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  1. Hello all! I have been reading a lot on this website. I am a 43 year old woman from the Netherlands. Because of face ache after a rootcanal at the dentist that caused extreme pains for over a year they gave me lyrica and amitriptyline. 450 mg lyrica and 50 mg amitriptyline was built up within a year. Because of many bad side effects I had to taper my meds. In 2017, 29 th july I tapered 25 mg lyrica. Everything was fine. My dose was at that time 100 mg lyrica and 25 mg amitriptyline. When I tapered my last 25 mg tablet in september 2017 everything went wrong! I got extreme muscle pains in my arms and legs and sometimes just all over! My pain specialist said that I just had to wait and be patient and that the pains would disappear. So I waited. My pains improved a tiny bit. But not much. 9 th february 2018 I felt so dizzy. I was dizzy for weeks. When I forgot a 25 mg pil of lyrica the dizzyness went away. I jumpt to the conclusion that the dizzyness came from the lyrica. So I decided to taper from 100 mg lyrica to 75 mg lyrica at that day. (Now I doubt if it was from the lyrica, maybe the dizzyness was withdrawal from the amitriptyline.) From then it became even worse. I have musclepain and nerverpain everywhere especially in my arms and legs. Sometimes I am burning all over or just in my torso. I cry a lot. I can hardly function and suffer a lot of pain every day. 6 weeks ago I spoke to my pain specialist. She wanted me to wait for improvements and did not like to updose. But the daily pain is still horrible. Some other symptoms have improved: Insomnia (from hardly any sleep to a few bad nights a week) Tinitus (only very mild every now and then) being irritated (gone) fear (only very mild every now and then) tingling (only mild every now and then) electric feeling in my head (gone) Now I doubt what to do. Should I wait (mayby a few years) and hope everything settles down? Or do a small reinstatement on the lyrica? Maybe a small reinstatement on the amitriptyline? (I doubt that because I am allready totally off the med since 22 september 2017) I cannot make up my mind and don't know what the best option would be. So I hope you can give me some advice.
  2. Hi, I hope to be a regular contributor. Here is a bit of background: Throughout high school I was mildly depressed and anxious, which turned into a pretty horrible social anxiety and moderate depression in first year of university. Eventually I left school and was pretty depressed for eight months. I started Paxil when I was nearly 20 in 11/06 and immediately my anxiety and depression seemed to vanish. I returned to school and withdrew my Paxil six months later with no noticeable withdrawal. Two and a half years later when I was 22 I began experiencing some horrible anxiety triggering some gastro issues. I took one dose of Paxil and woke up that night with some sort of terrible panic attack. I ceased taking the Paxil but the panic attacks (flu-like symptoms) continued and lasted hours at a time. I feared that I was dying. Eventually I was hospitalized and put on Cipralex and Olanzapine. My anxiety eventually halted and the Cipralex gave me more energy and motivation than I typically have. Eventually I was labelled bipolar ii because of the initial but short lasting activating effects that some antidepressants have in me. The Cipralex pooped out in three weeks and I was polydrugged for the next four years, including two more hospitalizations in that first year for depression. Eventually my mood and anxiety stabilized for two years on Cymbalta, lithium, and Alertec; however, the fatigue was unbearable. In 08/13 I came off Cymbalta and my mood started to deteriorate (I probably experienced about a month of withdrawal syndrome including insomnia, irritability, brain zaps, and flu-like symptoms). After more polydrugging, I decided that the drugs may be making things worse. At nearly age 27, I came off of Pristiq and lithium. Pristiq brought on a similar syndrome as Cymbalta. I came off of both antidepressants too quickly, however, usually in a matter of a month. I also came off of lithium way too quickly, in about six weeks. As I was coming off lithium I began to feel normal again for the first time in four and a half years. About three weeks after my last lithium dose (02/14) I woke up vomiting. I then had severe anxiety for a couple of days but it lifted in a week. It was replaced by a mild or moderate depression that was, for the most part, quite manageable. I was actually hopeful, had normal energy for the first time in years, and beginning meditation and psychotherapy and thought I might recover. Unfortunately, some bad life events happened: there was conflict in the house that I live in and I ended up living on my own for a while (not a good thing). Worse, however, is that I injured by back. It remains injured and I am now getting some tests done to try and figure out what is wrong with it. I can't walk more than five minutes without it getting quite achey and knotty. Eventually this bodily stress had me thinking thoughts that I was dying again and that my back will never heal. This lead to me to being in a constant state of panic. I was losing lots of weight and my body had been in panic mode for nearly a week. I was terrified. I went to a community crisis centre who I thought might help me without psych drugs -- but they basically told me to go get drugs. I ended up hospitalized (06/14) and was immediately put on mirtazapine and then Lyrica. A few days later the anxiety left and I entered the most severe depression of my life: it was incredibly painful, I could barely move, my voice had no emotion, and I was asking my parents to kill me. The depression would occasionally lift at nighttime and I would be normal again. The depression lifted one morning and was replaced by a depressive/anxious hellish state that did not lift in the evening. Defeated, uncertain how the pain would go away, and pressured by my nurses and my psychiatrist, I upped everything and began lithium again albeit at a lower dose: mirtazapine 30mg, Lyrica 100mg, lithium 600mg. I was discharged from the hospital last week. I feel incredibly discouraged. Before I found this site (and the 10% rule) I tapered 25mg off of Lyrica so that now the Lyrica fog is much more bearable during the day. My biggest questions at this point are: after tapering off of drugs or during the taper for some people, how does one deal with severe panic anxiety or with severe, profoundly painful depression? I am beginning to browse these forums looking for these answers. I fear that there may not be answers and that people just ride through it which takes a lot of courage. I tried to ride out depressions when I was younger but they it went on for over a year and a half before I took Paxil. It is especially challenging as I live in Toronto and I cannot find much support here for tapering off of psych drugs or for dealing with a crisis that comes during or post taper. I am in the process of finding a new psychiatrist, which is quite difficult, as my psychiatrist is as biology-based as possible (he wanted me to have shock therapy in December which is partly why I came off drugs around then as I realized he didn't know what he was doing.) Unfortunately, I still had to see him when I was recently in hospital, which is another trigger. I just never imagined I would be back on psych drugs. The injury to my back is also depressing me. I've gone from hopeful to hopeless in a matter of months. Right now my anxiety is not too severe and neither is the depression. I've read that Mirt has a habit of pooping out early, which is partly why I think every minute is invaluable in determining tapering and eventual crisis. The crisis pattern for me seems to be severe anxiety followed by depression, then maybe a mixed anxious/depressed state. Anyone with similar experiences, advice, or encouragement? The scariest things for me are how to deal with severe panic anxiety and a physically excruciating depression. Thanks for reading.
  3. Hi I am new to this forum and this is my first post . I am currently on 30mg mirtazapine and 200mg of pregablin , I have been on these mess for about 3 to 4 months . I have just cut my mirtazapine from 30mg to 15mg and in the space of 4 days I have have horrible side effects , anxiety through the roof , shaking , lack of appetite poor sleep crying spells and the general feeling of feeling crap . The reason I have started to withdraw from the mirtazapine is that after 3 months I feel no benefit only get awfull side effects . No help with my anxiety and depression if anything it's made me more depressed . I have gone through withdrawing from Effexor and that was really tough , however just the drop for a few days of the mirtazapine has left me crushed , my doctor told me that mirtazapine was a easy drug to withdraw from , but after 4 days it has left me house bound . Has anyone got any idea on how I get through this or any experience in mirtazapine withdrawals
  4. Hi Everyone I apologize for so much information at once I'm too sick to do a full brand new post so I have copied and pasted posts from support groups on facebook I was directed here too for help. I am in desperate need to know if I should reinstate any of my medications or if it is too risky. I was wondering if I should try taking the lyrica again then do a proper taper, the psychiatrist put me on for my anxiety I never had pain before I took it until he took me off it too fast I first started getting the muscles contractions and horrible muscle cramp pain and had my first uncontrollable muscle movement episode of my face after the lyrica was stopped with only a 4 day taper which I did not know was too quickly I had been on it for 5 weeks. I think the lyrica stopped so suddenly started it all but then the escitalopram and trazadone tapers and getting off them too quickly just made everything worse. I have been so desparate in my thinking to see if there is a way to reverse this what I think may be dystonia that I have been thinking should I try to go back onto the lyrica to see if this disappears and then do a really slow proper taper but then I think it is so risky what if I really mess myself up worse but living with this and with it only being so soon 4.5 months and I have so much pain already I already cannot handle it I cannot imagine handling it any worse. I'm so afraid and do not know what to do I'm afraid that this will not go away with time if it is the dystonia. What does anyone think do you think trying lyrica again would be worth the risk? it is so hard to know what to do considering I had 3 too fast drug tapers. Does anyone think this would be too risky? I'm sure I have developed dystonia more and more everyday it scares me. I can feel my waist and hips turning to the left and I have less control of my legs then normal and the feel wobbly or like spaghetti or elasticy I don't know how to describe it and my neck and head want to turn to the left I feel like a force is pushing it to the left. Also I feel the muscles in my face moving mainly wanting to pull down especially in my jaw area and my neck and face muscles get tight. I also have had 3 times where I have had uncontrollable movements of my face that lasted for hours the first one was the worst that happened right after I was stopped on the lyrica in the hospital that included my eyes, tongue protruding and mouth, pretty much my whole face and my neck and right arm twisting to the left the nurse told me it was anxiety and to calm down I did not believe her that it was anxiety I have had anxiety long enough to know it does not do that. Since then I have had 2 more episodes that involved then same area's but not my tongue. I'm very scared of my future and no doctors will say the drugs have anything to do with it. Also my hands, wrists and lower arms get stiff throughout most of the day. My muscles get unbearably painful a very very deep bone consistent aching pain. I was able to move around today more and do some things in the kitchen and I did notice the pain lessened while I was more active. This is when I really noticed though I'm definitely dealing with the twisting of my right side of my body to the left. It makes me walk around like I look intoxicated. I really respect all you peoples opinions and knowledge and have some questions to ask if you would not mind. I was wondering could it get better or go away and just be a part of withdrawals or once this happens do you have it for life? Have been off antidepressants for for 3 to 4.5 months (too fast tapers) had been on poly drugged for 1.5 years then before that on citalopram for 10 years. A huge mess I was fine for the first 10 years developed insomnia and my anti was switched to trazadone and when that did not work the poly drugging happened for 1.5 years (I was a zombie and almost entirely non function able still am but no longer a zombie but I am extremely sick now riddled with unlivable pain still suffer from insomnia and take unfortunately 7.5mg zopiclone and 1mg clonazepam a day) but these last few days my muscle pain, uncontrollable cramping, stiffness, tightness in my head, face, throat, neck, right arm/hand, shoulder and sometimes my left arm/hand and also episodes of uncontrollable muscle movements of my face is so unbearable lately I cannot handle it any longer. Today I have been at my wits end desperately not thinking I can go on any longer. I am so sick fluish this last few months also I'm getting to the point the pain in intolerable another minute it is almost 24/7 I have only had the muscle pain or tightness cramping go away for maybe a half hour a few times in the last month. It is too much. I was so sick before all this for the last 1,5 years that I am so weak I cannot this week get myself to hardly eat and bathe the pain is so intense I want to it all to end. No one can help me. I need to desperately no what to do. The pain is like you have if you get a severe cramp or charlie horse for instance this morning it has been a constant charliehorse in my lower right arm and hand, right shoulder, neck, face and head. It is so painful I only could sleep for a couple hours last night. I even took a baclofen (which I only have taken maybe 6 times in the last 3 months when I feel I can no longer take the pain another minute), 2 advils, clonazepam and all my vitamins. I just do not know how to go on any longer. I have no support group at home. My husband is my only person I have and he along with my doctor think my pain is psychosomatic. My husband cannot tolerate my complaining or crying or making any sounds of or about my pain. I don't know how to make the pain stop or live with it anymore so it is tolerable. I cannot handle the suffering anymore I literally am desperate for help so badly. Since lyrica was one of the last meds I was on that the pain started after the psychiatrist took me off with only a 4 day taper and that is when the nerve and muscle cramping, movements and severe head pain started I do not know if I should try to reinstate after being off it for 4.5 months but I think it is too risky but then again I'm desperate for this muscle pain relief i am so afraid I have the early stages of dystonia too. I have had episodes of uncontrollable muscle movements of my face, neck and right arm. I am so afraid of that. But this muscle pain is so intense it is unimaginable I really need to numb this pain somehow. The severe head pain migraine burning so painful 24/7 and the piercing tinnitus. Even the numbness, tingling burning nerve pain allover but the worst is the muscle pain it is so severe. Whenever I try to type on the computer this all makes my pain levels go up so much worse but I need the help so badly, emotional support. I am desperate I feel for my sanity and my life, I need knowledge so bad. I want to do everything right now. I want to get better if there is any chance. I need something to keep me strong to endure this it feels like I am being tortured daily and have to put up with it because no one will listen to me. I wish I would have been thinking clearly enough to search out support groups before I let him put me on these meds or atleast before they were stopped or the too quick tapers. I cannot stop thinking about wanting to turn back time. I hope my life is not ruined forever unless I can get this pain under a tolerable level and I pray to god I do not have dystonia but I fear I do from having joined a dystonia support group on here it sounds all to familiar. I do not know how I can make it through life with no support, knowing my doctor is not listening to me and my husband is not trying to help get me better just not wanting me to bother him with my pain or worries, be silent. How do I survive this? I cannot hardly look after myself being so sick, I have nowhere to go. Does anyone else that had been off antidepressants for as around long as I have 4.5 months or longer experience this muscle cramping, severe pain? Please explain where in your body and the level of pain? Also any uncontrollable muscle movements? What do you take besides magnesium for the pain? Does anyone ever recover from antidepressants withdrawals/pain after stopping them too quickly after being on antidepressants for 12 years? Brief History Born August 1, 1970. Female 48 years old. At time of illness Tracy had been a National Lifeguard Instructor Trainer and Lifesaving Society Instructor Trainer with a career as an Aquatic Supervisor at an indoor town pool for 5 years. Training and certifying Lifeguard/Swimming Instructors, supervising daily duties of lifeguards/Instructors/front deck staff as well as implementing and maintaining programming, scheduling, operational procedures and guidelines. Before that Tracy had owned and operated her own Day Spa for 10 years as well as worked in advertising. She graduated from college in 1993 in Graphic Design/Advertising Art. Tracy fell ill from insomnia in September of 2018 she had been just diagnosed with severe sleep apnea and had just started cpap therapy but found the treatment invasive and could not tolerate the cpap treatment enough to fall asleep with the cpap machine. She had been lead to believe she would die in her sleep if she did not use her cpap machine and became fearful and so persistent in always using her cpap machine while sleeping that her intolerance to the therapy resulted in severe insomnia. Citalopram 20 mg/day and 1mg Clonazepam as needed for 10 years prior to her insomnia. Clonazepam was rarely needed. Dec. 14, 2018 Citalopram 20 mg/day was changed to Trazodone 100mg/day. Clonazepam 1mg/twice a day. Mental Health declined due to sleep deprivation, becoming emotionally weak and sensitive, frequent crying, anxiety and ability to function daily declined. Was no longer able to work due to 3 months of insomnia and mental health decline after medication change. Feb. 9 -16, 2019 Psychiatric Ward Sertraline 20mg/day was tried but discontinued due to side effects. 20 mg/day Citalopram was added to the Trazodone 100mg/day. Clonazepam 1mg/ twice a day. Was very ill on the combination. After Feb. 16 – June, 2019 Citalopram 20 mg was discontinued and Trazodone 100mg was tapered and stopped. Clonazepam was tapered to .5mg then switched to Valium 10mg and tapered to 2mg, Buspirone 10mg was added then stopped. By this time insomnia had become extremely severe and ability to function daily on the most basic level was lost. Anxiety was severe and dehabilitating. June 1 - August 9, 2019 Psychiatric Ward Quetiapine 100mg/day added. Citalopram 50mg/day started then after 5 weeks discontinued due to intolerable side effects and switched to Mirtazapine 45mg/day, Fluoxetine 20mg/day, Zopiclone 7.5 mg, Clonazepam .5mg/twice a day. Discharged feeling very drugged. Was able to sleep with cpap machine 7-8 hours/night(every 24 hours) Had regained ability to keep up hygiene and function on a basic level. Mentally was very out of it. Aug. 9/2019 – Nov. 12, 2019 Due to feeling so drugged from Sept. 9/2019 Fluoxetine 20mg was tapered and stopped on Oct. 2/2019. Clonazepam was increased to 1mg/twice a day. Oct. 14 – Oct. 19/2019 felt the best that I ever had felt since falling ill in fall of 2018 but my mind and body felt very weak and fragile but then for no known reason I went past the feeling better stage and started to decline back into having a hard time functioning mentally and physically but could still do daily functioning tasks. I was able to keep good daily hygiene, cook supper, keep the dishes washed, take on a small cleaning task every day for example wash off a coffee table or do wash a load of clothes. Nov. 12/2019 – Dec. 12/2019 Hospital Was admitted at routine doctors appointment to the hospital since I had declined from starting to feel better and I continued to decline during the Quetiapine taper. Quetiapine 100mg was tapered and stopped, Zopiclone was reduced to 3.5mg/day, Clonazepam was increased to 1mg/three times a day After this I started to feel like I was improving as in not feeling so drugged and I was mentally and physically able to function better. I suggested staying on Mirtazapine 45mg for awhile to see if I would stabilize on it and be ok my doctor did not agree so the Mirtazapine 45mg was tapered to 15mg and I was started on Escitalopram 10mg. I was on this combination for the last week I was in the hospital before going into a different psychiatric ward for a second opinion on a treatment. My body felt good no body sensations or pain but a small headache and my mind felt weak but not bad cognitively, my anxiety was mid range level to high. I questioned in my mind whether I should still go to the psychiatric ward and if I could handle living this way and if I would get better but arrangements had already been made and I thought at the time maybe I could get stabilized there on the Escitalopram if it worked and have my ability to sleep maintained. On my initial appointment my husband and I had with the psychiatrist before entering he had said his goal was to get me on only the Escitalopram and hopefully if my anxiety could get reduced I may be able to sleep without and sleeping medication. Being on only one medication sounded good. Dec. 12, 2019 – Feb. 3, 2020 2nd psychiatric ward Mirtazapine was stopped, Escitalopram had just been increased to 15mg/day, Clonazepam was reduced to 1mg/twice a day. Zopiclone was increased to 7.5mg. The first week of being there I felt really good I had no body pain or sensations, my mind was clear but felt weak but I was thinking well. My anxiety was high during the day but after my evening clonazepam dose of 1mg I felt anxiety free and really good but I was getting very tired again as my sleeping had started to decline since the Mirtazapine had been stopped. Escitalopram was increased to 20mg as the next couple of weeks progressed and then I felt drugged and out of it again, not fully present and was no longer able to think as clearly my basic functioning was on the low range but I was able to keep up my daily hygiene and attend groups. Lyrica 100mg/day was started on Dec. 29 for anxiety. Clonazepam was switched afterwards to Lorazepam .5 mg twice a day then shortly after discontinued. I had not wanted to take the Lyrica because the goal had been to have me on as little medications as possible and I did not have nerve pain but the psychiatrist said it was better to be on Lyrica then Clonazepam. Feeling pressured to try it I gave in. Trazodone 100mg/day was started on Jan. 14/2010 and within the first week after that I started to experience muscle pain throughout different areas of my body and developed a constant migraine headache, sweats, chills, ear pain, nausea and constant diarrhea. I did start to sleep longer but could not fall asleep with my cpap machine anymore. Since Trazodone had not worked well for me in the past while being on it and the citalopram at the same time I was not comfortable going on it but the psychiatrist told me he would take me off it if I did not feel well on it. At this point I was not thinking clearly and wanted to not make the psychiatrist give up on trying to get me better and I felt extremely pressured to not go against his treatment plan. I told the nurses and my psychiatrist during the last 3 weeks I was there that I thought the Trazodone and Lyrica had me take a turn for the worst and that I was very sick. I was desperate for them to listen to me but they turned a blind eye and had closed ears to my complaints of suffering. 7.5mg/day Zopiclone still continued but was raised to 10mg/day the last week I was there. Lyrica 100mg/day was discontinued on Jan. 27/2020 with only a 4 day taper. My psychiatrist was not happy that I wanted to go off it because I felt it was making me feel drugged and I thought it was contributing to my body pains and migraine headache. He told me I was to be discharged within that week. He told me to take whatever he wants me to take that week without question. He at the same time as discontinuing the Lyrica took me off my propranolol 20mg, enalapril 5mg, Atorvastatin, reactine. He raised my Zopiclone to 10mg/day and put me on another medication which I cannot remember the name I was told by the nurse when I was given the first dosage that it was an older type of drug that was often given to shift workers to keep them awake during the day. I started the first dose on Jan.29/2020 but only took it the one day because that was the first day after I took it in the morning around 10am I started to experience a burning searing excruciating headache/migraine, tinnitus, hot sweats, uncontrollable muscle cramping over my entire body including my neck and face, my legs and feet went numb and my body pain was excruciating. The nausea and not being able to eat much but digestive cookies and constant diarrhea was the state I was in at the time I was discharged on Feb. 3/2020. Dec. 12, 2019 – Feb. 3, 2020 2nd psychiatric ward I was in treatment trying to get better the psychiatrist put me on all these I got very ill and he took me off the lyrica too quickly which I did not realize at the time and then discharged me sick not knowing what to do and telling my husband and I that I had to start taking my treatment into my own hands and that I had been off and on enough medications in the last 2 years that I should know how to taper and what drugs are making feel bad that he had know idea that I knew my body the best. So my doctor tried to help I was in so much pain and sick (not as much as I am in now though) here are the too fast tapers Escitalopram 20mg Started on Dec.5, 2019 Taper: Feb. 16 - 20, 2020 15mg. Feb. 21 - 26, 2020 10mg. Feb. 27 - Mar. 2, 20202 5mg. Mar. 3 Stopped 0mg. · Reply · 1d · Edited Lyrica 100mg Started on Dec. 29, 2019 100mg. Taper: Jan. 24 - Jan.27, 2020 50mg, Jan. 28, 2020 Stopped 0mg. (only 4 day taper) · Reply · 1d Trazodone 100mg Started on Jan. 14, 2020 100mg. Taper: Feb. 4 - Feb. 14, 2020 75mg. Feb. 14 - Mar. 6, 2020 50mg. (Then paused Feb.16 -Mar.3 for Escitalopram taper) Tapered again: Mar. 6 - Mar. 25, 2020 25mg. Mar. 25 to Apr.6, 2020 12.5mg. Apr. 7, 2020 Stopped 0mg. I'm currently not on another antidepressant this last treatment scared me so much I did not want to start another one. I currently am still on the zopiclone 7.5mg and clonazapam 0.5 twice daily though unfortunately and will have to at some point try to get off those.
  5. Hello everyone, At age 4 I developed PANDAS (unknown at the time). It was characterised by extreme OCD and comorbid Tourette Syndrome and ADHD. In my teens I was diagnosed with Asperger Syndrome. At age 7 I recieved my diagnoses. At age 8 I was medicated with Paxil. My OCD improved dramatically. I was switched to Zoloft because of anti-cholinergic side-effects experienced with Paxil. I was maintained at 150 mg of Zoloft for several years. I developed worsening akathisia and emotional numbing. At age 15 I developed severe apathy in the absensce of depression. With the help of my mother over the next 3 years I titrated to 2/3 of a 25 mg pill. I could feel the difference between 12.5 and roughly 16 mg of sertraline, and I could not go lower than 16 mg without side-effects. Due to my lower dosage, some emotional range was restored and I fell in love and started what would become a 3-year long-term relationship. At some point I figured I could do without sertraline. I stopped it and did not notice much. Eventually a creeping relapse overtook me with intense obsessive thinking. I started back up on fluoxetine. It caused bruxism and akathisia. I switched to sertraline after realizing this. It caused me to become hugely dysphoric (with superimposed hypomanic features). I got into a fight and broke several bones in my face. I was sent to a psychiatric ward. I found a study that found that fluoxetine caused an increase in diazepam concentrations by as much as 50%. I decided that I was probably undergoing acute benzodiazepine withdrawal, so I requested to be switched to Luvox, which also vastly increases diazepam concentrations. I have a long history with benzodiazepines which I will not expand upon here, except to say that my GP, who is handling my medication, is always pushing me to go faster on my taper. I got him to approve an Ashton schedule, although I think I would do better if he gave some leeway to hold at a dosage for a while so I can adjust. I stabilized within a few days of the change, and my akathisia was relieved (or masked by diazepam?). I left the ward at 100 mg of Luvox. To achieve further reduction in my OCD, Luvox was titrated up to 300 mg by my GP. This again caused emotional numbing and akathisia. I reduced my dose to 200 mg. I sat at this dose for a while, but by accident, or fate, I started missing a few doses here and there. This triggered intense emotion reactions. Life had me hooked. I had an emotional reaction to a song, and I have told myself that I am never going back into no-where land. I am going to decrease my Luvox to 100 mg, as 200 mg leaves me wishy-washy about wanting to taper. I will request my diazepam be increased to 25 mg and hold for 1 month, and then recommence taper. I have taken an SSRI for the vast majority of my life, and I have a question: Here is what I believe to be one of the enigma's of SSRIs. I know that it is true for myself. I hope to see if it is true of others. At the dose of an SSRI required to stave off withdrawal, the desire to get off of the SSRI diminishes. This can shave years of "living" off of your life. On the other hand, if you CT or cut too low too fast, the withdrawal will force you to reinstate. I have also struggled with intense DP/DR at times. It was at its height when it was 24/7 and I felt like "I", (insert my real name, let's pretend Jay) had died. That was the most excruciating time of my entire life, save brief periods of bash-your-head-in-the-wall akathisia after being given an antipsychotic at a psychiatric ward. Thank you so much to anyone who made it to the end of this post, it means a lot, Peace. EDIT: Also, sometimes when experiencing distress I wonder if it is the SSRI or the benzo, withdrawal from either of these, or just normal.
  6. Current drugs: - 2012-present citalopram, currently steady at 25mg - 2020 lyrica: max 4mg/day. started tapering after 2 weeks and having worse withdrawal than from 225mg This case history must be very unusal given the low dose and short time. Has anyone heard of a similar case? Also unusual is the bad method I'm stuck with to calculate doses. Recent start and tapering of lyrica ----------------------------------- I started a microdose of lyrica January 1 2020, thinking I could test side effects and stop if they were bad. Worked up to a maximum of about 4mg/day. After 2 weeks I decided it wasn't for mej. Reduced to 70% of max dose and held 4 days but got serious withdrawal symptoms. I thought an increase might help so went up to 80% of my maximum for 2 days, symptoms got MUCH worse, then down to 75% (1 day) and 65%. I thought lyrica and citalopram might be interacting and that tapering citalopram might be easier, so I tried 20% less (25->20mg) one day. I got the worst anxiety of my life and haven't changed it again. Following that I stayed on 65% of my lyrica dose for 2 weeks while I stabilised. Now on day 5 down from 65% to 60% which has not been bad. So, tapering slowly seems best. BUT I cannot measure doses accurately because I'm dividing powder with a knife on a plate (see below). Would switch to liquid but I can only guess how much I'm taking in a day. I'd be grateful for any advice on what I should do! Or information about similar low-dose, short-term cases, or how to handle inaccurate doses. I've been advised by some to go cold turkey given the small dose and short time, and that might have been ok when I started tapering after 2 weeks, but now I've been on it 6 weeks total. I could just about handle the initial 30% drop from my maximum dose but I could not handle what happened when I raised it 10%, then lowered it again. Maybe my case will be useful to someone. If nothing else it shows you can get hooked on a very small dose. The rest of this post goes into background a little and a lot of detail about what I'm doing now, so may be of less general interest. Prior drug history ------------------ - before 2010: prozac then paroxetine then seroquel. never any real trouble getting off them. Just some anxiety/irritability. - 2012 lyrica (only) for 11 days max 225mg/day then tapered off over 5 days with bad withdrawal symptoms for about a week - 2012 mirtazapine for a couple of months, after the lyrica - 2012-present citalopram, starting near the end of the mirtazapine Why is withdrawal worse in 2020 than on a much bigger dose in 2012? ------------------------------------------------------------------- It's hard to compare the two but the current withdrawal seemed considerably worse even before I raised the dose again and made it much worse. Some ideas I had: - I'm also on citalopram now. - Use or withdrawal from lyrica in 2012 primed/changed something. - I got lucky when i went off quickly in 2012, just in time (tapering after 11 days of using it) and just fast enough (5 tapered doses) to escape worse withdrawal. - The down/up dose in first week or withdrawal made it much worse. Also changing citalopram dose for 1 day seemed clearly VERY bad. Switching to liquid ------------------- Day 1 of last taper (65->60%) was partly with liquid I got from a compounding pharmacy. I replaced about 23% of the powder with liquid. Symptoms from underdosing have been bad but less bad than raising the dose, so I aimed low, and took what should have been roughly 45% less liquid than needed (using my rough estimate at equivalance - see dosing method below for details). It was much too strong. I got more sedated than I've ever been on lyrica, lots of muscle twitches, then somewhat agitated when it wore off. I switched back to all-powder doses, and decreased the evening dose by 1/3 to compensate for the morning overdose, and from the next day remained 5% of max dose lower. This has gone surprisingly well despite the updose then decrease. I'm tempted to stay on the powder, but I can't divide into smaller amounts than 1/256 of a capsule with any accuracy at all. That means as I decrease the dose, the reduction step size will get bigger. The most recent step down (65->60%) was about 7.5% of my current dose, but that will become 15% of current dose given a few more steps etc. Also, if a shirtsleeve brushes my reference doses away I'm sunk - I'll have little idea how much to take. But if I switch to liquid, I have to guess how much to take, and try to correct for symptoms, and gradually replace powder with liquid. After the first drop in dose (100% to 70%) it seemed to take a few days for the withdrawal to really get going. If that's still true, adjusting the liquid dose up and down could easily get out of hand and be less gentle than the later, and proportionally bigger, powder decreases. So neither option is good. Powder dosing method (details) ------------------------------ The method I use to dose is awful: I divide capsule's powder into two piles of 1/2, then divide each pile agqin and again. Currently I take 1/64 + 1/128th of a capsule every morning and again at night. This has limited accuracy of course, but it gets worse; there is residue left on the plate after the division. The amount of residue has changed over time since I switched from a big knife to a razor blade, and I haven't been consistent about how much residue I leave. At one point I thought measurements would be more consistent if I kept "reference" piles of each key size: 1/32, 1/64 and 1/128. But I realise now the references are not accurate, and I'm basically eyeballing the new piles now to match the reference ones. To estimate how much my 1/128 actually is, I started a new pill, and divided it with as little residue as possible (using a razor blade, which doesn't leave much at allif you're careful). To my amazement I seem to have left about 50% of the pill as residue. Separately I began sweeping residue from another pill into a pile, which I estimated was about 30% of the pill. Another idea would be to weigh my 1/64th, but I suspect it's too little to measure accurately with any scale I can get my hands on. Potency of my powder -------------------- To make matters even worse, the capsules I'm using expired 4.5 years ago. From a short look on the net and talking with a pharmacist this might not be big deal. But also the powder sits on a plate being slowly divided for up to 2 weeks before I take it, so it may degrade somewhat.
  7. Hello, I am a caregiver. My patient is dealing with signs of a very serious neurological condition. He has no interest in doing any online research about his condition, which I think is wise, because we believe a positive attitude is a key to his recovery. It is not easy to maintain a positive attitude in the face of general information about his condition. So the online research is up to me. I notice that virtually all of the members here are the individuals tapering from meds themselves, rather than caregivers. However, I hope that I can be accepted as a participant here, under the circumstances. I'll leave off the medical details except what seems relevant to this website. He was given opioids last January (2019), for pain, and they didn't do much to help. So the opioids were increased gradually over some months, up to 120 mg. Embeda (time-release morphine) by (I think) last May/June. In (I think) May, he was also given 60 mg. duloxetine by our PCP, intended to help pain. He didn't notice any effects on the pain, but continued taking them. At the time, we were desperate for anything that might help with pain. I regret not doing more research at the time. Since then, he has also been given 50 mg. pregabalin/lyrica 2x/day, and we brought that down to 1x/day a few months ago. He has tapered his opioids from 120 down to 80 mg. over a couple of months. He is also taking many, many supplements. I know that some people don't advise doing supplements at the same time as a taper. However, we credit the supplements (among other things) for a very unexpected partial recovery with the neurological condition, so they are non-negotiable. Anyway, now, having reduced opioids while keeping duloxetin steady, instead of dealing with constipation (a common side effect of opioids), he's dealing with diarrhea (apparently a common side effect of duloxetin??). This makes me wonder if the two had been somewhat balancing each other out, and now that opioids are decreasing, the duloxetin is able to exert its influence on the gut, causing diarrhea. So we have pretty much decided to alternate reducing the Embeda (morphine, opioid) and reducing the duloxetin, in hopes that this will help with a certain sort of homeostasis. I have read on some website (sorry, I don't remember where) that while most people taper one drug at a time, sometimes reducing one drug can amplify the effects of another drug, so some people choose to alternate tapering one drug and then the other, back and forth, and have done this successfully. Anyway, we are also influenced by the information that apparently, tapering duloxetin has a better prognosis if started earlier rather than later, so we hate to put that off. I'm wondering if anyone else here has experience with tapering from both duloxetin and from opioids, and also if anyone here has experience with alternating a taper of two drugs. It seems that opioids act quite differently than SNRIs, although they both act on serotonin. My patient has no history with depression, but from what I've read, that doesn't mean he won't experience depression as a side effect of withdrawal. Anyway, I really appreciate this forum. I've already gotten a lot of great information. Thank you for your efforts. And my heart goes out to the many patients who are dealing with effects of withdrawing from these nasty drugs. FYI I've never been all that impressed with the pharmaceutical industry, but after doing online research, plus reading Anatomy of an Epidemic, I've concluded that the pharma industry is nearly identical to the mafia, except that they don't go around with machine guns. That's about the only difference I see. Things are much worse than I previously thought. Best wishes.
  8. Is it possible that I have permanent brain damage from an anti-depressant. I came of Zispin 12 years ago cold turkey and am still suffering withdraw symptoms that come and go. The symptoms are so severe at this moment that I think I'm losing my mind. I am keeping two words in mind 'Courage & Dignity". I'm going through this so long now that I don't talk about it any more to the people in my life. However, its getting harder to deal with because I'm getting older (60) and my physical health is poor. Two years ago I was told I had terminal cancer I was scared but also relived to know I was getting free of this withdrawal problem. The doctor then decided to operate, she told me I had less than a twenty percent chance of surviving. Well, I got free of cancer, I had my lung removed (and my quality of life) and everybody said I was a miracle. I don't feel like a miracle, I feel like a pathetic mess. Can anyone give me a little hope please.
  9. Hello everyone, This is my ever first time writing in a forum , I decided to reach out because I am feeling a bit lost.... Excuse if my english is not at it's best as I'm not a native english speaker. I have tried to make my signature, which became far too long and I had to delete so many things that it felt to me that there were too many things missing, but as I am new to "this", I am hoping someone might help me. First things first I am going to write down all my history with anxiety and panic attacks, at least all I can remember, as I'm very forgetful lately. 2005- cypralex due to panic attacks and GAD (can’t remember dosage) gained 46 kgs 2006- August quit cypralex cold turkey no symptoms that I can remember 2007- January started exercising and diet to lose weight by December i had lost all 46 kgs 2011- Panic attacks and anxiety emerged after break up of a relationship that broke my heart. Psychiatrist put me on Paroxetine 40mg trazodone 50mg bromazepam 3mg x2 day hated trazodone and the way it gave me vivid nightmares so I’ve quit it after a while always with doctor supervision 2012- September quit my job, had gain almost 20 kgs, was super depressed still but no panic attacks nor anxiety. 2013- Moved back in with my ex , in march I started the tapering of paroxetine, extremely slowly, and by December 31 I was done. 2014- June massive relapse, anxiety, panic attacks, was living abroad and flew back home to see my psychiatrist, started Prozac 40mg because I had put on so much weight that was unable to lose, worse choice ever, prozac made me have even more panic attacks during my sleep..... Bromazepam 3mg and trazodone 50mg 2014 September 2nd - Another huge panic attack during my sleep, took me to the ER, where the psychiatrist there put me on xanax xr 0.5 3 times day October 28 2014 - Tried to reduce the xanax from 1,5 mg xr a day to 1 mg a day t but i got extremely sick nausea shaking and dizzy my doctor switched me to diazepam 20 mg a day, and also I gave up on Prozac and went back to paroxetine November 2014 - Had terrible shaking nausea headaches, I suspected it was from the xanax switching 2015 - Had 1 panic attack in June but was stable and still on paroxetine 2016 January - I decided that it was time for me to start reducing (tapering) the paroxetineI had moved to another country living happily but the weight that I had gained i could never get rid of, I went from 64kgs in 2011 to 100kgs. September 24 th - Found out I was pregnant and still tapering the paroxetine 2016 December - By the end of December I was done with the tapering and was done 1 year reducing. 2017 - Was totally fine 2018 - Totally fine 2019 June - Panic attack during my sleep, caught off guard, tought I was free from it... 2019 July - Anxiety rising so much I could not leave the house, could not enter any store, or supermarket I would start feeling like I was going to have a panic attack 2019 July 25th - Decided not to fly back to my homecountry to my psychiatrist and went to a psychiatrist here. Prescribed me amitriptyline 10 mgat night, plus gabapentin 100 mg 3 times day and xanax xr 0,5 2 times a day and xanax 0,25 IR in s.o.s 2019 August - I felt a bit less edgy, calmer but still couldn't leave the house alone nor enter supermarkets. I could walk outside IF I wasn't alone but I never felt safe alone and was always afraid of leaving the house. Gained weight 2019 October 2nd - Went to the doctor and the previous psychiatrist had been moved to another district. The new pychiatrist prescribed me Paroxetine 20mg, Lyrica 75 mg 2 times per day and diazepam 6 mg a day. Since end of July gained 6 kgs After my last appointment with the new psychiatrist , I start taking the meds on the 3rd of October, but I did nottake the 6 mg of valium he prescribed because I simply knew that it was too low of a dosage and I would have to keep on with the xanax at least a month til I feel that I was stable enough with the paroxetine to switch to a higher dose of diazepam. But when I mentioned to the doctor the 1mg of xanax xr i was taking a day switching me to 6mg of diazepam wasn't very smart not would it be helpful, he said replied to me saying that the lyrica would amplify the effect of diazepam... I was so upset.... truth is and on that very same day after taking Lyrica 75 mg, I start to feel itchy. I tought it was ok, and on the second day I was still itchy, so I decided to call the doctor to ask him and he told me that it couldn't be related nor an allergic reaction. I knew it wasn't the paroxetine because I had taken paxil before, and I knew it wasn't the xanax as well, so it could only be the lyrica. When I asked my doctor why was he putting me on lyrica his answer was that he could not just stop me the gabapentin, so he said he would switch me to a lower amount, and then reduce more and stop. The thing is, I am itchy every single day all the time, I have to use creams for eczema/atopic skin, and I am drinking 2 liters of water per day, no coffee, no alcohol, nothing with caffeine....... I feel like reducing the lyrica in half, from 150mg a day to 75mg, since I am taking it for not even 4 weeks, but I am afraid of how could it affect me. And about the Xanax, I am still taking the 0.5 xr twice a day but I want to switch to liquid diazepam which I have so I can reduce it and manage dosages better. I am taking the xanax since 25th of July, it's a good while, can any of you advise me? I have read the ashton manual, but I am still afraid. What about the lyrica making me itchy like a dog with fleas? Any help would be so appreciated.
  10. Hi everyone, I wish i could say i am here to share a story of inspiration but my story is not such. I was prescribed zoloft at the age of 17 and went off back in November at the age of 39 after a very gradual 40+ week taper. At first i felt ok. The initial symptoms of withdrawal were mild, perhaps due to the fact that i was tapering down at only 5mg every two weeks. In January of this year (about 10 weeks after my last dosage) i began to experience quite severe anxiety. It was all day and persistent. After 4 weeks i returned to my GP and he suggested i go back on a low dose of zoloft until my CBT sessions began. He prescribed 50mg of Zoloft (1/3 of my regular dosage for 20+years) and to my shock after three days i went into an almost catatonic state of complete and utter panic attacks. I was immobilized by panic. My doctor told me to stop immediately and also prescribed Klonopin to help with the immediate anxiety. After i was stabilized he prescribed a low dose of Citalopram and the same thing happened after a few days. More Klonopin and no SSRI's. I weened very quickly off the benzo and was then walloped with the most severe insomnia of my life. After 4 days without any sleep the doctor (now a psychiatrist i was seeing) said to continue the benzo and added Lyrica (pregabilin) to help ween off the benzo while thwarting the insomnia. After three hellish months i was finally off the benzo and am currently now weaning off the lyrica. Every step of the way has been hell for me. I'm inside of an existence that has become a rollercoaster of anxiety, depression, fear and nausea, intermingled with short periods of normalcy. All along i thought that this experience was the benzos and lyrica and reemergence of old symptoms but only recently stumbled upon info about protracted withdrawal from ssris--which amazingly is completely off of the radar of the medical profession, as i'm sure most of you know. I'm currently living in a state of hyper vigilance as i never know when in the day i'll suddenly be walloped with severe anxiety and i always feel apprehensive at bedtime hoping i'll sleep ok. The worst part of this whole situation is that i don't know with any certainty that this current state i'm in will ever end. There have been many many days over the last 7 months where i have thought about death as the only relief from this predicament. I'm very lucky to have an amazingly loving and supportive wife who continues to hold me up and a couple of close friends who know what i'm going through. This keeps me going--barely. I struggle with feelings of deep resentment toward the medical and pharmaceutical fields for leading me to this place that i'm in. I wouldn't wish this hell on my worst enemy. I'm glad i found this site. I'm here to find some hope. I'm here to hopefully find stories from others who are in a similar predicament who have found recovery. I need to recover because this is no way to live. I do not want more meds (and doubt i can take them anyway at this point) Thanks for the opportunity to share my story.
  11. Hello, I need some help. I was on mirtazapine for 6 months until october 2017. Did a fast taper from 12mg to 7.5mg, 7.5mg to 3.75 and quit, all in one month taper. After that i started having foot pain and tingling in my feet, worst in my right feet. Also sensation of bugs crawling in my head and severe insomnia. Almost two years and i still have horrible pain in my feet and sensation of bugs crawling in my head with same strenght and frequency. I waited until i posted here because this is not getting better. I dont understand how this is still so strong after almost two years, cant fuction cant work cant nothing, please help.
  12. Martina23

    ☼ Martina23: Lyrica

    Please i kindly ask you to advice. After caesarian delivery I got Lyrica 100mg for pain. I was on it 1,5 year. Now I wanted to withdraw and all hell broke loose. I have obsessive thoughts about harming myself and others (never were there before), intrusive thoughs of someone running with the knife, thoughts /urges to kill myself or other, hallucinations when I Close my eyes in the bad about bad things (yesterday I had in my dream a cancer) already for two months, and my doctor thinks this is Depression and wants to up Lyrica and give some antidepresant to it. I do not know what to do. I do not want medicaments, but I am afraid I might lose my mind and really hurt someone. What is this for a medication? How can this do to me? I was always normal. I have Little chicldren, I am single mom. I want only to die. Please tell me what to do, or I will go crazy. The best possibility would be only to die. How can I come from this away? I am afraid my brain is totally destroyed.
  13. No more Lyrica as of today. The taper is finished. Yayyyy. The active tapering took about 2 years, with a 13 month hold to finish up another taper in the middle (well, 9 months of the 13 was a complete hold of any tapering.) Outside of a little tinnitus (what else is new?), I'm feeling good. Will probably hit a few bumps in the next couple of weeks, though nothing untoward. It was a smooth drop off from my first taper, diazepam, and I don't expect anything different with this one. One drug, requip, to go... and I'm already pretty low on that, so I figure tapering should be a thing of the past in 12 months, maybe less. And for now... I'm celebrating!
  14. Hi folks. Regarding Lyrica withdrawal, I am on 50 mg Lyrica capsules 3x a day and want to know if it is possible to open the capsules AFTER weighing them, then take out 10%, and then put the 90% back in capsules to swallow (hope that made sense). I don't do well with liquid withdrawals, so I have a very good scale, and understand the concept of using it to reduce PILLS, but can you do this same process with CAPSULES? Wasn't sure if it the med and filler are mixed evenly in the capsules or if I'd run into trouble doing it this way. Thank you very much. Kitty
  15. Mccauley

    Mccauley

    I've been reading a lot in here. My issue may not be one for this forum. I have questions about withdrawing from lyrica. I had been prescribed lyrica 50 mgs twice daily and Wellbutrin 300. I had been taking both of the lyrica in the morning with the Wellbutrin and a claretin d. With this concoction I was able to get up and function most days. Somehow, the doctors office turned in my script for 150 of lyrica twice a day instead of 50. I was then taking 300 in the morning along with the others. I had a mail order supply of three months. I honestly thought I was loosing my mind. My poor memory went non existent. I had conversations I couldn't remember among other things like car accidents, weight gain and just horrible feelings. On advice from another forum I asked the doctor for 50 mg tablets trying to get back to the dosage that worked for me. He suggested to take 200 mgs a day for a month, then 100. This is causing me so much pain and depression and fatigue. I had some questions for anyone who may have any insight or advice. In 2014 I had a bad withdrawal from cymbalta and this situation is just making me crazy. If there is somewhere else I should go please let me know. Thank you.
  16. Just found these forums. This is 1st Post. I’m about 10 Days into withdrawal from Pristiq and Lexapro. (I’m assuming my “signature “ automatically attaches to this, so I don’t have to go into all the details again?) This has been shocking how hard this is. The worst for me has been the wild mood swings, accompanied by extreme anger and some outbursts. Also, a lot of shouting in the privacy of my car. I feel pretty out of control a lot of the time, with a hair-trigger temper. I used to be somewhat like this before antidepressants. But this is even worse. I’m scaring myself with how quickly I can become over the top angry. Also very anxious. The physical symptoms include one thing I haven’t seen mentioned, so I wonder if anyone has also felt them. It feels like my tongue is tingling, sometimes lips too, and I also get these zippy tingling sensations internally that make me think my heart is racing, but when I check my heart rate, it’s fine. My biggest concern is that I’ll be traveling soon, which always makes me irritable and anxious, so I wonder how I can handle it right now. I do have a small number of Valium, which I almost never take but I have it for fear of flying. Should I just go ahead and take it? Will it help? Or will using it just create more problems? Thanks for “listening “.
  17. Greetings all. This is my very first post by the way. I have been reading a lot of the posts on this site and there is a wealth of information regarding tapering. However, what I would really like to know is why should I taper at all? I am currently taking the following drugs daily 187.5mg venlafaxine 150mg pregabalin (Lyrica) 2mg risperidone Sometime I take zopiclone to sleep but most nights I don't need it. I don't drink alcohol or take any other substances. I meditate and I eat reasonably well. I get moderate exercise. I am enjoying my work and in general I am feeling well. I was very ill in 2008 requiring hospitalisation though. The diagnosis was psychotic depression. I had a relapse in 2012 and I made a suicide attempt at that point. Since 2012 I have been reasonably well and I am getting better all the time. I can suffer from anxiety at times but it's very manageable. Sometimes I feel a little depressed but who doesn't. I have managed to taper the venlafaxine down to the current dose myself. I was taking 300mg not so long ago. Tomorrow I plan to taper it another 10%. I see a psychiatrist regularly and I told him that I was tapering. He just wrote my a prescription for the new dose. I will be back to see him next week. To be honest, I would like to be eventually free of these meds entirely but I worry that I may have a relapse of some sort if I stop taking them altogether. So far the tapering has been going well though. I keep a diary to monitor my mood and there has been no significant change since I started reducing the venlafaxine. I just don't know though. I feel as if I am stuck between a rock and a hard place. I want to be free of the drugs but perhaps they are keeping me well? But, in the long term, from what I have been reading they could be doing permanent harm. I just don't know. Please advise
  18. Hey, I don't really know how to do this so bear with me! My name is Joanne, Jo is fine, it's already in my signature but I'll give you a brief rundown of my history as I introduce myself. This is my second tiime withdrawing from an antidepressant. I successfully got myself off of effexor a few years ago, I was on a high dose for several years. It was hard journey and a horrible experience but it was worth it in the end. I am about to start my withdrawal from Lyrica and Prozac, most likely starting with just reducing the Lyrica. I have done lots of research and have decided to attempt to combat my mental health issues through diet and supplementation, based on the research of Patrick Holford and others in the same field. I have always had problems surrounding food that have manifested in eating disorders at various stages in my life. I'm trying to build a new, healthier life and really need to detoxify and take back control of my body and start my defence from the ground up. I will be talking to my psychiatrist about this on June 1st, this is when I will start tapering and hopefully be put in touch with a nutritionist/dietician. I don't really have a support network at home and hoped that joining this community would aid in my recovery. Hope this finds you well or at very least well on your way - Jo
  19. On the 18th December, 2016, I took my last Lexapro and within days, I started feeling excessively tired and in January I got very sick with infections and have been really low. A week ago my Lyrica was reduced from 200mg to 100mg due to weight gain. My head is all over the shop at present, OMG.. so low. Having death visions of like me [details removed by moderator] How the hell do I get out of this?? Want to give it a go without the Lexapro (SSRI's) as I have been on them 10 years on and off for GAD and hear very bad reports about Lyrica for weight gain and brain fog...
  20. rocovering

    Rocovering - new member

    I am a 65 year old recovering female alcoholic with history of amphetamines, hallucinogenics, cocaine and cannabis. I have not used any of these substances for 34 years. In recovery, I went into a full-blown four week unrelenting panic attack in 1985 three years sober, and was put on pamelor for the first time for depression and was given ativan PRN for panic disorder. When prozac came out, I was switched to that in 1988 and was on prozac for 8-9 years. I got off prozac and was put on the newer SNRIs off and on for the next ten years, the usual ones, as each new brand arrived on the market.I had a round with wellbutrin in 2004. By that time, I was diagnosed as bipolar, not depressed, and started on topomax and then lamictal, taking the topomax on and off. I was on this combo until 2012 . By this time my ativan was long gone and I was given klonopin BID for breakthrough bipolar symptoms. I developed tinnitus and severe dystonic style muscle spasms in my hands and feet. I had these spasms hit me full body twice and the pain was unreal. I went to Lahey clinic regarding this and was placed on baclofen 10mg BID. I was sick of all this and this last spring was able to get off everything for the first time. Don't ask me how I detoxed as I have no idea, just kept the klonopin for PRN and with that in place went for it. HOWEVER, I was diagnosed with bone on bone arthritis simultaneously with fibro and I was off and running again. I went back on lamictal and klonopin and the.When I reported back to the fibro doc he was upset and me titrate 50 mg a week one week at a time for a total of three weeks. This was in November and when it was all done I flipped into all the detox symptoms. That was when I looked online and found out what was happening. He reluctantly put me back on 50 mg for one week and then gave me 25 mg pills til I see him Jan 17. I was supposed to drop from the 50 mg to 25 mg lyrica two days ago but was really frightened read somewhere about splitting the pills for a slower titration. I did that and yesterday was my second day on 37.5 mg gram. I still am feeling horrible, shaking, anxiety, crying spells, feeling crazy, all the garbage along with horrible nightmares along with anger and agitated too. Unfortunately, I will not have enough of the 25 mg pills to do a 10% titration and I doubt this doc will write another prescription for the lyrica. I also have to deal with getting off the tramadol next and he is the doc for this one. I am sure he will be uncooperative with this also. My psych nurse is willing to prescribe neurontin if it will help. I am still on 100 mg lamictal and 0.5 klonopin every day. I am still taking baclofen when my body says it needs it. Any and all suggestions and support would be a welcome relief. My husband is no support and my mother keeps calling via facetime from Florida three times a day to "chat" and I have to rally up as she is elderly. Just to add to the mix this week, I also have a funeral on Saturday as my brother-in-law died (too young) and this is an already unpleasant situation because of family dysfunction. I apologize for the long post but want you to know me straight up and need as much help as you can offer. I'm sure I've left some out.. Regards, Ro
  21. Hi - I've been on a myriad of psych meds for PTSD/chronic pain for 31 years. Have only been on Amitryptaline for a SSRI in the past six years, as I tried many antidepressants and they never helped. Tapered off all of them slowly with little problems. Almost two years ago I decided to slowly wean off the 22 meds I was on (includes opiates, benzos, nerve pain meds, muscle relaxers, PPIs, diabetes meds, sleep meds, etc). I am off 17 of them. I went very slow in my taper, taking 6Methadone was easy - 60 mgs in 12 months (but I'm still on Dilaudid). Only two have been hard - Lyrica and now Amitryptaline. Lyrica I went off 250 mgs in 14 months (off since August) and had to do liquid titration due to withdrawal symptoms. Amitryptaline I went off 50 mgs in 2 months - WAY too fast! I've been having withdrawal since starting my taper off Amitryptaline in August, SEVERE withdrawal in the 5 weeks I've been off - depression, anxiety, insomnia, nausea, nerve zaps, crawling out of my skin, adrenal surges, migraines, increased pain. I'm not tapering off the rest of the Klonopin and Dilaudid until this settles down. Any ideas how long the withdrawal will last?
  22. To make this short and sweet, I got put on these drugs by my doctor that was treating me for Lyme Disease as a way to help me feel better through the symptoms and problems of Lyme disease. And of course I believe that this actually made all the problems MUCH worse. Cut to now, I'm ive been on: 1 mg of Klonopin a day, split into 2/0.5mg doses. 450 mgs of Lyrica a day, all at once before bed for sleep. 100 mgs of Tramadol a day, split into 2/50mg doses. 60 mgs of cymbalta a day taken all at once in the morning. Basically before doing my research into the proper speed to taper, I was trying to drop klonopin first and basically had it down to 1/4 of a 0.5mg tablet. But I was feeling terrible as you might imagine because I was tapered down to that from the full amount over just 8 weeks. I though it may have just been lyme disease and feeling bad, but nope...So basically I went back up to the 1mg total again for now as to not completely fall apart mentally and physically. It was making me a nervous anxious wreck, and drained me of all energy, willpower, physical stamina, or physical strength. So now I'm here asking how I should go about getting rid of these medications and in which order please. I want them all gone at some point, but I would just like to get moving on whichever one I SHOULD knock out first etc. Any help would be appreciated. Thank you. Jeremy
  23. Hi I have been on psych meds for 20 years and the oldest one I am still on is lithium for 14 years. I thought it was longer but then realised that is less which is good I guess. Though still a long time. I am just taking the first step in this process, which is gathering my support team around me. I have to wait to see what my psychiatrist is going to say on Tuesday but I am going in there prepared for a "no" and if that happens, I will be changing to a new psych. I'll give mine a go but I don't think she will come on board. This is all so scary. These drugs have been both, at times a support, at times a crutch but also really negative. I shake and jerk all the time, which is a huge reason as to why I want to reduce or come off my meds. I am looking forward to getting to know you . Cali
  24. I have been taking Mirtazapine on & off for two years and have now become completely tolerant & feel no benefit apart from it knocking me out at night. I have recently been prescribed pregabalin to deal with the anxiety I seem to be suffering as a side effect of mirtazapine. The pregabalin seemed to help at first but the benefits have very quickly worn off. I have really reached the end of my tether with the devastating effect medication has had on my life. I don't think i should have been prescribed an antidepressant in the first place & there isn't a day that goes by that I don't regret taking one. I know I can't change what's happened but I can try to withdraw I try to get my life back.
  25. Hello, In 2006 I was prescribed Lyrica by a neurologist for minor epileptic seizures (I call them blanks) Dosage was at 50mg a day. This dose seemed effective and it helped greatly with my sleep. However in October of 2015 I started to experience more "blanks" and my dosage was increased to 75mg. Around November 2015 I began experiencing unusual side effects (feelings of dying, erratic behavior, feeling cold in the body, skin felt different). These became too difficult for me to tolerate and so at the beginning of the year on January 9, 2016 I reduced my dosage, per my neurologist by 25mg, with the goal of getting back to 50mg and staying at that level. However I am experiencing terrible withdrawal symptoms that I have to believe are caused by Lyrica, much like what is described in online forums. I am unable to get a straight answer from the different medical professionals that see me (Neurologist, General Practitioner, Endocrinologist) with regards to how Lyrica should be tapered. The neurologist told me to reduce by 25mg immediately. My GP and endocrinologist believe that these effects are "all in my head" because, I had a difficult year personally in 2015. My GP has since come around to being more supportive. I have a very small frame, 5 feet tall and normally weigh 102 lbs but now I'm down to 94. I suspect I am probably very sensitive to dosage changes. The primary symptoms I have now are the following: Shortness of breath (tight chest) Loss of weight Lack of appetite Nausea and vomiting Muscle pain (never have had this before) Anxiety Depression I now require constant support which is wearing my family down, my job has been impacted (having discussed the possibility of leave of absence), and I feel above all else that I am never going to make it out of this. As of this date, January 24, 2016, these effects have not stopped and sometimes I feel like I am worse than two weeks ago. What makes it the hardest is that my mother thinks it is all in my head, while my father believes that what I'm feeling is in fact a result of the Lyrica. Almost all of my friends have abandoned me because of my negativity and depression. My work colleagues avoid me. This "social deterioration" that is happening in my life is one of the hardest things for me to absorb. My questions are: Is there anyway to gauge how long this might last? I read about the 10% solution/reduction this morning. Would it be better for me to actually raise the dose by 10mg, remain on that for a while, and then step down by 10%? My GP prescribed Lorazepam for me so that I can sleep at night which thankfully works for the most part. She insists that it is OK for me to take this with the Lyrica. I feel she may be right but with so many symptoms it may be hard to know. Is it OK to take Lorazepam while I struggle through this? My GP also prescribed the lowest dose of Zoloft for the depression but I am reluctant to begin taking it. Has anybody taken an antidepressant while going through the Lyrica withdrawal process? Thank you so much for this forum and for reading this. I really appreciate the help. Didi Jan. 9, 2016: Lyrica 75-->50
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