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uusoae: deciding what to do


uusoae

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Hi, SA. Long time lurker jumping in. As it says in signature, I'm still at a very high dose of prisitq and a more reasonable one of seroquel. I don't want to be, but there you go. I don't know if or when I'll get off them, because I'm 21 and juggling studying full time with having a messy head. But I thought I would say hi, because there's no harm in it.  B)

?.4.14 - 18.9.14          fluoextine 20-40mg, eventually 30mg

19.9.14 - 24.10.14      tapered fluoxetine after the usual bad psych advice

24.10.14 - 15.11.14    escitalopram 10mg

?.11.14                       switched from escitalopram to pristiq 50mg

?.2.15                         up to 100mg prisitq

28.3.15                       25mg seroquel added

?.10.15                       down to 12.5mg seroquel

1.3.16                         up to 150mg prisitq

 

2.12.16                       began tapering pristiq at slightly more than -10% (137.5mg). no changes so far.

1.1.17                         125mg pristiq + 25mg seroquel

15.2.17                       112.5mg pristiq + 25mg seroquel

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  • Moderator Emeritus

Hi uusoae , welcome.  Glad you decided to introduce yourself :).

 

I'm in Sydney too , also tapering pristiq.  If and when you're ready to start tapering , you'll get all the help you need here.

We have lots of useful information for tapering pristiq on the thread in the Tapering section.

 

What seems to happen is that after a few years ( or 5 , or 10 )  , the meds. "poop out" or stop working , and most doctors tend to increase doses and add more meds at that point.  I see from your signature that's already happened to you . . . double the pristiq , add seroquel  , increase the pristiq some more.

 

So having the whole of your life ahead of you , you'd be better to abandon the meds, before they abandon you.

 

Anyhow , good to have you on board ,  best wishes ,  Fresh

 

If you click FOLLOW at the top right , you'll receive an email each time someone posts.

1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg

2010-2012Cymbalta 120mg

Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta

Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months.

July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months.

Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg.

October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive.

March 2016 , 21mg

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  • Moderator Emeritus

Hi uusoae,

 

Welcome from another Pristiq taperer, also in the Sydney area, so G'day Mate.  This site is full of really good information and the members are very supportive and the volunteer staff are very knowledgeable.  It's really great that you have found SA and you are welcome to ask any questions you have here in your Intro/Update thread and also to use it to journal your progress.

 

The best way to search this site is to use a search engine and type in survivingantidepressants.org + the topic you are looking for.  Eg survivingantidepressants.org poop out

 

It's a good idea to learn coping techniques.  Here are a few links you might want to check out:

 

Resources:  Centre for Clinical Interventions (PDF modules that you can work through, eg:  Depression, Distress Intolerance, Health Anxiety, Low Self-Esteem, Panic Attacks, Perfectionism, Procrastination, Social Anxiety, Worrying)

 

Audio:  First Aid for Panic (4 minutes)
 

CBT Course:  An Introductory Self-Help Course in Cognitive Behaviour Therapy

 

Anyway, I am pleased you finally got around to joining up and introducing yourself.  It's nice to meet you.

 MISSION ACCOMPLISHED:    13 November 2021 -  0mg Pristiq      

Woohoo!!!  Finally off Pristiq   

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

My full tapering program     My Intro (goes to my tapering graph)    My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.  I do not provide tapering advice via PM.  Please post questions in your Introduction topic.  Please do not tag me for any reason.  I am an unpaid volunteer and assist members if I am able to and when I have the time.  Thank you for your understanding.

Mid Nov 2021 changed to low carb diet due to diabetes & cholesterol.  Lost 1/16 body weight, BP has reduced a lot. 

Links to my exercises and weights.  I also do 3 x 5.5 min with HIIT on exercise bike with 20 secs/min as fast as I can cycle.

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  • 7 months later...

Hi all, back again. 

 

Since making this topic I've what's probably been the best year of my life since childhood. My mood got to a really good place and I was able to (successfully) study full-time and pick up a part time job (which unfortunately ended as we were culled in the new financial year - that's govt work I guess), and I now live in the most beautiful suburb in Sydney with my best friend. All these things considered, I've decided that it's time to go off the pristiq.

 

I saw my gp today so I'm going to get a blood test for thyroid, liver and kidney function as well as iron levels (have been deficient in the past) and when I bought up going off medication the first thing she said was to go slow! So it looks like she'll be supportive and said I obviously know my stuff. The plan will be to do the 10% taper starting when uni ends (my last day is the 23rd of November) and try to do all my tapering in uni holidays so I have the greatest chance of undisrupted semesters. I was gonna go the pill cutting route for now and then when I get to lower doses (the 50mg range, say) switch to either compounded capsules or velafaxine to taper slower. 

 

Wrt tapering - I've read all the important articles on the site and lurked a good number of threads so I feel pretty ready to go for it.

 

Lastly, an introduction of me: I'm studying to be a primary school teacher, I love reading and writing, I'm passionate about alternative education (Montessori, Reggio Emilia, democratic), I recently bought a loom and wove my first scarf, and I'm planning to start a little container garden on our balcony. I love mysteries and feminism. It's nice to meet you all.

?.4.14 - 18.9.14          fluoextine 20-40mg, eventually 30mg

19.9.14 - 24.10.14      tapered fluoxetine after the usual bad psych advice

24.10.14 - 15.11.14    escitalopram 10mg

?.11.14                       switched from escitalopram to pristiq 50mg

?.2.15                         up to 100mg prisitq

28.3.15                       25mg seroquel added

?.10.15                       down to 12.5mg seroquel

1.3.16                         up to 150mg prisitq

 

2.12.16                       began tapering pristiq at slightly more than -10% (137.5mg). no changes so far.

1.1.17                         125mg pristiq + 25mg seroquel

15.2.17                       112.5mg pristiq + 25mg seroquel

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  • 1 month later...

So since the 2nd of december I've been taking roughly 137.5 mg of pristiq by cutting my 50 mg tablet and taking as close to 3/4 as I can get (it tends to crumble into several fragments). No changes at all yet. 

?.4.14 - 18.9.14          fluoextine 20-40mg, eventually 30mg

19.9.14 - 24.10.14      tapered fluoxetine after the usual bad psych advice

24.10.14 - 15.11.14    escitalopram 10mg

?.11.14                       switched from escitalopram to pristiq 50mg

?.2.15                         up to 100mg prisitq

28.3.15                       25mg seroquel added

?.10.15                       down to 12.5mg seroquel

1.3.16                         up to 150mg prisitq

 

2.12.16                       began tapering pristiq at slightly more than -10% (137.5mg). no changes so far.

1.1.17                         125mg pristiq + 25mg seroquel

15.2.17                       112.5mg pristiq + 25mg seroquel

Link to comment
  • Moderator Emeritus

No changes after 5 days is good news. Hope your CNS continues to respond well, i.e. not at all, to the dose decrease.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

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No changes after 5 days is good news. Hope your CNS continues to respond well, i.e. not at all, to the dose decrease.

 

thanks, scallywag. I think I have pretty good chances of things going ok - planning on doing 10%/month, and I also have the advantage of being in a really good place where I can focus on tapering (as opposed to a lot of members who are tapering with intolerable side effects).

?.4.14 - 18.9.14          fluoextine 20-40mg, eventually 30mg

19.9.14 - 24.10.14      tapered fluoxetine after the usual bad psych advice

24.10.14 - 15.11.14    escitalopram 10mg

?.11.14                       switched from escitalopram to pristiq 50mg

?.2.15                         up to 100mg prisitq

28.3.15                       25mg seroquel added

?.10.15                       down to 12.5mg seroquel

1.3.16                         up to 150mg prisitq

 

2.12.16                       began tapering pristiq at slightly more than -10% (137.5mg). no changes so far.

1.1.17                         125mg pristiq + 25mg seroquel

15.2.17                       112.5mg pristiq + 25mg seroquel

Link to comment

Still no changes so i will drop down to 125mg in the new year. My reduction as well as this one is actually by less than 10% so i feel comfortable dropping after a month rather than the recommended 6 weeks. I also recently got confirmation that i have a job that week start in mid January so we'll see how it goes.

?.4.14 - 18.9.14          fluoextine 20-40mg, eventually 30mg

19.9.14 - 24.10.14      tapered fluoxetine after the usual bad psych advice

24.10.14 - 15.11.14    escitalopram 10mg

?.11.14                       switched from escitalopram to pristiq 50mg

?.2.15                         up to 100mg prisitq

28.3.15                       25mg seroquel added

?.10.15                       down to 12.5mg seroquel

1.3.16                         up to 150mg prisitq

 

2.12.16                       began tapering pristiq at slightly more than -10% (137.5mg). no changes so far.

1.1.17                         125mg pristiq + 25mg seroquel

15.2.17                       112.5mg pristiq + 25mg seroquel

Link to comment
  • 3 weeks later...

Now at 125mg with no noticible changes.

?.4.14 - 18.9.14          fluoextine 20-40mg, eventually 30mg

19.9.14 - 24.10.14      tapered fluoxetine after the usual bad psych advice

24.10.14 - 15.11.14    escitalopram 10mg

?.11.14                       switched from escitalopram to pristiq 50mg

?.2.15                         up to 100mg prisitq

28.3.15                       25mg seroquel added

?.10.15                       down to 12.5mg seroquel

1.3.16                         up to 150mg prisitq

 

2.12.16                       began tapering pristiq at slightly more than -10% (137.5mg). no changes so far.

1.1.17                         125mg pristiq + 25mg seroquel

15.2.17                       112.5mg pristiq + 25mg seroquel

Link to comment
  • Moderator Emeritus

Great news, uusoae. Thanks for posting. Wishing you the best of luck with your new job.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.
1997-1999 Effexor; 2002-2005 Effexor XR 37.5 mg linear taper, dropping same #beads/week with bad results

Cymbalta 60 mg 2012 - 2015; 2016: 20 mg to 7 mg exact doses and dates in this post; 2017: 6.3 mg to  0.0 mg  Aug. 12; details here


scallywag's Introduction
Online spreadsheet for dose taper calculations and nz11's THE WORKS spreadsheet

Link to comment

I've been feeling sh*tty/low for the last few days, which is either from dropping pristiq, or from my girlfriend and housemate both going back to work and resulting loneliness. Maybe both, we shall see. Staying at 125mg and starting work next week.

?.4.14 - 18.9.14          fluoextine 20-40mg, eventually 30mg

19.9.14 - 24.10.14      tapered fluoxetine after the usual bad psych advice

24.10.14 - 15.11.14    escitalopram 10mg

?.11.14                       switched from escitalopram to pristiq 50mg

?.2.15                         up to 100mg prisitq

28.3.15                       25mg seroquel added

?.10.15                       down to 12.5mg seroquel

1.3.16                         up to 150mg prisitq

 

2.12.16                       began tapering pristiq at slightly more than -10% (137.5mg). no changes so far.

1.1.17                         125mg pristiq + 25mg seroquel

15.2.17                       112.5mg pristiq + 25mg seroquel

Link to comment
  • Moderator Emeritus

Good idea to hold until things stabilise a bit, esp with work starting soon.  Hormones and periods can also interfere with w/d.  I find day 14 slightly more problematic, and also when I have PMS :wacko:.  Noticing patterns can help you get through things, cause then you know it'll be easing again soon.

2010  Fluoxetine 20mg.  2011  Escitalopram 20mg.  2013 Tapered badly and destabilised CNS.  Effexor 150mg. 

2015 Begin using info at SurvivingAntidepressants.  Cut 10% - bad w/d 2 months, held 1 month. 

Micro-tapering: four weekly 0.4% cuts, hold 4 weeks (struggling with symptoms).

8 month hold.

2017 Micro-tapering: four weekly 1% cuts, hold 4 weeks (symptoms almost non-existent).

2020 Still micro-tapering. Just over 2/3 of the way off effexor. Minimal symptoms, - and sleeping well.
Supplements: Fish oil, vitamin C, iron, oat-straw tea, nettle tea.

My story of healing:ContinuedHealing

***I am not a doctor; please do your own research and be able to take responsibility for decisions you make.*** 

           'The possibility of renewal exists so long as life exists.'  Dr Gabor Mate.

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  • 4 weeks later...

A bit of a tricky update to make:

 

On monday (30/1) my girlfriend of a year and half broke up with me. Obviously I'm still young and we hadn't been together long in the grand scheme of things but it was still hard. With this in mind, I've stayed at 125mg rather than dropping to 112.5mg in february as I first planned.

 

I've had a tough couple of weeks flat out at my new job; at first I was told that only the first week was 35 hours (3-10pm every evening) but that extended to the first two weeks after training ("consolidation"). My new office is an half an hour away without traffic, so that's taken getting used to. The job itself is ok; I was initially very unsure of myself as a lot of the people in my training group are rehires and already knew the content, so I felt like I was performing below everyone else, learning slowly and asking more (and sillier) questions than the others. However, the other day my team leader recognised me by nominating me for an R&R award and said I was very good at my job, so I feel a lot better about that. My first pay day was the other day, so that was good too.

 

The only symptom/side effect to report so far took me a while to figure out: in the second week of January I started getting this awful gnawing stomach pain, which after a few days I realised was hunger! I stopped feeling physical hunger in 2014 when I started pristiq, and have adapted since then to using other cues to know when I'm hungry - namely feeling empty and feeling lightheaded, plus getting into a better routine. After I realised it was hunger, I tried eating to make it go away, but that only worked to a limited extent - like my body was also getting used to this new, weird feeling, and also like it was getting payback for 3 years without it. That settled down, luckily, so now my stomach only feels hungry when I need to eat.

?.4.14 - 18.9.14          fluoextine 20-40mg, eventually 30mg

19.9.14 - 24.10.14      tapered fluoxetine after the usual bad psych advice

24.10.14 - 15.11.14    escitalopram 10mg

?.11.14                       switched from escitalopram to pristiq 50mg

?.2.15                         up to 100mg prisitq

28.3.15                       25mg seroquel added

?.10.15                       down to 12.5mg seroquel

1.3.16                         up to 150mg prisitq

 

2.12.16                       began tapering pristiq at slightly more than -10% (137.5mg). no changes so far.

1.1.17                         125mg pristiq + 25mg seroquel

15.2.17                       112.5mg pristiq + 25mg seroquel

Link to comment
  • Moderator Emeritus

Sorry to hear of your break-up Uusoae, and on top of all the other stuff too.  You've done well to get yourself through all that.  Good decision to hold till things are a bit more settled.  Deciding to hold has probably also made it easier for you to adjust to your hunger signals without extra complications.  How's the hormones? 

2010  Fluoxetine 20mg.  2011  Escitalopram 20mg.  2013 Tapered badly and destabilised CNS.  Effexor 150mg. 

2015 Begin using info at SurvivingAntidepressants.  Cut 10% - bad w/d 2 months, held 1 month. 

Micro-tapering: four weekly 0.4% cuts, hold 4 weeks (struggling with symptoms).

8 month hold.

2017 Micro-tapering: four weekly 1% cuts, hold 4 weeks (symptoms almost non-existent).

2020 Still micro-tapering. Just over 2/3 of the way off effexor. Minimal symptoms, - and sleeping well.
Supplements: Fish oil, vitamin C, iron, oat-straw tea, nettle tea.

My story of healing:ContinuedHealing

***I am not a doctor; please do your own research and be able to take responsibility for decisions you make.*** 

           'The possibility of renewal exists so long as life exists.'  Dr Gabor Mate.

Link to comment
  • 3 weeks later...

On wednesday (15/2) I made the drop to 112.5mg, just so I have a little while to stabilise before uni starts on the 27th. A few days later the gnawing hunger was back (worst when I wake up), along with increased libido - two things suppressed by pristiq. Still, it's good to see things following a pattern; I don't want to refer to them as symptoms because they're more like my body readjusting. I've been feeling pretty run down from working late and I've been sleeping late too, but that should improve when my hours change when uni starts. Plus, the money is nice. The thing I need to start thinking about now is how to continue dropping below 100mg - I haven't had any negative side effects from cutting the tablets, so I don't thing I'll go the compounding route for now - maybe a jewelry scale? We'll see.

?.4.14 - 18.9.14          fluoextine 20-40mg, eventually 30mg

19.9.14 - 24.10.14      tapered fluoxetine after the usual bad psych advice

24.10.14 - 15.11.14    escitalopram 10mg

?.11.14                       switched from escitalopram to pristiq 50mg

?.2.15                         up to 100mg prisitq

28.3.15                       25mg seroquel added

?.10.15                       down to 12.5mg seroquel

1.3.16                         up to 150mg prisitq

 

2.12.16                       began tapering pristiq at slightly more than -10% (137.5mg). no changes so far.

1.1.17                         125mg pristiq + 25mg seroquel

15.2.17                       112.5mg pristiq + 25mg seroquel

Link to comment
  • 2 months later...

Since the 10th of April I've been at 100mg, with no noticeable difference. Things have been a bit chaotic in my home situation but I've been fine overall. Medically, I'm currently looking into diagnosis for a connective tissue disorder. I went to see my GP but she was booked out, so I saw a other who was nice but recommended alternating 100mg and 50mg doses as my next drop, and then seemed incredulous when I said that would be terrible - apparently she's had "several" patients do it with exactly the same medication!! She then gave me a script for 100s; on reflection I should have gotten one for 50x2, but oh well.

 

I've also decided to start seeing a psychologist if I can, as the main thing I struggle with in my life is finding motivation. I saw a rheumatologist recently, who then referred me to a physio and a geneticist - scary, but at least I'm being taken seriously, rather than being brushed off as a hypochondriac as many others with the condition I suspect I have are. Will update as needed.

?.4.14 - 18.9.14          fluoextine 20-40mg, eventually 30mg

19.9.14 - 24.10.14      tapered fluoxetine after the usual bad psych advice

24.10.14 - 15.11.14    escitalopram 10mg

?.11.14                       switched from escitalopram to pristiq 50mg

?.2.15                         up to 100mg prisitq

28.3.15                       25mg seroquel added

?.10.15                       down to 12.5mg seroquel

1.3.16                         up to 150mg prisitq

 

2.12.16                       began tapering pristiq at slightly more than -10% (137.5mg). no changes so far.

1.1.17                         125mg pristiq + 25mg seroquel

15.2.17                       112.5mg pristiq + 25mg seroquel

Link to comment
  • 6 months later...

Hello, it's been a while. I should start by saying my girlfriend and I got back together at the end of February and celebrated our 2 year anniversary in September. Life has been busy and I put tapering on the backburner for a while and held at 100mg. On 3/10/17 (October), I dropped to 87.5 mg (1 + 3/4), then again on 17/10 to 75 mg (1 + 1/2) and today 14/11 to 62.5 mg (1 + 1/4). I've had no noticeable symptoms or changes in mood. Hopefully this summer I will either get compounded capsules to go below 50mg, or cross-taper to Effexor.

?.4.14 - 18.9.14          fluoextine 20-40mg, eventually 30mg

19.9.14 - 24.10.14      tapered fluoxetine after the usual bad psych advice

24.10.14 - 15.11.14    escitalopram 10mg

?.11.14                       switched from escitalopram to pristiq 50mg

?.2.15                         up to 100mg prisitq

28.3.15                       25mg seroquel added

?.10.15                       down to 12.5mg seroquel

1.3.16                         up to 150mg prisitq

 

2.12.16                       began tapering pristiq at slightly more than -10% (137.5mg). no changes so far.

1.1.17                         125mg pristiq + 25mg seroquel

15.2.17                       112.5mg pristiq + 25mg seroquel

Link to comment
  • ChessieCat changed the title to uusoae: deciding what to do
  • 5 weeks later...

This past week I went down to 50mg!! The most recent part of my taper, from 100mg to 50mg, has been smooth and with no noticeable changes. I think this has partially to do with the fact that below 100mg pristiq is only an SSRI, and doesn't impact N reuptake. I found the most benefit from pristiq above 100mg and SSRIs do nothing for me, so it's clear that norepinephrine is an important part of my brain balance. For now I'm going to hold at 50mg and decide what to do next in the new year. 

?.4.14 - 18.9.14          fluoextine 20-40mg, eventually 30mg

19.9.14 - 24.10.14      tapered fluoxetine after the usual bad psych advice

24.10.14 - 15.11.14    escitalopram 10mg

?.11.14                       switched from escitalopram to pristiq 50mg

?.2.15                         up to 100mg prisitq

28.3.15                       25mg seroquel added

?.10.15                       down to 12.5mg seroquel

1.3.16                         up to 150mg prisitq

 

2.12.16                       began tapering pristiq at slightly more than -10% (137.5mg). no changes so far.

1.1.17                         125mg pristiq + 25mg seroquel

15.2.17                       112.5mg pristiq + 25mg seroquel

Link to comment

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