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Tips for tapering off Lamictal (lamotrigine)


Altostrata

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On 10/02/2018 at 1:38 AM, robcbar1 said:

Hi all - I asked this question on a separate thread and looking for some immediate help.  I've been taking 5 mg of Lamictal for about 30 days to help quell my SSRI WD.  It's not doing anything for me and may actually be making some of my symptoms worse (namely derealization and tinnitus).  I'd like to stop but scared I'm going to get additional WD symptoms.  Have I been on it for a short enough time where I can cut down to 2.5 mg?  I know a 50% decrease is never advised but I hoping it's ok since I haven't been on it too long?  Any insight would be much appreciated.  Thanks.         

 

My personal opinion is that I think it would be better, as RubyTuesday suggested, to try a 10% reduction and keep notes on paper.  If you feel okay you could try another 10% reduction sooner than the 4 weeks, eg between 2-3 weeks after.  I think tapering carefully would be better than risking too fast a taper.

 

On 22/08/2011 at 6:46 AM, Altostrata said:

Removal of lamotrigine can cause a nasty rebound of "alerting," i.e. anxiety, restlessness, and sleeplessness.

 

Yes, I think going cautiously is your best option.

NEW!!!              INTERVIEW with Altostrata, SA's founder               NEW!!! 

 

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after)

Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015  Current from 14 Nov 2020:  Pristiq 0.50 mg

My tapering program                                      My Intro (goes to my tapering graph)

My website - includes my brief history + links to videos & information on the web

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

 

REMINDER TO SELF:  I don't need the drug now, but my still brain does.

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10 hours ago, RubyTuesday said:

Hi, This is a good question, I would be cautious and just try 10% reductions even though you have been on a short time, only because I also tapered off Lamictal and the depression was severe triggered by tapering. Of course I was on it for much longer, about 4 years, and also to help with SSRI withdrawals (11 years). I had tablets which dissolved in water so I used a beaker and took out 10% at a time. On the other hand since you have only been on a month you may well be fine with a faster taper. You can always give it 3 days and then play it by ear, reinstating and then going slower if the situation warrants. Good luck with that!

Hey Ruby - I went down to 2.5mg for 2 days last week and it was disastrous: major rebound anxiety and akathesia.  It's scary how powerful these drugs are even at small doses.  So I'm going to hold where I am for a bit @ 5 mg.  How are you doing overall?    Can I send you a message to learn more about how you converted Lamictal to a liquid?  I have the 5mg dissolvable tabs but I'm clueless on using a beaker etc.  

20 years of daily SSRI use in total...

Paxil                                                                                                                                                                  1995-1998

Zoloft (25 mg)                                                                                                                                                 1998-2002

Lexapro (10 mg)                                                                                                                                              2002-2015    (**August 2015, Lexapro “stopped working" after near death of my 1.5 yr. old son**)

Lexapro (15/20 mg) - increasing dose only made SEs worse                                                                   Nov 2015 - Mar 2016

Zoloft (25/50 mg) - made derealization worse                                                                                            Mar 2016 - Jul 2016

Celexa (20 mg) - made symptoms worse                                                                                                     Oct 2016 - Jan 2017

Remeron (7.5 mg) - helped me eat and sleep for 4 nights, then went bad                                             Jan 2018 (stopped after 2 weeks)

Lamictal (2.0 mg) - started at 5 mg to help with WD symptoms, trying to wean off and has been complete HELL   Jan 2018 - current

 

(Trialed Prozac, Effexor, Wellbutrin, Cymbalta - severe reaction, couldn't tolerate longer than a few days)

 

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Yes of course you can message me, I will say more later today. I am not surprised you got a bad rebound from a small drop. Every time I took a small drop, (I think it took me over 2 years to taper 50 mg) I got nasty suicidal depression mixed with a feeling that someone was banging me on the head. I am doing great and please do check in.

 

2002: "Situational depression" 2002-2010:Prozac.Birth Control.2011 Short trials: Paxil, Celexa, Lexipro, Wellbutrin, Xanax, Ativan- Gee, Doc never mentioned protracted AD wd syndrome. Imagine that. 2011-2015. Lamictal. Seroquel. Remiron. 2012: "Complex post traumatic stress disorder." Fast taper of Remiron jumped off June 2013. Slow tapers ever since of Seroquel & Lamictal.  crippling muscle spasms. crying fits. panic attacks. akathisia. nerve twitches. the jitters. the heebie jeebies. de-personal/realization. numbness. tingling. fatigue. lethargy. nightmares.insomnia. weird images. eye pain.vertigo. dizziness. brain zaps. and on and on and on. withdrawal? side effects? which drug? impossible to know. Stopped Seroquel October 2015.  Stopped Lamictal  March 2016. Had more severe muscle/joint spasms that paralyzed me for 3 days at a time, last episode was March 2017.Going back to work as of February 2018 after 14 years off full-time work due to the crippling effects of psych meds. Check out Robert Whittaker "Anatomy of an Epidemic" for  his breakdown of the rates of mental disability  since the introduction of Prozac into the human population. Best solutions for me: Social support via AA meetings. Acupuncture. Meditation. Dance. Nature. Yoga. Social support online with psych med survivor community. Nutrition. Exercise. More outdoor time. Go sit in the sunshine for 5 minutes. Touch a tree. Breathe deeply.

 

 

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I purchased a small graded 10 milliliter thingey at the drugstore, that came with a dropper. Rather than dropping 10% of each previous dose, as recommended, that was too much math for me, as I had no help from a doc or a pharmacy, I dropped 1/10th of my lowest dose of a 25 mg tablet, I think about every two weeks at the end. I had tapered down from 50 to 25, I don't remember exactly how. I dissolved my little white tab in water, and agitated it vigorously with a long spike thing that my son ordered for me off the Internet (he was studying Chemistry) and took out, using the dropper, 1/10th, then

2/10th etc. and threw it away and swallowed the remainder. This went on for about a year I think. I was down to about 3/10th of the dose when there was a full moon eclipse and I happened to get into a conversation at the public library with a total stranger who was trying to homeschool a very bright and difficult son, as I had done several years earlier, and deal with the local school system, who are all total idiots. I felt so inspired remembering this phase of my life, before being poisoned by psych meds, that when I came home and stared at the remaining Lamictal, I was simply unable to put it into my body so I just didn't. That being said, I still had mind boggling suicidal depression in waves for about 6 months afterwards, I signed up for college classes but was unable to complete any of them, and I couldn't get myself back to ballet class either although I had done that after jumping off Seroquel and still being on Lamictal. Around 6 months out a period of slow & steady improvement commenced although Christmas season of 2016 (I jumped off in March of 2016) I again had terrible waves of godawful deppression. Since then the depression has been slowly & steadily lightening up and I am left with a feeling not unlike I used to have after LSD trips when I was in my early 20s, sort of a feeling of being flat and empty, but okay, and able to begin again. Anyway hope that helps, everyone is different, but the thing is, you can always speed up the taper, but it's harder to slow it down and still deal with the withdrawal effects. Best of luck!!!

2002: "Situational depression" 2002-2010:Prozac.Birth Control.2011 Short trials: Paxil, Celexa, Lexipro, Wellbutrin, Xanax, Ativan- Gee, Doc never mentioned protracted AD wd syndrome. Imagine that. 2011-2015. Lamictal. Seroquel. Remiron. 2012: "Complex post traumatic stress disorder." Fast taper of Remiron jumped off June 2013. Slow tapers ever since of Seroquel & Lamictal.  crippling muscle spasms. crying fits. panic attacks. akathisia. nerve twitches. the jitters. the heebie jeebies. de-personal/realization. numbness. tingling. fatigue. lethargy. nightmares.insomnia. weird images. eye pain.vertigo. dizziness. brain zaps. and on and on and on. withdrawal? side effects? which drug? impossible to know. Stopped Seroquel October 2015.  Stopped Lamictal  March 2016. Had more severe muscle/joint spasms that paralyzed me for 3 days at a time, last episode was March 2017.Going back to work as of February 2018 after 14 years off full-time work due to the crippling effects of psych meds. Check out Robert Whittaker "Anatomy of an Epidemic" for  his breakdown of the rates of mental disability  since the introduction of Prozac into the human population. Best solutions for me: Social support via AA meetings. Acupuncture. Meditation. Dance. Nature. Yoga. Social support online with psych med survivor community. Nutrition. Exercise. More outdoor time. Go sit in the sunshine for 5 minutes. Touch a tree. Breathe deeply.

 

 

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16 hours ago, RubyTuesday said:

I purchased a small graded 10 milliliter thingey at the drugstore, that came with a dropper. Rather than dropping 10% of each previous dose, as recommended, that was too much math for me, as I had no help from a doc or a pharmacy, I dropped 1/10th of my lowest dose of a 25 mg tablet, I think about every two weeks at the end. I had tapered down from 50 to 25, I don't remember exactly how. I dissolved my little white tab in water, and agitated it vigorously with a long spike thing that my son ordered for me off the Internet (he was studying Chemistry) and took out, using the dropper, 1/10th, then

2/10th etc. and threw it away and swallowed the remainder. This went on for about a year I think. I was down to about 3/10th of the dose when there was a full moon eclipse and I happened to get into a conversation at the public library with a total stranger who was trying to homeschool a very bright and difficult son, as I had done several years earlier, and deal with the local school system, who are all total idiots. I felt so inspired remembering this phase of my life, before being poisoned by psych meds, that when I came home and stared at the remaining Lamictal, I was simply unable to put it into my body so I just didn't. That being said, I still had mind boggling suicidal depression in waves for about 6 months afterwards, I signed up for college classes but was unable to complete any of them, and I couldn't get myself back to ballet class either although I had done that after jumping off Seroquel and still being on Lamictal. Around 6 months out a period of slow & steady improvement commenced although Christmas season of 2016 (I jumped off in March of 2016) I again had terrible waves of godawful deppression. Since then the depression has been slowly & steadily lightening up and I am left with a feeling not unlike I used to have after LSD trips when I was in my early 20s, sort of a feeling of being flat and empty, but okay, and able to begin again. Anyway hope that helps, everyone is different, but the thing is, you can always speed up the taper, but it's harder to slow it down and still deal with the withdrawal effects. Best of luck!!!

Thank you for these details. It sounds complicated.  How does liquid ml correlate to mg???  I reread your signature history and it sounds like you've been through a lot.  March marks 2 years of protracted withdrawal for me after 20 yrs of SSRI use.  I literally feel like the walking dead right now.  I've begged anyone who will listen for help (docs, therapists, naturopaths, people on SA) but haven't seen any improvements.  I am very concerned that I'm not going to heal.        

20 years of daily SSRI use in total...

Paxil                                                                                                                                                                  1995-1998

Zoloft (25 mg)                                                                                                                                                 1998-2002

Lexapro (10 mg)                                                                                                                                              2002-2015    (**August 2015, Lexapro “stopped working" after near death of my 1.5 yr. old son**)

Lexapro (15/20 mg) - increasing dose only made SEs worse                                                                   Nov 2015 - Mar 2016

Zoloft (25/50 mg) - made derealization worse                                                                                            Mar 2016 - Jul 2016

Celexa (20 mg) - made symptoms worse                                                                                                     Oct 2016 - Jan 2017

Remeron (7.5 mg) - helped me eat and sleep for 4 nights, then went bad                                             Jan 2018 (stopped after 2 weeks)

Lamictal (2.0 mg) - started at 5 mg to help with WD symptoms, trying to wean off and has been complete HELL   Jan 2018 - current

 

(Trialed Prozac, Effexor, Wellbutrin, Cymbalta - severe reaction, couldn't tolerate longer than a few days)

 

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robcbar - RubyTuesday is probably making a solution from the tablets.  The concentration, how many mg in a ml, is completely flexible.

 

You recently dropped from 5 mg to 2.5 mg, probably because it's easy to cut a tablet in half.  Having found that reduction was too large, you may want to try increasing to a dose of 4.5 mg, a 10% reduction from 5 mg. Let's continue this conversation in your introduction topic.

 

For reference on making a liquid: Making a liquid from a tablet or capsules .

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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Yes, that. What scallywag said. About the reduction technique.

As for feeling like the walking dead, this is not uncommon. How fast did you taper the SSRI or did you cold turkey? In any event, best to taper the Lamictal as slowly as humanly possible. Have you tried acupuncture? Acupuncture was the most helpful for me.

You will definitely heal. We are all built to heal. Best wishes. Feel free to reach out any time.

Ruby

2002: "Situational depression" 2002-2010:Prozac.Birth Control.2011 Short trials: Paxil, Celexa, Lexipro, Wellbutrin, Xanax, Ativan- Gee, Doc never mentioned protracted AD wd syndrome. Imagine that. 2011-2015. Lamictal. Seroquel. Remiron. 2012: "Complex post traumatic stress disorder." Fast taper of Remiron jumped off June 2013. Slow tapers ever since of Seroquel & Lamictal.  crippling muscle spasms. crying fits. panic attacks. akathisia. nerve twitches. the jitters. the heebie jeebies. de-personal/realization. numbness. tingling. fatigue. lethargy. nightmares.insomnia. weird images. eye pain.vertigo. dizziness. brain zaps. and on and on and on. withdrawal? side effects? which drug? impossible to know. Stopped Seroquel October 2015.  Stopped Lamictal  March 2016. Had more severe muscle/joint spasms that paralyzed me for 3 days at a time, last episode was March 2017.Going back to work as of February 2018 after 14 years off full-time work due to the crippling effects of psych meds. Check out Robert Whittaker "Anatomy of an Epidemic" for  his breakdown of the rates of mental disability  since the introduction of Prozac into the human population. Best solutions for me: Social support via AA meetings. Acupuncture. Meditation. Dance. Nature. Yoga. Social support online with psych med survivor community. Nutrition. Exercise. More outdoor time. Go sit in the sunshine for 5 minutes. Touch a tree. Breathe deeply.

 

 

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  • 3 weeks later...
On ‎02‎/‎13‎/‎2018 at 12:00 PM, RubyTuesday said:

Yes, that. What scallywag said. About the reduction technique.

As for feeling like the walking dead, this is not uncommon. How fast did you taper the SSRI or did you cold turkey? In any event, best to taper the Lamictal as slowly as humanly possible. Have you tried acupuncture? Acupuncture was the most helpful for me.

You will definitely heal. We are all built to heal. Best wishes. Feel free to reach out any time.

Ruby

I'm currently down from 5mg to 3.8mg in about 3 weeks.  I know that's too fast but I really need to get off of this drug as it's making my protracted WD symptoms much worse.  I don't know if I'd survive 10% every 4 weeks based on my first 10% drop.  The derealization, agitation, and suicidal depression that comes with each drop is insane.  I had no idea Lamictal was such a nasty drug, even at this very small dose.  Please share any advice or positive vibes. 

20 years of daily SSRI use in total...

Paxil                                                                                                                                                                  1995-1998

Zoloft (25 mg)                                                                                                                                                 1998-2002

Lexapro (10 mg)                                                                                                                                              2002-2015    (**August 2015, Lexapro “stopped working" after near death of my 1.5 yr. old son**)

Lexapro (15/20 mg) - increasing dose only made SEs worse                                                                   Nov 2015 - Mar 2016

Zoloft (25/50 mg) - made derealization worse                                                                                            Mar 2016 - Jul 2016

Celexa (20 mg) - made symptoms worse                                                                                                     Oct 2016 - Jan 2017

Remeron (7.5 mg) - helped me eat and sleep for 4 nights, then went bad                                             Jan 2018 (stopped after 2 weeks)

Lamictal (2.0 mg) - started at 5 mg to help with WD symptoms, trying to wean off and has been complete HELL   Jan 2018 - current

 

(Trialed Prozac, Effexor, Wellbutrin, Cymbalta - severe reaction, couldn't tolerate longer than a few days)

 

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RubyTuesday

Yes it is a nasty drug. I personally felt like someone was beating on my head with a hammer every time I took a drop. You are doing GREAT!!! 

If you want to PM me your real name I will place it in my own favorite prayer circle. Totally optional.

Big Hugs!!!

2002: "Situational depression" 2002-2010:Prozac.Birth Control.2011 Short trials: Paxil, Celexa, Lexipro, Wellbutrin, Xanax, Ativan- Gee, Doc never mentioned protracted AD wd syndrome. Imagine that. 2011-2015. Lamictal. Seroquel. Remiron. 2012: "Complex post traumatic stress disorder." Fast taper of Remiron jumped off June 2013. Slow tapers ever since of Seroquel & Lamictal.  crippling muscle spasms. crying fits. panic attacks. akathisia. nerve twitches. the jitters. the heebie jeebies. de-personal/realization. numbness. tingling. fatigue. lethargy. nightmares.insomnia. weird images. eye pain.vertigo. dizziness. brain zaps. and on and on and on. withdrawal? side effects? which drug? impossible to know. Stopped Seroquel October 2015.  Stopped Lamictal  March 2016. Had more severe muscle/joint spasms that paralyzed me for 3 days at a time, last episode was March 2017.Going back to work as of February 2018 after 14 years off full-time work due to the crippling effects of psych meds. Check out Robert Whittaker "Anatomy of an Epidemic" for  his breakdown of the rates of mental disability  since the introduction of Prozac into the human population. Best solutions for me: Social support via AA meetings. Acupuncture. Meditation. Dance. Nature. Yoga. Social support online with psych med survivor community. Nutrition. Exercise. More outdoor time. Go sit in the sunshine for 5 minutes. Touch a tree. Breathe deeply.

 

 

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Lamictal is a very nasty drug.  I have been tapering for the past 2 1/2 years and these lower doses are tough.  I'm at 10mgs down from 200mgs.

 

I just have come out of horrible wave after pushing my taper the last two drops.   Though I too have wanted to push through this last phase, I continue to face the fact that the impact of Lamictal on my nervous system won't let me.  I chose some videos on YouTube at random and heard again how necessary it is to go slow at the lower doses due to the medication being at it's highest concentration point (my understanding and my words).  It goes against everything our bodies seem to want us to do, which is to move out of pain. 

 

I empathize with what you are going through and very much understand your frustration about the protracted wd symptoms of Lamictal.

 

I too recommend acupuncture (Acupuncture - Posts #6 & #8 - not detox or stimulation) or some kind of soothing body treatment to help calm your nervous system.  It helps a lot.

 

Edited by ChessieCat
added link to acupuncture topic

Sept 2013-Apr 2014:  After death of my mom put on as series of meds. Zoloft 6 days, Lexapro1 day, Nortriptyline 10 days, Liquid Prozac 1 week, Cymbalta 1 week.

Got off Clonzapam: 1/2014-9/2014. After given Lamictal, stopped Clonzapam at .125mgs

Completed Remeron taper: 41.25 -0.025mgs  1/2015-4 2017. 

Completed Lamictal Taper: 200mgs-0.05 mgs 7/ 2015-11/2018. 

Clonazapam  December 2018. 0.625 Had paradoxical reaction to Lamictal wd, broke my heart to take a benzo but wasn't sleeping and not thinking straight. 28 March, 2019  4% taper Total: .625mgai   26 May, 2019  4% taper Total: .575 mgai,   24 June, 2019 2.5 % taper  10 Clonzapam tablets weigh1.999 mgpw  Average  200 mgpw.  0.0073mgai 9AM, 0.0073mgai 3PM, .415mgai, Total: 561mgai,  10 July, 2019 (Compounded pills) .0073mgai 9AM,.0073mgai 3PM, .415mgai,

Total .561mgai   26 August, 2019 (Back to regular pills due to bad reaction) .0078mgai 9AM, .01075mgai 3PM, .360mgai PM, Total: .545mgai   26 Sept. 2019 .0775mgai 9AM, .1mgai 3PM, 0.350mgai PM: Total: .5275mgai   31 Oct, 2019 .0750mgai 9AM, .0925mgai 3PM, 0.340mgai 930PM, Total: .5075mgai,   30 Nov. 2019 .0775mgai 9AM, .0825mgai 3PM, .3325mgai 9:30PM, Total:.490mgai   31 Dec. 2019 .0775mgai 9AM,  .080mgai 3PM, .3225mgai 9:30PM,  Total: .4775mgai   31 Jan. 2020 .0725mgai 9AM, .0750mgai 3pm, .315mgai 9:30PM, Total: .4625mgai    29 Feb. 2020  .0675mgai 9AM, .0675 3PM, .305 mgai 9PM Total: .440mgai 31 March 2020 .065mgai 9AM,  .065mgai 3PM, .2925mgai 10PM, Total: 4225mgai  30 April 2020 .0625mgai 9AM, .0625mgai 3PM, .2775mgai 10PM  Total: .4025mgai 31 May 2020 .0625mgai 9AM, .0625 mgai 3PM, .2526 mgai 10PM, Total: .3775mgai  30 June 2020 .0625mgai 9AM, .0625mgai 3PM  .2175 mgai 10PM Total .3425mgai.   31 July 2020 .0575 mgai 9AM .0550 mgai 3PM .180mgai 10PM Total .2925mgai  31 August 2020 .0475mgai 9AM, 0.045mgai 3PM, .01475mgai 10PM Total: .2375mgai  30 September 2020 0.0375mgai 9AM 0.035mgai 3PM 0.110mgai 10PM  Total: .1825mgai 31 October 2020 .0325mgai 9AM .0350mgai 3PM  .0725mgai 9PM Total: .14mgai

 

Additional Support:  Armour Thyroid 75mgs,  Vitamin D, Vitamin C, Magnesium Glycinate

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Hibari, it sounds like it's time you took a vacation from tapering. Stay at 10mg lamotrigine for some months, then resume tapering. Congratulations on getting down so far!

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • 5 weeks later...

Hi-

I'm on 250 mgs of lamictal and currently tapering off of Effexor. I appreciate the thoughtful, specific and sober approaches to getting off of these meds. My goal is to be med free. I already feel better and alive in a way that I forgot about. Will stay close to this forum. Thank you to everyone who contributes here. 

 

250 mgs of Lamactil from 2007 to present

Systematically tapered for 7 months off 225 mgs of Effexor 

OFF EFFEXOR COMPLETELY JULY 11, 2018

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You are not alone PollyJ and taking it step by step will get you there. 

 

Sept 2013-Apr 2014:  After death of my mom put on as series of meds. Zoloft 6 days, Lexapro1 day, Nortriptyline 10 days, Liquid Prozac 1 week, Cymbalta 1 week.

Got off Clonzapam: 1/2014-9/2014. After given Lamictal, stopped Clonzapam at .125mgs

Completed Remeron taper: 41.25 -0.025mgs  1/2015-4 2017. 

Completed Lamictal Taper: 200mgs-0.05 mgs 7/ 2015-11/2018. 

Clonazapam  December 2018. 0.625 Had paradoxical reaction to Lamictal wd, broke my heart to take a benzo but wasn't sleeping and not thinking straight. 28 March, 2019  4% taper Total: .625mgai   26 May, 2019  4% taper Total: .575 mgai,   24 June, 2019 2.5 % taper  10 Clonzapam tablets weigh1.999 mgpw  Average  200 mgpw.  0.0073mgai 9AM, 0.0073mgai 3PM, .415mgai, Total: 561mgai,  10 July, 2019 (Compounded pills) .0073mgai 9AM,.0073mgai 3PM, .415mgai,

Total .561mgai   26 August, 2019 (Back to regular pills due to bad reaction) .0078mgai 9AM, .01075mgai 3PM, .360mgai PM, Total: .545mgai   26 Sept. 2019 .0775mgai 9AM, .1mgai 3PM, 0.350mgai PM: Total: .5275mgai   31 Oct, 2019 .0750mgai 9AM, .0925mgai 3PM, 0.340mgai 930PM, Total: .5075mgai,   30 Nov. 2019 .0775mgai 9AM, .0825mgai 3PM, .3325mgai 9:30PM, Total:.490mgai   31 Dec. 2019 .0775mgai 9AM,  .080mgai 3PM, .3225mgai 9:30PM,  Total: .4775mgai   31 Jan. 2020 .0725mgai 9AM, .0750mgai 3pm, .315mgai 9:30PM, Total: .4625mgai    29 Feb. 2020  .0675mgai 9AM, .0675 3PM, .305 mgai 9PM Total: .440mgai 31 March 2020 .065mgai 9AM,  .065mgai 3PM, .2925mgai 10PM, Total: 4225mgai  30 April 2020 .0625mgai 9AM, .0625mgai 3PM, .2775mgai 10PM  Total: .4025mgai 31 May 2020 .0625mgai 9AM, .0625 mgai 3PM, .2526 mgai 10PM, Total: .3775mgai  30 June 2020 .0625mgai 9AM, .0625mgai 3PM  .2175 mgai 10PM Total .3425mgai.   31 July 2020 .0575 mgai 9AM .0550 mgai 3PM .180mgai 10PM Total .2925mgai  31 August 2020 .0475mgai 9AM, 0.045mgai 3PM, .01475mgai 10PM Total: .2375mgai  30 September 2020 0.0375mgai 9AM 0.035mgai 3PM 0.110mgai 10PM  Total: .1825mgai 31 October 2020 .0325mgai 9AM .0350mgai 3PM  .0725mgai 9PM Total: .14mgai

 

Additional Support:  Armour Thyroid 75mgs,  Vitamin D, Vitamin C, Magnesium Glycinate

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  • 2 weeks later...

Hi I’ve been tapering down Lamotragine from 100 mg/day for around 3 years.  I’m at 7.8 mg in oral suspension from Walgreens.  I’m tapering 0.05-0.1 mg every few weeks and maintaining a technical job and marriage. I get strong feelings of hopelessness and try to get extra sleep and not do any damage to self or others. I really want to be done but taking time to allow brain to adjust.  The suspension is 1mg/ml and I use a plastic syringe. Ps my real name is not Art.

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Hello again, Art. If you would like to participate here more often, please post in your existing Introductions topic.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • 1 month later...

Has anyone who has taken lamictal ever develop bleeding gums?  I have always had excellent oral hygiene, and never had this issue, but two weeks after starting lamictal, I notice blood everytime I brush.  I have seen anecdotal stories of gum issues, but it is not on the side effect list.

 

I also seem to have some usual facial pain (anywhere from jaw to cheekbone to eye socket).  

 

Thanks

PAST

Gabapentin:  about 6 months in 2015, 300-900 mg, cold turkeyed Sept 2015 (at same time dc'd Klonopin)

Klonopin: June 2014- Sept 2015; 1mg tapered over 6 mths, dc'd at 0.25mg, withdrawal hellish (perhaps because of concurrent dc of gabapentin)

Mirtazepine: Jumped off at 2.4 mg. (stable in 8 months).

Seroquel:  June 14 - July 24, 2016, 25 mg alternate nights; smaller doses for shorter periods. Total use about 3 months 

Lamictal: March 19, 2018 - 1 mg; March 23 - 1.25 mg; April 6 - 2mg. Discontinued at 2 mgJuly 1, 2018 due to Steven Johnson Syndrome.

 

CURRENT

Supplements: Vit D, turmeric

Naturethroid: 65 mcg for hypothyroidism

Trazodone: Oct 2015 - June 2016; 75 mg tapered over 2 mths, intense w/d after 3 weeks. Reinstatement: 07/25/16 - 25 mg; updosed 08/03/16 - 50 mg;  10/01/16-  62mg; 03/24/17 dropped to 50 mg (stable in 2.5 months)

                           Current psych meds: Trazodone 50 mg

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Altostrata

I've never heard of bleeding gums from Lamictal, but what do I know.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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22 hours ago, Altostrata said:

I've never heard of bleeding gums from Lamictal, but what do I know.

 

Hi Alto,  

 

Looks like I have to thank WD for the bleeding gums.  Yesterday it was gone, as is this morning.  Whether it was a lamictal start-up issue or WD, I'll never know, but I'm glad it seems to be gone.

 

Thanks for responding

PAST

Gabapentin:  about 6 months in 2015, 300-900 mg, cold turkeyed Sept 2015 (at same time dc'd Klonopin)

Klonopin: June 2014- Sept 2015; 1mg tapered over 6 mths, dc'd at 0.25mg, withdrawal hellish (perhaps because of concurrent dc of gabapentin)

Mirtazepine: Jumped off at 2.4 mg. (stable in 8 months).

Seroquel:  June 14 - July 24, 2016, 25 mg alternate nights; smaller doses for shorter periods. Total use about 3 months 

Lamictal: March 19, 2018 - 1 mg; March 23 - 1.25 mg; April 6 - 2mg. Discontinued at 2 mgJuly 1, 2018 due to Steven Johnson Syndrome.

 

CURRENT

Supplements: Vit D, turmeric

Naturethroid: 65 mcg for hypothyroidism

Trazodone: Oct 2015 - June 2016; 75 mg tapered over 2 mths, intense w/d after 3 weeks. Reinstatement: 07/25/16 - 25 mg; updosed 08/03/16 - 50 mg;  10/01/16-  62mg; 03/24/17 dropped to 50 mg (stable in 2.5 months)

                           Current psych meds: Trazodone 50 mg

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  • 9 months later...
commitmenttohope

hello, I've been tapering off of lamictal for 3 years. I have been going very, very slowly with long periods of resting from tapering in between.  I started at 100mgs and now I'm at around 37mgs.  I have also tapered completely off of Cogentin and I'm also working on tapering abilify, was at 5mgs and now i'm at 4mgs of abilify.  this has been a very challenging process.  I'm preparing to make another reduction of lamictal. I'm gathering my supports and preparing for what will come with the with drawl. I am recommitting myself to the process knowing that no matter how bad I will have to feel,  we must keep our eyes forward. better health is ahead. we must continue moving forward in the process and slowly by slowly my health will be restored. thank you for your support.

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  • 5 months later...
  • Moderator Emeritus

About Lamictal withdrawal:  It was Googling "Lamictal withdrawal" that led me to Gianna Kali's site Beyond Meds back in 2009, which was the first step that led me to tapering off all the psych meds. At that time she said that her "Lamictal withdrawal from hell" page was by far the most visited page on her site, and she was still saying that years later, and it may still be the case. Apparently there are a lot of people experiencing problems and looking for help.

Started on Prozac and Xanax in 1992 for PTSD after an assault. One drug led to more, the usual story. Got sicker and sicker, but believed I needed the drugs for my "underlying disease". Long story...lost everything. Life savings, home, physical and mental health, relationships, friendships, ability to work, everything. Amitryptiline, Prozac, bupropion, buspirone, flurazepam, diazepam, alprazolam, Paxil, citalopram, lamotrigine, gabapentin...probably more I've forgotten. 

Started multidrug taper in Feb 2010.  Doing a very slow microtaper, down to low doses now and feeling SO much better, getting my old personality and my brain back! Able to work full time, have a full social life, and cope with stress better than ever. Not perfect, but much better. After 23 lost years. Big Pharma has a lot to answer for. And "medicine for profit" is just not a great idea.

 

Feb 15 2010:  300 mg Neurontin  200 Lamictal   10 Celexa      0.65 Xanax   and 5 mg Ambien 

Feb 10 2014:   62 Lamictal    1.1 Celexa         0.135 Xanax    1.8 Valium

Feb 10 2015:   50 Lamictal      0.875 Celexa    0.11 Xanax      1.5 Valium

Feb 15 2016:   47.5 Lamictal   0.75 Celexa      0.0875 Xanax    1.42 Valium    

2/12/20             12                       0.045               0.007                   1 

 

I'm not a doctor. Any advice I give is just my civilian opinion.

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Here is her latest, posted in 2018, lots of comments from people about Lamictal from the Furious Seasons website, probably other stuff too. I haven't read all of it. https://beyondmeds.com/2007/07/26/lamictal-comments/

Started on Prozac and Xanax in 1992 for PTSD after an assault. One drug led to more, the usual story. Got sicker and sicker, but believed I needed the drugs for my "underlying disease". Long story...lost everything. Life savings, home, physical and mental health, relationships, friendships, ability to work, everything. Amitryptiline, Prozac, bupropion, buspirone, flurazepam, diazepam, alprazolam, Paxil, citalopram, lamotrigine, gabapentin...probably more I've forgotten. 

Started multidrug taper in Feb 2010.  Doing a very slow microtaper, down to low doses now and feeling SO much better, getting my old personality and my brain back! Able to work full time, have a full social life, and cope with stress better than ever. Not perfect, but much better. After 23 lost years. Big Pharma has a lot to answer for. And "medicine for profit" is just not a great idea.

 

Feb 15 2010:  300 mg Neurontin  200 Lamictal   10 Celexa      0.65 Xanax   and 5 mg Ambien 

Feb 10 2014:   62 Lamictal    1.1 Celexa         0.135 Xanax    1.8 Valium

Feb 10 2015:   50 Lamictal      0.875 Celexa    0.11 Xanax      1.5 Valium

Feb 15 2016:   47.5 Lamictal   0.75 Celexa      0.0875 Xanax    1.42 Valium    

2/12/20             12                       0.045               0.007                   1 

 

I'm not a doctor. Any advice I give is just my civilian opinion.

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I have read through some of these now, they aren't especially helpful for tapering, mostly just people freaking out about withdrawal. If you need confirmation that tapering Lamictal is just as problematic as tapering any other psych drug, you can get that.  But if you are here you probably already know that. 😕 

17 hours ago, Rhiannon said:

Here is her latest, posted in 2018, lots of comments from people about Lamictal from the Furious Seasons website, probably other stuff too. I haven't read all of it. https://beyondmeds.com/2007/07/26/lamictal-comments/

 

Started on Prozac and Xanax in 1992 for PTSD after an assault. One drug led to more, the usual story. Got sicker and sicker, but believed I needed the drugs for my "underlying disease". Long story...lost everything. Life savings, home, physical and mental health, relationships, friendships, ability to work, everything. Amitryptiline, Prozac, bupropion, buspirone, flurazepam, diazepam, alprazolam, Paxil, citalopram, lamotrigine, gabapentin...probably more I've forgotten. 

Started multidrug taper in Feb 2010.  Doing a very slow microtaper, down to low doses now and feeling SO much better, getting my old personality and my brain back! Able to work full time, have a full social life, and cope with stress better than ever. Not perfect, but much better. After 23 lost years. Big Pharma has a lot to answer for. And "medicine for profit" is just not a great idea.

 

Feb 15 2010:  300 mg Neurontin  200 Lamictal   10 Celexa      0.65 Xanax   and 5 mg Ambien 

Feb 10 2014:   62 Lamictal    1.1 Celexa         0.135 Xanax    1.8 Valium

Feb 10 2015:   50 Lamictal      0.875 Celexa    0.11 Xanax      1.5 Valium

Feb 15 2016:   47.5 Lamictal   0.75 Celexa      0.0875 Xanax    1.42 Valium    

2/12/20             12                       0.045               0.007                   1 

 

I'm not a doctor. Any advice I give is just my civilian opinion.

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carefulprayerful

Rhiannon, have you seen a dose/occupancy chart for Lamotrigine?  

 

I am glad to read you are feeling better! 

Jan. 2018:     900 mg  Lithium      1.0 mg Risperidone            250 mg Lamotrigine

Jan. 2019:     0 mg Lithium           0.625 mg Risperidone        175 mg Lamotrigine

Jan. 2020:     0 mg Lithium           0.260 mg Risperidone        175 mg Lamotrigine

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On 9/20/2019 at 12:41 PM, carefulprayerful said:

Rhiannon, have you seen a dose/occupancy chart for Lamotrigine?  

 

I am glad to read you are feeling better! 

No, the only ones I've seen are what's here on SA, I don't think there's one for lamotrigine. I tend to assume it has the same kind of curved shape as the other drugs, just based on how difficult it is to taper at lower doses anecdotally.

Started on Prozac and Xanax in 1992 for PTSD after an assault. One drug led to more, the usual story. Got sicker and sicker, but believed I needed the drugs for my "underlying disease". Long story...lost everything. Life savings, home, physical and mental health, relationships, friendships, ability to work, everything. Amitryptiline, Prozac, bupropion, buspirone, flurazepam, diazepam, alprazolam, Paxil, citalopram, lamotrigine, gabapentin...probably more I've forgotten. 

Started multidrug taper in Feb 2010.  Doing a very slow microtaper, down to low doses now and feeling SO much better, getting my old personality and my brain back! Able to work full time, have a full social life, and cope with stress better than ever. Not perfect, but much better. After 23 lost years. Big Pharma has a lot to answer for. And "medicine for profit" is just not a great idea.

 

Feb 15 2010:  300 mg Neurontin  200 Lamictal   10 Celexa      0.65 Xanax   and 5 mg Ambien 

Feb 10 2014:   62 Lamictal    1.1 Celexa         0.135 Xanax    1.8 Valium

Feb 10 2015:   50 Lamictal      0.875 Celexa    0.11 Xanax      1.5 Valium

Feb 15 2016:   47.5 Lamictal   0.75 Celexa      0.0875 Xanax    1.42 Valium    

2/12/20             12                       0.045               0.007                   1 

 

I'm not a doctor. Any advice I give is just my civilian opinion.

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carefulprayerful

I did a google images search and did not find a dose occupancy chart but did this chart: 

 

Therapeutic plasma levels in relation to dose

 

https://www.sciencedirect.com/science/article/pii/S1059131107002452

(Scroll down.)

 

It’s roughly consistent with the dose occupancy charts for the other drugs. 

Jan. 2018:     900 mg  Lithium      1.0 mg Risperidone            250 mg Lamotrigine

Jan. 2019:     0 mg Lithium           0.625 mg Risperidone        175 mg Lamotrigine

Jan. 2020:     0 mg Lithium           0.260 mg Risperidone        175 mg Lamotrigine

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  • 10 months later...
Hopetobefree

Hi @Rhiannon, @brassmonkeyI was hoping you could help me with my Lamictal taper. I was doing fine with reducing my dose of Lamictal by 10% every 4 weeks or more until I got to 40mg and I went into a bad wave. I updosed to 45mg Lamictal and I'm starting to stabilise again at this dose. Its been 2  weeks at 45mg and I wont taper again until I feel more stable.

 

I've decided to try micro tapering (brass monkey slide method) and have bought a jewelers scale but I'm unsure if I can taper the Lamictal tablets this way. Can I crush the tablets into powder? Once I've crushed the tablet how long can they last in gel caps for?

 

Thank you.

May 2014 - July 2015 0.5 Clonazapam (cold turkey off)

October 2014 - November 2014 took Beta Blocker Propranolol (fast taper off)

December 2014 - began 2.5mg Lexapro worked up to 30mg Lexapro over 3 months

December 2014 - 2 mg Valium started sometimes took up to 6 mg Valium

April 2015 - started 25mg Lamictal worked up to 100mg Lamictal

April 2015  - began taper 4mg Valium. Stopped Valium 

July 2015 - stopped crumb of 2mg Valium

September 2017 began taper 30mg Lexapro.

February 2018 last dose Lexapro 1.25mg

Current 2019 - 100mg Lamictal at night.

October 2020 - Began 10% taper Dec 2019. was going ok until tapered from 45mg - 40mg. 1 week later all hell broke loose. Updosed to 45mg Hoping to stabilise 

 

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RubyTuesday

I am unfamiliar with those methods. I tapered Lamictal by dissolving it in water, a little beaker marked in 10 milliliters (?). I tossed my 25 mg tablet in there in the morning, dissolved it, discarded one unit, then 2, etc. until I got down to about 3/10th of the 25 mg then jumped off because the moon was full, a lunar eclipse, and I just couldn't take it anymore. But I had horrendous suicidal headaches for several weeks afterwards.

2002: "Situational depression" 2002-2010:Prozac.Birth Control.2011 Short trials: Paxil, Celexa, Lexipro, Wellbutrin, Xanax, Ativan- Gee, Doc never mentioned protracted AD wd syndrome. Imagine that. 2011-2015. Lamictal. Seroquel. Remiron. 2012: "Complex post traumatic stress disorder." Fast taper of Remiron jumped off June 2013. Slow tapers ever since of Seroquel & Lamictal.  crippling muscle spasms. crying fits. panic attacks. akathisia. nerve twitches. the jitters. the heebie jeebies. de-personal/realization. numbness. tingling. fatigue. lethargy. nightmares.insomnia. weird images. eye pain.vertigo. dizziness. brain zaps. and on and on and on. withdrawal? side effects? which drug? impossible to know. Stopped Seroquel October 2015.  Stopped Lamictal  March 2016. Had more severe muscle/joint spasms that paralyzed me for 3 days at a time, last episode was March 2017.Going back to work as of February 2018 after 14 years off full-time work due to the crippling effects of psych meds. Check out Robert Whittaker "Anatomy of an Epidemic" for  his breakdown of the rates of mental disability  since the introduction of Prozac into the human population. Best solutions for me: Social support via AA meetings. Acupuncture. Meditation. Dance. Nature. Yoga. Social support online with psych med survivor community. Nutrition. Exercise. More outdoor time. Go sit in the sunshine for 5 minutes. Touch a tree. Breathe deeply.

 

 

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brassmonkey

Unless it is the extended release type there should be no problem with crushing you tablets. I would continue to stabilize just as you are for a few more weeks and then try the homemade gel caps at the same dose. Some times people have a reaction to changing the form of their medication and need a few weeks with no other changes to settle in. After you've settled in on the homemade  gel caps you can start your Brassmonkey Slide.

 

The crushed material will stay good for several weeks if you keep it in a dark bottle in a cool dry place. I usually made up my capsules a week at a time, but when I was traveling I would make six weeks to two months worth and had no problems.

20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013.

Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks.  The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better.

Current dose 0.000mg 04-15-2017

 

"It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general."  Stephen Hawking

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