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  1. Hey everyone, Have been frequenting these forums a lot recently as they seem a lot more active than most. Thought I would post my ongoing story here to hopefully provide info to others and get some support as I have found some of the stories I read on here helpful and supportive. First post so im hoping the treatment history I supplied on sign up will also be posted. So im a 45 year old male living just outside London, UK. After various abortive attempts I finally managed to quit Prozac after a 2 year taper. Ive now reached the 6 month point and its been very up and down. Started off feeling OK with just an expetension of the feelings I had during the taper (mixed sleep patterns and pretty bad fatigue) but the last 2 months have been hard with a lot of anxiety and feeling hopeless. Now these are feelings which I simply didnt have when on treatment because thankfully I did respond pretty well and could live a normal-ish life. However, there comes a time when you need to know if you can cope without the drugs (and their side-effects). Sleep issues seem to come and go and if I could just crack that then I reckon I have a good chance of beating this. Fatigue is much better but im defintly in a hyper-sensitive state currently and having to manage things like alcohol and workload quite carefully. I think like most on here who have managed to kick the habit im wondering how long these bad feelings are going to last and tbh whether or not this is withdrawal or a return of symptoms of depression or a mix of both. There seem to be a real mix of stories on here with people suffering for many years after their treatment and some coming through it unscathed pretty quick. Ive been trying to see if there is any link between the length of time you have been on treatment and duration of 'withdrawal'. It seems logical that this would be the case but everyone is different right? What could potentially be useful on here is perhaps a poll of recovery time? However, this may be flawed as its probably the case that you will get a much higher proportion of people coming to forums like these if they are suffering protracted withdrawal symptoms rather than those who recover quickly? At the moment I feel like im going to probably be somewhere in the middle of this spectrum of sufferers. I keep thinking that if I have been on SSRIs for around 20 years then it wouldnt be unreasonable to expect a recovery time of 10% of that ie 2 years. I think if i was still suffering substantial Waves after 2 years off the drugs then I would defintly have given it a good shot and I would be happy to take the 'blue-pill' again! Ive been in more of a wave than a window recently which could be due to some outside stresses but seems to be in a window last few days so taking the opportunity to get things done like writing on here! Tbh its a nice xmas present! Have a complete lack of motivation to do anything when in a wave which is obviously when you think about reinstatement the most. I previously said to myself that I would review after 3 and then 6 months to see if I wanted to reinstate but I realise now that its probably a longer game than that. Im happy to chat on here and share my experiences and definitely therapeutic writing this stuff down. My other half isnt always so understanding! Cheers all and dont sweat the small stuff.
  2. Hi All May I first thank whoever started and maintains this excellent forum, without it I would still be under the misconception that without SSRIs I have serious and disabling mental illness I was prescribed Prozac at 56 with no prior history of mental illness. It was only about a year or two ago that I realised that the 'mental illness' I later suffered was SSRI Withdrawal With the help of this forum I have started a 5% taper of 20mgs Prozac, using mini scales. Here is my brief and approximate history of SSRIs 2007 (at age 56) Prozac 20mg. For chronic fatigue syndrome. 2010/11 Stopped taking Prozac and suffered severe withdrawal 2010 Prescribed Citalopram 10mg ? For ‘ Anxiety and depression and panic attacks 2014 Discontinued Citalopram over a month 2014/15 Suffered severe withdrawal and was prescribed Prozac 20mg 2017/18 After research I decided that I have never had mental illness, only withdrawal 2017/20 Various failed attempts to ‘taper’ (missing doses) 2020 Sept Took advice from this Excellent forum and started a 5% taper using mini scales Withdrawal symptoms. Took to my bed. Flu-like symptoms, Thought I had all forms of cancer, Zaps, Inexplicable fear, Limbs shaking, Insomnia, Constant ‘stress’ Headache, Panic attacks
  3. Hi there! I was recommended to this site by a few people because I have recently come off Prozac after being on them since I was 17 (I’m 33 now). I was advised by my psychiatrist to take about 6 weeks or so in between dose changes. I started at 60 mg and went down to 40 for 6 weeks, followed by 20 for a few weeks. I took it upon myself (maybe not the best idea) to go from 20 down to 10 mg for a week or so and finally stop. My last dose was June 21. Since then I have gained almost 15 pounds and am having mild/moderate side effects. One of the most difficult being the constant leg movements when I’m laying in bed, it’s becoming unbearable. My mood is erratic with lots of spontaneous crying and lashing out at my husband, and I definitely feel on edge at all times. I’m at the point where I don’t know what to do or even how long to expect these unpleasant side effects to last. Any advice would be so helpful! Thank you in advance!!
  4. Thanks for this forum. Lots read, first post. In September 2017, the 20 mg of Prozac that I had been taking for the 25 years since my Multiple Sclerosis diagnosis started to poop out. In December 2017, my neurologist increase to 30 mg Prozac. In January 2018, I stared seeing. Psychiatric Nurse Practitioner PNP. She wanted me off the Prozac. Tapered from 30 mg to 5 mg from January 2018 to March 31, 2018. Stayed on 5mg with rough, but bearable tapering side effects. In September, 2018, life got more stressful, big move, new job, family illness. On September, PNP discontinued last 5mg prozac and started 5mg lexapro. Did ok, again, rough but bearable tapering side effects. In January, I had to switch to a new MS med and felt ok to do it. In March, 2019 starting having unbearable discontinuation side effects. Anxiety, stomach issues, dizziness, insomnia, unable to sit still, and so on. I went to the ER April 8 for high blood pressure and rapid pulse. Nothing wrong with heart. Told me to take gerd medication! I had to stop my MS med temporarily due to my condition. Very scary and will have to resume next week. My PNP increased the lexapro to 7.5 mg on April 16th. Still having bad anxiety and took .25 Ativan twice this week. My neurologist said that I should increase the lexapro and manage my anxiety symptoms more effectively, meaning take meds. I don’t know what my next action should be and I am coming to the end of my ability to cope. I would love any advice, feedback to get me through this. Thanks
  5. Hi everyone, I could really do with some support/advice. I started tapering prozac (20mg down to 2.4mg, 10% decreases every 6 weeks until June) in April 2020. Have been on and off it for 23 years; each attempt to come off in past was disastrous. I was pretty much fine until January and then started having serious neck pain. Right side of head, ear, occiput, between spine and shoulder blade, and radiating down right arm into ring and pinky finger. Over months has also affected right lower back and right hip. Have seen multiple chiropractors to no avail. I can see that my head is not sitting centere over my spine but is off to the right. Severe anxiety, depression and agitation really started kicking in in July. Went through a huge binge eating phase, and now total anorexia. No appetite at all and losing weight fast. CNS extremely sensitive to everything. Diarreoha every morning. What is terrifying and utterly destroying me is that for the last 8 nights I wake up at midnight after 2 or 3 hours of sleep with SEERING, BURNING, UNBEARBLE pain down right side of my body: ear, jaw, neck, shoulder, arm, fingers, lower back, waist, hip and into leg. I am in so much agony I cannot find any relief in any position. I am forced to get up and try to stretch what feels like the whole right side of my body collapsing or disintergrating. It goes on for hours until I fall into a light, restless sleep at around 3 or 4 until maybe 6. I had a contrast MRI of head and neck yesterday but results not out yet. Has anyone had this type of experience? Does it stop? Without sleep I don't know how long I will last. Would so appreciate some insight. Doing this alone in a foreign country....feeling at wits' end. Doctor trying to persuade me to go into a clinic but deathly afraid of letting go of some element of normality, eg, job, though barely managing that.
  6. Hello, It's comforting to find a community like this. I have recently begun tapering off Prozac and feel scared. I was taking 40mgs of prozac but have already reduced to 20 mgs (10mgs per week.) I am also taking 300mgs of Wellbutrin which I am not tapering off. The plan is to put me back on Lexapro as soon as I ween off Prozac but I am starting to consider just plain staying off SSRI's. My major concern is the speed that my doctor has me tapering off. I am dropping 10 mgs a week and from reading this site i am realizing how fast this is. My plan is to tell my doctor I am more comfortable going down slowly. I think I will hold at 20 mgs for the time being, unless the withdrawl becomes too difficult in which case I would go back up. I'd like to take this process as slow as I need to do it. I'd like to be compassionate with myself and take things easy. It's quite possible I will need medication and that's okay too, but I am willing to try this process slowly. Actually, as I am writing this I am thinking about asking my doctor to go back up and take this process much more slowly. Anyway, thanks for listening. I will keep everyone updated. Matt
  7. Hi, I'm Gracie and a new member. Can't remember if I already introduced myself. LOL Was so blessed to find your group!!! TY for being here and for letting me join. My main question was how often do you lower Prozac dose to lower mg per day? I am lowering dose every 2 weeks... think that's cool? Dr. & Pharmacist are NO help at all! I am currently tapering off of Prozac... started at 60mg and am down to 25mg now. What a ride this has been as anyone reading this already knows! The lower the dose gets, the harder the withdrawal symptoms are. I am now cutting back 2.5mg (1/4 of 10mg tablet - lowest dose made) per ... I read to come off this stuff at 5% per decrease... At 25mg dose (my current Prozac dose) I should be lowering my dose by 1.5mg NOT 2.5mg... my doctor AND my psychiatrist both did not know what I could do to get 1.5 mg tablets for my taper... thanks, Guys! If anyone has any ideas, I would LVE to hear from you. And I am angry with Big Pharma for putting me through yet another withdrawal! Hoping to get off ALL of BIG Pharma's poisons all together via eating right and becoming healthy! If I may add, I don't think it's OK that they release meds that have ANY side effects! GRRRR LOL Thx for listening to me vent. Appreicate it and feel better... thanks!
  8. Hi everybody So here’s my story. At age 12 I got diagnosed with OCD and was put on Prozac for it. Since then I’ve pretty much been taking the medication. But now I have been wanting to stop because of the horrible side effects. The dose that I’ve pretty much been taking for all these years has been 60mg per day except for once when I was put on 80mg for about 2 weeks which was a very bad idea. Anyways, recently I managed to go down to 40mg per day and stay there for 3 months and then down to 20mg per day and wait another 3 months per my Nurse Practitioners instructions. Somehow I managed to survive the ordeal. But now that I went down to 15 mg I had a severe withdrawal reaction that I wasn’t expecting. Dizziness, internal vibrations, headaches, eye pain, tingling and numbness on my hands etc... this started on day 6 and went on till day 43 when I went back up to 20mg because I couldn’t take it anymore. I’m now on day 10 back on 20 mg but am still having the symptoms. Is there any hope left for me? Will I get better? Any help would greatly be appreciated. Thanks
  9. I have been on SSRIs since I was fifteen. I am not sure if I am experiencing withdrawal, complications from a health issue that needs to be treated, anxiety resulting in physical problems, or a new chronic illness. When I increased to 60 mg, I had increased dizziness and fainting episodes. The fainting and dizziness episodes had started in roughly 2015 due to Prozac and Valium. I stopped taking the Valium, but still had frequent dizziness and fainting episodes. I decreased my dose from 60 mg to 40 in late July. I started a fast tapering plan. The idea was to go down 10 mg a week. At 30 mg I noticed exhaustion, lightheadedness, increased fainting, a daily headache, and motion sensitivity. Towards the end of the week I felt better so I went down to 20 mg of Prozac. I have been stuck at that level since the middle of August 2019.
  10. I was on 40 mg of Prozac for something like 10 years (I can’t remember exactly when I started it) and made the decision to taper off. My med provider directed me to drop down to 30mg for a week, then 20 for a week, 10 for a week and then stop. This seemed to go very well, I didn’t notice any symptoms and no change in my mood. Suddenly, I started to feel some brain zaps, I’d say a week after discontinuing the medication. Over the last 2 weeks I’ve had the brain zaps increasing in frequency, plus fatigue, muscle aches, dizziness, almost feeling fluish, plus some low level sadness and irritability. From what I’m reading here, it seems like I tapered off way too quickly. Today I felt like such garbage I decided to take 10mg, really out of desperation. I put a call into my med provider to see what she recommends but am open to any other opinions or experience with this! Thanks in advance.
  11. from original title: telogen effluvium / hair loss I’ve been tapering off Prozac for around 5 months now and I’m now down to 10 milligrams. I have been on 10mg for about a month and a half now. I think I will stay on 10 milligrams for a bit before I taper down again. I know this taper was pretty fast but I’ve been doing okay physically atleast. I do have dark thoughts and am a huge hypochondriac now. I also think about my parents and family always dying and sometimes I’m pretty sad but I’ve I’m still functional. One thing that has been bothering me since I’ve started tapering down, probably 6-8 weeks in is that I have hair loss. It’s not normal pattern hair loss. It’s on the top of my scalp. Thinning in certain areas, I guess it isn’t too noticeable but I notice it. My scalp is also itchy sometime. I think it’s telogen hair loss but who knows. Has anyone experienced this?
  12. Had PND after the birth of my first child 14 years ago. Took Ad's for about 3 months but didn't like them. Put on a lot of weight. When pregnant with my second child I was scared of suffering again so went to Psych and asked what I could do to prevent PND. Told him about the weight gain and he said that he would try a 'new AD that wouldn't put on weight' After the birth of my baby I started 50mg Zoloft. At the start it was great. Felt great, no PND and no weight gain. After about 12 months I started packing on the weight but didn't put it down to the AD as it had taken so long to happen. I just beat myself up instead, kept telling myself I needed to eat better. Followed this pattern for about 4 years but tried to come off it a few times. Would get to about 3 months off and would start to feel awful. Even though I had never suffered with depression in my life other than the PND, my doc told me that it was obviously me and that my brain just needed the AD's to function normally. So I would go back on them. It was amazing after just 1 day I would feel better. About 4 years ago I was told by a friend that AD' were associated with weight gain. Over the years I'd put on 25kg's and didn't believe that it could all be AD's (in my mind no medication could be that destructive, it must have been me, I was just weak, even though I'd never had a weight issue before the AD's) I came off 50mg Zoloft straight away with no symptoms. The weight just dropped off me, my appetite was back to normal and life was great. At the 4 month mark my life changed forever. I fell in a heap. Was so anxious I asked to be admitted to hospital. I didn't sleep for weeks and had these strange waves of panic, even terror. For someone who had only had PND once this was a terrifying experience. My doctor tried to diagnose me with many illnesses and admitted that she had never seen someone so bad, but that I just didn't fit into any of her diagnostic tools for a confirmed diagnosis. I feel very lucky that she didn't label me just to get a diagnosis. At this stage she put me back on AD's 40mg Lovan (the Prozac equivalent in Australia) and with in 2 months I was back to normal. I asked her why the Lovan and she said it wouldn't put weight on and she knew how concerned I was about this. I also talked to her about it being AD withdrawal and she said that AD's don't effect people like that. She was however supportive of me dropping to the lowest dose possible after I had balanced out again. Over the next 2 years I got my dose down to 10mg. I would drop by half but then leave it about 4 months before I dropped again. I had done this pretty painlessly so decided it was time to come off again. I had doc's full support and again did really well for about 3 months. Weight dropped off again and I thought that this time I may actually get there. 3 months later and I was a mess again. Withdrawals are different to anything I can describe and I knew immediately when they started that I'd have to get back onto the AD's. I was devastated. Back to 40mg Lovan. Each time a have gone back on the antidepressants the weight has piled back on. A bit more each time. I feel like a shell of the person I once was, lost all confidence in myself and my life. Over the last 2 years I have again gotten the Lovan dose down again. This time to 5mg. I thought that with such a small dose it may be different this time. I came off about 2 months ago. The withdrawal symptoms are back but I have kept them at bay by taking 1x5mg dose each time I get the dreaded headache(it's the first sign for me that I am in withdrawal, it's not a normal headache but feels like my brain is in a vice that is tightening) I have been going well like this but as I get further it's getting harder and I'm having to take doses more often to ward off the symptoms. If I take a dose it pretty much goes away overnight. The last few days I've had to take 2 in a row though so I know that my withdrawal isn't working this time either. I made the decision reinstate and drop further, I was looking for ways to further break down the tablets, so that I could do this and I came across your site. I am wondering if I should just reinstate back to 5mg and start the taper or if I can go to a smaller dose eg 2.5mg. Stabilise and then start the taper. I've been off for 2 months. (With the occasional dose during that time). I am also concerned that I am able to get off the drug seemingly easily however I seem to have a delayed response with withdrawal. Has anyone else encountered this. FYI I also take 5 high grade fish oil tabs daily. 1 x 3 mg melatonin to sleep. Metformin for pre-diabeties. (Another side effect of the weight gain from this drug) and a progesterone cream. My intention is to wean off the progesterone after the AD's. Any suggestions.
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