Jump to content
Support our work - please give today

Barbarannamated: pain<-->depression...chicken<-->egg

Barbarannamated

By Barbarannamated
in Introductions and updates

Recommended Posts

Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

This may console you, Barb -- seems like a lot of people do okay until they get about half-way down on Effexor, then blammo.

 

Interesting. Anything that tends to hit first? I was so sensitive to Effexor that I got zaps after one missed dose. Also when I ran out of caps and substituted short acting tabs I had. But had no zaps when sloppily tapering Pristiq.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
  • Replies 1k
  • Created
  • Last Reply

Top Posters In This Topic

  • Barbarannamated

    400

  • Skyler

    88

  • Karma

    88

  • tezza

    68

Top Posters In This Topic

  • Administrator
Karma Contributor

Karma

Posted
  • Administrator
Posted

Hi Barb,

 

When I first started weaning off of Effexor up at 225 mg, I didn't initially feel any withdrawal symptoms either. At some point I started having anxiety from too high reductions ... then I started feeling depression. I only got brain zaps when I missed a dose at the higher dosages.

 

I hope your DH doesn't have any symptoms, but if he does start having symptoms it may help your cause.

 

Take care,

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

Link to comment
Whatever Newbie

Whatever

Posted
Posted

Barb I am on the same page as Tezza. I wish I could come to the west coast and remove you from your situation. I would bring you to NY, I live in the country and you could ride horses here, but I am only one hour away from NYC so

we could take long walks just drinking in the energy of NYC.

 

Before taking you away, I would like to have a few words with your husband. But his comeuppance is just around the corner. Effexor is reportedly one of the hardest pmeds to quit. It will be interesting to see how his WD develops and if he finds himself in need of your support and help.

Withdrew cold turkey from six medications: Celexa, Zyprexa, Depakote, Ativan, Ambien and Phentermine in 2002. It has been 10 years since I told polypharmacy to take a hike and have joined this forum to let others know that success is possible and to hopefully save people from experiencing the suffering that I did under psychiatric "care".

 

MY STORY

 

"TENSION is when we try to be who we think we should be, RELAXATION is when we are who we really are."

Link to comment
InNeedOfHope Newbie

InNeedOfHope

Posted
Posted

The Effexor comment leaves me feeling a bit stunned and incredulous given the state I am in and how much difficulty you have had and continue to have.

 

Sending you a hug too. x

Sept 2010 - Citalopram 1 day

Sept 2010 - Zopliclone for ten weeks (paranoia ended a couple of months after coming off this and sleep settled down again until the last couple of months)

Ocober 2010 - Cymbalta 30mg

November 2010 - Cymbalta 60mg

February 2011 - 60mg to 30 mg (lasted 10 days)reinstated 60mg

March 2011 - Took 2 60mg tablets on one evening in error - paralysis of face, back of head, shoulder, stabbing in right kidney, lost 30% of hearing)

March - June 2011 went down quickly 1mg a day until I got stuck at 25mg, went up to 27mg, because couldn't breath.

26th June - 26mg

3rd July - 25mg

17th July - 24mg

24th July - 23mg

7th Aug - began reducing by a bead every couple of days or so went well at first then hit a wall

24th October - now on 18.5mg. Since the kidney infection at start of September, have been in constant pain and anxiety, no let up. Given Ciprofloxacin.

8th Jan 2012 17.8mg (currently reducing 0.2mg a week)

8th Jan 2012 17.6mg last reduction was 6 days ago.

15th Jan 17.4mg

21st Jan 17.2mg

Link to comment
  • Administrator
Karma Contributor

Karma

Posted
  • Administrator
Posted

Hi Barb, Thank you for letting me know that you type and delete also. I thought I was the only one that did it.

 

Hey Barb and Tezza - me too :rolleyes: I'll type up a message and then just hit cancel :)

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

Aaaw! Thanks everyone. :-)

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
compsports Newbie

compsports

Posted
Posted

That Prometrium progesterone really messed with me -- drugs•com has Precaution about using in people with "Psychic Depression" ~ I've never heard that term used in medical literature but I know I feel very much worse after using it for 2 nites~

 

Barb, I am so sorry for what you are going through.

 

I wish we lived closer so I could give you a hug.

 

Doctors are so bleeping clueless about drug interactions and side effects. And of course, when you're in a compromised condition, it hard to be an advocate for yourself.

 

I am so sorry.

 

CS

Drug cocktail 1995 - 2010
Started taper of Adderall, Wellbutrin XL, Remeron, and Doxepin in 2006
Finished taper on June 10, 2010

Temazepam on a PRN basis approximately twice a month - 2014 to 2016

Beginning in 2017 - Consumption increased to about two times per week

April 2017 - Increased to taking it full time for insomnia

Link to comment
  • 2 weeks later...
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

WARNING -babbling VentRant

 

Thank you everyone for your words of support. You all mean so much to me. Whatever, New York sounds wonderful. :-) My last trip to the city was about 6 years ago. Went with girlfriend who thought it would be fun to push her 3yo brat-- er, sorry...BABY--around Manhattan during the height of Christmas season. I missed seeing friends who live in The Village because we were in the checkout line in the big doll store-- American Girl ? Grrr}}}}

 

FAMILY-- UGH. I go for weeks at a time putting that mess out of my mind, then it rears its ugly head in a big way. I know it's toxic to me and my efforts to help for most of my adult life have gone nowhere. The anxiety defies description. Had i distanced from this mess years ago, it might not be so difficult. But to hit the wall when they are in mid 80s....I don't know how to stay away from the toxicity and not be concerned about their (especially mother's) care. She is 100% isolated and dependent on dad. My sister is also dependent, but I accepted years ago (with help of my psychiatrist) that I was not responsible and to assume Social Services would step in - or not. Oh well.

I Googled her name to find address and the first hit was one of those websites to report harassing phone calls (telemarketing). Her entry was priceless. She wasn't complaing, but networking to find drugs online --her entry was complete with full name and email address. I was surprised, but not. Maybe the drugs she's been using in vast quantities are safer than what I've gotten through psychiatry.

 

Hubby told me the other day that he thinks I'm still Executor of dad's will. Dad told me that he removed my drug addict sister as Co-executor last year. Reality check please ! The fact that he put her in charge of ANYTHING is a huge red flag. This is not a man showing good judgment. In 10+ years he has refused to discuss any contents of Will, Advance Directives, plans, wishes, etc. I've asked MANY times over years and his response is always "when WE are gone..." or "when YOUR MOTHER AND I are gone..." Always in plural, as if they will die simultaneously. I finally realized that he may be so deeply entrenched in his pathological delusion in which he protects (controls) mom and sister that he has a block to thinking beyond it. They all die together. An elderly couple in their neighborhood did that a few weeks ago - died within an hour of each other. The newpaper had an 'oh-how-sweet' article about it with 'died of broken heart' bs. My dad appears very sane and functional to most people. And like a doting husband. He controls my mother's healthcare -- micromanages. He reads drug info and if there is a possible side effect that jumps out at him, he DCs the med cold turkey. If he saw 60 Minutes with Irving Kirsch, he probably CTd mom's sertraline.

Yes, I realize my thoughts are spinning out of control, so I sent messages to their doctors and Adult Protective Services explaining as much as I could. I am supposed to speak to APS and, hopefully, they will remove this albatross from my neck.

 

Scratch that plan -- Adult Protective Services called and can't do much due to laws in PA. Should my dad become unable to care for mom, APS can take care of mom until I can get there and find out what plans, provisions, etc, may or may not exist. This is bullsh*t! I want nothing to do with it.

I need to get my name off of all legal documents. If anyone knows the best route to handle this, please let me know.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
  • Administrator
Karma Contributor

Karma

Posted
  • Administrator
Posted

Hi Barb,

 

You are welcome to rant - we are your friends and we understand and support you :) . I don't have a solution to your current concern, but I'm wondering if you could contact an attorney in PA to find out what your rights are ... I mean you shouldn't have to be executor if you don't want to be. In addition it seems like as executor you have a right to the answers to your questions. I dunno - I could be wrong :unsure: just thinking of options.

 

I know when my mother passed away (after my father had passed away) my brother was named as executor and he didn't do a thing ... finally my sister took over everything - I think she forced a power of attorney. Then we found out that there was so little in the estate that processing it through probate would cost us more than what was in the estate. She just dropped it and we haven't heard anything else about it.

 

Maybe there is a statute of limitations and my nieces will be able to get the little bit of money in the estate after a number of years. Otherwise, I guess the state gets everything.

 

Found this http://ths.gardenweb.com/forums/load/finance/msg0811571525890.html?15 ... it makes me think you can decline being the executor (trix) of your dad's will.

 

Love and light,

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted (edited)

Karma,

THANK YOU so much for the link to that discussion. It hit several points that other information sites never have. I'm contacting an attorney today to get my name removed from any documents that may or may not exist.

I sent a message to a few cousins in a last ditch effort asking if my father shared info with them. (He was the 'go to' guy in the family who helped when they needed) Got a response from one cousin, no information as I expected, but said my dad told her that he doesn't know why I won't communicate with them and it must be menopause! I've told him several times and husband has told him. Maybe he's part of the DSM-V committee :o Dad told her that my sister is 'mentally ill' (never admitted that before) although I realize that's another way to not admit his role in enabling her addiction.

 

On a totally different topic (thank God!)... I was in the

oddest mood yesterday, finding humor in unexpected places and

some expected ones (America's Funniest Vids). Began with news report about sameone driving around Los Angeles with a dead body

in their car. I said 'hey - creative carpooling!' and got a good, albeit sick, laugh. One becomes immune to the bizarre news in LA and people propping up blowup dolls in passenger seat to be able to use carpool lanes, etc. I went into my LinkedIn profile and made some changes that amused me. It felt cathartic to mess with LI profile - a way of saying I'm done with corporate America and don't give a damn!

Anybody else experiencing a different sense of humor or am I losing it?

Edited by Barbarannamated

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

 

This made me lol several times! Hope it gives someone a laugh :lol:

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

Absolutely LOST IT tonight when i got mmessage from my cousin about about what a great guy my did is and i should go have a 'nicey nice' chat with him and get things straightened out and she's sure he has planned everything blah blah blah. This was in response to message explaining all of the steps ive taken over the years and gotten no answers and how distressing it is. OMG-- I was shaking i was so angry. so, i picked up the phone and called home and told my dad off -- how he's ruined our family, my only sibling, has completely ignored every request for information and if he has anything to say he can put it in writing im not talking to someone who disrepects me... Mom was on line, told her i love her and hung up.

Damn, forgot to tell him I'm working the streets! That's his greatest fear and reason he wouldn't cut my sister off - she'd become a prostitute and embarrass the family. I guess criminal drug addict is more respectable than prostitute in my family.

Was yelling so loud that the poor dogs were shaking afterward.

 

I think i feel better.

 

Only reply to cousin..."who do you think buys the drugs for sister?"

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

Note to self: Neuroemotion...neuroemotion...neuroemotion...

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

Doing very poorly - every stressor or attempt to communicate w/people outside this group is triggering intense anger and anxiety - none of which I had previously (or didnt recognize)-

I never considered reinstating since I am almost a year out but admit the thought of a microdose has crossed my mind -

Thoughts please - I do have old lamictal from years ago -

 

I have an addl HUGE stressor related to previous employment - not dealing well at all it is so surreal -

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
  • Administrator
Karma Contributor

Karma

Posted
  • Administrator
Posted

Hi Barb,

 

I'm so sorry you are going through a rough patch ... I don't know what to tell you about taking a micro-dose. I do have a hug for you Posted Image

 

Any chance Krill Oil would help?

 

Love and light my friend,

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

Aaaww -hugging emoticons - I've never seen that - thank you Karma -

I havent tried krill oil - husband just asked me how that differs from others and I wasn't sure - could use some of Alex's ginger ;-)

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
  • Moderator Emeritus
tezza Newbie

tezza

Posted
  • Moderator Emeritus
Posted

Hi Barb, I'm so sorry you're going through these issues. I know how it feels to think about going back to meds. I'm not near being off and can't help wondering if I should just stay on. I'm scared and feel so lost. I hope your rough time is better soon. {{{HUGS}}}

 

Tezza

http://survivingantidepressants.org/index.php?/topic/1644-tezza-risperdal-withdrawal/

 

Seroquel and Mirtazipine

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

Tezza ~

I didnt have the help of this forum when I tapered so you are in a much better position for a good outcome ~

I also have little in-person 'support' that is more of a stressor than support ~

B

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
  • Administrator
Karma Contributor

Karma

Posted
  • Administrator
Posted

Aaaww -hugging emoticons - I've never seen that - thank you Karma -

I havent tried krill oil - husband just asked me how that differs from others and I wasn't sure - could use some of Alex's ginger ;-)

 

I learned on BB how to get the hugging emoticon - here's another hug Posted Image.

 

I use Krill Oil because Flax Oil is supposed to be bad for the thyroid (and I already have thyroid problems) and fish oil causes fishy burps that are not pleasant - here is an article that explains it: http://altmedicine.about.com/od/herbsupplementguide/a/krilloil.htm

 

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

Link to comment
alexjuice Newbie

alexjuice

Posted
Posted

Taking a course or 2 is something ive looked into but havent put plan into action ~ it's a bit of a relief to know that is a drug induced thing and not just me being lazy or indecisive •

 

I remain open to suggestions

 

Hey Barb,

I took a few courses at the community college but it didn't go well. I probably should have enrolled in just one at first.

 

Two were back to back and rather technical. I struggled with mental fatigue and dropped one. Eventually, after missing a couple of weeks, I simply withdrew entirely.

 

The main lesson I took away is that I'd be best served in courses that interest me (as opposed to provide occupational training) and in a familiar subject. I think the remedial nature of the courses also hurt me because I didn't really feel the need to keep up -- our daily assignments were really easy. But this was a trap. In college I could cram a semester in a night. At this point I can't cram a kindergarten semester in a single night.

 

Perhaps you could take a course at university as a nondegree seeking student?

 

Alex

"Well my ship's been split to splinters and it's sinking fast
I'm drowning in the poison, got no future, got no past
But my heart is not weary, it's light and it's free
I've got nothing but affection for all those who sailed with me.

Everybody's moving, if they ain't already there
Everybody's got to move somewhere
Stick with me baby, stick with me anyhow
Things should start to get interesting right about now."

- Zimmerman

Link to comment
  • Administrator
Altostrata Grand Master

Altostrata

Posted
  • Administrator
Posted

Karma, how do you get the hugging emoticon?

 

Agree, take a course to get out of the house and accommodate your nervous system to activity. Take something you'll be motivated to attend, such as a pottery class or music appreciation. Don't overstress yourself, you'll build up to more sophisticated material.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to comment
  • Administrator
Karma Contributor

Karma

Posted
  • Administrator
Posted

Karma, how do you get the hugging emoticon?

 

Apologies for treading on your thread Barb, but here is where and how to get the hugging emoticon

 

Go to: http://www.sherv.net/emoticons.html

Select Love and Romantic on the left in the Gallery --> now select Hugging

Find the emoticon you want (the second from the top on the left) and click it (single click)

Select Get Codes and it should scroll you to the bottom (if not, scroll to the bottom) --> Click in the Forum Code box and that should highlight the code in that box (if not, highlight the code) --> use your favorite method of copy (I like Control+C and paste in your message on the forum (Control+V) Posted Image voila now we have a hugging emoticon Posted Image

 

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

THANK YOU KARMA - I love them :-)

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

Just for the record - husband tapering Effexor and CTd Vyvanse and taking a Z sleeper every other night after taking nightly for years -

Having trouble sleeping at night (he doesnt actually wake up but says he's not feeling rested) and is sleeping several hours during day -

He says the med changes are not the cause for sleep problems and wants no input -

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

I just Cant get away from the emotional pain today -

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
  • Administrator
Karma Contributor

Karma

Posted
  • Administrator
Posted

Barb,

 

Just let your husband learn his own lessons ... my husband isn't on ADs and he still doesn't want my advice on his health issues. (Well he did finally take the Mucinex when I recommended it because he was coughing so hard he was about to hack up a lung. Turns out he had bronchitis and the doc validated my OTC recommendation).

 

Let hubby go through his own stuff ... I think there is more too it - it seems he is somewhat passive-aggressive toward you, but if I were you I would just watch and wait. You can record your observations here and we will validate you Posted Image. Maybe he will get through this without any symptoms, but based on my experience it isn't likely. It took me a long time to experience real withdrawal symptoms, but eventually I did. Let him believe that his sleep disruption isn't associated with discontinuing the drugs ... let it be whatever it is going to be.

 

We know that what you experienced and are experiencing was and is real Posted Image. If hubby doesn't experience the same thing it doesn't mean your pain is any less.

 

Hang in there, Barb - you have friends here.

 

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

Thanks Tezza and Karma - you are so right that he is passive-aggressive (I hate to admit but I tend toward that at times) and he is a Medical Doctor with all of the accompanying personality traits that really should qualify as an Axis II Personality Disorder IF I believed in the DSM and PDs - just sayin'

Had appt w/my Pain Mgmt doc yesterday and got the basics covered - my yearly disability paperwork and prescriptions - then he and my husband proceeded to talk shop about opiate and benzo overprescribing by docs they both know and 'morphine equivalent' yada yada yada - I just sat there taking mental notes for when I'm feeling stronger -

Then my husband noticed doc's Jag with personalized plates - must be that new clinical trials division and $50k+ in Cephalon dollars (thanks Dollars for Docs)

He's doing a trial for constipation associated with opiates - I told husband 'coat the freakin' opiate in MAGNESIUM' GEEZ -how difficult is that

Probably not patentable - not sure if that's a word but hope you know what I mean -

He marked my disability paperwork as NEVER ABLE TO RETURN TO WORK which I know is just paperwork but it struck me hard right now - I've been on disability for 11 years already due to pain - NOT the retirement I envisioned -

Plan B … stay tuned and thanks for letting me vent

I think the intensified anger may be related to estrogen patch - I noticed it escalating when I put a new patch on -

Just clarifying that disability is due to an injury in '93-

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
  • Administrator
Karma Contributor

Karma

Posted
  • Administrator
Posted

Hey, Barb - don't sweat the paperwork.

 

Look up Anita Moorjani or listen to this interview between Anita Moorjani and Cheryl Richardson http://anitamoorjani.com/?page_id=459. Anita was dying of cancer and slipped into a coma ... the doctors told her husband that her organs were shutting and down and she was dying - she didn't die - she lived and wrote about her near-death experience. You may or may not believe in such things, but the point is that if any doctor has ever been wrong then your doctor could be wrong, too. :rolleyes:

 

"Probably not patentable" - yep! The pharmaceutical companies tried to outlaw bio-identical estrogen because it was cutting into their artificial estrogen profits ... they tried to outlaw P5P the active form of B6 so they could patent it. Then there was the 17-Hydroxyprogesterone given to women at risk for miscarriage at the cost of $300 per 20 week course of treatment that was outlawed because a pharmaceutical company did patent it as Makena and raised the price to $30,000 per 20 week course of treatment - they sent a cease and desist order to compounding pharmacies to stop compounding 17-Hydroxyprogesterone - there was so much outrage that the FDA said they would not enforce the cease and desist order. This stuff makes me nuts :angry: .

 

Hang in there, Barb Posted Image

 

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

Thanks Karma -AGAIN - those huggies make me smile :)

 

There was a NDE just a few minutes ago when I overheard a discussion of 'psychogenic pain'

:-o

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
Barbarannamated Newbie

Barbarannamated

Posted
  • Author
Posted

I don't ask but husband offered (mocked) that he will be able to finish Effexor taper this week - says he is currently at 75mg- he has not attributed any recent symptoms to withdrawal but in my observation he is sleeping several hours/day after 8-9 hrs at night - he said he is not sleeping well at nite - also claimed that he felt flu-ish -

(Began taper from 225mg beginning of Feb 2012 NOT at direction of pdoc or this group - still on Wellbutrin & temazepam hs & zaleplon

Just my observations -

 

It's not that I wish horrid w/d on anyone but there is a distinct ha-ha attitude-

Of course I didn't realize that all of the bizarre symptoms I was experiencing were classic w/d until months after I was finished tapering -

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to comment
  • Administrator
Karma Contributor

Karma

Posted
  • Administrator
Posted

Hang with us, dear Barb Posted Image

 

I think that if your DH is still taking Wellbutrin it is masking some of the Effexor withdrawals. Maybe he'll get lucky, but going from 75 mg to nothing of Effexor will be a very big challenge. I got down to 18.5 mg before my withdrawals became really bad ... had to go back up to 43.75 mg to get relief and I was tapering very slowly after healing my gut.

 

My advice is just to watch and see ... although flu symptoms ... classic withdrawal symptoms.

 

Love and light

Karma

2007 @ 375 mg Effexor - 11/29/2011 - 43.75 mg Effexor (regular) & .625 mg Xanax

200 mg Gabapentin 2/27/21 - 194.5 mg, 5/28/21 - 183 mg, 8/2/21 - 170 mg, 11/28/21 - 150 mg, 4/19/22 - 122 mg; 8//7/22 - 100 mg; 12/17 - 75mg; 8/17 - 45 mg; 10/16 40 mg
Xanax taper: 3/11/12 - 0.9375 mg, 3/25/12 - 0.875 mg, 4/6/12 - 0.8125 mg, 4/18/12 - 0.75 ; 10/16 40mg;

1/16 0.6875 mg; at some point 0.625 mg
Effexor taper: 1/29/12 - 40.625 mg, 4/29/12 - 39.875 mg, 5/11/12 - Switched to liquid Effexor, 5/25/12 - 38 mg, 7/6/12 - 35 mg, 8/17/12 - 32 mg, 9/14/12 - 30 mg, 10/19/12 - 28 mg, 11/9/12 - 26 mg, 11/30/12 - 24 mg, 01/14/13 - 22 mg. 02/25/13 - 20.8 mg, 03/18/13 - 19.2 mg, 4/15/13 - 17.6 mg, 8/10/13 - 16.4 mg, 9/7/13 - 15.2 mg, 10/19/13 - 14 mg, 1/15/14 - 13.2 mg, 3/1/2014 - 12.6 mg, 5/4/14 - 12 mg, 8/1/14 - 11.4 mg, 8/29/14 - 10.8 mg; 10/14/14 - 10.2 mg; 12/15/14 - 10 mg, 1/11/15 - 9.5 mg, 2/8/15 - 9 mg, 3/21/15 - 8.5 mg, 5/1/15 - 8 mg, 6/9/15 - 7.5 mg, 7/8/15 - 7 mg, 8/22/15 - 6.5 mg, 10/4/15 - 6 mg; 1/1/16 - 5.6 mg; 2/6/16 - 5.2 mg; 4/9 - 4.8 mg; 7/7 4.5 mg; 10/7 4.25 mg; 11/4 4.0 mg; 11/25 3.8 mg; 4/24 3.6 mg; 5/27 3.4 mg; 7/8 3.2 mg ... 10/18 2.8 mg; 1/18 2.6 mg; 4/7 2.4 mg; 5/26 2.15mg; 8/18 1.85 mg; 10/7 1.7 mg; 12/1 1.45 mg; 3/2 1.2 mg; 5/4 0.90 mg; 6/1 0.80 mg; 6/22 0.65 mg; 08/03 0.50 mg, 08/10 0.45 mg, 10/05 0.325 mg, 11/23 0.2 mg, 12/14 0.15 mg, 12/21 0.125 mg, 02/28 0.03125 mg, 2/15 0.015625 mg, 2/29/20 0.00 mg - OFF Effexor

I am not a medical professional - this is not medical advice. My suggestions are based on personal experience, reading, observation and anecdotal information posted by other sufferers

Link to comment
Tom Rookie

Tom

Posted
Posted

Barb, I don't know if you still suffer from Bruxism, but if so, you may have to be careful with some supplements. For example, fish oil exacerbated it for me and some others. There was a post on another forum about which medications and supplements can help or hurt with Bruxism, and fish oil was listed as one of the possible culprits. Of course, everybody is different, so it doesn't necessarily mean anything for you.

Approximately 18 years on Effexor. Tapered for more than two years. Totally off of Effexor since late Oct. 2010.

Link to comment

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Go to topic listing
×
×
  • Create New...

Important Information

Terms of Use Privacy Policy

  I accept