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Longroadhome
On 8/21/2019 at 8:06 PM, Gridley said:

Here's a symptom update, compared with 6 months ago, when I was 3.8mg Lexapro, just about twice what I'm taking now.  Basically, I'm doing better.  I did have an uptick in symptoms in the 3.5 to 2.5 range, but that seems to have resolved.  I'm doing a good bit of mediation and putting areas of concern in the Light (prayer).

 

pain in chest/heart - gone

paresthesia - improved

sleep - about the same, varies from 5 to 8 hours, broken

anhedonia/apathy/no joie d'vivre - this is probably my worst symptom and is unimproved

cortisol mornings - much improved,, almost gone

anxiety - improved; still hits me but less

hives - gone

stiff, painful back of neck - was significant, now almost gone

adhesion pain from gas - virtually gone

backache - much improved

irritability - improved

ruminations - still some in early morning but I'm employing some techniques to stop it, mostly telling myself, "Think Good      

     Thoughts" and doing so (since energy follows thought and good things are what I want to manifest)

     

Now that I'm getting pretty low in dosage, I'm slowing down a bit with three-week holds instead of two.  

 

I'm doing a crossover from my old brand of Lorazepam, no longer available, to name-brand Ativan and will hold my taper until that's done.

Hi Gridley how long did you have hives for and how did you treat it?  

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Gridley
11 minutes ago, Longroadhome said:

Hi Gridley how long did you have hives for and how did you treat it?  

It comes and goes.  I had it for several months on my sides and then it went away.  I didn't do anything for it.  

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Longroadhome
Just now, Gridley said:

It comes and goes.  I had it for several months on my sides and then it went away.  I didn't do anything for it.  

Thank you for prompt reply Gridley 

do you think it’s WD related because I’m having the same though mine came on after antibiotics some weeks ago. Never had it before. 

Did you get it every day ? 

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Gridley
18 minutes ago, Longroadhome said:

do you think it’s WD related

I have no doubt mine was WD related.  It was constant, didn't come and go, but didn't really bother me.  I tried to ignore it and not scratch it and it finally disappeared.  The central nervous system can come up with the strangest symptoms in WD

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Giulietta
1 hour ago, Gridley said:

The central nervous system can come up with the strangest symptoms in WD

 

Shingles?

 

Did you have chicken pox?

 

Very glad to see improvement in your situation and also that you catch yourself when you find yourself ruminating to 'think positive thoughts.'  I am trying to figure out what thoughts and feelings are driving the ruminations - but I don't know if it feeds the ruminations or helps give clarity to resolution. What do you think?

 

 

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Gridley
7 minutes ago, Guilietta said:

Shingles?

 

Did you have chicken pox?

 

I did have chicken pox as a chld and I have had shingles about 4 years ago pre-withdrawal.  This is much less severe.

 

7 minutes ago, Guilietta said:

I am trying to figure out what thoughts and feelings are driving the ruminations -

 

I think the drug withdrawal is driving the ruminations, a form of neuroemotion.  I think the thoughts and feelings, or at least my focus on them as I lies in the bed sleepless, is caused by the drug.

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Giulietta
3 minutes ago, Gridley said:

I have had shingles about 4 years ago pre-withdrawal.  This is much less severe.

 

I don't know how the severity of shingles ranges - and how many times it may occur in one person. That being said - I know 2 people who suffered shinges as a result of a stressful occurrence - a car accident in a person with impaired immune function and a lot of anxiety - a cancer patient - and another individual.

 

I refuse to get the shingles vaccine.

 

6 minutes ago, Gridley said:

I think the drug withdrawal is driving the ruminations,

 

The WD has truly exacerbated thoughts and emotions that I sometimes feel - and magnifies and perpetuates them.

 

 

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Giulietta

Hi Gridley

 

How are you? 

 

I came across this article on benzos and thought you might find it somewhat interesting and I did not find it not too stressful to read. I skimmed the last part of it.

 

It includes a list of  several drugs - developed as anti-convulsants - that may be used to help taper. This is based on a small research population. Gapapentin and lamotrigine are two of these drugs. It appears that transition to diazepam may  be recommended for tapering.

 

https://www.survivingantidepressants.org/topic/21796-fluyau-2018-challenges-of-the-pharmacological-management-of-benzodiazepine-withdrawal-dependence-and-discontinuation/

 

Hugs to you. Hope you and the family are well.

Giuilietta

 

 

 

 

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Gridley
8 minutes ago, Guilietta said:

I came across this article on benzos

Thanks, G, I'll take a look.

 

 

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Gridley

Window today, all day!  Don't know why, but I'll take it.

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wantrelief

Oh that is wonderful news, Gridley - enjoy!  

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Gridley
20 minutes ago, wantrelief said:

enjoy!

Thanks, wr!

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Giulietta

Awesome!!!!

 

I'm really pleased for you. :)

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Erell

Wonderful news ! 😙

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Frogie
14 hours ago, Gridley said:

Window today, all day!  Don't know why, but I'll take it.

That is great! I’m so happy for you😊

 

Take care,

 Frogie xx

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Gridley
20 minutes ago, Frogie said:

That is great! I’m so happy for you

Thanks, Frogie.  I hope you're doing well.

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Frogie
5 minutes ago, Gridley said:

Thanks, Frogie.  I hope you're doing well.

I’m doing ok, anxiety. But that’s to be expected. At least I only wake up with it then it goes away.

 

 I’m so glad you are doing well 😊

 

Take care,

 Frogie xx

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Rabe

SO happy to hear about your wonderful window Gridley!!!  WOOHOO!!  Its always SO nice to have the shades pulled up for even a day...hope it goes on for you!!💜

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sunnysideup69
On 11/16/2019 at 10:33 PM, Gridley said:

Window today, all day!  Don't know why, but I'll take it.

 

Wonderful! Well deserved :)

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sunnysideup69

@Gridley, hello, wandered over to say thanks for all the help you give on my thread. Hope you're doing well :)

 

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Gridley

@sunnysideup69 Thanks for dropping by. I'm having a pretty good day.  Wednesday is one of the two days a week I go into the village, which is a little bit of a stressor but I did okay.  I hope you're doing well.

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Giulietta

Do you go to the village with Humphrey or Yapa?

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Gridley
12 hours ago, Guilietta said:

Do you go to the village with Humphrey or Yapa?

Yes, they go down with us.  We built a little bench that fits behind the passenger seat for him to stand on with his head out the window, feeling the breeze and smelling the cavalcade of smells.  He loves it.  Yapa is a little less adventurous and is more of a lap-sitter.

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Giulietta
2 minutes ago, Gridley said:

Yes, they go down with us.  We built a little bench that fits behind the passenger seat for him to stand on with his head out the window

 

Having them along must make the journey a little bit less stressful. Clever of you to build a bench. I could not imagine constructing much of anything - even with good instructions and all the parts and tools included. ;)

 

One of my previous dogs had a dog seat, which I put in the backseat, strapped him in, and he loved it.

 

 

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MissyE

Gridley good to see you've been having better days, you deserve it.

Missy.

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Gridley
1 hour ago, MissyE said:

better days,

Thanks, MissyE.  I appellate your checkin in on me.

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sunnysideup69
On 11/27/2019 at 7:08 PM, Gridley said:

@sunnysideup69 Thanks for dropping by. I'm having a pretty good day.  Wednesday is one of the two days a week I go into the village, which is a little bit of a stressor but I did okay.  I hope you're doing well.

I'm glad you did okay! Yes, I'm okay, still the ups and downs but I think they are now either more tolerable because the intensity is less OR I'm just getting used to navigating them. Probably a bit of both :) I'm glad to read of your good day.

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Erell

Also glad To know you're doing good Gridley, and thank you for your always supportive presence on SA.

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Sassenach

Hi Gridley.

 

Glad you are OK.

Down to 1.1mgs, great achievement.

Still looking for my next dog.

I hope it warmer and drier in Ecuador than here, winter has really arrived.

 

Sass

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Giulietta
1 hour ago, Sassenach said:

Down to 1.1mgs, great achievement.

 

It is!

 

And thank you for your continued support @Gridley on my situation given your own challenges with your decrease.

 

1 hour ago, Sassenach said:

winter has really arrived

 

Has it ever. 15" of snow in 2 days.

 

Keep us posted with your new dog.

 

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Gridley
1 hour ago, Sassenach said:

Down to 1.1mgs, great achievement.

Still looking for my next dog.

I hope it warmer and drier in Ecuador than here, winter has really arrived.

Thanks, Sass.  I'm going slowly down this low.  I'd love to get down to 0.05 before jumping to zero if possible.

 

Our two callejeros (streets dogs) Humphrey (Pekinese mix) and Yapa (corgi mix) are a big comfort.  Back in the U.S. we were cairn terrier people.

They can be a handful. 

 

No snow in Ecuador except on top the of the highest mountains.  We live in the Andes at 6,000 feet, and the combination of the altitude and the Equatorial latitude gives us pretty much perpetual spring.  Everything, including weeds, grows like crazy.  This is the rainy season, some rain almost every day but not all day.

2 hours ago, Erell said:

Also glad To know you're doing good Gridley, and thank you for your always supportive presence on SA.

Thanks, Erell.  You are a very positive presence on this site.

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Gridley
12 minutes ago, Guilietta said:

 

And thank you for your continued support @Gridley on my situation given your own challenges with your decrease.

Always happy to, G.

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Giulietta
On 12/7/2019 at 1:15 PM, Gridley said:

I'm going slowly down this low.  I'd love to get down to 0.05 before jumping to zero if possible.

 

Hi there. Thought I would check in on you. ;) I re-read your notes. Are you decreasing by 10% a month? If so - maybe you could be off by 12/2020?

 

Pouring rain here - on top of all the snow. My little one has been out in his yellow slicker (complete with attached hood) and me tromping around in my slicker (with hood) holding an umbrella over him.

 

 

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Gridley
13 hours ago, Guilietta said:

Are you decreasing by 10% a month?

 

Until a few months ago I was doing the Brassmonkey slide--2 1/2% of current dose every week for four weeks with a two week hold.  But due to the limitations of the Gemini scale (the minimum I could drop was 1 mg pill weight per week) and the high (10-to-1) ratio of pill weight to active ingredient in my brand of Lexapro, I was exceeding 10% per month--and feeling it.

 

So I switched to a variation--I drop 5% per week, followed by a one week hold, etc.  So, yes, I'm now dropping 10% per month.  I haven't done the calculations, but Dec. 2020 sounds right.  I will be very glad.

 

I'll also be glad to get started on my Ativan taper.  I read the information in your posts about Ativan losing its potency and have found this to be true.  I have an odd situation here in Ecuador.  From time to time without apparent reason Ativan becomes unavailable anywhere.  I've stocked up as best I can given the expiration limit.  I just have to hope it continues to be available throughout the time of my taper, which I guess will be around 2 years.  That's why I'm tapering Ativan next rather than the Imipramine, which at 25mg will be a long taper (plus the Ativan-dementia issue you mentioned, though Imipramine also is implicated in dementia).  As we say here so often, the gift that keeps on giving.

Edited by Gridley

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Giulietta
23 hours ago, Gridley said:

drop 5% per week, followed by a one week hold, etc.  So, yes, I'm now dropping 10% per month

 

Are you feeling OK - not 'too many' WD symptoms?

 

23 hours ago, Gridley said:

I've stocked up as best I can given the expiration limit.  I just have to hope it continues to be available throughout the time of my taper, which I guess will be around 2 years

 

Could you store it with the packets that absorb moisture? I don't know what they are called. I think that may help prolong their efficacy.  It is remarkable to me that it will take 2 years to wean off 1.875 mg of a drug. Is this 5% a month? I forget if you can 'stockpile' in Ecuador.

 

I am on 2 mg clonazepam and I started doing the math and got discouraged. I am thinking to wait 6 months after being off my .2 mg and WD disappear (or mostly ?)

 

23 hours ago, Gridley said:

(plus the Ativan-dementia issue you mentioned, though Imipramine also is implicated in dementia

 

I think that most of these CNS agents may affect dementia. That being said - the #1 link is supposed to exercising.I can send some links if you want.

 

My 'psych' suggested I work with a neuro who is also i nvolved with alzheimer's research.  I have always wondered about this. Although my previous neuro denied this - I queston it - based on meds and the disease.

 

 

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