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HarleyW: I am a Psychologist that never heard of this until now


HarleyW

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I have a degree in Counseling psychology and my expertise was in Psychopathology ( Bi polar, personality disorders, organic brain damage, neuropsych assessment etc.). In all my practice and years of study I never heard about prolonged discontinuation syndrome or met anyone with it but it appears that is what I have (from reading everyone else's experience). All I learned in College was that we really don't know and are just getting data in from long term use of anti depressants AND there are a small percentage of anecdotal stories that suggest long term affects. Other professors would admit they are over prescribed and we need to be careful.  I did know about acute withdrawal. Well documented, which is why tapering is always best. 

 

I have seen anti depressants save lives, including my own. Depression runs in my family pretty heavily. However, I have always felt they were way over prescribed!!!

 

The medical stance is supposed to be cost/benefit.

 

Well it appears I am one of the costs as many of us on here are.

 

I was DX with Cyclothymia and took a drug (I cant remember now what it was , brain fog) that reacted badly.  I was feeling suicidal, irritable etc. So instead of returning to the psych doc who was another 2 months out...I went back to my GP.

 

I started Prozac in 2005 20 then 40mg which helped take the edge off.

 

I was on 40 mg until last year when I switched to Viiibryd 40mg.  Supposed to be better with less side effects. I was also taking oral Dilaudid for chronic neck pain from 4, separate, rear end accidents. None my fault.  

 

I started having trouble sleeping last year, which turned into massive attacks in the middle of the night with High Blood Pressure, turning yellow and feeling like I was going to die.  I also started having minor panic attacks every time I took Dilaudid. I told my doctor and they all insisted it wasn't the meds, they all have relaxing effects (they said).  Finally after 8 trips to the ER and nearly dying, I did some research and I diagnosed myself with Serotonin syndrome. My doctors quickly agreed and I immediately went off all drugs. I expected to only have a few weeks of opiate and Anti depressant withdrawals.  

 

I started going to the gym and working out hard. I started only sleeping 4 hours per night (exactly timed, I have a CPAP that measures my sleep time) then going to the gym after 3 months became intolerable. I thought I was going to die.

 

I have helped and treated many folks with panic disorder but never had it myself. Which is why its next to impossible to know until I started being specific abut my symptoms and wrote them down.

 

I then diagnosed myself with a Panic Disorder as I met all the criteria and it dawned on me as I wrote it out. Of all things I thought I might possibly get (after doing many assessments on myself over the years) a panic disorder was the last on the list.

 

My doctor agreed again on my diagnosis (nice I had to discover all this my own eh?).  I have been taking 1 mg TID  (three times per day) of Xanax which helped me sleep more and manage the severe attacks. (so debilitating I was depersonalizing, curled up into a fetal position and felt a constant "scream" in my head."

 

I have dizziness, trouble sleeping, digestive issues, sensitivity to foods (especially sugar and caffeine) , severe panic attacks, brain fog, disorientation in space. Oddly enough I no longer have depression.

 

My doctor and all the docs I have seen since avoid the topic of drug side effects (likely fear of lawsuit) but none disagree that somehow I had the "perfect storm" that created the conditions I have now.

 

I have tried docs, naturopaths , energy healers etc. but it all still comes in waves and windows! 

 

After reading this forum and other sites... I am concluding that it just takes time and to do my best to limit psychoactive chemicals, eat light and healthy foods and know it will pass one day.

 

My brain fog is heavy this week so apologies if I didn't follow some of the Forum Guidelines. Honestly they won't stick with me right now (bad wave).  Next window I can clean up any mess.  :) thank you for this forum.  I have been lurking for some time but felt a need to connect with others experiencing the same thing.

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Welcome HarleyW

So glad you found sa

 

I then diagnosed myself with a Panic Disorder as I met all the criteria and it dawned on me as I wrote it out. Of all things I thought I might possibly get (after doing many assessments on myself over the years) a panic disorder was the last on the list.

 

My doctor agreed again on my diagnosis (nice I had to discover all this my own eh?).  I have been taking 1 mg TID  (three times per day) of Xanax which helped me sleep more and manage the severe attacks. (so debilitating I was depersonalizing, curled up into a fetal position and felt a constant "scream" in my head."

 

I have dizziness, trouble sleeping, digestive issues, sensitivity to foods (especially sugar and caffeine) , severe panic attacks, brain fog, disorientation in space. Oddly enough I no longer have depression.

 

My doctor and all the docs I have seen since avoid the topic of drug side effects (likely fear of lawsuit) but none disagree that somehow I had the "perfect storm" that created the conditions I have now.

 

I have tried docs, naturopaths , energy healers etc. but it all still comes in waves and windows!

 

 

May i ask why you think you have Panic Disorder ...ok ok cos you tick all the dsm boxes but how can you diagnose a brain that has been altered by brain altering chemicals ...you CT of prozac right?? im making an assumption ...but even the drug companies say dont do that..... have you factored in wdl it can last for many months and years ....and what combination of drugs makes you think you have serotonin syndrome.

 

Have you considered the fact that you have protracted ssri withdrawal ? ie its not you its the drug (wdl).

Im sure if you think you have a disorder a doc will be happy to agree as it will allow him to avoid responsibility.

 

You might like to consider this excellent list of wdl symptoms

Dr. Joseph Glenmullen's withdrawal symptom checklist (PDF)
 

in wdl i also was at times lying in a fetal position crying out  wanting to die...this is a classic wdl symptom.

Any 'crying spells' ? Have you heard of akathisia?

 

Here is an excellent piece well worth reading ..

Brain remodeling

 

Welcome, you are not alone.

You might like to put up a drug sig so people can see at a glance your context.

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

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Welcome HarleyW

So glad you found sa

 

I then diagnosed myself with a Panic Disorder as I met all the criteria and it dawned on me as I wrote it out. Of all things I thought I might possibly get (after doing many assessments on myself over the years) a panic disorder was the last on the list.

 

My doctor agreed again on my diagnosis (nice I had to discover all this my own eh?).  I have been taking 1 mg TID  (three times per day) of Xanax which helped me sleep more and manage the severe attacks. (so debilitating I was depersonalizing, curled up into a fetal position and felt a constant "scream" in my head."

 

I have dizziness, trouble sleeping, digestive issues, sensitivity to foods (especially sugar and caffeine) , severe panic attacks, brain fog, disorientation in space. Oddly enough I no longer have depression.

 

My doctor and all the docs I have seen since avoid the topic of drug side effects (likely fear of lawsuit) but none disagree that somehow I had the "perfect storm" that created the conditions I have now.

 

I have tried docs, naturopaths , energy healers etc. but it all still comes in waves and windows!

 

 

May i ask why you think you have Panic Disorder ...ok ok cos you tick all the dsm boxes but how can you diagnose a brain that has been altered by brain altering chemicals ...you CT of prozac right?? im making an assumption ...but even the drug companies say dont do that..... have you factored in wdl it can last for many months and years ....and what combination of drugs makes you think you have serotonin syndrome.

 

Have you considered the fact that you have protracted ssri withdrawal ? ie its not you its the drug (wdl).

Im sure if you think you have a disorder a doc will be happy to agree as it will allow him to avoid responsibility.

 

You might like to consider this excellent list of wdl symptoms

Dr. Joseph Glenmullen's withdrawal symptom checklist (PDF)

 

in wdl i also was at times lying in a fetal position crying out  wanting to die...this is a classic wdl symptom.

Any 'crying spells' ? Have you heard of akathisia?

 

Here is an excellent piece well worth reading ..

Brain remodeling

 

Welcome, you are not alone.

You might like to put up a drug sig so people can see at a glance your context.

Yes I do have Protracted SSRI withdrawal.  I have also heard it called Prolonged Discontinuation syndrome (mentioned above). I was also taking trazadone (didn't mention) and I definitely had several serotonin syndrome attacks. My panic attacks are most definitely from suddenly stopping the SSRI's. The panic attacks do stop or get slightly better after taking Xanax.  However, after reading over the last several months I think I have improved enough to start cutting down on the Xanax. Yes I had crying spells and minor akathisia.  The panic attacks are getting easier to manage. Also some anhedonia that is getting better. I am still in hell but doing better than I was 6 moths ago. When my fog passes I can probably do better at creating a signature and being more clear.  :) 

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Harley, keep pushing through and doing what you need to do.

My drug history very similar to yours in that it was nearly a decade of use.

Mid 2006-Early 2013  Celexa 40 MG, Xanax .50, Trazadone 50 MG - No problems with side effects

Very fast-few weeks taper in Early 2013 off all medication.

Crashed summer 2013 Went back on all meds same dosage (different brand of Celexa) Sept 2013. 

 

Sexual Side Effects (which I never had before) begun December 2013.  Off Celexa February 2014.  Xanax remained while Trazadone done in August 2014.

Continue to experience complete PSSD to this day with sadly no signs of improvement yet.

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  • Moderator Emeritus

Hi Harley,

 

Welcome to SA.  When you are able to instructions for creating your signature:  Withdrawal History in Signature OR Complete your Signature from Phone or Tablet

 

Wishing you all the best, CC

Please DO NOT TAG me - thank you

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions. 

  MISSION ACCOMPLISHED:    (6 year taper)      0mg Pristiq      on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

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Hi Harley, 

 

 

I have a degree in Counseling psychology and my expertise was in Psychopathology ( Bi polar, personality disorders, organic brain damage, neuropsych assessment etc.). In all my practice and years of study I never heard about prolonged discontinuation syndrome or met anyone with it but it appears that is what I have (from reading everyone else's experience). All I learned in College was that we really don't know and are just getting data in from long term use of anti depressants AND there are a small percentage of anecdotal stories that suggest long term affects. Other professors would admit they are over prescribed and we need to be careful.  I did know about acute withdrawal. Well documented, which is why tapering is always best. 

 

 

 

Interesting background. So they tell you there is no data documenting the effects of long term use of AD's. That seems fair. They should start collecting data though. Hopefully they are. 

 

 

After reading this forum and other sites... I am concluding that it just takes time and to do my best to limit psychoactive chemicals, eat light and healthy foods and know it will pass one day.

 

 

That seems to be the best attitude to me. I concluded the same thing after reading posts on this site. 

 

Good luck!

 

Henk

Aug 2014-Aug2015: 2 to 4 mg Haldol (quit completely Aug2015)

Aug 2014-Oct2014: 30 mg flurazepam (switched to Lormetazepam)

Nov-2014 - November 2015: 2 mg Lormetazepam (currently tapering, see below). 

December 2015: 1.5 mg Lormetazepam (quit completely Jan 2016 after taper) 

April 2015 - present: 30 mg Mirtazipine (not yet tapering)

 

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  • Administrator

Welcome, Harley.
 
You were turning yellow and your doctors didn't notice? For future reference: the Drug Interactions Checker http://www.drugs.com/drug_interactions.html

 

I think now you can see the extent of medicine's "expertise" about psychiatric drugs and disorders. We don't know what we don't know -- anosognosia.
 
When did you go off Dilaudid and Viibryd? What drugs are you taking now? When did you go off trazodone? How long have you been taking Xanax regularly?

 

What is your daily symptom pattern?

 

It's a good idea to exclude sugar, caffeine, and artificial flavorings from your food, eat simple, fresh food and lots of green leafy vegetables. This will help your body repair the neurological dysregulation from the adverse drug effects and then going off too fast.

 

You have "panic disorder" only in the sense that your destabilized nervous system is producing symptoms that resemble what psychiatry calls "panic disorder." See Neuro emotions

 

What is withdrawal syndrome?

 

The long-term effects are still being studied -- really? From what I can tell, psychiatry isn't very interested in this topic. There's still a complacent assumption that the drugs are seldom harmful.

 

I've collected a lot of papers in the From journals and scientific sources forum, you might wish to browse it regarding tachyphylaxis, tardive dysphoria, iatrogenic "apathy syndrome", post-SSRI sexual dysfunction (PSSD), and the like.

 

There are many papers about withdrawal syndrome, a hot topic in the early 2000s when psychiatry was shocked shocked shocked that SSRIs were not all they were promised to be, but this didn't make much of a dent given the flood of pharma propaganda released to counter it. And doctors still don't have a clue about tapering.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Hi Harley and welcome to SA... a lot of soldiers here carrying on.  There have been a couple withdrawal law suits dealing with ssri drugs but not many since wd was added to the list of problems on the label.. many of us have been hurt by these drugs long before the labels were changed and still struggle yet here we are.  At least you could tolerate the benzo that is something that helped you I would not be too fast to get off it if I were you... there is a special place here for people dealing with benzo wd take a look at that page. 

It may be that I am quick to stick to things anything that helps cause nothing helped me benzos when tried went paradoxal on me... but had they worked I may be on them still... it is a long time to suffer... wd can take years. 

The other thing many fail to realize is the wd from ads is a long term thing and if the benzo is helping you survive the ad wd stopping it espeically stopping it too fast while it is masking the ad wd could bring on another perfect storm you do not need. Please seek advice about this from those here who know.  We can only do best guessing and it takes time to get to know a person and the entire situation on a site like this but those in the know here will know the right questions to ask you so they can advise you with the best guess based on ...so many who came before you.. 

please take advantage of the expertise you will find here I wish you peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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you may want to take a look at Serotonin Syndrome the understanding of it has changed and a new way of evaluating people shows a lot of symptoms that did not use to be in the criteria I am sure it is here some place cause I put it here years ago when I was sure I had it and no doctor thought I did.

peace 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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  • Moderator Emeritus

Hello Harley and welcome to s/a,

 

It must be fascinating to be your own case-study, though I bet you wish you weren't :wacko:.  I'm glad you've been having a read around the site.  I found this place to be a life-saver when I first came here. 

 

Panic attacks - yuck.  I had my first one when I started getting adverse reactions to Effexor and continued to have them while tapering, but they have lessened off greatly.  Yours should ease too, once you stabilise somewhat.  When you are stable we recommend tapering by no more than 10% of your current dose.  

 

Would this be the basic summary of your drugs?  It would be useful to know dates for all the changes, and when you did that CT (once that brain fog clears).

 

2005-2014 Prozac, last dose 40mg

2014 - Switch to Viiibryd 40mg, then CT.

Start 3mg xanax per day.

 

If you are still getting w/d symptoms then it might pay to wait a bit more before tapering.  It makes things better down the track.  Also, if you are still doing intense exercise you might find that makes symptoms worse.  Gentle exercise is better for not activating your CNS.  Fish oil and magnesium are helpful to many people. 

 

Let us know how you are getting on.  This thread will be your journal to record your progress, and ask any questions you have.

 

Best wishes,

KarenB

2010  Fluoxetine 20mg.  2011  Escitalopram 20mg.  2013 Tapered badly and destabilised CNS.  Effexor 150mg. 

2015 Begin using info at SurvivingAntidepressants.  Cut 10% - bad w/d 2 months, held 1 month. 

Micro-tapering: four weekly 0.4% cuts, hold 4 weeks (struggling with symptoms).

8 month hold.

2017 Micro-tapering: four weekly 1% cuts, hold 4 weeks (symptoms almost non-existent).

2020 Still micro-tapering. Just over 2/3 of the way off effexor. Minimal symptoms, - and sleeping well.
Supplements: Fish oil, vitamin C, iron, oat-straw tea, nettle tea.

My story of healing:ContinuedHealing

***I am not a doctor; please do your own research and be able to take responsibility for decisions you make.*** 

           'The possibility of renewal exists so long as life exists.'  Dr Gabor Mate.

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oops Harley i missed the fact you diagnosed yourself with protracted wdl syndrome. You got that one spot on.

 

Hey just wanted to rec a book 'Anatomy of an epidemic' by R whitaker.

pg 297 he talks about the benzo trap and looks at the xanax study.

 

Wishing you strength.

 

Whitaker has a whole chapter on 'the bipolar boom' be interesting to know if you have found similar findings in your work.

Thought for the day: Lets stand up, and let’s speak out , together. G Olsen

We have until the 14th. Feb 2018. 

URGENT REQUEST Please consider submitting  for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing.

http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

Please tell them about your problems taking and withdrawing from antidepressants and/or benzos.

Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you

Recovering paxil addict

None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. 

This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! 

  "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped."  Dr Mosher. Me too! 

Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015

I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015

Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017

 

 

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Hi Harley, 

 

Sorry to hear you're having a bad time. Take care of yourself and support your body while it heals. We all only knew what we'd been told when we took these drugs and none of us expected to end up in this position dealing with symptoms usually far in excess of the depressions or anxieties we began with so whether you had training or not doesn't matter in the end we all got sucker punched by circumstances we weren't aware of, you have found support now and anecdotal as it might be the information here on this forum is very helpful to recovery and the people here wonderfully supportive.  

2000: Use of venlafaxine for moderate depression for two years. Tapered off with no major problems. 

2010: Venlafaxine 5 years, doses between 75-150-300. Tolerated but only partially stabilised the severe depression & escallating side effects. 

Adverse reactions to citalopram (tried before venlafaxine), sertraline & mirtazapine (tried after venlafaxine became problematic) with suicidal ideation caused. 

2014: Adverse reaction to one prozac pill which I tried to begin taking in order to stabilise the withdrawal and actually made it horrendously worse. My body & brain went on fire two hours after taking the pill and severe WD began.

Spring 2014: CEASED ALL ANTIDEPRESSANTS. Did take occasional lorazepam (two weeks at first followed by the occasional half tablet at night sometimes.

2014: WD: living hell for five months, gradually improved a little by little for almost a year and a half but with frequent heart palpitations, weakness and anxiety and very poor sleep. Struggled to do things both physically & mentally but was improving slowly. 

2015: WD relapse with full symptoms. anxiety/panic triggered beyond initial anxiety resurgence by a couple of small half doses of Lorazepam that seem to have restarted all the WD symptoms I had in the beginning & ruined all the progress I had made. 

2017: Bad reaction to propranolol beta blockers. Nervous system kindled into violent shaking like withdrawal again. Alerting system on overdrive. 

 

Current Supplements: Omega 3 & Vitamin C, magnesium, potassium, pre/probiotics, brewer's yeast. 

 

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thank you everyone for these tips and advice and concern.  I read every single one.  I am still in a brain fog so cannot properly respond to each one.  I will say, yes ...this is interesting being my own case study. I now know what panic attacks feel like , withdrawals feel like etc. I have far more empathy than ever.  To be clear I stopped taking all drugs at once last January. I had to because of the seratonin Syndrome.  I could not taper.   I am on nothing but Xanax right now (prn).  I have to take this just to function but know i am probably prolonging things by doing so. I just go by how I feel in my body.  Thank you for all the valuable research links.  I did find some recent studies on long term effects of SSRI use.  So it is being studied but NOT generally recognized (for obvious reasons of money, lawsuits etc.). I am so glad to hear form each of you that this will pass one day. I also like reading about comparing how I feel now to 6 months ago instead of last week. I am getting better but its all waves and windows. My wife is sick of me, my kids have accepted i am just "sick" all the time.  I have a young son who is only 2 and half of his life his dad had been nearly a vegetable. I have been very desperate to function and have tried many supplements, natural remedies etc. This is the hardest thing I have ever had to do.

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Welcome, Harley.

 

You were turning yellow and your doctors didn't notice? For future reference: the Drug Interactions Checker http://www.drugs.com/drug_interactions.html

 

I think now you can see the extent of medicine's "expertise" about psychiatric drugs and disorders. We don't know what we don't know -- anosognosia.

 

When did you go off Dilaudid and Viibryd? What drugs are you taking now? When did you go off trazodone? How long have you been taking Xanax regularly?

 

What is your daily symptom pattern?

 

It's a good idea to exclude sugar, caffeine, and artificial flavorings from your food, eat simple, fresh food and lots of green leafy vegetables. This will help your body repair the neurological dysregulation from the adverse drug effects and then going off too fast.

 

You have "panic disorder" only in the sense that your destabilized nervous system is producing symptoms that resemble what psychiatry calls "panic disorder." See Neuro emotions

 

What is withdrawal syndrome?

 

The long-term effects are still being studied -- really? From what I can tell, psychiatry isn't very interested in this topic. There's still a complacent assumption that the drugs are seldom harmful.

 

I've collected a lot of papers in the From journals and scientific sources forum, you might wish to browse it regarding tachyphylaxis, tardive dysphoria, iatrogenic "apathy syndrome", post-SSRI sexual dysfunction (PSSD), and the like.

 

There are many papers about withdrawal syndrome, a hot topic in the early 2000s when psychiatry was shocked shocked shocked that SSRIs were not all they were promised to be, but this didn't make much of a dent given the flood of pharma propaganda released to counter it. And doctors still don't have a clue about tapering.

I turned yellow at home and reported to the doctors who did a liver function test two days later and only saw slightly elevated enzymes. With Seratonin Syndrome it can temporarily or permenantly shut your body or parts of your body down. It was shutting down my liver and Kidneys from time to time and casuing my BP to shoot up to 220 over 115 (highest)

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  • Administrator

Well, you can see the limitations of what is commonly known about psychiatric drugs.

 

When did you go off Dilaudid and Viibryd? What drugs are you taking now? When did you go off trazodone? How long have you been taking Xanax regularly?

 

What is your daily symptom pattern?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • Moderator Emeritus

It would be helpful to have the information that Alto asks about in your signature: Please put your withdrawal history in your signature

 

A lot of things started making sense to us when we came here. 

 

As a Xanax victim I would like to warn you about dangers of taking Xanax. There is a benzo subforum here where we could look at your Xanax situation in  more detail.

 

Bubble

Current: 9/2022 Xanax 0.08, Lexapro 2

2020 Xanax 0.26 (down from 2 mg in 2013), Lexapro 2.85 mg (down from 5 mg 2013)

Amitriptyline (tricyclic AD) and clonazepam for 3 months to treat headache in 1996 
1999. - present Xanax prn up to 3 mg.
2000-2005 Prozac CT twice, 2005-2010 Zoloft CT 3 times, 2010-2013 Escitalopram 10 mg
went from 2.5 to zero on 7 Aug 2013, bad crash 40 days after
reinstated to 5 mg Escitalopram 4Oct 2013 and holding liquid Xanax every 5 hours
28 Jan 2014 Xanax 1.9, 18 Apr  2015 1 mg,  25 June 2015 Lex 4.8, 6 Aug Lexapro 4.6, 1 Jan 2016 0.64  Xanax     9 month hold

24 Sept 2016 4.5 Lex, 17 Oct 4.4 Lex (Nov 0.63 Xanax, Dec 0.625 Xanax), 1 Jan 2017 4.3 Lex, 24 Jan 4.2, 5 Feb 4.1, 24 Mar 4 mg, 10 Apr 3.9 mg, May 3.85, June 3.8, July 3.75, 22 July 3.7, 15 Aug 3.65, 17 Sept 3.6, 1 Jan 2018 3.55, 19 Jan 3.5, 16 Mar 3.4, 14 Apr 3.3, 23 May 3.2, 16 June 3.15, 15 Jul 3.1, 31 Jul 3, 21 Aug 2.9 26 Sept 2.85, 14 Nov Xan 0.61, 1 Dec 0.59, 19 Dec 0.58, 4 Jan 0.565, 6 Feb 0.55, 20 Feb 0.535, 1 Mar 0.505, 10 Mar 0.475, 14 Mar 0.45, 4 Apr 0.415, 13 Apr 0.37, 21 Apr 0.33, 29 Apr 0.29, 10 May 0.27, 17 May 0.25, 28 May 0.22, 19 June 0.22, 21 Jun updose to 0.24, 24 Jun updose to 0.26

Supplements: Omega 3 + Vit E, Vit C, D, magnesium, Taurine, probiotic 

I'm not a medical professional. Any advice I give is based on my own experience and reading. 

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Horrible story - I feel for you Harley - one thing I learned is that the people who run this site know what they are talking about -

Glad you found it xo

 

*Currently at 3.3mg off my 10mg pill of Paxil (they actually weigh 12.5mg) so I’m around 7.4 mg 

*No other supplements or vitamins 

*Taper schedule in the pdf 

Blank.pdf

 

https://docs.google.com/document/d/1-5vShtJtwAOGA30OxIP87steLmMdFzD29F0fzAPD564

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  • Moderator

Harley, I'm glad you've found us!

You wrote:

 

 

 I am on nothing but Xanax right now (prn).  

 

Xanax is famous for it's short half life.  That means that - if you are taking it once a day, the rest of the day will be in panic and anxiety, often more intense (interdose withdrawal) than if you hadn't taken it at all.  It is better to split your dose into 3 doses per day.  Sometimes 2x a day will cover it, 3x a day will be smoother.

 

Right now, you need smooth.  Taking Xanax PRN is giving you spikes and valleys in your symptoms - even worse if it is a day on, day off - wait until you can't stand it anymore, then take a xanax, whew.  Then in 4-6 hours it wears off and starts again.  This could be intensifying your "panic attacks."  (paradox, from Whitaker's excellent "Anatomy of an Epdemic":  these drugs seems to PRODUCE the very symptoms they are being taken to relieve)

 

Steady as she goes - it would be better take smaller doses more regularly.

 

That is, provided you are prepared to be dependent upon xanax for later tapering and possible withdrawal, as Bubble warns.  

 

Sorry to overwhelm you - it's rare when we see a bird of your type in this forum!   :blush:

"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

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