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  1. hi,all been on &off antidepressants for 20 yrs but never felt this crummy.since stopping Paroxetine have had flu-like symptoms ,then fatigue loss of appetite,taste changes,eye problems(excessive blinking actually started while on it,that's why I quit).depression,anxiety,just miserable,wondering if I should reinstate or just try & hang in there.I was on it about 6 mos.stopped May 4 after about 7 wk taper.thanks for any suggestions
  2. Hi, I just wanted to share my experience of this drug and what I am going through. I was put on seroxat at 18 due to messing with recreational drugs. I was fine on 20mg for the next 17 years living life to the max!!! However, due to the birth of my son i wanted to be drug free, and had not had any symptoms for 12 years! I went to the doctor and she said to come off it over a few weeks and I'd be fine. This was not the case, after 7 weeks post taper and about 3 weeks off totally I had a total nervous breakdown. Dr put me back on 20mg, this was 4 months ago. Since then my nervous system is in complete meltdown, im suffering RLS, hand tremmors, depression, anxiety. The Doc suggests trying higher dose of Paroxetine and / or Mirtazipine. Has anyone experienced this, what did you do? Word of advice do your own research and read Shipko, and Healys work on SSRI discontnuation syndrome before you decide to come off it, especially if you have been on it for many years! Don't make my mistake and just trust your Dr!
  3. Moderator note: link to benzo forum thread - Miko789: Xanax withdrawal/tapering Hi, I'm new to the forum, I have some questions I want to ask. My doctor prescribed effexor for depression, in 2009. Now I'm free of symptoms and I managed to come off with withdrawal symptoms though. That's with the antidepressant. Now I'm on Risperdal consta from November 2013 and seroxat 10mg. My doctor prescribed with risperdal consta 3,3mg/day long acting injection every two weeks. From February 2015 he lowered the dosage to 25mg/every 2 weeks equals 1,66mg/day. I tried to lower the seroxat 10mg but after 40-45h I have withdrawal symptoms vertigo, dizziness. Is it possible to cut down seroxat? How about the Risperdal consta (long acting injection). Has anyone tapered off completely without withdrawals? I read about the 10% harm reduction procedure to taper off and I'm going to tell my doctor and follow. thanks in advance
  4. Hi everyone, So glad to have found this forum in my journey weaning off Paxil. Because of severe withdrawal symptoms during my doctor's recommended tapering schedule, I'm weaning off Paxil painstakingly slowly (liquid prescription, with a syringe). I have a question about tapering at smaller doses. I accidentally missed a dose (just 1.2 mg.) on January 17. Anyone who has taken Paxil knows that you do. not. skip. a dose. I don't know how it happened, but I forgot to take it one night (for the first time in about ten years). For the next TWO WEEKS, I was nauseous, had trouble eating, had mood swings, and worst of all, had some very scary depersonalization (feeling like I was in a dream or on LSD). Very scary. So, this can really happen from just missing a tiny 1.2 mg. dose? I called my doctor and they said this "isn't because of Paxil." Lol. Thanks so much! (This is why I'm so grateful for this forum--people actually dealing with the reality of tapering off these medicines.) Wouldn't tapering get easier as I get down to lower doses? ? What am I going to do at lower doses? The 10% method sounds good in theory, but yikes -- it will take forever just to get off 1.2 mg. My eventual goal is to get off Paxil and Zoloft, but my primary goal is to stay alive. I appreciate your thoughts and opinions! Thanks! I ran out of room in my signature for my quite-lengthy history, so I am expanding it here since this is my intro post: On Paxil since 1996--anxiety and depression. It worked for a while, but had to keep increasing it. 20 mg --> 40 mg --> 60 mg. For years I've wanted to get off it -- it wasn't working anymore, but very difficult to come off. Early 2013--Getting treated for sleep apnea (with CPAP) eliminated about 75% of my anxiety. Who knew?!?!? How long had I had sleep apnea, but treated anxiety with meds? March 2013: Feeling so good with CPAP treatment that I started weaning off Paxil about 10 mg/month: 60mg to 50 mg to 40 mg (NO negative effects whatsoever--if anything, I just felt better and better.) July 2013-- went from 40 mg to 30 mg. Some dizziness; nothing major. Starting a new job; paused taper. June 2014, began Paxil taper again, going from 30 to 20 in one week. (I can't believe that a medical professional actually advised me to do this.) This was very, very bad (dizziness and suicidality--the first time in my life--very scary), so went back to 25mg. Stayed at 25 mg. for another year. Not looking forward to going back down and continuing taper! In June 2015 started a cross-taper while adding Zoloft--went from 25 mg. Paxil to 20, to 10, to [this was the most difficult one] 5.) The cut from 10 to 5 mg gave me akathisia; nausea; suicidal thoughts; rage; and severe anxiety. Most of my time was consumed in dealing with Paxil tapering effects. August 2015 -- obtained a prescription for liquid Paxil. September: 4 mg Paxil October 2015: Suicidality -- doctor advised me to go up on Zoloft; I did so to save my life. Now at 100 mg Zoloft. (But it's not working -- my exercise, eating, meditation, acupuncture, and supplements are.) October to December 2015: 4 mg Paxil --> 3 mg --> 2 mg --> 1.6 mg. Symptoms are tolerable at this rate; the worst is a feeling of being intoxicated for several hours a day. But going this slow makes me feel like it will take forever to get off! ! ! Currently: 1.2 mg Paxil. Also: Vitamin D; Vitamin B complex; magnesium; plenty of protein; exercise; acupuncture; meditation/mindfulness; working with a naturopathic doctor.
  5. Hello Surviving Antidepressants team, I am so glad and grateful you exist. One of the most challenging things about withdrawing from antidepressants is the feeling of loneliness. Although I'm new to the site today, I used Paxil Progress in 2013 and have often browsed SA since. I cannot overstate how comforting it is to know I am not alone and to see people with such kindness and wisdom. Here is my introduction. I'm sorry if it's long, rambling or all over the place. It's kindof cathartic putting this down, even if it does stir some uncomfortable feelings and memories. I have wanted to stop taking Seroxat since 2006, when I was 26 years old. I believe like most psychiatric drugs it blunts all emotions, and has turned me into a zombie that craves carbs and sleep, making me fat and unhealthy. It's also killed my libido for many years. Then in 2010, aged 30, I met my partner and knowing he was the one, I have since wanted even more desperately to stop Seroxat as we'd like to have children. I'm 39 now, and fear time is running out, but would never want to get pregnant and force this drug on a developing baby. I hope I have correctly set up my new account today and am right in doing this introduction. As per my history below, I have been tapering using the 10% method since the middle of last February. I am using liquid Seroxat, which here in the UK is formulated so that 10ml = 20mg. This means practically that I consider my doses in millilitres. I use a two different types of oral syringes – the larger has 10ml total capacity broken into 1ml / 0.2ml increments, and the smaller syringe has 1ml capacity broken into 0.1ml / 0.02ml increments. My latest programme of tapering has been very comfortable and I have very little to report. I suspect I have had occasional symptoms but I have been very careful not to catastrophise or ruminate, having learned that from my previous taper and various psychological therapies (e.g. CBT) in the past. I also believe that some health complaints are part and parcel of human life, whether antidepressants or involved or not. However, I am introducing myself here as I have had an unexpected crisis in the past two weeks. Possibly because it's been a busy Christmas and I was not paying much attention, but for my latest reduction of 22 December, I took 2.92ml instead of the 2.98ml I was meant to take every day. I did not realise this until five days later, on 27 December, when my other half happened to notice I'd written 'take 2.98ml daily' on the bottle box but saw me measuring out 2.92ml. This means for five days I had made a something more like a 11.2% drop than the 9.9% drop that was planned. As it happens, on Christmas day, I felt very poorly with massive anxiety and chest tightness, repeating again on 26 December. By 27 December – the day I realised I had been taking too little Seroxat – I was having horrible digestive issues with lots of heartburn, despite avoiding all the usual food causes of this and eating very conservatively for the festive period. On 27 December and every day since, I have taken the amount I was meant to take for this cycle – 2.98ml, or 5.96mg. But this is where the real difficulties have emerged. My sleep has become very broken, and I am waking every couple of hours in a state of awful panic, with a feeling of inner trembling and bizarre, disturbing memories, phrases and thoughts – thoughts that are feel like they're written in bright neon light and someone is turning them on and off randomly with no logic and no intention by me. Physically, my breathing is shallow, despite consciously trying to practise deep breathing, and my digestive system feels like it is burning. This feeling is continuing into the day and although I'm trying to 'change the channel' and do something else, it's distinctly there in the background. As the panic awakenings seem so reminiscent of my 2013 taper, I quickly realised what was happening, even if on this occasion it has felt milder. I consider that period of my life extremely traumatic, and so it's not something that I like to revisit in my mind. And this in turn fuels the panic – I'm praying that history is not repeating itself – I find that prospect terrifying. My GP is useless and point blank refuses to acknowledge withdrawal exists, and has a 'told you so, you should stay in it for life' attitude if I ever get into discussion with her about my difficulties in coming off Seroxat. Fortunately, I can request the repeat prescription for liquid Seroxat online, so I don't have to have any interaction with her. In fact, I'd rather not have any interaction with medical professionals on this subject. In my own experience since I moved to a new area in 2013, I've only encountered hostility and cynicism. I've already decided in my mind to remain on 2.98ml (5.96mg) and not drop again for a few months (my plan would ordinarily be to drop to 2.7ml / 5.4mg from 19 January and continue onwards). My questions are related to this episode, but also more general questions that have weighed on my mind for ages: 1. Do you think my excess drop could have had an effect on me? Even if, in my case, it was a tiny difference? 2. Do you think I've technically updosed, considering I noticed my mistake after just five days? 3. Is this tiny excess drop plus subsequent updose a possible cause for my pronounced symptoms? Can such tiny variations really have such a strong effect? 4. Does stabilising really happen? Could my plan to remain on 2.98ml for a while now offer stabilisation? 5. My sleep pattern for the past week has been extremely disrupted. Is broken sleep better than no sleep? Should I give in to the urge to nap in the day because at the moment some sleep is good, and if my body is craving it, should I listen to it? (I'm self-employed and work from home so this is possible for me). 6. Do medical professionals resist recognising the problem of antidepressant withdrawal – especially now in the face of such strong evidence – because they'd effectively be admitting they got it wrong, and fear it will open the floodgates for legal action? (I get very angry about this). 7. My partner and I plan to move house in 2019 and get married soon after. Should I put further tapering on hold until after these stressful events? (I hate having to put my health plans on hold like this, but I'm also a realist who doesn't want a repeat of my 2013 trauma). If so, considering I'm now on 5.96mg, would getting to a round figure – e.g. 5mg – be sensible, since I could ask for 10mg tablets and simply cut them in half? Getting from 20mg to 5mg and being stable would still be a positive achievement! I appreciate that some of my questions are really more for me to find the ultimate answer, but I'm still very grateful for people's thoughts and experiences. Many, many thanks. This website and Paxil Progress back in 2013 is a genuine life saver. ______________ MY HISTORY______________ 2002 to 2007 22 to 27 years old - First prescribed Seroxat 20mg daily and taken properly, fully compliant. Do not have records, but attempted to stop by alternating doses around 2006, age 26. Was awful with terrible brain zaps and vomiting. Reinstated by psychiatrist, and pushed up to 40mg by early 2007, age 27. 2013 failed Seroxat taper 33 years old - January to October 2013: 40mg to 0mg Seroxat, by dropping 2mg every fortnight. Did not know of the 10% method. Terrible reaction soon after hitting zero. - November to mid-December 2013: took various drugs prescribed by doctors who would not recognise withdrawal, including diazepam, quetiapine, zopliclone. I did not continue with any of these drugs after mid-December 2013. - January 2014 was back fully on Seroxat, and worked quickly back up to 20mg from mid-December 2013. Latest, 2018 taper, following 10% method, starting with 20mg Seroxat 38 years old - Saturday, 17 February 2018 – 9 ml / 18 mg - Saturday, 17 March 2018 – 8.1 ml / 16.2 mg - Saturday, 14 April 2018 – 7.3 ml / 14.6 mg - Saturday, 12 May 2018 – 6.58 ml / 13.16 mg - Saturday, 9 June 2018 - 5.92 ml / 11.84 mg - Saturday, 7 July 2018 - 5.34 ml / 10.68 mg - Saturday, 4 August 2018 – 5 ml / 10 mg - Saturday, 1 September 2018 - 4.5 ml / 9 mg - Saturday, 29 September 2018 - 4.06 ml / 8.12 mg - Saturday, 27 October 2018 - 3.66 ml / 7.32 mg - Saturday, 24 November 2018 - 3.3 ml / 6.6 mg - Saturday, 22 December 2018 – Meant to be 2.98 ml, but between 22 and 27 December, believe I took 2.92ml by mistake / Meant to be 5.96 mg but by mistake, probably took 5.84mg daily between 22 and 27 December During this latest taper: - No other pharmaceutical drugs. - Rarely drink alcohol. - Drink between 1 and 3 cups of (black) tea or coffee a day. - Take vitamin D supplement as was found to be deficient in it in spring 2018 (my guess is due to not liking/eating oily fish, not being a fan of sunshine and being overweight – I'm about 18 stone, or 252lbs). - Also take a general multivitamin/mineral approximately every other day. - I use an e-cigarette lots. I gave up smoking in 2015 after a chest infection and so vaping is my nicotine source.
  6. Hi, I was initially put on 37.5 mg paroxetine during a postpartum depressive episode in June 2016. My pdoc suspected the dose to be too high and reduced to 25 mg. I held on 25 mg for almost a year, and then my pdoc and I decided to try a dose reduction to 12.5 mg. I had a few brain zaps, but nothing serious, so I held there for a few months. My pdoc and I decided to drop to 0 mg in October 2017 (by taking 12.5 mg alternate days then zero). Again, only brain zaps were experienced. Four months later, at the beginning of March 2018, severe protracted withdrawal kicked in. I had not discovered this forum, so I immediately jumped to 12.5 mg at the recommendation of a doctor friend, and several days later jumped to 25 mg at the recommendation of my pdoc. When I experienced what I now know is a wave, I thought the paroxetine dose was not high enough, and my pdoc increased it to 37.5 mg. I have been on this dose for May and June, but now I have developed really loud tinnitus, and I suspect that the 37.5 mg dose might be too high. My pdoc supports my reducing to 25 mg. However, I don't want to destabilise my system. I have tried to work out the pharmacokinetics of the controlled release tablets, to see how to 'spread' my reduced dose over 24 hours, but have not found much on the internet. My intuition would be to take my 25 mg controlled release in the morning, along with 5 mg immediate release, so that I would have a peak and then a gradual dose over 24 hours. This would reduce my dose from 37.5 mg over 24 hours to 30 mg over 24 hours. Since I strongly believe that my system is flooded with serotonin, I think that this step won't destabilise me as there is an accumulated 'stash' of serotonin floating around my system. Any advice from the seasoned taperers out there? Thanks for hearing my story, Bee5
  7. Hello Everyone, Let me introduce myself. You can call me Sebas (38), i'm from Amsterdam. Hope my English is okay. I was diagnosed with anxiety issues around 2004 and then started using Seroxat, I believe it's called Paxil in the US. I'm aware by now of all the problems this medicine is causing. In other words, i've read a lot, and i mean A LOT about it. I can almost graduate about the subject After several attempts to stop, I found out in 2015 or 2016 about the 5-10% reduction rule. That helped me from 20 mg (10 ml) tot 12 mg (6 ml) in about 1,5 years (estimated). I'm using the fluid suspension and some squirts for accurate dosage. From 6 ml down to 5,8 took me 5 weeks to feel allright, then i stabilized for a week and went back down from 5,8 tot 5,6. All the usual withdrawal symptoms occur during tapering periods such as illness, nerve system problems, visual, fatigue, stomache cramps and also i'm countering eye circles. Since the last dosage (from 5,8 tot 5,6) i've been feeling bad for 9 weeks already. Especially my stomache and my energy. So i'm now wondering what to do, wait (and wait...), go back to 5,8, go back to 6,0 of try to switch to another AD. Cause this one is really @#$%&* mainly cause of the fast half-life period. I've read about a cross tapering method. I asked my doktor for a psychiatric consult about it. Or...could it be my body (and mind) is telling me this dose is beneath the minimum that i just need for my personal wellbeing. I'm familiair with magnesium, omega 3/fish oil and multi vitamin for support. I'm looking forward fto exchanging some knowledge. Bye Sebas
  8. I took paxil 12.5 mg for 10 months due to problem of panic attack in closed spaces. then i slowly withdrawn from it in 1 month. I am not taking any medication for 7 months except due to some depressive events i took paxil 12.5 mg for 10-15 days 2 months back. Now i have heart palpitations and stomach cramps. I had headache but now that has gone away in one week since i started eating walnuts. I hope slowly my other physical symptoms will also go away. The only thing which makes me sad is anxiety sometimes due to emotions and also the fear of relapse. Please tell when will i become emotionally stable. I have heard that after 3 months situation starts improving. Is it true?
  9. Hi Everyone! I can't even express in words how glad I am I found this forum! I've been on 25mg CR of Paxil for 11 years now. Started to taper off at the end of last summer as my life is much more stable now and I was tired of feeling numb/like a zombie/tired ALL THE TIME. The difference I've felt since being on such a smaller dose now is day and night. I have energy and am not falling asleep during the day anymore. My anxiety has also been incredibly manageable and I haven't struggled too much with it. I like so many have experienced that my doctor has no idea what she's talking about. She advised first to switch from the 25mg CR version to 12.5mg CR version, which I did, and the first couple weeks were rough. It got better, but then had another relapse of symptoms 6 weeks in. I ended up soldiering through as it was manageable and stayed on the 12.5 through the end of the year. At the start of this year I began to taper off again, first to the non-CR version, then down 2.5mg/week per the advice of my doctor. I experienced no withdrawal symptoms until I hit 3.75 (they were still very mild) then some more intense but still manageable at 2.5mg. The big mistake I made was going down to 1.25 when I wasn't feeling great, because yesterday was a day from hell. I could hardly get through the day, it was so awful. So, after reading the advice here I went back up to 2.5 last night and am feeling much better today. Just mild symptoms (brain zaps mostly, and feeling like I'm going to cry at any point) which are tolerable and am hoping they'll subside soon. I am thankful to have read about the 10% taper off plan because my doctor literally told me I was at such a small amount now that I should be fine to hop off (HA!). Also really thankful to read that I only have to go back up to a little bit to feel okay again. I was worried I would have to reinstate at almost the full dose. I've been managing with a quicker taper due to meditation (headspace app), essential oil blends, running, long walks, pilates and weekly CB therapy (as well as lots of face time with Jesus). I also took a B Complex vitamin for the first time yesterday, which I feel helped too. Was super discouraged yesterday at my set back but am optimistic this new 10% taper plan will have me off in a few months. I am thankful to have found a place where so many are in similar spots to me as they are fairly rare to find in my day to day life. This isn't a race! Tapering off is TOUGH - let's do this together
  10. Female. Anxious disposition even as child. Did well making friends and enjoying life as a child. Struggled with getting to sleep though, due to worries. Displayed some ocd behaviour in teens ( maybe even before). Took and E aged 16 - big mistake. This exacerbated my anxiety and induced subsequent panic attacks. Age 19 ish ( 2001) was put on seroxat (not sure on dosage -it a strange time; experienced a lot of weird goings on with feeling weird, insomnia, - cant remember if this was before or on starting seroxat). started to feel better while on Seroxat. After a year or two, ( age 21) the doc, due to reports of suicidal behaviour on seroxat, decided to swap me to Citalopram ( 20mg i think). On starting Citalopram, I became very suicidal! Not sure why I wasn't swapped back but I perservered and must have evened out. Took Citalopram for 2 years and I felt good. Met my, now, husbandat 23 and thought life was brill and I did not need Citalopram anymore. Didn't follow any kind of tapering ( didnt know I needed to) and must have stopped cold turkey. Felt very suicidal so went back on Citalopram and evened out again. Must have cut fown to 10 mg and stayed on this for 4 years, functioning well. I did my degree. Am a bit of a perfectionist so worked very hard ( too hard), as well as working 16 hours. End of 4th year at Uni, I was burnt out. Overloaded, overwhelmed, run diwn physically and mentally. A 'nervous breakdown' ensued. I tried to go back to uni to finish the last couple of months but couldn't. I finished my dissertation abd transferred my degree so I still gained a 1st class degree but was very ill. I, nearly straight after became pregnant. I, however, suffered a horrid missed miscarriage at 13 weeks. I had told the docs that I thought something was wrong, 5 weeks earlier, but was dismissed. I took 2 months off work and was a mess. The doctor gave me diazepam and zopiclone which helped me ride the worst. Somehow I survived and became pregnant again not long after. Pregnancy was hard ( pains and bleeding) but I lasted. When my baby was born, it was tricky ( so much new to learn; I developed some ocd habits to help me feel in control but it was ok. Things leveled out. I was still on 10 mg Citalopram ( docs aware of this). I was doing well. I had snother baby a couple of years later, aged 29. Pregnancy was s bit better than the previous one but I still had bleeding, so was nervous but it was ok. I continued on 10 mg of Citalopram and was doing ok. When my son was 1 though, I took on too much. ( Lots of voluntary work with high expectations and serious responsibilities. I juggled trying to be a good mum, with several voluntary roles, housekeeping, got a small part time job too. over this time, for some reason i was slowly tapering Citalopram down ( no guidance really other than from the doc that you can take them every other day (? Is this where things started to go wrong?). I thought I was doing ok, although on reflection I was burning the candle at both ends. At the age of 32 I began to experience sciatica and fatigue. Doc suggested I try coming off the pill. This didn't help. This got worse until I developed severe abdominal pain/ heavy periods/ Nausea/ severe IBS - doc queried cfs but i was not yet referred. I was probably taking 5 mg of citalopram a couple of times a week ( not great I now realise as not steady) but as much as I was feeling physically crap, I was still functioning I stopped the Citalopram and took nothing for 10 months. The voluntary work took on another level; I imploded and had a 'nervous breakdown' ( I had a ridiculous amount of stress which was causing me to struggle with sleep and I was beginning to get suicidal ideation and brain fog before this, on top of the other physical issues, then a stressful voluntary work event sent me into a breakdown ( crying/ anxious/ ocd/ sleeplessness/ some kind of sleep apnea where id wake up gasping for breath.. I was put back onto Citalopram. I quit all voluntary work. I requested to start what i thought was low - 5mg. They pushed me to go to 10, saying 5 was ridiculous. At the same time, it was thought I may have endometriosis, so in 2017, aged 35 I had a laparoscopy operation to check; it was not. I think the operation and anaesthetic helped finish me off. The Citalopram made me increading suicidal to the point where I had suicidal ideation 24/7. i was somehow still getting sleep at this point but obe day was so suidsl, I went to A&E. Saw a psychiatrist for the first time in my life ( aged 35). Was tild to stip Citalopram strainght away. Discussed alternatives ( antipsychotics/ Mirtazipine, other ssris etc). I took nothing fir a week then another team of psychiatrists advised on possible meds. It was decided I would try Sertraline ( another Ssri??? why did i do that) I started it on 12.5 mg ( much to dismay of psychiatrists) but I was not given time to level out; They kept bumping up dose so i would get to the 'theraputic' dose of 50mg. Another level of Hell ensured which I hadn't yet visited. Loss of appetite, diarrhea, jitters, suicidsl ideation in the extreme, depression, muscle twitching, increased brain fog, intrusive thoughts, rapid weight loss, hellish insomnia. This on top of the fatigue and pain and ibs i was already experiencing. Despite my reaction, I was told to persist; I think they thought it wss my normal behaviour ( never felt this bad even when I wss 18 before starting Seroxat). Things levelled a bit after about 3 1/2 months. I was able to function a bit and go to my part time work and look after the home but it was tough. I developped tinnitus on Sertraline and had increasing brain fog. I also now suffered from depersonalisation and still had IBS and fatigue and body pain. In November last yesr, Another doc suggested i try the fodmap diet. i tried this and after 2 months it was very apparent that I had a gluten intolerance. Stopping gluten cleared up my IBS and most of the body pain. I still however battled with increasing brain fog and fatigue and severe depersonalisation to the point i couldnt go out at times and battled with it on the way to/ at work. Sertraline was not for me. I decided to cut down. the only advice id had about tapering was every other day from my doc but I thought Id do it slower. i cut miniscule amounts off from April 17, no real structure. I did this slowly but without checking i was stabilising, from April to August when i got to about 25mg. July and August, my brain fog became unbearable; unable to do shopping, unable to have a proper conversation, overwhelmed by simple questions, I became hypersensitive to light and sound. I often wore shades even on cloudy days ( looking back, noide and light sensitivity started with sertraline). I wore earplugs to limit noise at home with loud children. I became snappy due to loud noises. July August this got worse and worse but I was still functioning. I began doing sertraline every other day at 25 mg in August I think, maybe before then BAM one night in early September I had severe anxiety and total insomnia. This was relentless. I was desperate. I needed advice. Do i go back? Stop? go down? even dose to take each day. I was severely suicidal and devepped what seemed to be fit type episodes where i would be breathless, painful stomach, weird tingly head, palpitations, neck pain and lower back pain, loss of appetite, feeling flu like, becoming extremely dehydrated to the point i would guzzle water down cup after cup, My body contorted in painand tension, I eould then becime cold snd shiver. these episodes could last a couple of minutes but up to 16 hours at times. i was desperate for advise. over September/ early october, I visited A&E 4 times, desperately suicidal; I spoke to my doctor, I spoke to the nhs 111 line, I paid to dpeak to a psychiatrist but NO ONE would advise me, passing me round like a hot potato, telling me to do CBT and wait fir an appointment with a prescribing psychiatrist in december! I wouldn't live until then! I stayed with my mum as I felt so out of control with these fit type things ( including one where paramedics came and I was growling/ disorientated/ confused/ dehydrated so my eyeballs snd skin were dry- I was agressive ( never been like this in my life). I didnt want to be near my family due to my behaviour so I stayed with my mum for a few days. she lives in another county. I went to A&E there and they listened to me and made me feel worthwhile. they referred me to their home treatment team, who visited me but once again were unwilling to discuss specifics of medication. i was given zopiclone and diazepam. my husband and i didnt know what to do. we saw this website but I was still confused. I 'evened' out the 25 mg every other day dose to 12.5 in September. This may have made things worse, not sure which is why i wanted advice. The home treatment team managed to get my appointment with a prescribing psychiatrist movef to early october. I saw her and she laughed at my idea that it was withdrawal. she suggested I try an snri or mirtazapine. After reading this site, I wad reluctant. I am still referred with that team of psychiatrists but another appointment is in 2 months and they just want to throw more meds at me without showing any understanding of withdrawal. 5 weeks ago at an extreme point, before seeing the psychiatrist, I stopped Sertraline. I have been off it for 5 weeks. The fits seem to have all but stopped. but my anxiety is through the roof. I have severe stomach pain, reactions to shsmpoo, brain buzzy feeling whch zaps at times, particularly with high pitched loud noises. my sensitivity to sound is horrendous, as are my emotions and sensitivity to stress. I am overwhelmed by anxiety and ocd type ruminating thoughts about the situation and about my children's health. I am in sick leave from work since 2 months ago, as is my husband ( to look after me and the children). I have managed to taper off zopiclone and my sleep varies depending on my anxiety at night ( minutes up to 6 hours, broken sleep). I took dome diazepam but the ladt dose in September affected my breathing and I became severely breathless for 4 hours andmy gums bled so i haven't taken it since. I have applied for pip disability living allowance. we are shortly going to have no miney coming in and do t know if and my husband will be able to go back to work or if he will be fired ( I assume i will). I read this site but felt I couldnt reinstate as I never felt good on Sertraline. what now? do I try to ride it out? So suicidal and hopeless at times. Do I reinstate to citalopram instead? Do i try something else? Low dose mood stabiliser/ antipsychotic? Ps, I was referred a month ago to the ME/ Cfs people for diagnosis. Still waiting to hear.
  11. Hi i wanted to ask if anyone in here experienced extreme fatigue ? All day I feel so tired and the only activity I can manage is an hour walk but even through walking I feel very weak.. the mornings are the worst when I wake up after 10 hrs sleep I have no energy my body just lies in bed but have absolutely no energy did anyone experienced something similar ? Thank you in advance
  12. Gidday everyone. I am an ex-Paxilprogresser and when it closed I was very sick of the long horrible process, so I didn't join everyone here back then, but I finally paddled over to the U.S. from Australia. I have to keep reminding myself that the turtle got onto the ark by just keeping going, one step at a time! I started to have some decent days because I found a herbal remedy that has brought my headaches and migraines from 20 a month to 2 over a 12 month period. This means I can actually DO SOMETHING and is a wonderful relief. On those good head days, I always wonder how my old friends are going, so I intend to look you all up! I have decided to put up my history, a bit at a time, or it would be too laborious to read, so that's where I will start.
  13. Hi Everyone, I’m glad to find this forum, which I joined because I’m about to try to get off Paxil, which I’ve been taking for 25 years. I’ve tried twice before and the withdrawal was so severe that I ended up in the ER both times. This was before SmithKlineBeecham admitted there was a problem with withdrawal, and no one, including the doctors I saw, knew anything about it. Of course I tried to taper way too fast. I went back on it because the withdrawal was intolerable and because it did work on my depression, from which I’ve suffered all of my life. Now it has quite suddenly stopped working. I’m taking 60 mgs of Paxil and 300 of Wellbutrin (time-release version). Other drugs I’ve tried over the years include Elavil, Triavil, Pamelor, Valium, Effexor, Celexa, Zoloft, Desyrel, Prozac, Remeron, Brintellix, Viibryd, Lexapro, plus (at various times) Klonopin, Ambien, Trazadone. For about six months I also took antipsychotics because a doc thought I might be bipolar 2. It was a disaster—never have I been so terrified of mental illness. Those drugs included Seroquel, Lamictal, Cymbalta, Quillivant, and Latuda, which caused akithesia (sp?). My poor brain has been under the influence of these substances for a total of 32 years now. I’m deeply anxious about discontinuing all meds, but determined to do it. I want to know the truth about what my mind is like without them. I wish I knew of a specialist in my area (upstate NY) I could consult. My doc is great, but I don’t think he knows more than the average shrink about the withdrawal syndrome. I plan to start the taper on May 1st, and lessen the dose once a month by 5% of the previous month’s dose, a schedule that seems to be generally recommended. I’m scared! And that’s my situation. On a more personal note, I’m a writer and teacher. Hobbies are sewing and gardening.I look forward to exchanging info. With others here.
  14. Summary I'm 25. I was taking paroxetine for 3 years. Started at 20mg, then 30mg, then 20mg. I reduced it to 10mg for a few weeks before stopping it completely. 3 or 4 months have gone by, but I don't feel fine and many objective problems have appeared after cessation. Hyposmia is bothering me a lot, it started after changing the dosage to 10mg or stopping it, not sure which one. I'm also very confused, perhaps because of lack of sleep too. I'm thinking about reinstating, but I'm concerned if it's a mostly risk-free proposition if it doesn't work and I stop taking it. The prospect of everything easily going back to the way it was before is very appealing. I want to go back to normal even if that means tapering will last much longer vs suffering indefinitely. Full story I apologize for the lack of precision, but I've been really confused lately. I did a fast taper at the end of 2018. I had been taking paroxetine since sometime in 2015, not exactly sure when I started but I think it was the 2nd half of the year. I started at 20mg, then increased it to 30mg in the middle of 2016 and changed it to 20mg at the end of 2017 for a few weeks or months, then started taking 30mg again. Sometime in 2018 I reduced the dosage to 20mg once again and kept it there. I didn't notice any withdrawal symptoms at the time, I did become more energetic for a while though. Now I can see the last time there were some of the same effects I'm currently experiencing, although in a much smaller scale. In November, I think, I dropped the dosage to 10mg and took it until the end of the year, it might have been middle December o early January the last time I took it. I had taken paroxetine for a few months almost 10 years ago and stopped cold turkey, which resulted in an awful withdrawal for 1 or 2 weeks, I was 17 then. Since I didn't feel any of the physical effects from the first time, I assumed my tapering was working fine. But now it's clear to me that things have changed for the worse and I started attributing these negative effects to stopping the medication. I work as a programmer and have been finding much difficulty in putting in the same number of hours and achieving the same results, it's like I can't think properly and my brain is not working as well as before. I would say my memory and concentration appear to not be as good as before. When I remember and look back, I would say I was doing best at 30mg / day. The reason I stopped was that I started thinking it was making me dumber, now it's hard to say whether it was the medication or something else that caused that perception. Anecdotally, I found some guy online who reported a similar thing: https://www.physicsforums.com/threads/antidepressants-and-iq.590056/post-3832506. It's been 3 or 4 months since I stopped taking it, I thought what doctors say about withdrawal lasting only a few weeks was correct and didn't imagine such a serious problem wouldn't be mentioned. The most worrying thing for me is that I'm experiencing hyposmia and I believe it's because of the withdrawal - the doctor said this might be the case if it started after stopping the medication. I think it started before stopping the medication but after reducing the dosage to 10mg. What I can say with complete certainty started happening after stopping the medication: - I've made many bad decisions, financially and otherwise - in contrast to things going very well before. - I've been confused a lot of the time. - People close to me have actually told me my life started going downhill after stopping the medication - and they are right. - People close to me started mentioning how bad my mood became. - It seems I no longer have time for anything - while I was doing a lot more before and still had more free time. - Work performance has gone down a lot. - I remember the goals I had, but I don't really feel like I have any goals now. I know I have them, but it doesn't feel the same, it's as if I were a bit dead. That's the best description, I feel like some sort of reactive insect now. - My sleep has become worse, but it's hard to say if external factors aren't contributing. - Keeping a train of thought is hard. When I sleep a lot and exercise I feel slightly better, which makes me question if taking the medication again in a small dosage is the right call. But I can't stay like this indefinitely either. Do you think taking 5mg for a week or so to check the difference is too risky based on what you know and other people have reported? Because I feel inclined to do that if it's harmless and might bring me back to normal. I'm considering even increasing it back to the previous dosage over time and start tapering very slowly after 6 months or so. I'm 25 if that matters. Thank you for your attention.
  15. I'm wondering if anyone else has or had experienced worsing withdrawal symptoms when switching from Paxil CR and Liquid SOLELY to the Liquid Suspension? I have been tapering slowing Since January by the following: (1 Pill = 12.5 CR) Starting dose of 2 (12.5 CR'S) = 25 MG OF CR Jan 21st: 1 Pill + 10mg liquid (2 weeks) 2/4: 1 Pill + 9mg Lq (3 weeks) 2/25: 1 Pill + 8 mg lq (1 week) 3/4: 1 Pill + 6 mg lq (2 weeks) 3/18 1 Pill + 4 mg lq (2 weeks) 4/1 1 Pill + 3 mg lq (2 weeks) 4/14 1 Pill + 2 mg lq (2 weeks) 4/29 1Pill + 1 mg lq (16 days) 5/15 1 12.5 mg Pill ONLY (9 days) 5/24 12 mgs liquid (8 days) 6/1 11mg lq (12 days) 6/13 10 mg lq until today 7/10 I have a feeling that the liquid isnt nearly as....either effective or has as long a HALF LIFE as the company would have me believe. When I first started the taper I was taking the 1 pill and taking all the liquid at 9 pm at NIGHT. Within 16 hours of the night dose I was having bad symptoms until I took the next dose. This went on for a week. I then experimented by switching the timing of the liquid to the morning at 9 am. Withing 2 days the withdrawal syptoms had switched from the evening to the morning! What clearly was happening, was the liquid was NOT staying in my system anywhere near as long as the CR. After a week of suffering the withdrawl symptoms at the new time, my doctor suggested taking half the liquid dose every 12 hours, since it obviously had a SHORTER Half life than the CR Pill, since my syptoms corresponded to ALMOST EXACTLY 16 hours after the last Liquid dose. With 3 days of splitting the daily dose into every 12 hours the symptoms had mostly resolved. Everything was going ok (not perfect but much better than the horrible symptoms when only taking the liquid once daily) UNTIL I recently finally got below the level of the pill and am ONLY on the liquid. Since I switched to the liquid ONLY I have been taking it every 8 hours -or 3 times a day, but the worsening symptoms have returned. Not as bad as when I was only taking it every 12 hours, but worse when I still had the CR for the majority of the dose. I THINK THIS LIQUID IS CRAP. I've only dropped 2.5 mg's in almost 8 weeks and I'm having WORSE symptoms than when I was dropping a 1mg every 2 weeks no problem. (Again with the CR pill as most of my dose. ) Any ideas? I mean, the fact that I had horrible symptoms correspnding to 16 hours AFTER the liquid dose, regardless whether I was taking it at 9am or 9pm, tells me it has to have a much shorter half life than they are saying, expecially since once I started taking the liquid 5mg ever 12 hours instead of 10 all at once things cleared up within 48 hours. And now that all I have is the liquid, I'm worse even though I'm dropping at only half the speed of when I still had atleast 12.5 CR. And! I'm taking it EVERY 8 hours: 3 mg AM, 3 mg Afternoon, 4 MG Night. I notice the electrical shocks in my head close to the time I am scheduled for the next dose, as if it's only in my system about 6 hours at a time. Help![/size]
  16. PaxilAbe

    PaxilAbe

    I'm on my third time trying to withdraw from Paxil. Was doing well for about 3 months after complete cessation. Started noticing withdrawal effects which became more severe after 5 to 6 months. Now am experiencing severe physical symptoms (body aches, insomnia, burning sensations) making day to day activities and work difficult. Considering reinstatement of Axil after 8 months just to try to get back to normalcy. Signature: Paxil 1998 - 2018 Tried short term switch to Zoloft in 2013. Tried withdrawal August 2016 - November 2016 Off Paxil November 2016 to July 2017. Severe symptoms. Reinstated. Trying again March 2018 - May 2018 taper. Off until present but strongly considering reinstatement.
  17. I'm bouncing back from two weeks of bad withdrawal, with intense headaches, poor coordination, and unsteady gait. I've started tapering early July 2016 from 10 mg Paxil daily for over twenty years for depression and GAD; I'm at 1,5ml (=3mg) now (I meant) 0,15 ml/0,3 mg. The last reduction hit me hard, so I'm taking more time, once again. Looking back, there seem to be three distinct phases of withdrawal for me. In the beginning, I suffered a lot of physical symptoms like nausea, dizziness, disorientation, sweating, and nightmares. About half way through, waves and waves of emotion were crashing over me. Now, at the tail end, it's a kind of weird cocktail, with plenty more of both to go! I've been supplementing with feverfew, GABA, phenibut, ginger, huperzine A, and B12. They all help to some extent, especially the feverfew, ginger, and GABA, but there's no magic bullet. The challenge for me remains to allow for the time and space for my brain to adjust. Just to allow the process to run its course. With just about every reduction, I have thought, well, the next one can be quicker and bigger. With the nasty implication, of course, of should be quicker and bigger. As if it is all some sort of competition, or battle of will power and discipline. The big obstacle here is my own sense of impatience and judgment. Constantly, I need to re-learn to surrender to the material reality of my brain, an organ that naturally requires the time that it requires. Now, at 1,5 ml (3 mg) 0,15 ml/0,3 mg, the temptation again is to rush, to jump, to have it over with. But it really doesn't work like that.
  18. 2010- Two years of severe headaches. Bad vision in one eye. Muscle pains. The doctors did not say anything. 2012- anxiety appeared. the first drug sertaline - a paradoxical reaction. I got depression, ss thoughts and other bad symptoms. 2012- 2016 paroxetine - - I tappered slowly, but I did not know yet that it should be stopped more slowly. 3 months without paroxetine and withdrawal syndrome appeared. Return to the drug worsened the matter. I crashed. Bridge with fluoxetine. A year passed. at the end of September 2016 I was diagnosed with Lyme disease. I did test in two different laboratories. 08/08/2016-now fluoxetin 20 mg 01/05/2016- now- triticco / trazadone 75 mg clonozepam - 04.03.2017. from 20.11.2017 I started tapper from 0.5 to 0.125 mg- when I got some relief from Lyme treatment. Now I am treated with ILADS ( Lyme and bartonella) and also tapper psycho drags. I want to not rule out the syndrome and stop the drugs safely. I am asking for support and exchange of experience, especially people who suffer from Lyme disease. I need to make plan. How to discontinue: clonazepam 0,125 mg, fluoxetine 20 mg and trazadon 75 mg How I feel now: Antibiotics have sustained discomfort from the urinary tract and improved the results of cytology. I have more windows, but I still experience strong hits of depression and pain in small joints, a specially neck. Through complicated diagnostics of Lyme disease and the syndrome, I do not know which symptoms are from what. Thank you for your attention, sorry for mistakes.
  19. Hi I am Hopefulstill and new. I started at 20 mg. Paxil...... Now years later on 50 mg. but seems to have pooped out. I am going to try tapering off. Started with 46 mg. yesterday Here goes! Glad I found this site
  20. I recently got pregnant and went from 10mg paxil to 5mg in one week and then completely stopped. I then had a miscarriage (about 2 months ago) and am having severe withdrawal symptoms. Would it be safe to go back on a low dose of paxil and try to taper off properly, or is it too late? I am miserable! Thanks in advance. Update as of March 29, 2017: Link to post below
  21. I have been on Paxil for 20 years. I was originally put on it for reactive depression from getting fibromyalgia . I don't need it now. I am not depressed anymore. My problem is that there is no liquid Seroxat /Paxil available here. I first tried bridging to Prozac. I found that moving from Seroxat to Prozac was too hard. I then tried dissolving it in water but my Seroxat tablets do not suspend or dissolve in water. They sink to the bottom of the glass. Does anyone know a reputable online pharmacy that sells liquid paxil and ships to Israel? There was a suggestion of using "Ora Plus" suspension liquid on this forum to dissolve insoluble tablets. I can easily buy Ora Plus from ebay with international shipping. What puts me off is that all the reviews of that on Amazon involve people using it to suspend tablets they give to their dogs and cats! It also contains some nasty sounding chemicals. The shipping cost is crazy too. But that doesn't worry me as much as the other two reasons. I take the gsk - glaxo smith kline version of Seroxat. I take 3/4 of a tablet - 15mg. It's the same tablet distributed to the whole of the European Union. Has anyone here successfully tapered off that without the liquid Seroxat? If so how did you do it? Anyone know an online pharmacy that sells liquid Paxil that ships to Israel?
  22. Hi, everyone! My name is Franny, and I don’t know if I’m doing this right, but I need to just type this out. So I just got over the flu and have just been catching no break, but for some reason, after I recovered, I started having anxiety symptoms I’ve never had before such as waking up in the middle of the night with elevated heart, feeling hot, then trembling and just an overall, very terrible feeling every day. (This is just so out of the blue and just so severe that I’m scared). I haven’t taken paroxetine in a year (quit cold turkey) and was doing pretty well. Life is good, I’m surrounded by good people. However, this panic/anxiety has been so bad recently, that I dug out the paroxetine (20 mg) and took one yesterday and the day before (haven’t taken one today yet). This morning when I woke up with this panic attack, I went to the hospital because maybe it was something else, and of course, I just have terrible anxiety so they gave me a lorazepam. (I did notify them I took paroxetine within the past two days). I felt pretty calm from the lorazepam but now I’m kinda getting anxious again. The only time I could get in with a psychologist is 2 weeks from now. In the mean time, I just don’t know what to do. Do I continue taking this 20 mg of paroxetine everyday until then? I just felt so desperate, and I’m just so upset because college is where I thrive and I just don’t know what’s happening; I could just cry right now. Again, I apologize if I’m not going about this in the right way, but I really appreciate your support and how strong you all are. Thank you.
  23. Hello forum! Female, 33, Sweden. Have been on Paroxetine, 20mg, for more than 5 years. In April 2017 I had my first major panic attack and ended up in the ER. My life completely changed and I developed panic disorder along with some GAD. Though the GAD may have been the underlying cause of panic, I don't really know. Since September 2017 I have been reducing my dose of Paroxetine, and am now on 10mg. Somewhere in December I got down to 10mg and thought I'd wait until I'm stable at this dose before continuing my taper. I have been using the Claire Weekes-method of trying to completely relax in the face of panic, and I seem to only have smaller attacks now. Palpitations have lessened, and I am less startled by my nervous system signaling panic. I have lately been feeling very off-balance/dizzy and sometimes theres an intense feeling of anxiety and dread in my body. Feels like there are bugs crawling around inside. Weird buzzing nerves? Dizziness is so bad I have to lie down sometimes. Last night I was holding on to the walls when moving around in my house. Feels like I'm losing my balance all the time, even when sitting on the toilet, but I can stand on one leg and walk in a straight line. So it seems to be some sort of misinterpretation happening in my brain, rather than an actual problem with my balance. Now to my question: When I wake up in the morning I usually feel perfectly fine. It is after taking Paroxetine that all of the horrible sensations start, and they seem to calm down slightly in the evening. Is this normal during withdrawal? Or does it sound more like I'm having actual adverse reactions to Paroxetine? They sort of worked until I developed panic disorder. But I clearly remember growing increasingly fearful and illogical during several months before I had that massive panic attack. Thank you in advance.
  24. Hi, I've been on SSRI's now for about 20 years except for a few years in the middle. First it was Prozac with BuSpar, and over the last 10 years Paxil with Klonopin. I'm in search of who I am off of these meds, and I'm sick of the side-effects (mainly sexual side effects of Paxil for me). I successfully tapered off of Klonopin over 1 year from 0.5 mg (finished that in May of '16), and I've been tapering off of Paxil for the last year and a half from 30 mg. to my current dose of 10 mg. This is my second deliberate attempt to get off of SSRI's. The first attempt was done very quickly in 2012 (over about a month) and it was a disastrous fall into extreme anxiety resulting in voluntary hospitalization for five nights in a locked unit. In 2014 I was switched from Paxil to a different drug altogether (Lamictal), and that was also a terrible event because the doctor had me go off of the Paxil too quickly, resulting in a quick descent into anxiety, then the worst soul-crushing depression I've ever experienced. I was out of work for 5 weeks. I'm happy to share more details later, but for now I'll focus on the here and now. So back to the current withdrawal attempt. I was down to 10 mg of Paxil in November, 2017, and I told my psychiatrist that I wanted to continue the slow taper. He prescribed liquid Paxil at the equivalent of 9 mg for 2 weeks, then 8 mg, but when I went to pick it up I was told it would be over $150. Yikes! The pharmacist recommended I look into having it compounded elsewhere to save money. After searching for a compounding facility, calling my doc and writing him a letter, I finally got the prescription for a compounded version of Paroxetine for $70 / month, plus $5 shipping. A couple weeks later it arrived, and I was very happy to continue my slow, controlled taper. That was around Dec. 22, 2017. That's when things went wrong. After a couple days I started feeling a bit cantankerous, fidgety, and my appetite increased. I had just re-started working out, and this adrenaline rush fueled my anger and appetite. You know that feeling when you've run out of fuel and you've got that hungry, angry feeling inside? I was feeling like this almost all the time. About five days after starting the compounded Paxil I had an incident at work where I lost my temper. I apologized and things smoothed over, but I'm pretty convinced that something wasn't right with the compounded medication. Maybe it was measured wrong; maybe the bitter cold affected it in shipping. I don't know, but I strongly doubt it was 9 mg. Paxil. So I went back to the 10 mg., and that's when I've been on for the last 5 nights. But my mind and body are both very much off-kilter. My anxiety's increased and the insatiable hunger continues. I have a high-metabolism which is even higher under this stress, so I can't seem to satiate my appetite. I'm hoping that after a few more days things will even out, and I plan on staying at 10 mg. for at least a couple weeks before I start a taper again. I've since picked up the prescription for the liquid Paxil; I decided that when I continue the taper, I want to make sure I'm very confident of the accuracy of the medication. I don't trust the compounded version now. Thanks for reading. Any encouragement would be much appreciated as I re-stabilize.
  25. I'm another refugee from PP....I was so shocked when I logged in and found it gone! Very upsetting. I found a few people whose names I recognized from PP so that was nice. I'm currently in month 14 of my cold turkey WD.....I was too far out when I found out I should have tapered....PP was a wealth of information and support for me and reading the uplifting posts that "This too shall pass" was so encouraging in the thick of things. I am here if anyone needs an ear, wants to ask what my experience has been like, etc. My name is Gina and I am from Canada
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