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Sadie: Seeking Paxil CT advice


Sadie

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Hi everyone. Newbie here - a decidedly **** scared newbie at that!

 

In September last year, in my infinite wisdom  :blush: I stopped taking my 60mg dose of Paxil (cold turkey). I had been taking the drug for 18 months - I'm not sure exactly how long I was on the 60mg. I cannot rely on my memory at all. I stopped because I thought it may have been responsible for the play between restlessness and extreme fatigue I was experiencing. For about six months I'd been smoking weed as it was the only thing that made me feel calm. I simultaneously stopped the 150mg Pregabilin I'd been taking (for a few months I think) though I did taper this.

 

The Seroxat was prescribed for the anxiety embedded in my anorexia - I had never suffered with depression, yes I'd always been a 'worrier' as my dad is and as my nan was. I've always felt and thought about things quite deeply - would I call that a mental health problem? I'm not sure anymore. In my current state, I don't feel I can even trust my own judgement. 

 

So, one week on from stopping I started to feel 'odd'. I felt manic, agitated, really anxious and then I started to suffer with awful diarrhoea -this has only just started to ease seven months on. On the 7th day, I was just about to sit down to dinner and my heart began to race at a phenomenal rate. Convinced I was having a heart attack, I began to panic that years of starving myself and pushing my body to the extreme had finally caught up with me. I quietly told my partner to ring an ambulance and fought the feeling I was going to pass out. I remember thinking, 'I can't leave him like this. I can't do this to him'. The time we've been together hasn't been easy by any means. He suffered a traumatic injury some years ago - we'd just started to turn corners and the idea I'd cause him that much pain was unbearable. 

 

The paramedics and Dr at the hospital quickly refuted this episode could have anything to do with halting Seroxat, 'you seem anxious' they said, I assume they think I'd suffered a panic attack (maybe I had. If so it was the first in my life). I was anxious, in fact I was flat out terrified, of everything. From there on, I saw my GP, who said I must be feeling the physical effects of my 'anxiety' and needed to go back on the Seroxat. At the time I was so horrified I'd taken something that potent, that could derive such horrific withdrawal effects I refused. I thought it'd be a couple of weeks at most. A few days later my local mental health team were called in, I think my partner and family presumed I'd had a breakdown. Nobody agreed this could all be down to stopping the medication - it was my underlying 'condition'. From there I was prescribed Fluoxetine, Diazepam, Citalopram and then Effexor (as well as reinstating the Pregabilin) Nothing eased how I was feeling (the Diazepam just knocked me out). I weaned off all of these (wasn't on each drug for very long) but remain on the Pregabilin - weaning of these at present. 

 

The first three or four months were catastrophic: blind fear, irrational paranoia, unable to do anything/focus on anything, awful dread feeling waking up, especially if I tried to sleep during the day which I now avoid, nightmares,constant diarrhoea, rage. I couldn't eat. I was crying in my mum and dad's arms like a small child. It's hard to describe the permanent feeling of unease in my body, the waves of just acute dread that come over you - though I'm sure you can all relate. I still have that feeling now, as well as: depersonalisation, detachment, a weird drunk/foggy/fuzzy feeling, intrusive thoughts and images, awful headaches and everything jolts/twitches. My cognitive function is severely depleted to put it mildly. I'm also suspicious this has affected my menstrual cycle.

 

Having read a lot on this forum and elsewhere online, I'm convinced what I'm going through is withdrawal (though I do have moments where I think, 'Is this me? Are the Drs right? Have I gone insane?!'). This reading has brought to my attention that cold turkey is the worst approach :( but I'm concerned I've left it too long to reinstate and then taper. While I sometimes think, 'I've come this far' its a mission to get through each day. I don't know what the f*** to do. I'm scared I'll never have a fulfilled life, have a career, be a mother. 

 

Finding this site was a comfort. To know others share these struggles, and I'd be so grateful for any advice, especially with regard to reinstating. 

Paxil for 18 months, eventually reaching the max dose of 60mg. Stopped c/t in September 2015.

Pregabalin for 3-4 months, 150mg twice a day. Weaned off over a period of 2-3 weeks. Stopped in conjunction with the Paxil.

 

Mid October 2015, prescribed Diazepam, 5mg up to three times a day & Fluoxetine, 20mg. 

After three weeks, weaned off the Diazepam over a period of twelve or so days. 

Stayed on the Fluoxetine for about five weeks, tapered off over a fortnight. 

 

End of November 2015, started on Citalopram, reaching 30mg. Also reinstated Pregabalin (150mg twice a day).

February 2016 weaned off the Citalopram over a fortnight and started Effexor (reaching 150mg).

March 2016 weaned off the Effexor over a period of three weeks. 

 

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  • Moderator

Hi Sadie--  Welcome to the group.  I'm so glad you found us, and so sorry for what you've been going through. 60mg of paxil is an insane amount to be taking let alone cting off of.  I do know of people who have done it though and have recovered, so there is no reason you can't be one of them.  It has been a long time since you stopped, but that doesn't rule out a reinstatement.  It just makes it trickier to do.  Going on and off of all the other drugs in the interim hasn't helped matters either.  We could really use some more detailed information about all of the drugs you've used, dates, length of time, doses etc. to make some informed suggestions.  Adding a signature block will really help us see what is going on: 

 

http://survivingantidepressants.org/index.php?/topic/893-please-put-your-withdrawal-history-in-your-signature/

 

To give you some background information about what is happening to you here are some good threads to read:

 

What is withdrawal syndrome?

 

About reinstating and stabilizing to reduce withdrawal symptoms

 

Why taper by 10% of my dosage?

 

Give those a read and then ask us a lot of questions.

20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013.

Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks.  The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better.

Final Dose 0.016mg.     Current dose 0.000mg 04-15-2017

 

"It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general."  Stephen Hawking

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  • Moderator Emeritus

Hi Sadie , welcome to the site. We can advise you on all aspects of reinstating if that's what you want to do.

Once we have clearer information we can suggest a plan.

 

How long were you on seroxat for total? Do you have any paxil left?

 

If you click FOLLOW at the top right , you'll receive an email each time someone posts here.

 

Best wishes , Fresh

1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg

2010-2012Cymbalta 120mg

Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta

Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months.

July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months.

Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg.

October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive.

March 2016 , 21mg

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Hi Fresh and Brassmonkey - thanks so much for your responses.

 

I was on the Seroxat for 18 months in total.I do have some 10mg tablets here. I spoke to a pharmacist a couple of days ago, he said if my problems are related to changes from taking the drug away, that by taking one (even at a lower dose) I should see an improvement within 5-6 hours.

 

Now, I was sceptical about this, but I tried for a couple of days anyway and the fogginess did seem to ease (but this can happen very occasionally anyway) so confusing! And all the other symptoms remained the same. So really, I'm no clearer about what to do. I guess more than anything I want to try and avoid as much damage as possible, but if it's really true that cold turkey can be survived - God I hope it it is - then perhaps reinstating might be more of a risk this stage/may just prolong the pain?

 

Brassmonkey - the length of time I was on all the other meds is a complete blur - think I noted some of the time frames down in last year's diary. I'm feeling particularly fuzzy and out of it right now, so will try and report back on this later. Really appreciate your willingness to help!

 

Thanks again,

Sadie. 

Paxil for 18 months, eventually reaching the max dose of 60mg. Stopped c/t in September 2015.

Pregabalin for 3-4 months, 150mg twice a day. Weaned off over a period of 2-3 weeks. Stopped in conjunction with the Paxil.

 

Mid October 2015, prescribed Diazepam, 5mg up to three times a day & Fluoxetine, 20mg. 

After three weeks, weaned off the Diazepam over a period of twelve or so days. 

Stayed on the Fluoxetine for about five weeks, tapered off over a fortnight. 

 

End of November 2015, started on Citalopram, reaching 30mg. Also reinstated Pregabalin (150mg twice a day).

February 2016 weaned off the Citalopram over a fortnight and started Effexor (reaching 150mg).

March 2016 weaned off the Effexor over a period of three weeks. 

 

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Okay, so I have tried to track back all the meds...I hadn't recorded it properly as I was in such a muddle and still am, but have attempted to be as accurate as possible. 


 


I was on the paxil 60mg for 18 months - not sure as to how long I was on the max dose. In conjunction I was on 150mg Pregabilin (morning and night) for approx 3 or 4 months. I weaned off this (probably too quickly) and stopped both at the same time in September 2015. 


 


In mid October, I was prescribed Diazepam (5mg up to three times a day) and started on 20mg Fluoxetine. I was taking the Diazepam for 3 weeks max and weaned off over about 1.5 weeks. I stayed on the Fluoxetine for roughly five weeks and tapered off over a fortnight and then started on Citalopram at the end of November. I got up to 30mg of this, and reinstated the Pregabilin (150mg) then at the beginning of Feb a psychiatrist recommended Effexor. So I went on to this (not clear how I transitioned between the two) but I got up to 150mg of the Effexor and started to come off in mid March over a period of two weeks. 


 


So at present I am on the Pregabilin and nothing else. Haven't a clue where to go from here. I am so confused and angry that all these other drugs have been introduced when the crux of the problem (I'm pretty sure) is Paxil withdrawal and not an 'anxiety disorder' as various healthcare professionals kept insisting. I don't know what to do. Should I taper from the Pregabilin and try to be patient with the healing process? Or try and reinstate the Paxil? Med free is the ultimate goal, but I can't see the woods from the trees right now. I'm in such a muddle I don't feel I can trust my own judgement/ ability to measure my own symptoms. 


Paxil for 18 months, eventually reaching the max dose of 60mg. Stopped c/t in September 2015.

Pregabalin for 3-4 months, 150mg twice a day. Weaned off over a period of 2-3 weeks. Stopped in conjunction with the Paxil.

 

Mid October 2015, prescribed Diazepam, 5mg up to three times a day & Fluoxetine, 20mg. 

After three weeks, weaned off the Diazepam over a period of twelve or so days. 

Stayed on the Fluoxetine for about five weeks, tapered off over a fortnight. 

 

End of November 2015, started on Citalopram, reaching 30mg. Also reinstated Pregabalin (150mg twice a day).

February 2016 weaned off the Citalopram over a fortnight and started Effexor (reaching 150mg).

March 2016 weaned off the Effexor over a period of three weeks. 

 

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You need to reinstate a small dose, takes four days to get into your blood, if I were you, I would give it a try, or you could be in for a long road to recovery. Ali

10 years citalopram 30mg- tapered down in December 15/2015- Jan 15/2016 to 20mg for two weeks, ten for one week and five for another week, then stopped, less then two weeks later, sheer hell broke lose with debilitating withdrawal symptoms.

 

Update-- reinstated 5mg of celexa on feb 5-- within hours noticed immediate difference in WD symptoms-- Holding holding and more holding.

 

Updose- March 23/16 too 10mg- relieved the harsher head symptoms- current symptoms headaches, dizzy, numbness and tingling in my head.

 

Benzos- 2015-Ativan on and off for 6 months 2mg- switched to clonazepam nov 2015- 2mg till Jan 2016 Zopiclone 7.5mg nov-dec 2015- was tapered off over 4weeks- Currently in protracted withdrawal. ????????????????????????????????

 

Update- ended up in the hospital April 18/16 major suicidal ( never had that before) was admitted/ been there ever since, put me back to full dose celexa 30mg no drugs added, IAM FINALLY STABLE AFTER 3 months of tortuous hell. Got a great physiatrist that new all about WD, he will help me taper properly in a couple of months at 5% deductions holding 8 weeks. I never want to relive that hell again.

 

Udate- stable and holding, doing things slowly is key.

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Haven't I left it too late? I'm terrified.

Paxil for 18 months, eventually reaching the max dose of 60mg. Stopped c/t in September 2015.

Pregabalin for 3-4 months, 150mg twice a day. Weaned off over a period of 2-3 weeks. Stopped in conjunction with the Paxil.

 

Mid October 2015, prescribed Diazepam, 5mg up to three times a day & Fluoxetine, 20mg. 

After three weeks, weaned off the Diazepam over a period of twelve or so days. 

Stayed on the Fluoxetine for about five weeks, tapered off over a fortnight. 

 

End of November 2015, started on Citalopram, reaching 30mg. Also reinstated Pregabalin (150mg twice a day).

February 2016 weaned off the Citalopram over a fortnight and started Effexor (reaching 150mg).

March 2016 weaned off the Effexor over a period of three weeks. 

 

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  • Moderator Emeritus

Hi Sadie, what a nightmare this must have been for you! So many drugs and doctors denying withdrawal.  :mad: You could try a reinstatement and there is a chance that it could help as you felt some improvement when you tried the 10mg. I would try 1 mg and see how it goes. Quite often that is all that is needed to make a difference. If you tolerate it well but there is no improvement you can go up to 2mg. It takes 4 days for it to get to a steady level in the blood but there can be improvement within a very short time. You can make a liquid from the tablets to get the lower dose, you can find instructions here   http://survivingantidepressants.org/index.php?/topic/2693-how-to-make-a-liquid-from-tablets-or-capsules/

 

When you have stabilised you can then start a slow taper from that tiny dose.  

 

Let us know how it goes wont you? 

 

**I am not a medical professional, if in doubt please consult a doctor with withdrawal knowledge.

 

 

Different drugs occasionally (mostly benzos) 1976 - 1981 (no problem)

1993 - 2002 in and out of hospital. every type of drug + ECT. Staring with seroxat

2002  effexor. 

Tapered  March 2012 to March 2013, ending with 5 beads.

Withdrawal April 2013 . Reinstated 5 beads reduced to 4 beads May 2013

Restarted taper  Nov 2013  

OFF EFFEXOR Feb 2015    :D 

Tapered atenolol and omeprazole Dec 2013 - May 2014

 

Tapering tramadol, Feb 2015 100mg , March 2015 50mg  

 July 2017 30mg.  May 15 2018 25mg

Taking fish oil, magnesium, B12, folic acid, bilberry eyebright for eye pressure. 

 

My story http://survivingantidepressants.org/index.php?/topic/4199-hello-mammap-checking-in/page-33

 

Lesson learned, slow down taper at lower doses. Taper no more than 10% of CURRENT dose if possible

 

 

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Don't be afraid, try a small dose and see if it helps. Ali

10 years citalopram 30mg- tapered down in December 15/2015- Jan 15/2016 to 20mg for two weeks, ten for one week and five for another week, then stopped, less then two weeks later, sheer hell broke lose with debilitating withdrawal symptoms.

 

Update-- reinstated 5mg of celexa on feb 5-- within hours noticed immediate difference in WD symptoms-- Holding holding and more holding.

 

Updose- March 23/16 too 10mg- relieved the harsher head symptoms- current symptoms headaches, dizzy, numbness and tingling in my head.

 

Benzos- 2015-Ativan on and off for 6 months 2mg- switched to clonazepam nov 2015- 2mg till Jan 2016 Zopiclone 7.5mg nov-dec 2015- was tapered off over 4weeks- Currently in protracted withdrawal. ????????????????????????????????

 

Update- ended up in the hospital April 18/16 major suicidal ( never had that before) was admitted/ been there ever since, put me back to full dose celexa 30mg no drugs added, IAM FINALLY STABLE AFTER 3 months of tortuous hell. Got a great physiatrist that new all about WD, he will help me taper properly in a couple of months at 5% deductions holding 8 weeks. I never want to relive that hell again.

 

Udate- stable and holding, doing things slowly is key.

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  • Administrator

Welcome, sadie.

 

Since you've already experimented with taking Paxil again, it seems it might help you stabilize. If those tablets were left over from last year, they may have expired.

 

If I were you, I might try 5mg paroxetine taken at the same time every day. Consistency is very important. If you don't have a bad reaction, see how it affects you over a week.

 

It sounds like you had severe withdrawal syndrome early in the game. Not only going cold turkey off 60mg Paxil and the pregabalin in September but all the going on and off drugs -- particularly the benzo -- since has made your nervous system very sensitive.

 

In addition, you must make sure your body gets proper nurturance to recover. Food is medicine and fuel for healing.

 

Why are you taking pregabalin now, at what times of day do you take it, and what effect does it have?

 

Please keep notes on paper of your daily symptom pattern and when you take your drugs.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Hi everyone. Huge thanks for your responses.

 

Alto - My GP advised me to go back on the Pregabilin to help with the 'anxiety' - I called her one day in a real state because I was feeling so dreadful, like I didn't want to be in my body anymore - and she said the Pregab will help. I feel so stupid to have gone with all this advice, but at the time the psychologist I was seeing kept telling me my belief in withdrawal was preventing my recovery and I thought, 'well she's the expert'. Sigh!

 

I take the Pregab 150mg in the morning and at night - same time every night but the morning can vary. I'm not sure if it's helping, or the progress is natural/I've gotten better at handling it all. So many variables that are impossible to untangle. 

 

This is my concern with reinstating...I'm scared I wouldn't be able to differentiate between a bad reaction and what's already happening if that makes any sense?  :unsure: If I was to take it for a week, with no improvement or worse, a destabilization - what then? 

 

I am trying very hard to eat well - but I have to be mindful in this area having been anorexic for so long. In the first few months I was losing weight at a phenomenal rate, every time I felt able to eat, it'd be really calorific,  sugary and carb-heavy foods. But I think for me, not eliminating food groups entirely is more sensible. That's one positive out of this whole experience, I have broken the rigidity of my eating disorder in ways I once thought were impossible. 

 

Massive thanks everyone for your responses. 

Paxil for 18 months, eventually reaching the max dose of 60mg. Stopped c/t in September 2015.

Pregabalin for 3-4 months, 150mg twice a day. Weaned off over a period of 2-3 weeks. Stopped in conjunction with the Paxil.

 

Mid October 2015, prescribed Diazepam, 5mg up to three times a day & Fluoxetine, 20mg. 

After three weeks, weaned off the Diazepam over a period of twelve or so days. 

Stayed on the Fluoxetine for about five weeks, tapered off over a fortnight. 

 

End of November 2015, started on Citalopram, reaching 30mg. Also reinstated Pregabalin (150mg twice a day).

February 2016 weaned off the Citalopram over a fortnight and started Effexor (reaching 150mg).

March 2016 weaned off the Effexor over a period of three weeks. 

 

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Hello Sadie, I know you took Paxil for much longer than Pregabalin, but I c/ted pregabalin in the past and I had totally identical symptoms.Are you sure that this withdrawal which you have now can not be at least partially from pregabalin? Especially these irrational, intrusive thoughts are very often felt in withdrawal of pregabalin as it is also targeting GABA. Just my idea.

05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free-

symptoms OCD

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  • Moderator Emeritus

If you had some improvement with 10 mg but had side effects from it you should be ok with 5mg and maybe the side effects will be much less. Side effects are dose related and tend to be less severe at low doses. I usually recommend reinstating a very tiny 1mg dose in case of reaction  but Alto is very experienced with seroxat, she has suggested 5mg so I would take her advice . If you are worse after reinstating write down what is happening and when, so we can assess and see if it is because of the reinstatement.  

**I am not a medical professional, if in doubt please consult a doctor with withdrawal knowledge.

 

 

Different drugs occasionally (mostly benzos) 1976 - 1981 (no problem)

1993 - 2002 in and out of hospital. every type of drug + ECT. Staring with seroxat

2002  effexor. 

Tapered  March 2012 to March 2013, ending with 5 beads.

Withdrawal April 2013 . Reinstated 5 beads reduced to 4 beads May 2013

Restarted taper  Nov 2013  

OFF EFFEXOR Feb 2015    :D 

Tapered atenolol and omeprazole Dec 2013 - May 2014

 

Tapering tramadol, Feb 2015 100mg , March 2015 50mg  

 July 2017 30mg.  May 15 2018 25mg

Taking fish oil, magnesium, B12, folic acid, bilberry eyebright for eye pressure. 

 

My story http://survivingantidepressants.org/index.php?/topic/4199-hello-mammap-checking-in/page-33

 

Lesson learned, slow down taper at lower doses. Taper no more than 10% of CURRENT dose if possible

 

 

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Hello Sadie, I know you took Paxil for much longer than Pregabalin, but I c/ted pregabalin in the past and I had totally identical symptoms.Are you sure that this withdrawal which you have now can not be at least partially from pregabalin? Especially these irrational, intrusive thoughts are very often felt in withdrawal of pregabalin as it is also targeting GABA. Just my idea.

 

Martina - I have considered some of the symptoms could be in part down to the Pregabilin. Prior to posting here, I had thought perhaps I should wean off this (guessing the longer I'm on it, the harder it will be to come off) and just let my brain heal - and do everything I can to help it do so - physical/mental activity, mindfulness etc. But now I am really conflicted. Scared about what will happen coming off pregab....asking myself should I stay with it, try and reinstate the Paxil? They're decisions I need to make.  Impossible questions to answer. I'm hesitant to risk an adverse reaction/undo any progress my brain may have made. I keep trying to familiarise myself with the theories on withdrawal, I want to understand - but I find it impossible to internalise the information...which is so disheartening.

 

Does anyone here on the forum believe a cold turkey route can work out? Or is there anyone in the process who has made significant progress? 

 

So grateful for responses. 

Paxil for 18 months, eventually reaching the max dose of 60mg. Stopped c/t in September 2015.

Pregabalin for 3-4 months, 150mg twice a day. Weaned off over a period of 2-3 weeks. Stopped in conjunction with the Paxil.

 

Mid October 2015, prescribed Diazepam, 5mg up to three times a day & Fluoxetine, 20mg. 

After three weeks, weaned off the Diazepam over a period of twelve or so days. 

Stayed on the Fluoxetine for about five weeks, tapered off over a fortnight. 

 

End of November 2015, started on Citalopram, reaching 30mg. Also reinstated Pregabalin (150mg twice a day).

February 2016 weaned off the Citalopram over a fortnight and started Effexor (reaching 150mg).

March 2016 weaned off the Effexor over a period of three weeks. 

 

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I think most people here will be against c/t. I can tell you my experience with pregabalin. My first attempt was cold turkey. Three weeks after the withdrawal started and it was very bad. I reinstated half the dose based my parents and psychiatrist and it was partially worse. Some symptoms were better as I did not feel them, I felt numb on the drug but the anxiety was much worse. I had not only violent intrusive thoughts like before but also such urges. I didnot feel safe to be by my own children. But I found out that it is the Lyrica as one day I did not take the drug and the urges dissapeared.Afterwards I weaned myself off Lyrica (ca 12,5 mg per 4 weeks how I was able to handle) and the urges went away.

I felt it like this. When I went the second time off and kept some kind of tapering (not just immediately on zero) my body did not really start the withdrawal second time. I was in withdrawal already from first cold turkey, the symptoms were here, bouncing, if I reinstated or not, and therefore the body did not react the second time on lowering the dose. The symptoms of the first cold turkey stayed even through the second attempt and they start to clear themselves now when I am drug free, some symptoms like anxiety is still there.

I wanted just to say that by me the the second attempt did not really play the role. The system withdrew already by the first cold turkey and the symptoms just continued no matter if I reistated or slowly weaned myself the second time.

05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free-

symptoms OCD

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  • Moderator Emeritus

Hi Sadie, I would not do anything with the pregabalin at this time, you are in withdrawal from paxil and the only way to ease withdrawal is reinstatement and/or time. 

Quitting pregabalin now will add another withdrawal . If you reinstate you need to take the same dose every day for a week and see how it is going.  If needed the dose can be adjusted. There may be some side effects from pregabalin but making changes to that too will likely make you more unstable. 

 

 

Hello Sadie, I know you took Paxil for much longer than Pregabalin, but I c/ted pregabalin in the past and I had totally identical symptoms.Are you sure that this withdrawal which you have now can not be at least partially from pregabalin? Especially these irrational, intrusive thoughts are very often felt in withdrawal of pregabalin as it is also targeting GABA. Just my idea.

Sadie, you reinstated pregabalin in November, so it is more likely that the withdrawal is from paxil. Withdrawal from any of the drugs can cause very similar symptoms. They are all horrendous!

**I am not a medical professional, if in doubt please consult a doctor with withdrawal knowledge.

 

 

Different drugs occasionally (mostly benzos) 1976 - 1981 (no problem)

1993 - 2002 in and out of hospital. every type of drug + ECT. Staring with seroxat

2002  effexor. 

Tapered  March 2012 to March 2013, ending with 5 beads.

Withdrawal April 2013 . Reinstated 5 beads reduced to 4 beads May 2013

Restarted taper  Nov 2013  

OFF EFFEXOR Feb 2015    :D 

Tapered atenolol and omeprazole Dec 2013 - May 2014

 

Tapering tramadol, Feb 2015 100mg , March 2015 50mg  

 July 2017 30mg.  May 15 2018 25mg

Taking fish oil, magnesium, B12, folic acid, bilberry eyebright for eye pressure. 

 

My story http://survivingantidepressants.org/index.php?/topic/4199-hello-mammap-checking-in/page-33

 

Lesson learned, slow down taper at lower doses. Taper no more than 10% of CURRENT dose if possible

 

 

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Hi Sadie-- Welcome to the group. I'm so glad you found us, and so sorry for what you've been going through. 60mg of paxil is an insane amount to be taking let alone cting off of. I do know of people who have done it though and have recovered, so there is no reason you can't be one of them. It has been a long time since you stopped, but that doesn't rule out a reinstatement. It just makes it trickier to do. Going on and off of all the other drugs in the interim hasn't helped matters either. We could really use some more detailed information about all of the drugs you've used, dates, length of time, doses etc. to make some informed suggestions. Adding a signature block will really help us see what is going on:

 

http://survivingantidepressants.org/index.php?/topic/893-please-put-your-withdrawal-history-in-your-signature/

 

To give you some background information about what is happening to you here are some good threads to read:

 

What is withdrawal syndrome?

 

About reinstating and stabilizing to reduce withdrawal symptoms

 

Why taper by 10% of my dosage?

 

Give those a read and then ask us a lot of questions.

Paxil for 18 months, eventually reaching the max dose of 60mg. Stopped c/t in September 2015.

Pregabalin for 3-4 months, 150mg twice a day. Weaned off over a period of 2-3 weeks. Stopped in conjunction with the Paxil.

 

Mid October 2015, prescribed Diazepam, 5mg up to three times a day & Fluoxetine, 20mg. 

After three weeks, weaned off the Diazepam over a period of twelve or so days. 

Stayed on the Fluoxetine for about five weeks, tapered off over a fortnight. 

 

End of November 2015, started on Citalopram, reaching 30mg. Also reinstated Pregabalin (150mg twice a day).

February 2016 weaned off the Citalopram over a fortnight and started Effexor (reaching 150mg).

March 2016 weaned off the Effexor over a period of three weeks. 

 

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Sorry, not quite got the hang of using this site...brassmonkey - you say you know of people (in similar circumstances to mine) who have recovered, was the time frame of their recovery similar?

 

Took my first 5mg of paxil this morning. My heart has felt off all day: Fast, feels like it's being squeezed. But this is a symptom I've had since I stopped & while its pronounced today; I can't be sure if its due to the paxil. Have been ruminating all day - am I risking all the progress I've made so far?

Paxil for 18 months, eventually reaching the max dose of 60mg. Stopped c/t in September 2015.

Pregabalin for 3-4 months, 150mg twice a day. Weaned off over a period of 2-3 weeks. Stopped in conjunction with the Paxil.

 

Mid October 2015, prescribed Diazepam, 5mg up to three times a day & Fluoxetine, 20mg. 

After three weeks, weaned off the Diazepam over a period of twelve or so days. 

Stayed on the Fluoxetine for about five weeks, tapered off over a fortnight. 

 

End of November 2015, started on Citalopram, reaching 30mg. Also reinstated Pregabalin (150mg twice a day).

February 2016 weaned off the Citalopram over a fortnight and started Effexor (reaching 150mg).

March 2016 weaned off the Effexor over a period of three weeks. 

 

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  • Moderator Emeritus

Give it some time Sadie, it takes 4 days to reach a steady concentration in your blood. Try not to panic. hopefully you will feel some benefit soon.

**I am not a medical professional, if in doubt please consult a doctor with withdrawal knowledge.

 

 

Different drugs occasionally (mostly benzos) 1976 - 1981 (no problem)

1993 - 2002 in and out of hospital. every type of drug + ECT. Staring with seroxat

2002  effexor. 

Tapered  March 2012 to March 2013, ending with 5 beads.

Withdrawal April 2013 . Reinstated 5 beads reduced to 4 beads May 2013

Restarted taper  Nov 2013  

OFF EFFEXOR Feb 2015    :D 

Tapered atenolol and omeprazole Dec 2013 - May 2014

 

Tapering tramadol, Feb 2015 100mg , March 2015 50mg  

 July 2017 30mg.  May 15 2018 25mg

Taking fish oil, magnesium, B12, folic acid, bilberry eyebright for eye pressure. 

 

My story http://survivingantidepressants.org/index.php?/topic/4199-hello-mammap-checking-in/page-33

 

Lesson learned, slow down taper at lower doses. Taper no more than 10% of CURRENT dose if possible

 

 

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  • Moderator

Recovery from a CT off of a high dose (30mg and above) takes a very long time to recover from. Some people have been know to do it with no problem but for most recovery is in the realm of five to seven years or longer, but recovery eventually does happen.  This is why we don't advocate CTing.  It is good to see that you are going to try a reinstatement, that can go a long ways toward reducing the amount of time it takes.  It is going to take some time to let the RI stabilize and start to reduce the symptoms.  As MommaP said, it takes four days for the drug to become steady state in the blood.  Then it can start to work on stabilizing your symptoms, which can take a lot longer.  This process is going to require the patience of a Saint and then some, but it does work.  We have a member from New Zealand, I can't remember his name, who CTed 60mg paxil and as far as I know he is fully recovered.  He was doing very well last time I heard from him about a year ago.

20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013.

Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks.  The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better.

Final Dose 0.016mg.     Current dose 0.000mg 04-15-2017

 

"It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general."  Stephen Hawking

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I accidentally cold turkey ed off 40mgs of paxil that had pooped out on me. I had been on & off the medication for 15 yrs.

I'm 28 months out & much improved but also a long way to go and it's not been easy.

Paxil 20mg from 1998-2011 

Paxil 40mg from 2011-2012 while experiencing poopout

October 2013 quit cold turkey

Oct-mid Nov 2013 great window

Late November WD nightmare 

Windows and waves pattern 

Now: 28 months cold turkey...doing decent learning to deal with the windows/waves pattern fighting it every step of the way. 

Link to comment

I also had racing heart ..193 bpm had to go to the hospital and have an EKG etc scary stuff but that all stopped after a while

Paxil 20mg from 1998-2011 

Paxil 40mg from 2011-2012 while experiencing poopout

October 2013 quit cold turkey

Oct-mid Nov 2013 great window

Late November WD nightmare 

Windows and waves pattern 

Now: 28 months cold turkey...doing decent learning to deal with the windows/waves pattern fighting it every step of the way. 

Link to comment

Hi everyone, thank you so much for your responses - it means so much.

 

 

I accidentally cold turkey ed off 40mgs of paxil that had pooped out on me. I had been on & off the medication for 15 yrs.
I'm 28 months out & much improved but also a long way to go and it's not been easy.

 

CtMama - 28 months out, do you ever have days where this doesn't consume your every waking thought? Would you say the improvement is giving you the momentum to carry on/reassurance you will recover completely? 

 

I took the 5mg for two days and my heart irregularities seemed to accelerate - so I didn't take another today as I'm so scared. There's this intuitive feeling in me that says leave it alone ,don't risk complicating things even more. But I'm not sure if I'm even able to advocate my own decisions at present  :unsure:

 

So, overall still conflicted.Not sure if the fact I was very physically fit when this all happened and I just turned 26 might be factors on my side? Brassmonkey - reading that you know of a former member who made it through 60mg cold turkey was reassuring. 

 

Sending healing thoughts to everyone. 

Paxil for 18 months, eventually reaching the max dose of 60mg. Stopped c/t in September 2015.

Pregabalin for 3-4 months, 150mg twice a day. Weaned off over a period of 2-3 weeks. Stopped in conjunction with the Paxil.

 

Mid October 2015, prescribed Diazepam, 5mg up to three times a day & Fluoxetine, 20mg. 

After three weeks, weaned off the Diazepam over a period of twelve or so days. 

Stayed on the Fluoxetine for about five weeks, tapered off over a fortnight. 

 

End of November 2015, started on Citalopram, reaching 30mg. Also reinstated Pregabalin (150mg twice a day).

February 2016 weaned off the Citalopram over a fortnight and started Effexor (reaching 150mg).

March 2016 weaned off the Effexor over a period of three weeks. 

 

Link to comment

Yes, I have weeks at a time where I feel 90%better and it's just in the back of my head lingering. Then I have days that suck and are very hard.

Paxil 20mg from 1998-2011 

Paxil 40mg from 2011-2012 while experiencing poopout

October 2013 quit cold turkey

Oct-mid Nov 2013 great window

Late November WD nightmare 

Windows and waves pattern 

Now: 28 months cold turkey...doing decent learning to deal with the windows/waves pattern fighting it every step of the way. 

Link to comment

Sadie, I am 9 months out of Lyrica and it does not consume my every waking thought. This was only on the beggining, maybe 3-4 months, afterwards the morning anxiety disappeared, I still have OCD however, but some days are absolutely ok and some days still suck. By you it will also get better, just try not to panic.

05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free-

symptoms OCD

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Hi everyone,

 

I've been reading a lot on the site regarding neuro emotions, in the hopes I might find anything out there about the exacerbation of existing emotion/traumas during withdrawal.

 

So for me, when I stopped the medication, there were certain things (that I'd found difficult or upsetting years before being on meds) that hit me ten-fold. And similarly, things I'd tolerated whilst on meds were unbearable...this led to me feeling intense emotions in response to these stressors.

 

This led to confrontations with my partner, a family meeting in which past events/traumas were discussed. At the time I thought 'airing it out' as such, would result in me feeling better. I cannot articulate how guilty & ashamed I now feel about this. But everyone around me agreed I had been taking (and taken a lot).

 

So I'm wondering if anyone else experienced anything similar? I.e. Surfacing of former emotional pains?

 

I hope this makes some sense - I'm sooo mourning my cognitive function lol ☹

Paxil for 18 months, eventually reaching the max dose of 60mg. Stopped c/t in September 2015.

Pregabalin for 3-4 months, 150mg twice a day. Weaned off over a period of 2-3 weeks. Stopped in conjunction with the Paxil.

 

Mid October 2015, prescribed Diazepam, 5mg up to three times a day & Fluoxetine, 20mg. 

After three weeks, weaned off the Diazepam over a period of twelve or so days. 

Stayed on the Fluoxetine for about five weeks, tapered off over a fortnight. 

 

End of November 2015, started on Citalopram, reaching 30mg. Also reinstated Pregabalin (150mg twice a day).

February 2016 weaned off the Citalopram over a fortnight and started Effexor (reaching 150mg).

March 2016 weaned off the Effexor over a period of three weeks. 

 

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Hi Sadie.  I think this is possibly an extension of neuro - emotions, in terms of bringing up old hurts / traumas and emotions. There are many here who have also  experienced similar reactions and feelings .This can be typical in withdrawal.  These do usually recede into the background of your life,  and become manageable again given some time and tapering.

 

You might find some counseling or even C.B.T. helpful .

http://survivingantidepressants.org/index.php?/topic/1101-cognitive-behavior-therapy-cbt-for-anxiety-depression-and-withdrawal-symptoms/

 

How is the reinstatement of Paxil 5 mg going ?  What symptoms are you having now?  If you wouldn't mind adding your drug history signature , it will be easier for everyone  to offer help as we can see your history at a glance.

 

Please put your withdrawal history in your signature

 

Ali  

Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014

 

                                                  Psych Drug - free since May 2014
.
         

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Dear Ali, many thanks for your response.

 

It's reassuring to hear that others have experienced a resurgence of past hurts too. It's something that really bothers me at times - it was like old wounds, scars even, were ripped open to reveal big gaping wounds. It's an aspect of this experience that leads to that self-questioning, is it me? Did the medication mask all this and I actually need it? 

 

That said, some of these issues I had come to terms with prior to ever starting medication and some were 'simmering' I suppose - perhaps the stress intolerance just catastrophized them 

 

I took the 5mg for a couple of days and the irregularities with my heart seemed to accelerate (it is worse sometimes than others) but I stopped anyway. I didn't want to risk an adverse reaction. I keep reading and re-reading the success stories...I'm really trying to hold on to brassmonkey's earlier response, that people can recover from a c/t  :(

 

My symptoms are the same - though they seem to take turns in intensity! The D/P and D/R are the most consistent. Brain fog/laughable memory and cognitive capabilities really getting me down. And the internal shaking.

 

Of course I will have a go at my drug history signature. 

 

Many thanks Ali,

Sadie. 

Paxil for 18 months, eventually reaching the max dose of 60mg. Stopped c/t in September 2015.

Pregabalin for 3-4 months, 150mg twice a day. Weaned off over a period of 2-3 weeks. Stopped in conjunction with the Paxil.

 

Mid October 2015, prescribed Diazepam, 5mg up to three times a day & Fluoxetine, 20mg. 

After three weeks, weaned off the Diazepam over a period of twelve or so days. 

Stayed on the Fluoxetine for about five weeks, tapered off over a fortnight. 

 

End of November 2015, started on Citalopram, reaching 30mg. Also reinstated Pregabalin (150mg twice a day).

February 2016 weaned off the Citalopram over a fortnight and started Effexor (reaching 150mg).

March 2016 weaned off the Effexor over a period of three weeks. 

 

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Hey Sadie read your thread , its so awful what these doctors are doing !  You will recover , eventhough you were on a high dose we have , members here who recovered who were on 4 or 5 meds for 10 plus years.  I was on a similiar dose to you but a different drug. From doing my research it seems like 2.5-3 yrs most people see massive changes for the better. But if can be much earlier. I pretty much CT. Im 20 months out and It doesnt consume me night and day . Its no picnic thats forsesure I am still in acute WD but alot of symptoms have lessoned.   Stay strong , distract yourself as much as you can !

Was on 30mg (Lexapro) for 7-8yrs20mg for 3 months (This was my choice my Doc wanted me to drop much faster)15 mg 2week10mg 2 weeks 5 mg 1 week0 since August 24th . PPI Dexlant  30 mg taper has begun. Cutting 20% currently.  using zantac as needed.  Benzo is currently 0.10mg 

Link to comment

Distraction is key!

Paxil 20mg from 1998-2011 

Paxil 40mg from 2011-2012 while experiencing poopout

October 2013 quit cold turkey

Oct-mid Nov 2013 great window

Late November WD nightmare 

Windows and waves pattern 

Now: 28 months cold turkey...doing decent learning to deal with the windows/waves pattern fighting it every step of the way. 

Link to comment

yes no doubt CTmama  , distraction gets you to the next day which gets you a day closer to feeling normal

Was on 30mg (Lexapro) for 7-8yrs20mg for 3 months (This was my choice my Doc wanted me to drop much faster)15 mg 2week10mg 2 weeks 5 mg 1 week0 since August 24th . PPI Dexlant  30 mg taper has begun. Cutting 20% currently.  using zantac as needed.  Benzo is currently 0.10mg 

Link to comment

Mort, ctmama - thanks so much for your responses.

 

Needed to hear that! Its disheartening reading so much about tapering/never under any circumstances stopping cold turkey or tampering with other meds ☹

 

I just want to be better...like NOW lol but I know it doesn't work like that. Just hearing that it will happen eventually is a comfort.

Paxil for 18 months, eventually reaching the max dose of 60mg. Stopped c/t in September 2015.

Pregabalin for 3-4 months, 150mg twice a day. Weaned off over a period of 2-3 weeks. Stopped in conjunction with the Paxil.

 

Mid October 2015, prescribed Diazepam, 5mg up to three times a day & Fluoxetine, 20mg. 

After three weeks, weaned off the Diazepam over a period of twelve or so days. 

Stayed on the Fluoxetine for about five weeks, tapered off over a fortnight. 

 

End of November 2015, started on Citalopram, reaching 30mg. Also reinstated Pregabalin (150mg twice a day).

February 2016 weaned off the Citalopram over a fortnight and started Effexor (reaching 150mg).

March 2016 weaned off the Effexor over a period of three weeks. 

 

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No prob Sadie , I feel for you. we all do and we all are going through  this .  One thing I can tell you is that some people who taper slowly suffer just as much. Its no guarantee that it works. I was down on myself about this aswell. but since I have done enough research into this theres no safe way to come off these meds. It does greatly better your chances but its far from a guarantee. Look at Banjo Dans story in the recovery stories from around the web. He CT off 60mg of Paxil after 6 yrs of use.  He fully recovered between 1-2 yrs.  So eventhough it may take 3-4 yrs or some have suggested longer , it is very possible that you recover much sooner. We dont have the a definite timetable . So my advice would be , to be prepared for a long healing process but be hopeful and excited that it may not take long because that is the 100% truth.

Was on 30mg (Lexapro) for 7-8yrs20mg for 3 months (This was my choice my Doc wanted me to drop much faster)15 mg 2week10mg 2 weeks 5 mg 1 week0 since August 24th . PPI Dexlant  30 mg taper has begun. Cutting 20% currently.  using zantac as needed.  Benzo is currently 0.10mg 

Link to comment

Mort is 100% right. I too was so hard on myself for not tapering, but I just didn't know. My Dr never suggested that WD was even possible coming off paxil. Healing will happen!

Paxil 20mg from 1998-2011 

Paxil 40mg from 2011-2012 while experiencing poopout

October 2013 quit cold turkey

Oct-mid Nov 2013 great window

Late November WD nightmare 

Windows and waves pattern 

Now: 28 months cold turkey...doing decent learning to deal with the windows/waves pattern fighting it every step of the way. 

Link to comment

No prob Sadie , I feel for you. we all do and we all are going through  this .  One thing I can tell you is that some people who taper slowly suffer just as much. Its no guarantee that it works. I was down on myself about this aswell. but since I have done enough research into this theres no safe way to come off these meds. It does greatly better your chances but its far from a guarantee. Look at Banjo Dans story in the recovery stories from around the web. He CT off 60mg of Paxil after 6 yrs of use.  He fully recovered between 1-2 yrs.  So eventhough it may take 3-4 yrs or some have suggested longer , it is very possible that you recover much sooner. We dont have the a definite timetable . So my advice would be , to be prepared for a long healing process but be hopeful and excited that it may not take long because that is the 100% truth.

 

Many thanks Mort. I had a read of Banjo Dan's story and the others from 'around the web'  :)

 

I've had lots of distraction these last few days with my sister and her family visiting. I'm trying to allow recognition for the things that have improved, however small and keep telling myself this won't be forever, it's temporary in the scheme of things. 

 

Really appreciate yours and ctMama's kind reassurances. Warmest wishes.

Paxil for 18 months, eventually reaching the max dose of 60mg. Stopped c/t in September 2015.

Pregabalin for 3-4 months, 150mg twice a day. Weaned off over a period of 2-3 weeks. Stopped in conjunction with the Paxil.

 

Mid October 2015, prescribed Diazepam, 5mg up to three times a day & Fluoxetine, 20mg. 

After three weeks, weaned off the Diazepam over a period of twelve or so days. 

Stayed on the Fluoxetine for about five weeks, tapered off over a fortnight. 

 

End of November 2015, started on Citalopram, reaching 30mg. Also reinstated Pregabalin (150mg twice a day).

February 2016 weaned off the Citalopram over a fortnight and started Effexor (reaching 150mg).

March 2016 weaned off the Effexor over a period of three weeks. 

 

Link to comment

Dear Ali, many thanks for your response.

 

It's reassuring to hear that others have experienced a resurgence of past hurts too. It's something that really bothers me at times - it was like old wounds, scars even, were ripped open to reveal big gaping wounds. It's an aspect of this experience that leads to that self-questioning, is it me? Did the medication mask all this and I actually need it? 

 

That said, some of these issues I had come to terms with prior to ever starting medication and some were 'simmering' I suppose - perhaps the stress intolerance just catastrophized them 

 

I took the 5mg for a couple of days and the irregularities with my heart seemed to accelerate (it is worse sometimes than others) but I stopped anyway. I didn't want to risk an adverse reaction. I keep reading and re-reading the success stories...I'm really trying to hold on to brassmonkey's earlier response, that people can recover from a c/t  :(

 

My symptoms are the same - though they seem to take turns in intensity! The D/P and D/R are the most consistent. Brain fog/laughable memory and cognitive capabilities really getting me down. And the internal shaking.

 

Of course I will have a go at my drug history signature. 

 

Many thanks Ali,

Sadie. 

 

Sadie. You only took the 5 mg for a few days . It takes at least 4 days to become steady state in the blood. Do you feel that you gave it enough time ?

Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014

 

                                                  Psych Drug - free since May 2014
.
         

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  • ChessieCat changed the title to Sadie: Seeking Paxil CT advice

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