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Improvements: symptoms that have got better or improved


WinningThrough

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Hello fellow survivees!

 

Apologies if this is a repeat of anything that's already been done. I thought it might be helpful to start a thread about symptoms that people have had that have either gone away or improved over time. This could help in 2 ways:

 

1. It could show someone who is struggling with a particular symptom that it will heal in time.

2. It shows us how far we've come.

 

With that in mind, I've put together a list of the symptoms that I got on and/or off the drug that have either gone away or have improved. Here goes:

 

- I had double vision when I came off the drugs and it went away gradually.

- My eyes made clicking and popping sounds every time I moved them. That stopped.

- I had great difficulty moving my eyes up and down, from side to side and circling them. That got a lot better.

- I had severe crying spells for about a year. I would wake up crying and would literally cry (chemically) for hours and I couldn't stop it. I would choke and have problems breathing from it. The crying stopped. Occasionally I cry now but not often and not for hours.

- My brain used to feel like it was shaking in my skull and being squeezed. Those things went away.

- I had a hideous nerve sensation behind my eye and in my nose and face that actually felt like akathisia in my face! I always felt like I had this demonic ball thing behind my eye and a creepy feeling on the bridge of my nose. I never thought that symptom would go away, but it did. I occasionally get it back but it only lasts for a day or so when I do.

- The internal shaking in my legs is a lot better.

- I used to have a tightness in my chest all the time that felt like something was going to explode out of it. That went away.

- I had akathisia down below. It was horrific. But it went away!

- I had a numb bladder and numb arm for a few months and they went away too.

- I had several patches of ringworm on various areas of my body for a few months and they completely cleared up. I had dermatitis or something around my eyes..they were always red, itching and peeling and I actually had hard skin on my eyelids. I thought that would never go but it did.

- I had a really bad tremor and that went away.

- I still have brain zaps, unfortunately. But they are nowhere near as bad as they used to be when I got one every time I tried to move my eyes. I had them every few seconds all day and night. They are not like that anymore.

- Cognitively I have a long way to go but I'm improving. I find it easier to apply my brain than I did.

- My racing thoughts are not as bad as they were. This thing is always there but I can think of other things now.

- My constant suicidal thoughts calmed down. Ok, I still rather wouldn't be here than living like this but rather than having an urge all the time to do something immediately, I actually WANT to fight for my life and get better. I want to see this thing through. I only have this life and I deserve to come out the other side. And I WILL.

- I've sort of trained myself to do certain things now. When I first came off the drugs, I was in bed nearly all the time. I used to eat food with my hands and if I dropped any on the floor, I left it there because it was too much for me to pick it up. I used to go for days and days without having a bath because it was too terrifying for me to do it. Now I have a bath every day. Don't get me wrong, it's far from easy but I can do it now. I get dressed nearly every day. I do some housework now. I eat with a knife and fork and pick up food I've dropped. I push myself to go out of the house sometimes. I do more activities than I did.

 

There are probably other things I haven't thought of but those are the things that spring to mind. I do hope this helps at least one person on here. It's helped me too! This is a long list! I had no idea I'd done so much healing! I'm nowhere near where I want to be but I can see now that I AM healing.

 

I will put this list on my own thread too.

The only way out is through.

 

Aug 2013 - Augmentin leading to akathisia

Sept-Nov 2013 - Citalopram 20mg, severe reaction, off at 5mg. Valium 4mg, prn

Oct 2013 - 5 zopiclone tablets, 7.5mg

End Nov 2013-end Feb 2014, Seroquel, top dose 150mg, off at 25mg

End Nov 2013-early march 2014, Zoloft 100mg top dose, off at 25mg

End Dec-2013-early April 2014, lorazepam 1mg prn

April 3rd 2014 zoloft 5mg for a few days. 18/4/14 - zoloft, 1mg. Came off at 0.35 mg,14th June 2014

29 June 2014 - 1mg lorazepam, last ever

29 June 2014 - med free

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  • Moderator Emeritus

My eye has not tingled in months now.

The strange feeling that there was something on the end of my nose has gone.

I've had no hallucinations in many months.

My fearfulness has subsided greatly.

2010  Fluoxetine 20mg.  2011  Escitalopram 20mg.  2013 Tapered badly and destabilised CNS.  Effexor 150mg. 

2015 Begin using info at SurvivingAntidepressants.  Cut 10% - bad w/d 2 months, held 1 month. 

Micro-tapering: four weekly 0.4% cuts, hold 4 weeks (struggling with symptoms).

8 month hold.

2017 Micro-tapering: four weekly 1% cuts, hold 4 weeks (symptoms almost non-existent).

2020 Still micro-tapering. Just over 2/3 of the way off effexor. Minimal symptoms, - and sleeping well.
Supplements: Fish oil, vitamin C, iron, oat-straw tea, nettle tea.

My story of healing:ContinuedHealing

***I am not a doctor; please do your own research and be able to take responsibility for decisions you make.*** 

           'The possibility of renewal exists so long as life exists.'  Dr Gabor Mate.

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 Since re-instating Cipralex @ 2.5mg on 25th Nov 2015, I have had the following improvements:

  • No longer have horrendous headaches (includes migraines, sinus).
  • Ear pressure changes/popping have stopped.
  • Severe body aches and pains post-exercise have subsided.
  • Have more flexibility in joints.
  • Improved mood.
  • Nausea and dizziness have stopped.
  • Weird electric shock/current sensations in brain down neck have stopped.
  • Appetite has returned for the most part (depending on how I am feeling).
  • Sleeping well without needing Melatonin.
  • Not as anxious as I was.

Please note I am moving back to the UK in a couple of weeks and have a huge TO DO list.  Trying to stay sane through it all.

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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I was wondering if people could put time lengths on here. I am suffering from intense fatigue, among other things, and it would be helpful to see how long it took for people's symptoms to fade. (I know that it's different for everyone but some kind of timeline would be encouraging.)

Originally went on prozac 2008 for CFS - 20mg

Finished end 2012 - extreme anxiety and insomnia for a year, reinstated Jan 2014 - 40mg.

Jan 2015 tapered to 20mg - 5 months WD

Sept 2015 - took 3 tablets for vertigo - triggered 5 months WD

Switched to sertraline Dec 2015 - didn't work so went CT Jan 2016. 6 weeks of breathing and sleep problems so reinstated sertraline.

April 2016 CT - WD started.

April - August 2016 very low dose zopiclone - made WD worse so stopped end August 2017

Since Sept 2016 WD: drowsiness and fatigue; headaches (ended Christmas 2016); numb face (ended Christmas 2016); vivid dreams; anxiety and tearfulness; dizziness; nausea; loud tinnitus; irrational feelings of fear and dread; tingling up and down the backs of my legs; some insomnia but that's getting better. 

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Thanks for the topic. Didn't realised that things got better when I started tapering and reduced the Cipramil ...

 

1. I used to SWEAT excessively when I exercise (yuck) ...now I am just a nice damp.

2. Better vision - when I was on the Cipramil I used to play squash and always complained that I couldn't really see the ball (it was going too fast for my eyes?) and I played today and I could actually see the ball!! 3. I used to sleep 9-10 hours a day and was tired ALL the time. These days I sleep 7-8 hours a day and am still tired :blink:  Oh well, its 2016 and I work full time, what does one expect?

4. Motion sickness - had this really badlly and couldn't handle being on a boat or a car for anything longer than 10mins. Went on a 4 hour cruise on 26 December (after popping an entire packet of natural travel calm with only ginger extract) and no motion sickness. Holy ****. I think I might go to Wet & Wild in a bit (but of course I will take the travel calm with me)

 

Saying all that, I am still pretty tired and can nap anywhere, anytime...and I still get anxious. And I still feel funny sometimes when I turn my head (you know the one where your brain gets left behind), and some diarrhea, but nothing I can't handle or hide from other people...you wont' want to use a toilet after me though!

 

Timeframe per my signature. The first week was the worst but I did decide to cut the dose by 50% cause I was just sick of it. Now I am going to attempt to cut by 30% each week and its ok so far. I ran the numbers on a 10% taper and my crazy brain tells me that is unacceptably long. I have a history of not doing what I am told anyway and pushing the s**t ouf of everything and 1/2 the time I crash and burn and 1/2 the time it ended up awesome. So lets see what happens.

Prescribed Lexapro in 2003 and switched to Cipramil (5-10mg per day) 2004 with Lamictal.

Stopped Lamictal cold turkey with no withdrawals in 2014 with support of a Paleo diet. 

2003-2015 Cipramil only: 5mg 21 Dec 15: 2.5mg 28 Dec 15: 2.25mg 4 Jan 16: 1.575mg 10 Jan 16: 1.1025 11 Jan 16: 0.7875 25 Jan 16: 0.9, 1 Feb: 0.8, 8 Feb 0.75, 15 Feb 0.5, 29 Feb 0.25, 21 March 0.17, 4 April: 0.10, 25 April 0.05, 8 May 2016 0.05, 15 May 2016 NIL 21 June 2016 0.1, 5 Sep 16: 0.2 7 Sep 16: 0.15 16 Sep 16: 0.075 3 Oct 16: 0.015 17 October: 0.015, 14 Nov 2016: Reinstate 0.005, 26 Dec 16 0.0045, 2 Jan 17 0.004, 20 Feb 17 0.003, 3 Apr 17 0.002, 22 May 17 NIL. 

Supplements/Lifestyle: Daily exercise, low histamine and oxalate diet. Church music all the time! Integra Nutritionals GFD, B12 drops, Mag Oxide, Broccoli sprouts, Bovine Collagen Peptides, Integra Nutritionals Gemmune IB

 

 

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  • 6 years later...

Thought it might be nice to have a community thread for posting about improvements great and small, as we notice them occurring. We mention positive developments in our intro topics and of course there are the success stories; I'd love for this to be a place to pop in for a little snack of something promising, a little pick-me-up for when we want to share a nugget or savor a nibble. 

 

*

 

I've been noticing something I think is an improvement (curious to hear what you think): increased muscle efficacy/strength -- the opposite of muscle weakness. In other words, I feel like my muscles are working better!

 

This is remarkable to me because it's been a couple of years since I've been able to exercise properly, and I'm definitely in worse shape, much heavier with more fat and less muscle mass, than I was at the beginning of WD. I haven't been lifting weights or training, I can't do much at all. However I feel like my muscles work better. I've been noticing this on and off for the past few months. I still sometimes get muscle aches and extreme full-body fatigue, but it's like my muscles have more energy, more available resources to do what they need to do. I'm not sure how to describe it but it's pretty cool. 

 

This new experience is making me realize that I may have suffered from significant drug-induced muscle weakness for decades without even realizing it. I just thought how it was was normal. Now I'm thinking it probably wasn't normal at all! How else to explain that today I am much older, overweight, out of shape, with inadequate muscle mass, and still things seem to be working better? If it is indeed the case that I had muscle weakness side effects for most of my life, consider me retroactively offended. 

 

Does this resonate with anyone?

 

1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs)

2012-2018 - 10mg lexapro/escitalopram (20mg?)    Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg  -->  July 2018 - 0mg

2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg    2020-2021 - 70mg down to 0mg  -->  July 2021 - 0mg

March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT)  -->  April 28th, 2021 - 0mg

supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin 

August 1, 2022 - 1 mg melatonin

 

Courage is fear that has said its prayers.  - Karle Wilson Baker

love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters.  - Rev. angel Kyodo williams

Holding multiple truths. Knowing that everyone has their own accurate view of the way things are.  - text on homemade banner at Afiya house

 

I am not a medical professional; this is not medical advice. 

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I've been noticing something I think is an improvement (curious to hear what you think): increased muscle efficacy/strength -- the opposite of muscle weakness. In other words, I feel like my muscles are working better!

 

This is remarkable to me because it's been a couple of years since I've been able to exercise properly, and I'm definitely in worse shape, much heavier with more fat and less muscle mass, than I was at the beginning of WD. I haven't been lifting weights or training, I can't do much at all. However I feel like my muscles work better. I've been noticing this on and off for the past few months. I still sometimes get muscle aches and extreme full-body fatigue, but it's like my muscles have more energy, more available resources to do what they need to do. I'm not sure how to describe it but it's pretty cool. 

 

This new experience is making me realize that I may have suffered from significant drug-induced muscle weakness for decades without even realizing it. I just thought how it was was normal. Now I'm thinking it probably wasn't normal at all! How else to explain that today I am much older, overweight, out of shape, with inadequate muscle mass, and still things seem to be working better? If it is indeed the case that I had muscle weakness side effects for most of my life, consider me retroactively offended. 

 

Does this resonate with anyone?

1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs)

2012-2018 - 10mg lexapro/escitalopram (20mg?)    Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg  -->  July 2018 - 0mg

2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg    2020-2021 - 70mg down to 0mg  -->  July 2021 - 0mg

March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT)  -->  April 28th, 2021 - 0mg

supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin 

August 1, 2022 - 1 mg melatonin

 

Courage is fear that has said its prayers.  - Karle Wilson Baker

love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters.  - Rev. angel Kyodo williams

Holding multiple truths. Knowing that everyone has their own accurate view of the way things are.  - text on homemade banner at Afiya house

 

I am not a medical professional; this is not medical advice. 

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1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs)

2012-2018 - 10mg lexapro/escitalopram (20mg?)    Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg  -->  July 2018 - 0mg

2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg    2020-2021 - 70mg down to 0mg  -->  July 2021 - 0mg

March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT)  -->  April 28th, 2021 - 0mg

supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin 

August 1, 2022 - 1 mg melatonin

 

Courage is fear that has said its prayers.  - Karle Wilson Baker

love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters.  - Rev. angel Kyodo williams

Holding multiple truths. Knowing that everyone has their own accurate view of the way things are.  - text on homemade banner at Afiya house

 

I am not a medical professional; this is not medical advice. 

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