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I have had an account here for a long time. I do not believe I ever did an introduction. I was just speaking with someone who recommended I come here. I am suffering in so many ways and I feel so alone. I am becoming more hopeless every day and am afraid I am going to end up in a hospital. I have little time to even write now because there is way too much going on in my life. I need help. There is no where to go for help. 1- I was started on high doses of xanax in 1997 and continued until they switched me to 4mg klonopin in 2013 during a hospitalization. CT off xanax for a few days which I thought I was going to die. Then Klonopin, which has wreaked havoc in my life and mind and body. 2- Besides these two benzos, doctors have tried their "cocktails" on me. I do not remember every drugs, but these I remember: First, the xanax and the klonopin. Plus they have pulled me off, put me on, rearranged etc over and over the following drugs: remeron, cymbalta, zyprexa, celexa, serzone, brintellix (I think they renamed trintellix), lexapro, effexor, prozac, trazadone, abilify, wellbutrin, ritalin, seroquel, latuda, pristiq, melatonin, ambien, paxil, zoloft, vistaril, vyvanse, lamictal, cogentin, rexulti, and more. I cannot remember all. Life is a blur for these past almost 25 years of polydrugging. Now I am on here for my son as well - we both need help 3- Recent trauma: 2014 youngest son starts becoming delusional and episodes of psychosis. 2015: my father is euthanized in front of me and my family because of other family member's decisions for him - even though he was not dying, was completely alert and had his mind. He was not in hospice. It is a long story and traumatic. 2015: son's psychosis getting worse with son and he moves to another state to live with his brother. 1-4-2016: my son (youngest of four) parked a car and sliced his throat open with a knife- cutting through his trachea. Somehow lived. Got out of car, ran up 7 flights of a construction zone to jump. Construction workers stop him. I get call from hospital and fly to that state the next day. Son had to have 4 hour surgery to put his throat back together. He was in medical for 40 days with trach and feeding tubes. Then in psych. Then they sent him home with me. The rest of 2016 was complete chaos of hospitalizations for him - did not realize it was the drugs they were forcing on him. I was stupid. They messed him up so badly - 30 days of overdrugging in a "stabilization" unit. (he was the MOST unstable here!) Upon D/C, they discontinued his meds and gave him an injection of Abilify Maintena. Severe reaction to this. No sleep, severe akathathsia, pacing the floors night and day, hardly eating -- exactly 2 weeks later - he was arrested. In jail 14 months where they tried multiple drugs on him. Finally putting him on Clozapine and Effexor. Then he was court ordered to a residential treatment center. The doctor there increased the Clozapine from 300mg to 500mg. 225mg effexor. He was getting through the court ordered program for 10 months. Then they ran out of his Clozapine. I really do not know all details because I have learned how corrupt they are. He was forced hospitalized. Day 1: forcibly injected with Haldol X2, Ativan X3, Versed X2, Geodon X1. While he was suffering withdraws from the abrupt CT cessation of 500mg of Clozapine and now the cessation of 225mg of Effexor - both forced upon him by the "professionals". Day 2: Forced injection of Haldol and ativan. I informed the hospital that he cannot tolerate haldol. But they continued to drug him up. Day three: Forced injections of Haldol X 3 and ativan X 3 and then they started giving him Benztropine. By the time I saw my son at visitation, he was almost dead and it was a gruesome sight. I will not give details but I know I suffer post traumatic stress from it all -- I had to argue with nurse to get help for him. He finally was rushed to CV-ICU. He had DX of respiratory failure, acute kidney failure with rhabdomylosis, dehydration, clozapine withdraws. The ICU doctor noted that they had to work on my son for 48 minutes to "stop vital organ system failure and stop further life-threatening deterioration of patient's condition". After ICU, it was awful - he was soon thrown back into psych. All visitation and phone rights denied him. He was kept in restraints, completely naked, hours on end. Med techs would hold him on the floor while other techs kicked and beat him in the head. They continued to forcibly drug him with thorazine, restoril, ativan, even adding depakote and eventually starting the clozapine again. I had to fight for him for three months. He still has health problems today. I am his caretaker but I need help. He currently is taking: 500mg Clozapine, 150mg effexor. 4- Me- I cannot even remember when I started to taper my meds. Everything is a blur. I started realizing how bad they are for me. Knew very little. I cut the lexapro dose in half - I think this was early 2017. And I cut the klonopin dose by 1/4. Still, since then, a few different meds were started but I would stop them CT. Then I started learning more. I read parts of the Ashton Manual. I have been on FB groups. I have actually received a lot of harsh treatment from some people in the FB groups, so I rarely go on any of those groups anymore. I have a scale now. I shave off my klonopin. I tried lowering the lexapro but ended up going back up to 10mg and holding. Want to get off klonopin. But I am not doing well at all. I am exhausted. cannot write anymore. I have waited years to even get this put in here. I hope it makes sense. I have tried liquid titration with klonopin - disaster for me. I hardly have time to even care for myself - son is urgent. I am just barely functioning. So that's that. Not how I would have liked to write it. but mind is jumbled I think. I feel misunderstood. Hope I am not misunderstood here. I feel very much alone. NIghtmares- terrible. depression like I have never experienced. extreme fatigue, but high demands on me. I have to function. No one cares or understands about my son or about me. My son needs to taper but I think he needs to wait until off probation - maybe April or May this year. Everything I read and see about Clozapine and the horrible labels they have assigned to him - it seems hopeless. I feel hopeless of ever getting off klonopin and lexapro. This is no way to live. I am making no sense. Not even painting the right picture...for people to understand. How does anyone successfully get off these drugs and get out of the control of the system? We live in FL and they are "Baker Act" crazy here. Baker Act is forced hospitalization. They even have police come handcuff and take children right out of schools to a psych facility. It is only getting worse. I do not know what to do. I want to be free of these drugs. Also, my son wants to be free of the drugs. We both want to be free from the control of this holocaust type system call psychiatry. I know a moderator has to approve. Maybe this was not written correctly. Just let me know what I did wrong. This took a lot of effort. Even reading takes a lot of effort and I even forget. So maybe i am not supposed to put all this in here. Just let me know.
UnfoldingSky posted a topic in Controversies, actions, eventsCongress Proposes Research on the Link Between Psychiatric Drugs and Suicide By Chuck Ruby, PhD Featured Blogs March 30, 2016 Congressman David Jolly (FL-13) has recently introduced the Veteran Suicide Prevention Act (H.R. 4640). The bill calls for the VA to study veteran suicides over the past five years and to determine what extent psychiatric drugs are implicated in those suicides. The International Society of Ethical Psychology and Psychiatry (ISEPP) has long been concerned about this issue, and more broadly, how our veterans and military members suffering from the horrors of war and other traumatic experiences are being treated. I sent letters of support to Mr. Jolly’s office, offering ISEPP’s assistance in any way possible. In 2012, ISEPP launched “Operation Speak Up” (OSU) as a response to the alarmingly high suicide rate of veterans. The name signifies our desire to help veterans speak up, rather than being shut up with psychiatric drugs. Although it started as an effort to encourage Congress to consider a non-medical model approach to helping those suffering from trauma, it quickly turned into a grassroots and consumer focused endeavor from the ground up under the leadership of our OSU Director, Mary Vieten, Ph.D., ABPP, U.S. Naval Reserve Commander. Mary has since made great strides in partnering with Melwood, Inc., a non-profit organization dedicated to helping people with disabilities in the greater Washington DC area. Together with Melwood’s support and funding, Mary has created a program called TOHIDU (a Cherokee word meaning “peace of mind, body, and spirit”) as a wonderful alternative to conventional treatment. You can see more about TOHIDU here. Mr. Jolly’s bill will be the first to establish congressional oversight of this alarming problem of using psychiatric drugs shotgun style to quiet the screams of trauma. Despite the increasing concerns of the deleterious effects of psychiatric drugs, they continue to be the mainstay form of treatment within the VA and Defense Department, as they are on the outside. This has to change.The extant research makes it abundantly clear that psychiatric drugs do not correct chemical imbalances. It would be better said that they cause chemical imbalances. They artificially alter brain chemistry in ways that are not clearly understood, and that numb important emotions that signal meaningful issues in our lives. The brain tries to counteract their effect by making changes in how neurotransmitters are used. The person experiences these changes in very agonizing ways, the most worrisome is called “akathisia,” or a state of agitation, restlessness, and a terrible sense of not feeling welcome in one’s own skin. This can lead to unpredictable irritability and violent behavior, including violence toward oneself. To read more on this, see ISEPP’s White Paper. More here: http://www.madinamerica.com/2016/03/congress-proposes-research-on-the-link-between-psychiatric-drugs-and-suicide/ Also on that page is information about how to contact Congress to express your support for this bill. It would be a great idea to also encourage them to investigate the suicide-drug link in other populations too!