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Terry4949

Terry4949: Withdrawal help

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Martina23

Terry, I know it is terrible. The most terrible is that you have no relief 8 months out. But after 6 medicaments cold turkey within 12 months it is possible. I dont know if it is withdrawal  or damage from the medicaments but I believe there is always some solution. Sure you would better heal without medicaments but if it is too much then try to cooperate with some doctor to find some medicament which allows you to survive this worst time. To survive is the most important. Noone says that you have to take it all your life, later when you feel stronger you can taper it off.

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Terry4949

I know people have reported that neuropathy is part of withdrawel , but I have had a metallic taste in my mouth for months now , and my face and gums feel like the only way to describe it is that feeling you get when you have had a injection at the dentist for a filling , and my brain just burns , it’s with me all day , it feels like I have acid running through my veins , it’s very disturbing , has anyone else experienced this and have they found anything to ease this , or is it something else other than withdrawel , the taste thing is like you have a metal coin in your mouth constant , 

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Nikki74
41 minutes ago, Terry4949 said:

I know people have reported that neuropathy is part of withdrawel , but I have had a metallic taste in my mouth for months now , and my face and gums feel like the only way to describe it is that feeling you get when you have had a injection at the dentist for a filling , and my brain just burns , it’s with me all day , it feels like I have acid running through my veins , it’s very disturbing , has anyone else experienced this and have they found anything to ease this , or is it something else other than withdrawel , the taste thing is like you have a metal coin in your mouth constant , 

Hi Terry, I too have the metallic taste. My teeth tingle too and sometimes I get extreme pain when I eat something. I also get little pimply bits on the end of my tongue that sort of blister. I've also had the burning head pain but it comes in waves. My metallic taste started when I was taking Zopiclone over 7 weeks then ct'd over a month ago before I knew any better (was told to by psych!). The taste and sensitive teeth went but have come back. Some days the taste seems to build over the day. I totally get your feeling of acid in your veins!

 

I don't have any way of helping it. I'm just trying to accept it as withdrawal symptoms. I'm also on diazepam and I've read a side effect can be metallic taste but I'm stuck on it for however long.

 

i also smoke and don't think it helps but also can't just stop. But I think it's mainly withdrawal symptoms. However I have had windows from all the symptoms you describe and would think you will get them too.

 

What meds are you on and are you withdrawing right now? 

 

Healkng wishes, Nikki 

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Terry4949
34 minutes ago, Nikki74 said:

Hi Terry, I too have the metallic taste. My teeth tingle too and sometimes I get extreme pain when I eat something. I also get little pimply bits on the end of my tongue that sort of blister. I've also had the burning head pain but it comes in waves. My metallic taste started when I was taking Zopiclone over 7 weeks then ct'd over a month ago before I knew any better (was told to by psych!). The taste and sensitive teeth went but have come back. Some days the taste seems to build over the day. I totally get your feeling of acid in your veins!

 

I don't have any way of helping it. I'm just trying to accept it as withdrawal symptoms. I'm also on diazepam and I've read a side effect can be metallic taste but I'm stuck on it for however long.

 

i also smoke and don't think it helps but also can't just stop. But I think it's mainly withdrawal symptoms. However I have had windows from all the symptoms you describe and would think you will get them too.

 

What meds are you on and are you withdrawing right now? 

 

Healkng wishes, Nikki 

Hi Nikki thanks for your reply , I am currently not on any medication 9 months now c/t by the hospital , so I can’t blame it on any medication , I also get the very tingly teeth , it did go away but has come back again , I used sensitive tooth paste for months but has made no difference , I have never smoked so can’t attribute it to that , just seems 9 months of and all I can taste is metal , 

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Nikki74
1 hour ago, Terry4949 said:

Hi Nikki thanks for your reply , I am currently not on any medication 9 months now c/t by the hospital , so I can’t blame it on any medication , I also get the very tingly teeth , it did go away but has come back again , I used sensitive tooth paste for months but has made no difference , I have never smoked so can’t attribute it to that , just seems 9 months of and all I can taste is metal , 

It is definitely a withdrawal symptom Terry and it will go. I know it's dreadful. I too ct'd from three meds though reinstated one. Pregabalin was one of them (five months ago) and they work on GABA so I'm thinking it's that and the Zop which also affects gaba. I'm sending healing wishes. It will take time. I know mine will. 

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Terry4949

Another way to describe it is the feeling of being intoxicated but I don’t drink , the saliva in my mouth tastes chemical , but reminds me of if you have ever drunk spirits , the morning after taste , drink and food don’t remove the taste I can still taste it in my mouth all the time , maybe it’s not withdrawel and something else , 

 

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Nikki74
7 hours ago, Terry4949 said:

Another way to describe it is the feeling of being intoxicated but I don’t drink , the saliva in my mouth tastes chemical , but reminds me of if you have ever drunk spirits , the morning after taste , drink and food don’t remove the taste I can still taste it in my mouth all the time , maybe it’s not withdrawel and something else , 

 

It sounds like a withdrawal symptom to me because I've got it and I've had the odd window. Strange tastes and smells are common symptoms I've read Terry.

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Terry4949

This chemical feeling I am getting is getting worse day by day , my face and mouth feel like I am constantly being poisoned , my gums are sore , and it’s like I am drinking from a cup full of battery acid ,  9 months of all meds , seriously is this withdrawel , could it be really something else , don’t want to keep going to the doctors but am I over looking something here , can the drugs still be in my system after all this while , 

 

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Prince1924

 

Terry, it must be really awful for you to go through this.  I've been taking Prozac since 2004 and whenever I try to come off I get terrible symptoms.

 

A very very low mood takes hold and I end up going back on the meds again.  

 

Now that I know about withdrawal I find it gives me that extra knowledge.  That's why I think you should consider what the moderators are suggesting - to try a low dose of some drug that has helped you in the past.  

 

Its worth a try and when you stabilise,  you could then start a slow taper.

 

Best wishes.

 

 

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Terry4949

How do you know when withdrawel has stopped if you are still suffering with depression , for those that had chronic depression before a/d and that’s the reason you went on them in the first place , how do you know that your withdrawel has passed and that it’s not the original symptom , how do you go about dealing with it , the reason some of people were placed on meds obviously is because they had crushing depression and they needed something to survive what if you are back at that base level and you are trying to wait it out thinking it’s withdrawel , but you are just getting sicker 

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ChessieCat

Here is a topic about this question:  Is it withdrawal or relapse?  Or something else?
 

And also this:

 

On 22/08/2016 at 12:35 PM, scallywag said:

How do I know it's withdrawal and not relapse?

 

Typically, in withdrawal symptoms such as melancholia, anxiety, and disorientation come in intense waves, sometimes only a few minutes long, which differentiates them from relapse of a psychological condition.

In withdrawal, symptoms are much more intense than the original psychological condition. People suffering from withdrawal often say things like

- "This doesn't feel like my depression."
- "I've never had symptoms like this before."
- "I feel very weird and not like myself."
- "I can't feel my feelings."

It's up to you to decide whether your body and brain are behaving "normally" as they did before you tried medication, or if you are feeling differently. No one else, not even a doctor, can determine this.

 

Also see this post.

 

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Terry4949

Moderators have suggested that maybe starting a low dose of a antidepressant to help me stabilise in earlier posts, and then reduce slowly once this has happened to try and reduce withdrawel effects , I am in such a depressive state that I can hardly function , what would I even start , I have had sertraline , citalopram ,mirtazapine , quetiapine , buspar, flouxetine, lamotrigine , and found no relief the only one that sort of helped was Effexor but that pooped out and caused so much distress even when reinstating and upping dose , so where or what would you introduce , do I run the risk of destroying myself completely, the only negative thing about this forum I can say is it has installed utter fear in me about trying or reinstating any med now , even if it could get me out of this hole , I have spent ages trying to convince my family about what has happened to me ,but they think they see no improvement only me getting worse that all this protracted withdrawel maybe not be right as they can’t see the healing only the suffering , many people can reinstate their original med in time and stabilise but I am 3 years of the only one that did help untill it went against me , so confused about it all , I have now gone into a serious anhendonia stage which seems to be getting worse ,

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Prince1924

Terry,  yes it is very difficult to distinguish between what we are going through.  Is it our original  fears, anxieties, depression etc returning or is it withdrawal?  

 

 Perhaps we should think of it as both.  But it is the medication that is causing a lot more severe symptoms, many of which are physical  (such as fast beating hearts , and thinking everything is unreal and scary).

 

i remember when I was going through it I thought this was the 'real me' . And I went back on 20mg of Prozac.   But now I realise I may have been ok if I started back on say 10 mg.   who knows?

 

it sounds to me you are in withdrawal from the many drugs prescribed over a long time. 

 

It's up to you what you decide but and I hope you get relief soon from the hell you are going through.

 

 

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Krasiyan

I believe that if you can hold job and be physically active withdrawal has passed. If the only thing you have is strong emotions: sadness, happiness thats just your brain learning to use its emotions again. Taking as low as 5 mg of Paxil a few days for me, and I can fee the difference compared to before. It's very interesting to be so aware of yourself, and feel the diffrence with and without medication on your mood.

 

Edit: Sorry for the ignorant replay I just read your signature, my experience is low. I'm sure there are "veterans" on this amazing site who can help you. I got helped so I believe you can be helped also. Lastly always listen to your instincts, and your body, your the one in control, thats something I'm still struggling to learn for mysef, being raised as a spoiled child and all.

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FarmGirlWorks
On 10/19/2017 at 12:46 AM, UnfoldingSky said:

I know the lost time can't be made up for, however, once you start to see those glimmers of healing you realize there is so much beauty in the world that you appreciate more than if this had not happened.  It is worth it to keep going.

Unfolding Sky, thank you for this glimmer of hope. Terry, you are not alone...

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UnfoldingSky
On 10/11/2017 at 3:37 PM, FarmGirlWorks said:

Unfolding Sky, thank you for this glimmer of hope. Terry, you are not alone...

 

Glad to be of some help!

 

Terry how are you doing?

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RealMe

Terry, how are you doing?  Thinking of you and pulling for you.

 

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Terry4949
13 hours ago, UnfoldingSky said:

 

Glad to be of some help!

 

Terry how are you doing?

Thanks for asking unfoldingsky I am still struggling sleep has become very bad again only getting an hour at night to be honest , the last four or five weeks the head noise has really ramped up a loud pulsating noise especially in my right ear which is worse when I lie down , still have zero energy and feel like poison is running through my veins . I keep trying to motivate myself but generally feel crap all day , the old saying fed up of being fed up , 

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Staz
11 minutes ago, Terry4949 said:

Thanks for asking unfoldingsky I am still struggling sleep has become very bad again only getting an hour at night to be honest , the last four or five weeks the head noise has really ramped up a loud pulsating noise especially in my right ear which is worse when I lie down , still have zero energy and feel like poison is running through my veins . I keep trying to motivate myself but generally feel crap all day , the old saying fed up of being fed up , 

Hi Terry. I believe we've met on the FB Lyrica page. Sorry to hear you're suffering still. Are you under a psychiatrist currently and if so what do they make of your predicament? Your drug history is as bad as mine but at least you are off them. I've only managed to kick lyrica back in July and believe I'm still suffering w/d's from that experience and like you my depression is still out of control. My shrink has offered Lamotrigine as a mood stabiliser which does work for some. As I'm on 4 drugs already I'm loathed to take up this suggestion as nothing has worked for me and it would just be something more to withdrawal from. I'm trying to stabilise but finding it impossible and think it is still a lot to do with my lyrica experience. Why on earth did the hospital c/t you off fluoxetine after only 7 weeks. It takes 10-12 weeks to start working in my experience?

 

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Terry4949
6 minutes ago, Staz said:

Hi Terry. I believe we've met on the FB Lyrica page. Sorry to hear you're suffering still. Are you under a psychiatrist currently and if so what do they make of your predicament? Your drug history is as bad as mine but at least you are off them. I've only managed to kick lyrica back in July and believe I'm still suffering w/d's from that experience and like you my depression is still out of control. My shrink has offered Lamotrigine as a mood stabiliser which does work for some. As I'm on 4 drugs already I'm loathed to take up this suggestion as nothing has worked for me and it would just be something more to withdrawal from. I'm trying to stabilise but finding it impossible and think it is still a lot to do with my lyrica experience. Why on earth did the hospital c/t you off fluoxetine after only 7 weeks. It takes 10-12 weeks to start working in my experience?

 

Staz , the hospital c/ t of flouxetine because they don’t know what they are doing to be honest they stopped my mirtazapine and lyrica as well they were just throwing med after med and making everything worse , I am under a phyciatrist and he doesn’t believe in all this withdrawel in fact now I am 9 months of he says that all the drug is out of my system and withdrawals don’t last that long the usual old story , the physical damage it has done to me is unrelenting. I tried lamotrigine it didn’t do anything for me it might work for you , alto found it helpful others havnt , at the end of the day it’s another drug that you have to taper , strange for a site that doesn’t recommend drugs it suggest one to take . If you are allready on 4 meds I wouldn’t add another , I know what you mean about the lyrica coming of that absolutely destroyed me and I believe it is responsible for all my burning pain , mirtazapine and flouxetine were to activating for me ramped everything up ten fold , 

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Krasiyan

If you suspect you are suffering from withdrawal have you considered reinstating a very small dose, and then going from there? I don't think that adding more drugs will be a good idea if you are very sure its withdrawal to something you stopped.

 

My own small encounter wtih withdrawal has shown that reinstating a small amount helped me. Some time passed, and I started to feel bad again but not to the same degree I was before reinstatment so that might mean the medication worked on withdrawal, but its not enough. I might have to add even more later, will see.

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Staz

My shrink is the same Terry. He told me to cut my mirt by 50% then 2 weeks later got zero after 18 months on it. He did the same with quetiapine suggesting cutting 25mg every two weeks form 150mg. I got to 50mg and am still suffering as a result and can go no further as yet. He also told me my taper of 8 months on lyrica from 300mg to 0mg was too long and at 50mg wouldn't be effecting anything so it was all in my mind. I despair. 

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UnfoldingSky
13 hours ago, Terry4949 said:

Thanks for asking unfoldingsky I am still struggling sleep has become very bad again only getting an hour at night to be honest , the last four or five weeks the head noise has really ramped up a loud pulsating noise especially in my right ear which is worse when I lie down , still have zero energy and feel like poison is running through my veins . I keep trying to motivate myself but generally feel crap all day , the old saying fed up of being fed up , 

 

I'm sorry it's so difficult still Terry.   I have had ears plugging, strange loud noise in one ear, so bad I thought I'd have to go to the doctor, worried something serious happened...then in an hour it would go or move to other ear not as bad, and then move back and so on.  I have no idea if it was made worse by listening to music on headphones which I could manage later in withdrawal but I stopped doing that just in case.  It is frightening though to have it happen.  Then it would abruptly leave and it would be like it had not even happened.

 

Does yours come and go through the day?

 

Hoping you get some respite and a good long rest,

 

US

 

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Terry4949
9 hours ago, UnfoldingSky said:

 

I'm sorry it's so difficult still Terry.   I have had ears plugging, strange loud noise in one ear, so bad I thought I'd have to go to the doctor, worried something serious happened...then in an hour it would go or move to other ear not as bad, and then move back and so on.  I have no idea if it was made worse by listening to music on headphones which I could manage later in withdrawal but I stopped doing that just in case.  It is frightening though to have it happen.  Then it would abruptly leave and it would be like it had not even happened.

 

Does yours come and go through the day?

 

Hoping you get some respite and a good long rest,

 

US

 

No the head noise I get is constant all day even with sounds around me I can still hear it , the noise can be louder at night and a heavy pulsating noise worse on the right side of my head  , 

 

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Terry4949
21 hours ago, Krasiyan said:

If you suspect you are suffering from withdrawal have you considered reinstating a very small dose, and then going from there? I don't think that adding more drugs will be a good idea if you are very sure its withdrawal to something you stopped.

 

My own small encounter wtih withdrawal has shown that reinstating a small amount helped me. Some time passed, and I started to feel bad again but not to the same degree I was before reinstatment so that might mean the medication worked on withdrawal, but its not enough. I might have to add even more later, will see.

Reinstatement is out of the question , which one would you even try , over the last 12 months from Effexor , citalopram quetiapine mirtazapine , flouxetine pregablin lamotrigine, which one would you stabilise on , all of them made my symptoms a lot worse

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UnfoldingSky
15 hours ago, Terry4949 said:

No the head noise I get is constant all day even with sounds around me I can still hear it , the noise can be louder at night and a heavy pulsating noise worse on the right side of my head  , 

 

 

I can't think of the name of this, but, is it where you hear your heartbeat really loud in your ear? As I had that happen too sometimes for a bit.  It's not happened in a long while though, the other noise happened more recently.  No wonder you are having such a difficulty with sleep, with that going on!  I feel for you!

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Staz

Hi Terry,

Have you asked your doc about agomelatine? It's relatively new and supposed to be be as effective as any snri or ssri and works quickly. It's action is based on melatonin so promotes sleep  as well. It's trade name is Valdoxan. You need to keep your liver tests going with it for the first few months. It was offered to me but would require me to come of dosulepin first and have a two week gap before starting it as it's contradicted to TCA a/d's. http://www.brainprotips.com/agomelatine-review-the-truth-about-agomelatine-use-in-affective-disorders/

I've developed bad tinnitus after lyrica is that what you have mate?

Steve

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Martina23

Terry, hi, I hope you feel already better, just checking on you.

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Terry4949

How does this healing work I am so confused as to withdrawel or just depression if you read my history I have been dealt a bad hand by doctors concerning medications being placed on so many over a 18 month period and then taken of c/ t . I am now 10 months of after suffering for 4 years and if I have hit another wave it’s the worst one ever depression has descended on me like no other , I cannot eat sleep so apathetic cry all the time so fatigued and the waves are getting more and more intense, I have been of all meds 10 months and I am not seeing any improvements yet but the depression is so much worse deep and dark struggling to tell if it’s withdrawel or just normal depression and I don’t know what to do to pull me out I’m loosing everything . I keep thinking I need to be on another medication but I know they havnt helped but I am so desperate now I’m loosing faith in recovery but I have been clean for 10 months but can’t survive this for another 10 , any suggestions

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bhasski

Keep hope.

I cannot assure you time or any supplement.. I have been off 21 months, and definitely currently what I am dealing is better than what was a year ago.

 

I have been trying things, and that just let me keep going w/o evil drugs.

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Terry4949

Can akathisia appear after 10 months of not taking any medication , I have been going to bed a night falling a sleep for about a hour the waking so restless cant lie still for more than a minute a inner turmoil that has me tossing and turning so when I get up I just sit and then want to curl in a bal and keep moving back and forth I feel in side that I want to move all my limbs I am not doing very well at the moment and the doctors are trying to get me back in hospital where I don’t want to go , they want me on a med and I have resisted for 10 months now but because I am in such a bad place they may take that decision out of my hands , this is so bad , is there anything I can do for the restlessness please help 

 

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UnfoldingSky

Hi Terry,  Good to hear from you though wish it was under much better circumstances.  I wondered how you were and how you've been over holidays.

 

Is the restlessness only coming at night?  It may be akathisia but it could also be restless leg syndrome.  That one comes on at night mostly...will be less severe overall than akathisia would be. I had both, akathisia first then way later on had RLS. 

 

Probably the simplest thing to try that is non-invasive--get a weighted heating pad or blanket and just lay it across your legs to try to keep down the urges to move around so you can get some sleep.  (With a heating pad don't heat it up.)  If you aren't doing this now, avoid sugar and caffeine too especially close to bedtime as that I noticed could make either condition worse.  With RLS I could possibly totally prevent a bout just watching what I ate.

 

I truly hope you are able to avoid the hospital, you are in my thoughts.

 

US

 

 

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UnfoldingSky

Also, should have said akathisia is now long gone for me, RLS only ever came here or there too and have not had that in a while either.  It is more bearable and with a weighted heating pad, barely a bother, and as I said often down to what I've eaten. 

 

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Terry4949
2 hours ago, UnfoldingSky said:

Also, should have said akathisia is now long gone for me, RLS only ever came here or there too and have not had that in a while either.  It is more bearable and with a weighted heating pad, barely a bother, and as I said often down to what I've eaten. 

 

Unfoldingsky it’s not rls it’s a uncomfortable feeling of having to move inner vibrations I just toss and turn every 1 minute or so like my body aches , I can’t sleep but just kind of roll in a ball and have an overwhelming urge to move 

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UnfoldingSky

Okay gotcha. Do you think a weighted blanket might help? A few people here have akathisia and are finding it helpful. 

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GracieAnn

I have the same problem-from Prozac. Have you tried clonidine? The weighted blanket is nice but didn’t stop my writhing.

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