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Icip replied to Maybe's topic in Symptoms and self-careHi all, I’ve seen a thread on eye issues but seems to have largely gravitated towards floaters and away from what I’ve read to be a rather rare symptom on this site, and sometimes one of the most troubling symptoms (it certainly is for me!). I want to make a space for the question - Do you have visual snow with any associated symptoms? How do you cope, and has it gotten any better or gone completely? Symptoms of this WD induced syndrome include: - Visual snow/static, often described as a haze over solid objects or colours all the time, or in certain lighting. - Tinnitus, in both ears or just one. - After images (palinopsia). Negative or positive, maybe both. Some can trail or ‘run after’ the object in motion, while some can freeze into your field of view. Lights do this quite obtrusively. - Flashes of light in the dark or with your eyes closed. - Photophobia/light sensitivity. - Nyctalopia/impaired night vision. - Just a sense that your vision isn’t quite right. - Double vision/ghosting of text (e.g. white text on a black background) Other accompanying symptoms: - Derealisation/Depersonalisation. - Brain fog. - Muscle twitches. Any insight on this and your experience would be lovely, for I and for others. I’ve seen this dissipate completely for some, whilst remain for others - it’s quite a hard symptom to come to grips with.
SOcean posted a topic in Symptoms and self-careI'm having trouble with my eyes since a bad reaction to a steroid and also since coming of Prozac. My pupils have been smaller since coming off (I read that SSRI'S dilate, so they've probably been dilated for many years) and I've had blurry vision and just "different" vision since the steroid too. Kind of like having a permanent migraine. I feel like I have a hard time focusing. I'm sensitive to colors. Things look weird. Driving feels weird. Super sensitive to light and visuals. I went to eye doctor and of course they didn't find anything or do anything helpful. I have eye pain. I feel like my eyes are strained, muscles behind them have tremors too, and maybe aren't working right. And like I have a haze or veil or everything. I'm scared obviously and don't know what to do. Also facial tics and spasms seem to be getting worse, as well as other tremors.
julianfrancois posted a topic in Introductions and updatesthis may be long but its a complete overview of how psych drugs have destroyed my life(hopefully temporarily) I was put on zoloft at 14 for depression and severe OCD. the effects were actually extremely therapeutic and healing. I havent had any compulsions since( 6 years ago). so I do not regret going on it looking back, but i had no idea i was going destined to go down the rabbit hole of psychotropic meds. zoloft made me develop a duodenal ulcer and berets esophagus which made me feel nauseas all the time, thankfully nexium seemed to fix it and I haven't had gastrointestinal problems since. fast forward 3 years after i moved away to start my first year of college. amongst the workloads and new experiences i accidentally cold turkeyed my meds and decided to stay off. I slowly started to experience depression which seemed managable until i began to feel the anxiety creep back in. it got to the point where i was freaked out enough that my OCD would return that went to my psychiatrist, he thought the logical thing to do was to be put back on the zoloft but i was not keen on that idea because of my fear of furthering my gastro problems in starting the medication back up. I was also tired of feeling exhausted all the time, so he suggested an SSNRI and put me on wellbutrin. i only managed a couple weeks on it i believe as it aggrivated my anxiety, so he took me off and put me on effexor. the effexor worked pretty well for me as i increased my doses. i believe i was on 225 mg. after my freshman year i moved back home because i had made changes to my degree path that the university i was attending couldn't fulfill. I again began taking my meds sporadically and feeling the effects of it, some brain zaps, slight change in though process, anxiety and pretty bad depression. i eventually cold turkeyed the effexor(idiotic) and felt the depression worsen by the weeks. thankfully i was at home where i could be as upset and weird as i needed to be thanks to the worlds most understanding mother( dealt with two of her siblings' bipolar disorder). as i waited for my appointment with a new psychiatrist in my home town, things got to the point where i was ready to take any medication in order to feel better, so i went into my sessions with my new psychiatrist with a completely open yet naive perspective about meds, considering it was the effexor that that screwed me up. he immediately pointed out the other doctors mistake in changing drug classes too quickly. so he decided i should stick with the ssri's. I was hesitant because i thought i was so messed up i was beyond that. boy was i wrong. he put me on lexapro and said it was one of the more heavy duty ssri's. i began taking the medication and felt a slow leveling of my mood as i worked up to 20mg( 3 years ago). however, i was not satisfied with my progress after about a month, so he decided that adding abilify would help things. after taking one abilify pill i would never underestimate the power of psych meds again. I took the abilify at night and went to bed but the abilify would not let me sleep a wink. everytime i would doze off i would jerk awake as if i had a nightmare. there was also a slight feeling of restlessness and anxiety. it was torture but thankfully only lasted that night as i never took a second pill. at this point i figured that the lexapro was enough and it was for about 2 years as my well being kept increasing and i felt completely in control of my emotions. at the time i had bad cystic acne and wanted to go on accutane as a last resort. my psychiatrist approved despite my worries of the potential psychological effects, he thought the lexapro was a good enough safety net. so i went on a 7 month cycle of accutane and developed no psychological issues. however i did feel a dulling to my mental processing nothing too extreme but something i was aware of. I thought it was without a doubt the accutane because at the time i was sold on the effectiveness and benefits of psych meds. 4 months after stopping the accutane i decided to taper down to 10mg, and i did as my doctor instructed, but as we all know now, standard medical protocol for tapering off meds is pretty inaccurate. i started noticing diffuse pain in my body. i thought i was just working out too hard, as i exercised and lifted weights 6 days a week. but the pain progressed to a point where my workouts had to be compromised and my muscle movement became slightly rigid and my connective tissue was snapping and popping, so i eventually went to the doctor. i was referred to a rheumatologist who did a full work up and found no signs of inflammation. which was both relieving but also unsettling because the nonspecific diagnosis of fibromyalgia was not good enough for me. I was also told that i may or may not be developing an autoimmune disease which scared the **** out of me( ha if only i knew how much worse things were going to get). the popping and snapping made me believe i was developing rheumatoid arthritis. the fear drove me to an alternative and proactive approach to healing. I began eating vegan, then paleo/anti inflammatory. the diet was difficult and made me lose a lot of muscle mass. but i kept on it until i was invited to a friends 21st birthday party in vegas. during that weekend i threw away all dietary restrictions all at once and payed for it. the very first night of heavy drinking exacerbated all of my symptoms and added a neurological flavor to it; i began to experience weakness and tremors.this occured eveyrtime i drank in the future. i didnt want to miss out so i powered through it. I managed to come back and continue my diet temporarily before i moved for school again. fall of 2014, I moved to SF for school and was so excited about the possibilities awaiting me in the city. i was still on 10 mg of lexapro at the time and felt mentally sound accept for a and clear increase in brain fog which i thought was related to whatever mysterious illness was brewing in me. still, i never thought to attribute it to the lexapro because in my mind, there was no way an antidepressant could manifest such physical symptoms but I weaned off the 10 down to 5 over a couple weeks to be sure. my time in SF only lasted 2 months as the symptoms progressed and I fell more ill. I began experiencing reccuring fevers of 104 and missed a lot of class. the health center doctors there swore is was just a bad virus. but i wasnt getting better and I began to notice twitches in my muscles at rest. I missed so much class, i had to come back home and get my health back in line. the possibilities were extremely distressing. i was reffered to an infectious disease specialist who believed i might have contracted HIV or Lyme disease. after some blood tests, he ruled out HIV but wanted to be absolutely sure it wasnt lyme or some other infection he might have missed. he decided a spinal tap would be the best way to confirm. it made complete sense that i would have lyme disease since my symptoms matched the criteria completely however the results were negative. the spinal tap procedure was pretty much painless, but the spinal headache and back pain drove me to pop Vicodin like dr. house. it would only subside when i was completely flat. this lasted a little over a week. the hole in my spine was leaking so much that i temporarily lost my hearing while visiting my brother in chico. i woke up and my right ear was not picking up anything and the headache had worsened. I informed my mother and we drove to the ER. after waiting 5 hours in the waiting room a nurse took us back to a hallway gurney. I'll never forget this nurses name because of what she put me through. my options were an emergency blood patch, or fluids and pain medication. I went with the latter because i was done with needles going into my back. the nurse hooked me up to an iv and told me the drug cocktail she was going to give me was a non narcotic combination of muscle relaxers, anti inflammatories, and antiemetics. after all the vicodin i was done with narcotics so I agreed to the cocktails administration. even now as i write this I get an overwhelming feeling of regret. the cocktail contained, benadryl, toradol, and compazine. little did i know that compazine was first generation antipsychotic. I immediately felt the effects. horrid akathisia radiating from my chest, agitation, terror, anxiety, increased twitching, and instantly put into a state of depersonalization where i became unable to think with any clarity. I felt as though i needed to run up and down the hospital hallways but i was too terrified to even speak to my mother and the benadryl was making my body weak and drowsy. the attending came back and asked how i was feeling, I wanted to get the hell out of there so i told them better. after i was discharged we drove back to my brother's place where i unsuccessfully tried to sleep off the meds. I woke the next day still feeling high as i called it at the time. after we came back home I had a panic attack over not being able to unwind to sleep. I just couldn't relax and sit still. so i took more benadryl which did nothing and i researched other people's experiences with compazine. this was both a mistake and a tool as i found out about my experiencing akathisia and depersonalization. i kept waiting for the drugs to wear off but weeks went by and there was not change. I went back to my psychiatrist and he said that the compazine would eventually work its way out of my system. its been 2 months since the IV compazine and 3 months since i weaned off the lexapro and things have only gotten worse. i still felt mentally sound after i came of the lexapro despite the physical symptoms everything changed when i was given the compazine. everyday now is a struggle. I cannot be a functioning member of society in this state, my sleep has now become affected, it feels like im in an initial state of sleep and staring at my eyelids. im constantly uncomfortable and few things are helping me cope. this experience has taught me about the true harm of psychotropics. I wouldve never thought the lexapro was actually causing my lyme disease symptoms. my question is, has anyone experienced a recovery from compazine and or lexapro or acute drug induced akathisia and depersonalization??? since drugs got me here in the first place i plan to ride things out as long as i can on my own, are there any supplements worth taking to help ease or heal me? this really is what hell on earth feels like. if you read all of my story, thanks for your interest.