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☼ Junglechicken

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manny03
3 minutes ago, Junglechicken said:

Have got all the symptoms of cystitis, but the dip stick tested negative - god I hate that.

 

Fortunately have GP appt first thing tomorrow.

 

I had these symptoms In Mid October for two weeks straight. Then, they went away. I thought I out of it, then I got hit with my G.I. symptoms that are still bugging me GWRR! 

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Junglechicken
1 minute ago, manny03 said:

 

I had these symptoms In Mid October for two weeks straight. Then, they went away. I thought I out of it, then I got hit with my G.I. symptoms that are still bugging me GWRR! 

 

How did you cope with the pain and discomfort for 2 weeks?!

 

Was it cystitis or "something else"?

 

 

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manny03
Just now, Junglechicken said:

 

How did you cope with the pain and discomfort for 2 weeks?!

 

Was it cystitis or "something else"?

 

 

 

I drank a bunch of water, and cranberry juice. It would go away after two days. Then, it would come back. I would do this routine until it finally went away. I experienced, three weeks after my initial C/T in mid July. So, it seems it was a switch of withdrawal symptoms. 

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Junglechicken
15 hours ago, manny03 said:

 

I drank a bunch of water, and cranberry juice. It would go away after two days. Then, it would come back. I would do this routine until it finally went away. I experienced, three weeks after my initial C/T in mid July. So, it seems it was a switch of withdrawal symptoms. 

 

Saw my GP this morning.

 

She tested my urine sample - there was blood present in it and NO infection.

 

She said the blood was likely residual from my period, and to come back in a week if the symptoms were still there.  In which case further investigation would be required, but no alarm bells were ringing for her.

 

I explained that I had had a VERY heavy period which started on the 1st Jan, lasting 4-5 days.  On the back of which these cystitis symptoms started - painful lower abdominal area, urgency to pee, lower back pain etc.,

 

She said that an enlarged/inflamed womb can irritate the bladder causing symptoms similar to cystitis.  I explained that I had had spates of cystitis like symptoms in the past.

 

i then mentioned peri-meno, and that it was frustrating because my FSH bloodwork always came back as “normal”.

 

She then said that it would be worth having the “Mirena coil” fitted, to reduce periods that are very heavy as well as taking oestrogen HRT.

 

i have read mixed reviews re: the Mirena coil, so will have to see.

 

Have started taking the cystitis sachets today, but am still in pain.

 

i also mentioned the burning pain I had had on my right side after those site visits for work.  I explained that they had now subsided.

 

she said that it sounded like nerve pain, and was  “transient” symptoms.  Again, if they continued she would need to investigate.

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manny03
13 minutes ago, Junglechicken said:

 

i also mentioned the burning pain I had had on my right side after those site visits for work.  I explained that they had now subsided.

 

she said that it sounded like nerve pain, and was  “transient” symptoms.  Again, if they continued she would need to investigate.

 

Since I'm a dude, I can't speak regarding menstrual cycle. 

 

Though, your GP described to a Tee my burning pain. Though, that's subsided like yours. Though, my other GI symptoms that I still have are transient. If they were constant, perhaps something would be off. Though, if she mentions this more likely nerve pain. Perhaps that's what's occurring with me, and me being barely six months out of taking my medication. That's the probable cause. Though, my GP says this is more like my anxiety causing these issues, hence wanting me to go back on them. She did her tests, Breath tests and nothing was found, abdominal ultrasound done, and nothing was found. Blood work was done, nothing was found. Several years ago, I had transient pains on one of my testicles, they did ultrasound, at first they thought they had found calcification, though they repeated the test, and nothing was there. So, they chalked my symptoms to anxiety.  In my case, I'm hoping its just withdrawals, though if its my anxiety...I don't want to go back on the meds. :( 

 

 

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Junglechicken
4 minutes ago, manny03 said:

 

Since I'm a dude, I can't speak regarding menstrual cycle. 

 

Though, your GP described to a Tee my burning pain. Though, that's subsided like yours. Though, my other GI symptoms that I still have are transient. If they were constant, perhaps something would be off. Though, if she mentions this more likely nerve pain. Perhaps that's what's occurring with me, and me being barely six months out of taking my medication. That's the probable cause. Though, my GP says this is more like my anxiety causing these issues, hence wanting me to go back on them. She did her tests, Breath tests and nothing was found, abdominal ultrasound done, and nothing was found. Blood work was done, nothing was found. Several years ago, I had transient pains on one of my testicles, they did ultrasound, at first they thought they had found calcification, though they repeated the test, and nothing was there. So, they chalked my symptoms to anxiety.  In my case, I'm hoping its just withdrawals, though if its my anxiety...I don't want to go back on the meds. :( 

 

 

 

I had wondered Manny, lol, when you mentioned cystitis! This is something women tend to suffer from due to the way we are plumbed!

 

Anyway, given that you have been given the "all clear" for all your symptoms then you have peace of mind that they are being caused by an aggravated CNS  due to CT of ADs.

 

My symptoms are a combination of WD, stress and middle age (peri-menopause), the "perfect storm" unfortunately.

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manny03
6 minutes ago, Junglechicken said:

 

I had wondered Manny, lol, when you mentioned cystitis! This is something women tend to suffer from due to the way we are plumbed!

 

Anyway, given that you have been given the "all clear" for all your symptoms then you have peace of mind that they are being caused by an aggravated CNS  due to CT of ADs.

 

My symptoms are a combination of WD, stress and middle age (peri-menopause), the "perfect storm" unfortunately.

 

hahahahaha! I know. Though, from my experience WD does cause UTI like symptoms. 

 

With my G.I. symptoms, me being a Hypochondriac I have a fear that they missed something. Now, I'm contemplating on doing more evasive tests like endoscopy and colonoscopy to bring some peace of mind. Though, I know my GP is going to say nope. This is just my anxiety.. Though, many here have said if the symptoms began to occur after discontinuation of medication, then that's the probable cause, no some crazy cancer like I'm fearing. 

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Junglechicken
3 hours ago, manny03 said:

 

hahahahaha! I know. Though, from my experience WD does cause UTI like symptoms. 

 

With my G.I. symptoms, me being a Hypochondriac I have a fear that they missed something. Now, I'm contemplating on doing more evasive tests like endoscopy and colonoscopy to bring some peace of mind. Though, I know my GP is going to say nope. This is just my anxiety.. Though, many here have said if the symptoms began to occur after discontinuation of medication, then that's the probable cause, no some crazy cancer like I'm fearing. 

 

Have you considered having a comprehensive stool analysis done?

 

There are "markers" they look for which would indicate cancers in the bowl.

 

You can get this done through a Naturopath or talk to your MD re: test kits which should be free.  In the UK they will test for bowl cancer for free if you're over 50.  

 

 

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manny03
1 minute ago, Junglechicken said:

 

Have you considered having a comprehensive stool analysis done?

 

There are "markers" they look for which would indicate cancers in the bowl.

 

You can get this done through a Naturopath or talk to your MD re: test kits which should be free.  In the UK they will test for bowl cancer for free if you're over 50.  

 

 

 

I don't have a good insurance to let me do such things. I'm in the U.S. and our health insurance is a total joke. 

 

I'm barely 33, so I highly doubt I have that. Plus as far as I know bowel cancer doesn't cause burping which is one of my symptoms or head tremors lol! 

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Junglechicken
1 minute ago, manny03 said:

 

I don't have a good insurance to let me do such things. I'm in the U.S. and our health insurance is a total joke. 

 

I'm barely 33, so I highly doubt I have that. Plus as far as I know bowel cancer doesn't cause burping which is one of my symptoms or head tremors lol! 

 

Ok, no problem, I thought you were concerned about cancer hence wanting to explore endoscopy and colonoscopy.

 

Comp stool analysis also shows inflammation in the bowl which is likely your enemy.

 

This would mean a diet change.

 

You don't need insurance to buy a test kit.  

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manny03
1 minute ago, Junglechicken said:

 

Ok, no problem, I thought you were concerned about cancer hence wanting to explore endoscopy and colonoscopy.

 

Comp stool analysis also shows inflammation in the bowl which is likely your enemy.

 

This would mean a diet change.

 

You don't need insurance to buy a test kit.  

 

You're right about the cancer. Though, that's my health anxiety talking there. 

 

Though, like I've mentioned before the present symptoms began to occur post stopping the medication. So, I highly doubt this is something else cropping aside my withdrawals. 

 

 

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Junglechicken
1 minute ago, manny03 said:

 

You're right about the cancer. Though, that's my health anxiety talking there. 

 

Though, like I've mentioned before the present symptoms began to occur post stopping the medication. So, I highly doubt this is something else cropping aside my withdrawals. 

 

 

 

Yes, and WD can precipitate gut inflammation due to serotonin imbalance.

 

The gut is no longer receiving serotonin from the AD, and that causes the the many bowel issues so many of us suffer from.

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manny03
1 minute ago, Junglechicken said:

 

Yes, and WD can precipitate gut inflammation due to serotonin imbalance.

 

The gut is no longer receiving serotonin from the AD, and that causes the the many bowel issues so many of us suffer from.

 

Try to tell that to my psychologist, and he'll brush you off and say go and take more pills. 

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Junglechicken
1 minute ago, manny03 said:

 

Try to tell that to my psychologist, and he'll brush you off and say go and take more pills. 

 

Find a psychologist who "gets it" (WD related gut issues).

 

Easier said than done I know.

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manny03
3 minutes ago, Junglechicken said:

 

Find a psychologist who "gets it" (WD related gut issues).

 

Easier said than done I know.

 

That's been my odyssey at the moment. 

 

Though, I do have to acknowledge that my G.I. symptoms have been improving, though the tale tell signs I'm not out of it yet since I still have tremors or continue to break out with weird pimples which never occurred until I stop my med. I'm hoping that within a year or two I could say these symptoms have faded away. 

 

 

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Junglechicken

I have the weird pimples (acne) too.....although I think these are because of hormonal imbalances.

 

Never had acne in my life until my late 30s.

 

3 possible causes:

 

1) AD meds

2) Hormonal changes due to approaching mid-life

3) Marathon training 

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manny03

 

3 minutes ago, Junglechicken said:

I have the weird pimples (acne) too.....although I think these are because of hormonal imbalances.

 

Never had acne in my life until my late 30s.

 

3 possible causes:

 

1) AD meds

2) Hormonal changes due to approaching mid-life

3) Marathon training 

 

Glad to see I'm not the only with the weird pimples. I had my breakouts in my late teens, though now at my early 30s. My mom said I could have hormonal imbalance. I highly doubt that since I had blood work done and everything seemed fine. The only culprit is the AD wrecking havoc after I stopped taking it, and my body trying to find itself.  

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Junglechicken
1 minute ago, manny03 said:

 

 

Glad to see I'm not the only with the weird pimples. I had my breakouts in my late teens, though now at my early 30s. My mom said I could have hormonal imbalance. I highly doubt that since I had blood work done and everything seemed fine. The only culprit is the AD wrecking havoc after I stopped taking it, and my body trying to find itself.  

 

No you're not the only one dealing with "weird" symptoms.

 

It's very disconcerting, and doctors don't offer a whole lot of support either accusing us of health anxiety (which is partly true) because our bodies are responding to the WD of an AD.....surprise, surprise!

 

Catch 22?!

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manny03
1 minute ago, Junglechicken said:

 

No you're not the only one dealing with "weird" symptoms.

 

It's very disconcerting, and doctors don't offer a whole lot of support either accusing us of health anxiety (which is partly true) because our bodies are responding to the WD of an AD.....surprise, surprise!

 

Catch 22?!

 

It's a vicious cycle. In my case, they're wanting to start taking meds again. I'm like no! 

 

I rather have the constant headaches than the G.I. symptoms though I'd be freaking out that I have brain cancer. Jesus. 

 

 

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Junglechicken
2 minutes ago, manny03 said:

 

It's a vicious cycle. In my case, they're wanting to start taking meds again. I'm like no! 

 

I rather have the constant headaches than the G.I. symptoms though I'd be freaking out that I have brain cancer. Jesus. 

 

 

 

And this is where the mindfulness (CBT) comes into its own.

 

It's that next stage in the healing process, and I think the hardest.

 

Talking yourself down from catastrophic thinking.

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manny03
1 minute ago, Junglechicken said:

 

And this is where the mindfulness (CBT) comes into its own.

 

It's that next stage in the healing process, and I think the hardest.

 

Talking yourself down from catastrophic thinking.

 

That's why I"m wanting to find a new psychologist who could help me with this, since the one I'm currently at is of no help. 

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Junglechicken
1 minute ago, manny03 said:

 

That's why I"m wanting to find a new psychologist who could help me with this, since the one I'm currently at is of no help. 

 

Keep us posted on your search Manny.

 

Can you ask here on SA for recommendations in your state?

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manny03
Just now, Junglechicken said:

 

Keep us posted on your search Manny.

 

Can you ask here on SA for recommendations in your state?

I've checked S.A.'s recommendations though they don't take my insurance which is a pity. 

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Junglechicken
1 minute ago, manny03 said:

I've checked S.A.'s recommendations though they don't take my insurance which is a pity. 

 

Ughh, that sucks.

 

Have you tried out of state Skype consultations instead?

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manny03
Just now, Junglechicken said:

 

Ughh, that sucks.

 

Have you tried out of state Skype consultations instead?

I haven't since here in the U.S. they charge for every little thing. 

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Junglechicken
Just now, manny03 said:

I haven't since here in the U.S. they charge for every little thing. 

 

Understood, don't give up.

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Junglechicken

Still in a lot of pain "down there".

 

Feels like a cross between cystitis and period pain.

 

Tummy ache in lower abdominal area, stinging sensations, lower back pain.

 

Question is, can I override my inner ape brain?

 

Dip test showed blood and no infection??

 

Will have to make an appt with GP for after work tomorrow.

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Junglechicken

So having consulted Dr Google:

 

Endometriosis

Interstitial cystitis

 

Are the front runners in a possible diagnosis.

 

Have taken painkillers.

 

VERY painful, whatever this is and a "NEW" symptom.

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Junglechicken
On 1/13/2019 at 2:09 PM, Junglechicken said:

So having consulted Dr Google:

 

Endometriosis

Interstitial cystitis

 

Are the front runners in a possible diagnosis.

 

Have taken painkillers.

 

VERY painful, whatever this is and a "NEW" symptom.

 

So folks,

 

My catastrophic self-diagnosis was WRONG!

 

GP confirmed all peri-menopause symptoms.

 

Was in excruciating pain over the weekend.

 

Cystitis-like symptoms are being caused by inflamed utereus irritating my bladder.

 

Gut issues being caused by constipation.

 

Next step HRT.

 

Any of the ladies have views on it?

 

Job demanding, but going well.

 

 

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Scorpio
6 minutes ago, Junglechicken said:

 

So folks,

 

My catastrophic self-diagnosis was WRONG!

 

GP confirmed all peri-menopause symptoms.

 

Was in excruciating pain over the weekend.

 

Cystitis-like symptoms are being caused by inflamed utereus irritating my bladder.

 

Gut issues being caused by constipation.

 

Next step HRT.

 

Any of the ladies have views on it?

 

Job demanding, but going well.

 

 

Hi jc

 

sorry I haven’t written but been going through w/d nasties too. Sorry you are feeling so unwell but good the doctor has diagnosed and now you can address it. I’ve been on hrt for years and was the best thing I ever did. I was bleeding continuously and in great pain at a relatively young age and then diagnosed with peri menopause. The hrt cleared everything up within a couple of weeks. Eventually had full hysterectomy so now inky take the oestrogen variety but still good and I would fight anyone who tries to stop me taking it! 

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Junglechicken
2 minutes ago, Scorpio said:

Hi jc

 

sorry I haven’t written but been going through w/d nasties too. Sorry you are feeling so unwell but good the doctor has diagnosed and now you can address it. I’ve been on hrt for years and was the best thing I ever did. I was bleeding continuously and in great pain at a relatively young age and then diagnosed with peri menopause. The hrt cleared everything up within a couple of weeks. Eventually had full hysterectomy so now inky take the oestrogen variety but still good and I would fight anyone who tries to stop me taking it! 

 

Hi Scorpio,

 

Have missed you, and so sorry you're still in such a bad way.

 

Was it ever an option for you to go the "natural" route (i.e herbal remedies)?

 

We battle on....

 

Hugs,

JC xxx

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Scorpio

Hi jc

 

it was a long time ago and I didn’t even consider the natural route at that time, then the hrt changed my life so quickly I never needed to look further. 

 

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Junglechicken
9 hours ago, Scorpio said:

Hi jc

 

it was a long time ago and I didn’t even consider the natural route at that time, then the hrt changed my life so quickly I never needed to look further. 

 

 

I had wondered Scorpio,

 

All the “alternative” herbal stuff has only been around in the last 20yrs?

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