Jump to content

Search the Community

Showing results for tags 'zoloft'.



More search options

  • Search By Tags

    Type tags separated by commas.
  • Search By Author

Content Type


Forums

  • Support
    • Read This First
    • Introductions and updates
    • Tapering
    • Symptoms and self-care
    • Finding meaning
    • Relationships and social life
  • Members only
  • Current events
    • Success stories: Recovery from withdrawal
    • Events, controversies, actions
    • In the media
    • From journals and scientific sources

Find results in...

Find results that contain...


Date Created

  • Start

    End


Last Updated

  • Start

    End


Filter by number of...

Found 304 results

  1. Hi. I'm new here. Here are the basics of my story. I had been on 150mg of Zoloft for 17 years for dysthymia and generalized anxiety disorder. I decided to taper off, with the blessing of my pdoc. My depression and anxiety returned, and I had to not only increase the Zoloft to 200mg but add 1mg of Abilify (plus Konopin as needed). It's been a year and a half since the episode began and a year since starting Abilify. I'm feeling quite a bit better--I hardly ever take the Klonopin, and my pdoc said I can try doing without the Abilify. I just went 16 days at only 0.5mg of Abilify, but I'm feeling anxious and depressed again and bumped back up to 1mg. I'm so frustrated with the whole situation. I'm working hard to recover: I'm in weekly therapy, I run just about every day (3-6 miles), and I meditate almost daily. I don't want to come off the Zoloft, just the Abilify. Maybe I won't be able to, in which case I need to come to terms with that. Any comments or questions would be greatly appreciated.
  2. Hi, I am 35 years old - nearly 36 and been on Sertraline since age 22. I tried to stop once and had a complete meltdown. I am very scared of that happening again so am only tapering by 10% since Monday. I am cutting the tablets so exact amounts are difficult. I bought a mg scale, which hasn't arrived yet but don't know if it will be sensitive enough. Anyway - I am going to stay on 45mg for a few months at the moment as I have a very stressful job, stopped smoking a year ago (but still using Nicorette!!) and I am trying to cut down on my alcohol consumption, which has become steadily worse over the last few years as it makes me feel very anxious about my health etc etc. I have developed an eye condition (called Azoor) and I blame Sertraline, though I could be wrong. I am finding many posts on here very inspiring because I am so afraid that I will never be 'normal' if I stop taking Sertraline. I also feel a huge sense of resentment towards the psychiatrist who put me on the drug (I know this isn't helpful). My mother is convinced I have to stay on this drug for the rest of my life and last time I tried to taper I told her, which in retrospect, was a big mistake. She kept saying things like "I can see a difference, are you sure you are doing the right thing … etc." which served to make me quite paranoid about the process. My fiancé says I was much better off the drug (until I went a little nuts for a while).
  3. David182

    David182: hello all

    Hello everyone, I’d like to start off by saying thank you. The people of this forum have inspired much hope and understanding in the ways of antidepressant medication. I am grateful. I’ve been on Zoloft since the spring of 2015. Things had been going wonderfully well. I felt like myself but disconnected/ unplugged just enough to cope far better. Better mood, alertness and mental focus were a nice change of pace. Around the end of May 2017 I’d been taking BCAAs for working out for around 2 months. One Sunday, after lifting weights and mowing the yard I took a nap and woke up feeling off. I had low blood sugar issues for about a day, I couldn’t handle warm temperatures, couldn’t sleep well, and suffered hot flashes for the next few days. For a while I though I was sick. I took an lorazepam one evening (3 days later) and an extra zoloft because of horrible anxiety. I countinued to take my now double dose with my doctor’s permission. The next 6 weeks were h*ll. I had no idea Zoloft could do such things since I had no negative effects when I started. I could write a novel (as I’m sure we all could) but I’ll try and hit the main points. About week 6 I stabilized. I hadn’t found this site yet so many mistakes were made. i only stayed at 100mg for a week or so before I jumped to 75mg (I felt too apathetic about things, needed to lower). By this point I realized it was the Zoloft causing my problems. The next few weeks were quite uncomfortable but things went really bad when working out on the 3rd week caused me to crash...hard!! I switched doctors as I couldn’t seem to get anywhere with my other one. My new P.A diagnosed me with serotonin syndrome (a short 3 day stint of trazadone while doubling my dose no doubt contributed, different doctor) she dropped me from 75mg to 25mg of Zoloft. I felt so much better and for the next two weeks got to the point of feeling amazing. Then week three came and some light cardio pushed me over the edge and I crashed again. I also noticed I would have horrible low blood sugar issues for a day or two after crashing. after a week of misery. I bumped my dose to 50mg (I found this site by then). I felt immediate improvement. I began to heal but also began feeing strong sensations of numbness/ pins and needles in my hands and feet, weakness also. I am currently 7 weeks at 50mg. I’ve been struggling with tight & weak calves / ankles since, sporadic internal tremors and fatigue. Had back spasms for a bit about a week ago but not since. I’ve begun to sleep better in the past few weeks (7 hours on a good night but not consistently). I typically wake up around 5-6 hours after falling asleep but I don’t NEED medicine to help me fall asleep anymore (a few months of needing it). I would rather keep this short but I want you all to know my history. I saw a psychiatrist tonight at the recommendation of my PA (she was surprised when my reinstatement actually helped, she was convinced I hadn’t dropped too low too fast. She is a wonderful PA and God worked through her, saved my life when I had serotonin syndrome.) The psychiatrist on the other hand... I have mixed feelings. I flat out refused any other medication. She believes my first incident was serotonin syndrome. Maybe so? BCCA actually inhibit triptophan uptake but then again my workout protein powder did have triptophan in it (I have quit taking all workout supplements months ago). The psychiatrist also thinks I’m suffering from serotonin syndrome now. (Currently weakness in legs, pins and needles in hands and feet, stiff feeling calves and maybe hands, hands and feet more susceptible to being cold) what do do you all think? Do I continue to continue to tough it out at 50mg? Is this a sign my body is too sensitized for this dose? (I was at 25mg for one month before reinstating to 50mg) I will work on my signature as soon as I figure out how to do it. Thank you for your time. I trust you all more than the medical “professionals”
  4. Hi everyone, beware! My story is very long, I’m mostly just sharing my experience in hopes that anyone else this has happened to knows they’re not alone or crazy despite what they’re doctor says and it’s reassuring to know people have experienced this and recovered. i am new to this site so i am still getting the hang of how things work! i am a 21 year old female, a mother of two beautiful babies and married to a very amazing supportive and kind husband. Approximately two and a half weeks ago both of my children (2 yrs old and 10 months old) came down with croup, a common illness in children that causes inflammation and restricts the airways sometimes making it difficult for them to breathe. So naturally, like any mother, i became very anxious and when my son was struggling to catch a breath i began having a panic attack. i have had panic attacks in the past (maybe once a year if that?) and they never lasted longer than a few minutes at a time. Well in the middle of this panic attack i remembered that my OB had prescribed me 50 mg Zoloft after id had my daughter just Incase i were to have post partum depression because I’d had it after having my son. (It had been a very dark two months of crying spells and feeling hopeless. I’d taken Prozac for the PPD and found it odd but also great that only a few doses brought me right out of the ppd so quickly when they said it’d take a few weeks to even work, so i never took any again after that week and was fine ever since!) Typically i only take medication as a last resort, even Tylenol. i will not take it unless i absolutely need it, but in the middle of this panic attack i told myself i could take it for a few days to help me the way the Prozac did. 😑 So i took it, determined it would help me. I had just finished a z pack the day before that (I’d been sick with my children) and i now know that z pack and Zoloft have a moderate reaction together. Anyways, i awoke the next morning with my heart racing and i sweating and i could not sit still to save my life. Just pacing around the entire house standing up and then sitting back down but no matter what i did nothing could calm me down or relax me. I felt like i had just smoked a ton of crack or something! My mind was racing and there was this burning sensation beginning in my chest and just spreading and shooting through my extremities. It was constant but would intensify in waves, the panic attacks were constant too, I’ve seen alot of people who say they thought they were having a heart attack while feeling this way but i knew this wasn’t that, i knew immediately that this was from the Zoloft. But i was sure this was it, i had destroyed my brain, i was on the verge of losing it completely. But at this point I️ got horrible pains in my stomach and (TMI) i began having diarrhea followed by complete loss of appetite. My mom had come over and ended up taking me and my two kids to work with her because i was terrified to stay home alone with the kids while my husband was at work. This continued for the next three days. I became a zombie just completely consumed by my own thoughts, like there was a war going on in my own head. I couldn’t understand what was happening to me, the ONLY emotions i had were dread, fear and hopelessness. I broke down when my son was looking for my approval when he did something funny and i couldn’t even force a smile. I couldn’t feel a single bit of happiness, excitement or anything towards other people even my freaking children. My mom took me to my doctor, my HR was 162 and i don’t remember my blood pressure but it was higher than normal but not dangerous and i explained everything going on and watched as he wrote down that i had general anxiety disorder and panic disorder (which is not true at all) and told me that one dose could not effect me. I began crying and told him that this WAS NOT ME. Ive never been so unstable and i told him three days ago i was completely functional and perfectly fine!!!!!! Of course I’ve struggled in the past with some depression and anxiety when things happened like a family member dying or after having a babyAfter explaining this he said maybe i am a low cyp2 producer or something like that and wrote me a prescription for Xanax to stop the panic attacks and to come back in one month. And we could look into other SSRIs 😂 yeah SURE. I didn’t even need them in the first place!! i left feeling a little better about having something that should calm me down but freaked out again when the Xanax did nothing. My heart was STILL racing, my mind wasn’t slowing down, the burning was still there in my chest but physically my body felt heavier and slower. I ended up going to the ER the next day when nothing changed where the doctor denied blood work at first and asked if I’d like to see a psychiatrist. I was mostly calm while explaining everything to her but I could just see in her face she didn’t believe a word i was saying. She told me Zoloft couldn’t do something like this and that it was just me. She was, and i quote, “98%, actually 99% sure that this is not the medication doing this.” Then proceeded to tell me maybe i am just now beginning to exhibit symptoms of panic disorder because some people don’t exhibit any symptoms until they’re in their twenties and then used PSYCHIZOPHRENIA as a freaking example 😡 and then that’s what began the intrusive thoughts. I left the hospital feeling more hopeless (aside from the random nurse who came and told me that Jesus loves me on my way out, that was encouraging) than before. I started convincing myself i was just losing my mind and it terrified me, what if i snap and hurt my kids? What if i black out and try to kill myself? What if i hurt my husband? Y’all, my family is everything to me and these thoughts were KILLING ME. The worst things i could think of just kept running through my mind over and over. Just as i was about to have my mom take me to a facility where i could be monitored or get some help or anything because i was so afraid i would just lose my mind, i got my first window. It was the first bit of hope i had felt since it all happened! And then i knew, what is happening, is not me. I finally had the ability to get out of my damn head for a little bit and i began googling and googling every single thing i was experiencing. By discovering that this exact same thing has happened to so many other people gave me great comfort, not that anyone else having to go through this is comforting but that IM NOT ALONE AND I AM NOT GOING CRAZY!!! So currently it has been 2 weeks and 4 days. The only remaining side effects are loss of appetite and waves of anxiety which trigger intrusive thoughts followed by depression. I still get some windows and distractions help a lot. But mornings are extremely hard, i wake up anxious and depressed and it takes a while to calm myself down, reading a lot of other people’s stories helps me to relax some. Driving around helps a lot too and sun light makes me feel much better. I’m hoping since it was only a single dose that i will fully be back to my regular self soon since thanksgiving and Christmas are just around the corner and I’d love to have my appetite back so i can enjoy the food!! I guess the only plus side I’ve found to all of this is i will have a much greater appreciation for life after overcoming this and i lost 12 pounds lol i just really hope to enjoy my baby girls first Christmas with her too. Three weeks ago i loved mornings, waking up before the kids and having my coffee and enjoying tv waiting for them to get up and come play. Now i dread mornings and have constant mom guilt because i feel as though i have been failing them. I think the hardest thing has been the intrusive thoughts, it absolutely terrifies me when i have them. It just blows my mind how carelessly they prescribe this medication to people. I feel so stupid for not feeling the need to research or check what I’m actually taking and what it can do to me. I just always trusted that doctors wouldn’t prescribe anything to you that could hurt you, i know there are a lot of good doctors out there but i feel like they should be more careful with this stuff. I mean both the doctors i saw gave me a list of benzos to choose from and i just looked at them like they were crazy both times. Im not touching any of that crap again. I’ve even looked into anti biotics and those are even dangerous too!!!!
  5. Hello all, long time reader first time poster. Firstly I just wanted to say how awesome it is to have such a place to go and receive help for what can only be described as a nightmare that thousands of people seem to go through. So here is my story which I will end with a few questions I have. As you can see from my signature, I was placed on 50mg of Sertraline (Zoloft) in September 2009. This is when my life was turned upside down. I was originally placed on this drug because I visited my local doctor comlaining about some anxiety that I was getting after I drank alcohol. I must say that for a period of about 8 years I was a heavy binge drinker. I was a typical 18 year old who went out every weekend and got blind drunk with his mates. This was obviously starting to take its toll on me once I hit 25 years of age and that is why I visited my doctor. Well I was in there for a total of about 10 minutes before he prescribed me 50mg of Zoloft telling me this would help with taking the edge off of my anxiety. I did what he suggested and this was the worst mistake of my life. I returned to the doctor within 10 days of starting 50mg complaining of the worst symptoms (severe agitation, anxiety and now depression). Unfortunatley I could not see the original doctor so I saw another doctor there at the time. He said I must need a higher dose and that 100mg was the normal dose he puts his patients on. He also prescribed valium to me (which I took a couple of times). The next 3 months of my life was like a horror film. I became suicidal with severe symptoms that I had never experienced before going on the drug. I seem to settle after about 3 months, but it must be said I never was without symptoms, but they were less severe. Around 12 months after starting the drug, I began to get more severe symtoms. I returned to the doctor and he once again up'd my dosage to 150mg. The next 3 months were a nightmare again, severe agitation etc. For the next 6 years I floated between 100mg and 150mg. I spent thousands of dollars on therapy to treat an apparent panic disorder; although I didn't mind the therapist, the information we went through just didn't seem to apply to me i.e. I wasn't thinking any of the ways he was suggesting was causing my symptoms. It wasn't until I started looking into more natural ways and researching antidepressants that I realised that maybe the drug could be the problem! Lightbulb moment! I have read a lot of books from authors like Peter Breggin, Joseph Glenmullen, etc. which I am sure most of you have read. I also have been doing a lot of work with a nutritionist. I had a 23andme test done and found out a couple of interesting points. I have a COMT gene mutation which means I break down adrenaline and dopamine slower and I also have a mutation in another gene which I can't remember the name of which means I break down serotonin slower. What this actually suggests to me and my nutritionist agrees is that I may have been quite toxic with levels of serotonin which was causing serotonin syndrome. Alot of my symptoms were a mirror image of serotonin syndrome (agitation etc.). So as you can see from my signature, I began tapering in February 2016. My problem now is that I seem to have hit a huge brick wall. I may have tapered a little fast and was hit with severe withdrawal symptoms which have not gone away. I have been holding at my current dose of 60mg for almost 4 months now. This past 4 months has been the worst 4 months of my life. It started with severe symptoms like pounding headaches, vomitting, insomnia, not being able to sit still (severe agitation) as well as some depression. It has progressed from there to now being just severe depression. I am not depressed about anything in particular other than the way I feel. It is like I am completely numb with emotions aside from being really upset. I have no appetite and really struggle to get through each day. I am very fatigued and lack motivation to do the most basic of things. I am pushing through it as best I can still working fulltime and excercising a couple of times a week plus playing golf on the weekend. I must say that I have a great life. I love my job, I have a beautiful wife and young son (8 months) and honestly have everything to live for. It is just these horrendous symptoms are ruining it all. So finally to my questions and looking for advice from some veterans on here. What should I do next? Should I continue to hold at 60mg until things get better, or should I continue at a 10% taper and see if things get worse or perhaps better? From previous drops, I seem to have a period of improvement on symptoms for about 2-4 weeks, and then it begins to decline until I drop again. I am not sure whether that means I should keep reducing or slow down. Any advice is greatly appreciated. Thanks all.
  6. Are there any support groups specifically dedicated to Zoloft titration and withdrawals.
  7. Hello, this is my first post and I’m really looking for some help Here is my story, so for the past three years I have been on 50mg Sertraline/ Zoloft for Panic Attacks, Anxiety and Depression. I decided to come off of them from the beginning of this year and then had a delayed withdrawal symptoms three weeks from my last dose. I then reinstated on the same medication and for 2 weeks and 5 days experiences awful side effects even worse compared to the first time I went on it, the main cause for concern it making me have suicidal thoughts and feelings, which led me to CT with the advice of my doctor. From what I have found is that the medication may have exasperated my discontinuation symptoms. For a month after I experienced discontinuation symtpoms including Acute anxiety and dread Waking up anxious Low mood Depression Feeling extreme weariness (the worst) Nightmares Decreased appetite Mild insomnia - waking up several times throughout the night and early morning wake ups Confusion Brain fog - words and sentences seeming jumbled or muddled Intrusive suicidal thoughts Suicidal feelings Crying spells Mood swings Irritibility Racing thoughts Anhedonia Poor concentration - unable to read or listen to music Mild memory loss Derealisation / Depersonalisation Flu-symptoms Mild vertigo Tingling sensations Smelling things that aren’t there Diarrhoea Lack of labido Light sensitivity Eye floaters 5 weeks later and most of these are gone, I had a streak of 6 days where I felt fantastic, I felt like I could manage my anxiety and depression and I was just left with what I’m usually used to. However, I feel awful again, but I am unsure if this is a “relapse” to what my natural mental state is or if I’m still experiencing mild withdrawal. I noticed yesterday that I kept repeating a words that I was reading from signs I walked past, I have quite bad health anxiety and seeing as this is unrelated to anxiety and more OCD, it’s freaking me out thinking I might be developing it. But, when I read about OCD it doesn’t entirely relate to what I’m like, I’ve always been more anxious and depressed, I don’t perform rituals in my mind or physically. I do have worries about losing control and horrible instrusive thoughts but I always assumed that it suited my anxiety rather than OCD. I have had repetitive words happen to me a few times even while I was on the meds, but to a point that it didn’t concern me, probably a total of 5 days out of the three years. I also remember right at the beginning of my experiences with mental health that I did sometimes count things but could easily stop. But im unable to remember if this is when I started the sertraline or before. Now I’m off of them I’m unsure if this is a diagnosis that has been unnnoticed (as I did go onto AD fairly quickly) or if this is an effect of SSRI meds and the withdrawal? I also had about a 5 day bout when I recently reinstated my meds experiencing a compulsion to touch my nose over and over, however I resisted it to the point that it went quickly and figured that it was my brain confused coming off and on the medication and the effects on my nervous system, and that I had read somewhere that the end of someone’s nose also felt quite strange coming off medication and that it can be anxiety related. I do feel that as a person my anxiety fixates on health problems and then acts them out in hypothetical situations, so I used to worry about schizophrenia so when my anxiety was bad I would imagine voices talking to me, even though I was not psychotic. I think the same thing happens with my current worry of OCD, that my brain is acting it out playing on my worries, rather than the typical sense of OCD using those thoughts to neutralise worries. If that makes sense. Im also beginning to experience Earworms, parts of songs annoyingly repeating in my head. Has as anyone got some incite to how I’m feeling or if they have had similar experiences? Is it because of the medication, the discontinuation, or should I have something to worry about in terms of OCD? And most importantly, can people experience mild symptoms of OCD but mainly have anxiety? I.e can anxiety borrow tendencies from OCD without it being OCD. I feel a lot better without all the nasty discontinuation symptoms, but now I just feel awfully trapped between coming off medication or having to one day maybe reinstate because I’d be unable to deal with what I’m like off of them and this mental discomfort. All the stories on here scare the life out of me, however both options appear terrifying- being off medication and going back on them. I don’t ever want to experience being suicidal again, but I don’t want to be crippled with anxiety and new symptoms that seem scary to manage. So confusing. Hopefully I’ve been as informative and concise as possible. Would love to hear from you all!
  8. Hi, I found this site a couple of weeks ago and have slowly been starting to wonder if what I’ve been going through the past 18 months is related to SSRI withdrawal. I managed to successfully withdraw from Lexapro at the end of 2010, after over 13 years of AD use. I had various fluctuating symptoms for a couple of months, but then apart from constant ringing in my ears and a return of occasional anxiety, I seemed to be ok. I was studying to be a chi-ball instructor, was exercising regularly, was eating healthy and was generally quite happy. After getting off Lexapro, I had been diagnosed with adult ADD and been put on medication for that. It worked well for a couple of weeks and seemed to completely cure what remained of my anxiety, but then I started to get extreme restlessness, OCD like symptoms, irritability and an increase in my sensitivity, to sounds and lights. I assumed it was a bad reaction to the stimulant medication. My life has been a confusing nightmare since the end of 2010 really, but until I found this site a couple of weeks ago, it really didn’t occur to me that my ongoing problems were being caused by a medication I stopped taking over 2 years ago. I’ve had a lot of stress in my life starting from an early age and have always been sensitive and anxious. There has been some violent crime and sexual abuse, but I seemed to be ok until I got myself into a psychologically abusive marriage. That’s when I was diagnosed with anxiety and depression and started on Zoloft. For a couple of years it took the edge off my anxiety, but I never thought I had depression, but the Zoloft just made me feel generally numb, so I endured my marriage, for several more years until it became unbearable, tried to communicate with my ex-husband so that things would improve, but he wasn’t interested in change, he was already in his next relationship and had been for a while, I didn’t know that at the time though. Then I went through about 4 years of extremely frightening separation/divorce and ongoing court proceedings. . There were other extremely stressful things I’ve had to deal with over the last 10 years, but I’m not going to go into details. I have been thinking that what I’m going through is a combination of long term stress, anxiety/depression, a ‘dark night of the soul’, menopause and/or some kind of spiritual transformation like kundalini, because I have engaged in various spiritual practises through my life. At times its felt like my CNS is completely burned out or that I have some kind of serious hormonal imbalance, but I gave up trusting the medical profession, including psychologists after years of not being able to get any help from any of them and only ending up feeling worse and that its all my fault for not trying hard enough. I’ve had lots therapy, counselling and done various support groups over the last 15 years, nothing has been any significant help. I went back to college to study psychology and started a business, but that all fell apart when the marital abuse became worse and the divorce proceedings began. Since finding this site, I’ve stopped taking all psychotropic medication, realizing that anything which effects my brain is having an exaggerated negative effect on my recovery. For a long time I’ve noticed that even small amounts of caffeine, half a glass of wine or even an anti-histamine will have a very bad effect on me, but I was thinking it was my imagination. I can’t even eat chocolate any more without suffering the next day. I’m exhausted all the time, but it’s a weird kind of fatigue, its like a combination mental/emotional tiredness, not like anything I’ve ever felt before. I spend most of my time at home, on the internet on my bed, just doing the things I need to do to take care of myself and my teenage daughter. Its very difficult just getting out to buy a few groceries, but when I do go out, I function perfectly in a kind of dissociated way, like I’m not even in my own body, I’m watching myself like from a distance, wondering who it is that’s behaving so ‘normally’ when I’m feeling so awful. Waves of negative emotions seem to get triggered by almost everything around me and almost every thought, I try not to think about things or do much of anything so I can avoid the emotional pain that thoughts or experiences bring, its like a kind of forced meditation. This symptom was at its worst from November 2011 – August 2012, but its not as bad now, seems to be settling down, I think its improved by about 50%. Please would someone take a look at the details in my signature and give me an opinion if protracted anti-depressant withdrawal might be a factor in my current health problems which include: Waking at 5am with racing thoughts Feeling like I haven’t slept at all Nausea, shaking, dizziness, body pressure, muscle twitches Waves of negative emotion Hot/cold flashes, sweating Constant ringing in my ears Sensitive to sound, light and smells Can’t watch TV or listen to the radio because its too stimulating Most things are too stimulating now, including being around other people too long Loss of appetite and loss of weight Hair falling out Agoraphobia, mostly during the day, I’m able to go out easier late afternoon towards evening Memory problems and mental confusion Loss of confidence. Loss of interest in doing anything or going anywhere Can’t get any pleasure out of things any more Loss of hope I needed to put more detail in my signature, but that’s all that would fit. From about 2006 – 2008 I was also taking duramine (a prescription stimulant weight loss med) to try and lose all the weight I’d put on from being on SSRI meds. Sorry this is so long, but I wanted to try and provide a clear picture of my situation. Thank you Petu
  9. Hi everyone, I wish we wouldn't have to meet under these unfortunate circumstances, but here we are. I want to give a full introduction of myself and my situation in hopes that someone can please shine some light on me or atleast tell me I will be fine again, one day. I am a 24 year old female that has found herself nearly disabled by SSRIs. This is going to be long and i apologize. When i was 17-18 I smoked marijuana almost every day for 1-2 years. When I moved away to college I decided to "get my act together" and focus on school. I quit smoking cold turkey and this set the stage for a very frightening panic disorder leading me to quit school and move home becoming nearly agoraphobic for a few months. Obviously was depressed as well and spent my days sleeping to escape. After 3 months I went to the Doctor and started on Zoloft and within 2 months was back on my feet working full-time. Still had some anxiety but kept living. I stayed on Zoloft for 4 years from ages 18-22 and everything was fine. I felt emotionally cut-off but figured that was the price i had to pay to not have panic attacks. Also, I completely lost my sex drive. Because of these reasons (and my boyfriend calling me a zombie) I slowly tapered down to 25 mg and stayed on that for many months before quitting. For a few weeks after quitting a had annoying 'brain zaps' but nothing major, kept working full time and doing online college. I quit Zoloft in February 2015. Everything was fine until a year later when i started feeling 'not right'. It was during a very stressful time in my life. Working 65 hours a week and keeping good grades in very challenging nursing classes. I started feeling dizzy, off balance, pressure headaches, fatigued and a LOT of derealization (which I didn't even know was a thing at the time so I didn't know how to explain it. All i could say was massive brain fog). Not knowing what the heck was going on with me I went to the doctor after weeks and weeks of my symptoms persisting. I was told I had vertigo and tried motion sickness medicine (didn't help), I did physical therapy on my neck for months to relieve the headaches. They got better but i still felt so 'off'. Like something was missing, it almost felt like when i needed a cigarette after not smoking for 12+ hours but when i smoked it wouldn't help. Like my brain was just stuck in this weird dreamy fog. This feeling after 6 months was giving me anxiety related to my health. I knew something wasn't right but had NO idea. I mean, i thought it could be a brain tumor or something. It really started taking a toll on me. Finally, 6 months after these symptoms started my Doctor told me it was stress and seeing that I had a past history of Panic attacks he told me I needed my zoloft again or it could get out of control. Well, i certainly didn't want to relive my 'breakdown' of 2010 so I listened thinking, what the heck, if this doesn't help, then it isn't stress and its just one thing to cross of the list. BOY WAS I WRONG!!!! This started a HORRIBLE HELLISH experience that I don't know if I can come back from. July 2016- Re-enstated zoloft after being off for 1.5 years. One dose of 25 mg sent me into constant panic within hours. I was pacing the house and out of nowhere I get intrusive mental suicidal images. Scared the pants off me and off to the ER i went the next day. The ER doctor told me to keep taking it. I told him there was NO way in hell I would ever take that pill again, It was that terrifying of an experience. I had to call off work and had major insomnia for a week. My body felt like it was physically vibrating on the inside. So after that experience I go back to my doctor and he puts me on Paxil. August 2016- Took paxil for 19 days. Each day I got worse and worse. I went from working and being a good friend/girlfriend/sister/daughter to feeling no emotions except fear, despair and panic. I became horribly horribly depressed with akathisia. I had to quit my job. The intrusive thoughts were back and i was told to 'hang in there' by my doctor and that sometimes anxiety gets worse in the beginning. I was so confused because my first time on zoloft I had no start up effects that i remember. On paxil i lost my appetite, severe stomach pains, constant diarrhea, insomnia, akathisia, constant panic, intrusive thoughts, derealization, depersonalization, depression, crying, literally could not function. At this point my doctor wanted to UP the dose and I said no way! He then asked me if i wanted to go to a psych ward because my anxiety was getting out of hand. He told me to stop the paxil and gave me 90 pills of xanax. I tried the xanax 1 time. At this point i was so screwed up that 1/4 of a 0.25mg knocked me out and made me feel so depressed and like I didn't have it in me to even talk! Very sensitive. September 2016- got a referral to see a p-doc (symptoms got a little better for 2 weeks off paxil but came back with a vengance) intrusive thoughts and diarrhea went away. but was left with so many debilitating symptoms the worst was the derealization that i still didn't know how to explain. October 2016- Still having horrible symptoms, but now getting some vision changes as well (small sparkles of light in vision) saw p-doc who told me i could be bi-polar type 3. (what is that?! Anxiety runs strong in my family but not bi-polar and i wasn't having mood swings, I was catapulted into severe 24/7 anxiety HELL) November 2016- p-doc decided to start me on a low dose of celexa and buspar. I only made it 11 days on celexa before the akathisia and intrusive thoughts made me literally want to die. I added buspar on the 11th day and had a serotonin syndrome reaction with confusion, shivering, muscle jerking, goosebumps, severe anxiety, severe restlessness, zero sleep and felt like I was going to die at any given second. I have never felt so close to death in my life. My p-doc told me to quit taking everything and gave me Ativan. December 2016- p-doc doesn't know what to diagnose me with but wants to try an anticonvulsant (lamictal). I start lamictal and within 4 days my skin and eyes were burning, i had chills and a low grade fever and I freaked out because this drug can cause a deadly rash. This med also made my intrusive thoughts constant. I quit this drug and cried my eyes out for days not knowing what the hell has happened to me. I go back to the p-doc and she wants to try a liquid medication at a very low dose because I am so sensitive to everything. She said Prozac or Tegretol (another anticonvulsant) I told her i was too scared to start another SSRI, so i got Tegretol. Tegretol can also cause a LOT of deadly side effects such as a deadly skin rash, liver failure, aplastic anemia etc... I have NOT started taking the tegretol even though i was supposed to 2 weeks ago. However, i am STILL very sick from the lamictal. Holy Crap! In july i was a little dizzy with derealization and now i can't function! What i am guessing is that i was going through a protracted withdrawal from Zoloft and putting me back on it (and all these other things) just added to the fire. I feel like i am never going to get better. I just got engaged 2 days ago and cried because of how bad i've become and can't enjoy anything. My p-doc never even diagnosed me. She said i have some bi-polar traits because the SSRIs made me worse but she said it looks like severe anxiety and told me to take up to 4 ativan a day. I stay away from those because i don't need any further damage. I have been off any SSRI for about 6 weeks and the lamictal for 2 weeks. My symptoms are: Intrusive thoughts (never had before restarting zoloft) This is probably my absolute worst symptom. it is like my brain keeps trying to tell me there is danger but rationally i know there isn't any. unbelievable anxiety that isn't connected to anything. It is just here (my panic disorder of 2010 wasn't anywhere near this bad because the anxiety would end after the panic attack, this feels like constant) insomnia (never had before) cant focus on Anything/ poor concentration ( can't watch TV or lose myself in anything to distract myself) no appetite & GI problems that this creates Lost 20 pounds in the past 6 months, I have been drinking ensure plus to get in calories muscle tremors and twitches dizziness feeling disconnected seeing sparkles in vision every now and then derealization loss of pleasure, joy, contentment or any positive emotions depersonalization depression and crying (because of how drastically my life has changed) ruminations about what is happening to me not interested in anything feeling of doom terrible memory sensitivity to loud noises, bright lights, commotion etc. my heart rate takes off whenever it feels like it fatigue zero sex drive ringing in ears sweaty & cold hands and feet and last but not least a fear that i am completely losing my mind. I know a lot of you have been through a lot. I don't know where else to turn. The doctors just made everything 1000x worse. I am currently not working and had to quit college. I don't feel like myself, i know i am in there deep down but all my symptoms debilitate me. Does this sound like an adverse reaction or have I all of a sudden developed a worse mental illness? I do not intend to go back to my p-doc or take any medications. I want my body to heal and go back to who i was 6 months ago. Does anyone please have any advice? I feel so alone and scared that i permanently screwed up my brain. If you are reading all of this thank you and bless you. I never even knew someone could feel so bad mentally and physically. I wish i would have never restarted zoloft in july. I don't know what to do. I need hope that this will get better.
  10. This site is a go-to to reassure myself that others are traveling and have traveled this road. The discussions about emotional spirals (check) and anxiety, rumination and dread on waking up (check) and depression even worse than before medication (check) have been helpful. I am being extra mindful now of taking Mag powder in the morning and before bed. I started AA and kundalini yoga in mid-May which have both been helpful. Although I really didn't drink much, it was enough (and mostly alone, not social) and any depressant when you are coming off an antidepressant can't be helpful. Also, I changed from hatha/vinyasa yoga to kundalini yoga which is more focused on the spiritual component of yoga. I won't lie: at 4 months, I still fall daily into waves of depression and loneliness. But I do find that there are glimmers of happier times and I am getting clearer -- I hope -- about how to handle the tough times (for instance, I just now think that my beloved dog has a fever and am trying not to emotionally spiral -- ugh). I will be reading this site like mad just to remind myself that I am not alone. Farm Girl Works Tapered 75mg Sertraline March 2017 in 4weeks after 6 years mostly on with a few unsuccessful WD Stopped Sertraline April 1, 2017
  11. Stormstrong

    Stormstrong: in pain

    Hello. I need help! I've been taking Zoloft on and off for close to ten years. Went up to 150mg last month. Since I got back from the psych hospital last month, I've been having a sensation of being stabbed repeatedly in the brain, the whole day after taking Zoloft. This is why I had to start taking it during the day time. Otherwise I cannot sleep - keep jolting up awake, as if though electrical currents of stress run through my body. Today I got up, and was quite happy, energetic. An hour later I took Zoloft. What happened?: the feeling in my body and brain is that of continuous assault by toxins. I feel at the same time very agitated, very lightheaded and sleepy, nauseous, no longer happy, with diarrhea. Music, my true love and saving grace, is now an irritant. For a long time I've been considering tapering off for good (I'd follow the 10% rule). But now it's clear to me that this medication is no longer good for me. I had my psychiatrist (of a few months) call me and I suggested that we taper me down to 135mg. He said that it's not a "good idea", and that it won't help me. I don't think I can get another psychiatrist, because I'm applying for SSI disability (for PTSD), and people at the hospital told me that my case will be quite strong, if I show that I've had the same psychiatrist for a long time. If I go against his wishes, he would never write a good letter for my SSI case. Should I just do it behind his back? Greetings, by the way!
  12. Hey all, From original topic title: 8 months of hypomania, increasing irritability, two major manic episodes, then CT Wish I found this site before. Prescribed 50 mg in October 2018, reported immediate response, eventually asked to cut the dose to 25 mg when symptoms were arising more frequently. Doc said go up to 100 mg, thankfully I disagreed and we went down instead. Kept having increasing symptoms and eventually started taking 12.5 mg twice a day thinking I was a fast metabolizer. Then: suicidal ideation and one hell-ish manic episode (with a good 50 mini-episodes over a months time). Quit CT once I learned what was happening. BP2 diagnosis came, but now a month removed from sertraline, I don’t see it. I’m dealing with some crazy withdrawal symptoms... mostly headaches and irritability. I sometimes blink really hard, kind of like a brain zap. I’m on intermittent leave from work, and didn’t burn all the bridges I have, but came damn close. now I’m learning healing takes months/years. Why is this a drug prescribed so frequently? What a nightmare it has been.
  13. Good morning all, My name is Erica and I was taking Zoloft for over 20 years before recently tapering off due to side effects. My journey with Zoloft started with my PCP using it to control debilitating migraines. It ended with poisonous spider bites, and an infection causing the hospital to dose me with steroids. I had already been experiencing some side effects but I didn't know it and the steroid sent me over the top. I developed weakness, fatigue, OH, tremors, daily headaches, dizziness, and lost my mental focus all at once. I'm no longer taking Zoloft but I'm still feeling the wreckage it left behind. I'm now on an anti-seizure med for migraine prevention and a Parkinson's med to control my other symptoms. Official diagnosis is Neurological Tremor as of now, but its most likely Drug Induced Parkinsonism. It takes a Neuro to make that diagnosis and I haven't found a good one so far...the first 2 didn't even listen to my symptoms. This has been a terrible, frustrating journey for my family. Some days I can't think, can't work, can't drive, and can't hold onto anything. I'm only 42. This drug seriously messed up my life and I had no idea that could happen. Hoping to find and give support here. Thank you.
  14. I joined this site a couple of weeks ago. After finding that paxilprogress was no more. I was devastated. That site may have truly saved my life in some of my darkest moments. What is one to do? When essentially you've self-destructed in front of everyone you love; because of a nasty little "non-habit-forming" pill that's been shoved down your throat for decades. So here I am. Time (weeks really) has eluded me. I meant to reach out sooner. I'm just hoping I'm not reaching out too late. I feel like such a horrible failure. I know better than that at some level, know that maybe I failed but that I just have to pick up the broken pieces and keep moving forward. But I'm so I'll. I'm so weak. I'm so alone. And I feel so helpless. My life may not have been a picnic before the introduction of SSRIs. But this is one situation in which the grass was truly greener on the side of which I was already standing. Before popping that first "innocent" little pink pill, prescribed by a doctor who had seen me only once and only spent 10 minutes "getting to know me". I couldn't tell you who that doctor was, I never saw him again. Nevertheless he was the first in probably nearly a hundred who have insisted upon continuing the saga. And what better did I know? I was unhappy before the meds. I was often unstable on them. And I was clueless as to why I was saying and doing psychotic things (that I often didn't remember, or just have "snippets" of memory after the fact) and so violently ill when I decided I simply no longer wanted to take the pills. Or was even 12 hours late on a dose. (More about that and my travels down genetic testing road and CYP450 mutations later.) All that being said; Hello to all in these forums. I'm the antisocial one. The antisocial one that sometimes doesn't know when it's appropriate to shut up. Or how to appropriately ask for help. But if you've been through it (psych med-wise), I probably have too. And vice versa.
  15. I hope this post is not too long, but I have been through the pharmaceutical wringer and I'm not being heard, believed or helped by my doctors: 2 years ago around May 2016, I had my first panic attack. ER doc rx'd Ativan .5mg 3x a day. Never said a word about dependence. After 3 weeks the script ran out and so I just stopped, and of course, all hell broke loose. Went to my PCP who dx'd me with anxiety and rx'd xanax and Effexor. After 1 night of throwing up, I stopped the Effexor. What I didn't know at the time was that the dose of xanax he prescribed was HALF the equivalent of the ativan I had been taking. He obviously knew nothing about dosage equivalencies. I could not understand why I was so very sick. I found a Pdoc who I thought was very understanding and said she could help me. She switched me to Klonopin and rx'd 25mg Zoloft, and upped the dosage to 50 mg after two weeks. After stabilizing on a whopping 3mg Klonopin, I started to cut, taking 50 mg Zoloft all the while. All during this time I was very weak and shaky, which I attributed to the benzo, but now I'm not so sure. I finished my benzo taper in Nov of last year, and really suffered very little, if any, acute, but still felt a little shaky. I then decided to come off the zoloft, as the Pdoc stated it was "very gentle" and I could just quit. Being gun shy after the benzo fiasco, I did do a short taper and came off with no issues in January of this year. Shortly after that, my leg shakiness and hand tremor went away, but I still did not connect them to Zoloft, because all the emphasis was on benzo withdrawal and how "gentle" zoloft was. In May of this year, it was clear that my mother, who had been very, very sick for very, very long, was dying. By this time, I had a new PCP and no Pdoc. Since I was extremely stressed and grieving, my PCP suggested I go back on zoloft, and I didn't see why not, so I restarted 50 mg. Immediately, I had weakness and tremor again. In August 2018, two months after my Mom died, I decided to come off the Zoloft. Still believing it was a benign drug, I once again did a fast taper of about 3 weeks. I felt fantastic off of it - no more weakness or tremor, TONS more energy - until 31 days later when it all came back full force. The trembling, weakness, and anxiety just all of a sudden came back. Finally, the penny dropped for me, and I found this site and realized it was withdrawal. I went back to my old Pdoc who laughed in my face and said withdrawal is impossible after 1 month. She told me to face the fact that I needed to be medicated and gave me the smallest dose of Lexapro. I took it for a week, but was feeling progressively worse, and I knew I didn't want her to treat me anymore. I went to my PCP and told her the whole story. She does believe me and is trying to help, but I think she's out of ideas. She did give me a DNA test for drug sensitivities, which shows me to be a slow metabolizer of most SSRIs and SNRIs, and an "intermediate" metabolizer of one SSRI, Prozac. For lack of a better answer, she put me back on 25 mg of Zoloft to attempt stabilization, but its been 3 weeks and I just keep getting worse. I now have insomnia, very high chemical anxiety, muscle twitches, no appetite, cold feet, temp changes, diarrhea and morning cortisol spikes along with the weakness and tremor. I am effectively bedridden. As of today, I have upped my dose to 37.5, but knowing that I retain high concentrations of zoloft for longer than normal, I worry about serotonin syndrome. My PCP wants to switch me to Buspirone, since my DNA test indicates I would tolerate that well, but she wants me to find a Pdoc to help with the switch, so here we go again!! I just want to stablize on something so that I can function, and then down the road a couple or few months, start the long taper that should be done. Does anyone have any suggestions for me? I'm really struggling. Thanks for reading this long post.
  16. I would like to say hello and thank this website for giving me hope. I have spent the last few days reading a lot of the posts and have found them to be full of information and great advice. The success stories are wonderful to read. I have never been in a medical situation like this and I was feeling lost and alone until I found Surviving Antidepressants. I was put on Zoloft (50 mg then upped to 100mg) in February 2016 due to depression over a long-term illness that at that time was still un-diagnosed. I got a diagnosis for my illness in April of 2016. I was hospitalized for that illness both in April and March and it was eventually brought under control. Once I got home from the hospital (both times) I was very weak and I had very confused thinking. I had multiple at-home treatments and medications to keep track of. Somewhere in there I messed up my Zoloft and either went cold turkey or was only taking it intermittently, but did not realize it at the time. Starting in May and ramping up in June I had all sorts of symptoms, which nobody in the medical field could figure out, including me. I was put on Gabapentin (600mg then upped to 900mg) to help with the symptoms. My symptoms included headaches, nausea, feeling hot and sweating but having a low body temperature, as well as the feeling of internal tremors in arms and legs, and actual external tremors. I also had jerky arm movements. I had what I call “vertigo light”, the whole room didn’t spin, just the floor moved when I tried to walk; I felt like I was drunk. I had brain zaps, motion sickness, insomnia, dizziness, nausea, and pressure in the ears like when flying on a plane. My memory was also bad. After endless nights of searching the Internet with my symptoms I realized I had withdrawal. Counting the actual amount of pills in the bottle and looking at the day it was prescribed confirmed that I had not been taking my medication. Once I realized what was going on I contacted my psychiatrist and I went back on at 50mg, which was twelve days ago. A dosage that high might be a mistake after reading about “reinstating” here on this sight, I don’t know yet. Since reinstating the brain zaps and vertigo have disappeared, and the other symptoms have gone down in intensity, however I am getting them more frequently. I’m now getting them every day, for at least a few hours and sometimes all day. Before going back on Zoloft they were really brutal but only for a few hours at a time, none of this all day stuff. Klonopin seems to help however my psychiatrist has suggested that I use it sparingly, he said that the Gabapentin should be helping with the symptoms. By the way, I feel I have an excellent psychiatrist. He did warn me when he put me on Zoloft not to go off of it without talking to him first and that there was tapering involved. He also responds to my frequent and desperate e-mails on a timely basis. I do recognize though that I need to be proactive when it comes to my health. This is my first time with a drug in the SSRI class. At this moment my goal is to stabilize. Eventually I would like to get off, but right now I just want the physical symptoms to go away. By the way, the depression, which was acute in February, seems to have disappeared, both while on and off the Zoloft. I am open to opinions, questions, and suggestions. Thank you for taking the time to read this.
  17. Hi all, my story is so very long but the short story is i was on zoloft 50 mg for 15 years (only drug i was ever on). I tried multiple times to get off but would get severe discontinuation syndrome each time so i thought i just had to stay on it for life. I will go into those symptoms if you ask. Anyways about 4 years ago i developed benign fasiculations and resting tremor. It took seeing multiple docs and finally a second neurologist and he said this is common with zoloft. So i had to get off it but i was scared to death because of the severe discontinuation that i would compare to heroin withdrawal. So i was so scared i never went back to the doctor and thought maybe i can live with BFS and the tremor. But then my neurological symptoms got worse and led to parkinsons which was drug induced and dyskinesia. The facial grimacing was way more annoying than the fasiculations and it affected my blood pressure too, thats how parkinsons works, it affects the autonomic system so i had bad orthostatic hypotension and that was dibilitating but somehow i pushed through. I had many more issues, if you ask i can write about them. Anyways this time i was ready to get off zoloft so i go to the doctor and he says "wow you've been on it for 15 years" and i thought "WOW you idiot. Your office is the one who has been prescribing this to me all these years". They never once told me to make an appt if i hadnt been there in a few years, they just kept refilling it. They should require patients to have biyearly appts and check them for neurological signs and if the patient doesnt make an appt than they should not get a refill. I am very mad at my poor healthcare and management (total lack thereof) but again my story is so long i can write it if you ask. Anyways my doc said to wean off over like 2 months. That was too fast so i did it on my on and weaned off 50 mg over a 6 month period and for the first time i did not get discontinuation syndrome! I was scared to death but i did it and was shocked i did not get discontinuation. Weaning that slow is the answer. I only had some mild things like some mood swings, swollen lymph nodes which always happens when i wean off for some reason, headaches, i can go into detail if you ask. My neurological disorders are also going away. I am 20 days off zoloft and feel great and i would say my neurological issues are like 80% better and i hope to recover completely with time (i might have permanent damage). Anyways i am posting because i am very angry at the healthcare community for their lack of knowledge on how zoloft, though rare, does cause dyskinesia, BFS, and parkinsonism. Docs do not seem to know to look for these signs and put a stop to it before irreversible damage occurs which is a disability. They are too freely handing out these meds to your average person with basic stress that can actually manage without meds like seeking CBT, meditation, yoga, qigong, etc. i am one of those type of people. Patients are never checked up on on these meds. I know personally from working in gastroenterology for years that almost everyone is on anxiety or antidepressants and that to me is a crime because every single one of them are having unexplained problems with a lot of expensive negative testing and they are frustrated but no one is relaying it is the medication causing it and how imperitive it is to get off it. I am against all these meds (unless the patient has true mental disorder like bipolar or is in a stage of suicidal ideation etc). I am just very angry. For me, to address that, i want and need to raise awareness but i feel no one would believe my story because it is so rare but i think more common than we know because it is being unreported and doctors dont know enough to spot tardive dyskinesia etc so it takes years. Anyone else with a story like mine?
  18. Scotty

    Scotty

    Drug History 2002 - Started Zoloft 100mg. Gradually reduced to 50mg, intending to come right off. 2009 - Went back up to 100mg - no ill effects. 2011 - Began slowly reducing again. 2017- Down to 25mg. October 2017- Dose increased to 50mg. I started taking Sertraline 100mg in 2002 because I’d developed panic disorder after a stressful mature-age college course. The medication worked immediately and continued to help me - I was well for 7 years with no anxiety. I gradually reduced to 50mg, but in 2009 went back up to 100mg with no ill effects during a life crisis. In 2011 I determined to come off again and began reducing very slowly with no ill effects. By October 2017 I was down to 25mg. I went to my GP to get a counselling referral. I was quite well with no anxiety, but she advised me to go back up to 50mg to mop up any underlying depression I might have. So I did - one of the worst decisions of my life! Within 24 hours I developed horrible symptoms... terrifying anxiety/dysphoria, palpitations, severe insomnia. I was certain they were caused by the increased dose of sertraline but my GP denied that this was possible ‘on such a small dose’. She said I woud soon adjust. So I stupidly continued to take it for 2 more weeks before another doctor in the practice told me to go back to my normal dose immediately. I was expecting that I would then return to ‘normal’ but I did not - instead I continued to suffer bouts of toxic anxiety as well as the other symptoms. I consulted other GPs and a psychiatrist - all reluctant to link my symptoms to the increased meds and instead going with the ‘pure anxiety’ diagnosis. Recently I found a GP who was willing to listen and referred me to a psychiatrist who tested me positive for clonus and hyperreflexia. He said that on the basis of these together with my other symptoms I definitely have non-acute sertraline syndrome. Although it is unusual, he thought it was triggered by the increased dose of medication in my system. He told me to titrate down fortnightly in 5mg increments using a solution. However when I got down to 15mg last week I soon developed withdrawal symptoms including ataxia, burning, nausea. But then yesterday I started to feel much better - almost normal! So this is my dilemma. I’m told that serotonin syndrome disappears soon after the medication is withdrawn. If that’s the right diagnosis then I should follow the 5mg taper and get off as soon as possible. But if this quicker rate gives me severe withdrawal then I should stick to the much slower 10% monthly regime - thereby possibly prolonging the agony. What to do? Can’t go forward, can’t go back! I’m so confused. I’d appreciate any help the forum can give me.
  19. Hi, all. Thank you so much for providing this site. I’ve been inspired by the stories here, and look forward to my own recovery and hope to help others as I can along the way. It’s been a hellish year… I have a rather long story – 99% of which takes place within the last year – so please bear with me. I’ll write this out in a timeline for organization’s sake. In essence, I have a history of anxiety and depression, and have OCD. I have been suffering from severe postpartum anxiety (PPA) and depression (PPD) since delivering my son in May 2018 – exacerbated by a move out East so I could start my PhD, the decline and death of my dog, dealing with childhood trauma, etc. I was on Prozac and Xanax as needed before I was pregnant and went off without any problems while we were trying to conceive. I had an uncomplicated pregnancy. Here we go… 1999ish – 2005 (6th grade – high school) (Zoloft, Lexapro, Wellbutrin) I was diagnosed with severe academic perfectionism and OCD and put on (I think) Zoloft first (not sure of dosage). In the years that followed, I was on Lexapro and Wellbutrin, all in various combinations. I don’t remember timing or dosages. I don’t remember having a hard time coming on or off any of the meds. I was chronically ill in high school, though, with fatigue, mono, sinusitis, shingles (to be fair, I had immunological issues before going on meds, too, and a complicated family situation). I took the year after high school off to recover, went off all meds. All I remember is feeling tired and my sleep being on a weird schedule. 2005 – 2009 (no meds) I started taking some community college classes, started volunteering, and then working full-time. Started paying more attention to my diet (went off gluten and most dairy after I realized it made me feel better). Was doing very, very well. Summer 2009 – Summer 2017 (40 mg Prozac daily, ? Xanax PRN rarely taken; occasional supplements - multi vitamin, vitamin D, fish oil, probiotics) Started on 40mg Prozac (slow taper to START it), as a ‘preventative’ measure against OCD and perfectionism (I know… probably wasn’t necessary, but I can’t prove a negative) as I was about to start at a university in the fall of 2009; I was pushed by family (also on psych meds) to start. I think it helped somewhat but it’s hard to know. Eventually, I had an Rx of Xanax, which I took maybe 5-10x/year as needed. I did well in college, though, started a great career, went to the UK on scholarship to do my Master’s and then decided to QUICKLY taper off the Prozac when my husband and I (we married in 2014) decided to conceive. I don’t remember having any issues coming off the Prozac. I was on it fairly consistently for 8 years. Summer 2017 – May 2018 (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Pregnant, more depressed than usual, especially after moving back home from the UK and being unsure of what was next. Still, did the damn GRE, applied to PhD programs, got into a great program out East, started setting up our life out there. Obsessive compulsive symptoms were worse than usual but not unmanageable. Late May 2018 (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Delivered my son. Epidural, long labor. Started breastfeeding. Early June 2018 (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Had a week of awful insomnia and anxiety and intrusive thoughts, but it went away. Early June – Mid-July (no meds; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Doing okay, just exhausted and depressed (I was breastfeeding around the clock). One week in mid-July 2018 (? Xanax, one-time dosage ~6mg Zoloft, and one-time dosage 2mg Ativan, one-time dosage ? Klonopin in hospital; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) Then, at around 7 postpartum weeks - BAM - I was hit with a week of NO SLEEP. I just couldn't sleep and I lost my appetite. I had been given an Rx for Zoloft by my OBGyn and took a very small amount that Friday (I wanted to ease in). That night, all my symptoms were much worse – and I also felt this severe restlessness in my limbs. It was AWFUL. I even tried Xanax to calm me down (I gave to my son pumped breastmilk). My anxiety was so bad that I went to the ER that Sunday. They drew blood and it turned out that my blood sodium was dangerously low (126) - possibly due to not eating enough and drinking too much water. They gave me Ativan (2 mg – which was A LOT for my system), some Klonopin, too, eventually, and fluids overnight and I felt MUCH better the next day. I was given Ativan and Remeron as needed but didn't need to take it for a few weeks. Mid-July to Late Aug 2018 (0.5 – 1mg Ativan daily; supplements: prenatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil) I was fine for a few weeks, and then my family and I moved out East, where I was attending grad school (I’m now on medical leave). The anxiety and insomnia came back around the move in August. I took Ativan (0.5 – 1 mg) as needed each day and had some rebound anxiety but was able to get through until setting up care there. I was assigned an interim psychiatrist (before being placed with a regular one), who Rxed me 0.5 Ativan to take at night to sleep for 10 days. This worked for sleep, but not the overall anxiety and depression. Due to breastfeeding concerns, they switched me to Trazodone (25-50 mg), which worked ok for sleep. Eventually, I was able to fall asleep on my own for a couple/few nights. That would be the last time I could do that to-date. Late Aug to Late Sept 2018 (0.5 – 1mg Ativan daily, 1-5mg Prozac, 25-50 mg Trazodone; supplements: postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, probiotics?) I started seeing a regular psychiatrist in early September, and we agreed I should go back on the Prozac with 1 mg Ativan/day as needed. We started sloooow on the Prozac - 1mg, then 2, then 5. By week 3, I had lost my appetite completely, and my anxiety was through the roof - just on 5mg (I was on 40 before becoming pregnant, so I couldn’t understand why I was feeling so terribly). The Trazodone was no longer helping me sleep, and was giving me terrible dry mouth. My limbs felt like they were vibrating. My psydoc FINALLY directed me to go off the Prozac and Ativan, and Rxed me just Klonopin 0.75mg/day. In addition to the psychiatrist, I saw a primary care doc, who checked my thyroid, adrenal glands (several tests there), vitamin levels, and other things - all normal. My blood sodium has still been a little low, but they believe it's due to not eating enough. Oct 2018 (Klonopin 0.25 – 0.75mg/day; postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, I might have tried some hormone-balancing herbs – I don’t remember exactly, probiotics?) My appetite returned but it was never the same. I was sleeping better, but not well – maybe 6 hours at most, sometimes waking in a panic. I could only take one class. I was very depressed and frustrated, and deeply confused as to why I wasn’t responding to medications. But I felt BETTER than when I was on the Prozac, and was able to feel like I could sleep on my own again, and on just 0.25mg Klonopin/day – but the plan was to let me ‘settle’ and then try a new AD, sooo… Nov 2-4 2018 (25mg Anafranil at night, 0.25-0.5mg Klonopin/day; postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, I might have tried some hormone-balancing herbs – I don’t remember exactly, probiotics?) The psydoc suggested Anafranil, a TCA. The day I started it, we put my dog down and I stopped breastfeeding (I had been tapering on that for months). It wasn’t a great time to start something. But I did. I took it the night of the 2nd, fell asleep instantly, then woke up feeling SO GOD AWFUL about 3 hours later. I had a tremor, I vomited, I couldn’t eat. My husband had to hold me while I shook in bed. I called the psydoc and she told me to keep taking it, sounding annoyed with me. So I pushed through for three days – but that was all I could do. Until then, that was the worst I have ever felt. Nothing could calm me down. Things start heating up here, so I’ll spare some details and focus more on the med changes… Nov 5-8 2018 I barely remember these days. Sleep was poor, I felt awful. Then on a Thursday night, I was up all night with panic attacks. I called my therapist and made the decision to go into the psych hospital. Nov 9 – 15 2018 (In hospital, put on 0.5mg Klonopin 2x/day and worked up to 100 mg Seroquel at night) I didn’t start sleeping until I was put on a combination of Seroquel and Klonopin. BUT, I remember this creeping feeling of “buzziness” and restlessness when I woke up everyday. That feeling would continue to get worse over the coming weeks and stay with me to the present. Nov 15 – Early Dec 2018 (0.5mg Klonopin 2x/day → 0.25mg Klonopin 2x/day; 100mg Seroquel at night; some supplements – don’t remember) I left the hospital taking 100mg Seroquel at night and 0.5 mg klonopin 2x/day. I officially went on medical leave from grad school. I stuck with this doseage for 2ish weeks, was sleeping well but feeling horribly depressed and anxious, then started to quickly taper the Klonopin. I don’t remember how quickly – but I wasn’t taking anymore than 0.5mg/day by early December. I then tapered on the Seroquel after feeling SO much worse when an IOP psydoc tried bumping the dose to 125mg; I remember not being able to sit still – going outside to pace. No tremor – just pacing, fidgeting, and losing a lot of weight. Early December 2018 – Early Jan 2019 (1mg Ativan at night, 2.5mg Zyprexa at night, 25-100mg Lamictal; postnatal vitamin, 800 mg folic acid, 1,000-2,000 mg vitamin D, ? fish oil, started taking some B complex, I might have tried some hormone-balancing herbs – I don’t remember exactly, probiotics?) I made the decision to move back home to do a program specialized in PPD (we ended by moving back entirely later that winter). In the program, I was put on 0.5-1mg Ativan at night, 2.5 mg Zyprexa at night (for sleep – though it never helped), and titrated up to 100mg Lamictal (the psydoc suspected a bipolar spectrum diagnosis). I was still incredibly restless, unable to sit down and just enjoy a movie. And my sleep was growing worse and worse. It was awful – then my mood grew worse and worse as we went up on the Lamictal; I also had increasingly bad tinnitus and TMJ. I was hospitalized as my thinking became suicidal – just ideations, but I was ready to go back in… Early to Mid-Jan 2019 (0.5mg Klonopin 2x/day, 5mg Paxil/day, 50mg Benadryl at night; 0.25-1mg Risperidone 1-2x/day; some supplements?; THEN back to 150mg Seroquel) In the hospital, I was taken off the Lamictal and put on 5mg Paxil once/day, 0.5 mg Klonopin 2x/day, Benadryl 50mg at night (for sleep), and Risperidone 0.25mg once or twice a day (I don’t remember). I became increasingly orthostatic (low BP, high HR). I stabilized mood-wise – sorta – and left the hospital feeling off, but better… Within days, though, we tried increasing the Risperidone, and my HR went up to 140 (I think we tried 1 mg). I wasn’t sleeping AT ALL. I was taken off the Risperidone, stayed on 5mg Paxil once/day, 0.5 mg Klonopin 2x/day, Benadryl 50mg at night (for sleep). Eventually, as my sleep diminished, the PPD IOP doc put me back on Seroquel (I has actually asked to go back on) – but suggested as much as 150mg. After that, my mood really shifted and became erratic; I was really upset and angry at my husband and suicidal ideation returned. So it was suggested I go back in the hospital... Late Jan to Mid-Feb 2019: 3-week hospital stay (see below for crazy med changes) All the docs agreed I didn’t need to be in there this long (everyone kept asking why I was still there), but there I was so they could keep throwing stuff at me to see if something stuck. I was holding out hope SOMETHING would work this time...: First week: 0.5 mg Klonopin 2x/day, 100 mg Seroquel at night, 300mg XR lithium 2x/day (HORRIBLE stomach reaction, especially when the doc abruptly pulled the Seroquel) Second week: 0.5 mg Klonopin 2x/day, 50mg Seroquel at night, some amount of Depakote (I don’t remember – wasn’t improving, irritable), tried PRNs of 12.5mg Seroquel and became really depressed Third week: 1 mg Klonopin 2x/day, 50mg Seroquel at night, 1200mg gabapentin (taken as 300mg twice during the day, and 600mg at night). That’s how I left the hospital. Mid-Feb to Early-March 2019: (0.75mg Klonopin 2x/day, 50mg Seroquel at night, 300mg Gabapentin 2x daytime and 600mg at night, brief re-trial of lithium – 150mg; multivitamin, 1,000-2,000 mg vitamin D, ? fish oil, 1200mg evening primrose oil, probiotics?) Instantly went down to 0.75mg Klonopin 2x/day (fear of dependence). New trauma-based IOP. Was very constipated. Tried low-dose lithium (150mg) as lithium seemed to be the only med to be helping to-date (along with benzos); was improving somewhat mood-wise, but the stomach issues were SO bad, so we went off. After going off lithium, my restlessness SKYROCKETED, and was particularly bad for 10 days. My stomach was AWFUL; I was taking antacids all the time; seemed to be worse after taking gabapentin, so the new IOP doc cut THAT dosage in half. Developed a tremor. The new IOP psydoc diagnosed me with akathisia – FINALLY. I had NEVER heard of that before (although, in retrospect, I think it has been mentioned to me in the hospital as a possible side-effect of the antipsychotics – but I remember them saying “you can get this, but I don’t see that in you, so…” and so I ignored it (dumb)). When I read about it, I felt so frustrated; this had, no doubt, been plaguing me since at least the one-time Zoloft attempt in July - and in particular since the first Seroquel doseage in November. Doc suggested I reduce my Seroquel from 50 to 25mg; I couldn’t do that for a couple of weeks. Early to Mid-March (→0.25mg Klonopin during day and 0.5-0.75mg/night, 25mg Seroquel at night, 200mg Gabapentin 2x daytime and 300mg at night, brief re-trial of Depakote – don’t remember dosage; multivitamin, 1,000-2,000 mg vitamin D, ? fish oil, 1200mg evening primrose oil, probiotics) Continue reducing my Klonopin down to 0.25mg during the day and 0.5mg at night. We tried XR Depakote as a Hail Mary in the med department. It seemed to help a bit, but also increased some of the restlessness. At this point – and this should have come sooner for me – I was done – just DONE– with med changes. My body needed a break. I haven’t added or taken away and particular meds since (with one exception - the propranolol, see below) – though I have reduced the dosages… Early April (0.25mg Klonopin during day and 0.5-0.75mg/night, 25mg Seroquel at night, 200mg Gabapentin 2x daytime and 300mg at night, up to 70mg propranolol throughout the day; multivitamin, 1,000-2,000 mg vitamin D, ? fish oil, 1200mg evening primrose oil, probiotics) Was diagnosed with thyroiditis (my thyroid had been normal as recently as January) – a relatively common thing postpartum, but it was ‘late’ to arrive to be postpartum thyroiditis, so doctors suspected the lithium. B/c I was hyperthyroid first (usually follows a pattern of a few months in 'hyper'/overactive mode, followed by anywhere from 3 to 18 (or more) months underactive. I was put on propranolol (taking as much as 70mg throughout the day). That seemed to help the tremor, heart palpitations, and restlessness maybe 50-75% of the time. But it crashed my BP. Early-April to Present (see below) We’ve moved into a new, stable house (both good and really stressful). As of early June, I am off the Seroquel. I tapered from 25 to 0mg by reducing by about 6.25mg every two weeks or so. I tried re-starting it to do an every-other-day ending taper, and felt instantly WORSE, so I am done. But it was probably too quick a taper. I NEVER want to take another antipsychotic again, though; I can point to the beginning of the worst parts of this whole cluster to starting Seroquel, and the akathisia that ensues and continues. I reduced the daytime Klonopin to 0 (though I’ve had to take a 0.0625mg to 0.125mg PRN three times in June as things have grown worse). I still take 0.5mg Klonopin at night. In June, I also went off the propranolol – too quickly – and have been having heart palpitations, and have been orthostatic. My BP was just getting to be so, so low. Now, taking any amount of it seems to make me more agitated/restless or, at best, woozy. In June, I also got ambitious and reduced the gabapentin from taking 400 mg during the day (200mg 2x/day) to 0 at the end of June, mostly b/c I thought it was making me feel worse; I’m not sure on this STILL (or if it ever did much of anything). I still take 300mg at night with 0.5 mg Klonopin. May was my best month - not great (I was still constantly restless, struggled with my appetite, and was really disoriented and depressed), but it felt more manageable. I should have done a slower taper on all things when I felt more stable, then – but here I am. June started out okay but, after going off the Seroquel and trying a glass of wine again (out with a friend), it’s been awful; the akathisia is back in full swing. NOW I seem to have reached this point where my body won’t tolerate much of anything again – as if it’s saying “if you’re done with one, then you’re going to be done with them ALL.” I’ve also noticed that the first half of my menstrual cycle is FAR AND AWAY WORSE than the latter half – and am trying to explore ways to (as naturally as possible) balance my hormones. I tried bioidentical progesterone cream that an integrative MD Rxed and it helped somewhat, but caused cramping and spotting and an upset stomach – no go. Currently Taking 0 – 200mg gabapentin during the day; 300mg gabapentin at night 0.5mg Klonopin at night 5mg melatonin (+10mg B6 – combo pill) at night Fish oil (1400mg EPA + 480 DHA) in morning and afternoon 1500mg primrose oil morning and afternoon 200-400mg magnesium glycinate at night, and magnesium oxide throughout day 2000mg vitamin D afternoon Cal+Mag+Potassium supplement afternoon 2 kinds of probiotics morning Multivitamin morning What Makes Things Worse Alcohol; I haven’t been able to tolerate this since sometime early spring – makes me SUPER anxious. Any antihistamine; it used to help me sleep but something in the last 2-4 months has changed my brain so I now feel WORSE the next morning. Some vitamins (I say that b/c I sometimes feel more buzzy after taking a multivitamin; on the other hand, sometimes I feel better) Caffeine (not that I’ve tested this too much; the most I ever drink is a cup of green tea, and I haven’t been able to do that in weeks) Antacids (found that out the hard way) What Helps Epsom salt baths Sweating Crying (when I am able to) Walking (especially in sunshine) Melatonin (at night – for sleep) Klonopin (but I am trying not to go over 0.5mg/day – mostly at night; and want to taper off) Massage Stretching Kombucha (not too much, though b/c caffeine) Apple cider vinegar + lemon water (ahead of meals and when I have an upset stomach – at east once/day) Eating enough (really tough to do right now) Not Sure if it Helps (tried/trying it) Acupuncture (doing this for a few months now) Therapy – CBT, talk Gabapentin (want to taper off anyway) Primrose oil Multivitamin Fish oil Magnesium Calcium CBD oil What I Need Help With I’m here b/c I need to feel like I’m not crazy when the psydoc says this isn’t still akathisia. I KNOW it is – I KNOW it’s protracted withdrawal and the effect of such a brain-altering year. I know this b/c, even in my most anxious moments pre-postpartum medications, I never felt this protracted insatiable restlessness and dread. I was a champ at sleeping (though a night owl). And my appetite was always solid (too much so, at times). This is DIFFERENT. I also want to get off the gabapentin and the Klonopin – but do so in a smart way. I’m not sure the gabapentin is a net evil right now and shouldn’t be taken off altogether? And is the gabapentin the best thing to drop first? And I need help managing the akathisia. I've read some tips here, and will explore those. Any help on the hormone piece would be invaluable. There is something there. I feel the effects of akathisia/withdrawal/autonomic disregulation far more at the start of my cycle. And this whole postpartum period has been inherently hormonally disregulating (compounded by meds like Depakote, which altered my cycle). Anyone else? Anything help? I plan to keep a more focused journal as this site recommends and track my symptoms alongside food, supplement, and med changes. Of course, what sucks THE MOST is the lost time and what's been taken - from the joy of being a new mother, to what was supposed to be a fulfilling career move in pursuing my PhD (I might have to give up my place now b/c I'm so disabled), to feeling defective for not responding to the 'right treatments.' The worst year of your life should not also be the first year of motherhood. To those of you that read this monster of a post – or event 10% - THANK YOU.
  20. Yes, it will feel like a miracle when it happens for you; and it will happen for you, it is just a matter of time. I want to get that out there first thing; it is my belief that we will all heal in time; it has happened for me and is continuing to happen and it will happen for you. Am I completely 100% done healing? No. Am I so, so much better? Oh yes! Now for some basics: Male, mid 50s, took zoloft for over 20 year, quit cold turkey 3.5 years ago, was off 5 months, thought I was relapsing, so started prozac for 3.5 months and then quit that cold turkey. Then I found S.A. and discovered what I was dealing with was not a relapse but withdrawal (and recovery). So yes, I did everything completely wrong and more than once! I am proof that given time we can heal. I currently just celebrated 30 months of being drug free. Now, how to begin to describe the inhumane torture that I have endured until very recently; not sure but I will try. I have gone through both the windows and waves pattern and the continuous misery pattern. I was one of those that suffered a great deal after quitting, but really got slammed at about 6 months off. At 1 year I was barely functioning; at 1.5 years I was still miserable, and at 2 years off I was wondering if I was doomed to endless suffering with no end. But now as I have hit the 2.5 year mark I feel as if I have turned the corner. Windows and waves general comprised the first year and then it became continuous misery for pretty much the next 6 to 12 months or more; and then back to windows and waves. My last serious wave was in months 25-26 and now finally what feels like solid progress the last month or so. I am hesitant to list symptoms because I know how much it use to scare me to read what others were going through; but on the other hand it really helped when a new symptom would start, because I knew it was part of the recovery process and not some disease or sickness, and most of these are gone or have become minimal although they lasted for months or years. And just because I experienced them does not mean that you will, we all have a very individual road to recovery; so here they are in no specific order: Dark depression, anxiety, paranoia, obsessive compulsive, panic attacks, intrusive/obsessive thoughts that tortured me, hopelessness, irrational thinking, suicidal thoughts, brain zaps, intense organic fear, severe inner-body tension that felt like my whole insides were clamped up, sexual dysfunction, severe tension, tremors and pain in the back of my legs and calves, terrible shoulder and upper arm pain, mania, extreme bloating and stomach pain, nausea, dizziness, vertigo, feeling like my brain was on fire, feeling like a part of my brain was missing, feeling like a bomb had gone off in my head, floating head feeling, super-hot face, body temperature regulation problems – being super-hot or cold, constipation, dehydration, lack of appetite and weight loss, feeling dead, anhedonia, akathisia, mood swings, insomnia, terrible brain fog and inability to think clearly, sensitive vision and hearing, inching and burning skin, cold like symptoms, head congestion, phantom smells, constant tinnitus, severe fatigue and exhaustion, health anxiety, I could not read, listen to music, or meditate, heart palpitations, random traveling aching and stabbing pain throughout my body, headaches, and so many other symptoms that I can’t remember. The torture, pain, misery, suffering and utter despair was never ending…until it did finally start to end for me and it will for you too. Did anything help me along the way? I tried many things; acupuncture, vitamins and supplements, alpha-stim, gluten free diet, no sugar diet, no caffeine, no alcohol, and anything else I could do to try and feel better. Did it work? In a sense it all worked because it kept me focused on recovery and gave me hope when I had none, and the possibility that I might feel better. But time passing has been the real healing agent; although that was the last thing I wanted to hear when I was suffering so intensely. I did find that mindfulness, breathing exercises and physical exercise helped when all else failed and I was so truly desperate. Many hours were spent just trying to pay attention to my breath going in and out; and I still use this practice as a relaxation method. It also helped me greatly to visit this website daily as well as Benzo-Buddies. I read success stories for hours at a time, read the Bloom in Wellness facebook page each day and anything by Baylissa Frederick and also Don Killian. So, what remains for me? I still have tinnitus (although it has gotten much better over the last month), stomach bloating and pain on occassion, nerve pain, some brain zaps at night, fatigue and tiredness, and sleep issues. If I had to put some percentages on where I am at now I would say physically I am at about 85-90% healed and mentally/emotionally at 90-95% healed. I now eat anything that I choose although I eat as healthily as possible because I value life so much now and I want to live as long as possible; I exercise regularly and it feels wonderful; I enjoy caffeinated drinks including regular tea and coffee which I had given up for many months; I also drink wine and beer a couple times a week if I choose to and enjoy it. I am in the best shape since high school, and have lost 75 pounds (on purpose). Life is good again and just the simple things are more than enough to bring joy and happiness. So that is my story and I hope it will encourage you as you read it that you will recover and become yourself again. I remember reading similar statements in success stories and thinking, “Yea, right, that is easy for you to say, you are not suffering through this terrible hell right now!” And maybe you are thinking the same thing as I did, but please listen to my words; you will make it, you will recover, you will feel better, and you will join me in loving life once again; just please don’t give up or give in and keep going! As I sit here with a cup of coffee and contemplate what I have been through the last several years, it all seems so strange and foreign. Success stories promised that I would make it to recovery, and they were right, so now it is my turn to tell you that you will make it, “You will make it!”. Wishing everyone here all the best and a quick recovery. Please let me know if you have any questions and I will be happy to try and help. All my love. Pug
  21. I’m new to this website/forum, but I’ve been researching and finding great information about people getting off their psychiatric medication. I’m 46, and I was 20 years old in college when I experienced my first full blown panic attack (official diagnosis, panic disorder without agoraphobia, generalized anxiety disorder, depression). Looking back (after lots of therapy), I can now understand the stress I was under at that time. But the main point is that I was put on zoloft and lorazepam which, combined with lots of “social drinking” seemed to put a lockdown on the panic attacks (though I would still wake up with some varying degrees of anxiety most mornings). I put my head down and just sort of pushed my way through life, graduating from college with honors, holding a job doing community education / organizing / speaking, shifting gears and going back to school, and then starting my own successful business. Jump to about 4 years ago, 2012 and things just seemed to begin falling apart. The successful company I had created was now failing, a relationship I actually felt invested in was failing, and the hangovers from drinking had become really intense. In short, I ran out of steam. I gave up drinking in the spring of 2014, and that summer decided I was going to get off the damn meds. I did it the “right way,” tapering off the benzos first, and then the SSRI. And though the anxiety would increase while tapering and it was tough, by the end of the summer (early September) I was actually med free! Unfortunately, mid-October the panic attacks returned full force. Again, I can see now that this was a particularly stressful period of my life, but of course I was really disappointed when I decided I just had to get back on the meds (the panic attacks were relentless and excruciating). The problem was that the meds no longer seemed to work like they did before. And now I’m on MORE meds (add in remeron and extra 50 mg of zoloft). I have made some changes, doing lots of therapy, ACA support groups (and looking at childhood issues generally), exercising again regularly, EMDR, meditation, etc. And I want OFF the meds! I know I need to do this slowly, and at this point, I cut the remeron from 15 mg to 7.5 (about 1.5 months ago) and I’ve cut the benzo (now clonazepam) from 2 mg to 1.5 per day (just started that 3 days ago). My thought is to cut the benzos first, then the last of the remeron. I know with the relatively long half-life of the clonazepam, I need to take it slowly. I’m thinking .5 mg every 2 weeks. From the information I've come across, it seems like some taper off even more slowly than that? I'm looking for others to share their experiences with their own clonazepam withdrawal schedules (for panic disorder, preferably). I just don’t know what to do about the SSRI (zoloft). I realize this website is about benzo withdrawal, but I’m hoping to find others with experience on panic disorder and SSRI withdrawal too (as well as benzo withdrawal support). I hope this is OK on this forum? I’ve been “working with the anxiety” (trying to “make friends” with it as they say in the meditation circles). I know I’m less scared of it now, but I'm also not experiencing the full blown panic attacks. My concern is that I would get off everything (including the SSRI/zoloft) and then the panic attacks return, and it takes SO LONG for the SSRI to build up in one’s system. Do I just prepare myself to weather that storm? Will that storm really pass eventually without the meds? After years of trying to make my physiology match the lifestyle I felt I should lead, I’m now accepting the idea that I need to make my lifestyle match my physiology. The panic attacks are just so damn awful when they hit relentlessly all day long, day after day. I’m scared. Is there anyone out there that has had any experience with the meds and panic attacks along the lines that I have had? Are there other resources out there I should know about? Is it really possible that I can live a purposeful (and perhaps at least semi-peaceful) life without meds after 25 years of being on them? Much gratitude . . .
  22. Admin note: link to benzo forum thread - StuckOnMeds: Reinstatement of Clonazapam Fair warning: my journey revolves around PMDD (my menstruation cycle). If this is not your cup of tea, turn back now. Hi! I'm so happy to be here! Here's the short version of my story... I was misdiagnosed with Major Depressive Disorder when in fact I had PMDD. At first, the symptoms were bearable, but after my last child, everything changed. Suddenly, I was not able to make myself or my children food, not showering, not able to pick my kids up from school. Not only that but my self-esteem was shot and anxiety soaring, and I had about one week a month where I could gather myself back up and try to heal before everything started all over again. This went on for over three years. I was completely broken. During all of this, my Psych started throwing meds at me to see what would stick. Unfortunately, nothing would work, and I ended up on 6 meds for depression and anxiety. Finally, I had had enough and approached my Psych and my Gyn about a full hysterectomy and BSO (ovary removal) to stop the fluctuation in my hormones. By this time I had tried all methods of care ranging from DBT to exercise, birth control to relaxation techniques, and so much more. Anyway, I had the surgery, and I felt (and feel) amazing. Like I had been missing out on living. Unfortunately, I was still stuck on all six meds. And so began the titration. I began titrating risperidone at the beginning of 2015. It is important to me to get off this med because I believe it to be the most dangerous. I started at 1 mg, and currently, I am at 0.18 mg. I am taking a break on my titration but intend to jump after my summer vacation and be done with this demon of a drug once and for all. Here is a list of my other meds: Morning: Zoloft 200 mg Wellbutrin XL 300 mg Lorazepam 0.5 mg and 0.375 mg ( also take around 3 pm) Night: Clonazepam 1 mg Trazadone 50 mg Risperidone 0.18 mg (liquid) StuckOnMeds
  23. Hi everyone. I've been on SSRIs of one sort or another for 23 years. I had depression, generalized anxiety disorder, and severe social anxiety my entire childhood, and felt like I only became myself when I got on Prozac at age 12. My social skills hadn't developed normally because I had been too scared and depressed to interact with other children, but I was able to catch up in my teens with the help of medication. I tried to get off a couple times, once in my late teens and once in my mid-20s, but it didn't go well. With medication, I have mostly done well, except for chronic insomnia that can at times be crippling. I have gone through many kinds of treatments, therapies, medications, and lifestyle changes in an effort to manage my insomnia. Now I'm 35, and until a couple months ago, I was the happiest I'd ever been in my life. I was recently married, had an exciting career, and was mostly keeping the insomnia under control through a strict cognitive behavior therapy regimen. I was taking 50 mg of Zoloft, a low dose that I had slowly reduced to over several years. I started a two-month taper using a liquid formulation with the goal of starting a family medication-free. I know Zoloft is considered one of the safest SSRIs during pregnancy. But I really wanted to be medication-free for my baby, and it seemed with all the life skills and support systems I had built, that should be within reach. All seemed to be going well until I got down to about 20 mg. Then I started having awful, crippling bouts of insomnia that would leave me sobbing in despair and frustration for hours at night. I became emotionally hyper-reactive to everything; even something silly like not being able to find my socks could send me into violent fantasies, yells and sobs. I also had physical symptoms -- excessive sweating, diarrhea, and nausea. I held steady at 5 mg for a couple weeks, and it seemed to be getting better, so I slowly dropped the rest of the way. Things were rocky for a few days, then seemed to ease off, and I relaxed thinking I was on the way out. I've been off Zoloft completely for just over two weeks now, and it's suddenly gotten much much worse. That makes no sense to me because Zoloft has a short half-life, so I wasn't expecting a delayed reaction. But my insomnia is so bad lately that just thinking about my bed makes my throat close up, dreading the hours and hours of torture that will be my night. Half the time I am so tired that I can't function, literally not safe to drive to work. And for the past few days I have felt a rising cloud of depression and constant misery. A big part of me now believes on a bone-deep level that I am worthless and have never done anything worthwhile in my entire life. It seems obvious to me that the things I took pride in while I was on medication were stupid delusions, and I was just making a fool of myself with everything I did. Part of me does not want to go back on medication, even though I know it would fix this, because I don't want to be the stupid pathetic deluded fool again. Better to huddle in clear-eyed torment. And I can't bring myself to believe that it's okay to have a baby on Zoloft, even if my medicated self would have said I was being irrational. I know that untreated depression during pregnancy is associated with worse outcomes than taking Zoloft. So having a baby like this isn't an option either. But right now that seems moot, because I no longer feel I have the right or capacity to bring a child into the world. When I leave the house now or do anything besides curl up and cry, I am like a puppet-master pulling the strings of my own body, putting on a grisly charade of a functional living human.
  24. Hi everyone! Just found this site weeks ago while browsing the net regarding AD withdrawal. Sounds like you all have more insight to AD's then any doctor I've ever seen. It's reassuring there are others like me who have had many years of AD use. I'll be 47 years young next month and have been taking Zoloft/Sertraline since the early 90's. It's been a looooong time! 22 years I believe. Matter of fact, there wasn't even a generic available for Zoloft when I started taking it, it's been so long. I've been on 100mg/day since the beginning. I've tried 50mg/day for a while and been as high as 150mg/day but only for a short period. Currently still on 100mg/day, seems to be my sweet spot. Anyway, like many people out there, I was diagnosed with Dysthymia in my 20's and was promptly put on Zoloft while having a major depressive episode. I sought therapy during that time and they thought Zoloft would be an excellent option for me during that gloomy year. Fast forward 20+ years and I think it was the worst option they could have suggested during that time. Hindsight is always 20/20 they say. It is what it is now. I was an excellent responder to Zoloft. After a small adjustment to the med life was really excellent for a long long time. I had probably 15 good years on this AD with very few side effects. Things like emotional blunting, mild anorgasmia, foggy head syndrome were just a few sides that have persisted thoughout the years. As I get older, these side effects have seemed to get worse despite living a very healthy lifestyle. Many of the doctors I've seen over the years all have said that I could expect to be on Zoloft for the rest of my life and that it's ok that I am. Not so sure I agree with that. I've been married for 19 years to the same wonderful supportive woman. I've been at my same job for 25 years, make a decent income and have very few external stressors. I have nothing to complain about in my life. So I keep asking myself why am I still on an AD? I think some of it has been complacency. If zoloft is working so good then why quit taking it, right? It did work wonders for a long long time, so basically for a while I wrote it off as something I would be on forever and just live with the side effects until the day I die. I guess I could live with that and go on with my life. But what happens when the same drug you have been taking for 22 years starts to lose it's effectiveness? That's what seems to be happening over the last few years now. Many years ago I tried to wean of zoloft without any luck. Back then I had no idea what I was doing and neither did the doctor I was seeing. I look back and think about the 50% weaning schedule my doctor had suggested and just shake my head. No wonder it was so horrible. Needless to say I quickly reinstated and went on with my life. From all the reading I've been doing I now know that was the worst thing I could have done. A few months ago I found a really excellent doctor that specializes in integrative health. Although he doesn't specialize in Psychiatry, he really "gets it" compared to other doctors that simply want to push pills on you. He really understands how weaning works and also suggested the 10% weaning schedule you all advocate as well. I think I'm a pivotal point in my life regarding my AD. I don't think it's working very good anymore. I can detect very small withdrawal symptoms while on the same dose I've had for years. I think this tells me it's pooping out on me. My life circumstances are as stable as they will ever be so I feel this is a good time to start my journey. I know it will be really difficult and I'm willing to accept the fact that there is no deadline to finish my taper. I'll take it one day at a time. Hopefully with your support I can some day successfully be free from AD's forever. I Hope to get to know some of you on the forum. My intro was a little long so if you made it to the bottom thanks for listening All the best, Rob
  25. Hi, I am 31 years old, and been taking Sertraline 50mg since 2005, for generalised anxiety disorder. I attempted to taper several times in the past, all unsuccessful. In January 2018, I thought I was mentally in a good place to try and reduce the dose again. I started tapering by taking 25 mg 1 day a week(50 mg 6 days) for one month, then 25 mg for 2 days a week for another month etc. I have now been on 25mg everyday since June 2018. Initially I had occasional, mild withdrawal symptoms like vertigo and sensory sensitivities. But I had major, unexpected negative life changes and multiple bad news over the summer of 2018, and have been (understandably) more and more emotional. My anxiety has been getting more, and now it has become unbearable for me. I keep randomly crying, and feel extremely worried All. The. Time. I cannot relax or calm down, and feel a shortness of breath most of the time. Random anxiety attacks followed by diarrhea have become a regular thing. I am worried about leaving the house on my own. I am thinking about increasing the dose again, as I just can't cope with the debilitating fear and worry anymore, but then I will have suffered all these months for nothing. I thought I was in a stable point in my life when I started the taper, but now, after having dealt with a very difficult year(unrelated to the taper), I feel like now is actually the worst time for this. I have no support as all my family live abroad(and my parents&close relatives themselves could do with emotional support right now), my kids are very young and they constantly need me(and nursing a toddler is draining as it is...), we are in the process of selling our house and moving (not sure where to yet), I haven't had therapy or counselling in years and don't really have anyone to confide into... Should I just give up, go up to 50mg and try again when my life is stable? Has anybody had life events interfering with their taper like this?
×
×
  • Create New...