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marie123: tapering trazodone

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hezzer78

@marie123 I'm also tapering off Mirt. My doc said if the sleep issues get really bad, he can rx me Trazodone, but I'm thinking I'm going to pass on adding another drug to the mix. I'm already taking ativan to get me through the rough nights (which has been every one the past 4 :( )  I'm really hoping my sleep levels out soon and I can get some rest - I did make a big jump from 15 -> 7.5 though. I'm planning on cutting slower after I stabilize here.

 

How  much are you going to taper down with the liquid?

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marie123

Hello hezzer.

I first will transition to liquid by taking half pill/half liquid every night for a week or two.

Next I will taper mega slowly, possibly 0.15 cut to start.

Hold for a month and see how well I do. Continue to cut 0.15 monthly. I am sensitive so I need to go slow.

I will try hard not to go too fast because It's hard to get back on track once you've over tapered.

Do not start traz. It has plenty of side effects which will make you feel sick and the sleep is not that great from it. It was very difficult for me taper it.

Mirt gives better sleep but has it's own problems for sure.

It seems mirt is stronger than traz so I have to carefully taper.

I am retired so if I don't sleep well it's not a big deal.

I can nap now without it feeling toxic.

You cut to 7.5 from 15? I could never do that.

I wish you luck with your tapering, you'll get there.

Polydrugging sucks for sure. Marie.

 

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marie123

Hello everyone. I am doing well. I feel better and better the farther away from trazodone.

It will be a year free in two weeks.

This weekend I'm going to the compound pharmacy for my two week trial of liquid mirt.

I was delayed because I got two viruses in a row after the holidays, and my furnace stopped working.

I'll take a half a pill and the rest liquid for a week or two.

I'll continue the changeover to liquid slowly by having all liquid for 2 days out of the week, then 3 the next, etc.

It should be fine.

This time I want to do withdrawal without getting into the "pit", so slow I go.

I want/need to enjoy my life while this is going on. S/O is retiring soon and we want to travel.

I have a  lot of good coping skills/tools that I can use and I've done w/d a couple of times.

I like this layout of posting since reading Hopefull's posts. Thanks Hopefull.

Wish me luck. Be well everyone. Marie.

 

 

 

 

 

 

 

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marie123

Hi all. I started the liquid taper. I'm doing half pill half liquid for now. The first dose I took I overdosed because the pharmacist changed the concentration on me and I didn't read the bottle. So I wound up taking 1/2 pill (3.75 mg)  and about 8 mgs in liquid. I felt really out of it the next day, spaced out. I read the bottle and woops it was different that the old bottle I got in November.

There were no instructions that came with it. The pharmacist did not mention she changed the script. My bad though, I should have read it.

 

I figured out the amount of liquid to taper. I went to the pharmacy today to confirm my liquid amount. She confirmed my math was correct. She did at first "round up" to make my dose to about 7.60 mgs. I said I wanted it to be exact. "You're that sensitive" she exclaimed lol. I told her I was sensitive and wanted it to be exact because I did not want to find out if I wasn't so sensitive.

 

Again I got the blank stare. I am so sick of the blank stare. My good friend called me again to go out to breakfast. I know her for almost 30 years, so I knew she was stressing out about her medical issues and needed to talk to me. I'm a good listener and friend I believe. She called me previously when she needed a friend to talk to about her medical issues and I was there for her.

 

I started talking about how I am tapering a new med and have to go slow slow slow so I won't get sick. I got the blank stare. She's probably thinking I'm an anxious persion and I really don't get sick from tapering. What she does not realize is how tough mentally you have to be to do this and how sick this can make you. This is my third one. I hope to be dancing on rainbows when I'm done.

Marie.

 

 

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savinggrace

Marie,

I do not trust anyone but a handful of people with my psych drug history and tapering struggles. Blank stares are common but better than the terrible things that can come out of people’s mouths when you try to explain the whole withdrawal thing to them. The few people whom I have had to share for one reason or another say stuff like “just go to rehab and get it over with” or go to AA or similar things. As far as protracted withdrawal for years, laughter and eye-rolling  is mostly what that evokes. So I suffer alone and in silence for the most part. Meanwhile everyone wonders what the heck is wrong with me. ‘Tis a lonely existence. 
 

Good luck Marie. I have always been pulling for you. 
 

Grace

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marie123

Hi Grace. I did accidently find an acquaintance who became a friend as she started talking to someone about trazodone as I was standing nearby. I started explaining to her all about trazodone and she was horrified. We both got off though and it was nice to compare with each other. Unfortunately for her she is still polydrugged and taking Lyrica. Her doctor diagnosed her with fibromyalgia. She also tapered off Ambien, so similar to me. Well I did not have the heart to tell her yet (and I don't know her well enough, I don't want her mad at me) that she may in fact be in protracted withdrawal. I think I will eventually tell her.

 

I do hope that you are able to lower your meds so you can feel a bit better Grace.  I see you have been tapering trileptal, that's certainly a good thing.

Marie.

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marie123

Hello everyone. I am in the process of switching to liquid. I'm doing it carefully because I can't do the cutting and weighing with the tiny mirt pill. I have been taking 1/2 pill and 1/2 liquid and so far it's fine. Soon will try a couple of nights in between of just liquid. I have some dental stuff that I need to take care of which I find stressful. I'm glad to have found this pharmacy. It was pure luck and the first one I called as I just had the failed mirt taper and was feeling bad and aggravated. It's a mom and pop old school type pharmacy and never busy when I've been there. This pharmacy does most of the compounding of meds in the area. You walk in, give them your pills to compound and wait a little while. Last time it was 15 minutes to have it prepared. Nice and easy which I like.

 

I feel pretty good lately. I'm about one year free of trazodone and in good spot to start the mirt taper. Good luck to all. Marie.

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marie123

I have taken care of the dental stuff. I'm so glad because, well, who likes root canals. My endo is fabulous and sings motown songs as he's drilling lol. I pay extra out of pocket because he's worth it. Excellent work too.  I also want to finish the switch to liquid. Today I am starting to go every other day with liquid/pill for a week, then it's all liquid. I'm very pleased that I am able to tolerate the liquid. I just hope that the pharmacy all of a sudden doesn't say sorry I can't do it any more without doc's script. My backup plan is to make my own liquid. There are so many obstacles in withdrawal. I understand with the virus situation some meds may be delayed from China and India. The brand of mirt that I use is from India. Right now I have an extra 4 month supply, but I want to keep it that way. I need to supply the compound pharmacy with pills and in case my doc gets "funny" and says he can no longer prescribe. If there's a delay from India I'll ask my doc for an emergency script and get the brand local. I just have to call around until I find the right one. Doc doesn't even know I'm tapering. I'll keep it that way until I'm under a milligram and have loads of extra pills lol. I'm concerned about the virus as my immune system is lowered from the mirt. Trying to isolate more that usual. Be well everyone. Marie.

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marie123

I can't seem to catch a break. I've been self isolating for 2 weeks. I haven't left the house, but I've come down with what I believe is the flu. I guess it was brought into the house by the family. I did get the flu shot in October (that was a disaster, I got very ill from it). It could be a different strain or I guess it could be Covid-19. No use trying to get tested, it's backed up and I don't fit the criteria. Luckily, I don't have problems with chest/breathing. Feel like I've been hit by a truck though and sleeping a lot. At least my bed's comfortable. Be well everyone. Marie.

 

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marie123

I made a mistake in an earlier post about my switch to liquid. Currently I am taking 1/2 pill and the rest liquid for one day, then the next two days all liquid, then keep repeating. After I am over the virus it will be 1/2 pill liquid the rest for the first day, then liquid for three days, repeat. I'll do this for a week then completely over to liquid. I'll be in good shape at over 11 months finished with trazodone to start the taper. Marie.

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marie123

Stressed by the virus.I think I had it for a few weeks. I tried to get tested but it was too difficult. I just stayed home with mild covid 19 symptoms and I'm feeling better. Had the flu shot (made me ill) so I don't think it was the flu. It felt different then the flu. My sleep has been worse because of the stress of the times we are in, but I'll keep going.

 

On a lighter note, when picking up my new batch of liquid mirt, I told the new pharmacist to make it just like last time. I said I was in the computer. I said again to please make it the same. He said it was fine and asked me if I wanted the chicken flavor. I barked, "no, it's for me" and he gave me the cherry one. Woof woof lol.

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marie123

Hi everyone. I'm still transferring over to all liquid. I'm almost there. I take a half of a mirt pill and half solution every 6 days. The other days it's all compound liquid solution. Soon I'll jump over to all liquid. I'm glad I took my time and waited when I had stuff going on. I did not want a reason to abandon the liquid. Can't wait to start the mirt taper. I've wanted this for years.

 

People aren't used to staying home during this time. I've had a lot of practice so it's not that hard for me. Before the virus happened I was getting out a lot more though.  The good news is that there in no expectation of having to be social, go on trips, etc.  I can lean into the taper without having to hold because of having to be somewhere. I'm over trazodone withdrawal for the most part. I don't notice anything really. The compound pharmacist raised their rate to $20 for the monthly script, but that's fine. They closed the store part of the pharmacy. You have to call when you get there and they will bring your med to your car. Be well everyone. Marie.

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marie123

It's all liquid from now on. The half pill doesn't agree with me anymore. I'll wait a week and start the taper with no more than 5% a month (2.5% every two weeks) and see how it goes.

 

I can drink a diet coke now. It's my stay-at-home treat. It tastes good and gives me energy. Got to live a little.

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marie123

Hi everyone. I'm happy to say the liquid taper seems to be working. Today is day 5 taking liquid and it's not too bad. Day 3 I felt withdrawal, but it's improved now. I've only taken off

.15 mg (about 2%). I am going to try another .15 mg cut in about two weeks, then hold for 2 or 3 weeks. People say you feel a mirt cut on about day 4 and again 2 weeks out. This is similar to trazodone. I think a 5% per 5 week taper is fine, unless I feel wonderful that's all I will do. Be safe everyone. Marie.

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Altostrata

Good to hear, marie. Please let the conversion to liquid settle before making another change.

 

You do not necessarily feel a small decrease in mirtazapine. Take care!

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marie123

Hi Alto. I'll give it more than two week's time for the liquid and the cut to settle. I think I'll wait a full month to see how it plays out. I need to be very careful at the beginning. Thanks. Marie.

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Shebon

Hi Marie:

 

A big congrats to you for getting over to the liquid version mirt.  I hope it is an easy taper for you.  

 

I heard what you were saying about this forced social isolation....makes for no stress on us "taperers".  

 

I just started my second week down to 2.67 from 3.75 mg.  I started the taper 1/1/20.  I am still taking the pill version and my recipe for the taper is in signature.  I might decide to switch to liquid when I get down to about 1 mg.  

 

Best regards,

Shebon

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marie123

Hi Shebon. Yes it's no stress for us taperers as long as you forget you are in a pandemic! I try to think positive and be grateful for all I have. I think about when it's over how great it will all be.

 

You are doing very well getting down so low. I found cutting nearly impossible with the size of the pill. How are you managing cutting the pill? Liquid is a breeze because you can make tiny cuts which I need, especially in the beginning when I have to figure out how much to cut without getting into trouble. Marie.

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Shebon

Hi Marie:

I cut the 15 mg. pill into quarters with a pill cutter.  That gives me (4) 3.75 mg. pills...I then can cut the 3.75 in half with my pill cutter too.  That gives me 1.87 mg. pills.  

I have been doing fairly well with mild symptoms such as nausea, teeth hurting, and headaches....but all tolerable.  I am now on (4) nites of 1.87 mg. and (3) nites of 3.75 mg. per week.  I alternate nites and take the weekly average for the doses.  

 

It is best to go as slow as what makes one comfortable with this stuff. I think lots of healing will happen as we taper down slowly.  And I think it's better for the brain too.  

 

Let's keep posting....it is difficult to find others tapering off a low dose of mirtazapine.   If so, they might not post anything for a long period of time.  

 

We can do it!!

Stay well, well...

Shebon

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marie123

Hello everyone. I just wanted to update my small cut (.15 mg) from Mirt.

 

Day 15 (yesterday) - Woke up and started feeling weird pains in my lower abdomen. They felt like needling sharp pains that went on all day and night. Was that nerve pain?

Day 16 (today)  - Woke up feeling like I had a virus or something. I'm so glad the pains in my abdomen went away. I never had that before! I have fatigue, weakness, foggy head, muscle aches, stomach a bit queasy, low appetite. I believe it's all Mirt withdrawal.

 

This all makes sense as I expected to get hit at two weeks worse that the 3rd/4th day, which was minor compared to this.  Mirt is a powerful, sneaky drug. What the heck did they put in this med?  Let's see how long this lasts. I'm timing it lol. Marie.

 

 

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Altostrata

Could the pains be related to your menstrual cycle or something else? 0.15mg is a very tiny reduction.

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marie123

Hi Alto. I'm 60 and in menopause. It's possible it could have been something I ate or drank. There was no take out food. It was short bursts of cramps in different spots below the naval area. My stomach felt very gassy that day. Mirt seems to really affect the stomach. It's possible it was small spasms in my colon?  Others on another site said they had strange pains, ranging from cramps to their colon feeling like it was twisted. The pain did reach once or twice in my ovaries. I'm glad it's gone. I guess I could be sick from family member bringing it in. I've been in quarantine for 6 weeks.

 

Today I feel sick like I have a bug or withdrawal. Who knows anymore. It will pass. Marie.

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Altostrata

Maybe you do have a bug. I am dubious it's withdrawal from that very small decrease.

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marie123

I hope you are right. Marie.

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savinggrace

Marie,

 

I am on the extreme end of sensitive so a .15 cut would definitely affect me. At 2 weeks, the withdrawal has caught up.  Hopefully this will be a short wave. As you know mirtazapine is notorious for being a difficult taper. 

 

I have "sharp, needle-like" pains right below my navel every now and then.  I have a lot of digestive problems, so I chalk it up to nerve pain and try not to worry about it. It usually passes. Mirtazapine has an anti-cholinergic effect, which nearly always translates to gut problems so your body is trying to find homeostasis in your gut which is saying, "Hey, what's going on now?!"  H

 

Hopefully this will all pass quickly, but I definitely would expect to be sick with this cut if it were me...that doesn't mean I think you should up-dose or anything, and knowing you, you wouldn't, but I do think that this is very likely withdrawal.  Just think about how hard it was to cut that teeny, tiny bit of trazodone.  Anything is possible.  We are all SO different.

 

Grace

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marie123

Yes Grace, I suspect it is nerve pain. I haven't had this type before where it would go into different spots. I've had instances where I've felt the vagus nerve "jump" in my abdomen with a quick sharp needle pain. It was a 2% cut, that's all, but I realize I am still perhaps sensitive due to trazodone withdrawal. Traz hits some of the receptors as Mirt does. It was just a new symptom, and new symptoms make me freak a little.

 

I do feel sick today, flu-like, but my tummy is cooperating. I had a nice hot bath with lavendar drops to soothe my achey muscles. Felt good. Had a chocolate donut and a diet coke, just cause I deserve it. How are you Grace, are you feeling any better? Are you in quarantine? Marie.

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savinggrace

Hi Marie,

Thank you for asking.

 

I am having a very difficult time.  I found out I am extremely low in the B vitamins...dangerously low B12 levels...but trying to supplement in any way, shape or form, even micro-doses in injections, sub-linguals, etc. put me into withdrawal quickly.  I had a bunch of genetic testing done and it indeed showed that my body does not methylate these vitamins well at all.  Of course the alternative is eating more meat and dairy and fish.  I am allergic to dairy and fish so I am just trying to get by on the food I CAN eat (very limited).

 

I guess I am living on a song and a prayer.  I got through my last cut of trileptal just fine (with a rough week or so) but honestly, with the COVID stuff going on, and my malnutrition state, I just don't think tapering is a good idea right now.  That said, I am glad I have gotten as much of the trileptal out of me as I have.  It is very hard on the liver, and with my B vitamin problems on top of everything else (so much pain; probably from lack of B's), I am glad I have reduced my toxic load as much as I have.  It is disappointing not to be able to taper more, but just handling everything I am handling is almost inhumane.

 

I have indeed been sheltering in place for about 6 weeks, but then, I pretty much do that for the most part anyway! 😀  The big difference now is that my husband and I are watching our almost 2 year old granddaughter for half days  while her parents work at home (I could never do it alone) AND I am trying to help home-school my grandson remotely as he was already struggling to read when school was closed.  I retired from a kindergarten teaching career so I am doing my best work, as best I can remotely, for my sweet grandson. (I am only doing this a few hours a week)  So I am distracted, which is good, because I am up to the challenge of COVID...

 

I remember you were doing some caretaking a while back so you understand when we have to step up and care for others it is particularly challenging to care for ourselves the way we need to.  I am grateful to have this time with my granddaughter and it keeps me from fretting too much.

 

I am rooting for you, Marie.  I always have been.  I hope you feel much better soon.   Don't get discouraged.  The only thing you will have to do is go slower and you already know that that works....look what you did with trazodone!

 

Grace

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marie123

I have been feeling better as another day passes. It seems to me that with Mirt you get hit about 3 or 4 days after a cut, and then again 2 weeks (stronger) after a cut. Withdrawal peaks and then it lessens each day. I just have morning withdrawal crappyness, but it's okay in the scheme of things. I have muscle aches in the lower back mostly, some head pressure, and a sensitive stomach. It seems to be lessening as the day goes on. Thankfully I don't get any anxiety with this Mirt withdrawal, as others have mentioned. I can drink coffee and diet coke and I don't get revved up. In the beginning of my journey I could never have this. I would not get anxious, but I would feel revved and tense. I can tolerate Chinese take-out, potato chips, etc. now too. I do notice that if I eat something odd, that my system is not used to, it will react. Leftovers more than a day old is a no-no for me. Could send me into a light wave. Alcohol is forbidden to me, but hope the day will come when I can have a glass of wine. Stay safe and be well everyone.

 

Thanks Grace for stopping by. I have posted on your thread. Marie

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marie123

Hello all. I have stabilized after one week of moderate withdrawal symptoms. It appears that I got hit first 5 days after the small cut and then more intensely again at 2 weeks. Today and yesterday is/was good.  I am bouncing back and forth with some insomnia and the next day good sleep. I've been in this pattern before when cutting other meds and it is a leveling off of sleep which becomes pretty good sleep eventually. All in all I feel pretty good and excited to be finally tapering Mirt. I will wait until next month to make another cut. I originally wanted to cut every two weeks and hold like the slide method, but the one small cut got me especially at the 2 week mark. Maybe I'll cut a bit bigger in May. Mirt need to go, too many side effects. Marie.

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Altostrata

Good for you, marie. Now that you understand your pattern, you might be able to make micro-tapering work, see Micro-taper instead of 10% or 5% decreases

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marie123

Thanks Alto, I will read the link.  I'm not sure how I could fit in a second cut if I get hit more on the third week. Before I knew what my pattern was, I was thinking of cutting the first week, cut on the third week, and hold for 2 weeks using a microtaper like Brassmonkey. I want it to be smoother than cut and hold. I'll read the think some more about this. Thanks.

Marie.

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Altostrata

When did you start using the liquid to taper?

 

With a micro-taper, you may decrease by even tinier amounts, but faster -- say, 0.1mg at a time.

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marie123

On April 3rd I went completely liquid. On April 5th I made a .15 mg cut.

 

When do I make cuts though? I would like to try 2 cuts a month (.1 mg each) starting next month, keeping in mind that after 2 weeks of a cut I get hit harder.

 

Marie

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Altostrata

The change to liquid combined with the 0.15mg decrease might have caused worse withdrawal than if you had decreased using a tablet.

 

Give it some time to settle, then I would try a 0.10mg decrease. Could be this is much more tolerable.

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marie123

Okay, that's what I'll do. Thanks. Marie.

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marie123

I made a small cut last night of .10 mg. that brings me down to  7.25 mg. If all goes well I will make another small cut of .10 mg in two weeks. I ‘ll set small goals and cannot wait to be in the 6 mg range. I keep a post it note with my liquid med in the fridge that tells me how much to take off in the 5 ml and 1 ml syringes so I do not screw up. My Liquid is made at 7.5 mg\5 ml. Marie.

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