotten better, I have almost no life by now. I hardly see anyone because I just can’t due to symptoms, I hardly exercise or leave my apartment. Some days, like today, it is almost constant torture. A week ago I tried Melatonin (4.5 mg. over two days) and then I’ve tried some Valerian root pills.. somehow it’s gotten worse now. So.......... bottom line: I’m thinking about starting Mirtazapine just to ease the withdrawal symptoms and to make sure I sleep better. Right now no matter how much I sleep, I am never rested and feel like I haven’t slept for days everyday. But I am BEYOND scared that it will make everything worse, and then I have yet another drug to get free from. So yeah.. does anyone know if Mirtazapine can help SSRI withdrawal symptoms? I honestly don’t know what to do. Thanks and sorry about the long message. I feel pretty desperate. 😔 Best Louise
  3. Original topic title: I survived Generalized anxiety disorder to a very intense degree as well as Major depressive disorder in a very short amount of time, I basically dropped Pregabalin, and clonazepam Now I only have to drop Pristiq( please help me Hey How is this community? I was researching and I found you all. I hope you all are well and doing great. I suffered from Anxiety since I was around 18 years and it would come and go in waves. I never really resorted to Psychotropic drugs. Most of the time my anxiety would spotaneously resolve. I would always stay very active with exercise and swimming and sports. I always had great family and friend support and my disorder never got out of hand. I had bouts of recreational drug use and abuse during my college years but never was an addict( I used MDMA and cocaine). However even with my anxiety disorder I never took this SSRI/SNRI garbage and I suffered from anxiety for 13 years. Essentially it is Garbage. It might help to a degree with anxiety or depression. But I see the damage it does to the beautiful human body. My anxiety got out of control starting last year and it kept getting more intense. I never dealt with anxiety at this level. It was something surreal. I was just suprised. I always had anxiety. But this was something out of this world. The anxiety kept getting more intense, the spiraling thoughts, then the anxiety took over my body, mind and soul. I was rendered incapacitated. I started to develop depression and also suicidal thoughts. I never dealt with something of this magnitude. It was truly out of this world. I had to take some time from work. I developed a plan to recover. I read self help books. I had family support. I started to exercise intensively and I got on Psychotropic drugs. This took place this year the worst of it from february 2022 to May 2022. I am essentially recovered now August 2022. Lyrica, Clonazepam and Pristiq. My dosage of Lyrica was 400 mg a day at one point. Eventually I developed a tolerance to the Lyrica and dropped it ; I tapered it and I got off it without a problem. I also had this weird intuition in my gut. Its very unusual. Its something related to God or a higher power for certain( I am a Christian). Something just told me to drop the Lyrica and I tapered it over a week or two and got off without an issue. I also have a strong brain body connection. I have dealt with anxiety. I also do not always view my anxiety as a bad thing. Even though its force is overwhelming at times I learned to rest in it and accept it and allow the energy to pass. Anxiety is a form of energy. Thanks to God, a higher power or whatever miracle. I survived GAD and Major depressive disorder very rapidly this year probably over 2-3 months. It was very intense but I survived. I now continue to experience anxiety but instead of intense fear, its just amplified energy. My panic attacks dissapeared. I had panic attacks, phobias, and agoraphobia I Survived. Anyways now I just have one beast to conquer. I put my faith in this community to help. I know I can survive this too. This a mere part of the process. I have not been on the SNRI for a long time. I wish I never started. Since February to now August I gained roughly 20 pounds So I only have been on pristiq for 6 months . I went from a nice basically good looking 30 year old male who was 6'2 very fit and 215 pounds to a 30 year old male who now has 235-240 pounds. This was all due to the pristiq and lyrica and I am happy I dropped Lyrica. On saturday 8.6.2022 I dropped my Pristiq from 100 mg to 75 mg. So far the withdrawal has not been too intense. I only have been on Pristiq for 6 months. I kind of want to do a faster taper. Any advice? I have confidence in God, myself, my body, my mind that I will drop this ****. I want to do it safely but if possible a bit quickier. The intuition in my body or some kind of force told me start this now. Now is the time. Now you will get off this crap. I think my Body can do this. I know I can. I am staying positive. The power within. All of us have it. I know some of your journeys have been long. So has mine with anxiety, it has been 13 years of dealing with it. I mostly stuck to exercise and supplements and family and friend support to deal with it and always was successful. This year I started to take this Pristiq crap and maybe it helped maybe it didn't. I think time did. According to most research Depressive episodes and anxiety episode last a year and dissolve naturally. I am standing now at Pristiq 75 mg. I am on clonazepam .25 mg plan on dropping it over the next 2 weeks. Basically have no benzo withdrawal or any issues with that and a high level of discipline and know I will drop it. What is the best and safest way to taper Pristiq 75 mg? with the least amount of damage done? I dropped to this dose on Saturday from 100 mg. Basically I am taking one 25 mg extended release tablet and one 50 mg extended release tablet. I have been on Pristiq only 6 months. It was a terrible choice. I will never go on any SSRI or SNRI after this. I also do not like the feeling I lived till 30 years old something without pills( supplements okay) but its just crap. They also lie. Pristiq is addictive. They made the chemical like that on purpose. The side effects are horrendous and I am having a doubt in my mind if it truly helps anxiety. It just numbs you out. Maybe helpful to a degree but its just B/S.
  4. Hi I am new to this forum and this is my first post . I am currently on 30mg mirtazapine and 200mg of pregablin , I have been on these mess for about 3 to 4 months . I have just cut my mirtazapine from 30mg to 15mg and in the space of 4 days I have have horrible side effects , anxiety through the roof , shaking , lack of appetite poor sleep crying spells and the general feeling of feeling crap . The reason I have started to withdraw from the mirtazapine is that after 3 months I feel no benefit only get awfull side effects . No help with my anxiety and depression if anything it's made me more depressed . I have gone through withdrawing from Effexor and that was really tough , however just the drop for a few days of the mirtazapine has left me crushed , my doctor told me that mirtazapine was a easy drug to withdraw from , but after 4 days it has left me house bound . Has anyone got any idea on how I get through this or any experience in mirtazapine withdrawals
  5. Is it possible that I have permanent brain damage from an anti-depressant. I came of Zispin 12 years ago cold turkey and am still suffering withdraw symptoms that come and go. The symptoms are so severe at this moment that I think I'm losing my mind. I am keeping two words in mind 'Courage & Dignity". I'm going through this so long now that I don't talk about it any more to the people in my life. However, its getting harder to deal with because I'm getting older (60) and my physical health is poor. Two years ago I was told I had terminal cancer I was scared but also relived to know I was getting free of this withdrawal problem. The doctor then decided to operate, she told me I had less than a twenty percent chance of surviving. Well, I got free of cancer, I had my lung removed (and my quality of life) and everybody said I was a miracle. I don't feel like a miracle, I feel like a pathetic mess. Can anyone give me a little hope please.
  6. Hi everyone! I'm very pleased to find this forum! Congratulations for the initiative! It´s shocking how many people are suffering from withdrawn. : ( Last year I became absolutely miserable after trying taper Seroquel and start Lyrica. My anxiety is out of control. I haven't slept in months. I feel numbness in my feet and hands. I lost more than half of my hair. The tinnitus is unbearable. My memory and cognition are very bad. And I'm sensitive to everything...food, supplements, light, sound... Also, I developed some movement disorders like restless legs and akathisia. One of the worst symptoms is crying and screaming that lasts for hours. Could it be psychosis? All the doctors keep saying I have hypochondria. But I know these symptoms are real. Has anyone else received this diagnosis? I'm from Portugal and I'll do my best to be able to communicate in English! I'd like to take this opportunity to wish everyone all the best and say that I´m ready to learn whatever is necessary. I´m Chemical Bachelor so I understand a little about drugs but absolutely nothing about the human body. My first question is: what is the proper dose of seroquel should i take? I decided to start slowly with 0.5mg. It´s enougth? Take care everyone. (And please let me know if my English is not understandable.)
  7. Please i kindly ask you to advice. After caesarian delivery I got Lyrica 100mg for pain. I was on it 1,5 year. Now I wanted to withdraw and all hell broke loose. I have obsessive thoughts about harming myself and others (never were there before), intrusive thoughs of someone running with the knife, thoughts /urges to kill myself or other, hallucinations when I Close my eyes in the bad about bad things (yesterday I had in my dream a cancer) already for two months, and my doctor thinks this is Depression and wants to up Lyrica and give some antidepresant to it. I do not know what to do. I do not want medicaments, but I am afraid I might lose my mind and really hurt someone. What is this for a medication? How can this do to me? I was always normal. I have Little chicldren, I am single mom. I want only to die. Please tell me what to do, or I will go crazy. The best possibility would be only to die. How can I come from this away? I am afraid my brain is totally destroyed.
  8. Hey Warriors! I’m approaching 3 months tapering off Pregabalin, reducing 1-2mg/day using water titration. Today marks -80mg, or 520mg down from 600mg/day. And the day I found this forum. Feeling constant sadness most days, with some energy and a few happy moments here and there. Sleep has been erratic, it affects me badly to be so tired all the time. I’ve got appointments next week: - Julia Ross Nutritional Consultant for Amino acid therapy - New GP To get referral to Psychiatrist Three other meds to come off after this. The order I’m hoping to follow is: 1. Pregabalin 2. Lamotrigine 3. Fluoxetine 4. Moclobemide I’d love to be blessed with a quick and easy tapering journey but I know it’s not always possible. But I’ll do my best to have the best possible outcome. Thank you for sharing in the good and the challenging times xxx
  9. My name is Liza and I’m from Canada. I am here because the Lyrica support group I am part of is shutting down. I was put on Lyrica last March 2021 for burning in my legs, but was started at 150mg and increased to 375mg in less than a month. The side effects included severely burning legs, insomnia, and anxiety. A month after I started taking it, I realize it was causing these problems and not some unknown disease. I began tapering and taped too fast to start. the withdrawal caused burning legs, severe insomnia, urinary urgency, anxiety, angry, depression. In early November 2021, I was started to Seroquel to help with the insomnia, but it’s caused me to hyperventilate and then on Dec 28th, i was diagnosed with a DVT - Blood clot. i am off the seroquel, but am holding the Lyrica at 85mg because the recovery from the blood clot has been pretty awful. Since the clot, my anxiety has been quite severe and I feel like something terrible is going to happen, especially when o get a new pain. And FYI I have Ehlers Danlos Syndrome.
  10. I do understand that there is some valuable info and help here,I do but atm I’m so disoriented that I can’t find any help. I’m also very very emotionally sensitive and I know nobody means to be offensive but I take it so wrong and then I’m that much deeper in that black hole. I don’t mean at all to leave permanently but I tried to drop on my dosage 2 wks ago and the pain is so horrific that I couldn’t do it,so I was on 50’mg 2xday of Preg then I tried to stop to 25mg 3xday but couldn’t do it and even tho I’m taking 25mg 4xday I’m now on top of the pain and waiting to stabilize in now in withdrawal like symptoms stil from trying to drop and that dreaded death warmed over feeling is back. So I’m just gona sit and stabilize then drop one of my dosage. I wished I knew what vitamins or natural supplements I could use with the meds I’m on but I get so confused when I try to find sumin to help with the nerve pain that I just give up,especially early on in my dosage drop. But anyways I’m sure Iv talked your ear off. I so appreciate your care and concern I truelly do. Thank you so much for your kind words. Gabanoids
  11. Six years ago I was desperate to find relief from the debilitating pain I was experiencing from having had shingles-Postherpetic neuralgia. Even though I had worked in healthcare for 25 years I was very naive when it came to taking meds. I was a hospital social worker. My desperation and naïveté resulted in my ending up on Lyrica. The side effects have been many with the worst for me being tremendous weight gain.
  12. Quilter1011

    Quilter1011

    Hello all! I'm popping over from the Lyrica Survivors group on FB, that's taking a bit of a pause. I am happy to report that I'm almost finished getting off 4 meds over the course of about 4 yrs! Lyrica is my last one and I should be done next week after a 14 mth long taper. Before that, it took me about 18 mths to taper off a benzo. And before that, I came off Gabapentin and Flexeril. It's been such a long road with all the ups and downs of withdrawal symptoms. It's been a very emotional journey. I will work on my signature but need to figure out all the dates. Thanks for the inclusion.
  13. Hello to you all, I came over from the Survivors group on FB. I was on Pregabalin for about 16 years, the side effects from it worsened after being on it less that one year but I thought at the time it was just my conditions, each year I became sicker and food intolerances became part if my norm, so many other things were going on and over the years I had been extremely ill to the pint when I thought was on my way out. It was pretty scary. I found Amy's group on FB and learned so much about why I was so ill, reading other people's experiences similar to mine. I then took things into my own hands and cut my dose in half, nit a good idea because for about 4 or 5 months I was in total agony but I was determined to put up with it to get this stuff put if my system, after that time I then reduced by 100mgs every two months, but my food intolerances we still getting worse. In fact for the last 3 months on it I could nit eat without being very ill and so when I got to my last 100, after 3 months I stopped it there. Withdrawal is not pleasant but irs worth it to feel the way I am now. There were a lot of serious side effects but too much to go into here. Now most of the side effects have gone and I can eat food quite happily without thinking how sick I might be. I am so much better from discontinuing with Pregabalin and will never take that or it's substitutes again. My body is thanking me for taking note of good advice. I am so much happier without it. I am living again.
  14. Hello all! I have been reading a lot on this website. I am a 43 year old woman from the Netherlands. Because of face ache after a rootcanal at the dentist that caused extreme pains for over a year they gave me lyrica and amitriptyline. 450 mg lyrica and 50 mg amitriptyline was built up within a year. Because of many bad side effects I had to taper my meds. In 2017, 29 th july I tapered 25 mg lyrica. Everything was fine. My dose was at that time 100 mg lyrica and 25 mg amitriptyline. When I tapered my last 25 mg tablet in september 2017 everything went wrong! I got extreme muscle pains in my arms and legs and sometimes just all over! My pain specialist said that I just had to wait and be patient and that the pains would disappear. So I waited. My pains improved a tiny bit. But not much. 9 th february 2018 I felt so dizzy. I was dizzy for weeks. When I forgot a 25 mg pil of lyrica the dizzyness went away. I jumpt to the conclusion that the dizzyness came from the lyrica. So I decided to taper from 100 mg lyrica to 75 mg lyrica at that day. (Now I doubt if it was from the lyrica, maybe the dizzyness was withdrawal from the amitriptyline.) From then it became even worse. I have musclepain and nerverpain everywhere especially in my arms and legs. Sometimes I am burning all over or just in my torso. I cry a lot. I can hardly function and suffer a lot of pain every day. 6 weeks ago I spoke to my pain specialist. She wanted me to wait for improvements and did not like to updose. But the daily pain is still horrible. Some other symptoms have improved: Insomnia (from hardly any sleep to a few bad nights a week) Tinitus (only very mild every now and then) being irritated (gone) fear (only very mild every now and then) tingling (only mild every now and then) electric feeling in my head (gone) Now I doubt what to do. Should I wait (mayby a few years) and hope everything settles down? Or do a small reinstatement on the lyrica? Maybe a small reinstatement on the amitriptyline? (I doubt that because I am allready totally off the med since 22 september 2017) I cannot make up my mind and don't know what the best option would be. So I hope you can give me some advice.
  15. Current drugs: - 2012-present citalopram, currently steady at 25mg - 2020 lyrica: max 4mg/day. started tapering after 2 weeks and having worse withdrawal than from 225mg This case history must be very unusal given the low dose and short time. Has anyone heard of a similar case? Also unusual is the bad method I'm stuck with to calculate doses. Recent start and tapering of lyrica ----------------------------------- I started a microdose of lyrica January 1 2020, thinking I could test side effects and stop if they were bad. Worked up to a maximum of about 4mg/day. After 2 weeks I decided it wasn't for mej. Reduced to 70% of max dose and held 4 days but got serious withdrawal symptoms. I thought an increase might help so went up to 80% of my maximum for 2 days, symptoms got MUCH worse, then down to 75% (1 day) and 65%. I thought lyrica and citalopram might be interacting and that tapering citalopram might be easier, so I tried 20% less (25->20mg) one day. I got the worst anxiety of my life and haven't changed it again. Following that I stayed on 65% of my lyrica dose for 2 weeks while I stabilised. Now on day 5 down from 65% to 60% which has not been bad. So, tapering slowly seems best. BUT I cannot measure doses accurately because I'm dividing powder with a knife on a plate (see below). Would switch to liquid but I can only guess how much I'm taking in a day. I'd be grateful for any advice on what I should do! Or information about similar low-dose, short-term cases, or how to handle inaccurate doses. I've been advised by some to go cold turkey given the small dose and short time, and that might have been ok when I started tapering after 2 weeks, but now I've been on it 6 weeks total. I could just about handle the initial 30% drop from my maximum dose but I could not handle what happened when I raised it 10%, then lowered it again. Maybe my case will be useful to someone. If nothing else it shows you can get hooked on a very small dose. The rest of this post goes into background a little and a lot of detail about what I'm doing now, so may be of less general interest. Prior drug history ------------------ - before 2010: prozac then paroxetine then seroquel. never any real trouble getting off them. Just some anxiety/irritability. - 2012 lyrica (only) for 11 days max 225mg/day then tapered off over 5 days with bad withdrawal symptoms for about a week - 2012 mirtazapine for a couple of months, after the lyrica - 2012-present citalopram, starting near the end of the mirtazapine Why is withdrawal worse in 2020 than on a much bigger dose in 2012? ------------------------------------------------------------------- It's hard to compare the two but the current withdrawal seemed considerably worse even before I raised the dose again and made it much worse. Some ideas I had: - I'm also on citalopram now. - Use or withdrawal from lyrica in 2012 primed/changed something. - I got lucky when i went off quickly in 2012, just in time (tapering after 11 days of using it) and just fast enough (5 tapered doses) to escape worse withdrawal. - The down/up dose in first week or withdrawal made it much worse. Also changing citalopram dose for 1 day seemed clearly VERY bad. Switching to liquid ------------------- Day 1 of last taper (65->60%) was partly with liquid I got from a compounding pharmacy. I replaced about 23% of the powder with liquid. Symptoms from underdosing have been bad but less bad than raising the dose, so I aimed low, and took what should have been roughly 45% less liquid than needed (using my rough estimate at equivalance - see dosing method below for details). It was much too strong. I got more sedated than I've ever been on lyrica, lots of muscle twitches, then somewhat agitated when it wore off. I switched back to all-powder doses, and decreased the evening dose by 1/3 to compensate for the morning overdose, and from the next day remained 5% of max dose lower. This has gone surprisingly well despite the updose then decrease. I'm tempted to stay on the powder, but I can't divide into smaller amounts than 1/256 of a capsule with any accuracy at all. That means as I decrease the dose, the reduction step size will get bigger. The most recent step down (65->60%) was about 7.5% of my current dose, but that will become 15% of current dose given a few more steps etc. Also, if a shirtsleeve brushes my reference doses away I'm sunk - I'll have little idea how much to take. But if I switch to liquid, I have to guess how much to take, and try to correct for symptoms, and gradually replace powder with liquid. After the first drop in dose (100% to 70%) it seemed to take a few days for the withdrawal to really get going. If that's still true, adjusting the liquid dose up and down could easily get out of hand and be less gentle than the later, and proportionally bigger, powder decreases. So neither option is good. Powder dosing method (details) ------------------------------ The method I use to dose is awful: I divide capsule's powder into two piles of 1/2, then divide each pile agqin and again. Currently I take 1/64 + 1/128th of a capsule every morning and again at night. This has limited accuracy of course, but it gets worse; there is residue left on the plate after the division. The amount of residue has changed over time since I switched from a big knife to a razor blade, and I haven't been consistent about how much residue I leave. At one point I thought measurements would be more consistent if I kept "reference" piles of each key size: 1/32, 1/64 and 1/128. But I realise now the references are not accurate, and I'm basically eyeballing the new piles now to match the reference ones. To estimate how much my 1/128 actually is, I started a new pill, and divided it with as little residue as possible (using a razor blade, which doesn't leave much at allif you're careful). To my amazement I seem to have left about 50% of the pill as residue. Separately I began sweeping residue from another pill into a pile, which I estimated was about 30% of the pill. Another idea would be to weigh my 1/64th, but I suspect it's too little to measure accurately with any scale I can get my hands on. Potency of my powder -------------------- To make matters even worse, the capsules I'm using expired 4.5 years ago. From a short look on the net and talking with a pharmacist this might not be big deal. But also the powder sits on a plate being slowly divided for up to 2 weeks before I take it, so it may degrade somewhat.
  16. Hi Everyone I apologize for so much information at once I'm too sick to do a full brand new post so I have copied and pasted posts from support groups on facebook I was directed here too for help. I am in desperate need to know if I should reinstate any of my medications or if it is too risky. I was wondering if I should try taking the lyrica again then do a proper taper, the psychiatrist put me on for my anxiety I never had pain before I took it until he took me off it too fast I first started getting the muscles contractions and horrible muscle cramp pain and had my first uncontrollable muscle movement episode of my face after the lyrica was stopped with only a 4 day taper which I did not know was too quickly I had been on it for 5 weeks. I think the lyrica stopped so suddenly started it all but then the escitalopram and trazadone tapers and getting off them too quickly just made everything worse. I have been so desparate in my thinking to see if there is a way to reverse this what I think may be dystonia that I have been thinking should I try to go back onto the lyrica to see if this disappears and then do a really slow proper taper but then I think it is so risky what if I really mess myself up worse but living with this and with it only being so soon 4.5 months and I have so much pain already I already cannot handle it I cannot imagine handling it any worse. I'm so afraid and do not know what to do I'm afraid that this will not go away with time if it is the dystonia. What does anyone think do you think trying lyrica again would be worth the risk? it is so hard to know what to do considering I had 3 too fast drug tapers. Does anyone think this would be too risky? I'm sure I have developed dystonia more and more everyday it scares me. I can feel my waist and hips turning to the left and I have less control of my legs then normal and the feel wobbly or like spaghetti or elasticy I don't know how to describe it and my neck and head want to turn to the left I feel like a force is pushing it to the left. Also I feel the muscles in my face moving mainly wanting to pull down especially in my jaw area and my neck and face muscles get tight. I also have had 3 times where I have had uncontrollable movements of my face that lasted for hours the first one was the worst that happened right after I was stopped on the lyrica in the hospital that included my eyes, tongue protruding and mouth, pretty much my whole face and my neck and right arm twisting to the left the nurse told me it was anxiety and to calm down I did not believe her that it was anxiety I have had anxiety long enough to know it does not do that. Since then I have had 2 more episodes that involved then same area's but not my tongue. I'm very scared of my future and no doctors will say the drugs have anything to do with it. Also my hands, wrists and lower arms get stiff throughout most of the day. My muscles get unbearably painful a very very deep bone consistent aching pain. I was able to move around today more and do some things in the kitchen and I did notice the pain lessened while I was more active. This is when I really noticed though I'm definitely dealing with the twisting of my right side of my body to the left. It makes me walk around like I look intoxicated. I really respect all you peoples opinions and knowledge and have some questions to ask if you would not mind. I was wondering could it get better or go away and just be a part of withdrawals or once this happens do you have it for life? Have been off antidepressants for for 3 to 4.5 months (too fast tapers) had been on poly drugged for 1.5 years then before that on citalopram for 10 years. A huge mess I was fine for the first 10 years developed insomnia and my anti was switched to trazadone and when that did not work the poly drugging happened for 1.5 years (I was a zombie and almost entirely non function able still am but no longer a zombie but I am extremely sick now riddled with unlivable pain still suffer from insomnia and take unfortunately 7.5mg zopiclone and 1mg clonazepam a day) but these last few days my muscle pain, uncontrollable cramping, stiffness, tightness in my head, face, throat, neck, right arm/hand, shoulder and sometimes my left arm/hand and also episodes of uncontrollable muscle movements of my face is so unbearable lately I cannot handle it any longer. Today I have been at my wits end desperately not thinking I can go on any longer. I am so sick fluish this last few months also I'm getting to the point the pain in intolerable another minute it is almost 24/7 I have only had the muscle pain or tightness cramping go away for maybe a half hour a few times in the last month. It is too much. I was so sick before all this for the last 1,5 years that I am so weak I cannot this week get myself to hardly eat and bathe the pain is so intense I want to it all to end. No one can help me. I need to desperately no what to do. The pain is like you have if you get a severe cramp or charlie horse for instance this morning it has been a constant charliehorse in my lower right arm and hand, right shoulder, neck, face and head. It is so painful I only could sleep for a couple hours last night. I even took a baclofen (which I only have taken maybe 6 times in the last 3 months when I feel I can no longer take the pain another minute), 2 advils, clonazepam and all my vitamins. I just do not know how to go on any longer. I have no support group at home. My husband is my only person I have and he along with my doctor think my pain is psychosomatic. My husband cannot tolerate my complaining or crying or making any sounds of or about my pain. I don't know how to make the pain stop or live with it anymore so it is tolerable. I cannot handle the suffering anymore I literally am desperate for help so badly. Since lyrica was one of the last meds I was on that the pain started after the psychiatrist took me off with only a 4 day taper and that is when the nerve and muscle cramping, movements and severe head pain started I do not know if I should try to reinstate after being off it for 4.5 months but I think it is too risky but then again I'm desperate for this muscle pain relief i am so afraid I have the early stages of dystonia too. I have had episodes of uncontrollable muscle movements of my face, neck and right arm. I am so afraid of that. But this muscle pain is so intense it is unimaginable I really need to numb this pain somehow. The severe head pain migraine burning so painful 24/7 and the piercing tinnitus. Even the numbness, tingling burning nerve pain allover but the worst is the muscle pain it is so severe. Whenever I try to type on the computer this all makes my pain levels go up so much worse but I need the help so badly, emotional support. I am desperate I feel for my sanity and my life, I need knowledge so bad. I want to do everything right now. I want to get better if there is any chance. I need something to keep me strong to endure this it feels like I am being tortured daily and have to put up with it because no one will listen to me. I wish I would have been thinking clearly enough to search out support groups before I let him put me on these meds or atleast before they were stopped or the too quick tapers. I cannot stop thinking about wanting to turn back time. I hope my life is not ruined forever unless I can get this pain under a tolerable level and I pray to god I do not have dystonia but I fear I do from having joined a dystonia support group on here it sounds all to familiar. I do not know how I can make it through life with no support, knowing my doctor is not listening to me and my husband is not trying to help get me better just not wanting me to bother him with my pain or worries, be silent. How do I survive this? I cannot hardly look after myself being so sick, I have nowhere to go. Does anyone else that had been off antidepressants for as around long as I have 4.5 months or longer experience this muscle cramping, severe pain? Please explain where in your body and the level of pain? Also any uncontrollable muscle movements? What do you take besides magnesium for the pain? Does anyone ever recover from antidepressants withdrawals/pain after stopping them too quickly after being on antidepressants for 12 years? Brief History Born August 1, 1970. Female 48 years old. At time of illness Tracy had been a National Lifeguard Instructor Trainer and Lifesaving Society Instructor Trainer with a career as an Aquatic Supervisor at an indoor town pool for 5 years. Training and certifying Lifeguard/Swimming Instructors, supervising daily duties of lifeguards/Instructors/front deck staff as well as implementing and maintaining programming, scheduling, operational procedures and guidelines. Before that Tracy had owned and operated her own Day Spa for 10 years as well as worked in advertising. She graduated from college in 1993 in Graphic Design/Advertising Art. Tracy fell ill from insomnia in September of 2018 she had been just diagnosed with severe sleep apnea and had just started cpap therapy but found the treatment invasive and could not tolerate the cpap treatment enough to fall asleep with the cpap machine. She had been lead to believe she would die in her sleep if she did not use her cpap machine and became fearful and so persistent in always using her cpap machine while sleeping that her intolerance to the therapy resulted in severe insomnia. Citalopram 20 mg/day and 1mg Clonazepam as needed for 10 years prior to her insomnia. Clonazepam was rarely needed. Dec. 14, 2018 Citalopram 20 mg/day was changed to Trazodone 100mg/day. Clonazepam 1mg/twice a day. Mental Health declined due to sleep deprivation, becoming emotionally weak and sensitive, frequent crying, anxiety and ability to function daily declined. Was no longer able to work due to 3 months of insomnia and mental health decline after medication change. Feb. 9 -16, 2019 Psychiatric Ward Sertraline 20mg/day was tried but discontinued due to side effects. 20 mg/day Citalopram was added to the Trazodone 100mg/day. Clonazepam 1mg/ twice a day. Was very ill on the combination. After Feb. 16 – June, 2019 Citalopram 20 mg was discontinued and Trazodone 100mg was tapered and stopped. Clonazepam was tapered to .5mg then switched to Valium 10mg and tapered to 2mg, Buspirone 10mg was added then stopped. By this time insomnia had become extremely severe and ability to function daily on the most basic level was lost. Anxiety was severe and dehabilitating. June 1 - August 9, 2019 Psychiatric Ward Quetiapine 100mg/day added. Citalopram 50mg/day started then after 5 weeks discontinued due to intolerable side effects and switched to Mirtazapine 45mg/day, Fluoxetine 20mg/day, Zopiclone 7.5 mg, Clonazepam .5mg/twice a day. Discharged feeling very drugged. Was able to sleep with cpap machine 7-8 hours/night(every 24 hours) Had regained ability to keep up hygiene and function on a basic level. Mentally was very out of it. Aug. 9/2019 – Nov. 12, 2019 Due to feeling so drugged from Sept. 9/2019 Fluoxetine 20mg was tapered and stopped on Oct. 2/2019. Clonazepam was increased to 1mg/twice a day. Oct. 14 – Oct. 19/2019 felt the best that I ever had felt since falling ill in fall of 2018 but my mind and body felt very weak and fragile but then for no known reason I went past the feeling better stage and started to decline back into having a hard time functioning mentally and physically but could still do daily functioning tasks. I was able to keep good daily hygiene, cook supper, keep the dishes washed, take on a small cleaning task every day for example wash off a coffee table or do wash a load of clothes. Nov. 12/2019 – Dec. 12/2019 Hospital Was admitted at routine doctors appointment to the hospital since I had declined from starting to feel better and I continued to decline during the Quetiapine taper. Quetiapine 100mg was tapered and stopped, Zopiclone was reduced to 3.5mg/day, Clonazepam was increased to 1mg/three times a day After this I started to feel like I was improving as in not feeling so drugged and I was mentally and physically able to function better. I suggested staying on Mirtazapine 45mg for awhile to see if I would stabilize on it and be ok my doctor did not agree so the Mirtazapine 45mg was tapered to 15mg and I was started on Escitalopram 10mg. I was on this combination for the last week I was in the hospital before going into a different psychiatric ward for a second opinion on a treatment. My body felt good no body sensations or pain but a small headache and my mind felt weak but not bad cognitively, my anxiety was mid range level to high. I questioned in my mind whether I should still go to the psychiatric ward and if I could handle living this way and if I would get better but arrangements had already been made and I thought at the time maybe I could get stabilized there on the Escitalopram if it worked and have my ability to sleep maintained. On my initial appointment my husband and I had with the psychiatrist before entering he had said his goal was to get me on only the Escitalopram and hopefully if my anxiety could get reduced I may be able to sleep without and sleeping medication. Being on only one medication sounded good. Dec. 12, 2019 – Feb. 3, 2020 2nd psychiatric ward Mirtazapine was stopped, Escitalopram had just been increased to 15mg/day, Clonazepam was reduced to 1mg/twice a day. Zopiclone was increased to 7.5mg. The first week of being there I felt really good I had no body pain or sensations, my mind was clear but felt weak but I was thinking well. My anxiety was high during the day but after my evening clonazepam dose of 1mg I felt anxiety free and really good but I was getting very tired again as my sleeping had started to decline since the Mirtazapine had been stopped. Escitalopram was increased to 20mg as the next couple of weeks progressed and then I felt drugged and out of it again, not fully present and was no longer able to think as clearly my basic functioning was on the low range but I was able to keep up my daily hygiene and attend groups. Lyrica 100mg/day was started on Dec. 29 for anxiety. Clonazepam was switched afterwards to Lorazepam .5 mg twice a day then shortly after discontinued. I had not wanted to take the Lyrica because the goal had been to have me on as little medications as possible and I did not have nerve pain but the psychiatrist said it was better to be on Lyrica then Clonazepam. Feeling pressured to try it I gave in. Trazodone 100mg/day was started on Jan. 14/2010 and within the first week after that I started to experience muscle pain throughout different areas of my body and developed a constant migraine headache, sweats, chills, ear pain, nausea and constant diarrhea. I did start to sleep longer but could not fall asleep with my cpap machine anymore. Since Trazodone had not worked well for me in the past while being on it and the citalopram at the same time I was not comfortable going on it but the psychiatrist told me he would take me off it if I did not feel well on it. At this point I was not thinking clearly and wanted to not make the psychiatrist give up on trying to get me better and I felt extremely pressured to not go against his treatment plan. I told the nurses and my psychiatrist during the last 3 weeks I was there that I thought the Trazodone and Lyrica had me take a turn for the worst and that I was very sick. I was desperate for them to listen to me but they turned a blind eye and had closed ears to my complaints of suffering. 7.5mg/day Zopiclone still continued but was raised to 10mg/day the last week I was there. Lyrica 100mg/day was discontinued on Jan. 27/2020 with only a 4 day taper. My psychiatrist was not happy that I wanted to go off it because I felt it was making me feel drugged and I thought it was contributing to my body pains and migraine headache. He told me I was to be discharged within that week. He told me to take whatever he wants me to take that week without question. He at the same time as discontinuing the Lyrica took me off my propranolol 20mg, enalapril 5mg, Atorvastatin, reactine. He raised my Zopiclone to 10mg/day and put me on another medication which I cannot remember the name I was told by the nurse when I was given the first dosage that it was an older type of drug that was often given to shift workers to keep them awake during the day. I started the first dose on Jan.29/2020 but only took it the one day because that was the first day after I took it in the morning around 10am I started to experience a burning searing excruciating headache/migraine, tinnitus, hot sweats, uncontrollable muscle cramping over my entire body including my neck and face, my legs and feet went numb and my body pain was excruciating. The nausea and not being able to eat much but digestive cookies and constant diarrhea was the state I was in at the time I was discharged on Feb. 3/2020. Dec. 12, 2019 – Feb. 3, 2020 2nd psychiatric ward I was in treatment trying to get better the psychiatrist put me on all these I got very ill and he took me off the lyrica too quickly which I did not realize at the time and then discharged me sick not knowing what to do and telling my husband and I that I had to start taking my treatment into my own hands and that I had been off and on enough medications in the last 2 years that I should know how to taper and what drugs are making feel bad that he had know idea that I knew my body the best. So my doctor tried to help I was in so much pain and sick (not as much as I am in now though) here are the too fast tapers Escitalopram 20mg Started on Dec.5, 2019 Taper: Feb. 16 - 20, 2020 15mg. Feb. 21 - 26, 2020 10mg. Feb. 27 - Mar. 2, 20202 5mg. Mar. 3 Stopped 0mg. · Reply · 1d · Edited Lyrica 100mg Started on Dec. 29, 2019 100mg. Taper: Jan. 24 - Jan.27, 2020 50mg, Jan. 28, 2020 Stopped 0mg. (only 4 day taper) · Reply · 1d Trazodone 100mg Started on Jan. 14, 2020 100mg. Taper: Feb. 4 - Feb. 14, 2020 75mg. Feb. 14 - Mar. 6, 2020 50mg. (Then paused Feb.16 -Mar.3 for Escitalopram taper) Tapered again: Mar. 6 - Mar. 25, 2020 25mg. Mar. 25 to Apr.6, 2020 12.5mg. Apr. 7, 2020 Stopped 0mg. I'm currently not on another antidepressant this last treatment scared me so much I did not want to start another one. I currently am still on the zopiclone 7.5mg and clonazapam 0.5 twice daily though unfortunately and will have to at some point try to get off those.
  17. Hi, I hope to be a regular contributor. Here is a bit of background: Throughout high school I was mildly depressed and anxious, which turned into a pretty horrible social anxiety and moderate depression in first year of university. Eventually I left school and was pretty depressed for eight months. I started Paxil when I was nearly 20 in 11/06 and immediately my anxiety and depression seemed to vanish. I returned to school and withdrew my Paxil six months later with no noticeable withdrawal. Two and a half years later when I was 22 I began experiencing some horrible anxiety triggering some gastro issues. I took one dose of Paxil and woke up that night with some sort of terrible panic attack. I ceased taking the Paxil but the panic attacks (flu-like symptoms) continued and lasted hours at a time. I feared that I was dying. Eventually I was hospitalized and put on Cipralex and Olanzapine. My anxiety eventually halted and the Cipralex gave me more energy and motivation than I typically have. Eventually I was labelled bipolar ii because of the initial but short lasting activating effects that some antidepressants have in me. The Cipralex pooped out in three weeks and I was polydrugged for the next four years, including two more hospitalizations in that first year for depression. Eventually my mood and anxiety stabilized for two years on Cymbalta, lithium, and Alertec; however, the fatigue was unbearable. In 08/13 I came off Cymbalta and my mood started to deteriorate (I probably experienced about a month of withdrawal syndrome including insomnia, irritability, brain zaps, and flu-like symptoms). After more polydrugging, I decided that the drugs may be making things worse. At nearly age 27, I came off of Pristiq and lithium. Pristiq brought on a similar syndrome as Cymbalta. I came off of both antidepressants too quickly, however, usually in a matter of a month. I also came off of lithium way too quickly, in about six weeks. As I was coming off lithium I began to feel normal again for the first time in four and a half years. About three weeks after my last lithium dose (02/14) I woke up vomiting. I then had severe anxiety for a couple of days but it lifted in a week. It was replaced by a mild or moderate depression that was, for the most part, quite manageable. I was actually hopeful, had normal energy for the first time in years, and beginning meditation and psychotherapy and thought I might recover. Unfortunately, some bad life events happened: there was conflict in the house that I live in and I ended up living on my own for a while (not a good thing). Worse, however, is that I injured by back. It remains injured and I am now getting some tests done to try and figure out what is wrong with it. I can't walk more than five minutes without it getting quite achey and knotty. Eventually this bodily stress had me thinking thoughts that I was dying again and that my back will never heal. This lead to me to being in a constant state of panic. I was losing lots of weight and my body had been in panic mode for nearly a week. I was terrified. I went to a community crisis centre who I thought might help me without psych drugs -- but they basically told me to go get drugs. I ended up hospitalized (06/14) and was immediately put on mirtazapine and then Lyrica. A few days later the anxiety left and I entered the most severe depression of my life: it was incredibly painful, I could barely move, my voice had no emotion, and I was asking my parents to kill me. The depression would occasionally lift at nighttime and I would be normal again. The depression lifted one morning and was replaced by a depressive/anxious hellish state that did not lift in the evening. Defeated, uncertain how the pain would go away, and pressured by my nurses and my psychiatrist, I upped everything and began lithium again albeit at a lower dose: mirtazapine 30mg, Lyrica 100mg, lithium 600mg. I was discharged from the hospital last week. I feel incredibly discouraged. Before I found this site (and the 10% rule) I tapered 25mg off of Lyrica so that now the Lyrica fog is much more bearable during the day. My biggest questions at this point are: after tapering off of drugs or during the taper for some people, how does one deal with severe panic anxiety or with severe, profoundly painful depression? I am beginning to browse these forums looking for these answers. I fear that there may not be answers and that people just ride through it which takes a lot of courage. I tried to ride out depressions when I was younger but they it went on for over a year and a half before I took Paxil. It is especially challenging as I live in Toronto and I cannot find much support here for tapering off of psych drugs or for dealing with a crisis that comes during or post taper. I am in the process of finding a new psychiatrist, which is quite difficult, as my psychiatrist is as biology-based as possible (he wanted me to have shock therapy in December which is partly why I came off drugs around then as I realized he didn't know what he was doing.) Unfortunately, I still had to see him when I was recently in hospital, which is another trigger. I just never imagined I would be back on psych drugs. The injury to my back is also depressing me. I've gone from hopeful to hopeless in a matter of months. Right now my anxiety is not too severe and neither is the depression. I've read that Mirt has a habit of pooping out early, which is partly why I think every minute is invaluable in determining tapering and eventual crisis. The crisis pattern for me seems to be severe anxiety followed by depression, then maybe a mixed anxious/depressed state. Anyone with similar experiences, advice, or encouragement? The scariest things for me are how to deal with severe panic anxiety and a physically excruciating depression. Thanks for reading.
  18. Hi, Looking to do a liquid taper off my Lyrica. I take 300mg twice daily. Been on it over 10yrs. Need help figuring out how much water to put in for one dose and how much water with the Lyrica to swallow.
  19. I am 70 y.o. But have had severe Restless Legs Syndrome since I was in my 20’s. I’d been on dopamine agonists all my life and switched from one to the next as each seemed to fail. In 2011 my wife arranged for me to be seen at John’s Hopkins by the lead researcher and he found that I had augmentation with each of my old drugs, that is, I would get better initially and then the drug would actually make me worse until I was on huge doses and then I would switch to the next one. The alternative to this class of drugs are the long acting slow release opiates like methadone,suboxone, and fentanyl. I became depressed and then had my first panic attack on methadone ( after a few years) and on suboxone I vacillated between sleep apnea on higher doses and panic attacks on lower doses. I tried several other drugs such as Mg, gabapentin, talwin, morphine, etc before starting fentanyl at 12.5 mcg every 48 hours and eventually settling in at 50 mcg every 48 hours. My RLS is under good control and according to the research, RLS patients don’t ever become addicted and almost never require higher doses over time. But, I was started on Lyrica at the same time as the fentanyl patches because I worried that there were no more medicines to try and I thought I would have to commit suicide. When I am not on a drug or it isn’t working, I have to walk constantly until 4:30-5 a.m. and then I get maybe an hours sleep before it starts again. The Lyrica made me terrifically dizzy and nauseous and lethargic. I asked to stop after 3-4 months and because the common wisdom was a one to two week taper, I did that with disastrous results. Finally I tapered off at very low doses over months and have been off now for 10 months. At first it was day after week after month with perhaps 2-3 hours of normalcy in a week’s time. Now I have longer windows of a few hours to several days with waves that are similar...a few hours sometimes but I just finished yesterday a wave of 6 days. My waves begin with fear on awakening followed by excessive sneezing then loose stools and dry heaves. I feel “sick” and exhausted and sleep almost continuously until it passes. When it is over it occurs suddenly like someone flipped a light switch and I know for certain that it has gone. Still, even in my windows, I start each day with dread. If it is unremitting,I take either 2.5 mg or 5 mg of Valium, but I always try to avoid that. That is my story.
  20. Hello everyone, At age 4 I developed PANDAS (unknown at the time). It was characterised by extreme OCD and comorbid Tourette Syndrome and ADHD. In my teens I was diagnosed with Asperger Syndrome. At age 7 I recieved my diagnoses. At age 8 I was medicated with Paxil. My OCD improved dramatically. I was switched to Zoloft because of anti-cholinergic side-effects experienced with Paxil. I was maintained at 150 mg of Zoloft for several years. I developed worsening akathisia and emotional numbing. At age 15 I developed severe apathy in the absensce of depression. With the help of my mother over the next 3 years I titrated to 2/3 of a 25 mg pill. I could feel the difference between 12.5 and roughly 16 mg of sertraline, and I could not go lower than 16 mg without side-effects. Due to my lower dosage, some emotional range was restored and I fell in love and started what would become a 3-year long-term relationship. At some point I figured I could do without sertraline. I stopped it and did not notice much. Eventually a creeping relapse overtook me with intense obsessive thinking. I started back up on fluoxetine. It caused bruxism and akathisia. I switched to sertraline after realizing this. It caused me to become hugely dysphoric (with superimposed hypomanic features). I got into a fight and broke several bones in my face. I was sent to a psychiatric ward. I found a study that found that fluoxetine caused an increase in diazepam concentrations by as much as 50%. I decided that I was probably undergoing acute benzodiazepine withdrawal, so I requested to be switched to Luvox, which also vastly increases diazepam concentrations. I have a long history with benzodiazepines which I will not expand upon here, except to say that my GP, who is handling my medication, is always pushing me to go faster on my taper. I got him to approve an Ashton schedule, although I think I would do better if he gave some leeway to hold at a dosage for a while so I can adjust. I stabilized within a few days of the change, and my akathisia was relieved (or masked by diazepam?). I left the ward at 100 mg of Luvox. To achieve further reduction in my OCD, Luvox was titrated up to 300 mg by my GP. This again caused emotional numbing and akathisia. I reduced my dose to 200 mg. I sat at this dose for a while, but by accident, or fate, I started missing a few doses here and there. This triggered intense emotion reactions. Life had me hooked. I had an emotional reaction to a song, and I have told myself that I am never going back into no-where land. I am going to decrease my Luvox to 100 mg, as 200 mg leaves me wishy-washy about wanting to taper. I will request my diazepam be increased to 25 mg and hold for 1 month, and then recommence taper. I have taken an SSRI for the vast majority of my life, and I have a question: Here is what I believe to be one of the enigma's of SSRIs. I know that it is true for myself. I hope to see if it is true of others. At the dose of an SSRI required to stave off withdrawal, the desire to get off of the SSRI diminishes. This can shave years of "living" off of your life. On the other hand, if you CT or cut too low too fast, the withdrawal will force you to reinstate. I have also struggled with intense DP/DR at times. It was at its height when it was 24/7 and I felt like "I", (insert my real name, let's pretend Jay) had died. That was the most excruciating time of my entire life, save brief periods of bash-your-head-in-the-wall akathisia after being given an antipsychotic at a psychiatric ward. Thank you so much to anyone who made it to the end of this post, it means a lot, Peace. EDIT: Also, sometimes when experiencing distress I wonder if it is the SSRI or the benzo, withdrawal from either of these, or just normal.
  21. Hello, I am a caregiver. My patient is dealing with signs of a very serious neurological condition. He has no interest in doing any online research about his condition, which I think is wise, because we believe a positive attitude is a key to his recovery. It is not easy to maintain a positive attitude in the face of general information about his condition. So the online research is up to me. I notice that virtually all of the members here are the individuals tapering from meds themselves, rather than caregivers. However, I hope that I can be accepted as a participant here, under the circumstances. I'll leave off the medical details except what seems relevant to this website. He was given opioids last January (2019), for pain, and they didn't do much to help. So the opioids were increased gradually over some months, up to 120 mg. Embeda (time-release morphine) by (I think) last May/June. In (I think) May, he was also given 60 mg. duloxetine by our PCP, intended to help pain. He didn't notice any effects on the pain, but continued taking them. At the time, we were desperate for anything that might help with pain. I regret not doing more research at the time. Since then, he has also been given 50 mg. pregabalin/lyrica 2x/day, and we brought that down to 1x/day a few months ago. He has tapered his opioids from 120 down to 80 mg. over a couple of months. He is also taking many, many supplements. I know that some people don't advise doing supplements at the same time as a taper. However, we credit the supplements (among other things) for a very unexpected partial recovery with the neurological condition, so they are non-negotiable. Anyway, now, having reduced opioids while keeping duloxetin steady, instead of dealing with constipation (a common side effect of opioids), he's dealing with diarrhea (apparently a common side effect of duloxetin??). This makes me wonder if the two had been somewhat balancing each other out, and now that opioids are decreasing, the duloxetin is able to exert its influence on the gut, causing diarrhea. So we have pretty much decided to alternate reducing the Embeda (morphine, opioid) and reducing the duloxetin, in hopes that this will help with a certain sort of homeostasis. I have read on some website (sorry, I don't remember where) that while most people taper one drug at a time, sometimes reducing one drug can amplify the effects of another drug, so some people choose to alternate tapering one drug and then the other, back and forth, and have done this successfully. Anyway, we are also influenced by the information that apparently, tapering duloxetin has a better prognosis if started earlier rather than later, so we hate to put that off. I'm wondering if anyone else here has experience with tapering from both duloxetin and from opioids, and also if anyone here has experience with alternating a taper of two drugs. It seems that opioids act quite differently than SNRIs, although they both act on serotonin. My patient has no history with depression, but from what I've read, that doesn't mean he won't experience depression as a side effect of withdrawal. Anyway, I really appreciate this forum. I've already gotten a lot of great information. Thank you for your efforts. And my heart goes out to the many patients who are dealing with effects of withdrawing from these nasty drugs. FYI I've never been all that impressed with the pharmaceutical industry, but after doing online research, plus reading Anatomy of an Epidemic, I've concluded that the pharma industry is nearly identical to the mafia, except that they don't go around with machine guns. That's about the only difference I see. Things are much worse than I previously thought. Best wishes.
  22. Hello everyone, This is my ever first time writing in a forum , I decided to reach out because I am feeling a bit lost.... Excuse if my english is not at it's best as I'm not a native english speaker. I have tried to make my signature, which became far too long and I had to delete so many things that it felt to me that there were too many things missing, but as I am new to "this", I am hoping someone might help me. First things first I am going to write down all my history with anxiety and panic attacks, at least all I can remember, as I'm very forgetful lately. 2005- cypralex due to panic attacks and GAD (can’t remember dosage) gained 46 kgs 2006- August quit cypralex cold turkey no symptoms that I can remember 2007- January started exercising and diet to lose weight by December i had lost all 46 kgs 2011- Panic attacks and anxiety emerged after break up of a relationship that broke my heart. Psychiatrist put me on Paroxetine 40mg trazodone 50mg bromazepam 3mg x2 day hated trazodone and the way it gave me vivid nightmares so I’ve quit it after a while always with doctor supervision 2012- September quit my job, had gain almost 20 kgs, was super depressed still but no panic attacks nor anxiety. 2013- Moved back in with my ex , in march I started the tapering of paroxetine, extremely slowly, and by December 31 I was done. 2014- June massive relapse, anxiety, panic attacks, was living abroad and flew back home to see my psychiatrist, started Prozac 40mg because I had put on so much weight that was unable to lose, worse choice ever, prozac made me have even more panic attacks during my sleep..... Bromazepam 3mg and trazodone 50mg 2014 September 2nd - Another huge panic attack during my sleep, took me to the ER, where the psychiatrist there put me on xanax xr 0.5 3 times day October 28 2014 - Tried to reduce the xanax from 1,5 mg xr a day to 1 mg a day t but i got extremely sick nausea shaking and dizzy my doctor switched me to diazepam 20 mg a day, and also I gave up on Prozac and went back to paroxetine November 2014 - Had terrible shaking nausea headaches, I suspected it was from the xanax switching 2015 - Had 1 panic attack in June but was stable and still on paroxetine 2016 January - I decided that it was time for me to start reducing (tapering) the paroxetineI had moved to another country living happily but the weight that I had gained i could never get rid of, I went from 64kgs in 2011 to 100kgs. September 24 th - Found out I was pregnant and still tapering the paroxetine 2016 December - By the end of December I was done with the tapering and was done 1 year reducing. 2017 - Was totally fine 2018 - Totally fine 2019 June - Panic attack during my sleep, caught off guard, tought I was free from it... 2019 July - Anxiety rising so much I could not leave the house, could not enter any store, or supermarket I would start feeling like I was going to have a panic attack 2019 July 25th - Decided not to fly back to my homecountry to my psychiatrist and went to a psychiatrist here. Prescribed me amitriptyline 10 mgat night, plus gabapentin 100 mg 3 times day and xanax xr 0,5 2 times a day and xanax 0,25 IR in s.o.s 2019 August - I felt a bit less edgy, calmer but still couldn't leave the house alone nor enter supermarkets. I could walk outside IF I wasn't alone but I never felt safe alone and was always afraid of leaving the house. Gained weight 2019 October 2nd - Went to the doctor and the previous psychiatrist had been moved to another district. The new pychiatrist prescribed me Paroxetine 20mg, Lyrica 75 mg 2 times per day and diazepam 6 mg a day. Since end of July gained 6 kgs After my last appointment with the new psychiatrist , I start taking the meds on the 3rd of October, but I did nottake the 6 mg of valium he prescribed because I simply knew that it was too low of a dosage and I would have to keep on with the xanax at least a month til I feel that I was stable enough with the paroxetine to switch to a higher dose of diazepam. But when I mentioned to the doctor the 1mg of xanax xr i was taking a day switching me to 6mg of diazepam wasn't very smart not would it be helpful, he said replied to me saying that the lyrica would amplify the effect of diazepam... I was so upset.... truth is and on that very same day after taking Lyrica 75 mg, I start to feel itchy. I tought it was ok, and on the second day I was still itchy, so I decided to call the doctor to ask him and he told me that it couldn't be related nor an allergic reaction. I knew it wasn't the paroxetine because I had taken paxil before, and I knew it wasn't the xanax as well, so it could only be the lyrica. When I asked my doctor why was he putting me on lyrica his answer was that he could not just stop me the gabapentin, so he said he would switch me to a lower amount, and then reduce more and stop. The thing is, I am itchy every single day all the time, I have to use creams for eczema/atopic skin, and I am drinking 2 liters of water per day, no coffee, no alcohol, nothing with caffeine....... I feel like reducing the lyrica in half, from 150mg a day to 75mg, since I am taking it for not even 4 weeks, but I am afraid of how could it affect me. And about the Xanax, I am still taking the 0.5 xr twice a day but I want to switch to liquid diazepam which I have so I can reduce it and manage dosages better. I am taking the xanax since 25th of July, it's a good while, can any of you advise me? I have read the ashton manual, but I am still afraid. What about the lyrica making me itchy like a dog with fleas? Any help would be so appreciated.
  23. Hi everyone, I wish i could say i am here to share a story of inspiration but my story is not such. I was prescribed zoloft at the age of 17 and went off back in November at the age of 39 after a very gradual 40+ week taper. At first i felt ok. The initial symptoms of withdrawal were mild, perhaps due to the fact that i was tapering down at only 5mg every two weeks. In January of this year (about 10 weeks after my last dosage) i began to experience quite severe anxiety. It was all day and persistent. After 4 weeks i returned to my GP and he suggested i go back on a low dose of zoloft until my CBT sessions began. He prescribed 50mg of Zoloft (1/3 of my regular dosage for 20+years) and to my shock after three days i went into an almost catatonic state of complete and utter panic attacks. I was immobilized by panic. My doctor told me to stop immediately and also prescribed Klonopin to help with the immediate anxiety. After i was stabilized he prescribed a low dose of Citalopram and the same thing happened after a few days. More Klonopin and no SSRI's. I weened very quickly off the benzo and was then walloped with the most severe insomnia of my life. After 4 days without any sleep the doctor (now a psychiatrist i was seeing) said to continue the benzo and added Lyrica (pregabilin) to help ween off the benzo while thwarting the insomnia. After three hellish months i was finally off the benzo and am currently now weaning off the lyrica. Every step of the way has been hell for me. I'm inside of an existence that has become a rollercoaster of anxiety, depression, fear and nausea, intermingled with short periods of normalcy. All along i thought that this experience was the benzos and lyrica and reemergence of old symptoms but only recently stumbled upon info about protracted withdrawal from ssris--which amazingly is completely off of the radar of the medical profession, as i'm sure most of you know. I'm currently living in a state of hyper vigilance as i never know when in the day i'll suddenly be walloped with severe anxiety and i always feel apprehensive at bedtime hoping i'll sleep ok. The worst part of this whole situation is that i don't know with any certainty that this current state i'm in will ever end. There have been many many days over the last 7 months where i have thought about death as the only relief from this predicament. I'm very lucky to have an amazingly loving and supportive wife who continues to hold me up and a couple of close friends who know what i'm going through. This keeps me going--barely. I struggle with feelings of deep resentment toward the medical and pharmaceutical fields for leading me to this place that i'm in. I wouldn't wish this hell on my worst enemy. I'm glad i found this site. I'm here to find some hope. I'm here to hopefully find stories from others who are in a similar predicament who have found recovery. I need to recover because this is no way to live. I do not want more meds (and doubt i can take them anyway at this point) Thanks for the opportunity to share my story.
  24. Hello, I need some help. I was on mirtazapine for 6 months until october 2017. Did a fast taper from 12mg to 7.5mg, 7.5mg to 3.75 and quit, all in one month taper. After that i started having foot pain and tingling in my feet, worst in my right feet. Also sensation of bugs crawling in my head and severe insomnia. Almost two years and i still have horrible pain in my feet and sensation of bugs crawling in my head with same strenght and frequency. I waited until i posted here because this is not getting better. I dont understand how this is still so strong after almost two years, cant fuction cant work cant nothing, please help.
  25. No more Lyrica as of today. The taper is finished. Yayyyy. The active tapering took about 2 years, with a 13 month hold to finish up another taper in the middle (well, 9 months of the 13 was a complete hold of any tapering.) Outside of a little tinnitus (what else is new?), I'm feeling good. Will probably hit a few bumps in the next couple of weeks, though nothing untoward. It was a smooth drop off from my first taper, diazepam, and I don't expect anything different with this one. One drug, requip, to go... and I'm already pretty low on that, so I figure tapering should be a thing of the past in 12 months, maybe less. And for now... I'm celebrating!
×
×
  • Create New...

Important Information

Terms of Use Privacy Policy