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Terry4949

Terry4949: Withdrawal help

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AliG

At this point I would agree to almost anything  . Get out of there and then we can talk about a long term plan .What they are doing is just " damage control " . I'm so sorry for what you are going through .

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Terry4949

In order for me to get out of this hell hole , I have to take a medication or I won't be going anywhere , I no this site does not promote going on drugs and is for people wanting to come of them , but I have been given a choice amitriptyline or paroxadine which I want to take neither, so seems it did work for me many years ago , and pooped out 3 years ago , would it be safer for me to try a low dose of venalaxafine again to make them happy and get out of here , after such a long time of the drug could my body interprete it as a new drug again , I have to try something , don't really want to put a tricilic in me got enough side effects as it is , does anyone have any suggestions , I want to do as least damage as possible , because in these hospitals they start you way to high , and I want the smallest amount possible ,

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Bruin

Hi Terry. so sorry you have been having such a tough time. I believe Alto suggested, a while ago, that a small dose of Venlafaxine might be the way to go. 

It does sound as the worst of the Mirt WD might be over which is a good thing. 

 

Sending you all best wishes and hoping that you manage to get out of the Hospital soon.

 

Bruin

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Terry4949

Hi bruin , as you can see the predicament I am in , I have made a decision that I am not going to reinstate any meds now that I have been taken of them all , I am going to fight this with out any more disturbance to my cns , I have been put back on venalaxafine 37.5mg by the hospital but I have been spitting them out , I need them to think that I am taking them so I can get out of this hospital , been in

over 8 weeks now , on and of flouxetine, diazepam clonazapam for 2weeks of each , zoplicone done nothing so stoped and they stoped my mirtazapine when I came in , been through hell , the only way I am going to come out of this alive is no more drugs ,

when you feel so bad on them you can't feel much worse of I don't suppose , I shake all the time have terrible insomnia now , hot sweats through the nights , fatigue , they have made me worse with all the changes , so now going to just go without and hopefully survive , I hope you are fairing better

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Hibari

Wow Terry, you have a tremendous amount of inner strength despite what is going on with you during this time.  I'm so sorry you experiencing those horrific withdrawal symptoms and no wonder.  You are going through cold turkey wd from many medications and are being battered on all sides.   I am wishing you well Terry and I am cheering you on to get out of the hospital and get off medication.

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Bruin

Terry I completely understand  the predicament you are in. It sounds like complete hell and that you have been completely messed around by the system.

Stay strong ....You will get through. I think you are doing amazingly in a very difficult spot.

 

All The Very Best 

 

Bruin

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Bruin

Hi Terry......am just stopping by to say that you are very much in my thoughts and I hope you are getting some moments of relief.

You are a great deal stronger than you think and you will get through this.

 

All the Very Best 

 

Bruin

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Madeleine

Hi Terry:

Just stopping by your thread to see how you are.
Thinking of you,

M.

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scallywag

Hi Terry - I hope the fact that we haven't heard from you for a few days is good news. Please let us know how you're doing.

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Terry4949

So I have been of all a/ds and medications for just over a month now , and it's been hell , the worst thing is the constant headache 24/7 it is so bad my brain feels like it has been hit with a brick and my neck is so tense that if I lye down my head just throbs and makes me feel sick , can't sleep because it hurts so much , have tried codiene 30 mg x4 a day for 4 days hasn't touched it , shaking a lot as well the whole body worse at nights , has anyone found anything to relieve these headaches , I'm starting to think that there is something else amiss here ,

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AliG

Terry, as it has been a while can you give us a little more information as to your current state. You say you are off all meds. How did you taper ?

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Terry4949

High AliG ,I was taken of all meds by the hospital I was on 13.75mg of mirtazapine , which they stoped c/t then given 20mg of flouxetine for 7 weeks which was then stoped c/t that was at the beginning of March , I now have insomnia , body shaking all day and extreme headaches especially in the back of head and neck , also body feels very hot all the time , they want me to go back on venlaxafine but I refused , had headaches for about 14months now but since coming of all meds they have 10 folded , the headaches are worse when I lye down at night ,hope this helps , the only thing I am taking is pure EPA fish oil in the morning

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leahy

Hi Terry,

 

I am so sorry to hear about your suffering. My headaches were that bad. This is the first time I've heard anyone describe the severity of this headache. Nothing helped me. Not Imitrex or Fiorocet or any of those heavy duty migraine headache medications. I also thought something was amiss. So did my regular doctor (as opposed to my stupid pdoc). She sent me for an MRI and all kinds of testing of the head to rule out something "serious"

 

Nothing was found and I continued to suffer for at least a year and then intermittently the following year as I learned to slow my taper even more. I know you have no choice. My heart goes out to you. I wish I could be more help. If there were a way for you to get more sleep, I think you might begin to feel better. Insomnia was a huge factor in the severity of my headaches. I took magnesium in case that helped. I don't know if it did. some people think it helps. I was taking an epsom salt bath every night.

 

Are you home from the hospital?

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Bruin

Hi Terry......am so sorry that you are suffering so badly. It does sound like acute WD ...which would not be surprising with what you have been 

through with the medications. I have also suffered severe headaches in WD but they have not been as persistent as yours. ie they are not all the time.

I wish I had an answer for you but it will change and slowly improve. Cheering you on and sending best wishes.

 

Bruin.

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Terry4949

I am 3 months of all medication now , and I am really struggling with such a low mood , apathy so bad no interest in anything life in general , but the worst thing is I feel like I have the flu all day every day , my headaches are so bad even all my teeth hurt and my jaw aches , I have a high body temperature which leaves me soaked in sweat , my hands and top of my feet burn all day long , i am loosing the will to live , I can't go out in the sun or have a hot bath I just can't raise my body temperature with out it making me feel so ill , I have tried magnesium but it does nothing , fish oil actually makes my headaches worse , I had most of these symptoms while on meds but I have had some for 2 to 3 years now , it is a endless suffering a daily torture that no human being should go through , how do I get some relief from this , everyday I lose another part of my life , I have tried everything , spent so long reading and trying things that have been recommended by all the brave people on here but I can't get any relief , I am only surving for the sake of others but each day I am getting closer to giving up , I am lost ,

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doggiemama

My heart breaks for you . I found that CBT helped me but not all therapist are good so you might have to see a few to get someone that fits with you. When I'm in a bad wave I feel like I will never get better.

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Terry4949

I have been of all meds for 4 months now c/t by the hospital , and I thought that things couldn't get any worse but how wrong am I , I wake at 2 am every morning now with inner tremors and shakes that leave me burning hot , these are so bad now I have to get up and my legs feel so weak and shaky they feel like they won't support me , I sit down stairs and cry because I am so fed up with this the depression and anxiety has magnified even more , I have tried so much and so hard , but nothing relieves any thing , reinstating is not a opposition as the meds did nothing for me , my doctor wants me to try propranolol to help with the morning symptoms but I am so frightened to try anything in case it makes me worse , not that it can , supplements don't do anything , been like this for over 3 years now with no signs of healing in hope that I might see some light , but as time goes on I'm getting so much worse , any help would be apprieciated

 

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Pepita

hi there, so sorry to hear that you're having such a hard time! so you're off meds 4 months and been on them 3 years? (because you say you've been suffering for 3 years with no sign of healing?) you went off cold turkey? ( is that what you mean by c/t)? 

what have been your original conditions why you went on meds in the first place? 

quitting cold turkey is very hard on your body it's horrible

that this is done in hospitals, makes me

so angry! you are in withdrawal and all withdrawal related symptoms won't last but it can take a long time to recover. For some it happens faster, some take longer but it's good you're here in this forum now  so you can learn from others who have been through this. Stay strong! Remind yourself that it's not you and that you're not crazy or insane- this is withdrawal, and it can be very much like someone who is withdrawing from alcohol/heroine and other drugs. 

You'll get a message here with many helpful links from an administrator soon I am sure of. 

Do you have any support from family/friends? 

 

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Terry4949

Thanks pepita , I have been clean of all meds which were cold turkey by the hospital for 4 months now ,but I have been in protracted withdrawel for just over 3 years since my doctor took me of Effexor cold turkey which I had been on for over 10 years , so my suffering has been for years but the last 4 months have been utter despair and getting worse , if you see my history you can see that over the last 24 months I have been given other meds which have done nothing or made things worse , I don't no what to do anymore , if going by the reasoning behind protracted withdrawel is right and that no medication can help then I am totally screwed , can't get any relief at all 24 hours a day , no life , no point in life , in the last 3 years I have felt so bad everyday I just wish everyday would be my last 

 

 

 

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pinkfairy

Hello...am so truly sorry for what they did to you,it breaks my heart...I too was CT off 2 meds then lots of reinstatements!

i can your pain An suffering,I wish this was an easier journey for us all!it seems to me the ones with the biggest hearts get treated badly,by doctors who have no clue....you said you want every day to be last,I feel like that too...

but do you know what.YOU are worth this fight..I know your tired,I no your suffering,but one day when you least expect it,your window will open.your prize could be around that corner any day...

please just do not give up,An let the pharmaceutical companies win...your a beautiful soul,with broken wings.but we're all here to help you learn how to fly again.

am suffering too...but please even if you have to get down your knees please crawl with me to the finisish line...we care so very much about you.i want you to know that you are so worth this fight...

its all WD nothing more,your in there.just take it 5 minutes at a time An walk or crawl with us ?

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DaveB

Why did you doctor take you off Effexor? Did it become ineffective? Have you tried reinstating Effexor, may be worth a shot since I am assuming you did well on it as you were on it for such a long time. Also I am surprised they never tried to reinstate you on a TCA or something similar to Effexor like Cymbalta.  

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caperjackie

Pinkfairy ........ I wish there were a 'like button' on here as your response to Terry is absolutely beautiful. Terry .......... she is right! The appalling suffering that coming off these drugs entails is brutal (especially after a CT) but there is light and freedom at the end of the road and it is so worth reaching. The good people here will help you along ......... hang in there. 

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pinkfairy

Thank you caperjackie....

this site is amazing,one goes down in the trench we all re group An lift each other out ❤️!!

your maybe not to good to reply,but if your reading this...you are so cared for An wanted.

where there is breath is life....keep going with us ?

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Terry4949

Thank you pink fairy for your kind words , utah49er the reason the doctor took me of Effexor is because after 10 plus years it pooped out and my body went in to withdrawel , then he stuck me on , citalapram mirtazapine , pregablin , diazepam and clonazapam short term on benzos couple of weeks , then early this year 6 weeks of flouxetine then my meds were stopped cold turkey by hospital , every time I took another antidepressant it ramped up my symptoms so bad , if you could find the ultimate torture regime then this is it , 

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Happy2Heal

((((((hugs)))))

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Jeanny44

I do feel with you Terry 4949. I was on Effexor for 9 years. Last year in July i stopped by 37,5 mg. The doctors said, it's save. It wasn't. In November the symptoms of a protracted withdrawal began and got worse til now. I need to force every meal, cause i don't feel any hunger or apetite anymore. I feel pressure in my head and dizziness. My vision is tunnellike. It's difficult for me to read or watch tv. The nerves in my legs are tingleing and the muscles are hyper sensitive. Also i have an extreme weakness in my legs and arms. i can't leave the house. Reinstating didn't work at all. I was in the hospital last month. But all they had to offer was another antidepressant and a therapy. I don't have even the power for a therapy. I can't stay on my legs for a longer time. This all is one year ago now and i'm scared, where this will bring me. I don't have any windows. The symptoms are permanent there. I hope and pray so much, that we all get healed ((hugs))

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Terry4949

I have been of all meds now for five months , but have been suffering withdrawel now for four years , but things are so worse now than ever , I cannot get out of bed my body is burning all over with extreme sweating , I have such bad muscle weakness , I have a inner shake that is driving me insane , I can't sleep eat or drink , I feel so unwell it's like my body is full of adrenaline or cortisol all day , I cannot rest , the anxiety over all this is through the roof I feel very depressed , I have been curled in a ball crying most of the day , I am at my wits end , I take fish oil and magnesium but I don't think they do anything , how can it be that I am getting worse , where are the windows , why am I suffering so bad , I am frightened to go and see a doctor as he will want me on another anti depressants, I can't work I struggle to walk down the street , but I have no income , 24 hours a day 7 days a week it's torture , I have tried everything in my power to bring relief but found nothing , can anybody tell me what I need to do please

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virgo43

Dear Terry u are not alone.

I am experiencing the same.

I am trying to lower the dose from 50 to 25mg and the same is happening. 

I believe Alostrata can help.

How is ur sleep? Headache? 

How about water consumption.

Are u urinating dark yellow despite u are consuming a lot.

 

I will remind alostrata immediately

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Junglechicken

Sounds like you might have to re-instate at a lower dose Terry.

 

I'm sorry that being off the meds completely hasn't worked.  Your CNS is reacting badly to the meds being removed.

 

Alto et al., will be able to advise re: the right dose to come back in on, but I don't think you can go on feeling so terrible.

 

HUGS,

JC x

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Terry4949

Re instate which drug though , I have been on so many over the last year or so if you look at my drug history , and I have not found any relief since the venlaxafine stop working nearly four years ago . I just don't know what to do every waking minute is torture , I am in hell , just need some relief , the overheating and burning skin is a torment on its own I feel like I have been stranded naked in the Sahara desert , I can't stop shaking , I am so thirsty but struggle to drink even water , 

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Terry4949
1 hour ago, virgo43 said:

Dear Terry u are not alone.

I am experiencing the same.

I am trying to lower the dose from 50 to 25mg and the same is happening. 

I believe Alostrata can help.

How is ur sleep? Headache? 

How about water consumption.

Are u urinating dark yellow despite u are consuming a lot.

 

I will remind alostrata immediately

I am drinking water even though I don't want to as I am thirsty all the time , my urine is always dark yellow , some days I drink 2 litres of water and I still need more as I have a constant dry mouth and thirst

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virgo43

Same with me.

When I went down from 75 to 50 I drank 4 liters vomited and of course dark yellow urine for 2 days and lost weight

 

Yes this is all in our head we need attention....that is what people tell me.

 

How did u manage the insomnia??

If I go cold turkey from 25mg and endure the symptoms by drinking so much water I could have cardiac arrest. Delirium tremans....in other words....

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virgo43

U should drink electrolyte water

..lemonade.....eat yogurt.

How about irritation and anxiety?

Insomnia?

How can u handle that?

 

Reinstate and then? Same story.

How will cns adjust while there is so much stress hormone. 

Brain needs sleep to recover.

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virgo43

In addition to all that I had migraines and thought my brain would explode...

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virgo43

I know how it feels. Exactly.

If I can tackle insomnia then we would improve...

 

Moderators know best. I don't want to interfere in their territory. 

 

From what I read the 2 explanations come close

 

Fight flight response through

HPA axis disruption

CNS disruption

 

So what? 

Well we don't know...

 

I also am the same....exactly. 

So u are not alone in this planet....

 

 

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Terry4949

To be honest I am at the stage where I would take anything now , but it is not a option , when we are in withdrawel nothing will help us , so we are doomed , waiting for this to heal overtime if it ever will is unbearable , this daily torture is unrelenting and I can't really see the point of it all now , if there is truly nothing that can help us what's the point , I can't go on like this for another 10 years in hope that it might get better , how I have managed the last 4 years is beyond me , I have been suicidel many times , cried a thousand tears , have felt so low and so ill for so long , recovery for me is not going to happen I don't think , and no medications can help , what's left

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