Jump to content

Central Pain Syndrome and Neuro-plasticity Rehab


FeralUrban
 Share

Recommended Posts

Do you know a professional Neuroplasticity socialist for chronic pain???

I saw my neurologist at MGH on Thursday, she and her colleague have diagnosed my with both Sensory Peripheral Neuropathy and Central Pain Syndrome.

 

I knew I had peripheral neuropathy, and last Spring came to understand it was being caused by venlafaxine and chronic moderate serotonin toxicity and also possibly the long term consequences of having Lyme disease. It has continued to spread, and I now have this pain in about 75% of my body. 

 

Central Pain Syndrome, apparently has been set in motion by either the toxicity or by the withdrawal, or for unknown reasons. From what I have found out about it, asking the docs, reading online, it is a damage to the brain that causes pain, hypersensitivity to arise out of the brain misperceiving sensation and creating pain signals. It appears that it is generally considered life-long and progressive.

 

I get pain from almost anything -- a ride in a car when the car hits potholes. An emotional experience. Stress. Activity. Anything that is stimulating basically. The pain accelerates over the course of the day and can become extremely intense. I've had pain all my life, and never in my imagination could conjure anything this bad, with the exception of pain from burns - which is definitely worse than this.

 

The pharmaceutical treatments (except for ketamine) are all off the table, and basically only "control" and "minimize" the pain, but at my point in drug sensitization actually make the pain much worse.

 

This is my price for taking venlafaxine for 10 years, and AD's for a total of 25 years. 

 

Aside from the increased pain from the exertion of going to the doctor's visit, and the exhaustion, I am very depressed today and the entire thing has triggered increased autonomic dysregulation (withdrawal) of professed sweating, irritability, rage. Appetite ON. Appetite OFF. Sleeping more than being awake. Temperature up. Yet if I'm too hot and sweaty, the allodynia (pain from air movement) is still in play and perhaps even worse and I have to wrap my body in blankets to avoid searing pain.

 

*****My primary need is to find a professional who is trained in neuroplasticity treatment of Central Pain Syndrome, a rare disorder. 

 

The closer to Providence the better. They need to accept Medicare or barter, or maybe they want to treat me as a research project!  Please PM me if you know of someone who does this work.

2002 to 2016 Venlafaxine ER 225mg.  2013 TMS treatments triggered nerve pain in face, arm, back.  2016 TMS round ending Feb 1 Central Nerve Pain and and sub-acute serotonin toxicity compounded by Imitrex.  April-June tapered over 3 months from 225 to 0. Reinstated 6/20/16 21.5 nonER 2x day. 7/7/16-37.5mg; 7/17/16-36.6; 7/22/16-33.75; 8/22/16 32.6mg, 9/11/16-28.9mg, 9/25/16-25mg, 12/3/16-19.4mg, 12/18/16-18.5 holding.  OTHER DAILY PHARMACEUTICALS:   *Oxcarbazepine 150 mg 2x/day since mid 2015, *Naproxen 220mg 3x/day as an antidepressant and for pain since 2012, *Levothyrozine 75mcg since 2008 (hypothyroid), *Levothyronine 5 mpg 2x/day since 2012 (hypothyroid) *montelukast SOD 10 mg for asthma since 2014, Advair 250/50 2x daily, [DX 11/16 Felodopine 5mg since 2006,DX combivent 8/1/16] *MEDICAL MARIJUANA for neuropathic pain:CBD oil 25 mg 3-4 x day, THC tincture a few drops: 1/4 tsp 0-3x/day, vaporize CBD for breakthrough pain, CBD concentrate for severe pain.  PRN MEDS *Valium 5 mg PRN up to 4/day for muscle spasms, usually 1-2 x/ day. *Low dose Ketamine nasal spray for severe pain, and also finding 1 dose calms bad WD quickly. HERBAL TINCTURES: burdock, lobelia, turmeric, white willow. CURRENT SUPPLEMENTS:  *Methylated B vitamins, *Vitamin D 5000 iu, Alpha Lipoid Acid, Neti pot. [DX 6/13/16 promethazine suppository + 2 OTC Benadryl for severe pain N Acetyl Cytine for asthma1992-2002, over 20 different psych meds. 2012-2016 Eliminated 7 meds 1 at a time DX Plaquenil DX Spironolactone DX Lunesta, DX Ativan,  + others

Link to comment
Share on other sites

Anyone? 

Central Pain Syndrome?

 

Neuroplasticity Rehabilitation?

2002 to 2016 Venlafaxine ER 225mg.  2013 TMS treatments triggered nerve pain in face, arm, back.  2016 TMS round ending Feb 1 Central Nerve Pain and and sub-acute serotonin toxicity compounded by Imitrex.  April-June tapered over 3 months from 225 to 0. Reinstated 6/20/16 21.5 nonER 2x day. 7/7/16-37.5mg; 7/17/16-36.6; 7/22/16-33.75; 8/22/16 32.6mg, 9/11/16-28.9mg, 9/25/16-25mg, 12/3/16-19.4mg, 12/18/16-18.5 holding.  OTHER DAILY PHARMACEUTICALS:   *Oxcarbazepine 150 mg 2x/day since mid 2015, *Naproxen 220mg 3x/day as an antidepressant and for pain since 2012, *Levothyrozine 75mcg since 2008 (hypothyroid), *Levothyronine 5 mpg 2x/day since 2012 (hypothyroid) *montelukast SOD 10 mg for asthma since 2014, Advair 250/50 2x daily, [DX 11/16 Felodopine 5mg since 2006,DX combivent 8/1/16] *MEDICAL MARIJUANA for neuropathic pain:CBD oil 25 mg 3-4 x day, THC tincture a few drops: 1/4 tsp 0-3x/day, vaporize CBD for breakthrough pain, CBD concentrate for severe pain.  PRN MEDS *Valium 5 mg PRN up to 4/day for muscle spasms, usually 1-2 x/ day. *Low dose Ketamine nasal spray for severe pain, and also finding 1 dose calms bad WD quickly. HERBAL TINCTURES: burdock, lobelia, turmeric, white willow. CURRENT SUPPLEMENTS:  *Methylated B vitamins, *Vitamin D 5000 iu, Alpha Lipoid Acid, Neti pot. [DX 6/13/16 promethazine suppository + 2 OTC Benadryl for severe pain N Acetyl Cytine for asthma1992-2002, over 20 different psych meds. 2012-2016 Eliminated 7 meds 1 at a time DX Plaquenil DX Spironolactone DX Lunesta, DX Ativan,  + others

Link to comment
Share on other sites

Thought I'd share this very interesting article. Not sure that it will help you find anyone, but a good read nonetheless.

 

http://www.macleans.ca/society/health/how-your-brain-heals-itself/

Celexa 10 mg ( approx 5 years), reduced to 5mg (approx 10 years). Prescribed for anxiety and panic. Started tapering July 2015-2.5 mg for a month, then 2.5 every other day. Kept tapering until October when I took my last crumb.  Almost 4 years drug free and WD symptoms are evolving constantly. Some improved, some new. 

Link to comment
Share on other sites

  • 2 weeks later...

Thanks, this should be helpful. I'll try to get the book as an audio book. The Brain’s Way of Healing

2002 to 2016 Venlafaxine ER 225mg.  2013 TMS treatments triggered nerve pain in face, arm, back.  2016 TMS round ending Feb 1 Central Nerve Pain and and sub-acute serotonin toxicity compounded by Imitrex.  April-June tapered over 3 months from 225 to 0. Reinstated 6/20/16 21.5 nonER 2x day. 7/7/16-37.5mg; 7/17/16-36.6; 7/22/16-33.75; 8/22/16 32.6mg, 9/11/16-28.9mg, 9/25/16-25mg, 12/3/16-19.4mg, 12/18/16-18.5 holding.  OTHER DAILY PHARMACEUTICALS:   *Oxcarbazepine 150 mg 2x/day since mid 2015, *Naproxen 220mg 3x/day as an antidepressant and for pain since 2012, *Levothyrozine 75mcg since 2008 (hypothyroid), *Levothyronine 5 mpg 2x/day since 2012 (hypothyroid) *montelukast SOD 10 mg for asthma since 2014, Advair 250/50 2x daily, [DX 11/16 Felodopine 5mg since 2006,DX combivent 8/1/16] *MEDICAL MARIJUANA for neuropathic pain:CBD oil 25 mg 3-4 x day, THC tincture a few drops: 1/4 tsp 0-3x/day, vaporize CBD for breakthrough pain, CBD concentrate for severe pain.  PRN MEDS *Valium 5 mg PRN up to 4/day for muscle spasms, usually 1-2 x/ day. *Low dose Ketamine nasal spray for severe pain, and also finding 1 dose calms bad WD quickly. HERBAL TINCTURES: burdock, lobelia, turmeric, white willow. CURRENT SUPPLEMENTS:  *Methylated B vitamins, *Vitamin D 5000 iu, Alpha Lipoid Acid, Neti pot. [DX 6/13/16 promethazine suppository + 2 OTC Benadryl for severe pain N Acetyl Cytine for asthma1992-2002, over 20 different psych meds. 2012-2016 Eliminated 7 meds 1 at a time DX Plaquenil DX Spironolactone DX Lunesta, DX Ativan,  + others

Link to comment
Share on other sites

 Share

×
×
  • Create New...

Important Information

Terms of Use Privacy Policy