TryingToHoldOn Posted January 8, 2018 Author Share Posted January 8, 2018 I just want to die. There I said. I can’t take one more day of this insane mental and physical pain. I’m not in a wave, i’m In a ******* category 5 hurricane. I have lost all hope. There is no healing from this. I have permanent brain damage. Jesus, if you are a kind and loving god please don’t let me wake tomorrow. Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks. Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline. March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it. 6/16/18 - 6/26: celexa 1.25mg 6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose 6/30/18 - present: celexa 1.25mg Link to comment
nz11 Posted January 8, 2018 Share Posted January 8, 2018 Don't give up hope TTHO It will ease up and a window is just around the corner. Wishing for the storm to ease up. Can you right any complaint letters to people in the land of enchantment? Would you consider it a possibility/ nz11 Thought for the day: Lets stand up, and let’s speak out , together. G Olsen We have until the 14th. Feb 2018. URGENT REQUEST Please consider submitting for the petition on Prescribed Drug Dependence and Withdrawal currently awaiting its third consideration at the Scottish Parliament. You don't even have to be from Scotland. By clicking on the link below you can read some of the previous submissions but be warned many of them are quite harrowing. http://www.parliament.scot/GettingInvolved/Petitions/PE01651 Please tell them about your problems taking and withdrawing from antidepressants and/or benzos. Send by email to petitions@parliament.scot and quote PE01651 in the subject heading. Keep to a maximum of 3 sides of A4 and you can't name for legal reasons any doctor you have consulted. Tell them if you wish to remain anonymous. We need the numbers to help convince the committee members we are not isolated cases. You have until mid February. Thank you Recovering paxil addict None of the published articles shed light on what ssri's ... actually do or what their hazards might be. Healy 2013. This is so true, with anything you get on these drugs, dependance, tapering, withdrawal symptoms, side effects, just silent. And if there is something mentioned then their is a serious disconnect between what is said and reality! "Every time I read of a multi-person shooting, I always presume that person had just started a SSRI or had just stopped." Dr Mosher. Me too! Over two decades later, the number of antidepressant prescriptions a year is slightly more than the number of people in the Western world. Most (nine out of 10) prescriptions are for patients who faced difficulties on stopping, equating to about a tenth of the population. These patients are often advised to continue treatment because their difficulties indicate they need ongoing treatment, just as a person with diabetes needs insulin. Healy 2015 I believe the ssri era will soon stand as one of the most shameful in the history of medicine. Healy 2015 Let people help people ... in a natural, kind, non-addictive (and non-big pharma) way. J Broadley 2017 Link to comment
Littlegrandma Posted January 8, 2018 Share Posted January 8, 2018 Oh T, i am so sorry. Please don’t give up hope. This is truly hell on earth, but you will heal. Another window is about to open. I am praying you will get relief tomorrow. HUGS Lg Lex 4.3mg, 3/2/18 Ativan ,5 mg, lunesta 2 mg , toprol 25 mg Oct 16-28 2018 C/O to 19 mg V from 1.5 mg Ativan, 1.3 mg lunesta jan 22 2019- 11 mg V jan 23 - pneumonia, 2 AB’s. Hold taper july 5- 10.72 V July 6- 11 mg V- ugly bad july 11- 10.72 mg V, 4.3 lex, 25 mg toprol Link to comment
direstraits Posted January 8, 2018 Share Posted January 8, 2018 please keepholding on. I've been where you are and it DOES get better....please don't give up. praying you get relief. xx went on Prozac 1994-99,60mg.poopout ct back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs. Link to comment
Rosetta Posted January 8, 2018 Share Posted January 8, 2018 Hang in there, Trying. Everyone here is thinking of you and sending you good vibes. I know this is very hard. It's the strangest SI I've ever felt. It's not simply stronger than regular SI; it's quality is different. It's different in more than one way, but I can't find the words to describe it. Maybe it's grief and fear and exhaustion plus anger. Maybe that covers it, but there's something more I have no words to describe. Breathe . . . Remember how it feels to be elsewhere, remember how it feels to love, remember how it feels to be comforted by someone you trust. When you can't feel any good feelings simply remember how you used to feel when you felt safe. Go to that place; go to that person in your mind. You may not be able to internalize this, but imagine that you will be there -- in someone's safe arms -- again. Remember that you will be on the other side of this wave just like you passed through all the others. Imagine that over and over again. Now, do you need water? You may be dehydrated. Drink some water. Do you have a heating pad to put around your shoulders? Can you drink milk? Put milk in a mug and microwave for 45 seconds. Sit down. Drink it. Do you need to eat? Eat some protein -- a piece of lunch meat? Some cheese? Have some more water. Reheat the heating pad. Have more warm milk if you still feel bad. That's my routine --if I can manage it -- when I feel anxiety or anything worse. Please try it. Again, remember how it feels to be elsewhere, remember how it feels to love, remember how it feels to be comforted by someone you trust. Simply remember how you used to feel when you felt safe. Maybe be you can cry now? Let yourself cry if you can. Everyone here is thinking of you. Rosetta https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25 2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born) 2012-2016 - Doctors raised dose of Zoloft up to 150 mg 2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction) 2016 - Stopped Xanax Late 2016- Began (too fast) taper of Zoloft Early 2017 - Trazodone prescribed for bedtime (doseage unknown) Feb 2017 - Completed taper/stopped Trazodone Drug free since Feb 2017 2017 - Unisom otc very rarely for sleep Link to comment
Terry4949 Posted January 8, 2018 Share Posted January 8, 2018 5 hours ago, TryingToHoldOn said: I just want to die. There I said. I can’t take one more day of this insane mental and physical pain. I’m not in a wave, i’m In a ******* category 5 hurricane. I have lost all hope. There is no healing from this. I have permanent brain damage. Jesus, if you are a kind and loving god please don’t let me wake tomorrow. Ttho , I know just how you feel I am in the same boat our symptoms are so a like I like you pray that I don’t wake up tomorrow , mornings for me are always a lot worse my body feels like it is full of poison , we have to just try and survive today I am so sick so I truly no what you are feeling hang in there . 2001 to jan 2015 Effexor 150 mg jan 2015 15 mg mirtazapine 20 mg quetiapine feb 2015 quetiapine stopped feb 2015 30 mg of citalopram added feb 2015 mirtazapine increased to 30 mg july 2015 citalopram stopped sept 2015 200mg of pregabalin jan 2017 mirtazapine stopped jan 2017 20 mg fluoxetine march 2017 all meds stopped Link to comment
TryingToHoldOn Posted January 17, 2018 Author Share Posted January 17, 2018 Thank you everyone for your support. I will respond to you all individually when i’m feeling better. I hope you’re all finding a little relief. Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks. Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline. March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it. 6/16/18 - 6/26: celexa 1.25mg 6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose 6/30/18 - present: celexa 1.25mg Link to comment
Madeleine Posted January 18, 2018 Share Posted January 18, 2018 Just wanted to offer my positive thoughts. Have faith and hope. You will feel better. 200 Zoloft; 10 mg Zyprexa; 4 mg valium as of May 2021; Valium taper: July 16: 3.5 valium; July 30: 3 mg (paused valium taper); Aug. 23: 2.5 mg Zyprexa: July 26: 8.75 mg; Aug. 9: 7.5 mg; Aug. 30: 7.1 mg ------- Dec 1, 2016. 10 mg zyprexa for 1.5 month. Started taper mid-Jan. 2017. Cut 1.25 mg every 2 weeks; smaller cuts 2.5 mg down. Stopped at .6 mg. May 7, 2017: zyprexa free. Zoloft: Dec1, 2016, 200 mg. Started taper: Jun12, 2017: 197.5 mg; Jun19,:195 mg; July 2:185mg; July 9,:180 mg; July16,: 175; July 23: 170; July 30: 165; Aug6: 160; Aug13: 155; Aug. 20: 150; Aug.27: 146 mg; Sept3: 145 mg; Sept10:143 mg; Sept17:140 mg....Nov5: 122 mg...Dec3:112.5 mg; Jan14, 2018: 95 mg...Jan28: 90 mg; Feb21:80 mg; Mar11: 75 mg; May2:70 mg; May15: 68 mg; May28: 65 mg; Jun9: 62 mg;Jun25: 60 mg:July22: 55 mg; Aug25: 45 mg. Aug28: 50 mg...Oct 28: 38 mg; Dec.4: 30 mg; Jan8,2019: 25mg; Feb6: 23.5 mg; Apr1:17.5mg; May1:1 mg; May 5: 18; May 18:15mg; June 16:12.5mg; Sept 10:11 mg; Sept.16:10 mg; Oct. 1: 9mg; Nov. 27: 8mg; Dec.5: 7mg; Jan.1,2020, 6 mg; Feb1: 5 mg; May 1: 2.5 mg; Jn 1: 2 mg; Jy 1: 1.5 mg Link to comment
Littlegrandma Posted January 18, 2018 Share Posted January 18, 2018 T, sending up more prayers for you. Keep hanging on. You will feel better soon!! Hugs Lg Lex 4.3mg, 3/2/18 Ativan ,5 mg, lunesta 2 mg , toprol 25 mg Oct 16-28 2018 C/O to 19 mg V from 1.5 mg Ativan, 1.3 mg lunesta jan 22 2019- 11 mg V jan 23 - pneumonia, 2 AB’s. Hold taper july 5- 10.72 V July 6- 11 mg V- ugly bad july 11- 10.72 mg V, 4.3 lex, 25 mg toprol Link to comment
Rosetta Posted January 18, 2018 Share Posted January 18, 2018 Hang on, Trying. We are sending you good thoughts. https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25 2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born) 2012-2016 - Doctors raised dose of Zoloft up to 150 mg 2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction) 2016 - Stopped Xanax Late 2016- Began (too fast) taper of Zoloft Early 2017 - Trazodone prescribed for bedtime (doseage unknown) Feb 2017 - Completed taper/stopped Trazodone Drug free since Feb 2017 2017 - Unisom otc very rarely for sleep Link to comment
Survivor1 Posted January 21, 2018 Share Posted January 21, 2018 Hello Trying, I know you are going through a difficult time. Please hang in there, it will get better. PAST Gabapentin: about 6 months in 2015, 300-900 mg, cold turkeyed Sept 2015 (at same time dc'd Klonopin) Klonopin: June 2014- Sept 2015; 1mg tapered over 6 mths, dc'd at 0.25mg, withdrawal hellish (perhaps because of concurrent dc of gabapentin) Mirtazepine: Jumped off at 2.4 mg. (stable in 8 months). Seroquel: June 14 - July 24, 2016, 25 mg alternate nights; smaller doses for shorter periods. Total use about 3 months Lamictal: March 19, 2018 - 1 mg; March 23 - 1.25 mg; April 6 - 2mg. Discontinued at 2 mgJuly 1, 2018 due to Steven Johnson Syndrome. CURRENT Supplements: Vit D, turmeric Naturethroid: 65 mcg for hypothyroidism Trazodone: Oct 2015 - June 2016; 75 mg tapered over 2 mths, intense w/d after 3 weeks. Reinstatement: 07/25/16 - 25 mg; updosed 08/03/16 - 50 mg; 10/01/16- 62mg; 03/24/17 dropped to 50 mg (stable in 2.5 months) Current psych meds: Trazodone 50 mg Link to comment
TryingToHoldOn Posted January 29, 2018 Author Share Posted January 29, 2018 I keep developing new scary and painful symptoms at 10 months out. Does anyone else have burning brain? It feels like acid has been poured into my head. Also, my face feels like it’s burning, numb and so tight all at once. Has anyone else had this and did it go away? I am barely able to function and am in a much worse state than even 2 months ago. This is utter bullsh*t. I wish I could pour a bottle of these poisons down the throat of the NP and watch suffer in utter torment. Then I would tell her it’s just anxiety. Stupid b*tch. Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks. Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline. March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it. 6/16/18 - 6/26: celexa 1.25mg 6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose 6/30/18 - present: celexa 1.25mg Link to comment
Littlegrandma Posted January 29, 2018 Share Posted January 29, 2018 Hey T sorry you’re still suffering. Yes. I get the burning face. Also feels numb. I have it today but to a milder degree. Usually happens when I get the pins and needles all over my body. I told my husband the other night it felt like somebody was holding a branding iron to my face. I also get the burning on my upper inner leg. I don’t think it’s uncommon. There’s at least one other person I talk to that gets it. And I’ve read on the forum of others that have such bad burning, they use ice. Its crazy what new symptoms pop up all the time. Some people get a couple symptoms. Some of us are lucky to get all of them. Hope you feel better soon. I’ve been thinking about you. xx Lg Lex 4.3mg, 3/2/18 Ativan ,5 mg, lunesta 2 mg , toprol 25 mg Oct 16-28 2018 C/O to 19 mg V from 1.5 mg Ativan, 1.3 mg lunesta jan 22 2019- 11 mg V jan 23 - pneumonia, 2 AB’s. Hold taper july 5- 10.72 V July 6- 11 mg V- ugly bad july 11- 10.72 mg V, 4.3 lex, 25 mg toprol Link to comment
Kristine Posted January 29, 2018 Share Posted January 29, 2018 Hey T, just thought I'd pipe in with LG and reassure you you are not alone with these symptoms. I get burning skin but mainly my arms and legs. I've also had burning soles of my feet. Felt like they had been dipped in acid. I resorted to strapping on ice packs. The latter only happened over a two day but continuous period...it was approximately 10 days after a 5mg drop of dexamphetamine (prior to SA education). Hope this eases soon. K 🌻 Citalopram 20mg - 40mg ~ approx 2010 - October 2015 (stopped over one week) Parnate 20mg - 50mg and olazapine 5mg ~ Jan 2016 - May 2016 (ceased over 2 days) Lithium 450mg-900 mg and Thyroxin ~May 2016 - May 2017 Diazepam various doses (including PRN) ~ 2015 - 2017 Oxazepam various doses (including PRN) ~ May 2016 - June 2016 Lurasidone 20mg ~Mid May 2016 - Mid June 2016 Vortioxetine 10mg - 20mg ~ 6th June 2016 - 20th July 2016 (abruptly ceased) Amitriptyline 200mg ~July 2016 - September 2016 (ceased over 1 week) Nortriptyline (dose ?) ~October 2016 ~ November 2016 (abruptly ceased) Seroquel XR 100mg - 300mg ~ May 2016 - August 2017 (ceased over 3 weeks) Escitalopram 10mg - 30mg ~ August 2016 - March 2017 (ceased over 2 weeks) Bupropion 300mg ~ December 2016 - May 2017 (ceased over 1 week) Clonazepam 1.5mg daily ~ July 2016 (started tapering May 2017 - September 2017 currently on 0.375mg..ie 0.125mg TDS) 27th May 2018 5% 0.357mg (possible paradoxical reaction - see benzo thread) 28th June 5% 0.337mg, 28th July 10% 0.303mg, 12th September10% 0.272mg, 18th September reinstated 10% due to intolerable WD 0.303mg, 1st October-11th Oct 10% (1% reduction over 10 days) 0.272mg, 22nd October clonazepam ceased crossed over 10mg diazepam Dexamphatamine 20mg ~ December 2016 (started tapering October 2017 - tapered 1.25mg 4th Dec 2017, 1.25mg 19th Dec 2017 6.25mg, Speed up decrease due to major interaction between Dex and fluoxetine- ref to thread 10% 17th Feb 2018 5.63mg, 10% 21st Feb 2018 5.1mg, 10% 26th Feb 2018 4.5mg 10% 28th Feb 4.1mg, 10% 1st March 3.7mg, 10% 5th March 3.3mg, 10% 8th March 3mg, 10% 10th March 2.7mg, 10% 12th March 2.4mg, 10% 14th March 2.16mg, 10% 16th March 1.94mg, 10% 18th March 1.74mg, 10% 20th March 1.57mg, 10% 21st March 1.41mg, 10% 22nd March 1.26mg, 10% 23rd March 1.13mg, 10% 24th March 1.01mg, 10% 25th March 0.9mg, 10% 27th March 0.81mg, 10% 29th March 0.73mg, 10% 31st March 0.66mg, 10% 2nd April 0.59mg , 10% 4th April 0.53mg, 10% 6th April 0.47mg, 10% 8th April 0.42mg, 10%10th April 0.37mg, 11th April 0.2mg, 12th April 0.1mg (last dose) OFF! Fluoxetine 40mg ~December 2016 - 31 Jan 2018 reduced to 20mg (probable serotonin toxicity) 10th March 2020 10mg (1:1 ratio), 7th April 9mg, 1st May 8.5mg, 15th May 8.0mg, 27th May 7.5mg, 8th Sept 7.2mg, 2nd Oct 7mg, 19th Oct 6.8mg, 28th Oct 6.6mg, 5th Nov 6.4mg, 26th Nov 6mg, 2nd April 2021 5.9mg, 9th April 5.8mg, 19th April 5.75mg, 22nd April 5.7mg, 26th April 5.65mg,28th April 5.6mg, 1st May 5.5mg, 4th May 5.45mg, 7th May 5.4mg, 10th May 5.35mg, 12th May 5.3mg, 15th May 5.25mg, 18th May 5.2mg, 20th May 5.15mg, 22nd May 5mg, 10th July 4.5mg, 9th Aug 4.48mg (switched from syringe to pipette method), 12th Aug 4.46mg, 14th Aug 4.4mg, 18th Aug 4.38mg, 19th Aug 4.36mg, 20th Aug 4.34, 21st 4.32mg, 22nd 4.3mg, 23rd Aug 4mg (hold), (micro-taper) 12th Oct 2021 3.98mg, 14th Oct 3.96mg, 15th Oct 3.94mg, 16th Oct 3.92mg, 17th Oct 3.9mg, 18th Oct 3.88mg, 19th Oct 3.86mg, 21st Oct 3.84mg, 22nd Oct 3.82mg, 23rd Oct 3.8mg, 24th Oct 3.78mg, 25th Oct 3.76mg, 26th Oct 3.74mg, 27th Oct 3.72mg, (WD reached intolerable level, reinstated 0.06mg) 28th Oct 3.8mg, 7th March 2022 3.7mg, 21st March 3.6mg, 4th April 3.5mg, 18th April 3.4mg, 2nd May 3.3mg, 16th May 3.2mg, 20th June 3.1mg, 4th July 3mg, 18th July 2.9mg, 12th September 2.7mg, 18th October 2.5mg, 14th Nov 2.3mg, 12th December 2.1mg, 18th January 2023 1.9mg, 9th July 2023 1.88mg, 16th July 1.86mg, 23rd July 1.84mg, 30th July 1.82mg, 6th Aug 1.80mg, 10th Sept 1.7mg, 12th Oct 1.68mg, 23rd Oct 1.66mg, 30th Oct 1.64mg, 6th Nov 1.62mg, 13th Nov 1.60mg, (2:1 ratio) 30th Dec 1.597mg, 7th Jan 2024 1.595mg, 8th 1.592mg, 10th 1.589, 11th 1.587, 12th 1.585, 13th 1.583, 14th 1.58 cont… 5th Feb 1.56mg, 11th Feb 1.55mg, 19th Feb 1.54mg, 26th Feb 1.53mg, 4th March 1.52mg, 11th March 1.51mg, 25th March 1.50mg, 1st April 1.49mg, 8th April 1.48mg, 15th April 1.47mg, 22nd April 1.46mg, 29th April 1.45mg Diazepam 10mg ~ 22nd Oct 2018, 10th November 8mg, 14th Nov 7mg, 8th December 6mg, 30th December 5mg (Nocte), 7th March 2019 4.5mg,14th March 4mg, 5th April 3.5mg, 9th April 3mg, 18th April 2.5mg,1st May 2mg, 17th May 1.75mg, 25th May 1.6mg, 4th June 1.59mg, 5th June 1.58mg, 6th June 1.57mg, 7th June 1.56mg, 8th June 1.55mg, 22nd June 1.4mg, 4th July 1.2mg, 16th July 1mg, 30th July 0.8mg, 13th Aug 0.6mg, 28th Aug 0.4mg, 10th Sept 0.2mg, 23rd Sept Off! SR Circadin 2mg (melatonin) 25th May - 20th June Zolpidem 10mg 25th May (7 tablets) Supplements: Magnesium glycinate (soluble - sip throughout the day) "Whenever you feel yourself doubting how far you can go, just remember how far you have come. Remember everything you have faced, all the battles you have won, and all the fears you have overcome" Unknown Link to comment
Littlegrandma Posted January 29, 2018 Share Posted January 29, 2018 T i just reread. Burning brain. Yes. numb, burning, actually feels hot. Acid is good analogy. And burning pressure in ears. Just wanted you to know you’re not alone. It will pass. Not soon enough. But it will. Lg Lex 4.3mg, 3/2/18 Ativan ,5 mg, lunesta 2 mg , toprol 25 mg Oct 16-28 2018 C/O to 19 mg V from 1.5 mg Ativan, 1.3 mg lunesta jan 22 2019- 11 mg V jan 23 - pneumonia, 2 AB’s. Hold taper july 5- 10.72 V July 6- 11 mg V- ugly bad july 11- 10.72 mg V, 4.3 lex, 25 mg toprol Link to comment
LexAnger Posted January 29, 2018 Share Posted January 29, 2018 2 hours ago, TryingToHoldOn said: I keep developing new scary and painful symptoms at 10 months out. Does anyone else have burning brain? It feels like acid has been poured into my head. Also, my face feels like it’s burning, numb and so tight all at once. Has anyone else had this and did it go away? I am barely able to function and am in a much worse state than even 2 months ago. This is utter bullsh*t. I wish I could pour a bottle of these poisons down the throat of the NP and watch suffer in utter torment. Then I would tell her it’s just anxiety. Stupid b*tch. Hi Trying, i have been following you for a while and know how you feel and your struggling as I am going through very similar situation for a few years. i have the severe burning ( pins and needles when it's bad) allover my head, face, upper body all these years day in and out during taper and still do now I'm 4 months off. My head feels like exploding and actually feels like a rock. My numb is so bad making my entire left brain and body paralyzed. I know I have been kindled by updosing lexapro multiple times so I'm not even sure if these symptoms are from Wd or drug reaction. is the burning brain a new symptom for you just started recently? I read your earlier updates and saw it was there too.is it different from before? Also have you ever had it before you stopped those drugs? i keep reading the success stories especially when I feel very desparate so to keep the faith that we eventually will heal even its so hard to believe after years of journey. From many others experience, your turning point can be any day and hour! I remember Baylissa said new symptoms is a sign of healing. hope you get a nice long break soon! lex Drug free Sep. 23 2017 2009 Mar.: lexapro 10mg for headache for 2 weeks. 2009-2012: on and off 1/4 to 1/3 of 10mg 2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain 2013 Jan-Mar: 10 mg generic. severe jaw and head pain; 2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain 2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg, 2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on 2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks. 2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR 2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg 2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg, Link to comment
Survivor1 Posted January 29, 2018 Share Posted January 29, 2018 Oh Trying, my heart breaks for you. I do not know what to suggest; are you at least sleeping somewhat? These drugs have caused so much suffering, but the professionals don't seem to get it. I applaud you for not taking any meds for WD symptoms (like for sleep for instance). I am not at you level of suffering, but I do understand how hopeless it can feel at times. I seem to have developed serotonin syndrome and now have to figure out how to discontinue my drug as safely but as quickly as possible. Please hang in there, many are rooting for you. PAST Gabapentin: about 6 months in 2015, 300-900 mg, cold turkeyed Sept 2015 (at same time dc'd Klonopin) Klonopin: June 2014- Sept 2015; 1mg tapered over 6 mths, dc'd at 0.25mg, withdrawal hellish (perhaps because of concurrent dc of gabapentin) Mirtazepine: Jumped off at 2.4 mg. (stable in 8 months). Seroquel: June 14 - July 24, 2016, 25 mg alternate nights; smaller doses for shorter periods. Total use about 3 months Lamictal: March 19, 2018 - 1 mg; March 23 - 1.25 mg; April 6 - 2mg. Discontinued at 2 mgJuly 1, 2018 due to Steven Johnson Syndrome. CURRENT Supplements: Vit D, turmeric Naturethroid: 65 mcg for hypothyroidism Trazodone: Oct 2015 - June 2016; 75 mg tapered over 2 mths, intense w/d after 3 weeks. Reinstatement: 07/25/16 - 25 mg; updosed 08/03/16 - 50 mg; 10/01/16- 62mg; 03/24/17 dropped to 50 mg (stable in 2.5 months) Current psych meds: Trazodone 50 mg Link to comment
Rosetta Posted January 30, 2018 Share Posted January 30, 2018 Hi Trying, Thinking of you. I'm so sad that you have this scary burning brain symptom. Rosetta https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25 2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born) 2012-2016 - Doctors raised dose of Zoloft up to 150 mg 2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction) 2016 - Stopped Xanax Late 2016- Began (too fast) taper of Zoloft Early 2017 - Trazodone prescribed for bedtime (doseage unknown) Feb 2017 - Completed taper/stopped Trazodone Drug free since Feb 2017 2017 - Unisom otc very rarely for sleep Link to comment
Rosetta Posted February 6, 2018 Share Posted February 6, 2018 Trying, Hi. I don't want you to feel pressure to post, but I'm thinking of you and hoping you are getting by ok under the circumstances. Sending good thoughts your way. -- Rosetta https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25 2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born) 2012-2016 - Doctors raised dose of Zoloft up to 150 mg 2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction) 2016 - Stopped Xanax Late 2016- Began (too fast) taper of Zoloft Early 2017 - Trazodone prescribed for bedtime (doseage unknown) Feb 2017 - Completed taper/stopped Trazodone Drug free since Feb 2017 2017 - Unisom otc very rarely for sleep Link to comment
anongrl5590 Posted February 6, 2018 Share Posted February 6, 2018 Hey Trying - I just stumbled upon your thread and wanted to say hello and that I am experiencing all the same symptoms as you have (plus more unfortunately)! I CT off of Prozac and am now 16 months out. I have severe burning, squeezing brain almost everyday so I know how that must feel for you. Even right now as I type this, I have the burning brain. It's so excruciating! But it does come and go. I really hope we both see some improvements soon and make it to the next window of relief (even if it's not 100% relief). Would you say you've made improvements since the beginning months of WD? My medication -- Prozac August 2015: Started on 10mg/daySeptember 2015 to May 2016: Increased to 20mg/dayMay 2016: Abruptly stopped 20mg for 2 weeks (withdrawal symtoms arose but assumed it was worsened depression)June 2016 to August 2016: increased to 40mg (my body reacted very badly to this dose)August 2016: decreased back to 20mgSeptember 2016: tapered off 10mg this month aloneSeptember 30, 2016: last day of ProzacOctober 2016: month long windowNovember 2016-Present: WD symptoms (too many physical sxs and some mental sxs)February 5-20, 2017: Reinstated at 1-2mg // February 21, 2017: Back to no meds Link to comment
TryingToHoldOn Posted February 13, 2018 Author Share Posted February 13, 2018 On 1/7/2018 at 5:23 PM, nz11 said: Don't give up hope TTHO It will ease up and a window is just around the corner. Wishing for the storm to ease up. Can you right any complaint letters to people in the land of enchantment? Would you consider it a possibility/ nz11 Thank you, NZ. Can you share with me what your symptoms were the first two years of your WD, both mental & physical? I can’t write a complaint letter now because I can barely function and my cognitive ability is so bad. Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks. Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline. March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it. 6/16/18 - 6/26: celexa 1.25mg 6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose 6/30/18 - present: celexa 1.25mg Link to comment
TryingToHoldOn Posted February 13, 2018 Author Share Posted February 13, 2018 On 1/7/2018 at 5:29 PM, Littlegrandma said: Oh T, i am so sorry. Please don’t give up hope. This is truly hell on earth, but you will heal. Another window is about to open. I am praying you will get relief tomorrow. HUGS Lg Lg, I pray that you are seeing better days. I am getting worse with no windows. Desperate. Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks. Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline. March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it. 6/16/18 - 6/26: celexa 1.25mg 6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose 6/30/18 - present: celexa 1.25mg Link to comment
TryingToHoldOn Posted February 13, 2018 Author Share Posted February 13, 2018 On 1/7/2018 at 5:45 PM, direstraits said: please keepholding on. I've been where you are and it DOES get better....please don't give up. praying you get relief. xx DS, Thank you so much for your kind words. I am holding on, but there is absolutely no relief. I hope you are well. Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks. Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline. March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it. 6/16/18 - 6/26: celexa 1.25mg 6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose 6/30/18 - present: celexa 1.25mg Link to comment
TryingToHoldOn Posted February 13, 2018 Author Share Posted February 13, 2018 On 1/7/2018 at 8:52 PM, Rosetta said: Hang in there, Trying. Everyone here is thinking of you and sending you good vibes. I know this is very hard. It's the strangest SI I've ever felt. It's not simply stronger than regular SI; it's quality is different. It's different in more than one way, but I can't find the words to describe it. Maybe it's grief and fear and exhaustion plus anger. Maybe that covers it, but there's something more I have no words to describe. Breathe . . . Remember how it feels to be elsewhere, remember how it feels to love, remember how it feels to be comforted by someone you trust. When you can't feel any good feelings simply remember how you used to feel when you felt safe. Go to that place; go to that person in your mind. You may not be able to internalize this, but imagine that you will be there -- in someone's safe arms -- again. Remember that you will be on the other side of this wave just like you passed through all the others. Imagine that over and over again. Now, do you need water? You may be dehydrated. Drink some water. Do you have a heating pad to put around your shoulders? Can you drink milk? Put milk in a mug and microwave for 45 seconds. Sit down. Drink it. Do you need to eat? Eat some protein -- a piece of lunch meat? Some cheese? Have some more water. Reheat the heating pad. Have more warm milk if you still feel bad. That's my routine --if I can manage it -- when I feel anxiety or anything worse. Please try it. Again, remember how it feels to be elsewhere, remember how it feels to love, remember how it feels to be comforted by someone you trust. Simply remember how you used to feel when you felt safe. Maybe be you can cry now? Let yourself cry if you can. Everyone here is thinking of you. Rosetta Thank you, Rosetta. It is easy to have hope when you get windows or can see little improvements. I continue to get worse and worse. I’m so scared. Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks. Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline. March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it. 6/16/18 - 6/26: celexa 1.25mg 6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose 6/30/18 - present: celexa 1.25mg Link to comment
TryingToHoldOn Posted February 13, 2018 Author Share Posted February 13, 2018 On 1/7/2018 at 10:50 PM, Terry4949 said: Ttho , I know just how you feel I am in the same boat our symptoms are so a like I like you pray that I don’t wake up tomorrow , mornings for me are always a lot worse my body feels like it is full of poison , we have to just try and survive today I am so sick so I truly no what you are feeling hang in there . Terry, I hope you’re finding some relief. Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks. Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline. March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it. 6/16/18 - 6/26: celexa 1.25mg 6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose 6/30/18 - present: celexa 1.25mg Link to comment
TryingToHoldOn Posted February 13, 2018 Author Share Posted February 13, 2018 On 1/17/2018 at 6:55 PM, Madeleine said: Just wanted to offer my positive thoughts. Have faith and hope. You will feel better. Thank you, Madeleine. Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks. Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline. March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it. 6/16/18 - 6/26: celexa 1.25mg 6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose 6/30/18 - present: celexa 1.25mg Link to comment
TryingToHoldOn Posted February 13, 2018 Author Share Posted February 13, 2018 On 1/28/2018 at 6:43 PM, Kristine said: Hey T, just thought I'd pipe in with LG and reassure you you are not alone with these symptoms. I get burning skin but mainly my arms and legs. I've also had burning soles of my feet. Felt like they had been dipped in acid. I resorted to strapping on ice packs. The latter only happened over a two day but continuous period...it was approximately 10 days after a 5mg drop of dexamphetamine (prior to SA education). Hope this eases soon. K 🌻 K, I read your story awhile back, but was too unwell to post. You are a courageous woman. I truly hope you win this fight. I wish I could be as gracious and level-headed in the midst of this. Wishing you lots of strength and endurance. Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks. Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline. March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it. 6/16/18 - 6/26: celexa 1.25mg 6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose 6/30/18 - present: celexa 1.25mg Link to comment
Rosetta Posted February 13, 2018 Share Posted February 13, 2018 1 minute ago, TryingToHoldOn said: Thank you, Rosetta. It is easy to have hope when you get windows or can see little improvements. I continue to get worse and worse. I’m so scared. Yes, I know that without the windows it is much harder. I am so sorry for what you are experiencing. I wish I could help you somehow. You will have a window. Until then I'll be sending the best thoughts your way. --Rosetta https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25 2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born) 2012-2016 - Doctors raised dose of Zoloft up to 150 mg 2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction) 2016 - Stopped Xanax Late 2016- Began (too fast) taper of Zoloft Early 2017 - Trazodone prescribed for bedtime (doseage unknown) Feb 2017 - Completed taper/stopped Trazodone Drug free since Feb 2017 2017 - Unisom otc very rarely for sleep Link to comment
TryingToHoldOn Posted February 13, 2018 Author Share Posted February 13, 2018 On 1/28/2018 at 8:34 PM, LexAnger said: Hi Trying, i have been following you for a while and know how you feel and your struggling as I am going through very similar situation for a few years. i have the severe burning ( pins and needles when it's bad) allover my head, face, upper body all these years day in and out during taper and still do now I'm 4 months off. My head feels like exploding and actually feels like a rock. My numb is so bad making my entire left brain and body paralyzed. I know I have been kindled by updosing lexapro multiple times so I'm not even sure if these symptoms are from Wd or drug reaction. is the burning brain a new symptom for you just started recently? I read your earlier updates and saw it was there too.is it different from before? Also have you ever had it before you stopped those drugs? i keep reading the success stories especially when I feel very desparate so to keep the faith that we eventually will heal even its so hard to believe after years of journey. From many others experience, your turning point can be any day and hour! I remember Baylissa said new symptoms is a sign of healing. hope you get a nice long break soon! lex Lex, i am so so sorry that you’re suffering from these horrendous symptoms. I’ve read your thread and am astonished that even a slow taper didn’t protect you. You have a positive attitude that will serve you well. I never had physical symptoms until I was reinstated on sertraline in the hospital and ended up with serotonin syndrome. Prior to that, I just had horrendous and anxiety and severe suicidal depression with crying spells. The adverse reaction has destroyed me. Beginning of month 10 ALL my symptoms ramped up 10 fold and i’m nit sure how much longer I can hang on. I am terrified. i hope that you see recovery soon and i’m So sorry you’ve had to go through this painful journey. Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks. Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline. March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it. 6/16/18 - 6/26: celexa 1.25mg 6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose 6/30/18 - present: celexa 1.25mg Link to comment
TryingToHoldOn Posted February 13, 2018 Author Share Posted February 13, 2018 On 1/29/2018 at 11:04 AM, Survivor1 said: Oh Trying, my heart breaks for you. I do not know what to suggest; are you at least sleeping somewhat? These drugs have caused so much suffering, but the professionals don't seem to get it. I applaud you for not taking any meds for WD symptoms (like for sleep for instance). I am not at you level of suffering, but I do understand how hopeless it can feel at times. I seem to have developed serotonin syndrome and now have to figure out how to discontinue my drug as safely but as quickly as possible. Please hang in there, many are rooting for you. Thank you for your support, Survivor. Very bad sleep stool. Insomnia since Dec2016 and I don’t take anything for sleep. Serotonin syndrome should be taken very seriously. Please proceed cautiously and wisely. I pray that you’re able to untangle yourself from these drugs smoothly. Wishing you all the best. Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks. Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline. March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it. 6/16/18 - 6/26: celexa 1.25mg 6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose 6/30/18 - present: celexa 1.25mg Link to comment
TryingToHoldOn Posted February 13, 2018 Author Share Posted February 13, 2018 On 2/6/2018 at 2:50 AM, anongrl5590 said: Hey Trying - I just stumbled upon your thread and wanted to say hello and that I am experiencing all the same symptoms as you have (plus more unfortunately)! I CT off of Prozac and am now 16 months out. I have severe burning, squeezing brain almost everyday so I know how that must feel for you. Even right now as I type this, I have the burning brain. It's so excruciating! But it does come and go. I really hope we both see some improvements soon and make it to the next window of relief (even if it's not 100% relief). Would you say you've made improvements since the beginning months of WD? A, I’m sorry that you have burning brain. It’s horrible, but i’m Glad that yours comes and goes. Have you seen much improvement at 16 months off? i found significant relief at 8 months, but got thrown back into excruciating hell at 10 months. I’m back to surviving each second with absolutely no relief since. Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks. Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline. March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it. 6/16/18 - 6/26: celexa 1.25mg 6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose 6/30/18 - present: celexa 1.25mg Link to comment
TryingToHoldOn Posted February 13, 2018 Author Share Posted February 13, 2018 13 minutes ago, Rosetta said: Yes, I know that without the windows it is much harder. I am so sorry for what you are experiencing. I wish I could help you somehow. You will have a window. Until then I'll be sending the best thoughts your way. --Rosetta R, Thank you. I hope you continue to see improvement. It’s important that you do for your husband and little girl. Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks. Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline. March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it. 6/16/18 - 6/26: celexa 1.25mg 6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose 6/30/18 - present: celexa 1.25mg Link to comment
TryingToHoldOn Posted February 13, 2018 Author Share Posted February 13, 2018 Update: 11 months off This will be my last update unless I see some significant improvement. I’ve wanted to reach out to so many people, but have been unable to engage due to WD. I see a lot of brave people out there who endure day in and day out. You don’t realize how strong you are! I found significant improvement at 8 months off. For the first time I had hope and could actually see improvement. Then at 10 months it’s been a steady and rapid decline with no relief since. I have so many symptoms, but here are the ones that plague me the most: *insomnia - severe (since Dec 2016) *suicidal depression - constant *intense/uncontrollable crying spells *panic/terror/anxiety *despair - never ending *cognitive impairment - severe *akathisia - severe *head/brain symptoms: burning, pulsating, throbbing, pressure, numbness, stabbing On my best day, I tell myself I can make it until bed time even though every second is a struggle. On my worst day, I wish I would just die to end this physical and mental suffering. These type of days reign. I hope that I can return to my thread one day and report profound healing. That is the miracle I constantly pray for. Mid 2014 - June 2016 (~ 2.5 yrs): sertraline 75mg. Under advice of my Pysch NP, weaned off in 1 month Sept 2017 - Feb 2017 (6 months): Latuda (dose 20mg up to 80mg). Under advice of Psych NP, weaned off in 6 weeks (Jan - mid Feb). Tirtated down 20mg every 2 weeks. Nov 2017 - Feb 2017 (3 months): lamictal 100mg. Abruptly taken off. This was the "wean": 100mg, 50mg, then off Feb 2017: sertraline 150mg for 1 week to bring me out of a severe suicidal depression. Abruptly stopped due to serotonin syndrome. Tried to reinstate 50mg a week later, but the serotonin syndrome symptoms came back. Not possible to reinstate sertraline. March 2017: remeron 7.5mg. Took one dose that knocked me out for two days. Refused to take it again February 2017 - March 2017: Ativan 1mg. Took 5 pills total spread out over the course of 3 weeks. No longer taking it. 6/16/18 - 6/26: celexa 1.25mg 6/27/18 - 6/29: celexa 2.5mg, 6/29 had burning and agitation within 30min of dose 6/30/18 - present: celexa 1.25mg Link to comment
Littlegrandma Posted February 13, 2018 Share Posted February 13, 2018 Oh T im praying for a miracle for you!! im so sorry you’re in such agony. It makes my heart hurt. I hope to see you on this thread soon. That will be a good sign. You will heal. I’m just sorry it is taking so long. Big hugs to you and hope we hear from you soon. Love, Lg. xx Lex 4.3mg, 3/2/18 Ativan ,5 mg, lunesta 2 mg , toprol 25 mg Oct 16-28 2018 C/O to 19 mg V from 1.5 mg Ativan, 1.3 mg lunesta jan 22 2019- 11 mg V jan 23 - pneumonia, 2 AB’s. Hold taper july 5- 10.72 V July 6- 11 mg V- ugly bad july 11- 10.72 mg V, 4.3 lex, 25 mg toprol Link to comment
LexAnger Posted February 13, 2018 Share Posted February 13, 2018 Hi trying, totally understand. I'm too waiting for a good turning point before my next update. remember you are not alone and healing is happening even we feel it's not. Be kind to yourself and just wait for your time to come. lex Drug free Sep. 23 2017 2009 Mar.: lexapro 10mg for headache for 2 weeks. 2009-2012: on and off 1/4 to 1/3 of 10mg 2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain 2013 Jan-Mar: 10 mg generic. severe jaw and head pain; 2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain 2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg, 2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on 2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks. 2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR 2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg 2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg, Link to comment
Rosetta Posted February 13, 2018 Share Posted February 13, 2018 2 hours ago, TryingToHoldOn said: I hope that I can return to my thread one day and report profound healing. That is the miracle I constantly pray for. You will, Trying. You know that I went through a period almost as intense as yours? It's not on my thread in real time. It was impossible for me to join here during that time. I joined after it began to improve -- after I had a couple of Windows. I had all of your symptoms except the head/brain symptoms. I am so very glad I was able to make it through. It was one day at a time. One hour at a time. It lifted. I know it seems that it never will. I know it seems that it will last forever. It won't. You will get through this. I know you will. Rosetta https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25 2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born) 2012-2016 - Doctors raised dose of Zoloft up to 150 mg 2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction) 2016 - Stopped Xanax Late 2016- Began (too fast) taper of Zoloft Early 2017 - Trazodone prescribed for bedtime (doseage unknown) Feb 2017 - Completed taper/stopped Trazodone Drug free since Feb 2017 2017 - Unisom otc very rarely for sleep Link to comment
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