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Antipsychotic survivors? Interested in your stories


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Living proof that listening to your body is paramount and not getting hung up on percentages or sxs's. Thanks for posting.

Steve

Dosulepin 75mg 1996 - 1997 tapered off no problem - Prozac sporadic use between 1995 and 2011 usually 9 months then off.

Mirtazapine 2015 tapered off after 4 months no problem -Prozac 20mg 2012-2015 tapered off no problems

Prozac 20mg April 2016-May 2016 stopped ct after 4 weeks due to adverse reaction I believe to be serotnin toxicity due to mirtazapine interaction

Escitlopram 10 mg May 2016 - cut to 5mg May 2016  stopped ct November 2016 no W/d's noted

Lyrica 300mg May 2016 - July 2017 - Taper from Jan to Jul 17 awful taper.

Lofepramine 150mg  November 2016 - January 2017 Swift w/d as it didn't work

Quetiapine 75mg November 2016 changed to 150 XL May2017 changed to 150mg IR July 2017 reduced to in 25mg steps from July to 50mg Oct 17. 37.5mg 12th Nov 17 - 35mg 20 Nov 17 - 30mg 22 Nov 17 - 25mg 24 Nov 17 dropped to 20mg Dec 17, 15mg Jan 18. Current taken at bedtime.

Quetiapine dropped Jan 17th 2018.

Dosulepin 75mg May 2017 - increased in 25mg steps to 175mg Oct 17 Reduced to 150mg Nov 17 current taken at bedtime

Diazepam 15mg May 2016 - c/t'd by shrink after 6 weeks. Reinstated at 12mg after 4 weeks June 16 - current 4mg 3 times a day morning, 2.30pm and bedtime.

Mirtazapine 15mg since March 2015 - current - pooped out within 4 weeks

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  • 3 months later...

I am getting closer and closer to writing my success story, as time passes.

Please correct me if I'm wrong, but I personally don't think there is a big of a difference between recovery from antipsychotics, antidepressants or any other drug (that you are physically addicted to, let's call it that way). Everyone's symptoms are different, so the duration of recovery is different. It depends on many factors. But we are all suffering from one same thing - withdrawal syndrome. There are only variations of symptoms we experience, but many of our symptoms are the same. I think the reason why there aren't as many success stories as there are for antidepressants is because the number of people who are taking ADs is huge compared to number of people who are taking APs.

Well, I am getting better, and my withdrawal started when I got cold-turkey off antipsychotic.
The ability to think clearly, logically and make sense of things is back and it's even better than it was before WDS, the ability to feel, experience pleasant feelings, enjoy life when I can, eat normally, sleep normally and not be under severe stress. What I still struggle with is dissociation, but that is also much, much better than it was and it's a result of my childhood traumas that I am trying to resolve with my current therapist (as a tool we are NOT using medications, only psychotherapy).

And yes, I am able to tell people I love that I love them and really feel it inside, not only rationally know that I do so, which is a major improvement for me, besides everything.

My withdrawal journey (click)

 

"If you're going through hell - keep going".

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  • 3 months later...
Iatrogenesis
On 4/18/2018 at 1:32 AM, apathetic said:

I am getting closer and closer to writing my success story, as time passes.

Please correct me if I'm wrong, but I personally don't think there is a big of a difference between recovery from antipsychotics, antidepressants or any other drug (that you are physically addicted to, let's call it that way). Everyone's symptoms are different, so the duration of recovery is different. It depends on many factors. But we are all suffering from one same thing - withdrawal syndrome. There are only variations of symptoms we experience, but many of our symptoms are the same. I think the reason why there aren't as many success stories as there are for antidepressants is because the number of people who are taking ADs is huge compared to number of people who are taking APs.

 

In Europe, perhaps, although I'm not sure it's a HUGE difference.

In America though:

 

https://www.alternet.org/most-popular-drug-america-antipsychotic-and-no-one-really-knows-how-it-works

Abilify was the most popular drug of 2014. This is all because antipsychotics are being prescribed for an increasing number of diseases/disorders/what have you.

 

If there aren't as many success stories (I guess you mean in general, on the Internet), then it's perhaps because fewer people are aware of APs causing WD as well. This could have something to do with this multi-million pound class action lawsuit:

https://www.independent.co.uk/news/business/news/gsk-facing-uk-lawsuit-over-anti-depressant-755776.html

And the previous action against Glaxo

 

Quote

 

Following complaints from patients, GSK agreed last

summer to remove from the patient information leaflet an assertion that the drug is not addictive.

 

 

The lawsuits leveled against APs seem to be more concerned with some extremely disabling symptoms, diabetes, things like that.

1 year risperidone, 1 year olanzapine (10 mg). attempted first withdrawal cold turkey, failed. 2 more years olanzapine, switched to abilify which was very disruptive so attempted quitting cold turkey, failed. then 4 years amisulpride at 150 mg and about 3 zoloft at 150 mg. attempted withdrawal from both in 3 weeks, failed. reinstated zoloft and bridged to olanzapine (10 mg), successfully withdrew it over 10 months. tried withdrawing zoloft over 12 months, failed. bridged to prozac, at 40 mg,  now at 12 mg.

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  • 2 months later...
risperdalhater
On 11/3/2017 at 8:46 AM, Plshelp said:

Risperadalhater, 

 

You've recovered? Really? How long were you originally on it for? What were your original symptoms? You can send me a pm if you'd like. Thx I appreciate your time. 

 

Yes I recovered. My original symptoms were akathisa, very weak muscles/joints, anxiety and a deep depression/emotional numbness.

In March 2016 i suffered from a paranoia/schizophrenic episode which resulted in me taking risperidone/risperdal 3mg for about 3 weeks along with a couple 7mg long acting injections.  i had an intense withdrawal after stopping cold turkey and i have been off risperidone ever since then.

 

 

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Hey guys ,

i took zyprexa , flupentixol and imipramine few years ago and am not healed yet

Was on zyprexa and fluanxol ,imipramine for 8 months. Got off all! Still have issues with cognition, insomnia and fatigue, depression.

-no supplements

-no sugar/caffein

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52 minutes ago, risperdalhater said:

 

Yes I recovered. My original symptoms were akathisa, very weak muscles/joints, anxiety and a deep depression/emotional numbness.

How long did it take for u to feel normal again? 

Are ur emotions healed ? Had u ocd or brain zaps? 

Was on zyprexa and fluanxol ,imipramine for 8 months. Got off all! Still have issues with cognition, insomnia and fatigue, depression.

-no supplements

-no sugar/caffein

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risperdalhater
15 minutes ago, Wassimlapino said:

How long did it take for u to feel normal again? 

Are ur emotions healed ? Had u ocd or brain zaps? 

 

It took me 14 months. My emotions were healed and everything.  

In March 2016 i suffered from a paranoia/schizophrenic episode which resulted in me taking risperidone/risperdal 3mg for about 3 weeks along with a couple 7mg long acting injections.  i had an intense withdrawal after stopping cold turkey and i have been off risperidone ever since then.

 

 

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3 minutes ago, risperdalhater said:

 

It took me 14 months. My emotions were healed and everything.  

Sounds impressive! 

Have u been on aps long time? Do u suggest any supplement? 

Was on zyprexa and fluanxol ,imipramine for 8 months. Got off all! Still have issues with cognition, insomnia and fatigue, depression.

-no supplements

-no sugar/caffein

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  • 1 month later...
On 11/4/2018 at 11:27 AM, risperdalhater said:

 

It took me 14 months. My emotions were healed and everything.  

I have been off antipsychotics for 17 months. But I'm still on antidepressants. I have not healed at all. Still waiting.... But, I honestly don't know how much longer I can hold on. I am so disabled, I can barely function. 

Dec 2016 Risperidone 1 mg, Seroquel 25mg, Latuda 40mg 

Jan - Mar 2017 Paliperidone (invega) 6 -9mg, Zoloft, Mirtazapine, Proprananol, Ativan

Mar - Apr 2017 Aripiprazole (abilify) 10 mg

Apr 2017 - July 2017 Olanzapine (zyprexa) 5 mg tapered to 0mg

Oct 2017 - Present Effexor 37.5mg and Prozac 10mg 

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risperdalhater
4 hours ago, Plshelp said:

I have been off antipsychotics for 17 months. But I'm still on antidepressants. I have not healed at all. Still waiting.... But, I honestly don't know how much longer I can hold on. I am so disabled, I can barely function. 

 

anti-depressants can cause problems too, just saying.

In March 2016 i suffered from a paranoia/schizophrenic episode which resulted in me taking risperidone/risperdal 3mg for about 3 weeks along with a couple 7mg long acting injections.  i had an intense withdrawal after stopping cold turkey and i have been off risperidone ever since then.

 

 

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    I took anti-psychotics for one year straight at high dosages.  Seroquel (400 mg), Latuda (120 mg), and Abilify (20 mg) all at different times throughout the year.  I had no idea how dangerous these drugs were until after I discontinued them.   I discontinued them when I started to experience fatigue, memory loss, difficultly concentrating. I did not taper but discontinued Abilify (my final medication) within a weeks time  I am recovering very slowly, if at all. I am glad I no longer feel like I am dying but i'm concerned that the cognitive effects are permanent. I don't feel like the same person.  It is difficult for me to hold a conversation, my attention jumps all over the place, and my energy level is shot.  Reading is a struggle.  I am unimaginative, uninspired, and incapable of planning beyond a moments notice. The effects have adversely affected my career, my friendships,  my spirituality, my hobbies. 

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Risperdalhater how did it feel when you were healing months 11 - 14 ? What sort of signs should we be looking for ?

Risperdal 3 mg 2014-2015

Abilify 10 mg 2015-2017

Risperdal consta 37,5 mg 2017

Latuda 37 mg 2018

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risperdalhater
1 hour ago, Griqua said:

Risperdalhater how did it feel when you were healing months 11 - 14 ? What sort of signs should we be looking for ?

 

everyone is probably different when it comes to "signs of healing" but for me it was more physical strength and motivation gradually coming in.

In March 2016 i suffered from a paranoia/schizophrenic episode which resulted in me taking risperidone/risperdal 3mg for about 3 weeks along with a couple 7mg long acting injections.  i had an intense withdrawal after stopping cold turkey and i have been off risperidone ever since then.

 

 

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   I appreciate these stories of recovery.  They are inspiring and give me  a lot of hope.  I believe there is nothing more powerful in the recovery process than our shared experience. 

 

     Nonetheless, I still feel different.  Has anyone recovered after being on a particularly high dosage of anti-psychotics for an extended period of time. Throughout last year I was on 400 mg Seroquel, 120 mg Latuda, and 20 mg Abilify.   All at different times of course.  I was misdiagnosed and overmedicated.  I am discouraged because it seems like most the success stories I'm reading are by people who took anti-psychotics only briefly or in small dosages.  I know there has to be someone out there who went through heavy sedation.

 

   It took me a while to even realize that the drugs were having a detrimental effect.  It was really while on a high dosage of Latuda that I reached a tipping point and began to experience severe fatigue.  After a particularly gross experience with Abilify I discontinued all anti-psychotics in the period of about a week. Some of my symptoms are slowed cognitive processing, memory problems, lack of motivation, difficultly planning and executing a plan, social anxiety, flattened emotions, lack of creativity, insomnia.  Based on my research I believe most of these symptoms are caused by the suppression of dopamine.  If so,  what are the odds of the dopaminergic system in my brain recovering.  Should I expect months, years?  It really feels like this is an incremental process.   I finally woke up in a good mood for the first time in months and count that as a small victory. 

 

      I am trying to do everything I can to live healthy.  I am taking fish oil and magnesium supplements.  I have not been able to completely give up caffeine and cigarettes (I want to) because they are the only thing that gives me the hit of pleasure that I need to keep going in the drab world I now inhabit.

 

   

 

 

 

 

    

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On 11/29/2017 at 4:58 PM, ang said:

Was on masses of seroquel.        Did a dive after an unsuccessful attempt to stop ADs, so the ""sleeping tablet"" dose went up to a massive dose because the general practitioner said  ""oh you are only on a low dose, you can take up to ""insert amount"".          Problem being at a high dose it becomes a major antipsychotic.         The only reason I was ever psychotic was due to my adverse reactions to valium.
Long story short, hard to get off the crap, you need to recognise thoughts that are irrelevant and wrong.          Stay out of trouble, and taper slowly. 

It can be done, I was on a massive dose.              All gone now, and feeling great.    And beware, the lower the dose, the SLOWER you go in your taper.    

Dear @ang

 

how slowly did you taper quetiapine/seroquel? 

Where did you jump off?

how are you now?

2010-2018 sertralin, venlafaxin, cymbalta 120 mg, march bupropio, Lorazepam 4 to 0,5 mg qetiapine 200-400 mg Apr mirtazapin 30 - 45 mg, lo tapered, to 0; Apr switch to diazepam 3 mg; jun/jul 15mg, taper to approx. 4,5 mg, Aug: 200 to 400 mg q, 50 mg levomepromazine, m 45 to 30 mg; since tapered q 400-230 mg, m 30 to 15 mg, 1dez m to 16 mg, 4dez 250 mg q, 31. dec 200 mg q

March 1, 2019 - 200 mg quetiapine, 4,5 mg diazepam, 16 mg mirtazapine

March 3, 2019 - 200 mg quetiapine, 4,0 mg diazepam, 16 mg mirtazapine

March 4, 2019 - 200 mg quetiapine, 4,2 mg diazepam,16 mg mirtazapine, 

june 5, 2019 - 100 mg quetiapine, 3 mg Diazepam, 12,185 mg mirtazapine 

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On 12/17/2018 at 12:55 AM, Plshelp said:

I have been off antipsychotics for 17 months. But I'm still on antidepressants. I have not healed at all. Still waiting.... But, I honestly don't know how much longer I can hold on. I am so disabled, I can barely function. 

Dear @Plshelp

 

sorry that you suffer so much. 

Same with me.

how are you now?

2010-2018 sertralin, venlafaxin, cymbalta 120 mg, march bupropio, Lorazepam 4 to 0,5 mg qetiapine 200-400 mg Apr mirtazapin 30 - 45 mg, lo tapered, to 0; Apr switch to diazepam 3 mg; jun/jul 15mg, taper to approx. 4,5 mg, Aug: 200 to 400 mg q, 50 mg levomepromazine, m 45 to 30 mg; since tapered q 400-230 mg, m 30 to 15 mg, 1dez m to 16 mg, 4dez 250 mg q, 31. dec 200 mg q

March 1, 2019 - 200 mg quetiapine, 4,5 mg diazepam, 16 mg mirtazapine

March 3, 2019 - 200 mg quetiapine, 4,0 mg diazepam, 16 mg mirtazapine

March 4, 2019 - 200 mg quetiapine, 4,2 mg diazepam,16 mg mirtazapine, 

june 5, 2019 - 100 mg quetiapine, 3 mg Diazepam, 12,185 mg mirtazapine 

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On 12/18/2018 at 7:25 PM, dksleuth said:

  Has anyone recovered after being on a particularly high dosage of anti-psychotics for an extended period of time. 

 

 

hi dkslueth

when I was younger (mid to late 20s) I was on several APs, the older ones, stelazine and haldol (haldol for about a year..? then back on for some months here and there, and then given other APs, trilafon, respiradol (sp?) and I forget what else)

I recovered from that round of APs

 

sometime between 2002 and now**, I was on huge doses of seroquel for a long time, 400 was the min dose, I think it went up to 600 or more. I was also on zyprexa but I got so heavy on that and was so sleepy I had to discontinue it- I think that was actually in 1996, when I was 40.

 

anyway, I did have some pretty severe physical symptoms going off the seroquel, esp a painful neuropathy in my hands and mostly in my feet.

I was also on ADs so I don't know if those masked any emotional or psychological symptoms of WD, sorry I can't help you there

 

but the main point of my post is that yes, I am someone who was on a lot of APs and have recovered from it. My feeling is that my recovery from the APs was actually quicker than the recovery from those horrible SSRI's but I could just not have a good sense of the timeline and I def have a poor memory (partly due to not wanting to remember, to be perfectly honest)

 

I hope this gives you some hope. I think you will probably be ok. 

 

**sadly my rRx drug load was very high and varied during this time, so I can't tell you the precise dates, sorry!

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total)
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. I tried to get off it several times. WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". Crashed in Sept, reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well
  • Nov. 2018 feel 95% healed, current age 63 
  • Jan. 2020 feel 100% healed, peaceful and content 
  • Nov. 2020, loving life ❤️ 
 
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ScaredandLonely

 i am  currently  trying to  wean  down from 1mg Risperdol. any  success  stories  im  terrified  that i am left  permanently  with no emotions. i just  wanna die. 

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  • ChessieCat changed the title to Antipsychotic survivors? Interested in your stories

Same with me. All emotions gone and severe anhedonia. 

Ct cymbalta in March and tapered mirtazapine and quetiapine to fast. 

I have the same fear. 

I need to start getting more functional but with no interest and emotions this is almost impossible.

hang on.

2010-2018 sertralin, venlafaxin, cymbalta 120 mg, march bupropio, Lorazepam 4 to 0,5 mg qetiapine 200-400 mg Apr mirtazapin 30 - 45 mg, lo tapered, to 0; Apr switch to diazepam 3 mg; jun/jul 15mg, taper to approx. 4,5 mg, Aug: 200 to 400 mg q, 50 mg levomepromazine, m 45 to 30 mg; since tapered q 400-230 mg, m 30 to 15 mg, 1dez m to 16 mg, 4dez 250 mg q, 31. dec 200 mg q

March 1, 2019 - 200 mg quetiapine, 4,5 mg diazepam, 16 mg mirtazapine

March 3, 2019 - 200 mg quetiapine, 4,0 mg diazepam, 16 mg mirtazapine

March 4, 2019 - 200 mg quetiapine, 4,2 mg diazepam,16 mg mirtazapine, 

june 5, 2019 - 100 mg quetiapine, 3 mg Diazepam, 12,185 mg mirtazapine 

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On 12/23/2018 at 7:08 AM, Tanha said:

Dear @Plshelp

 

sorry that you suffer so much. 

Same with me.

how are you now?

Tanha

I apologize. I do not know how I missed your response. 

 

My update is available under my thread. 

 

I am sorry to hear that you also suffer. Xo

 

Dec 2016 Risperidone 1 mg, Seroquel 25mg, Latuda 40mg 

Jan - Mar 2017 Paliperidone (invega) 6 -9mg, Zoloft, Mirtazapine, Proprananol, Ativan

Mar - Apr 2017 Aripiprazole (abilify) 10 mg

Apr 2017 - July 2017 Olanzapine (zyprexa) 5 mg tapered to 0mg

Oct 2017 - Present Effexor 37.5mg and Prozac 10mg 

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Link to kirby's success topic:  my-story-1.2-years-and-getting-better

 

 

For anyone interested in my story, I had a relatively short time with zyprexa, around two months, but I quit cold turkey without relapse for over a year and getting better. To begin with, my dose was 10 mg, with lithium for a week, increased to 15 mg at the last week. Every moment of taking these drugs I wished I could get off it, but under the supervision of doctors and threat of hospitalization I was forced to be fed this stuff. Right after the supervision stopped, I convinced my family to let me quit and quit cold turkey by telling them how I felt like I was in a spiral of darkness and emptiness and it would only get worse. 

 

At first, for the first week I had absolutely terrible symptoms. I could not sleep even though I was tired, I felt the need to talk and continue talking, and I had this overwhelming feeling of dullness and emptiness in my spirit, and I felt like my body was about to collapse. But my family was super supportive (not to brag but maybe someone that reads this might be more knowledgeable on what worked for one person, also one of my family members is a registered nurse): every morning they forced me to eat a breakfast of toast, eggs and milk, and then go out on a walk with the dog. Then, as often as they could they would take me out, to eat, go shopping, or just drive around to let me feel refreshed. They forced me to go to bed at 10:00 every night even if I couldn't sleep, and even accompanied me by setting up a towel and pillow on the floor. They smiled when they talked to me, ignored the weird stuff I said, and were patient when I spoke slowly. When I mentioned wild things and they were really hurt by it, they never suggested sending me back to the hospital. Sometimes they would get super frustrated, they were even experiencing their own traumas because of my illness, but they kept it between them and didn't say a word to me (they would go to another room and vent or whisper). Also, I didn't have to work or go to school because it was the summer and my family was fiscally supporting me (I am young). One important thing to mention was my personal determination: I felt the medicine was terrible for me and I was willing to go through any and all symptoms no matter how severe because I wanted nothing to do with the medicine anymore. The strict schedule and kind attention and daily exercise and lack of pressure and probably personal determination was the foundation of my good recovery, although time ultimately was the answer.

 

After the first month I was able to express my thoughts better, but I was still dull everywhere. Also, I started to fear that I was changed forever. Most importantly, I started having massive crying spells. When words couldn't come out of my mouth I just started to feel really sad. Sometimes I would sit and cry for hours, with an unexplained mix of feeling of loneliness, neglect, and pain even though everyone was always kind and checking up on me. I believe this may have been associated with the reason why I had to take the medicine in the first place (I am pretty sure it was external social isolation because of my personality, situation, and previous social trauma). One time the neighbors called the police because they were concerned that someone was crying for hours on end all day (the police ended up leaving with nothing because I wasn't crying at the time they came and there was nothing wrong). This increased the tension, and I felt even worse. I started going into the closet to cry, but it didn't make the crying stop. My family started to get really upset because it made them feel terrible, but that made me feel worse. I was improving every day still, but it wasn't enough to stop the crying and nobody knew what to do. Then, I decided I needed to take action in my own hands and got myself a video game machine (2ds) - something I wanted but didn't want to spend money on for years because of the impact it might have on my studies and family, and the social memories it brought back. This stopped the crying, because I felt had something I could do whatever in and there were no consequences, and it probably made me rethink my negative memories in a more positive way. I still struggled with sleeping, always waking up at least once in the middle of the night, and never felt completely refreshed after sleep, but I was happy that I felt improvement.

 

After that, school was beginning, so I was encouraged to go to school (two upper division courses). However, I felt overwhelmed by the material - I was struggling to retain any information and concentrate. I knew i probably couldn't last, but it made the people around me feel relieved, so I dragged it on for as long as I could. When the test scores came in, I thought about my life overall and realized that I didn't have the capacity to do studies at the moment and also the stress hindered my recovery so I dropped the course. My family was upset, but because they saw my effort they were understanding. During this time I happen to find a free class on essential oils at health food store, and attended it. Then, I bought some essential oils for myself (doterra brand oil) and a diffuser, and tried it. It worked wonders and I was able to sleep through the night without waking. When I was stressed out and felt sad, it completely calmed me like I was lifted into another world. I also tried regular meditation, but it was hard, so I stuck with oils, playing video games, and guided meditations that I listened to into sleep (using the free phone app "insight timer"). I also visited a chinese medicine doctor who was in town; he taught me 6 exercises to relieve stress: using fingers to hit the baihui point on top of the head, hitting the sides of the legs (danjing - galbladder meridian), pushing the taichong point on the feet, tensing the gluteus maximum muscle then releasing it (progressive muscle relaxation), standing on toes then dropping the body (shaking the top of the head), then just standing around and shaking yourself for 5 minutes. He said doing that every day for a year would make me recover completely. This made me feel a lot better, both physically removing numbness in my head and knowing there was something I could do to make recovery faster, but I still was worried that I wasn't well enough for school and thought I might stay that way - now I know better because I experienced healing that time brings. 

 

Around at the third month, I started to have a new problem: gastrointestinal upset. Everything I ate no matter what came out immediately from the other end. It was awful and when I went to the md they could find nothing. My family contacted the chinese doctor and he gave me some special herbal tea to drink (it cost a lot), which in fact did improve the condition. When the tea ran out I had occasional bouts of diarrhea again, but it was ok because it was only occasional and before I started the medicine I was already having some gastrointestinal problems. As a postscript, this year I tried wormwood tea and found out I had a little bit of parasitic worms, which removing really helped my intestinal health. I still had diarrhea though (probably weak gut bacteria after the medicine) until I started eating around a teaspoon of expeller pressed organic coconut oil daily (originally for oil pulling). The coconut oil also improved my thinking in the week I ate it, so it might have further implications, although I have stopped because I recently got a cold and my intuition tells me to give my body a break. Overall, although I might one day completely recover, I now understand health is a lifelong project, and always trying to find something to make it better is a good habit.

 

Then two months later when the next semester of school came around, I decided to try to both get progress in my life (having a goal really makes recovery less tedious) and improve my physical health so I took a taichi class (upper division). I was terrible at it, still had terrible memorization, and ended up failing it. However, it made my family happy that I tried and I felt more confident about myself (I got through the semester without dropping). During this time I also met regularly with my primary physician - I wanted to maintain a good relationship with my doctors (assists in the trauma caused by the experience). At first they recommended I meet with a psychiatrist, but when I was adamant I wanted nothing to do with that field since it muddied up things too much, they were alright with it because I seemed to be improving. My doctor allowed me to visit a neurologist to address my concerns of involuntary twitching (happens all over the body when I am emotional, getting much better over time), and while the neurologist completely brushed off my concerns, it made me feel like I was making progress in understanding myself (at least I got to voice my concerns and feel less alone). Looking back, it also addressed the primary cause of my illness (social isolation). Mostly, I just followed my own gut on what to do next, and at this time my flexibility, optimistic view, attacking the original problem, and family support was the key.

 

Around the ten month mark, I decided I might never be able to go to school again (still unconfident in my ability to learn), so I went to the local community college to talk about other options. In the college they recommended that I might get a job, which I never really had before. Therefore, I went and applied to my dream job (doesn't require school) which was being a carrier at the postal office. I was very lucky, because they were in a shortage of new hires so I got the job. This really boosted my confidence and self worth, and I tried my hardest at work. It was a full time job, 9 to 5, and really demanding, but I was living out a dream I always had and exercising all day, which probably really made me recover better. However, I lacked the physical strength, and some of my coworkers and managers encouraged me to do something else, while others were really kind and encouraging. For the first time in my life, I felt "workplace problems" and "pride in my own work" and "following a dream" and I also felt "being needed and belonging". These all related to my initial problem and were very therapeutic in living out and solving, which was probably the biggest turning point in my recovery. Before this point I was also reluctant to go to school (relevant to my initial illness), because it reminded me of my social problems and I didn't understand the urge. Now that I did, and understand the value of school and its relation to my personal life, I determinedly decided to go back to school, making my family happy, quitting my previous "dream job", and going for my degree. Doing this also improved my other family member's high blood pressure they had for over a decade.

 

The past few months really showed this recovery: this semester in school, I was able to read over 20 chapters of textbook, take long essay exams and passed two upper division classes with A's. Still, I feel woozy at times, and can have grumpy tantrums, but I am understanding how to be patient with myself, trying to continuously improve, and ready to take on challenges in my life. I feel I have effectively resolved my initial problem to the point I can keep growing, and mostly recovered from medicines, and I also have a much better attitude in life. I am still recovering, however, but it has become just another part of my life. Yesterday I came across this form while searching for information on zyprexa (because I learned klonopin was a controlled substance from a cop cam show and wanted to do and wanted to see if zyprexa was one too), and related very well with other people's experiences, so I wanted to share mine. I writing so that my experience might inspire happiness and belief in oneself to others. The important thing to hang onto, in my opinion, is a belief to see things through with yourself whatever happens and keeping in touch with the people that are important to you.

 

Edited by ChessieCat
added link to success topic

My medications were short-timed and low-dosed, but still affected my life a lot; all this is in 2017.

June 21 - June 28 (inpatient) - 300 mg lithium

June 6 -  July 14 (inpatient then outpatient) - 10 mg zyprexa

July 14 - July 17 (outpatient try taper) - 7.5 mg zyprexa

July 18 - July 21 (outpatient doctor changed) - 10 mg zyprexa

July 21 - July 24 (outpatient doctor said got worse) -  15 mg zyprexa

July 25 - now (quit ct with family supervision) - nothing

 

I quit ct and was successful, but there were tons of symptoms and without my family support probably impossible. My situation was fortunate, and maybe if I tapered there would be less symptoms. But I feel what worked was a will to keep going, patience, and attitude to want to get better in any situation ct or tapering.

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  • 1 month later...
On 12/19/2018 at 1:25 AM, dksleuth said:

 

   I appreciate these stories of recovery.  They are inspiring and give me  a lot of hope.  I believe there is nothing more powerful in the recovery process than our shared experience. 

 

     Nonetheless, I still feel different.  Has anyone recovered after being on a particularly high dosage of anti-psychotics for an extended period of time. Throughout last year I was on 400 mg Seroquel, 120 mg Latuda, and 20 mg Abilify.   All at different times of course.  I was misdiagnosed and overmedicated.  I am discouraged because it seems like most the success stories I'm reading are by people who took anti-psychotics only briefly or in small dosages.  I know there has to be someone out there who went through heavy sedation.

 

   It took me a while to even realize that the drugs were having a detrimental effect.  It was really while on a high dosage of Latuda that I reached a tipping point and began to experience severe fatigue.  After a particularly gross experience with Abilify I discontinued all anti-psychotics in the period of about a week. Some of my symptoms are slowed cognitive processing, memory problems, lack of motivation, difficultly planning and executing a plan, social anxiety, flattened emotions, lack of creativity, insomnia.  Based on my research I believe most of these symptoms are caused by the suppression of dopamine.  If so,  what are the odds of the dopaminergic system in my brain recovering.  Should I expect months, years?  It really feels like this is an incremental process.   I finally woke up in a good mood for the first time in months and count that as a small victory. 

 

      I am trying to do everything I can to live healthy.  I am taking fish oil and magnesium supplements.  I have not been able to completely give up caffeine and cigarettes (I want to) because they are the only thing that gives me the hit of pleasure that I need to keep going in the drab world I now inhabit.

 

   

 

 

 

 

    

My periods on antipsychotics were quite brief (10days + 2 months). On thing I can tell you that may be of interest is that I was not able to wrote properly here for a long time. I believe your writing is much better so your hopefully already in a better state than I was. 

 

It took me almost 1.5-2 years before I started to see any differens e that made me hopeful about the future. GL

2015june psyc ward due to psychosis

10 days 10mg zyprexa. stopped cold turkey. side effects were blinking eyes, eyes shut down by themself when going to sleep, restless,hunger. I had natural sleep (6hrs) before zyprexa. Slept exact 8hours with zyprexa.

 

2015july one month after cold turkey(had own sleep during this time exact 8hours every night, felt like zyprexa sleep even though i didnt take it) I lost my sleep over a night and it never came back. 0hours for 7-10days before I had to reinstate zyprexa on 5mg first 2days 10mg 1week 5mg 1week and then stopped CT. maybe also had 7.5 and 2.5 some days dont remember.

 

2015sept/october 3weeks Nitrazepam 1w Theralen build of sleep

 

2016may psyc ward psychoziz. Trilafon injection Immovan 3weekz

 

2016june 1week theralen had some extra sleep but realised its just pushing problem forward i guess

 

2019 Ive now been medicine free for almost 2.5 years (I think last Trilafon injection was 2016 October) and still not fully recovered. I believe my overdose on Zyprexa (20mg + injection) did most damage. 

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  • 7 months later...
On 12/24/2018 at 9:38 PM, ScaredandLonely said:

 i am  currently  trying to  wean  down from 1mg Risperdol. any  success  stories  im  terrified  that i am left  permanently  with no emotions. i just  wanna die. 

Hi how are you today update

in June one month of latuda 
I was taking abilify from the 5 of September to the five of October 5mg 
Reinastate abilify two weeks ago 18/09/19

was taking 5 mg then 2,5 then 1 mg but taper to fast 

worsened my pssd 
Now taking 1 mg of abilify  

desrealization is gone 

sleep normal with Xanax 

I dont think Xanax worsened my pssd 

Feeling better but I want of the poisons 

A lot of emotional anesthesia 

Cbd oil 1,4 Cbd 15 thc 

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  • 2 months later...

I just wanted to come back and give a update to everyone here. I use to come here looking for recovery stories from invega sustenna injections. I’d find them and read recovery stories and never believed them. Reason was they’d write how they were suffering and never updated on what happened. Years later some would write that recovery was possible. It was hard to believe a lot of the stories. But I can tell you all that recovery is possible. I did it and anyone here can do it too. Stay strong everyone. Just wanted to update you all. 

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@Jgarza7That's wonderful to hear! Are you willing to post a success story separate from this for all to read? It should include your time on the drug, tapering strategy, symptoms, how/when they fell off, etc etc. It'd be so helpful...and more visible to those looking for success stories if you have your own special one listed in the success stories section!

3/21/19 started Bupropion XL 150 mg

3/21/19 started Risperidone 2mg

7/7/19 start Abilify half dose 5 mg. discontinue Risperidone

7/9/19 full dose Abilify 10 mg

7/29/19 discontinued Abilify due to panicky side effects

8/2/19 Began Latuda 20 mg

8/5/19 discontinued Latuda due to similar side effects 

8/10/19 discontinued Bupropion after realizing it was causing the insomnia

From 8/10/19 no drugs whatsoever

Currently taking Magnesium 150mgs daily

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  • 2 weeks later...

PLEASE NOTE: THIS IS NOT MY SUCCESS STORY (I wish). Jgarza7 asked me to post it here. 

 

I was injected with the loading dose of Invega Sustenna on December 10, 2018. I had a very bad experience when this happen. The first 4 months I was going through all the side effects and withdrawals of the medication. My wife and I were looking for answers to what was happening to me and why. We found many websites and information about this drug and all the people who were suffering from it. We found this site and another site called Blue light. I talk to different people there and well most of them told me their story but they were on the way to recovery. I didn't believe the stories some people would post on these sites. Reason is they would talk about how bad they suffered and never updated on what was going on. And one day come out of nowhere and said they were healed! Now! I know why some never updated their status or when they did it was many months  or years later. I am a perfect example of why. I am healed and recovery is possible for everyone. I just forgot to let everyone know that I no longer suffer from all the withdrawals and side effects. It took me 11 months to overcome this drug. I hope this helps someone out there who is looking for a recovery story. Stay Strong and I know it may seem like you'll never be you again but you will. I did it and so can you! Take care. Bye. :)

3/21/19 started Bupropion XL 150 mg

3/21/19 started Risperidone 2mg

7/7/19 start Abilify half dose 5 mg. discontinue Risperidone

7/9/19 full dose Abilify 10 mg

7/29/19 discontinued Abilify due to panicky side effects

8/2/19 Began Latuda 20 mg

8/5/19 discontinued Latuda due to similar side effects 

8/10/19 discontinued Bupropion after realizing it was causing the insomnia

From 8/10/19 no drugs whatsoever

Currently taking Magnesium 150mgs daily

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  • 11 months later...
On 4/7/2016 at 1:39 PM, Ayaa said:

I was taking Haloperidol  in 1992 for about 1.5 month. Risperidone and Chlorprotixen, then Quetiapine, then Saphris in 2013-2014. Both times I successfully stopped antipsychotics. I have seen other people here who also successfully quitted and recovered.

I am in the process of tapering off haloperidol and oxcarbazapine and its hell

March 2017- Aug 2017 benztropine 1mg, clonazepam 1mg, divalproex 500mg, haloperidol 5mg

 

Aug 2017-Dec 2018 benztropine .5mg, clonazepam .5mg, divalproex 500mg, haloperidol .5mg

 

May 2019 - Dec 2020 haloperidol .5mg , Oxcarbazapine 150mg

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  • 2 weeks later...
Biloelagirl89
On 4/8/2016 at 9:53 AM, Shep said:

I'm off all meds after taking cocktails of antipsychotics, antidepressants, benzos, z-drugs, etc. for 30 years. You name it, I took it. 

 

But I'm free now, off all drugs for almost 11 months, and slowly healing. 

Did u get akathisia? If so how long did u have it for?

 

-17th August started abilify 10mg 2020 to 24th of August 2020.

-Stopped abilify 10mg 7 days after taking it, as I developed induced akathisia on day 4.

-21st of August 2020 started self medicating 30mg morning and night mirtazapine to help subside the akathisa. 

- 28th of August 2020 stopped mirtazapine 30 mg morning and night cold Turkey.

-28th of August took       -Clonidine 50 mc morning and night.

-Reinstated Mirtazapine 4th of October 15mg.

-

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Biloelagirl89
On 1/25/2020 at 7:23 AM, Armorall said:

PLEASE NOTE: THIS IS NOT MY SUCCESS STORY (I wish). Jgarza7 asked me to post it here. 

 

I was injected with the loading dose of Invega Sustenna on December 10, 2018. I had a very bad experience when this happen. The first 4 months I was going through all the side effects and withdrawals of the medication. My wife and I were looking for answers to what was happening to me and why. We found many websites and information about this drug and all the people who were suffering from it. We found this site and another site called Blue light. I talk to different people there and well most of them told me their story but they were on the way to recovery. I didn't believe the stories some people would post on these sites. Reason is they would talk about how bad they suffered and never updated on what was going on. And one day come out of nowhere and said they were healed! Now! I know why some never updated their status or when they did it was many months  or years later. I am a perfect example of why. I am healed and recovery is possible for everyone. I just forgot to let everyone know that I no longer suffer from all the withdrawals and side effects. It took me 11 months to overcome this drug. I hope this helps someone out there who is looking for a recovery story. Stay Strong and I know it may seem like you'll never be you again but you will. I did it and so can you! Take care. Bye. :)

Did u get akathisia? 

 

-17th August started abilify 10mg 2020 to 24th of August 2020.

-Stopped abilify 10mg 7 days after taking it, as I developed induced akathisia on day 4.

-21st of August 2020 started self medicating 30mg morning and night mirtazapine to help subside the akathisa. 

- 28th of August 2020 stopped mirtazapine 30 mg morning and night cold Turkey.

-28th of August took       -Clonidine 50 mc morning and night.

-Reinstated Mirtazapine 4th of October 15mg.

-

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Yes I did ... but it wasnt too bad it was very light and it just would happen every now and then ... not so often though. I believe my doctor took me off too fast , when I first talked to her about coming off I wanted to tell her that I prefer to cut my pills in half and do it little by little but because I've been on the lowest dose that you could possibly be on I felt like I would be ok . Back in 2019 when my 1st doctor weaned me off I didnt experience any mental , emotional or physical symptoms at all , and he weaned me off super! Fast , at that time I didnt know anything about coming off meds , I didnt even know anything about being on them either , but I was taking 4 pills and each month he tapered down 2 pills per month which I only had 2 months of tapering off 4 pills and never experienced any mental or emotional side effects whatsoever , only thing it did was gave me insomnia for about 3 months long. When I told them that I wasnt sleeping they prescribed me olanzapine for sleep but it didnt help. So I didnt take it. I just went through it. My sleep returned after 3 months and I began to see symptoms come back and i got scared and got back on . But this previous taper I been seeing slight mental and emotional differences from coming off and now I wished I would have made my suggestion of coming off very slow to my doctor , I feel it would have been better that way but it's only been a month a 1 week since I been off everything and i already want to start over , i reinstated my oxcarbazapine last night after coming off for a week , i read on here that u could do that for about a week and to listen to your body if u see any extreme withdrawals to reinstate but only for a week. So last night made a week and I witnessed unbearable wd , so I reinstated. But I really do hate being on oxcarbazipine alone , to me oxcarbazapine works better pared with halodadol, and the reason why I think this is because all day I feel ok but when I pop my next oxcarbazapine man I dont like it. I'm not feeling good about this , I wish I should have told her to take me off slower. Think I'm gonna call monday and reinstate haldol.  And start over when i can. I think its smart to do it now since there hadn't been much time since I been off. Does anybody know how long a reinstatement should last before u can try to taper again ? I would assume maybe a year or longer .

March 2017- Aug 2017 benztropine 1mg, clonazepam 1mg, divalproex 500mg, haloperidol 5mg

 

Aug 2017-Dec 2018 benztropine .5mg, clonazepam .5mg, divalproex 500mg, haloperidol .5mg

 

May 2019 - Dec 2020 haloperidol .5mg , Oxcarbazapine 150mg

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