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rupa

From 8th June Brain not going into sleep.

No day time symptoms,no sleeplessness related problems.

Day times are peaceful as if I am getting full night's sleep...!

 

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bhasski

Sleep is necessary and should be restorative.

But its atleast good that you are having a good daytime.

 

For me, any natural sedation stopped working since starting and stopping meds... no sweet  lassi (once  my favorite), no curd works, but I still hope the body someday will recover.

 

Wish you get better.

 

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rupa
40 minutes ago, bhasski said:

Sleep is necessary and should be restorative.

But its atleast good that you are having a good daytime.

 

For me, any natural sedation stopped working since starting and stopping meds... no sweet  lassi (once  my favorite), no curd works, but I still hope the body someday will recover.

 

Wish you get better.

 

Hi Bhasski

Thank you.

I wish some magic would happen to heal you , me, this forum mates and all the other sufferers in the world.

Last night I thought if I skip dinner by having early supper, I may get sleep.

It worked!

I had jaggery, pudina,Tulasi, lemon mixed juice at bed time.

I slept like baby.

I know , I may not get proper sleep every day,

As I have reached very low doses and tapering with liquid doses.

Take care my friend.

 

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bhasski
10 hours ago, rupa said:

Last night I thought if I skip dinner by having early supper, I may get sleep.

It worked!

I had jaggery, pudina,Tulasi, lemon mixed juice at bed time.

I slept like baby.

Thats great.

 

I will also try eating only supper.

 

Can you explain how did you make the juice ? All the things are home available.. only to see pudina if its there in market.

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rupa
1 hour ago, bhasski said:

Thats great.

 

I will also try eating only supper.

 

Can you explain how did you make the juice ? All the things are home available.. only to see pudina if its there in market.

Make a paste of pudina and tulasi,

add water and jaggery.

Heat it. Then add lemon and strain it.

Drink hot or cold.

I prefer ice cool...:)

Today i added little ginger and haldi.

 

 

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bhasski

 

34 minutes ago, rupa said:

Make a paste of pudina and tulasi,

add water and jaggery.

Heat it. Then add lemon and strain it.

Drink hot or cold.

I prefer ice cool...:)

Today i added little ginger and haldi.

 

 

Pls also  tell the quantity approx for a glass or two.

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rupa
44 minutes ago, bhasski said:

 

 

 

Pls also  tell the quantity approx for a glass or two.

I am making 2 glasses (500ml) every evening.

Yesterday I took little quanties and enough jaggery.

When i found it very tasty and sleepy i felt happy.

So Today i made 2 glasses by taking handful of pudina and tulasi, little ginger and haldi.

Jaggery according to your taste.

I am feeling sleepy today too.

 

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bhasski

Hi,

I had the drink yesterday night. It has made.me sleepy , but has no effect hypagogic thing and rls ... which don't let sleep come.

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rupa
4 hours ago, bhasski said:

Hi,

I had the drink yesterday night. It has made.me sleepy , but has no effect hypagogic thing and rls ... which don't let sleep come.

Hiya Bhasski

I wonder , why hypnagogic hallucinations hit you now, after so many months of your cold turkey..!?

I am predicting that my hypnopompia will turn into hypnagogia , as soon as I hit zero olanzapine...:(

In that case , I will wait for few months and check whether I can sustain on sleeplessness,if not I will survive on 0.625 mg , which is a very low dose of olanzapine.

How is your apetite?

Are you eating plenty of fruit, curd rice, mixed veg curries, dry fruits, kaju badam etc?

I can feel How hard you are coping up with sleeplessness...:(

 

 

 

 

 

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bhasski
42 minutes ago, rupa said:

Hiya Bhasski

I wonder , why hypnagogic hallucinations hit you now, after so many months of your cold turkey..!?

I am predicting that my hypnopompia will turn into hypnagogia , as soon as I hit zero olanzapine...:(

In that case , I will wait for few months and check whether I can sustain on sleeplessness,if not I will survive on 0.625 mg , which is a very low dose of olanzapine.

How is your apetite?

Are you eating plenty of fruit, curd rice, mixed veg curries, dry fruits, kaju badam etc?

I can feel How hard you are coping up with sleeplessness...:(

 

 

Its  not new. I have posted it here several times before, may be a year before.

I just didn't know the name - now calling hypnagogia ( not sure for this).

 

Apetite is slightly better. I would say 60% of my usual. Eating almonds, walnuts l, curd, rice, chapatis, dal and cooked veggies as a daily stack.

 

But I always feel uneasiness in stomach and cramps.

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rupa
2 minutes ago, bhasski said:

 

 

Its  not new. I have posted it here several times before, may be a year before.

I just didn't know the name - now calling hypnagogia ( not sure for this).

 

Apetite is slightly better. I would say 60% of my usual. Eating almonds, walnuts l, curd, rice, chapatis, dal and cooked veggies as a daily stack.

 

But I always feel uneasiness in stomach and cramps.

Chapathi is the reason for uneasiness in stomach.

Test a month or two by avoiding chapathi.

As in South India we all believe that chapathi is heat producing in stomach.

I always feel upset stomach after chapathi. I need to drink plenty of chaaz after eating chapathis.

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bhasski

I had tried so. Actually I wasn't able to eat more than 1 in whole day.

 

But couldn't find relief. 

 

Aside this, roti ( fulka) is staple here and everyone in my family complains nothing about it if its home food.

 

 

This whole problem arose after the ADs and APs. 

I can feel the difference drugs has caused physiologically and mentally. Its like the mental trauma.

 

 

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rupa
27 minutes ago, bhasski said:

I had tried so. Actually I wasn't able to eat more than 1 in whole day.

 

But couldn't find relief. 

 

Aside this, roti ( fulka) is staple here and everyone in my family complains nothing about it if its home food.

 

 

This whole problem arose after the ADs and APs. 

I can feel the difference drugs has caused physiologically and mentally. Its like the mental trauma.

 

 

You are right Bhasski,I never seen North Indians complain about rotis.

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rupa

I have experienced new brain in these 2 years while on olanzapine.

I realised what ever we call feelings like hurt, anger, hatred etc all nothing but mere chemicals acting up.

But , from yesterday I started feeling hurt about my mother's words!

Shall I be happy that I am getting myself back .

I wonder, how can my brain forgot that it is all chemicals acting up , for everybody including my mom.

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rupa

Today afternoon I slept.

For the first time in 2 years, I slept afternoon without the help of olanzapine.

Semi sleep, shallow sleep ,dreamy sleep ...but I slept.

The thing is Three hours of this sleep provided me that unique normal , before medicines kind of peace in the brain.

It seems there is hope.

I can finish taper slowly and can get back to normal self eventually it seems.

 

 

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bhasski
On 6/19/2018 at 10:24 PM, rupa said:

Today afternoon I slept.

For the first time in 2 years, I slept afternoon without the help of olanzapine.

Semi sleep, shallow sleep ,dreamy sleep ...but I slept.

The thing is Three hours of this sleep provided me that unique normal , before medicines kind of peace in the brain.

It seems there is hope.

I can finish taper slowly and can get back to normal self eventually it seems.

 

 

Grt news.

 

Provides hope.

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jamesbond747
Posted (edited)
On 6/19/2018 at 9:54 AM, rupa said:

Today afternoon I slept.

For the first time in 2 years, I slept afternoon without the help of olanzapine.

Semi sleep, shallow sleep ,dreamy sleep ...but I slept.

The thing is Three hours of this sleep provided me that unique normal , before medicines kind of peace in the brain.

It seems there is hope.

I can finish taper slowly and can get back to normal self eventually it seems.

 

 

 

i feel now you might even start tapering off olanzapine now that you are able to sleep a little better.Daily morning walks and a protein rich diets will go a long way in helping to avoid withdrawal.

 

 

Edited by Altostrata
removed mod note

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Altostrata

Good to hear, rupa. Keep steady in your dosing for a time, let your nervous system relax.

 

jamesbond, you are too new to give tapering advice.

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rupa
4 hours ago, Altostrata said:

Good to hear, rupa. Keep steady in your dosing for a time, let your nervous system relax.

 

jamesbond, you are too new to give tapering advice.

Yes Madam Altostrata,

I am going to do Micro Taper.

Thank You.

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Carmie
11 minutes ago, rupa said:

Yes Madam Altostrata,

I am going to do Micro Taper.

Thank You.

 

All the best with your microtapering Rupa, 

 

I’m going to do it as well in the future. I’m just having a bit of a break at the moment. Let me know how you go when you start to taper again. Never taper when you still have severe symptoms as you will pay for it and you will end up having to hold a long time and you really won’t get any further. It will just cause more misery. 

 

You’re right about all the weird feelings we get, definitely chemically induced. One of these days we will all be free of these chemicals. We just need to keep taking a day at a time. We will get there in the end!

 

 

Sending hugs🤗

 

 

 

 

 

 

 

 

 

 

 

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rupa
20 hours ago, jamesbond747 said:

 

 

MOD NOTE:  Please see Alto's response in this post:  rupa-risperidone-victim

 

i feel now you might even start tapering off olanzapine now that you are able to sleep a little better.Daily morning walks and a protein rich diets will go a long way in helping to avoid withdrawal.

 

 

Hi jamesbond747,

How are you now?

Give every month updates at your thread.

So others will know , how you are improving.

That will be useful to the people who are similar to your case.

Remember,While tapering It is at the lower doses, we have to be patient and taper even very slow.

How is your sleep?

Are you facing dreams and sleep disturbance?

------

I have used risperidone and tryhexyfenidyl combination tablet SIZODON LS for one month and my childhood and later on trauma disappeared.

My anger on Abusive mother gone with medicines.

She didnt change a bit.But I changed.

I was giving positive replies to her.

So she fed up poking me.

The more we react to bad parents , the more they will get amused.

So medicines are helpful if trauma is too heavy on our souls.

Only thing, we should know , how to taper safe, when we feel to come out of medicines.

Take care ma.

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rupa
10 minutes ago, Carmie said:

 

All the best with your microtapering Rupa, 

 

I’m going to do it as well in the future. I’m just having a bit of a break at the moment. Let me know how you go when you start to taper again. Never taper when you still have severe symptoms as you will pay for it and you will end up having to hold a long time and you really won’t get any further. It will just cause more misery. 

 

You’re right about all the weird feelings we get, definitely chemically induced. One of these days we will all be free of these chemicals. We just need to keep taking a day at a time. We will get there in the end!

 

 

Sending hugs🤗

 

 

 

 

 

 

 

 

 

 

 

Thank you for your help Carmie,

I would like to go through your thread.

Hugs.

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Banana121
On 19 June 2018 at 5:54 PM, rupa said:

Today afternoon I slept.

For the first time in 2 years, I slept afternoon without the help of olanzapine.

Semi sleep, shallow sleep ,dreamy sleep ...but I slept.

The thing is Three hours of this sleep provided me that unique normal , before medicines kind of peace in the brain.

It seems there is hope.

I can finish taper slowly and can get back to normal self eventually it seems.

 

 

That's great progress Rupa!

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rupa
On 21 June 2018 at 9:00 PM, bhasski said:

Grt news.

 

Provides hope.

Thank you...:)

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rupa
5 hours ago, Banana121 said:

That's great progress Rupa!

Thank you.

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Miko789
On 6/19/2018 at 7:54 PM, rupa said:

Today afternoon I slept.

For the first time in 2 years, I slept afternoon without the help of olanzapine.

Semi sleep, shallow sleep ,dreamy sleep ...but I slept.

The thing is Three hours of this sleep provided me that unique normal , before medicines kind of peace in the brain.

It seems there is hope.

I can finish taper slowly and can get back to normal self eventually it seems.

 

 

 

 

Rupa  great news. there's always hope

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rupa
44 minutes ago, Miko789 said:

 

 

Rupa  great news. there's always hope

Thank you Miko

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rupa
On 14 June 2018 at 9:02 PM, rupa said:

From 8th June Brain not going into sleep.

No day time symptoms,no sleeplessness related problems.

Day times are peaceful as if I am getting full night's sleep...!

 

My condition is still same.

From 8 th June , whole night my brain being active and not being in sleep state.

What should I do?

My next reduction in tapering is 1st July .

Now I am confused.

Shall I reduce or wait for sleep get better?

The thing is ,right from the beginning if I use the dose more than four weeks, brain going into unbearable state.

When I reduce the dose as a part of tapering that is when my brain feels comfortable until four weeks.

If I don't reduce the dose for any reason, right from the fourth week I feel unbearable.

So What should I do now?

I am scared, why Brain not going into sleep state at all for these many days?

Is this normal while we taper at lower doses?

Any experienced person please help.

 

 

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Altostrata

rupa, did olanzapine ever help you sleep?

 

Do you take 2.5mg olanzapine at the same time each day? What time?

 

On 6/22/2018 at 3:21 PM, Altostrata said:

Keep steady in your dosing for a time, let your nervous system relax.

 

rupa, do not taper. Take your drugs at the same time each day, at the same dosages. Do not reduce the dosage.

 

 

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Altostrata
On 2/13/2018 at 9:04 PM, rupa said:

26/Dec/16 to 26/Feb/17--risperidone 1mg and olanzapine 5 m.g

risperisone tapered 15 days to 0.5 mg and stopped

26/Feb/17 to 26/Mar/17--olanzapine 10 mg

26/Mar/17 to 26/Apr/17--olanzapine 7.5mg

26/Apr/17 to 26/May/17--olanzapine 5 mg

26/May/17 to 26/Jun/17--olanzapine 2.5mg

26/Jun/17 to 26/Jul/17--olanzapine 1.25m.g[Failed to taper at this stage due to brain going into dream stage when ever I attempt to sleep,thus no sleep at all and started using  olanzapine 5 m.g at nights ,pacitane 2 m.g mornings,All neuran plus {B-Vitamins}for afternoons]

07/oct/17 to 07/nov/17—olanzapine 4.375 nights,morning pacitane 2m.g   

07/Nov/17 to 07/Dec/17--olanzapine 3.725 nights,pacitane 2 m.g for mornings. 

07/Dec/17 to 07/JAN/18--Olanzapine3.125 for nights,pacitane 2m.g for mornings,omega6 and B1 vitamins for afternoons. 

From 07/jan/18 to 12/Feb/18– olanzapine2.5 m.g for nights, pacitane 2 m.g for mornings ,

B12 ,B1,B,B9,B6,Antioxidant(Alpha Lipolic Acid)for afternoons.   

13/Feb/18 to 13/Mar/18 olanzapine 1.875 for nights

pacitane 2 m.g for mornings 

                                           

 

On 4/26/2018 at 10:31 AM, rupa said:

Jumped to zero olanzapine.

Little scared at this moment.

I know next 15 days will not be easy.

---------------------------

Lesson Learnt : Never give a damn to people in positive or negative manner which will lead you to agony.

Be kind to every one without judging positive or negative manner.

Look at what Lotus Leaf is teaching.

Never allow a mere thought to dare to touch your heart in positive or negative manner.

Love thyself.

Be composed as extremes will harm your brain.

Eat healthy,drink healthy.

Baby sit your Brain.

-----

pacitane 0.5 mg mornings.

 

 

 

On 4/30/2018 at 10:22 PM, rupa said:

2.30 to 3 hours deep sleep later 3 hours of disturbed sleep. 

This is 4 rth day in a row. 

Today it hitted hard. 

Heavy headedness.

Sleepy feeling.

Jumped to Zero Pacitane from 0.5 mg.

As it is for safeguard of olanzapine, no point to use pacitane further.

Could not bear any medication any more.

 

 

On 5/3/2018 at 9:56 PM, rupa said:

Reinstated olanzapine 0.625 and slept well.

No further taper plans as of now.

Will research how to come out of it by restoring natural sleep.

I heard in quora about stem cell therapy for brain.

Need to know more about that.

 

On 5/13/2018 at 1:22 AM, rupa said:

Hi...:)

I am stabilized on 0.625.

After jumping to zero suffering with sleeplessness continuously 10 days.

So many wierd symptoms all over the body.

Dj said insomnia will last years.

So frightened and get back to 0.625.

Ever since Researching online how to get past to zero without insomnia.

Did not find any solution so far.

I feel there is no getting back to before meds state of mind.

I wonder how powerful these meds are working even at the lowest dose like 0.625!

I am sleeping 10 hours.

Lingering on hypnopompia before waking up.

I want to come out of hypnopompia.

I want cure.

I want my natural sleep back.

😢

 

On 6/14/2018 at 8:32 AM, rupa said:

From 8th June Brain not going into sleep.

No day time symptoms,no sleeplessness related problems.

Day times are peaceful as if I am getting full night's sleep...!

 

 

rupa, on April 26, you went to zero olanzapine, then you quit Pacitane 4 days later. This is when you started having sleeplessness.

 

When did you reinstate olanzapine? Is it 0.625mg or 2.5mg that you're taking?

 

 

 

 

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rupa
2 hours ago, Altostrata said:

rupa, did olanzapine ever help you sleep?

 

Do you take 2.5mg olanzapine at the same time each day? What time?

 

 

rupa, do not taper. Take your drugs at the same time each day, at the same dosages. Do not reduce the dosage.

 

 

Yes Madam Altostrata,

Olanzapine helped me to sleep.

 

I have been taking olanzapine at 8 pm every day.

 

 

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rupa
2 hours ago, Altostrata said:

 

 

 

 

 

 

rupa, on April 26, you went to zero olanzapine, then you quit Pacitane 4 days later. This is when you started having sleeplessness.

 

When did you reinstate olanzapine? Is it 0.625mg or 2.5mg that you're taking?

 

 

 

 

Within 8 days I reinstated olanzapine Madam.

I quit at 0.625 as I did not know how to taper further.

As soon as I got help from Miss Jancarol, I stabilized on 0.625 for four weeks , and then reduced the dose.

Now I am taking 0.55mg 

I slept well untill June 8 th.

 

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Altostrata

If I were you, I'd go back to 0.625mg olanzapine. You reduced it too soon. Please plan to stay at this level for 3 months, let us know how you're doing before reducing again.

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rupa
59 minutes ago, Altostrata said:

If I were you, I'd go back to 0.625mg olanzapine. You reduced it too soon. Please plan to stay at this level for 3 months, let us know how you're doing before reducing again.

That will be wise it seems.

I will do that.

Thank you.

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Carmie
On 6/23/2018 at 1:37 PM, rupa said:

Thank you for your help Carmie,

I would like to go through your thread.

Hugs.

 

Hi Rupa, How are you doing? I see you reduced a bit too soon. You got given some good advice here about holding longer. The holds are really just as important as the percentage you taper by. 

 

When I haven’t held long enough I’ve payed the price. It isn’t worth it. You don’t get anywhere any quicker, you just end up with longer severe waves. 

 

Slow and steady does it. Sending hugs🤗

 

 

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rupa
4 hours ago, Carmie said:

 

Hi Rupa, How are you doing? I see you reduced a bit too soon. You got given some good advice here about holding longer. The holds are really just as important as the percentage you taper by. 

 

When I haven’t held long enough I’ve payed the price. It isn’t worth it. You don’t get anywhere any quicker, you just end up with longer severe waves. 

 

Slow and steady does it. Sending hugs🤗

 

 

Thank you carmie

I always hold four weeks

Some times I hold more than four weeks and I could not tolerate the medicine , so I had to taper .

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