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BipolarNoMo

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Hi All!  Just wanted to say I've been scouring this site for advice from people who have gone through tapering before, and have found the advice here invaluable.  I wish I knew about it sooner because it would have saved me a lot of heartache.

 

Here is my history: 

I had been an extremely anxious child, kind of a hypochondriac, and extremely sensitive. In 2000 when I was 15 years old I was diagnosed with major depression, and had some psychotic episodes (mostly paranoia).   During this time, my parents gave me some of my dad's medications (I am not sure which ones) which may have exacerbated the situation.  

 

After two weeks, I started on 20 mg of Paxil and 25 mg of Seroquel in 2000.  Tapered off of Seroquel quickly after a week or so, stayed on the 20 mg of Paxil until 2007. Cold turkey off of Paxil for 9 months - experienced a number of side effects - head zaps, mood swings, irrational behavior, hypomania. After 9 months, reinstated 20 mg of Paxil, was on 40 mg for a few weeks. Saw my Pdoc and she told me to go on 10 mg Paxil, 50 mg of Seroquel, and 250 mg of Depakote for my new bipolar diagnosis. I stayed on this until summer of 2014 when I tried weaning off of Paxil to 5mg. Within 2 or 3 months I started feeling hopeless and depressed even with the Seroquel and Depakote. Went to Pdoc, he told me my depression was returning, and so I reinstated to 10mg.

 

In March of 2015, I switched from 10 mg of Paxil to 10 mg of Prozac by adding 10 mg of Prozac for 2 weeks, cutting down the Paxil to 5 mg in another two weeks, and then completely off the Paxil in another two weeks. I experienced some minor depression for a few days. I didn't know I was experiencing withdrawal at the time. In May of 2015, I weaned off the Depakote with a schedule from Pdoc from 250mg to 125 mg in two weeks, then off completely two weeks after that. I didn't experience any debilitating withdrawal symptoms with Depakote, except one day of diarrhea which could have also been food poisoning. On 9/9/15 I started tapering off of Seroquel from 50 mg to 25 mg which was my Pdoc's tapering schedule. The night of the cut, I immediately experienced insomnia and got a few hours of in and out sleep. After about 3 or 4 days I got a little bit more sleep and was feeling a lot sharper and less sluggish. I realized that the Seroquel was what was blunting my emotions and contributing to extreme apathy. I was also sleeping way too much and feeling groggy the next day. So when I went off of it, I felt amazing. After about 4 days, I cut the half into another half (12.5 mg), didn't get much sleep but still felt sharp, but experienced cold sweats. Some anxiety started to creep in as well. In my anxiety, I decided I wanted to get off completely, and so I didn't take it that night and had the worst insomnia I'd ever had. I slept for maybe 20 or 30 minutes. The next day I was having trouble regulating body temperature, had chills and sweats, and felt like all my nerve endings were raw and exposed.  I reinstated to 12.5 mg and felt immediate relief in my withdrawal symptoms the next day. A couple of days on 12.5 mg wasn't cutting it, so I went back up to 25mg. I was beginning to feel extremely anxious and depressed in the morning, and had mini panic attacks during my lunch breaks at work. I decided to go back up to 35 mg, which is where I am now. 35 mg of Seroquel and 10 mg of Prozac.  I am feeling pretty stable these past two days after reinstating the 35mg of Seroquel, still early morning disturbances and manageable levels of anxiety and depression in the morning.  I usually feel much better by noon.  I do still have dizziness and headaches as well.

 

I am now 29 years old, have a 9-5 job, work out regularly (4-6 times a week), and am eating as well as I can.  I am taking no supplements.  

 

This forum has been extremely helpful to me and was instrumental in my reinstating.  I have often been too stubborn, thinking all my effort is going to waste, and end up suffering a lot.  It is important to me to continue working and keep up with my social life and exercise.  I know that it will contribute to my healing, along with prayer and knowing Jesus is beside me every step of the way.  

 

From the Slowness of Slow Tapers thread, I found a lot of encouragement to be patient and to hold until feeling stable.  This is going to be a long and arduous journey, but I have hope that I will at least be on as little medication as possible, or none at all.  

 

Date 11/1/2000? 20 mg Paxil

12/1/2007? 0 mg Paxil

9/1/2008? 10 mg paxil 250 mg depakote 50 mg seroquel

3/28/2015 10 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/11/2015 5 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/25/2015 10 mg prozac 250 mg depakote 50 mg seroquel

5/27/2015 10mg prozac 125 mg depakote 50 mg seroquel

6/10/2015 10mg prozac 50 mg seroquel

9/9/2015 10 mg prozac 25 mg seroquel

9/29/2015 10 mg prozac 35 mg seroquel

10/1/2015 10 mg prozac 47 mg seroquel

10/10/2015 10 mg prozac 45 mg seroquel 6/3/2016 6 mg Prozac 25 mg seroquel

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  • Moderator Emeritus

Welcome BipolarNoMo,

I'm glad you have found the information here helpful. Thank you for joining and for sharing your story, you will find a lot of friendly help and support here as you continue to safely taper off prozac and seroquel.

 

It sounds like you have found your way around the site quite well, I'm happy you have decided to hold until feeling more stable. Which one of your drugs are you planning to taper when you continue?

 

Here are some relevant topics:

 

Tips for tapering off Prozac (fluoxetine)

 

Tips for tapering off Seroquel (quetiapine)

 

Taking multiple psych drugs? Which drug to taper first?

 

It would be great if you would put your drug and withdrawal history in your signature. Doing this helps people understand your context, it appears below each of your posts. Here are instructions for how to do it:

 

http://survivinganti...your-signature/

 

Please stay in touch and let us know how you are doing.

 

Petunia.

I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes

Supplements which have helped: Vitamin C, Magnesium, Taurine

Bad reactions: Many supplements but mostly fish oil and Vitamin D

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered

Oct 2016 -Symptoms returned - bad days and less bad days.

April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close.

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 

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Thanks Petunia for the quick reply and for the helpful links.  

 

To answer your question, I want to taper off the Seroquel first because of the adverse side effects - mostly horrible short term memory, apathy and grogginess.  I read the thread about which med to taper off first, and it suggests tapering off of the antipsychotic first in most cases to preserve sleep.  So maybe a slow taper of the Seroquel, stabilize, taper a little off of the prozac, stabilize, and just listen to my body, hoping that my anxiety won't cause me to taper any more than I have to.  

 

Last night I took 35 mg again and I felt very dizzy and high for about an hour/hour and a half (like tripping I think?) and was afraid I wasn't going to sleep, so I took another 12 mg, making the total about 47 mg.  I woke up early again and felt my stomach flipping and couldn't fall back to sleep.  I really hope I stabilize soon so I can begin tapering again (the right way).

 

Should I continue taking 47 mg tonight?  Should I have stayed at 35 mg?  That is about a 20% cut from my original dosage which according to these forums is too fast, but I updosed from a 50% cut and then a 100% cut after two days.  

Date 11/1/2000? 20 mg Paxil

12/1/2007? 0 mg Paxil

9/1/2008? 10 mg paxil 250 mg depakote 50 mg seroquel

3/28/2015 10 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/11/2015 5 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/25/2015 10 mg prozac 250 mg depakote 50 mg seroquel

5/27/2015 10mg prozac 125 mg depakote 50 mg seroquel

6/10/2015 10mg prozac 50 mg seroquel

9/9/2015 10 mg prozac 25 mg seroquel

9/29/2015 10 mg prozac 35 mg seroquel

10/1/2015 10 mg prozac 47 mg seroquel

10/10/2015 10 mg prozac 45 mg seroquel 6/3/2016 6 mg Prozac 25 mg seroquel

Link to post
Nomoreheadmeds

Welcome BNm I wish you well 

Sertraline 100mg amytrip 60mg diazepam 4mg (and when needed) since late 90's.Reduced all meds over 6 wks (too short) last doses 13 wks ago.Still having withdrawals.I would have done it differently

5th august 2015 reinstated 5mg amytripiline.increased to 10mg amtrip 9th sept 2015.

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  • Administrator

Welcome, BNM.

 

Taking multiple psych drugs? Which drug to taper first? suggests tapering the antidepressant first to preserve sleep. Many people take antipsychotics as sleeping pllls.

 

When you have an adverse reaction to an antipsychotic, that's a good reason to taper that one instead. If you need it for sleep, you may wish to taper part-way off Seroquel to reduce the side effects, then start on the Prozac.

 

If I were you, I'd stay at 35mg Seroquel. It may take a while for your nervous system to settle down from the shock of withdrawal in September. Please be patient, jumping around in dosage can cause additional problems.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Hi Nomoreheadmeds, thank you for the welcome!  Alto, thank you for the advice.  I did not have trouble sleeping before taking this medication - I am hoping my ability to fall asleep without it will return.  

 

I had about 6.5 hours of sleep last night, and in the morning felt some anxiety.  Today I had a nervous flipping feeling in my stomach that lasted until after dinner today.  But overall was not too depressed or anxious that I couldn't focus at work.  Also felt whooshing feeling at the top of my head, especially when on the computer.  Sensitive to loud/sudden sounds.

Date 11/1/2000? 20 mg Paxil

12/1/2007? 0 mg Paxil

9/1/2008? 10 mg paxil 250 mg depakote 50 mg seroquel

3/28/2015 10 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/11/2015 5 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/25/2015 10 mg prozac 250 mg depakote 50 mg seroquel

5/27/2015 10mg prozac 125 mg depakote 50 mg seroquel

6/10/2015 10mg prozac 50 mg seroquel

9/9/2015 10 mg prozac 25 mg seroquel

9/29/2015 10 mg prozac 35 mg seroquel

10/1/2015 10 mg prozac 47 mg seroquel

10/10/2015 10 mg prozac 45 mg seroquel 6/3/2016 6 mg Prozac 25 mg seroquel

Link to post
  • Administrator

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post

Hi Alto,

 

I had been on paxil for many years and only occasionally had sleep problems.  After taking seroquel for so many years, I don't know how to fall asleep without it.  Thank you for the suggestions, I will look into the fish oil and magnesium.

 

I took 47mg again last night because I was afraid of jumping around too much, and my head is still wooshing, dizziness, early disturbances, and mild anxiety that resolves in the afternoon.  Also getting a tickling feeling on the nape of my neck.  Weird.  

 

Has anybody ever been on it for this long and have successfully gotten off?

Date 11/1/2000? 20 mg Paxil

12/1/2007? 0 mg Paxil

9/1/2008? 10 mg paxil 250 mg depakote 50 mg seroquel

3/28/2015 10 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/11/2015 5 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/25/2015 10 mg prozac 250 mg depakote 50 mg seroquel

5/27/2015 10mg prozac 125 mg depakote 50 mg seroquel

6/10/2015 10mg prozac 50 mg seroquel

9/9/2015 10 mg prozac 25 mg seroquel

9/29/2015 10 mg prozac 35 mg seroquel

10/1/2015 10 mg prozac 47 mg seroquel

10/10/2015 10 mg prozac 45 mg seroquel 6/3/2016 6 mg Prozac 25 mg seroquel

Link to post
  • Administrator

After so long, you might have to taper very, very gradually.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post

Hi there, I was on Zyprexa, similar, for six years when I started tapering in 2012. And last night I slept about seven hours :). You can get there!

1st round Prozac 1989/90, clear depression symptoms. 2nd round Prozac started 1999 when admitted to dr. I was tired. Prozac pooped out, switch to Cymbalta 3/2006. Diagnosed with bipolar disorder due to mania 6/2006--then I was taken abruptly off Cymbalta and didn't know I had SSRI withdrawal. Lots of meds for my intractable "bipolar" symptoms.

Zyprexa started about 9/06, mostly 5mg. Tapered 4/12 through12/29/12

Wellbutrin. XL 300 mg started 1/07, tapered 1/18/13 through 7/8/13

Oxazepam mostly continuously since 6/06, 30mg since 12/12, tapered 1.17.14 through 8.26.15

11/06 Lithium 600mg twice daily, 2.2.14 400mg TID DIY liquid, 2.12.14 1150mg, 3.2.14 1100mg, 3.18.14 1075mg, 4/14 updose to 1100mg, 6.1.14 900 mg capsules 7.8.14 810mg, 8.17.14 725mg, 8.24.24 700mg...10.22.14 487.5mg, 3.9.15 475mg, 4.1.15 462.5mg 4.21.15 450mg 8.11.15 375mg, 11.28.15 362.5mg, back to 375mg four days later, 3.4.16 updose to 475 (too much going on to risk trouble)

9/4/13 Toprol-XL 25mg daily for sudden hypertension, tapered 11.12.13 through 5.3.14, last 10 days or so switched to atenolol

7.4.14 Started Walsh Protocol

56 years old

Link to post

Alto, thank you for the reply.  Yes I am going to have to do this very carefully and gradually, and even after slow tapering to zero, strap myself in for withdrawal symptoms for months (or years?).  I think one of the hardest parts about this is the uncertainty of it all.  Not knowing how long or how severe it's going to be.  Also knowing that I was put on Seroquel unnecessarily and had not questioned it for many many years until my pharmacist friend and boyfriend convinced me otherwise.  Thank you MMQ for the hope of getting off of it :)  I need to think about the positives - that I NOW know the truth, and that there are many many people who have gone through the same thing.  It was also really helpful and healing to open up to my small group at church about this and to be taken seriously.  I think a lot of people don't realize how excruciatingly difficult it is to get off psych drugs ... not even the doctors...

 

I am trying not to ruminate on the possibilities ... it's so hard.  I am trying not to obsessively read through people's stories and find despair in the stories of people who have not been able to heal.  I am trying to put my hope in the eternal, and not the temporary.  God help us all.

Date 11/1/2000? 20 mg Paxil

12/1/2007? 0 mg Paxil

9/1/2008? 10 mg paxil 250 mg depakote 50 mg seroquel

3/28/2015 10 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/11/2015 5 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/25/2015 10 mg prozac 250 mg depakote 50 mg seroquel

5/27/2015 10mg prozac 125 mg depakote 50 mg seroquel

6/10/2015 10mg prozac 50 mg seroquel

9/9/2015 10 mg prozac 25 mg seroquel

9/29/2015 10 mg prozac 35 mg seroquel

10/1/2015 10 mg prozac 47 mg seroquel

10/10/2015 10 mg prozac 45 mg seroquel 6/3/2016 6 mg Prozac 25 mg seroquel

Link to post
  • Administrator

You'll want to taper at a rate slow enough to minimize withdrawal symptoms. Withdrawal symptoms are a sign you're tapering too fast.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post

BPNM,

 

Your situation is your own, but I will tell you if I could do just one thing over, I would have tapered the AD before the AP. I'm surely not a fan of any AP, but that is not a high dose. Just be careful. That said, most everyone has something that they would do differently, and even carefully planned tapers don't go as planned. And I do think going back and forth has a lot of merit.

1st round Prozac 1989/90, clear depression symptoms. 2nd round Prozac started 1999 when admitted to dr. I was tired. Prozac pooped out, switch to Cymbalta 3/2006. Diagnosed with bipolar disorder due to mania 6/2006--then I was taken abruptly off Cymbalta and didn't know I had SSRI withdrawal. Lots of meds for my intractable "bipolar" symptoms.

Zyprexa started about 9/06, mostly 5mg. Tapered 4/12 through12/29/12

Wellbutrin. XL 300 mg started 1/07, tapered 1/18/13 through 7/8/13

Oxazepam mostly continuously since 6/06, 30mg since 12/12, tapered 1.17.14 through 8.26.15

11/06 Lithium 600mg twice daily, 2.2.14 400mg TID DIY liquid, 2.12.14 1150mg, 3.2.14 1100mg, 3.18.14 1075mg, 4/14 updose to 1100mg, 6.1.14 900 mg capsules 7.8.14 810mg, 8.17.14 725mg, 8.24.24 700mg...10.22.14 487.5mg, 3.9.15 475mg, 4.1.15 462.5mg 4.21.15 450mg 8.11.15 375mg, 11.28.15 362.5mg, back to 375mg four days later, 3.4.16 updose to 475 (too much going on to risk trouble)

9/4/13 Toprol-XL 25mg daily for sudden hypertension, tapered 11.12.13 through 5.3.14, last 10 days or so switched to atenolol

7.4.14 Started Walsh Protocol

56 years old

Link to post
  • Administrator

meimei, why would you have wanted to taper the AD first?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post

Because I was flipping crazy (hypomanic would be the technical term) when I stopped Zyprexa and still had Wellbutrin on board. ADs are too activating for me. And because I was so activated I couldn't sleep I went back on a benzo. I greatly increased my overall drug exposure by that choice. I had to come off Wellbutrin at a faster than ideal rate. BUT I have survived to tell about it. I would hate anyone to think that a mistake is a disaster. My story is not really that uncommon around here. But I don't remember hearing of anyone who regretted stopping their AD first.

1st round Prozac 1989/90, clear depression symptoms. 2nd round Prozac started 1999 when admitted to dr. I was tired. Prozac pooped out, switch to Cymbalta 3/2006. Diagnosed with bipolar disorder due to mania 6/2006--then I was taken abruptly off Cymbalta and didn't know I had SSRI withdrawal. Lots of meds for my intractable "bipolar" symptoms.

Zyprexa started about 9/06, mostly 5mg. Tapered 4/12 through12/29/12

Wellbutrin. XL 300 mg started 1/07, tapered 1/18/13 through 7/8/13

Oxazepam mostly continuously since 6/06, 30mg since 12/12, tapered 1.17.14 through 8.26.15

11/06 Lithium 600mg twice daily, 2.2.14 400mg TID DIY liquid, 2.12.14 1150mg, 3.2.14 1100mg, 3.18.14 1075mg, 4/14 updose to 1100mg, 6.1.14 900 mg capsules 7.8.14 810mg, 8.17.14 725mg, 8.24.24 700mg...10.22.14 487.5mg, 3.9.15 475mg, 4.1.15 462.5mg 4.21.15 450mg 8.11.15 375mg, 11.28.15 362.5mg, back to 375mg four days later, 3.4.16 updose to 475 (too much going on to risk trouble)

9/4/13 Toprol-XL 25mg daily for sudden hypertension, tapered 11.12.13 through 5.3.14, last 10 days or so switched to atenolol

7.4.14 Started Walsh Protocol

56 years old

Link to post
  • Administrator

Thanks -- that confirms our advice. Sorry you went through it.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post

MMQ, thanks for that hard won wisdom.  I'm sorry you went through a hypomanic phase tapering off the AP.  

 

I am still experiencing some headaches and sensitivity to light/sounds although it is getting better.   Anxiety is better in the morning.  I definitely don't want to be on the seroquel for more than necessary, so I'll probably taper that as low as I can manage, and then taper off of the prozac next.  I am going to hold at 47mg of seroquel for another week, hopefully these headaches will go away.

Date 11/1/2000? 20 mg Paxil

12/1/2007? 0 mg Paxil

9/1/2008? 10 mg paxil 250 mg depakote 50 mg seroquel

3/28/2015 10 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/11/2015 5 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/25/2015 10 mg prozac 250 mg depakote 50 mg seroquel

5/27/2015 10mg prozac 125 mg depakote 50 mg seroquel

6/10/2015 10mg prozac 50 mg seroquel

9/9/2015 10 mg prozac 25 mg seroquel

9/29/2015 10 mg prozac 35 mg seroquel

10/1/2015 10 mg prozac 47 mg seroquel

10/10/2015 10 mg prozac 45 mg seroquel 6/3/2016 6 mg Prozac 25 mg seroquel

Link to post

Today was good, headaches are almost completely gone.  Went on a run and spent time with a friend, feeling back to normal.  Purchased 1000mg capsule of fish oil and 400 mg capsule of magnesium. Split open the magnesium and put it in water, but didn't dissolve since it was a gel consistency.  How do I dissolve this stuff?

Date 11/1/2000? 20 mg Paxil

12/1/2007? 0 mg Paxil

9/1/2008? 10 mg paxil 250 mg depakote 50 mg seroquel

3/28/2015 10 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/11/2015 5 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/25/2015 10 mg prozac 250 mg depakote 50 mg seroquel

5/27/2015 10mg prozac 125 mg depakote 50 mg seroquel

6/10/2015 10mg prozac 50 mg seroquel

9/9/2015 10 mg prozac 25 mg seroquel

9/29/2015 10 mg prozac 35 mg seroquel

10/1/2015 10 mg prozac 47 mg seroquel

10/10/2015 10 mg prozac 45 mg seroquel 6/3/2016 6 mg Prozac 25 mg seroquel

Link to post

I've been at 45mg since 10/10/15 and feel pretty much like I did when I was at 50mg.  No depression and no anxiety, thank God.  Headaches are gone.  Gaining some weight back after losing almost 10 lbs during my cut last month.  It has helped keeping my phone in my car or at home while I am at work so I'm not tempted to research withdrawal, and also putting my meds and accessories away and out of sight so I don't constantly think about it.  

 

These past two days I have been oversleeping and feeling tired during the day.  Memory is a little better than before.  Still taking fish oil at night and mixed magnesium gel with lotion and apply that almost every night.  Bought a sleep mask.

 

My question is, since I am feeling tired/oversleeping once more does that mean I should make another cut?  Or should I stay on this dose for another week or so and then cut?  

 

Been pondering a lot on the injustice we have all been dealt, being put on these medications, most of the time unnecessarily to be left with debilitating symptoms when attempting to discontinue on the doctor's taper schedule, and then being fed the lie that it is the "underlying illness" coming back.    Watched this video yesterday which made me burn with anger and laugh:

 

Date 11/1/2000? 20 mg Paxil

12/1/2007? 0 mg Paxil

9/1/2008? 10 mg paxil 250 mg depakote 50 mg seroquel

3/28/2015 10 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/11/2015 5 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/25/2015 10 mg prozac 250 mg depakote 50 mg seroquel

5/27/2015 10mg prozac 125 mg depakote 50 mg seroquel

6/10/2015 10mg prozac 50 mg seroquel

9/9/2015 10 mg prozac 25 mg seroquel

9/29/2015 10 mg prozac 35 mg seroquel

10/1/2015 10 mg prozac 47 mg seroquel

10/10/2015 10 mg prozac 45 mg seroquel 6/3/2016 6 mg Prozac 25 mg seroquel

Link to post

Great to hear all the good things you are doing. Someone will give you a better answer on your question, but this is the big question I pose before a cut: can I handle feeling worse than I do right now?

1st round Prozac 1989/90, clear depression symptoms. 2nd round Prozac started 1999 when admitted to dr. I was tired. Prozac pooped out, switch to Cymbalta 3/2006. Diagnosed with bipolar disorder due to mania 6/2006--then I was taken abruptly off Cymbalta and didn't know I had SSRI withdrawal. Lots of meds for my intractable "bipolar" symptoms.

Zyprexa started about 9/06, mostly 5mg. Tapered 4/12 through12/29/12

Wellbutrin. XL 300 mg started 1/07, tapered 1/18/13 through 7/8/13

Oxazepam mostly continuously since 6/06, 30mg since 12/12, tapered 1.17.14 through 8.26.15

11/06 Lithium 600mg twice daily, 2.2.14 400mg TID DIY liquid, 2.12.14 1150mg, 3.2.14 1100mg, 3.18.14 1075mg, 4/14 updose to 1100mg, 6.1.14 900 mg capsules 7.8.14 810mg, 8.17.14 725mg, 8.24.24 700mg...10.22.14 487.5mg, 3.9.15 475mg, 4.1.15 462.5mg 4.21.15 450mg 8.11.15 375mg, 11.28.15 362.5mg, back to 375mg four days later, 3.4.16 updose to 475 (too much going on to risk trouble)

9/4/13 Toprol-XL 25mg daily for sudden hypertension, tapered 11.12.13 through 5.3.14, last 10 days or so switched to atenolol

7.4.14 Started Walsh Protocol

56 years old

Link to post

Hi MMQ, thanks for the reply. That is a good question - I think when I'm feeling better I underestimate how difficult a cut is. It is a hard decision because we all want off of the drugs so desperately, but we need to do it slowly.

 

The other day last week I took a magnesium supplement (125mg) and felt restless and a little more anxious at work. I think from now on I will mix it in my lotion - not sure exactly if that is helping lol.

 

Also got the flu yesterday so stayed home all day except to get groceries and home from work too. I still have about a week to go before making another cut so hopefully the flu will be gone by then.

Date 11/1/2000? 20 mg Paxil

12/1/2007? 0 mg Paxil

9/1/2008? 10 mg paxil 250 mg depakote 50 mg seroquel

3/28/2015 10 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/11/2015 5 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/25/2015 10 mg prozac 250 mg depakote 50 mg seroquel

5/27/2015 10mg prozac 125 mg depakote 50 mg seroquel

6/10/2015 10mg prozac 50 mg seroquel

9/9/2015 10 mg prozac 25 mg seroquel

9/29/2015 10 mg prozac 35 mg seroquel

10/1/2015 10 mg prozac 47 mg seroquel

10/10/2015 10 mg prozac 45 mg seroquel 6/3/2016 6 mg Prozac 25 mg seroquel

Link to post

Flu is almost pretty much gone. Cut is still scheduled for Monday (to 40 mg). Something else that I have noticed crop up is that my skin has little bumps mostly on my cheeks (not pimples) and I have dry patches where my cheekbones are. Not pretty, but at least it's not depression or anxiety.

Date 11/1/2000? 20 mg Paxil

12/1/2007? 0 mg Paxil

9/1/2008? 10 mg paxil 250 mg depakote 50 mg seroquel

3/28/2015 10 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/11/2015 5 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/25/2015 10 mg prozac 250 mg depakote 50 mg seroquel

5/27/2015 10mg prozac 125 mg depakote 50 mg seroquel

6/10/2015 10mg prozac 50 mg seroquel

9/9/2015 10 mg prozac 25 mg seroquel

9/29/2015 10 mg prozac 35 mg seroquel

10/1/2015 10 mg prozac 47 mg seroquel

10/10/2015 10 mg prozac 45 mg seroquel 6/3/2016 6 mg Prozac 25 mg seroquel

Link to post
  • Administrator

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post

Thanks Alto for the link - I have decided to hold at 45 mg for another week or so and then cut to 41 mg.

 

I felt pretty crappy this morning - fatigue, headache, and thought about what might have caused it. I recalled that I felt just as bad on Sunday morning but I thought it was because I had slept late the night before. But then I remembered that I ate food that had alcohol in it (mussels on Saturday night and pasta last night). So I am going to refrain from eating anything cooked with wine to be safe.

 

Has anybody ever felt this way after eating food cooked with wine???

Date 11/1/2000? 20 mg Paxil

12/1/2007? 0 mg Paxil

9/1/2008? 10 mg paxil 250 mg depakote 50 mg seroquel

3/28/2015 10 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/11/2015 5 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/25/2015 10 mg prozac 250 mg depakote 50 mg seroquel

5/27/2015 10mg prozac 125 mg depakote 50 mg seroquel

6/10/2015 10mg prozac 50 mg seroquel

9/9/2015 10 mg prozac 25 mg seroquel

9/29/2015 10 mg prozac 35 mg seroquel

10/1/2015 10 mg prozac 47 mg seroquel

10/10/2015 10 mg prozac 45 mg seroquel 6/3/2016 6 mg Prozac 25 mg seroquel

Link to post

I woke up too early this morning with some anxiety. I think not exercising last week is catching up with me. I also did not put on the magnesium lotion last night. Was irritable and had a headache this morning and afternoon.

 

I feel better now that it's evening and I'm off of work. Going to put on magnesium lotion and eat tons of berries tonight... glad I took Alto's advice and am continuing to hold on the seroquel taper. So thankful for this forum !!!

Date 11/1/2000? 20 mg Paxil

12/1/2007? 0 mg Paxil

9/1/2008? 10 mg paxil 250 mg depakote 50 mg seroquel

3/28/2015 10 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/11/2015 5 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/25/2015 10 mg prozac 250 mg depakote 50 mg seroquel

5/27/2015 10mg prozac 125 mg depakote 50 mg seroquel

6/10/2015 10mg prozac 50 mg seroquel

9/9/2015 10 mg prozac 25 mg seroquel

9/29/2015 10 mg prozac 35 mg seroquel

10/1/2015 10 mg prozac 47 mg seroquel

10/10/2015 10 mg prozac 45 mg seroquel 6/3/2016 6 mg Prozac 25 mg seroquel

Link to post
  • 7 months later...
BipolarNoMo

8 months since my last update - after a relatively uneventful taper I had a mild depressive episode for about two weeks which calmed down after I got my period last week. I am halfway done with my seroquel taper and almost halfway with Prozac. I feel that the seroquel taper is much more difficult than the Prozac which I am guessing is because the half life of seroquel is so much shorter. I am still exercising everyday even when I'm not feeling great which I think helps tremendously. I am using my sleep patterns as a gauge to which drug I should taper next - if I'm oversleeping and feeling hungover , should probably cut the seroquel. If having trouble sleeping and feeling mildly manic, taper the Prozac.

 

I sometimes get scared about the future. How am I going to deal with withdrawal symptoms if I get pregnant? How will I keep my job if I have a horrendous episode? Things are so uncertain and there's no way to know if I'll ever fully recover. But I think uncertainty is just a part of life.

Date 11/1/2000? 20 mg Paxil

12/1/2007? 0 mg Paxil

9/1/2008? 10 mg paxil 250 mg depakote 50 mg seroquel

3/28/2015 10 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/11/2015 5 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/25/2015 10 mg prozac 250 mg depakote 50 mg seroquel

5/27/2015 10mg prozac 125 mg depakote 50 mg seroquel

6/10/2015 10mg prozac 50 mg seroquel

9/9/2015 10 mg prozac 25 mg seroquel

9/29/2015 10 mg prozac 35 mg seroquel

10/1/2015 10 mg prozac 47 mg seroquel

10/10/2015 10 mg prozac 45 mg seroquel 6/3/2016 6 mg Prozac 25 mg seroquel

Link to post
  • Moderator Emeritus

The uncertainty is hard - I think we all feel that to some degree.  Sounds like you are able to be fairly philosophical about it, which will help some. 

 

It would be great to update your sig. so we can see where you've got to since last October.  You really are doing well, dealing with two drugs.

 

Karen 

2010  Fluoxetine 20mg.  2011  Escitalopram 20mg.  2013 Tapered badly and destabilised CNS.  Effexor 150mg. 

2015 Begin using info at SurvivingAntidepressants.  Cut 10% - bad w/d 2 months, held 1 month. 

Micro-tapering: four weekly 0.4% cuts, hold 4 weeks (struggling with symptoms).

8 month hold.

2017 Micro-tapering: four weekly 1% cuts, hold 4 weeks (symptoms almost non-existent).

2020 Still micro-tapering. Just over 2/3 of the way off effexor. Minimal symptoms, - and sleeping well.
Supplements: Fish oil, vitamin C, iron, oat-straw tea, nettle tea.

My story of healing:ContinuedHealing

***I am not a doctor; please do your own research and be able to take responsibility for decisions you make.*** 

           'The possibility of renewal exists so long as life exists.'  Dr Gabor Mate.

Link to post
  • 4 years later...

I'm finally off all medications. It took 5 years. I took my last dose of seroquel in June. Thanks so much Alto and to those on this board for the support and advice. I'm still experiencing a little insomnia and memory issues but otherwise I'm feeling good. 

Date 11/1/2000? 20 mg Paxil

12/1/2007? 0 mg Paxil

9/1/2008? 10 mg paxil 250 mg depakote 50 mg seroquel

3/28/2015 10 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/11/2015 5 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/25/2015 10 mg prozac 250 mg depakote 50 mg seroquel

5/27/2015 10mg prozac 125 mg depakote 50 mg seroquel

6/10/2015 10mg prozac 50 mg seroquel

9/9/2015 10 mg prozac 25 mg seroquel

9/29/2015 10 mg prozac 35 mg seroquel

10/1/2015 10 mg prozac 47 mg seroquel

10/10/2015 10 mg prozac 45 mg seroquel 6/3/2016 6 mg Prozac 25 mg seroquel

Link to post
  • ChessieCat changed the title to BipolarNoMo: slow and steady

Very happy for you @BipolarNoMo! Thank you for coming back and write your positive update!

July 2015: the 20mg citalopram for great stress begins

After two years I start tapering (slow but without medical advice) and I guess wrongly. First up to 10 mg, then 5 mg and 2 mg (liquid solution) and skips

January 2020 (I don't remember exactly the day): off citalopram (last dose 2mg).

June 2020: adrenal crash. The beginning of Hell on Earth

 

Current supplement:

- saffron pill (20 mg) + vit. E, omega 3 (EPA + DHA) 2g, magnesium bisglycinate 300 mg, iron , vitamin D3 (2500ui) +K7 (50 ui), vitamin C (1g) + quercitin (25 mg), theanine (as necessary).

 

Try meditating / mindfulness, walking every day, CBT/ACT, massage.

 

"E quindi uscimmo a riveder le stelle" ("And so we went out to see the stars again")

(Dante Alighieri, Divine Comedy , Inferno, XXXIV, 139)

Link to post

Absolutely @Leila! Best of luck to you.

Date 11/1/2000? 20 mg Paxil

12/1/2007? 0 mg Paxil

9/1/2008? 10 mg paxil 250 mg depakote 50 mg seroquel

3/28/2015 10 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/11/2015 5 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/25/2015 10 mg prozac 250 mg depakote 50 mg seroquel

5/27/2015 10mg prozac 125 mg depakote 50 mg seroquel

6/10/2015 10mg prozac 50 mg seroquel

9/9/2015 10 mg prozac 25 mg seroquel

9/29/2015 10 mg prozac 35 mg seroquel

10/1/2015 10 mg prozac 47 mg seroquel

10/10/2015 10 mg prozac 45 mg seroquel 6/3/2016 6 mg Prozac 25 mg seroquel

Link to post
  • Administrator

Good to hear! How have your symptoms changed since you stopped in June?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post

Hi @BipolarNoMo,

it is so great to read you are now drug free, this is giving me so much hope! I am very happy for you 🙂

 

2008:  diagnosed with major depressive disorder and generalized anxiety disorder .  Since then:

  • Treated with different SSRI (Paroxetine, Fluoxetine, Escitalopram, a mix of Escitalopram and Venlafaxine, Venlafaxine, Sertraline) and benzodiazepines 
  • One serious anxious/depressive episode, unrelated to changes in medications, culminating in a brief hospitalization
  • Two attempted withdrawal/reduction of drugs, trying to plan pregnancy, under psychiatric supervision. They both ended with a "relapse" diagnosis and the last one  (2019) ended also with a strong increase in medications (Lithium sulfate 124,5mg, Olanzapine 5mg, Sertraline 100mg)

2020: third attempt at withdrawing (planning pregnancy),  still on-going.  

  • February/March: following Psychiatrist recommendation, added 25mg of Setraline, reaching 125mg, then cold turkeyed Olanzapine. After 2/3 days: tinnitus,  'exploding' chest and head, derealization, irritability, mild anxiety. After 4 weeks: lack of concentration, tiredness, fatigue, sadness. Held there for a while and in June/July started to feel better.
  • October 25th: following Psychiatrist recommendation, Lithium  from 124,5mg to 83 mg in 1 day. After 4 days: first physical symptoms (fatigue, headache, nausea, 'exploding' chest and head).  After 2 weeks:  also psychological symptoms (mild anxiety, growing irritability, light head, difficulty to focus and to sleep)  
  • November: Discovered survivingantidepressants.org and on November 30th reinstated 2mg of Lithium , on top of 83mg dose. Immediate relief.
  • December 29th: eliminated the 2 resinstated mg. After 6 days:  general  sense of agitation, irritability, mild anxiety, insomnia, 'exploding head', mitigating after 10/15 days. Next step: mid February, from 83mg to 75mg.

 

Link to post
On 12/14/2020 at 1:18 AM, Altostrata said:

Good to hear! How have your symptoms changed since you stopped in June?

Hi @Altostrata! It's a bit difficult to tell - since June I was diagnosed with hypothyroidism which also has symptoms of depression and fatigue, although I've started taking medication for that and I've been feeling a lot better. Generally I've felt like my emotions have been more steady (i.e. don't get quite as weepy and emotional as often, now it's mostly before my period) and I've been feeling more consistently sharp at work. I've started taking a little bit of melatonin at night maybe once every week or two to help with the insomnia, although I only get insomnia if I'm stressed or before my period. Other times i think I fall asleep within 15 minutes. I've started experiencing dizziness when I lie down, I'm not sure what's causing that. Overall, my symptoms are trending in a positive direction, but I still feel slightly depressed and can't sleep before my period.  After tracking my symptoms on a calendar, I'm starting to see a pattern that makes me think these symptoms are hormonal... I don't know how the withdrawal symptoms fit in, whether or not they exacerbate hormonal imbalances, but that's where I'm at. 

Date 11/1/2000? 20 mg Paxil

12/1/2007? 0 mg Paxil

9/1/2008? 10 mg paxil 250 mg depakote 50 mg seroquel

3/28/2015 10 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/11/2015 5 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/25/2015 10 mg prozac 250 mg depakote 50 mg seroquel

5/27/2015 10mg prozac 125 mg depakote 50 mg seroquel

6/10/2015 10mg prozac 50 mg seroquel

9/9/2015 10 mg prozac 25 mg seroquel

9/29/2015 10 mg prozac 35 mg seroquel

10/1/2015 10 mg prozac 47 mg seroquel

10/10/2015 10 mg prozac 45 mg seroquel 6/3/2016 6 mg Prozac 25 mg seroquel

Link to post
On 12/14/2020 at 5:59 AM, GNz11 said:

Hi @BipolarNoMo,

it is so great to read you are now drug free, this is giving me so much hope! I am very happy for you 🙂

 

I'm so glad this encouraged you! Going through withdrawal is brutal, we're so fortunate to have this community. 

Date 11/1/2000? 20 mg Paxil

12/1/2007? 0 mg Paxil

9/1/2008? 10 mg paxil 250 mg depakote 50 mg seroquel

3/28/2015 10 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/11/2015 5 mg paxil 10 mg prozac 250 mg depakote 50 mg seroquel

4/25/2015 10 mg prozac 250 mg depakote 50 mg seroquel

5/27/2015 10mg prozac 125 mg depakote 50 mg seroquel

6/10/2015 10mg prozac 50 mg seroquel

9/9/2015 10 mg prozac 25 mg seroquel

9/29/2015 10 mg prozac 35 mg seroquel

10/1/2015 10 mg prozac 47 mg seroquel

10/10/2015 10 mg prozac 45 mg seroquel 6/3/2016 6 mg Prozac 25 mg seroquel

Link to post
  • Administrator

Your symptoms could be hormonal. I'd keep the calendar record, it should become clear after a while.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post
  • 3 weeks later...
  • Moderator
manymoretodays

Because you're feeling better, I added our cheerful "here comes the sun" symbol ☼ to the title of your Intro topic, to show you're recovering.

 

Please continue to let us know how you're doing. I hope you will add your story to our Recovery Success Stories eventually!

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016. 

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider. manymoretodays

 

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