Jump to content

bheb: akathisia without dose change


bheb

Recommended Posts

Struggling with aka but also with emotional regulation or something? I'm wondering if this also caused by being on so many antibiotics.

 

I feel a lot of undirected anxiety and disgruntlement. I have OCD and am used to some level of anxiety. But this is weird. Even between distressing thoughts I feel the need to seek out/look for distress? To almost fill in missing content? Just a weird high alert feeling where I feel very upset for no reason. For lack of a better term, something "hormonal" seeming. 

 

This is quite horrid to those around me. Makes me want to isolate a lot because I don't want my misery infecting others.

Aug-Dec 2015 Prozac 20mg / Dec 2015-Feb 2016 Prozac 15mg / Feb 2016-May2016 Prozac 20mg

May 2016-June 2016 15mg

June 2016-August 2016 10mg

October 2016-January 2017 15mg, alternating agitation/akathisia sets in --> cold turkey

January 2017 Clonazepam .5mg 

February 2017 Clonazepam 1mg (for a week) then .5mg morning and .25mg evening for about a month. Came down to .25mg morning and evening. 

May 1, 2017 Clonazepam .25mg morning and .125mg evening. // May 20, 2017 Clonazepam .25mg morning and .0625 evening (.3125 total).

early June .28125 // early mid june .25mg // mid june .21875 // late june .1875 // early july .15625 // early mid july .125 

mid july .09375mg // late july .0625 //early August 2017 down to .03125mg once a day, hopped off in mid August

reinstated at .0625mg late August // Oct 16 - updose to .07mg and switch to oral Rosemont solution

Nov 17 2017 reinstate Prozac .5mg // Nov 21 2017 prozac 1.6mg // Dec 18 2017  3mg prozac / fast taper off the reinstatement -- probably completely off early Oct 2018

June 2019 begin tapering off .07mg Clonazepam, Finish taper December 2019

Link to post
  • Replies 242
  • Created
  • Last Reply

Top Posters In This Topic

  • bheb

    137

  • wantrelief

    21

  • Carmie

    13

  • Rosetta

    10

Top Posters In This Topic

Popular Posts

So I'm back to use some of my old akathisia coping techniques. Here's one:   If it's starting to flare really really bad (to the point needing to explode/get out of skin immediately), I make

One of the things I’ve been doing is….well….doing.    Dr Michael yapko said one the the things he noticed about people who tend to get depressed is that they act on their emotions more often th

That's a good way to look at it. I've been working through Schubinger's book on chronic pain and other stuff on "Mind Body Syndrome." Doesn't exactly apply to all of drug induced stuff but lots of the

The worst of the physical itchiness need-to-pace aspect is passing.

 

Still stuck with the emotional stuff and a sense of uneasiness in my chest. More of an aimless panic now. I've started to get constant bad butterflies in my stomach, fluttering, sinking feeling.

Aug-Dec 2015 Prozac 20mg / Dec 2015-Feb 2016 Prozac 15mg / Feb 2016-May2016 Prozac 20mg

May 2016-June 2016 15mg

June 2016-August 2016 10mg

October 2016-January 2017 15mg, alternating agitation/akathisia sets in --> cold turkey

January 2017 Clonazepam .5mg 

February 2017 Clonazepam 1mg (for a week) then .5mg morning and .25mg evening for about a month. Came down to .25mg morning and evening. 

May 1, 2017 Clonazepam .25mg morning and .125mg evening. // May 20, 2017 Clonazepam .25mg morning and .0625 evening (.3125 total).

early June .28125 // early mid june .25mg // mid june .21875 // late june .1875 // early july .15625 // early mid july .125 

mid july .09375mg // late july .0625 //early August 2017 down to .03125mg once a day, hopped off in mid August

reinstated at .0625mg late August // Oct 16 - updose to .07mg and switch to oral Rosemont solution

Nov 17 2017 reinstate Prozac .5mg // Nov 21 2017 prozac 1.6mg // Dec 18 2017  3mg prozac / fast taper off the reinstatement -- probably completely off early Oct 2018

June 2019 begin tapering off .07mg Clonazepam, Finish taper December 2019

Link to post
Vonnegutjunky

I get these too now- as the aka urges have passed - for years it was a panic for no reason feeling that was constant - and ever so slightly that started getting better - 

I now try to look at these waves as opportunities to deal with my bad feelings, whether they be anxiety or depression, without medication. 
I have fear all the time, doom and gloom what’s the point of life feelings often, and I don’t even want to get out of bed. It takes all I can muster to leave my house; but once I do it, I keep at it- with tears rolling down my face - with the desire the whole time to go back to bed- and for a few moments sometimes my physical activity can distract from my emotional feelings - 

I hope I’m doing the right thing, and I hope these are helpful coping mechanisms- for now they seem to at the very least keep me functioning in these waves - 

 

but what your feeling now it will get easier - it did for me - and it’s chemical- so try to distance yourself from it- IMO no amount of therapy and harping on old traumas help these - the beat we have is to cope with the feelings and remind ourselves they are the result of a damage to the cns. 
 

much love to you bheb! 

 

*Currently at 3.3mg off my 10mg pill of Paxil (they actually weigh 12.5mg) so I’m around 7.4 mg 

*No other supplements or vitamins 

*Taper schedule in the pdf 

Blank.pdf

 

https://docs.google.com/document/d/1-5vShtJtwAOGA30OxIP87steLmMdFzD29F0fzAPD564

Link to post
16 hours ago, Vonnegutjunky said:

I now try to look at these waves as opportunities to deal with my bad feelings, whether they be anxiety or depression, without medication.

 

That's a good way to look at it. I've been working through Schubinger's book on chronic pain and other stuff on "Mind Body Syndrome." Doesn't exactly apply to all of drug induced stuff but lots of the coping stuff seems apt. One of them is fully feeling everything, accepting the distress, "objectively" observing physical symptoms and repeating affirmations of safety. I'm trying to do this for mental symptoms as well.

 

16 hours ago, Vonnegutjunky said:

but what your feeling now it will get easier - it did for me - and it’s chemical- so try to distance yourself from it- IMO no amount of therapy and harping on old traumas help these

 

Yeah I mostly agree with this. Therapy not particularly helpful. And one point of departure with the mind body syndrome stuff. Not on board with this just being unfelt past traumas or current stressors. It really feels outside of reality for the most part though I try hard to direct the panic to current stressors. I can do it as there is a lot of stress (that no doubt makes things worse) but it doesn't feel like the genuine source. 

 

Just weird as this feels different than the terror I was in before. Somewhere in between my old terror and panic/emotional agitation. 

 

^But on that note, something that I found helpful from therapy (at least my OCD focused therapy) is the advice to stop trying to figure it out. Just accept that I'm in distress regardless of the source or monitoring for what's different. At the end of the day it doesn't matter and all I am doing is trying to exert impossible control over it. 

 

Thanks VJ

Aug-Dec 2015 Prozac 20mg / Dec 2015-Feb 2016 Prozac 15mg / Feb 2016-May2016 Prozac 20mg

May 2016-June 2016 15mg

June 2016-August 2016 10mg

October 2016-January 2017 15mg, alternating agitation/akathisia sets in --> cold turkey

January 2017 Clonazepam .5mg 

February 2017 Clonazepam 1mg (for a week) then .5mg morning and .25mg evening for about a month. Came down to .25mg morning and evening. 

May 1, 2017 Clonazepam .25mg morning and .125mg evening. // May 20, 2017 Clonazepam .25mg morning and .0625 evening (.3125 total).

early June .28125 // early mid june .25mg // mid june .21875 // late june .1875 // early july .15625 // early mid july .125 

mid july .09375mg // late july .0625 //early August 2017 down to .03125mg once a day, hopped off in mid August

reinstated at .0625mg late August // Oct 16 - updose to .07mg and switch to oral Rosemont solution

Nov 17 2017 reinstate Prozac .5mg // Nov 21 2017 prozac 1.6mg // Dec 18 2017  3mg prozac / fast taper off the reinstatement -- probably completely off early Oct 2018

June 2019 begin tapering off .07mg Clonazepam, Finish taper December 2019

Link to post
Alice1

@bheb @Vonnegutjunky 

Ive personally heard Dr. Healy say that one needs to remain active in both physical and mental activities in order to facilitate healing. He has seen many people heal but the ones who heal quickest are more engaged with the world. Then you have people here that say you can’t do anything too strenuous because you’ll delay healing. One of them being Charlie G. 
 

I personally experienced a huge improvement after 3.5 years by remaining active.  I am doing the same now with the medication setback. Although a lot more difficult this time, there’s just something inside me that can’t stay home doing nothing but suffering.  I do admit when I do too much of anything I buy myself a month long wave, but if I stay home and do nothing I feel like I won’t get anywhere anytime soon.  

December 2014 - Lexapro 20 mg

August 2016 Med free (6 week taper)

Link to post
Vonnegutjunky
On 5/9/2021 at 3:08 PM, bheb said:

 

That's a good way to look at it. I've been working through Schubinger's book on chronic pain and other stuff on "Mind Body Syndrome." Doesn't exactly apply to all of drug induced stuff but lots of the coping stuff seems apt. One of them is fully feeling everything, accepting the distress, "objectively" observing physical symptoms and repeating affirmations of safety. I'm trying to do this for mental symptoms as well. 
 

this acceptance therapy is good - it helped me so much- we shift our expectations of what we “should” feel like and accept where we are - I know “waiting” for me to feel better was torture as everyday I’m waiting for symptoms to subside and yet they are still there - it made me so distraught, until I accepted that this was how things are - 

 

 

Yeah I mostly agree with this. Therapy not particularly helpful. And one point of departure with the mind body syndrome stuff. Not on board with this just being unfelt past traumas or current stressors. It really feels outside of reality for the most part though I try hard to direct the panic to current stressors. I can do it as there is a lot of stress (that no doubt makes things worse) but it doesn't feel like the genuine source. 


 

Just weird as this feels different than the terror I was in before. Somewhere in between my old terror and panic/emotional agitation. 

 
 

I noticed the same thing- my feelings of terror would change - not better or worse - I would just feel “off” in different ways - i


 

^But on that note, something that I found helpful from therapy (at least my OCD focused therapy) is the advice to stop trying to figure it out. Just accept that I'm in distress regardless of the source or monitoring for what's different. At the end of the day it doesn't matter and all I am doing is trying to exert impossible control over it. 

 

sorry it took so long to reply - I get so caught up in trying to distract sometimes I just try to stay off the site - 

 

how are you today? 

On 5/9/2021 at 3:08 PM, bheb said:

Thanks VJ

 

 

*Currently at 3.3mg off my 10mg pill of Paxil (they actually weigh 12.5mg) so I’m around 7.4 mg 

*No other supplements or vitamins 

*Taper schedule in the pdf 

Blank.pdf

 

https://docs.google.com/document/d/1-5vShtJtwAOGA30OxIP87steLmMdFzD29F0fzAPD564

Link to post

Hey VJ and Alice,

 

Happy to report that I appear to be back at baseline (with maybe just increased anxiety)! There are more antibiotics in my future I fear...but good to know I can recover.

 

How are you all?

Aug-Dec 2015 Prozac 20mg / Dec 2015-Feb 2016 Prozac 15mg / Feb 2016-May2016 Prozac 20mg

May 2016-June 2016 15mg

June 2016-August 2016 10mg

October 2016-January 2017 15mg, alternating agitation/akathisia sets in --> cold turkey

January 2017 Clonazepam .5mg 

February 2017 Clonazepam 1mg (for a week) then .5mg morning and .25mg evening for about a month. Came down to .25mg morning and evening. 

May 1, 2017 Clonazepam .25mg morning and .125mg evening. // May 20, 2017 Clonazepam .25mg morning and .0625 evening (.3125 total).

early June .28125 // early mid june .25mg // mid june .21875 // late june .1875 // early july .15625 // early mid july .125 

mid july .09375mg // late july .0625 //early August 2017 down to .03125mg once a day, hopped off in mid August

reinstated at .0625mg late August // Oct 16 - updose to .07mg and switch to oral Rosemont solution

Nov 17 2017 reinstate Prozac .5mg // Nov 21 2017 prozac 1.6mg // Dec 18 2017  3mg prozac / fast taper off the reinstatement -- probably completely off early Oct 2018

June 2019 begin tapering off .07mg Clonazepam, Finish taper December 2019

Link to post
Nomansland

Hello @bheb,

 

glad to read that you have to report something positive!

 

Please take care of you and stay strong!

 

Greetings

 

-----------------------------------------------------------------------------------------------------------------------------------

 

2021 IMPORTANT WITHDRAWAL SURVEY, PLEASE PARTICIPATE: https://uelpsych.eu.qualtrics.com/jfe/form/SV_0AR9IsQ61jsiXBk

2021 IMPORTANT WITHDRAWAL SURVEY, PLEASE PARTICIPATE: https://uelpsych.eu.qualtrics.com/jfe/form/SV_0AR9IsQ61jsiXBk

 

non-native speaker of english

3-March 2020: started Mirtazapine 15mg
3-March to 6-april aprx cutting to 0 mg
6-April to 20-April -> ~ 7,5 mg,

21-April to 31-April -> 15 mg,

1-May to 13-May -> ~ 10 mg (approx),

15-May to 19-July -> 15 mg (psychosomatic clinic)
started taper with scale and file: 19-July 2020 -> 14 mg (-6,6%), 08-August -> 12 mg (-14,3 %), 27-August -> 10 mg (-16,6 %), 15-September -> 8 mg (-20 %, bad idea, heavy WD) 23-September -> 10.2 mg (+20 %, 102 mgpw), 2021: 12-April to 12-May crossover from solid pill to DIY liquid, still 10,2 mg with windows and waves...

 

Supplements: 1 x ~125 mg magnesiumbiglycinate before bed, low histamin diet

Link to post
wantrelief
3 hours ago, bheb said:

Happy to report that I appear to be back at baseline

Great to hear, bheb!  

-1/06 - 3/07 Cymbalta. Fast taper; withdrawal symptoms after 4 mos (didn't realize was WD)

-10/07: 100 mg Zoloft; 1 mg Klonopin - tapered off Klonopin
-Tried several times to slowly taper Zoloft by 10%, then 5% every 4-6 weeks; could never get below approx. 40 mg - spring 2012 experienced major WD symptoms due to stress; tried to updose but no relief, back on Klonopin 1 mg.
-Switched over 5-6 mos from Zoloft to Citalopram. Finished Zoloft 1/13; Citalopram 35 mg and 1 mg Klonopin.
-8/13: 27 mg Citalopram; 1 mg Klonopin

-11/14: 12.6 Citalopram - began to have bad withdrawal symptoms; out of desperation increased to 1.25 mg Klonopin at the beginning of December.  12/13/14 16 mg Citalopram - going to stay here to try to stabilize; stabilized on 16 mg Citalopram after 4-5 months

-7/15 - 3/16: reduced to 15 mg; ~ 2 months later w/d hit hard (probably r/t stress); 6/16 updosed to 20 mg Citalopram and trying to stabilize. Updosed to 1.5 Klonopin as well. Stabilized on 20 mg Citalopram after 4-5 months

8/17-9/17: feeling withdrawal symptoms at 20 mg Citalopram (due to stress) - slowly increased to 25 mg. No change in symptoms after 6 months (? tolerance ?)  - decided to start citalopram taper February 2018 (still on Klonopin 1.5 mg).

Supplements: fish oil; magnesium; vitamin D3; curcumin

Citalopram taper:  2/2018 - 12/2019: 25 mg - 11.03 mg I 2020: 10.89 mg - 7.9 mg

2021: 1/3/21: 7.8 mg (1.27% drop); 1/24/21: 7.7 mg (1.29%); 1/31/21: 7.6 mg (1.17%); 2/7/21: 7.5 mg (1.19%); 2/14/21: 7.4 mg (1.34%); 2/28/21: 7.3 mg (1.25%); 3/7/21: 7.2 mg (1.25%); 3/21/21: 7.1 mg (1.25%); 3/28/21: 7.0 mg (1.25%); 4/25/21 - 5/5/21 : generic clonazepam switch; 5/16/21: 6.9 mg (1.25%); 5/23/21: 6.85 mg (1.25%); 5/30/21: 6.8 mg (1.25%); 6/6/21: 6.7 mg (1.25%); 6/27/21: 6.6 mg (1.25%); 6.5 mg (1.25%); 7/11/21: 6.4 mg (1.25%); 7/18/21: 6.36 mg (1.25%); generic citalopram switch; ; 8/15/21: 6.3 mg (1.25%); 8/23/21: 6.2 mg (1.25%); 8/30/21: 6.1 mg (1.25%); 9/7/21: 6.0 mg (1.25%); 9/21/21: 5.97 mg (1.25%); 9/28/21: 5.9 mg (1.25%); 10/5/21: 5.8 mg (1.25%); 10/12/21: 5.75 mg (1.25%)

Link to post
Rosetta

Hi, b h e b,

 

(Autocorrect ruins your name every time.  So, I fixed that!)

 

I’m very happy that you are feeling better.  How wonderful.

 

Rosetta

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

Link to post

Thanks you all.

 

Back to the grind of coping with my regular symptoms, but definitely taking this as a relief!

Aug-Dec 2015 Prozac 20mg / Dec 2015-Feb 2016 Prozac 15mg / Feb 2016-May2016 Prozac 20mg

May 2016-June 2016 15mg

June 2016-August 2016 10mg

October 2016-January 2017 15mg, alternating agitation/akathisia sets in --> cold turkey

January 2017 Clonazepam .5mg 

February 2017 Clonazepam 1mg (for a week) then .5mg morning and .25mg evening for about a month. Came down to .25mg morning and evening. 

May 1, 2017 Clonazepam .25mg morning and .125mg evening. // May 20, 2017 Clonazepam .25mg morning and .0625 evening (.3125 total).

early June .28125 // early mid june .25mg // mid june .21875 // late june .1875 // early july .15625 // early mid july .125 

mid july .09375mg // late july .0625 //early August 2017 down to .03125mg once a day, hopped off in mid August

reinstated at .0625mg late August // Oct 16 - updose to .07mg and switch to oral Rosemont solution

Nov 17 2017 reinstate Prozac .5mg // Nov 21 2017 prozac 1.6mg // Dec 18 2017  3mg prozac / fast taper off the reinstatement -- probably completely off early Oct 2018

June 2019 begin tapering off .07mg Clonazepam, Finish taper December 2019

Link to post
Vonnegutjunky
On 5/18/2021 at 11:07 AM, bheb said:

Hey VJ and Alice,

 

Happy to report that I appear to be back at baseline (with maybe just increased anxiety)! There are more antibiotics in my future I fear...but good to know I can recover.

 

How are you all?

That’s awesome! 
 

I too am riding this window! Symptoms are reduced and I am practicing practicing practicing- relaxing my muscles during the anxiety and forcing myself to move during depressive feelings - 

 

reduced ear ringing and reduced double vision, and reduced brain “blips”.

 

To keeping these windows open!!! 

 

*Currently at 3.3mg off my 10mg pill of Paxil (they actually weigh 12.5mg) so I’m around 7.4 mg 

*No other supplements or vitamins 

*Taper schedule in the pdf 

Blank.pdf

 

https://docs.google.com/document/d/1-5vShtJtwAOGA30OxIP87steLmMdFzD29F0fzAPD564

Link to post
On 5/20/2021 at 8:48 PM, Vonnegutjunky said:

That’s awesome! 
 

I too am riding this window! Symptoms are reduced and I am practicing practicing practicing- relaxing my muscles during the anxiety and forcing myself to move during depressive feelings - 

 

reduced ear ringing and reduced double vision, and reduced brain “blips”.

 

To keeping these windows open!!! 

 

Really good!

 

I need to figure out some practices for these residual distressed feelings/emotional overwhelm. 

Aug-Dec 2015 Prozac 20mg / Dec 2015-Feb 2016 Prozac 15mg / Feb 2016-May2016 Prozac 20mg

May 2016-June 2016 15mg

June 2016-August 2016 10mg

October 2016-January 2017 15mg, alternating agitation/akathisia sets in --> cold turkey

January 2017 Clonazepam .5mg 

February 2017 Clonazepam 1mg (for a week) then .5mg morning and .25mg evening for about a month. Came down to .25mg morning and evening. 

May 1, 2017 Clonazepam .25mg morning and .125mg evening. // May 20, 2017 Clonazepam .25mg morning and .0625 evening (.3125 total).

early June .28125 // early mid june .25mg // mid june .21875 // late june .1875 // early july .15625 // early mid july .125 

mid july .09375mg // late july .0625 //early August 2017 down to .03125mg once a day, hopped off in mid August

reinstated at .0625mg late August // Oct 16 - updose to .07mg and switch to oral Rosemont solution

Nov 17 2017 reinstate Prozac .5mg // Nov 21 2017 prozac 1.6mg // Dec 18 2017  3mg prozac / fast taper off the reinstatement -- probably completely off early Oct 2018

June 2019 begin tapering off .07mg Clonazepam, Finish taper December 2019

Link to post
Vonnegutjunky
1 hour ago, bheb said:

 

Really good!

 

I need to figure out some practices for these residual distressed feelings/emotional overwhelm. 

One of the things I’ve been doing is….well….doing. 
 

Dr Michael yapko said one the the things he noticed about people who tend to get depressed is that they act on their emotions more often than those who are not depressed. 
 

so when I feel the dread and horror and anxiety and I want to cry and stay in bed, I say, can I physically move? Can I get out of my bed? The answer is almost always yes, regardless of how I feel, I can physically get up. So I do. I don’t want until I’m motivated anymore to do things - I do them anyway - I might be crying while I’m doing it- but I’m doing it anyway- 

 

when I force myself into goal oriented action, (I’ve been door dashing when I feel awful) it seems to help a bit - I get out, I have small achievable goals and it gets my mind refocused - i have my husband come with me because  sometimes I am literally in tears and I just want to go home - but even feeling like I did a bit helps me - 

 

I don’t do this every single time I feel the dread and doom, sometimes I will just stay in bed for the day- but I try to make sure I get up the next day and face all of the ick in my mind and heart. 
 

you can do it- you can find your goal oriented action- I know you can!! 

 

*Currently at 3.3mg off my 10mg pill of Paxil (they actually weigh 12.5mg) so I’m around 7.4 mg 

*No other supplements or vitamins 

*Taper schedule in the pdf 

Blank.pdf

 

https://docs.google.com/document/d/1-5vShtJtwAOGA30OxIP87steLmMdFzD29F0fzAPD564

Link to post
  • 3 weeks later...

^I have been trying to be goal oriented recently. Eliminating avoidance behavior. Trying not to dwell or suppress my symptoms or feelings — sitting with them, experiencing them, and then going about my business.

 

But boy am I having major trouble. Think I spoke too soon about being at baseline. The weird distressed feeling seemingly morphs with akathisia and agitation. Just all around on edge. I don’t think it helped that I had a major stress flare while on the antibiotic — probably catalyzed the agitating effects or made me more susceptible to them. 
 

Or who knows what’s causing this. Trying not to figure it out constantly. But struggling a lot to survive each second. Feel like my body might explode from constant adrenaline feeling. 

Aug-Dec 2015 Prozac 20mg / Dec 2015-Feb 2016 Prozac 15mg / Feb 2016-May2016 Prozac 20mg

May 2016-June 2016 15mg

June 2016-August 2016 10mg

October 2016-January 2017 15mg, alternating agitation/akathisia sets in --> cold turkey

January 2017 Clonazepam .5mg 

February 2017 Clonazepam 1mg (for a week) then .5mg morning and .25mg evening for about a month. Came down to .25mg morning and evening. 

May 1, 2017 Clonazepam .25mg morning and .125mg evening. // May 20, 2017 Clonazepam .25mg morning and .0625 evening (.3125 total).

early June .28125 // early mid june .25mg // mid june .21875 // late june .1875 // early july .15625 // early mid july .125 

mid july .09375mg // late july .0625 //early August 2017 down to .03125mg once a day, hopped off in mid August

reinstated at .0625mg late August // Oct 16 - updose to .07mg and switch to oral Rosemont solution

Nov 17 2017 reinstate Prozac .5mg // Nov 21 2017 prozac 1.6mg // Dec 18 2017  3mg prozac / fast taper off the reinstatement -- probably completely off early Oct 2018

June 2019 begin tapering off .07mg Clonazepam, Finish taper December 2019

Link to post
Rosetta

Oh, I’m sorry to hear that.  I hope this passes quickly.

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

Link to post
  • 1 month later...

Hey @bhebfellow OCD and akathisia sufferer here. Hows it going? I read a study the other day which was talking about how people with OCD are predisposed to akathisia and get it at much higher levels than others.

Started Lexapro 5mg Mid March 2020

 

Came off Completely September 2020

 

Hospitalised september 2021

Slowly worked up to 50mg lamictal and 60mg prozac

Severe agitation, terror/akathisia is returning

 

reduced to 20mg Prozac late September

 

 

Link to post
Vonnegutjunky
4 hours ago, mva96 said:

Hey @bhebfellow OCD and akathisia sufferer here. Hows it going? I read a study the other day which was talking about how people with OCD are predisposed to akathisia and get it at much higher levels than others.

Omg. That’s so strange. I got aka, I don’t have ocd, but I got on Paxil due to my uncontrollable intrusive thoughts causing me rumination, pure O, that was so bad I had suicidal ideation. Oddly enough before starting Paxil I had no idea I had a type of ocd, I didn’t know what it was, and I thought I had some special super smart mind that just understood things that other people don’t understand ( it’s existential obsessions related to death and eternity)  it wasn’t until I started exposing myself to my fears and thoughts that I was able to recognize that my imagination isn’t some great body of wisdom and insight but just something that anxiety had connected itself to. I’m working through it so I can at least try to be free of these meds and use my coping skills. 
 

I think new anxiety books need to be written, the ones out there are terrible, if someone had told me what was wrong w me I would never have needed the pills,I don’t think. 

 

*Currently at 3.3mg off my 10mg pill of Paxil (they actually weigh 12.5mg) so I’m around 7.4 mg 

*No other supplements or vitamins 

*Taper schedule in the pdf 

Blank.pdf

 

https://docs.google.com/document/d/1-5vShtJtwAOGA30OxIP87steLmMdFzD29F0fzAPD564

Link to post

Hey @Vonnegutjunky, my OCD mainly manifests as pure O too, but this is still the same as regular OCD just in a different manifestation. The rumination is a mental compulsion! do you do tons or reading/research around the topics of your obsessions? Those are physical compulsions, kind like the equivalent of hand washing for someone with contamination OCD. 

 

Its really strange about the OCD and aka connection. It was in this study that found an abnormally high number of the participants with OCD developed aka from both SSRI's and anti psychotics. Looking around this site it seems alot of the people with OCD have developed akathisia.

Started Lexapro 5mg Mid March 2020

 

Came off Completely September 2020

 

Hospitalised september 2021

Slowly worked up to 50mg lamictal and 60mg prozac

Severe agitation, terror/akathisia is returning

 

reduced to 20mg Prozac late September

 

 

Link to post
Vonnegutjunky
9 hours ago, mva96 said:

Hey @Vonnegutjunky, my OCD mainly manifests as pure O too, but this is still the same as regular OCD just in a different manifestation. The rumination is a mental compulsion! do you do tons or reading/research around the topics of your obsessions? Those are physical compulsions, kind like the equivalent of hand washing for someone with contamination OCD. 

 

Its really strange about the OCD and aka connection. It was in this study that found an abnormally high number of the participants with OCD developed aka from both SSRI's and anti psychotics. Looking around this site it seems alot of the people with OCD have developed akathisia.

This makes so much sense - and I am now seeing I do have ocd but when I tell other people that they think it’s the traditional hand washing stuff- 

 

This is fascinating that ocd and aka have a connection - dopamine dysregulation in some area of the brain? 
 

Yea my compulsions for the longest time we’re researching physics and quantum mechanics to try to quell the terror and fear - 

 

now I’m just exposing myself every day to my fears and letting them be- I label them and allow them and allow the fears with them- I know they are irrational thoughts and they are a product of my imagination- and I write about them everyday - I don’t ever want to feel like I did before - I want to face them head on and cope without pills - 

 

thanks for this info - I’m fascinated by the connection- 

 

*Currently at 3.3mg off my 10mg pill of Paxil (they actually weigh 12.5mg) so I’m around 7.4 mg 

*No other supplements or vitamins 

*Taper schedule in the pdf 

Blank.pdf

 

https://docs.google.com/document/d/1-5vShtJtwAOGA30OxIP87steLmMdFzD29F0fzAPD564

Link to post

@VonnegutjunkyIts crazy isn't it. You should check out an instagram account called OCDRecoveryUK, and a youtube channel called mark freeman. Both really good OCD recovery sites.

 

Yeah it must be some kind of pre existing issue with dopamine functioning in the brain. When i think about it, OCD before i even touched the drugs often manifested as a terrible feeling that something was very wrong, and akathisia is almost like that feeling but on steroids.

 

Anyway, glad it was of help to you :) 

Started Lexapro 5mg Mid March 2020

 

Came off Completely September 2020

 

Hospitalised september 2021

Slowly worked up to 50mg lamictal and 60mg prozac

Severe agitation, terror/akathisia is returning

 

reduced to 20mg Prozac late September

 

 

Link to post

I am very obsessive and with ruminating thoughts. I would say I am compulsive with having to check things that are bothering me as well. I was never diagnosed with anything other than anxiety (thanks Paroxetine)

 

I did have Akathisia from Paroxetine.

April 2007 -  Seroxat 20mg

August 2008 - Cold Turkey

August 2009 - Cold Turkey

November 2009 - Reinstatement adverse reaction akathesia/suicidal/anxiety

March 2011 - Start taper

November 2012 - Crash badly at 1.25mg akathesia/suicidal/extreme anxiety

January 2013 - 5mg Seroxat, 300mg  Lyrica

April 2017 - Successfully get off Seroxat with taper followed by 4 month of withdrawal 

January 2018 - Start with constant urinary urge/pain/burning/genital sensations 2 week after anxiety/akathesia ends

January 2019 - Started reducing Lyrica as I suspect it's causing frequent urination, tinnitus, fatigue, brain fog and mental decline.

December 2019 - Off all pysch meds

Link to post
  • 2 weeks later...
On 7/13/2021 at 6:30 PM, mva96 said:

Hey @bhebfellow OCD and akathisia sufferer here. Hows it going? I read a study the other day which was talking about how people with OCD are predisposed to akathisia and get it at much higher levels than others.


wow, my thread has been hopping unexpectedly! Hello everyone

 

Still carrying on with varying symptoms. Akathisia stronger than it had been the past year. OCD there. I think the akathisia and OCD and stress have also been burning out my brain a lot too, because if they reduce at all I have severe anhedonia.

 

Is this the study you’re talking about?

Aug-Dec 2015 Prozac 20mg / Dec 2015-Feb 2016 Prozac 15mg / Feb 2016-May2016 Prozac 20mg

May 2016-June 2016 15mg

June 2016-August 2016 10mg

October 2016-January 2017 15mg, alternating agitation/akathisia sets in --> cold turkey

January 2017 Clonazepam .5mg 

February 2017 Clonazepam 1mg (for a week) then .5mg morning and .25mg evening for about a month. Came down to .25mg morning and evening. 

May 1, 2017 Clonazepam .25mg morning and .125mg evening. // May 20, 2017 Clonazepam .25mg morning and .0625 evening (.3125 total).

early June .28125 // early mid june .25mg // mid june .21875 // late june .1875 // early july .15625 // early mid july .125 

mid july .09375mg // late july .0625 //early August 2017 down to .03125mg once a day, hopped off in mid August

reinstated at .0625mg late August // Oct 16 - updose to .07mg and switch to oral Rosemont solution

Nov 17 2017 reinstate Prozac .5mg // Nov 21 2017 prozac 1.6mg // Dec 18 2017  3mg prozac / fast taper off the reinstatement -- probably completely off early Oct 2018

June 2019 begin tapering off .07mg Clonazepam, Finish taper December 2019

Link to post
Vonnegutjunky
On 7/15/2021 at 2:20 PM, Boris said:

I am very obsessive and with ruminating thoughts. I would say I am compulsive with having to check things that are bothering me as well. I was never diagnosed with anything other than anxiety (thanks Paroxetine)

 

I did have Akathisia from Paroxetine.

I’m sorry, I did too. It’s a horrid poison. It’s far from what I would consider medication. 

 

*Currently at 3.3mg off my 10mg pill of Paxil (they actually weigh 12.5mg) so I’m around 7.4 mg 

*No other supplements or vitamins 

*Taper schedule in the pdf 

Blank.pdf

 

https://docs.google.com/document/d/1-5vShtJtwAOGA30OxIP87steLmMdFzD29F0fzAPD564

Link to post
Vonnegutjunky
On 7/23/2021 at 6:19 PM, bheb said:


wow, my thread has been hopping unexpectedly! Hello everyone

 

Still carrying on with varying symptoms. Akathisia stronger than it had been the past year. OCD there. I think the akathisia and OCD and stress have also been burning out my brain a lot too, because if they reduce at all I have severe anhedonia.

 

Is this the study you’re talking about?

If that’s the study I’m super annoyed. They say in study that antipsychotics would be less likely to cause akathisia in those with severe ocd due to the fact that those with severe ocd have lower sert concentrations…..yet again chemical imbalance theory….and and and…..if you look at any akathisia group on Facebook, you will see those who got akathisia from an Ssri also got it when their “doctors” gave them an antipsychotic to treat the akathisia. So no, taking more drugs never ever helps akathisia. It always makes it worse, I don’t know one person who ever was able to successfully take another med to cure akathisia. So frustrating. However the study is interesting to help people with ocd learn cbt techniques to cope with ocd. 

 

*Currently at 3.3mg off my 10mg pill of Paxil (they actually weigh 12.5mg) so I’m around 7.4 mg 

*No other supplements or vitamins 

*Taper schedule in the pdf 

Blank.pdf

 

https://docs.google.com/document/d/1-5vShtJtwAOGA30OxIP87steLmMdFzD29F0fzAPD564

Link to post
  • 2 weeks later...

@bhebHey yeah thats the study im talking about.

 

Sorry to hear about the anhedonia, i completely relate. It can't be good for our systems to be drenched in cortisol 24/7.

Started Lexapro 5mg Mid March 2020

 

Came off Completely September 2020

 

Hospitalised september 2021

Slowly worked up to 50mg lamictal and 60mg prozac

Severe agitation, terror/akathisia is returning

 

reduced to 20mg Prozac late September

 

 

Link to post
  • 1 month later...
JustBella

So glad to find this information. My situation is complicated but the main thing is how severe my Akathisia has become.  I

have been considering reinstating a micro dose of escitalopram.  This information is helping me to see that probably won’t help.

 

I was CTbfrom escitalopram about 2 years ago then did a 10 month taper off .5 mg lorazepam.   Many common symptoms.  I guess time is the only healer?

Mid and late 1990s various antidepressants including Prozac, Pamelor, Zoloft, Trazadone for brief periods of time  Usually one month or less with no taper.

1998 to August 2020   .5 mg lorazepam, first PRN then daily. CTed Jan 2015 RI March 2015 (6 wks): CTed October 2016 RI Nov 2016 (3 wks (October 2016). 10 month taper begin Oct 2019 finished Aug 10, 2020. 2000 to Sept 2015 periodic use Escitalopram 10 mg.  Brief periods, 3-6 months, with rapid tapers or cold turkeys.Oct 2016 Cymbalta and Remeron for a period of about 2 weeks. Stopped cold turkey.Nov 2016 to October 2017 10 mg escitalopram.  One month taper

Last 2 ½ years:

Ongoing daily .5 lorazepam originally began in 1998 PRN, then daily 2008.  March 2019 to August 2019 10 mg escitalopram; rapid taper about 3 weeks. Sept 2019 to Sept 2019 Pristiq 25mg, taken 2 weeks then a every other day taper for one week.  25 mg trazadone for one week, no taper.  Zoloft 25 mg for 5 days, no taper. October 2019 -August 2020 10 month taper from .5 lorazepam.

Currently taking Valsartan 40 mg daily and Preservision AREDS2 one capsule daily.

Link to post

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×
×
  • Create New...

Important Information

Terms of Use Privacy Policy