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  1. I am relieved to have found some people who will understand what I am going through 🙂 I started taking domperidone (30 mgs daily) in November 2019 for milk supply. It worked wonderfully, and I’ve now been on it continually for nearly 12 months. In late September, I decided to start tapering the domperidone as part of weaning my baby. I tapered because I wanted a tapered reduction in my milk supply - I didn’t know that there could be withdrawal from the drug. Neither my OB nor my regular general medical practitioner warned me about the dangers of dom. I reduced to 20 mgs per day, and then 10 mgs per day a week later (October 2nd). By October 3, my withdrawal symptoms were in full swing. I had painful neck spasms, eye and facial twitching (especially on the left), panic attacks, trembling, dry eyes and mouth, insomnia, and nausea (sounds pretty similar to other dom affected members on here - @A123, @hankhzs, @socalchk19 ). I went to the ER on October the 4th. CT, MRI, and basic blood tests were all clear. After 3 days in hospital thinking I was going to die, I eventually diagnosed myself with drug withdrawal, with the help of Dr Google. The neurologist I saw on the 4th day said I should go back on the full dose of dom for a month, and then taper very gradually. I was discharged with a referral to see him again in mid November. I’ve had a few reasonably good days since then (it’s 18 days since I started back on the dom at full dose). However, I’m still having waves of the symptoms. It’s pretty debilitating - and I have a demanding job and 12 month old baby to look after 😞 Does anyone have any initial advice for me? Is it common to have withdrawal symptoms even after going back on full-dose? Is it realistic to hope that I’ll be symptom-free at some stage in the future? What would a good taper look like for dom? Does the 10% rule apply? many thanks 🙂 —— Nov 15th, 2019: started Domperidone 30mg daily for milk supply Sept 26th, 2020: started tapering Domperidone - down to 20 mg per day Oct 2nd, 2020: Domperidone down to 10 mg per day October 4th 2020: hospitalized with withdrawal October 5th 2020: back to 30 mgs per day Domperidone
  2. Hey Everyone, I took Domperidone aka Motilium which is an anti-psychotic dopamine antagonist for about 3 weeks in September 2021 to treat some gastrointestinal issues. I took 10mg for the first 2 weeks, but didn't see much improvement in my condition so I started increasing dosages during the third week. I was on 10mg most of the third week, but increased it to 15mg for one day only and seemed to be fine with no bad reactions until I tried a 20mg on another day. The day I tried a 20mg dosage, I was completely fine, but when I woke up the following morning I was tachycardic and having a panic attack. After it happened, I stopped taking the medication for several days, but to be honest I was in a bit of denial of my panic attack being caused by the medication because a lot of the info I came across online mentioned how Domperidone does not cross the blood-brain barrier unlike another dopamine antagonist called Metoclopramide aka Reglan. Prior to taking this medication, I had tried other alternative medications to treat my gastrointestinal, but none of them worked so I think that was also a big reason for my denial. After I stopped the medication because of the panic attack, I was feeling normal during the following days. I still wasn't fully convinced that Domperidone was the culprit for what happened so I ended up trying it again, but to be safe at only a 5mg dosage. The day I took the 5mg I was fine, but the following day I landed myself at the hospital. I'm here almost 1 year later, but have been still experiencing side effects from the drug which tends to fluctuate in waves and windows. I'm not taking any medication at this time out of fear of making things worse and my symptoms consist of the following: Mild head tremor. Sometimes seems like my head is moving side to side or nodding up and down without me purposely doing so. Symmetrical internal body tremor that I feel in my chest, arms and legs. They vary in intensity depending on the the day or week and I would describe as a vibrating feeling as if my phone is vibrating throughout my whole body. Mild external tremor that I notice myself, but is not as noticeable to others. Feeling at times like my body is being rocked back and forth while lying in bed or even while standing still Heart rate feeling elevated at random moments Apologies for the long backstory, but I would love some advice and insights this community can offer. The symptoms have been improving over time, but whenever I'm in a wave, I do worry that I might be going backwards.
  3. Hi everyone I’m glad to find this support group. I’ve been on Dom for a little over 3 years. I was on 60mg daily (20mg three times daily). I had stopped in the past for a week and had no issues no withdrawal I was creating that break the tolerance as dom was not upping my supply that much anymore. Well my daughter is almost 4 years old and we still nurse and nursing has been the most fulfilling experience of my life. But I want to get off this drug. I’ve managed to be down to 2.5mg twice a day so 5mg daily for two months and I have no symptoms at that amount. last week I thought I’m on such a low dose I should just stop the 1/4 tablet morning dose and just taper to the evening dose 1/4 tablet dose. Well that’s when the horrible insomnia started. The next two days I stopped the dom completely and I was up all night and my mind would keep racing. After two nights of this I got up at 5am and bit off a small piece of the dom and I managed to get 2 hours of sleep. Next day I went back on 1/4 tablet twice a day and slept great that night and woke up feeling great. Now I plan to stay on the 5mg daily for a month or so and plan to split the 1/4 tablet into half and reduce to 1/8 morning 1/4 night for 4 weeks. Then 1/8 morning 1/8 night for 4 weeks. after 1/8 it’s going to be hard to split further any suggestions or tips for furthering splitting ? I can’t believe the horrible withdrawal even at such a low dose? seems like I’ll be on this dose for the rest of my life at this point. xx
  4. Hello, I found this forum by searching for domperidone withdrawals and can see there are many other members experiencing something similar @FightingChance @RubyRo @ManiacValleyMama. I started domperidone in September for lactation (12 pills total - 3 times a day). I was on it for almost 2 months and started trying to come off in late October. I went down by 3 pills over a period of 2 weeks and that’s when I started experiencing some depression symptoms. My doctor wanted to put me on Zoloft but was concerned about the interaction with this medication and domperidone (concerning the heart). She insisted that I taper off of domperidone much quicker and I started to come down one pill every 3 days. Since then I felt like I have been living a nightmare. I experience almost constant anxiety, insomnia, agitation, restleness and more recently heart palpitations and shaking hands. I slowed down the taper a few weeks ago and I’m down to the last two pills. I am terrified of going down any further although I really want this nightmare drug out of my system. I know that for most people I have read about, they came off cold turkey and I’m confused about why I am having such a powerful reaction. My body feels like it is shutting down. I am hoping to get some guidance about how quickly I should taper off if the remaining pills and if I should even go up a dose. Thank you for the help.
  5. I am in need of help. I quit Domperidone Cold Turkey after being on 120mg for 3 months (4pills 3times per day). I experienced severe withdrawal symptoms a few days later but stayed off the pills for a week and a half. During that time my Dr wanted me to stay off the Dom & try starting Lexapro but I read Lexapro takes awhile to work so I decided to start taking the Dom again to re-wean off of it. I played with doses for a week or so & went back on at 3x2x3 to then drop 1 10mg pill per week from there. I’m experiencing all hormonal & anxiety symptoms. It’s as if I went through menopause when I quit the pills Cold turkey and I’m only 28 & 9months postpartum since I used this drug to increase breastmilk. I don’t know what to do. I don’t want to be on the pills anymore b/c I want to be done producing breastmilk but while I’m still taking them I still lactate. My brain hurts & I don’t know what damage I’ve done to my reproductive system as I wanted more children in the future. No Drs can help b/c this drug isn’t sold legally here in the US I got it from Canada. Please help. I want off so badly.
  6. Hi all, This is my short story... 06/2016 - 11/2016 - Domperidone for increasing breast milk supply (30mg-60mg was my daily dose) 11/2016 - I stopped Dom. cold turkey (30mg) => my life was in ruins...terrible strong withdrawal sypmtoms: anxiety, panic attacks, heart palpitations, intrusive thoughts, trouble sleeping, headache, vertigo, fatique, body pain and spasms, low appetite, etc. etc. etc..... These problems are improving and disappearing and some of them re-appearing again to a lesser extent. I can say that overall I am better than a year ago. But still it is not my old myself. I am very sensitive to stress and any changes in my life (for example to weather changes too). I refused any psych. treatment. My problems are clearly due to stopping Domperidone. I have never taken antidepressants, benzos or other psych stuff in all my life except for Domperidone. I have no psychiatric history. Please...ask all of you (especially breastfeeding mothers) to avoid this dangerous drug. There are FB groups where mothers give advices how to take it, where to buy it, etc...It is one big dirty bussiness with health. And what now? I will still fight... Sorry for my English...
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