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  1. See journal articles about PSSD in Papers about Post-SSRI Sexual Disorder (PSSD) Please note that SurvivingAntidepressants is a site for tapering and recovery from withdrawal syndrome. While we see PSSD sometimes as an aspect of withdrawal syndrome (and we see gradual recovery from it as well as withdrawal syndrome), this site is not specifically for discussion of treatment of PSSD or its neurological origins (which at this time are highly speculative). If you wish to discuss symptoms, theories, and treatment of PSSD, please go to these sites: PSSDforum http://www.pssdforum.com/ Yahoo group SSRIsex (log in to http://Yahoo.com to join) Facebook group (log into Facebook.com to join) Various pages on Rxisk.org
  2. Hi everyone. I was prescribed Prozac 20mg back in 2002, for what I think now was pretty mild depression when I was at University. I remember my flatmate going to the Dr's about her lethargy and getting prescribed Prozac - a couple of weeks later she was enthusing about her new-found energy and encouraged me to go and get it. "All you have to do is cry in front of the Dr and say you can't sleep or do anything" - god how I wish now I'd ignored her. Fast forward 13 years with severe depression and self-harming which started not long after going on Prozac, which just reinforced to me and my GP that I needed the drug, and many years later several failed attempts to get off it, I felt I was over the depression (if I'd ever had any to start with but what the Prozac had exaggerated), and hadn't self-harmed for many years. My last attempt to get off Prozac in 2013 had caused me severe anxiety, anger and paranoia, ultimately having to go back on the drug because my Dr said I'd relapsed. I hadn't heard of SSRI withdrawal back then. I tried again in July with a tapering plan of 6 weeks from my GP. I now know from reading forums like this that it was probably way too quick, but I've come so far I really don't want to go back on it. The anger and tantrums in the first few months was unbelievable, I was so irritable I don't know how I didn't lose my job. I had lots of rows with my mum (who I'm living with for financial reasons) and on one occasion hit her on the arm, I couldn't believe I'd sunk so low as to hit my 70 year old mum. We've discussed the withdrawal since and she's very supportive, I just feel such a burden and I'm terrified of doing something similar again. The anger has got a lot less recently, and sometimes I've had an hour or so when I've felt like 'me' again, almost happy and content. Christmas and the New Year has been hard, with flu symptoms, awful anxiety that wakes me up and hits me with a terrible feeling of dread and panic. I'm due to start a new job tomorrow and I can barely get out of bed, I feel so wiped out. I can't eat and every time I try and make myself eat I have to rush to the toilet straight after. One thing that has helped a bit has been the videos linked to on these forums - from Baylissa at recovery-road.org I practically have the 'affirmations for recovery' on repeat. This too, shall pass..
  3. Hey everyone, My name is Abby and I have been off Prozac for 3.5 months now. I'm currently experiencing intense withdrawal and the return of mental states I never thought I'd have to experience again, and I would really like to connect with others who are going through similar during this long, difficult process. Background info: I always had tendencies towards anxiety, depression and obsessive compulsive disorder (the Pure-Obsessional variety) since childhood. At 16 these symptoms very rapidly became so severe my whole life fell apart within a matter of days (Going on the contraceptive pill at this time may have been a contributing factor). I didn't have a full breakdown until I was 18, at which point I was taken to the doctor, put on Sertraline, and referred to psychiatry. The following 8 years consisted of several psychiatric admissions, different drugs including clomipramine, seroquel, mirtazipine, prozac, and possibly a few others for shorter periods. I lost pretty much everything, my obsessional fears were so strong that I attempted suicide more than once, developed a bad cocaine/mephadrone habit, was a constant worry to my family. There were times, however, where the medication would help a lot. At 60mg of Prozac I went through some periods of being functional - I went to work, got into a relationship etc. These were a great relief but I can't say I was truly happy as the fears were never properly dealt with. My last hospital admission was in 2014 when I was 24. I had attempted to come off medication as I believed I had to deal with the underlying problems, and I hated the weight gain side effects. Looking back, this was doomed to fail as I was still using cocaine regularly, drinking a lot, and didn't have any proper support mechanisms in place. I was fine for 6 months then crashed, was borderline psychotic with the OCD symptoms, depressed and anxious beyond belief and desperately wanted to die (and believed I deserved to). I was in a psych ward for just over 2 months before new meds kicked in - clompipramine and (randomly, I don't know why) Epilum, as I was told it 'balanced moods'. A year later I went back on to old faithful Prozac and also came off the contraceptive pill. I had always been told the same about it, that it leveled out moods, and don;t think it's a coincidence that my symptoms became much more manageable a few months after stopping it. I then managed to stay at 40mg for 2 years and my life changed drastically for the better. to myself and everyone around me it was like a miraculous recovery - I stopped taking drugs, began volunteering at a Buddhist meditation centre, got my dream job, published a novel, did newspaper interviews about my experiences, ...I pretty much had my dream life. It was like being reborn after thinking everything was all over...forever. It was in January 2017 that I decided to gradually wean off Prozac. Over the following 10 months I reduced until stopping completely in October. In these past 2 years I have done extensive mind training and spiritual exploration, which has probably been the main factor in this recovery. My life is pretty much dedicated to this practice now - I still volunteer at the meditation centre, go on meditation retreats throughout the year, and have also completed a Reiki Mastership. It was always potentially on the cards after exploring my mind with psychedelic drugs in the past, doing past life regressions and also taking Ayahuasca twice in ceremonies. It was around the time of the reiki mastership that I was weaning off the last of the Prozac. Things became challenging - but at first I welcomed it. I was in a strong place mentally, and my mental health hadn't plagued me intensely for a few years. I was made aware that the Reiki energy can churn things up to be healed, but I think that the combination of this, a massive flare up of a back issue that left me not able to walk for weeks, family pressures and intensive mind exploration during retreat that has led me to my current situation. Since December just passed things have been incredibly difficult. I have experienced a return of old OCD obsessions, to the point where I've had panic attacks for days that made my vision blur, heavy depression, crying all the time, existential fears and experiences which medically would look similar to psychosis (although I believe that term can pathologize important and natural inner processes), identity confusion etc. I knew it would be hard, I just never expected to feel this level of horror ever again. Having said that, I know things are different this time round - I have a level of insight gained through spiritual practice that is keeping me going. Energetically, I'm aware that I am creating this reality on various levels, and that I need to relax as much as possible to allow it to pass through the way it's supposed to. I'm no stranger to facing the darkest parts of the psyche, but it's still terrifying and I'm struggling to cope day to day. To make matters worse, my Mum has gone abroad for cancer treatment and I'm now caring for my little brother and sister 4 days a week which is incredibly stressful (I'm used to having my own space and being able to retreat when I need to). My CBT therapist has discharged me as she feels I cannot engage with therapy under this amount of stress, but encouraged me to come back when my Mum gets back. To be fair, she never taught me anything I didn't naturally learn in meditation and I was only seeing her regularly to comply with services. I have however started going for reiki treatments with the person who facilitated the course I was on last year - he is exceptionally intuitive, knowledgeable and takes an all round, individual approach. One session with him last week was worth a year of 'traditional' therapy. So I'm hoping that continuing with this will help. Anyway, sorry for the essay. I don't have many people to talk to about all this. It's also weird for me to ask for help now as I haven't needed it in so long - I'm usually now the one that helps everyone else. It's a scary and heartbreaking thing to go back to a place you thought you'd left long in the past, but I do believe deep down that I have done so in order to face my demons fully and emerge stronger in the long run. Thank you if you made it this far, I'm looking forward to connecting with others on this site. You are all incredibly strong to be doing what you're doing, no matter what stage you're at. Much love x
  4. Unsure if I'm posting in the right place but this is somewhat of an introduction. 1.5 years ago I started on 20mg of Prozac for OCD. There was restlessness with starting but it went away. Gradually I tapered down to 10mg of Prozac which I was on for a full year. 2 months ago, I felt the sudden onset of a a very severely agitated feeling. It was very vague but I can pinpoint the exact moment I noticed it -- I was sitting, doing nothing remarkable, and unstressed. I had felt something like this before throughout my treatment but it was very very temporary and felt more like an agitated depression brought on by external circumstances. When this feeling started I could not pinpoint anything else as the cause. Things were good in all parts of my life. I had not messed with the dosage of Prozac at all for a year. Is it still possible that the Prozac is causing this long term agitation/akathisia that I still experience today? A month into the feeling I decided to taper off Prozac completely. I experienced very little withdrawal...just mild headaches and dizziness. The akathisia didn't get worse or better. But it is still quite bad. And the longer it continues the more hopeless I become and probably the more depressed as well because I can't see a life without this agitation anymore. Started on some Klonopin to treat the restlessness and help me sleep. Has anyone else experienced akathisia without a dose change? And also only being on a low dose?
  5. Cigarettes at age 11. Alcohol periodically from age 13 to age 30. Valium episodically from age 18 to age 27. I have been on myriad anti-depressants since 1982 for major depression and generalized anxiety. Imipramine, desyrel, ativan. Off drugs from 1984 till 1995. Started Prozac 1995 till 2014 (did well from 1995 to 2011). Tried Wellbutrin, Cymbalta. Abilify and Trintellix from March 2014 till August 8, 2017 (depression free). Had to withdraw due to cervical dystonia and tremors which still persist. Terrible experience withdrawing from Abilify and Trintellix. Started Wellbutrin 150 mg. and Prozac 10 mg. for one week to help with withdrawal. Then increased Wellbutrin to 300 mg. and experienced ringing in ears; stopped the Wellbutrin and increased Prozac to 20 mg. (10 in A.M.; 10 in P.M.) Now on Prozac 20 mg. per day, occasional Propranolol for tremors (doesn't help). I've read that coming off Abilify can take up to 3 months or more, and it has been 2 months so far. I feel like I've spent (wasted) my entire adult life trying to feel better, first by self-medicating, then by psychiatric medicating. I'm 72 years old. I wonder if there is any hope for me.
  6. Hey, everyone. Here's my introduction (I hope it's not too long): In 1994, at 19, I suffered panic attacks from being bullied in school and having cognitive errors in my thinking (perfectionism, negative self talk, etc.) My parents took me to a psychiatrist who told me I had a "chemical imbalance in my brain," prescribed me 80 mg of Prozac a day, and kicked me out the door. I received no therapy and from that day forward saw myself as a mental health patient. This diagnosis changed the course of my entire life. My Prozac took six weeks to kick in, and it brought with it a slew of side effects: generalized anxiety, hypervigilance (constant surveying the world and my body for signs of panic), stomach cramps, and irritable bowel syndrome. Like the proverbial boiling frog who doesn't notice the raising temperature, the side effects eased in to my life so slowly I thought they were a part of me and my "chemical imbalance." In essence I had a paradoxical reaction to the drug: it amplified my existing struggles but I had no idea my medication was the source. I was never told this was possible, nor was I told about the danger of trying to come off. The side effects made work outside the home, socializing, and dating extremely difficult because I was always afraid of the next wave of anxiety that would send me racing to the washroom. I watched my friends grow up and have careers, partners, and families, while I tried to buoy what was left of my self-esteem with self-help books and different therapists, none of who ever questioned the drug or the dosage. After two years of cognitive behavioral therapy to untwist the errors in my thinking, I tried coming off the drug under the supervision of my doctor in 2006 but the initial reduction of 20 mg every two weeks proved to be far too steep. When I reached zero I had a few days of bliss, then an absolute mental collapse. I developed akathisia and was unable to sit still and paced relentlessly and lost control of my emotions. I felt completely hollow and cried for no reason, all the while suffering from unspeakable anxiety. My parents debated admitting me to a hospital but was told that the doctors would check my medication levels then ask me to leave as there would be nothing they could do. I went to my psychiatrist who misdiagnosed my condition not as withdrawal but as depression and anxiety that the Prozac had been treating. Desperate not to lose my mind, I restarted the drug and lost another ten years to side effects. Two years ago I lowered my dose from 40 mg to 30 mg. Three days later I was to meet friends for dinner for as long as my anxiety would allow. I braced myself during the meal for the inevitable tsunami of mental anguish but what I felt instead was a mere ripple. I was stunned, then perplexed. When I realized what was happening and that the drug had been the cause, I burst into tears. Instead of racing home after the meal as I so often had in the past, my friends and I went to a movie. Over the past few months I've been easing off Prozac at 5 mg every six weeks. My quality of life improves with each reduction. My hypervigilance and anxiety all but vanished at 20 mg. At 15 mg I have become more social than I have ever been, and at 10 mg I feel like myself again - sort of. I've been on 10 mg of Prozac since May 9th, and I'm also on 50 mg of Seroquel. I want to get off the Prozac completely but I'm going to stay at 10 mg for at least three months until I know I'm stable. Though most of my anxiety is gone, I had a panic attack last week. I had an appointment with my psychiatrist yesterday over how much I've missed out on from the medication and cried through the whole thing. Naturally she was concerned that this might be a relapse of depression/anxiety, but I honestly feel better now than I ever did on the higher dose. So...that's me!
  7. Hello everyone! I am a new user here. I've lurked around this site before but have yet to introduce myself. I was a Prozac user for a year from August 2015 - September 2016. I had taken it for social and general anxiety. I was on 20mg/day. Initially, I was actually doing fine and great emotionally but had side effects like massive fatigue everyday (not even 3 cups of coffee could wake me up!) and constipation every time I went to poop (sorry for TMI). I also felt like a zombie for a brief period in which I was neither happy nor sad. In May 2016, I decided to abruptly stop taking the Prozac by choice without consulting my doctor (bad move!) and had brain zaps and mood swings which I assumed as worsening depression. I then just asked my doctor to simply increase my dose because I thought I was getting worse (bad move again!). I was put on 40mg/day from June - August 2016 in which I was ok at first but then I was hit with a panic attack so severe I had to rush to the ER. For that week, I was having very severe symptoms. So I was instructed to go back down to 20mg/day. From then on, I decided to stop taking it a few months ago in September because I felt better and didn't want to rely on medication anymore to make me happy. I consulted with my psychiatrist who said for me to just take 10mg for one month and then I can stop. I did just that. Over the month of October I was fine and felt completely normal. However, I realized symptoms would come later once the month of November started. I have since felt every type of symptom under the sun including brain zaps, hot flushes, insomnia, irritability, tingling sensation of the skin, anxiety, shortness of breath, sweating, tremors, and slight vertigo. I have never felt these symptoms in my life til now! I've talked to my doctor and he doesn't believe in withdrawals. At this point I feel helpless. I am experiencing waves and windows in which I have waves of really bad flare ups and then windows of good normal days where I feel fine. But they keep cycling back and forth. I now have questions to ask: 1. Do windows of no symptoms mean that my body is getting better? 2. Should I reinstate the Prozac and taper off more gradually? Someone suggested I shouldn't because I've already been clean for 3 months now. But what do you guys think? 3. Will symptoms go away if I keep pushing cold turkey? 4. Should I try medical weed to help ease tthe symptoms? I want to try natural ways of healing
  8. Blandell

    Blandell: Paxil

    A pharmacist who is a friend , suggests transferring over to Prozac and withdrawing from that.. what Should I do? am on 10mg Paxil and getting ready to reduce again thanks in advance
  9. Hi everyone! First of all, I want to appologize for my english ....Im mostly french!😉 I have been reading here since a little while but first time I write. I have anxiety since 12 years. I am 40 yrs old female. Been on meds since 11 yrs. I have been on almost every ad. Lots of them didnt suit me. Never been able To stay more than 4 yrs on one med cause it pooped out. I starter feeling really dizzy a year and a half afp (was on lexapro at that time ). Anxiety and fatigue game back. So tried different meds again with always many side effects even at low dose. So back in march (On prozac 20mg) I decided that maybe or was time for me To try my life without meds. Juste To say, or is a big step for me cause I have thaught that I was meant To be on this for life. Si since the beginning or april, I slowly decrease from 20mg To 5mg (now). I have the liquid form. Still take my clonazepam 1/4 of 0.5mg at night. The more I decrease, dizziness decreased also. People tells me I look more alive ! Cause I always felt kinna stone. I still had anxiety but it was manageable. But since a week, I feel more anxious and short of breath. I feel sometimes near To have panic attack over the fact that Im not breathing correctly. I put si much focus on that. Since 2 dans, I cry more also. ... What the heck is going on with me????? Does that mean I wont ne able To live without it ??? Psychiatriscian had no clue how To wean us. That fustrate me. I was the one who did the withdrawal plan and ask Her for liquid form. Now she almost laugh at me saying Im not suppose to feel any withdrawal symptoms with prozac and mostly at 5mg. She tells me its probably the anxiety coming back !? So what do you think? Also....is Ltheanin good for my withdrawal? Someone refered me that? Thank you again! Lolita
  10. Hello, I am a 50 year old woman with a history of depression. Here is my story and it is a long one, be warned - if you aren't in the mood for a long history, skip this now LOL! I'm one of those people whose family relations have also had histories of depression, and depression became an issue for me from maybe 10 years old and up, though no one really recognized it. I became bulimic at 16 and remained so for much of my adult life until about eight years ago. My adult-hood has been one of perfectionism, low self-esteem and under-performing, with all the self-hatred that that generates. My first experience with medication came after a rough relationship where I ended up feeling suicidal. I was put on Prozac. I think back to that being the beginning of the rest of my adulthood with virtually no libido. A major move after marriage led me to more depression, and at that time Wellbutrin was being marketed heavily, so I asked my GP to put me on it. No tapering of the Prozac, if I recall. Wellbutrin didn't work, but now I realize it was probably in part because I was having withdrawal from the Prozac - not sure and I don't have a lot of memories about that period one way or another. I forget if I continued the Wellbutrin up to the next change, but I had gotten the flu which turned into pneumonia for a month, and when I went to the doctor after that long of not getting better, he said "you are depressed." Well, yes, I said, I am depressed because of being sick this long! And he said, No, you are clearly a generally depressed person and you should see a p-doc. So, I did, and that doc put me on Effexor. This was somewhere back around 11 years ago. I upped the dose as they directed. I never felt like my depression was well-controlled because none of the therapy I had over the years was CBT - talk therapy would make me feel better for the moment but no change took place, so the low self-esteem and negative thinking remained. I guess the Effexor somehow made my life more tolerable, but I never felt happy or satisfied with myself. Somewhere along the line I began to taper down on the Effexor, and I have very few memories of when, how or why, other than that I hated needing ADs, and my libido sucked. A move and the loss of an old dog sent me into another bad depression, but this well could have coincided with stepping down the Effexor. Three years ago, I lost my job, and then my husband lost his, but then he got a new one which required relocating to a very hot climate where we were able to afford a home with acreage, the first time we were ever able to own, but it was very rural and the isolation quickly got to me, with anxiety increasing for various reasons. Again, I don't remember the stepping down process, but two years ago a new GP refilled my Effexor but prescribed the non-extended release version. Since these tablets were able to be broken, I began taking just half (37.5 mg). Last summer I had a bought of shingles and became very depressed and stressed again from the pain. I also was clearly in menopause and having severe hot flashes. My whole adult life had been marred by low libido since going on Prozac way back when, and the shingles were actually on my private parts (tested positive for zoster, not herpes) and I became very concerned that I didn't want the rest of my life to be joyless where sex was concerned, so I decided to go off BCPs and Effexor. In hind sight, that was madness! I stepped down the Effexor, going to every other day with the 37.5 mg. I wasn't aware of any severe symptoms, and this was last summer. Well, meanwhile, I was going through some stresses regarding a health crisis with one of my dogs. I found myself totally scatter-brained, forgetful, unable to concentrate, and also I had trouble articulating myself, unable to complete thoughts when talking with people, words hard to reach. A friend told me he always thought I was ADD, and indeed at this time I was losing things, forgetting what I was doing halfway through doing it, easily distracted, etc. I'm also a total clutter-bug who can't face doing the dishes or cleaning the house, though I've been that way for years. I had started taking Sam-e and tryptophan as a way to up serotonin. I was having a terrible time with insomnia. So, I went to get tested for ADD. I tested negative, but the psychologist doing the testing said I didn't have ADD, but that I did have OCD, depression, and GAD. He said, the good news is that there are medications that can make you "normal!" I bit, and went to a p-doc on a list he gave me. She put me on Viibryd. I stopped the serotonergic supplements. The first week at 10 mg was ok, but when I went up to 20 mg as instructed, all hell broke loose! My insomnia worsened, with the most severe anxiety I think I had ever experienced! All night I was thrashing around with racing, troubling thoughts. During the day, I would have squirts of adrenalin for no reason. I had days where I was so distressed and troubled, I couldn't stand to exist. I had global anxiety about climate change, getting old, my parents getting old losing them some day, the drought and how horrible life was! I have never experienced anxiety like that in my life! I stepped the Viibryd back down to 10 mg for about a week and then stopped it, and went back on the supplements. This time I was trying to follow the supplement plan laid out in the Mood Cure, adding GABA and some other stuff. I'd do ok for awhile, but the insomnia was still bad, and the general feeling of being ill-at-ease was so disturbing, I just couldn't stand it. So, I stopped the supplements and started taking 37.5 mg of Effexor again. After three days, I was in serotonin syndrome almost to the point of having to go to the ER! I stopped the Effexor and got an appointment with another p-doc who is a DO and actually not into psych meds. He said I'd been through about 3 years' worth of med changes in a very short period of time and that my nerves were very sensitive and that I needed consistency. He went through the meds and supplements I had a history with, and told me which supplements were safe to take (non-serotonergic). Since I had not been able to eat and lost weight, and the insomnia was so bad, he put me on Remeron, saying it was a very gentle med that worked on a different part of the serotonin pathway, and that it would help with sleep and appetite. He started me on 7.5 mg and said I could step it up as needed, that it was safe up to 60 mg. Well, I felt much better and it was nice to sleep all through the night without anxiety again. Yeah! But after a week, I was feeling down again so started upping the dose. Two weeks later I was at 37.5 mg, feeling totally apathetic and on the couch, unable to do anything I had previously enjoyed in life. I couldn't understand why the med wasn't working anymore! I was in a desperate way and called this p-doc's assistant, the fastest way to get to him, he said. I left four messages and never heard back! I suffered through to my next scheduled appointment with him two weeks later, and suffering it was! My family members were greatly concerned. The only thing that kept me going through this spell was the fact that a therapist I had recently seen told me about Emotional Brain Training, which I joined. It was developed by Laurel Mellin at UCSF and is based on neuroplasticity and rewiring the brain. It was perfect for me because I lived in the country, was isolated, and the city is 40 minutes away, so I was able to get support from home with weekly phone-in meetings with a coach and group members, daily work online, and daily phone-connections with group members. I am not hawking this, but if you want to learn more about it, go to www.ebt.org. Anyway, EBT kept me from going down the tubes through all of this. When I saw my p-doc, he said "let's add Effexor back to the remeron since you tolerated it well in the past." I started on 37.5 mg. The day I took it, I was having a non-functional couch day, and I would say within an hour of taking it, my mood lifted, like a light switch had been flipped! It was miraculous! Now, everyone knows that ADs are supposed to take weeks to start working. I now realize that the reason it worked so fast was because I was in withdrawal and it was like a junkie getting a hit of the drug they are withdrawing from - instant fix! Ok, I know my story is long but the final chapter is here: I added the Effexor back about 12 days ago. I actually had one day, about a week into it, where I was on the couch again. The next day, I saw a third p-doc my therapist said I should see since I had such a bad experience with the last guy's non-responsiveness when I left those messages. So, I saw this new guy on Wednesday. I didn't yet realize that all of the craziness I had endured since last fall was because of the withdrawal. I was convinced that genetically, I just had to be on ADs, that I had relapsed in a big way. I did think that the Viibryd had damaged me, since I had never experienced anxiety to that degree before, nor had I had depression this debilitating. This new guy said, "let's stick with this for now, since you haven't been on the Effexor long enough to see how it will work for you, but I want to up it to 75 mg (thanks to that couch day). We may end up changing you to other meds, but let's see how this goes for now." So, I began taking 75 mg Effexor ER on Thursday. It just so happens that one of my EBT connection buddies is going through withdrawal from ADs that she was put on for post-partum depression 8 years ago. She told me about this, and referred me to a neat video about neuroplasticity on beyondmeds.com. Her point in doing so was to point out about how EBT is so dead-on about retraining the brain, but in fact I had locked on to concept of withdrawal, and I began to realize that this was so much of what I had and am still going through, and this is why the Effexor worked immediately! So, I am faced with the fact that I am now back on the drug that I was hooked on. For now, I need to be consistent and not change anything, though I am going back to 37.5 mg Effexor since I'd only been on the higher dose for a couple of days. I will ride this out until my next appointment with the p-doc in five weeks. I am worried that he will be one to poo-poo withdrawal. I feel like, for the first time in my life, I am getting the cognitive help I need to eliminate the poor self-esteem and my negative black and white thinking that has ruined my life and got me started on ADs to begin with. I feel this will be critical to getting off these drugs some day. I feel so grateful to the universe for bringing me together with my connection buddy who brought this all to light for me. And beyondmeds.com brought me here.
  11. i've been off 60mg 40mg (see Post #4) of prozac for 2 months after tapering very quickly over 2 months. i took prozac for 20 years. i have really bad headaches most days, something i never used to have before unless i was dehydrated. i have terrible mood swings - i shout at people in the street if they're badly parked, i get road rage when i'm driving, i scream at the kids and my husband. fatigue is a big problem - i can fall asleep at any point during the day and often do. i sleep all night but am still exhausted the next day. i have constant vivid dreams and nightmares. my ocd is creeping back (which is what i was prescribed the prozac for in the first place). i thought i had it under control until my kids told me i needed to stop posting on social media so much as it was dominating my life. i was also alienating people online. i have constant diarrhoea. i cannot stop eating -i'm constantly ravenous, especially for carbs - crisps and potatoes are my downfall and i've put on a stone in weight since stopping. i have lots of pains in my joints and limbs. i did have crawling under my skin, especially in my knees and feet but this seems to have subsided. i'm scared of seeing or talking to people. this has always been a problem for me but it is worse right now. i feel panicked when i think of all the things i have to do - chores to be done round the house, things i need to do with my kids, hospital appointments for my husband (he has an avm in his brain and had a traumatic bleed nearly 4 years ago which has left him with life changing disabilities. i am his full time carer). thankyou for listening if you made it this far. today is a bad day and i keep asking myself why i gave up the pills in the first place? i hoped i would have more energy, feel more emotionally, lose weight etc. but it was only after i stopped that i started to read up on protracted withdrawals. i had no idea it could be so bad to stop the drugs.
  12. Hi. I have been reading different posts on here for about a month. I want to taper off Lexapro, but I've been on it for over 10 years. In 2005, I was put on a very short, and ended up with brains apps and went back on it because I was super agitated. When I told my doctor I wanted to Lexapro, her idea was to switch me to Prozac. Initially, she was going to help me switch to 20 mg, but I knew that the equivalent was 40 mg, so I asked if we can do that and she said yes. I am on day two of switching from 20 mg of Lexapro to 40 mg of Prozac. I feel dizzy and have a UTI. I don't know if that can be caused by this medication switch. It kind of creeps me out. The test only showed barely any evidence of the UTI, but the doctor said I was experiencing symptoms so gave me an antibiotic. I am thinking about a post I read on here that suggested people try wean off their current drug rather than bridging to Prozac. So now I am kind of freaking out thinking that I should just go back on Lexapro and when I see my doctor in a week and a half ask if she will prescribe the liquid. I think I asked that in A message, but she suggested Prozac. I have wanted to wean off the drugs for a long time, but actually had resigned myself to staying on it for life. I felt like I was stuck. But then it was getting migraines, and my family doctor wanted to add another antidepressant Pamelor, for the migraines. At that point, I did not want to add any more, and so now I decided it was time to try to taper down. I have seen that on some sites it says Lexapro can cause migraines.
  13. I wanted of prozac was on it 9 months last dose was 20 mgs off 30 days dr said ok to stop self tapper. I know i don't know if have wd from the from prozac or my slow tapper K pin after two months use 1.5mg to .125 mg i stopped to day after trying to get on another AD which was horrible experience
  14. Prince1924

    Prince1924: Prozac

    I have just read this advice about keeping a withdrawal programme Simple ie 3KIS. Not sure but there doesn't seem to be a support network like this in the UK? Only one I've come across is the Royal College of psychiatrists which is a in the form of a video). I've taken great comfort from all this advice as I makes me feel I can try and come off Prozac one more time.
  15. i am currently two weeks into withdrawing from Venlafaxine 225 mg ER and i am in excruciating pain. i am on prozac for the aid but it barely helps. I feel trapped by this, I can't work and my psych refuses to write a note excusing me due to this so i have lost my job. I am constantly out of it now and forget where i am frequently. I have horrible light sensitivity and can't stop sweating. I was a drug addict for several years and have gone through severe withdrawals from narcotics in rehab and this is very similar if not worse. My brain doesn't feel like mmine and I don't feel supported by the doctor who i should be able to trust. feeling very lost right now and need suggestions
  16. Hi everyone. Quick intro: Due to a long term dependency on alcohol to self medicate my panic disorder I decided enough was enough had sought detox which in turn led me to my doctor approx 2+ years ago. Since then I (had) been sober until 7 weeks ago where went on an awful bender before ending up in hospital and going into detox again. I have been diagnosed as depressed for over 15 years but I have always been very weary of AD's ... my panic disorder was finally diagnosed around 18 months ago and since then I have had citropram thrown at me briefly before being switch to escitropram which seemed to work wonders I was back working and was busy and happy and less anxious and had the bright idea to taper of because "I" thought I did not need them"... bad idea two weeks after my last dose I started to crash emotionally and physically sometimes ...until I ended up drinking again (briefly) After detox my doctor spoke to me about my experience on escitropram and I told her it gave me bad stomach ache after taking but worked... so she decided to try me of Venzir/Effexor XL 75mg 1 day and I have quit... my nerves lit up like a Christmas tree and the nausea was unbearable and add to that here in the UK we are in the middle of a savage, clammy, humid heatwave... I took it yesterday morning and today I am still suffering extreme nausea and tingling all over still ... ONE pill may have messed me up for a few days ? Does anyone have any experience like this ? It should be well out of my system by now ... it's been 26 hours and its half life is only 16
  17. Ogres

    Ogres: Prozac

    Hello everyone! I first started Prozac in the beginning of 2009 to help with social anxiety and public speaking at work. I had to delivery training and couldn't simply face the situation where I'd be in the center of attention. I had had previous failings in this area and couldn't think of screwing up again. Especially, I could lose my job. So, after googling and researching I decided to give fluoxetine a try. As you can see, no doctors were involve and I could only blame myself . I even sourced the pills by ordering from the internet. I started with 20 mg and noticed effects after approx 2-3 weeks. The main thing that I remember was calmness and confidence. With the chemicals fully kicked in, I was so relaxed about the future ordeal that I thought that even if I failed, I’d not care too much. The training went fine though and I had a massive boost of confidence from this fact. The nature of my work, requires me to constantly communicate with people, which had always been hard for me. For this reason I stayed on AD. So that I could function normally and establish myself. I had recently moved to the UK from another country and had to survive. On the other hand I was very cautious, as I had had some past dependency on substances at a tender age, and never exceeded 20mg/day. Also, I never intended to use the pills forever. I just liked how they made me feel in social situations. I had always been a bit shy and fluoxetine helped me to be more relaxed. I continued to take Prozac, but with breaks where I'd be completely off for weeks and even months! I'd go off medication cold turkey (I didn't know about tapering at the time!). And to be honest, I didn't have any major symptoms during years 2010-2013 apart from anxiety (but I'd always been anxious), irritability, anger. No major physical symptoms as far as I could remember. I consider myself to be a person with some self control and I'd try to disregard what happens inside me and try to look normal. Maybe being young(ish) and the fact that I always did some sport help as well? With time as I was becoming more relaxed about my job security and with thoughts that I probably better off AD eventually, my breaks would become longer and longer. And in Jul 2015 I first decided to go off completely. As always, I just stopped cold turkey! Well, I tapered by taking 20 mg every other day for couple of weeks, but I don't think it can be considered tapering in pure sense. WD was probably a bit harder this time with anxiety, irritability, fatigue more pronounced. But I tolerated it fine. I thought maybe I was getting older? No other major physical symptoms. I went back on Prozac again in Feb 2016 because of a new project where I'd need to socialize and communicate. And when work situation calmed down, I went off again in Sep 2016. This time WD a bit harder still. Major symptoms: anxiety, depression, fatigue, irritability, stress intolerance, anger, insomnia. Surprisingly, insomnia only hit me first in month 7 (still suffering)! This is probably the worst symptom, a torture, when you can't sleep for several nights at a time and then had to function during the day... Thanks a lot for all your attention!
  18. Hi, I was on .5 Mg 1x day of Klonopin for 28 years, my GP updoses it to 3 x day....terrible pyridoxal reaction, Dr. added 10 Mg Prozac which helped the terrible reaction. Did a 2 year taper off Klonopin. 6 Months after being off I started a 5 - 6 month taper off the Prozac. Been off Klonopin 15 months; Off Prozac little over 4 months. Having terrible monophobia (which I kinda had over these last 28 years), huge terror, obsessive thoughts, ruminating thoughts, extreme anger / rage, insomnia. I called both my dr. and therapist crying today. Dr. wants me to re-instate the Prozac. Is this still benzo withdrawal or Prozac wd ??? I am SO scared of meds.....I wonder if this is me or meds ???
  19. Link to father's topic: paranoidandroid Hello everyone, Iv'e actually been looking at this site for quite a while now to get me through and decided to make an account now I feel in a slightly better place to do so. Currently I'd just like peoples opinions on my situation.. do you think I'll ever fully recover? My history in the signature sums it up quite concisely so if you want to ask any questions please do. I believe I will but I just want to hear it from other people, as you may know this can be a lonely place to be. I wasn't aware for all this time how damaging these drugs are and assumed my visual snow and DP was just related to anxiety. But now I have no doubt in my mind they caused these symptoms. I may not go back to exactly how I was 6 years ago, which is upsetting, but as long as going forward I'll be able to make a better reality for myself, then I think I'll be okay. I'd also be very interested in what people think of my diet and if you think I should refine it in any way.
  20. Introduction Hi everyone. I have been lurking here since last year but decided to start my thread as my waves are getting more frequent. I am trying to stabilize at 20mg of generic Prozac (fluoxetine) daily, and have been taking it for 6 months. I thought stabilization was finally happening in January this year but waves are now weekly. I am here to see if anyone can shed light on why my horrible waves are more frequent now. I've read “The windows and waves pattern of recovery” (http://survivingantidepressants.org/index.php?/topic/82-the-windows-and-waves-pattern-of-recovery/). Maybe I'm missing something? I'm not feeling very bright since WD hit me! Wave and window frequency Stabilization seemed to work right away and my intense waves were about every 14 to 21 days (3 to 4 weeks). Last month and this month, waves have increased frequency to about every week and last 2 to 5 days, with a window inbetween. Currently working on a graph based on my daily notes to visualize my stabilization journey. WD waves This is how I recall them now but I will update this description when I consult my notes next during a window. A headache and dizziness accompany a vice-like tightness around my head. I then get intensely irritable, depressed, and quite sleepy. I then get akathisia, mostly in the legs. I have tried pushing through it but I find it very hard to concentrate on anything and I just can’t bring myself to talk or interact with anyone. Any conversation or touch terrifies me and I just have to dismiss myself and apologize to whoever is around me at the time and hope they don’t take my sudden departure personally. I then go to sleep. When I wake, I feel better but the wave is still there. I tend to get better over the next day or two, only for the cycle to repeat as mentioned above. Aside from sleeping the only relief I get, for but a moment, is when my rescue cat comes home and deigns to grace me with her presence on the bed next to me or in my chair. This WD has meant that I can no longer keep many commitments, I can only work on a casual basis (i.e. I put in a few hours a day in a window), and my relationships have become skeletal. My life is slowly falling apart and I am now dependent on my partner. She is understanding of my withdrawal, having been on SSRIs herself but luckily avoided a protracted WD. Sadly though, I just feel so guilty and frustrated at how I am now a slave to this window and wave cycle, and largely a useless partner. Windows (something positive) I am myself: productive, fairly positive, happy, thoughtful of others, and able to tackle my anxiety properly. I still live in fear of waves but I am learning to try not to ruminate on them. I feel a willingness to connect with people. I am starting to put too much pressure on myself to do everything during a window and that is leading to problems. To be fair to myself though, my waves are iatrogenic and I must forgive myself for feeling wretched, even during a window, because SSRI withdrawal is the worst thing I’ve ever experienced and it has ruined my life. Why are my waves more frequent? I will share some of my hypotheses below regarding why my waves are more frequent. If anyone has any thoughts please let me know, I’d love to hear them. I’ve learned so much from SA already. As mentioned in my signature I am working on compiling all the daily data I have into a graph so I can get a better picture of my stabilization journey (and what proceeded it). I don’t know when that will happen as my windows are now spent doing all the things I put off in my waves and just improving my loosening grip on the good things in life. I know though that I have to finish this data processing as soon as I can in case the waves merge into one big, long one. 1. My SSRI history during the last two years is peppered with ignorant tapering attempts, maybe it is catching up with me? 2. The optimist inside me is hoping that the frequency is increasing because it could be a pattern that occurs prior to a period of flatter frequencies (perhaps the ebbs and flows of homeostasis). I am perhaps just fantasizing but I imagine that if the frequency increases so much, like in a radio wave, the peaks and troughs (waves and windows) will be indistinguishable, which could be what homeostasis looks like. I am laughing at this hypothesis as I can see I am desperate for some good news XD 3. Maybe my reinstatement/stabilization dose was a little too low (considering I was on 40mg daily for the longest time) and I am catching up with the WD that it would have caused in recent months. If this is the case, I can’t see any benefit in updosing now anyway. Sure, it could always get worse but I think it would definitely get worse if I start guessing at an updose level. I could be wrong. 4. Some of my family wish to visit me later this month for a few days. I haven’t seen them in years. They planned it during one of my windows in December and I felt positive about it all. I also felt optimistic that given about 6 months of trying to stabilize, my waves would be a thing of the past, or a rarer occasion. I tried to get them to postpone but they can’t change their plans without losing all their money. I don’t want them to stop their holiday for me but as the reason for travelling is to see me, I have warned them that I may be in bed, only able to talk to them for a few minutes. I hope I have a window when they are here but I think I’ve had a huge amount of stress about the visit because I just don’t need the guilt I will undoubtedly feel when I am only able to see them for a few minutes. In other words, perhaps stressors and other factors in my life are making waves more frequent. My expectations for stabilization and my tapering plan I didn’t expect stabilization to take this long but after reading “After reinstating or updosing how long to stabilize” (http://survivingantidepressants.org/index.php?/topic/4244-after-reinstating-or-updosing-how-long-to-stabilize/?hl=%2Bhow+%2Blong+%2Bstabilize) I realize it could take a long time, maybe years based on how much damage my ignorant tapering did in the past. When I stabilize (I suppose I have to believe that I will) I plan to do an SA taper, spanning years, with water titration (I have done a few trial runs of it and it’s very easy to get accurate doses this way). I have the syringes ready but it could be a long time before I get to use them! My current plan is to keep plodding along at 20mg until I can get a more stable window and wave frequency. I don’t expect my waves to disappear completely but this increase in frequency means I am questioning things and hope that someone out there may have an idea about what’s happening and what I may expect to happen for the next 6 months. Lifestyle As for my lifestyle, I am healthy, eat well, and exercise most days. I take some supplements but I don’t think they’ve made much of a difference either way. I will list them later when I can manage it but they include B12, magnesium, and fish oil. Sadly, during waves I mostly lie in bed as it provides me some relief. One of the side effects from fluoxetine is sleepiness and lethargy, which I've always had, so that contributes to me lying about a lot. It took so much out of me to write this but I am glad I did it now! Good luck to you all and I wish you the best, regardless of what stage of withdrawal and recovery you are. Kittygiggles
  21. Takebackmylife

    Takebackmylife: Introduction

    Hello friends, I have been on several different antidepressants for most of my adult life. 22 years to be exact. I started at the age of 17 and am now 39. I have two young children and a loving and supportive husband. I have tried several times to quit the medication, but the struggle has been really intense ie brain zaps, nausea, dizziness, hot and cold flashes. I have finally titrated off Prozac for good. (I was actually on generic brand). I found it was making me Very Unmotivated and Angry. This was not working for me as a wife and mother. With the knowledge of my psychiatrist, I tapered off over the course of 1 month. I went from 20 mgs to 10 mgs to 5 mgs. I am now day 5 of not taking Prozac. I was feeling very depressed and moody this morning. I have since gotten myself amino acids and they seem to be helping with the negative mood. I also tried acupuncture yesterday and had limited success. I am also open to seeing a homeopath of necessary. Thank you for welcoming me into your community. I look forward to lots of helpful information. Sonia Xo
  22. Bluebird2009

    Bluebird2009

    Hi 8 am from the UK and was on Prozac for 18years but had been unwell and having physical problems the past few years but tests where all clear. I realised it was the drug that was the problem. I was taken off too quickly and my body went into shock and I have been in protracted withdrawal ever since which is 9months now. Every month I'm getting new symptoms and really struggling with living. I can't tolerate even a pain relieve tablet without a reaction. I have awful lung and chest pain, blurred vision, severe headache which has just started this week and feel like I'm dying. I feel I maybe shouldn't have came of but then maybe it's better to get the poison out of my body. Really need some positive vibes at the moment and if anyone else in UK can help please do as I'm frightened that I'm going to die.
  23. Firstly, I want to say i don’t know English well. I have generally high IQ. My memory and motor coordination was very powerful. I used Prozac for 36 days / 10 mg. While using, i notice some cognitive impairments. I stopped it suddenly after told my doctor. After 20 days, i lost my ‘all’ emotions and movement capabilities. I must try 3 times to write one word properly. I can’t play FPS games now. My emotions and of course sexual desires gone. I think it’s called PSSD. I researched as much as i can but couldn’t find any solid answer. In longecity, people think they are all maybe caused by dopamine inhibition. Serotonine autoreceptor desensitization —> Need to more serotonine to reuptake —> more serotonine —> more dopamine inhibition Someone tries tianeptine, ginkgo biloba, amino acids etc. But im only 16 yo and i don’t know which is harmful or safe to me. I will go to neurology doctor but i think he will say it’s caused by depression. But of course not. I can’t imagine, feel, play games, watch movies, remember now. Is time enough for recovery? Or should i try different supplements?
  24. Hi All, Firstly thanks for the excellent site and taking the time to review my post. History is long, so in the interest of time, 20 yrs on SSRI's (i've tried virtually all but had most luck with prozac and lexapro) with a 4 month bout of Remeron (awful w/d not helped by cross taper) and benzo's on/off for 8 years or so. Benzo: I've successfully switched from .5mg of clonazepam/day to 10mg valium and i'm now at 2mg per day. A bit more about this below. SSRI: Was on 20 mg for celexa for the last several months but completely zombified so decided it's finally time to be done with this sh1t I dropped relatively quickly per docs orders with really no impact down to 5mg celexa completely stopping the celexa and valium on May 1. Started 10 mg prozac only May 1, by May 4 really awful DR with anxiety, inability to focus, sleeplesness, headaches. Reinstated 1-2 mg valium which helped a little bit. Yesterday i tested the waters and dropped the prozac down to 5 mg to see if agitation was from that which resulted in bad anxiety, chills,and shaking. Took the other 5 g prozac and an additional 1mg valium which helped a bit. Today slightly better back at 10mg prozac and 2mg valium in the morning. I have a pdoc appointment tomorrow and really don't know what to do and not sure i trust his opinion frankly but do believe he will be fine with what i recommend. I consider these the following my options: 1.) Reinstate celexa at last dose (5mg?), drop prozac entirely after a week or 2, and keep valium, then micro taper off at 10% per 3 weeks or so. 2.) Hold steady on prozac and valium for awhile (how long?) then micro taper 3.) Something else? Any thoughts are much appreciated and i apologize for any incoherence in this post but just got back from work trip and wanted to get this out there for the educated folks to review asap. Many thanks for any input and your time!!! methuselah
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