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  1. Looking for advice, or support from others with like experiences. We are helping a friend. Here is what we know of her history: Past history of lyme disease (Believed to be resolved years ago... neurologist says friend may still have it, but I personally don't believe the symptoms commonly diagnosed as lyme disease are actually lyme disease). More recently diagnosed with multiple sclerosis (about a year or so ago). December 2018 – Began steroids, and then doctor prescribed restoril to balance steroid effects. Beginning of July, 2019 – Friend wants to taper off both restoril and steroid. Doctor (DPC) began a 5mg taper starting a few days ago (dose was 20mg, so would now be 15mg). Says steroid must be tapered first, and 5mg was the smallest amount that could be tapered. After beginning, friend saw her neurologist who said she shouldn't have began tapering, but should have tapered. A few months ago, the neurologist had offered friend antidepressants, but friend refused saying she was not depressed. She had tried to taper off steroids before, but experienced vision problems and trouble walking. Could this be prevented, or decreased, by tapering more slowly? Does anyone have advice for tapering steroids and restoril? Does anyone have experience with these neurological symptoms, or the effects of steroids and tapering them?
  2. Hi, Just curious if anyone can provide some help. I've had a rough 2015. I was in the ER with a couple of incidents of low sodium. As some of you might know, Lexapro and other SSRIs contribute to that. I've been on Lexapro for 15 years. I also had a night time drinking problem. My Dr told me to quit Lexapro in June which I did cold turkey. They didn't tell me otherwise. I had dizziness for a month but that's it. I tried it back up on my own in September but quit after a week cause of the symptoms. Then with my Dr's help I quit booze. Forgetting about the issues with low sodium he strongly urged me to go back on it cause I would be stressed from quitting booze. I did and gave it up 12/3/15 cause of the side effects again. I had some withdrawal from being on it for only a week. Anyways, due to incredible anxiety and insomnia for a week straight I went back to Lexapro on 1/1/16. Part of the stress is due to a new job opportunity to start in January if I want it. High stress gig. I was given meds to help with the low sodium issues. My long winded question is this? Was the stress due to withdrawal or a relapse of stress? I don't know which is the answer I want but I'm scared cause I'm not myself and have been in bed for weeks. Christian
  3. Hi, im asking for advice on 12.5mg lamotragine taper that i plan for the new year. ive been taking it for 8 weeks today as a mood stabiliser. i have felt better but that may also be a result of the tamazepam taper starting a few weeks later and the anxiety around the potential breakdown of my relationship being removed as he did infact leave. hes a lovely caring man though who just couldnt hear my distress ans thoughts of ending it all anymore...its been a really hard year and september/October/ november in particular were hard. pregnancy, miscarriage and precervical cancer all in one. i havent worked since sep 1st when i had surgery. last time i felt like myself was August....that was before all these drugs and while i had terrible anxiety but the anxiety was nothing like with the drugs...they bought on serious depression too....
  4. Hi all, just been given a prescription of Gabapentin today to help me with pain/sleep as Diazepam/Temazepam/ higher doses of Seroquel doing nothing for the latter - have histamine intolerance though, thus came across this site and these posts [in undiagnosed1's introduction topic]. May I ask does Gabapentin decrease or increase histamine? It's unclear. Look forward to hearing from you. Kind regards. S
  5. Sorry this is complicated, but this is a general overview of my history with antidepressants. Overall the main problem I've dealt with most of my life is trouble sleeping. One part of it is that I can have a lot of difficultly quieting down my thoughts. Another current aspect is that my friends/roommates stay up all hours of the night, and I've been getting influenced by this way too much. Over the past number of years I feel that I gotten too dependent on doxylamine/diphenhydramine for sleep, and it can be limited in how much it helps due to how fast the tolerance builds up. My overall reactions to antidepressants suggest that I have some form of bipolar. I did try a number of antidepressants around 1997-2000, and I tolerated them just fine, although I'm not sure if they really helped. The next time I tried an antidepressant was 2008, which was 20mg of cymbalta. This made me completely wired with racing thoughts, and unable to sleep for 3 days. In 2012 I was given temazepam for sleep (30mg), and I was told that it would be fine to take continuously. After about a month I started feeling strong tingling sensations through my whole body, and I this hunger that would not stop no matter how much I ate. I told my doctor and he said to just stop taking it. Once I did, my brain just went haywire. I started getting rapidly alternating bouts of severe anxiety followed by calmness. This turned me into complete emotional wreck over the next month. I went to my doctor and he said me that withdrawal is not a problem with temazepam, so he sent me to a psychiatrist. The psychiatrist told me the same thing about temazepam, he thought something else was going on. I was given 7.5mg of remeron, and this solved everything after the first pill. It was able to put me to sleep quite well for the first two weeks, but then the sedation wore off. He upped the dose gradually to 22.5mg over a course of a month, and it eventually shifted to feeling like some sort of crazy stimulant. He had me stop it immediately, and afterwards I didn't sleep for 3 days while not feeling at all tired, and my mood was quite good. This is something I'd never felt before. If took me about 5 months to settle out and start feeling normal again. I found that during this time I was immune to all the sleep medications that had worked before. Also, if I had anything that had any amount of caffeine, it felt maybe 10 times as powerful as it should. In the beginning of 2015 some majorly stressful events happened to me, and a different physician sent me to another psychiatrist because I just couldn't sleep with all the stress. I've always found that long periods of sleep loss can send me into an emotional meltdown, and once I start sleeping again my mood resolves itself. I was given 50mg of amitriptyline, and it worked great for sleep for 2 weeks, but then the the sedation wore off. They were quite surprised that I was no longer getting any sedation, but they wanted me to keep taking it anyway. I had the same issues with caffiene feeling dramatically more powerful at any amount. I've been strictly avoiding it ever since. I stayed on the amitriptyline for about 3 months, until I started feel this building anxiety with this anger and frustration towards the end of the day. When I would take the amitriptyline, this feeling would disappear. This was another new thing that I hadn't experienced before. I went off of it and then this feeling was gone within 3 days. This past winter was particularly bleak. I had next to no social contact and I got severely depressed. My sleep became very restless where I would get maybe 1 hour of sleep a night for 4 days. I started getting the same bouts of anger that I got from the amitriptyline. I might be able to sleep well for a few days and start to feel normal, but then I would crash hard. This was extremely alarming, because once again I had never experienced anything like this before. I went back to the psychiatrist and I was put on lamotrigine and paxil. I started with 25mg of lamotrigine and that was upped to 50mg. For paxil I started at 5mg which was brought up to 15mg. I was able to start sleeping again around the 5-10mg dose. Once I got to the 15 dose, I started getting a lot of muscle twitching. With in a day or two, my whole body was shaking uncontrollably. This unbelievable amount of anxiety came out, and I was having a complete emotional breakdown. I could sleep for maybe a hour after a few days when my body would sort of drop from complete exhaustion. Another thing that happened is my pupils got really dilated, colors got incredibly bright, and I started getting hallucinations: where things would moving around and I was seeing faint, shimmering geometric patterns in objects. This was an utterly horrifying experience. I was given a bottle of temazepam (15mg) to help deal with this, and I think this is the only way I managed to survive this. The psychiatrist was only available through email and she told me to just keep taking the paxil. Once I got them on the phone, I got the shout down treatment. They called BS on this being any form of bipolar, and they told me to get to work to take my mind off things and that I was sitting around worrying myself to death, however I did finally manage to convince them that antidepressants were not for me, and they had me stop taking the paxil. I eventually got in contact with my work and explained the situation, and I decided to leave the hospital completely and switch health insurance. I visited a new physician that looks to be a very good one, and I discussed the temazepam with him, which I had been taking for about 3 weeks. The only reason I had continued to take it that long is because I was afraid of the withdrawal. The physician told me that some people can take it for a very long time and not have any withdrawal, while a smaller group of people can have quite a lot of trouble after only two weeks. Temazepam, is proving to be very difficult to get off. I've been trying for the last couple of months to balance getting rested, getting my life and work back together, figuring out of the new medical system, while trying to taper off the temazepam. For a good long while I felt that I was totally back to normal. I found that anytime I lowered the dose, the anxiety and sleeplessness would come back. I did have 3 days when I was out of temezapam and I couldn't get anymore due to an insurance/pharmacy mix up. I ended up getting powerful tingling sensation all through my body, along with sensation of things crawling across my skin. Visually, I was seeing exaggerated after images. Sleep was not happening. This stopped once I was got more temazepam. So, I'm about two and a half months into temazepam. The tingling sensations and anxiety are continuously getting worse as I take it. I went back to physician, and he sent me to a new psychiatrist, though he said with the new medical system he's on, he doesn't know the people he's referring the patients to, and he doesn't know if they're any good. The new psychiatrist dismissed that the tempazepam could be a problem. They interpreted the issues I had when I couldn't get tempazepam as a bipolar episode, and I'm having trouble buying into that. They want me to up the dose of lamotrigine (bringing it eventually to around 300mg), which I'm on 50mg of and to keep taking the tempazepam. I do agree with the bipolar stuff to a point. Any description I've read of full mania is not something I can relate to in any way. Hypomania only really fits how I felt after I stopped taking remeron, but I can't say ever felt like that otherwise. Some things fit, like the difficulty with turning thoughts off, and taking on too many projects. Atypical depression best fits the type of depression I get. The elevated mood and euphoria is not something I can relate to. But things get tricky when they say patients have a poor ability to recognize these things. So, this is the point I'm at, and I'm not sure what move to make next. (There are probably a lot of errors. Sorry, writing is not my strong point.)
  6. I am on Cymbalta and Temazepam. I know conventional wisdom says Benzo taper first. I am in severe tolerance. I am afraid of total insomnia as I am in severe pain from cervical dystonia I believe caused by Cymbalta. Can I taper Cymbalta first?
  7. Hi I'm Kat At last after 25 years and after much begging my Mh team have said I can gradually withdraw from the cocktail of drugs I am taking. Starting a week on Friday. They have decided that the first med I should taper is the 30mg of Mirtazepine. They didn't explain why this particular drug should be the first to start with. They also didn't tell me what the lower dose will be. I take Diazepam, Risperidone, zopiclone and prn tamezepam. Any help would be appreciated so that I can make a decision whether to do what why MH team want me to do.
  8. hennie86

    Hennie86

    Moderator's note: Link to Hennie86's benzo forum thread I have used 5-htp in one time of my life without any problems so this time i thought, why not to try and now im thinking why on earth did i try. I had healthy nervous system back then and noticed it lifted my mood a bit(or it was placebo), now it´s very sensitive. What an impulsive thing to do to try that supplement, i just got an stupid idea to try, when i was suffering from depression one day and cried why my life is so grey and pointless. I even took half of the tablet, what an crazy amount 100 mgs would have been for me. Now it has been nightmare for days, i feel like i watch my life through anxiety. My goal was to feel better, but results were bad. Actually now i feel it was positive to suffer from depressive feelings and to cry the other day because after my 5-htp experiment my anhedonia got worse. Anxiety is all i feel now and depersonalisation and i still feel like i am half asleep half awake and everything feels weird, after my hospitalization i have been really sensitive to any changes how i feel. Seriously i feel like some colours went away from my life after taking that supplement or it is just lack of sleep. I still have tremor. I have blamed myself for days because of ruining my sleep and general life rhytm after 2 pretty decent months with good night sleep and nice dreams. Sleep that lasted 8 - 10 hours, really good after Lexapro wd ruining my sleep. Last night again the same thing like nights before, although i woke up one hour before, so 3 hours of sleep, im really soon in a state i have to go to hospital... It´s not really far away. I also suffer from self-hatred being so stupid to try serotonin supplement, because I know what reinstating Lexapro too late after quitting did to me, not good. What i have read from 5-htp, have convinced me, that it´s really stupid supplement for most of the people and can be as dangerous as ssri:s even though it is a supplement not a medicine. I saw my doctor today and he prescriped seroquel for sleep, 25 mg. I used it during my hospitalization, not with very good results with sleep and got mild RLS, but it helped a little bit, although i didn´t react well to bigger amounts of Seroquel. Now im thinking am i gonna try it, but im really afraid its gonna mess up things even more....I seriously thought im not gonna touch antipsychotics again. Still thinking, should i or should i not...Also have zyprexa in my cabinet and thought should i reinstate it instead, a tiny amount of it, would it help me sleep. im pretty desperate at this point, because im seriously in a really messed up state, afraid of collapsing again with really bad and this lack of sleep is ruining my life.
  9. I am new to this site and would like to introduce myself and get some support. I have been on antidepressants for 21 years and have struggled with them and trying to go off of them. I have always followed doctors advice and it has hurt me. Currently I tapered down to 10 mg of celexa very fast over the last year after many updoses to 80mg at one time. I have been at 10mg for 9 weeks and having horrible adrenaline all day and night. This began a few years ago and is getting worse. I was also directed to stop temazepam 15mg 9 days ago after 2 months of use. I didn't know it was so addictive otherwise I would not have taken it. I have had sporatic benzo use over the years but nothing more than small doses used infrequently about 4 times in 20 years. I do not know what to do now. I have been experiencing withdrawal symptoms for so long, should I hold at 10mg and wait for stabilization or up dose the celexa. I am struggling quite a bit and can't write as much as I would like. Any support would be appreciated.
  10. Hi. I began suffering from pgad last week. It's quite awful. I arrived at this forum looking for information on this, and it seems many on here have had this problem. I am not currently on or coming off of antidepressants. I was on them as a teen (a long time ago). I'm 33. I was also on ativan and/or clonazepam, and temazepam, up until about a year and a half ago. I wish I could get back on one of these as I wonder if it wouldn't help--I saw a couple people on threads who I *think* were saying clonazepam helped. However, I don't think I could get one of these anyway, as doctors are so reluctant to prescribe them now. Any thoughts on this? Another question I have is could my recent lortab usage have anything to do with the onset of this? Should I stop using this med; and if I do, might it go away, or have I started something that will now stay with me (I realize no one can answer any of this for sure; but I'm interested in your opinions)? Finally, has anyone used topical anesthetics to help with this condition and had any success? I'm considering buying some EMLA or tattooing anesthetic to see if it will help. It's hard to find info on if these are safe for genitals--but one would think so since these are also made for alleviating body-piercing pain and some get their genitals pierced (ouch). Oh and I have had restless leg like some others with this (as does my mother). And this does *feel* a lot like restless leg!! I wish like hell it was in my legs now. I also have been experiencing bladder trouble. In fact, the bladder trouble came about a week or two before the pgad. I have had bladder trouble in the past, however, on and off again in my life (like the restless leg, which has also been off and on again). I hope the pgad will follow suit and be on again off again. . . I'll be ever-grateful for *any* advice and opinions! And I know this is an anti-med site. I totally applaud everyone for getting off the ssri merry go round. I am glad I am off of these and never intend to go back on them. But please if you know of any other kind of med that might help at all, please please let me know. . .
  11. Hi there, I was prescribed 20 mg Temazepam for 10 years but discovered I`d reached a tolerance to it last August (2014). I asked my Dr to help me taper, who crossed me over to Diazepam 10mg. After managing to reduce to 7 mg, I became anxious, depressed and began to see suicide as my only option. My Dr suggested an AD but I`d had enough of drugs. As a last resort I booked myself into a detox clinic 10 weeks ago, which I now know was a big mistake, but having all faith in them at the time I tapered from the 7 mg Diazepam over 7 days. Since then I `m in terrible daily pain, with head pressure, stiff neck, shoulders, arms, back and a burning feeling in my legs. On top of this I`m having dizziness and nausea. With hindsight, I wish I`d somehow managed to carry on with the taper as since then I`m mostly bedridden with these awful symptoms. I don`t seem to be recovering at all. Am I too late to reinstate a small amount of Diazepam as I `d like to be able to at least function again? Thanks for any help or advice.
  12. Hi All, I'm joining SA as a way to give and receive support as I work my way out of 14 years of poly-drug treatment for a "severe mental illness" diagnosed after I was involuntarily hospitalized in an extreme state in 2001. When I was released from the hospital, I was on Seroquel and Depakote, constipated, confused, sad and dopey. I slept all the time, gained weight, my hair fell out. Deemed in the depression cycle of bipolar disorder, I was prescribed Celexa (terrible headaches and nausea), then Effexor (caused me to lose consciousness after exercising), then Welbutrin. Lamictal and trileptal were added, Depakote taken away, Neurontin tried for awhile, stopped, all to "stabilize" my "mood". A good career and high salary were history. For 2 1/2 years, I could barely function. My history of previous hospitalizations and mother's suicide 6 years prior made my SSDI claim sail through. I lost the ability to socialize or feel comfortable into public. I could blank out and hit the ground if someone startled me or trapped me. Six years ago, I started using a trained service dog for tasks related to PTSD (protect my body space and assist me out of dissociative episodes). That assistance allowed me to get off the seroquel and start doing things outside my home. In 2013, coincidental with starting a part time job, I had an access challenge that involved the police. My anxiety went over the top. Psychiatrist prescribed Seroquel, then Klonopin to deal with that, but I had to come off the Temazepam to take the Klonopin. I hated Klonopin and wasn't sleeping. Psychiatrist said, "If 'we' take you off the Welbutrin, maybe you won't have so much anxiety." I realized all along he had been prescribing additional drugs to treat side effects. He had added Sertraline to the Welbutrin on a couple of occasions and insisted I go on that before coming off the Welbutrin, which I did. Sertraline made me miserable. I decided to stop taking it after 1 month. I had gone back on the Temazepam for sleep, but once off the Welbutrin, didn't need that, either. By April, 2014, I was off everything but Lamictal, Trileptal and Levothyroxine (thyroid). I felt like a different person, awake! I could think! Wow. My skin cleared up. I started enjoying life and others started noticing how different my energy was. I fired the psychiatrist and approached my primary care doc to help me taper off Lamictal and Trileptal (the only two psych drugs left). Since a hidden study (not released until after the Lamictal's patent expired), showed it no more effective than placebo for bipolar depression, I started with that first. I did 10% taper until I got to half. Then did 10% taper of the half, cutting back every 2-3 weeks. Two weeks after my last dose of Lamictal, I started to slip into an altered state. Contributing factors, IMO: 1) Lamictal and trileptal have a synergistic effect. Lamictal increases the dosage of trileptal by about 40%. Coming off lamictal was like tapering off both; 2) In altered states 5 times (first in 1974), I was always locked up and drugged, and never able to naturally resolve the process; 3) The 20th anniversary of my mother's suicide approached. The unresolved grief, numbed out by so many years of drugs, blindsided me; 4) I didn't sleep for 5 days; and 5) Given what I'm reading here, there may have been some delayed withdrawal effects in the mix. Fortunately, loving friends stayed with me, helping me avoid the trauma of lock up. I've never been a danger to myself or others. I needed sleep. My primary doc prescribed temazepam. This time, it worked poorly. I had to take 3X what I'd taken before and it wore off within 3 hours. I'm now using medical marijuana to sleep. That works better than anything else I've tried (other than the seroquel which created a walking coma, not to mention the cholesterol soaring). I'm concerned about the anticholinergic effects of the drugs I've taken, including the 600 mgs Trileptal I'm still taking. With a family history of Alzheimer's, I do not want to add any more fuel to that potential. I plan to start tapering off the trileptal this coming week. Thanks to all of you for being here.
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