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Laura1981

Vote now: Austrian scientific research organisation is looking for patient input on their research

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Laura1981

Click on the little American flag on the right side to view the page in English:

https://teilnehmen.redensiemit.org/index.php?controller=home

 

The Ludwig Boltzmann society is looking for patient input to guide their future research initiatives on mental health. You can vote on future areas of research. One potential area of research is psychotropic drugs.

 

I personally think the area of psychotropic drugs is in desperate need of independent and critical research. This could be our chance.

 

From their website: 

 

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NOW IS THE TIME TO MAKE YOUR VOICE HEARD! — THE VOTING
As part of an unprecedented crowdsourcing project, the Ludwig Boltzmann Gesellschaft has compiled possible questions for use in the investigation of mental illnesses. 
 
For those of you who have submitted a contribution - Thank you very much! You have significantly contributed towards generating new research questions in the field of mental illnesses! 7 topic clusters has been summarized and now you can vote. 
 
Now you can decide which of these will be forwarded to the research teams.
HERE'S HOW TO VOTE:
You must be registered and logged in to vote.(You can vote even if you have not submitted an article.)
From the almost 400 questions submitted, a pre-selection has been made around 7 clusters (topics). Select 2 of these clusters by 13 October, which you feel are most important and should be forwarded to the research teams.
 
 
 
 Mental resilience
How can mental resistance (resilience) be strengthened in children and adults to keep them healthy even in situations of heavy strain?
 
 More precise diagnoses
How can the diagnosis of mental illnesses be improved to prevent misdiagnoses?
 
 Psychosomatics
How are the body and psyche connected? How does this relationship manifest itself in the case of mental illness?
 
Psychotropic drugs
How can the use of psychotropic drugs be improved?
Psychotropic drugs are an indispensable part of treatment during some stages of certain mental illnesses. Many people, however, take a critical view of psychotropic drugs - on account of their side effects and the risk of dependency. What is often missing is the right withdrawal strategy. Withdrawal symptoms, including panic attacks, insomnia and vomiting, make life difficult for the recovering patient - even long after the drugs have been discontinued. What helps in this phase?
Parents whose children have had psychotropic drugs prescribed to them are particularly anxious. Are psychotropic drugs prescribed carelessly?
Why have the effects of treatment with multiple medications not been investigated more thoroughly? Anyone taking antidepressants and neuroleptics simultaneously, for instance, must reckon with such interactions. How and at what point can patients discontinue treatment with psychotropic drugs?
Alternatives to treatment with psychotropic drugs are either not sufficiently available or lacking altogether. Yet the need is enormous!
 
 New options in therapy
What new and alternative therapies can replace/supplement current treatment methods?
 
 The structure of care
What structures does society need to create to ensure that the mentally ill receive the best support possible throughout their recovery process?
 
 Destigmatisation of the mentally ill
What does it mean to be stigmatised to a person with a mental illness? How does the stigma affect the course of the disease?
 

 

 

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Laura1981

Just one addition:

 

The usability of the survey is a bit weird. After you register, you are logged in. You go to this page, click continue.

 

Then you will see the text "Here you see the voting up to now." and some check boxes. That's where you actually vote, even though it doesn't look like it. Check the checkbox and press submit. 

 

Done, you voted. 

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Thanks Laura, i did!

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Tilly

Thanks, Laura  :)

 

Registered & awaiting confirmation email so I can vote.

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Laura1981

Hi Tilly,

 

thanks!!!

 

I didn't get a confirmation message... I could vote right away. Very strange usability... But I guess they will do better science than web-surveys. 

 

Cheers, 

 

Laura

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Tilly

Hi Tilly,

 

thanks!!!

 

I didn't get a confirmation message... I could vote right away. Very strange usability... But I guess they will do better science than web-surveys. 

 

Cheers, 

 

Laura

Here's hoping!!! ;) 

 

I will stop by the site again tomorrow if no confirmation is received by then. I couldn't click on the voting categories either time I tried without registering? Will try again tomorrow  :)

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Laura1981

Did it work Tilly? If the website is broken, I'd write to the organisers. 

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Up to today, the topic psychotropic drugs has the most votings. I would be happy, if anyone of you would vote. It is important, because there is less to none talking about harm of psychotropic drugs in german speaking areas. Danke! :)

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The community of “Tell us!” has taken a decision: Psychotropic drugs, mental resilience and health care structures are the three most important issues for future research in the field of mental health.

Vienna, 21 October 2015 – After a successful contribution phase of the initiative “Tell us!”, which gained nearly 400 submissions from all over the world and pertained to the future research of mental illnesses, the community has now voted for the most important questions: The cluster psychotropic drugs got 22 per cent of all votes, followed by mental resilience with 19 per cent, and then the health care structure cluster, which gained 17 per cent of the vote.

 

In particular, participants voted for more research concerning treatment with psychotropic drugs. The research of alternative treatments, interactions and side effects, or long-term consequences, are fields which are considered as not adequately addressed by the research community.

 

Building on the online vote, an international jury of nine international experts will evaluate the results.

 

https://teilnehmen.redensiemit.org/index.php?controller=news

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Laura1981

Hurray!!! This shows we can make a difference! 

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