Scorpio: Will this ever end?

[Scorpio]

Hi jc

thank you for the names will now go searching and ordering hopefully to get some much needed relief. 

Hugs

[Junglechicken]

1 minute ago, Scorpio said:

Hi jc

thank you for the names will now go searching and ordering hopefully to get some much needed relief. 

Hugs

 

The great thing about the Internet Scorpio, is that you don't need to step out of your house to shop for things, lol 

 

You WILL get relief, I assure you!  I had non-stop bladder issues, started taking the Bearberry, and never had my issues since.

 

Hugs xx

[Scorpio]

Hi jc

ordered. Now just await delivery. 

Hugs

[Scorpio]

hi wantrelief and rosetta

thank you ladies for your support when I know you are both fighting your own tough battles. 

Hugs

 

[Junglechicken]

1 hour ago, Scorpio said:

Hi jc

ordered. Now just await delivery. 

Hugs

 

Brilliant! You should receive tomorrow or the day after.

 

Enjoy relief :0)

 

Hugs xx

[Littlegrandma]

3 hours ago, Junglechicken said:

 

My mouth is fine (dentist could see no issues).

 

You can order supplements for nervous system online at : The Natural Dispensary.

 

For bladder, try "Bearberry" in liquid form....you use a tincture and dilute with water.  I can tell you my bladder behaves beautifully when I take this stuff, lol!  First Nations people used it for centuries to help with bladder issues, and it works.

 

Hugs

Hey JC

Have you tried the slippery elm yet? If so, did it work?

[Junglechicken]

19 minutes ago, Littlegrandma said:

Hey JC

Have you tried the slippery elm yet? If so, did it work?

 

It hasn't arrived yet Lg 

 

Will let you know  once I get started.

[Littlegrandma]

Thanks JC

[wantrelief]

3 hours ago, Scorpio said:

ordered. Now just await delivery. 

I so hope this helps, Scorpio!!

[RealMe]

On 3/12/2018 at 12:43 PM, Scorpio said:

Hello RealMe

When I have good days the tinnitus can reduce to almost nothing so I’m keeping everything crossed that the better I get the more it will go. I certainly wish the same for you. I think it’s a matter of time and getting these drugs our of our system. 

Hi Scorpio,

Just wondering if you have had improvement in your tinnitus symptoms.  I am still struggling with it, but I have had times when it is not as bad. Still looking for tips and encouragement.  Hope you are doing well.

Best,

RealMe

[Flowers]

Thinking of you Scorpio and hoping your cold goes away soon and you start to feel better.

 

Love and hugs

 

Flowers xxx

[Scorpio]

Hi RealMe

well as I am on the floor with this rotten cold the tinnitus is playing it’s usual cruel game but when the W/d eases the tinnitus definitely gets much quieter so I think there is hope for the pair of us that with time it will get better. 

[Scorpio]

Hi flowers

thank you my friend. I am a snivelling wreck still at the moment. 

‘Love ann

[Scorpio]

Still going through a bad time. Anxiety dominates everything and cannot get control of it no matter what I do to try and distract. Unable to do much at all. Fatigue high and nausea. Tinnitus. Burning. Awful thoughts. Si. Lack of appetite again. 

Keep telling myself I had three good days recently but losing hope they will come back. 

Back down the rabbit hole trying desperately to find a way out. 

[Junglechicken]

Scorpio,

 

Are you taking any supplements to help calm your CNS?

 

You can also adjust your diet to calm it too.

 

I know you have a weakened immune system, so there are 2 "systems" in your body that need extra TLC:

 

Immune system

CNS

 

If you can get supplements to help both, as well as other calming practices, I think you will climb back out of the "rabbit hole" with ease.

 

Love,

JC xx

[Scorpio]

Hi jc

I appreciate what you are saying but I am so sensitive to any drugs/supplements I am frightened to try something and plunge myself into further turmoil. I can’t take magnesium or fish oil. I have the l-theanine you recommended here but am in such a state I am too scared to try it in case it works against me again. 

Hugs

[Junglechicken]

HI Scorpio,

 

I understand your fears, but you can also use diet to calm your CNS and boost your immune system.  

 

That said I know you don't have much appetite either, but soups (bone broths, chicken noodle) and juices can provide much needed nutrients if you can't stomach solids.  

 

Just over a year ago I was on death's door, and have reached this milestone in my healing.

 

Hugs

 

 

 

 

[Scorpio]

Hi cj

thank you. I eat lots of fruit, protein even if just a little, generally a balanced diet. It is up and down depending on severity of wave like now. Most of our food is home cooked ie real food although again when unable to manage cooking it is down to whatever my husband can get his hands on. 

‘I am scared of making anything worse but will try the theanine. I keep thinking tomorrow will be better but I’m still waiting. 

 

[Junglechicken]

31 minutes ago, Scorpio said:

Hi cj

thank you. I eat lots of fruit, protein even if just a little, generally a balanced diet. It is up and down depending on severity of wave like now. Most of our food is home cooked ie real food although again when unable to manage cooking it is down to whatever my husband can get his hands on. 

‘I am scared of making anything worse but will try the theanine. I keep thinking tomorrow will be better but I’m still waiting. 

 

 

Then you're doing the right thing Scorpio, and I understand how the nausea puts a stop to being able to eat anything.

 

The end of the wave will come.

 

Hugs

[wantrelief]

6 hours ago, Scorpio said:

Still going through a bad time. Anxiety dominates everything and cannot get control of it no matter what I do to try and distract. Unable to do much at all. Fatigue high and nausea. Tinnitus. Burning. Awful thoughts. Si. Lack of appetite again. 

Keep telling myself I had three good days recently but losing hope they will come back. 

Back down the rabbit hole trying desperately to find a way out. 

Oh Scorpio, my brave friend....I am so very sorry this awful wave has not let up.  It will get better....just keep hanging on as you are and this will go in time.  It all just takes way more time than we want it to.  You will get back to those better days, my friend.   I am thinking about you and sending big big hugs  - WR.

[Scorpio]

Hi wantrelief 

‘thank you my friend for all the support you give me even though you are suffering yourself. 

Hugs

[Rosetta]

Oh, Scorpio.  I'm sorry you are struggling.  I wish I could say something more than " this will pass," "take some magnesium," "try to distract," blah, blah, blah!!!  It's so frustrating, isn't it?  I'm so over it!  But it is going to let up.  It always does, thank God.

[Scorpio]

Hi rosetta

thank you so much for your kind words when you also are in rabbit hole land. God it gets so wearing doesn’t it. Magnesium doesn’t like me so stuck with trying to distract but very hard at the moment. 

‘I hope you are feeling better. 

[coldturkmama]

Have you looked in to any of Claire Weekes’ books, or her method of dealing wit a sensitized nervous system?

i know our issues are WD related but these methods can help us now. I hope you get some relief.

[Scorpio]

Hi coldturkmama

 

thank you for the info. I haven’t but I will have a look for her. Hopefully I can get some relief. 

[Scorpio]

Moderators help

 

one year update

 

at this moment have been going through the worst wave for past 9 days with very brief respite breaks. The week prior to this was the best week I have had since w/d loved life, interested in everything and full of energy and enthusiasm.  It now feels so cruel to be plunged into the following symptoms 

 

extreme anxiety - overwhelming me and cannot get a grip on dealing with it

nausea

loss of appetite

tinnitus very loud again

dizziness

Loose bowels

bunrning head and legs

pins and needles in hands. 

Si

tearful

aching body 

fatigue

 

I am still taking 1mg of melatonin at night which helps me to generally get a good 6 hours sleep although this varies

trying to use mindfulness and breathing 

 

 

i am still holding on 1mg cipralex as don’t want to make things even worse.  My hope is that I will get longer windows of being fairly stable and can then start reducing the cipralex.  

 

‘Would appreciate any comments or hope that this will eventually settle 

[Junglechicken]

2 hours ago, Scorpio said:

Moderators help

 

one year update

 

at this moment have been going through the worst wave for past 9 days with very brief respite breaks. The week prior to this was the best week I have had since w/d loved life, interested in everything and full of energy and enthusiasm.  It now feels so cruel to be plunged into the following symptoms 

 

extreme anxiety - overwhelming me and cannot get a grip on dealing with it

nausea

loss of appetite

tinnitus very loud again

dizziness

Loose bowels

bunrning head and legs

pins and needles in hands. 

Si

tearful

aching body 

fatigue

 

I am still taking 1mg of melatonin at night which helps me to generally get a good 6 hours sleep although this varies

trying to use mindfulness and breathing 

 

 

i am still holding on 1mg cipralex as don’t want to make things even worse.  My hope is that I will get longer windows of being fairly stable and can then start reducing the cipralex.  

 

‘Would appreciate any comments or hope that this will eventually settle 

 

Hi Scorpio,

 

Really sorry that you're suffering this badly one year out.

 

Something that might help with the loose bowels is a probiotic called "Saccharomyces boulardii" which is a non-pathogenic yeast.

 

It does work.

 

As for the rest of your list, I'm experiencing similar symptoms, but they come and go.  The aching body is really unpleasant, stiff joints etc., are very noticeable when walking down stairs.

 

You're not alone my friend, and from what you've said in the past, you're doing everything you can (given certain limitations) as your CNS is so sensitive.

 

HUGS,

JC xxx

 

 

[Scorpio]

Hi jc

 

thank you for your words of support I’m only sorry you are also suffering.  This is just a nightmare with no end at the moment made worse after having had such a good 5 days I had a taste of what good was although still far from my old social self. 

 

Thank you for the tip tip on the yeast product, will look into it. 

 

Hope you feel better very soon. 

Hugs

[Junglechicken]

2 minutes ago, Scorpio said:

Hi jc

 

thank you for your words of support I’m only sorry you are also suffering.  This is just a nightmare with no end at the moment made worse after having had such a good 5 days I had a taste of what good was although still far from my old social self. 

 

Thank you for the tip tip on the yeast product, will look into it. 

 

Hope you feel better very soon. 

Hugs

 

It always comes down to the same thing though, how we deal with it.

 

My therapist has told me to buy a book called "Mind over Mood" which is CBT.

 

I will work through it with her to try and change my negative thinking...……...

 

Hope you feel better soon too.

 

Hugs

[wantrelief]

Bump

 

[Altostrata]

Hello, Scorpio. Are you taking one drop of Cipralex or 1mg?

 

What is your daily symptom pattern? Does the nausea occur at any particular time of day?

[Scorpio]

Hello Alto

 

thank you for responding, it is one drop of cipralex that I have been told by the pharmacy, doctor etc is 1mg  and I take it each morning in a small amount of water.  

 

my Symptoms on a daily basis can vary, whilst going through this two week wave -

 

waking between 5 to 6am. High anxiety, burning head , loud tinnitus, grumbling stomach, pins and needles in fingers. 

‘Nausea comes and goes during the day.

 Sharp pains in head comes and goes during the day.

 Legs feeling very heavy - constant. 

  Fatigue - constant. 

Tearfulness and si hit at times during the day  

dizziness is less frequent - not every day and at different times

loss of appetite - constant throughout the day. 

Loose bowels - generally only in morning 

 

today - as well as above

disturbed vision this afternoon - have not had that for quite a few weeks

bowel cramping this afternoon - have not had that for quite a few weeks 

 

prior to this two weeks had the nearest I have been to having a good window which lasted a wonderful 5 days. Anxiety, tinnitus, my constant companions were much less and my appetite fully returned. All the other symptoms disappeared. 

[Altostrata]

What time of day do you take Cipralex? Look at the bottle, when does the liquid expire? Have you been storing it properly?

 

Overall, do you feel better, worse, or the same compared to 6 months ago?

[Scorpio]

Hi alto

 

i take the cipralex at the same time - 7am - every day. I throw however much is left in a bottle away after 3 months which is what they recommend and open a new bottle. I store it the same as I always have in a cool cupboard. 

 

I have days where I feel better plus the 5 consecutive days I mentioned earlier. Also in April I had three days entirely symptom free. The waves though seem to be longer without a reprieve although it does ease to an extent in the evenings. I have found in the last month or so that I can now lay on the floor without becoming dizzy which since w/d was impossible. I also find when the symptoms ease I can take an interest in my garden again, which I loved and had lost complete interest or energy in.  Again I can enjoy a magazine when symptoms are easier something I lost. So I think there have been improvements but disappear when waves hit and the waves out number the good days at the moment. 

[Rosetta]

(((Scorpio)))

[mirage]

@Scorpio Hi. Sorry to hear about the wave, I, too, am in the middle of a huge, rough wave. I am 13 months into this journey. I was doing better and then July 2nd I went down. I have had very, short windows here and there these past couple of weeks. And I mean, very short. This has been a difficult and strong wave and it seems to be lasting quite long. 

 

My worst symptoms are dizziness, anxiety and head pressure that radiates into my jaw and creates a feeling of fullness in my ears. I also have an odd thing with my vision. Hard to describe. It is especially weird in the dark or dim lit rooms. It makes the dizziness worse. I saw, in one of your post, that you weren't able to lay on the floor because the dizziness would get worse. I have that too. I can lay on the floor on my stomach with a pillow under me but can't lay flat on my back. I notice it is getting slightly better. 

 

Wishing you another window soon and recovery. Stay strong!