Nadia Posted December 29, 2011 Share Posted December 29, 2011 I agree that the DP/DR are terrible and feel like the root of many other symptoms because ~perceptualy~ everything feels 'off' and disconnected ~ causes me to feel anxious and uncertain of myself and how I appear to others (although nobody has said I seem weirder than my usual) A very disturbing and disorienting feeling that colors everything and probably leads to isolation from usual supports IMHO I totally agree. That, and the "dread" feeling, which kind of go hand in hand for me. '94-'08 On/off ADs. Mostly Zoloft & Wellbutrin, but also Prozac, Celexa, Effexor, etc.6/08 quit Z & W after tapering, awful anxiety 3 mos. later, reinstated.11/10 CTed. Severe anxiety 3 mos. later & @ 8 mos. much worse (set off by metronidazole). Anxiety, depression, anhedonia, DP, DR, dizziness, severe insomnia, high serum AM cortisol, flu-like feelings, muscle discomfort.9/11-9/12 Waves and windows of recovery.10/12 Awful relapse, DP/DR. Hydrocortisone?11/12 Improved fairly quickly even though relapse was one of worst waves ever. 1/13 Best I've ever felt. 3/13 A bit of a relapse... then faster and shorter waves and windows. 4/14 Have to watch out for triggers, but feel completely normal about 80% of the time. Link to comment
Administrator Karma Posted December 30, 2011 Administrator Share Posted December 30, 2011 Hi Soul, I read through your thread and saw where you were diagnosed with gluten intolerance ... research has proven that Hashimoto's thyroiditis is present over 50% of the time when gluten intolerance (or Celiac Disease) are present. Doctors ... endocrinologists ... are notorious for missing this diagnosis until the TSH lab value gets high enough that it exceeds the normal range. Until that happens the doctor will tell you, "all tests are normal." Some of your symptoms may be due to a thyroid condition. I recommend getting a copy of the labs that your doctor ran. If the doctor didn't test for thyroid antibodies, have them tested - you will need both, Thyroid peroxidase antibody (TPOAb); Thyroglobulin antibody (TgAb). If you have any antibodies at all you have Hashimoto's thyroiditis (the lab may say that < (less than) some number is normal, but that means you are not currently having an attack, but you have had an attack). This is an autoimmune disease. I can direct you to another internet board who can help you interpret thyroid results if you want to look into this path. Have you gone religiously gluten free? That is something else that may help. I mean down to avoiding cross-contamination of your gluten free food. Have you checked make up, shampoos, and lotions for wheat? I have Celiac Disease and Hashitmoto's thyroiditis and I can tell you that I had awful pains and symptoms until I got proper treatment. I was relieved to learn that there was something treatable that was responsible for the symptoms I was having. Just hoping to help ... I hate to see you suffering for this long. Karma 2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax 200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg; 1/16 0.6875 mg; at some point 0.625 mg Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers Link to comment
Barbarannamated Posted December 30, 2011 Share Posted December 30, 2011 Karma ~ I'm sorry to be jumping in but could your share info on thyroid testing/AI I think my endo is good but not ordering T3 or Reverse T3 only T4 and TSH plus a slew of immune tests /genetic markers that labs haven't heard of ~ He tests for antinuclear and other antibodies Feeling so hopeless and scared Barb Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc). Link to comment
Administrator Altostrata Posted December 30, 2011 Administrator Share Posted December 30, 2011 Karma and Barb -- please start a topic in Symptoms about thyroid issues. I don't know if Soul is reading this thread. Soul, please come back and tell us how you're doing. This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment
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