Jump to content

Class action lawsuits: Drug-induced movement disorders


Recommended Posts

Hi,

 

I am wondering why there hasn't been a class action lawsuit yet against the drug makers of ssris and other poisons.

 

I would like some money from the government and apologies. Big ones. Preferrably with them on their knees.

 

I feel that if there isn't some class action lawsuit of some sort, or action, which I would very much like to be a apart of, but with a group of people, I would be broken hearted in a way.

 

I would like justice for all the people and poor children harmed by psychiatry.

 

I would like this done yesterday,

 

Anybody have any ideas on what we can do? If the mainstream media does not want to address it, is there any way then we can create change in the US internally? Get rid of the dirty politicians and other corrupt systems such as FDA? Somebody brave needs to step in.

2010 started 10 mg celexa, 2011 went up to 20 mg

06/2014 started tapering (20 mg,10 mg alternate days)

19/09/2014 crashed at 10 mg

20/09/2014 updosed to 20 mg to try and stabilize- Never stabilized and CNS basically plummeted

August 31 2015- Started my 5% taper anyways

May 3 2016- At 14 mg the tapering caught up with me- Withdrawal included severe anxiety, feeling like im on speed, suicidal and homicidal ideation, akathesia, feeling like I was on heroin, memory loss, PGAD, feeling like I was on an acid

May 4 2016- Updosed to 15.5 mg to try and stabilize

​June 4- Started taking 2 mg 5 times a day which adds up to 10 mg because of akathesia when taking my full dose. Akathesia symtpoms smaller

July 27th- Dropped from 15.5 mg to 10 mg because could no longer tolerate taking drug- bad side effects mainly akathesia and emotional deadness.

​Oct 11- Improved a lot since May 4th after my crash. Withdrawal symptoms still left- DR/DP, emotional anasthesia, akathesia, tingling in head, feeling like my body and face disappears, messed up sound interpretation, perception and difficulty reading social and emotional cues during DR/DP, apathy, inability to tell if I am in dream or reality, disturbed sleep. Started having few windows

Link to post
Share on other sites
  • 2 weeks later...

In Europe there is also this possibility to ground a citizen initiative with some programm like idea to abolish or diminish the use of the psychiatric drugs, which has to get 1 million of signatures and the European Commision has to check this proposal and build it into the law. It has to have 7 members from 7 countries of EU. If anyone thinks that he would try it with me, I would be prepared to try it. For 1 million of signatures we would have one year from signing of initiative.

05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free-

symptoms OCD

Link to post
Share on other sites

What about starting a petition on change.org?

1997 - 2011: Diagnosed with anxiety & insomnia at age 16 put on 50mg Amitriptyline


2011 - 2013: Diagnosed with BPD & depression. Went through a number of medications including Nortriptyline, Seroquel & Lexipro

2013 - 2015: Switched to 225mg of Effexor and made major diet & lifestyle changes plus explored vitamin supplementation while working with a functional practitioner. Saw a major improvement and by 2014 no longer displayed BPD symptoms and psychiatrist decided I was "misdiagnosed" and only had depressed & anxiety.

March 2015 - October 2015 - Spent 5 months going off of Effexor and was completely off for 8 months. Experienced major and severe depression, anxiety and insomnia - Tardive Dysphoria/Oppositional Tolerance. Consistent thoughts of suicide, couldn't function, work, get out of bed or look after myself so I went back on Effexor 150 mg.

October 2015 - Present - Effexor 150

 

I’ve made every lifestyle change possible (regular meditation/exercise, eating cleanly and have no micronutrient or mineral deficiencies thanks to working with a functional practitioner) and although I think it has helped greatly in stabilising my mental health it was not enough when I tapered off over 5 months in 2015.

 

Thanks to the wonderful people in SA I have realised my last taper was way to fast and now I finally have a plan to go off of Effexor and plan to start this week! 24/7/2016

Link to post
Share on other sites
  • Moderator Emeritus

Actually, there IS a class action lawsuit being led by a group of people, and a law firm has agreed to represent if they can get enough plaintiffs!  The lawsuit is for people in the US who have come down with movement disorders from psych meds.  That means if you have akathisia, dystonia, or dyskinesia, or myoclonus, you PLEASE need to call this firm!!  Pasted below is the info that I found online.  I have already called:

 

"Have you come down with a movement disorder from psych meds, whether they were prescribed to you on-label OR off-label? Did you come down with permanent or temporary dystonia or dyskinesia or akathisia or myoclonus from psych meds?

Please join me and others who are working through a law firm to hold the pharma companies accountable!!! Me and other victims are joining forces to hold the pharma companies accountable.

Call Grisham and Barnhardt at 434-293-2939. Ask to speak with attorneys Tyler or Addison, or with their assistant Bethany. Please, we need ALL the victims to come forward, no matter how long ago this happened to you!"

 

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

Link to post
Share on other sites
  • Moderator Emeritus

Hey Guys, 

I found some info online about a law firm that is looking for people to come forward who have incurred movement disorders from psych meds.  I called the number and spoke to the law firm, and I can vouch that they are serious.  They spoke with me for an hour and I am also sending them my medical paperwork.  Be assured that steps forward ARE being taken.  I was so pleasantly surprised at how seriously the law firm took me, and how kind they were.  Here is the information for others who want to call.  This is what I copied and pasted from online, and it includes the phone number to call:

"Have you come down with a movement disorder from psych meds, whether they were prescribed to you on-label OR off-label? Did you come down with permanent or temporary dystonia or dyskinesia or akathisia or myoclonus from psych meds?

Please join me and others who are working with a law firm to hold the pharma companies accountable.
 

Call Grisham and Barnhardt at 434-293-2939. Ask to speak with partner attorneys Tyler or Addison, or with their assistant/paralegal Bethany.

Please, we need ALL the victims to come forward, no matter how long ago this happened to you!"

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

Link to post
Share on other sites
  • Moderator Emeritus

I saw this on social media, so I'm not sure if it counts as "media" or not, but I do think it should have the highest visibility possible.  It's come to my attention that there is a group of people online who have come together and who have contracted the services of a law firm to go after the psych meds that have caused movement disorders.  I personally called the law firm and they were SO kind and SO attentive, and took everything I said very seriously about my movement disorder.

Here is the blurb that is circulating online.  Please read through it and contact the phone number IF you have a medication-induced movement disorder:

"Have you come down with a movement disorder from psych meds, whether they were prescribed to you on-label OR off-label? Did you come down with permanent or temporary dystonia or dyskinesia or akathisia or myoclonus from psych meds?
 

Please join me and others who are working with a law firm to hold the pharma companies accountable.
 

Call Grisham and Barnhardt at 434-293-2939. Ask to speak with partner attorneys Tyler or Addison, or with their assistant/paralegal Bethany.
 

Please, we need ALL the victims to come forward, no matter how long ago this happened to you!"  

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

Link to post
Share on other sites

Mea, I think it is quite a good idea.Ok, but maybe first we should make the text of the petition, what we stand for.If you want, just PM me and we can compile something together.

05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free-

symptoms OCD

Link to post
Share on other sites

Wiggelt, I have this problem that I did not get any movement disorder only mental symptoms. So I can not use it.

05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free-

symptoms OCD

Link to post
Share on other sites

Actually, there IS a class action lawsuit being led by a group of people, and a law firm has agreed to represent if they can get enough plaintiffs!  The lawsuit is for people in the US who have come down with movement disorders from psych meds.  That means if you have akathisia, dystonia, or dyskinesia, or myoclonus, you PLEASE need to call this firm!!  Pasted below is the info that I found online.  I have already called:

 

"Have you come down with a movement disorder from psych meds, whether they were prescribed to you on-label OR off-label? Did you come down with permanent or temporary dystonia or dyskinesia or akathisia or myoclonus from psych meds?

 

Please join me and others who are working through a law firm to hold the pharma companies accountable!!! Me and other victims are joining forces to hold the pharma companies accountable.

 

Call Grisham and Barnhardt at 434-293-2939. Ask to speak with attorneys Tyler or Addison, or with their assistant Bethany. Please, we need ALL the victims to come forward, no matter how long ago this happened to you!"

 

 

Yes I am joining this also, so if you want to participate in a class action suit, we are needing to gather more people to form a group of plaintifs now, so if possible you should call right away, and you can ask to join the facebook group, Tardive Dyskinesia/Dystonia Lawsuit. There are 164 people in that group, but we are currently needing at least 50 people to contact the lawfirm and apply to get this going. So, if you have a movement disorder that you believe is caused by antidepressants, and you want to be part of a lawsuit to sue for this, please take action on this now! Thank you.

Aug.22.2019 20mg | July.4.2019 20.5mg | May.16.2019 22mg | Mar.28.2019 23.5mg | Feb.7.2019 25mg | Dec.20.2018 26.5mg | Nov.1.2018 28.5mg | Sept.13.2018 30.5mg | July.26.2018 32mg | June.7.2018 33.5mg | Apr.19.2018 35.14mg | Mar.1.2018 37mg | Jan.11.2018 39mg | Nov.2.2017 41mg. | Sept.21.2017 stepping down to 43mg. Aug.10.17 45mg. | June 1.17 47mg.| Apr.20.17 50mg | Feb.12.17 53mg  | Jan.1.17 56mg | Nov.9.16 59mg | Sept.1.16 62mg | June 16 .16 65mg.  May 21 2016 Stepped down to Venlafaxine 70mg. 

April 22 2016 switched from Venlafaxine XR 75mg to: different brand, Venlafaxine non-extended release 75mg. Been taking Effexor XR 75mg. many years. Tried reducing last year, began having bad side effects. 

Link to post
Share on other sites
downtongirl

does this also apply to akathisia and myoclonus jerks?  Does anyone now how severe of a case you have to have to participate and do you need to be diagnosed by a dr. as to having either td, akathisia, myoclonus jerks etc. to participate?

1995 - 2015 antidepressants and antianxiety medicine
Multiple failed attempts to quit/taper anti d/anti anxiety meds since 2008

June 17, 2016 began prozac bridge to get off of effexor xr, stopped effexor xr on June 24, 2016, could not tolerate prozac due to severe side effects so I had to stop it  Currently...300 mg ER of lithium, 1 mg of estradiol, 60 mg propranolol ER, Fish oil 2 x a day, Magnesium Glycinate,  zinc, vitamin c, vitamin d, NAC

 

 

 

 

 

Link to post
Share on other sites

Thanks for posting this. I developed functional spinal myoclonus from psychiatric meds. It's been over a year, and my spine still jerks my body so hard when I lie down to sleep or wake up in the morning.  

2005-2008: Effexor; 1/2008 Tapered 3 months, then quit. 7/2008-2009 Reinstated Effexor (crying spells at start of new job.)
2009-3/2013: Switched to Pristiq 50 mg then 100 mg
3/2013: Switched to Lexapro 10mg. Cut down to 5 mg. CT for 2 weeks then reinstated for 6 weeks
8/2013-8/2014: Tapering Lexapro (Lots of withdrawal symptoms)
11/2014 -8/2015: Developed severe insomnia and uncontrollable daily crying spells
12/2014-6/2015: Tried Ambien, Klonopin,Ativan, Lunesta, Sonata, Trazadone, Seroquel, Rameron, Gabapentin - Developed Anxiety disorder, PTSD, and Psychogenic Myoclonus
7/2015-1/2016: Reinstated Lexapro 2 mg (mild improvement, but crying spells still present)

1/2016-5/2017: Lexapro 5 mg ( helped a lot, but poor stress tolerance & depressive episodes)

5/20/2017 - Raised dose to Lexapro 10 mg due to lingering depression(Total of 2 failed tapers & severe PAWS)

9/11/2018 - Present: Still on 10 mg Lexapro and mostly recovered.(Extremely sensitive to stress which triggers Myoclonus.)

Intro page: http://survivingantidepressants.org/index.php?/topic/4149-lilu-depression-worsened-by-meds/

Link to post
Share on other sites
  • 2 weeks later...

Hi,

 

I am wondering why there hasn't been a class action lawsuit yet against the drug makers of ssris and other poisons.

 

I would like some money from the government and apologies. Big ones. Preferrably with them on their knees.

 

I feel that if there isn't some class action lawsuit of some sort, or action, which I would very much like to be a apart of, but with a group of people, I would be broken hearted in a way.

 

I would like justice for all the people and poor children harmed by psychiatry.

 

I would like this done yesterday,

 

Anybody have any ideas on what we can do? If the mainstream media does not want to address it, is there any way then we can create change in the US internally? Get rid of the dirty politicians and other corrupt systems such as FDA? Somebody brave needs to step in.

There is a Facebook group that I'm a member of who has a class action lawsuit in the works.

 

If you have this or know someone who has this disorder, please let them know.

https://m.facebook.com/groups/1651647445098837?ref=tn_tnmn¬if_t=group_comment_follow

Effexor XR 300 (brand) mg & various SSRIs 15 yrs (Effexor XR 300 mg past 10 yrs

Clonazepam, 1.0 mg. am, .5 mg pm. - 15 yrs, 7-17-16- Began .5 three times a day

Vyvanse 60 mg, - 2 yrs, Cut to 50 mg for 6 mths, Cut to 30 mg. on 4-1-16. Tapering.

Approx. 4-1-15 began Effexor XR 300 taper, very slowly for a year. Held at 37.5 for about 3 mths. Cut to 18 mg for 2 wks to 0. WD began 2 wks later. Depression, anxiety, paranoia, low appetite, nausea.

7-14-16-Reinstated 5 beads Effx after 4 mths misery.Pooped out 10 days.

9-12-16-to present- Wide eyed terror, bedridden fear, no appetite/feeling of being full.

10-30-16- Began 15% liquid tapering of 30 mg Vyvanse. (25 mg)

11-13-16- Liquid Vyvanse 22 mg,11-27-16- Liquid 15 mg, 12-12-16- Vyvanse 12.5 for 5 days. 12-16 - 12-29, 15 mg.

11-20-16- Switched back to 1.0 clonazepam am & .5 bedtime

12-30-16- Moved to 15 mg COMPOUNDED Vyvanse.Current 4/11-4/25 7.5 mg.(10% ev 2 wks) Off Vyvanse

Current meds:Effexor XR- 3 Beads, Clonazepam-1.0 mg am, .5 mg bedtime,Vyvanse-(tapering) Estradiol- 2

mg,Progesterone 200 mg,Testosterone 30 mg/ml,Nature Throid- 48.75 mg.(12-21-16-65 mg.) (4-18-17-81.25 mg) Current supplements: Fish Oil-1360 mg, Curamin- 2706 mg.

Link to post
Share on other sites
SillyFilly55

Yes, there is indeed a class action lawsuit being prepared, and looking for people to join. It is unfortunately only for people in the US. I have all the information here for those who might be interested. The parameters of harm are very wide, there are many aspects of movement disorders that are considered as such. Akathisia for one. Seizures. Yes those are movement disorders. Many others people aren't even aware of.

We can have a voice-we have been dismissed, ignored and blamed long enough....the more people call the law firm, the more likely success in this endeavor,

 

Info here:

debdaletoday.wordpress.com

Link to post
Share on other sites
  • Moderator Emeritus

does this also apply to akathisia and myoclonus jerks? Does anyone now how severe of a case you have to have to participate and do you need to be diagnosed by a dr. as to having either td, akathisia, myoclonus jerks etc. to participate?

Yes, it applies to akathisia, myoclonic jerks, and seizures.

 

No, you don't have to be diagnosed by a doctor as having TD in order to join. You just need to be able to honestly say that meds caused your movement problems.

 

You do need to be in the USA.

 

Call the law firm. 434-293-2939.

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

Link to post
Share on other sites
  • 2 weeks later...

does this also apply to akathisia and myoclonus jerks?  Does anyone now how severe of a case you have to have to participate and do you need to be diagnosed by a dr. as to having either td, akathisia, myoclonus jerks etc. to participate?

 

The requirements to join the lawsuit are to have taken a medication and then to have developed movement symptoms, the severity isn't an issue. It is helpful to have some medical records and doctor diagnosis, but I think that may not be necessary. I am looking now for more people to join my group, those who've taken Effexor XR and developed a movement disorder. To join this group, please message me here in this forum. We have 4 people and need at least 20 to have the suit filed.

Aug.22.2019 20mg | July.4.2019 20.5mg | May.16.2019 22mg | Mar.28.2019 23.5mg | Feb.7.2019 25mg | Dec.20.2018 26.5mg | Nov.1.2018 28.5mg | Sept.13.2018 30.5mg | July.26.2018 32mg | June.7.2018 33.5mg | Apr.19.2018 35.14mg | Mar.1.2018 37mg | Jan.11.2018 39mg | Nov.2.2017 41mg. | Sept.21.2017 stepping down to 43mg. Aug.10.17 45mg. | June 1.17 47mg.| Apr.20.17 50mg | Feb.12.17 53mg  | Jan.1.17 56mg | Nov.9.16 59mg | Sept.1.16 62mg | June 16 .16 65mg.  May 21 2016 Stepped down to Venlafaxine 70mg. 

April 22 2016 switched from Venlafaxine XR 75mg to: different brand, Venlafaxine non-extended release 75mg. Been taking Effexor XR 75mg. many years. Tried reducing last year, began having bad side effects. 

Link to post
Share on other sites
If you have a movement disorder (Tardive Dyskinesia , Dystonia,  Akathisia, Myoclonus etc.), that you believe was caused by Effexor XR (or made worse by this drug), you are eligible to join a multi plaintiff lawsuit now forming. To join this lawsuit, please message me on this forum, or email me at effexortd@gmail.com. For US residents only.

 

Posted by permission of Group Admin for informational purposes. 

Posting does not necessarily signify Group endorsement.

Aug.22.2019 20mg | July.4.2019 20.5mg | May.16.2019 22mg | Mar.28.2019 23.5mg | Feb.7.2019 25mg | Dec.20.2018 26.5mg | Nov.1.2018 28.5mg | Sept.13.2018 30.5mg | July.26.2018 32mg | June.7.2018 33.5mg | Apr.19.2018 35.14mg | Mar.1.2018 37mg | Jan.11.2018 39mg | Nov.2.2017 41mg. | Sept.21.2017 stepping down to 43mg. Aug.10.17 45mg. | June 1.17 47mg.| Apr.20.17 50mg | Feb.12.17 53mg  | Jan.1.17 56mg | Nov.9.16 59mg | Sept.1.16 62mg | June 16 .16 65mg.  May 21 2016 Stepped down to Venlafaxine 70mg. 

April 22 2016 switched from Venlafaxine XR 75mg to: different brand, Venlafaxine non-extended release 75mg. Been taking Effexor XR 75mg. many years. Tried reducing last year, began having bad side effects. 

Link to post
Share on other sites

Hi Kay what is the knowledge base on this issue?  Are you the go to person?  Have you heard of people getting a movement disorder years after taking and stopping E that was because of Effexor?  I had some problems with movement that is why I was taken off Effexor by a neurologist years later I seem to be hit by a full blown movement disorder.  

 

I am not a citizen of the USA and so am not checking the link I am however interested in the issues I present above.  Please tell me what you know or redirect me. 

Thanks B

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to post
Share on other sites

Hello btdt,

 

So sorry to hear about your movement disorder. I have myself a neck spasm condition. Into my eighth year. I've just begun to taper the Effexor. For years I thought the problem was due to stuffed emotions.

 

I read your history, if you quit Effexor cold turkey, that could be a cause of the movement disorder years later. Of course I'm just saying based on what I've learned. I have heard of people having symptoms come up after getting off the med. Very scary. One tool could be to try reintroducing the Effexor? I don't know. Neither does anyone else really.

 

I'm not the go to person, that would be someone named Mark Dikstein. We have a large group on facebook with some outside of US, some information there you might find useful: Tardive Dyskinesia/Dystonia Lawsuit is the name of the group you can search it and ask to join on facebook. So sorry about the illness. Don't give up. For me, I do many things with exercise and diet to strengthen my health, as I slowly taper off the med. That's the best course I've found.

Aug.22.2019 20mg | July.4.2019 20.5mg | May.16.2019 22mg | Mar.28.2019 23.5mg | Feb.7.2019 25mg | Dec.20.2018 26.5mg | Nov.1.2018 28.5mg | Sept.13.2018 30.5mg | July.26.2018 32mg | June.7.2018 33.5mg | Apr.19.2018 35.14mg | Mar.1.2018 37mg | Jan.11.2018 39mg | Nov.2.2017 41mg. | Sept.21.2017 stepping down to 43mg. Aug.10.17 45mg. | June 1.17 47mg.| Apr.20.17 50mg | Feb.12.17 53mg  | Jan.1.17 56mg | Nov.9.16 59mg | Sept.1.16 62mg | June 16 .16 65mg.  May 21 2016 Stepped down to Venlafaxine 70mg. 

April 22 2016 switched from Venlafaxine XR 75mg to: different brand, Venlafaxine non-extended release 75mg. Been taking Effexor XR 75mg. many years. Tried reducing last year, began having bad side effects. 

Link to post
Share on other sites
  • 4 weeks later...

Kay and BTDT, I noticed that Kay gives Ecaudor as her location. Does that mean non-US residents can participate?

2009: Cancer hospital said I had adjustment disorder because I thought they were doing it wrong. Their headshrinker prescribed Effexor, and my life set on a new course. I didn't know what was ahead, like a passenger on Disneyland's Matterhorn, smiling and waving as it climbs...clink, clink, clink.

2010: Post surgical accidental Effexor discontinuation by nurses, masked by intravenous Dilaudid. (The car is balanced at the top of the track.) I get home, pop a Vicodin, and ...

Whooosh...down, down, down, down, down...goes the trajectory of my life, up goes my mood and tendency to think everything is a good idea.
2012: After the bipolar jig was up, now a walking bag of unrelated symptoms, I went crazy on Daytrana (the Ritalin skin patch by Noven), because ADHD was a perfect fit for a bag of unrelated symptoms. I was prescribed Effexor for the nervousness of it, and things got neurological. An EEG showed enough activity to warrant an epilepsy diagnosis rather than non-epileptic ("psychogenic") seizures.

:o 2013-2014: Quit everything and got worse. I probably went through DAWS: dopamine agonist withdrawal syndrome. I drank to not feel, but I felt a lot: dread, fear, regret, grief: an utter sense of total loss of everything worth breathing about, for almost two years.

I was not suicidal but I wanted to be dead, at least dead to the experience of my own brain and body.

2015: I  began to recover after adding virgin coconut oil and organic grass-fed fed butter to a cup of instant coffee in the morning.

I did it hoping for mental acuity and better memory. After ten days of that, I was much better, mood-wise. Approximately neutral.

And, I experienced drowsiness. I could sleep. Not exactly happy, I did 30 days on Wellbutrin, because it had done me no harm in the past. 

I don't have the DAWS mood or state of mind. It never feel like doing anything if it means standing up.

In fact, I don't especially like moving. I'm a brain with a beanbag body.   :unsure:

Link to post
Share on other sites

Hi westcoast, this lawsuit (planned) is for US residents only, I am a US resident though living outside the US. If you believe you would be an eligible plaintiff, please email me at the address in my post. Currently I have five people, you would make us six. I am working on gathering at least 20 people to entice a law firm to agree to take our case.

 

Eligibility would be any movement disorder you believe to be caused by Effexor XR, or made worse by it. You would also need to be able to document your illness, drug dosages, treatments for legal purposes.

Aug.22.2019 20mg | July.4.2019 20.5mg | May.16.2019 22mg | Mar.28.2019 23.5mg | Feb.7.2019 25mg | Dec.20.2018 26.5mg | Nov.1.2018 28.5mg | Sept.13.2018 30.5mg | July.26.2018 32mg | June.7.2018 33.5mg | Apr.19.2018 35.14mg | Mar.1.2018 37mg | Jan.11.2018 39mg | Nov.2.2017 41mg. | Sept.21.2017 stepping down to 43mg. Aug.10.17 45mg. | June 1.17 47mg.| Apr.20.17 50mg | Feb.12.17 53mg  | Jan.1.17 56mg | Nov.9.16 59mg | Sept.1.16 62mg | June 16 .16 65mg.  May 21 2016 Stepped down to Venlafaxine 70mg. 

April 22 2016 switched from Venlafaxine XR 75mg to: different brand, Venlafaxine non-extended release 75mg. Been taking Effexor XR 75mg. many years. Tried reducing last year, began having bad side effects. 

Link to post
Share on other sites
  • 1 month later...
Barbarannamated

I believe bruxism is considered a movement disorder.

Pristiq tapered over 8 months ending Spring 2011 after 18 years of polydrugging that began w/Zoloft for fatigue/general malaise (not mood). CURRENT: 1mg Klonopin qhs (SSRI bruxism), 75mg trazodone qhs, various hormonesLitigation for 11 years for Work-related injury, settled 2004. Involuntary medical retirement in 2001 (age 39). 2012 - brain MRI showing diffuse, chronic cerebrovascular damage/demyelination possibly vasculitis/cerebritis. Dx w/autoimmune polyendocrine failure.<p>2013 - Dx w/CNS Sjogren's Lupus (FANA antibodies first appeared in 1997 but missed by doc).

Link to post
Share on other sites
  • 2 weeks later...

I am still hunting for more people to join with me in attempting to file a lawsuit to sue the drug company Pfizer. If you are a US resident (I am but living outside US currently), and have experienced movement disorder, or I believe also nerve pain since that's related, you believe is from taking Effexor XR, you would be an eligible plaintiff. Please message me here to let me know you would like to be added to the list of plaintiffs, or message me privately. The more plaintiffs, the stronger the lawsuit. So I need your help.

Aug.22.2019 20mg | July.4.2019 20.5mg | May.16.2019 22mg | Mar.28.2019 23.5mg | Feb.7.2019 25mg | Dec.20.2018 26.5mg | Nov.1.2018 28.5mg | Sept.13.2018 30.5mg | July.26.2018 32mg | June.7.2018 33.5mg | Apr.19.2018 35.14mg | Mar.1.2018 37mg | Jan.11.2018 39mg | Nov.2.2017 41mg. | Sept.21.2017 stepping down to 43mg. Aug.10.17 45mg. | June 1.17 47mg.| Apr.20.17 50mg | Feb.12.17 53mg  | Jan.1.17 56mg | Nov.9.16 59mg | Sept.1.16 62mg | June 16 .16 65mg.  May 21 2016 Stepped down to Venlafaxine 70mg. 

April 22 2016 switched from Venlafaxine XR 75mg to: different brand, Venlafaxine non-extended release 75mg. Been taking Effexor XR 75mg. many years. Tried reducing last year, began having bad side effects. 

Link to post
Share on other sites

Yes. I feel this is an important civic duty. 

 

I took Effexor ER for over 10 years.

 

I was diagnosed in May with serotonin toxicity after 5 months of off the charts neurological pain.

I have dystonic symptoms -- muscle rigidity and had them the entire time I was on Effexor and before that other SSRI/SNRIs. I still have that on and off.

I have on again off again Parkinsonian movement issues -- my whole body wobbles, or I can't rely on auto-pilot for simple movements.

I've become a person who drops things every day, all day long. My right hand just doesn't work as well as it used to.

Low exertion repetitive movements, like walking, operating gas/brake pedals, writing, typing can cause muscle spasms and neuropathic pain.

I have loss of fine sensation awareness.

I have wide spread neuropathic pain.

I have been recently diagnosed with Central Pain Syndrome, a form of brain damage.

 

I am still tapering, but that came to a standstill about a month ago and I am waiting patiently at 22 mg for a time when I can reduce the daily dose of poison.

 

Money would be nice. This year, thanks to Effexor, I have earned less than $3000 in income. 

 

But more importantly, my hope would be that a lawsuit would bring awareness to the medical community about the devastating consequences that taking this drug can have. I am appalled by the general lack of awareness in the medical community. 

 

Please send me a private message about how to join in.

2002 to 2016 Venlafaxine ER 225mg.  2013 TMS treatments triggered nerve pain in face, arm, back.  2016 TMS round ending Feb 1 Central Nerve Pain and and sub-acute serotonin toxicity compounded by Imitrex.  April-June tapered over 3 months from 225 to 0. Reinstated 6/20/16 21.5 nonER 2x day. 7/7/16-37.5mg; 7/17/16-36.6; 7/22/16-33.75; 8/22/16 32.6mg, 9/11/16-28.9mg, 9/25/16-25mg, 12/3/16-19.4mg, 12/18/16-18.5 holding.  OTHER DAILY PHARMACEUTICALS:   *Oxcarbazepine 150 mg 2x/day since mid 2015, *Naproxen 220mg 3x/day as an antidepressant and for pain since 2012, *Levothyrozine 75mcg since 2008 (hypothyroid), *Levothyronine 5 mpg 2x/day since 2012 (hypothyroid) *montelukast SOD 10 mg for asthma since 2014, Advair 250/50 2x daily, [DX 11/16 Felodopine 5mg since 2006,DX combivent 8/1/16] *MEDICAL MARIJUANA for neuropathic pain:CBD oil 25 mg 3-4 x day, THC tincture a few drops: 1/4 tsp 0-3x/day, vaporize CBD for breakthrough pain, CBD concentrate for severe pain.  PRN MEDS *Valium 5 mg PRN up to 4/day for muscle spasms, usually 1-2 x/ day. *Low dose Ketamine nasal spray for severe pain, and also finding 1 dose calms bad WD quickly. HERBAL TINCTURES: burdock, lobelia, turmeric, white willow. CURRENT SUPPLEMENTS:  *Methylated B vitamins, *Vitamin D 5000 iu, Alpha Lipoid Acid, Neti pot. [DX 6/13/16 promethazine suppository + 2 OTC Benadryl for severe pain N Acetyl Cytine for asthma1992-2002, over 20 different psych meds. 2012-2016 Eliminated 7 meds 1 at a time DX Plaquenil DX Spironolactone DX Lunesta, DX Ativan,  + others

Link to post
Share on other sites

Thank you for your response FeralUrban. I'm so glad you found my post. I'll PM you.  I hope your post will help others here to come forward and join us also. Gathering a large number of plaintiffs is very helpful in a lawsuit.

 

I am relatively stable currently having tapered from 75mg Venlafaxine XR to currently 62mg Venlafaxine (31mg 2xs per day). I am looking forward to my next reduction, this coming Thursday, to 59mg, having been at 62 for 10 weeks. It seems I will be stepping down 5% at a time, holding each time for 6-7 weeks. We'll see. Also some mild instances of lessening of Dystonia, hoping for full recovery as I taper. I'm also journaling my daily progress and activities, and plan to publish it in ebook form for anyone who wants to follow my path. 

 

When you post Venlafaxine ER is that the same as XR (extended release) or something different I haven't heard of?

Aug.22.2019 20mg | July.4.2019 20.5mg | May.16.2019 22mg | Mar.28.2019 23.5mg | Feb.7.2019 25mg | Dec.20.2018 26.5mg | Nov.1.2018 28.5mg | Sept.13.2018 30.5mg | July.26.2018 32mg | June.7.2018 33.5mg | Apr.19.2018 35.14mg | Mar.1.2018 37mg | Jan.11.2018 39mg | Nov.2.2017 41mg. | Sept.21.2017 stepping down to 43mg. Aug.10.17 45mg. | June 1.17 47mg.| Apr.20.17 50mg | Feb.12.17 53mg  | Jan.1.17 56mg | Nov.9.16 59mg | Sept.1.16 62mg | June 16 .16 65mg.  May 21 2016 Stepped down to Venlafaxine 70mg. 

April 22 2016 switched from Venlafaxine XR 75mg to: different brand, Venlafaxine non-extended release 75mg. Been taking Effexor XR 75mg. many years. Tried reducing last year, began having bad side effects. 

Link to post
Share on other sites

Effexor XR and venlafaxine ER. Took em both.

 

I've emailed you.

 

I'm wondering why you haven't gotten more responses?  

2002 to 2016 Venlafaxine ER 225mg.  2013 TMS treatments triggered nerve pain in face, arm, back.  2016 TMS round ending Feb 1 Central Nerve Pain and and sub-acute serotonin toxicity compounded by Imitrex.  April-June tapered over 3 months from 225 to 0. Reinstated 6/20/16 21.5 nonER 2x day. 7/7/16-37.5mg; 7/17/16-36.6; 7/22/16-33.75; 8/22/16 32.6mg, 9/11/16-28.9mg, 9/25/16-25mg, 12/3/16-19.4mg, 12/18/16-18.5 holding.  OTHER DAILY PHARMACEUTICALS:   *Oxcarbazepine 150 mg 2x/day since mid 2015, *Naproxen 220mg 3x/day as an antidepressant and for pain since 2012, *Levothyrozine 75mcg since 2008 (hypothyroid), *Levothyronine 5 mpg 2x/day since 2012 (hypothyroid) *montelukast SOD 10 mg for asthma since 2014, Advair 250/50 2x daily, [DX 11/16 Felodopine 5mg since 2006,DX combivent 8/1/16] *MEDICAL MARIJUANA for neuropathic pain:CBD oil 25 mg 3-4 x day, THC tincture a few drops: 1/4 tsp 0-3x/day, vaporize CBD for breakthrough pain, CBD concentrate for severe pain.  PRN MEDS *Valium 5 mg PRN up to 4/day for muscle spasms, usually 1-2 x/ day. *Low dose Ketamine nasal spray for severe pain, and also finding 1 dose calms bad WD quickly. HERBAL TINCTURES: burdock, lobelia, turmeric, white willow. CURRENT SUPPLEMENTS:  *Methylated B vitamins, *Vitamin D 5000 iu, Alpha Lipoid Acid, Neti pot. [DX 6/13/16 promethazine suppository + 2 OTC Benadryl for severe pain N Acetyl Cytine for asthma1992-2002, over 20 different psych meds. 2012-2016 Eliminated 7 meds 1 at a time DX Plaquenil DX Spironolactone DX Lunesta, DX Ativan,  + others

Link to post
Share on other sites

Hello btdt,

 

So sorry to hear about your movement disorder. I have myself a neck spasm condition. Into my eighth year. I've just begun to taper the Effexor. For years I thought the problem was due to stuffed emotions.

 

I read your history, if you quit Effexor cold turkey, that could be a cause of the movement disorder years later. Of course I'm just saying based on what I've learned. I have heard of people having symptoms come up after getting off the med. Very scary. One tool could be to try reintroducing the Effexor? I don't know. Neither does anyone else really.

 

I'm not the go to person, that would be someone named Mark Dikstein. We have a large group on facebook with some outside of US, some information there you might find useful: Tardive Dyskinesia/Dystonia Lawsuit is the name of the group you can search it and ask to join on facebook. So sorry about the illness. Don't give up. For me, I do many things with exercise and diet to strengthen my health, as I slowly taper off the med. That's the best course I've found.

 

I went off  E cold turkey by a neurologist years ago because my one leg was dragging and my head was dropping to my chest whenever at odd times.  He tried to switch me to another snri and it did not work.... I could not tolerate it I tried going back on E at the time my body rejected it in way of projectile vomit... my gut was wrecked by then. He tied other drugs mirapex lyrica none worked for me... I suffered.. long and hard for years and years. That was how it went... for me and it is now 7 days away from my 9 year anniversary this May I started with a movement disorder. All these years in between my leg has not be right my body has had pain you know the old fibro thing... chronic fatigue it has now been moved up a category to mcs multiply chemical sensitivity and a movement disorder... another name another year this had been going on now since 1990 when I first too prozac.... one disorder disease after the other. 

I am not in the USA and not on facebook.... and not going to be either. I do not need to make it easy for pharma to track me not that I really think I am safe from them I don't.... but why spoon feed them.  It is bad enough I have been finding article for them for years so they could make them disappear... nope I am not playing any longer.  Money is not going to fix this... I don't think anything is going to fix this. 

Just my take on things now almost nine years later... 

I hope you all find some peace where you are right now cause this entire experience is severely lacking in peace... 

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to post
Share on other sites

So sorry to hear your tragic tale btdt. Thanks for sharing it here.

Aug.22.2019 20mg | July.4.2019 20.5mg | May.16.2019 22mg | Mar.28.2019 23.5mg | Feb.7.2019 25mg | Dec.20.2018 26.5mg | Nov.1.2018 28.5mg | Sept.13.2018 30.5mg | July.26.2018 32mg | June.7.2018 33.5mg | Apr.19.2018 35.14mg | Mar.1.2018 37mg | Jan.11.2018 39mg | Nov.2.2017 41mg. | Sept.21.2017 stepping down to 43mg. Aug.10.17 45mg. | June 1.17 47mg.| Apr.20.17 50mg | Feb.12.17 53mg  | Jan.1.17 56mg | Nov.9.16 59mg | Sept.1.16 62mg | June 16 .16 65mg.  May 21 2016 Stepped down to Venlafaxine 70mg. 

April 22 2016 switched from Venlafaxine XR 75mg to: different brand, Venlafaxine non-extended release 75mg. Been taking Effexor XR 75mg. many years. Tried reducing last year, began having bad side effects. 

Link to post
Share on other sites

There is something about the words "tragic tale" that rings of dismissive disrespect as tale can mean it is not true is not my reality day in day out as such is dismissive. I don't like it but like so many other things I don't like it is what it is... you are who you are...I will take note of your response and remember it in any further posts I read from you.  

peace all

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to post
Share on other sites

I'm terribly sorry btdt. You're right it does sound dismissive. I certainly didn't mean that. I understand these illnesses are very difficult. I hope you can forgive my bad phrasing. 

Aug.22.2019 20mg | July.4.2019 20.5mg | May.16.2019 22mg | Mar.28.2019 23.5mg | Feb.7.2019 25mg | Dec.20.2018 26.5mg | Nov.1.2018 28.5mg | Sept.13.2018 30.5mg | July.26.2018 32mg | June.7.2018 33.5mg | Apr.19.2018 35.14mg | Mar.1.2018 37mg | Jan.11.2018 39mg | Nov.2.2017 41mg. | Sept.21.2017 stepping down to 43mg. Aug.10.17 45mg. | June 1.17 47mg.| Apr.20.17 50mg | Feb.12.17 53mg  | Jan.1.17 56mg | Nov.9.16 59mg | Sept.1.16 62mg | June 16 .16 65mg.  May 21 2016 Stepped down to Venlafaxine 70mg. 

April 22 2016 switched from Venlafaxine XR 75mg to: different brand, Venlafaxine non-extended release 75mg. Been taking Effexor XR 75mg. many years. Tried reducing last year, began having bad side effects. 

Link to post
Share on other sites
  • 2 weeks later...
  • Moderator Emeritus

I will keep you all in my prayers that you see justice.  Because I was put on generic tricyclic antidepressants, I am unable to sue for my movement disorder.  I also tried to sue my doctor, and no luck there, either.

We don't have a good justice system, but every once in while, justice happens.  I hope it happens for all of you.  Those meds RUINED my life.

*I'm not a doctor and don't give medical advice, just personal experience
**Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-7 years off: Huge improvements, incl. improved dystonia

Link to post
Share on other sites

I'm so sorry for your difficulties WiggleIt. And thank you for your support. I hope we will have some success, we will see.

Aug.22.2019 20mg | July.4.2019 20.5mg | May.16.2019 22mg | Mar.28.2019 23.5mg | Feb.7.2019 25mg | Dec.20.2018 26.5mg | Nov.1.2018 28.5mg | Sept.13.2018 30.5mg | July.26.2018 32mg | June.7.2018 33.5mg | Apr.19.2018 35.14mg | Mar.1.2018 37mg | Jan.11.2018 39mg | Nov.2.2017 41mg. | Sept.21.2017 stepping down to 43mg. Aug.10.17 45mg. | June 1.17 47mg.| Apr.20.17 50mg | Feb.12.17 53mg  | Jan.1.17 56mg | Nov.9.16 59mg | Sept.1.16 62mg | June 16 .16 65mg.  May 21 2016 Stepped down to Venlafaxine 70mg. 

April 22 2016 switched from Venlafaxine XR 75mg to: different brand, Venlafaxine non-extended release 75mg. Been taking Effexor XR 75mg. many years. Tried reducing last year, began having bad side effects. 

Link to post
Share on other sites
  • 1 month later...

I believe bruxism is considered a movement disorder.

 

 

I saw this on social media, so I'm not sure if it counts as "media" or not, but I do think it should have the highest visibility possible.  It's come to my attention that there is a group of people online who have come together and who have contracted the services of a law firm to go after the psych meds that have caused movement disorders.  I personally called the law firm and they were SO kind and SO attentive, and took everything I said very seriously about my movement disorder.

 

Here is the blurb that is circulating online.  Please read through it and contact the phone number IF you have a medication-induced movement disorder:

 

"Have you come down with a movement disorder from psych meds, whether they were prescribed to you on-label OR off-label? Did you come down with permanent or temporary dystonia or dyskinesia or akathisia or myoclonus from psych meds?

 

Please join me and others who are working with a law firm to hold the pharma companies accountable.

 

Call Grisham and Barnhardt at 434-293-2939. Ask to speak with partner attorneys Tyler or Addison, or with their assistant/paralegal Bethany.

 

Please, we need ALL the victims to come forward, no matter how long ago this happened to you!"  

Is this lawsuit  valid for anyone outiside US ? The problem with many coutnries they don't have much good legal system againts such issues and India is one of them and I live here. I have got osteophytes in neck when I was on Paxil and severe sensitivity in all good teeth due to induced Bruxism. 

 

I am in sever withdrawal and I know no doctor here who understands withdrawal. Even some  are not prone to internet or say people are doing this due to sheer attention.  I don't know why they are here in the first place (Only reason I think of is God like treatment). Quality of education and morals are so doomed here - that such people are here and making millions on lives of others.

08/13 - 01/14
Olanzapine, petril MD (Clonazepam ), Dicorate ER (divalproex). Soza 10 (Zolpidem)

02/14 - 05/14
Flunil ​20mg , Divaa OD 250 mg(divalproex), Amisulpride 50mg (1-0-2), zolfresh 5 mg , Quetiapine
05/14 - 08/14 Venlafaxine 75 xr ( 1-0-1), zapiz 0.25
10/14 Zaptra 12.5mg , Oxetol xr 150mg (0-0-1)
11/14 - 08/15
Paris CR 25 (paroxetine) , Oxetol xr 600 mg (0-0-1), nitrest 5mg , Quetiapine for a month.
09/15-11 Venlafaxine XR 75 ( 1-0-1), Mirtazipine 15, Respiredal 0.5, Lamitor 25, zillion 10.
12/15-02/16 Off Meds (C.T)

03/16-Mid April Sertraline, Aripropazole, Quetiapine, Etizolam.

After that : CT and on OTC supplements (Roadback), now on Ayurveda
Link to post
Share on other sites

 

I believe bruxism is considered a movement disorder.

 

 

I saw this on social media, so I'm not sure if it counts as "media" or not, but I do think it should have the highest visibility possible.  It's come to my attention that there is a group of people online who have come together and who have contracted the services of a law firm to go after the psych meds that have caused movement disorders.  I personally called the law firm and they were SO kind and SO attentive, and took everything I said very seriously about my movement disorder.

 

Here is the blurb that is circulating online.  Please read through it and contact the phone number IF you have a medication-induced movement disorder:

 

"Have you come down with a movement disorder from psych meds, whether they were prescribed to you on-label OR off-label? Did you come down with permanent or temporary dystonia or dyskinesia or akathisia or myoclonus from psych meds?

 

Please join me and others who are working with a law firm to hold the pharma companies accountable.

 

Call Grisham and Barnhardt at 434-293-2939. Ask to speak with partner attorneys Tyler or Addison, or with their assistant/paralegal Bethany.

 

Please, we need ALL the victims to come forward, no matter how long ago this happened to you!"  

Is this lawsuit  valid for anyone outiside US ? The problem with many coutnries they don't have much good legal system againts such issues and India is one of them and I live here. I have got osteophytes in neck when I was on Paxil and severe sensitivity in all good teeth due to induced Bruxism. 

 

I am in sever withdrawal and I know no doctor here who understands withdrawal. Even some  are not prone to internet or say people are doing this due to sheer attention.  I don't know why they are here in the first place (Only reason I think of is God like treatment). Quality of education and morals are so doomed here - that such people are here and making millions on lives of others.

 

I looked up the website of these attorneys and couldn't find anything relating to this lawsuit or that they even deal with medical malpractice.

Sorry to hear about your experience. Unfortunately doctors are clueless about antidepressant withdrawal absolutely everywhere.

2005-2008: Effexor; 1/2008 Tapered 3 months, then quit. 7/2008-2009 Reinstated Effexor (crying spells at start of new job.)
2009-3/2013: Switched to Pristiq 50 mg then 100 mg
3/2013: Switched to Lexapro 10mg. Cut down to 5 mg. CT for 2 weeks then reinstated for 6 weeks
8/2013-8/2014: Tapering Lexapro (Lots of withdrawal symptoms)
11/2014 -8/2015: Developed severe insomnia and uncontrollable daily crying spells
12/2014-6/2015: Tried Ambien, Klonopin,Ativan, Lunesta, Sonata, Trazadone, Seroquel, Rameron, Gabapentin - Developed Anxiety disorder, PTSD, and Psychogenic Myoclonus
7/2015-1/2016: Reinstated Lexapro 2 mg (mild improvement, but crying spells still present)

1/2016-5/2017: Lexapro 5 mg ( helped a lot, but poor stress tolerance & depressive episodes)

5/20/2017 - Raised dose to Lexapro 10 mg due to lingering depression(Total of 2 failed tapers & severe PAWS)

9/11/2018 - Present: Still on 10 mg Lexapro and mostly recovered.(Extremely sensitive to stress which triggers Myoclonus.)

Intro page: http://survivingantidepressants.org/index.php?/topic/4149-lilu-depression-worsened-by-meds/

Link to post
Share on other sites

I have a movement disorder now... some days full blown I can't walk other days I can walk it came on suddenly this past summer.  Seems nobody including doctors want to help me.  I had an EEG showed abnormal movement in my on leg that is all that was jerking that day... it was a good day.  That is it referred to a movement disorder clinic wait time 2 years. My family doctor who witness the full blown events I have says it looks like huntingtons disease to her but it isn't apparently. 

 

Don't hold your breath on any of this get off the drugs as soon as you can taper if you can and don't look back.  I don't see any real change coming so please protect yourself.  I have not taken an AD since 2007 the first sign of movement disorder came that summer head drops and foot dragging I had leg jerking termed restless leg years before this... all while on the drugs.  This may well be the effects of long term AD use it would not surprise me.  I am told I have a multiple chemical sensitivity as jerking is much worse if I am exposed to shampoo or perfume ect... causes listed as a large exposure to a toxin or gradual long term exposure... could that be taking ADs for 18 years I really don't know but I am sure it can't be good for a person. 

wishing you all healing and peace

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

Link to post
Share on other sites

Did this lawsuit happen?

In June 2014 I was taking Celexa for 2 days, 25 mg zoloft 8 weeks, 10 mg Paxil 3 months and 10 mg Lexapro 1 month tapered off in 2 wks.. Was on a total of 6 months had side effects to them all. Went off and had my first panic attack a month later in January 2015. In March 2015 was having stomach issues and was put on Xanax for a week Dr. Said it was anxiety. End of that week woke up heart racing so was put back on Lexapro 5 MG and the next night is when my sleep got messed up. Literally not sleeping

Was it the Xanax or lexapro?? Went off sleep on and off and taking Xanax on and off. The end of April 2015 tried Buspar for 2 days and had side effects and could not sleep at all. Middle of May 2015 went on Ambien and lexapro again. Inner vibration started. Switched to paxil. Went off Ambien in June 2015 and off Paxil July 2015. October 2015 got worse went of zoloft 12.5 mg through December 2015. I was tolerating what I was going through January and February 2016. Then March got worse with horrible panic. Tried hypnotherapy in May 2016 a couple times couldn't Relax when she started counting backwards it freaked me out. Started not sleeping again in May. Went back on Xanax for 2 months May-July 2016. Tried liquid Prozac 5 mg then 10 mg side effects July - August then switched Zoloft 12.5 mg August - September 2016. Been off antidepressants since September 5, 2016. Been off Xanax since July 28, 2016, but I have taken it 8 other times since then through May 2017. Have symptoms going on with agoraphobia. Is this withdrawal??

May 2017 feeling horrible and more intense symptoms.

Link to post
Share on other sites
  • Altostrata changed the title to Class action lawsuits: Drug-induced movement disorders

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×
×
  • Create New...

Important Information

Terms of Use Privacy Policy