Terry4949 Posted July 27, 2022 Author Share Posted July 27, 2022 5 hours ago, Onmyway said: Hi @Terry4949, looking at your symptoms I wonder if you don't have an allergy to something in your environment. I was diagnosed with chronic cough at some point until it was discovered that I was allergic to mold and the place where I lived had some. Does your sinusitis get better in different environments - i.e. better outside than inside? It may be worth investigating. Chronic sinusitis is also a real thing so I am not saying you don't have that but this one is treatable. And lots of allergies cause fatigue though if they caused fever it would be low grade and is not common. OMW Thank you for your reply I don’t think it’s a allergy I have had it after getting a bad cold 3 years ago and it never cleared up my sinuses doesn’t get better in different environments I have had it constant for 3 years no let up not a single day of relief all day long I just keep bringing up or swelling a thick very white mucus always running down my throat and making me cough ,sorry about the graphics , all day every day I have always had a dry mouth that goes with it the thing is here in the uk trying to get a hospital appointment is a joke I was refer to the ENT clinic in may 2021 then I heard from them in October 2021 telling me my appointment will take 104 weeks that’s two years so I have another year to wait for a appointment I can’t afford private maybe I should see about a allergy test 2001 to jan 2015 Effexor 150 mg jan 2015 15 mg mirtazapine 20 mg quetiapine feb 2015 quetiapine stopped feb 2015 30 mg of citalopram added feb 2015 mirtazapine increased to 30 mg july 2015 citalopram stopped sept 2015 200mg of pregabalin jan 2017 mirtazapine stopped jan 2017 20 mg fluoxetine march 2017 all meds stopped Link to comment
Terry4949 Posted July 27, 2022 Author Share Posted July 27, 2022 Really need some advice now I have had such a bad day today everything getting on top of me felt so depressed to day just cannot function had awful suicidal idealations all afternoon very intense can’t believe how 4 weeks have changed me do you think I should call for help I know they will hospitalise me just can’t lift my depression it’s suffocating me my doctor has referred me to a mental health team but it will take up to 12 weeks to get seen I’m not coping very well I have been here before 6 years ago and it took me 3 years to get back to some sort of stability don’t think I have it in me to do it again sorry 2001 to jan 2015 Effexor 150 mg jan 2015 15 mg mirtazapine 20 mg quetiapine feb 2015 quetiapine stopped feb 2015 30 mg of citalopram added feb 2015 mirtazapine increased to 30 mg july 2015 citalopram stopped sept 2015 200mg of pregabalin jan 2017 mirtazapine stopped jan 2017 20 mg fluoxetine march 2017 all meds stopped Link to comment
Moderator Onmyway Posted July 27, 2022 Moderator Share Posted July 27, 2022 (edited) 47 minutes ago, Terry4949 said: Thank you for your reply I don’t think it’s a allergy I have had it after getting a bad cold 3 years ago and it never cleared up my sinuses doesn’t get better in different environments I have had it constant for 3 years no let up not a single day of relief all day long I just keep bringing up or swelling a thick very white mucus always running down my throat and making me cough ,sorry about the graphics , all day every day I have always had a dry mouth that goes with it the thing is here in the uk trying to get a hospital appointment is a joke I was refer to the ENT clinic in may 2021 then I heard from them in October 2021 telling me my appointment will take 104 weeks that’s two years so I have another year to wait for a appointment I can’t afford private maybe I should see about a allergy test Hi Terry, the mucus/swelling is basically the result of inflammation and the inflammation can be caused by viruses or bacteria or allergies or local irritation. Usually I would suggest that you take an antihistamine to see if it would get better but in your sensitized state that would be risky. In the UK many many houses have mold as it's a very humid climate. This is more prominent if you live on a ground floor or in an older house. You usually don't see mold. I can smell/feel it as I react almost immediately with increased mucus but if your nose is already stuffy you lose that sensitivity. It may also be that you are allergic to something else that is even harder than mold - like acari (dust mites) - that is everywhere. It may be worth putting yourself on that waitlist as well with the doctor. Though this can be administered in the GP office generally, it's not a complicated test. Regardless of what it is, one thing that will help is nasal lavage - using a neti pot or a nasal spray. It will probably allow you to sleep better if you do it in the evening. I suspect that will have an impact both on your mood and your recovery. Be careful to follow the instructions and use distilled (pharmacy bought) water - not tap water that can be contaminated with amoeba. How to Use a Neti Pot: Step-by-Step Instructions (healthline.com) It looks more complicated than it is in reality. You could even get a saline solution (but not the one for contacts) - just a sterile 0.09% NaCl - that is cheaper. I am unable to paste the link here to Amazon for some reason but look up Baxter NaCl on amazon.co.uk to see what I mean. Hope you feel better soon, OMW Edited July 27, 2022 by Onmyway 1 "Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. Aug 2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg, xanax prn, wellbutrin for a few months, trazodone prn Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used) Aug 2018 - citalopram 40 mg (self titrated up) September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0 Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering) citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg, 7/27/19 -1.5 mg, 8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg Supplements: magnesium citrate and bi-glycinate Link to comment
Moderator Onmyway Posted July 27, 2022 Moderator Share Posted July 27, 2022 43 minutes ago, Terry4949 said: Really need some advice now I have had such a bad day today everything getting on top of me felt so depressed to day just cannot function had awful suicidal idealations all afternoon very intense can’t believe how 4 weeks have changed me do you think I should call for help I know they will hospitalise me just can’t lift my depression it’s suffocating me my doctor has referred me to a mental health team but it will take up to 12 weeks to get seen I’m not coping very well I have been here before 6 years ago and it took me 3 years to get back to some sort of stability don’t think I have it in me to do it again sorry Hi Terry, we can't really tell you what to do - we don't know how you feel. This one is entirely up to you. If you are in a crisis we advise on the ground support. Whether that is a hospital or a different form a support is up to you and your doctor. This is what I found in terms of suicide hotlines in the UK. Helplines and listening services - Mind Please update us on how you are feeling. I am so sorry you are feeling so miserable. OMW "Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. Aug 2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg, xanax prn, wellbutrin for a few months, trazodone prn Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used) Aug 2018 - citalopram 40 mg (self titrated up) September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0 Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering) citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg, 7/27/19 -1.5 mg, 8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg Supplements: magnesium citrate and bi-glycinate Link to comment
redkite Posted July 27, 2022 Share Posted July 27, 2022 Hi terry, I have used the samaritans when I have been at my wits end and they were amazing, I see they are in the help listed that OMW gave you. Ring them they will help. You can ring them anytime of day or night. They dont judge or tell you what to do. They listen with empathy, understanding and really care. There are there for people in a crisis. Take care. Redkite 1 Anti-depressant roundabout-2013-2019 ( 5 different ones all effectively CT) Paroxetine-2019-2022- Various from 10 to 30. Reduced from 30mg to twenty over summer, winter 21. Stablized. reduced from 20ml to 12.5 jan-july22. Some holds some reinstate of tiny tiny bit and then hold around 15mg. Last drop from 13.5 to 12.5 18th july . Had to add a tiny bit/ Held on drop day due to stress of invironment, dropped to 12. 7th september Droped to 11.25 gradually threw september picking smaller bits from the left over pot!!! Will stay at 11.25 for a couple of weeks. Shaky and tired. 10.65 28th October. Terrible november and december so uped to 11. slightly better will stick at 11 till spring at the earliest. May 10mg... finally, but what a drama. Totally exhausted!!! Back up to 10. and a bit !! Cant believe how sick I get. 10 mg some time in june? middle of August back up to 10mg and 30th. ( 10.33?) Link to comment
Ariel Posted July 27, 2022 Share Posted July 27, 2022 @Terry4949 I'm so sorry you're going through such a rough time. My heart goes out to you in your suffering. I wish there were something I could do to ease your pain. Sending all my support and a big hug, too <3 A. 1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs) 2012-2018 - 10mg lexapro/escitalopram (20mg?) Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg --> July 2018 - 0mg 2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg 2020-2021 - 70mg down to 0mg --> July 2021 - 0mg March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT) --> April 28th, 2021 - 0mg supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin August 1, 2022 - 1 mg melatonin Courage is fear that has said its prayers. - Karle Wilson Baker love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters. - Rev. angel Kyodo williams Holding multiple truths. Knowing that everyone has their own accurate view of the way things are. - text on homemade banner at Afiya house I am not a medical professional; this is not medical advice. Link to comment
Longroadhome Posted July 28, 2022 Share Posted July 28, 2022 @Terry4949 So sorry you are having to go through this. Do call the Samaritans, they are there to help. Keeping my fingers crossed this wave soon passes. Nov 2018 Pregabalin 2x50 mg a day to help with Paxil WD. Aug 2019 2 x 25mg a day, April 2020 45mg, May 40mg, June 35mg, July 30mg, end July 25mg, Aug 24mg, June 2021 14mg, Jan 2022 14mg (2x7mg a day), Oct 10mg, Nov 5mg, December 25th 2022 0mg 🎈 Oct 2004 - Oct 2018 Paxil 20 mg, Nov 15mg, Dec 10mg, Feb 2019 7.5mg crashed, Feb 8.5mg, Nov 8mg, March 2020 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, Dec 4.5mg, Jan 2021 4mg, Feb 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, Feb 2022 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg, October 6th 2022 0mg 🎈 December 25th 2022 drug free these dates are approximate Link to comment
Terry4949 Posted July 28, 2022 Author Share Posted July 28, 2022 I called my sister inlaw last night she came and sat with me didn’t sleep to well today I have a awful feeling of emptiness like I just dont really care anymore my emotions to everything feel so flat no interest yet I could just cry just staring into space sort of feeling I don’t know what is worse the depression fleeting anhendonia or the overwhelming feeling of apathy the fatigue is very bad and for some unknown reason now my voice has become very husky and faint a new symptom never had before I truly feel lost 2001 to jan 2015 Effexor 150 mg jan 2015 15 mg mirtazapine 20 mg quetiapine feb 2015 quetiapine stopped feb 2015 30 mg of citalopram added feb 2015 mirtazapine increased to 30 mg july 2015 citalopram stopped sept 2015 200mg of pregabalin jan 2017 mirtazapine stopped jan 2017 20 mg fluoxetine march 2017 all meds stopped Link to comment
Moderator Onmyway Posted July 28, 2022 Moderator Share Posted July 28, 2022 (edited) @Terry4949your voice likely changed from the postnasal drip (the mucus that doesn't drain from your nose goes back through your throat. I wouldn't worry about that part. Edited July 28, 2022 by Onmyway Corrected postnatal autocorrect to postnasal "Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. Aug 2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg, xanax prn, wellbutrin for a few months, trazodone prn Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used) Aug 2018 - citalopram 40 mg (self titrated up) September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0 Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering) citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg, 7/27/19 -1.5 mg, 8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg Supplements: magnesium citrate and bi-glycinate Link to comment
Ariel Posted July 28, 2022 Share Posted July 28, 2022 @Terry4949 So glad to hear you called your sister-in-law and she was able to come sit with you. Give yourself lots of credit for reaching out! Are you familiar with this excellent help topic? I often revisit and re-read it carefully when I'm in a wave. Hang in there, Terry. You can do this! The wave is temporary, it will pass. Healing is happening <3 1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs) 2012-2018 - 10mg lexapro/escitalopram (20mg?) Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg --> July 2018 - 0mg 2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg 2020-2021 - 70mg down to 0mg --> July 2021 - 0mg March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT) --> April 28th, 2021 - 0mg supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin August 1, 2022 - 1 mg melatonin Courage is fear that has said its prayers. - Karle Wilson Baker love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters. - Rev. angel Kyodo williams Holding multiple truths. Knowing that everyone has their own accurate view of the way things are. - text on homemade banner at Afiya house I am not a medical professional; this is not medical advice. Link to comment
Arti Posted July 29, 2022 Share Posted July 29, 2022 On 7/12/2022 at 7:17 PM, Terry4949 said: then he said my thyroid for the last 3 years is on the border line high and he wouldn’t want it to go any higher but in the last 3 years I havnt been informed of this I live in the uk and the institution for thyroid disorders and treatment give a reading for a man to be low 2.5 and high 4.0 mine has been 4.9 for the last 3 years doctors in the uk go by high being 5.0 even though the institution for thyroid say that’s to high then my doctor said to me that my iron levels in my blood are on the low side so how can I have high ferritin and low iron Hello Terry Sorry for disturbing im very exhausted today so i will write shortly. Have you ever read Karmas Thread. I think she is still active on SA maybe you can show here your complete values and ask for her opinion. I dont know if this is the reason for your condition but maybe a part of it. Dont know how it works in England but maybe you can get an appintment at the endocrinologist. Sorry i dont want to confuse you just trying to help. Paroxetin 2003-2018 20mg, 4 Month fast tapper reinstate Jan2019 many updoses to 10mg again fast tapper quit at 1,5mg last last Dose May 2020 Trimipramin April 2019 10mg to 25mg 4 weeks last Dose April 2019 Dominal April 2019 - February 2021 40mg to 60mg fast tapper and ct at 23mg last Dose February 2021 Ativan May 2020 6 times 0,5mg irregular last Dose May 2020 Diazepam june 10 times 5mg irregular thougt i got depency and decide to take a small Dose every day, july 2020 0,14mg tappering every few weeks 16th January 2022 Zero Link to comment
almuPA Posted July 31, 2022 Share Posted July 31, 2022 Hello @Terry4949, I am so so sorry to read what you are going through. All I can say is that please please, hang in there, we are here reading and listening to you. I totally understand you with the health issues in the UK. It is really frustating not being able to visit a specialist, or even that your GP listens to you. Are you able to do something to distract yourself? Like watching netflix or youtube, playing with your phone, reading, listening to podcasts or music, gardening... anything? I've found that when I am feeling that bad, the only thing possible for me is let the time pass while distracting my mind. I just wanted to let you know that you are not alone in this. I send a big hug. 1 March 2019: 10mg Citalopram April 2019: 20mg Citalopram October/November 2019(sorry, I don't remember the exact date): 10mg of Citalopram without tapering, as suggested by my pharmacist. March 2020: Started "tapering", taking the 10mg of Citalopram every other day, again, following the recommendations of my pharmacist. April 2020: Stopped taking Citalopram. I haven't reinstall since then. I've tried taking Magnesium a couple of times, but I found out it makes me nervous. I only take Paracetemol when the headache becomes unbearable (2gr every couple of weeks or so). Link to comment
Terry4949 Posted July 31, 2022 Author Share Posted July 31, 2022 2 hours ago, almuPA said: Hello @Terry4949, I am so so sorry to read what you are going through. All I can say is that please please, hang in there, we are here reading and listening to you. I totally understand you with the health issues in the UK. It is really frustating not being able to visit a specialist, or even that your GP listens to you. Are you able to do something to distract yourself? Like watching netflix or youtube, playing with your phone, reading, listening to podcasts or music, gardening... anything? I've found that when I am feeling that bad, the only thing possible for me is let the time pass while distracting my mind. I just wanted to let you know that you are not alone in this. I send a big hug. Thank you for your reply distracting myself is very hard but I do try the apathy is awful though just no interest I don’t watch tv I find it upsetting and I just can’t focus I struggle to take anything in I really struggle with music I find it upsetting it makes me very emotional especially if I hear songs from the past I have had this reaction for about 6 years now it’s a strong neuro emotion I’m not really a gardener but I have chickens so I do spend time sitting outside watching them I think because the apathy and depression are so deep motivation is very hard plus the fatigue but I do push myself I am able to look after myself like wash personal hygiene shave and shower I try to get out for a walk most days even if I have to force myself but I knocks me up makes me feel very week and sweaty I over heat ever so easily so even a small walk when I get home I have to lay down I thank you again for your lovely response and taking time reading my post 2001 to jan 2015 Effexor 150 mg jan 2015 15 mg mirtazapine 20 mg quetiapine feb 2015 quetiapine stopped feb 2015 30 mg of citalopram added feb 2015 mirtazapine increased to 30 mg july 2015 citalopram stopped sept 2015 200mg of pregabalin jan 2017 mirtazapine stopped jan 2017 20 mg fluoxetine march 2017 all meds stopped Link to comment
Administrator Altostrata Posted July 31, 2022 Administrator Share Posted July 31, 2022 17 hours ago, Terry4949 said: rmce72a this is what happened to me after 14 years on the ven I hit tolerance and even though I was still taking the drug everyday I had severe withdrawals I basically was crawling into my doctors crying wondering what was going on unfortunately my doctor had no knowledge of poop out and withdrawal so stopped me c/t from 150 mg what I now know is I should have reinstated and tapered slowly to reduce the harm I would definitely take your time coming off even though you feel bad with the poop out withdrawals the tapering will still lesson the severe affects I had noticed that during my poop out the white of my eyes had turned yellow apparently that was a sign that the med had effected my liver once I was off the med they went back to normal I believe venalaxafine gives you a toxic overload after a long period of use that’s why we feel so bad I hope everything goes well with your tapering @Terry4949 you had liver damage. This can also be from alcohol overuse or drug-drug conflicts in the liver. Many of your symptoms might have been from this. When was the last time you had a liver function test?? This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment
Terry4949 Posted August 1, 2022 Author Share Posted August 1, 2022 5 hours ago, Altostrata said: @Terry4949 you had liver damage. This can also be from alcohol overuse or drug-drug conflicts in the liver. Many of your symptoms might have been from this. When was the last time you had a liver function test?? I don’t drink alcohol not drank it in over 20 years and only had the occasional drink it was only when I hit tolerance to venalaxafine I noticed that the whites of my eyes were yellow once of the drugs they went back to normal I had a liver function test about 3 years ago all was normal the only thing that is out of range has been high ferritin and my cholesterol is high but it eat a very well balanced diet no junk food or sweet food 2001 to jan 2015 Effexor 150 mg jan 2015 15 mg mirtazapine 20 mg quetiapine feb 2015 quetiapine stopped feb 2015 30 mg of citalopram added feb 2015 mirtazapine increased to 30 mg july 2015 citalopram stopped sept 2015 200mg of pregabalin jan 2017 mirtazapine stopped jan 2017 20 mg fluoxetine march 2017 all meds stopped Link to comment
Ariel Posted August 5, 2022 Share Posted August 5, 2022 Hello dear @Terry4949 Thinking of you and sending healing vibes <3 1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs) 2012-2018 - 10mg lexapro/escitalopram (20mg?) Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg --> July 2018 - 0mg 2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg 2020-2021 - 70mg down to 0mg --> July 2021 - 0mg March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT) --> April 28th, 2021 - 0mg supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin August 1, 2022 - 1 mg melatonin Courage is fear that has said its prayers. - Karle Wilson Baker love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters. - Rev. angel Kyodo williams Holding multiple truths. Knowing that everyone has their own accurate view of the way things are. - text on homemade banner at Afiya house I am not a medical professional; this is not medical advice. Link to comment
Pepms Posted August 7, 2022 Share Posted August 7, 2022 Hi @Terry4949 how have you been ?? Hope all is good !! 2013-2021 Lexapro 20mg 10-21 started lexapro tapering 3-22 lexapro free 5-22 started to get paresthesia all over body mainly in legs , numbness, tingling, stinging sensations 6-22 neurologist started me on Lyrica 25mg twice a day to see if it helps with the paresthesia, got a nerve conduction test which was negative 6-22 neurologist suggested quitting lyrica as it isnt seem to be helping, and reinstating 5mg lexapro to see if it helps with the symptoms, thinking of starting lower at 2.5mg 6-13-22 stopped lyrica by doctor order (only took it 4 days ) 6-14-22 reinstated 2.5mg lexapro 6-15-22 neurologist added 10mg amitriptyline to try and help with paresthesia sensory symptoms 6-22-22 updose to 5mg lexapro (bad reaction, paresthesia got worse, back to 2.5mg next day) 6-27-22 went to see a new internal doctor, per symptoms (lack of appetite that had been going on for almost a month, the paresthesia, and gi problems), told me to suspend everything i was taking and take new low dose combination drug (Adepsique) 5mg amitriptyline/ 1.5mg Diazepam / 1mg Perphenazine and 40mg Propranolol for daytime sinus tachycardia Link to comment
Longroadhome Posted August 16, 2022 Share Posted August 16, 2022 @Terry4949 checking in, how are things? Hoping the answer is wave is subsiding. take care. Nov 2018 Pregabalin 2x50 mg a day to help with Paxil WD. Aug 2019 2 x 25mg a day, April 2020 45mg, May 40mg, June 35mg, July 30mg, end July 25mg, Aug 24mg, June 2021 14mg, Jan 2022 14mg (2x7mg a day), Oct 10mg, Nov 5mg, December 25th 2022 0mg 🎈 Oct 2004 - Oct 2018 Paxil 20 mg, Nov 15mg, Dec 10mg, Feb 2019 7.5mg crashed, Feb 8.5mg, Nov 8mg, March 2020 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, Dec 4.5mg, Jan 2021 4mg, Feb 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, Feb 2022 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg, October 6th 2022 0mg 🎈 December 25th 2022 drug free these dates are approximate Link to comment
Lauren90 Posted August 17, 2022 Share Posted August 17, 2022 On 7/31/2022 at 12:25 PM, Terry4949 said: Thank you for your reply distracting myself is very hard but I do try the apathy is awful though just no interest I don’t watch tv I find it upsetting and I just can’t focus I struggle to take anything in I really struggle with music I find it upsetting it makes me very emotional especially if I hear songs from the past I have had this reaction for about 6 years now it’s a strong neuro emotion I’m not really a gardener but I have chickens so I do spend time sitting outside watching them I think because the apathy and depression are so deep motivation is very hard plus the fatigue but I do push myself I am able to look after myself like wash personal hygiene shave and shower I try to get out for a walk most days even if I have to force myself but I knocks me up makes me feel very week and sweaty I over heat ever so easily so even a small walk when I get home I have to lay down I thank you again for your lovely response and taking time reading my post Hi Terry, i was reading through your thread and I’m so sorry to hear what you continue to go through. you say that TV and music are unsettling, can you elaborate on this a bit? Is it because you can’t focus on tv and music makes you miss the past when things were good? I get triggered by tv and music as well. 2000-2018 150-200mg Sertraline and Vyvanse 2018- vyvanse 60mg to 0 over 6mo. 200mg Sertraline to 150mg. 2019- 150mg Sertraline to 100mg. Early 2021- 100mg to 87.5, two weeks later 87.5 to 75mg, 1.25-4mg bromazepam PRN. Mid 2021 - Feb 2022 taper 2.5%-5% 75mg to 50mg. March 2022 bromazepam for 3 weeks. May 9th 2022 started Propranolol, 10mg in the morning and 10mg in the evening. July 2022- off propranolol Oct 2022- off birth control. Dec 2022- updose sertraline 100mg, benztropine 1mg and Ativan 1mg. March 2023- stop benztropine. May 2023 - ativan taper finished. May 2023 - updose Sertraline to 125mg added propranolol 40mg added Ativan 1mg. July 5- sertraline 112.5mg propranolol 60mg, quick 2 week Ativan taper. Current meds: propranolol 60mg, sertraline 106.25mg, Ativan .025mg, B6, CoQ10, Magnesium Glycinate Link to comment
almuPA Posted August 22, 2022 Share Posted August 22, 2022 On 7/31/2022 at 9:25 PM, Terry4949 said: distracting myself is very hard but I do try the apathy is awful though just no interest I don’t watch tv I find it upsetting and I just can’t focus I struggle to take anything in I really struggle with music I find it upsetting it makes me very emotional especially if I hear songs from the past I have had this reaction for about 6 years now it’s a strong neuro emotion I’m not really a gardener but I have chickens so I do spend time sitting outside watching them I am sorry that is hard to distract yourself. Althought, I totally I understand you with the music. In the thick of it, I would be crying for hours after hearing a song, so I get what you said. However, being outside watching the chicken sounds very entertaining. It is good that you find the strength to do that, well done. How have you been lately? Any changes? I send you a hug. 1 March 2019: 10mg Citalopram April 2019: 20mg Citalopram October/November 2019(sorry, I don't remember the exact date): 10mg of Citalopram without tapering, as suggested by my pharmacist. March 2020: Started "tapering", taking the 10mg of Citalopram every other day, again, following the recommendations of my pharmacist. April 2020: Stopped taking Citalopram. I haven't reinstall since then. I've tried taking Magnesium a couple of times, but I found out it makes me nervous. I only take Paracetemol when the headache becomes unbearable (2gr every couple of weeks or so). Link to comment
Oaktree1 Posted August 22, 2022 Share Posted August 22, 2022 Hi Terry, Just wanted to chime in and say that I am very sorry to hear you are suffering so much. It is awful for you. I can't listen to music anymore either and I used to sing - don't do it anymore so I can relate to music and that making you cry because it brings up stuff from the past and that. I am going back to a peer support group - I don't want to but it's the only option available if one is very isolated. would there be any near you that you could maybe force yourself to attend? Just meeting likeminded people who have similar troubles to you might help a bit. Oaktree 1 Currently tapering Mirtazapine; previously tapered Cymbalta 30mg from June 2018-Feb 2019 and Seroquel 150mg to zero from Oct-December 2020. Supplements for Hashimoto's disease and histamine issues relating to Mirtazapine: Vitamin D3 1,000mcg, bio-identical HRT, Selenium, Quercetin, Lutein, Zinc, Vitamin C, Omega 3. Mirtazapine Taper: 2021 16th Aug - transitioned to liquid from tablet by dissolving two 15mg tablets into a solution of 15 ml water and 15 ml maple syrup on a starting dose of what I thought was 7.5ml; 17 Sept - 7.31; 24 Sept - 7.13; 15 Oct - 6.95; 6 Nov - 6.78; 21 Nov - 6.61; 5 Dec - 6.51; 2022 - 1 Jan 6.41; 1 Feb - 6.1; 9 Mar - 5.8; 13 Mar - 5.9; 7 Apr - 5.8; 21 Apr - 5.7; 7 May - 5.63; 23 May - 5.55; 8 June 5.50; (got COVID on 12th June so held); 1 July 5.4; 15 July 5.32; 8 Aug 5.2; 15 Aug 5.1; 22 Aug 5; 19 Sept 4.9; 2 Oct 4.81; 13 Oct 4.71; (COVID Booster 17/10/22 so longer hold ); 1 Nov 4.65; 3 Nov 4.60; 10 Nov 4.55; 13 Nov 4.50; 17 Nov 4.45; 20 Nov 4.40; 2 Dec 4.30mg; 9 Dec 4.20mg; I discovered that the volumetric container measured 33ml rather than 30ml in Dec 2022. Following helpful advice from moderator OnMyWay (see her reply of the 5th March) discovered taper with the dilution was 3.8mg (calculated by dividing 30/33 so that every 1ml of solution has 0.90ml of Mirtazapine. 7.50 - 0.90= 6.6ml which was the starting dose on 16th Aug 2021 not 7.5ml). I decided to keep using the solution as I didn't want more change to deal with than I had to. 2023 17 Mar 4.1(3.7); 26 Mar 4.0(3.6); 14 Apr 3.9(3.51)28 Apr 3.8(3.42); 6 Jun 3.7(3.33); 19 Jun 3.6(3.24); 30 Jun 3.5(3.1); 19 Jul 3.4(3.06); 27 Jul 3.35 (3.01); 29 Jul 3.3 (2.97); 4 Aug 3.25 (2.92); 7 Aug 3.2 (2.88); 21 Aug 3.1 (2.79); 14.09 3 (2.7); 29th Sept 2.9(2.61); 15 Oct 2.8(2.52); 30 Oct 10 2.7(2.43); 13 Nov 2.65(2.38); 20 Nov 2.6(2.34); 26 Nov 2.55(2.29); 10 Dec 2.5(2.25); 2024 - 14 Jan 2.45(2.20); 22 Jan 2.40(2.16); 29 Jan 2.35(2.11); 2 Feb 2.3 (2.07);15 Feb 2.25(2.02); 22 Feb 2.21 (1.98); 29 Feb 2.17(1.95); 7 Mar 2.13(1.91); 21 Mar 2.05 (1.84); 31 Mar 2.01 (1.80); 14 Apr 1.90 (1.71); This is not 'medical advice' - my 'non medical advice' is don't get any more 'medical advice' or you may end up getting more 'medical treatment' i.e more drugs, DSM labels and/or ECT. Please do not PM me thanks. Link to comment
Terry4949 Posted October 20, 2022 Author Share Posted October 20, 2022 So after after the last horrific wave of despair and depression I started to come out of it still suffering but things were getting more manageable the depression had eased slightly and I was able to eat the cortisol mornings and sweating stopped but sleep was still poor but I was able to go out for a walk without feeling exhausted and I started to socialise a little more but things were manageable then on Sunday I felt sluggish so just had a easy day but not feeling to bad Monday I woke and instantly felt the cortisol morning spike back soaked in sweat so got up and I have crashed completely again the fatigue is overwhelming I can hardly get of the sofa just yawn all day no motivation my whole body aches I have no appetite on Saturday everything was fine eating well was able to go out for a walk etc I feel so unwell my mouth is very dry and I’m urinating all the time I have the inner tremors back the tingling sensations overheating then freezing cold just like acute withdrawal I’m nearly at 6 years off all meds but every time this happens I actually feel worse all my blood tests have come back normal except for high ferritin I have never had windows but have had times when things have seemed less severe but I am in tears again and my mood is so low I can’t think of anything that has triggered it only I used a nasal spray but I can’t see that causing me to have such severe symptoms again and why did the cortisol spikes come back I have been eating well practise great sleep and personal hygiene is this how it’s always going to be I see so many people after 2-3 years do so well and every year I think time is the only healer but as time goes on I think I’m getting worse I don’t have anyone to talk to those that I do talk to just say I need to be on a med and they don’t understand kindling and what has happened to me this is probably the only place that I can talk I have started to get anxiety again something that I havnt had for years I take a small amount of magnesium glycinate now but can’t tolerate any supplements I just can’t get round the fact that I felt ok two days earlier I could live a bit now I’m back in despair I just feel like crying all the time for me this has been going on for 10 years now since I hit tolerance and all through it my motivation has been good even on the worst days I went out for a walk and forced myself to do something I spent nearly 3 years with anhendonia and suicidal thoughts every single day but kept going but it’s been 10 years of torture to be honest I just wish I new when this will all end thanks for listening 2 2001 to jan 2015 Effexor 150 mg jan 2015 15 mg mirtazapine 20 mg quetiapine feb 2015 quetiapine stopped feb 2015 30 mg of citalopram added feb 2015 mirtazapine increased to 30 mg july 2015 citalopram stopped sept 2015 200mg of pregabalin jan 2017 mirtazapine stopped jan 2017 20 mg fluoxetine march 2017 all meds stopped Link to comment
Mentor RachelSusan Posted October 20, 2022 Mentor Share Posted October 20, 2022 (edited) @Terry4949 It's nice to see you posting again, although I am very sorry it is because you are experiencing such awful symptoms. I hope you come out of this soon. Warm wishes. Edited October 20, 2022 by RachelSusan typo 2 I am not a health professional in any way. I do not give medical advice. Discuss any decisions about your medical care with a professional medical practitioner. NEW INFORMATION FOR GABAPENTIN TAPER April 29, 2022 900 mg to 800 mg (11%), May 29, 2022 800 to 700 mg (12.5%), June 20, 2022 700 to 650mg (8%), July 20, 2022 650 to 575 (12%), August 20, 575 to 500 (13%), Sept 20, 2020 500 to 475mg (5%) Nov 7, 2022 475 to 425 (11%), Nov 21, 2022 500mg Medications: Gabapentin, Prednisone 1.5mg a day, Cortisol Inhaler daily. HISTORY FOR ZOLOFT TAPER Feb. 2016 to June 2016 - Was on 150mg Zoloft. Put on Gabapentin at 900mg a day in 2016 due to antidepressant withdrawal. Quit Zoloft (Sertraline) June 2016, reinstated 50mg of Zoloft July 2016. From July 2016 to October 2016 went from 50 mg down 2.3 mg. I up-dosed in November 2016 to 12.5 mg. Held there until January 2017 when I started a much slower taper. STARTING SENSIBLE ZOLOFT TAPERING USING GUIDELINES FROM THIS SITE Dec. 10 2016 - switched to Liquid Zoloft (Sertraline) @ 12.5 mg. Jan. 4, 2020 1.875 mg (6.3%). Jan. 25, 2020 1.75 mg. Feb. 29, 2020 1.625mg (7.10%). Apr. 4, 2020 1.5 mg. May 9, 2020 1.375 mg. June 6, 2020 1.25 mg. (9.10%). July 4, 2020 1.125 mg. (10%). August 15, 2020 1.0 mg. Oct 24, 2020 .875 mg. Nov. 28, 2020 .75mg. Jan 16, 2021 .685mg (8.7%). Feb 13, 2021 .62mg. March 12, 2021 .56mg. May 1, 2021 .375mg. May 29, 2021 .25mg. June 26, 2021 .0125mg. July 25, 2021 .065mg. August 22, 2021 .048mg. October 2, 2021 .043mg. October 10, 2021 .038mg. October 23, 2021 .035mg. October 30, 2021 .032mg. Nov. 13, 2021 .030 mg. Dec 4, 2021 .0285 mg. Dec 11, 2021 .0265 mg. Dec 18, 2021 .0246 mg. Dec 25, 2021 .023mg. Jan 1, 2022. 0 mg. OFF COMPLETELY Link to comment
Moderator Emeritus arbor Posted October 20, 2022 Moderator Emeritus Share Posted October 20, 2022 Dear @Terry4949 Thank you for sharing with us how you're doing. I wish every prescriber could read what you've written. Since I'm in the trenches with you, the only thing I can think to share is that recovery does seem to take longer for some of us. You've mentioned that supplements are problematic for you. Are you able to take the fish oil? Perhaps it could help. Meanwhile, I so appreciate your strength. It's unbelievable what we're having to endure. Thinking of you, Arbor 💜 Zoloft: 1995 - 2015 Prozac: 2015 - 2018 (tapered from 40mg x day on July 31 to 30mg on August 31 to 20mg on September 31 to 10mg October 31 to 0mg on December 15, 2018 Gabapentin: 2016 to 2019 (tapered from 300mg x day to 150mg on August 31, 2019 to 75mg on September 15 to 50mg on September 31 to 25ishmg on October 15 to 0mg on December 1, 2019 Enalapril: 2010 - 2019 Lipitor: 2017 -2017 Metformin: 2000 - 2020 Liothyronine: 2007 - 2019 Levothyroxine: 2000 - 2022 Link to comment
Terry4949 Posted October 20, 2022 Author Share Posted October 20, 2022 44 minutes ago, arbor said: Dear @Terry4949 Thank you for sharing with us how you're doing. I wish every prescriber could read what you've written. Since I'm in the trenches with you, the only thing I can think to share is that recovery does seem to take longer for some of us. You've mentioned that supplements are problematic for you. Are you able to take the fish oil? Perhaps it could help. Meanwhile, I so appreciate your strength. It's unbelievable what we're having to endure. Thinking of you, Arbor 💜 Thank you for your reply I can’t take fish oil unfortunately I am just taking a small amount of mag glycinate diluted in water and that’s all I can tolerate I’m sorry you are still struggling I keep wondering if it’s cortisol that keeps setting me back as every time the morning spikes come I crash and burn I seem to go into severe withdrawal massive moods swings and every physical symptom returns but I don’t no why I have been very thirsty lately and urinating a lot extreme muscle ache anxiety and irritability so fatigued waking at 2 am after 3 hours sleep which can be a sign of cortisol disruption the last 3 days I have been couch bound up until then I have been pushing on but this has really knocked me back 2001 to jan 2015 Effexor 150 mg jan 2015 15 mg mirtazapine 20 mg quetiapine feb 2015 quetiapine stopped feb 2015 30 mg of citalopram added feb 2015 mirtazapine increased to 30 mg july 2015 citalopram stopped sept 2015 200mg of pregabalin jan 2017 mirtazapine stopped jan 2017 20 mg fluoxetine march 2017 all meds stopped Link to comment
Terry4949 Posted October 20, 2022 Author Share Posted October 20, 2022 59 minutes ago, RachelSusan said: @Terry4949 It's nice to see you posting again, although I am very sorry it is because you are experiencing such awful symptoms. I hope you come out of this soon. Warm wishes. Thank you it’s just never ending I’m so fed up of being unwell just when I think there is a crack of light I go back to square 1 I just wish I new what triggers it I’m fine then the morning cortisol starts and I just go back to severe symptoms I can’t stop crying again I feel so hopeless no appetite again no motivation just fatigue and muscle ache and the dreaded inner akathisia has popped up again sorry for the rant how are you I hope things are going well for you 2001 to jan 2015 Effexor 150 mg jan 2015 15 mg mirtazapine 20 mg quetiapine feb 2015 quetiapine stopped feb 2015 30 mg of citalopram added feb 2015 mirtazapine increased to 30 mg july 2015 citalopram stopped sept 2015 200mg of pregabalin jan 2017 mirtazapine stopped jan 2017 20 mg fluoxetine march 2017 all meds stopped Link to comment
Terry4949 Posted October 23, 2022 Author Share Posted October 23, 2022 Things are so bad at the moment I have been doing this for so many years now but this wave is absolutely crippling never felt so unwell and it all started when the early cortisol mornings started now I can hardly function my body is burning from head to toe sleep now is down to 2 hours or less and the agitation is unbearable I wish I new what has triggered the early morning cortisol I just need some relief almost 6 years off all meds I have never felt so alone in all this suffering from the outside we look normal but if only people could see what we feel inside maybe they would understand 2001 to jan 2015 Effexor 150 mg jan 2015 15 mg mirtazapine 20 mg quetiapine feb 2015 quetiapine stopped feb 2015 30 mg of citalopram added feb 2015 mirtazapine increased to 30 mg july 2015 citalopram stopped sept 2015 200mg of pregabalin jan 2017 mirtazapine stopped jan 2017 20 mg fluoxetine march 2017 all meds stopped Link to comment
Administrator Altostrata Posted October 23, 2022 Administrator Share Posted October 23, 2022 @Terry4949, you've gotten through this before and you will again. Hang in there. This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment
Terry4949 Posted October 23, 2022 Author Share Posted October 23, 2022 36 minutes ago, Altostrata said: @Terry4949, you've gotten through this before and you will again. Hang in there. Thank you I know i have and I know I will but I’m finding it so tough it’s been such a long road dam cortisol 2001 to jan 2015 Effexor 150 mg jan 2015 15 mg mirtazapine 20 mg quetiapine feb 2015 quetiapine stopped feb 2015 30 mg of citalopram added feb 2015 mirtazapine increased to 30 mg july 2015 citalopram stopped sept 2015 200mg of pregabalin jan 2017 mirtazapine stopped jan 2017 20 mg fluoxetine march 2017 all meds stopped Link to comment
Terry4949 Posted October 23, 2022 Author Share Posted October 23, 2022 Just force myself to go out for a short walk to try to keep my motivation up walked for about 15 minutes slowly then all of a sudden could feel myself like the life was draining out of me I went very pale and white and was soaked in sweat manage to walk home just in time before I passed out same thing happened yesterday now I feel so wiped out didn’t feel like it before setting out actually had enough energy to try a walk it’s left me so weak and wiped out in fact I feel spaced out it’s very scary 2001 to jan 2015 Effexor 150 mg jan 2015 15 mg mirtazapine 20 mg quetiapine feb 2015 quetiapine stopped feb 2015 30 mg of citalopram added feb 2015 mirtazapine increased to 30 mg july 2015 citalopram stopped sept 2015 200mg of pregabalin jan 2017 mirtazapine stopped jan 2017 20 mg fluoxetine march 2017 all meds stopped Link to comment
Alice1 Posted October 23, 2022 Share Posted October 23, 2022 Hey Terry , Do you think it's possible you've had a chemical exposure to anything that fumes , like aerosol, gas , paint, perfume, new furniture , anything that will off gas ? December 2014 - Lexapro 20 mg August 2016 Med free (6 week taper) December 22 2021 added Abilify 5mg / Ativan .5mg / Depakote ER 1000mg Discontinued Abilify 5mg on 12-30-21---accidental dose on 1-13-22 (looks like Ativan) Ativan PRN/Discontinued 1-14-22 Only drug is Depakote ER 1000mg ( looking to taper slow and safe for once ) 3/24/22 Depakote 625mg Propranolol 20-40mg PRN Link to comment
Terry4949 Posted October 23, 2022 Author Share Posted October 23, 2022 10 minutes ago, Alice1 said: Hey Terry , Do you think it's possible you've had a chemical exposure to anything that fumes , like aerosol, gas , paint, perfume, new furniture , anything that will off gas ? No nothing comes to mind I was doing ok surviving but symptoms were manageable but I got woken by a severe cortisol spike that has absolutely destroyed me the only thing I have used is a saline nose irrigation pot to help with my sinusitis but that’s only salt water but since that cortisol spike severe symptoms have returned even anxiety which I havnt had for 3 years or more I think loosing the sleep has also ramped up my symptoms I feel like I have been chemically lobotomised again 2001 to jan 2015 Effexor 150 mg jan 2015 15 mg mirtazapine 20 mg quetiapine feb 2015 quetiapine stopped feb 2015 30 mg of citalopram added feb 2015 mirtazapine increased to 30 mg july 2015 citalopram stopped sept 2015 200mg of pregabalin jan 2017 mirtazapine stopped jan 2017 20 mg fluoxetine march 2017 all meds stopped Link to comment
Mentor RachelSusan Posted October 23, 2022 Mentor Share Posted October 23, 2022 @Terry4949 Terry, Do you think it might be possible that you have a few different medical issues going on simultaneously along with the withdrawal symptoms? Forgive me for throwing up more questions when this is probably the last thing you need. However if you think it might be possible then it might open up some avenues for things to look into. I know sometimes we don't need suggestions, we want support. I offer you my support as well. Warm wishes, Rachel I am not a health professional in any way. I do not give medical advice. Discuss any decisions about your medical care with a professional medical practitioner. NEW INFORMATION FOR GABAPENTIN TAPER April 29, 2022 900 mg to 800 mg (11%), May 29, 2022 800 to 700 mg (12.5%), June 20, 2022 700 to 650mg (8%), July 20, 2022 650 to 575 (12%), August 20, 575 to 500 (13%), Sept 20, 2020 500 to 475mg (5%) Nov 7, 2022 475 to 425 (11%), Nov 21, 2022 500mg Medications: Gabapentin, Prednisone 1.5mg a day, Cortisol Inhaler daily. HISTORY FOR ZOLOFT TAPER Feb. 2016 to June 2016 - Was on 150mg Zoloft. Put on Gabapentin at 900mg a day in 2016 due to antidepressant withdrawal. Quit Zoloft (Sertraline) June 2016, reinstated 50mg of Zoloft July 2016. From July 2016 to October 2016 went from 50 mg down 2.3 mg. I up-dosed in November 2016 to 12.5 mg. Held there until January 2017 when I started a much slower taper. STARTING SENSIBLE ZOLOFT TAPERING USING GUIDELINES FROM THIS SITE Dec. 10 2016 - switched to Liquid Zoloft (Sertraline) @ 12.5 mg. Jan. 4, 2020 1.875 mg (6.3%). Jan. 25, 2020 1.75 mg. Feb. 29, 2020 1.625mg (7.10%). Apr. 4, 2020 1.5 mg. May 9, 2020 1.375 mg. June 6, 2020 1.25 mg. (9.10%). July 4, 2020 1.125 mg. (10%). August 15, 2020 1.0 mg. Oct 24, 2020 .875 mg. Nov. 28, 2020 .75mg. Jan 16, 2021 .685mg (8.7%). Feb 13, 2021 .62mg. March 12, 2021 .56mg. May 1, 2021 .375mg. May 29, 2021 .25mg. June 26, 2021 .0125mg. July 25, 2021 .065mg. August 22, 2021 .048mg. October 2, 2021 .043mg. October 10, 2021 .038mg. October 23, 2021 .035mg. October 30, 2021 .032mg. Nov. 13, 2021 .030 mg. Dec 4, 2021 .0285 mg. Dec 11, 2021 .0265 mg. Dec 18, 2021 .0246 mg. Dec 25, 2021 .023mg. Jan 1, 2022. 0 mg. OFF COMPLETELY Link to comment
Hibari Posted October 23, 2022 Share Posted October 23, 2022 Hi @Terry4949 I wanted to offer you my support and empathy. I see that you are struggling and how much it hurts. I too am struggling in a severe setback and share many of your symptoms. I can't watch TV or read or listen to music. Up until recently I wore earplugs and lay in bed with my eyes covered. I understand the over stimulation part every well. All I can say is that time is the healer and to not push on the days that you feel slightly better. I know you go out and walk but its important to not push. On the good days, or at least not horrible days, continue to baby your nervous system. The fact that you felt slightly better recently. is a good sig. More of that will come. Hibari 9/2013-4/2014: After moms death, was prescribed a series of meds for short periods of time that didn't work. Zoloft, Lexapro, Nortriptyline, Liquid Prozac, Cymbalta. 1/2014-9/2014. Clonzapam: Given Lamictal, stopped Clonzapam at .125mgs 1/2015-4 2017 Remeron: 41.25 -0.025mgs 7/2015-11/2018 Lamictal: 200mgs-0.05 mgs Had paradoxical reaction to Lamictal wd, broke my heart to take a benzo but wasn't sleeping. 3/28/2019 -2/5/ 2021 Clonazapam: 0.625mgs-.00115 Med Free July 27th, 2022**Severe Setback due to surgery/ anesthesia. 9/7/22-10/4/22 Trazadone 50-100mgs for sleep, 10/13/22-11/13/22 Trazadone 1 mg to stabilize 10/4/22-11/20/22 Remeron 7.5mgs (for sleep doesn't work) 11/20/22 7.3 - 12/31/22 6.3 2023: 1/18/23 6.1 - 6/6/23 3.6 6/16 3.4 6/28 3.0 7/12 2.7 7/28 2.5 8/11 2.2 8/23 2.0 9/5 1.8 9/16 1.6 9/30 1.4 10/13 1.2 10/26 1.0 11/9 0.8 11/22 0.6 12/6 0.4 12/23 0.2. 2024 1/4/24 Remeron/Mirtazapine free Additional Support: Armour Thyroid 75mgs, Magnesium Glycinate 300-500mgs, L-theanine Link to comment
Terry4949 Posted October 23, 2022 Author Share Posted October 23, 2022 5 minutes ago, Hibari said: Hi @Terry4949 I wanted to offer you my support and empathy. I see that you are struggling and how much it hurts. I too am struggling in a severe setback and share many of your symptoms. I can't watch TV or read or listen to music. Up until recently I wore earplugs and lay in bed with my eyes covered. I understand the over stimulation part every well. All I can say is that time is the healer and to not push on the days that you feel slightly better. I know you go out and walk but its important to not push. On the good days, or at least not horrible days, continue to baby your nervous system. The fact that you felt slightly better recently. is a good sig. More of that will come. Hibari Thank you for your kind words I just find after nearly 6 years free of all meds it so disheartening to still feel so sick and like I have just quit the drugs I’m sorry that you are still struggling I think the toxic little sleep I’m getting isn’t helping 2001 to jan 2015 Effexor 150 mg jan 2015 15 mg mirtazapine 20 mg quetiapine feb 2015 quetiapine stopped feb 2015 30 mg of citalopram added feb 2015 mirtazapine increased to 30 mg july 2015 citalopram stopped sept 2015 200mg of pregabalin jan 2017 mirtazapine stopped jan 2017 20 mg fluoxetine march 2017 all meds stopped Link to comment
Terry4949 Posted October 23, 2022 Author Share Posted October 23, 2022 56 minutes ago, RachelSusan said: @Terry4949 Terry, Do you think it might be possible that you have a few different medical issues going on simultaneously along with the withdrawal symptoms? Forgive me for throwing up more questions when this is probably the last thing you need. However if you think it might be possible then it might open up some avenues for things to look into. I know sometimes we don't need suggestions, we want support. I offer you my support as well. Warm wishes, Rachel Thank you for your reply it maybe there is some other underlying health issue but my doctor has done blood tests and apart from high ferritin they say everything is ok I’m sure it is all withdrawal as I had these symptoms in the early years I may see if I can find a functional practitioner to look in to my health as doctors are not really bothered much now here in the uk in fact your lucky if you get to see one maybe my vitamins and electrolytes are low I thank you for your support it means a lot when you speak to people who understand I have lost all my friends and family over the last 10 years as they have given up on me not wanting to get better so they say if only they could feel like this for a day I’m sure they would think differently the horrible physical sensations are with me all day no let up I dread the mornings now at the moment as I feel so sick and unwell but I will keep going I have to 2001 to jan 2015 Effexor 150 mg jan 2015 15 mg mirtazapine 20 mg quetiapine feb 2015 quetiapine stopped feb 2015 30 mg of citalopram added feb 2015 mirtazapine increased to 30 mg july 2015 citalopram stopped sept 2015 200mg of pregabalin jan 2017 mirtazapine stopped jan 2017 20 mg fluoxetine march 2017 all meds stopped Link to comment
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