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Toulouse

Elevated c4a test (mold)

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Toulouse

Just got word from my doc who was testing for Lyme due to my symptoms and he says my c4a test is sky high, which he says indicates Mycotoxin, a mold poisoning. And the Lyme test was in a gray area. Anyway, the c4a indicates I'm fighting inflammation, which I am. I have had issues with hives, food intolerance. Etc.

 

Is it possible either my Paxil WD or stress can cause the elevated test? I have read that high or sustained stress or a traumatic experience can be the springboard for this. I don't see my doc til tomorrow, but most likely he'll order a few more labs before putting me on a detox regimen, which is similar to Lyme treatment.

 

I am trying to look at the bright side w this, as we'd have found an answer to a lot of my recent issues,(anxiety,panic, nuerological issues, memory, numbness, achy joints, night sweats, insomnia). Which all also can be SSRI WD. But the elevated c4a definitely means I'm fighting off a mold). In the house we lived in the year prior to my Paxil WD we learned we had a major mold issue in the attic, so there's that too.

 

Anyone here can relate?

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SquirrellyGirl

I havne't had any such experience, but we do know in general that chronic stress weakens the immune system and creates the conditions for disease.  Kind of nice to know that perhaps some of your issues could be resolved with treatment for the mold infection.  Antifungals are serious drugs, so you will want to eliminate all outside stress from your life as much as possible while being treated and take really good care of yourself, diet and lifestyle-wise.

 

SG

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Toulouse

Thank you SG. Yes, actually my stress levels have gone down quite a bit since this spring. I think the mindfulness therapy has really helped calm my nerves and anxiety too.  I am luckily going away for 3 weeks for some relaxing, so if I start the treatment then, at least I won't have the day-to-day stresses of normal life, work, etc. to deal with too.  I know I will have some challenges with the treatment, but to be honest, after going through months of Paxil WD and whatever these mold symptoms are, I can pretty much deal with almost anything.

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Toulouse

UPDATE: Just an update here. My Pdoc was all wrong. I never had mold poisoning. Further testing ruled that out. It was a frustrating summer for me, to think I had this other disease and take medications for it, only to learn the prognosis was inaccurate,

I will say this, however, that the Meds I was on to reduce toxicity in my brain, did alleviate my very bad anxiety symptoms. I just couldn't tolerate the protocols for very long.

So I'm back to square one in the belief that my symptoms over the last year and a half were indeed solely Paxil WD. I have improved overall and my nasty anxiety has finally lifted.

Right now it's back to physical symptoms, like twitching, aches, and night sweats.

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Meimeiquest

There is an “internet summit” wrapping up this weekend entitled Toxic Mold Project.  This has been a piece of my journey (not everything unfortunately).  There is a pdoc who speaks in one interview “Brain On Fire.” She is in AZ, the lower elevations there have big mold problems.  She says since she learned of mold issues she hasn’t had a patient yet with severe problems who didn’t have mold (biotoxin illness or CIRS) as a part of their disease process.  It’s just something for us all to be aware of.

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Toulouse
1 hour ago, Meimeiquest said:

There is an “internet summit” wrapping up this weekend entitled Toxic Mold Project.  This has been a piece of my journey (not everything unfortunately).  There is a pdoc who speaks in one interview “Brain On Fire.” She is in AZ, the lower elevations there have big mold problems.  She says since she learned of mold issues she hasn’t had a patient yet with severe problems who didn’t have mold (biotoxin illness or CIRS) as a part of their disease process.  It’s just something for us all to be aware of.

 

Starting off by saying my posts here are about 3 years old.  I never had mold illness.   I was misdiagnosed as having it by an incompetent P-Doc.  This whole mold diagnosis was as big a nightmare as coming off Paxil and it probably derailed my healing by a year.   Elevated C4a alone isn't enough to diagnose someone. There's a whole laundry list of diagnostics that need to be done to rule it in or out.  My quack, nut job P-doc, which is what he was,  diagnosed me with CIRS and put me on the Shoemaker Protocol.    Weeks of misery on a battery of drugs that made me MUCH WORSE.   I saw another doctor who thought the quack was full of crap and I swiftly got off the drugs he put me on.  I went on to do a slew of blood tests that ruled out the CIRS diagnosis. The quack said 'oops,' basically.    I sought legal guidance to sue this turkey for putting me through added hell. I DO have a case, unfortunately,  it's not a slam dunk case in terms of how much in damages I can get, and the lawyers fees will make it not worth my while.  Anyways, beware any doctor who tells you that a c4a that is elevated is a sign of mold toxin.  There are many other tests that would help indicate that, and I will add that it is indeed quite rare to have CIRS.   It's my opinion that some of these integrative doctors pray on people who want answers for what ordinary doctors can't give them.  The truth is, and I am friends with several doctors, one of which is an esteemed infectious disease doctor, who have told me that modern medical science just doesn't have all the answers. They wish it did, and many people expect them to have the answers, so they seek out Integrative doctors.  We all want so badly for someone to tell us what is wrong for us.  I know first hand.  Sadly, this is just the reality.   Sometimes we just don't know the reason why we suffer. Sometimes there is no name for it.  Just my 2 cents 3 years after this terrible nightmare with the 'mold' doctor.  

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Toulouse

I want to add, that I am doing much better.  I am 3.5 years off of Paxil and feeling BACK TO NORMAL.  Or 95% back to normal.  No anxiety, no physical symptoms. For at least the last year, I have returned to my old PRE-PAXIL self!  Good luck to anyone reading this message and looking for HOPE! 

 

 

 

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