☼ RachelSusan: Zoloft - on, off and reinstated

[Frogie]

10 minutes ago, RachelSusan said:

Thanks Frogie for your good thoughts. I think I spoke a little too soon though.  After quite a few good days I'm starting to get symptomatic again. Hopefully it won't be too bad.

xo

RS

I will think good thoughts for you. I hope you recover soon.

 

Take care,

Frogie xx

[RachelSusan]

Hi all,

I need opinions because withdrawal symptoms that I classify as severe started yesterday and aren’t showing any signs of letting up.

 

Here’s a little of my history. In January of 2017 I started a taper, which was very smooth. From January 2017 until August 5th I went from 12.5 mg to 5.0 mg. of Zoloft. So for those of you wondering, that is a 60% taper over approximately 7 months.  For the majority of the tapers I didn’t have any symptoms, until the beginning of August that is. At that time I started to feel just a tiny bit of withdrawal symptoms and I decided to hold any more tapers. In the middle of August I introduced 15 mg  a day of prednisone into my situation.  At the time I introduced the prednisone it felt like it was stimulating my central nervous symptoms even more.  From the beginning of August until now I have been having windows and waves, overall though it felt like I was getting worse. 

 

Now to the present. For the previous 3 days I felt like I was coming out of the wave.  Then yesterday afternoon I got hit very hard with symptoms: nausea, hot with sweats, internal tremors, so woozy that I have diminished cognitive function, feeling shaky, intense sinus pressure, headache, sensitivity to sound, burning skin, and so on.  I would classify the symptoms as severe.

 

I took 12.5 mg of meclizine for nausea yesterday, which usually helps, this time I didn’t get any relief.  I have been using the 12.5 mg dosage of meclizine 4 to 5 times a week since the end of August.

 

So to recap I have been having symptoms since beginning of August and while they came and went, over all they have been steadily increasing.  I haven’t been doing any tapering since August.  As usual, for me the symptoms are all physical. 

 

I will continue to hold but I wanted to share my situation with the moderators so perhaps they can perhaps monitor me, if any one has the time that is, and start thinking about if up-dose is needed. Additionally I have also been tracking my day to day, and hour to hour functioning and can’t see any problems when I review my logs.  If there are any moderators reading please keep an eye on me, I will continue to post, and if you have any thoughts or opinions please let me know. I thank the moderators for their time.

[apace41]

1 hour ago, RachelSusan said:

In the middle of August I introduced 15 mg  a day of prednisone into my situation.  At the time I introduced the prednisone it felt like it was stimulating my central nervous symptoms even more.  From the beginning of August until now I have been having windows and waves, overall though it felt like I was getting worse. 

 

Hi, RS.  Sorry to hear you are back in the soup after looking like it was turning positive.

 

Are you still on the prednisone?  Can you share with us the reason you are on it?  I understand if you'd prefer not to disclose.

 

Best,

 

Andy

[RachelSusan]

Andy,

I'll send you a private message.

RS

[apace41]

2 hours ago, RachelSusan said:

Now to the present. For the previous 3 days I felt like I was coming out of the wave.  Then yesterday afternoon I got hit very hard with symptoms: nausea, hot with sweats, internal tremors, so woozy that I have diminished cognitive function, feeling shaky, intense sinus pressure, headache, sensitivity to sound, burning skin, and so on.  I would classify the symptoms as severe.

 

RS,

 

Knowing that you must be on the prednisone, it can, of course, be the source of some disruption to the CNS so it is hard to discount its impact.  Having said that, one would expect that over time you would have greater assimilation of the drug into your system so that an acute reaction like this would not likely (in my view) be the result of a drug you have been largely successful with for more than a month.  You need to recognize (and I say this from a place of current empathy) that a one day increase in severity of symptoms is way too small a sample size to warrant a change in your regimen.  What is more troubling (again from a place of current empathy) is when you feel like your graph over a more extended period looks like the stock market during a recession.  I have had enough conversations with people dealing with this process to know, however, that sometimes it goes like that -- things slide down for an extended period and you start to think it will never get better -- and then, when you least expect it, the tide turns and you start to see recovery.  The challenge is that we'd like things to turn more like a cigarette boat and we are stuck on a huge barge where it takes forever for things to turn.

 

At this point, my advice would be to simply do the best you can to take care of yourself, be extra kind to yourself, relax and do the things that make you feel good (including the foods you eat), and see whether you level off and get back to where you were prior to this acute reaction.  My guess is that you will and that you can go back to trying to get back to baseline so that you can restart the taper.

 

Please keep us posted so we can provide further input.

 

Best,

 

Andy

[RachelSusan]

Andy,

 

Thank you for taking the time to review my question and of course your advice.  What you said resonated with me and I am now in complete agreement and compliance. I will keep holding, watching and I will keep you posted.  I have learned from this website to take copious notes with everything I ingest, both medications, food, and supplements, and of course my reactions. At least this time around if things continue to go bad I have accurate information to offer people trying to help me.

 

I am so glad you are on my team.  I have watched your responses to my friend Frogie (Hi Frogie) and others and have always thought they were wonderful.  Very insightful and kind.

 

After reviewing my logs again and again I notice that my symptoms are worse in the afternoons, however they usually subside prior to bedtime.  This is the first time I've had symptoms all through the night and the next morning.   Thing morning I took zoloft again first thing upon waking up, like I usually do and I notice that about an hour and a half after taking it the symptoms are still with me but are not quite as bad.  I'll watch and see what happens this afternoon.  

 

I am surprised that I had no reactions all spring with the taper and then suddenly, wham, I start to get a reactions and they continue two months after halting the taper. Like you said the graph looks like the stock mark during a recession.  A little humor here, how in the world did you know I rate every symptom and keep an excel spread sheet that I do on occasion look at in graph format? LOL.  Yes SA taught me about graphing and note taking.

 

Anyway, thank you again.  I am wishing us both a rising stock market graph.  May we both reach reach a recovery of at least 30,000 on the Dow Jones.

[apace41]

10 minutes ago, RachelSusan said:

I am surprised that I had no reactions all spring with the taper and then suddenly, wham, I start to get a reactions and they continue two months after halting the taper.

 

RS,

 

This is not nearly as surprising as you would think.  I used to think the same thing, i.e. that any bridge you successfully crossed was in the past and you no longer need to worry about it.  Unfortunately, it doesn't work like that.  Things can happen on a delayed basis.  There are plenty of stories of people who went CT off the drug and were fine for months before getting hammered with symptoms.  This is the same but with a taper.  If you are tapering faster than your body is able to upregulate, you may become symptomatic immediately or it may be on a delayed basis.  Trying to predict with the multifactorial nature of this process is very hard.  The advice we give is based on generalities that we see in application over a large number of members but they, of course, cannot be individualized.  

 

If you think about it, you might have a period of greater or lesser stress that might impact how quickly your body heals, or you might go through a period where your diet is less optimal, etc., etc.  Any of these things can change the dynamics enough to result in symptoms.  In all of those situations, the best advice is almost always going to be "HOLD" and wait for some greater level of stability.

 

Hope that helps.

 

Best,

 

Andy

[Flowers]

Hi RS

 

So sorry your window didn't last long.  I have come across you on Frogies thread!

 

I just wanted to say that I tapered for a whole  year with no problems at all and then one day a massive wave hit me.  I held but unfortunately made a bad decision to try another AD and that was the worst thing I could have done as am still now after quite a few months trying to stabilise again.

 

I had to take the same steroid as you a few years ago when I was suffering with a chest infection and I am asthmatic. I wasn't in WD and was just happily taking my AD with no ill effects. The first day I took the steroid it ramped up my nervous system so much and made me very anxious and depressed.  I couldn't continue with this treatment so am not sure if my body would have got used to it eventually. We are all different in any case.

 

Hopefully if you just keep holding things will get better .

 

Love from Flowers xxx

 

 

[RachelSusan]

12 hours ago, apace41 said:

This is not nearly as surprising as you would think.  I used to think the same thing, i.e. that any bridge you successfully crossed was in the past and you no longer need to worry about it.  Unfortunately, it doesn't work like that.  Things can happen on a delayed basis.  There are plenty of stories of people who went CT off the drug and were fine for months before getting hammered with symptoms. 

Hi Andy,

Thank you for the information.  I am always trying to to make "sense" out of withdrawal and I guess there is no making sense of out this torture.  To be able to hear from you that what I am going through with a delayed reaction can be considered perfectly normal for this type of situation helps me a lot. 

 

At one point during my taper if I would get symptoms they would start about 4 days after the taper and clear up within a week to 10 days.  I had always used that as a guide.  This last spring my tapers were smooth sailing with no symptoms at all.  It's clear to me now that I can't use the smooth sailing as a guide any more. When I am ready to taper again I'll have to put a lot of time between each of my tapers, even if I don't have symptoms. For now though, I'll have to stabilize, which to me  means wait until I am feeling baseline normal and then hold and hold some more.

 

Thank you again for the information about things happening on a delayed basis.  I had no idea this situation could be so sneaky. It really is a tricky and dangerous mess we find ourselves in.

 

And yes it does help Andy. More than you know.

 

Thank you,

Rachel

 

[RachelSusan]

9 hours ago, Flowers said:

I just wanted to say that I tapered for a whole  year with no problems at all and then one day a massive wave hit me.  I held but unfortunately made a bad decision to try another AD and that was the worst thing I could have done as am still now after quite a few months trying to stabilize again.

Hi Flowers,

 

I have seen you on Frogie's page as well, and you have in the past posted a very supportive e-mail on my page. Thank you for that, and it's nice to meet you officially.

 

Your latest e-mail means a lot to me.  To hear from another person about a delayed reaction from a taper is comforting.  It's comforting to know that this does happen and is perfectly normal in this crazy abnormal world of withdrawal we are all going through. Andy  (apace41) also shared information regarding a delayed reaction with me. It's so nice to be able hear it from more multiple people, especially one like yourself who has lived through it.  I am indeed sorry to hear though that your attempt to try another AD at that point did not work out.  There are so many choices that we make along the way of using the ADs that I really wish I had a crystal ball that I could use to see what is the correct choice.  I have agonized so many times not knowing what choice to make and knowing that the wrong choice could lead to many more months of suffering.  Thankfully this website and other people here, such as yourself, has been able to provide me guidance by sharing their own experiences with me.

 

I am now waiting to come out of this wave, return to baseline normal, hold some more, and then once again start a very slow taper. 

 

Flowers, thank you again for reaching out to me.

 

xo

RS

 

 

 

 

 

[Flowers]

Hi RS

 

You are very welcome  - I have read some of your posts to others and you are so kind and caring.

 

What I chose to do hasn't been very nice but I am confident that I will stabilise again one day. Although I am in a wave now I had a pretty good summer and even now can still do things each day. I haven't the energy and I am constantly battling anxiety but I am not as bad as a few months ago.

 

You will come out of the wave and be able to resume your taper. I think it is how we deal with the waves that can make them easier to bear and not drag us down too much.

 

Hope you have had a better day today - or will have. I am not sure what time it is where you are!!

 

Love from Flowers xxx

[wantrelief]

Hi Rachel,

 

Thank you for dropping by on my thread - it is nice to "meet you".   

 

I am so sorry you were hit with this recent wave.  It looks like prior to this set back you've been doing really well with your taper!  I really hope you stabilize soon.  

 

I will be thinking about you,

Michele

 

 

[Frogie]

Hi RS:

 

Just wanted to stop by and say hi.

 

My stupid throat is still sore, but this is only the 2nd day. I'm impatient.

 

Hope you are feeling better.

 

Let me know when you want that pie again lol...

 

Take care,

Frogie xx

[RachelSusan]

Hi Frogie,

Thanks for stopping by.  I follow your thread so I know you are starting to feel a little better from the Strep throat.  If it's ok with you I think we should have pecan pie next time.  I'll have mine with a really cold glass of milk.

xo

RS

[wantrelief]

Hi RS!  How are you feeling?  I hope you've seen some improvements.

[Frogie]

3 hours ago, RachelSusan said:

Hi Frogie,

Thanks for stopping by.  I follow your thread so I know you are starting to feel a little better from the Strep throat.  If it's ok with you I think we should have pecan pie next time.  I'll have mine with a really cold glass of milk.

xo

RS

Hi RS:

 

I thought I was feeling better, then woke up this morning, and my throat hurt worse than it did. My fiancé looked at it and said it has some white on it still, so I just took a shower and put on clean pjs. I'm sitting here snuggling with Brownie.

 

Pecan pie sounds good. You have a a big glass of ice cold milk, and I'll have almond milk. Lol...

 

Hope you are doing good.

 

Take care,

Frogie xx

[RachelSusan]

Hi Wantrelief,

It's great to hear from you.  This last week I started to see some improvement with the symptoms. Tremors (inner trembling) and sweats still hanging around but milder.  Thank you for asking.

[RachelSusan]

Does anyone know what physiologically causes the inner trembling or inner shaking? Normally when I am in a wave I get it, but it will come and go.  This time around I have had it for 3 days straight. Thankfully it is more mild but never-the-less still there. Sometimes when I understand how things work or what is causing it, it makes it easier for me to accept. Just thought I would ask. Thanks in advance to anyone that might know something and has the time to answer.

RS

 

[Flowers]

Hi RS

 

Thanks for visiting my thread.  It means a lot to me that I have met such lovely people here.

 

How is the inner trembling? Hope this wave starts to ease for you soon.

 

My back is better so I managed a better day today. Even though it was pouring down with rain all day I managed to get out with my visitors. Really cheered me up.

 

Love from Flowers xxx

 

 

[Frogie]

Hi RS:

 

Just wanted to stop by and say hi.

 

Havent heard from you for a while, hope you are doing well.

 

I still have the stupid sore throat. I'm beginning to think it's a virus now. 2 more days on antibiotics, round 2.

 

Take care,

Frogie xx

[RachelSusan]

On 10/18/2017 at 1:34 PM, Flowers said:

How is the inner trembling? Hope this wave starts to ease for you soon.

 

Hi Flowers and Frogie,

Thank you to both of you for checking in. I still have the inner trembling and burning skin however the other symptoms have gone away. I'm not sure if my taper during the spring and summer caught up with me or if some of the other medications I must take triggered me, or perhaps both. I will be holding for a good long time to come, or as Frogie has advised me, at least 30 days past the last day I have any symptoms, and perhaps even longer.

 

Frogie,

Sorry to hear you still aren't 100% in the health department.  Maybe the next few days will be the turning point for you?  I hope so.

 

RS

14 hours ago, Frogie said:

Hi RS:

 

Just wanted to stop by and say hi.

 

Havent heard from you for a while, hope you are doing well.

 

 

[wantrelief]

Hi RS,

 

I am sorry to hear you are having some of the same symptoms but very happy to hear others have gone away.  Your patience with holding is good for me to learn. I always seem to panic and updose - so I will try to learn from your experience and patience through this process. 

 

Hope your remaining symptoms improve soon!

[RachelSusan]

Hi Wantrelief,

Good to hear from you too. Just like you I too always want to updose, and sometimes that is indeed the correct thing to do.   However for me these drugs are such tricky beasts I have found it helps me to reach out to the people on this website.  This time it was one of the moderators that was my guiding hand and voice of reason. I'm so glad I took his advice and stayed the course.  Just holding and waiting is always the hardest thing for me to do. 

 

I know you have struggled with these medications and wish you the very best in getting relief.

[Frogie]

9 hours ago, RachelSusan said:

Hi Flowers and Frogie,

Thank you to both of you for checking in. I still have the inner trembling and burning skin however the other symptoms have gone away. I'm not sure if my taper during the spring and summer caught up with me or if some of the other medications I must take triggered me, or perhaps both. I will be holding for a good long time to come, or as Frogie has advised me, at least 30 days past the last day I have any symptoms, and perhaps even longer.

 

Frogie,

Sorry to hear you still aren't 100% in the health department.  Maybe the next few days will be the turning point for you?  I hope so.

 

RS

 

I'm not a dr, but I wonder if it could be a combination of the WD catching up to you and the other meds you are taking. Just take it easy. I'm glad you are holding.

 

I think mine is turning viral now. I have no fever, just a scratchy throat and plugged nose.

 

I'm just doing nothing today.

 

Hope you feel better soon.

 

Take care,

Frogie xx

[RachelSusan]

Ok, time to check in.  I'm in a three month wave. I was very symptomatic at the beginning of the wave. The amount of symptoms are less over all but some of them are still with me.  I still have the burning skin and internal trembling. The burning skin is more intermittent and with me for about 25% of my day,  the severity ranges from mild to moderate. The internal trembling is with me for about 75% of my day and wakes me up around 2 or 3 a.m. every night. I hate the trembling the most and the severity ranges from mild to borderline severe. I also have what I call the "2 p.m. sweats."  Most days around that time I experience feeling very hot and sweating. It can last anywhere from a half hour to about two hours. I always have heat and sound sensitivity and some burning skin, which is WD normal for me.  I will not be up-dosing but rather I'll be holding for a good long while.  While the symptoms are nasty, they are bearable.  As I get to the lower doses it is getting harder to taper and I've got concerns.  I'll be sticking close to this site and reaching out for help when the time comes, but for now I'm just holding. Below is my list from when I started this current wave, I've crossed out the symptoms which are no longer with me.

• Nausea
• Internal Tremors (internal trembling)
• Hot / Sweats
• Headache
• Burning Skin
• Sinus Pressure

 

 

 

[Frogie]

17 minutes ago, RachelSusan said:

Ok, time to check in.  I'm in a three month wave. I was very symptomatic at the beginning of the wave. The amount of symptoms are less over all but some of them are still with me.  I still have the burning skin and internal trembling. The burning skin is more intermittent and with me for about 25% of my day,  the severity ranges from mild to moderate. The internal trembling is with me for about 75% of my day and wakes me up around 2 or 3 a.m. every night. I hate the trembling the most and the severity ranges from mild to borderline severe. I also have what I call the "2 p.m. sweats."  Most days around that time I experience feeling very hot and sweating. It can last anywhere from a half hour to about two hours. I always have heat and sound sensitivity and some burning skin, which is WD normal for me.  I will not be up-dosing but rather I'll be holding for a good long while.  While the symptoms are nasty, they are bearable.  As I get to the lower doses it is getting harder to taper and I've got concerns.  I'll be sticking close to this site and reaching out for help when the time comes, but for now I'm just holding. Below is my list from when I started this current wave, I've crossed out the symptoms which are no longer with me.

• Nausea
• Internal Tremors (internal trembling)
• Hot / Sweats
• Headache
• Burning Skin
• Sinus Pressure

 

 

 

Hi RS:

 

Just take it as easy as possible. 

 

I'm glad to see you could cross off some of your symptoms. The other ones will leave soon, I hope.

 

I will be thinking of you.

 

Take care,

Frogie xx

[BlusMama]

Hi RachelSusan,

 

You've commented on my intro forum and I wanted to say hello on yours. I'm in the midst of a Zoloft withdrawal and reinstatement currently too.

 

Extending my best wishes to you, and know that you will heal up soon.

 

[wantrelief]

Just wanted to reach out and offer you support as you hold.  As Frogie said, I am glad you have been able to cross off some of the symptoms off of your list and hope the others abate soon.  You are doing an awesome job!

[Scorpio]

I have just been reading your thread and see you took predisnone. I don’t know if it is any help to you but I was on a steroid inhaler for about 4 years I was also on citaloprom which pooped out on me in the June. Apart from two weeks of hell, panic attacks, nightmares dizziness. Then I recovered and felt great. In the late July, August I developed a blister like rash round my nostrils and mouth. As well as cramping in the toes and legs, diarrhoea, weight loss . Purple bruising if I knocked my hands or arms and mild anxiety something I had never had before. Couldn’t understand what was happening to me visit to drs put on lyrica which I took for two months but didn’t help with any of the symptoms apart from anxiety which lessened. Stopped taking it and then all hell let loose anxiety was much worse, insomnia. Back to drs who insisted  it was anxiety. He tried to put me in various ssri which I had bad reactions to sent to psychiatrist who prescribed lexapro. I had to take 1mg increasing up to 12mg every third day. It was supposed to be to 20mg but I couldn’t take it the side effects were dreadful. The rest is in my thread. 

One year later convinced it was not anxiety that had caused all this misery I went to an endocrinologist to investigate the first thing he said was check the steroid inhaler. I looked at side effects and my initial symptoms matched exactly. I then researched and found a non steroid inhaler new to the market which I then requested and have taken ever since I put on weight, lost the cramp and rash, diarrhoea. Anxiety and what I now know waves windows continued. Then eventually found this site and learned all about what lexapro was doing to me unfortunately had already c/t the lexapro so now trying to stabilise on 1mg 16 weeks on. 

After such a long garbled explanation to you, sorry, yes predisnone with delicate cns can cause huge problems. If you research predisnone forums you will see lots of people without cns problems have a terrible time once drug is stopped. 

[RachelSusan]

On 10/28/2017 at 4:24 PM, BlusMama said:

Hi RachelSusan,

 

You've commented on my intro forum and I wanted to say hello on yours. I'm in the midst of a Zoloft withdrawal and reinstatement currently too.

 

 

 

BlusMama,

Thanks for stopping by.  We both are suffering from the same medication.  I made a lot of mistakes along the way. I'm sure you'll do better than I did. I didn't realize until I got into this process how debilitating there medications can actually be. I've set myself up to follow your thread so anything you write I'll see. Thanks again for stopping by.

RS

[RachelSusan]

On 10/28/2017 at 4:42 PM, wantrelief said:

Just wanted to reach out and offer you support as you hold.  As Frogie said, I am glad you have been able to cross off some of the symptoms off of your list and hope the others abate soon.  You are doing an awesome job!

Wantrelief,

Thank you for stopping by.  I am holding and thrilled that I could cross off some of the symptoms.  Right now the inner trembling is the worst. The trembling can be with me non-stop for days at a time and then they go away for a few hours. When they go away I thinkfinally they are gone, and wham, them come back. They even wake me up at night. I will be holding for a while.  I have gotten down to 5 mg but it seems to be getting harder as I go down.  I'm not surprised though, a lot of people on this website say the same thing.

RS

[RachelSusan]

19 hours ago, Scorpio said:

 I then researched and found a non steroid inhaler new to the market which I then requested and have taken ever since I put on weight, lost the . 

 

Hi Scorpio, Can you tell me which non steroid inhaler you have been put on?  I have been taking both inhaled steroids and oral steroids.  It's been very difficult being in withdrawal and having to use the.  Thanks again for stopping by, I really appreciate it.

RS

 

On 10/28/2017 at 6:21 AM, Frogie said:

Hi RS:

Just take it as easy as possible. 

 

 

Hi Frogie,

Thanks for stopping by.  I am taking it easy. The internal trembling is driving me nuts though.  They go on for days at a time, even waking me up at night.  You and I both suffer from nausea at times, it's wonderful that symptom is gone, at least for me.  I believe you haven't had any nausea for a while, except for when you were on that antibiotic. 

RS

                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                  

[Frogie]

7 minutes ago, RachelSusan said:

 

Hi Scorpio, Can you tell me which non steroid inhaler you have been put on?  I have been taking both inhaled steroids and oral steroids.  It's been very difficult being in withdrawal and having to use the.  Thanks again for stopping by, I really appreciate it.

RS

 

 

Hi Frogie,

Thanks for stopping by.  I am taking it easy. The internal trembling is driving me nuts though.  They go on for days at a time, even waking me up at night.  You and I both suffer from nausea at times, it's wonderful that symptom is gone, at least for me.  I believe you haven't had any nausea for a while, except for when you were on that antibiotic. 

RS

                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                  

Hi RS:

 

No I haven't had any nausea except the antibiotics. But I never know when it will be back. I've never had the internal shaking, but a few weeks ago I was shaking, like my hands and feet. I just wondered if that was because I was sick. I'm glad you came out of hibernation, even for a few minutes.

 

I've had a headache for 2 days, just an annoying one. I think it's the air pressure. One day it's in the 70's, the next it's in the 40's. I wish it would stay in the 40-50's. I'm ready for fall. But Wednesday, it's supposed to be in the 70's again. The dr said that's why so many people are getting sick, with the weather. I'm going to wait out this week and go back to Volunterring next week. I should be ok by then.

 

I hope you feel better soon. Still waiting on my pie and talk lol...

 

Good to hear from you.

 

Take care,

Frogie xx

[JS11]

Hi RachelSusan, 

I just wanted to reach out and say hellO grasped into this site for dear life but everything in my life changed and I am slowly trying to reconnect with the many kind souls here.  I talk to Scorpio often and was reading her respond ano the inhaler.  I have one that I use occassionaly and I believe it the steroids kind which I only briefly thought of..Good suggestion from Scorpio.  I will check that too.  Learned some not of her story and read some of yours as well. So familiar. Like Scopio, i was told that my sypmtoms were anxuety and I was given and reluctantly took 4 different drugs when I didn't know that the symptoms were wothdrawal.  Led my here so a good tesult of thst nightmare.

I mention this as when I went on and then off all that different medication and messed with my AD dose as well, I experienced uncontrollable trembling.  My teeth would chatter as well like a cat seeing a bird.  Those things have gone away but that is what my anxiety feels like to me: a small inner earthquake.

Horrid.  I have been waking between 2:30 and 3:30 am as well.  Although I am in new living circumstances...house to apt...it has been consistent with a brief respite tho a.m. when I woke at 4:44am.  I take melatonin in the early evening and wonder if this is when it wears off.  I have resorted to nibbling on a little melatonin tablet as I don't want to be a zombie the next day but lack of sleep is so brutal.  

Have you found anything that gives you relief?  I like to know why too.  Answers provide comfort and don't make me feel so crazy.

I hope the day keeps you well and you find some relief from your symptoms.

Take care,

jS11

[RachelSusan]

1 hour ago, JS11 said:

 

Have you found anything that gives you relief?  I like to know why too. 

jS11

 

Hi JS11,

 

Thanks for stopping by.  I am actually following you on your thread. I'm following you because we both had similar symptoms and I wanted to see how you were doing with your symptoms. I took me a while to figure out that the follow button was there. 

 

I have tried a lot of things for relief. I have tried magnesium supplements, magnesium hot baths, meditation. For the nausea I have taken over the counter Meclazine which helps a lot, it also helps me with that wozzy feeling, that feeling like being drunk. I don't know if others have been helped with it or not. The magnesium hot bath helped but only for the time I was in the bath, the minute I got out the symptoms all came back. Now I just try and distract myself, with whatever I can.

 

I know you are suffering.  I feel terrible for you.  I do truly believe though that if we go very very slowly with our tapers we will continue to heal. For those that went cold turkey I know they are suffering and believe that they too will heal. It's so sad though that it takes so long and is painful regardless if it taper or cold turkey.

 

RS

 

[Scorpio]

Hi RachelSusan 

‘the non steroid inhaler is called Anoro Ellipta. I have had no problems with it at all. Just the horrible lexapro and trying to stabilise that’s the big problems. 

hope you can get anoro ellipta for your own use. There is also another non steroid available if you can’t get hold of anoro let me know and I will find out the name of the alternative.